CRY Update Magazine Issue 88

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@CRY_UK CardiacRiskintheYoung In this Newsletter Bereavement Support Vitality London 10,000 RideLondon - Essex 100 Heart of London Bridges Walk Our Fundraisers Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk Visit our websites: www.c-r-y.org.uk www.sads.org.uk Toreceivetheonlineversion oftheCRYUpdate,visit: www.c-r-y.org.uk/ subscribe CardiacRiskintheYoung | 13 | 14 | 15 | 16 | 17 News and Events | Raising Awareness | Our Fundraisers Update 88 | May to August 2022

CRY Update 88 May to August 2022

Deputy Editors

Ashley Benjamin Editor and Policy Author

As Deputy Editors of the CRY Update it is our responsibility to put together this newsletter, and our ambition that you find all the CRY news, events and fundraising in these pages to be of interest.

We try to endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to contact CRY if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section.

If you would like to contact us about the magazine please do so via updatemag@c-r-y.org.uk or on 01737 363222. Thank you for your help.

Contributors

Inside Update 88

Meet Our Representative

News from the Chief Executive

CRY Online

CRY Screening Report

CRY Centre for Cardiac Pathology (CRY CCP) Report

Alison’s Column

Bereavement Support

Vitality London 10 000 RideLondon - Essex 100

Heart of London Bridges Walk

Our Fundraisers

Raising awareness with the Update

Fundraising Events

Raising Awareness in the Media Report

For more details regarding the events shown on the cover, please turn to the corresponding page references below. Images are listed clockwise from top left:

1. A group of volunteers at the CRY Heart of London Bridges Walk. Page 16.

2. 180 mile cycle through Holland and Belgium in memory of Owen Morris. Page 35.

3. A group of supporters at the CRY Heart of London Bridges Walk. Page 16.

4. Team CRY cyclists at RideLondon-Essex. Page 15.

5. Two supporters at Tower Bridge as part of the CRY Heart of London Bridges Walk. Page 16.

No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor. The Editor welcomes letters but reserves the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of Cardiac Risk in the Young (CRY). Articles pertaining to health-related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more.

Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised.

If you can supply a writeup or photos for any fundraising activities you have taken part in, please email update@c-r-y.org.uk

Images of CRY Patrons and Members of Parliament throughout have been highlighted in red.

6. Stephanie Simpson Lake District Challenge in memory of James P Patterson. Page 37. 7. Skydive in memory of Christopher Cowe, by Abbey, Josh, and Andrew. Page 24.

8. A Team CRY cyclist at RideLondon-Essex. Page 16. 9. Carboot by Bill and Hilary Durrant in memory of Jennifer Bucknell. Page 21. 10. Southwark Park Bandstand on the day of the CRY Heart of London Bridges Walk. Page 16

Event in memory of Ella Bury. Page 21.

fundraising event in memory of Jonathan Hayman. Page 29.

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Issue 88 | May to August 2022 2
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12. Darts
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Fundraising
Alan Lumley’s sister completed the distance of a half marathon to mark Alan’s 37th birthday. Page 33.
Alison
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Sue & Dave Hughes Representatives in

Stoke-on-Trent

We live in a small village called Bignall End, between Newcastle-under-Lyme and Crewe. “Our Dan” was the village postman, so he was well known to most people in our community. He walked 5 miles per day on his round, he ate properly, looked after himself, didn’t smoke or take drugs. He was a fit and healthy 28 year old young man who loved sport; he had played football since he was 10 years old and had captained his local team the weekend before he died. There was no reason for anyone to think he would be taken from us so suddenly…

“I’m going up now Dad.”

“OK son, I’ll see you later.”

This conversation seemed pretty normal at 9:30 P.M. on the evening of March the 18th 2015. Little did we know that it would be the last time anyone would speak to him. My wife Sue and I had been chatting with him over dinner as normal. He was his usual chirpy self; laughing and joking as he pretty much always did. Sue had gone to bed earlier, leaving us working on a project on his iPad. She heard Dan get up and go to the bathroom at around 1 A.M. on the 19th of March. He returned to his room, closed his door and went to sleep. He never woke up!

There are no words to describe the devastation and loss of Dan’s passing. It has had a huge effect on us as his parents, his sister Kim, his mates and the community as a whole. But it has also galvanised us as a family into trying to do something about it. Being asked to become CRY representatives for Stoke-on-Trent was a complete surprise as well as being a huge honour for us. It’s something we take very seriously.

Raising awareness is one of our key objectives; we have been featured on BBC TV Midlands Today on two occasions, numerous radio stations and have had articles published in newspapers and online media outlets. As well as our own area, we have represented CRY in Preston, Hull, Cumbria, Cheshire, Derbyshire and Nottinghamshire, to name but a few.

Our fundraising work has raised over £340,000 for CRY which has enabled us to stage 37 screening days where 3,522 young people have been seen and 164 have been

Meet Our Representative

referred. We have also been able to buy a new van for CRY which bears Dan’s name and travels all over the country with the screening teams. In addition to the van, we have also purchased an ECG machine and made a donation to the research centre. This year alone, Dan’s memorial fund has paid for the screening of 1,057 young people; but we are not ones to rest on our laurels, so plans are already in place to beat that number next year as we look to help CRY reduce their waiting list.

Earlier this year, we were honoured to get to meet the then Prime minister Boris Johnson at 10 Downing Street, where we got to tell him about Dan and the importance of the work that CRY does. Our local MP, Aaron Bell, is also very supportive of what we do and has been involved in our fundraising.

I am also a member of CRY’s bereavement support team, having spent 2 years training between 2018 and 2020. I have now provided support to a number of bereaved fathers. Again, this is something that I take very seriously.

So, as you can see, CRY has become a large part of our lives since we lost our precious son. My wife Sue, daughter Kim and I find great comfort in the work that we do. We can think of no better legacy for him than to know that he is having a positive impact on other young people’s lives.

We will continue with our work in his name. Love you son…

Proud parents Sue & Dave Hughes.

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Thank you for everything that you continue to do to support CRY and raise awareness within your local communities. Included in this section are a number of media stories from May to August, as well as information about some of CRY’s events in this period.

May

CRY Research Fellows run in

London 10,000

May 2nd

Some of CRY’s medical team – including Trustee Jayesh Makan, Professor Sanjay Sharma and Professor Michael Papadakis – took part in the Vitality London 10,000 in May, raising almost £11,000 for CRY’s research programme. #Run4Research.

Turn to page 14 to read the full write up.

RideLondon-Essex 100 2022

May 29th

The event this year returns, after two and a half years, with a brand-new route leaving the Surrey countryside behind and moving to Essex. 6 participants, including

CRY Trustee Peter O’Donnell, took part in the Ride London-Essex 100. The new route for 2022 saw participants set off from Victoria Embankment in central London and into Essex via the historic Epping Forest. Once back in central London, participants completed their ride at Tower Bridge.

Turn to page 15 to read the full write up.

Parris Family feature

in

national article in The Daily Mirror

May 23rd

After the tragic death of her son, Daniel Parris, in February 2022, Nichola Parris arranged a charity golf day with family and friends; and Daniel’s brother, Matt Parris, ran in the Hastings Half-Marathon in memory of Daniel. Nichola’s determination was reported by The Daily Mirror, raising incredible awareness of young sudden cardiac death and CRY’s work. By speaking so publicly, the Parris family will help spark awareness amongst teenagers and young adults who, all too often, are not aware of sudden cardiac death in young people or the steps that can be taken to protect themselves.

Read the full article here: http://bit.ly/3VH1KPv

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News from the Chief Executive

This issue includes personal stories from myheart members, a Sunrise Radio interview with myheart’s Consultant Cardiologist Dr Sabiha Gati, FAQs, articles, and fundraising stories.

The myheart network offers information and support to young people who have been diagnosed with a cardiac condition. For more information, visit www.myheart.org.uk

Read more here: https://bit.ly/3VzI4wN

British Cardiac Society award CRY’s Research Team

June 6th - 8th

In June at the 2022 British Cardiac Society, CRY’s research team received fantastic recognition for their latest work. Dr Raghav Bhatia and Dr Hamish MacLachlan were both nominated for the Young Investigator Awards for their research into the impact of Covid on the heart and the presentation of latest findings from CRY’s cardiac screening programme.

Both Raghav and Hamish also won the outstanding awards of ‘Best of the Best’ in their respective categories for their research. This is a tremendous achievement which demonstrates the ongoing impact of CRY’s research programme.

myheart Newsletter published June 9th

The annual myheart newsletter was published in June. As well as being sent to members digitally/in the post this was also sent to 168 cardiac units in hospitals across the UK.

Sunrise Radio Interview with Surinder Singh

June

This interview was aired on Sunrise Radio’s morning show with Shabnam Sahi raising awareness for CRY’s flagship event the CRY Heart of London Bridges Walk, and why supporters participate each year.

Surinder Singh and his niece Sandesh talked about CRY’s bereavement support, their participation in the walk since 2012 in memory of Surinder’s brother, Sukhwinder, and what it means to them; and the importance of raising awareness of CRY’s work.

Listen here: https://youtu.be/3kL1_QPdJcw

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June
News from the Chief Executive

CRY Returns to London for 2022 Heart of London Bridges Walk

June 26th

Many of CRY’s events had to go virtual over the last two years due to the pandemic. The CRY Heart of London Bridges Walk was no exception, and we saw an incredible amount of support up and down the country, with supporters walking in their local communities even though we couldn’t gather in the usual way.

This year, it was a pleasure to welcome supporters back to London for this special event. We returned to our new base in Southwark Park at the bandstand. A total of 709 walkers came to the park from 9am, slowly gathering and connecting with other supporters and uploading messages and photos to our message wall. 128 messages and photos were shared by participants about why they were taking part, and who they were walking in memory of.

We were grateful to CRY Patron Phil Packer who joined

us to speak about his journey with CRY and this event, before heading over to the start line to get the walk underway. Supporters set off at 11am, passing London landmarks Tower Bridge, the Shard, St Paul’s Cathedral and more.

After the walk we gathered back at the bandstand for the CRY Family Picnic with music and singing from Nunhead Community Choir, food stalls, and glorious weather to rest in and reflect on the day. It was very moving to see everyone back in Southwark Park after two years away.

Meanwhile all around the UK, 117 supporters were taking part in My Walk for CRY and taking their own routes in their local areas. We created this walk during the height of the pandemic, and kept it going this year to accommodate anyone unable to make it to London. My Walkers also made use of the digital message wall, sharing their photos from the day alongside memories of those they were walking for.

Read the full write up on page 16

July

CRY Ambassador Ivan Thomas takes on Ironman Challenge

July 2nd

The BBC published an article about CRY Ambassador, Ivan Thomas’ Ironman Challenge, raising awareness of the incidence of young sudden cardiac death and CRY’s work carrying out screening events within the sports community.

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News
Chief Executive
from the

Ivan first became aware of CRY when his Leeds University Cricket Captain died suddenly from an undiagnosed heart condition. Ivan himself also has a heart condition, and has had surgery as a youngster, and again during his time playing cricket for Kent. “My [heart] condition was picked up really fast and dealt with immediately and I was in and out of surgery with no further issues. This story is sadly not common enough as screenings for heart conditions in people aged 14 - 35 is so low.”

The Ironman Challenge starts with a 2.4 mile swim in Lake Thun, Switzerland followed by 112 mile cycle through the Alps before finishing with a full marathon. Ivan completed the challenge to raise money for CRY and the Professional Cricketers Trust.

Read more here: https://bbc.in/3iRqTrS

Research Highlights

July 21st

CRY’s latest digital Research Highlights booklet covers all of our research news, conferences, and developments from 2021.

This issue includes videos of all presentations from the 2021 virtual CRY International Medical Conference, including talks by Professor Sanjay Sharma, Professor Michael Papadakis as well as many other international experts. The 2021 Research Highlights also contains interviews with CRY Research Fellow Dr Raghav Bhatia and CRY cardiologist Professor Michael Papadakis about their latest work.

You can read CRY’s 2021 Research Highlights directly on Issuu here: http://bit.ly/3UMpobU

August European Society of Cardiology Conference

August 26th - 29th

CRY’s research had a high impact at this year’s European Society of Cardiology Conference in Barcelona. 50,000 delegates attended in person, with a further 8,000 online. Professor Sharma and Professor Papadakis both gave two presentations, including one by Professor Papadakis which was “state of the art”.

During the conference Professor Papadakis took the role of President of the European Association of Preventative Cardiology for 2 years. Dr Sabiha Gati also presented research at the European Association of Preventative Cardiology (EAPC) Sports Cardiology Course which showed how to differentiate between ARVC and RVOT VT.

Dr Raghav Bhatia presented 3 pieces of CRY research which were well received by the international community. “Sudden cardiac death during exercise in the young” was nominated for the Young Investigators Awards and came a close second.

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News
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Social media

Social media is a vital part of how CRY interacts with supporters and, first and foremost, raises awareness of young sudden cardiac death and what can be done to tackle it – from preventative measures (screening) to bereavement support for those affected by a tragedy. In the CRY Online segment, we look back at the fourmonth period the Update covers and include a small selection of social media highlights, such as Facebook posts that reached an amazing amount of people, or supporters who tweeted memorable photos to us.

In this four month period CRY’s Facebook page recorded over 1.7 million impressions (the number of times a post appears on someones individual feed), with our Instagram gaining followers and engagement too. This is a fantastic illustration of how many people our key messaging and updates are reaching online.

In June, as part of the CRY Heart of London Bridges Walk, we once again turned the CRY homepage into a digital message wall for those families taking part in the walk. Photos and memories were added, to show the true incidence of young sudden cardiac death. One of our top Twitter posts from June highlights just how impactful the message wall is. We had 128 photos and memories uploaded on the day.

A post that had over 600 reactions and 35 shares on Facebook was a national news article post sharing the fundraising story of CRY Supporter Nichola Parris and her family. After arranging a charity golf day and running in the Hastings half-marathon, family members have raised over £20,000 in memory of Daniel Parris.

Nichola’s story was picked up by the Daily Mirror and raised incredible awareness of CRY’s work, as well as garnering a high amount of interaction on social media.

A popular Instagram post from this period was highlighting one of our CRY Screening vans out on its travels around the UK. Each time we post images of the van, it has always proved to be popular. It’s great for our supporters and families alike to see that their hard work fundraising for screening events is paying off. This particular van was

Interacting with us on social media is an easy way to keep up to date with any CRY information you might need. You will receive updates on upcoming events and screenings and photos from fellow supporters. Every share of a post helps spead awareness about CRY a little further. So, if you’d like to follow along, here’s where you can find us:

Issue 88 | May to August 2022 8 CRY Online
donated in memory of Isabelle Tudisca.
CardiacRiskintheYoung @CRY_UK CardiacRiskintheYoung

Ella Bury died suddenly in 2014, aged 17. Ella’s mum, Karen Green raised money to have 20 defibrillators installed around Coventry and Warwickshire in memory of Ella, and has now turned her focus onto fundraising for heart screenings in her local area. Karen and her friends and family have held multiple fundraising events including a raffle and race night. The money raised will fund screenings for the local villages, and netball community in Warwickshire.

Each year we are able to put on our flagship events due to the generosity of our wonderful volunteers. They donate their time allowing big events to run smoothly and successfully. This year’s CRY Heart of London Bridges Walk was no exception, with volunteers marshalling the route, running stalls, handing out snacks and water, giving medals and taking photographs of the day. A huge thank you to each and every one of you who kindly gave your time, some of whom volunteer every year.

We highlighted the CRY families whose fundraising efforts make our screening days possible. CRY screenings are generally funded by Memorial Funds which have been set up following the tragic death of a young person due to a young sudden cardiac death. The families, friends and local communities affected often raise funds to bring the screening service to their local area. CRY encourages the free screening service to cover as much of the UK as possible and are very proud of our supporters and families who help us screen nearly 30,000 people each year.

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CRY Screening Report

Between May and August 2022, CRY screened over 7,000 people

614 athletes were screened at sports screenings including: British Canoeing, Welsh Rugby Union, Kent County Cricket Club, Essex County Cricket Club, Bristol Bears Premiership Rugby, Leicester Tigers Premiership Rugby, Arsenal FC Academy, Harlequins Premiership Rugby, Exeter Chiefs Premiership Rugby, Saracens Premiership Rugby, Bath Premiership Rugby, RFU England Senior Women, Wasps Premiership Rugby, Newcastle Falcons Premiership Rugby, London Irish Premiership Rugby, Stockport County FC, Sale Sharks Premiership Rugby.

6,972 people were screened at family screening events, held in memory of: Dale Tennent-Butler, Alan Bain, Madeline Siddall, Aaron Dixon, Steve Wiggins, James Patterson,

What happens at a screening?

The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart.

Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire.

If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby.

Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform.

The screening programme is under the aegis of Professor Sanjay Sharma.

Laura Hillier, Jake Anthony Pickford, Ben Hammond, Jack Thomas, Sara Pilkington, John Pirie, Euan Campbell, Ben Forsyth, Dean Mason, Andrew Murch, Pete McAvoy, Matthew Seymour, Lily Webster, Robert Rowan, Neil Ward, Charlotte Orwin, Joseph Halliwell, Stewart Howard, Luke Clayton Rutter, Scott and Mike Thurlow, Richard Waight, Andrew Key, Daniel Hughes, Carli Lansley, Joseph Leyland, Gary Edwards, Yasmin Caldera, Daniel Blackman, John Millar, David Williams, Adam Lewis, David Green and Michael Clarke.

627 more people were screened at events held at CRY’s office in Leatherhead, Surrey.

414 people were screened at other screenings and school screenings held in Clapham, Bristol, Crowthorne and Essex.

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Members of CRY’s screening team at an event held in Burtonwood Community Centre in memory of Adam Lewis. Members of CRY’s screening team at an event held at Idris Davis School in memory of Jake Pickford.

CRY Centre for Cardiac Pathology (CRY CCP) Report

As the referral pathology lab for cardiac cases in the UK we have worked hard to maintain our case numbers. In this four month period we reported 141 hearts and 150 spleens. All these were reported within the 14 day time frame of receiving the case so families get the cause of death within this time frame which is a vital part of our service.

Training and Education

Our latest cohort of Forensic Pathology trainees Dr Danial Masur and Dr Nasfati have successfully completed their rotation in our department. We also have a forensic pathologist Dr Davide Radaelli from Trieste in Italy for 6 months who carried out several projects. We have built up an international reputation for training in cardiac pathology and many publications due to these collaborations. Next year we will welcome pathologists from Malaysia and Denmark to join our unit.

We would like to congratulate Joseph Westaby, a key part of our cardiac pathology team, for attaining his Clinical Lectureship in histopathology here at St Georges University. This means he will now be training and researching further into sudden cardiac death.

The lab welcomes new visitors weekly to see the good work we do here and to collaboratively research. Below is Professor Kerstin Baiker, an Ape Heart, veterinary science researcher who came to refer slides from a gorilla heart. (Below Professor Sheppard, Kerstin, Davide).

Departmental news Laboratory Technician Clementine Cheyne is the latest addition to our team. We wish her a warm welcome and look forward to training her over the coming month.

To learn more about the research completed at the CRY CCP and Professor Mary Sheppard’s work, you can watch her presentation at the 2019 CRY Family Research Day on our YouTube channel here: bit.ly/2Dmg6RU

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The Team in the lab. Left to right: Javeria Nishtar, Professor Mary Sheppard, Dr Joseph Westaby, Pablo Tome, and Davide Radaelli. Below: Professor Sheppard; Syafinaz (a student gaining experience in our lab); Davide Radielli; Dr Joseph Westaby

Family may confront tragedy in different ways

Alison Cox MBE founded the charity Cardiac Risk in the Young (CRY) in 1995.

As an experienced counsellor, Alison developed a national bereavement support programme for families who have been affected by a young sudden cardiac death. Alison’s columns have been written based on her personal experience of talking to thousands of bereaved family members since she founded CRY.

supporting families, I have written many articles on different aspects of grief, sharing my experience with the hope it will in some way help you. This page includes many of the articles I have written as well as links to other support resources which we hope will help you now or at some time in the future.”

CRY have created a new web archive of Alison’s Update columns. We will be continually adding to this collection with historical columns in the hope that they might help now or in the future.

Alison has written a column in each new issue of the Update Magazine since its inception, beginning with ‘News from the Chief Executive’ in 1995, to her column as we see it today about many aspects of grief and supporting affected families when they experience a young sudden cardiac death.

“I founded CRY in 1995 to help support families after a young sudden cardiac death and to try to save young lives through greater awareness, screening and research. Over the next 25 years I talked on the phone with more than 2,000 bereaved mothers, fathers, partners, siblings, grandparents as well as friends and relatives of so many young people who died so suddenly, so tragically, without any warning. During this period of

Read more at www.c-r-y.org.uk/alisons-columns

If someone close to you suddenly dies anniversaries are something, that I have learnt, most of our bereaved families and friends cannot, indeed do not ever want to, escape from. Their suffering is immense but is not easy to share. Their feelings grind and jangle with the demands of everyday life as they struggle to come to terms with the inexplicable tragedy that threatens to take over

their present – and future too.

‘Anniversaries: following a young sudden cardiac death’ features 17 short chapters from family members talking through their personal experience of having to find ways of coping with the often brutal reminders of what is now missing from their lives – combined with the enduring comfort they find when family members and friends show they have not forgotten the significance of an important “date”.

If you would like to order or download your copy of the booklet please visit: www.c-r-y.org.uk/anniversariesbooklet/

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Alison’s

Bereavement Support

CRY has a network of Bereavement Supporters who have themselves been affected by a young sudden cardiac death. They have completed a two-year counselling course so that they can offer support, over the telephone, to others. No matter how much professional support is offered (either medical or therapeutic), sometimes just chatting to someone “who has been through a similar experience” helps the most.

Some CRY supporters who have received bereavement support were kind enough to offer their feedback about their experiences.

“The help and support that I received and have been able to share with friends and family has been, and is, so valued. When we didn’t know which way to turn, CRY has been there for us. From organising our family testing, to the comforting and inspirational conversations I’ve had with my Bereavement Supporter.” Linda Cotrill, CRY Supporter

“I found my Bereavement Supporter very easy to talk to, I felt I could literally talk to him about anything that was on my mind. He was also a very good listener, who obviously knew where I was coming from, which meant that I did not feel the need to pretend that everything was alright. I felt that he took a genuine interest in me (and my family) and it also helped me, hearing about how he had coped with the loss of his own son.

At the start of each call, I wondered if I would struggle to find enough to talk about. However, with every session, the time flew by and every hour was filled. I think that says everything.” Richard Dearnley, CRY Supporter.

CRY offers telephone bereavement support to anyone (aged 18 and over) who has lost a young person to a sudden cardiac death. Where possible, we will try to

place people with a Bereavement Supporter who has experienced the same aspect of grief, for example another bereaved sibling or bereaved mum. If we do not have a Bereavement Supporter who has experienced the same aspect of grief, and you would like to speak with someone, please be assured we would still arrange for you to speak with one of our Bereavement Supporters. Your Bereavement Supporter is someone who is there specifically for you to speak with about your tragedy.

The telephone support that we offer is for up to six months. However there is no pressure or obligation. Some people would like to speak weekly for the entire six months; whilst others decide that they would just like a couple of calls with someone who has been through a similar experience. p

If you would like to speak about bereavement support contact CRY’s support team on 01737 363222 or email: cry@c-r-y.org.uk

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Thank you to the team of CRY Research Fellows who took part in the Vitality London 10,000

Some of CRY’s medical team – including Trustee Dr Jayesh Makan, Professor Sanjay Sharma and Professor Michael Papadakis – took part in the Vitality London 10,000 in May, raising almost £11,000 for CRY’s research programme. #Run4Research.

CRY CEO Dr Steven Cox was at the event to cheer on the team, and met them at the end to thank and congratulate them on their incredible achievement.

We are so grateful to our team of doctors and Research Fellows for taking on this challenge and choosing to raise money for CRY.

CRY’s research is focused on the causes and prevention of Young Sudden Cardiac Death and treatment of those at Risk. CRY’s research programme also; supports screening & NHS referral services; trains cardiologists to become specialists in young sudden cardiac death.

The 7 runners in the CRY Team were: Professor Sanjay Sharma, Professor Michael Papadakis, Dr Jayesh Makan, Dr Raghav Bhatia, Dr Nikhil Chatrath, Rachel Simmons and Dr Anna.Marciniak.

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London 10,000

Around 20,000 cyclists took part in the event, with brand new routes into Essex. Riders taking on the 100-mile challenge made their way into Essex via the historic Epping Forest. From there, they cruised past some of the county’s most picturesque towns and villages – where residents lined the streets to cheer them on – for around 65 miles, before heading back into central London, where a rapturous applause awaited them at Tower Bridge: a fitting end to an epic day in the saddle.

Team CRY, including CRY Trustee Peter O’Donnell, were congratulated and welcomed back at the meet and greet area on Tooley Street by CRY staff and volunteers. CRY riders were given a CRY medal along with some snacks and refreshments. After taking their photos and meeting the family and friends of Team CRY, it was lovely to speak to the team about their experience.

We are so very grateful to all of our cyclists for taking on this challenge and for choosing to do so for CRY.

The 6 cyclists in the CRY team were: Paul Hollinghurst, Mike Leaf, Crad Lowe, Peter O’Donnell, Louise Skelton and Paul Daniels.

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Thank you and a massive congratulations to the 6 cyclists who participated on Sunday 29th May

CRY Heart of London Bridges Walk 2022

CRY returns to London for 2022 Heart of London Bridges Walk

Over the last two years, many CRY events have gone virtual due to the pandemic. This has included the CRY Heart of London Bridges Walk, with supporters completing walks in their local communities around the country rather than all gathering together as normal.

On 26 June 2022, we were so pleased to be able to return to London for the 16th anniversary of this special event. For the first time in 2019, we moved the Heart of London Bridges Walk to a new starting venue at Southwark Park and returned again this year. Walkers began arriving in the park from 9am and gathered around the band stand, connected with other participants, and uploaded their messages and photos to our message wall screen. A total of 709 walkers came to take part.

Once walkers had arrived, CRY Patron Phil Packer MBE began our speeches.

“I just wanted to share a little bit of why it’s such an impact for me to be a Patron when my life hasn’t been affected by cardiac risk in the young,” Phil said to open his speech. “In 2009, I did the London Marathon, after I sustained spinal cord injuries, over 14 days, and after that I was asked to be a Patron of CRY.

CRY has shaped me so much in what I do now in the charity sector, because in 2010, when I did the London Marathon again, I did it in 26 hours. And for one of those miles I was joined by young ambassadors and families and friends of CRY to raise awareness. It was through that experience that I really started to understand what

I wanted to do going forward, with a new life with a disability. It’s an absolute honour to be a Patron of CRY.”

“Thank you very much indeed for inviting me today,” Phil said as he began to end his speech. “It really is a joy to be here and I know how special a day it is and I can really feel that, and I have done on the times that I’ve been here before. So thank you very much and have a fantastic walk today.”

Next, CRY Chief Executive Dr Steve Cox gave our final speech of the morning. He began by thanking everyone who helped make the day possible, from volunteers and participants to food vendors, before highlighting the importance of the event, CRY’s screening programme and research.

“I know many of you are joining us once again as you have done for many years and that’s absolutely fantastic,” Dr Cox said. “But I’d like to also say how sorry I am for those of you who are attending for the first time, because no one

Issue 88 | May to August 2022 16

CRY Heart of London Bridges Walk 2022

would ever want to have to be in a position of reaching out to a charity like CRY. But also thank you for coming and joining us today, because I hope today will be the first day in your life since the tragedy that your family experienced where you will be with so many other families who will know what you feel.”

part in their own local areas or could not make it to to London completed their own walking routes around the country. 117 people completed the My Walk for CRY, which is a great way to be involved on the day and raise awareness locally.

The CRY Heart of London Bridges Walk is always an emotional day. It was so special for everyone to gather together, especially after not being able to make it to London for two years due to the pandemic. Thank you to all of our supporters who took part, whether you completed your My Walk For CRY or came to the main event.

“Young sudden cardiac deaths don’t only devastate by taking away life too soon. They also introduce so much uncertainty, and so often it’s impossible to understand and comprehend what has happened,” Dr Cox added.

“That’s why we must do everything we can to prevent sudden deaths from heart conditions. We are always humbled to see the incredible lengths you all go to, to raise awareness and fundraise in your local communities. The way in which communities come together is truly amazing, and it’s been what has taken CRY from where we started in 1995 to where we are today.”

After the speeches, we held a minute’s silence.

Then at 11am, it was time for the walk to begin. As always, our 5-mile route went past many of London’s iconic landmarks. This included Tower Bridge, the Tower of London, The Gherkin, St Paul’s Cathedral, Shakespeare’s Globe, and The Shard. We also introduced a new quiz to test our walkers along the route with some London trivia.

After making their way through the heart of London, walkers headed back to Southwark Park for the CRY Family Picnic. Back at the park, there was delicious food and drink on offer from 75 Slices, Bratwurst Bros, Chocolate Balloons, and Smokin’ Bean Coffee Truck. As everyone spent time with other walkers, there was also a performance from the Nunhead Community Choir to enjoy. Meanwhile, many CRY supporters who wanted to take

Thank you to our fantastic team of volunteers as well. Events like this are only possible because of your help! CRY’s volunteers were: Krisztina Cserhalmi, Jenny Boag, Rochelle Burrows, Julie and Michael Essex, Caroline and Peter Gard, Rachel Groom, Wendy and Phil Harrington, Sam Helm, Jo and Nick Hudson, Jim and Barbara Holland, Kelvin Holt, Victoria Joy, Jasmine Lambert, Cyril Molony, Tim Munyanyi, Bill and Rosie Taylor, Dai Taylor, Vicky and Aaron Walker, Paul Ward, Toby Ward, Lucy WasdellBowyer, Matt Wilson, India Woodward, Rebecca Zouvani, Ciara Lucas, Lizzie Peers, Ruth Moore and Larissa from Lari Yoga who led a yoga class at the park in the afternoon.

And finally, thank you to our sponsors ServiceMaster Clean, Chubb, and Saputo Dairy UK.

www.c-r-y.org.uk 17

Our Fundraisers

Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from May to August 2022.

Corrections

Unfortunately, due to the size of the Update, with so many fundraisers to acknowledge and there being some overlap with memorial fund names, there can occasionally be mistakes. We always strive to enforce new methods to eradicate such administrative errors,

InMemoryof Charlotte Adams

Louisa Quilter completed the Chelmsford Marathon in memory of Charlotte and in support of CRY, raising £445.00.

InMemoryof Gary Anderson

Chris Brown raised £210 by completing a Swimathon Individual 5K challenge.

InMemoryof Ronnie Armitage

Amanda completed the Yorkshire Dales 3 Peaks Challenge in memory of Ronnie, raising £725.00.

InMemoryof Jack Atkinson

Richard Baker sent £624.00 raised from an Easter egg raffle held at The Brace of Pistols Pub.

but we apologise if you have ever been affected in some way by this.

If you see a mistake in the Update or you have any questions, please do not hesitate to contact CRY via UpdateMag@c-r-y.org.uk

InMemoryof Karl Baddeley

Lewis Acred donated £100.00. InMemoryof

Alan Bain

• Tommy and Fiona Allum donated £100.00.

• Dianne Tait donated £100.00.

InMemoryof Terence Bamblett

Kathy Bamblett sent £1,031.27 representing donations received in lieu of floral tributes, in memory of her husband Terence.

InMemoryof Richard Barlow

Natalie Peters sent £480.00 respresenting donations received in lieu of floral tributes, in memory of her father Richard.

“The image is of our beautiful Dad. The reason we sent the money to CRY is that my dad’s younger brother passed away when he was 46 due to cardiomyopathy which we were totally unaware of, this charity was therefore very close to my

Issue 88 | May to August 2022 18

dad’s heart, which is why we thought it would be nice to give the donation money from his funeral to your brilliant charity.

InMemoryof Cecilia Barriga

Mike Fleet sent a donation of £175.00 raised from book sales.

InMemoryof Matthew Beadle

• Lynne and Tony Beadle sent in £202.61 raised from merchandise sales and donations made at a fundraising event.

• John Stock sent in £500.00 from the Rotary Club of Greenwich in respect of a talk given by Lynne and Tony Beadle at the club.

InMemoryof David Bell

Linda Kite sent £125.00 representing donations received in lieu of floral tributes, in memory of her husband David.

InMemoryof Richard Belton

Daniel Teasel completed the Manchester Marathon in memory of Richard, and in support of CRY, raising £367.40.

InMemoryof Katie Benson

Eva Hill completed the Cambridge Half Marathon in memory of Katie and in support of CRY, raising £598.00.

Our Fundraisers

InMemoryof Ben Birch

Patricia Boniface donated £100.00.

InMemoryof Bessie Blackburn

Anne Poskitt donated £165.00.

InMemoryof Daniel Blackman

• Sarah-Jane Loudon donated £100.00.

• Hazel Blackman sent £229.97 from a cake sale.

InMemoryof Tuqiri M Blackwell

Denis McKeown sent a donation of £400.00 which was raised in the Whitehaven RLFC sponsors’ lounge with the help of Mark Stamper.

InMemoryof Steven Blair

Susan Blair donated £230.00.

InMemoryof Jack Boulton

June Boulton sent in money raised totalling £305.00.

www.c-r-y.org.uk 19

InMemoryof Jack Branch

• Robert Porter sent a donation of £151.00 on behalf of Lesley Branch from the sale of her husband Jack’s slotstox motors and bodyshells.

• AXA XL has given a Match Giving donation of £271.69 in relation to Mark Banham’s fundraising efforts.

• Robert Porter sent a donation of £692.80 from a Slotstox meeting in memory of Jack.

InMemoryof Richard Brember

• Bracknell Rugby Club donated £5,000.00.

• £2520 was raised by Gordon Brember, Chris Brember, Loz Blackburn, Steve Watt, Bob Whitworth, Ben Whitworth, Bug Wrightson and Ian Wrightson in riding the 100km Isle of Wight “Randonnée for Rich 2022”.

Extracts from Gordon Brember (Richard’s Dad) write-up about the event (The write-up is available to read here on Richard’s Memorial Fund webpage: www.c-r-y.org.uk/randonnee-for-rich-2022)

“The IoW Randonnée* means a lot to me – it accounts for 3 of the 4 organised cycling events that I did with Richard (and friends) – in 2013, 2014 and 2016. Understandably 2017 was missed due to Richard’s and Hayley’s impending wedding taking priority and 2018 due to my cardiac bypass surgery. We had intended the 2019 edition as a target goal for my recovery and to also include younger brother Chris for the first time. It is a challenging course with only half a mile of truly flat road

on the entire 65-mile course.

“This year, in addition to myself and Chris, the riders were Bob and Ben Whitworth, Steve Watt, ‘Bug’ and Ian Wrightson and Loz Blackburn, making 5 former RfR riders and 3 new boys. The age range was 34-67 (me) and the abilities from “When do we start lap 2?” to “Oh no, not another hill?” (me again). However, the whole event is about the camaraderie of cycling with friends, and like-minded individuals, and enjoying each other’s company.

“A lovely Spring on the Isle of Wight, was probably what we all envisaged when we signed up, however, what we got was an unseasonally cool, overcast day with highs of 12oC, with a late addition of steady drizzle which got worse.

“As in 2019, it was an emotional moment riding to the end and wishing Rich was still riding with me, but Chris and 6 of his good friends were and we all enjoyed the occasion, despite the weather and are ready to go again in 2023 (with 3 more already committing to join us).

“We have raised over £2500 for CRY to add to a similar amount in 2019 and made a few more people aware of SYCD along the way but most of all we have collectively remembered and talked about Rich and his many qualities during the ride.

“Do you not know that a man is not dead while his name is still spoken?” – Sir Terry Pratchett

“Randonnée* typically refers to a non-competitive, longdistance ride with several stops along the route – the IoW event wasn’t run in 2020 or 2021 due to COVID.”

Issue 88 | May to August 2022 20
Our Fundraisers

InMemoryof Alex Buckler

Rosalind Buckler sent a donation of £165.00 raised from a raffle held by the Ballands Bowmen.

InMemoryof Jennifer Bucknell

• Bill and Hillary Durrant sent in £450.00 raised from the sale of home made preserves and donations made at The Axe Vale Show.

“As Bill and I arrived at the Axe Vale Show Ground, Axminster, very early on Friday the 17th June, to erect our marquee which covers Bill’s Pole Lathe - ready for Bill to demonstrate during the Saturday and Sunday Shows - one of the Show volunteers caught us having a five minute breather and insisted on taking the photo for the Show’s Facebook page. Thankfully, we had our now somewhat tatty CRY T-shirts on, which we wear whilst putting up and taking down all the equipment and tables for the preserves. “

• Bill and Hillary Durrant sent a donation of £410.00 raised from a Pole Lathe turning display by Bill at the Dartmoor Folk Festival.

InMemoryof Jordan Burndred

John T Jones chose CRY as his nominated Charity 2020-21 and raised £1,651.94. This was fundraised during his tenure as mayor for Biddulph Town Council.

InMemoryof Robert Burns

Doreen Burns sent £1,300.00 raised from a raffle and cake stall.

InMemoryof Ella Bury

• Orlagh Horgan donated £1,000.00.

• MERKUR Casino UK Ltd donated £1,000.00.

• Chris Green donated £1,990.00 raised from Raffle ticket sales.

• Michelle Price donated £100.00.

• Trevor Granger donated £250.00.

• Bill and Hillary Durrant sent £455.50 raised from the sale of preserves, books and donations made at the Priddy Folk Festival.

“We not only had brilliant weather at Priddy Folk Festival, but we collected a truly brilliant pot of money for Jen’s Memorial Fund. Everybody took great interest and was very kind, donating for all of Bill’s efforts demonstrating the ancient craft of pole lathe turning. They were also keen to make donations for preserves and our ever welcome book table (we find it draws people in who cannot resist seeing whether there is a particular book begging them to ‘please buy me’).”

• Joanne Astfalck donated £100.00.

• Robert Speechley donated £100.00.

• Lindsey McBain donated £250.00.

• Nicholas and Siobhan Newbold donated £100.00.

• Chris Green sent a donation of £1,000.00.

• Poppleston Allen donated £500.00.

• Mark Warwick donated £500.00.

Our
www.c-r-y.org.uk 21
Fundraisers

Our Fundraisers

• Dale Draper donated £300.00.

• Nicholas Newbold donated £110.00.

• Ben Keith donated £500.00.

• Chris and Laura Reynolds donated £550.00.

• David Owen donated £160.00.

“This year, we have embarked on a series of events in memory of Ella Bury. These have included the Two Castles 10k Run and a raffle to win a holiday in Barbados. Our main event was a race night on 9th July which was greatly supported with amazing donations and attendance on the night, enabling us to reach our target of £17k to hold two heart screening events.”

InMemoryof Arabella Campbell

• Kim held a ‘MMUC Charity Netball Tournament’ in memory of Arabella, raising £174.00.

• Clare hosted a ‘Strawberry and Tea’ event in 2018 in memory of Arabella, raising £1829.00.

InMemoryof Madison Campbell

• Anthony Papadopoulos donated £500.00.

• Sarah Gould sent a donation of £350.00 raised by the members of Buddies4Fitness, in memory of her brother Anthony Rankin.

• Kelly Campbell sent £2,223.62 raised by Lipstick and Locks who held a fundraising day.

A walk in hair and beauty day was recently held at Lipstick and Locks, where Maddy worked. They offered walk in cuts and blow drys and waxing.

• Danny Clandfield donated £400.00.

InMemoryof Nathan Butler

• DHL UK Foundation sent £350.00 as a Match Giving donation in support of Michael Brown.

• Angela Butler sent £304.00 in donations collected at her screening weekend.

InMemoryof Alistair Calvert

Trevor and Alice Wheaton donated £300.00.

• Lisa Rose donated £500.00.

• Colin Willett donated £2,000.00.

• Nicholas Ryan donated £350.00.

• Abé and Neal Robinson donated £750.00.

• Teresa Cox donated £300.00.

• Elizabeth Grigg donated £500.00.

• Paul Taylor donated £164.00.

• Kelly Campbell donated £8,647.23 raised from a memorial ball held in memory of her daughter Madison.

Issue 88 | May to August 2022 22

“In memory of Maddy and for her 18th birthday we had a Ball. It was held at Marks Tey hotel, we had a three course dinner, the evening was hosted by Michael J Fitch, we had balloons on arrival that each contained a prize to buy as well as our Diamond raffle and Auction! It was an amazing event and we are grateful to all our family and friends for their support and also local businesses that have donated amazing prizes to help. Maddy would’ve loved this evening and we are so pleased to be able to raise enough money for some heart screening days as well as more awareness.

• Darren and Estelle donated £300.00.

• Steve Rickwood donated £150.00.

• Hilary Mosley sent a donation of £429.09 raised by Dorothy Curtice Court through a Jubilee fundraising celebration.

• The Hiscox Foundation donated £1,000.00.

InMemoryof Andrew Cannon

Mrs Rawles sent £335.00 representing donations received in lieu of floral tributes, in memory of her husband William Cannon.

Our Fundraisers

InMemoryof Katrina Christopher and Cheryl ChristopherWebber

Christopher O’Rourke donated £250.00.

InMemoryof Tom Clabburn and Claire Prosser

• Tim Carpenter donated £100.00.

• Gordon Prosser, Claire’s father and Tom’s Grandfather sent £110.00 from donations made at his 90th birthday.

• Helen Barnes, who is Claire’s cousin, kindly made multiple donations in memory of Tom and Claire.

• Jo and Mike Summers, friends of Alan and Vicky, made a donation in memory of Toma and Claire.

• Alan Stewart and Vicky Pearson, family friends, kindly made multiple donations in memory of Tom and Claire.

• Mark Jenkins, a family friend, kindly made multiple donations in memory of Tom and Claire.

• Sandra Courtney and those at Ealing Half Marathon kindly raised donations at the Andrew Carter Memorial Mile, which have enabled numerous screenings to happen in Ealing.

InMemoryof Adam Cooper

Joy Cooper-Crippin sent a donation of £555.00 raised from a tombola at the Carney Fest.

www.c-r-y.org.uk 23

Our Fundraisers

InMemoryof Matthew Cooper

David created a fundraising page for the ‘Cooper Cup 2019’, raising £1296.00 for CRY.

InMemoryof Bruce Cousins

• Jaqueline Cousins sent a donation of £122.00.

• Jaqueline Cousins sent a donation of £102.26, this was the proceeds from her latest sales.

InMemoryof Scott Cowan

Stephen Anderson donated £1,400.00.

“Andrew completed in 3 hours 25 minutes, pictured with myself and Shiva, and Martin 3 hours and 42 minutes. Both phenomenal efforts”

• Abby, Josh and Andrew completed a Skydive in memory of Christopher, raising £2885.16 for CRY.

InMemoryof Christopher Cowe

• Andrew Munro raised £1384.84 when completing the Edinburgh Marathon in memory of his neighbor’s son, Christopher Cowe.

• Martin Haggart completed the Edinburgh Marathon Full Festival in memory of Christopher, raising £1004.20.

• Michelle Taylor forwarded donations totalling £155.00 representing donations made in lieu of 50th birthday gifts for Fiona Neil.

InMemoryof Charlie Craig

• Belinda set up a page for ‘Jo Evans’s FAC50 Birthday’, raising £395.00 in donations.

• David completed ‘David’s LEJOG via the Three Peaks for CRY’ in memory of Charlie, raising £712.00

InMemoryof Neil Cummins

Carl Blanks donated £300.00.

Left photo: Andrew Munro with Christophers’ parents’ Ross and Shiva.

Right photo: Martin and his friend Alister.

InMemoryof John Cunningham

Brian Cunningham donated £100.00.

Issue 88 | May to August 2022 24

InMemoryof Stuart Cutler

Kathleen McKillop donated £100.00.

InMemoryof Adam Dabell

John Dabell sent £3,105.56 raised during his term as East Grinstead Council Mayor.

InMemoryof Ben Daniels

• Ravens Wood School raised £690.75 from a Christmas jumper day.

• Lucy Shimmin completed the ‘Family Shimmin 11k run’ in memory of Ben and in support of CRY, raising £120.00

InMemoryof Adam Dearnley

• Richard Dearnley sent £1,833.00 from a Just Giving page in memory of Adam.

• Richard Dearnley sent £645.00 representing donations received in lieu of floral tributes, in memory of his son Adam.

• Richard Dearnley sent £100.00 from a tuck box collection by his colleagues at The Office of the Public Guardian.

• Richard and Tricia Dearnley donated £100.00 in memory of Adam’s birthday.

InMemoryof Matthew Dewhirst

• Sue Dewhirst sent in donations totalling £10,450.63 raised as follows; BBC Travelling Auctioneers; JC Insurance Golf Day and Market Stall sales.

• Kelvin Holt donated £100.00.

InMemoryof Luke Dickinson

Patricia Dickinson sent £150.00 raised from the sale of drinks at a concert by Rossendale Male Voice Choir.

InMemoryof Aaron Dixon

• Deborah Dixon sent a donation of £3,000.00 from Cheshire Cricket Board.

• Samantha Matthews sent £223.00 from Daisy’s Easter cake sale.

• Deborah Dixon sent £311.00 representing donations from Mr D B Burke and Lymm Cruising Club.

• Gary Dixon sent £670.00 in donations from The Vale Royal Abbey Arms raised as follows; A Mothers Day Raffle, £150.00; donations for a Bungee Jump, £520.00.

• Deborah Dixon sent donations totalling £493.47 raised by The Vale Royal Abbey Arms as follows; Tombola, £199.50; Fathers Day Raffle, £180.00; Donations, £113.97.

InMemoryof Adam Donnelly

Julie Donnelly sent donations totalling £138.70 raised as follows; donations made in lieu of Christmas cards by friends and family, £70.00; Our Lady Of The Rosary Social Club Collection Pot, £68.70.

Our Fundraisers www.c-r-y.org.uk 25

Our Fundraisers

InMemoryof Joshua Downie

Louie Evans competed in the London Landmarks Half Marathon and raised £1330.00 in memory of his close friend, and cricket team member Joshua Downie

InMemoryof Adam Drawbridge

Sarah Drawbridge donated £100.00.

InMemoryof Harry Dubois

• Mario Dubois raised £490.00 from completing 1000HeartsForHarry 10k in memory of Harry Dubois.

• Mario Dubois/ Dan Gooding raised £525.00 for ‘1000heartsforharry’ by completing Dan Gooding’s summer of cycling

• Mario Dubois/ Zoe hodgkinson raised £260.00 for 1000HeartsForHarry in the Zoe Hodgkinson Half Marathon.

• Sarah Smith sent a donation of £2,050.00.

InMemoryof John Raymond Alexander Dunbar

Jacqui Dunbar sent £306.51 representing donations received in lieu of floral tributes, in memory of her husband John.

InMemoryof Zoe Eastham

Graham Eastham donated £223.57.

InMemoryof Gary Edwards

Hilary Edwards donated £276.00.

“A dance day was held at the Castle School in Taunton on Saturday 25th June. At this event a raffle was held in memory of our son Gary. A total of £276 was raised, and many attendees were interested to learn more about CRY. Many ladies took leaflets to give to family members and those local to Taunton were interested to learn more about the advertised screening day to be held on Saturday 6th August.”

InMemoryof Guy Evans

Rachael completed a Sponsored Headshave in memory of Guy, raising £1856.86.

InMemoryof Morgan Evans

• John Anderson donated £100.00.

• Open Arms Community Support based in Dalraddy Holiday Park donated £500.00.

• The Aviemore Community Café donated £385.00.

Issue 88 | May to August 2022 26

InMemoryof Elizabeth Everingham

Jane Moore donated £100.00.

InMemoryof Mary Elizabeth Everingham

Paul Everingham sent £441.00 representing donations received in lieu of floral tributes, in memory of his mother Mary.

InMemoryof Olukayode Famoriyo

Luke Philpott completed a ‘Jersey White Collar Boxing’ challenge, raising £1390.00

InMemoryof Harry Faulkner

Julian Craxton sent £204.00 raised by Radlett Squash Club during their Junior Squash Tournament.

InMemoryof Derek (Fergie) Ferguson

• Maggie Ferguson sent £750.00 representing donations received in lieu of floral tributes, in memory of her son Derek.

• TDL Creative Ltd donated £100.00.

• Maggie Ferguson sent £200.00 raised from the sale of CRY wristbands.

Our Fundraisers

InMemoryof Anthony Fitzgerald

• Rachael Fitzgerald raised £2387.50, through a Skydive completed by Laura, Marie and Danielle.

• Connor Brannigan did a Skydive in support of CRY, raising £620.00

• John Bozier donated £1,500.00.

• Habib Annous donated £1,000.00.

• Larry Measures completed the Chislehurst Half Marathon in memory of Anthony and raised £525.00.

InMemoryof Tom Fitzgibbon-Cooney

Neil Gamble completed the Chippenham half marathon in memory of his colleague Tom Fitzgibbon-Cooney who sadly passed away earlier this year due to his heart stopping whilst playing rugby. He was a young, fit and athletic person. He Raised £1008.46.

InMemoryof Charlie Fitzherbert-Brockholes

Hannah Fitzherbert-Brockholes sent £3,000.00 raised from a memorial shoot in memory of her husband Charlie.

InMemoryof Robert David Fitzpatrick

• Susan Fitzpatrick sent a donation of £250.00 from Liam, Chris, Neil and Jo at MT.

• Mary Todd donated £200.00.

www.c-r-y.org.uk 27

Our Fundraisers

InMemoryof Katie Fleet

• The family of Katie Fleet would like to say a special thank you to family, friends and colleagues who certainly proved their love of chocolate by raising £600 through raffle ticket sales for two jumbo Easter Hampers!

• Janice and Steve Fleet donated £300.00.

InMemoryof Ben Forsyth

• Kate Allister donated £200.00.

• Donald Thomson donated £100.00.

• Margaret Forsyth sent £402.30 representing donations from screening days at PL high school and Berwick rugby club.

• Trish Amundrud donated £200.00.

• Margaret Forsyth sent £280.45 from donations collected at Perth screening days.

InMemoryof Andrew Gard

Caroline Gard sent £2097.84 raised by Frinton Golf Clubs Captains Charity Fund, captained by John Harding and Tracey Taylor.

InMemoryof David Giles

Molly Giles sent £261.58 representing donations received in lieu of floral tributes, in memory of her husband David.

InMemoryof Ashley Goodwin

• Linda Goodwin donated £277.80 raised from car boot and gumtree sales.

• Linda Goodwin donated £175.80 raised from car boot and Gumtree sales.

InMemoryof Matthew Gore

Charley Freeman sent £337.00 raised by Leicestershire Police Control Room.

InMemoryof Adam Green

Tom and Judy Green sent in donations totalling £1,264.00 raised as follows; donation from Ashley Young Farmers £754.00; sale of CRY bespoke mugs £170.00; the Market Drayton 10k run £260.00; Cake bake 2021 £80.00.

InMemoryof Salena German

Jackie German donated £200.00 in memory of her daughter Salena.

InMemoryof Kayleigh Griffiths

• Lee Finch donated £1,000.00.

• Wendy Griffiths sent £1,556.20 raised by Little Hands Nursery who held a sponsored obstacle course.

Issue 88 | May to August 2022 28

Our Fundraisers

InMemoryof Matthew Hadfield

Diana Hunt donated £100.00 from her nectar points.

InMemoryof Ben Hammond

• Guy Andrews donated £100.00.

• Paula Hickmott completed the Brighton Mrathon in memory of Ben and raised £2040.20.

InMemoryof Alexander Hampshire

Hayley Waters collected donations for Sean Fitzpatricks’s Birthday, raising £470.00

InMemoryof Jason Hart

Harry Bright donated £500.00.

InMemoryof Richard Harwood

Kathleen Dickinson donated £200.00.

InMemoryof Jonathan Hayman

• Marion Hayman sent in £707.00 raised by Sidmouth and District Darts League through a raffle and darts competitions.

“The Sidmouth and District Darts League raised £707.00 in memory of Jon, through a series of competitions and a raffle at their presentation evening. In doing this they have raised further awareness of CRY and the importance of screening, in our local community.

InMemoryof Bill Hancock

Nicola Hancock donated £100.00.

InMemoryof Mark Hancock

John T Jones chose CRY as his nominated Charity 2020-21 and raised £1,651.94. This was fundraised during his tenure as mayor for Biddulph Town Council.

InMemoryof

Thomas Handling

Brendan Handling sent £176.25 representing donations received in lieu of floral tributes, in memory of his son Gary David Handling.

From left to right: Cassie Butler, Marion Hayman, Steve Bristow and Ali Ohara.

“The photograph shows Cassie Butler, Steve Bristow and Ali Ohara at the presentation evening, representing The Radway, which won the charity cup for being the venue that raised the most money!

www.c-r-y.org.uk 29

InMemoryof Matthew Hesmondhalgh

• Paula Hesmondhalgh sent donations totalling £498.40 raised from pop-up shop and table top sales.

• Nathan’s Wastesavers donated £440.00 raised through the sale of Rag Bags made up of donated clothing collected by friends and family from the communities of Garstang, Catterall as well as other local villages.

• Paula Hesmondhalgh sent a donation of £250.00 kindly presented to her by the members of the Garstang & Over Wyre Rotary following a talk.

• Paula Hesmondhalgh sent donations totalling £1,605.88 raised as follows; team Matt’s market stall, £395.39; book sales from Mr John Waite, £88; craft fair at Garstang Art Centre, £65; money raised by Team Matt at Catterall Gala through a rainbow plant stall, guess the Unicorn’s birthday game and a bake sale £195; a mega jumble sale organised by Samantha £862.49.

• Gordon Bell sent £250.00 representing donations from the members and friends of The Garstang United Reformed Church.

InMemoryof Matthew Hesmondhalgh and David Quinney

Paula Hesmondhalgh sent a donation of £500.00 raised by the St James’ Church through a fashion show.

InMemoryof Nicholas Holland

Steven and Danika Igoe donated £250.00.

InMemoryof Melodie Holmes

Rebecca completed a 3 Peaks Challenge, raising £1141.00

InMemoryof Stewart Howard

Jane Howard sent a donation of £1,700.00 raised at an Easter Car Boot sale with support from Tesco and the continued help of David and Angie.

InMemoryof Liana Hoyland

Janet asked for online donations for her birthday, in memory of Liana. She raised £170.00.

InMemoryof Daniel Hughes

• Unite Derbyshire County Council Branch sent a donation of £100.00.

• David Hughes sent in donation cheques totaling £10,000.00.

• David Slack sent £4,000.00 representing a donation from the Newcastle Under Lyme Lions Club.

• David Hughes sent a donation of £6,100.00.

• John Kostuch donated £100.00.

• Suzy O’Connor sent a donation of £138.35 from the neighbours of Doris Road, Ilkeston.

InMemoryof Michael Ince

Katie Alcock donated £160.00.

Our
Issue 88 | May to August 2022 30
Fundraisers

InMemoryof Isabelle Innocent

Lesley Fitton sent £152.00 from donations made at Giles 60th birthday party.

InMemoryof Paul Jevon

Jamie Caswell sent a donation of £100.00 raised through a Charity Golf Day.

InMemoryof Alexander Jones

• The Cowsill family donated £150.00.

• Audrey Jones donated £140.00 on behalf of Nikki Land and Rhian Edwards.

InMemoryof Kieran Joyce

• Andrea Joyce forwarded donations totalling £789.60 from the family and friends of Ben Edwards raised at his funeral.

• Weobley High School took part in their 7-11 Challenge in memory of Kieran and raised £2376.00.

InMemoryof Claire Keen

Friendship Cruising Club raised £565.00 from a Charity BBQ and raffles.

Our Fundraisers

InMemoryof Andrew Key

• Greg Key forwarded donations of £151.00 received from the funeral of Alison Wilding.

• Margaret Harrison sent a donation of £1,450.00 from an annual 10 pub 10 mile walk.

• Joanne Robinson sent £3,814.50 raised from a dinner dance held in memory of Andrew.

• Ann-Marie Key sent a donation of £665.00 raised by Longridge High School.

• Kate Quirk donated £100.00.

• Heidi McKenna sent £492.55 in customer donations collected at EH Booth.

InMemoryof Graeme Kilpatrick

Janice set up a fundraising page for completing ‘Faith, Josh and Friends Run for Dad’ in memory of Graeme, raising £1837.00.

InMemoryof Harry King

Samantha and Andrew King sent £700.00 raised from a Quiz evening.

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Our Fundraisers

InMemoryof Olly King

• Mya King raised £12,000.00 to fund two screening days.

• Ahmed Hameed donated £100.00.

• Sue Amobi donated £140.00.

• John Watts donated £150.00.

• Enterprise RAC UK Limited donated £1,500.00.

InMemoryof Ian Stuart Kneale

Sarah Kneale sent £659.15 representing donations received in lieu of floral tributes, in memory of her husband Ian.

InMemoryof Jenny & Adam Lambert

Freddie Bagley donated £150.00.

InMemoryof Robert Lancaster

Matthew Lancaster sent £750.00 on behalf of Lancolm Consulting Ltd.

InMemoryof William Lane

• James Stearns donated £100.00.

• Neil Allcock donated £200.00.

InMemoryof Carli Lansley

• Karl Lansley raised £12,000.00 to fund two screenings.

• Amelia Shrimplin held a Achatina beauty raffle and raised £130.00.

• Colin Campbell sent a donation of £1,050.00 raised from the Campbell Ramble.

• Adam Ward donated £100.00.

InMemoryof Miriam Lee

Rita Kellett donated £100.00.

InMemoryof Samuel John Little

• Terry Bright donated £100.00.

• Sharon and Greg Montalti donated £100.00.

• Katherine Smith sent £836.00 representing donations received in lieu of floral tributes, in memory of her son Samuel.

• Deirdre and Clem donated £100.00.

• Will Gogerty donated £100.00.

• Jill Taylor donated £100.00.

• Nicola Bright donated £200.00.

• Christopher Hicks donated £100.00.

• Oliver Steels donated £100.00.

• Ryan Cook donated £100.00.

• Samuel and Holly Lavigne-Smith donated £100.00.

• Heidi and Allan Macdougall donated £100.00.

Issue 88 | May to August 2022 32

• Helen James donated £100.00.

• Katherine Smith sent a donation of £100.00 on behalf of Investec.

• Kassy Tremountani donated £300.00 on behalf of Peter, Adam and everyone at Caruso St John Architects.

• Sheila Carruthers donated £100.00.

InMemoryof Myra Jean Locock

• Pauline Machin donated £100.00.

• David Machin donated £200.00.

• David and Elsie Rutland donated £200.00.

• Norman Locock sent a donation of £155.00 raised from proceeds of a quiz held at Golberdon Village.

• Norman Locock sent £141.00 representing donations received in lieu of floral tributes, in memory of his wife Myra.

• Janet Corrigan sent a donation of £126.00 collected from the members of South Hill WI during a strawberry tea evening.

InMemoryof Jamie Loncaster

Peter and Susan Loncaster donated £250.00.

InMemoryof Matthew Long

Martin completed #40for40 in memory of Matt, raising £480.00.

InMemoryof Alan Lumley

Jenny Lumley donated £215.00 raised from a touch rugby tournament at Barnard Castle School.

“On the 3rd April 2016, my brother Alan decided to run a half marathon to celebrate his 31st birthday. Unfortunately, at mile 12 he collapsed and didn’t make it to the finish line.

“I am not a natural runner, however I wanted to challenge myself to do something for Alan to mark his 37th birthday and six years since we lost him, whilst raising money for Cardiac Risk in the Young, who have supported us since Alan’s death. So I challenged myself to run the distance of a half marathon over the duration of a week, ending by running the last mile of the Wilmslow Half Marathon route in Manchester, which Alan didn’t manage to complete.

“Each day throughout the week, I pulled on my running shoes and ran between 1 and 2 miles a day. I ran in sunshine, icy hail and the last mile in typical Manchester rain with my family cheering me on. Thanks to the support of family and friends, a total of £2,010 was raised for CRY.

“I am still no runner but I was proud to run for my amazing brother who was truly the most genuine, funny, laid-back, lovely person who we miss every day.

InMemoryof Connor Mackness

West Wickham Lodge donated £1,428.52.

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Our Fundraisers

InMemoryof Lee Mallinson

• Pamela Mallinson sent £838.00 representing donations received in lieu of floral tributes, in memory of her son Lee.

• Reading Swimming Club donated £1,280.00, this was from the sale of Lee Memorial hats and donations collected by the club.

InMemoryof James Slim Markham

Jeff Markham sent in £413.81 raised by the St Edmunds / Keswick WhatsApp group during the Jubilee Celebrations.

InMemoryof Lewis Marsh

Gill Weston sent a donation of £6,218.00.

InMemoryof Alasdair McFadzean

Paul Brown sent £290.00 representing sponsorship donations for a 24 Hour Game-a-thon at the Unboxed café.

InMemoryof Lauren Rose Mead

Helen James donated £750.00.

InMemoryof Josh Merrick

The friends and family of Josh went on a pub crawl around Didsbury and raised £1,263.70.

InMemoryof Joseph Merritt

Peter and Sally Ward-Enticott sent £100.00 representing donations made in lieu of presents at their 80th birthday party.

InMemoryof Richard Mason

Valerie and Roger Mason donated £100.00 in memory of their son Richard.

InMemoryof Gareth Moore

Helen Moore donated £1,750.00 in memory of her husband Gareth.

InMemoryof Pete (#4Pete) McAvoy

Rogers Stirk Harbour & Partners Charitable Foundation sent a donation of £500.00. CRY was nominated by Vicki Macgregor.

InMemoryof James Moorfoot

Jessica Rowley sent £300.00 representing donations received in lieu of floral tributes, in memory of James’ grandma.

Issue 88 | May to August 2022 34

InMemoryof Jonathan Morgan

The North York Lodge Freemasons sent £500.00 representing a nominated charity donation from Albert Thomas.

InMemoryof Owen Morris

• Judith Hassey sent £617.50 from a cake sale and donations from her screening weekend.

• Robert and the Bleehen family cycled from Cardiff to Merthyr and back in memory of Owen, raising £1842.00

“We arrived safely back from our 180 mile bike ride last week and are now slowly recovering! We cycled through Holland and Belgium over three days and the route was fortunately very flat but the challenge was the speed we were going - 20 mph at times which, for us, is not something we are used to.

“Having said that we had great fun and a huge amount of money has been raised for many charities as each rider was allowed to choose their own charity to support.

• Henry Payne completed the Paris Marathon in memory of Owen, and he raised £1730.86.

InMemoryof David Moss

• John T Jones chose CRY as his nominated Charity 2020-21 and raised £1,651.94. This was fundraised during his tenure as mayor for Biddulph Town Council.

• Mandy Cooper completed a Ben Nevis Hike in memory of David, raising £190.00 for CRY.

Our Fundraisers

• Leanne Wiggins completed a Climb up Ben Nevis in memory of David, raising £320.00.

InMemoryof Paul Mulford

Colin Mulford sent a donation of £100.00 from The Poker Players.

InMemoryof Jennifer Newton

Emma Gold sent a donation of £100.00 on behalf of Brian and Lynda Greaves, in memory of a wonderful friend Isabella Katrina Kowalski.

InMemoryof Richard Northedge

Derek and Pat Northedge donated £200.00 in memory of Richard’s 47th birthday.

InMemoryof Alfie Nunn

Christine Nunn sent £6,445.00 raised by friends and family at Nunny’s day, this was a football fun day arranged by Alfie’s friends in his memory.

www.c-r-y.org.uk 35

InMemoryof Ben O’Connell

• Joanne Wilkie sent £524.00 raised by Connor Sheppard from his fundraising with the National Citizen Service.

• Paul Stoner donated £125.00.

InMemoryof Clayton Olson

• Judith and Alan Olson donated £2,500.00.

• Louise Barr donated £1,000.00.

• Ash Jarvis donated £100.00.

• Gillian Piller donated £100.00.

• Nicola Amsbury donated £100.00.

• Victoria Bennett donated £100.00.

• Bob Paterson donated £100.00.

• Fil K donated £100.00.

• Lindsey and Richard Allum donated £100.00.

• Mandy Ward donated £100.00.

• Steve Murray donated £100.00.

• Felicity Powell donated £100.00.

• Heath Forusz donated £100.00.

• Vasant Mehta donated £500.00.

• Paula Hansford donated £100.00.

• George Perry donated £150.00.

• Carol Abrehart donated £100.00.

• Dion Bailey donated £100.00.

• Samantha Korvin donated £100.00.

• Sam McPartland donated £100.00.

• Kerin Beaton donated £100.00.

• Claire Slaughter donated £100.00.

• Emma Dickinson donated £100.00.

• Kara Overton donated £100.00.

• Jane Dawling donated £100.00.

• Claire Rowswell donated £200.00.

• Andrew Kerridge donated £100.00.

• Zoe and Giles Warner donated £100.00.

• Ian Morris donated £100.00.

• Stephen and Connie Brooks donated £300.00.

• Neil Mobbs donated £100.00.

• Shawn Cole donated £500.00.

• Shelly Anthony donated £100.00.

• Katie and Maddie Presland donated £100.00.

• The William Brake Foundation donated £1,000.00.

• Mark Olson sent £425.00 representing donations received at a chapel service to honour Clayton.

InMemoryof Daniel Parris

• Lexi Dervan completed the Brighton Half Marathon in memory of Daniel and in support of CRY, raising £645.00.

• Matt Parris completed the Hastings Half Marathon 2022 in memory of Daniel and in support of CRY, raising £6535.00.

• Angela and Nick collected donations for their Silver Wedding Anniversary, raising £1010.00.

• Derek Rainer sent £1,100.00 which was raised by the Masons of the Derwent Lodge from a raffle at their ladies festival evening.

Our
Issue 88 | May to August 2022 36
Fundraisers

InMemoryof James P Patterson

Mark Nuttall sent £3,911.70, raised through various fundraising activities during his Presidency at the Billericay Catenian Circle, to fund future screenings at The Campion School.

“I had the honour of presenting a cheque from Billericay Catenians for £3,911.70 at the CRY screening taking place at The Campion School in Hornchurch, my school from 1974-81! The money had been raised specifically for the James Patterson Memorial Fund via various means by the Billericay Catenian Circle throughout my Presidency of the Circle during the past 19 months and will be used to fund future CRY screenings at the school.

“Catherine Patterson (James’ sister and daughter of the late Peter Patterson, a great fundraiser for CRY) and I were first warmly welcomed by the Campion Headmaster, Mr. Keith Williams, before being shown the testing area in the school where up to 200 pupils will be screened over 24th-25th May.

“Leigh-on-Sea Striders are proud to have organised numerous charity challenges over the last 20 years and in doing so have raised over £400,000 for some amazing causes. On 12 June, a team of 60 committed people travelled to the Lake District to take on their toughest challenge yet - trekking 100km over four days, including 19,000 feet of ascent, and taking in England’s highest peaks - Helvellyn, Scafell Pike and Skiddaw. They did the challenge this year in the lasting memory of dear Strider friend Stephanie Simpson, who tragically lost her life in an accident in New Zealand in 2020. Stephanie had taken part in previous challenges and the team were honoured that her mother, Sally, took part in this one.

“The team travelled up on Sunday and, after seven hours on the coach, there was no rest, just a chance to quickly drop bags off and then head straight off to the first peak – Skiddaw. The walk was just under ten miles and also coincided with 50 mile per hour winds, which made for a challenging start and rude awakening for the team! On day two the team split into different groups heading to the top of Helvellyn, with some taking on the challenging scramble across Striding Edge - not for the feint hearted, or those afraid of heights!

In the photograph with Catherine (second left) and myself (third from the left) are two school pupil officials (receiving the cheque), members of Campion staff and CRY representatives.

Stephanie Simpson Lake District Charity Challenge

In memory of Stephanie Simpson (Challenge was IM of Stephanie Simpson but donation was made to the James Patterson MF)

“Day three was the longest day of walking and also the day for taking on England’s highest peak, Scarfell Pike. The fourth and final day was the flattest, compared to the other days, but still nearly ten miles and not without some tricky parts to navigate, plus an extra bonus trip up Cat Bells, which gave stunning views over the area, all the more beautiful in the sunshine that the team were blessed with to end the challenge. Each day had an early start and long hours of walking, climbing, scrambling or crawling. And each person helped others through the tough parts, either by whiling away the hours talking, or sometimes physically helping each other navigate tricky parts. The group talked about Stephanie and how much she would have loved the challenge.

“Events like this don’t just happen and it was down to a lot of hard work, research and several recces up to the Lakes by men’s captain Dean Ovel, Neal Marlow and Niki Read, and a lot of organising and logistics by ladies’ captain Katie Spicer. The team have been inspired to battle through this challenge to raise money for their causes, chosen and voted on by the club members, and have already raised and incredible £60k. This will be split between Southend Hospital oncology and stroke

Our Fundraisers www.c-r-y.org.uk 37

Our Fundraisers

services, and the James Patterson Memorial Fund at CRY. This will fund a heart screening day for 100 people in the Southend area. In 80% of cases of young sudden cardiac death (YSCD) there are no prior symptoms of a heart defect. The frequency of YSCD can be dramatically reduced by making heart screening available to all young people between the ages of 14 and 35.

InMemoryof Duncan Phillips

Bethan Phillips sent a donation of £598.94 raised from a raffle at The Mumbles Fest. InMemoryof

James Phillips

Miles completed a walk up Mount Snowdon, raising £3033.00

InMemoryof Leigh Phillips

“Chairman of Leigh Striders, Mark Dobson, who has taken part in every challenge the club has organised said, “We were lucky to see the Lake District at its best in all conditions – be it sun, wind, rain, or all three on one of the days! But the best part was the people involved, pushing themselves way outside their physical and emotional comfort zones, helping and encouraging each other. We didn’t just raise a fantastic amount for our charities, but we did it in the lasting memory of our friend and fellow Strider, Stephanie Simpson, whose positivity, enthusiasm and beautiful smile will always be remembered.”

InMemoryof Jenni and David Paul

Guy Fey sent £100.00 representing a donation made in lieu of wedding favours.

InMemoryof Connor Pearce

• Carli Smith sent £2,550.00 raised during her term as Ladies Captain at Sidcup Golf Club.

• Nathan completed the 3 Peaks Challenge in memory of Connor, raising £230.00.

Suzie Swinden and Edward Phillips completed a 10 mile sponsored cycle in memory of Leigh, raising £840.00.

InMemoryof Rebecca Phillips

Birch Grove Golf Club raised £10,160.00, Del Preece chose to fundraise for CRY as his nominated captains Charity 2021.

InMemoryof Jake Anthony Pickford

• Gaye Pickford sent donations totalling £102.31 raised as follows; a donation from Terry £5.00; donations

Issue 88 | May to August 2022 38

from a collection box £33.91; family loose change collection £48.37.

• Gaye Pickford sent a donation of £431.40 from Carolyn Davies Harrison, Lorraine Gronow and Abertysswg Workingmens Club.

• Gaye Pickford sent £110.00 from donations made at a screening day in memory of Jake.

InMemoryof John Pirie

• Siobhan Pirie sent donations totalling £7,081.00 raised in the followings ways; Stephanie Leask and Eleanor Irvine chose CRY to donate this years funds raised at The Angus Irvine Memorial darts competition in memory of their dad, £1304.64; Eleanor shaved her head to raise additional funds totalling, £5776.36.

• Siobhan held a screening in Shetland in memory of John, raising a total of £30,416.39.

InMemoryof Richard Ponting

Rita Ponting sent £204.32 in donations raised in the following ways; collection box Thornbury Natwest Bank, £50.20; collection box Thornbury News4U, £64.04; a donation from Mrs G Todd, £20.00; a donation from Mr & Mrs D Wright, £50.00; sale of preserves, £20.00.

InMemoryof Craig Daniel Powell

Helen Fleming sent £176.20 from Wendy and family representing donations received in lieu of floral tributes, in memory of John Davies.

Our Fundraisers

InMemoryof Robert Poysor

Diane Tolley sent a donation of £140.00 raised by The Horn & Trumpet Pub from collection boxes. InMemoryof

Alden Price

Ray and Anita donated £110.00.

InMemoryof Owen Raine

Jacqui Raine sent £262.70 donated by St Mary’s Barnard Castle.

InMemoryof Alex Reid

Heather Reid donated £200.00.

InMemoryof Dylan Rich

The West Bridgford Knights completed the Welsh 3 Peaks Challenge in less than 24 hours, raising £3370, plus an additonal £150.00 offline, creating an overall fundraising totla of £3520.00.

www.c-r-y.org.uk 39

“The Knights decided to take on the Welsh Three Peaks Challenge – climbing Snowdon, Cader Idris, and Pen y Fan in just 24 hours – to raise money and pay tribute to fellow footballer Dylan after the tragic incident last year.

“Nine current and former players took to the hills of Wales, completing the gruelling 17 mile hike and 7,657ft ascent in just over 16 hours, with the help of two dedicated drivers.

James Pegg, player and Chairman said:

“We are blown away by the support of the local community. The club set out to raise £1,000 from this challenge. To have raised over three times that is incredible.

“The untimely passing of Dylan is simply devastating. First and foremost, our thoughts are with their families and loved ones.

“We are truly proud to be able to hand over such a significant donation in Dylan’s name, and hope that it can help to save lives in the future.”

“The club were supported heavily by local businesses on their journey to the Welsh summits, with club sponsor Lesley Butlin Therapeutic Services working closely with the team to ensure the self-organised trip ran without a hitch.

“Leicestershire based AM System Ltd, another business with close ties to the club, generously covered the club’s fuel and minibus hire, as well matching the first £1,000 of donations.

Luke Maxted, player-manager said:

“It’s very telling of how much this cause means to the community that we had no shortage of volunteers to support us in our challenge.

“I’d like to thank everyone who donated, took part, organised or contributed.

“I can say on behalf of every single one of the lads that the sore legs the morning after were well worth it. We are pleased to be able to support such a worthy cause.”

InMemoryof Charlotte Richardson

Ashleigh Collie completed the CRY #12AWeekChallenge, 2021, in memory of Charlotte Richardson, raising £502.00 for CRY. InMemoryof

Stephen Rogers

Deborah Rogers sent donations totalling £124.12 raised as follows; a collection pot at The Chesters Pub, £67.43; a collection pot at The Ship Isis Pub, £56.69.

InMemoryof Robert Rowan

• John Weedon donated £100.00.

• Simon Hoyle donated £200.00.

• Shehnaz Rasul sent a donation of £100.00 on behalf of Layla and Yusuf.

• Laura Prendergast donated £307.00.

• Gordon Hunter sent a donation of £600.00 raised from his sponsored Zip Wire Challenge.

Issue 88 | May to August 2022 40
Our Fundraisers

InMemoryof Marlene Marguerite Rust

Alan Rust donated £150.00 in memory of his wife Marlene.

InMemoryof Luke Clayton Rutter

• James Edge donated £200.00 from the sale of bike clothing and a bike.

• Lytham C of E Primary School donated £520.00 raised from a fundraising week.

• Sophia Elson donated £200.00.

InMemoryof Suanu Saro-Wiwa

Mark Stacpoole donated £100.00 in support of Ben, Alfie and Meurig’s fundraising.

InMemoryof Neil ‘Kymatic’ Schuyleman

Helen Davies donated £120.00 following the Heart of London Bridges Walk.

InMemoryof Tracey Dawn Sendell

Dee Ambler sent £870.60 raised from a raffle and tombola.

Our Fundraisers

InMemoryof James Sheppard

Becki Roberts completed a skydive in memory of James, raising £1015.

InMemoryof Evan James Shonfield

Peter and Sharon Shonfield donated £100.00.

InMemoryof Madeline Siddall

The students at Eckington School raised £849.61.

InMemoryof Aashi Sinha

• Sujata Sharma donated £101.00.

• Suman and Ajay Sinha donated £1,000.00.

• Meenakshi Rawal donated £100.00.

• Satish Gupta donated £250.00.

InMemoryof Ben Smith

• Craig MacLeod completed the Manchester Marathon in support of CRY, raising £1431.00.

• Clair Banks sent a donation of £543.41 from Ben’s auntie’s work place.

InMemoryof Jack Sheriff

Elizabeth Sheriff donated £174.34.

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Our Fundraisers

InMemoryof George Smith

Rosie Elms completed the Victoria Park Christmas Run in memory of her close friend, George Smith. She raised £680.00

InMemoryof Robert Daniel Smith

Linda Smith sent donations totalling £1,638.00 raised as follows; a Annual Charity Night, £1,138.00; a donation from Alison Spenceley and Sarah Sotheran, £500.00.

InMemoryof Callum Staple-Hughes

The PwC Foundation has given a Match Giving donation of £250.00 in relation to Jonathan Studholme’s fundraising efforts.

InMemoryof Andrew Steele

Annamarie Richardson sent £316.33 representing donations received in lieu of floral tributes, in memory of her brother Andrew.

InMemoryof Ian Strange

Patricia Strange donated £100.00 in memory of her son Ian’s birthday.

their daughter Courtney. InMemoryof

John Sykes

Adrian Shipley sent £182.65 representing donations received in lieu of floral tributes, in memory of John.

InMemoryof Peter Taylor

Maureen Taylor sent a further donation of £100.00, in memory of her husband Peter.

InMemoryof Ross Taylor

Marian Redfearn donated £100.00.

InMemoryof Courtney Meredith Strugnell

Mr and Mrs Strugnell sent £219.10 representing donations received in lieu of floral tributes, in memory of

InMemoryof Zoe Teale

Sarah Robinson sent a donation of £1,162.00 from Old Swinford Hospital School.

InMemoryof Dale Tennent-Butler

Ian Butler donated £500.00.

Issue 88 | May to August 2022 42

InMemoryof Jack Thomas

• Kristian Tucker raised £360.00 when completing the Runners Tribe Series Marathon, in memory of his close friend, Jack Thomas who sadly passed away from a suspected Cardiac Arrest.

• June Thomas sent £2,547.84 raised by Blackwood RFC Minis and Junior teams at the Jack Thomas Memorial Cup Tournament.

InMemoryof Nicholas Thomas

Jenny Thomas donated £400.00.

Cherry

Our Fundraisers

Blossom Company.

InMemoryof Joseph Tooth

Lisa Tooth sent £105.00 representing donations received in lieu of floral tributes, in memory of her father Joseph.

InMemoryof Sian Turnbull

John Turnbull donated £100.00.

InMemoryof Isabelle Tudisca

InMemoryof Jack Thompson

• Andreas did a mini Tough Mudder in memory of Jack Thompson, and in support of CRY, raising £1130.00.

• Ben Thompson sent £670.00 representing donations recieved at an event.

InMemoryof Oliver Thompson

Graham and Cheryle Thompson sent in a £130.00 donation.

Leo Tudisca completed the Isle of Wight Ultra Challenge in memory of Isabelle and raised £583.35.

“Leo Tudisca, Rebecca Mills and I spent a lovely day on the south side of the Isle of Wight walking in memory of Isabelle. Issy is the daughter of Leo & Della and sister to Sophia, who was sadly taken from them due to an undiagnosed heart defect.

“Della, Leo and their many friends and relatives have since raised a significant amount of funding for CRY, with our effort on Saturday the latest chapter. We know our efforts will be rewarded and sponsorship put to good use.”

InMemoryof Ryan Tilley

Suna Tilley forwarded donations totalling £702.00 raised in the following ways; £48.00 from a collection box at The Royal Oak pub; £654.00 from raffles held by the

www.c-r-y.org.uk 43

InMemoryof Richard Waight

• Kenneth Waight sent a donation of £7,500.00 raised from a Charity Golf Day.

“The 10th RICHARD WAIGHT MEMORIAL GOLF DAY at Doncaster GC was finally held on Friday 20 May 2022, after a three year break.

A record 112 golfers took part in overcast, but warm weather and even a shower early on didn’t dampen proceedings. With helpers and supporters, 128 sat down afterwards for the traditional pie and chips, followed by prize giving, as well as the raffle and auction. The best part, we raised £11,400 on the day and with our large corporate donation from St James Place, we’ve added £19,000 to our grand total, now over £103,000 since 2011. WE MADE IT!!

“As before, our fundraising has mainly been for Cardiac Risk in the Young (CRY) and SADS UK, with another cardiac screening day for young people aged 14 to 35 arranged for Sunday 24 July, at Castle Park, Doncaster.

Richard’s Golf Day… You made it 100k!’

• Kenneth Waight sent £160.00 in donations from a screening day.

InMemoryof David James Wallace

Fiona Wallace sent in £5,070.00 raised from donations at The David Wallace Memorial Race Night.

InMemoryof Neil Ward

• Dronfield Rotary Club donated £1,500.00.

• Elaine Ward sent £1,000.00 raised from a 60’s gig organised by Derri Jones.

• Elaine Ward sent £750.00 representing a donation from The Cutlers Company Charitable Trust.

• Elaine Ward sent £1,320.00 raised in the following ways; donations at Gosforth screening, £263.00; donations at Worksop screening, £439.00; Tombola and refreshments at Dronfield Gala, £275.00; talk and donations at Dronfield Probus, £153.00; talk and donations at Hilton & Marston WI, £85.00; talk and raffle at Great Longstone WI, £80.00; donation from Mike Hawley on behalf of The Lost Art Group, £25.00.

• Catherine Wolfenden donated £150.00.

• Sophie Timmermans-Delves donated £100.00.

• Rob Burnip donated £100.00.

• Clare Gratton donated £100.00.

• Elaine Ward sent £525.00 comprising of donations made at the Chatsworth screening £298.00 and the Abbeydale screening £227.00.

• Elaine Ward sent £290.00 from The Coach & Horses Pub Dronfield.

• Elaine Ward sent in donations totalling £270.00 raised as follows; coffee morning £70.00; collection box at Gosforth Fields £30.00; Tombola £50.00; a mechanic at Excel Auto Motors £45.00; a talk at Boylestone Ladies Group £75.00.

InMemoryof Lily Webster

• Melanie Webster sent a donation of £3,127.10.

• Sian Davies donated £300.00 raised from her face painting at events.

Issue 88 | May to August 2022 44
Our Fundraisers

InMemoryof Marion Wey

• Roger Hawes donated £150.00.

• Stephen Wey sent £262.50 representing donations received in lieu of floral tributes, in memory of his wife Marion.

InMemoryof David White

Weijia Feng donated £130.00.

InMemoryof Emlyn Arthur Wibberley

Jenny Wibberley donated £100.00.

General Fundraising

InMemoryof Stephen John Williams

Mrs J Williams sent £1,174.96 representing donations received in lieu of floral tributes, in memory of her husband Stephen.

InMemoryof Julian Wort

Shirley Wort sent a donation of £104.90 raised by The Kingfisher Takeaway from a collection pot.

General Fundraising

• Andrew sent in £375.31 in donations for the ‘Bill Smith Cup’, in support of CRY.

• Andy completed the Trent & Mersey Canal Walk in support of CRY, raising £730.00

• Armstrong Watson Accountants & Financial Advisors donated £250.00.

InMemoryof Stevie Wiggins

• Ann Coles sent donations totalling £240.00 raised as follows; donations in lieu of presents for Elaine and Bill Campbell’s diamond wedding anniversary, £140.00; donations from collection boxes, £66.01; donations raised from table top sales, £33.99.

• Sheila Wiggins sent donations totalling £255.00 raised by The Heartfelt Group from penny jars and screening day donations.

• Ann Coles sent a donation of £240.00 raised by Mags and Paula Macsweeney from the sale of Jubilee crafts.

• Begbies Traynor Group took part in a bike and hike event and raised £833.46.

• Bourne Grammar School have chosen CRY as their charity of the year and have donated £3,083.00 raised from 2 non-uniform days.

• Charlotte Broadhurst and her work colleague, as teachers, ran in the London Landmarks Half Marathon as it was nominated as their school charity this year. She raised £455.07.

• Clare Brooke donated £100.00.

• Burhill Golf Club captains 2021-22 Vivien Lee and Andrew Strange sent donations raised totalling £36,332.00, they choose CRY as their charity of the year.

• The Capital Group donated £3,000.00.

• Debra Cody sent a donation of £563.00 from the students union at the University of Surrey.

• The CRY Research Team completed the London

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General Fundraising

Vitality 10,000 2022 in support of CRY, raising £10,960.00. (Prof Michael Papadakis, Prof Sanjay Sharma, Dr Jayesh Makan, Dr Raghav Bhatia, Dr Nikhil Chatrath, Rachel Simmons & Dr Anna. Marciniak all took part).

• Ray and Julie Dixon sent a donation of £270.00 from their photo studio session fees.

• Richard Dunigan donated £100.00.

• Alex Dutton completed the Chicago Marathon 2021 in support of CRY, raising £660.71.

• The Evening Star Lodge No 1719 donated £500.00.

• Exertis donated £294.00 from their Charity Day.

• Farnborough Hill School sent £389.86 raised by 6th form students.

• James Ferguson donated £200.00.

• Nadia Griffiths donated £100.00.

• Robert Grimwood sent £2,160.00 raised by Copthorne Golf Club. Robert was this year’s captain and chose to raise money for CRY.

• Margaret Halliday donated £250.00.

• Vicky Henderson sent £1,521.35 which was raised by her daughter Maisie Henderson, who held a cake sale to raise money for CRY.

• Jaqueline Hewitt sent £900.00 representing donations received in lieu of floral tributes, in memory of her husband.

• Richard Hildred donated £100.00.

• Karen Hobdell sent in donations totalling £215.00.

• Jae completed a Tandem Skydive in support of CRY, raising £400.00

• Stephen Jenkins donated £200.00.

• Tim Jones chose CRY as his nominated Charity 202021 and raised £1,150.00 through various fundraising events during his time as captain for Werneth Golf Club.

• Deborah Keenan donated £100.00.

• The Kiltwalk sent a donation totalling £780.00, this comprises of £520.00 which was raised by both

Geoff Bond and Emma Morrison through donations received for their sponsored walk. The Hunter Foundation provided a further match giving donation of £260.00.

• Jane Kitchen sent £540.75 raised by Tonbridge School through a fundraising event.

• The staff at Langabhat Medical Practice donated £236.00.

• Lee-Ann created a fundraising page for ‘Lily’s Miss Inspiration Newport Mountain Walk’, raising a total of £200.00 for CRY.

• Liberty Global sent a donation of £500.00 raised from fortnightly company competitions.

• Paul Manning sent £400.00 raised by the University of Warwick Rugby Club during a fundraising event.

• Gillian Marsden donated £125.00.

• Val Marshall donated £100.00 in lieu of a wedding gift for Ellie and George Wilson.

• Martin supported CRY for the Addington Golf Club Captain’s Charity 2021- 2022, raising £3771.00.

• Colin McArdle sent a donation of £400.00 from The Etwall Well Dressing Association.

• Susan McNally donated £100.00.

• James Mitchell donated £100.00.

• Chris Moore completed the Belfast Marathon 2021 in support of CRY, raising £790.00.

• Chris Mullock donated £103.60.

• Next plc donated £500.00.

• Matthew Okane donated £100.00.

• Chris O’Meara donated £100.00.

• The staff and customers at Oldfield Electrical Supplies Ltd raised £364.00 from a Charity Golf Day.

• The Over The Road shop have kindly chosen this year to donate £500.00 of their profits to CRY.

• Radhika Patel donated £200.00.

• Deborah Prophet donated £200.00.

Issue 88 | May to August 2022 46

General Fundraising

• Reverend Brian Cunningham sent a donation of £281.72 raised from collections in the Oundle School Chapel.

• Tom Robinson completed the Amsterdam Marathon in support of CRY, raising £799.74.

• The Robinwood Activity Centre donated £200.00.

• David Roche donated £100.00.

• Chris Rogers sent a donation of £3,392.75 raised from the RHC Charity Golf Day.

• Louise Russell donated £100.00.

• Christine Searle donated £150.00.

• Seema Sharma donated £1000.00 towards the CRY Research Team’s London Vitality 10,000 fundraising efforts.

• Shoosmiths LLP sent a donation of £187.50 in support of Josh Stephenson’s fundraising.

• Simon, Jack, Kenny and Sam each ran 100k in November, raising £1380.00 for CRY.

• The Simon Langton Grammar School for Boys donated £100.00 from their 2021 Sponsored Walk.

• Adam Sweeney sent a donation of £210.71 from Southam Albion FC.

• Kerry Tibenham held a fashion show fundraiser evening which raised £472.00.

• Tonbridge Angels Football Club Ltd sent a donation of £125.00 from the sale of pitch turf.

• Mercia Wakefield donated £167.00.

• Michael Webb sent in a donation of £740.00 raised from a Charity cricket match and auction.

• Pete Weeks sent a donation of £357.50 from Cross Check Clothing.

• Philip Westoby donated £2,913.00 from the employees of Energy Compare Limited.

• Rebecca Willoughby completed the Chester Half and Manchester Marathon in support of CRY, raising £200.00

• Windy Wilson sent in money raised totalling £630.00.

• Windy Wilson sent in money raised from text donations totalling £380.14.

• Beryl Whittingham sent £100.00 representing money raised for her chosen charity during her year as president of The Inner Wheel Club of Harwich & Dovercourt.

• Joe and Katie got married and collected donations for their wedding, raising £710.00 in support of CRY.

• Wendy and Orla got married and collected donations for their wedding, raising £1,960.

www.c-r-y.org.uk 47

Raising awareness with the Update

One way to further the use of CRY’s Update magazine is by sharing it with other people. For those who may not be familiar with CRY, the Update can be a good way for them to learn more about young sudden cardiac death and what CRY and our supporters are doing to prevent more tragedies.

To inform others, and hopefully encourage them to get involved with CRY, why not try sharing the Update magazine however you can? This could include leaving a copy in a waiting room or reception area, or somewhere at your workplace; taking one to a fundraising event for passers-by to flick through; or even by posting a link to the online version on social media.

As CRY’s printed publications halted during the pandemic, we developed the digital version of the Update. We’re able to add more engaging features to the digital issue that simply can’t work in the printed copy. For one, we can include links for you to quickly access relevant pages on the CRY website, social media posts from recent months, interviews from members of the CRY team and our supporters, and more. We also include videos covering all sorts of topics for you to enjoy watching as you click through the online magazine.

The more that word of CRY’s work and young sudden cardiac death is shared – however that may be – the better. And because it’s so easy to share a link with others or post it on social media, the digital version is often easiest for raising more awareness too.

We would encourage you to subscribe to the digital version of the Update, but you can also subscribe to receive a printed copy. You can sign up to receive your preferred choice here: www.c-r-y.org.uk/subscribe

Issue 88 | May to August 2022 48

Fundraising Events

Please contact the fundraising team on 01737 363222 or email events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events visit www.c-r-y.org.uk/category/upcomingcryevents

All participants in mass-participation events who contact the CRY fundraising team (whether they have their own place or a CRY charity place) will receive a welcome pack containing sponsor forms, information, helpful tips and either a T-shirt or vest (depending on the type of event).

London Landmarks Half Marathon

2nd April

Celebrate London’s history and cultural heritage while discovering the city’s quirky and hidden secrets! Runners explore the capital through the City of London and City of Westminster.

ASICS Manchester Marathon

16th April

The Manchester Marathon is one of the UK’s premier running events, famous for its fast, flat and friendly route.

TCS Money London Marathon

23rd April

The London Marathon is London’s most popular sporting event with over 40,000 people taking part!

RideLondon-Essex 100 28th May

Take part with 10,000 runners as you take on the roads of London’s historic city centre.

CRY Heart of London Bridges Walk 25th June

CRY’s flagship event is a 5.5 mile walk through central London, crossing some of the famous bridges and passing iconic landmarks. Join us afterwards for the CRY Family Picnic to connect and remember.

London to Paris Tour de France

20th to 24th July

This incredible cycle connects two of the world’s most chic capital cities! You will make your way through beautiful English villages and into the stunning countryside of rural France

AJ Bell London Triathlon

5th & 6th August

The London Triathlon sees thousands of people come to our iconic capital city to join our community of incredible triathletes taking on the challenge

Great North Run 10th September

The Great North Run is the world’s biggest half marathon, with more than 57,000 runners pounding the streets of Newcastle.

CRY Heart of Durham Walk TBC

The 5 mile route passes along the River Wear and through the beautiful city of Durham, passing the medieval cathedral.

Cardiff Half Marathon

1st October

The Cardiff Half Marathon has grown into one of the largest and most exciting road races in the United Kingdom.

Royal Parks Half Marathon

8th October

This stunning central London half marathon takes in the capital’s world-famous landmarks on closed roads, and four of London’s Royal Parks.

CRY Raising Awareness Week

25th November - 3rd December

Help raise CRY’s profile by holding your own fundraising or awareness event. This is a perfect opportunity to promote the importance of the charity and cardiac screening for young people.

12 A Week Challenge

As part of Raising Awareness Week

Participants are challenged to complete 12 miles by either Walking, Running, Cycling or Swimming. This can be done over the week, in one go or over a few but must be within Raising Awareness Week

CRY Great Cake Bake

1st December

Get your family, friends, and colleagues involved in baking, eating and raising money for CRY! Save young lives one slice at a time!

www.c-r-y.org.uk 49

Raising Awareness in the Media Report

Between May and August CRY featured in 489 print, national, magazine and online articles.

Headlines from May to August in the press...

Cardiac screening event held in Derbyshire teenager’s memory

BBC News

A heart screening event for young people is being held in memory of a 15-yearold girl, Madeline Siddall.

Read at bit.ly/3W9pc7b

Kent heart-scare cricketer takes on ironman event

BBC News

A former Kent cricketer is taking part in an ironman competition to raise money for heart charities after a former team-mate died suddenly.

Read at bit.ly/3QPUrDl

‘My ‘healthy’ son dropped dead at 31 at his computer - he died so we could live’ The Mirror

Seemingly healthy Gary Anderson died from a heart attack at the age of 31. It was later discovered that a heart condition ran in his family. Now, a group of bereaved mums are calling for mandatory heart screenings on the NHS for everyone at 14.

Read at bit.ly/3WfQj0H

Belfast football club’s tribute to player who died from undetected heart condition

Belfast Live

A West Belfast football club is set to pay tribute to one of its former players with a special memorial tournament on July 17.

Read at bit.ly/3H47NHR

Cardiac arrest charity encourages people to get heart screened after schoolboy

Samuel Akwasi’s death

ITV News

Cardiac Risk in the Young is encouraging young people to get their hearts screened after a schoolboy from Nottingham died following a football match.

Read at bit.ly/3ITm5NQ

Notts football club raises over £3,000 in memory of young player who died on field

Nottinghamshire Live

A Sunday League football team has raised more than £3,000 in memory of West Bridgford youngster Dylan Rich.

Read at bit.ly/3CT5buO

For links to online, press, television and radio coverage related to CRY and young sudden cardiac death visit www.c-r-y.org.uk/inthemedia

Issue 88 | May to August 2022 50

Our Fundraisers

By fundraising for CRY you will be helping to:

• subsidise CRY’s national cardiac screening programme

• fund CRY’s bereavement support programme to provide counselling and support to affected families

• support research into young sudden cardiac death (YSCD)

• develop the myheart Network to support young people living with cardiac conditions

• provide all CRY literature and information free of charge

• develop the CRY Centre for Cardiac Pathology (CRY CCP), and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology

Our Patrons

The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD.

Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, sponsor forms and other resources.

If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.

Visit www.c-r-y.org.uk/charityfundraising-challenge-events for more information or contact the CRY office for a fundraising ideas pack.

There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we also accept credit/debit card donations over the phone.

For further information please call the CRY office on 01737 363222 or visit www.c-r-y.org.uk/donate

All your help is greatly appreciated.

The urgency of CRY’s mission and the quality of our work has compelled many high-pro

le personalities to give their time to become CRY Patrons. For more information visit www.c-r-y.org.uk/about-us/patrons

“It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.”

Current Patrons of CRY:

Our Mailings

1. CRY Update magazine

Postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; supporters’ fundraising; articles about screening, myheart, research, pathology, raising awareness initiatives, massparticipation fundraising events; and much more.

2. CRY enewsletter

Monthly email newsletter; 3 emails per year with links to the online version of the Update magazine; plus occasional emails about major CRY events and initiatives.

would like to subscribe to – or unsubscribe from – either of these mailing lists,

www.c-r-y.org.uk 51
CRY Update 88 May to August 2022
Rob Andrew MBE • John Barrowman MBE • Jeremy Bates • Ben Brown • Clive Clarke • Jack Clifford • James Cracknell OBE • Nick Easter • Jonny Evans • Baroness Ilora Finlay • Simon Halliday • Kathryn Harries • Michael Hoey • John Inverdale • Tom James MBE • Pat Jennings OBE KSG • Rob Key • Gary Longwell • Pixie Lott • Emily Maitlis • Graeme McDowell MBE • Lee Mears • Bill Neely • Lawrence Okoye • Phil Packer MBE • Sir Steve Redgrave CBE • Vincent Regan • Joe Root • Andy Scott • Roger Taylor MBE • Professor Gaetano Thiene • Gregor Townsend MBE • Andrew Triggs-Hodge MBE • Andrew Trimble • David Walliams • Alison Waters • Matt Wells • Sir Clive Woodward OBE
If
you
please let us know:
Complete the online form; www.c-r-y.org.uk/subscribe
Call the CRY office; 01737 363222
Email the CRY office; cry@c-r-y.org.uk

When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD).

Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions.

These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS).

CRY aims to reduce the frequency of YSCD through raising awareness amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research.

1 in 300 young people CRY tests will have a potentially lifethreatening heart condition.

CRY believes cardiac screening should be available to all young people aged between 14 and 35.

CRY also works to guide and support families and close friends affected by YSCD.

We provide information to explain what the coroner does, bereavement support, help with NHS referrals and advice on the procedures that usually follow a YSCD.

In 80% of cases of young sudden cardiac death there are no prior

symptoms of a heart defect.

CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge.

For detailed information about cardiac conditions and CRY’s range of literature visit www.c-r-y.org.uk/ medical-information

Our Mission
CRY is grateful for grants or donations from trusts and foundations. We would like to thank the following for the generous support they have given us: A & R Woolf Charitable Trust • Aubrey Orchard-Lisle Charitable Trust • The Bartle Family Charitable Trust • The Brian Shaw Memorial Trust • Borrows Charitable Trust • The Cantiacorum Foundation • Carval Foundation • The Cecil Rosen Foundation • Charles Littlewood Hill Trust • The Charles Wolfson Charitable Trust • Childwick Trust • CMS Cameron McKenna Foundation • Cosaraf Foundation • Doris Field Charitable Trust • The Edith Murphy Foundation • G C Gibson Charitable Trust • G M Morrison Charitable Trust • Gawthorn Cardiac Trust • Hasluck Charitable Trust • James Tudor Foundation • Kent Family Charitable Trust • The Lady Forester Trust (supporting the work of CRY in Shropshire) • Leathersellers’ Company Charitable Fund • The Mabel Harper Charitable Trust • The May Gibson Charitable Trust • The Rachel & David Barnett Charitable Trust • The Samuel Storey Family Charitable Trust • The Schroder Charity Trust • Sir John Sumner’s Trust • Sir Robert Gooch Charitable Trust • St Christopher Health Fund • The Stanley Grundy Foundation • Tudor Foundation Inc • Vernon N Ely Charitable Trust ofToreceivetheonlineversion theCRYUpdate,visit:www.c-r-y.org.uk/ subscribe @CRY_UK CardiacRiskintheYoung Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk Visit our websites: www.c-r-y.org.uk www.sads.org.uk We are very proud that over 80p in every £1 we spend goes into supporting CRY’s key aims. Without the fantastic support we receive this wouldn’t be possible. CardiacRiskintheYoung Registered Charity No. 1050845 Due to the anticipated impact of COVID-19 on fundraising in 2020/2021 CRY reduced the number of research fellowship grants awarded. Awareness 16 5% 16.5% Suppor t Support 1 2 5% 12.5% Research 29 5% 29.5% Screening 23.5% Governance 3% Fundraising 15%
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