CRY Update Magazine Issue 86

News and Events | Raising Awareness | Our Fundraisers

Update 86 | September to December 2021

In this Great North Run

| 11

CRY’s International Medical Conference

| 12

CRY Heart of Durham Walk

| 14

London Marathon

| 16

CRY’s 2021 Raising Awareness Week

| 20

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK

To r of ece th ive ww e C th w. RY e on su c-r- Upd line bs y.o at v cr rg e, ers ib .u vis io e k/ it n :

Newsletter

CRY Update 86 September to December 2021

Inside Update 86

Editor Dr Steven Cox

Chief Executive

Deputy Editor Newsletter Editor

Tom West

As Deputy Editor of the CRY Update it is my responsibility to put together this newsletter, and ambition that you find all the CRY news, events and fundraising in these pages to be of interest.

I always endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to get in touch with me if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section.

I would appreciate hearing from you at tom@c-r-y.org.uk or on 01737 363222 if you have any feedback or comments regarding previous issues. Thank you for your help.

Contributors Alison Cox MBE

1 Founder

Professor Mary Sheppard Consultant Cardiac Pathologist

13

3

2

4 5 8

12 11

Head Office:

10

9

6 7

3 4 6 8 9 10 11 12 14 16 20 22 58

For more details regarding the events shown on the cover, please turn to the corresponding page references below. Images are listed clockwise from top left: 1. A group of walkers at the CRY Heart of Durham Walk. Page 14.

2. A young CRY supporter completing a bike ride in memory of Daniel Hughes. Page 41.

3. CRY Patron Bill Neely after completing the 2021 London Marathon. Page 16.

Unit 1140B The Axis Centre Cleeve Road Leatherhead KT22 7RD No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor.

The Editor welcomes letters but reserves the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of Cardiac Risk in the Young (CRY). Articles pertaining to health-related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

Meet Our Representative News from the Chief Executive CRY Online CRY Screening Report CRY Centre for Cardiac Pathology (CRY CCP) Report Alison’s Column Great North Run CRY’s International Medical Conference CRY Heart of Durham Walk London Marathon CRY’s Raising Awareness Week Our Fundraisers Raising Awareness in the Media Report

4. A group of supporters completing a walking event in memory of Andy Forbes. Page 36.

5. CRY Patron Pat Jennings taking part in CRY’s 12 A Week Challenge. Page 20.

6. CRY runners after finishing the 2021 Great North Run. Page 11.

Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more.

Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised.

If you can supply a writeup or photos for any fundraising activities you have taken part in, please email tom@c-r-y.org.uk.

Images of CRY Patrons and Members of Parliament throughout have been highlighted in red.

7. One of CRY’s runners during the 2021 London Marathon. Page 16.

8. CRY’s screening team at an event in Whitchurch, held in memory of Matthew Dewhirst. Page 8.

9. CRY’s screening team at an event in Devon, held in memory of Ollie Marsden. Page 8.

10. Supporters at the Nathan Butler Memorial Cricket Tournament. Page 31.

11. The volunteer crew of the Chesterfield Canal Trust boat, “Madeline,” fundraising in memory of Madeline Siddall. Page 49.

12. Supporters passing the Durham Cathedral during the CRY Heart of Durham Walk. Page 14.

13. Supporters completing a walk from London to Hasting in memory of Daniel Parris. Page 46.

To subscribe to the online version of the CRY Update, which includes extra features such as embedded videos, visit: www.c-r-y.org.uk/subscribe Copyright © 2022 Cardiac Risk in the Young. Registered Charity No. 1050845 A Company Limited by Guarantee. Registered in England No. 3052985 Registered Office: Unit 1140B The Axis Centre, Cleeve Road, Leatherhead, KT22 7RD

2

Issue 86 | September to December 2021

Meet Our Representative Hilary Edwards Representative in Somerset

I stumbled on CRY whilst trying to find out just how and why our healthy and happy son, Gary, died in his sleep.

Just 28 years old, with a great job and about to be married, we just couldn’t understand it. Polish police told us he died of “natural causes.” Rob, his twin brother, phoned us on that terrible Sunday, 12 July 2015.

The boys were with a number of young men on Gary’s stag weekend. “You need to get to Poland, Mum,” Rob said.

“Gary is dead.” With the help of friends we found flights and travelled to Sopot that Gary Edwards afternoon. We flew from one of the London airports though I couldn’t tell you which. For the next few days we were all in a daze, it was all so surreal.

I think I went into a sort of autopilot as we went from police station to hospital to embassy.

Rumours about drink and drugs circulated; he was on his stag do after all. We knew better. Gary didn’t take drugs and he didn’t die choking. A second post mortem in Taunton found nothing. We waited for the Polish authorities to provide us with tissue and toxicology results. Some 10 months later the results showed no cause of death.

An inquest in Taunton almost a year after Gary died recorded Gary’s death as “Unascertained”. I now understand that this is quite common and is why so few young persons’ deaths are accurately recorded when death is due to a previously undiagnosed heart condition.

A month or so following the inquest we received a letter from the Polish police advising us that they had now closed their case. We didn’t know it was ongoing! It concluded that the coroner’s view was that Gary had “most probably died of sudden heart death resulting from acute heart failure most probably caused by the electrical activity of the heart”. If only we had received this letter before the inquest.

Months later we arranged for our son’s tissue samples to be sent to Dr Mary Sheppard, though as with many cases, no conclusive cause of death was found.

We asked to see our son following the autopsy carried out at the University Hospital at Gdańsk. No cause of death was found, but a death certificate was given to us saying that Gary’s heart stopped and he stopped breathing. Isn’t that how everyone ultimately dies? That’s not a cause. It didn’t make any sense.

Nothing prepared us for seeing our son in a coffin, in what I can only describe as a warehouse. A few men stood around.

Our son’s body was waiting to be transported home. The international funeral directors were called the Bongo Company... I’ll never forget that name or fact that they demanded payment in full, with proof, before they would make the necessary arrangements.

Rob had told us that the boys had had a great day on the beach playing football. They had returned to the apartments to shower and change to go out for the evening. They went to a restaurant and music bar. At around 10pm Gary told Rob that he was tired and wanted to return to the apartment. Rob and Gary walked the 10 or 15 minute journey and Gary went to bed. One of his friends was in the bedroom asleep. Another friend returned in the early hours of the morning. Gary was alive then and was snoring loudly.

At around 10am the following morning he was found dead in his bed. Attempts to revive him failed.

www.c-r-y.org.uk

I have received wonderful help and support from CRY. The telephone counselling service, the Bereaved Mother’s Day and booklets on anniversaries have been invaluable to me.

I wanted to give something back. That’s why I’ve become a CRY Representative. I’ve now raised almost £25,000, and have given several talks to local schools, colleges, and a few other organisations. We’ve only managed to hold one screening day, but now have another planned and need to book others.

COVID halted my fundraising and awareness sessions, but I’ve started again and am now looking at getting corporate funding. I’ve just learnt that my first application has been successful, and a local firm has agreed to fund our screening day in August.

Our family has been devastated by Gary’s death. Raising awareness and fundraising is a coping mechanism for me.

We need to prevent these tragic deaths.

3

News from the Chief Executive Dr Steven Cox

CRY Chief Executive

@Drstevenjcox drstevenjcox Thank you for everything that you continue to do to support CRY and raise awareness within your local communities. Included in this section are a number of media stories from September to December, as well as information about some of CRY’s events in this period.

September

CRY Heart of Durham Walk September 19 We were so pleased to be back in Durham in 2021 for the 12th annual CRY Heart of Durham Walk, after having to use a virtual event format in 2020 due to COVID. This year, we welcomed walkers back to our 8km route through Durham and some of its most iconic landmarks.

Meanwhile, people who preferred to not travel took part by completing walks in their own local areas.

It really was wonderful to bring this event back to Durham after so much was cancelled over the previous year and a half. If you’d like to read a full write-up of the day and see some photos of our walkers, turn to page 14.

October Great North Run September 12 To help begin our fundraising efforts in this four-month period, we were pleased to send a team to take part in the Great North Run, one of the biggest running events of the year.

It was fantastic for CRY to be well represented by 25 runners, along with their supporters who came along to cheer on the day.

BBC news story on young sudden cardiac death October 1 This BBC news segment raised awareness of the incidence of young sudden cardiac death and CRY’s work to carry out screening events all over the UK and save young lives.

Thank you to everyone who took part and helped support CRY after so many major events like this had been cancelled due to the various lockdowns and restrictions in place because of COVID.

It also told the story of BBC journalist Gem O’Reilly, who was diagnosed with a heart condition when she was 16 years old and has had to be careful with her health and exercise since. Gem explained how some heart conditions can be managed so you can maintain an active lifestyle. For instance, she has been given the sign-off to complete a 10k run.

You can read more and see photos on page 11.

Niki and Finn Mason were also interviewed to talk about

4

Issue 86 | September to December 2021

News from the Chief Executive Thank you to all the runners, staff members, and volunteers who made this day such a success.

To read more about the day and see some photos of CRY’s runners, turn to page 16.

Finn’s experience with an undiagnosed heart condition, and how he has since been able to receive a diagnosis and the appropriate medical care he needed.

“If I wasn’t told, I might not be here for this interview,” Finn said.

We’ve never accepted that as a society we should just sit back and see fit and healthy young people dying suddenly from undiagnosed conditions and to do nothing about that. We know that screening can prevent up to 89% of these sudden deaths, that’s what the research has shown.

The report noted that we often only hear about the risk of young sudden cardiac death on a larger scale when there are high-profile cases, like with Christian Eriksen and Fabrice Muamba. This is one of the reasons why always raising awareness in any way we can, and media coverage like this, is so important. You can watch this segment at bit.ly/3qmBnkh

London Marathon October 3 After so many major fundraising events had been cancelled in 2020 and 2021 due to COVID, it was great for the London Marathon to return in the capital.

We had a fantastic team at this marathon, with 105 runners representing CRY to raise funds and awareness in their CRY running tops. CRY Patron Bill Neely (above) joined our team yet again as well, running the London Marathon for CRY for a remarkable 11th time.

www.c-r-y.org.uk

CRY’s International Medical Conference October 3 With the continued concern of COVID, the annual CRY International Medical Conference was once again held online, as it was in 2020.

For this latest online conference, we were pleased to welcome audience members from around the world as leading experts in cardiology gave presentations, discussed various case-based scenarios and how to deal with them, and held interactive debates that viewers could engage with.

You can read all about the research discussed at the conference, and watch full videos of the presentations in the digital edition of the Update, by going to page 12.

November Raising Awareness Week November 20-28 We were thrilled to see so many supporters get involved with CRY’s 2021 Raising Awareness Week.

We brought back the 12 A Week Challenge, where CRY Patron Pat Jennings, who starred as a supporters aim goalkeeper for over 22 years representing to complete 12 Northern Ireland and top teams such as miles by either Tottenham Hotspur and Arsenal, took part in walking, running, the 12 A Week Challenge cycling or swimming, and 76 people took part. Along with the CRY Great Cake Bake and everyone’s different efforts to raise awareness, it was another successful week.

You can read all about it and see photos on page 20.

5

CRY Online Social media

screened.

Social media is a vital part of how CRY interacts with supporters and, first and foremost, raises awareness of young sudden cardiac death and what can be done to tackle it – from preventative measures (screening) to bereavement support for those affected by a tragedy.

In the CRY Online segment, we look back at the fourmonth period the Update covers and include a small selection of social media highlights, such as Facebook posts that reached an amazing amount of people, or supporters who tweeted memorable photos at us.

As this period included CRY’s 2021 Raising Awareness Week and a range of fundraising events, there were lots of highlights on social media of our supporters getting involved in a variety of ways.

Across Twitter and Facebook, our posts received an incredible 1.6 million impressions (the number of times a post appears on someone’s personal feed). This includes just under 500,000 impressions on Facebook in November alone, which just goes to show how far our social media messages can reach when people get engaged.

due to the pandemic.

One of our top posts in October congratulated our fantastic team of 105 CRY runners at the 2021 London Marathon. It was great to see so many people taking to the streets of London to represent CRY and raise valuable funds after so many events were cancelled in 2020 and earlier in 2021

In December, the #OneForDan group who support CRY in memory of Dan Blackman released a powerful short film.

His friends, family and colleagues shared their memories of Dan, and their mission is to raise awareness of SADS and encourage as many young people as possible to be

6

On Instagram, we also received some celebrity help with raising awareness.

Fred Sirieix, a TV personality from shows such as Channel 4’s First Dates, visited CRY’s expert cardiologists as St George’s Hospital for a heart check-up. Raising awareness about heart health, whether it’s through additional tests like this or the potentially life-saving ECGs that CRY offers through our screening programme, is so important. We always appreciate people using their platforms online to help raise further awareness.

Interacting with us on social media is an easy way to keep up to date with any CRY information you might need. You will receive updates on upcoming events and screenings; and photos from fellow supporters. Every share of a post helps spread awareness about CRY a little further. So, if you’d like to follow along, here’s where you can find us:

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK

Issue 86 | September to December 2021

CRY Online

We are always grateful for those with large platforms, such as CRY’s own Patrons and Ambassadors, for using their reach to bring awareness to young sudden cardiac death and the importance of CRY’s work.

In November, Jean Johansson, TV presenter of shows such as A Place in the Sun, competed on Celebrity Mastermind and selected CRY as her charity to support in her episode.

Gem O’Reilly from the BBC was diagnosed with a heart condition was she was 16 years old, which has since changed her life in many ways. Gem’s article about her story and young sudden cardiac death received plenty of engagement on social media, and the story was also featured on TV on BBC London to help draw even more attention to her story and CRY’s work.

One of our Twitter highlights in Raising Awareness Week came from CRY Patron Pat Jennings, who offered his support by taking part in the CRY 12 A Week Challenge. Pat, who spent 13 years of his career playing for Tottenham Hotspur, got some support from his former club. The official Spurs Twitter account shared word of Pat’s efforts, as well as a link to CRY’s website where people could find out more about the charity and our 2021 Raising Awareness Week. This was a fantastic way to raise awareness, and thank you to Pat and all our supporters who got involved in the 12 A Week Challenge!

www.c-r-y.org.uk

7

CRY Screening Report Between September and December 2021, CRY screened over 6,000 people

What happens at a screening?

The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart.

Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire.

Members of CRY’s screening team at an event held at Whitchurch Rugby & Hockey Club, in memory of Matthew Dewhirst

510 athletes were screened at sports screenings, including: Ospreys Rugby, Scarlets Rugby, NFL Academy, Wasps Premiership Rugby, Wasps Premiership Rugby U18s, Wasps Ladies Rugby, Doncaster Knights Championship Rugby, Leicester Tigers Premiership Rugby and U18s, London Irish Premiership Rugby and U18s, Bath Premiership Rugby U18s, and Arsenal FC Youth Academy.

Dewhirst (Whitchurch), Matthew Hesmondhalgh (Garstang), James Nicholas (Merseyside), Adam Lewis (Warrington), Thomas Hardman (Heywood), Charlie Craig (Hayfield), and Anthony Fitzgerald (London).

3,025 people were screened at family screening events, held in memory of: Daniel Hughes (Stoke On Trent), Alex Reid (Sheffield), Aaron Dixon (Cheshire and Cumbria), Christopher and Steve Phillips (Stafford), Lewis Marsh (Walton-on-Thames, Sandhurst), Christian Thunhurst (Leatherhead), Zoe Teale (West Midlands), Jamie Loncaster (North Ferriby), Neil Wickers (Lancashire), Harry Faulkner (Berkhamsted), Josh Merrick (Manchester), Richard Brember (Portsmouth), Tom Clabburn and Claire Prosser (Ealing), Oliver Marsden (Devon), Matthew

966 people were screened at events held at CRY’s office in Leatherhead, Surrey, including four screening days that were funded in memory of Christian Thunhurst.

8

738 more people were screened at events funded by money CRY received from the Tesco Bags of Help Centenary Grant.

822 people were screened at other screenings and school screenings, held in Manchester, London, Bridlington, and Sedbergh.

If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform.

The screening programme is under the aegis of Professor Sanjay Sharma.

Members of CRY’s screening team at an event held in Devon, in memory of Oliver Marsden

Issue 86 | September to December 2021

CRY Centre for Cardiac Pathology (CRY CCP) Report

By Professor Mary Sheppard

Professor Mary Sheppard, Consultant Cardiac Pathologist

Emelia Zullo, Laboratory Technician Khari Edwards, Laboratory Technician

We have had a busy year in 2021 here at the CRY cardiovascular pathology laboratory, continuing our work during lockdown which was challenging but we maintained our case numbers and referrals from throughout the UK. We reported 499 hearts and 305 spleens during this year, with sudden adult death and cardiomyopathies accounting for the majority of cases. All of these cases were reported within 14 days of receiving the case so families get the cause of death within this time frame, which is a vital part of our service.

Causes of death in 2021 SADS Cardiomyopathy IHD Other Aortic Hypertensive heart disease Valve Myocarditis Endocarditis Congential heart disease

represented with posters on the Normal Heart, SCD in Mitral valve prolapse and Transplant.

Our research into SCD in transplant (Emelia Zullo – Lab Technician) received the MSc poster award for 2021.

We would also like to congratulate our previous lab tech Susanna Cooper for receiving the Chrissie Fenske prize at the research day.

Our collaboration with the Inherited Cardiac Conditions unit at St George’s Hospital continues. ICC nurses continue to combine our findings with the genetic and cardiac screening of families to help diagnose cardiac conditions in living relatives which helps greatly with their care.

We continue to work on and publish research projects, with 15 papers published in 2021.

We are also involved in the National Sudden Death NHS genetic programme as Pathology Lead, giving guidelines to other pathologists in regional centres.

Professor Sheppard is President of Pathology Section of Royal Society of Medicine, organising meetings within the organisation.

It was a pleasure to be part of this year’s SGUL Research Day and present the work we are doing with CRY. We were

www.c-r-y.org.uk

To learn more about the research completed at the CRY CCP and Professor Mary Sheppard’s work, you can watch her presentation at the 2019 CRY Family Research Day on our YouTube channel here: bit.ly/2Dmg6RU

9

Alison’s Column The importance of CRY’s Heart of London Bridges Walk It is significant that CRY’s annual Heart of London Bridges Walk has become such a massive feature in the CRY calendar that we start preparing for it immediately after the previous one has finished.

The power of our families coming together for what Alison Cox MBE has always been our CRY Founder most important and well attended event cannot be exaggerated. Knowing that they will have the opportunity of walking and talking with others similarly affected provides a secure blanket of relief that their catastrophic grief will be understood.

The following piece is by CRY supporter Paul Clabburn, who explains his connection to the Bridges Walk event: I didn’t go on the first CRY Heart of London Bridges walk in 2007. I didn’t go because I hadn’t heard of CRY and my teenage son, Tom, was thriving. Except he wasn’t. In October of that same year, Tom died aged 14 of an undiagnosed heart condition. By the time CRY held its second walk, I knew all about the charity and the extraordinary work of Alison Cox. We prepared by printing t-shirts so that we could carry Tom on our backs. We felt distinctly nervous when we arrived at Victoria Embankment, happy to be distracted by helping Tom’s mum, Claire Prosser, gather material for a BBC radio documentary, “Life After Tom.” It turned out to be an extraordinary day. The sun shone, the crowd gathered, and Team Tom swelled to an unimaginable number. More than 100 family and friends, including so many of Tom and our daughter, Ellen’s, friends, turned out in support. I remember wondering, given the occasion, whether I should smile in the team photo. I chose ‘neutral.’ As for the walk itself, I hit upon a practice I’ve followed ever since, using the first part to thank those who have made the effort to come, the rest to be alone with my thoughts, just me and Tom.

CRY supporters at the start of the 2016 Heart of London Bridges Walk

A place where the vacuum of loss needs no explanation.

Where tears will be commonplace. Being able to share the repercussions of the ‘new you’ that they have become allows an outpouring of the person they were. Now are.

Being able to write a personal message on the massive CRY bereavement board and read the stories of others suffering like themselves, can relieve the pain.

Coming to terms with the young sudden cardiac death of an apparently fit and healthy child, sibling, partner or friend can be catastrophic, and impossible to understand. There is no logic or science of reasoning that can be applied. Death is instant, without warning.

The brutality of the loss is best spoken of, and none better than to another with a similar situation to come to terms with. It needs no interpretation and the warmth of understanding each other can hugely help them to understand themselves.

10

Team Tom at the 2014 CRY Heart of London Bridges Walk

I listened again to Claire’s documentary on BBC Sounds while writing this. If you’d told me in 2008 there still wouldn’t be a national heart screening programme, I wouldn’t have believed you. That’s nearly 10,000 young people who have died since Tom. Many need not have done. While that, sadly, hasn’t changed, much else has. We were all tested after Tom’s death and Claire was found to have a heart condition.

She died in 2014 having campaigned relentlessly, often while ill. Since then we’ve walked for Tom and Claire, too.

This year Ellen and I won’t be together. CRY’s event clashes with a rescheduled Glastonbury. Ellen and her friends will be taking their CRY T-shirts to wear on the day while I’ll be once more walking the bridges with Team Tom XV. While I can walk, I will. After so many years, putting one foot in front of the other for Tom and all those like him still feels the right thing to do.

Issue 86 | September to December 2021

Great North Run 2021

Congratulations and a huge thank you to the 28 runners who took part in the Simplyhealth Great North Run for CRY on 12 September 2021!

The long-awaited return of the event was welcomed by all that attended. It was a brilliant day, with good running conditions for most of the day, other than a few showers.

With the change of route and charity village location, the event still felt the same and everyone we spoke to felt very positive about the experience.

It was lovely to meet and congratulate the 25 CRY runners who came to visit us at the charity marquee and hand them a CRY medal along with some much needed refreshments.

We would like to thank all of the CRY runners’ supporters for coming along and cheering on the CRY team. We know that your cheering would have helped them all get across the line to complete the run.

We welcome any runners that would like to take part next year on behalf of CRY. If you would like to run for CRY in the 2022 Great North Run on Sunday 11 September 2022, please email your interest to events@c-r-y.org.uk Once again, thank you to each and every one of our runners for their fantastic efforts in completing this event and fundraising so generously for CRY. They should all be extremely proud of their wonderful achievement.

The runners in team CRY: Charlotte Luckett (in memory of Martyn Luckett) | Jody Barford (in memory of Linda Barford) | Nico Matrecano (in memory of Peter McAvoy) | Rosalyn Day (in memory of Thomas Arthur Day) | Stephanie Gledhill (in memory of Charlotte Ellen Orwin) | Dan Charlton (in memory of Charlie Craig) | Andrew Butler (in memory of Dale Geroge Holder) | Lisa Heard (in memory of Martyn Luckett) | James Welsh (in memory of Nicola Klitzke) | Paul Inch | Michael Carling (in memory of Stephanie McLean) | Tamsin Winter (in memory of Martyn Luckett) | Stephen Russell (in memory of Fiona Russell) | Robyn Watson (in memory of Charlotte Orwin) | Cheryl Hoggarth (in memory of Dennis Denton and Baby Kelly) | Izzy Phillips (in memory of Freya Cox) | Scott Milburn (in memory of Tim Perry) | Luke Platt (in memory of Andrew Key) | Andy Sunter (in memory of James Campbell) | Jennifer Grady (in memory of Kelsey & Zac Taylor) | Abigail Arnott (in memory of Mair Schmeinck) | Berni Ryan | Bethany Bradbury (in memory of Amy Evans) | Aran Morland (in memory of Levon Morland) | Christine Iveson (in memory of Graham Harrison) | Martin Harrison (in memory of Graham Harrison) | Jennie Lock (in memory of Phillip Jefferies & Andrew Key) | Robert Bass (in memory of Kevin Paterson) www.c-r-y.org.uk

11

CRY’s International Medical Conference 2021 Due to the ongoing COVID-19 pandemic, the CRY Conference was moved online again for 2021. On October 14 and 15, the conference was hosted in partnership by CRY and the European Association of Preventive Cardiology (EAPC). We were thrilled to welcome leading experts in cardiology from around the globe for presentations, discussion of case-based scenarios, and interactive debates for the audience to follow and engage with online.

The first debate of Day 1 was “Athlete with an ICD; No way back to competition?” This was led by Andre La Gerche, a cardiologist and researcher at the Baker Heart and Diabetes Institute in Melbourne, Australia, who presented a case of whether an athlete should be allowed to return to competition. The athlete in this case was an elite 26-year old Australian Rules Footballer, who had previously been well with no family history of any medical problems. He collapsed during a match and after getting up was immediately taken to hospital. In the presentation, Professor La Gerche went on to show some of the tests the athlete went through. It was established that the athlete had no other symptoms before or after the incident, and he went on to have a subcutaneous implantable cardiac defibrillator.

Professor Rachel Lampert from Yale Medical Center joined to argue the case against the athlete returning to sport, while CRY Consultant Cardiologist Professor Sharma presented the case that the athlete could resume competing.

The second debate of the day was entitled “Athlete with LQTS and prolonged QT interval; Treat and release.” This case looked at an 18-year-old competitive swimmer with long QT, who had a syncope spell two years ago and whose mother had a syncope spell while skiing, meaning there was family history to consider. The swimmer underwent a variety of tests. After 83% of the audience voted to say the athlete should not return to competitive sport, the debate began.

Professor Elijah Behr had the task of convincing the audience otherwise, making the case that the athlete could be treated and return to sport. After discussing various data, Professor Behr concluded with a few key points, including that athletes have longer QT intervals, many with QT prolongation do not have long QT syndrome, and there is no evidence of higher risk attributable to the additional QT prolongation of athletes. In fact, most patients are low risk, Professor Behr 12

added. Dr Silvia Castelletti from the Cardiomyopathy Unit and Center for Cardiac Arrhythmias of Genetic Origin, Milan, Italy followed to present the case against the athlete returning to competitive sport.

Dr Castelletti presented more data and outlined some of the arguments against, such as how participating in sport can lead to a further prolonged QT which can correlate with the increased risk of a cardiac event occurring.

After a Q&A session with questions from audience members, the second session of the day got underway. This session included three different cases. Firstly, Dr Harald T. Jørstad began with “Veteran athlete with atrial fibrillation; pit stop or steady on?” The case looked at a 39-year-old man who is a former professional football player with atrial fibrillation.

The former footballer contacted a clinic one morning to say that he had atrial fibrillation the night before and took his medication (flecainide). Now that he was feeling fine, he asked if it would be safe for him to play in a football match later that day. Dr Jørstad went on to discuss atrial fibrillation in more detail and how this case could be dealt with.

Next, Dr Michael Papadakis from St George’s University, London, looked at a case of an athlete with pre-excitation.

In this instance, a 16-year-old sportswoman who attended a CRY screening. Her exercise regimen involves 13 hours of training per week, including competing in swimming and netball at county level. She reported some shortness of breath from exertion which had been attributed to hay fever, and she had no family history of concern. Dr Papadakis then looked at the ECG of the athlete to ask the audience what it showed, and discussed what tests could be done next.

For the third and final case of Day One, Dr Alessandro Zorzi from the Department of Cardiac, Thoracic and Vascular Sciences and Public Health at the University of Padova, Italy joined to give a presentation, entitled “Athlete with ventricular ectopy: it is a family thing.” Dr Zorzi looked at four members of a family who were referred to his cardiac clinic for evaluation. He explained their various symptoms, looked Issue 86 | September to December 2021

CRY’s International Medical Conference 2021 at their ECG results, and discussed what further testing or treatment they may need. To bring Day One to a close, Dr Papadakis hosted The Great ECG Quiz.

The first session of Day Two got started with a talk from Professor Martin Halle, examining the case of a 52-year-old male who suffered a non-ST-elevation myocardial infarction. In the three months since, the man underwent cardiac rehabilitation with moderate intensity exercise three to four times per week and had no symptoms. Before his acute myocardial infarction, though, he was more active – he went jogging for 45-60 minutes five times a week and took part in several half marathons and marathons, and wanted to return to a similar level of physical activity. So, Professor Halle discussed some of the testing the patient had and asked the question whether participation in high-volume sports, such as a marathon, could be recommended.

Dr Meagan M. Wasfy from the Cardiovascular Performance Program at the Massachusetts General Hospital in Boston, USA argued the case for the runner to return to this kind of sport. Dr Wasfy did say that personally she would not recommend training for a marathon, but did look at why cases need to be individualised and consider the goals of the patient. To counter, Professor Mats Börjesson argued why the runner should not return to such significant levels of sport.

The next case, presented by Professor Antonio Pelliccia, looked at a 43-year-old male football player with no symptoms or family history. The only finding with the footballer was abnormalities on his ECG, including markedly increased voltages. After Professor Pelliccia explained the footballer’s test results and low risk score, former CRY Research Fellow Dr Sabiha Gati from the Royal Brompton Hospital argued the case for a return to sport. Dr Gati closed with a few key arguments, such as how moderate exercise reduces cardiac risk factors and improves fitness, and how a sedentary lifestyle can have detrimental effects on people including those with hypertrophic cardiomyopathy.

a 23-year-old elite runner who had reported some atypical chest pain when in a resting state. His clinical examination was normal, he had no personal medical history and takes no medication. There was some family history, though, as his father was a runner who was diagnosed with dilated cardiomyopathy at 44 years old. Dr Claessen discussed the testing the runner underwent and the panel of experts weighed in on the findings.

The next case of the session was presented by Dr Elena Cavarretta from Sapienza University of Rome, Italy on “An athlete with mitral valve prolapse.” Dr Cavarretta looked at the case of a 40-year-old competitive triathlete diagnosed with mitral valve prolapse, and discussed his condition and to what degree he should be able to participate in sports.

The final presentation of the conference was given by CRY Research Fellow Dr Raghav Bhatia. Dr Bhatia’s case looked at a 20-year-old semi-professional cricketer after being infected with COVID-19. The cricketer was typically fit and well but went to his local Accident and Emergency department after having a two-day history of chest pains and a few other symptoms. The athlete had received two doses of the PfizerBioNTech vaccine and had mild illness with COVID a week after his first dose. Dr Bhatia looked at how to diagnose the athlete and how long they may need to wait before returning to sport, along with discussion from the expert panel.

The 2021 CRY Conference featured so many brilliant presentations and we are grateful to all the experts who took part. We would also like to thank all of our sponsors for the conference, as well as Wondr Medical, our digital partner who streamed the event.

To conclude, Dr Jonathan Drezner gave his presentation to make the argument against the footballer returning to play.

Dr Drezner looked at a few key points, such as how exercise can be safer for older patients with HCM but not necessarily younger patients, and that restricting participation in sports can reduce the risk of SCD. The session finished with a Q&A and discussion amongst the panel of experts.

The second and final session of Day Two began with a case presented by Dr Guido Claessen, “Athlete with dilated LV and reduced/borderline LVEF.” The athlete in this case was www.c-r-y.org.uk

13

CRY Heart of Durham Walk 2021

Following the restrictions over the previous 18 months, we were so pleased to be able to host our 12th annual Durham Walk event back in the heart of the city this year, with an incredible 120 walkers attending. Families and friends who have tragically experienced the sudden death of a young person due to young sudden cardiac death came together to reflect and support one another as they walked through the city in their CRY T-shirts. We are so thankful to everyone who was able to attend, especially as we are aware of what a difficult day it can be for our CRY supporters.

The walk started and finished at our lovely venue, The Durham Amateur Rowing Club, and this year our participants were able to sit outside in their new riverside beer garden before and after.

Weather wise, the day started off with some drizzle and showers, but by the afternoon the sun was shining over Durham, and people stayed and chatted in the warm weather into the early evening.

People started arriving from around 9:30am, checking in and getting ready to walk. We also welcomed 25 walkers that registered on the day which was fantastic.

In the morning, Jeff Morland, who founded the event 12 years ago, along with Steve Percival, who has been key in helping us to

14

hold the walk in Durham throughout the years, were kind enough to speak at the Rowing Club. Jeff spoke about the history of the event, and an emotional moment followed as Steve read out the names of those families and friends attended in memory of.

At 11am, it was time to set off, and the walkers headed along the scenic River Wear towards the town, passing over several of the bridges that are so key to Durham’s character. Our walkers were then met with iconic views of Durham Cathedral and castle as they weaved their way through the cobbled streets, eventually arriving at the Market Place. Here the walkers were able to stop at the CRY awareness stand that was manned by CRY volunteers Kenny and Maralyn Bowen, who kindly spent the whole day handing out well-earned bottles of water to our walkers.

The walkers then passed Durham Cathedral, where some may have chosen to light a candle within the cathedral at this point in the day.

After covering some more ground and seeing some of the city, the walkers began to retrace their steps back towards the Rowing Club along the riverside, with the sun starting to make an appearance!

As the walkers started to return, they were congratulated for their fantastic achievement with a CRY medal

Issue 86 | September to December 2021

CRY Heart of Durham Walk 2021 and had a very well-deserved sit down in the lovely beer garden. They were greeted by one of our volunteers, Marie Miller, in addition to CRY staff.

Six CRY staff attended the event this year – Lily Burke, Phil Houlton, Cara MacMillan, Alice McDermott, Ben Robinson, and Hannah Walker. It was so important for new staff to meet some of our incredible supporters and families, as well as a chance for returning staff to see families face to face again, following COVID restrictions.

Walkers shared with us that a member of the public stopped them to ask about the event and about CRY, with some even generously offering donations along the way!

The walkers’ efforts on the day will have helped with CRY’s aim to raise awareness of young sudden cardiac death and the ways it can hopefully be reduced in the future. We really are so grateful to everyone who was involved in any capacity on the day for this reason.

years. He captured some brilliant moments throughout the day, including shots of Jeff and Steve making their wonderful speeches, as well as families tucking into ice creams on route!

We are also very grateful to the following companies and organisations for their support of this event:

As the evening started to draw in, families and friends chatted, both amongst themselves and with other walkers. People took group photos, and they were able to order from the Rowing Club’s delicious menu of food and refreshments. There were even some footballs being kicked around!

•

Adam Barrett and Sarah, our brilliant first aiders from Resq Support.

•

There was a marquee in which walkers could write a message dedicated to their young person and share their thoughts from the day if they chose to, as well as a virtual message board where walkers could share photos too.

Colin Wilkes, Jill Wood and Durham Markets Company Ltd for providing CRY with a free awareness stand in The Market Place, Durham.

•

Durham Amateur Rowing Club for providing a great venue at a discount, year after year, and to Mark Bell and John, for making us so welcome and helping out with setting up and packing up. The addition of the beer garden was such a special place for families and friends to spend time on the day.

•

Durham University Cricket Club for allowing us the use of the club’s car park.

•

Durham Safety Advisory Group and Asset Management Team for approving the route.

Walkers filled in some much-appreciated feedback forms, before setting off on their journeys home. By around 4:30pm, the event was wrapped up for another year!

We are so thankful to everyone that came, and CRY hopes to be back in Durham next Autumn, for another special day. This year, participants were walking and volunteering in memory of Meghan Adams; Jack Balfour; Ian Bowen; Andrew Callender; Tom Day; Matthew Harris; Dean Henderson; Damien Jewell; Eleanor Rose Keeler; Alan Lumley; Stephanie McLean; Levon Morland; Kevin Paterson; Charlotte Richardson; Mike Scott; Robert Daniel Smith; Claire Taylor; and David White.

We of course can’t forget the brilliant 12 people who participated in the ‘My Walk for CRY’, from their local areas. We hope the walk went well for you all, thank you so much for your support and commitment. My Walk for CRY was walked this year in memory of Andrew Dovey; Ashley Goodwin; Alan Lumley; Richard Ponting; Alexandra Reid; and Christopher Rushton.

Thank yous: We wanted to say a huge thank you to Doug Moody, a local photographer who has helped in Durham for many

www.c-r-y.org.uk

Finally, we would like to say a massive thank you to our dedicated volunteers and helpers. We really couldn’t run an event like this, so far away from the CRY office, without you: Dick and Carol Ainsley; Maralyn and Kenny Bowen; David (Joe) Crow; Jim Henderson; David Jewell; Marie Miller; Jeff Morland; Marianne Mortimore; and Steve Percival.

Special thanks, once again, must go to Jeff Morland and Steve Percival, the original instigators of the walk, for helping to organise the event and making it all happen each year.

If you would like to be among the first to hear new details and when registration is open for 2022, please fill out an interest form by going to c-r-y.org.uk/cry-heart-of-durhamwalk-2021-write-up

15

London Marathon 2021

Thank you and congratulations to CRY’s amazing runners who took part in the 2021 Virgin Money London Marathon!

Team CRY’s runners: Harry Adams (in memory of John Clune) | Lisa Adamson (in memory of Tony Mead) | Nick Arnell (in memory of his grandfather) | Andrew Belson (in memory of Ashley) | Gail Benghiat (in memory of Ben O’Connell) | Matt Bennett (in memory of Chris Bennett) | Paul Betts (in memory of Claire Taylor) | Lisa Bird (in memory of Charlie) | Ian Birkett | Henry Brady | Andrew Brookes (in memory of Poppy Hatfield) | Leonie Bryant | Tim Butt | Victoria Cartmell | Jo Cavell (in memory of Tiffany Andrews) | Nicholas Champion (in memory of Isabelle Tudisca) | Joel Clark | Elise Clark | Jenny Cochrane | Phoebe Comish (in memory of Mike Ince) | Will Cooper | Tom Davies (in memory of Sebastian English) | Lee Davies (in memory of Katey Louise Davies) | Emily Diplock (in memory of Peter Zambon) | James Doyle | Amanda Driver (in memory of Matt Gore) | Mario Dubois (in memory of Harry Dubois) | Vanessa Eaglesfield (in memory of Joe Kellogg) | Peter Elkins (in memory of his sister) | Holly Embleton | Stuart Flack | Paul Forsyth (in memory of Ben Forsyth) | Julie Fraser-Smith (in memory of Matt Gore) | Olivia Fraser-Smith (in memory of Matt Gore) | James Freeman | Amy Jayne Gadd | Nick Gower (in memory of Andy Kenny) | Kerry Hall (in memory of Lily Webster) | Ellie Harbinson (in memory of Rob Worboys) | Georgia Harding-Jones (in memory of Megan Harding-Jones) | William Harris (in memory of Emily Harris) | Rory Harty (in memory of Matt Cragg) | Tom Harty (in memory of Matt Cragg) | Harry Hawkes (in memory of Freya Cox) | Thomas Hemmings (in memory of Jack Thompson) | Chantal Hemphill (in memory of her uncles) | Emma Henderson | Mike Hennan (in memory of Jenny Kerwood) | Heather Herring (in memory of Grant Munro) | Andrew Hides (in memory of Neil Ward) | Harry Holmes (in memory of his dad) | Stephen Holyoak | Lucy Hopkisson (in memory of David Smiley) | Dan Jones | Emily Jones (in memory of Matt Cragg) | Sophie Jones | Julia | Phoebe Keene | Liam Kelly (in memory of Dan Hughes)

16

Sunday 3rd October 2021 marked a very special day in the charity calendar, as #TeamCRY were finally able to hit the streets of London and complete 26.2 miles.

We were delighted to have 105 runners take part on behalf of CRY, raising both vital funds and awareness. The team included CRY Patron Bill Neely, who has now taken part in the London Marathon 11 times for CRY! CRY volunteers were based out on the route at miles 12 and 23 to spur our charity heroes on. The weather on the day was predominantly in our favour, although there was a sudden downpour in the afternoon!

Our runners were greeted by CRY staff and volunteers near the finish

area, where they were offered a drink and snack whilst they waited for the CRY shuttle service to take them back to the post-race reception, based at the Hilton Hotel, Park Lane.

As the runners gradually arrived at the hotel over the afternoon, they were welcomed back by CRY staff and then checked in by volunteers, offered a CRY medal, photographed

by CRY staff, and offered plenty of refreshments. The runners were then offered a shower, followed by a massage from a therapist with the aim of easing any discomfort they might be experiencing.

Marathon day had been long awaited by both our amazing runners and CRY staff, so it was great to see the main room fill up,

Issue 86 | September to December 2021

London Marathon 2021

once again, with runners, families and friends, sharing their experiences from the day. It was a pleasure for CRY staff to meet everyone in person and thank them for their incredible efforts and dedication to the charity.

Thank you so much to the runners and supporters who were able to come back to the hotel to meet us. And, of course, a huge thank you to all of our wonderful volunteers: Chris Barrie (in memory of Claire Taylor); Andy Clarke; Johanna Coady; Hayley Edmeades; Wendy Harrington (in memory of Barry Nivett); James Hinkinbotham (in memory of James Neathercoat); Jenna Heath; Barbara and Jim Holland (in memory of Philip Holland); Pat Jones (in memory of Ian Hoggarth); Aleksandra Kolesnikova; Lottie McDermott; Izzy Phillips (in

www.c-r-y.org.uk

memory of Freya Cox); Suzanne Rowan (in memory of Robert Rowan); Jennifer Sheppard (in memory of Claire Taylor); Leah Watts and Ian Wynn.

As always, it was a challenging and emotional day for everyone, especially for those who were running or supporting runners in memory of a young person.

Thank you to Kendall Cars Leatherhead for providing us with a discount on the hire of the vehicle used to shuttle the runners from the finish to the hotel – we are very grateful for your support.

Finally, we cannot thank each and every one of our runners enough for their time, effort and valued support.

Well done to everyone!

| Rick Lansdell (in memory of Paul Sheridan) | Jo Lawrence (in memory of Adam Lewis) | Phoebe Lawrie (in memory of Katie Benson) | Isaac Leckie | Chris Legg (in memory of Jenny Legg) | Oliver Louis (in memory of Tom Russell) | Alexandra Mason (in memory of Katie Benson) | Mark McBrien (in memory of Matthew Dewhirst) | Sally Merchant-Edge | Rachel Murray (in memory of Luke Rutter) | Bill Neely (in memory of Katrina Brown) | Daisy Parker | Lucy Perrins (in memory of Thomas Fleetwood) | Joe Pescod (in memory of Matthew Dewhirst) | Andrew Proctor | James Purdue (in memory of Robert Rowan) | Carol Quoi (in memory of Lynn Kerr) | Conor Rabbitte | AbbyLee Ravenscroft (in memory of Aaron Dixon) | Alexander Revitt | Jenny Routley | Sheral Russell (in memory of Amber Robinson) | Jason Saunders | Charlotte Saunders (in memory of Charlie Craig) | Charlie Saunders (in memory of Matt Cragg) | Andy Scott (in memory of Nolan Foley) | Dominic Short | Robert Simpson (in memory of John Clune) | Christa Speer | Owen Spinner (in memory of Olivia Shaw) | Helen Stevenson (in memory of Martyn Luckett) | Phil Sweatman (in memory of Ben Hammond) | Helen Tavares (in memory of Michael Tavares) | Henry Taylor | Matthew Thomson (in memory of Peter Thomson) | Liam Tootill (in memory of Mark Duncan) | Ken Tree | Faith Valena | Richard Warburton (in memory of Richard Belton) | Alice Ward (in memory of Alex Hubbard) | Phillipa Weaver (in memory of Matt Gore) | Christopher West (in memory Kayleigh Griffiths) | Matthew White (in memory of Megan Harding-Jones) | Orla White | Wendy White | Jo Wint (in memory of Andy Gard)

17

London Marathon 2021

18

Issue 86 | September to December 2021

London Marathon 2021

www.c-r-y.org.uk

19

CRY Raising Awareness Week 2021

Thank you to the 79 CRY supporters who took part in the 2021 12 A Week Challenge!

After its great success in 2020, we brought back the 12 A Week Challenge for CRY’s 2021 Raising Awareness Week, and were excited to see many more supporters getting involved.

Participants were challenged to complete 12 miles by either walking, running, cycling or swimming, which could be done in one go or over the course of the week. We even had a couple of horse riders take part!

We had a fantastic team of 79 participants from all around the country this year, all doing their bit to raise funds and awareness. Our team also included some of CRY’s Ambassadors and Patrons, including Ambassadors and pro cricketers Ivan Thomas and Calum Haggett (below), and Patron and former star goalkeeper Pat Jennings (top right).

In total, everyone combined to complete 960 miles overall!

Thank you once again to everyone for your efforts and support!

20

Issue 86 | September to December 2021

CRY Raising Awareness Week 2021 1st place Blackcurrant jam and chocolate cake topped with chocolate curls and glacé cherries, made using ‘Tom’s’ homemade blackcurrant jam.

The CRY Great Cake Bake is always a highlight of our Raising Awareness Week, and this was no different in 2021.

38 different cake bakes were held around the country, and over £7,300 was raised.

We held our design competition again as well, and were also excited to have comedian Jo Brand serve as our judge this year, with her choices and comments shown to the right. All winning bakes were part of the event in memory of Anthony Fitzgerald.

Congratulations to our fantastic design competition winners. Your designs are fabulous and they all look truly delicious.

We are so grateful for everyone’s support in the CRY Great Cake Bake 2021. Thank you to everyone who took part!

Jo Brand’s comment: “Fantastic colour, really cute heart... all this and homemade jam.

Wonderful!”

2nd place - Lydia Chocolate strawberry cake with chocolate ganache, chocolate whipped cream, glazed strawberries, chocolate covered strawberries and chocolate shards.

Jo Brand’s comment: “Wow, what a production! A Sydney Opera House of a cake.

Love the fact the filling is about a meter tall, looks delicious.”

3rd place - Kirsty and Demi “#CRY4FITZ” Blackheath Rugby Club inspired vanilla cupcakes with chocolate icing.

Jo Brand’s comment: “Very striking, yet simple. Bold colours... really effective.”

www.c-r-y.org.uk

21

Our Fundraisers memory of Thomas Demaine which raised £473.

Someone Special CRY received the following online donations from Virgin Money Giving Someone Special pages, which closed in November 2021.

•

Laura Barlow set up a Someone Special page in memory of Simon Askew in 2015 which raised a total of £1,608.40.

•

The Bennett family set up a Someone Special page in memory of Mick Bennett in 2016 which raised a total of £5,005.

•

•

•

•

•

Adam Birch set up a Someone Special page in memory of Ben Birch in 2016 which raised a total of £25,240.34.

Samantha Hatfield set up a Someone Special page in memory of Graeme Blenkinsop and raised £760.

Rosa Sherwood set up a Someone Special page in memory of Jack Boulton in 2016 which raised a total of £10,536.

Michelle Bourne set up a Someone Special page in memory of Harley Curtis Brandon in 2016 which raised a total of £2,204.45.

Andrew Sampson set up a Someone Special page in memory of Alex Camilleri which raised £1,493.

•

Margaret set up a Someone Special page in memory of Euan Campbell which raised £42,458.01.

•

Nicola Burrows set up a Someone Special page in memory of Rhys Coleman in 2016 which raised £805.

•

Lauren Dean set up a Someone Special page in memory of Jake Dean which raised £22,970.90.

•

Ann Demaine set up a Someone Special page in

22

•

Sue Dewhirst set up a Someone Special page in memory of Matthew Dewhirst in 2015 which raised a total of £54,189.33.

•

Francesca Embling set up a Someone Special page in memory of Rory Embling in 2015 which raised a total of £3,742.27.

•

Helen Vaites set up a Someone Special page in memory of Harry Faulkner which raised £663.

•

Donna Fell set up a Someone Special page in memory of Josh Fell which raised £5,525.44.

•

Stephen Fisher set up a Someone Special page in memory of Michael Fisher which raised £4,610.

•

Joanna Halliwell set up a Someone Special page in memory of Joe Halliwell in 2012 which raised a total of £62,655.

•

Paula Hesmondhalgh set up a Someone Special page in memory of Matthew Hesmondhalgh in 2015 which raised a total of £164,384.20.

•

David Hughes set up a Someone Special page in memory of Daniel Hughes which raised a total £133,060.91.

•

Deb Pallace set up a Someone Special page in memory of Kyle George Jenkins which raised £1,113.

•

Sophie Stone created a Someone Special page in memory of Lucy Jessop in 2015 which raised a total of £3,188.15.

•

Kim Lewis set up a Someone Special page in memory of Adam Lewis in 2015 which raised a total of £6,587.

•

Charlotte Henderson set up a Someone Special page in memory of Martyn Luckett which raised £2,804.50.

•

Amy Cunningham set up a Someone Special page in memory of Andrew Macleod in 2016 which raised a

Issue 86 | September to December 2021

Our Fundraisers

•

•

•

•

•

•

•

•

•

total of £3,080.

•

Karen Salem set up a Someone Special page in memory of Paul Salem which raised £932.50.

Anne McAvoy set up a Someone Special page in memory of Pete McAvoy which raised £1,000.44.

•

Rebecca McKay set up a Someone Special page in memory of Steven McKay in 2016 which raised a total of £9,330.32.

Kenny Seymour set up a Someone Special page in memory of Matthew Seymour in 2015 which raised a total of £47,055.39.

•

Kirsty Millar set up a Someone Special page in memory of John Millar in 2015 which raised a total of £18,300.

Linda Smith set up a Someone Special page in memory of Robert Smith in 2015 which raised a total of £46,443.05.

•

Sally Smith set up a Someone Special page in memory of Lee Smith which raised £573.

Andrew Mitchell set up a Someone Special page in memory of Rosie Mitchell which raised a total of £38,866.31.

•

Adrian Standerwick set up a Someone Special page in memory of Sam Standerwick which raised £16,879.88.

Yvonne Moss set up a Someone Special page in memory of Luke Moss in 2016 which raised a total of £10,834.

•

Hillary Steele set up a Someone Special page in memory of Ben Steele in 2013 which raised a total of £61,363.22.

Lorraine Nicholls set up a Someone Special page in memory of Daniel Nicholls in 2016 and raised £846.

•

Wendy Panton set up a Someone Special page in memory of Taylor Panton in 2016 which raised a total of £22,709.54.

Graeme Stewart set up a Someone Special page in memory of Lewis Stewart which raised a total of £11,595.

•

Kiera Kilgarriff set up a Someone Special page in memory of Andrew Patterson in 2015 which raised a total of £14,595.56.

Mary Stiller set up a Someone Special page in memory of Dave Stiller in 2015 which raised a total of £1,037.

•

Gemma Bolton set up a Someone Special page in memory of Ivy Taylor which raised £693.

•

Rachel Davies set up a Someone Special page in memory of Jack Thomas which raised £1,122.

•

Emma Steers set up a Someone Special page in memory of David Wild in 2015 which raised a total of £4,078.70.

Loretta Pettifer set up a Someone Special page in memory of James Pettifer in 2015 which raised a total of £23,282.50

•

Nadia Pomfret set up a Someone Special page in memory of Alessandro Pomfret which raised £770.

•

Roger Pope set up a Someone Special page in memory of Gary Pope in 2011 which raised a total of £37,966.

•

Gill Wood set up a Someone Special page in memory of James Wood in 2015 which raised a total of £2,140.

Sean Reading set up a Someone Special page in memory of Ed Reading in 2015 which raised a total of £24,588.04.

•

Leila Wynn set up a Someone Special page in memory of Mark Wynn which raised £3,092.01.

•

www.c-r-y.org.uk

23

Our Fundraisers In Memory of

Alexander Bowen-Smith and Jennifer Smith

Regular Donors

Geoff Smith donated in memory of Alexander and Jennifer.

In Memory of

David Aitchison In Memory of

Jenny Aitchison donated in memory of David.

Alexander Brinck-Johnsen

J Brinck-Johnsen donated in memory of Alexander.

In Memory of

Jane Allen

DJ Allen donated in memory of Jane.

In Memory of

Edgar Byrne

In Memory of

Tom Arthur

•

Amanda Barker donated in memory of Edgar.

•

Karen Byrne donated in memory of Edgar.

Rob Hillier donated in memory of Tom.

In Memory of

Jenny Conway

In Memory of

Dave Kenyon donated in memory of Jenny.

Brett Beasey-Webb

Offley Parish Council donated in memory of Brett.

In Memory of

Freya Cox

In Memory of

Izzy Phillips donated in memory of Freya.

Claire Beer

Margaret Howroyd donated in memory of Claire.

In Memory of

Andrew Dale

Joyce Dale donated in memory of Andrew.

In Memory of

Ewan Bellamy

Judie Street donated in memory of Ewan.

24

In Memory of

Harry Dubois

Rebecca Fields donated in memory of Harry.

Issue 86 | September to December 2021

Our Fundraisers In Memory of

Sebastian English

Mark Davies donated in memory of Sebastian.

In Memory of

John Hodgetts

P Tayler-Jones donated in memory of John.

In Memory of In Memory of

Harry Faulkner

Lauren Holly

L McBrearty donated in memory of Lauren.

Barry Gilbey donated in memory of Harry.

In Memory of

David Howorth

Kathryn Howorth donated in memory of David.

In Memory of

Jon Fletcher

Wendy Fletcher donated in memory of Jon.

In Memory of

Andy Gard

William Barnett donated in memory of Andy.

In Memory of

Daniel Hughes

Mark Bartlam donated in memory of Daniel.

In Memory of

Neil Hustwit

CA Hustwit donated in memory of Neil.

In Memory of

Jeremy Green

Carole Green donated in memory of Jeremy.

In Memory of

In Memory of

Charlie Ibrahimi

Fatema Ibrahimi donated in memory of Charlie.

Matt Hales

Richard Hales donated in memory of Matt.

In Memory of

Ariana Jahangir

J Vaughey donated in memory of Ariana.

In Memory of

Graham Harrison

Jade Edgington donated in memory of Graham.

www.c-r-y.org.uk

In Memory of

Judith Krish

JP Krish donated in memory of Judith.

25

Our Fundraisers In Memory of

Natalie Lawrence

David Lawrence donated in memory of Natalie.

In Memory of

Andrew Patterson

Nicola Brackenridge donated in memory of Andrew.

In Memory of

John Marshall

R Bagguley donated in memory of John.

In Memory of

James Patterson

Catherine Patterson donated in memory of James.

In Memory of

Josh Merrick

Carmel Merrick donated in memory of Josh.

In Memory of

Richard Merriman

Steve Walters donated in memory of Richard.

In Memory of

Adam Middleton

Donna Meredith donated in memory of Adam.

In Memory of

Jack Phillips

Patrick Mullens donated in memory of Jack.

In Memory of

Tanja Price

ME Bonstow donated in memory of Tanja.

In Memory of

Alex Reid

Dr Rejia Ullah donated in memory of Alex.

In Memory of

Pardeep Nagra

R Nagra donated in memory of Pardeep.

In Memory of

Ben Rendall

Ben Hawkins donated in memory of Ben.

In Memory of

Christopher Parr

Adam and Lucy Turner donated in memory of Christopher.

26

In Memory of

Alex Roberts

V MacLeod donated in memory of Alex.

Issue 86 | September to December 2021

Our Fundraisers In Memory of

In Memory of

Ben Simpson

Katherine Wilcock

Robin Simpson donated in memory of Ben.

Maureen Richardson donated in memory of Katherine.

In Memory of

In Memory of

Paul Simpson

Matthew Wilkin

Jeanette Simpson donated in memory of Paul.

Hayley Pizzey donated in memory of Matthew.

In Memory of

In Memory of

Phil Sparrow donated in memory of Kieran.

June Jacob donated in memory of Charlotte.

In Memory of

CRY also received donations from the following supporters in 2021:

Sue Spurling and A Spurling donated in memory of Rupert.

Mr C Barnes | C Booth | James Bovington | A Charlwood

Kieran Sparrow

Rupert Spurling

Charlotte Winters

| S and J Clark | Rachel Davies | Zenia Duell | Mulika

In Memory of

Natalie Stewart

G and C Stewart donated in memory of Natalie.

Harnett | Annie Hartley | Alastair Jackson | Peter A James | Oliver Joy | Jean C Massey | H Mestchian | Daniel Ogilvie | Andy Owen | Josephine Pwajok | Doreen Roberts | Zoe Rye | James P Stead | Matthew Steeples | Ollie Taylor |

In Memory of

David Styles

Michael Styles donated in memory of David.

In Memory of

Claire Taylor

Glenis Taylor donated in memory of Claire.

www.c-r-y.org.uk

27

Our Fundraisers Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from September to December 2021.

Corrections Unfortunately, due to the size of the Update, with so many fundraisers to acknowledge and there being some overlap with memorial fund names, there can occasionally be mistakes. We always strive to enforce new methods to eradicate such administrative errors, but we apologise if you have ever been affected in some way by this.

If you see a mistake in the Update or you have any questions, please do not hesitate to contact me at tom@c-r-y.org.uk.

Below is a correction from Update 85.

In Memory of

Jenny Conway

A donation of £103 from Staffordshire Police was entered in memory of the wrong person, and should have been recorded in memory of Jenny Conway. We apologise for this error.

In Memory of

In Memory of

Mr Baker donated £320 representing donations received in memory of his mother, Rita Baker.

Tony Baws completed “Wazzock to the Max” in memory of his son and raised £3,197.93.

Philip Abraham

Gideon Baws

In Memory of

In Memory of

Ellie Giustina and Edward Cowmeadow held a coffee, cake and conversation event and raised £365.

Tracy Beer took part in the 2021 CRY Heart of London Bridges Walk and raised £145.

Daniella Aramo

Claire Beer

In Memory of

Alan Bain

Emma Stevenson raised £154 through her winter tupperware raffle.

In Memory of

Bob Baldwin

Christine Bloomfield raised £145 through a darts tournament for the Bob Baldwin Memorial Cup and from a raffle.

28

In Memory of

Richard Belton

Richard Stacey-Chapman completed a marathon challenge and raised £820.

In Memory of

Thomas Benson

Ray King donated £200.

Issue 86 | September to December 2021

Our Fundraisers In Memory of

Rory Bernays

Richard Coates donated £120 for his initial album sales, released in Rory’s memory.

In Memory of

Jeremy Berry

Shirley Berry sent in £162.50 from a funeral collection in memory of her husband.

In Memory of

Daniel Blackman

• Colleagues at Starbucks, Whiteley donated £100 as a leaving gift for Kate.

• Elizabeth Beavan donated £100.

•

Kate and Meg raised £230 doing the Lake District Challenge:

“After Dan died, I vowed never to return to the Lake District. The Lakes was Dan’s happy place and where he went every year for holiday with his family, and then just us two and our dogs once we’d brought our house together. I really thought in those early days after losing him that it would be too painful and too difficult to return to the place where we shared so many happy memories.

“However, I signed up for the Lake District Challenge (a 25km walk) which gave me a purpose and a drive to return back to the Lakes. Mine and Dan’s friend Meg came with me and on Saturday the 11th, we started off our challenge at 08:40am from Kendal, Cumbria.

to retire due to injury and exhaustion at 25km, but I carried on and completed the challenge (a total of 29km) in Ambleside, 11 hours after we started. I sobbed going over the finish line, remembering the wonderful man I was walking in memory of, and the charity I was fundraising for.

“Many people stopped us on our walk to ask us about CRY, and the lady who registered us at the start line thanked us, saying she walked to raise money for CRY herself and got very emotional. We shared Dan’s story with those who asked and told them to sign up for screening at testmyheart.org.uk and we stopped to help those struggling up the mountainous passes, instead of leaving them behind.

“Dan was a kind soul and would have helped anyone if he could, and although we were doing the walk in his memory, for me the best way to remember the amazing man I lost was to help those who were struggling and make sure they weren’t alone.

“That walk was hard, and mountainous and craggy, but I’m so glad I did it. I did it for Dan and for everyone lost to SADs each week.” Kate Blackman.

“We climbed Upper Kentmore (also known as the Kentmore horseshoe) and then Garburn pass. Meg had

www.c-r-y.org.uk

29

Our Fundraisers In Memory of

Joshua Blackman

Megan Johnson did the Lake District Challenge and raised £174.

In Memory of

Steven Blair

Susan Blair sent in £1,780.

In Memory of

In Memory of

Darren Blanchard

Gordon Morrow donated £300 for the artwork he received.

In Memory of

Graeme Blenkinsop

Lesley Bryant bequeathed a legacy donation of £3,000.

In Memory of

Sarah Booth

Former colleagues in Government Agency Invest NI raised £200 from a weekly Premiership score predictor league.

Christopher Bowes

Lucinda Bowes sent in funeral donations of £135 in memory of her mother, May Stewart.

In Memory of

Dave Bramwell

Lisa’s online fundraising page raised £256.25 in donations for CRY, for Hannah and Ryan’s wedding.

In Memory of

Annette Breeden

Daniel Breeden donated £100 representing donations collected in memory of his mother, Annette, at her funeral.

In Memory of In Memory of

Jack Boulton

Gregory Brookes

Judy Brookes sent in donations of £105.

June Boulton donated £460 raised from the Jack Boulton Memorial Trophy event: “There were 26 teams that entered the competition (104 players) and the winning team consisted of Steve Griffiths, Martyn Cole, Haydn Vince and Zane Bignell (junior) with 104 points.

“We are always grateful of the support given by Saltford Golf Club in what has become a popular annual event.”

30

In Memory of

Danny Brown

Brian and Susan Brown donated £100.

Issue 86 | September to December 2021

Our Fundraisers In Memory of

In Memory of

Oliver Brown

Nathan Butler

Jack Newell donated £100.

• Leona Bilton donated £160.

• Adam Alcock donated £100.

• Hutchinson 3G UK Ltd donated £500 nominated by Hope Mountford.

In Memory of

Paul Brown

Kristie Chidlow and friend Darren took part in a 3 month sober-thon and raised £264.

•

Philip Butler raised £260 through his annual sports quiz.

•

Angela Butler donated £9,024 raised from Nathan’s Memorial Cricket Tournament.

In Memory of

Leanne Brownhill

Lynne Brownhill sent in £400 raised from various donations and in support of Zoe Thwaites and friends’ Tough Mudder.

In Memory of

Jennifer Bucknell

Hillary and Bill Durrant sent in £990, including: £610 from the sales of accordions and marmalade; £185 from the sale of preserves and Thanksgiving organ playing; and £195 from the sales of her homemade preserves.

In Memory of

Jordan Burndred

Biddulph Moor Community First responders raised £6,271.50.

In Memory of

Richard Butcher

Helen Tait donated £750 raised from her daughter’s Francesca’s 18th birthday charity ball.

www.c-r-y.org.uk

In Memory of

Zoe Buttersell

Rhys Aubignac raised £165 doing the Redbrick Foundation Chesterfield 10k.

31

Our Fundraisers In Memory of

Alex Camilleri

Team Alex Camilleri 2021, Susan Camilleri, Karen Sadler, Jo Gilks, Susan Couchman and Anne Watson, took part in the 2021 CRY Heart of London Bridges Walk and raised £810.

In Memory of

James Campbell

Karen Campbell organised a match day collection by fans of the Boro and raised £151.

Plunkett defeated Ford on penalties to take home the TC5 Cup for the fifth year in a row!! Aside from the football, a carnival atmosphere was generated and filled with the laughter of children as they enjoyed an endless supply of sweets, crisps and drinks, a bouncy castle and an ice cream van (all free of charge via donations from multiple local businesses).

“We headed into the clubhouse for a quick presentation and raffled off numerous prizes that had been donated.

In famous Irish tradition, Tony’s family supplied a huge buffet spread and we reminisced his memory into the wee small hours.” James Murphy.

In Memory of

Anthony Child

In Memory of

Angela Child raised £1,475 through her annual line dance charity evening.

Tullymore Swifts FC raised £1,400 through their football tournament: #TC5 Cup:

In Memory of

“The Annual #TC5 Memorial Cup took place on 18/07/21 at Donegal Celtic Park in West Belfast. This was the fifth tournament since Tony passed away and his family and friends turned out in great numbers to enjoy the scorching summer heatwave and a feast of football.

Andrew Houldcroft climbed Snowdon in Wales four times in less than 36 hours and raised £1,156 in memory of his girlfriend.

Tony Campbell

Caitlin Cole

In Memory of

James Colman

Clare Perry raised £1,662.40 through her fundraising page.

“We had 9 teams in total, including 8 from 4 local clubs (Tullymore Swifts, St. Oliver Plunkett, Ford & St Theresa’s) as well as the TC5 select team organised by Tony’s brother Frankie.

It was a superb day enjoyed by approximately 300 players, coaches and spectators. Worthy winners St Oliver

32

In Memory of

Christopher Connor

Jack and Laurie raised £450 from their 7-mile walk along the East Durham coastal route. The walk was in memory of their dad, Christopher, on his 9th anniversary.

In Memory of

Natasha Coomaraswamy

AJ Grewal’s London2Brighton Challenge raised £734.12.

Issue 86 | September to December 2021

Our Fundraisers In Memory of

Daisy Cope

Sue Naylor raised £345 from sales of bedding plants.

•

Callum McIntosh completed the Great Scottish Run’s half marathon and raised £290.

In Memory of

Christopher Cowe

In Memory of

Elly Cottrill

Tom Parry completed the Liverpool Rock ‘n Roll Half Marathon and raised £465.

Ross Cowe donated £325, including £100 from his yard sale.

In Memory of

Peter Cox

In Memory of

Patricia Courtney

Sharon Courtney sent in £570 collected as funeral donations in memory of her mother.

In Memory of

Bruce Cousins

Jackie Cousins raised £500.75 though an event which was hosted by The Brew Inn, Rawmarsh.

In Memory of

David Bevan and T.O.F.S group donated £510.

In Memory of

Matthew Cragg

Richard Powell donated £100 in memory of his uncle Phil.

In Memory of

Charlie Craig

Chimp Management donated £500.

Scott Cowan

• Ray Brodie raised £375 through her Ben Nevis climb.

• Christine Cowan forwarded £236 from

Millport donations.

•

Christine Cowan donated £556 raised through the Millport Raffle.

•

Christine Keown donated £100.

•

Stephen Anderson donated £3,500.

•

Anne-Marie Dowling raised £455 from her Isle of Cumbrae Cycle.

•

Meghan McLaren raised £559 through a raffle.

•

Dean Robertson sent in £2,680 raised from the Scott Cowan Memorial Football Tournament 2021.

www.c-r-y.org.uk

In Memory of

Simon Cullum

Marilyn Cullum, Sandra Skipper, Susie Craig, Janet Rust, Judy Burton and Linda Cox took part in the 2021 CRY Heart of London Bridges Walk and raised £329.

In Memory of

Neil Cummins

• Eamon Lynam raised £900 from a hosted event.

• Mr P Ruane donated £200.

33

Our Fundraisers •

Mary Cummins Halpin forwarded £100 on behalf of the sponsors of Neil’s Memorial Golf Day.

•

Eamon Lynam sent in £9,310 raised through the Neil Cummins Memorial Golf Day.

•

Vox Supply Partners donated £100.

•

London Irish WFC donated £1,000.

In Memory of

Matthew Dewhirst

Sue Dewhirst donated £12,000 which was raised at the JCL Golf Day.

In Memory of

Aaron Dixon

In Memory of

• Patricia Lewin donated £100.

Adam Dabell

• Turturici Restaurant donated £238.

East Grinstead Football club raised £655 at the annual Adam Dabell Memorial Football Match.

• Sophie and Rob of Vale Royal Abbey Arms raised £3,002.16 through a race night that they hosted.

In Memory of

Ben Daniels

In Memory of

Adam Donnelly

• Eleanor Claxton, U17 Tunbridge Wells

Cricket Club member, raised £168.23 from her 25k run for the Young Cricket Leaders Programme.

•

Members of Our Lady of the Rosary Club raised £330 during a pool tournament.

The two finalists donated their prize money.

Nick Byers donated £100.

In Memory of

In Memory of

Margaret Davis

Andrew Dovey

Simone Davis set up a fundraising page and raised £3,601.

Kerry Donnely raised £180 from the CRY Heart of Durham Walk.

In Memory of

Carl Dawson

Residents of Eastling raised £450.70 at the Harvest Auction, hosted at the Carpenters Arms.

Jeffrey Dunning

•

David Rowlands raised £140 by completing a sponsored walk.

In Memory of

•

Victoria Dunning sent in £780 donated by family and friends of Jeffrey in his memory at his funeral.

Nick and Eve Dee-Shapland donated £100 in celebration of their nephew Peter’s wedding.

•

Wolverham Primary School raised £413.50 by wearing Chester City Football Club colours to school.

Claire Dee-Shapland

34

In Memory of

Issue 86 | September to December 2021

Our Fundraisers In Memory of

In Memory of

Annie Edwards

Harry Faulkner

Mike Bonsor cycled from London to Brighton and raised £165.

Students of Tilman house at Berkhamsted School raised £173.15 from their bake sale.

In Memory of

In Memory of

Rory Embling

Anthony Fitzgerald

• Ackworth Junior Football club raised £750 through a Fun Run event.

• Blackheath Rugby raised £600.

• Martin Loxley donated £100.

• Anne Embling donated £650 raised

• Blackheath FC Junior Section donated £8,141.55.

through the South Hiendley Scarecrow Festival.

In Memory of

Sebastian English

In Memory of

Elise Fitzpatrick

Richard Heslop raised £1,550 through a golf day and dinner.

• Stephen Pitt and colleagues did a wax for CRY and raised £626.

• Sean Fitzpatrick raised £1,113.23 through his fundraising page.

In Memory of

Howard and Sebastian English

• Rupert and Stephanie Hunter sent in £3,340.

In Memory of

Katie Fleet

• Elaine Austin donated £100 to

tribute Howard’s 60th birthday.

In Memory of

Anthony Evans

• Kate Evans donated £100 in memory of Anthony’s 20th birthday.

• Dave Pettigrew raised £663 through his 3 Peaks climb.

• Kev and Di Williams donated £100.

• Mark, Paula and Amber Jones donated £100.

•

James Dixon donated £1,000.

•

Janice Fleet and family donated £100.

In Memory of

Nolan Foley

In Memory of

Kayode Famoriyo

Michelle Scott raised £171 for Ride London-Surrey 2020.

£12,166.70 was raised from the CRY 4 Kay 2021 event.

www.c-r-y.org.uk

35

Our Fundraisers In Memory of

In Memory of

Andy Forbes

Ben Forsyth

•

Mark Anderson held a charity football match and raised £825.

•

Tesco Stores Ltd donated £648.45 as matched giving for Shona Gibson’s Walkathon.

•

A group from a Tesco Supply Chain completed a walkathon and raised £3,242.25:

“The weather was absolutely beautiful, we couldn’t have asked for it to have been any better. We started with a warm-up from our Director, who told everybody the story of our colleague Andy Forbes who passed a number of years back when the team were playing football together, and read out a speech from Jeff talking about the wonderful work you do. We had a warm-up from one of our Gym team leads and set off nice and early!

• £120 was raised from Finnegan’s Wake.

• Darina Cunnane raised £385 through a clothing exchange at a cycle event.

•

The Ben Forsyth CRY Race Day raised £734.20.

In Memory of

Rachel Gabbitas

Sarah Gabbitas and Kevin Gabbitas took part in the 2021 CRY Heart of London Bridges Walk and raised £450.

In Memory of

Matthew Gadsby

David Davies donated £145.

In Memory of

Jake Gallagher

Sarah Pyatt raised £160 taking part in the CRY 25 Million Meter Challenge.

“We walked a 13 mile route around Welwyn Garden City, and it was super tiring, although everybody was in good spirits! We had a couple of energy stations along the way with drinks and snacks to keep us going, donated by our lovely suppliers. There were multiple times when members of the public stopped us to ask what we were doing, so it was great to hand out leaflets and get chatting about it. We rounded up back at the office for a lovely party with cakes etc to celebrate and all finished up at the pub!

“The team were so pleased to be able to raise £3,241.25 (£3,958.75 with gift aid), and we’re all super proud to support CRY.” Hannah Lilley.

36

In Memory of

John Garrigan

Jane Stubbings donated £200 through prize money received at her gym.

In Memory of

Jaimie Gault

Margaret Gault donated £250.

In Memory of

Joshua Gilbert

Members of Debenham Young Farmers Club raised £460:

Issue 86 | September to December 2021

Our Fundraisers •

Linda Goodwin raised a further £155.70 from proceeds at car boot sales.

In Memory of

Matthew Gore

• Georgia Fraser-Smith donated £200.

• Joanne Gore raised £905 from taking part in a 50km challenge across five days.

“On behalf of Debenham Young Farmers we are proud to say we have raised £460 this year. Despite COVID we have managed to get together when we can to raise money for the charity. Josh was a big part of Young Farmers, this is why the charity is very important to us and we love to help out.

“The first event we did was a Christmas tree collection which we did in Debenham and the surrounding areas, which involved us collecting peoples old Christmas trees from their houses and disposing of them for them which helped a lot of people out especially being in the lockdown. We asked for a donation of £5 per tree. We collected 60 trees with some very generous donations.

The second event we did was a club fancy dress bike pub crawl which Josh would most certainly been keen for, this was a great way to get the members together after the lockdown and an even better way to raise money.”

In Memory of

Richard Gower

Joy Gower donated £300 from the continued sales of her coastal walk book, “A Little Ramble”.

In Memory of

Michael Grace

Kerry Grace raised £1,081.50 through a football match.

In Memory of

Craig Graham

Linsay Graham took part in the Glasgow Half Marathon and raised £230.

In Memory of

Jordan Grant

In Memory of

Adam Golding

Sam Garstang raised £1,320 from a 25mile walk in memory of his friend.

Julie Moulds held the Suffolk Running Centre - Born to Run event and raised £1,729.70.

In Memory of In Memory of

Ashley Goodwin

• Linda Goodwin raised £248.50 from sales of her car boot, eBay and Gumtree sales.

www.c-r-y.org.uk

Adam Green

• Tom and Judy Green sent in £1,200.50.

• Sar Webb donated £100.

37

Our Fundraisers In Memory of

James Green

Lucy Green completed the Air 10K Run 2021 and raised £528.61.

In Memory of

Thomas Greenwood

Mandy Ogden raised £3,000 through the Georgia Leigh Ogden Foundation Masquerade Ball.

In Memory of

raised £1,010.

•

Katie Bartlett took part in the Tenterden 10k and raised £235.

•

Karen Gay took part in the Tenterden 10k and raised £130.

•

Sarah Ramsden took part in the Tenterden 10k and raised £230.

•

Team Ben Hammond took part in the Tenterden 10k and raised £544.

•

Mel Catt raised £145 doing the Tenterden 10k.

•

Stephen Hammond sent in £6,239.55.

Gabriele Guida In Memory of

Robert Cannell donated £140.

Kyle Hancock

• Sally and Jess Lamb donated £725.

In Memory of

Tom Hadwin

Rachael Hadwin raised £4,650 in memory of her husband.

In Memory of

Dominic Hamlyn

James Baker hosted a charity cricket match and raised £5,065.

In Memory of

Ben Hammond

• Nicola Podd took part in the Tenterden

10K and raised £560.

• Emily Hughes took part in a 5K run and raised £115.

•

Joanne McBride took part in the Tenterden 10k and raised £260.

•

Catherine Mundy took part in the Tenterden 10k and raised £245.

•

Andrea Finch took part in the Tenterden 10k and

38

• The Hathersage Association for the Prosecution of Felons donated £200.

•

Kyle’s great uncle donated £400 from the proceeds of his book.

In Memory of

Philippa Harbour

Steven Harbour left a legacy donation of £1,000 for his daughter Philippa’s memorial fund.

In Memory of

Thomas Hardman

Mark, Tony, Stuart and Paul completed a 10-mile run and a 28-mile walk from Middleton to Clitheroe. Along with raffles and donations from Middleton CC and Clitheroe CC, £1,220 has been raised so far: “Due to COVID restrictions, the annual TH96 Run has been unable to take place, but this did not deter Mark, Tony, Stuart and Paul who enter under the name of 50 Not Out. Earlier in the year all four completed the 10-mile run, raising over £500 in memory of Tom Hardman (TH96) and CRY.

Issue 86 | September to December 2021

Our Fundraisers “Tom played cricket for Middleton CC and Clitheroe CC, so the Magnificent 4 looked at the fixtures and decided that on Bank Holiday Sunday, 29 August 2021, they were going to walk 28 miles from Middleton to Clitheroe and set an online fundraising target of £500.

Fortunately the weather conditions were fine and the men made good progress before arriving at Clitheroe at 1pm to a big round of applause after stopping off near the ground for a well deserved pint. Along the way they chanted to people and handed out CRY leaflets. Clitheroe CC were the perfect host arranging food for the walkers and all the Middleton CC supporters who had travelled on a coach to watch the game. A raffle was held and at half time the Clitheroe CC president handed over a cheque of £280 (£10 per mile).

Further raffles were held on the Bank Holiday Monday and Sunday, 6 September 2021. A massive £2,380 was raised online.

“All in all, an amazing day. We have many happy memories of watching Tom play for Clitheroe CC and it was great to catch up with some of the lovely people we met. We are so blessed to have such wonderful people in our lives who continually support us as a family and CRY. The Magnificent 4 were amazing.”

In Memory of

David Harrop

Jordan Fishwick Estate Agents donated £500.

In Memory of

Richard Harwood

Kathleen Dickinson donated £100 in memory of Richard’s birthday.

www.c-r-y.org.uk

In Memory of

Jennifer Hawes

Marilyn and John Hawes donated £1,000.

In Memory of

Jason Haxton

Jacqueline Haxton donated £5,280.50, representing donations received in lieu of floral tributes in memory of her husband.

In Memory of

Jonathan Hayman

John Keast raised £3,123.82 from a marathon run: “John Keast raised a total of £3,884 pounds for CRY. After 40 years of running and with a cardiac condition for 20 of those years, and outside assistance (a pacemaker) for 13 of them, John decided to have one final marathon. Progression of his condition meant tweaks to the pacemaker were required and would make running more difficult in the future. Just after his 60th birthday, on Saturday June 12 he ran his final marathon. His daughter, Ellie, and some friends ran alongside him offering support, some running the whole distance. Others dipped in and out. John ran a number of laps on East Hill and then dropped into Sidmouth for a seafront finish. John asked people to sponsor him and to state a predicted time in, hours, minutes and seconds.

Prizes for the closest guesses were two £50 vouchers donated by Debbie Ellis proprietor of 14 Miles East, Sidmouth.

“John said: ‘I started my final run, on Saturday 12th June at 8:00am, knowing the sudden and lovely arrival of summer would add to my challenge, but was fortunate that the first 21 miles would be run mostly in the shade, approaching the final few miles in the heat of the mid-day sun would be interesting!

‘It was great running the laps on East Hill as on each lap I’d be joined by new runners and some would take a rest. Friends Alan Ritchie and Justin Ashby ran the whole distance too. Malcolm Hilton and my younger daughter Ellie ran most of the way and ensured I was running at the right pace and had enough fluids. Rob Hayman and Nick Read escorted me on bicycles for the whole distance ensuring safety on the junctions and the main

39

Our Fundraisers

road. Halfway along the flat of East Hill was the drink and feed station manned by wife Cathy with Janet Ritchie and Marion Hayman.

‘I had an amazing final run, there always seemed in excess of 12 people around and the banter was relentless. I think the comment that got the most laughs and was in part due to the timing of the delivery, was made by my daughter. At mile 23 I was on my way to the sea front from Sidbury and feeling very tired and with the heat finding it very tough, at which point Ellie asked if I ‘needed to man up’! A comment I may have made to many a friend when they have been at a low point in an event, I had no choice but to laugh and get back on track.

‘I was pleased to cross the finish line in 3 hours 45 minutes and 41 seconds. At the time of running the marathon, understandably COVID restrictions meant no party, however, my final marathon meant I had a great ‘party’ with so many joining in for different stages, finishing with an escort of over 20 friends along the seafront.

•

Sarah Taylor raised £432 from sales at the Wayside Stall throughout the Summer.

•

Alice Hall bequeathed a donation of £5,000 in her will.

•

Nathan’s Wastesavers donated £159.90.

•

Trisha Barker raised £180 from donations for her painted pebbles.

•

Paula Hesmondhalgh sent in donations of £875 received in lieu of floral tributes in memory of Bob Spiers.

•

Peri Dunford set up a fundraising page for Mark Jones and Dexter Dixon who did skydive for CRY, raising £280.

In Memory of

Simon Hewett

Janet Hewett raised £350 at her china and furniture sale.

In Memory of

Charlie Holden

Sally Entwistle sent in donations of £1,000.

‘I am also very grateful to everyone who so generously sponsored me; thank you.’” Marion Hayman.

In Memory of In Memory of

Dean Henderson

Deborah and David Anderson raised £1,100 through the Percy Main Cricket matches.

Gary Horne

Pamela James sent in £250 donated as birthday presents for her 80th birthday.

In Memory of In Memory of

Matthew Hesmondhalgh

• Paula Hesmondhalgh raised £1,784.26 from donations and sales at a variety of events and initiatives.

40

Stewart Howard

Jane Howard raised £130 through donations and through a community fun day.

Issue 86 | September to December 2021

Our Fundraisers In Memory of

Liana Hoyland

Janet Wastall donated £500.

In Memory of

Daniel Hughes

• Students at Sir Thomas Boughey Academy won a £1,000 grant for CRY through First Give’s programme.

• Rolls Royce donated £10,000.

(Dan’s best mate). We were sent on our way by the Town Crier from Leek (Bill Lomas), and thank you to Leek Link taxis for kindly driving him there free of charge.

“Half way around he fell off and cut his knee open, but after the best part of an hour patching him up with Star Wars plasters he bravely carried on. I had tears in my eyes when he reached the Alexandra Stadium as I was so proud of him. He says he is going to sort out a charity football match next.” Martin Howell.

•

David Hughes sent in £13,697.05, including: £7,260 from fundraising events and donations; £480, including a donation from Audley Ladies Cricket Club; further donations of £4,825; and £1,132.05 from doing a sponsored walk, ‘Following Dan’s Footsteps’, a distance of approximately 18 miles, with Robbie Benson (walking the roads in the parish that Dan covered as a post man).

•

Heywoods Estate Agents donated £250.

•

Unite East Midlands donated £10,000.

•

AIB Solutions donated £500.

•

Frankie completed a sponsored walk, earning her charity badge with Brownies, and raised £2,433.94.

•

Mr Moss, Mike Buxton and Keith Davies raised £711 for their 200-mile cycle from Newcastle-under-Lyme Golf Club to The New Forrest.

In Memory of

Franklen raised £1,186.13 from his bike ride for CRY:

Russ Clarke sent in £127.84 raised from CRY collection pots.

•

“Franklen did his ride and we were also accompanied by my cousin, Nathan Shaw

John Ibbotson

In Memory of

Steven Ibbs

www.c-r-y.org.uk

•

Joanna Sherwood completed the Cotswold Way Challenge and raised £100.

•

Laura Scully raised £588.87 from a sponsored hike.

•

Orla McAdams raised £691.65 from a sponsored hike.

41

Our Fundraisers In Memory of

Camilla Irvine and Amy Osborne

Hebe Beardsall raised £195 before the cancellation of the Brighton Marathon 2020.

In Memory of

Lee Jordan

Roger Jordan donated £350 in lieu of his birthday gifts.

In Memory of

Kieran Joyce

In Memory of

• The Red Lion in Madley, Hereford, raised £3,790 through a horse racing and auction event.

Damien Jewell

PC Investments Ltd donated £2,500.

• Co-op Local Community Fund raised £2,239.77.

•

Katherine Loupart did 11k in 7 days and raised £196.

In Memory of

Lisa Johnson

Carl and Eunice Johnson donated £200.

In Memory of

In Memory of

Andy Kenny

•

Broomwood Hall Parents’ Association raised £4,161.35 through various fundraising events.

•

The Creative Artists Agency raised £9,328.56 from a quiz night.

Alexander Jones

Ryan Morley raised £500 through a raffle.

In Memory of

Andrew Key

• Carol Squires donated £100.

• Funeral donations of £645.10 were sent in memory of Edith Henshaw, from Paul, David, Diane, Hannah and Daniel.

In Memory of

Ethan Jones

• Rob Giles did a skydive with a team in memory of Ethan and raised £4,925.

• Hope Jones did a skydive with a team in memory of Ethan Jones and raised £2,455.45, contributing to the total of £7,545.45.

In Memory of

Jordan Jones

Emma Jones sent in funeral donations of £125 in lieu of floral tributes for her father, Brian Jones.

42

•

Kyle and Amy Slater donated £315 from their wedding favours.

•

Eileen Lovatt donated £200 collected in memory of her husband, Danny Lovatt.

•

Diane Lovatt sent in £496.30 collected from donations in memory of her father, Danny Lovatt.

•

Elizabeth Marsden sent in £3,505 raised at the Longridge 2020 charity walk.

•

Colleagues at EH Booth donated £123.57 through a work fundraiser.

•

Trisha Barker raised £180 from donations for her

Issue 86 | September to December 2021

Our Fundraisers painted pebbles.

•

•

Ashley Bolten cycled from Blackpool to Scarborough coast to coast and back, raising £4,500.62.

Dave Branson raised £1,016.20 doing the London to Brighton Cycle.

In Memory of

Philip Lamin

In Memory of

Graeme Kilpatrick

Danielle McKay donated £500 from a Halifax match giving donation.

• Phiona Masozera donated £100.

• UK 2030 Vision donated £100.

In Memory of

In Memory of

Andrew Lancastle

Shane King

Anne raised £365 from running the Great Scottish Toddle with Oliver and Ryan.

Lorraine Suter donated £1,650.

In Memory of

In Memory of

Zoe King

Michael Land

Dianne Poth raised £662 from a skydive.

• Paul Garnett raised £225 through a Specsavers Gala.

In Memory of

• Castleford & District Referees Association donated £1,000.

Paul Kinghorn and Nolan Sawatzky

•

Campbell Cairns completed the Manchester Marathon and raised £660.

•

Euan MacKinnon completed the Manchester Marathon and raised £1,070.57.

•

Ruth Cain raised £802.20 through donations and a coffee morning held at the A1 Football Factory.

In Memory of

Joe Langdon

In Memory of

Mark Laker

Benedict Langdon sent in donations of £1,394.06 collected in memory of his mother, Jennifer Langdon.

Alice Waters donated £1,664.

In Memory of

Carli Lansley

In Memory of

• Karl Lansley donated £4,400 raised from family fundraising events.

Jannik Lam

• The Green Stores donated £100 for a card holder made by Malcom Talbot.

• John Gillies raised £2,266.34 doing the London to Brighton Cycle.

www.c-r-y.org.uk

• Megan Williams raised £500 from ‘A Cuppa for Carli: Guess the weight of the brew’, to mark Carli’s 41st birthday.

•

Lloyds Bank Foundation donated £500 as matched giving for Megan Williams’ Cuppa For Carli event.

43

Our Fundraisers In Memory of

Miriam Kate Lee

• Nicola Lee donated £100.

• Nicola Lee and Eleanor Lee took part in the 2021 CRY Heart of London Bridges Walk and raised £440.48.

•

Rita Kellett donated £100.

In Memory of

Joseph Leyland

Charlotte Leyland set up a fundraising page and raised £3,662.70.

In Memory of

In Memory of

Michael Manson

Jemma Whiteley raised £676 doing Yorkshire Three Peaks Challenge.

In Memory of

Oliver Marsden

Kevin Marsden sent in £160 collected from donations at Oliver’s memorial fund screening at the Leatside Surgery.

In Memory of

Gary Martin

Members of the Mandalay Club donated £285.

Jamie Loncaster

Peter and Susan Loncaster donated £100 in memory of Jamie on his birthday.

In Memory of

John McCall

Malcolm and Janette Pollard donated £100.

In Memory of

Chad Loveday

Deborah Loveday donated £500.

In Memory of

Aine McCann

In Memory of

Alan Lumley

• DLA Piper Parking Auction & Furniture sent in £749.87.

• DLA Piper UK LLP donated £568.65.

Aravon McCann sent in donations of £170 from Frazer One Stop Shop and K9 Kennels.

In Memory of

Paul McCann

Michael D’Santos donated £150 from the sale of Great Northern Farewell Badges.

In Memory of

Connor Mackness

West Wickham Lodge raised £140 through a Christmas raffle.

44

In Memory of

Jane Elizabeth McIlroy

William McIlroy sent in £1,220 representing donations received in memory of his wife.

Issue 86 | September to December 2021

Our Fundraisers In Memory of

Simon McNamara

Katherine McNamara donated £150.

In Memory of

Ben Morgan

Ravens Wood School raised £242.50 in the annual Ben Morgan Run.

In Memory of

Levon Morland

• Aran Levon raised £344 from taking part in the Great North Run.

•

Paul, John, Truswell, Woody, Joe, Danny and Tim completed the 24 Peak Challenge, “Miles for Murg”, and raised £7,375.47.

•

Lorraine Miller and her husband chose CRY as the benefactor for £100 that was awarded by a Trust to the work of Mr Miller.

•

Methodist Women’s Fellowship donated £2,100.

•

Matt Truswell, Paul Murgatroyd, John Hooley, Timothy Grocott, Dan McCarthy, Luke Woodward and Joseph Doris raised £7,375.25 from doing the 24 Peaks Challenge.

•

Carol Bright sent in £40 raised by Sophia, Charlotte and their youngest sister Jessica from making bookmarks and origami rabbits.

• Jan Shields sent £130 received in lieu of floral tributes for her mother, Greta Brown.

In Memory of

Owen Morris

EVOL Wales Ltd donated £500 as matched giving for Bev Sulston and Judith Miller.

In Memory of

Ian Morrison

Mrs K Aulman sent in £113.71 from donations received on her father’s, Ian Morrison’s, tribute page.

In Memory of

Luke Moss

Amanda Craig ran the 55k Ultimate Trails and raised £317.

In Memory of

James Murgatroyd

• Mickleover 95 FC donated £220 which

was raised from a charity race night.

www.c-r-y.org.uk

In Memory of

Dan Nelson

Peter Wharton completed the Manchester Marathon and raised £1,226.

In Memory of

Peter Norman

Maureen Fletcher donated £100.

In Memory of

Andrew Oliver

Judith Oliver donated £230 raised from the sales of her handmade items.

45

Our Fundraisers In Memory of

In Memory of

Charlotte Orwin

Kevin Paterson

Stephanie Gledhill donated £100.

• Patricia Toft and Jean Cranna donated £100 for Laura and Ian’s wedding.

• Rich Bevan, Ben Adams, Sean Power, Gareth Wainwright, Gareth Hellewell and Richard Gibbs are once again completing the Great Birmingham Run which raised £4,877.

In Memory of

Amy Osborne

Bridget Marr donated £100.

In Memory of

James Patterson

• Kelvin Wilson sent in £3,585 raised from a charity golf day.

In Memory of

Ceri Palmer née Howells

• A member of Southend Tangent Club raised £250 by making Father Christmas lavender bags.

Anna Whitaker donated £100.

In Memory of In Memory of

Alexander Parker

Duncan Coates raised £152 from a tennis celebration.

Jenni Paul

Kirsten Nimmo took part in the Virtual Edinburgh Marathon Festival Half Marathon 2021 and raised £150.

In Memory of

Callum Payne

In Memory of

• Royce and Louise Payne donated Callum’s funeral donations and fundraising from a football charity match which was held at Barrow town FC.

Andrew Parr

Stella and Stephen Thompson donated £100.

In Memory of

Daniel Parris

•

Andy Pope and Sally walked from London to Hastings, a distance of over 100 miles, raising £2,398.18.

•

Andy Pope raised £2,358.18 with Barclays COVID-19 match giving scheme.

46

•

Ashley Tomlin sent in £623 raised from the Callum Payne Charity Match:

“Callum’s great friend and footballing colleague Ryan Evans lost his life three years prior at the age 18, to a sudden cardiac arrest was good reason for Callum’s family to choose CRY for donations for Callum to go to. Ryan’s sudden death was a massive loss, not just for Ryan’s family, friends and football community, but also to Callum, who spent several years at college and playing football together. They

Issue 86 | September to December 2021

Our Fundraisers In Memory of

were an inseparable partnership who enjoyed life to the full in football at college and at Quorn FC, also in their social life as great friends.

“Callum’s funeral donations and also a charity football match arranged by friends in his honour held at Barrow town FC (one of Callum’s long list of clubs) was also donated to CRY. It is the family and friend’s intention for charity match’s annually for the Callum Payne trophy to be donated to CRY, being such a fantastic charity for screening and research in young athletes.

“Thanks go to Ash Tomlin who took care of forwarding donations on behalf of the family.” Royce and Louise Payne.

In Memory of

Connor Pearce

Carli Smith chose CRY as her charity as a captain at Sidcup Golf Club and raised £481.95.

In Memory of

Mark Pearson

Paul Pearson took part in Rock ‘n Roll Liverpool Half Marathon and raised £915.

Christopher and Steven Phillips

Jane Phillips raised £3,750 through The Heart of Weston fundraising activities.

In Memory of

Duncan Andrew Phillips

Bethan Phillips donated £170.

In Memory of

Jake Pickford

Gaye Pickford donated £500 raised from the medium night held in Abertysswg Working Men’s Club.

In Memory of

Sara Pilkington

Collingwood College JCR raised £6,000.

In Memory of

Alessandro Pomfret

Stephen Pomfret raised £840 from doing the Clipper Race in 2020.

In Memory of

In Memory of

Carol Ann Orchard left a legacy donation of £5,000 for Jason’s memorial fund.

Rita Ponting raised £200 through donations of friends and a car bootsale.

In Memory of

In Memory of

Scott Milburn raised £625 from taking part in the Great North Run.

Simon Preston held an ice hockey festival and raised £350.

Jason Pennington

Tim Perry

www.c-r-y.org.uk

Richard Ponting

Bethany-Shannon Preston

47

Our Fundraisers In Memory of

In Memory of

Tyler Read raised £400 through a charity livestream event.

•

Tom Ridley completed the London 2 Brighton challenge and raised £620.

•

Mark Boyle completed the London 2 Brighton challenge and raised £525.

•

Emma Jeffreys completed the London 2 Brighton challenge and raised £845.

•

Nigel Powell completed the London 2 Brighton challenge and raised £5,750.

•

Hollie C Woolford completed the London 2 Brighton challenge and raised £530.

•

Kerry Lawrence completed the London 2 Brighton challenge and raised £1,543.21.

•

Dom Scotting took part in a charity fight night for CRY and raised £110.

•

Stephanie Chance completed the London 2 Brighton challenge and raised £700. (Team: Forever9)

•

Natalie Corfeild completed the London 2 Brighton challenge and raised £1,045.65. (Team: Forever9)

•

Danielle and Steve Corfeild completed the London 2 Brighton challenge and raised £1,050.25. (Team: Forever9)

•

Matt Brent completed the London 2 Brighton challenge and raised £1,281.11. (Team: Forever9)

•

Suzanne Spiel completed the London 2 Brighton challenge and raised £500. (Team: Forever9)

•

Steven Page completed the London 2 Brighton challenge and raised £685. (Team: Forever9)

•

Ellen Ridley completed the Brighton to London ultra marathon and raised £3,840.40.

James Read

In Memory of

Alex Reid

• Sian Simpson donated £100.

• Neurology Academy donated £100.

• Sheffield High School for Girls raised £381.

•

Royal Antediluvian Order of Buffaloes (Kiveton) donated £100.

In Memory of

Debbie Rendle

Mr and Mrs Stephens donated £100.

In Memory of

Peter Reynolds

Andy, Pete and Adam raised £1,060 through the Ironman 70.3 in 2017.

In Memory of

Dylan Rich

•

Helen Brooke raised £507 in the Redress clothing sale.

•

Helen Brooke sent in a further £128.

In Memory of

Steve Robbins

Wendy Robbins donated £200.

48

Jamie-Leigh Rose

In Memory of

Hamish Ross

• J&G Joinery donated £110.

• Rhiannon Laing walked 22 miles and raised £915.

Issue 86 | September to December 2021

Our Fundraisers In Memory of

Robert Rowan

• Rosie Whitbread donated £100.

In Memory of

Paul Short

Colette Short donated £100.

• Brentford FC donated £5,000.

• Andrew Davies’ AKA Day page raised £440.

•

The Dandara East Scotland Team donated £160.

•

Michael McFarlane sent in £120 from the Rab Rowan Ryder Cup, in memory of Robert’s 31st birthday.

In Memory of

Charlie Rowland

Carole Rowland sent in funeral donations of £300 in memory of Charlie’s Grandma, Pam Jones.

In Memory of

Madeline Siddall

The volunteer crew of the Chesterfield Canal Trust raised £450 through their trips along the canal with the boat named after Madeline: “The money was raised by the volunteer crew of the Chesterfield Canal Trust tripboat Madeline. This was named after Madeline Siddall.

“The boat was originally owned by Eckington School, where Madeline was a pupil. The boat was bought as a hull and was subsequently fitted out by pupils from the school.

In Memory of

Ellis Salter

Doug Mutton, along with uni friends Danny, Brett and Chris, took part in the Loch Ness Etape cycle Race and raised £1,400.

In Memory of

Matthew Seary

Deborah Seary, Ashley Seary, Richard, Max and Jacob took part in the 2021 CRY Heart of London Bridges Walk and raised a total of £895.96.

In Memory of

Matthew Seymour

Max Catto completed the virtual Edinburgh Marathon and raised £1,901.70.

In Memory of

Evan Shonfield

Peter Shonfield donated £100.

www.c-r-y.org.uk

“On 7th July 2011, Madeline collapsed and died of a cardiac arrest (YSCD). She was just 15 years old. There had been no warning signs and she appeared to be fit and healthy. The pupils decided to name the boat after her. Her family often come to visit the boat.

“On Monday 25th October, all the money raised in fares from boat trips on Madeline went towards CRY. The rest of the money came from collection pots on the boat and at Hollingwood Hub, from where the boat runs.

“The crew told all the passengers the story and lots of them made donations. The money from drinks also went into the fund.”

49

Our Fundraisers In Memory of

In Memory of

Ben Simpson

Callum Staple-Hughes

Joe Simpson donated £200.

Paul Hughes donated £1,203.20.

In Memory of

In Memory of

Lorraine Smallman sent in £366.03 representing donations received in memory of her husband.

Michael D’Santos donated £150 from the sale of Great Northern Farewell Badges.

George Smallman

Richard Sullivan

In Memory of

In Memory of

Robert Smith

Matthew Sutherland

• Linda Smith raised £1,125 from lockdown raffles.

• Randy Nahle donated £100.

• Richard Graves donated £100.

• Alison Spenceley and Sarah Sotheran

• Darren and Katie Gaffney donated £250.

donated £1,000.

•

Turnbull House Friendly club donated £100.

•

Michael Masters donated £100.

•

Julia Grimshaw completed the 25 Million Metre Challenge and raised £1,695.

•

Aly Hirji donated £500.

•

Maria Curry donated £100.

In Memory of

Philip Standing

• Peter and Linda Robertson donated £200.

•

Susan Fisher and Keith Fisher took part in the 2021 CRY Heart of London Bridges Walk and raised £500.

In Memory of

Paul Sykes

Patricia Berry took part in the 2021 CRY Heart of London Bridges Walk and raised £745.

In Memory of

Claire Taylor

Rachel Taylor completed the Thames Path Walk in memory of her cousin and raised £1,591.97.

In Memory of

Gordon Taylor

Louise Smith donated £280.90 from collections in lieu of floral tributes for Gordon.

50

Issue 86 | September to December 2021

Our Fundraisers In Memory of

Hannah Taylor

Charles Bull raised £415 through various fundraising initiatives.

In Memory of

Luke Thompson

Tanisha Brandon raised £1,206 through a charity auction.

In Memory of In Memory of

Zac and Kelsey Taylor

Matthew Thompson

Lauren McVeigh donated £4,401.

Jennifer Grady completed the Great North Run and raised £1,707.90.

In Memory of

Daniel Torrance

• Ann Torrance donated £100.

In Memory of

• Andrew Holmes donated £100.

Jack Thomas

• Biffa, Ystrad Mynach donated £780.

• Emily Brown completed the Birmingham

• Preston Lodge High School donated £150.

•

Carolyn Wilson donated £100.

10k and raised £370.

In Memory of In Memory of

Sarah Thomas

Robert Thomas raised £8,385.07 from his 100+ mile ultramarathon whilst towing his drum kit behind him.

Robert’s video on his challenge can be watched here: bit.ly/36IcCrt

Luke Towers

Gordon’s School raised £543.95.

In Memory of

Isabelle Tudisca

Eloise and Liam took part in the London Landmarks Half Marathon 2021 and raised £1,186.

In Memory of

Neil Vass

Invesco matched donated £345 in respect of the cycle ride by David Awylward.

In Memory of

David Thompson

Terry Wood did a memorial walk from John O’ Groats to Land’s End and raised £12,039.13.

www.c-r-y.org.uk

In Memory of

Fraser Vaughan

Chris Steele did a TT course on a mountain bike and raised £1,060.83.

51

Our Fundraisers In Memory of

In Memory of

Clare Cooper donated £100.

•

The Alex Wardle foundation donated £642.03.

•

Gemma Wardle and Denise Wardle took part in the 2021 CRY Heart of London Bridges Walk and raised £375.

Vinnie Vijayakumar

In Memory of

Garth Walker

Kathryn Walker sent in £540 raised at the Crown Green Bowling Competition.

In Memory of

Alex Wardle

In Memory of

Alex Watley

Martin Terrill held a CRY golf day which raised £765.

Thomas Wall

Derek Gammage raised £250 through his Hertfordshire Half Marathon Run.

In Memory of

George Watson

• Louise raised £500 at a memorial

day in memory of her husband, Antonio Domini.

• The family of Andrew Barber donated £507.76 in Andrew’s memory.

In Memory of

Sally Wells

Simon Wells took part in the 2021 CRY Heart of London Bridges Walk and raised £780.

In Memory of

Matthew Wallbank

Eddie Whittle (with John, Gaz and Jonathan) raised £396.71 doing a 3 Peaks pub crawl.

In Memory of

Neil Ward

Elaine and Ian Ward sent in £1,195 from donations for their golden wedding anniversary and coffee mornings.

52

In Memory of

Stevie Wiggins

• Robert Bamber set up a retirement fund and raised £290.

• The Heartfelt Group raised £430 through their summer fayre and donations; and £251 through a Christmas raffle.

Issue 86 | September to December 2021

Our Fundraisers In Memory of

In Memory of

Percy Williams

Olivia Woodward

Percy’s family and friends donated £184.38 in lieu of floral tributes.

Annabelle Woodward and Olivia’s boyfriend Charlie raised £9,340.50.

In Memory of

In Memory of

James Wood

Broxbourne Tennis club raised £260 for their Children and Parents Tournament 2021.

In Memory of

Rob Worboys

Lucy Burrows-Smith raised £2,040 from three 500-mile challenges: 1) The big one: walking 500 miles from London to Edinburgh 2) The ‘mental’ one : Commuting 500 miles on my single speed bike 3) The third one: a 500-mile triathlon.

Sophie Wood

Quintin Wood donated £100.

In Memory of

Michael Yendall

• David Yendall took part in a group walk in 2016. They walked a distance of 11 miles, stopping at 8 pubs along the way, and raised £606.52.

In Memory of

Barry Woods

Joan Woods sent in £865 which was donated by friends and family through a walk for Barry.

www.c-r-y.org.uk

•

David Yendall sent in £200 raised through a charity walk with family and friends.

•

David Yendall raised £785 from the Summer Remembrance Walk in memory of his son.

•

Jonathon McNulty completed ‘12 Pubs of Christmas’ for Michael’s 25th birthday and raised £240.

53

General Fundraising •

AFL’s National Walking Month Challenge raised £266.67.

•

Jill Anderson and Tonbridge & Malling Borough Council donated £4,377.06.

•

Castlerock Golf Club raised £920.

•

Year 10 Students at The Castle School raised £321.19 through their sales of refreshments at the school play.

•

Chorley House at Bolton School Boys Division raised £1,389.

•

Sophie Chudley raised £665.90 doing the Land’s End to John o’ Groats bike ride as her husband, Craig, was diagnosed with WPW.

•

Club Members donated £100 following James’ Zoom talk.

•

Sarah Coakley raised £2,200 through her Peaky Blinders Charity Shindig event.

•

Laura Barlow donated in £317 which was raised from the South Central Ambulance dress down weekend.

•

Richard Barrett donated £100.

•

Lynsey Bendon and Justin’s wedding gifts raised £165.

•

Philip Bennett donated £100.

•

Aaron Bent completed the Vitality London 10K and raised £1,740.

•

Billerud Beetham Ltd donated £200.

•

Hollie Bond donated £246 through her Yorkshire 3 Peaks Challenge.

•

David Brett donated £100.

•

Ian Brewster donated £1,000.

•

David Brown donated £100.

•

Michael Brown donated £158.

•

Eloise Brownless completed the Serpentine Swim and raised £900.

•

Margaret Cooke and her husband donated £1,400.

•

Joseph Butler donated £100.

•

Form 6 at Cranleigh Preparatory School raised £792.50 from their sponsored walk.

54

Issue 86 | September to December 2021

General Fundraising •

Anna Creedon and Chris completed their cycle from Land’s End to John o’Groats and raised £1,240.

•

Harry Glover and James North ran the Rome Marathon and raised £2,135.

•

Simon Culhane donated £100.

•

Annabel Gourd donated £150.

•

Robert Darke took part in the Great North Swim 2018 and raised £811.

•

Martin Grummets completed a Coast to Coast walk and raised £387.18.

•

The Day Lewis PLC Charity Day raised £355.35.

•

Ryan Handbury sent in £200.70 in contribution to his CRY Cup event fundraising.

•

Peter Doherty raised £110 at Aaron’s memorial golf competition.

•

Emma Harrison donated £10 which was raised from a sweets sale by the kids.

•

Liam Dolecki raised £144 doing raffles of sports cards.

•

Lyn Henderson donated £100.

•

Draeger Medical UK Ltd donated £100 for two hospitals who selected CRY to receive the survey prize money.

•

James Hird, Matt and Dave’s page raised £840 completed 25 Million Metre Challenge

•

Event Marketing Solutions donated £750.

•

Cheryl Hoggarth took part in the Great North Run and raised £505.

•

Lloyd Felton donated £100.

•

Andrew Hooper donated £100.

•

Xander Font Freide raised £543 at MegFest.

•

Mark Iglikowski donated £100.

•

Verity Fytche donated £100.

•

•

Gabbs Solicitors donated £200.

George Jackson did various self-led activities, including a half marathon, raising £445 because of a personal connection to CRY.

•

Laura Garnham completed 25 Million Metre Challenge which raised £158.20

•

Nicola Jenkins donated £100.

•

Philip Jones raised £430 from his sponsored mohawk hair dying.

•

Andre Gebbett donated £150.

•

George Abbott School raised £1,366.82.

•

Rebecca Jones raised £125 through her charity bike ride from Liverpool to Leeds.

•

Leela Gerwat took part in Miss Junior Teen Inspiration 2020 and raised £1,027.50.

•

Amos Kemp’s Kent Epic Trail 10K and Kent Trail Half Marathon page raised £635.

•

Yaneena Gerwat took part in Miss Teen Inspiration 2020 and raised £1,442.50.

•

Christina Kemp raised £518 through a collection at a village fundraising event.

•

GiffGaff donated an award of £6,288 to CRY for 3rd place in the Giffgaff Charity Nominations.

•

Knights of St Columba in Chingford donated £100.

•

Ginger Fox Consulting Limited raised £450 from the Le Blanc Auction.

•

Lantei donated £200.

•

Fai Li donated £108 on the occasion of Rosie and Ajay’s wedding.

•

GivingForce Foundation donated £150 as part of matched giving for Ian Barton.

www.c-r-y.org.uk

55

General Fundraising South Coast Challenge.

•

The Lions Club of Basildon & Wickford donated £250.

•

James Longwell donated £992.

•

Saddleworth Winemakers Circle donated £100.

•

Maber Associates Ltd donated £194 for Lee Smith, who nominated CRY to benefit from his leaving gift.

•

ShareGift donated £5,000.

•

Katie Maxted completed the London Landmarks Half Marathon and raised £440 in memory of Rockwell Gayakaya.

•

Anne Signol raised £330 from the sale of a football trials book.

•

St Mary’s Frensham Trust donated £306.

•

St Wilfrid’s Church, Northenden donated £232.

•

Team “Tod Wanders”, Abbie Cowie, Gareth Cowie, Barry Langham, Jeanine Wigmore, Theo Wigmore, Nicola Bennett, Abby Gilbert, Sue Greenwood, Lisa Pearson, Emma Davidson, lorna Read, Carl Wakefield, Lowis Charfe, Paul Charfe, Nita Read, Edie Cowie, Freddy Cowie and Nita Read, took part in the 2021 CRY Heart of London Bridges Walk and raised £380.

•

Gavin McClean completed the London Landmarks Half Marathon and raised £235.

•

Gayle McKay raised £1,150 through virtual runs from Land’s End to John O’Groats and Mizen to Malin.

•

Katie McLoughlin donated £100 on the occasion of Lucy and Blair’s wedding.

•

Medicash Health Benefits ltd donated £150 on the occasion of their 150th anniversary.

•

Trayport Ltd raised £1,250 from their office charity day.

•

Monmouth School held a red mufti day and raised £178.

•

Jill Tucker donated £200 in celebration of Lucy and Blair’s wedding.

•

Chris Moore donated £262.47 as part of his fundraising for his Belfast Marathon.

•

Andrew Warne raised £100.

•

Morrison Supermarkets Plc sent a matched fund donation of £440 for colleague, Nicola Lee, who completed a fundraising walk.

•

Susan Watts raised £1,184.26 from doing 26 5k runs in 26 weeks.

•

Julie Myatt set up a mixcloud DJ set to raise money and awareness for CRY, and raised £400.38.

•

Karen and Bill Wickens completed the 2012 Isle of Wight Challenge and raised £2,515.

•

New Forest Hockey Club raised £172 through their annual Club Day.

•

Simon Foulkes Wilkinson left a legacy donation of £2,272.22 to CRY.

•

Nicholas Orr donated £200.

•

Annabel Wright donated £150.

•

Mrs M Owlett donated £2,000.

•

Alan Yates donated £100.

•

Recycling for Good Causes donated £209.60.

•

Sharon and Mervyn Redmond donated £1,050 in lieu of gifts at their wedding.

•

Freddie and Charlie Richardson raised £225 from their fundraising BBQ with Colts Dronfield Rugby Club.

•

Liam Ryan raised £2,080.48 from taking part in the

56

Issue 86 | September to December 2021

Fundraising Events 2022 Please contact the fundraising team on 01737 363222 or email events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events visit www.c-r-y.org.uk/category/upcomingcryevents All participants in mass-participation events who contact the CRY fundraising team (whether they have their own place or a CRY charity place) will receive a welcome pack containing sponsor forms, information, helpful tips and either a T-shirt or vest (depending on the type of event).

Tough Mudders

the beautiful city of Durham.

Form your own #TeamCRY with friends and family and tackle a teamwork-inspired, mud-filled obstacle course. With 5K, 10K, or 15K options all over England and Scotland!

Chiltern 50K Challenge

Throughout 2022

Inflatable 5K

Throughout 2022 Spurred on by pumping music and cheering supporters, bounce your way along a 5K inflatable course while raising awareness and funds for CRY. Providing a fun-filled and accessible alternative to a typical run, the inflatable 5K hosts events all over Scotland and England.

CRY Heart of London Bridges Walk

September 24

Walk, jog, or run along historic trails and over rolling hills.

Passing through nature reserves, forests, and hills with great views – it’s a route with real variety, and some wonderful scenery – and it’s all easily accessible from London.

TCS London Marathon October 2

Join 38,000 other runners on one of the most iconic courses, with the most amazing atmosphere!

June 26

Cardiff Half Marathon

CRY’s flagship event is a 5.5-mile walk through central London, crossing some of the famous bridges and passing iconic landmarks. Join us afterwards for the CRY Family Picnic to connect and remember.

The Cardiff University/Cardiff Half Marathon has grown into one of the largest and most exciting road races in the United Kingdom.

October 4

AJ Bell London Triathlon

Royal Parks Half Marathon

August 6-7

October 9

The London Triathlon sees thousands of people come to our iconic capital city to join our community of incredible triathletes taking on the challenge of #TheLondonTri.

This stunning, central London half-marathon takes in the capital’s world-famous landmarks on closed roads, and four of London’s eight Royal Parks.

Great North Run

CRY Raising Awareness Week and 12 A Week Challenge

September 11

The Great North Run is the world’s biggest half marathon, with more than 57,000 runners pounding the streets of Newcastle.

CRY Heart of Durham Walk September 18 (TBC)

Join CRY for the 13th annual Walk in Durham. The 5-mile route (suitable for all) starts and ends at Durham Amateur Rowing Club and passes along the River Wear and through

www.c-r-y.org.uk

November 19-27

CRY Great Cake Bake November 25

Help raise CRY’s profile by holding your own fundraising or awareness event such as an information stand or gala ball, or take part in the CRY Great Cake Bake. Get your friends, family, colleagues and children involved in the baking, eating and raising money and awareness for CRY! Compete to see who will create this year’s showstopper! This is a fun and simple way to get involved in Raising Awareness Week.

57

Raising Awareness in the Media Report Between September and December CRY featured in 75 print articles, including 3 national articles and 7 magazine articles. CRY also featured in 304 online articles.

Headlines from September to December in the press...

‘Answering CRY for help!’

The Northern Echo This article brought attention to CRY’s work and the 12th annual Heart of Durham Walk, as we returned to Durham in 2021 after holding a virtual event in its place in 2020 due to the pandemic.

Published 21 September 2021

‘When my boy died he was 25, fit and looked so healthy. I just don’t want any other parent to suffer like this’ Sunday Mail Robert Cowan lost his 25-year-old son, Scott, and wants all young people to be given free heart checks at work to prevent other similar deaths. Robert and his friends and family have been supporting CRY in Scott’s memory.

Published 3 October 2021

‘Why are so many footballers collapsing?’

Daily Mail This article looked at the incidence of young sudden cardiac death and recent collapses in football, with statistics from CRY and insight from CRY Consultant Cardiologist Professor Sanjay Sharma.

Published 16 December 2021

Online...

‘London Marathon 2021: Runners set sights on whacky new world records’ ITV, 28 September 2021 Phil Sweatman ran for CRY in the 2021 London Marathon, and attempted to set a new Guinness World Record for the fastest male marathon runner dressed as a heavy duty vehicle.

Read at bit.ly/3iTamAx

‘My “healthy” wife died as I lay next to her – I was making a cup of tea when my daughter realised’ The Sun, 8 October 2021 This article shared the story of Karl Lansley and what he and his family have done to support CRY, following the sudden death of his wife, Carli.

Read at bit.ly/3DtdJrF

‘Football has seen a worrying spike in cardiac arrests and heart-related issues in 2021’ Mail On Sunday, 15 December 2021 This article discussed the incidence of young sudden cardiac death and recent incidents in football.

Professor Sanjay Sharma also shared his insight.

Read at bit.ly/3J04ZKy

For links to online, press, television and radio coverage related to CRY and young sudden cardiac death visit www.c-r-y.org.uk/inthemedia 58

Issue 86 | September to December 2021

CRY Update 86 September to December 2021 Our Fundraisers By fundraising for CRY you will be helping to: • subsidise CRY’s national cardiac screening programme • fund CRY’s bereavement support programme to provide counselling and support to affected families • support research into young sudden cardiac death (YSCD) • develop the myheart Network to support young people living with cardiac conditions • provide all CRY literature and information free of charge • develop the CRY Centre for Cardiac Pathology (CRY CCP), and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology

The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD. Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, sponsor forms and other resources.

If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.

For further information please call the CRY office on 01737 363222 or visit www.c-r-y.org.uk/donate All your help is greatly appreciated.

Visit www.c-r-y.org.uk/charityfundraising-challenge-events for more information or contact the CRY office for a fundraising ideas pack.

Our Patrons

Our Mailings

The urgency of CRY’s mission and the quality of our work has compelled many high-profile personalities to give their time to become CRY Patrons.

For more information visit www.c-r-y.org.uk/about-us/patrons

Sir Ian Botham OBE

Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.”

Current Patrons of CRY: Rob Andrew MBE • John Barrowman MBE • Jeremy Bates • Ben Brown • Clive Clarke • Jack Clifford • James Cracknell OBE • Nick Easter • Jonny Evans • Baroness Ilora Finlay • Simon Halliday • Kathryn Harries • Michael Hoey • John Inverdale • Tom James MBE • Pat Jennings OBE KSG • Rob Key • Gary Longwell • Pixie Lott • Emily Maitlis • Graeme McDowell MBE • Lee Mears • Bill Neely • Lawrence Okoye • Phil Packer MBE • Sir Steve Redgrave CBE • Vincent Regan • Joe Root • Andy Scott • Roger Taylor MBE • Professor Gaetano Thiene • Gregor Townsend MBE • Andrew Triggs-Hodge MBE • Andrew Trimble • David Walliams • Alison Waters • Matt Wells • Sir Clive Woodward OBE

www.c-r-y.org.uk

There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we also accept credit/debit card donations over the phone.

1. CRY Update magazine Postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; supporters’ fundraising; articles about screening, myheart, research, pathology, raising awareness initiatives, massparticipation fundraising events; and much more.

2. CRY enewsletter Monthly email newsletter; 3 emails per year with links to the online version of the Update magazine; plus occasional emails about major CRY events and initiatives.

If you would like to subscribe to – or unsubscribe from – either of these mailing lists, please let us know: • Complete the online form; www.c-r-y.org.uk/subscribe • Call the CRY office; 01737 363222 • Email the CRY office; cry@c-r-y.org.uk

59

Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD).

Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions.

These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS).

CRY aims to reduce the frequency of YSCD through raising awareness amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research.

1 in 300 young people CRY tests will have a potentially lifethreatening heart condition.

CRY believes cardiac screening should be available to all young people aged between 14 and 35.

Registered Charity No. 1050845

CRY also works to guide and support families and close friends affected by YSCD. We provide information to explain what the coroner does, bereavement support, help with NHS referrals and advice on the procedures that usually follow a YSCD. In 80% of cases of young sudden cardiac death there are no prior

We are very proud that over 80p in every £1 we spend goes into supporting CRY’s key aims.

symptoms of a heart defect.

CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge.

For detailed information about cardiac conditions and CRY’s range of literature visit www.c-r-y.org.uk/ medical-information

Research 29.5% Support 12.5%

Without the fantastic support we receive this wouldn’t be possible.

Awareness 16.5% Governance 3%

Screening 23.5%

Fundraising 15%

Due to the anticipated impact of COVID-19 on fundraising in 2020/2021 CRY reduced the number of research fellowship grants awarded.

CRY is grateful for grants or donations from trusts and foundations.

We would like to thank the following for the generous support they have given us:

n io rs ve it: e vis lin e, / on at k e d .u th Up .org e ive RY r-y rib ce C c- c re the w. bs To of ww su

A & R Woolf Charitable Trust • Aubrey Orchard-Lisle Charitable Trust • The Bartle Family Charitable Trust • The Brian Shaw Memorial Trust • Borrows Charitable Trust • The Cantiacorum Foundation • Carval Foundation • The Cecil Rosen Foundation • Charles Littlewood Hill Trust • The Charles Wolfson Charitable Trust • Childwick Trust • CMS Cameron McKenna Foundation • Cosaraf Foundation • Doris Field Charitable Trust • The Edith Murphy Foundation • G C Gibson Charitable Trust • G M Morrison Charitable Trust • Gawthorn Cardiac Trust • Hasluck Charitable Trust • James Tudor Foundation • Kent Family Charitable Trust • The Lady Forester Trust (supporting the work of CRY in Shropshire) • Leathersellers’ Company Charitable Fund • The Mabel Harper Charitable Trust • The May Gibson Charitable Trust • The Rachel & David Barnett Charitable Trust • The Samuel Storey Family Charitable Trust • The Schroder Charity Trust • Sir John Sumner’s Trust • Sir Robert Gooch Charitable Trust • St Christopher Health Fund • The Stanley Grundy Foundation • Tudor Foundation Inc • Vernon N Ely Charitable Trust

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK