Lucy Challis

Representative in Surrey

We first found out about CRY in January 2006 when we lost my brother to undiagnosed arrhythmogenic right ventricular cardiomyopathy (ARVC) after he collapsed on the football pitch.

After family screening, I too was diagnosed with ARVC and had my first defibrillator fitted in May 2006.

I began to attend CRY’s myheart meetings and everyone was so friendly and welcoming. Since that first meeting I have become one of the ‘old hands’ and welcomed many new faces, and as a group we have always wanted to help raise the profile of CRY.

When CRY asked me to become a Representative it seemed the natural next step to help make more people aware of young sudden cardiac death, and by talking from personal experience I hope that I can help make the message get through.

Lucy (right) with CRY myheart cardiologist Dr Michael Papadakis (second row, middle) and other members of CRY’s myheart network.

If you would like more information about the myheart network and the support services that we offer, such as the literature we provide and information on different cardiac conditions, you can visit the myheart website at www.myheart.org.uk.

There is also the myheart YouTube channel, which includes content such as videos sent in by members sharing their experiences of being diagnosed or undergoing certain tests, as well as myheart cardiologist Dr Michael Papadakis answering a range of frequently asked questions. You can go to the myheart YouTube channel here: https://bit.ly/2QjiTyl

And here’s where you can find the myheart network on social media:

@myheartnetwork

@myheart_UK