CRY Update Magazine Issue 85

News and Events | Raising Awareness | Our Fundraisers

Update 85 | May to August 2021

In this CRY Online

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CRY Screening Report

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London Landmarks Half Marathon

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CRY Heart of London Bridges Walk

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Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK

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Newsletter

CRY Update 85 May to August 2021

Inside Update 85

Editor Dr Steven Cox

Chief Executive

Deputy Editor Tom West

Newsletter Editor As Deputy Editor of the CRY Update it is my responsibility to put together this newsletter, and ambition that you find all the CRY news, events and fundraising in these pages to be of interest.

I always endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to get in touch with me if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section.

I would appreciate hearing from you at tom@c-r-y.org.uk or on 01737 363222 if you have any feedback or comments regarding previous issues. Thank you for your help.

Meet Our Representative News from the Chief Executive CRY Online CRY Screening Report CRY Centre for Cardiac Pathology (CRY CCP) Report Alison’s Column London Landmarks Half Marathon CRY Heart of London Bridges Walk Our Fundraisers Raising Awareness in the Media Report

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Contributors Alison Cox MBE Founder Professor Mary Sheppard Consultant Cardiac

Pathologist

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For more details regarding the events shown on the cover, please turn to the corresponding page references below. Images are listed clockwise from top left:

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1. CRY’s new screening centre at its head office. Page 5.

2. The Chipping Football Club charity match held in memory of Andrew Key. Page 24.

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3. One of CRY’s runners taking part in the London Landmarks Half Marathon. Page 11.

4. A group of supporters taking part in the CRY Heart of London Bridges Walk 2021. Page 12.

Head Office:

5. A group of supporters taking part in the CRY Heart of London Bridges Walk 2021. Page 12.

Unit 1140B The Axis Centre Cleeve Road Leatherhead KT22 7RD No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor.

The Editor welcomes letters but reserves the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of Cardiac Risk in the Young (CRY). Articles pertaining to health-related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

6. A garden sale event held in memory of Sebastian Body. Page 15.

7. One of CRY’s runners taking part in the London Landmarks Half Marathon. Page 11.

8. Supporters taking part in a cycling challenge in memory of Andrew Lancastle. Page 26.

Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more.

Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised.

If you can supply a writeup or photos for any fundraising activities you have taken part in, please email tom@c-r-y.org.uk.

Images of CRY Patrons and Members of Parliament throughout have been highlighted in red.

9. A group of supporters completing a 50k walk in memory of Anthony Evans. Page 20.

10. A memorial golf day held in memory of Neil Cummins. Page 19.

11. The Heartfelt Group’s fundraising stand held in memory of Stevie Wiggins. Page 34.

12. Supporters taking part in the CRY Heart of London Bridges Walk 2021. Page 12.

13. Supporters taking part in a 10-mile memorial walk in memory of Iain Lees. Page 26.

To subscribe to the online version of the CRY Update, which includes extra features such as embedded videos, visit: www.c-r-y.org.uk/subscribe

Copyright © 2021 Cardiac Risk in the Young. Registered Charity No. 1050845 A Company Limited by Guarantee. Registered in England No. 3052985 Registered Office: Unit 1140B The Axis Centre, Cleeve Road, Leatherhead, KT22 7RD

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Issue 85 | May to August 2021

Meet Our Representative was gentle with his actions and showed compassion and maturity from a very young age.

He had high principles, always displayed fair play and seemed to be everyone’s friend! He was definitely one of a kind and we feel his loss every day.

Dave and June Boulton Representatives in Bristol

We became aware of CRY following the sudden death of our son Jack in August 2009.

Jack, who was 17, collapsed during football training in Saltford on August 19th 2009. Jack was a talented sportsman and had a bright academic future ahead of him. He attended the sixthform at Wellsway School and played football for Keynsham and Saltford football clubs, cricket for Keynsham Cricket Club and was Junior Captain at Saltford Golf Club.

Life will never be the same. We have received tremendous support from the local community and through various fundraising events have raised over £138,000 for CRY. We have organised local screening events for young people and strongly support national screening.

We’re proud to be CRY representatives and are determined to continue to make a difference to more lives and support CRY in the excellent work they do.

Jack was amazing... from the day he was born until the day he died. He was energetic, quick thinking, witty and although quiet he had an inner confidence. With that confidence he displayed great sporting and personal skills and had little sayings that popped up out of nowhere. He

If you would like more information about the myheart network and the support services that we offer, such as the literature we provide and information on different cardiac conditions, you can visit the myheart website at www.myheart.org.uk.

There is also the myheart YouTube channel, which includes content such as videos sent in by members sharing their experiences of being diagnosed or undergoing certain tests, as well as myheart cardiologist Dr Michael Papadakis answering a range of frequently asked questions.

www.c-r-y.org.uk

Dave and June with CRY Patron Sir Steve Redgrave at CRY’s 2013 Parliamentary Reception

You can go to the myheart YouTube channel here: bit.ly/2QjiTyl And here’s where you can find the myheart network on social media:

@myheartnetwork

@myheart_UK

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News from the Chief Executive Dr Steven Cox

CRY Chief Executive

@Drstevenjcox drstevenjcox Thank you for everything that you continue to do to support CRY and raise awareness within your local communities. Included in this section are a number of media stories from May to August, as well as information about some of CRY’s events in this period.

June

Professor Sharma’s interview on Sky Sports

the vast majority of young people will collapse whilst at home, alone or during rest and in their sleep. We have to do everything we can to understand why these collapses and sudden cardiac arrests happen and that is why research is so important.

To see my full comment, you can go to bit.ly/3qr7cJg

Comment on the collapse of footballer Christian Eriksen June 13 The sudden collapse of Danish midfielder Christian Eriksen at the 2021 Euros is another terrible reminder of the horrendous impact cardiac conditions have on so many young people every day in the UK and across the world.

Every week in the UK, at least 12 apparently fit and healthy young people will collapse and die suddenly from previously undiagnosed heart conditions. And, whilst specialist cardiac screening will identify most conditions and defects that can cause these devastating cardiac arrests (and therefore prevent most of these sudden and tragic deaths), like all asymptomatic screening, it is not fool proof which is why CRY also funds much needed research at our world-renowned centre based at St George’s, University of London.

Professor Sanjay Sharma, who oversees our research at St George’s, spoke with various news outlets following Eriksen’s collapse to offer his expertise on the situation, and explain how cases like this can be responded to or prevented to begin with.

There is no question that proactive cardiac screening saves lives, but it will not save everyone. Christian’s collapse and the amazing medical response shows how important CPR training and the swift use of AEDs (or ‘defibs’) can be. But it’s so important to recognise that

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CRY’s 15th Heart of London Bridges Walk June 27 Our flagship event took place virtually for the second year in a row in 2021, as we marked the 15th anniversary of the CRY Heart of London Bridges Walk. Over 315 people from all over the country took part in their local areas, to connect with each other and remember those they have lost. Many supporters taking part created their own walking routes, taking in local sights and landmarks.

We were grateful that CRY Patron Kathryn Harries took part and gave a speech before the event officially began. I was

Issue 85 | May to August 2021

News from the Chief Executive also pleased to give a speech, which was followed by a 2-minute silence before walkers set off.

We also brought back the digital message wall which we introduced for the first virtual version of this event in 2020. This became the homepage of the CRY website for the day, and 80 messages were shared from supporters about why they were taking part and who they were walking in memory of.

To read a full write-up of the event, turn to page 12.

July

CRY transforms its office into new screening centre July 10-11 CRY typically provides free heart checks for over 32,000 young people in a normal year. But due to the COVID-19 pandemic and the restrictions and lockdowns in place, we had to put our screenings on hold for around 15 months.

Tens of thousands of people missed their heart tests as a result, which would have led to around 150 young people not receiving a diagnosis of a potentially lifethreatening condition and the treatment, lifestyle advice or surgery that would reduce their risk of suffering a cardiac arrest.

Our screening services in the community and for both grass roots and elite sports were already scheduled to resume on June 28, but due to the waiting lists caused by the pandemic and the increased awareness and anxiety following Christian Eriksen’s collapse, we worked to increase our testing capacity at the newly established screening centre at CRY’s head office.

Starting on July 10 and 11, CRY’s offices in Leatherhead, Surrey were transformed into a specialist screening

www.c-r-y.org.uk

centre – with regular weekend appointments scheduled for the rest of the year and beyond – as part of this innovative new service.

During lockdown we worked really hard to ensure our screening team would be appropriately prepared, with revised protocols in place, in terms of PPE, social distancing and enhanced cleaning, and that we’d be ready “to get back on the road” as soon as it was safe to do so. We felt so relieved and enthused when we had the go-ahead to start screening again – knowing we had a huge waiting list to work through and a ‘duty’ to deliver screening to young, asymptomatic people across the UK. Tragically, because most young people collapse whilst at home, alone or during rest and in their sleep, the only chance of saving them is through proactive heart screening. At CRY we are doing everything we can to identify those at risk, understand why these collapses and sudden cardiac arrests happen – and that’s also why research is so important.

We want every young person between the age of 14–35 to have the opportunity to have their heart tested. To book into one of our screening events, or to register your interest for when there are available screenings in your area, please go to www.testmyheart.org.uk

August 2021 London Landmarks Half Marathon August 1 The London Landmarks Half Marathon had a new theme this year to celebrate ways the nation has come together during the pandemic. CRY staff attended on the day along with a fantastic group of volunteers, whilst 32 CRY runners took part and handled the challenge with all of the precautions in place so well. Thank you to everyone who helped make the day a success, and congratulations to all our runners! You can read a full write-up about the day on page 11.

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CRY Online Social media Social media is a vital part of how CRY interacts with supporters and, first and foremost, raises awareness of young sudden cardiac death and what can be done to tackle it – from preventative measures (screening) to bereavement support for those affected by a tragedy.

In the CRY Online segment, we look back at the fourmonth period the Update covers and include a small selection of social media highlights, such as Facebook posts that reached an amazing amount of people, or supporters who tweeted memorable photos at us.

In this four-month period alone, CRY’s Facebook page recorded over 1.7 million impressions (the number of times a post appears on someone’s individual feed), which is a good illustration of just how many people our updates and key messages can reach online.

One post that received a lot of interaction and almost 400 shares was our July announcement that CRY’s office was opening as a new specialist screening centre, with events scheduled for the rest of the year. This was a fantastic development for us as we have been able to work through more of our screening waiting list, and being able to share messages like this online allows us to ensure as many people as possible hear about the opportunity to be screened.

Similarly, the infographics we share on platforms like Facebook are another engaging way for us to share key messages and statistics. For instance, one of our top Facebook posts from this period reiterated that CRY wants all young people to have the choice to have their heart screened. It also shared the statistic that in 80% of cases of young sudden cardiac death there are no prior symptoms, which is why getting checked with an ECG is so vital.

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Our Instagram account gained over 600 followers in this period, and continues to be a useful place for us to share highlights from events, important updates, and our key messages.

In June, we were pleased to share plenty of supporter photos from our 15th annual CRY Heart of London Bridges Walk event. Due to the pandemic, this was once again a virtual event with walkers taking part by completing their own routes in their local areas. Over 315 people from all over the country took part. You can read all about the day on page 12.

Interacting with us on social media is an easy way to keep up to date with any CRY information you might need. You will receive updates on upcoming events and screenings; and photos from fellow supporters. Every share of a post helps spread awareness about CRY a little further. So, if you’d like to follow along, here’s where you can find us:

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK

Issue 85 | May to August 2021

CRY Online

We are so pleased that we have been able to return to screening again, especially as the waiting list of people to be tested has increased so much in recent months. Twitter is a great platform where we can raise awareness for our screenings and their importance, and also highlight different events (like the two shown to the left in CRY’s Leatherhead office and Market Drayton) and how many people have been screened each week.

Tweets like those to the left show just how much people engage with CRY’s key messages when attention is brought to the incidence of young sudden cardiac death and the importance of screening.

With over 300 retweets and over 29,000 views on this video alone, it’s clear how valuable social media is in spreading messages like this.

One story written after Christian Eriksen’s collapse came from Ashley Preece, a writer for Birmingham Live, who went through a very similar experience 10 years ago. You can read the article by going to bit.ly/322HKzE Increased press coverage with stories like this and the huge influx of inquiries from people wanting to book in for tests with CRY showed just how much awareness was elevated and how high the demand is for CRY’s screening services.

www.c-r-y.org.uk

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CRY Screening Report Between May and August 2021, as we returned to screening and transformed the CRY office into a specialist screening centre, CRY screened over 3,200 people

What happens at a screening?

The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart.

Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire.

906 athletes were screened at sports screenings, including: Olympic and Paralympic screening at Bisham Abbey National Sports Centre, Team GB Rugby 7s, Bristol Bears Premiership Rugby, Leicester Tigers Premiership Rugby, the Loughborough Performance Centre, Lilleshall National Sports Centre, AFC Wimbledon, British Triathlon Academy, Leicester Tigers Premiership Rugby, Worcester Warriors Premiership Rugby, Gloucester Premiership Rugby, Sale Sharks Premiership Rugby, Northampton Saints Premiership Rugby, Exeter

Chiefs Premiership Rugby, Harlequins Premiership Rugby, Newcastle Falcons Premiership Rugby, London Irish Premiership Rugby, Bath Premiership Rugby, and Saracens Premiership Rugby.

1,290 people were screened at family screening events held in memory of: Carli Lansley (Southend-On-Sea), Lily Webster (Stowmarket), Aaron Dixon (Hartford and Winnington), Jack Thomas (Blackwood), Ben Hammond (Tenterden), and Adam Green (Market Drayton).

If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform.

The screening programme is under the aegis of Professor Sanjay Sharma.

506 people were screened at events funded by what CRY received from the Tesco Bags of Help Centenary Grant.

Photos show CRY’s office, which was converted to the National Screening Centre in July

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594 people were screened at events held at CRY’s office in Leatherhead, Surrey, including two screening days that were funded in memory of Shamil Hamid.

Issue 85 | May to August 2021

CRY Centre for Cardiac Pathology (CRY CCP) Report

By Professor Mary Sheppard

Professor Mary Sheppard, Consultant Cardiac Pathologist

Susanna Cooper, Laboratory Technician Khari Edwards, Laboratory Technician

The team here at the CRY Cardiovascular Pathology laboratory have processed 174 hearts during this period and given the causes of death as shown to the right, with sudden adult death and cardiomyopathies predominating within the 14-day time frame of receiving the case.

Families finding out the cause of death within this time frame is a vital part of our service.

We had 25 new pathologists referring cases to us, as well as 75 regular pathologists, both in general and forensic practice, from 50 coroners districts so we are maintaining our national referral profile.

We are also a centre for teaching and have trained 4 forensic pathologists in cardiovascular pathology.

We produced and delivered our first virtual Adult Cardiovascular Pathology Course with over 150 international attendees from around the world in June.

We continue to work on and publish research projects resulting from our database with our clinical colleagues, including work on sudden death in female athletes, mitral valve abnormalities in hypertrophic cardiomyopathy, prolapsed mitral valves, and cardiac transplant, obesity cardiomyopathy, and the normal heart.

Department news • Professor Sheppard is to be awarded an Honorary

Doctorate in Clinical Medicine at the University of Copenhagen in recognition of her collaboration on sudden cardiac death with a special symposium on the topic, highlighting the results of combined expertise.

• Professor Sheppard has been invited to sit on the

review panel for the Research Council of Biosciences, Health and the Environment, Academy of Finland in the field of Clinical Research.

• Professor Sheppard has finalised the third edition of

her book on Cardiovascular Pathology to be published in 2022, which is an important teaching resource for forensic and general pathologists with their approach to cardiac cases.

• Professor Sheppard was invited to be part of a panel

writing on World Health Organisation classification of cardiac tumours, with publication in 2022.

• Professor Sheppard was invited to be part of a

www.c-r-y.org.uk

Causes of death May-August 2021

SADS Cardiomyopathy IHD Other Aortic Hypertensive heart disease Valve Myocarditis Endocarditis Congential heart disease workshop on myocarditis hosted by the National Heart, Lung and Blood Institute of Health with proceedings to be published in 2022.

• Professor Sheppard was invited to be part of the

International Collaboration on Cancer Reporting (ICCR) for writing an update of the dataset for the reporting of heart neoplasms to be published in 2022.

• Dr Joseph Westaby was interviewed on BBC Radio

5, highlighting the importance of the research and screening made possible by CRY.

• Our unit has been recognised as a centre for training

in cardiovascular pathology by forensic pathology trainees from Malaysia – Dr Adilah Ismail, Dr Atif Shamsudin, Dr Nabil Johari, and Dr Fatin Fadzlee.

The trainees have gained valuable experiences, and will use this knowledge to improve practise in their respective institutions in Malaysia.

• Student Sebastain Biedrzycki spent a week gaining

work experience within cardiovascular pathology.

To learn more about the research completed at the CRY CCP and Professor Mary Sheppard’s work, you can watch her presentation at the 2019 CRY Family Research Day on our YouTube channel here: bit.ly/2Dmg6RU

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Alison’s Column The impact on the family after a young sudden cardiac death

Alison Cox MBE CRY Founder

oldest grandchild was not.

The impact on the family after a young sudden cardiac death can be devastating and unpredictable.

Children not only have different characters but the development of their character is influenced by many things. Grief can have a harsh impact and every child is likely to feel different, on different days, with different people, at different times.

For Bruce Lord, himself the youngest of seven children, he found it stretched cruelly to his mother who could not come to terms with still being alive when her

For parents it is a nightmare. A maze that they have to walk through on tiptoe, alert to mood swings. There are external events that have to be confronted, whilst always remembering their child is in the process of developing, learning, feeling.

Bruce says: “the only thing I can think to say after losing a child to young sudden cardiac death is that nothing could prepare you for the impact it has on the family.

The effects are so diverse.

The feelings of isolation can be massive and makes us all deal with it in our own ways.

Not all of them healthy. I can’t even think of how much better life would be for us all if we hadn’t lost Rachael.”

Bruce Lord Children respond differently to such a crisis – and not only because of their character but their age too.

Sometimes a younger child will be found comforting an older sibling.

Grief is a cruel master for parents trying desperately to cope with their own emotions at this time. Emotions burn energy and having the strength to shield their own suffering from their child/children requires significant fortitude. Understanding each other’s feelings, expressing them to each other whenever possible, creating opportunities for the family to be together and hear what each other feel will relieve the burden.

Children can often say the wisest things if encouraged to do so and will become safe expressing their own sadness to others in the family if they feel listened to.

There is no limit on love – or grief. Sharing both with softness and patience will inspire confidence in their children’s ability to live with the deep sadness that has afflicted their family.

Children might feel they have to be tough and conceal their feelings, but their courage needs to be carefully watched as they can be supremely good at hiding their emotions. Older children can feel they are responsible for a younger sibling, but also are often desperate to comfort their mother.

As children mature they will change too.

Managing the impact on the family is a massive challenge for Mum and Dad, who themselves are both desperately trying to come to terms with the catastrophic effect it has had on the whole family, as well as their own grief.

Grief is a slippery vestibule. It is an ante-room for the purpose of waiting. An infliction of terrible sadness that has to be accepted as something to live with and is never likely to ever go away.

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CRY has developed a series of booklets which contain personal stories from bereaved mums, dads, siblings, partners and friends. We have also developed two additional booklets, one focusing on the Christmas period and the other on anniversaries following a young sudden cardiac death.

You can order any of these booklets for free or read them online by going to www.c-r-y.org.uk/support-resources

Issue 85 | May to August 2021

London Landmarks Half Marathon 2021 Thank you and congratulations to the 32 CRY runners who took part in the COVID safe London Landmarks Half Marathon on 1 August 2021 The event had a new theme this year, to celebrate and commemorate the landmark moments of the past 18 months during the pandemic. CRY staff Cara MacMillan and Phil Houlton were there on the day along with our amazing volunteers Lindsey Brown, Hayley Edmeades, Rikesh Mistry and Omolade Taiwo at the socially distanced cheer spot.

We were so glad that we were able to see almost all of the CRY team! Everyone seemed to enjoy the day despite all of the precautions in place and, once again, it was lovely to see so many groups of family and friends, united in support of their runners.

We were fortunate that the weather was bright and dry, and the buzzing atmosphere along the route really made the day special. With choirs, musical performances, dance acts, themed cheer stations and historical activities, the event atmosphere was really brought to life. The enthusiastic CRY cheering team spurred on our CRY London Landmarks team with noisy clap banners and cowbells! We saw some fantastic costumes and fancy dress including the Spice Girls, Bagpuss, a wind turbine, penguins and much more.

Harris said after the event. “Everything went smoothly and I enjoyed the run, improving on my London Landmarks Half Marathon 2019 time. It was great passing the CRY cheering station half way round – it really gave me a boost!”

We are hoping to have places in this event next year on Sunday 3 April 2022. Please register your interest in the event by going to www.c-r-y.org.uk/london-landmarks

The runners started at Pall Mall, finished by Downing Street, and ran through both the City of London and the City of Westminster. Mile markers revealed quirky facts to reveal London’s hidden secrets. There were fabulous views along the route of London’s most iconic landmarks including Big Ben, St Paul’s Cathedral, Nelson’s Column, the Gherkin, the Shard, the Tower of London and the London Eye. “It was a great day,” CRY runner Lindsay

The runners in the CRY team:

Amber Miller (running in memory of Jake Miller) | Helen Tavares (running in memory of Michael Tavares) | Jennifer Cambell (running in memory of Ariana Jahangir) | Johanna Coady | Lindsay Harris (running in memory of Anthony Fitzgerald) | Christopher West (running in memory of Kayleigh Griffiths) | Jessica Hassall (running in memory of Kris Cook) | Annie Williams (running in memory of Aaron Dixon) | Ellen Keenan-O-Malley and Aaron Shiret (running in memory of Cecelia Barriga) | Annabelle Lee | Nathan Lander | Liam Daly, Eloise Rakic-Platt and Nicholas Champion (running in memory of Isabelle Tudisca) | Anna Worboys (running in memory of Robert Worboys) | Jane Thomas, Bradlee McQueen and Oliver Cribb (running in memory of Evan Thomas) | Cassy Lawton Jenkins (running in memory of Daniel Hughes) | Alison Watts (running in memory of Melissa Rose Watts) | Jack Griffiths and Moiz Shakeel (running in memory of Lucy Jessop) | Harry McKay and Kathleen Maxted (running in memory of Rockwell Gayakaya) | Gavin McClean | Sarina Mathew (running in memory of Aashi Sinha) | Georgia HardingJones and Matthew White (running in memory of Megan Harding-Jones) | Charlie Saunders (running in memory of Matt Cragg) | Anwar Elharabi | Madeline Jackson www.c-r-y.org.uk

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CRY Heart of London Bridges Walk 2021

Sunday 27 June 2021 marked the 15th anniversary of CRY’s flagship event, the CRY Heart of London Bridges Walk Walking virtually for the second year in a row, we are pleased to say over 315 people from all over the country took part, to connect with each other and remember those they have lost. Like last year, the walk was very different from the usual event that is held in Southwark Park, London.

Although it was disappointing that we could not all walk together, it’s amazing how many people took part.

Many participants created their own walking routes this year, incorporating local landmarks, rivers, streams, bridges, rural pathways and beaches. It was so lovely to be able to see the beautiful locations that supporters

walked through. Over 15 CRY staff and their families also walked on Sunday in their local areas.

Each participant/group took part for their own reason, which was expressed through our digital message wall.

80 beautiful messages were posted on the digital wall as it became the homepage of the CRY website for the day (shown below). It was a very emotional and poignant day for everyone involved.

Speeches from CRY Patron Kathryn Harries, who walked in her local hometown, and CRY Chief Executive Dr Steven Cox were broadcast live on CRY’s social media channels at 10:50am and were available for everyone to watch together virtually.

“I’ve been a CRY Patron since 2007, and it is an honour and a privilege to be associated with, and support, such a wonderful organisation, doing such fantastic work,” Kathryn said in her speech recorded before the event.

“I shall be walking on the 27th of June with you, but here in the Surrey Hills, and I hope with my family,

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Issue 85 | May to August 2021

CRY Heart of London Bridges Walk 2021

You can watch the full speeches from Dr Cox and Kathryn by going to bit.ly/3Ewut0L

restrictions permitting. I wish you all the very, very best.

Thank you all for your support, and I look forward to seeing you again next year.”

“The fact that we have once again been unable to join each other afterwards for a picnic with family and friends in the park doesn’t make today any less important,” Dr Cox said. “This is the one day of the year when everyone comes together, at the same time, to think about all of the young people who have died so suddenly.”

“And what is so special about today is you’re with so many other people who know how you feel,” Dr Cox added near the end of his speech. “I believe I and every person who supports CRY are part of an organisation that celebrates life. The lives which are in our memories and the lives that will be saved, because of what we have all come together to try to achieve.”

Emma Hurlbut; David Jenkins; Kieran Joyce; Jannik Lam; Kris Ledgard; Miriam Lee; Lauren Mead; Paul Mulford; Craig Powell; Bobby Puri; Joe Robbins; Sian Roger; Robert Rowan; Matthew Seary; Evan Shonfield; Phil Standing; Natalie Stewart; Paul Sykes; Ross Taylor; Lily Webster; Sally Wells; and Benjamin Wetherall.

We are hoping to be back in Southwark Park as normal next year on Sunday 26 June 2022. If you would like to be among the first to know when registration is open and receive information about the day, sign up to our interest list by going to: www.c-r-y.org.uk/bridges-walk-2022interest-form

“Thank you for joining us today – for everything you do for CRY, for every photo and message you have shared.

Thank you for helping to save young lives.”

The speeches were then followed by a 2-minute silence to remember those who have died suddenly.

Thank you to everyone who took part in the event. We are so grateful to you all for your continued support. It is amazing to see the map of all the locations where participants walked, which you can see to the right. It just shows how much awareness was raised on the day throughout the UK. There was even one participant in the United States who walked in California which is just incredible.

This year participants walked in memory of: Tom Arthur; Claire Beer; Alexander Camilleri; Tom Clabburn; Alan Cleary; Simon Cullum; Adam Donnelly; Harry Dubois; Harry Faulkner; Anthony Fitzgerald; Rachel Gabbitas; Jake Gallagher; Ashley Goodwin; Kayleigh Griffiths; Matt Hadfield; Martin Hodgson;

www.c-r-y.org.uk

A map of the locations where CRY supporters completed their walks

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Our Fundraisers Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from May to August 2021.

Corrections Unfortunately, due to the size of the Update, with so many fundraisers to acknowledge and there being some overlap with memorial fund names, there can occasionally be mistakes. We always strive to enforce

new methods to eradicate such administrative errors, but we apologise if you have ever been affected in some way by this.

If you see a mistake in the Update or you have any questions, please do not hesitate to contact me at tom@c-r-y.org.uk.

In Memory of

In Memory of

David Azzopardi sent in £245 of funeral donations representing floral tributes, in memory of his mother, Valerie Azzopardi.

Alex Downie raised £377.92 through a 60 mile paddle.

Philip Abraham

Jason Ayre

In Memory of

Adam Ayres

In Memory of

Vikas Agni

Jayashree Ramesh donated £100.

In Memory of

Robert Allan

Pauline Allan raised £182 through a coffee morning at Dorking United Reformed Church.

In Memory of

Tom Arthur

Anna and Lawrence ran a marathon and raised £1,842.20.

In Memory of

Tony Atkins

Donna Atkins raised £120 from the carrier bags charge.

14

Kirby Ayres donated £2,200 raised in lieu of floral tributes in memory of her brother.

In Memory of

Matthew Beadle

Lynne Beadle sent in £617.80 from the NGS fundraising weekend.

In Memory of

Toby Berlevy

Storyvault Films Limited donated £1,000 following the BBC Production, “Sudden Death: My Sister’s Silent Killer.”

In Memory of

Ben Birch

Andrew Hadley donated £1,025.

Issue 85 | May to August 2021

Our Fundraisers In Memory of

Steven Blair

Susan Blair raised £205 from CRY collection pots.

In Memory of

Graeme Blenkinsop

Pete, Mike, Lee, Claire, Ziad, and Danker took part in the Three Peaks Challenge and raised £5,623.69.

us on our move.

“We were lucky enough to have generous neighbours and friends who contributed their homemade cakes as well. It was such a sunny and beautiful afternoon in a relaxed atmosphere talking about the charity CRY.”

In Memory of

Sarah Booth

In Memory of

Sebastian Body

• Catherine Langham donated £100.

• Ms W Body donated £100 on behalf of the late Jason and William Body.

• Sophie Body raised £335 through the sale of her

artwork, and a further £928 through a garden sale:

“On Saturday 5th June in Bowerchalke, Wiltshire, we put on a charity sale in memory of Sebastian Body for CRY in our garden before our big house sale!

“We were so pleased to see so many people turn up and buy from us things such as an old rusty wheelbarrow and a well-used waffle maker that Sebastian used to use at home in the holidays.

“A silent auction proved to be very successful, with lots of people trying to outbid each other for a second-hand TV and various other items that we did not want to take with

Robert Booth sent in £365 raised from a Premiership Score Predictor League with former colleagues at Invest Northern Ireland.

In Memory of

Jack Boulton

June Boulton sent in £330 raised through a golf tour at the Belfry.

In Memory of

John Boulton

Joanne Boulton forwarded collected donations of £302.10 representing floral tributes in memory of her husband.

In Memory of

Ian Bowen

Sandra Gallagher donated £100.

In Memory of

Neil Bradbury

Jacqueline Bradbury took part in the Birmingham Black Country Half Marathon and raised £1,000.03.

www.c-r-y.org.uk

15

Our Fundraisers In Memory of

Harley Curtis Brandon

Michelle Bourne donated £130.

In Memory of

Elizabeth Bullington

Westonbirt School donated £165.

In Memory of In Memory of

Emma Broad

James Satchel donated £600.

Nathan Butler

Karen Tatton sent in £580 of funeral donations collected in memory of her husband, Christopher Tatton.

In Memory of

Alistair Calvert

In Memory of

Alexander Broadbent

• Sarah and Robert Finney donated £100.

• Simone and the Zahradka family donated £150.

• Basil Yoxall-Haray donated £100.

In Memory of

David Brown

• David Brown sent in £150 raised from

Alice Wheaton sent in £500 from donations received on her 80th birthday.

In Memory of

Arabella Campbell

• Joanne Barden raised a further £414.38 from the third Strawberry Tea event.

• Charlotte Smith donated £100.

birthday gifts in memory of his son.

• David Brown raised an overall total of £500 through birthday donations in memory of his son.

In Memory of

Dacre Capstick

Mike Capstick raised £2,354.

In Memory of

Martin Bryant

Colleagues at Railscape Ltd donated £250.

In Memory of

Jenny Bucknell

Bill and Hillary Durrant raised £202 from the sale of hedgehog homes and marmalade, and a further £315 from donations and the sales of jam and marmalade.

16

In Memory of

Andrew Carter

Ross Tomsett donated £400 in memory of his cousin, Andrew Carter, for Andrew’s 40th Birthday.

In Memory of

Charlotte Carter

Susan Carter donated £5,000.

Issue 85 | May to August 2021

Our Fundraisers In Memory of

In Memory of

Michael Clarke

Christopher Cowe

Katie Bridges sent in £131 raised in lieu of floral tributes in memory of Edward Clingo.

Ross Cowe donated £500.

In Memory of

In Memory of

Nicola Burrows raised £320 ahead of the Spartan Race before the event’s cancellation.

Margaret Cox sent in donations of £265 representing floral tributes in memory of her husband.

Rhys Coleman

Alan George Cox

In Memory of

In Memory of

Stephen Connor

Matthew Cragg

Pauline Connor forwarded £116 raised through an online Body Shop raffle.

Andrew Strange held the Rock in The House event in 2016, raising a total of £2,830.

In Memory of

In Memory of

Scott Cowan

Charlie Craig

• Carole Wilson donated £100.

Georgina Ellis donated £500.

• Scott’s Team took part in Scotland’s Virtual Kiltwalk 2021 and raised £2,695.50:

“My friend Liam and I walked 16 miles around Glasgow as part of the Kiltwalk which supports so many different charities. We wanted to raise awareness for CRY after losing my beautiful 25-year-old son Scott last year.

“Everyone has been so generous and kind and a lot of them have already put their name down to be tested. I want to help other families avoid going through the unbearable pain of losing a loved one and plan to walk it every year from now on.”

www.c-r-y.org.uk

In Memory of

Neil Cummins

• Margaret Cummins donated £100.

• Colleagues at Modebest donated £250.

• Trudy and Robert Hutchinson donated £100.

• Eamon Lynam donated £100.

• Mary Halpin donated £200.

• Michael Halpin donated £100.

• Alan Kelly donated £200 as part of a memorial golf

day.

• Kevin Hanley donated £300.

• Mark Smyth donated £500.

17

Our Fundraisers • Paschal Duffy donated £450.

• Lisa Egan donated £250.

• Matthew Cannon donated £200.

• Les Rose donated £350.

• Teresa Halpin Dias Antunes donated £100.

• Gerry Rochford donated £300.

• Sean O’Carroll donated £100.

• Colin Garrett donated £600.

• Linda McKenzie donated £200.

• Tom Carey donated £500 for the Neil Cummins

Memorial Golf Day.

“The day’s golfing was followed by a drink’s reception, dinner, prize giving and an auction which raised over £14,000 inclusive of hole sponsorship and generous donations from his many friends and associates.

“The charity endorsed by the family is CRY, a charity set up to prevent young sudden cardiac deaths through awareness, screening and research, and supporting affected families.

“It is hoped that this will be become an annual event in Neil’s memory.”

In Memory of

Freya Dalrymple

Staff at Kirkwall Police station raised £400 through a raffle.

• Martin Reilly raised £1,700 in support of Neil’s

Memorial Golf Day.

• Eamon Lynam forwarded £105 on behalf of Neil’s

Memorial Golf Day attendees and sponsors:

“On Friday 30 July 2021, 75 golfers attended West Middlesex Golf Club to pay tribute to their friend, Neil Cummins, who sadly passed away earlier in the year in April 2021.

“Neil was well known in the London Irish Community and was a member of the London Irish Walking Football team and an avid supporter of the Republic of Ireland Football Team.

In Memory of

Ben Daniels

• Farringtons School raised £122 through their Why Not Run event.

• Andrew Littlechild and the Old Elthamians Cricket Club raised £1,274.

In Memory of

Neil John Darby

Heather Darby raised £1,005 through a golf day.

In Memory of

Andrew Dawson

Ann Bath raised £215.67 through a collection pot.

In Memory of

Ken and Karl Deal

Winifred Deal donated £500.

18

Issue 85 | May to August 2021

Our Fundraisers In Memory of

Matthew Dewhirst

• Chris Dewhirst donated £250.

• Cathy Dhanda donated £350 in memory of Jeevan Dhanda on his 25th birthday.

• Michelle Beswick donated £100 in memory of Jeevan

Dhanda on his 25th birthday.

• Caroline Rennalls donated £300.

In Memory of

Aaron Dixon

• Groundwork UK donated £250.

• The Grange School raised £475.

Manchester 10k and raised £2,023.37.

• Sue Taylor took part in the Liverpool Half Marathon

and raised £700.

In Memory of

Richard Dunk

Darrone Vaughan completed a sponsored walk from London to Brighton and raised £3,505.29.

In Memory of

Emily Rose Dunn

Ann Dunn donated £520.

• Fit for Life Mums in Hartford raised £205.

• Haywood & Jackson donated £100 in sponsorship of

the World Boxing record event.

• The JD Foundation donated £20,000.

In Memory of

Gary Edwards

Cat and Matt raised £435 in lieu of wedding donations.

In Memory of

Steve Docherty

• Aurora Media Worldwide donated £250.

• Ms S Wood forwarded donations of £1,144.56

representing donations received in lieu of floral tributes in memory of her partner, Steve.

In Memory of

David Egerton

Amanda Egerton sent £1,560 representing gifts received in lieu of floral tributes in memory of her husband.

In Memory of

In Memory of

Holly Pearson sent in £150.

Fika Coffee and Wine Lounge raised £200 in a raffle with the support of Rory’s Rovers.

David Drake

Rory Embling

In Memory of

Harry Dubois

• Anita and Rachel took part in the

Manchester 10k and raised £1,893.75.

• Emily, Paul, Sarah, Ian, Dave, Rick,

Jacqueline, Michelle, and Steve took part in the

www.c-r-y.org.uk

In Memory of

Anthony Evans

• Kate Evans forwarded further funeral donations of £285.

19

Our Fundraisers • Q2 raised £2,538.21 from their 50k walk.

was able to invite. I invited family, friends and my work colleagues who all knew about my story and have been very supportive of me in my grieving and wanting to raise funds for the charity.

“As it was a glorious sunny day we held a hot dog sale, tombola (gifts were donated by friends and family as well as I purchased some CRY’S merchandise to go towards the tombola), and games that guests were able to enter for a fee.

In Memory of

Morgan Evans

Stuart Carnegie took part in the Dramathon 10k and raised £325.

In Memory of

Josh Fell

Richard Fell held a raffle for a signed helmet by John McGuinness MBE and raised £400.

In Memory of

Christine Fenton-Goss

Jessica Winch raised £626 from her sponsored head shave: “The event took place on Saturday 17 July. Due to COVID restrictions I was limited to the amount of people I

20

“Games included croquet (small course in the garden, whoever was able to go around the course in less hits were the winner!). We had a game of fluffy darts which consisted of three balls to throw on the dart board with score points – highest points wins! Also, a game which I invented was pin the heart (to make it relevant to the event) in which we had a plastic effigy of a human being, pinned onto a board and the person was blindfolded and had to walk up to the board to stick a heart in the appropriate place. This game was the most played and certainly had some laughs at that!

“We had the charity leaflets scattered around the tables for each person to take, as well as a board with key information about research and what the charity does.

“The main event was that I shaved my head in front of my guests and had posted live on social media for those that couldn’t make it and to those that donated. It was an emotional moment, but I felt brave, and I couldn’t stop thinking about my sister and how she would react to me doing this.

Issue 85 | May to August 2021

Our Fundraisers “Overall, I felt that this was to help not only my grieving process but also, I knew how much my sister helped people as much as she could.

“If after this it helps save one family from going through what we have, then I have helped continue my sister’s legacy and she would be proud of me of what I have achieved.

In total, I have managed to raise £626! For someone who’s never done anything like this, I feel very happy and chuffed and know that this money will be going to an amazing cause.”

In Memory of

Pamela Fewings

Michael Fewings sent in a total of £371.29 representing donations received in lieu of floral tributes in memory of his mother, Pamela Fewings.

In Memory of

Anthony Fitzgerald

• Capital Group donated £1,174 to match the contribution made by Habib Annous.

• Russell Parkin donated £1,000.

In Memory of

Charlie Fitzherbert-Brockholes

• Hannah Fitzherbert-Brockholes forwarded donations

of £541.76 representing floral tributes in memory of her husband.

• Mr Mayor and Van der Burgh Families donated £250.

In Memory of

Ben Forsyth

• Margaret Strang donated £100 in honour of Ben’s 24th birthday.

• Scott Ramsay completed Scotts Knighthood of Sufferlandria Quest and raised £742.37.

In Memory of

Mark Foster

In Memory of

Therese Field

• Rachael Roby ran 40km for four weeks and raised £230.

• Tara Challenor organised an online show,

A Night at the Musicals, and raised £267.47 in memory of Linda Eke and Therese.

In Memory of

Jenny Finney

Ben Coleman and Jack Finney completed a 78 mile walk of the London Capital Ring and raised £1,110.

www.c-r-y.org.uk

The Silver Forum raised £230.

In Memory of

Andrew Gard

Peter Gard raised £3,080.02 with the members of the Frinton Golf Club.

In Memory of

Salena German

Jackie German and her brother sent in £444 raised from a collection box in his shop.

21

Our Fundraisers In Memory of

Ashley Goodwin

Aggleton.

Linda Goodwin sent in £663.40, including: £326.40 from car boot and plant sales; a further £237 raised through eBay and car boot sales; and £100 in respect of the Probus talk given by Mike

• Paula Hickmott ran a half marathon and raised

£1,531.

• Fiona Quinlan completed her challenge of running the

distance of a marathon throughout March and raised £1,090.

In Memory of

Kyle Hancock

In Memory of

Richard Gower

Paige Salt organised the Steel City Derby Football Match and raised £1,292.50.

• Joy Gower donated £140 from the sales of her South Coast Walk book.

• David Crowhurst donated £100 in support of Joy’s fundraising for her book.

In Memory of

Andrew ‘Harry’ Harrison

Emma Hancock raised £2,292.15.

In Memory of

Jordan Grant

The pupils at Our Lady’s Catholic High School raised £562.

In Memory of

In Memory of

Jonathan Hayman

• Marion Hayman donated £100 in honour of Jonathan’s 36th birthday.

• John Keast ran a marathon raising £125.

Adam Green

The Lady Forester Trust donated £2,500.

In Memory of

Joseph Herrington

Brad and Daniela raised £4,803.

In Memory of

Matthew Hadfield

• Sqn Ldr Abraham Garretts sent in £100 which he won from his article being chosen and published in Saga magazine.

• Janet Arkell donated £100.

In Memory of

Ben Hammond

• Tenterden Community Interest Group

donated £19,892.83.

22

In Memory of

Matthew Hesmondhalgh

• Darren Lee donated £100.

• Nathan’s Wastesavers sent in £165.15 as part of a clothing collection fundraise.

• Nathan’s Wastesavers raised £161.40.

• Pat Collins sold face masks, raising £100 with the

help of Nicksons of Garstang and their customers.

Issue 85 | May to August 2021

Our Fundraisers • In Focus (Gt Eccleston) Ltd donated £1,000.

• Paula Hesmondhalgh forwarded donations of £362 in

memory of Joan Wilkins.

• Paula Hesmondhalgh raised £1,000 from the sale of

In Memory of

Joseph Horkan

Matty Horkan raised £1,633.60 from the Sunnydown School Cycle.

Christmas cards and masks.

• Paula Hesmondhalgh raised £502.80 from the Team

In Memory of

• Paula Hesmondhalgh raised £5,000 through the

Jane Howard sent in £200 from the support of staff and customers at Tesco Express.

Matt market stall and car boot sale.

Milk Bottle Challenge, in honour of Matthew’s 32nd birthday:

“The Milk Bottle Challenge (MBC) was the very first fundraiser that Barry and I started. Shortly after Matt died in August 2011, we knew we wanted to do something in Matt’s memory but we didn’t know what, and it was some time before we could get our heads around fundraising.

As he had been a part-time milkman (as well as a trainee accountant and had always kept his pennies in a pot from being a small child), we just started putting pennies in a milk bottle.

“Our friends and family thought it was a great idea and started collecting them in milk bottles too, and very quickly the idea of collecting a pint of pennies was born and started to take off, with many generous folks adding other coins too. The MBC has already paid for one day’s screening at Garstang Medical Practice and now the MBC2 can fund another!!! (As soon as we are permitted of course). What a wonderful achievement by everyone and what a fabulous tribute to our lovely Matthew – I’m sure he’d have been amazed at what a few humble pennies inspired and achieved. I just wish he was here to see it.”

In Memory of

Peter Hollingsworth

Slater & Sons Funeral Directors forwarded £159.39 of funeral donations.

www.c-r-y.org.uk

Stewart Howard

In Memory of

Stuart Hudson

Silhill Football club raised £200.

In Memory of

Daniel Hughes

• Harp of Gold donated £1,000.

• Mr and Mrs Davenhill donated £200.

• Richard Heathcote Primary School raised £361.

• Paulette took part in Dry January and

raised £190.50.

In Memory of

James Hughes

Craig Hughes forwarded donations of £515 representing floral tributes in memory of his father.

In Memory of

Craig Hunter

Connie Hunter-Jamison donated £1,000.

In Memory of

Alexander Jones

Audrey Jones sent in £630 from family fundraising, and a further £502.50 donation.

23

Our Fundraisers In Memory of

In Memory of

Robert Jones

Andrew Key

Rhianna Holland sent in £100.

In Memory of

Kieran Joyce

• Andrea Joyce, Clar and Carolyn

donated £445.84 for Easter.

• Daisy Bishop donated £100.

• Weobley High School took part in their 7-11 Challenge

and raised £8,239.48.

• Aston donated £160 from the sale of his kittens.

• Hay Junior Football Club raised £910 through a

football festival.

In Memory of

Natasha Kay

Teresa DiMartino donated £100.

In Memory of

Joe Kellogg

• Ben Ashdown with Your Space Property Group raised

£5,000 through a Spondon-Slough Walk.

• Olly Hancock with Your Space Property Group raised

£159.37 through a walk.

In Memory of

Sarah Kendrick

Christine Christou sent in £1,000 on behalf of a legacy donation received from her mother, Agnes Ada Boardman.

In Memory of

Jennifer Kerwood

Staffordshire Police donated £103.

24

• Danielle Riley sent in £165 from sales of pebbles painted by Trisha Barker.

• BSG solicitors donated £100 in support of Ashley Bolton’s coast to coast cycle ride.

• Friends and colleagues at BAE Systems X-ray dept

donated £160.

• Janet Collinson donated £150.

• Paul Key raised £750 from the Belfry raffle.

• Greg Key donated £500.

• Rebecca

Ross sent in £7,378 raised at the Chipping Football Club charity match:

“On Sunday 4 July 2021, a day of football was held at Chipping Football Club in memory of Andrew Key. Andy’s family and friends came together to celebrate his life and love of football, and to raise money and awareness for the charity CRY. “Despite the unfavourable weather, over 300 people were in attendance on the day, and were treated to two great matches. First up, managed by Shirley Fletcher and Sharon Potter, Chipping Ladies (many of whom were close friends of Andy) played a well-spirited, competitive inhouse friendly to get the day off to a strong start.

“On completion of the opening game, we heard a speech from Dave and Sue Hughes, who lost their 28-year-old son Daniel to a cardiac arrest in 2015, and have since become CRY Representatives to help raise awareness and offer people assistance and reliable information about the charity. We thank Dave, Sue, and the whole family for making the journey to spend the day with us.

“Next up came the main event. Two hand-picked teams made up of Andy’s family and friends went up against each other in a well contested exhibition match. A wide range of ages and footballing abilities came together to form the teams in a game which we hope would’ve given Andy a great deal of enjoyment and a few laughs along the way!

Issue 85 | May to August 2021

Our Fundraisers In Memory of

Graeme Kilpatrick

Danielle McKay donated £500.

In Memory of

Harry King

Samantha King sent in £220 raised through a plant sale at St Mary’s Church.

“On completion of the football, all teams were awarded participation medals and respective ‘players of the match’ were announced. Thankfully the rain gave way for some sunshine to give the players and volunteers some time to enjoy a drink with the rest of the crowd and reflect on the day.

“Throughout the day, those in attendance were encouraged to take advantage of the fully stocked bar and BBQ areas which were kindly being manned by volunteers, as well as a cake stand full of generously donated home bakes. The local community had also come together to donate some fantastic raffle prizes, which was greatly appreciated and produced lots of lucky winners.

“The main goal of our day was to give Andrew’s family and friends a platform to share their memories of Andy in an environment that he loved, while simultaneously raising awareness and money for CRY. After totalling up the figures, we are proud to say we managed to raise a fantastic £7,378 which we feel is testament to Andy himself, and shows the unwavering love and support from the local community towards his family.

“Huge thanks to everyone who gave their time to help make the day a success, and to all those who attended and dug deep in their pockets for such a worthy cause. A special mention must also go to Chris Boyes, who donated a signed, framed Paul Gascoigne shirt complete with certificate of authenticity. A stand-alone raffle was held for the shirt which raised a massive £3,095 towards our total.

“Alongside other fundraising efforts including cycling and golf, and with the cricket yet to come, we are proud to continue fundraising in Andy’s name.” Martin Cookson.

www.c-r-y.org.uk

In Memory of

Zoe King

Team Paragon raised a total of £510 ahead of the Nuclear Race before the event’s cancellation.

In Memory of

Sophie Louise Kirkland

Joanne Kirkland raised £281 from Sober for October.

In Memory of

Judith Krish

Felicity Good donated £200 in memory of her much loved niece.

In Memory of

Rishi Kukar

Parvin Kukar donated £250 in honor of Rishi’s 24th birthday.

In Memory of

Jannik Lam

• Wendy Iveson donated £100 for storage drawers made by Malcolm Talbot.

25

Our Fundraisers • Malcolm Talbot forwarded donations of £141 from

customers of the Green Store in Croxley Green for bedding plants which were donated by Burston Garden Centre; and sent in further donations of £65 and £265.

In Memory of

Carli Lansley

Upminster Containers Ltd donated £100.

In Memory of

Robert Lancaster

Margaret and James Lancaster raised £100 from their golden wedding celebration.

In Memory of

Miriam Kate Lee

Robert Shapton donated £100 in memory of Diana Smith.

In Memory of

Andrew Lancastle

The Cycle Saturday Team raised £558.71: “Well, we gave it a crack. Completing 205 miles in a moving time of 17 hours. 119 miles short of the 324 mile challenge – ‘The Lang Way Doon’!

“There were a lot of ups and downs along the way and that was not just the route and terrain! We had a brilliant team, and a great support crew to help us along the way! Unfortunately, some things you just can’t predict or account for when taking on something like this is the weather (especially in Scotland!!). The section around the Glenshee area was so foggy at 2am, we literally could not see a metre in front of us and therefore had to walk down it (or risk hitting sheep, hare, deer, etc.). This meant in the end we just never had the time to complete it (losing circa 12hrs over the course of start to the point of stopping!).

In Memory of

Iain Lees

Lindsay Tomlins raised £1,204 through a 10-mile memorial walk as a tribute for Iain’s 50th birthday.

In Memory of

Jonathan Leigh and Michael Land

Adam Haywood ran 300km in 30 days and raised £4,353.22.

In Memory of

Jonathan Leigh

“We were all gutted not to get to the end, but there will definitely be a next time.” David Howard.

26

Northern Powergrid donated £1,500 through their matched giving programme in respect of their colleague, Adam Haywood, who ran 10km every day for 30 days.

Issue 85 | May to August 2021

Our Fundraisers In Memory of

In Memory of

Easton in Gordano cricket club donated £125.

Fergus donated £20 in memory of his uncle.

Chris Lester

In Memory of

Adam Lewis

• Josh and Emma Davies sent in £500

from sponsorship of Josh’s daily 10K run.

• Alison Rowles raised £345 from a 5-mile challenge in support of Team Mateus.

In Memory of

Joseph Leyland

Charlotte Leyland donated £100.

David MacMillan

In Memory of

Jack Maddams

The Sellens family and friends donated £450.

In Memory of

Sara Madron

Jessica Madron donated £100.

In Memory of

Peter Manlove

In Memory of

Jamie Loncaster

Lorraine Manlove sent in £260 collected at Pam Manlove’s funeral in memory of Pam’s grandson, Peter.

• Nina Weldrick raised £530 from a skydive.

• Kelly Cheesman raised £137 from Year 11 prom funds.

In Memory of

Balinder Mann

Jarinder Mann donated £1,530.

In Memory of

Martyn Luckett

• Team Paddle for CRY paddled Surf Rescue Boards from Hartland Quay to Newquay for a total of 60 miles over three days and raised a total of £4,960.83 in memory of Jason Ayre.

• Alex Downie raised £377.91 from the 60-mile paddle.

In Memory of

Helen Luke

Sally Hughes and Louise Parckar raised a total of £1,582 ahead of their Cycle Vietnam to Cambodia Challenge before the event’s cancellation.

www.c-r-y.org.uk

In Memory of

Dean Mason

Gwenfair Mason forwarded £32,020 of accumulated donations from various friends and organisation contacts.

In Memory of

Claire Mayger

Alan Mayger donated £100 in honour of Claire’s 39th birthday.

27

Our Fundraisers In Memory of

Pete McAvoy

• Perth Road Runners took part in a relay marathon from Dundee to Perth and raised £1,617.20.

In Memory of

Samuel Moodey

Kishan Chotai donated £100.

• The Wood Foundation donated £3,000.

In Memory of In Memory of

Aine McCann

Owen Morris

Darran Evans raised £174.

Aravon McCann sent in £155.48 raised from CRY collection boxes at Frazer One Stop Shop.

In Memory of In Memory of

James McGowan

Emma Ostle completed a running challenge and raised £1,068.25.

In Memory of

Simon McNamara

Katherine McNamara raised £14,567.98.

In Memory of

Joseph Merritt

• Amanda Merritt sent in donations of

£1,250 in memory of Joseph’s Nanny, Carole Tennant.

Paige Moth

Emma Moth dyed her hair red to raise awareness of CRY and raised £220: “So June 2nd was Paige’s 5 year anniversary.

As I was unable to do a fundraiser again I decided to raise awareness for CRY. “After speaking to my manager and hairdresser, I chose to colour my hair red, so there was a talking point.

“I received donations and in total raised £220, some directly to Paige’s Memorial Fund and some given to myself.”

• Amanda Merritt sent in further donations of £750 in memory of Joseph’s Nanny, Carole Tennant.

• The Bear Church Team raised £1,460 from taking

part in the 2016 CRY Heart of London Bridges Walk.

In Memory of

John Millar

Kirsty and Scott MacMillan raised £717 from their Land’s End to John O’Groats virtual race.

28

Issue 85 | May to August 2021

Our Fundraisers In Memory of

Stephen Mountford

Dorothy Mountford donated £360.

In Memory of

Ben O’Connell

• AJG Services donated £1,000.

• Glyn School raised £1,970.58 in memory of their student, Ben.

In Memory of

James Murgatroyd

The John Port Spencer Academy raised £1,330.

In Memory of

• Mrs L Hughes donated £100.

In Memory of

Nathan O’Doherty

Mr and Mrs O’Doherty sent in £200 from donations received in lieu of floral tributes in memory of their son.

Lizzie Nee

Liz Murray donated £208.65.

In Memory of

Margaret Pacini

Gerardo set up a MuchLoved tribute page in memory of his mother. £114.86 of donations were sent in.

In Memory of

Georgie Nelson

Perry Hanafin ran the Lakelands Ultra 55k marathon and sent in £280.

In Memory of

Thomas Padmore

Naeem Afzal donated £200.

In Memory of

Jennifer Newton

Elizabeth Gold donated £150.

In Memory of

Greg Palmer

Janet Palmer donated £200 in honour of Greg’s 40th birthday.

In Memory of

James Norfolk

Lilian Norfolk sent in donations of £100 representing floral tributes in memory of her husband.

In Memory of

Richard Northedge

Derek and Pat Northedge donated £100 in honour of his 46th birthday.

www.c-r-y.org.uk

In Memory of

Paul Parker

Katrina Parker donated £100.

In Memory of

James Patterson

Catherine Patterson raised £236.50 for the Loss Charity Challenge.

29

Our Fundraisers In Memory of

Jake Anthony Pickford

• Sandi Millichip-Massocchi donated £100.

• Gaye Pickford raised £1,215 from online raffles.

In Memory of

James Pilfold

Esther Harris sent in £315 raised from Software of Excellence UK’s wellbeing raffle.

In Memory of

John Pirie

Adam Johnson and Karis Stevenson donated £500 in lieu of wedding favours.

In Memory of

Alessandro Pomfret

• The Wooden Door Company (UK) Ltd

donated £100.

• Stephen and Nadia Pomfret donated £250.

In Memory of

Gary Pope

Jane Clements raised £250 by making and selling masks at the Thatched Inn, Hassocks: “During the pandemic our very good friend Jane Clements has been making and selling individual face masks in aid of CRY at her son and daughter-in-law’s pub/ restaurant, The Thatched Inn, Hassocks, in memory of Gary. Obviously, with

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lockdowns coming and going, the pub has been closed during part of that time, or only open for takeaways, but in those difficult circumstances she has managed to raise a marvellous £250 for CRY.” Roger and Lesley Pope.

In Memory of

Craig Powell

Kim Garrod donated £100.

In Memory of

Craig Rawlinson

Kay Rawlinson sent in £185 raised through collection boxes at Spar shop.

In Memory of

Paul Rees

Michael and Debbie Stacey donated £100.

In Memory of

Alex Reid

• Partners at Kiveton Park Medical Practice donated £1,125 on the occasion of Dr John Reid’s retirement.

• Elaine Ward donated £100 for Heather’s mile in memory of Neil Ward.

Issue 85 | May to August 2021

Our Fundraisers In Memory of

• ANTA home furnishings donated £1,000 in support of

James Adams donated £100, and a further £100 in lieu of wedding favours.

• Jennifer Thain raised £175 from the Walk For Hamish.

Joe Ridgway

the sale of Hamish Hearts.

In Memory of

Robert Rowan

In Memory of

Neil Riley

Duncan McNab donated £100.

Dean Hawkey donated £100.

In Memory of

Steve Robbins

• Andy Robbins donated £100.

In Memory of

Christopher Rushton

Christine Rushton donated £140.

• Dan Crouch donated £100.

• Robin Lambert donated £100.

• Wendy Robbins forwarded £210.87 representing

donations received in memory of her husband.

In Memory of

Benjamin Russell

• Linda Marshall donated £100.

• Susan Morgan donated £100.

In Memory of

Jamie-Leigh Rose

Jade Wooden held an event including a bake sale, raffle, tombola and beverages and raised £1,866.15.

• Jane Pearson and friends donated £130.

• Clare Morgan donated £100.

• Dale Carcione donated £100.

• Stephanie Parkin donated £100.

In Memory of

Hamish Ross

• Iain Simpson donated £200.

• Myra Buchanan donated £100.

• Charlotte Gilfillan donated £100.

• Golf Links House donated £100.

• Michael Grant of Island Leisure Ltd donated £100.

• June Ross sent in £1,231 raised by family and friends

who walked 22 miles from Tain to Rogart.

• Karen Mackay donated £100.

• The Co-op food store in Dornoch donated £200.

www.c-r-y.org.uk

• Jane Parkin donated £100.

• Russ Parkin donated £100.

• Kate Marshall donated £100.

• Avnet donated £735 for their 100 Acts of Giving. CRY

was nominated by Luke Banks.

In Memory of

Luke Rutter

• Mr P Morris forwarded donations of £700 representing floral tributes in memory of his wife, Anne Morris.

• Darran Chippendale donated £150.

• Jane Tyson donated £700.

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Our Fundraisers In Memory of

Neil Schuyleman

Helen Davies donated £100.

In Memory of

Madeline Siddall

Pupils at Eckington School raised £852.78.

In Memory of

In Memory of

Alison Mulcahy took part in the Great Bristol 10k and raised £550.

Suman Sinha donated £1,000.

Bryan Selwood

In Memory of

Tracey Dawn Sendell

Dee Ambler raised £122.

Aashi Sinha

In Memory of

Warren Smith

Dianne Forster organised a pool tournament and raised £100.

In Memory of In Memory of

Dipesh Shah

Nishma Sharma, Pravin Shah and Aruna Shah donated £250.

Sam Standerwick

Team Grasshopper ran 50 miles each and raised £1,191.23.

In Memory of

Ian Strange

In Memory of

Richard Shaw

Penny, Gemma, Katie, Carl, Sarah, Aiden, Dave, Paul, James, and Ed took part in the Great Eastern Half Marathon and raised £300.

Patricia Strange donated £100 for Ian’s brithday.

In Memory of

Ross Taylor

In Memory of

Joshua Shield

Marian Redfearn donated £100.

Ross Kerr donated £1,717.

In Memory of

Evan Shonfield

• Peter Shonfield donated £120.

• Sharon Shonfield donated £100 in

memory of Evan’s godfather, Mark.

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In Memory of

Dale Tennent-Butler

Tony Peacock raised £240 in the Euro 2020 sweepstakes.

Issue 85 | May to August 2021

Our Fundraisers In Memory of

Jack Thomas

• Ladies’ Circle of Tredegar 1 Lodge Moose International donated £500.

• Coralie and Iwan took part in the Caerphilly 10k and raised £196.

In Memory of

Peter James Todd

Mrs G Todd forwarded £196 representing donations in memory of her husband.

In Memory of

Tim Traylor

In Memory of

Nicholas Thomas

Jenny Thomas sent in £1,000 from a legacy donation of her grandmother. Jenny sent in a further £250 through the sales of handmade cards.

In Memory of

Derek Thorp

Catherine Haynes donated £100.

In Memory of

Scott and Mike Thurlow

• Marc Thurlow donated £100.

• Chris Thurlow donated £100.

• Kayleigh and Sian raised £7,088.88 through a fun

run at RAF Digby.

In Memory of

Derek Traylor donated £500.

In Memory of

Isabelle Tudisca

• #ForIssy – Mum’s Club raised a further £1,370.65 from their participation in the 2016 CRY Heart of London Bridges Walk.

• Lindsey, Gemma, Keith, Olivia, Matthew, and Lucy took part in the 2016 CRY Heart of London Bridges Walk and raised £370.

In Memory of

Sian Turnbull

John Turnbull donated £100.

In Memory of

Fraser Vaughan

Hannah Stout donated £100 towards Sophie’s parish walk.

Ryan Tilley

• Suna Tilley sent in £1,770, including:

£340 from fundraising by Lisa and Clann Gifts; and £1,430 from fundraising by Mandy Odonnell and Cherry & Blossom.

• Alex Marson donated £100.

In Memory of

Joe Tiplady

Jane Tiplady donated £500.

www.c-r-y.org.uk

In Memory of

David Wallace

Fiona Wallace sent in £100 donated by family, friends and colleagues at the Leaping Salmon.

In Memory of

Neil Ward

• Elaine Ward forwarded donations of £290 from Wingerworth WI, Breaston WI and Dronfield Gala.

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Our Fundraisers • The Inner Wheel of Heanor sent £700.

• Barbara Sizeland donated £100 from plant sales.

In Memory of

In Memory of

Robert Williams

Simon and Marie Williams (and Williams Design and Print) raised £1,715.04 at the 2016 Cholmondeley Castle Tough Mudder.

Lily Webster

Stowmarket High School raised £800.

In Memory of

Kevin Wilson

Stephen Boult raised £317 through an annual memorial football game:

In Memory of

Aimee Wellock

James Wellock raised £190 from his sponsored head shave.

In Memory of

Michelle Whilde

Emma Pearson raised £325 in a family raffle.

“We got together for our annual memorial football game, as we have done for the past 14 years, to raise money for CRY, as well as remembering our mate Kevin Wilson. Most of us knew Kev as a result of football so we always think this is the perfect way to remember him.”

In Memory of

Lee Wilson

Linda Birr-Pixton donated £500.

In Memory of

David White

Lisa Steel raised £124 through a raffle.

In Memory of

In Memory of

Julian Wort

The Woodlanders Charity donated £200 in memory of Lauren Rose Mead.

Stevie Wiggins

The Heartfelt Group sent in £395 from donations and an Easter raffle: “The Heartfelt Group in Preston had a stall at the Cottam Community Fun Day. We had children’s games, lucky dip, sweets and toys on sale.

Unfortunately, the weather wasn’t too kind and we started in the rain but the sun did appear in the afternoon. We raised £120 and thank everyone who supported us on the day.”

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In Memory of

Sam Wright

• Paul Paling donated £100.

• Elaine Wright sent in £234 representing donations received in lieu of floral tributes to her father, Lewis Record.

In Memory of

Michael Yorston

Eilidh Jack ran 12km every week throughout January and raised £925.65.

Issue 85 | May to August 2021

General Fundraising • Rama Bedor-Bangura raised £1,070 as part of her

NCS Fundraising.

• Sarah Beeston organised a raffle and raised £660.48.

• Lynnette Bell’s daughter raised £101 with her friends

through a bake sale.

• Billericay Striders Beginners and Improvers raised

£150 on their 2,500 mile European Tour.

• Bourne Grammar School raised a further

£3,365 from student collections and their non-uniform day.

• Kirk Braddan PCC sent in £428.53 from

Vicar’s fundraising.

• Victoria Brown donated £220.

• CharityCar donated £414 in in respect of the

CarTakeBack scheme.

• Colchester High School raised £185.37 from a CRY

collection pot.

• Dave Colthup donated £150.

• Day Lewis Pharmacy held a raffle, book and plant

sale. In addition, Tracy Beer completed a sponsored walk, raising a total of £355.

• Marcus Durie donated £300.

• Ecclesiastical Insurance Office plc donated £125.

• Aaron Evans and Richard Smith completed their

• Hartlepool Borough Council donated £1,000.

• Stephen Haynes donated £500 through Dream Car

Giveaways.

• Val Hilditch donated £125.

• Holt JCB Limited of Bristol donated £250.

• Martin Honeysett completed the challenge of running

the length of the UK, raising £520.

• Inner Wheel Club of Ponteland donated £100.

• Inner Wheel of Stone donated £100.

• Annie Jayne

(right) nominated CRY as the charity to benefit from the Miss Inspiration Fundraising Group Beauty Pageant, raising a total of £3,000:

“Since April 2019, I became Miss Charity UK for 2 years running. And later on that year, the next charity I chose

challenge of ‘4 Half Marathons and a Two Week Blondey’ and raised £265.

• Richard Feist completed the challenge of 4 miles

every 4 hours for 48 hours and raised £501.76.

• Mrs J Ferguson donated £200.

• Alex Findlay and Catherine MacFarlane raised £150

through their 20p per mile walk.

• Frank Fox from Fox Sprinklers Ltd donated £100.

• Mr and Mrs M Griffin donated £1,000.

• Griffin Park Grapevine donated £500.

www.c-r-y.org.uk

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General Fundraising to raise money for was CRY, a charity very close to my heart. At the age of 14, I was diagnosed with a rare heart condition long QT syndrome, which changed my life dramatically.

“Still to this day I struggle, however I was able to receive support from an incredible charity – CRY. “This charity is honestly a wonderful, incredible cause and I’m so happy to have fundraised £3,000 from organising many events including my favourite thing to do – live music events.”

• Johnson Matthey PLC sent in £166.66 as matched

funding for one of their employees.

• KCL Tennis took part in a virtual tennis rally for CRY

and raised £331.39.

• Jo Keeble donated £100.

• Charlie Kelly raised £950 from running, donating £1

for every mile he ran.

• The King Edmund School raised

£111 from their non-uniform day.

• Thomas Kingston donated £120.

• A team from Lantai Ltd raised £995 ahead of the

Lisbon to Porto Challenge: Racing for CRY, which was postponed due to COVID-19.

• Sandra Lloyd donated £100.

• Lodge of Hospitality donated £150.

• Chris Markey raised £210 completing the Corsham

10km.

• Pippa Massey donated £150.

• Oliver McCabe donated £200.

• Lynne Mitchell donated £100.

• Madeline Pratley completed the Edinburgh Half

Marathon 2020 and raising £1,148.75.

• Year 6 pupils at Prior’s Mill C.E. Primary

School raised £161.91.

• Sean Quigley donated £100.

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• Reading University Boat Club completed a virtual row

around the UK and raised £1,461.80.

• Jacob Rickett raised £100 through a charity cricket

match.

• Gill Rothwell raised £185.93 by making heart

decorations in return for donations.

• Mr Rudden sent in £200 on behalf of the Sevenoaks

Charity Cup.

• Employees at RWS Foundation raised £500.

• Sale Golf Club raised £4,449 through a golf event.

• Stephen Sewell donated £225.

• A donation of £5,000 was made through ShareGift.

• J Sidlow donated £150 in honour of Chris and Molly’s

wedding day.

• Sourav Sinha ran 100 miles for CRY and raised £255.

• Members of the Southwick Community Centre

donated £100.

• Richard Sykes donated £100.

• Gert Taling donated £200.

• University of Essex Lacrosse Club donated £103.

• Veterinary Surgeons Supply Company donated £500.

• Mr Wade donated £340.50.

• Emma Waterman performed the Kate Bush

‘Wuthering Heights’ routine and raised £120.

• Veronica Watkin donated £100.

• Randal Weeks donated £150.

• Mike Wheeler donated £495 from the proceeds of a

rare, vintage bicycle.

• Yaron Winterstein at Smart Giving donated £1,000.

• Maximilian Wussler donated £100.

• Matthew Yorke donated £550.

Issue 85 | May to August 2021

Fundraising Events 2022 Please contact the fundraising team on 01737 363222 or email events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events visit www.c-r-y.org.uk/category/upcomingcryevents All participants in mass-participation events who contact the CRY fundraising team (whether they have their own place or a CRY charity place) will receive a welcome pack containing sponsor forms, information, helpful tips and either a T-shirt or vest (depending on the type of event).

London Landmarks Half Marathon

CRY Heart of Durham Walk

Celebrate London’s history and cultural heritage while discovering the city’s quirky and hidden secrets! Runners explore the capital through the City of London and City of Westminster.

Join CRY for the 13th annual Walk in Durham. The 5-mile route (suitable for all) starts and ends at Durham Amateur Rowing Club and passes along the River Wear and through the beautiful city of Durham.

ASICS Manchester Marathon

TCS London Marathon

The Manchester Marathon is one of the UK’s premier running events, famous for its fast, flat and friendly route.

Join 38,000 other runners on one of the most iconic courses, with the most amazing atmosphere!

RideLondon-Essex

Cardiff Half Marathon

The mass participation cycling event includes a 100-mile cycle, perfect for a range of cycling abilities.

The Cardiff University/Cardiff Half Marathon has grown into one of the largest and most exciting road races in the United Kingdom.

April 3

April 3

May 29

CRY Heart of London Bridges Walk

September 18 (TBC)

October 2

October 4

June 26

Royal Parks Half Marathon

CRY’s flagship event is a 5.5-mile walk through central London, crossing some of the famous bridges and passing iconic landmarks. Join us afterwards for the CRY Family Picnic to connect and remember.

This stunning, central, London half-marathon, takes in the capital’s world-famous landmarks on closed roads, and four of London’s eight Royal Parks.

AJ Bell London Triathlon August 6-7

The London Triathlon sees thousands of people come to our iconic capital city to join our community of incredible triathletes taking on the challenge of #TheLondonTri.

Great North Run September 11

The Great North Run is the world’s biggest half marathon, with more than 57,000 runners pounding the streets of Newcastle.

www.c-r-y.org.uk

October 9

CRY Raising Awareness Week and 12 A Week Challenge November 19-27

CRY Great Cake Bake November 25

Help raise CRY’s profile by holding your own fundraising or awareness event such as an information stand or gala ball, or take part in the CRY Great Cake Bake. Get your friends, family, colleagues and children involved in the baking, eating and raising money and awareness for CRY! Compete to see who will create this year’s showstopper! This is a fun and simple way to get involved in Raising Awareness Week.

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Raising Awareness in the Media Report Between May and August CRY featured in 96 print articles, including 12 national articles and 4 magazine articles. CRY also featured in 603 online articles.

Headlines from May to August in the press... ‘“How on earth could my healthy son drop dead without warning?”’

The Mail on Sunday This article told the story of Toby Berlevy, who died suddenly when he was just 22 years old, and how his family have been working to raise awareness of young sudden cardiac death.

Published 6 June 2021

‘“I was one of the lucky ones – if I’d played in second half I’d have died”’ The Times CRY Patron and former footballer Andy Scott was diagnosed with hypertrophic cardiomyopathy, and he recalled his own experience and the importance of screening after seeing Christian Eriksen’s collapse.

Published 6 June 2021

‘How Brentford miracle is tinged with pain: “Rob is looking down with pride”’ The Daily Telegraph This article told the story of Robert Rowan, who used to work for Brentford Football Club. Since his sudden death, Robert’s family and friends have done what they can to raise awareness and funds for CRY. Published 12 August 2021

Online...

‘Cyclist with hidden heart defect who died 20 minutes into a ride leaves life-saving legacy’ North Wales Live, 5 June 2021 Alex Jones died suddenly during a bike ride when he was only 30 years old. Since Alex’s death, his parents have been supporting CRY and working to raise funds for screening events.

Read at bit.ly/3n5AaMS

‘Sudden cardiac arrest isn’t as rare for young people as we’d like to think. Can it be prevented?’

Telegraph, 13 June 2021 This article looked at the incidence of young sudden cardiac death and what needs to be done to save more young lives.

Read at bit.ly/3kHMtxh

‘Christian Eriksen: Clive Clarke hopes cardiac arrest can help raise awareness’ The Independent, 15 June 2021 CRY Patron Clive Clarke commented on Christian Eriksen’s collapse and hopes that it can raise awareness, saying that it must never be forgotten if sports want to save lives.

Read at bit.ly/3Hii2HK

For links to online, press, television and radio coverage related to CRY and young sudden cardiac death visit www.c-r-y.org.uk/inthemedia 38

Issue 85 | May to August 2021

CRY Update 85 May to August 2021 Our Fundraisers By fundraising for CRY you will be helping to: • subsidise CRY’s national cardiac screening programme • fund CRY’s bereavement support programme to provide counselling and support to affected families • support research into young sudden cardiac death (YSCD) • develop the myheart Network to support young people living with cardiac conditions • provide all CRY literature and information free of charge • develop the CRY Centre for Cardiac Pathology (CRY CCP), and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology

The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD. Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, sponsor forms and other resources.

If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.

For further information please call the CRY office on 01737 363222 or visit www.c-r-y.org.uk/donate All your help is greatly appreciated.

Visit www.c-r-y.org.uk/charityfundraising-challenge-events for more information or contact the CRY office for a fundraising ideas pack.

Our Patrons

Our Mailings

The urgency of CRY’s mission and the quality of our work has compelled many high-profile personalities to give their time to become CRY Patrons.

For more information visit www.c-r-y.org.uk/about-us/patrons

Sir Ian Botham OBE

Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.”

Current Patrons of CRY: Rob Andrew MBE • John Barrowman MBE • Jeremy Bates • Ben Brown • Clive Clarke • Jack Clifford • James Cracknell OBE • Nick Easter • Jonny Evans • Baroness Ilora Finlay • Simon Halliday • Kathryn Harries • Michael Hoey • John Inverdale • Tom James MBE • Pat Jennings OBE KSG • Rob Key • Gary Longwell • Pixie Lott • Emily Maitlis • Graeme McDowell MBE • Lee Mears • Bill Neely • Lawrence Okoye • Phil Packer MBE • Sir Steve Redgrave CBE • Vincent Regan • Joe Root • Andy Scott • Roger Taylor MBE • Professor Gaetano Thiene • Gregor Townsend MBE • Andrew Triggs-Hodge MBE • Andrew Trimble • David Walliams • Alison Waters • Matt Wells • Sir Clive Woodward OBE

www.c-r-y.org.uk

There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we also accept credit/debit card donations over the phone.

1. CRY Update magazine Postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; supporters’ fundraising; articles about screening, myheart, research, pathology, raising awareness initiatives, massparticipation fundraising events; and much more.

2. CRY enewsletter Monthly email newsletter; 3 emails per year with links to the online version of the Update magazine; plus occasional emails about major CRY events and initiatives.

If you would like to subscribe to – or unsubscribe from – either of these mailing lists, please let us know: • Complete the online form; www.c-r-y.org.uk/subscribe • Call the CRY office; 01737 363222 • Email the CRY office; cry@c-r-y.org.uk

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Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD).

Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions.

These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS).

CRY aims to reduce the frequency of YSCD through raising awareness amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research.

1 in 300 young people CRY tests will have a potentially lifethreatening heart condition.

CRY believes cardiac screening should be available to all young people aged between 14 and 35.

Registered Charity No. 1050845

CRY also works to guide and support families and close friends affected by YSCD. We provide information to explain what the coroner does, bereavement support, help with NHS referrals and advice on the procedures that usually follow a YSCD. In 80% of cases of young sudden cardiac death there are no prior

We are very proud that over 80p in every £1 we spend goes into supporting CRY’s key aims.

Without the fantastic support we receive this wouldn’t be possible.

symptoms of a heart defect.

CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge.

For detailed information about cardiac conditions and CRY’s range of literature visit www.c-r-y.org.uk/ medical-information

Research Awareness 12.5% 16.3% Support 10.4% Governance 2.2% Fundraising 16.1% Screening 42.6%

Due to the anticipated impact of COVID-19 on fundraising in 2020/2021 CRY reduced the number of research fellowship grants awarded.

CRY is grateful for grants or donations from trusts and foundations.

We would like to thank the following for the generous support they have given us:

n io rs ve it: e vis lin e, / on at k e d .u th Up .org e ive RY r-y rib ce C c- c re the w. bs To of ww su

A & R Woolf Charitable Trust • Aubrey Orchard-Lisle Charitable Trust • The Bartle Family Charitable Trust • The Brian Shaw Memorial Trust • Borrows Charitable Trust • The Cantiacorum Foundation • Carval Foundation • The Cecil Rosen Foundation • Charles Littlewood Hill Trust • The Charles Wolfson Charitable Trust • Childwick Trust • CMS Cameron McKenna Foundation • Cosaraf Foundation • Doris Field Charitable Trust • The Edith Murphy Foundation • G C Gibson Charitable Trust • G M Morrison Charitable Trust • Gawthorn Cardiac Trust • Hasluck Charitable Trust • James Tudor Foundation • Kent Family Charitable Trust • The Lady Forester Trust (supporting the work of CRY in Shropshire) • Leathersellers’ Company Charitable Fund • The Mabel Harper Charitable Trust • The May Gibson Charitable Trust • The Rachel & David Barnett Charitable Trust • The Samuel Storey Family Charitable Trust • The Schroder Charity Trust • Sir John Sumner’s Trust • Sir Robert Gooch Charitable Trust • St Christopher Health Fund • The Stanley Grundy Foundation • Tudor Foundation Inc • Vernon N Ely Charitable Trust

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK