CRY Update Magazine Issue 77

News and Events | Raising Awareness | Our Fundraisers

Update 77 | September to December 2018

In this CRY Conference

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Simplyhealth Great North Run

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CRY Heart of Durham Walk

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CRY Great Cake Bake

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CRY Parliamentary Reception

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Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK

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Newsletter

CRY Update 77 September to December 2018

Inside Update 77

Editor Dr Steven Cox

Chief Executive

Deputy Editor Newsletter Editor

Tom West

As Deputy Editor of the CRY Update it is my responsibility to put together this newsletter, and ambition that you find all the CRY news, events and fundraising in these pages to be of interest.

I always endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to get in touch with me if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section.

I would appreciate hearing from you at tom@c-r-y.org.uk or on 01737 363222 if you have any feedback or comments regarding previous issues. Thank you for your help.

Contributors Alison Cox MBE

Founder

Professor Mary Sheppard Consultant Cardiac Pathologist Rebecca Zouvani

Fundraising Manager

Head Office:

Unit 1140B The Axis Centre Cleeve Road Leatherhead KT22 7RD No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor.

The Editor welcomes letters but reserves the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of Cardiac Risk in the Young (CRY). Articles pertaining to health-related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

Meet Our Representative News from the Chief Executive CRY Online CRY Screening Report Alison’s Column CRY Centre for Cardiac Pathology (CRY CCP) Report Research News CRY Conference 2018 Simplyhealth Great North Run 2018 CRY Heart of Durham Walk 2018 CRY Great Cake Bake 2018 CRY Parliamentary Reception 2018 Our Fundraisers Raising Awareness in the Media Report Fundraising Events 2019

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For more details regarding the events shown on the cover, please turn to the corresponding page references below. Images are listed clockwise from top left: 1. CRY Ambassadors and Patrons at the CRY Parliamentary Reception 2018. Page 32.

2. CRY supporters taking part in the Simplyhealth Great Bristol 10k in memory of Freya Cox. Page 45.

3. Mims Davies MP speaking at the CRY Parliamentary Reception 2018. Page 32.

Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more.

Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised.

If you can supply a writeup or photos for any fundraising activities you have taken part in, please email tom@c-r-y.org.uk.

Images of CRY Patrons and Members of Parliament throughout have been highlighted in red.

4. CRY supporters taking part in the Land’s End to Bignall End cycle in memory of Daniel Hughes.

Page 62.

5. CRY Chief Executive Dr Steven Cox, Professor Sanjay Sharma, CRY doctors and guest speakers at the 2018 CRY Conference. Page 18.

6. CRY supporters taking part in a cricket memorial day in memory of Ryan Tilley. Page 84.

7. CRY supporters taking part in the CRY Heart of Durham Walk 2018. Page 22.

8. CRY supporters taking part in the CRY Heart of Durham Walk 2018. Page 22.

9. CRY Representative Paul Daniels receiving a cheque from fundraising at Arthur J. Gallagher, organised in memory of Emily Windus, Harry Richards and Robert Allan. Page 89.

10. CRY supporters after the Simplyhealth Great North Run 2018. Page 20.

11. Winner of Best Cake Design in the CRY Great Cake Bake 2018. Page 25.

12. A gala ball held in memory of Matthew Dewhirst and Aaron Dixon. Page 50.

13. Marcus Bushe taking part in the Southampton Marathon in memory of Liam Wood. Page 89.

Copyright © 2019 Cardiac Risk in the Young. Registered Charity No. 1050845 A Company Limited by Guarantee. Registered in England No. 3052985 Registered Office: Unit 1140B The Axis Centre, Cleeve Road, Leatherhead, KT22 7RD

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Issue 77 | September to December 2018

Meet Our Representative Sue Fisher Representative in Hampshire I still find it hard to believe that June 28th 2012 was the last day of my then 30-year-old son Phil Standing’s life. Phil – always the strong one, the hard worker, the sportsman, the handsome one, the amusing one, the good friend, the man with the twinkling eyes, husband to Kate, father to twin boys Oliver and Ben (just 20 months), brother to Ruth – just gone.

Keith, my husband of eight weeks but friend and partner for 19 years, had been at Mottisfont working in the orchard. I had been on a course, and picked up a dress for a friend’s wedding.

There was an email from Phil, “looking forward to seeing you on Saturday”.

Sue at a CRY screening event held at Phil’s secondary school, The Mountbatten School in Romsey.

Photo credit: The Romsey Advertiser.

It had been just a normal day. The 10:00pm news had just started and then the ring of the phone. It was a police lady who said Kate Standing wanted to talk to me. How can so many scenarios run through your mind in an instant, all in the process of problem solving and yet never hinting at the tragedy about to unfold?

Apparently Phil had died whilst playing cricket at Lord’s. He had been attending a corporate event after work. All had been well, Phil laughing and joking with friends, bowling a few overs, and then no more.

Kate and I arrived at Paddington hospital and were greeted so respectfully, and then there was Phil, peaceful, beautiful, still with a slight smile, eyes closed contentedly and yet no life. No amount of tears, hugs or love could arouse him.

with his sons, but it is Phil’s lost future, his lost fatherhood, that is devastating and cuts to the core.

Keith and I have appreciated the information, guidance and care from CRY. Without this the pathology reports, the inquest and the awareness of undetected heart disease in the young would have been totally incomprehensible.

I have been overwhelmed by the determination of Phil’s friends to keep his memory alive and to support CRY. Together we have run miles, baked cakes and walked the streets of London. We have also held three screening events in Phil’s memory.

The pain of contacting Ruth – Phil’s big sister who lived in Brisbane with her husband, Mark, and her son, Leo – was agonising. Her scream, her heartache, her hurt was so raw; her life shattered again. (Ruth and Phil’s dad had died of cancer when they were young, taken so devastatingly by such a cruel disease).

Family, friends, and staff from CRY have carried us through those dark and desperate days and still do. The funeral became a tribute to a fine young man and enabled me a glimpse of a smile as my memory reawakened old joys which are held firmly in my heart.

I am fortunate to have such an amazing daughter-in-law who, although she has lost so much, has allowed us to share her journey. The boys have given us laughter, joy and love. I relish my memories of Phil and enjoy sharing them

www.c-r-y.org.uk

CRY Driver Jason Baker at The Mountbatten School screening.

Photo credit: The Romsey Advertiser.

I have enjoyed meeting likeminded people whilst supporting CRY and am honoured to act as a Representative, and hope to continue supporting their work in raising awareness, funding research, and most importantly being there for the bereaved.

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News from the Chief Executive Dr Steven Cox

CRY Chief Executive

@Drstevenjcox drstevenjcox Thank you for everything that you continue to do to support CRY and raise awareness within your local communities. Included in this section are a number of media stories from September to December, as well as information about some of CRY’s events in this period.

September Dave Hughes interview on BBC Radio Stoke September 2 Dave Hughes has been a supporter of CRY since the sudden death of his 28-year-old son, Daniel. Dave has been working hard to fundraise and host screening events, doing whatever he can to prevent other families suffering the same kind of loss.

50 runners represent CRY in Great North Run September 9 Thank you to the 50 runners who completed the 2018 Simplyhealth Great North Run for CRY. As the world’s biggest half marathon, it’s always brilliant to see so many supporters running the course with their CRY t-shirts.

For the write-up and photos from the day, go to page 20.

October

After screening the 1,000th young person in memory of Daniel, Dave spoke to BBC Radio Stoke about his son, how he was initially introduced to CRY and why all young people should have the opportunity to be screened.

“He was perfectly normal,” Dave said of Daniel. “He was an absolutely normal, fit and healthy young lad.

He played football at weekends, captained his football team. He was a post man as well, so he was naturally fit, he kept himself in shape. We just didn’t see anything coming whatsoever… But the thing to remember, the message to remember we can’t get across enough, is this happens 12 times a week – somewhere in the UK this happens. And it’s to people you would least expect it to. It’s the fit and healthy young ones. If you’re sitting at home now or you’ve got children and you think, ‘that can’t possibly happen to my child because they’re so fit,’ you need to get that out of your head, because that’s exactly what can happen.”

This is such an important message, which stresses why screening is so important. Thank you to all our supporters who continue to share this message as they raise awareness and funds for screening.

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243 walkers take part in the CRY Heart of Durham Walk October 6 243 CRY supporters gathered for our 9th annual Durham Walk, surpassing the total number of walkers from a year ago. I would like to thank everyone who came to take

Issue 77 | September to December 2018

News from the Chief Executive part, including all of our fantastic volunteers for helping the day go so well.

This event is always a valuable opportunity for CRY supporters to meet with other bereaved families and friends, or to walk in support of a young person diagnosed with a cardiac condition. To read a full writeup of the day, turn to page 22.

30 World Class Performance and Pathway athletes in Lee Valley in October. European and World Para Athletics medallists Adam Gemili (above), Matt Hudson-Smith and Vanessa Wallace were among the athletes screened.

The 2018 CRY Conference October 12 Every year, the CRY Conference is a brilliant chance for experts to connect, share some of their knowledge, and discuss new research. This includes what our own Research Fellows have to present, showcasing our developments into further understanding young sudden cardiac death.

We had several leading international cardiologists make the trip to join Professor Sanjay Sharma, Dr Michael Papadakis and our team. Professor Antonio Pelliccia and Professor Domenico Corrado, two of the most influential figures in the world of cardiac screening and sports cardiology, attended from Italy. Professor Mats Börjesson joined us from Gothenburg, Sweden, and Professor Jonathon Drezner from Seattle, USA, joined us for the first time in nearly a decade to discuss various research and progress that’s been made in America with the use of cardiac screening.

To read about the research discussed on the day in more detail, you can read the full write-up on page 18.

CRY screens top British athletes in Lee Valley October 18 2018 was the best year yet for CRY’s screening programme, which included a screening event for nearly

www.c-r-y.org.uk

UK Athletics posted an article about the event on their website, and shared what British Athletics Chief Medical Officer Noel Pollock had to say about CRY on the day: “We’d like to extend our thanks to the tremendous professionals from CRY UK for their support in cardiac screening our elite track and field athletes in Lee Valley today. I’d encourage all athletes to get in touch with CRY to arrange this simple heart screening test at one of their open sessions. We look forward to welcoming CRY back to our National Performance Institute in Loughborough in December for further testing in this important area to support athlete health.”

Adam Gemili, who was part of the 4x100 metre relay team that won the gold medal at the 2017 World Championships, added: “It was massively important to come here and get it done. I think too many young people are having problems with their heart and finding out too late, so it was really important to me to get it done... There’s no reason why any athlete shouldn’t be considering doing this. Definitely get it done because your health is the most important thing in any athlete’s career. Events like this show that British Athletics are working hard to make sure all of their athletes are healthy and that if there are any problems, they’ll get them sorted.”

It’s fantastic for CRY to have this kind of support from British Athletics and world-class athletes, ensuring that more young people are screened while raising more awareness around the UK. This is essential in encouraging screening for all young people and athletes at lower levels, who don’t always have the same access to routine checks as professionals.

The screenings of the elite athletes at the EIS Centre are funded in memory of Aaron Dixon with support from the JD Foundation.

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News from the Chief Executive

CRY’s screening event at Cardiff Metropolitan University October 27-28 This weekend marked a memorable moment for CRY, as our event at Cardiff Metropolitan University took our screening total in Wales past 4,500. Thanks to the support of Councillor Doug Williams and the donation of £14,000 for screening in Wales, we were able to make this event possible.

Our latest visit to South Wales not only marks an exciting milestone in terms of the numbers of young people we have screened to date, but it also highlights an important opportunity to establish a more permanent presence in Wales and offer regular screenings for students, young athletes and the wider community. Establishing a national centre for screening in Wales is one of the primary aims for our screening programme.

To read more about the weekend, a full write-up of this event can be found in the CRY Screening Report on page 13.

November CRY featured on BBC News segment November 18 Actress Rebecca Shorrocks was diagnosed with cardiomyopathy. Having no idea of the potential risk

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of undiagnosed heart conditions, Rebecca suddenly realised through her own experience that these conditions can affect anyone, regardless of their lifestyle or how healthy they may be.

Rebecca spoke to the BBC about her story, and Professor Sanjay Sharma and I were interviewed on behalf of CRY to share what we’re trying to accomplish through screening and how heart conditions in young people aren’t as rare as many would expect.

“One in 300 young people in the United Kingdom have a cardiac condition that could potentially kill them,” Professor Sharma said. “There are lots of treatments that are available to us. These range from pills called beta blockers, lifestyle advice, some people are asked to avoid certain medications, they may be advised not to engage in competitive sport.”

We now have more than 25,000 people who have registered interest in attending one of our screenings. In 2018 alone, we set a new yearly record for our screening programme, testing 29,045 young people. Our continued growth year by year is astounding, but there’s still much more that needs to be done.

As we work to screen more young people, raising awareness through the media like this is key.

You can watch the full video segment here https://bbc.in/2QQDckS

CRY’s 2018 Raising Awareness Week November 19-23 CRY’s Raising Awareness Week is always an important time of the year for us.

It’s not only a chance for us to make a mark in parliament at our annual reception, but an opportunity for supporters to get involved with our efforts to raise as

Issue 77 | September to December 2018

News from the Chief Executive Hugh Mulcahey talked about our recent success, Professor Sanjay Sharma discussed some recent highlights for CRY’s research, and I closed the evening’s speeches. The event was a fantastic success, reflecting on what CRY has already achieved and what needs to come next to ensure our progress continues.

To read more about the event, turn to page 26.

December much awareness as possible and engage with one of our major fundraising events: the CRY Great Cake Bake.

We had over 100 supporters register for packs and take part, and we are so grateful to everyone for their amazing efforts.

You can read a full write-up of the event and see photos on page 25.

CRY’s annual Parliamentary Reception November 21 CRY experienced fantastic support in parliament throughout 2018. Thanks to increased awareness and the efforts of Abby Lang to land a surge of new support in Scotland, a host of new MPs signed the pledge to support a national strategy to prevent young sudden cardiac death.

Our 17th annual Parliamentary Reception focused on developments we made in 2018, and the importance of pushing for support from parliament. We had a range of speakers, including Abby and newly appointed Sports Minister Mims Davies MP, who spoke about how she aims to further her support for CRY through her new role.

Our host Kevan Jones MP spoke first, CRY Chairman

CRY end of year message December 18 It’s incredible to look back and see everything that’s been done by CRY families, friends and local communities to help save lives. More has been raised this year than ever before. Almost £3.8 million has been donated towards awareness, support, screening and research.

We have made fantastic progress with our campaign in the UK to establish a national strategy for the prevention of young sudden cardiac deaths. Internationally, there’s been a major breakthrough as the World Health Organization finally acknowledged SADS as an important cause of death, paving the way for policy to finally accept more needs to be done to prevent these tragedies.

We’ve now screened more than 180,000 people since Alison held the first screening in 1993. 100,000 of these were in the last four years alone, and we will continue to offer all young people aged 14-35 the opportunity to have their heart screened. This is only possible because of all your support. Thank you to all of you for everything you are doing to support CRY and for helping to save lives.

Kevan Jones MP, Abby Lang, Mims Davies MP, Dr Steve Cox, Hugh Mulcahey and Professor Sharma

www.c-r-y.org.uk

You can watch my full message for 2018 on CRY’s YouTube channel here https://bit.ly/2CyazUi

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CRY Online As part of the CRY Online segment we will include Facebook posts from Chief Executive Dr Steven Cox (found at drstevenjcox), providing thoughtful responses to news and events from the last few months.

were uncertainties about the overall benefit of identifying people at risk, as currently the harms seem to outweigh the benefits. There is no agreed treatment for someone who has been identified as being at risk and an individual may become anxious about their physical activity and stop exercising regularly, which could have a negative effect on their overall health.”

The statement by the NSC is inconsistent with the information on NHS choices where it stresses the importance of the ECG in routine medical practice to identify the most common conditions that can cause YSCD. Below is a list of the most common conditions we routinely identify in the screening programme, with comments from the NHS website: Wolff-Parkinson White (WPW). WPW is one of the most common potentially life-threatening conditions identified through cardiac screening and affects at least 1 in 700 young people.

Meeting with Secretary of State for Health

On the NHS website it says: “Sometimes the extra electrical connection won’t cause any symptoms and may only be picked up when an electrocardiogram (ECG) test is carried out for another reason. In these cases, further tests will be done to determine if treatment is required.”

On November 6 2018, Professor Sanjay Sharma, Graham, Anne and Pete Hunter (the family of Claire Reed) and myself met with the Secretary of State for Health Matt Hancock to discuss what CRY is trying to achieve. At the meeting the Secretary of State stressed that the government policy for screening would be informed by the National Screening Committee (NSC).

We highlighted some of the shortcomings of the current NSC policy, in particular the inconsistencies of this policy with other policies informing NHS practice. This mainly relates to the role of the ECG as a powerful tool for identifying conditions which can cause YSCD, as well as how the conditions can be managed to reduce the risks associated with the conditions.

It was important to have the Secretary of State for Health put on the record that there should be policy consistency across the NHS. This is a major step forward as CRY has been urging the government to establish a National Strategy for the Prevention of young sudden cardiac death to address this issue.

As it currently stands the NSC have raised major concerns about the ECG test and how these conditions can be managed. Dr Anne Mackie, Director of Programmes for the UK NSC, said: “In addition to concerns about the test, there

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Long QT: “Some people with long QT syndrome don’t have any symptoms. They may only become aware of their condition after having an electrocardiogram (ECG) for another reason.”

Brugada syndrome: “The main test for Brugada syndrome

Issue 77 | September to December 2018

CRY Online assessment of symptoms at the same time as an ECG. Notwithstanding that 80% of YSCD cases occur with no symptoms.

The next NSC report needs to take into consideration that there are a number of reasons why young people will have an ECG and may enter into diagnostic and treatment pathways within the NHS. These will include family history, serious symptoms, routine health checks, following the advice of the NSC to visit the GP after experiencing breathlessness, etc.

It is simply incongruent for an ECG which is conducted for “another reason” to be valid and an ECG conducted by a trained cardiology specialist as part of routine screening to not be valid.

Under the direction of Professor Sharma CRY has developed a highly efficient way of offering ECGs to large numbers of young people where a trained specialist is on the front line of the diagnostic pathway. This model of screening has a significant impact on reducing the number of false positives and false negatives, numbers which are considerably higher when non specialists are viewing the ECGs. is a test of the heart’s electrical activity, known as an electrocardiogram (ECG). This is usually done in hospital.”

Cardiomyopathy: “Some cases of cardiomyopathy can be diagnosed after various heart scans and tests, such as an electrocardiogram (ECG) and an echocardiogram.”

Each of these web pages on NHS choices list how these conditions can be managed with lifestyle changes, treatments plans and sometimes surgery once the condition has been identified and the level of risk has been assessed. The statement by the NSC regarding the ECG is also inconsistent with the current NICE Transient Loss of Consciousness (TLoC) guideline, which says the ECG is recommended when evaluating TLoC/passing out, a symptom experienced by a significant proportion of young people for a variety of reasons.

Dr Mackie also states: “Anyone who has had palpitations, breathlessness or is related to someone who has died before 50 of unknown causes should see their GP for a personal check.”

Whilst this statement fails to also include the red flag symptoms of passing out/syncope or exercise related chest pain as important, it is reasonable to think many people have experienced palpitations and/or breathlessness and may take the advice and go to their GP for a check.

A reliance on symptoms as a screening model (as in the Pre Participatory Questionnaire (PPQ)) has consistently been shown in the published research to be inferior to an

www.c-r-y.org.uk

Not only does the ECG become a more powerful screening tool when there is a specialist viewing the ECG, CRY also does the follow-up ultrasound test on the same day as the initial screening, ensuring only a small proportion of people are referred for further tests.

It is important that the government starts to acknowledge the incredible commitment of the CRY families who are raising the funds to provide this free, open access service to tens of thousands of young people every year. A service which is overseen by a world expert.

Thank you to Mims Davies MP for bringing this meeting together to help address the prevention of young deaths from undiagnosed heart conditions.

To follow Dr Steven Cox on social media and to see more posts like this, go to:

@Drstevenjcox

drstevenjcox

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CRY Online Social media Social media is a vital part of how CRY interacts with supporters and, first and foremost, raises awareness of young sudden cardiac death and what can be done to tackle it – from preventative measures (screening) to bereavement support for those affected by a tragedy.

In the CRY Online segment, we look back at the fourmonth period the Update covers and include a small selection of social media highlights, such as Facebook posts that reached an amazing amount of people, or supporters who tweeted memorable photos at us.

CRY Consultant Cardiologist Professor Sanjay Sharma and CRY Chief Executive Dr Steven Cox both spoke to the BBC to explain the potential risk for young people and the importance of screening.

On Instagram, one of our most engaged-with posts was to build awareness ahead of the 2018 CRY Great Cake Bake.

Social media is an ideal way for us to let people know how they can get more information and get involved, especially with one of our best events of the year!

One of our top Facebook posts from this period shared a link to a Metro article on the story of Charlotte Carney.

Charlotte attended a CRY screening, which diagnosed her with restrictive cardiomyopathy, meaning her heart could not fill with blood properly. Thankfully, Charlotte has now undergone a successful heart transplant.

Our top Facebook post from November shared a link to a BBC News segment featuring CRY, covering the story of Rebecca Shorrocks who has been diagnosed with cardiomyopathy.

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Overall through September to December, CRY gained 1,926 new followers across Facebook, Twitter and Instagram, which included us passing the 29,000 mark on Facebook. Furthermore, we recorded a phenomenal 2.63 million impressions (the number of times a tweet is displayed on someone’s personal feed) on Facebook and Twitter.

Interacting with us on social media is an easy way to keep up to date with any CRY information you might need. You will receive updates on upcoming events and screenings; and photos from fellow supporters. Every share of a post helps spread awareness about CRY a little further. So, if you’d like to follow along, here’s where you can find us:

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK

Issue 77 | September to December 2018

CRY Online

CRY’s following on Twitter keeps growing at a fantastic rate, furthering our reach as we share everything from updates on research to news about fundraising events and screenings. 313 new followers from this period took CRY’s main Twitter account to 16,438.

Looking at the value of social media is particularly prevalent for CRY during this four-month period, as, starting on 19 November, we held our annual Raising Awareness Week. Our most popular tweet from this period was to announce the start of this special week, reaching a potential total of 95,000 people.

Of course, to go alongside our supporters’ stellar fundraising efforts and participation in the CRY Great Cake Bake, we were able to spread awareness even further through social media. One highlight was a video announcing our screening total since our very first screening in 1993: a staggering total of 180,518 people.

Our supporters shared their news from Raising Awareness Week as well, which included a tweet from Marie Rimmer CBE, Labour MP for St Helens South and Whiston, who attended one of our screening events held in memory of James Nicholas. We appreciate the support of MPs like Marie, who bring further attention to CRY and the importance of screening in their local communities.

www.c-r-y.org.uk

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CRY Screening Report Between September and December 2018 CRY screened over 8,700 people and reached a new yearly record of over 29,000 in 2018 645 people were screened at our National Screening Centre at St George’s Hospital, London, funded by donations from the Carval Foundation, Leathersellers’ Company Charitable Fund, the Aubrey Orchard-Lisle Charitable Trust, The Childwick Trust, and the Linrod Foundation.

A total of 604 athletes were screened.

Sports screenings included: Nottinghamshire County Cricket Club, Wasps Premiership Rugby U18s, Ipswich Town FC, Lawn Tennis Association, RFU Womens, Premiership Rugby SW, Royal Ballet School, Lee Valley Athletics Centre, Arsenal FC Youth Academy, Team SKY Pro Cycling, English Institute of Sport Sheffield, GB Sailing, Yorkshire Carnegie Rugby U18s and Leeds Rhinos RFL, British Athletics, London Broncos RFL and London Skolars RFL. At 43 family screenings 6,185 people were screened. These were held in memory of: David Brown (Hampshire), Jenny Bucknell (Staines), Yasmin Caldera (Portsmouth), Tom Clabburn and

Claire Prosser (London), Mike Clarke (Cheshire), Ben Daniels (Kent), Matthew Dewhirst (Cheshire and Shropshire), Aaron Dixon (Cheshire and Didsbury), Adam Donnelly (London), Harry Dubois (Stockport), Guy Evans (Oxfordshire), Harry Faulkner (Hertfordshire), Anthony Fitzgerald (London), Joanne Fotheringham (Highland), David Green (Westgate, Chichester), Mark Hancock (Stoke On Trent), Daniel Hughes (Stoke On Trent), Jamie Loncaster (Yorkshire), Andrew Macleod (Isle of Lewis, Scotland), Lewis Marsh (Berkshire), Steven McKay (Wakefield), Owen Morris (Cardiff), David Moss (Stoke On Trent), Bethany Mycroft (Derbyshire), James Nicholas (St Helens), Andrew Parr (Preston), Christopher and Steve Philips (Stafford), Duncan Phillips (Warwickshire), Sara Pilkington (Durham), Alden Price (Buckinghamshire), Alex Reid (Sheffield), Debbie Rendle and Thomas Demaine (Cornwall), Paul Sheridan (Derbyshire), Gregg Shoults (Kent), Isabelle Tudisca (Essex), Neil Wickers (Lancashire), Robert Worboys (Bedford) and Sam Wright (Derby).

89 young people were screened at one school screening held at St Olave’s Grammar School, Kent.

1,178 people were screened at seven further screenings held at: Nobles Hospital, Strang, Isle of Man; Coleraine Rugby & Cricket Club, County Londonderry; Hope Valley College, Hope Valley; Durham Amateur Rowing Club, Durham; Bridlington CYP, Bridlington, East Yorkshire; Whittlesey Masonic Centre, Whittlesey; Cardiff Metropolitan University, Cardiff.

Screening in memory of Tom Clabburn and Claire Prosser

What happens at a screening?

The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart.

Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire.

If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby.

Soundwaves echo against various parts of the heart and they are recorded on a screen.

This provides a detailed picture of the heart’s structure and how well it is functioning.

This takes about 30 minutes to perform.

The screening programme is under the aegis of Professor Sanjay Sharma.

90 young people were tested at this year’s Cardiac Risk in the Young heart screenings in Ealing. The free event for 14-to 35-year-olds, sponsored by Tom and Claire’s Fund, took place at the Florence Road surgery, Florence Road, on Sunday November 4.

Paul Clabburn said: “As ever, we’re very grateful to the CRY team for the friendly and professional way they go about their work. We also appreciate the efforts of Dr Evans and all at Florence Road for providing us with a venue for the screenings. They’ve hosted CRY every year since 2011, which is a tremendous show of support. A lot of people have raised money for Tom and Claire’s Fund so that the screenings can take place. We couldn’t do it without them and we cannot thank them enough.”

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Issue 77 | September to December 2018

CRY Screening Report the numbers of young people we have screened to date, but it also highlights an important opportunity to establish a more permanent presence in Wales and offering regular screenings for students, young athletes and the wider community.”

Daniel Mason has been a long-time supporter of CRY after tragically losing his brother, Dean, due to an undiagnosed heart condition.

Now, as a CRY Representative in Wales, Daniel has seen encouraging developments in the area.

CRY continues to strengthen its presence in Wales with Cardiff Met screening event CRY has always received incredible support in Wales.

Local families, media and politicians have helped us spread awareness and complete vital screenings for young people all around the country. October 27th and 28th was a milestone weekend for CRY in Wales, with 200 young people being screened at Cardiff Metropolitan University.

The event marked the 49th and 50th screening sessions held in Wales, and took the total for young people screened there to 4,500. It was made possible thanks to a generous donation of £14,000 from Councillor Doug Williams, who raised funds during his year spent as Mayor of Rhondda Cynon Taf. “I had an amazing year as first citizen of our County Borough,” Cllr Williams said before the event, “and was overwhelmed by the generosity of so many people, who helped make our Mayor’s Charity Appeal such a resounding success. The Cardiac Risk in the Young charity is a subject close to my heart and I am delighted to see that our donation is being put to such good use.”

Beyond the importance of holding these screenings to test hundreds of young people, a high-profile event like this is also valuable from an awareness standpoint. We can continue to bring attention to the issue of young sudden cardiac death in the area, while the attendance of athletes, including players from the Welsh Women’s rugby team over the weekend, helps even more.

CRY Chief Executive Dr Steven Cox spoke about CRY’s ambition for the near future: “CRY’s latest visit to South Wales not only marks an exciting milestone in terms of

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“Having been involved with CRY for a number of years it has been great to witness the growing involvement they are having within Wales,” Daniel said. “Being able to utilise the facilities in an institute such as Cardiff Met, and given its location, it is a great advantage to the charity. Hopefully this can be a long running relationship and I’m sure given the support and input Cardiff Met and their staff have given so far it will go from strength to strength. The numbers are testament to CRY’s commitment to screen as many people as possible, and I am sure there will be many more major landmarks achieved in the future.”

To ensure that CRY’s screening programme continues to grow, establishing a national centre in Wales at Cardiff Met is one of our key aims moving forward.

CRY has the support of Dr Mike Stembridge, a Lecturer in Sport and Exercise Physiology, to help make this happen.

“At Cardiff Met, we’re committed to encouraging the safe participation in sport and physical activity for everyone,” Dr Stembridge said, “ranging from our elite athletes to the local community clubs... We’re excited to be working with CRY to establish a Centre for Cardiac Screening in Wales, with the aim of reducing the frequency of sudden cardiac death in young people.”

Daniel Mason (middle) with CRY’s screening team

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Alison’s Column Grandparents – A double whammy

Alison Cox MBE CRY Founder

It has troubled me for some time that grandparents so seldom contact us to seek personal bereavement support. The introduction of our Aspect of Grief booklets highlighted the fact that we had no facility for helping grandparents with their suffering after the loss of a treasured grandchild.

The training of CRY’s Bereavement Supporters relies on volunteers being prepared to commit to two years of counselling training and the travelling that the training incurs. There are also followup events with two supervisions annually, not forgetting the commitment of the weekly one-hour call to the person that is being helped. Taking on the rigour of the course requires each applicant to write a personal journal that confronts deep feelings. Coming to terms with what is exposed can be very challenging and exhausting. It is unsurprising that grandparents do not want to spend precious time on doing this course. We have been delighted with the response from our Bereavement Supporters to our grandparents initiative, eight of whom have welcomed the opportunity to include supporting grandparents as well as managing their own aspect of grief.

Angela Butler Angela has been with CRY since she found her 16-year-old son, Nathan, dead when she returned home from work one day. The shock and desolation for her and her husband was inexpressible.

She was inconsolable for some considerable time, whilst also Angela Butler being aware of the suffering of her own parents who she was very close to. Angela and her mother talked about Nathan all day, every day, through their tears, and Angela was aware that her mother had to cope not only with her own grief, but her child’s as well.

Angela’s father was over 80 when Nathan died. He found that he was unable to talk about Nathan’s death at all but cried, and being unable to talk he just kept on crying to the day that he died at 88. He couldn’t understand how he was so old, with all his aches and pains and physical problems, yet Nathan was so young and seemingly fit with no sign of anything wrong with him.

Diane Tolley Diane’s 15-year-old son, Robert, died from young sudden cardiac death in 1996 when he had gone out for a bike 14

ride. He had not experienced any symptoms and the effect on Diane was catastrophic. The lack of information available in those days contributed to her terror and she lived in dread of the condition having been inherited and affecting her daughter and ultimately grandchildren. When her daughter called from the hospital Diane Tolley in the U.S. where they live to say that her child, Louis, who was 14, had been airlifted from a soccer pitch and was having emergency heart surgery, Diane found that she was unable to talk. She started reliving the same tortuous experience as when Robert died.

After putting the phone down she screamed and screamed.

She thought she was going mad. Happily, Louis’s ablation surgery proved successful and the condition he was found to have, although life threatening, was different to the one that had killed Robert.

Jane Lambert Jane’s daughter, Jennifer, died suddenly at 17, four years before her grandmother. Jane was utterly disbelieving that it was possible such a fit, young girl and outstanding ballerina with an exciting future ahead of her could suddenly and Jane Lambert unaccountably be dead. Her mother had come from a generation that had been disciplined to stifle all emotion and was consequently unable to express her feelings. All she could do was endlessly reiterate her mantra that such a thing was impossible.

Joan Hillier Joan’s daughter, Laura, was enjoying her work experience helping her GP father in his surgery when, aged 21, she collapsed and died whilst sorting some filing. Both grandfathers had died some time ago, but the two grandmothers were Joan Hillier very close to Laura, who was the first and only grandchild for some years. The grandmothers were good friends but very different characters. Joan’s mother was sociable and lively, whilst her husband Tony’s mother was quieter, more introverted – a rather private person. After Laura’s tragic death both aged overnight and shrunk emotionally and physically. They were weary with grief, fell into ill health and died not long after.

Sue Ainsworth Sue was utterly devastated when her son, Jonathan, died age 21. Her parents, who had also been deeply affected and to whom she was very close, were extremely worried about the impact of the tragedy on their daughter. They Issue 77 | September to December 2018

Alison’s Column were relieved when she decided to move in with them. Sue and her mother used to cry together but her father was a quiet, composed man who never let anyone know his feelings – something that used to really frustrate Sue. He refused to talk about it, worrying Sue Ainsworth perhaps that he might upset Sue further. He said that it should have been him that died on the day of Jonathan’s death. Sue was able to share her feelings with her mother who was fearful that the loss of Jonathan would overwhelm Sue, and was very guarded in what she said. The stress she put herself under caused such deep depression that she was eventually persuaded to have a counselling session. She found the relief of having someone neutral to talk to greatly helped address her anxiety. Sue’s anguished crying badly affected her parents, who were desperate to alleviate her pain but felt helpless.

Gabby Broadhurst Gabby became very close to her father-in-law after the death of his 19-year-old grandson, David, to whom he was devoted. He was of a generation that had lost relatives in the war and initially found it difficult to confront and express his feelings as he was made so distraught Gabby Broadhurst

by David’s death. Gabby was delighted with the great interest he took in CRY’s Aspects of Grief booklets and the bereavement support training she was undertaking as it gave them so much to discuss.

It surprised him when he discovered that the more he and Gabby were able to talk about things, the more comfortable he became in sharing his feelings about the horror of his loss. He was both mentally and physically affected by David’s death and was surprised by how emotional it made him. Gabby was astonished at the way their relationship was able to develop and how the barriers that had inhibited discussing their feelings were dissipated.

Bruce Lord At 24 Bruce’s daughter, Rachael, was enjoying the luxury of her holiday abroad with her boyfriend when she died suddenly whilst swimming in the hotel pool. Bruce was the youngest in a large family of seven children and his mother’s pain Bruce Lord at the loss of her grandchild cut very deep. She called all the family together to talk to them. She told them she felt a huge guilt about still being alive when her granddaughter was not, and repeatedly told anyone who would listen that she had cried so much she could not cry any more. Although she had 14 grandchildren and 16 great grandchildren, and had weathered many a crisis during the course of her long life, Rachael’s sudden unaccountable www.c-r-y.org.uk

death haunted her final years which were full of worry that such a thing could happen again.

Marion Hayman Jonathan was very close to his grandparents and was greatly distressed by the death of his grandfather at 86. Jonathan missed him deeply. The impact of his own sudden death at 27 on his grandmother, who had so stoically accepted her husband’s Marion Hayman death, was overwhelming. She never complained of being alone, was always content and particularly conscious of not wanting to be a burden and exacerbate the nightmare of sadness for her child. Marion said that her mother spent many hours afterwards just sitting and looking at the pictures of her husband and grandchild. She suffered quietly, reiterating how sad it was and recalling the precious memories of times gone by. ......

There are many different reasons why grandparents do not seek help for themselves after their terrible loss. The family is in such turmoil, there is such great distress, and they do not want to impose their grief on those that would be better engaged helping other family members. It feels safer grieving alone, at times to suit themselves and when they can be occupied with other distractions like gardening or walking. Other friends that they would have turned to have died and sometimes their husband or wife cannot cope with their tears, so they excuse themselves and take refuge in their own isolation when the tears start. Grandparents can become increasingly reluctant to draw attention to their own grief, so try not to think about it as they are best left alone. So they battle on by dismissing their own agony and endeavouring to support their child whose life has been destroyed. As they get older, grandparents can feel that their lives and its memories are behind them. They can become lost in their reflections, not least of which is their beloved grandchild. They rely on their happier memories to revive them. Their future is unpredictable and limited, so their strength is focused on silent grieving and trying to cope with the double whammy of their loss – their grandchild and their child, whose spirit has been so brutally crushed by the weight of their grief.

CRY has recently launched a Facebook group for bereaved grandparents who have lost a grandchild to a young sudden cardiac death. The group is completely private – only those within the group can see conversations – and gives grandparents the opportunity to share feelings and experiences with others who have been affected by the tragic sudden cardiac death of a grandchild. To join this group, please complete the registration form at www.c-r-y.org.uk/group/support 15

CRY Centre for Cardiac Pathology (CRY CCP) Report

By Professor Mary Sheppard Professor Mary Sheppard, Consultant Cardiac Pathologist

Susanna Cooper, Laboratory Technician Khari Edwards, Laboratory Technician

The CRY pathology laboratory is a national referral centre for the pathological investigation of young sudden cardiac death (YSCD) with an established national database. We have clinical research fellow Dr Joseph Westaby in training in cardiovascular pathology.

We had 188 heart cases from September to December 2018. There is a very good turnaround time of usually seven days for issuing a report – which is vital for families who are anxious at such a distressing time – which gives an answer as to what caused the death of a loved one. We also obtained consent to retain cardiac tissue for research in 50% of the cases referred to us, which forms a useful biobank in the investigation of the causes of YSCD. Our database forms a valuable source of research within St George’s clinical cardiology team. We are also increasingly getting splenic tissue for genetic testing in sudden cardiac deaths. Genetic analysis combined with clinical follow-up will give vital information in the future for families.

We were able to make a diagnosis of the cardiac cause of death in all cases, with the majority being sudden adult death or cardiomyopathies (75% of cases), all of which are important for family screening.

Collaborators at St George’s • Professor Robert Anderson is

a member of our department studying congenital cardiac anomalies which can cause SCD.

• Dr Angeliki Asamaki is researching

pathophysiological mechanisms in arrhythmogenic cardiomyopathy and channelopathies.

• Dr Chris Miles is studying

arrhythmogenic cardiomyopathy and sudden adult death and has obtained a BHF PhD fellowship.

• Dr Michael Papadakis is studying

the incidence of SADS over time.

• Dr Stathis Papatheodorou is

studying clinical follow up of SADS families.

• Dr Belinda Grey is studying sudden

infant death.

• Dr Daniel Mijares is studying

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Recent achievements for CRY’s CCP • Dr Joseph Westaby, National

Academic Trainee Network meeting – Distinction award for presentation on proposed PhD project.

• Dr Joseph Westaby and Ms Susanna Cooper won a medical prize of £150 for a poster presentation (Commotio Cordis) at the British Association of Forensic Science.

• Dr Joseph Westaby was awarded a £10,000 research grant from Pathological Society Great Britain and Ireland.

• Dr Chris Miles won first place for best poster at SCD conference A to Z (Arrhythmogenic Cardiomyopathy).

hypertension.

National/international collaborators • Dr David Adlam, cardiologist,

Leicester – Spontaneous coronary artery dissection.

• Dr Marios Margaritis, cardiologist,

Leicester – Spontaneous coronary artery dissection.

• Dr Kenneth Chan, cardiologist,

Oxford – Aortic Stenosis Project.

• Dr James Burton, cardiologist,

Leeds – Changes in heart in dialysis patients.

• Dr Kathryn Griffin, pathologist,

Leeds – Innervation and vasculature.

Invited lectures/meetings • International Cardiovascular

Genomic Medicine Conference – Cardiff.

Khari Edwards

Susanna Cooper

• Pathology: Path to Precision

Medicine – Bilbao, Spain.

• Meeting and lecture at Birmingham

AICC Council meeting.

• Lecture at AECVP meeting.

• Lecture – Symposium (SCD in

the young). Why is expert cardiac pathology needed in SCDY case? – Copenhagen, Denmark.

• Lecture – National Pathology Week.

• Lecture at SGUL – Case study in

drug discovery – Investigation of unexpected sudden death in young people.

• AICC annual meeting – London.

• Lecture – A to Z of sudden cardiac

death – How does the autopsy help?

• Lecture at first International

Symposium of Sudden Cardiovascular Death – Cuba.

Issue 77 | September to December 2018

Interview with Dr Sabiha Gati After publishing research in Heart, entitled “Exercise recommendations in patients with valvular heart disease” (Gati S, Malhotra A, Sharma S. September 2018), former CRY Research Fellow Dr Sabiha Gati offers advice about exercising with valvular heart disease.

Why is valvular heart disease important in the young population?

Valvular heart disease affects approximately 3% of young individuals, many of whom aspire to partake in competitive sport or high intensity recreational exercises. Research supported by CRY’s screening programme has shown that 1 in 100 individuals have a minor cardiac structural abnormality, such as bicuspid valve disease or mitral valve prolapse, which requires surveillance throughout life.

Therefore, early identification may prevent future heart complications.

Why does valve disease progress with exercise?

Reports on the natural history of valvular heart disease in exercising individuals are limited. However, there is a theoretical possibility that a large blood volume pumped out by the heart during exercise associated, vigorous heart contractions may accelerate valve problems and may subsequently cause changes in the heart structure, function, electricity and even lead to sudden death.

How is valvular heart disease managed in exercising individuals?

1. Symptomatic detection: Warning symptoms of progressive disease

2. Risk of infective endocarditis. Ensure good dental hygiene

General advice for all patients with valvular heart disease 3. Avoid tattoos and body piercings

4. Surveillance with 1-2 yearly clinical evaluation

5. Familial evaluation for first-degree relatives of athletes with bicuspid aortic valve/mitral valve prolapse

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The potential effects of adrenergic surges and increased haemodynamic load associated with exercise in individuals with valvular heart disease Aortopathy

Functional deterioration

Pulmonary hypertension

Adverse cardiac remodelling

Arrhythmias

Myocardial Ischaemia

The management of exercising individuals with valvular heart disease requires a structured approach which incorporates: 1) Assessment of symptoms such as chest pain, breathlessness, dizziness and fluttering in the chest.

2) Assessment of functional capacity.

3) Type and nature of valve disease. Is it a left sided or right sided valve problem and is the valve narrowed or leaky?

4) The impact on the heart structure and function.

Which valve abnormalities are common in young individuals?

Mitral valve prolapse and bicuspid aortic valves are the most common valvular abnormalities in young exercising individuals. The good news is that the risk of adverse events is low but both valve abnormalities can be associated with important complications that require monitoring with an ultrasound scan of the heart. Young people with minor valve abnormalities can compete in any sport. Those with moderate level of disease will require some further tests, including an exercise treadmill test, to assess how they do.

What advice would you give to exercising individuals with valve disease?

Exercising individuals with valve abnormalities should undergo yearly to 2 yearly assessments depending on the severity of valve disease they may have and we should inform them about the warning symptoms of progressive deterioration of valve disease.

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CRY Conference 2018

Just as CRY’s screening programme continues to develop around the UK, so too does our standing in the medical community worldwide. Every year our International Medical Conference is recognised as an outstanding event, giving our doctors an opportunity to present their latest research and for us to connect with other leading experts. 2018 was no different.

Professor Sanjay Sharma (above) introduced the conference and gave the opening talk about the role of CT coronary angiography in veteran athletes.

CRY myheart cardiologist Dr Michael Papadakis looked at hypertrophic cardiomyopathy (HCM). All individuals are different, but Dr Papadakis discussed different exercise recommendations for athletes with HCM and the ideal amounts of aerobic and static exercise. He made a few strong closing points as well, including that there is “no clear association between HCM and exercise as a trigger of arrhythmias”.

Several previous and current CRY Research Fellows gave fantastic presentations, including Dr Sabiha Gati (management of athletes with myocarditis); Dr Gherardo Finocchiaro (idiopathic left ventricular hypertrophy); Dr Stathis Papatheodorou (sudden adult death syndrome and research from CRY’s Centre for Inherited Cardiac Conditions); Dr Aneil Malhotra (sudden cardiac death

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in football players being a bigger issue than previously thought); and Dr Hamish MacLachlan (CRY’s screening programme, what has developed and what we have learned).

This year we had a number of highly renowned international speakers fly in to contribute to the conference. This was a first for Professor Antonio Pelliccia from Rome, Italy, and the 12th time for Professor Domenico Corrado from Padova, Italy, who has only missed one conference since the first one in 2006. These are two of the most influential cardiologists in the world of cardiac screening and sports cardiology. Professor Pelliccia spoke about exercise for athletes with cardiomyopathies and how recommendations vary depending on different diagnoses and risk profiles.

Professor Jonathan Drezner, Seattle, USA, also attended for the second time. It has been almost a decade since he last presented and during that time there have been significant changes in the US and internationally.

Professor Mats Börjesson, Gothenburg, Sweden, again looked at exercise recommendations for athletes, but for those with ischaemic heart disease, which can increase the chance of sudden cardiac death (SCD) 2-56 times from physical activity.

After the first break of the day, Professor Corrado gave a

Issue 77 | September to December 2018

CRY Conference 2018 presentation on myocardial fibrosis in athletes. Dr Belinda Gray followed, discussing some of her research into SADS and the use of molecular autopsy.

Professor Drezner (left) gave the longest talk of the day and shared some of his expertise from working with a variety of sports teams, such as the Seattle Seahawks of the NFL. It was extremely encouraging to hear of the growing debate in the USA for using cardiac screening. Foolishly, SCD has been disregarded by some for being no more likely than a death from a lightning strike. But Professor Drezner challenged that, as for college athletes in the States, SCD is actually 200 times more likely.

Professor Drezner discussed how screening can prevent deaths in young people and presented research showing that the rate of deaths in athletes, especially black athletes, is higher.

For instance, men’s basketball (a particularly high-risk sport for those with a condition due to its intensity and explosive movements) accounts for only 4% of male National Collegiate Athletic Association (NCAA) athletes, but nearly 20% of all NCAA SCD cases.

“If you came to me with an ankle sprain, I might want to screen you,” Professor Drezner remarked. This kind of

From left to right: Professor Corrado, Dr Malhotra, Professor Sharma, Professor Pelliccia, Dr Gemma Parry-Williams, Dr Papadakis, Dr Gati, Professor Börjesson, Dr Basu, Dr Steven Cox, Dr Gray, Professor Drezner, Dr Maite Tome.

support is exactly what we need to further the way people value and utilise ECG screening overseas.

Following the day’s presentations, the case sessions panelled by Professor Sharma, Professor Corrado, Professor Pelliccia, Professor Drezner, Professor Börjesson and Dr Maite Tome were the next integral part of the conference.

The case sessions on electrical disease, cardiomyopathies and structural disease were a brilliant way to bring discussion into the conference centre, test those in attendance, and see how different experts would approach specific conditions in young people. These sessions put theory into practice, adding a valuable dynamic after the morning’s talks.

To bring the day to a close, CRY Research Fellow Dr Chris Miles took to the stage with a thoughtful, creative ‘Who Wants To Be A Millionaire’ style quiz. It was a perfect end to the day, lightening the mood yet reinforcing what had been presented and discussed through the conference to put everyone on the spot quickly before departing.

We are extremely proud of our CRY Research Fellows, past and present, for all the work they do to further our understanding of young sudden cardiac death. CRY’s research and position in the medical community simply couldn’t progress without it.

Thank you to all of our Fellows for their presentations at this year’s conference, and to all of our international speakers for making the effort to join us and share their insight on the day.

One of CRY’s sponsors, Equivital, at the conference

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Finally, many thanks to our sponsors Equivital and Radcliffe Cardiology, and also to our exhibitors GE Healthcare, Sanofi and Rightangled.

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Simplyhealth Great North Run 2018

Congratulations and a huge thank you to the 50 runners who took part in the Simplyhealth Great North Run for CRY on Sunday 9 September 2018.

It was once again a lively event, living up to its billing as the world’s biggest half marathon. There were plenty of people out to show their support and help the runners along their way and the whole community got involved. It was a warm, sunny day, encouraging even more friends and family to turn out to cheer on those running for CRY. Of the CRY team, Jody Barford was the first runner to finish in a fantastic time of 01:31:25. It was brilliant to meet and congratulate Jody and the 33 other CRY runners who came to visit us at the charity marquee and hand them their CRY medal along with some refreshments.

We would also like to thank all of the supporters who came along to cheer on all of the CRY runners, giving them the encouragement needed to keep going and finish this difficult challenge.

We look forward to welcoming new CRY runners to the Great North Run team next year, and hopefully seeing some of this year’s #CharityHeroes again!

If you would like to run for CRY in the 2019 Great North Run on Sunday 8th September 2019, please email your interest to events@c-r-y.org.uk.

To see a full selection of photos from the day please visit our Flickr page at https://bit.ly/2Fo2k0M

Once again, thank you to each and every one of our runners for their fantastic efforts in completing this event and fundraising so generously for CRY. They should all be extremely proud of their wonderful achievement. Our runners were: Annie Ledingham | Reece Hill (in memory of Paul McCann) | Will Clydesdale (in memory of Nathan Butler) | Alison Edwards (in memory of Andrew Murch) | Wayne Corcoran (in memory of Lloyd Walsh) | Bethany Bradbury (in memory of Amy Evans) | John Pickering | Jane Llewellyn | Misha and Alan Brown (in memory of Michael Yendall) | Jody Barford (in memory of Linda Barford) | Eileen Masterman (in memory of Nigel Masterman) | Amit Singh (in memory of George Morgan) | Rebecca Kelly (in memory of James Campbell) | Alice Horne (in memory of Tom Clabburn) | Matthew Lynn (in memory of Charlie Craig) | Emma Stubbs (in memory of Craig Salmon) | Stephen Harrison (in memory of Graham Harrison) | Vicky Frankland | Janos Geering (in memory of Don Geering) | Rachel McLeman | Joanne Darby (Neil Darby) | Melissa and Nick Loan (in memory of Stevie Jivani and Rob Allen) | Chelsea Lee (in memory of Jamal Bouzid) | Katie Bell (in memory of Stephen Donovan) | Linda Ternent (in memory of Graeme Bell) | Rob Palmer (in memory of Graham Harrison) | Hayley Anderson | Nick Whitbread | Robyn Turnbull (in memory of Jamie Loncaster) | Lesley Nicholas (in memory of James Nicholas) | Frances Mihailovic | Daniel Hadnum (in memory of Sophia Forrester) | Lucy Greenwood (in memory of Sophia Forrester) | Matthew Rudge (in memory of Robert Daniel Smith) | Thomas Wilson (in memory of Graham Harrison) | Daniel Wilson (in memory of Fiona Russell) | Charlotte Harper | Nick Vincent (in memory of Ben Hammond) | Ryan Mason (in memory of Jenny Kerwood) | Mark Smith | Martin Picker (in memory of Madeline Siddall) | Robert Bass (in memory of Kevin Paterson) | Paul Klitzke (in memory of Nicola Klitzke) | and Kelly Gleadow (in memory of Graeme Bell)

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Issue 77 | September to December 2018

Simplyhealth Great North Run 2018

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CRY Heart of Durham Walk 2018

It’s hard to believe that we’ve been holding CRY’s Heart of Durham Walk for almost a decade – and we would once again like to thank all the CRY supporters who took part in our 9th annual Walk on Saturday 6 October. It really was a special event!

A crisp Autumn day, the sun shone on us from late morning onwards (as the rest of the country sheltered from the rain!) and we received so much support and interest from local shoppers and passers-by, really helping us to fulfil our mission of raising awareness of CRY and young sudden cardiac death.

Around 240 people took part (along with their babies, toddlers and dogs in tow!) and as always, it was an emotional sight to see everyone coming together, to walk in memory of a young person. The Walk took in iconic sites such as Durham Cathedral and Castle, the River Wear, Durham Town Hall and Market Place – where CRY had a branded marquee with an awareness stand and the allimportant water station.

For the first time, the local Rock Choir, led by choir leader Rob Slater, kindly gave two rousing performances at the Market Place which attracted many visitors and generous,

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additional donations. They created a really positive atmosphere and helped us to raise further awareness of everything we do!

As ever, it was a real team effort. The event was attended

by CRY staff Rebecca Zouvani, Ben Robinson, Cara MacMillan, Hiddy Denizer and Lily Burke. And, thanks to the ongoing co-operation of staff at Durham Amateur Rowing Club, we were able to drop off everything on the Friday night, saving valuable time on the Saturday morning (which is always a very early start for staff and volunteers, with a swift set up required at Durham Amateur Rowing Club and Durham Market Place).

Hot drinks and breakfast rolls were laid on at the Rowing Club for the participants, who started arriving at 9.30am.

Throughout the morning, participants checked in at the registration desk and chatted amongst themselves, looking at the CRY displays and taking “selfies” using CRY’s new selfie frames.

As we waited for everyone to arrive, CRY staff and our loyal photographer, Doug Moody, took photos for the local press. Thanks to our supporters, the event once again enjoyed some local press coverage before the event –

Issue 77 | September to December 2018

CRY Heart of Durham Walk 2018 including an article in the Northern Echo and a full page the day after!

The vast majority of people who took part – some for the first time, others for the second or third time, and some who take part year after year – did so in memory of a young person who they had tragically lost to young sudden cardiac death. This year we had families from several parts of the UK as well as County Durham and Tyne and Wear, including Scotland, Northumbria, Cleveland, Yorkshire, Merseyside, Lancashire, London, Cambridgeshire, and Derbyshire. They were taking part or volunteering in memory of and in support of: Inderjit Bachada; Jack Balfour; Kasia Ber; Christopher George Britton; Andrew James Callender; Cheryl Christopher-Webber; Charlie Craig; Tommy Day; David Elliott; James Green; Dean Henderson; Dale Holder; Damien Jewell; James and Leon Johnsen; Eleanor Keeler; Alan Lumley; Stephanie Charlotte McLean; James Moorfoot; Levon Morland; Vechasit Netlerlrygmit; Andrew Oliver; Sarah Parfery; Kevin Paterson; Jenni and David Paul; Stuart Randall; Alexandra Reid; Jack Riding; Stephen Rogers; Mike Scott; Robert Daniel Smith; Lewis Stewart; Natalie Stewart, Darren Uscroft; and David White.

Once everyone had checked in, we assembled outside the Rowing Club. The event’s founder, Jeff Morland, welcomed everyone and provided some interesting background to the Walk. He then introduced his good friend Steve Percival, who has played a huge part in helping the event go from strength to strength over the years. He thanked the participants, Durham Amateur Rowing Club and volunteers and conveyed some of CRY’s latest news and developments, highlighting the fact that CRY families have supported the screening of 175,000 young people since 1995, including the recent CRY screening event in memory of Levon Morland, hosted by Durham Amateur Rowing Club. He also gave out some safety instructions, and a few fascinating facts about the figure 9, with this being the 9th year of the Durham Walk! He concluded with a poignant moment by reading out the names of the young people in whose memory people were walking or volunteering before wishing them all a pleasant walk.

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CRY Heart of Durham Walk 2018 The “Walkers” then set off, each with a bottle of water and donated chocolate bars! They were able to collect more water at the CRY stand in Durham Market Place, manned

by CRY staff Ben Robinson and volunteers Shelagh Green and Lindsey Kirton. First aid cover was provided by ResQ Support.

Each “Walker” was later welcomed back to the Rowing Club, once again, by volunteers Marilyn Robinson and Jean Spence who were unable to take part with their families but wanted to help on the day. Walkers were given a CRY medal, a feedback form and a copy of the ‘Don’t CRY’ CD and were encouraged to record their thoughts in the “Today’s Thoughts” book. Durham Amateur Rowing Club once again opened the bar and provided delicious paninis, chilli and chips for CRY staff, volunteers and the walkers on their return.

We would love to see everyone again next year on the Walk’s 10th anniversary year which we are hoping to hold on Saturday 5th October so please save the date. If you would like to be advised when a date has been confirmed, please email events@c-r-y.org.uk.

As always, we never forget that most of the walkers who take part in the Durham Walk do so for very personal reasons – and all of us at CRY appreciate their tremendous effort and courage in taking part.

We are also very grateful to the following companies and organisations for their support of this event: • Colin Wilkes and Durham Markets Company Ltd for •

• • • • •

providing CRY with a free awareness stand in Durham Market Place.

Durham Amateur Rowing Club for providing a great venue at a discount, year after year, and to Mark Bell and his team – Elliot, Graham and John – for making us so welcome and helping out with setting up and packing up.

Durham City Rugby Club for allowing us the use of the club’s car park.

Durham Safety Advisory Group and Asset Management Team for approving the route.

Radflex for donating chocolate bars. This donation is secured each year by David (Joe) Crow.

Rock Choir for giving up their free time to give two fantastic performances at the Market Place.

The Rothley Trust for covering the cost of producing the Heart of Durham Walk leaflet.

CRY would also like to thank all the local organisers and volunteers for their help before, during and after the event: helping to organise the event and attending meetings; obtaining necessary permissions; carrying out a risk assessment; marking out the route; promoting the event; pre-event telephone calls and emails; marshalling;

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assembling walkers’ packs; distributing walk leaflets; registering walkers; inflating balloons; manning a stand, handing out water, chocolate bars, medals and feedback forms; and clearing up.

We really couldn’t run an event like this, so far away from the CRY office, without the help of our dedicated volunteers and helpers: Dick Ainsley; Lorraine Atkinson; David (Joe) Crow; Kellie Ellis; Shelagh Green; Jim Henderson; Tony Holder; David Jewell; Lindsey Kirton; Aran Morland; Jeff Morland; Marianne Mortemore; Wendy Moss; Steve Percival; Ted Philo; Marilyn Robinson; Jean Spence; John, Elliot, Graham and Gene from Durham Amateur Rowing Club.

Special thanks, once again, must go to Jeff Morland and Steve Percival, the original instigators of the walk, for helping to organise the event and making it all happen each year.

The final word goes to CRY’s Chief Executive, Dr Steven Cox: “We’re always so touched by the warm welcome given to us from the people of Durham and the North East and this year was no exception – especially as we welcomed even more families from further afield. There is great support in the area and a real commitment to helping us to spread the word about CRY’s important work in the prevention of young sudden cardiac death. We look forward to keeping this momentum going when our team returns to Durham city centre next year for the 10th anniversary of this important event in CRY’s fundraising and awareness calendar.”

All photos from the day are available on our Heart of Durham Walk 2018 Flickr gallery at https://bit.ly/2tEA4iI If you participated in the walk and took photos which you would like to see included, please send them to events@c-r-y.org.uk with the subject “Heart of Durham Walk 2018 photos”.

Issue 77 | September to December 2018

CRY Great Cake Bake 2018

Thank you to all the supporters who took part in the 2018 CRY Great Cake Bake and helped us raise over £28,000!

Best Cake Design 1st place – Jenny and Graham Loncaster (giant CRY Great Cake Bake logo)

The seventh annual CRY Great Cake Bake took place on Friday 23rd November 2018 as part of Raising Awareness Week. We would like to say a big thank you to everybody who took part and for helping to make the event such a success. Your support will enable CRY to continue its important campaign, and help to raise awareness in your local communities.

We are delighted to say that we have raised over £28,000, with over 100 supporters registering for packs!

We continued our new award structure from 2017 with two categories: Biggest Media Impact and Best Cake Design.

We are also delighted with the response we have had to our brand new CRY Great Cake Bake logos and Cake Bake specific display materials. It is wonderful to see these being used among your magnificent bakes in the lovely photographs and stories we have received.

2nd place – Amanda and Adrian Topp (giant heart cupcake)

We had so many fantastic names to choose from in the competition to name our new CRY Great Cake Bake logo and the decision was a hard one. But a panel of CRY employees discussed their favourite and the most popular name is Felicity Frosting!

Thank you to all who entered, and to Marianne Bailey for the winning suggestion.

Finally, thank you again for your brilliant support in this event. We are so grateful for your incredible fundraising efforts!

3rd place – Magda Tageldin (red velvet heart cupcakes)

Please see stories and photographs on the following pages.

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CRY Great Cake Bake 2018 Biggest Media Impact 1st place – Ann Demaine. Sheryll Murray, the local MP for South East Cornwall, attended Ann Demaine’s cake bake in memory of her son, Thomas Demaine.

2nd place – Amanda and Adrian Topp. Their cake bake in memory of their niece, Bethany Mycroft, was broadcasted on two local radio stations.

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Hayley Brember raised £800.21 at the Aldershot Centre for Health in memory of her husband, Richard Brember.

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Judy and Dennis Brookes raised £1,005 in memory of their son, Greg Brookes.

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Ruth Cain raised £900 with her partner, Alan, in memory of her son, Michael Land (right).

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Ingrid Dalrymple raised £163.61 in memory of her daughter, Freya Rose Dalrymple.

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Jayne Smith and other staff and students at Bodmin College raised £260 in memory of Thomas Demaine.

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Ann Demaine raised £243.02 in memory of her son, Thomas Demaine:

“I have just banked £243.02 for the Thomas Demaine

3rd place – Sarah Bower. Sarah’s cake bake at Tesco’s on County Road, Liverpool, in memory of Jack Riding was featured in a local newspaper report.

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Hollie Bell raised £160.30 at the salon where she works.

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June Boulton raised £318 in memory of her son, Jack Boulton.

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Sarah Bower raised £500 at Tesco’s County Road, Liverpool, in memory of Jack Riding.

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Issue 77 | September to December 2018

CRY Great Cake Bake 2018 Memorial Fund which was raised by the staff and students of Bodmin College, Tom’s sixth form.

“The second photo shows from left to right: Prof Andy, Dr Ann Demaine, Dr Martin Dixon (Vice Principal), Jayne Smith (Aspirations Coordinator and cake sale organiser) and Sheryll Murray MP for SE Cornwall.”

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Rena Downing raised £200 in memory of Jamie Loncaster.

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Tom Green raised £1,600.60 in memory of his son, Adam Green.

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Nicole Hamilton raised £206.80 in memory of David and James Hamilton.

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Deirdre Harris and her daughter, Nicky, raised £732 in memory of Alan Lumley:

“As part of the CRY Great Cake Bake, my daughter Nicky and I held our second tea and cake afternoon for Alan’s Memorial Fund on Saturday November 24th 2018.

“Having made the decision to hold the event at home, we decided to send out a mini invitation flyer to friends either via messaging or a printed version in early November.

It was difficult to estimate how many people we could fit in our house! But we invited around 65 people and on the day 55 people attended over a three-hour period which was an amazing turnout! We decorated rooms with CRY posters and balloons and had our own red buckets available for donations.

“We had many lovely offers of help but this time we decided to do all the baking ourselves and this mega bake took place over several weeks prior to our event. We aimed for a wide variety of more traditional cakes and on the day found the most popular were Gin and tonic loaf, Coffee and walnut cake, Ginger cake and Victoria cream sponge.

The mini Christmas cakes which we decorated and individually bagged as possible gifts proved very popular and 48 of these were sold at £4 each. Most people stayed to chat with friends over tea/coffee and cake but some also popped in to buy cakes to take away.

an opportunity to meet friends, chat and indulge in all things cake for an hour or two! Holding the cake bake at home, rather than in a public hall as in 2016, did restrict numbers but gave the event a much more personal feel.

“We were overwhelmed once again with the generosity of everyone involved and delighted with the £742 raised in Alan’s memory.” Deirdre Harris.

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Paula Hesmondhalgh raised £285 in memory of her son, Matthew Hesmondhalgh (above).

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Graham and Ann Hunter raised £743.30 in memory of their daughter, Claire Louise Reed:

“A big thank you to everyone one of you who supported our CRY Great Cake Bake yesterday at Botley Market Hall, in memory of our daughter, Claire.

“To those who made and supplied delicious cakes, Tombola and raffle prizes. Thank You. To those who helped set up, sell the cakes, teas and coffees and then clear up afterwards, thank you. To those who attended, thank you.

To The Singsational Voices Choir, who kept us superbly entertained, thank you. To those who helped us publicise the event and help raise awareness of young sudden cardiac death, thank you.

“Your combined efforts enabled us to raise a fantastic £743.30. This now leaves us just over £400 to raise of

“We also had a showstopper cake, kindly donated once again by Kate at Violet’s Kitchen of Stockport. This was themed for CRY in a beautiful design with fresh flowers and angel wings. We charged £1 for a ‘Pick a Square’ game to win this cake. We had CRY literature available and packs of CRY Christmas cards were also on sale.

“Our fantastic group of helpers who spent hours making drinks, serving cakes, clearing tables and washing up were invaluable! There was a lovely, happy atmosphere and it seems the afternoon was enjoyed by everyone as

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CRY Great Cake Bake 2018 “Victoria Dillon is our beautiful work colleague. Shortly after getting married and falling pregnant four years ago she had a cardiac arrest and she lost her baby and is now in a neurological nursing home. I visit her once a month and make sure she is kept updated with all the gossip at work.”

the £5,000 to screen the next 100 young people locally.

We could not achieve this without your kind, generous and fantastic support.

“Thank you.” Graham, Anne and Peter Hunter.

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Rosemary and Peter Goodman raised £900 from their cake bake at their home in memory of their son, Alexander Goodman.

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David Jewell raised £325 at the Job Centre in Whitley Bay in memory of his son, Damien Jewell.

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Sophia Lagou raised £295.27.

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Tanya Lambert and those at Howdens Joinery raised £151 in support of Victoria Dillon:

“We had a great day, with lots of donations for the cakes; we had ‘guess how many sweets in a jar’ and ‘guess the weight of the chocolate cake.’

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•

Amy Ling raised £527 in memory of Jack Atkinson.

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Graham and Jenny Loncaster raised £2,110 in memory of their son, Jamie Loncaster:

“On Friday 23rd November 2018, St. Barnabas Church Hall, Swanland was the location of the fourth annual CRY Coffee Morning and Cake Bake fundraising event to take place in memory of Jamie Loncaster, who died suddenly and unexpectedly in March 2015 from an undetected heart condition.

“Once again there had been many weeks (if not months) of planning and promoting of the event, which is certainly gaining momentum year on year. Early ‘save the date’ notices were followed by publicity on social media, as well as local village community publications all helping to spread the word. As always, though, word of mouth seemed a very dependable way of spreading the news!

Issue 77 | September to December 2018

CRY Great Cake Bake 2018 screenings for local young people aged 14-35. The coffee morning will be held again next year and is likely to be on the last Friday in November.”

“As well as cakes baked by family, friends and those attending, there were several show-stopping cakes donated to the cake raffle. This year, local cake maker Claire Milner recreated the new CRY Great Cake Bake logos in two amazing cakes. She also created a cake that resembled a Jammie Dodger biscuit and aptly named it the “Jamie Dodger” in memory of Jamie.

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Joanne Johnson raised £180 in memory of Stephen Rogers.

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Jenny Lumley raised £405 in memory of her son, Alan Lumley.

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Theresa Macklin-Smith and all at the Family Building Society raised £220 and kindly provided sponsorship support for the Great Cake Bake.

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Laura MacMillan raised £1,431 in memory of her husband, David MacMillan.

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Ellery McGowan raised £381 at Charterhouse Club in memory of her son, James McGowan.

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Sarah Meadows raised £213.39 in memory of her husband, Liam Meadows.

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Peter Mendham raised £887.39 in memory of Ben Daniels for his sponsorship in the Big Heart Bike Ride.

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Carol Nicholls raised £100.15 in support of CRY (right/ below):

“The cake raffle was once again a very busy stall and a total of 15 cakes/boxes of cupcakes were won as prizes by various people who attended. The family coordinated the delivery/collection of the cakes after the event had finished and all the clearing up was completed!

“The event ran from 9am to noon and saw well over 200 people pass through again. It’s always a well-attended event and gives the community an excuse for a sit down and catch-up with each other whilst watching a looped video of images/videos of Jamie.

“The event always helps to raise awareness of CRY and many leaflets were taken home by those attending. The family spent time chatting to as many people as possible and explaining what CRY do and how to book for the forthcoming heart screening event in April 2019.

“On the day over £1,600 of cash was collected, with two cheques also handed over totalling £200. Other donations received after the event increased the final total raised to well over £1,900!

“Jamie’s family would like to thank everyone who baked, attended and donated, and special thanks go to St. Barnabas Church and all their volunteers for the (free) use of their facilities again – special thanks to Judith Bishop for her three-hour coffee and tea making stint, totalling over 250 cups!

“All money raised goes to Jamie’s Memorial Fund at CRY and is being used by the family to offer FREE heart

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CRY Great Cake Bake 2018 “Peter and Sharon would like to thank the staff that helped on the day and all who donated to make the day such a success.” Peter and Sharon Shonfield.

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The CRY Office raised £117.89 from their cake bake (above).

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Theresa Owen raised £307.19 in support of CRY.

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Rita Ponting raised £532.48 in memory of her son, Richard Ponting.

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Kate Relph raised £320 in memory of her sister, Jo White.

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Sarah Shaw raised £493.50.

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Lesley Sheridan raised £334 in memory of Paul Sheridan.

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Sharon Shonfield raised £450 at the Unicorn Primary School in memory of her son, Evan James Shonfied:

“We held a cake bake and raffle sale at the Unicorn Primary School in memory of our son, Evan James Shonfield. We sold cakes, raffle tickets, CRY merchandise and Christmas cards. We raised £450 for CRY. It was a cold and wet day after school but we had a fantastic turnout by parents, children and staff from the Unicorn School in Beckenham all wishing to donate to a great cause.

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Christine Slater raised £280 in memory of her son, Tim Jones.

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Charlotte Smith and all those at Langley Park School for Girls raised £70 in memory of Arabella Campbell.

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Harry Steel raised £230 in memory of David White (below).

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Magda Tageldin raised £220.71 in memory of her friend, Anthony Fitzgerald (right):

“I took part in the Great Cake Bake in memory of my close friend, Anthony Fitzgerald. We raised over £200 in his memory by having a small raffle and cake competition at my house. My friends and family came round and baked lots of amazing things! I think Ant would have been very pleased with us all.

“People who took part were: Callum, Isobel, Cerys, Emily, Jessie, Chloe, Demi, Robbie, George and the Hollands/ Tageldin family, along with some family friends. It was a really nice afternoon and we also sold packs of Christmas cards.”

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Issue 77 | September to December 2018

CRY Great Cake Bake 2018 •

Adrian and Amanda Topp raised £5,800 at a garden centre in memory of their niece, Bethany Mycroft:

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“During the summer we started to inform local people that we would be holding over event over two days again in order to maximise the uptake of people attending. In the run-up to our event we promoted our event via Facebook and Instagram on The Bethany Mycroft Memorial Fund and delivered promotional posters within the local community which were displayed from the end of October.

The weekend before our event we carried out a leaflet drop within the local area and neighbouring villages. We were also lucky enough to harness the support of local media and local radio stations and our event was actively promoted by Peak FM and Elastic FM. “It was an early start on both days of our event but we were inundated with support and people attending. In addition to our cake and coffee sales we also sold a range of homemade pickles, preserves and crafts which were very well received. We also held a raffle, tombola, bottle tombola, name the unicorn, chance to win a chocolate bouquet, guess the weight of the cake and a sealed bid for two homemade fruit Christmas cakes. This year also saw us launch Beth’s Boutique, selling a vast range of quality new and used clothing, shoes and accessories which had all been donated.

“This year as a trial we invested in credit and debit card facilities which we strongly believe was a big success and certainly helped contribute to the amount raised. We held our event on Friday 23rd and Saturday 24th November 2018 and we raised £5,003.42, with some monies still to come in.”

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Hilary Wagstaff raised £664 in memory of Ethan Jones:

“I hold a cake sale every year in memory of my son Mattie’s friend, Ethan, who died suddenly of an undetected heart defect at the tender age of six in 2010. Mattie also now holds his own event to support Ethan’s memory and this year had his own very successful cake sale at school. We made over 400 cakes for that and had a queue of hungry students out of the lunch room, and as we had so many cakes they closed the tuck shop too to encourage the children to buy cakes instead!

“My sale is supported by many friends and family who come every year. They make the most wonderful cakes to sell and they spend lots of money too, buying delicious goodies! I hope it helps in some small way and maybe will prevent this happening to another family. Looking forward to next year.” Hilary Wagstaff.

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Mattie Wagstaff raised £282 in memory of his friend, Ethan Jones.

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Chelsea Waterman raised £130 at her home and place of work:

“I held my CRY Great Cake Bake at home last night with all but one cake being gluten free and raised £120! This figure is likely to rise as I’ve portioned the leftover cake up in tubs for home deliveries.”

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Liz Woolley raised £809.09 from her cake bake in memory of her son, Seth Woolley.

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CRY Parliamentary Reception

“This has been another incredible year for CRY,” said CRY Chairman Hugh Mulcahey at our 17th annual Parliamentary Reception in the House of Commons Terrace Pavilion. It’s the only way to describe 2018 after CRY’s developments in all key areas, from screening more young people than ever to publishing impactful research.

“I believe this is why so much has been achieved – an incredible team, working closely with so many families to bring about change,” Hugh added. “CRY’s impressive achievements are down to a special combination of passion and effort from families, medical experts and above all, the CRY staff.”

CRY’s purpose, progress and ambitions were perfectly captured by a range of speakers. We were also thrilled to have the support of CRY Patrons (Lee Mears, Bill Neely, Andy Scott, Pat Jennings and Kathryn Harries) and CRY Ambassadors (Montana Brown, Ben Coleman, Ivan Thomas, Calum Haggett and Jade Moore) at the event.

Kevan Jones MP, the host of the event and a fantastic, long-time supporter of CRY, opened our speeches for the evening to talk about how far CRY has come over the last 17 years. “I always joke when the phone goes or I get an email from Alison [Cox] because I know something is going to be asked,” Kevan remarked. “You can never say no to Alison. But credit to her tenacity in those early days, and [CRY] has grown from strength to strength.”

We were also pleased to welcome Abby Lang (above), who has campaigned tirelessly to secure the signatures of all Scotland’s MPs on our MP pledge to establish a

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national strategy for the prevention of young sudden cardiac deaths. Labour Leader Jeremy Corbyn and Liberal Democrats Leader Sir Vince Cable were among the other MPs Abby landed backing from.

“My message tonight is be proactive in rallying political support,” Abby said. “As we gather here at the Houses of Parliament it is apt to quote iconic British Prime Minister Sir Winston Churchill, who remarked, ‘I like things to happen, and if they don’t happen, I like to make them happen.’ I collected names at MP surgeries, party conferences, and the Foreign Affairs Committee roadshow.

Most importantly, not one of the MPs I approached refused to sign the CRY pledge.” The difference that Abby has made is a testament to what can be achieved with such a bold approach.

Mims Davies MP (below), who was appointed as Minister for Sport and Civil Society in November 2018, followed and gave a passionate speech to emphasise how she will be working to help CRY in her new role.

“We have heard tonight that screening has been proven to work, and I think when the next review of the National Screening Committee comes together I will be absolutely pushing for the urgent need for systematic screening.”

To conclude, Mims added: “I will use every sinew that

Issue 77 | September to December 2018

CRY Parliamentary Reception

I have in this role to support families and friends and the youngsters who lose their loved ones and their friends – and I know that’s been a focus that this charity has had before about what that means to people – to try and make changes and see that we do not end up with so many families who could be in such a better place.”

Once again, CRY Consultant Cardiologist Professor Sanjay Sharma spoke about the development of our research and some of the key papers that were published this year. This included the paper led by Dr Aneil Malhotra – published in the New England Journal of Medicine and featured on BBC News – investigating the incidence and causes of young sudden cardiac death in adolescent UK footballers, and Dr Harshil Dhutia’s research into 24,000 young people tested through CRY’s screening programme.

CRY Patrons and Ambassadors. From left to right: Calum Haggett, Pat Jennings, Montana Brown, Jade Moore, Andy Scott, Ivan Thomas, and Ben Coleman.

“We know defibrillators are good,” Dr Cox said. “They do save young lives. And of course, every young person should be taught how to do CPR – there is no question about that. And people do need to know about symptoms – there are sometimes symptoms and they need to know about that. These are a given, but these are all reactionary.

“We found out that if we used the current NHS criteria that is relying on symptoms, we would have missed 80% of those people,” Professor Sharma said when discussing Dr Dhutia’s research. “And we worked out that if we had diagnosed someone, around 60 people would get some form of treatment apart from lifestyle advice, so it’s worth making a diagnosis.”

“We must accept they alone (CPR and defibrillators) will not prevent the majority of young sudden cardiac deaths.

Most of these deaths will occur at rest, during sleep, usually with no symptoms. And that is when screening comes in. That is why screening is so important. We need an overriding strategy – that’s been spoken about tonight – so we can break the contradictions that we see in different policies that we have in the UK. An ECG is a powerful tool if you look at the NICE guidelines. If you go to the NHS choices website, it talks about an ECG for conditions like Wolff-Parkinson-White, long QT, cardiomyopathies, Brugada syndrome. The ECG is the core tool there to identify them, yet the National Screening Committee do not support these position statements.”

Finally, CRY Chief Executive Dr Steven Cox gave a powerful speech about what needs to be done to establish consistent policy and strategy for how the UK tackles the issue of young sudden cardiac death. Dr Cox mentioned the World Health Organization’s recent acknowledgement that when someone dies of SADS it should be recognised by official government statistics and inform policy as a result. However, this isn’t enough.

It’s not easy to change policy. But as our speakers expressed so well, CRY continues to increase awareness, screen more young people every year, and make an impact in the medical community with research. And with 29 MPs at this year’s Parliamentary Reception – a significant increase from 17 MPs in 2017 – and over 130 MPs on our pledge to save young lives, our support in parliament is only on the rise as well.

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Our Fundraisers Regular Donors CRY received regular donations from the following supporters in 2018: • Jenny Aitchison • John Aitken • Lorna Anderson • Roy & Betty Bagguley • Leslie Baker • Amanda Barker • Carl Barnes • William Barnett • Mark Bartlam • Ann Bath • Christine Booth • Nicola Brackenridge • Anna Brewer • Jacqueline Brinck-Johnsen • Toby Butterworth • Karen Byrne • Stewart Clark • Richard Clark • Joyce Dale • John & Barbara Darby • Rachael Davies • Mark & Caroline Davies • Rob & Caron Dubery • Harry

Dalbag Nagra • David Nuttall • Mulika Ojikutu-Harnett • D Parham • Catherine Patterson • Tom Pavitt • Jocelyn Payne • William Thomas Perring • Hayley Pizzey • Lisa Power • Josephine Pwajok • Claire Read • Maureen Richardson • S A Rintoul • Doreen Roberts • Julie Rust • Rob & Penny Simpson • Jeanette & Chris Simpson • Geoff Sindrey • Brenda Soiza • Philip Sparrow • Andrew & Daphne Spurling • Arielle Stealey • Matthew Steeples • Cliff & Gwen Stewart • Judie & Geoff Street • Mike Styles • Patricia Tayler-Jones • Nicola Turnbull • Rejia Ullah • Steve Walters • Pat Watkins • Andrew Watson • Brian Weeks

Eaton • Ann Estridge • Andrew Fallon • Wendy Fletcher

Someone Special

• Megan Floyd • Barry Gilbey • Rainee Gilroy • Francis & Frances Gomez • Carole Green • Adam Guest • Richard

Philip & Kathryn Howorth • Margaret Howroyd • Christine

CRY received the following online donations from Virgin Money Giving Someone Special pages in 2018:

Anne Hustwit • Fatema Ibrahimi • Trina Ingledew •

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Hannah Bennett’s fundraising page in memory of Gareth Beckett raised £210.

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Rebecca Harding’s fundraising page in memory of Liz Bones raised £550.

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Robyn Sayers’ fundraising page in memory of Jack Boulton raised £335.

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Jodie Lowe’s fundraising page in memory of Jordan Burndred raised £332.

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Jonathan Pickup’s fundraising page in memory of John Chapelhow raised £400.

& Nicky Hales • K Hemmings • John Joseph Holland •

Alastair Jackson • June Jacob • Peter James • David James • P Jarvis • Oliver Joy • Dave Kenyon • Jonathan Krish • Roy Lovatt • Vanessa MacLeod • Edward Magee • Lynn McBrearty • Mark McBrien • Jonathan McNulty • Donna Meredith • Sandra Merrick • Carmel Merrick • Helen Mestchian • Angela Meyers • A Miller • Victoria Mizen • Patrick & Susan Mullens • Resham &

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Issue 77 | September to December 2018

Our Fundraisers •

Alison Cox’s fundraising page in memory of Freya Cox raised £14,058.92.

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Dawn Cubin’s fundraising page in memory of Hannah Cubin raised £2,513.20.

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Simone Davis’s fundraising page in memory of Margaret Davis raised £280.

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Lisa Procter’s fundraising page in memory of Micky Faulding raised £1,374.

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Laura Fitzgerald’s fundraising page in memory of Anthony Fitzgerald raised £3,981.64.

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Helen Saunders’ fundraising page in memory of Tony Hassell raised £1,250.

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Carolyn Hersey’s fundraising page in memory of Leighane Hersey raised £152.

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Eleanor Battel’s fundraising page in memory of Robert Heyes raised £363.

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Rouge Jahangir’s fundraising page in memory of Ariana Jahangir raised £34,934.86.

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Mike Kendall’s fundraising page in memory of Jane Kendall raised £2,310.

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Charlotte Leyland’s fundraising page in memory of Joseph Leyland raised £1,160.50.

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Jenny Boag’s fundraising page in memory of Ellen

Nivett raised £782.

• Vicky Frankland’s fundraising page in memory of

Andrew Oliver raised £297.

• Kate Milburn’s fundraising page in memory of Stephen

Owen raised £5,010.

• Christalla West’s fundraising page in memory of Alex

Philippou raised £2,772.54.

• Ryan Hogarty’s fundraising page in memory of Jarek

Plewa raised £2,092.

• Alban’s House at Haileybury College’s fundraising

page in memory of Alessandro Pomfret raised £650.

• Brentford FC’s fundraising page in memory of Robert

Rowan raised £8,404.32.

• Olivia Saro-Wiwa’s fundraising page in memory of

Suanu Saro-Wiwa raised £18,168.

• Morag Sheridan’s fundraising page in memory of Paul

Sheridan raised £15,063.85.

• Leo and Della Tudisca’s fundraising page in memory of

Isabelle Tudisca raised £785.

• Sue Coombs’ fundraising page in memory of Martin

Wailes raised £1,023.

• Marie Watson’s fundraising page in memory of George

Watson raised £165.

Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from September to December 2018.

Corrections Unfortunately, due to the size of the Update, with so many fundraisers to acknowledge and there being some overlap with memorial fund names, there can occasionally be mistakes.

We always strive to enforce new methods to eradicate

www.c-r-y.org.uk

such administrative errors, but we apologise if you have ever been affected in some way by this.

If you see a mistake in the Update or you have any questions, please do not hesitate to contact me at tom@c-r-y.org.uk.

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Our Fundraisers In Memory of

Charlotte Adams

Kate Bome organised a charity evening and raised £4,304.

In Memory of

Greer Atkinson

Thomas Turner donated £100.

In Memory of

Adrian Michael Badon

Mark Allerston took part in the Leeds Half Marathon and raised £692.

In Memory of

Andrew Baker

Glenn Ollivant sent in £489.

In Memory of

Tom Elton Barratt

Bishop’s Stortford Squash and Racketball Club sent in £147 raised at the 2018 Tom Elton Barratt Junior Squash Championships: “The 2018 Tom Elton Barratt Junior Squash Championships (this year an England Squash 1 day Bronze Sanctioned event) took place on 21st October at Bishop’s Stortford Squash & Racketball Club, Hertfordshire, with a donation from all entry fees received being given to CRY. The tournament has been held each year since 1984 in memory of Tom who died from a heart attack caused by an undetected heart defect.

“Around 50 enthusiastic squash players (boys and girls aged 11 to 18 years) took part in the event, coming from many surrounding counties. During the busy day, around 70 matches were played. Luke Scott Stevens (BU15’s) and Alex Banhidai (BU13’s) from Bishop’s Stortford Squash Club joined in, with Alex Banhidai winning his own age group category.

“Congratulations must go to all winners; GU13 Amelie Brooks, GU15 Renitha Srindran, GU17 Ella Hall, BU11 Reuben Thain, BU13 Alex Banhidai, BU15 Callum Egan, BU17 Joel Braddock, BU19 Harry Kitchens.” Andrew Mulvey.

In Memory of

Gideon Baws

In Memory of

Bob Baldwin

Jack Sutherland took part in RideLondonSurrey 100 and raised £785.01.

Christine Bloomfield sent in £140 raised from a dart tournament and raffle.

In Memory of In Memory of

Jack Balfour

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Blackhall Primary School held a dress down day and raised £352.

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Ella and Tonileigh donated £325.

Matthew Beadle

Lynne and Tony Beadle sent in £252.35 raised through the Chislehurst Rocks music event.

In Memory of

Brett Beasey-Webb

In Memory of

Andy Banks

Louise Banks forwarded donations totalling £390.

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• Scott Barden organised a memorial day and raised £1,510.

• Nicola Corcoran sent in £200.

Issue 77 | September to December 2018

Our Fundraisers In Memory of

Graeme Bell

Linda Ternent took part in the Great North Run 2018 and raised £437.

In Memory of

Graeme Blenkinsop

• Janice Blenkinsop sent in £442 raised through a charity football match and a raffle.

• Michael Cox sent in £160 from the Vestas Isle of Wight Football Match and raffle.

In Memory of

Dhara Bhatt

Georgina McCluskey took part in the Virgin Money London Marathon 2018 and raised a further £1,000, making a total of £4,275.

In Memory of

Max Biles

Simon Drake and Dan Brickell took part in the Virgin Money London Marathon 2018 and raised £9,519.84.

In Memory of

Jack Boulton

• June and David organised an annual football match and raised a further £725.

• June Boulton sent in £315 raised from the annual golf fixture:

“The Jack Boulton Memorial Trophy was played on 13th October 2018. After heavy rain and high winds the day before it looked unlikely to happen, but the weather changed for the better with 29 teams of 4 competing. The winning team was made up of Teresa Gwyther, John Laver, Adam Coles and Kira Veal. They won with 104 points, just beating the runner-up team on count back.

“Pictured below are Jane Russett (ladies captain), Kira Veal (holding trophy) and Teresa Gwyther. The event raised £315 for CRY. Amazingly, Dewi John had a hole in one on the 9th hole, the first time in this competition!”

In Memory of

Steven Blair

• Susan Blair sent in £230 raised by Milport Dons.

• Susan Blair donated £220.

In Memory of

Mathew Blease

Mark Blease took part in the Royal Parks Half Marathon and raised £1,000.

www.c-r-y.org.uk

In Memory of

Wesley Bray

Carol Brunt, David Brunt, Connor Brunt and Kieran Brunt took part in the CRY Heart of London Bridges Walk 2018 and raised £1,418.

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Our Fundraisers In Memory of

Richard Brember

• Dylan and Justin (Tight5 Sports Ltd) donated £183.

• Hayley Brember set up a MuchLoved Tribute page in memory of her husband and raised £9,049.06.

•

Hayley Brember organised a memorial rugby match and raised £3,733.50:

“After a promising start to the weekend, weather-wise, the day itself started badly with rain approaching biblical proportions all morning, but no one was going to let that stop them – oh no!

“Arriving first were about 75 players from the four clubs (Havant RFC, Warwick University RFC, Bracknell RFC and Farnham RUFC) of which Rich had been a member in his 27 years of rugby, all coming together to play as two barbarian sides.

“Players ranged from current levels 4, 5 & 6 of the RFU league structure to veterans and Mini & Junior age group teammates, some of whom hadn’t pulled on a shirt in anger for most of their adult life (now 33-34 years old).

“I think some of the players, who had put their hands up to play in memory of their friend and rugby brother, were secretly relieved that the conditions might slow the game down a bit and make the ground a bit softer! By kick off time the rain had eased to more drizzly conditions and by that time another 350-400 of Rich’s friends and their families had also turned up to cheer on the players and enjoy the other family-oriented attractions provided.

“It started with a minute’s applause in honour of Rich, followed by a moving poem (see below) specially written for the day, and the ceremonial kick off was taken by RWC 2003 winner Jason Leonard – for a prop, he makes a surprisingly good kicker!

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“The game was played over 3 x 30-minute periods with both rolling and mass substitutions taking place.

Considering the wet conditions, the unfamiliarity of the players with each other and the restrictions of either age or recent inactivity, the match was very keenly contested and entertaining to watch, with some good skills on display. It was played throughout in a spirit of fun but there were still some substantial hits going in. The sides proved to be very evenly balanced with both making good opportunities, although the final score of 75-75, whilst a fair outcome, probably reflected a bit of licence by the scorer.

“A brief talk by CRY Representative Graeme Attridge followed immediately after the match. After all the players and officials had showered and dressed there were first tributes to Rich from representatives of all four clubs, followed by a raffle with many donated prizes on offer, including several items signed by Jonny Wilkinson, specially for the occasion.

“There then followed an auction of a Farnham shirt, also signed by Jonny; a Harlequins shirt, signed by the Quins team; and 2 of the specially designed match shirts for the day signed by Jason; a barrel of beer contributed by the Hogsback Brewery, where Rich was a member of their ‘Tongham TEA club’, and a hog roast also contributed to the money’s raised, which is now just shy of £7,000 (with the possibility of some more to come in!)

Issue 77 | September to December 2018

Our Fundraisers Tackle hard but tackle fair.

Clean out rucks with measured care.

Smash up the middle like a rolling boulder.

Your mate with the ball, be on his shoulder.

Mark your man. Don’t let him through.

Look for gaps. There are but few.

If space before you does unfold, Run hard, run straight, run true, run bold.

Share your wisdom as and when.

There’s youngsters out to challenge men.

Then breathless, battered, come off the pitch And ask yourself, “Was I more like Rich?”

“All in all it was a very successful day, fulfilling the family’s aims of fondly remembering Rich in the rugby brotherhood that meant so much to him, raising awareness of the risks to young people and the importance of screening, and raising funding to support future screenings at the 3 community rugby clubs – albeit with a tinge of sadness that this event wouldn’t have happened without the loss of an amazing husband, son and brother last June at the age of 32.

“More action pictures from the match, courtesy of Mark Deller, can be found at https://bit.ly/2MCXFJc.” Hayley, Janet, Gordon, Chris, Lizzie and Emma Brember.

In Memory of

Sam Brighouse

Isobel Edward took part in the Shanghai Marathon 5k 2013 and raised £214.

In Memory of

Alexander and Derek BrinckJohnsen

Norma and Leif Brinck-Johnsen sent in £185, representing donations received in lieu of floral tributes in memory of their son, Derek.

In Memory of

Emma Broad

• St George’s College in Addlestone sent in £1,000 raised by the 6th year pupils.

Poem

• Mark Atherton completed the Challenge 52 and raised £2,633.21:

When a team mate leaves this place At sudden and unseemly pace, Though unjust and total madness, Let not your heart be gripped by sadness.

“At the beginning of the year I started a running challenge in memory of Emma Broad, who sadly passed away in her sleep in May 2011, aged just 16, as a result of sudden cardiac arrest. Emma was a member of Surbiton Hockey Club and I had the privilege of coaching her for a number of years.

Whatever your club, just give it all.

No smile too big. No job too small.

Care not the storm nor weather frozen, Do your best for the team you’re chosen.

“Emma was a beautiful and talented person. Her passion in life was hockey and she had played at Surbiton for many years, initially as a Colt before eventually breaking into the Ladies 1st XI squad. Representing England

#BeMoreLikeRich - Benjy Weeks (Farnham RUFC)

www.c-r-y.org.uk

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Our Fundraisers In Memory of

Daniel Brown

Loomis UK Limited sent in £250.

In Memory of

Danny Brown

• Richard Quin took part in RideLondonSurrey 46 and raised £875.

• Darren Davies took part in RideLondonSurrey 46 and raised £350.

Under-16 Girls, she scored a goal against Germany whilst competing in Valencia during the Easter holidays a few weeks prior to her death. She touched the lives of so many and is dearly missed.

“I initially set out to run the equivalent of a marathon distance for every week of the year (averaging 52 marathon distances in total in 2017) to raise awareness of the condition and much-needed funds for CRY. “After a positive start to my challenge, I recently completed the 1,363 total mile distance four and a half months ahead of schedule, and have now revised my challenge with a new target of running 2,000 miles in total by the end of this calendar year. For the past few months I have been averaging over 7.5 miles per day. So, if I miss a day, I know I will need to run a half marathon the next day to stay on track.

“So far this year I have gone through 5 pairs of running shoes and spent just shy of 200 hours on the road – from the streets of South London, to the rolling countryside of Wiltshire; from the beaches in Florida, to snow storms in North Carolina; from the old railway trails in Pennsylvania, to canal paths in Holland. I look forward to many more adventures on the road over the coming months and hopefully raising more money to support the charity’s work.

In Memory of

David Brown

• Andy Hewitt sent in £385 raised from climbing Scafell Pike.

• Team “Doing it for Diddy”; Amy Meadows, Lucy Meadows, Norma Meadows, Charlotte Smith, Owen Tull, Holly Meyer, Jack Roberts, Gemma Patterson, Jade Gilley, Kristy Gilkes, Rob Sellen, Freyja Jarratt, Clint Ward, Ben Harrow, Laura Pottle and James Pennington, took part in the CRY Heart of London Bridges Walk 2018 and raised £715.

In Memory of

Katrina Brown

CRY Patron Bill Neely took part in the Virgin Money London Marathon 2018 and raised £10,680.

“I am currently living in North Carolina, but will return to the UK in December where I plan to complete my challenge on New Year’s Eve this year.

“Update – 6/04/18 – My initial goal was to run the equivalent of 52 marathons over the course of 2017 (an approximate average of 4 miles a day for year). I ended up surpassing that, totalling 2,364 miles for the year (the equivalent total of 90 marathon distances – I was still a little disappointed as I had my heart set on reaching 2,500 miles, but I hurt my Achilles with a fortnight to go) and raised just over £2,500.”

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Issue 77 | September to December 2018

Our Fundraisers In Memory of

Leanne Brownhill

Lynne Brownhill held a summer ball and raised £900.

September 15th 2018 at the Beggars Reach Hotel and included a three course meal, entertainment from Lucy Jones, Sophie Adams, Matt Baker and DJ Rob Thomas, photography by Sam Walton, a raffle and an auction.

In Memory of

Nina Buck

Eleri Buck organised a charity ball and raised £3,300: “There is only one word to describe the night… UNFORGETTABLE! A night that will live in our memory forever and ever! Myself, Eleri Buck and one of my mum’s dear friends, Jane Williams, decided to team up this year to put on a charity ball to celebrate the life of my beautiful mother, Nina Buck. We decided this year would be the year to do it as it has been 10 years since she tragically passed away.

“This devastating major event happening in my life made me want to raise awareness and money for a charity related to Sudden Adult Death Syndrome (SADS) because I wanted to prevent this heart breaking situation happening to other families. We did not expect to lose my mum. She was such a fit, healthy, young and loving person, and before this devastating loss in our lives we were unaware that SADS existed. So I have been raising money for CRY since 2014 and feel that by doing this I am able to give something back to my mum for everything she did for me and my family.

“We couldn’t have had better support from people and are truly overjoyed by the generosity received from everyone before, during and after this journey. A huge amount of thank yous are needed to be said. First, to Gill and William, owners of the Beggars Reach and their staff for all their support throughout this journey; the local Pembrokeshire businesses; friends and family who donated raffle prizes; the just giving donations and cheque donations from The Masons and Llanstadwell church; all the performers who wowed with their amazing talents; Sam for capturing some really special moments; Nick Williams for holding the auction; our family for helping us on this journey; and all the 152 guests who shared the special evening with us.

“We definitely went all out to celebrate my mum’s life in style, and we have made a difference to so many people’s lives. We are still truly overwhelmed with all the love, support and messages we have received. But one thing was for certain after the night: that charity ball number 2 had to happen, and we can now confirm it will be happening on October 12th 2019. There is no better feeling than everyone getting together and raising so much money all at the same time.”

“The evening was more of a success than we ever could have imagined, raising a total of £3,300 for this truly amazing charity. All we wanted was everyone to be loving their lives and having a magical time. As you looked around the room you could see people smiling from ear to ear and enjoying themselves, but at the same time raising funds and awareness of CRY. The evening was held on

www.c-r-y.org.uk

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Our Fundraisers In Memory of

Alex Buckler

Rosalind and Charles sent in £375 raised at the annual Balland Bowmen Archery Shoot.

Craig Burling Memorial Fund. We had 9 Etas from around the country who gave up their time free of charge. The event was organised by my good friend Allison Laheney.

The show was a sell out by July. The event was fantastic and everyone was commenting on how great it was.”

Michelle Burling.

In Memory of

Jenny Bucknell

• Mr J B Benn donated £1,000.

• Hillary and Bill Durrant sent in £3,615 in memory of their granddaughter, including: £725 raised at the Chetsey Show; £650 from Hillary playing the harp at her friend’s Don and Janet Raddon’s 60th wedding anniversary celebration; £440 raised from pole lathe demonstrations; £100 donated in lieu of a birthday gift; £1,350 of donations raised from various fundraising supporters and events; £250 in lieu of gifts to celebrate Hillary’s birthday; and £100 from the Yeovil Inner Wheel.

In Memory of

Jordan Burndred

• Nicola Burndred sent in £4,039.01 raised by Sainsbury’s.

• Nicola Burndred sent in £246 raised from an Elvis night at the Barley Mow Pub.

In Memory of

Jordan Bullock

Gemma Thomas took part in the Great East Run and raised £1,024.

In Memory of

Craig Burling

Michelle and Eddy organised an Elvis night and raised £1,670: “On 13th October 2018, an Elvis extravaganza was held in Hull at the Ritz for the

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•

Heather Jordan sent in £179.80 raised at the Miss Staffordshire Galaxy Charity Chinese Night.

•

Lloyds Bank Foundation sent in a matched fund donation of £1,000 in respect of Richard and Maria Kettle’s charity cricket fun day.

In Memory of

Neil Burns

Graham and Jenny Loncaster sent in £125, representing donations received in lieu of floral tributes in memory of Jamie’s Grandfather, Neil.

In Memory of

Robert Burns

Doreen, Jimmy and Paul organised a music concert and auction and raised £650.

Issue 77 | September to December 2018

Our Fundraisers In Memory of

Nathan Butler

• Adam Alcock organised a charity cricket

day and raised £320.

• Angela Butler sent in a further £150 raised through their charity cricket day.

•

Will Clydesdale took part in the Great North Run 2018 and raised £500.

•

Philip and Angela Butler sent in £5,910 raised at the annual Nathan Butler Memorial Cricket Tournament:

“£5,910 is the amount raised at the recently held annual Nathan Butler Memorial Cricket Tournament on Sunday 26th August 2018. This is held every year and organised

by Daniel Hancock and Nathan’s friends. This is the 8th year we’ve held the charity day which consists of a fun day and cricket knockout tournament between 6 teams, which consist of local cricket clubs and most of the players are friends and family of Nathan: Trigger’s All Stars (Nathan’s nickname and captained by Nathan’s brother, Josh), Porthill Park Cricket Club (the club that Nathan played for), Audley, Longton, Cheadle and Wolstanton United.

“Every other year the weather has been kind to us, but not this year!! The rain started to pour and by 10:30 AM the rain was torrential and the cricket club was under siege as the rain just kept bouncing. But we didn’t give up, we just got our heads down, improvised and brought all the activities inside and waited to see how it would go.

“By 11 AM the cricket club was filling up with players, supporters, friends and family and the day just got better and better. The rain stopped and even the sun came out for a while. The cricket finally started at 4:30 PM, albeit with shorter games, with the final being won by Triggers All Stars for the third successive year. It was a fabulous day which went into the evening and the club was still bouncing with everyone singing on the karaoke late into the night.

“We are all absolutely blown away that when the chips were down due to the terrible weather, everybody still came along to support the day and to have fun and donated so generously – Nathan would be so proud!”

In Memory of

Andrew Button

Lynn Button took part in the Stirling Scottish Marathon and raised £2,538.50.

In Memory of

Stephen Byrne

Melanie Byrne sent in £120.70.

In Memory of

Nick Byrom

Debbie Fitch sent in £200 raised from a memorial football match and raffle.

In Memory of

Michael Cadman

Ian Cadman sent £148 representing donations received in lieu of floral tributes in memory of his mother and Michael’s granny, Elsie.

In Memory of

Yasmin Caldera

Team “Clare Chandler”; Clare Chandler, Philippa Chandler, Henry Chandler and Kay Piper, took part in the CRY Heart of London Bridges Walk 2018 and raised £250.

In Memory of

Alistair Calvert

Claus Coester sent in £100 in respect of Douglas and Joy Gordon’s 65th birthday celebrations.

In Memory of

In Memory of

Amanda, Laura and Cat took part in the Simplyhealth Great Bristol 10k and raised £680.

Penny Speller raised a total of £1,202.67 when running the London Landmarks Half Marathon 2018.

Nicola Butterell

www.c-r-y.org.uk

Arabella Campbell

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Our Fundraisers In Memory of

James Campbell

• Alexander Reed sent in £1,032.30

•

Zinovia Ltd donated £250.

•

Steve Pevsner completed the Isle of Man Parish Walk and raised £1,425.

raised through a walk from Newcastle to the top of Scafell Pike.

•

• Rebecca Kelly took part in the Great North Run 2018 and raised £540.

In Memory of

Karen Cambell sent in £1,940, including: £1,730 from organising ‘A Night at the Races’; £110 from a hanging basket raffle; and £100 donated in respect of James’s birthday.

Ray Newton sent in £1,236.50 from Lodge Hopetoun St John, No. 1232, raised through a sponsored walk.

David Cochrane

In Memory of In Memory of

Matthew Carscadden

Kirsty-May McKie took part in the CRY Heart of London Bridges Walk 2018 and raised £1,650.

Anna Vanessa Cole

Ally and team Lock Ness Monsters took part in Water Wipeout 2107 and raised £2,784.41.

In Memory of

James Colman

In Memory of

• Clare Perry held a football match and raised £600.

Steven Chalk

“Team Orion”; Jacqueline Goodchild, Victoria Chalk, Michael Goodchild, Jamie Hanks, Becci Tremain, Lee Barge, Ros Barge, Nicky Hanks, Ryan Hanks, Michele Neep, Adam Neep, Owen Goodchild, Yhenifer Garcia, Charlotte Lawrence and Belinda Lawrence, took part in the CRY Heart of London Bridges Walk 2018 and raised £1,293.

In Memory of

Anthony Child

Angela and Jack sent in £1,585 raised at their annual line dance disco.

• Maureen Brady sent in £2,000 raised during a Nailsea United Football Club fundraising event for Halloween, held at Grove Sports & Social Club.

•

In Memory of

Graham Courtney

Andrew Courtney and Catherine Courtney took part in the CRY Heart of London Bridges Walk 2018 and sent in £600.

In Memory of

In Memory of

Tom Clabburn and Claire Prosser

Bruce Cousins

• Jackie Cousins sent in £896.20, including: £346.50 raised from Bruce’s Annual Music Bash, and £549.70 from her market stall.

• Alice Horne took part in the Great North

Run 2018 and raised £466.

• Lizzi Zita donated £100 in appreciation of her daughter’s screening.

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Simon Long sent in £200.

•

Anne Wright sent in £200 donated by the Rawmarsh Methodist Church.

Issue 77 | September to December 2018

Our Fundraisers

•

Mrs Fereday and family sent in £253 raised from an Elvis Night, in honour of Terry Fereday and in memory of Bruce.

In Memory of

Stuart Coutts

Megan Coutts and Kieran Murray took part in the CRY Heart of London Bridges Walk 2018 and raised £270.

In Memory of

Freya Cox

•

Lydia Bockmuehl took part in Wimbledon Common Half Marathon and raised £1,735.

•

Mike Cox sent in £200.

•

Peter Hannant, Mike Cox, Pete Shaw, Andy Wilding and Pat McEnaney took part in RideLondon-Surrey 100 and raised £6,145.

•

Mark Rose took part in RideLondon-Surrey 100 and raised £650.

•

Bethany Sadler took part in the Great Birmingham Run and raised £805.

•

Alex and Jenny completed a ‘10k a Day Challenge’ and raised £1,434.07 in memory of Cal Ballantine.

www.c-r-y.org.uk

•

George, John, Edward, Alfie and Kieron took part in the Southampton Half Marathon and raised £1,110.

•

Lily, Anna, Caitlin, Becky and Mark took part in the Simplyhealth Great Bristol 10k and raised £1,136.

•

Team “Crossing Bridges for Freya” sent in a further £440 raised from the CRY Heart of London Bridges Walk 2018.

•

Emma Chittleburgh took part in the Simplyhealth Great Bristol 10k and raised £586.37.

•

Maria Burns took part in the Simplyhealth Great Bristol 10k and raised £420.

•

Olivia Cooke took part in the Simplyhealth Great Bristol 10k and raised £769:

“We did it! Under the blistering Bristol sun, we all managed to complete the Great Bristol 10k in under an hour and a half. We couldn’t have done this run without all the support of friends and families, who helped cheer us on from the sidelines and who have also donated to CRY. “Collectively, we have all raised over £2,500 – an incredible amount of money that will be invested in helping prevent unexpected cardiac-related deaths.

“Most importantly, we must not forget who we ran the race for – our most amazing friend, Freya Cox. Tragically, Freya passed away from an undiagnosed heart condition. We would like to thank the entire Cox family for supporting us throughout our fundraising efforts and on the day of the race itself.

“We will never stop running for Freya, and we look forward to our next fundraising challenges for CRY in the future.”

Olivia Cooke.

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Our Fundraisers In Memory of

In Memory of

Rowena Crabb-Minshall

Richard Credland

Jane Wylde-Minshall raised £269.27 in memory of her daughter.

In Memory of

Matthew Cragg

• Paul and Debbie Cragg sent in £1,200

raised at the Cobham Dads Golf Day.

Jo-Anne Credland took part in the Race to the Kings and raised £385.

In Memory of

Phil Cross

Steve Jones, Victoria Cross and Nicola Salzl took part in the Virgin Money London Marathon 2018 and raised £17,002.

• Graham Philip organised the Cobham RFC Dads Golf Day and raised £3,300.

•

CRY Patron Jack Clifford sent in £114 raised through the sale of kit.

In Memory of

Charlie Craig

• Hayley Oldham sent in £500 on behalf

of Laser Quantum LTD (Benson Family).

• Ewan Mackie completed an Everest challenge and raised £1,325.25.

•

Matthew Lynn took part in the Great North Run 2018 and raised £510.

•

Sue and Arthur completed the Sea to Summit Triathlon and raised £500.

•

Jon Moyle completed a walk and canoe challenge and raised £150.89.

•

Imelda Munro sent in £200.

•

Amanda Braithwaite took part in the Great Manchester Run Half Marathon and raised £401.

In Memory of

Ben Crean

Jennie Crean forwarded a donation of £100 raised by Cushion Plus through holding a yard sale.

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In Memory of

Jonathan Crowhurst

Mary Crowhurst, David Crowhurst, Holly Bunning, Brian Bunning, Reuben Bunning and Elijah Bunning took part in the CRY Heart of London Bridges Walk 2018 and raised £685.

In Memory of

Robert Crozier

•

Angela Crozier took part in the Reading Half Marathon and raised £806.92.

•

Baise and Annabelle Jenner sent in £1,232.44 raised through an anniversary party.

In Memory of

Robert Crozier and Simon Tweedie

Marco Del Toro took part in RideLondon-Surrey 100 and raised £885.

Issue 77 | September to December 2018

Our Fundraisers In Memory of

Dominic Cullen

Lee Bayliss took part in a white collar charity boxing match and raised £1,655.

In Memory of

Steve Cummings

Team “Bravehearts”; Danielle Cummings, Christopher Meade, Noah Meade, Kevin Dawson and Tina Dawson, took part in the CRY Heart of London Bridges Walk 2018 and raised £515.

In Memory of

Adam Dabell

John Dabell oganised the Adam Dabell Memorial Match and raised £400: “On the evening of Thursday 11th October, East Grinstead Town Football Club were host, once again, to the 15th annual ‘Adam Dabell Memorial Cup and Trophy’ football match between Imberhorne and Sackville schools – in celebration, once again, of the life of my son, Adam Dabell, and to raise voluntary contributions for the charity CRY. “In front of a large crowd of mainly our town’s wonderful young people, Imberhorne took the cup and trophy, beating their Sackville friends 2 – 0 (reversing last year’s result!).

“Once again the crowd looked forward to enjoying an evening of great sportsmanship and the two teams did not disappoint, coming out at the start of the evening looking evenly matched and, with the great skill we have come to expect, entertaining us all with 90 minutes of terrific football.

“Steve Hill (School Sports Coordinator) reports: “Imberhorne 2 – Sackville 0 After an early exchange of chances at both ends, Imberhorne started to exert some dominance on proceedings. Thanks to some diligent defending at the back from Henry Lester and James Campbell the attacking players were more able to build through midfield with some neat inter-change of passing to create a number of clear-cut chances. The first chance to be taken was by Imberhorne midfielder, Ben Manning, who calmly slotted home into the bottom left hand corner after a set-

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Imberhorne (top) and Sackville (bottom)

piece scramble in the Sackville box. Sackville then had a chance to hit back immediately with a penalty awarded for a foul right on the edge of the box. Imberhorne Keeper, Matt Crofts, stayed strong and saved the spot-kick. With Imberhorne now showing more confidence with their range of passing, a fantastic through ball from Lewis Michael set Man of the Match, Ben Remfry, through on goal. With superb vision and assurance, he chipped the on-rushing keeper from 25 yards. At 2-0, Imberhorne created two more really good chances before half time, but couldn’t take advantage of their best spell of the game.

“The second half proved to be a much more even contest, with Imberhorne happy to soak up the pressure and hit Sackville on the break. There were good chances at both ends, but both goalkeepers pulled off some great saves.

“Fantastic effort from both teams! Thanks to Richard Tramontin and EGTFC and the fans that showed respectful support throughout. It was another hugely successful evening for both schools and indeed the local community as a whole, physical and skilful. Imberhorne are currently leading 9-6 in the overall head to heads. Watch this space!

“Rex Whittaker, our Town Mayor, who always attends for

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Our Fundraisers the entire evening, had photos taken with both teams and presented the Cup, Trophy and medals at the end.

In Memory of

“As always, he had been most impressed with the standard of the football and by the fantastic spirit of the young people of the town, attending this now well-known community event.

Ann Bath raised £145.80 through cake sales at 26.2 RRC Running Club.

“Thank you, as always, to Richard Tramontin and EGTFC for their kind support of this annual memorial event in memory of Adam, and also to Steve Hill, the West Sussex Sports Coordinator, who, with Simon Bunn, originally had the idea for the match. I spoke briefly to declare the event another huge success and asked that everyone dig deep in support of the CRY charity.

In Memory of

Andrew Dawson

Anthony Dawson

Miss L Stevenson sent in £448.45, representing donations in lieu of floral tributes in memory of her partner, Anthony.

“It is now 14 years since the death of Adam to an undiagnosed heart condition. Indeed, Steve himself was only last year diagnosed and, thankfully, is now fully recovered, following an operation to rectify just such a heart condition.

In Memory of

Thomas Day

• Daniella Colton raised a total of £932 when running the London Landmarks Half Marathon 2018.

“Voluntary contributions on the night of the match, plus donations from Adam’s family, raised £500 for CRY, for which we are very thankful.”

In Memory of

Ben Daniels

• Chris Summers took part in the Virgin

Money London Marathon 2018 and raised £2,016.15.

• Peter and Dianne Mendham sent in £500 from Octopus Investments in respect of their Big Heart Bike Ride in Costa Rica.

•

Chislehurst and Sidcup Grammar School sent in £5,060.

•

Jack Doyle took part in the London Landmarks Half Marathon and raised £400.

In Memory of

Neil Darby

•

Nicole Collingwood completed a skydive and raised £482.

•

Mr Harrison donated £2,500.

•

Heather Darby forwarded donations totalling £265.

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• Catt Lloyd took part in the Hackney Half Marathon and raised £520.

In Memory of

Shawnton De Four

•

Susie De Four, Marianne De Four, Henry De Four, Kate Brown, Simon Brown, Matilda Brown and Darcey Brown took part in the CRY Heart of London Bridges Walk 2018 and raised £340.

• Martin Docherty

sent in £500 from Rosslyn Park Nomads (Old Boys).

• Matthew Hearsum

sent in £1,220 from Emanuel 2XV and Rosslyn Park Nomads, raised at the Annual Shawnton Memorial Match: “Old Emanuel 2nd XV played Rosslyn Park Nomads in the 2nd Annual Shawnton Memorial Match in memory of Shawnton who passed away

Issue 77 | September to December 2018

Our Fundraisers whilst playing in a second team fixture v Rosslyn Park in 2017.

Despite the best efforts of both teams on the day administering CPR and a defibrillator, we couldn’t help him.

It later transpired that Shawnton had an undiagnosed heart defect. To raise awareness of conditions like Shawnton’s, we invited CRY as our guests to speak to a packed clubhouse.

“Through these unfortunate events, a bond has been formed between our two clubs, Old Emanuel and Rosslyn Park Nomads. Despite OEs winning the match 27-5, the Rosslyn Park Nomads are a great bunch of guys who supported this match with an absolute classy contribution to the evening. They supported us with auctions prizes and, collectively, we have raised £720 + £100 advertising.

Also, their old boys had another whip round and raised a further £500, generating a total for the evening of £1,320 for CRY. “The game and the evening were a fitting tribute to Shawnton and to raising awareness of heart defects in the young/the importance of early screening.” Simon Parley.

Bounceathon’ and raised £130.

•

Sarah Hughes organised a charity bounceathon and raised £518.

•

Euan and Max took part in the Potters Arf Junior Run and raised £320.

In Memory of

Thomas Demaine

• Ann Drew sent in £100.

• Ann Demaine sent in £2,074.42, including: £558.69 raised through a bag pack event at Tesco St. Austell; £349.59 from bag packing at Liskeard Morrisons; £20.73 from Saltash Dental Surgery; a donation from Mandy Beall; £43 from a stall at Truro; £57.55 from various other fundraising; £160 from the annual alumni match organised by Dan Vowles at Plymouth and Exeter RFC; £23.34 from a collection tin at Paul Bray Buchers; £211.90 from a non-uniform day at Sir Robert Geffery’s Primary School; £43.54 from collection pots in Liskeard; and £606.08 from Cllr Jesse Foot from Community chest, St Germans and Landulph.

In Memory of

Reginald George de la Perrelle

Mrs L Morris sent in £435 representing donations received in lieu of floral tributes for her father.

In Memory of

Kevin De Silva

Naomi De Silva took part in the Virgin Money London Marathon 2018 and raised £2,211.20.

In Memory of

Jake Dean

• Marie and Lacie completed a charity ‘Boogie Bounceathon’ and raised £105.

• Janine Dean took part in a charity ‘Boogie

www.c-r-y.org.uk

49

Our Fundraisers In Memory of

Matthew Dewhirst

• Sue and Chris Dewhirst sent in donations totalling £9,787, including: £1,500 from Shropshire Swimming Association; £687 from screening donations at Ellesmere; £4,000 raised by Cheshire Cricket Club; £500 won in a raffle by Jane Chewins; £2,100 from Ellesmere Rotary Club Regatta; and £1,000 from Kandy Toys.

•

Deborah Dixon forwarded donations totalling £132 raised from a screening at The Grange School.

•

Carbon System Homes donated £5,000.

In Memory of

Matthew Dewhirst and Aaron Dixon

Deborah and Gary Dixon and Sue and Chris Dewhirst organised a gala ball and raised £18,000: “It was following the representatives meeting in January 2017 that we both decided to organise a fundraiser to provide core funds to CRY. To maximise the profit potential, we approached The Grosvenor Hotel, Chester, a Michelin starred hotel and restaurant, where we felt that guests would be prepared to pay a premium price.

“We were lucky to secure a range of fabulous prizes and gifts for the auction and raffle, and BBC auctioneer Christina Trevanion was able to attend the evening to officiate the auction. Prizes included a framed signed Manchester United shirt, a framed signed Freddie Flintoff Woodworm cricket bat, a bespoke piece of art from Lyn Evans, and a piece of jewellery from CarterGore.

“The auction alone raised £6,500 with 7 items. A further £2,955 was raised from the raffle draw. The JD Foundation, who had been working closely with the Dixon Family, also supported us with valuable auction gifts and

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proceeds from a monthly sale totaling £4,000.

“A local Shropshire artist, Lyn Evans, known for her torn paper art, gifted a bespoke piece, Ticker, depicting an imperfect heart and time.

This piece raised £2,400 in the auction and is now being used to provide limited edition goods to raise funds for the Matthew Dewhirst Memorial Fund.

“175 attended the evening and were entertained during the reception by Alex Crow, a superb mind reader and latterly with a cabaret and disco by Daniel Joseph, a friend of Aaron Dixon’s. School friends of Aaron and Matthew attended the evening.

“Prior to the auction starting, Charlotte Carney, a young lady from Cheshire who had been screened by CRY and was found to have a life-threatening issue that resulted in her having a heart transplant, relived her story and really helped to emphasise the need for screening of all young people and how vital the work of CRY is.

“We hope all the money can help with research funding.”

In Memory of

Luke Dickinson

The Green Squirrel Pub sent in £100 raised from a collection box.

Issue 77 | September to December 2018

Our Fundraisers In Memory of

In Memory of

Aaron Dixon

Harry Dubois

• Tania Lambert took part in the Virgin Money London Marathon 2018 and raised £2,777.40.

• Vicky Scott took part in the Virgin Money London Marathon 2018 and raised £1,932.25.

• John Hassell took part in the London Marathon 2018 and raised £2,435.

•

A + E Networks sent in £400.

•

Deborah Dixon sent in £923.65, including: £546.62 in donations; £111.88 from a collection box at The Cutting Lounge; £133.15 from Barnshaw Smithy in Mobberley; and £132 raised from a screening at The Grange School.

• Luk Ying Brown and Nick Brown took part in the Virgin Money London Marathon 2018 and raised £1,111.

•

In Memory of

Emily Dunn

Vincent Bassien-capsa, Natasha Dunn and Suzi Gould took part in the CRY Heart of London Bridges Walk 2018 and raised £155.

In Memory of

Adam Donnelly

• Joe Regan took part in the Prudential RideLondon-Surrey 100 and raised £270.

• Julie Donnelly organised a memorial ball

and raised £1,650.

Mario, Sarah, Jim, Dan and John took part in the Great Manchester Run and raised £630.

In Memory of

Anne Eaton

Matthew Kurlapski sent in £100.

•

Gabrielle Clark took part in the Bournemouth Marathon and raised £550.

•

St Thomas More RC Comprehensive School held a dress down day and raised £1,000.

In Memory of

•

Sandra Perrin and Jessica Perrin took part in the CRY Heart of London Bridges Walk 2018 and sent in £105.

Jane Edgar completed a skydive and raised £650.

Nigel Edgar

In Memory of

Gary Edwards

In Memory of

• Holly Cook organised a coffee morning and raised £389.32.

Adam Drawbridge

Kathleen Fleming donated £150 in memory of her great nephew.

• Joanne Rogers took part in the Taunton Half Marathon and raised £220.

•

Sam Godfrey sent in £275.43.

•

Hilary Edwards sent in dontations totalling £194.

In Memory of

•

Eleanor Rolf sent in £570 raised from a swimathon at St George’s Catholic School:

Midloathian Swimming Club raised £451.25.

“I went into St George’s School and gave a presentation

Andrew Drysdale

www.c-r-y.org.uk

51

Our Fundraisers raised at the pub games night; £152 raised through a Birds of Prey afternoon; £100 from Mick and Sandra Sockett, in memory of their son, Sean, Rory’s best friend at junior school; £938.20 raised through a bucket collection at Wakefield Trinity Rugby League club; and a further £104.70 raised by Angel Wings in Hemsworth.

In Memory of

Rachel English

Kathryn Saxton sent in £250 in memory of her niece. about Gary Edwards and explained that he was a former pupil at the school. Mrs Rolf, a teacher, and the children in class 5 listened, and told me that they would like to fundraise in Gary’s memory, to contribute towards having a local screening session. The children themselves decided to have a sponsored swim in the school pool.

In Memory of

Sebastian English

• Wynne Owens sent in £200 in remembrance of Sebastian’s 30th birthday.

“On 28th June, the swimming took place and on 12th July the children counted the sponsorship money and they raised an amazing £515 for the charity!

• Richard Kinber completed the LWC MooCOWSBY Cycle Tour and raised £785.

“I was honoured to be asked to return to the school to give a £10 book token prize to Sreenidhu for raising the most money, and to give special thanks to Toby for his help with organising this.

In Memory of

Sebastian and Howard English

“Well done, class 5 at St George’s School!” Hilary Edwards.

In Memory of

Rory James Embling

• Angel Wings Floral in Hemsworth organised a bun and cake sale and a raffle and raised £150.

• Ackworth Junior Football Club Under 9’s sent

in £184 raised at their Junior Warrior Event.

•

Carol and Paul Vogel organised a Mad Hatter’s Tea Party and raised £256.

•

Michael Steer organised a rock and pop quiz and raised £425.

•

Wayne Mills took part in a skydive and raised £1,036.39.

•

Chris Embling sent in £1,697.40, including: £402.50

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• Sally Heslop took part in the Madrid Half Marathon and raised £780.

•

Jonathon Barnes took part in the Virgin Money London Marathon 2018 and raised £2,824.55.

In Memory of

Guy Evans

Beth Chesney-Evans sent in £125.07 raised from collection boxes at her recent screening event.

In Memory of

Sean Farrell

Lisa Sullivan took part in the Great North Run 2013 and raised £170.

Issue 77 | September to December 2018

Our Fundraisers In Memory of

In Memory of

Craig Robinson sent in £772 raised by Team22.

“Team Jez”; Vivienne Hynam, Victoria Hynam, Allison Hynam and Len Benton, took part in the CRY Heart of London Bridges Walk 2018 and sent in £589.78.

Mickey Faulding

Jeremy Feakes

In Memory of

In Memory of

Harry Faulkner

Josh Fell

• Helen Vaites took part in the Virgin

The Technical Lodge of Freemasons sent in £500.

Money London Marathon 2018 and raised £1,960.

• Stefan Klasener took part in the Virgin Money London Marathon 2018 and raised £525.

•

Libby Karmock raised £1,320 from a skydive.

•

Xena Marshall sent in £250 from the Forest Hall Slimming World.

•

Julian Craxton sent in a further £100 raised at the recent Radlett Junior Squash Tournament.

•

Kathryn Harvey took part in the CRY Heart of London Bridges Walk 2018 and raised £215.

•

Julian Craxton sent in £100 raised from the Radlett Junior Squash Tournament.

•

Jack and Holly organised a stall at their school Christmas fayre and raised £70:

“Back in November, two young children that I have taught gave up their Saturday morning to raise money for Harry’s fund. They had a stall at their school Christmas fayre and sold clothes, books and toys that they themselves had grown out of. What was so heart touching was that they themselves asked to do it and donate the money.

“Jack and Holly, you are both very special children and have touched my heart with your kindness. Well done for raising an amazing £70.”

Donna Faulkner.

www.c-r-y.org.uk

In Memory of

Michael Fisher

Stephen Fisher organised the Michael Fisher Memorial Trophy and raised £3,445.

In Memory of

Anthony Fitzgerald

• Marie Fitzgerald sent in £1,667.

• Kiley Ganderton, Christopher John EllisKeeler, Ben Jacobs, Darsh Dhillon, David Lloyd, Simon Vevers, Nick Blomfield, James Vevers and Anthony Britch, took part in the Prudential RideLondon-Surrey 100 2018 and raised £11,895.

•

Steven Murphy took part in RideLondon-Surrey 46 and raised £514.92.

•

Alison Fitzgerald took part in RideLondon-Surrey 46 and raised £976.

•

Benjamin Walker sent in £800 raised from a shirt auction held by the British Lions.

•

Blackfen School for Girls sent in £7,754.07.

In Memory of

Nolan Foley

•

David Foley raised £1,053 through his JustGiving page.

•

Andy Scott took part in the London Triathlon and raised £378.

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Our Fundraisers In Memory of

In Memory of

Andy Forbes

Matt Gadsby

Team “Family Forbes and Friends”; Sophy Forbes, Olivia Forbes, Harry Forbes, Paul Stedmon, Monique Stedmon, Julie Kemp, Neil Kemp, Louis Kemp and Maisie Kemp, took part in the CRY Heart of London Bridges Walk 2018 and raised £3,495.

David Davies sent in £100 raised at the annual Matt Gadsby Memorial Trophy game.

In Memory of

In Memory of

Jaimie Gault

Sophia Forrester

James and Margaret sent in £150 raised in lieu of sending Christmas cards.

Frances Mihailovic and Lucy Greenwood took part in the Great North Run 2018 and raised £170.

In Memory of

Salena German

In Memory of

Ben Forsyth

Jackie German sent in £150.

• Sarah Ingle sent in £250.

• Emma Borthwick sent in £160 raised from the Scottish Student Sport Criterium Championships.

•

Hannah Ginsberg raised £2,870, in lieu of gifts for her birthday, in memory of her boyfriend.

•

Colin Hamilton sent in £150.

•

Peebles Cycling Club raised £359.50.

In Memory of

Alex Girling

Mrs Girling and Nikki Astridge sent in a total of £2,179.75.

In Memory of

Phillip Goillau

In Memory of

Laura Fox

Andrew Warner took part in RideLondon-Surrey 100 and raised £700.

Kate Fox sent in £107 raised by Wickham Market Fish and Chip Shop.

In Memory of

Ashley Goodwin

• Julie Saysell sent in £200 from Abacus Upholstery Contracts Ltd.

In Memory of

Jay Futter

Heidi Bull raised £1,315.99 through her JustGiving Page.

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• Gayle Narbeth sent in £200.

•

Linda and Geoff Goodwin sent in £114 raised from car boot sales.

Issue 77 | September to December 2018

Our Fundraisers In Memory of

Matthew Gore

Santander Written Complaints Team sent in £370.20 raised through a dress down month at Santander.

In Memory of

James Greenwood

Shelagh Green sent in £100.

In Memory of

Kayleigh Griffiths

In Memory of

Jordan Grant

Lisa Grant sent in £16,980.05 raised through various events.

In Memory of

Ethel Gray

Mr P Gray sent in £110, representing donations received in lieu of floral tributes.

•

Danielle and Vanessa organised a charity football match and raised £2,555.60.

•

Ryan Griffiths took part in the London Marathon 2018 and raised £3,008.58

•

Wendy and Leon sent in £332 raised by Melissa at McColls in Witham, through a raffle and ‘guess the number of sweets in the jar’ for Halloween.

•

Wendy and Leon organised a charity football match and raised £119.22.

In Memory of

Henry Grootveldt

In Memory of

Natasha Gray-Cowley

•

Nigel Oxley took part in the London Marathon 2018 and raised £3,155.40.

•

Jo Spray took part in a 34km exercise bike challenge and raised a further £1,503.64.

In Memory of

Adam Green

• Tom Green took part in the Market Drayton 10k and sent in a further £295.

• Bill and Diana Green took part in the

Carten 100 Cycle and raised £575.

In Memory of

David Green

Gabby Broadhurst took part in the Bognor 10k and raised £693.

www.c-r-y.org.uk

Georgina Barry took part in the Bath Half Marathon and raised £338.

In Memory of

Michael Grundy

Eileen Grundy sent in £230, representing donations received in lieu of floral tributes in memory of her mother and Michael’s grandmother, Alma Dain.

In Memory of

Matt Hadfield

Andy Hint took part in RideLondon-Surrey 100 and raised £1,715.

In Memory of

James Haggerty

Beth Phillips took part in the Chelmsford 5k Inflatable Run and raised £175.

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Our Fundraisers In Memory of

In Memory of

Field Systems Designs Ltd in Dorking organised a family fun day and raised £2,366.66.

•

Spencer Smith took part in the Potters Arf marathon and raised £246.13.

•

Angela Hancock sent in £703.06, including: £250 from Biddulph Male Voice Choir Concert; £108.50 from Anne Barber and Joan Bennett through a craft stall; £314.83 from screening donations; and £29.73 from a Congleton Garden Centre collection pot.

Phillip Haines

Mark Hancock

In Memory of

Cathy Hall

Chris Hughes raised £220 from his Snowdon climb.

In Memory of

In Memory of

Megan Harding-Jones

Joseph Halliwell

• Daniel Kehler sent in £628 raised from a charity and memorial show.

Mr Rathod sent in donations totalling £100.

In Memory of

• Katharine and Perry Harding-Jones sent in £133 raised from a collection pot displayed at Brooke Farm Equestrian Centre.

•

Ben Hammond

• Ashleigh Thorp took part in the KM

In Memory of

Charity Colour Run and raised £138.25.

Thomas Hardman

• Sheralyn and Stephen sent in £500 from

• Charlotte Burrill took part in the TH96 Fun Run and raised £1,133.

the Cornwallis East Kent Freemasons’ Charity.

•

Lauren Roberts took part in a 5k run and raised £120.

•

Liam Mowl sent in £422.83 raised via BT MyDonate.

•

Nick Vincent took part in the Great North Run 2018 and raised £455.

In Memory of

Kyle Hancock

• David Pendleton took part in a skydive and raised £971.25, including a match fund donation of £355.75 from Freightliner, David’s employer.

•

Chris Hudson completed ‘Chris’ Challenge: Planes, Taxis, Feet (and paws) and raised £13,234.51.

•

Bamford Parochial Church Council sent in £500 in respect of Chris Hudson’s challenge.

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Katherine and team took part in the Thames Path Challenge and raised £3,055.

• Samuel Gill took part in the 2018 TH96 Fun Run and raised £110.

•

Jacqueline and Hayley took part in the 2018 TH96 Fun Run and raised £137.83.

•

Mike Jackson took part in the 2018 TH96 Fun Run and raised £100.

•

Adam Seville took part in the 2018 TH96 Fun Run and raised £445.

•

Chris Hardy took part in the TH96 Fun Run and raised £630.

•

Margaret and Richard Hardman organised the sixth annual cricket match and raised £1,550:

“This was the sixth annual cricket match arranged

by The Heywood CC Patio Supporters and family and friends in memory of Tom Hardman and Trevor Jones.

The event took place on August 26th at Heywood CC in

Issue 77 | September to December 2018

Our Fundraisers In Memory of

Richard Harwood

• Michele Smith sent in £125.

• Mrs A L Dickinson sent in £1,656.31, representing donations received in lieu of floral tributes in memory of her son.

In Memory of

front of a sizeable crowd who came out to show their love and support for both Trevor and Tom, as well as giving generously to the charity CRY. The day consisted of a barbeque, refreshments, tombola, raffle, glitter tattoos and games for children.

“Tom’s sporting passion was cricket. He started playing at Heywood CC from the age of 8 and went on to play for a number of other clubs, including Clitheroe, Longton and Middleton. Tom was selected to play for Lancashire Academy and 2nd team. Trevor was a fantastic character and keen supporter of cricket, spending many hours down at Heywood CC chatting and exchanging friendly banter with everyone that passed his way.

“This year the score stood at 3-2 to The Lemons and, as always, the game was played in an excellent spirit, with both teams competing fiercely (with fun, laughter and lots of banter). Each team consists of 15 with each player having to bowl 2 overs. A thrilling, high scoring match saw the game go in favour of Eggers Eleven, making the series all square at 3-3. Every year the weather approaching the event has not been favourable, but on the day the event has always gone ahead and we feel that both Trevor and Tom influenced this. Another wonderful day raising lots Man of the match Kevin Moran of money for CRY.”

In Memory of

Graham Harrison

• John Headlam sent in £290.

• Driffield Town Cricket & Recreation Club

organised a 24-hour tennis marathon and raised £621.23.

www.c-r-y.org.uk

Jennifer Hawes

• John Hawes sent in £500.

• Gill Darnell organised a church tea party and raised £294.

In Memory of

Sarah Hayes

•

Helen Hayes sent in £481 raised from the proceeds of a ‘Recycled Crazy Golf Weekend’, and a further donation of £30 from a collection box at the Cheshire Chase Inn.

•

Rachael Hayes sent in £285 raised from selling her Little Fox drawlowen illustrations.

In Memory of

Jonathan Hayman

Marion Hayman sent in donations totalling £132.

In Memory of

Becky Heathcote

Mrs Mace sent in £100 in memory of her granddaughter.

In Memory of

Kallista Lily-Ann Heavey

Thelma Twigg sent in £215, representing donations received in lieu of floral tributes in memory of Kallista’s great grandmother, Mary Twigg.

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Our Fundraisers In Memory of

Luke Henney

• Sandra and Stuart George sent in £150 raised in lieu of gifts to celebrate their ruby wedding anniversary.

• Kay Ruff organised a charity football day and

raised £500.

•

Towers & Gornall held a stand at the Gt Eccleston and Garstang agricultural shows and raised £133.35.

•

Kirsty and Lloyd took part in the Preston 10k and raised £374.

•

Nathan’s Wastesavers sent in £180.

•

Paula Hesmondhalgh sent in a further donation of £9,754.16 raised from the Scarecrow Festival and quiz night:

“Garstang Town Council organised its first ever Scarecrow Festival this summer and chose Matt’s fund at CRY and Macmillan in the Northwest as their official charities.

They asked a group of four local ladies, known as Team ShazzAnn, who do a lot of fundraising for different causes to help them. As well as the Y3P challenge for 50 walkers, there was also a huge raffle at the festival itself (raising £1,500), a quiz night and several other fabulous fundraisers within the community.

In Memory of

“Yesterday, Barry, Zoe and I attended a presentation where Macmillan and CRY were each given cheques for £8,990. At the three-day Scarecrow Festival Team Matt also had our own stand. Visitors were invited to choose one of the 500 homemade gingerbread scarecrows and to decorate it for a small donation. We also sold handmade scarecrow cards, fabulous corn dolly earrings and CRY merchandise.

Matthew Hesmondhalgh

• Norma Keohame sent in £1,000 on behalf of inFocus (Gt Eccleston) Ltd. • Barry and Paula Hesmondhalgh sent in £138.

•

Nicola Clark took part in the Virgin Money London Marathon 2018 and raised £2,061.

•

Team Matt organised further fundraising and raised £601.72.

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Issue 77 | September to December 2018

Our Fundraisers In Memory of

“It was a fabulous three days; people came from far and wide to the festival. We heard some sad stories of others who had been lost to young sudden cardiac death, we heard some brilliant accounts of how people had been helped by CRY and we raised £729.16 to boot! We cannot thank everyone who was involved with this enough. So many generous people put in so much time and effort for the benefit of others – amazing!” Paula Hesmondhalgh.

•

Nikkita Haymes took part in the Rust2Rome challenge and raised £390:

“With a team name of Weed it and Reap, 2 gnomes (aka Nikkita Haymes and Chris Ainsworth), Monty the mole, Silver the Ford Mondeo and Rebus the CRY mascot teddy drove 3,300 miles across Europe in 10 days whilst taking part in the Rust 2 Rome challenge, and raised a fabulous £640 for CRY in memory of Matt.

Altogether 42 cars took part, each bought for under £500. Some represented charities, others were just doing it for fun, and fun is definitely what team Weed it and Reap had as you can see from the snaps.” Paula Hesmondhalgh.

Laura Hillier

• Tony and Joan Hillier sent in £712.67, including: £548.97 from a CRY stall, and £163.70 from Tony and Linda Perrett’s vintage vehicle and steam traction engine display.

•

Michael and Daphne Wreford donated £600 in lieu of gifts at the 50th Wedding Celebrations.

•

Joan and Tony Hillier sent in £127 from Mrs Jean Tildesley.

•

Dan Henderson took part in the Bank of Scotland Scottish Half Marathon and raised £560.

In Memory of

Nicholas Holland

Gemma Holland sent in £300 raised through fundraising at her workplace.

In Memory of

Fay Howell

Clare Starr organised a footy fun day and raised £3,750.11.

In Memory of In Memory of

Matthew Hesmondhalgh and David Quinney

Paula Hesmonhalgh sent in £673 raised from holding two ‘past and present’ market stalls in memory of Matthew and David.

In Memory of

James Hick

Steve Walton took part in a triathlon and raised £170.

www.c-r-y.org.uk

Dylan Howells

•

Cadi and Gruff Howells took part in the Isle of Wight Challenge and raised £1,419.50.

•

Andrew Dallimore took part in 12 half marathons in 12 months and raised £425:

“Well, in January, my mate and I decided we needed a long-lasting challenge that would ensure we were busy in 2017. We decided we would do 12 half marathons in 12 months. Finding events these days is easier than ever, but fitting them in is another thing!

“Our first run took us to Blackmore Vale in Dorset, 5th February, on a freezing cold day. The run was good and we trotted around together to get the first one off the list.

“March was an interesting month, with three runs booked in for three weeks on the bounce. Firstly, off to Colchester,

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Our Fundraisers Essex, 12th March, for more cold but perfect running conditions, with friends from Essex. The New Forest tracks next, 18th March, across some splendid scenery and mud! But it was a really friendly, small event. For the third run this month it was off to Yeovil, 26th March, which was hilly and very busy. It was another really well-organised and varied route which took in so much scenery.

“On 23rd April we set off to Southampton for a big running event. There were some fabulous views over the river Itchen over the bridge – a real treat.

came in! It was an interesting route and had more great views across the Solent.

“That was it, 12 done. Over 150 miles covered and lots of training – not sure where 2017 went?

A massive thanks to CRY for the support throughout. I’m really proud to have worn the CRY t-shirt and helped spread the word a little about the cause and such a great charity. This has all been in memory of my brother-in-law, Dylan – so cruelly taken. Also, my amazing sister has been SO strong throughout – very proud of you, Sis, you’re amazing! Ready for the next challenge?”

“On 28th May we ended up doing the Casterbridge half in Dorchester with the White Star Running events – a real hoot and a very sociable event with perfect food stations and beer! Say no more – booked this again!

“In June we had a bit of a break, but 30th July saw the aptly named ‘Dorset Invader’ near Blandford, which was the longest half marathon I’ve ever heard of at 14.5 miles.

It was a very muddy, hilly and very fun event.

“The hilliest event was now upon us. The Camelot Challenge in Sherborne, 23rd September, seemed to take us on every hill in the vicinity, but there was great cake at the end!

“Nearer home brought us to Bournemouth on 8th October on a very chilly but still day. Running on the headland and next to the beach was perfect. There was great crowd participation too.

“Next, double-figures and a back-to-back run; first Dorney Lake, 18th November, followed by Gosport the next day.

In Dorney Lake it was even more special as my sister came and shouted me on, which made my day! Wet and cold, but at least it was level. A quick turn-around and off around Gosport. The views were splendid running beside the Solent, and with the weather clearing from the previous day we had done the double!

“The last run was a festive half in Portsmouth, 17th December, and the Santa hat was on! The route took us through the harbour (muddy again) before the tide

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In Memory of

Alex Hubbard

•

Sam Barnes completed 180 miles in nine days and raised £2,028.50.

•

Jon Hedge took part in RideLondon-Surrey 100 and raised £250.

In Memory of

Mark Hudson

Phil Bray sent in £101 raised in lieu of presents at his 50th birthday party.

Issue 77 | September to December 2018

Our Fundraisers In Memory of

•

Richard Oberland took part in the Land’s End to Bignall End cycle and raised £695.

Phil Haynes organised a memorial football match and raised £130.

•

Kim and her team took part in the Land’s End to Bignall End cycle and raised £3,822.

•

Sandra Griffiths took part in the Land’s End to Bignall End cycle and raised £170.

•

Kayleigh Smith took part in the Land’s End to Bignall End cycle and raised £240.

•

James Duffy took part in the Land’s End to Bignall End cycle and raised £500.

•

Matthew Holmes took part in the Land’s End to Bignall End cycle and raised £250.

•

Jon Ranford took part in the 24 hour run and cycle ride from Land’s End to Bignall End and raised £215.

• David Hughes sent in a further £5,000 from the Unite Union.

•

Thomas Moulder took part in the Land’s End to Bignall End cycle and raised £190.

•

David Hughes sent in £250, representing donations received in lieu of floral tributes in memory of Connie Taylor.

•

Louise Kelly took part in the Land’s End to Bignall End cycle and raised £230.

•

Martyn Kerr took part in the Potters Arf Marathon and raised £498.

•

Nathan Stubbs took part in the Land’s End to Bignall End Cycle and raised £1,017.

•

David and Susan sent in £4,340.

•

Matthew and Sarah took part in the Land’s End to Bignall End cycle and raised £1,972.90.

•

Sentinel Golf Club and Waterhouses Young Farmers Club sent in £1,370.

•

Sarah Drake took part in the Land’s End to Bignall End cycle and raised £245.

•

Abi Dennis took part in the Ben Nevis Night Walk, the charity cycle ride, the North Peak District Challenge, the Colour Dash Run, Inflatable Obstacle Course and Bubble Rush and raised £380.

•

Ryan Parsons took part in the Land’s End to Bignall cycle and raised £555.

•

Andrew Harrison took part in the Land’s End to Bignall End cycle and raised £468.

•

Sam Benson took part in the Land’s End to Bignall End cycle and raised £300.

•

Nathan Shaw took part in the Land’s End to Bignall End cycle and raised £920.80.

Stuart Hudson

In Memory of

Alex Hughes

Alex Cotton completed the Lands End to Bignall End Cycle and raised £675.

In Memory of

Daniel Hughes

• Jane Inger sent in £200.

•

Audley Football Club donated £150.

•

Kim and team took part in the Colour Obstacle Run and raised £240.

•

Vishal Pancholi sent in £1,500.

•

Mark Riley took part in the Land’s End to Bignall End cycle and raised £620.

•

Paul Crisford took part in the Land’s End to Bignall End cycle and raised £475.

•

Nathan Ames took part in the Land’s End to Bignall End cycle and raised £840.

•

Dave Cooper took part in the Land’s End to Bignall End cycle and raised £1,095.

•

Peter Lewis took part in the Land’s End to Bignall End cycle and raised £480.

•

Dave Barlow took part in the Land’s End to Bignall End cycle and raised £265:

www.c-r-y.org.uk

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Our Fundraisers took a wrong turn on the way into the town and was lost for around 20 minutes, but they eventually made it for a belated lunch. The third leg of the day took the riders over Dartmoor before the last food stop of the day at the Salmon Leap Cafe just outside Buckfastleigh. The last leg of the day proved to be toughest as there was a steep climb on the route. By the time the riders reached it they had done around 90 miles and had been cycling for between nine and 10 hours, but they all made it safely into Exeter for the overnight stay at the Holiday Inn.

“After 12 months of planning, 29 cyclists and four support drivers left the small North Staffordshire village of Bignall End at 4:00 AM on the morning of Wednesday the 22nd August for the drive down to Land’s End in Cornwall.

Their goal was to cycle the 408 miles back to Bignall End to raise money for the Dan Hughes memorial fund with CRY. This was the biggest fundraising event we had attempted to stage – it was meant to be a real challenge and it attracted people we had never met before. Some of them were very keen cyclists, two of them had previously cycled from John O Groats to Land’s End and we were so fortunate to have them on board; their knowledge and experience was invaluable in the preparation for the ride and on the course itself.

“We all eventually arrived at Land’s End around lunch time and by the time the bikes had been unloaded, everyone had changed into their sponsored shirts and the obligatory photograph at the Land’s End sign post had been taken (above), it was 2 o’clock before the riders set off on the first leg to Newquay. Two punctures before they’d even left the car park didn’t bode well for the journey ahead, but off they went. The first food stop was at the Tesco superstore in Redruth, where the duty manager kindly supplied us with sandwiches and refreshments before we set off for Newquay. A fall, two broken bikes and a few more punctures meant that the arrival into Newquay was a bit staggered, but everyone made it safely to the overnight stay at St. Christopher’s Hostel in the centre of town. One or two cycling issues were ironed out over an evening meal and everyone went to bed to prepare for the longest day of the ride: 104 miles over Dartmoor to Exeter.

“The riders split into three groups with staggered start times and had left Newquay by 7:00 AM. After a short mid-morning food stop at the Highwayman pub carpark in Dobwalls, it was on to lunch at the Tesco superstore in Tavistock where we were met by Laura Seeley. The team at store had prepared sandwiches etc. and allowed us to use the staff canteen which was really appreciated by everyone. There was a little concern as one of the riders

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“Friday saw the riders embark on a 98-mile stretch between Exeter and Bath. Tesco again provided us with food and refreshments along the way at their stores in Axminster, Yeovil and Frome. All was going well apart from a few minor bike problems, until mid-afternoon when the rain set in with group 3 still a few hours away from the overnight stop in Bath. The roads quickly became treacherous due to the amount of surface water and this, coupled with the spray form vehicles, meant the going was slow for the 11 riders still out on the route. Eventually, 12 hours after they had left Exeter, the last of the riders made it into Bath – very wet, very cold and very tired, but they made it. The overnight stay was at another St. Christopher’s Hostel in the middle of town. After drying off and getting into some warm clothing, we all gathered at a local restaurant for a meal and to recap the day’s events.

“Saturday was to be another long day, with 96 miles from Bath to our final overnight stay at the Holiday Inn, Droitwich via Aust, Ross on Wye and Ledbury. This was the day that caught a couple of the riders out who hadn’t put in the same level of training as the others. Having now done around 300 miles they were beginning to suffer. One of the support vehicles arrived at the stop in Ross on Wye with one of the riders in the van; he had gone as far as he could – probably too far – and he simply couldn’t go any further and was forced to finish the day in the support vehicles. Others had to stop to take extra breaks which meant the last group were again out longer than the first two groups. The rain came again late in the day, catching

Issue 77 | September to December 2018

Our Fundraisers the last two groups out on the road and giving group 3 their second consecutive soaking. I was cycling with group 3 for the second half of the day. The sun was shining as we left the Tesco store in Ledbury, but within half an hour we were putting on waterproofs as a thunderstorm and heavy rain caught up with us. It carried on for the next hour as we climbed through the Malvern Hills until eventually stopping as we approached Worcester. It was around 6:30 PM when we eventually made it to Droitwich to a very warm welcome from the other riders. Spirits were high as we ate the evening meal as we knew that tomorrow was the last day and we were only 70 miles from home. However, there was a sting in the tail…

“The plan for the last day was for all 29 riders to meet in Alsagers Bank and to ride through the village, onto Halmerend, Miles Green, Audley and Bignall End before arriving at the cricket club to be welcomed home by family and friends. This would give people the chance to see us and would, we thought, be a fitting end to the ride… But the weather had other ideas. The day was forecast to be wet and the weather man got it spot on.

“The first group left the hotel in the dry but within an hour the deluge had set in. By the time the last group left it was raining heavily. The leading group reached the first food stop outside Wolverhampton and were really struggling with the conditions; they were all cold and wet. They took on some food but one of them was suffering with leg cramps, which forced him to sit out the next part of the ride in one of the support vans. The weather showed no signs of improving as they left for the next leg to Eccleshall in Staffordshire. Group 2 arrived and if anything a couple of them were in a worse state than the first group. They decided not to stop except to take on water; they pushed on hoping to find a café or somewhere to get a hot drink.

Group 3 arrived not long after and also didn’t stop for too long. It was going to be a long, uncomfortable ride to Eccleshall and then on to home.

“Group 2 found a roadside café on the route and when the owner found out what they were doing she made them a bowl of porridge and hot drinks which cheered them up and set them up for the remainder of the ride home. When we met up with the first group and one of the support vehicles in Eccleshall it became apparent that things weren’t going well. Riders were huddled up in the back of the support vehicle unable to stop shaking due to the cold, and messages were filtering through of near misses with other traffic due to the conditions which were showing no signs of improving.

“We were only 18 miles from home but it was here that the decision was taken to abandon the procession through the villages; the message was sent out for the riders to make their way to the cricket club as quickly and safely as they could. It wasn’t the ending we wanted, but the most

www.c-r-y.org.uk

important thing was to get everyone home in one piece and it was the right decision based on the weather and the condition of some of the riders.

“There were still people out in Alsagers Bank and Audley to give our little group a cheer as we made our way home.

We were amazed to see so many people waiting for us as we cycled up the last little bank towards the cricket club, the welcome was just brilliant given the conditions; people stood in the rain, clapping and cheering as we arrived. Many of them had brought towels, blankets and coats for the riders. No one left until all the riders and support drivers were safely back home; people stayed and welcomed each of the groups as they arrived, something which was very much appreciated by each and every one.

Once people had a chance to dry off, change and get warm, there was a buffet laid on for everyone to tuck in to. The day finished with a few well-earned beers at the cricket club where all the riders and support drivers were presented with a medal to commemorate having taken part in the event.

“Whilst the bike ride was a huge success in raising money for Dan’s memorial fund (over £18,000 so far), it was just as important to us that we used it to raise awareness of CRY. With the help of Katie Coombs from Trinity PR (CRY’s public relations company) we arranged several live radio interviews as we made our way up the country. From Land’s End I spoke live to Louise Stones from BBC Radio Stoke and Robbie Benson from local radio station Hitmix 107.5; we provided live updates every afternoon on The Hitmix and we would like to thank Robbie and the team for the time and support they gave us before and during the ride. Malcom Boyden from BBC Hereford and Worcester interviewed me on his Friday morning show and on Saturday I was live on Mollie Green’s show on BBC West Midlands.

“Coupled with the coverage in the North Staffordshire Evening Sentinel and the Sunday Mercury in Birmingham, we were able to get the message out to millions of people, so although it limited my time on the bike, it was important to maximise the opportunity to promote the work that CRY does.” Dave Hughes.

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Our Fundraisers In Memory of

In Memory of

Matthew Hughes

Reece Jeffrey

• Hannah Godfrey took part in the Virgin Money London Marathon 2018 and raised £2,396.01.

• Mrs Griffiths sent in £100 in memory of her grandson.

Matthew Heath took part in a Born Survivor event and raised £160.

In Memory of

Paul Jevon

In Memory of

Cassandra Hunter

Jamie Caswell sent in £300 raised through the 5th annual Paul Jevon Golf Day.

Kirsty Armstrong took part in the 44km Brunello Crossing and raised £1,192.

In Memory of

Stevie Jivani

In Memory of

• Helen Overell sent in £123 raised through the sale of ‘Surrey Unearthed’, an anthology of poems and a secondhand book sale.

Craig Hunter

Connie Hunter-Jamison organised her Studio Stereo 10th birthday raffle and raised £1,400.

• Margaret Bailey sent in donations totalling £265.

In Memory of

In Memory of

Charlie Ibrahimi

Lisa Johnson

Matthew Day sent in £200.

Carl and Eunice sent in £535 raised from a collection at Epsom Carol Concert.

In Memory of

Anthony Iverson In Memory of

Amanda, Kat and Claire completed the Three Peaks Challenge and raised £510.

Ethan Jones

• Keith Weston sent in £184.94 raised from a collection pot in his shop.

In Memory of

Ariana Jahangir

• Roddy Dilasser sent in £2,000.

• Ingrid Waterfield sent in £250.

In Memory of

Jozef Jarczuk

Mrs B Jarczuk sent in £100.24, representing donations received in lieu of floral tributes in memory of her husband.

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• Dominic Toms took part in the London Marathon 2018 and raised £1,900.

•

Keith Weston sent in donations totalling £180 raised from talks.

•

Robert Field took part in RideLondon-Surrey 100 and raised £1,075.

•

Sandown Park Golf Centre sent in £340.30.

•

Diana Greenman donated £140 in respect of a talk given by Keith Weston to Bookham Bees WI.

Issue 77 | September to December 2018

Our Fundraisers In Memory of

Katy Jones

•

Mark Elliott sent in £5,000.

•

Deirdre Whitley organised a 6km walk in the heart of Cork and raised £1,650:

In Memory of

Lee Jordan

Paul Gardiner sent in £750 raised through his time as captain of the Canterbury Choughs Golf Society.

In Memory of

Stephen Joyce

Rachel Timberlake took part in the CRY Heart of London Bridges Walk 2018 and raised £115.

In Memory of

Natasha Kay

“Team Tash 2018”; Christine Atkins and Alexis Kay, took part in the CRY Heart of London Bridges Walk 2018 and raised £310.

“We had a wonderful, sunny day for our 6km walk in the heart of Cork city alongside the River Lee, as well as through well matured residential suburbs. Approximately 6,000 ladies (and a few men having fun in drag costumes and blond, brown or pink wigs, according to their taste!) took part, and we had loudspeakers and music at the starting line.

“There were great cheers and encouragement from people watching along the route and at the finish line, and medals were given to each participant when we congregated in Kennedy Park. Dancing ensued with a live band on site as well. Many were fit enough to run the course, but we were very happy to walk it at a good pace. It was a great occasion and the city hotels and bars were buzzing! We’ll do it again next year, all being well!”

In Memory of

Eleanor Rose Keeler

Annette and Chris Keeler sent in £120 from funds raised by Dr Michael Duggan and his patients.

In Memory of

Joe Kellogg

•

Alison Mellors held a coffee and cake morning and raised £1,425.

•

Leah Kellogg took part in a 29-mile walk – High Peak Trail to Heanor – and raised £711.50.

In Memory of

Ben Kench

Millfield Prep School held a concert and raised £166.75.

In Memory of

Tom Kench

Hazel Kench sent in £352.50, representing donations received in lieu of floral tributes in memory of her husband.

www.c-r-y.org.uk

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Our Fundraisers In Memory of

In Memory of

Jane Kendall

Judith Krish

Mike Kendall sent in £132.02, representing donations received in lieu of floral tributes for his wife.

Jane Krish sent in £100 in lieu of a Christmas gift for Jonathan.

In Memory of

In Memory of

Jenny Kerwood

Jannik Lam

Ryan Mason took part in the Great North Run 2018 and raised £1,070.

• Burston Garden Centre sent in £181.76.

• Fil-Brit Golf sent in £1,000.

In Memory of

Graeme Kilpatrick

•

Junior Joggers took part in the Deep RiverRock Belfast Marathon and raised £1,170.

•

The Halifax Foundation sent in a matched fund donation of £500 in respect of Danielle McKay’s fundraising efforts.

In Memory of

Harry Joseph King

Andrew King sent in £1,400, representing donations received from relatives and friends, in memory of his son.

In Memory of

Dean and Kathleen Knowles

Mr Knowles sent in £200 in memory of his wife and son.

In Memory of

Sophie Konderak

Knighton & Clarendon Park Conservative Club sent in £158.41.

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•

Birte and Lam sent in £616.17.

•

Jude Bayly (team “Jannik”) took part in the CRY Heart of London Bridges Walk 2018 and sent in £340.

In Memory of

Jannik Lam and Sam Bradley

Oliver Geen took part in the Hackney Half Marathon and raised £620.

In Memory of

Adam and Jenny Lambert

Freddie Bagley sent in £600 raised from the sale of The CRY Children’s Book of Children’s stories.

In Memory of

Robert Lancaster

James and Margaret Lancaster sent in £100 raised from a shooting syndicate.

In Memory of

Michael Land

Phillip Bradshaw took part in the 100 mile Wharfedale Ton Cycle and raised £2,095.

Issue 77 | September to December 2018

Our Fundraisers In Memory of

In Memory of

Carli Lansley

Jonathan Leigh

• Lee Lansley took part in the Southend Half Marathon and raised £607.

• David Leigh took part in RideLondonSurrey 100 and raised £1,025.

• Karl Lansley sent in £2,010.

• Alex Mayor raised £250 from the Liversedge, Wigan and Sheffield half marathons.

•

Chloe Conway took part in Climbing Snowdon for Carli and raised £542.

•

Jason Marchant took part in the Southend Half Marathon and raised £395.

In Memory of

•

Megan Williams organised an afternoon tea on what would have been Carli’s 38th birthday and raised £683.30.

•

HSBC Bank Plc sent in a matched fund donation of £710.

•

Lloyds Bank Foundation sent in a matched fund donation of £190 in respect of Mrs Williams’ afternoon tea.

•

Denise Farrell took part in a Tough Mudder 5k and raised £4,776.81.

•

Louis Dawson took part in the Caterham Rotary Half Marathon and raised £630.

•

Harrison and Franklyn took part in the Brighton Marathon Mini Mile and raised £128.23.

•

Olympus KeyMed Group Companies sent in £1,000.

•

Jessica and Ethan took part in the Kirste 5 mini-mile and raised £415.

Aaron Leonard

In Memory of

Adam Lewis

Kim Lewis sent in a further donation of £10,000 raised through The Adam Lewis Effect.

In Memory of

Joseph Leyland

• Neil and Caroline Philips and her parents donated £150.

In Memory of

Kris Ledgard

• Maria and Ian sent in £3,621.25, including: £2,611.90 from an ‘80s night; £244.25 from Luke Neal’s head shave; £115.10 from the Staffordshire Police non uniform event; and £650 from an auction.

• Justine Lucas sent in £230 raised from her big kit giveaway.

• Peter Ledgard sent in £161.20 raised from a Loughborough screening event.

In Memory of

Miriam Lee

• Nicola Lee organised a fundraising day at Morrison’s supermarket and raised £200.

• Bishop Stopford School

donated £1,355 raised by staff and students.

www.c-r-y.org.uk

•

Charlotte Raftery took part in the Stafford 10k and raised £185.

•

Barclays Payroll Giving Matching sent in £900 in respect of the Charities Trust ‘80s night, organised by Linsey Price.

In Memory of

Jamie Loncaster

• Graham and Jenny sent in £1,353 in memory of their son.

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Our Fundraisers •

•

Graham Loncaster sent in £966.75, including: £271.75 from screening donations; and £695 from holding an annual PDR Golf Day at Cottingham Parks Golf Club.

Christine Dawson sent in £100 in lieu of sending Christmas cards.

In Memory of

Tom Lovatt

Lucy Goodwin sent in £1,488.45.

charity netball match and raised £295.

•

Team Lit & Reg at DLA Piper took part in a charity netball match and raised £315.

•

Team Corporate at DLA Piper took part in a charity netball match and raised £410.

•

Team Real Estate at DLA Piper took part in a charity netball match and raised £110.

•

Donna Hilton sent in £939 raised through DLA Piper UK LLP taking part in the Great Manchester Run.

In Memory of

In Memory of

Chad Loveday

Deborah Loveday sent in £500.

Aaron Lundy

Garry McGrotty sent in £200 raised from Portsteward Football Club’s annual friendly match against Coleraine FC.

In Memory of

Martyn Luckett

• Lynsey Ayres took part in the Virgin

Money London Marathon 2018 and raised £2,527.

• Brenda Luckett sent in £5,812.85.

In Memory of

Sean Luty

Vicky Settle sent in a further £242.51 raised through collection boxes at Tesco Express in Yorkshire.

• Nick Blight sent in £185.

In Memory of In Memory of

Alan Lumley

• Sharon Giligan took part in the Great North Swim and raised £587.

• Barnard Castle School organised their tag rugby match and raised £140.

•

DLA Piper UK LLP sent in a further donation of £8,250.

•

Employment, Pensions and IPT at DLA Piper took part in a charity netball match and raised £201.

•

Team Projects at DLA Piper sent in £370 raised from a charity netball match.

•

Team Finance and RSTR at DLA Piper took part in a

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James Lyons

Brenda Lyons sent in £200, representing a £100 legacy from James and £100 representing floral tributes, in memory of her husband.

In Memory of

Connor Mackness

• Carla Mackness took part in the CRY Heart of London Bridges Walk 2018 and raised £550 in memory of her brother.

• “Team Connor”; Sarah Powell, Simon Robinson, Katie Spooner, Steve Spooner, Lucy Robinson, Chloe Spooner and Emily Atkins, took part in the CRY Heart of London Bridges Walk 2018 and raised £1,116.

Issue 77 | September to December 2018

Our Fundraisers In Memory of

•

Maureen Marshall sent in £250 from Edge Hill University and £100 from Kevin Healey.

Mr J Hamilton and Mr G Murray organised a school reunion, ‘Syreunion60in18’, and raised a total of £1,238.71.

•

Co-Operative Group Ltd sent in £3,893.32.

Andrew Macleod

In Memory of

Gary Martin

In Memory of

Jack Maddams

• Team “Platinum Playmates”; Valerie Lawton, Janet Hardy, Daniel Fox and Zoe Nicholson, took part in the CRY Heart of London Bridges Walk 2018 and sent in £625.

Louise Carter sent in £515, including £120 raised through her Facebook page.

•

In Memory of

Maggie Whitlock took part in the CRY Heart of London Bridges Walk 2018 and raised £225.

Oliver Marsden

Joshua Hayman took part in RideLondonSurrey 100 and raised £1,648.50.

In Memory of

Dean Mason

• Hannah Arentz sent in £1,500 to support CRY’s screening programme.

In Memory of

Lewis Marsh

• Sarah Francis took part in the Cardiff Half Marathon and raised £1,047.78.

• Sandra Pankhurst and Lisa Humphries

took part in the Virgin Money London Marathon 2018 and raised £4,357.40.

• Gill Weston and her family organised a

concert and raised £12,000.

In Memory of

Nigel Masterman

Eileen Masterman took part in the Great North Run 2018 and raised £735.

In Memory of

Claire Mayger

Alison Mayger took part in RideLondon-Surrey 46 and raised £445.

In Memory of

Pete McAvoy

In Memory of

John Marshall

• Santander Foundation sent in a

matched fund donation of £500 in respect of monies raised by Nicola Crew.

www.c-r-y.org.uk

• Mike Thomas sent in £2,557.77.

• Harris Academy sent in £150.

• YNWA St Mungo Academy, Glasgow, sent in £100 in memory of Pete and his father, Peter.

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Our Fundraisers •

Team “#4Pete”; Lucy McAvoy, Connor McAvoy, Morgan McAvoy, James McAvoy, Karl Howard-Norris, Ciara Howard-Norris, Karen Howard-Norris, Madison Howard-Norris and Ruby Howard-Norris, took part in the CRY Heart of London Bridges Walk 2018 and raised £595.

In Memory of

Paul McCann

• Michael McCann sent in £1,425 raised from a 7-a-side football tournament and raffle.

• Reece Hill took part in the Great North Run 2018 and raised £787.

In Memory of

Ciaran McComb

Banbridge Archery Club sent in £600. CRY was nominated

by Rachel and Thomas McComb, in memory of their son.

In Memory of

James McGowan

• Charterhouse raised £210 from their ‘Aquathon’ entry fees.

• Ellery McGowan sent in £6,931, including: £170 from swimming from England to France; £135 taking part in the CRY Heart of London Bridges Walk 2018 and raised £135; and £6,626 from organising an ‘Aquathon’:

“This was the first Aquathon run at Charterhouse, with a 200m swim followed by a 2.5km run to raise money for CRY, for the James McGowan Memorial Fund.

It would have been great if more students had participated, because those who did loved it and want to do it again.

It was lovely having my two grandsons – James’s nephews, Maximilian and Nicholas Basirov, aged 8 and 6 – taking part in memory of James. They both completed the swim and run.

“The swim part ran smoothly, with heats of two swimmers per lane, after which we went outside after the participants changed into running gear and attached their numbers. We did the run in heats as well, but could possibly do a mass start next time. The course was one lap around the stunning playing fields and golf course of Charterhouse on a beautiful sunny afternoon.

In Memory of

Gareth McDonald

Neil O’Sullivan took part in the Virgin Money London Marathon 2018 and raised £2,200.

In Memory of

Jamie McGee

•

Kerrie Feeney organised a ball and raised £1,456.29.

•

Kerrie Feeney raised a further £1,641 through Facebook.

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“As the runners came in their numbers were placed in a box for a prize draw and each participant was given a badge from CRY. The brownies donated by Elior Catering were much appreciated by the students! Medals with the CRY logo were presented to 1st, 2nd and 3rd place getters in each category. I would like to thank CRY, The Racquet Shop and Charterhouse Club for donating prizes.

“With the entry fees still to be added to the amount donated by parents it looks as if the final amount will be close to £8,000 which is amazing; my initial target was £1,000!

Hopefully, I can organise another Aquathon fundraiser next year.”

Issue 77 | September to December 2018

Our Fundraisers In Memory of

Oliver McIvor

Kerry Whitmee took part in the MK Festival of Running and raised £974.

In Memory of

Steph McLean

Team “Lenstore”; Gabby Poole, Jon Davies, Peter Mehtar, Tobias Jordan, Vivian Truong, Tom Garnell, Kayleigh Tabbitt, Dale Tabbitt, Olga Nuryaeva, Mitesh Patel, Josette Poole, Karen Norval and Kirill Patel, took part in the CRY Heart of London Bridges Walk and raised £250.

In Memory of

Liam Meadows

Sarah Meadows organised a cake sale and raised £175.33.

In Memory of

Josh Merrick

• Carmel Merrick sent in screening donations totalling £114.71.

• Karen and Andrew Merrick held a ‘Gin for Josh’ event and raised £311.59.

•

Danielle, Eimear, Susie, Edie and Helen took part in the Wilmslow Half Marathon and raised £1,077.

•

Andrew Green completed a six stone weight loss challenge and raised £674.60.

“We had our third CRY quiz last Saturday (17th November) in memory of our son, Richard. It was a Christmas theme, so we all had something Christmassy on. We all had a fab time, with 95 of us family and friends. Our tables were like banquets. We had lots of fab raffle prizes, and played heads or tails. We raised a whopping £1,350.

“None of this would have been possible without the kindness of Paul Biswell, who let us have the venue and helped us set up. And our quiz master, Ian, his wife, Jeanette, and daughter, George – they did a brilliant job.

Also thanks to my amazing, supportive family and friends who turned up to support us! It means so much to Paul and I.” Nicola Merriman.

In Memory of

Rosie Mitchell

Andrew Mitchell and James Bachelor took part in the Virgin Money London Marathon 2018 and raised £6,480.

In Memory of

Richard Merriman

• Nicola Merriman sent in £565 raised at Mazza restaurant through a charity evening.

• Nicola and Paul organised a quiz and raised £1,350:

www.c-r-y.org.uk

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Our Fundraisers In Memory of

In Memory of

James Moorfoot

•

George Bastiman took part in the Virgin Money London Marathon 2018 and raised £4,678.77.

•

Gary Farrow took part in the Virgin Money London Marathon 2018 with George Bastiman and raised £4,678.77.

•

Belvedere Golf Club sent in £500 raised through refreshements and raffles during golf competitions.

•

Sarah Murray took part in the Giberdyke 10 Mile and raised £150.70.

Madeleine Mulcahey

John and Kevin Robson organised a charitable concert at Christ Church Cathedral School and raised £280.15.

In Memory of

Tony Munro

Sharon and Ray Currie organised a charity golf day and raffle and raised £1,320.

In Memory of

In Memory of

Andrew Murch and Michael Yorston

Jonathan Morgan

Christopher Waites organised the annual Egton Gallon Charity Walk and raised £120.

The Rotary Club of Aberfeldy organised the Highland Perthshire Marathon and raised £1,250.

In Memory of

Levon Morland

• Georgina Percival sent in £348.52 raised from a live music event and a raffle.

• Jennifer Revell took part in a walk from Newcastle to Durham and raised £218.

•

Joanne Ferry took part in a Newcastle to Durham walk and raised £210.80.

In Memory of

David Moss

In Memory of

James Murgatroyd

• Dawn Moss forwarded a donation of

£1,222 raised by The Carp Crusaders through their annual fishing match.

• Winshill FC sent in £534.

• Dawn Moss sent in £250 raised by the Biddulph Hiking and Mountaineering Club.

•

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Laura Pottle sent in £1,220, including: £220 raised from the sale of sweets, pens and bracelets at a screening event at Bay House School; and £1,000 donated by Easleigh Masonic Centre, Oceanus Lodge from various events.

• Joseph Stuart took part in RideLondonSurrey 100 and raised £830.

•

Gary Murgatroyd and Paul Murgatroyd took part in RideLondon-Surrey 100 and raised £3,428.

•

Kate Steeples took part in the Great North Run and raised £192.50.

Issue 77 | September to December 2018

Our Fundraisers In Memory of

In Memory of

Ralph Murwill

•

Martin Baker took part in the Virgin Money London Marathon 2018 and raised £2,843.94.

•

Kate Sheehy took part in RideLondon-Surrey 46 and raised £1,070.

Barry Nivett

Stuart Lammin took part in the Virgin Money London Marathon 2018 and raised £12,348.

In Memory of

Bethany Mycroft

Adrian and Amanda Topp forwarded donations totalling £6,100 raised by Bethany’s parents from various events throughout the summer.

In Memory of

Lizzie Nee

• Robert Chapman took part in the Great

South Run and raised £530.

• “Team Lizzie”; Cath Nee, Murray Nee, Joe Nee, Catherine Parry, Andrew Lisle, Molly Crowe, Ruth Crowe, Dawn Carter, Simon Carter and Susan Crook, took part in the CRY Heart of London Bridges Walk 2018 and sent in £2,218.

In Memory of

Peter William Norman

Maureen Fletcher sent in £100 in memory of her son.

In Memory of

David Nunoo

Dom Bruneau took part in the Virgin Money London Marathon 2018 and raised £6,108.40.

In Memory of

James Nicholas

• Grange Park Golf Club chose CRY

as their charity of the year and raised £1,100.

• Kevin Nicolas took part in London Marathon 2018 and raised £1,900.

•

Co-Operative Group Limited sent in £926.90.

•

The Charities Aid Foundation, Co-op Local Community Fund sent in £1,639.57.

In Memory of

Stylianos Nicolaou

Mrs Nicolaou sent in £400, representing donations received in lieu of floral tributes in memory of her husband.

www.c-r-y.org.uk

In Memory of

Stephen O’Connor

Peter O’Callaghan sent in £185 in lieu of favours at his forthcoming wedding.

In Memory of

Angus Ogilvy

James Ogilvy took part in RideLondon-Surrey 100 and raised £935.

In Memory of

Abigail O’Keefe

•

Rachel Hicks took part in the Royal Parks Half Marathon and raised £540.

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Our Fundraisers •

Leoni Wodehouse took part in the Royal Parks Half Marathon and raised £600.

•

Daniel Emmett took part in the London 10,000 and raised £915.

In Memory of

Robert Palmer

Team “Robert Palmer Team”; Nadine Watkin, Andrew Watkin, Jack Watkin, Harry Watkin, Irene Palmer and John Palmer, took part in the CRY Heart of London Bridges Walk 2018 and raised £590.

In Memory of

Andrew Oliver

In Memory of

Ceri Palmer née Howells

• Tony McCullagh completed his Land’s

End to John O’Groats Cycle and raised a further £665.

• Alison Howells organised a gourmet

evening and raised £2,099.

• Judith Oliver sent in £330 raised from a

Christmas craft stall at Hummersknott Academy and from donations from family and friends.

In Memory of

In Memory of

• Melanie Gooder sent in £3,100 raised through a champagne and jazz night at the Pheasant Hotel in Harome.

Andrej Vaughan and Daniel Tardif took part in the Virgin Money London Marathon 2018 and raised £4,210.

Amy Osborne

•

£360.

• Alison Howells took part in the CRY Heart of London Bridges Walk 2018 and raised

Simon Pangborn

• Richard and Daphne Bourne-Arton, Charoltte Platt, Robert Ropner and Stephen Hopkins orgainsed the West Tanfield Clay Pigeon Shoot and raised £6,000.

In Memory of

Jo Ropner organised a Christmas fair and raised £5,000.

Sonia Smith completed the Three Peaks Challenge and raised £612.33.

In Memory of

Thomas Padmore

GEO KEMP sent in £250.

Bradley Parish

In Memory of

Barry Parker

Carol Parker sent in £593.56, representing donations received in lieu of floral tributes in memory of her husband.

In Memory of In Memory of

Gregory Palmer

Janet Palmer sent in £250.

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Andrew Parr

• Ruth Lowe sent in £690, including: £550 from the Heartfelt group raised through their sale of second hand clothes, shoes, bric-a-brac and children’s toys; and £140 raised at a screening event.

Issue 77 | September to December 2018

Our Fundraisers •

Chris and Julie Smith of the Heartfelt Group organised the soul and motown tribute at the Silk Route Restaurant and raised £945:

•

Patricia Toft organised a book sale and raised £262.

In Memory of

“This was a curry night and live entertainment evening. A great big thank you to Ali and his team for all the fantastic food. Also a big thank you to the Heartfelt Group for their support on the night with the raffle. A great night was had by all!”

Andrew Patterson

• Kierra Kilgarriff took part in the Bolton 10k, Manchester 10k, Total Warrior 10k and the York 10k and raised £2,229.

• Justine McCoy raised £230 through her 50th birthday celebrations.

In Memory of

James Patrick Patterson

• Peter Patterson sent in £100.

• Kelvin Wilson sent in £180.

In Memory of

• Les Blake donated £100 gifted to Peter towards his 40th anniversary celebrations.

Christopher Parr

Lauren Crimes took part in the Stafford Half Marathon and raised £692.

In emory of

Daniel Parry

• ALS sent in £2,000 in respect of an

event organised by Eddie and Sandy Parry.

• Eddie and Sandy Parry organised a

•

In Memory of

Jenni and David Paul

•

Stuart Lawson and Andy Howe took part in Le Joggers and raised £10,434.13.

•

Wendy Pendreich sent in £230 raised from her husband’s 60th birthday celebrations.

charity event and raised £2,702.71.

In Memory of

In Memory of

Rob Parry

Judith Yownsley took part in the Canalathon 50k and raised £1,457.

In Memory of

Kevin Paterson

• Robert Bass took part in the Great

North Run 2018 and raised £385.

www.c-r-y.org.uk

The Upminster Circle of the Catenian Association donated £110 raised through a raffle.

Adam Pearmine

•

Jonathan Butcher took part in the Virgin Money London Marathon 2018 and raised £3,686.31.

•

Alison Pearmine sent in £250.

In Memory of

James Pemberton

Lillian Williams sent in £120, representing donations received in lieu of floral tributes in memory of her brother.

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Our Fundraisers In Memory of

Benji Percival

•

David McKnight took part in the Paddock Wood Half Marathon and raised £813.74.

Tricia Sturrock, Lady Captain of Wilmslow Ladies Golf Club, sent in £1,346.25 raised throughout the year.

In Memory of

Gary Pope

Lesley and Gary Pope sent in £355 raised

by David and Leisa Simmons at The Thatched Inn raised from holding regular events.

In Memory of

Christopher and Steven Phillips

• Paul and Jane Phillips sent in £5,000 raised from various fundraising events, including a raffle, BBQ, coffee morning and screening donations.

•

Gemma Nelson organised a charity bingo night and raised £900.

In Memory of

Shannon Powell

Alex Bach took part in the Regents Park 10k and raised £170.

In Memory of

In Memory of

Alden Price

Duncan Phillips

• St James Palace sent in a further £5,000.

Beth Phillips sent in £175.08.

• Timothy Holman sent in £274 on behalf of Paige and colleagues at TEAM.

In Memory of

Jack Phillips

Izzy Finegan sent in £140 raised from a charity gig.

In Memory of

James Phillips

• Jo and Sarah took part in the Great

North Run 2016 and raised £217.60.

• Paul Barnes took part in RideLondonSurrey 100 and raised £1,150.

•

Stefanie Price sent in donations totalling £307.19 raised at her Olney screening event.

•

Angela Price (team “Alden”) took part in the CRY Heart of London Bridges Walk 2018 and sent in a further £765.

•

Ian Stokes sent in £500 on behalf of Olney Town Colts FC:

“Olney Town Colts FC is based in North Bucks, and offers football to 360 local girls and boys in 26 teams, aged from four years–18 years old. We also have an adult team which is predominately comprised of ex-junior players

In Memory of

Sara Pilkington

• Sahiti Shah sent in £6,988.89

raised through a charity fashion show at Collingwood College.

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Issue 77 | September to December 2018

Our Fundraisers (with an average age of 24 years old). Because of our strong association with youth and young adults in sport, in November we were delighted to be involved with the heart screening weekend carried out in memory of Alden Price, only made possible due to the fantastic fundraising carried out by his father and Bodyforce. Olney Town Colts were proud to make a donation and pleased to offer facilities over the screening weekend.” Ian Stokes.

In Memory of

Kenneth Ralph

Mrs D Ralph sent in £941.26, representing donations received in lieu of floral tributes in memory of her husband.

In Memory of

In Memory of

Nancy Proctor

Dawn Moss sent in £400, representing donations received in lieu of floral tributes.

In Memory of

Stuart Pybus

Gerry and Joan sent in £100.

In Memory of

Olivia Raby

Rebecca Anderson took part in the Manchester 10k and raised £1,547.

In Memory of

Ketan Radia

Reena Radia, her sons Aryan and Amay, her dad, Dipak, and her friend Jaimini Chauhan and Jaimini’s family took part in a climb of Mount Snowdon and raised £4,933.50.

Ben Ramsay

Laura Wagstaff sent in £581.73, including £177.25 from Sproughton C of E Primary School.

In Memory of

Elizabeth Ransom

Christopher Ransom took part in the Virgin Money London Marathon 2018 and raised £1,821.

In Memory of

Craig Rawlinson

Kay Rawlinson sent in £190 raised from collection boxes at the her local Spar shop and from Tony’s Chippy in Skegness.

In Memory of

Claire Louise Reed

Andrew Reed sent in £100 raised through Cath and Colin’s car boot sale.

In Memory of

Alexandra Reid

• Sylvia Hawley sent in £1,000 raised by members of the Dance Workshop.

www.c-r-y.org.uk

77

Our Fundraisers •

Keely and Krizia Firth sent in £100.

•

Johnathan Cobb sent in £250 raised through ‘Thorpe in Bloom’.

•

Heather Reid sent in £875 raised at her local screening event.

•

Helen Greet-Waring sent in £112 from a birthday fundraiser.

In Memory of

Thomas Reid

Philip Makepeace sent in £225 raised through the World Cup and NFL predictions league.

In Memory of

Benjamin Rendall

•

Christopher Rendall sent in £3,590 raised through various sponsorship and events.

•

Sarah Steel took part in the Southampton 10k and raised £717.50.

together for some years and have two Thame 10k races under their belts. For this third attempt Sue and Liz had decided to raise funds for the charity CRY after being touched by the sudden and untimely death of local man Stephen Ridgley, who passed away in 2017 at the very young age of 30. Sue in particular had been inspired by the amazing efforts of her friend Bob Vincent, who recently took part in the 100k London2Brighton Challenge in aid of the charity, and having met Stephen’s widow, Sarah-Jane, vowed to add to the wonderful sum of £2,500 raised so far. By completing the Thame 10k on a very warm and sunny morning, Sue and Liz crossed the line tired but triumphant in the knowledge that friends and family had boosted the charity’s total by over another £300.” Sarah-Jane Ridgley.

In Memory of

Connor Robinson

L Lynch sent in £522.20 raised by the girls at Bromley High School.

In Memory of

Sian Roger

In Memory of

•

Val Gedge took part in the CRY Heart of London Bridges Walk 2018 and raised £475.

Zoe Payne sent in £300, representing donations received in lieu of floral tributes in memory of her husband, George.

•

Kathy Griffin, Greta Faulkner and Rita Grant took part in the CRY Heart of London Bridges Walk 2018 and raised £430.

Debbie Rendle

In Memory of

Stephen Ridgley

• Bob took part in the London2Brighton Challenge and raised £1,515.

•

Sue and Liz took part in a Thame 10k and raised £322:

“On Sunday 24th June 2018, it was a case of ‘mission accomplished’ for long-time friends and running buddies Sue Lavers and Liz Folley. The two have been running

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In Memory of

Stuart Ross

Claire Connolly took part in the Islandmagee CRY Cycle Challenge and raised £290.

In Memory of

Danielle Rowe

Caron Coates sent in £1,200 raised from her dad’s 70th birthday celebrations in lieu of presents:

Issue 77 | September to December 2018

Our Fundraisers In Memory of

“On November 3rd 2018, a party was held to celebrate the 70th birthday of my dad, Peter Starling, who is Danielle’s grandad.

“He asked for donations to the charity instead of presents and in total £1,200 was raised for CRY. Thank you to all the generous people who donated.”

Craig Salmon

Emma Stubbs took part in the Great North Run 2018 and raised £420.

In Memory of

Suanu Saro-Wiwa

St Augustine’s Chapel Charity at Tonbridge School sent in £9,000.

In Memory of

Charlie Rowland

Christina Webb sent in £100.

In Memory of

Jemma Rozier

Team “Rozier”; Natalie Rozier and Clare Rozier, took part in the CRY Heart of London Bridges Walk 2018 and raised £245.

In Memory of

Luke Rutter

In Memory of

Daniel Seager

•

Ben Seager took part in the Royal Parks Half Marathon and raised £1,005.

•

Tom Stanford took part in the Royal Parks Half Marathon and raised £1,005.

In Memory of

Andy Shaw

Risley Cricket Club raised £500 from their annual charity cricket match.

• Alex Cameron took part in the Blackpool 10k and raised £240.

In Memory of

Luke Shaw

• Wendy Rutter took part in a Tough

Mark Shaw donated £100.

Mudder and raised £313.

•

Nicola Courtnage took part in London Marathon 2018 and raised £1,900.

•

Jessica White took part in the Simplyhealth Great Manchester 10k Run and raised £210.

In Memory of

Paul Salem

•

Karen Salem sent in £210 raised from a birthday fundraiser.

•

Charlotte Jury and Will Bevis took part in the Isle of Wight Challenge, Jurassic Coast Challenge, Testway 44 and the Hampshire Hoppit Half Marathon and raised £1,025.

www.c-r-y.org.uk

In Memory of

Olivia Shaw

•

Katy Shaw sent in £9,400.11 from a rugby event.

•

Ross Crear at TXF Limited sent in £680.

In Memory of

Paul Sheridan

Morag Sheridan organised Pedal for Paul 2018 and raised £237.40.

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Our Fundraisers In Memory of

•

Grant, Dawn, Ian and Nikki took part in the Glasgow 10k and raised £1,041.

In Memory of

Mark Shinwell

In Memory of

Evan Shonfield

• Provincial G. Master West Kent Lodge sent in £200.

• Coolings Nurseries in Sevenoaks held their ‘Coolings House of Flowers’ Exhibition and raised £1,560.38.

Rob Simpson sent in £700 from J A Simpson.

Sukhwinder Singh-Digpal

Sandeep Kaur, Sarban Kaur, Simmi Kaur, Surinder Singh, Gurdit Singh, Gurjeet Singh, Harpreet Singh, Sebba Singh, Sandesh Singh and Heera Singh took part in the CRY Heart of London Bridges Walk 2018 and raised £204.

In Memory of

Nicola Skinner

Lenna Thompson took part in the Shakespeare Half Marathon and raised £1,640.

In Memory of

Paul Short

Colette and Frank sent in £100.

In Memory of

Gregg Shoults

• Justin Taylor took part in a Nuclear Fallout event and raised £1,084.

• Melissa Shoults and William Shoults took

part in the CRY Heart of London Bridges Walk 2018 and raised £345.01.

In Memory of

Madeline Siddall

• Martin Picker took part in the Great

North Run 2018 and raised £410.

• Matthew Barker took part in a charity football match and raised £470.

In Memory of

Ben Simpson

• Penny and Rob Simpson sent in £210 raised at a golf tournament in Bournemouth, in memory of their son.

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In Memory of

Aubrey Smith

•

Yvonne Scott took part in the Glasgow 10k and raised £525.

•

Stephen Mclintock sent in £107.70 on behalf of the Costar family.

In Memory of

Ben Smith

Sally Woods sent in £100.

In Memory of

Benjamin Michael Smith

Paul Thompson sent in £100 from Trojans Squash Club.

In Memory of

Lee Smith

Adam Riley sent in £1,500.

Issue 77 | September to December 2018

Our Fundraisers In Memory of

In Memory of

Mel Smith

David Staff

Zak Longstaff sent in £160 raised by England Hockey’s NYUPL team at Futures Cup 2018.

Granville Staff sent in £100 from Crown Paint Bowling Club.

In Memory of

In Memory of

Robert Daniel Smith

Sam Standerwick

Linda Smith sent in donations totalling £495, including: £100 from Sheila Whilems; £24 from Langley Park Slimming World; £226 from Charity Day donations; and £45 from 5p jar donations.

In Memory of

Rupert Spurling

•

John and Monica Peberdy sent in £200.

•

Andrew Spurling donated £355 raised in lieu of gifts for his 80th birthday.

•

Sue Spurling raised £750 through celebrating her milestones in July 2018:

“During 2018, the Spurling cousins all had milestone birthdays – Carter was 21, Cameron and Tate were 18, and Freya was 16. They celebrated with a big family party in July, named Four Shades of Ginger, and chose to ask guests to donate to charity, rather than receive gifts. Everyone had a brilliant time at the party and they raised £716 for CRY in memory of Rupert Spurling, Cameron and Freya’s dad, and Carter and Tate’s uncle.”

www.c-r-y.org.uk

• Adrian and Debra sent in £2,639.78.

• Adrian Standerwick took part in the zip line velocity 2 challenge and raised £5,006.30.

•

Steve Flower sent in £203.

•

Adrian and Debra Standerwick organised the NHS Football All Stars Charity Football Match and raised £766.

In Memory of

Philip Standing

• Sue Fisher raised £100 on her

Facebook page.

• Gemma Williams took part in the Great South Run and raised £515.

•

Kelly, Clare, Rose, Megan, Nikat, Phoebe, Lily and Rachel attended the Romsey Opportunity Group Vintage Fair and raised £160.

•

Andy Russell took part in a Half Ironman and raised £1,205.

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Our Fundraisers In Memory of

In Memory of

Jack Coyle completed a skydive and raised £641.36.

• The Island Savoyards held their show ‘Joseph and the Amazing Technicolour Dreamcoat’ and raised £1,112.

Callum Staple-Hughes

In Memory of

Ben Steele

Rosie Steele took part in the London 10,000 2018 and raised £965.

Andrew Stevens

• Ellie Tasker, Millie Tasker, Jasmine Dominey and Isabel Dominey raised £60 from selling various crafts, including friendship bands and pom poms.

In Memory of

Michael Stephens

Jeff Stephens sent in £1,000, representing donations received in lieu of floral tributes in memory of his son.

In Memory of

Barbara Ada Stevens

Paul Stevens sent in £103, representing donations received in lieu of floral tributes in memory of his mother.

In Memory of

Lewis Stewart

Lianne Hunter organised a charity night and raised £3,000.

In Memory of

Ian Strange

In Memory of

Paul Stephens

•

Roger Stephens sent in £1,388.08, representing donations received in lieu of floral tributes in memory of his son.

•

Hilary Manton sent in £1,638 raised through a non uniform day at Wildern School.

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Patricia Strange sent in £503, representing donations received in lieu of floral tributes in memory of her husband, and Ian’s father, David.

In Memory of

Paul Sykes

“Team Sykes”; Carly Sykes-Blowers, Edward Blowers, Anna Dillon-Patel, Aakash Dillon-Patel, Thomas Sykes, Olivia

Issue 77 | September to December 2018

Our Fundraisers Blowers, Finlay Hyder, Isabel Dillon-Patel, Patricia Berry, took part in the CRY Heart of London Bridges Walk 2018 and raised £1,185.

In Memory of

Ivy Taylor

Rebecca Exley took part in the Plymouth Half Marathon and raised £615.

In Memory of

Steve Tanner

•

Kevin Yates took part in the Paris Marathon and raised £1,155.40.

•

Graeme Morris organised a memorial football match and raised £255:

“So, on Saturday we held a football game in the name of our dear friend, Steve Tanner. Steve sadly lost his life to a cardiac arrest 14 years ago and we as a group of friends like to hold a yearly event to keep his name going strong and raise money for CRY. The world lost a great person all those years ago. Another year on, another year missed.

Rest in peace, my friend.”

In Memory of

Kelsey and Zac Taylor

Ashley Taylor sent in £600 from the Co-Operative Bank in memory of her sister and brother.

In Memory of

Ross Taylor

Claire Taylor sent in £200 in memory of her husband.

In Memory of

Suzanne Taylor

Beryl Ewing sent in £160, representing donations received in lieu of floral tributes for her father and Suzanne’s grandfather.

In Memory of

Dale Tennent-Butler

• Angela Hale sent in £5,110, including:

£5,000 from The National Federation of Demolition Contractors; and £110 from a golf day.

In Memory of

Claire Taylor

Caroline Dyson organised a picnic and raised £650.

In Memory of

Hannah Taylor

Maureen and Charles sent in £776.74, including: £232 from a raffle at the Harwich Rotary Sea Festival; £491.24 from a vintage tea afternoon; and £32.50 from a collection pot at The Castle Public House and a collection pot at Homecraft.

www.c-r-y.org.uk

•

Alice Louise Makeup and Manamou Boutique raised £200 raised through a charity event and raffle.

In Memory of

Jack Thomas

June Thomas sent in £4,913, including: £2,798 from the community of Deri and Oakdale Silver Band; £1,615 raised by Blackwood RFC Mini and Junior teams; and £500 on behalf of the Blackwood and District Round Table.

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Our Fundraisers In Memory of

Ben Thorn

Ray Thorn organised a ‘60s themed dance and pizza evening and raised £234.67.

In Memory of

but even more importantly socialising afterwards.

“It was due to Ryan’s excellent friend making skills that I then became a part of his college friendship group. This led to minor meetings in Leicester for food and drinks and then to trips of a lifetime to Shanghai, Budapest, Lisbon, etc. The list goes on. Without having Ryan in my life, I would not have been able to experience half of the things that I have actually had in my life.

Scott and Mike Thurlow

•

Chris and Wendy Thurlow sent in £100.

•

Cathryn Thurlow, Marcelle Thurlow, Mia Thurlow, Nicholas Simpson and Alastair Simpson took part in the CRY Heart of London Bridges Walk 2018 and raised £140.

In Memory of

Ryan Tilley

• Sian Moseley sent in £100.

• Charlotte Pennington donated £112 raised through selling bespoke products of her website.

•

Suna Tilley forwarded donations totalling £107 raised through Cropston Cricket Club and a raffle held by Wayne Hunter.

•

Stuart and Thirza Miller sent in £225 raised from tips collected at the Dunblane tea rooms.

•

Suna and David Tilley organised an event at the Passage to India in Anstey and raised £800.

•

Jamie Torrence organised a golf day and raised £166.

•

Tom Hunter and Sam Hickenbottom organised a cricket memorial day and raised £7,204:

Statements from the organisers: Tom Hunter “I met Ryan at the age of 10 years old when he strolled into our cricket club to ‘give it a go’, probably pushed into it in the school playground by Sam. Turns out he fitted into the team perfectly and was an extremely talented young cricketer. We then grew up together playing cricket for Cropston CC at least four times a week. It was like our second home right up until Ryan moved away to China for work – at least 14/15 years of playing cricket together,

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“I chose to organise this day for several reasons. Not only was Ryan a very good friend of mine, he was also a very good son, brother, grandson, colleague and friend to all that knew him. Being Ryan’s friend gave me the opportunity to be part of his vast friendship group and loving family. Therefore, I felt that it was only fair that I should raise awareness for CRY in Ryan’s memory at Cropston Cricket Club, a club in which he spent a lot of time and effort building a team of true gents and talented cricketers. In addition, to thank him for letting me lead the fulfilled life that I have done to date.

“What better way to celebrate Ryan’s life and raise awareness for a fantastic cause than to create a cricket themed day. I asked fellow player and very close school friend, Sam Hickinbottom, to join me in creating this special day, filled with cricket and socialising, two things Ryan and I did very well. We all pulled together at the club to create a very special day. This included children’s activities, adult activities, raffles, auctions, a dance troop and most importantly a cricket tournament; all of which were due to donations from some very generous people.

Visitors and players travelled from all over the UK to support the day, including two first class cricketers and some ex-players who Ryan played with in the youth set-up at Leicestershire CCC. “After we found out about Ryan’s passing and the nature of his death, in my mind it was imperative that I did all I could to help raise money and awareness for CRY, so that in the future unfortunate friends and families of people who pass with the same condition have all the support they require whilst grieving.

“I also wanted to contribute to the charity so that in the

Issue 77 | September to December 2018

General Fundraising future more and more screenings are carried out on young adults that play sport. Sport is very close to my heart, just as it was to Ryan’s. Therefore, I wanted to do my upmost to make sure that all sportsmen and women can be screened as routine before it is too late.”

Sam Hickenbottom “The event held at Cropston Cricket Club on August 27th 2018 in memory of Ryan Tilley can be seen as a success in a number of ways. The weather held off despite it threatening on a few occasions and there was a great turnout by many, both the young and the old, cricket enthusiasts and those that we’ll class as ‘others’. There was laughter and dancing into the early hours of the morning and a steady flow of beer throughout the day, all helping to raise over £7,000 for CRY.

“This was, of course, everything that Tom and I had hoped for when we began to organise that event, and to look back at that day I am so proud of what we achieved. But I also think back to us both in the early planning days and how organising it differed so much from if a club or friend had asked us to organise a similar event for them. I’m sure we’d have gotten as equally stuck in, but every time we made a mental note to ring a caterer or a marquee company after work, we were reminded that the reason we were doing so is because we’ve just lost our best friend at 28. It just didn’t seem right.

“I was lucky enough to meet Ryan when I was 10 years old when I moved to secondary school. He was mad on football, as was I, and his team and mine were about to play in the same league that year. Friendly rivalry began and through it we became great friends. When he found out I played cricket when the football season ended, he mentioned that he’d be keen to play as well.

“He needed something to do in the summer, and so he joined Cropston where we spent the next 15 years playing cricket pretty much non-stop. When we weren’t playing cricket, we were playing football or talking about cricket or football. Ryan, Tom, me and the lads came to see Cropston as a second home. We spent that much time down there (and as we grew older we spent that

www.c-r-y.org.uk

much money down there!), so it seemed fitting to hold a memorial day in a place that he had loved, where he had given so many others hours of enjoyment.

“And so with the above in mind, the reason that day was a success for me was that every person there, whether they’d spent a minute in Ryan’s company or a lifetime, was reminded of one of those moments and laughs that they’d shared. They were reminded, quite simply, that had he not been a part of their life, they would not be the person that they are today. I see that in the mirror every morning, and I’ll thank him for it for the rest of my life. There is not a day that passes where I would give everything to have my mate back, but sadly I know that this cannot be so. However, if the money that was raised for CRY can help save others from going through the heartache of losing a friend, a son, a grandson, a brother, then I know that those hard phone calls were certainly worth it.”

In Memory of

Joe Tiplady

Team “Tippy”; Jane Tiplady and Lizzi Tiplady, took part in the CRY Heart of London Bridges Walk 2018 and raised £3,070.

In Memory of

Roy Tolley

Alex Wood took part in the Corsham 10k and raised £306.

In Memory of

Matthew David Tucker

Harriet, Matthew’s niece, raised £315 through a sponsored climb of Mount Snowdon.

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Our Fundraisers In Memory of

Isabelle Tudisca

• Laura Griffin took part in 100km of the Camino Walk and raised £2,725.

• Costas Ioannou took part in RideLondonSurrey 46 and raised £350.

•

Leo and Della sent in £15,960.98, including: £14,500.94 from organising a charity night on what would have been Isabelle’s 18th birthday; and £1,460.04 raised at their recent screening event.

valve that is monitored regularly. CRY inspired me to run the London Marathon some 10 years ago now. I have decided to fulfil some of the challenges that Kayla and I spoke about, starting with the Brighton Triathlon in September 2019. Some of the challenges are now off limits as my duties as sole parent are greater than my own goals.

“Michaela’s name will live on for us all in whatever we do as a family.”

In Memory of

Darren Uscroft

Andrew Holbrook took part in various marathons and triathlons and raised £5,510.

In Memory of

Michaela Leanne Valentine

Chris Valentine sent in £1,237.15, representing donations in lieu of floral tributes in memory of his wife: “Michaela Valentine (Kayla to pretty much all who knew her).

“Michaela was just nine when she had to undergo her first heart surgery. She had a leaking valve in her aorta. This was replaced and she recovered well. She was in fact to go through her first pregnancy 15 years later. A further valve was replaced so we could have our second child.

“Kayla was due to have her third and final surgery this year. Tragically, Michaela picked up an infection that then ultimately lead to Sepsis. Michaela died on the 14th August 2018, aged just 36. Kayla lived her life to the maximum, at full speed and enjoyed every moment.

She would never let her leaking valve become an issue.

She completed Walk4Life walks and a Pretty Mudder just because she could. Living with the fear of something going wrong with her heart is something no one other than people with the same or related issues can understand.

However, if my wife has shown me anything in life, it will be ‘everything happens for a reason’. Live life and don’t hold back.

“Finley and Archie, our children, have been checked for any heart conditions, with only Finley having a bicuspid

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In Memory of

Chloe Waddell

Ian Elliott sent in £8,952.30 raised from the Timperley Boneshakers Cycling Challenge 2017.

In Memory of

Neil Walden

Anna Jackson, James Jackson, Isabelle Jackson and George Jackson took part in the CRY Heart of London Bridges Walk 2018 and raised £520.

In Memory of

Neil Walden and Isobel Midgley

Jon Chappell took part in the Virgin Money London Marathon 2018 and raised £671.50.

In Memory of

Benjamin Walker

• Kirsty Barrett organised a rounders fun day and raised £467.20.

Issue 77 | September to December 2018

Our Fundraisers •

In Memory of

Lisa and Sadie took part in a tandem skydive and raised £2,282.90.

George Watson

• Wayne, Tony, Lom L and Tom B took

part in X Runner and raised £678.

In Memory of

George Wall

• Littleover Community School donated £922.59 raised through various fundraising events.

Abbi Horrocks took part in the Greater Manchester Marathon and raised £1,355.

In Memory of

In Memory of

Melissa Watts

Thomas Wall

Julie Riches and Ellie Riches took part in the CRY Heart of London Bridges Walk 2018 and raised £245.

Breanna Karstens-Smith sent in £150 in honour of Derek and Joni Gamage’s 100th birthday.

In Memory of

In Memory of

Lily Webster

Neil Ward

• Melanie Webster sent in £944, including £750 from her local rotary club.

• Pat and Derek Millington sent in

donations totalling £250, representing donations received in lieu of presents for their golden wedding anniversary.

•

•

Eileen Ward sent in £2,620, including: £1,000 from the sale of WI Calendars; £900 from a concert

by Adrian Fountain with his friends; £300 from Dronfield’s Mayor’s Charity; £120 from Dronfield Tangent; £250 from Rotary District Conference; and a £50 speaker’s Free Pentrich WI. Elaine Ward sent in £209, including: £163 from Matlock Cycling Club, and £46 from Jill at Dronfield Singers.

In Memory of

Peter Waring

Mark Burrell took part in the Leeds Half Marathon and raised £300.

• Melanie Webster sent in £1,220 from the Stowmarket Striders Club’s summer trails.

•

Samantha Manning took part in RideLondon-Surrey 46 and raised £791.

In Memory of

Darren Wells

Jane and Mark Wells completed a 40-mile Cheshire cycle and raised £1,635: “Well, we did it – 42.7 miles in 3 hours 15 minutes – in memory of Dazza and I’m sure we have made him proud.

We hope that the money raised will prevent further families having to go through the devastation we have felt this year following the sudden death of Dazza.”

In Memory of

Alex Watley

Martin Terrill raised £425 at a charity golf day at Avington Golf Club.

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Our Fundraisers In Memory of

In Memory of

Chris Wheeler

Emlyn Wibberley

Team “Thunder Pigs”; Marie Hill, Jordan Wellicome, Lee Tomes and Abbi Wheeler, took part in the CRY Heart of London Bridges Walk 2018 and sent in £622.

Bronwynn Villet took part in the CRY Heart of London Bridges Walk 2018 and raised £145.

In Memory of

In Memory of

Neil Wickers

David White

• Josh Wickers took part in a Tough

Harry Steel took part in the Junior Great North Run 2018 and raised £242.50

In Memory of

Joanne White

Jon Boast took part in the Virgin Money London Marathon 2018 and raised £10,226.20.

Mudder and raised £240.

• The Harold and Alice Bridges Charity sent in £500 towards screening in Darwen.

•

Jackie Livesey organised a fun day, raffle and a band at the Two Gates Bowling Club and raised £462.

•

Irene Wickers sent in £325 raised from a screening.

•

Bill and Irene Wickers organised a tombola stall held in Darwen Market and raised £424.

In Memory of

Stevie Wiggins

Sheila Wiggins sent in £650 from the Heartfelt Group raised through a drop-in charity shop and car boot sale.

In Memory of

Katherine Wilcock

• Charlotte Thomas sent in £350 from Ruff Lane Day Nursery in Ormskirk.

• Susan Nugent forwarded £200 on behalf of The Marine Supporters Association.

•

In Memory of

Richard Whitehead

Joanne Bradley held a birthday fundraiser and raised £145.88.

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Josie Williamson took part in the Greater Manchester Marathon and raised £1,195.

In Memory of

David Wild

Jade O’Leary took part in a Zombie Evacuation Race and raised £170.

Issue 77 | September to December 2018

Our Fundraisers In Memory of

In Memory of

Mike, James, Chris and Tom took part in Movember and raised £775.

•

Mark Coultrip sent in donations totalling £1,665, representing matched funds for events organised at Arthur J Gallagher.

In Memory of

•

Carole Wilson sent in £220 raised in lieu of gifts to celebrate her husband’s 60th birthday.

Mark Coultrip at Arthur J Gallagher Financial Risk Tech Ops forwarded a matched fund donation of £6,852.75.

•

Mark Coultrip forwarded a further £1,665 raised by staff at Arthur J Gallagher.

Joseph Williams

Lee Wilson

Emily Windus, Harry Richards and Robert Allan

In Memory of

Paddy Wilson

£340 was donated to CRY in memory of Paddy Wilson, CRY’s Operations Director: “We would like to publicly thank all those who have donated in Paddy’s memory. He adored his work for CRY and took enormous pride in being part of a team which helps so many people.” Matt Wilson.

In Memory of

Liam Wood

•

In Memory of

James Wilson

Ann Wilson sent in £112 in memory of her son.

In Memory of

Jemima Wilson

Calla Lily Personal Care Ltd donated £150.

www.c-r-y.org.uk

Tina Eardley sent in £600 raised through a charity football match at Newcastle College:

“On Saturday 4th August 2018 friends of Liam Wood took part in a charity football match at Newcastle College to raise money for CRY. Donations were given by players, parents, friends and former pupils of St. John Fisher Catholic College in memory of Liam Wood. The total amount collected was £600 and we would like to give this to the Nathan Butler Memorial Fund to go towards local screening, which is arranged regularly at Porthill Park Cricket Club by Nathan’s parents, Angela and Phil Butler.”

•

Marcus Bushe took part in the Southampton Marathon and raised £792.50:

“It was the 22nd April 2018, and the atmosphere was booming. It was the day that I ran 26.2 miles for a worthy cause. Was it worth it in retrospect? Yes, it was, and I’d do it all over again! Even if that means more months’ worth of training and having stiff legs for a couple of days after the race. Of course, there were times during training when I questioned myself and why I was making myself do this – particularly when it was late at night, or when I had to get up very early in the morning. But, safe to say, 22nd

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Our Fundraisers •

Cushman & Wakefield organised the 2018 Rob Worboys Arran Challenge and raised £2,686.20.

•

Gina Worboys sent in £179.49 raised through a recent screening at Bedford School.

In Memory of

Julian Wort

Eileen Byrne organised a coffee morning and raised £413.55:

April was the reason why! A sub four-hour time achieved and a current sum of £642.50 raised for Cardiac Risk in the Young – happy days! I ran in memory of an absent friend, Liam Wood, who was taken from us in January 2012. My time: 03:54:32.8.”

In Memory of

Seth Woolley

• Verity Burn took part in the Virgin

Money London Marathon 2018 and raised £330.

“This wonderful amount was raised at a coffee morning organised

by Eileen Byrne. My friend, Lisa Fairhurst, made a lovely chocolate cake and we decided to raffle it and it raised £55. It was a lovely morning with plenty of cups of tea and coffee, cakes, raffles and a book stall.” Shirley Wort.

In Memory of

Matthew Wright

Claire Bland organised a fancy dress touch rugby tournament and raised £3,648.30.

• Liz, Ellie, Katie, Liz and Lydia took part in an inflatable 5k run and raised £155.

In Memory of

Sam Wright

In Memory of

• David Lear raised £500 from his work

Robert Worboys

in the community over the summer.

• Mrs Humphries sent in £100.

• Bedford Park Rotary Club sent in £5,000.

•

Dentons UK and Middle East LLP sent in £500 raised through the Worboys Challenge 2018.

•

Chris Brydie sent in £2,096 raised through the 2018 Robert Worboys Challenge.

•

Nick Ball took part in The Rob Worboys Arran Challenge and raised £591.60.

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• Catherine Connah sent in £100 in appreciation of her children’s screening.

•

Elaine and Kevin sent in £588 raised through a recent screening event.

In Memory of

Michael Yendall

David and Tom raised £200 from charity walks.

Issue 77 | September to December 2018

General Fundraising •

Aaron and Oli took part in the Bracknell Half Marathon and raised £150.

•

All Saints Church, Penarth held hour-long recitals and raised £154.

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Amanda and team took part in Endure 24 and raised £1,205.

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Roger Ardley took part in RideLondon-Surrey 100 and raised £2,140.

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Gemma Armstrong took part in the London to Paris Bike Ride and raised £810.

•

CRY Representative Graeme Attridge collected £10,527 raised by members of the Clandon Regis Golf Club.

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Daniel Augustine (right) took part in the Virgin Money London Marathon 2018 and raised £905.

•

Lisa Barnett sent in £110 donated by Ex Tui & Thompson holiday reps, in memory of Levon.

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Joseph Booth (above) took part in the Virgin Money London Marathon 2018 and raised £2,890.

•

Martin Borrett raised £446.20 through Just Giving.

•

Brampton Recruitment Ltd took part in the Lands End to Bignall End Cycle and raised £110.

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Mallory Brand sent in £120 donated in lieu of gifts at her wedding.

•

Lynn Brannan sent in £152.14.

•

Joshua Baron took part in the Virgin Money London Marathon 2018 and raised £880.

•

John Battle took part in the Virgin Money London Marathon 2018 and raised £3,101.

•

Bill and Becky took part in the Hackney Half Marathon and raised £745.

•

Alexandra Bennett sent in £100.

•

Claire at Berkhamsted Raiders sent in £1,000 from one of their player’s parents.

•

Anna Bettiss took part in the Virgin Money London Marathon 2018 and raised £796.

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Brian, Bernadette, Louise, Shireen, Agnes and Craig took part in Kiltwalk Glasgow and raised £717.

•

Bivonas Law sent in £200.

•

•

Leigh Bond sent in £345 raised by staff at McColls Swaffham, in respect of their Halloween cake sale and raffle.

John O’Brien and Annie O’Brien took part in RideLondon-Surrey 100 and raised £1,350.

•

Sarah Brison took part in the CRY Heart of London Bridges Walk 2018 and sent in £150.

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General Fundraising •

Joy and Steve Brookes sent in £220 raised in lieu of gifts at their ruby wedding anniversary.

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Cardinal Newman College Modern Foreign Languages Department sent in £132.70 raised through various fundraising activites.

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Joanne Carthew sent in £183 in respect of her reflexology day.

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Marcos Castro sent in £150 on behalf of The London Metal Exchange.

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Charity Car donated £112 in respect of the CarTakeBack scheme.

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Anthea Clarke raised £234.40 raised through various fundraising events.

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Jean Coote sent in a further £200 in respect of her grandson’s screening.

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Alex Cornwall took part in the Three Peaks Challenge and raised £1,370.

•

Charities Trust Fujitsu Northern Ireland donated £100.

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Helene Clausin took part in the EUSC + Windriders Charity Fun Run and raised £209.39.

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Colliers International sent in £169.22.

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Jane Collins sent in £100 raised from a carol concert hosted by Aldrich and Company.

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Sarah Comboy and team took part in the Welsh 3000’s and raised £715:

any of us have ever done. Through great team work and determination we smashed it! Great team achievement by an amazing team.”

•

Charlotte and Edward Connock sent in £110.06.

•

Co-Operative Group Limited sent in £312.41.

•

Co-Operative Group Limited sent in £421.62.

•

Mr Cowen presented a cheque for £1,500 on behalf of the Rotary Club of Crewe & Nantwich Weaver to CRY Representative Deborah Dixon.

•

Sue Cox made cushions and tote bags and raised £225.

•

Joanne Cressey at IHC FHP Ltd sent in £100.

•

Mrs Cresswell sent in £651 raised by Lions from Berkhamsted from quarterly reciepts.

•

Peter Cummings took part in the Paisley 10k and raised £245.

•

Brian Davey sent in £100 from Power-rite (UK) Ltd.

“Moulton Adventure Group team took on the Welsh 3000 15 peaks in 24 hour challenge. We completed it in 21 hours 32 mins. It was the hardest yet best thing

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Issue 77 | September to December 2018

General Fundraising •

Alex Dean sent in a further £100 raised from taking part in the Hever Castle Triathlon.

Cup sweepstake at Flitwick Community Football Centre.

•

Delves & Co Ltd raised £303.66.

•

•

CRY Representative Sue Dewhirst collected a donation of £1,548.90 from Marks and Spencer PLC, raised through various activities.

Alice Godfrey took part in the Marathon Walk and raised £175.

•

Sam Godfrey took part in a Dragon Race and raised £800.

•

Mr Donkin sent in £170 raised from Evolution Fitness Team taking part in a Total Warrior event.

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Sam Godfrey sent in £1,600.

•

Heidi Dormer took part in the Virgin Money London Marathon 2018 and raised £2,972.67.

•

“Team Green”; Gillian Green, Matthew Green and Dylan Green, took part in the CRY Heart of London Bridges Walk 2018 and raised £205.

•

Maxi Ducam-Davies, Marcus and Matthew participated in the Tri-State Tough Mudder and raised £584.

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Hayden Green took part in RideLondon-Surrey 100 and raised £670.

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Enda Duffy took part in RideLondon-Surrey 100 and raised £1,436.05.

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Matthew Green took part in RideLondon-Surrey 100 and raised £1,405.

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Emma, Suzanna and Nikki took place in the Manchester 10k and rasied £1,831.

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Clare Grimbly sent in £2,100 raised from her summer term 2018 Interact fundraising.

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Andrew Evans took part in the Spain Coast to Coast Cycle and raised £1,485.

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Alex Grumley took part in the London to Brighton Challenge and raised £400.

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Josephine Evans took part in the Royal Parks Half Marathon and raised £510.

•

Steve Halkyard took part in RideLondon-Surrey 46 and raised £350.

•

Rosie Evans sent in £192.70 raised at TMR (Tokio Millennium) through their dress down Fridays.

•

Matt and Becky Hardy donated £315 raised from their wedding celebrations.

•

Lisa Ewart participated in the Virgin Money London Marathon 2018 and raised £790.05.

•

Charlotte Harper took part in the Great North Run 2018 and raised £551.64.

•

CRY Representative Tara Field collected a donation of £11,084.06 on behalf of Methodist Women in BritainKent Area.

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Chloe Hayward and Jack Sams took part in the CRY Heart of London Bridges Walk 2018 and raised £164.

•

Healthcare Financial management Association South Central Branch sent in £200.

•

Annabel Hill sent in £100.

•

Jane Hipkin sent in £400.

•

Holland Sports & Social Association sent in £1,350.

CRY was nominated by ‘The Banned’ band who took part in the festival.

•

Kate Finn sent in £250 on behalf of PwC Foundation.

•

Kate Finn took part in an Ironman and raised £1,580.

•

Anna Fletcher nominated CRY as the Christmas charity at her workplace (Mitchells Chartered Accountants in Gloucester) and raised £100 in lieu of sending Christmas cards.

•

Alison Forrest sent in £250 from Rockwell Collins Uk Ltd.

•

Immy Holmes took part in the Putney and Fulham Half Marathon and raised £1,429.

•

Sandra Gash took part in an Ironman and raised £540.

•

Clare Howe and Jennifer Howe took part in the CRY Heart of London Bridges Walk 2018 and raised £230.

•

Linda Gazeley sent in £219.43 raised from her World

•

HSBC Bank PLC sent in £1,000.

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General Fundraising •

HSBC Bank PLC sent in £500 in respect of Ms M Marshall’s fundraising.

•

Willaim Hughes JLL Ltd sent in £250.

•

Maralyn Humphrey at Talks at Six donated £325 in respect of talks given by Richard Ashworth MEP and CRY Representative Sue Fisher.

•

Kira Iles organised a charity golf day and raised £500.

•

InHealth Limited - Wansbeck MRI Unit sent in £120.

•

Islwyn Indoor Ladies Bowls Club sent in £250 raised through holding raffles.

•

Nicola Jenkins sent in £100 in appreciation of her son’s screening.

•

Mr Johnson sent in £170.

•

Samuel Keeling completed a skydive and raised £575.

•

Charlie Kelly took part in the Shakespeare Half Marathon and raised £157.50.

•

Ben Kfir sent in £100.

•

The King Edmund School in Rochford sent in £331.97 raised through their RAG week.

•

The King Edmund School in Rochford sent in £189.11 raised through their healthy eating event.

•

Kirsty Kilpatrick sent in £125 from Education Social Fund in Perth raised through various events.

•

Lakeland Limited, Chelmsford sent in £267.77.

•

Laurel Park Football Club raised £311.45 through various fundraising activities.

•

Jamie Lawrence and team took part in a Ben Nevis Night Walk, a cycle ride, the North Peak District Challenge, the Colour Dash Run, an inflatable obstacle course and the Bubble Rush and raised £852.60.

•

Andy Lewis took part in the Ben Nevis Night Walk, a charity cycle, the North Peak District Challenge, the colour Dash Run, an Inflatable Obstacle Course and Bubble Rush and raised a further £190.08.

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•

Louise, Tina, Lauren, Aicha, Shane and Raj took part in the Birmingham Half Marathon and raised £1,680.60:

“We were a team of six at work that wanted to do something to get fit and raise money for CRY. We saw the Birmingham Half Marathon was 20 weeks away, so got straight to work on some short runs here and there. We started our fundraising page and held a cake sale and samosa sale to boost the money!

“Then, before we knew it, race day came... and it didn’t rain... it poured... consistently ALL DAY! “Our team of six became four by race day. We all had our own race to run and set about the 13.1 miles individually!

And we all made it, soaked and cold, but this only made us more proud of ourselves!” Louise.

•

Joe Lynskey (right) took part in the Virgin Money London Marathon 2018 and raised £757.

•

Manchester Metroplitan University raised £110.42 through various fundraising activities.

•

Simon Marsh at Match Foster Care sent in £500 raised from a bag pack at a Morrisons store.

•

Hannah Marshall sent in £1,500 raised by the Wix

Issue 77 | September to December 2018

General Fundraising Young Farmers (right).

•

•

•

•

•

Chris Martin completed the Three Peaks Challenge and raised £830.

Iain McArthur took part in RideLondonSurrey 100 and raised £505.

Millie McKelvey held various events over the past year, including cake and jewellery sales, and raised a further £265.

Liam McLaughlin (right) took part in the Virgin Money London Marathon 2018 and raised £2,128.40.

Julie McNicholl sent in £125 raised from the apprentices at Rotork Controls Ltd.

•

Old Wykehamist Lodge L3548 sent in £700.

•

Mark Openshaw took part in RideLondon-Surrey 100 and raised £2,646.50.

•

Finley O’Sullivan took part in the Bedford School charity run and raised £1,115.

•

Lucas P, Lucas W and Adam completed a cycle challenge and raised £4,259.12.

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Ciaran Padhiar took part in the Virgin Money London Marathon 2018 and raised £1,510.

•

Norry Passway took part in the Aberfeldy Triathlon and raised £522.50.

•

Ben Peers completed a skydive and raised £608.09.

•

Martha Perry took part in the Cheltenham Half Marathon and the Lausanne Half Marathon and raised £579.

•

Nicola Peters sent in £240 from Legal & General Group Plc.

•

Sanjay Pindoria sent in £100.

•

Jonathan Poole sent in £150 from Esher College.

•

Simon Potashnick took part in RideLondon-Surrey 100 and raised £638.

•

Sally Quest took part in the Walk of the Santiago de Compostela and raised £1,045.

•

Roisin Reeve, Alanna Stewart, Catherine Blower, Jamie Salter, Nassi Coulibaly, Rebecca Osei, Kera Kweyi, Eden Goyton and Destinie Reynolds took part in the CRY Heart of London Bridges Walk 2018 and raised £375.

•

Louis Meah-Wilson sent in £100.

•

Andrew Middleton sent in £200.

•

Alastair Morrison sent in £288.

•

Steven Rimmer sent in £100.

•

Mousehole Carnival Committee sent in £150.

•

Rotary Club of Hanwell & Northfields sent in £100.

•

Sharron Mulvaney took part in the Rock ‘N’ Roll Liverpool Half Marathon and raised £140.

•

Jenny Routley took part in the Virgin Money London Marathon 2018 and raised £2,140.

•

Maxine Murphy-Higgins took part in the Omagh Half Marathon and raised £390.

•

Paloma Ruiz De Dulanto sent in £385 raised through fundraising activities at Travelport.

•

Lucinda Nimmo organised a Christmas fair and raised £452.32.

•

Jamie Sayers took part in the Newcastle to Durham Walk and raised £611.50.

•

Lucinda Nimmo took part in the Costa Rica Cycling Challenge and raised £100.

•

Julie Scarratt sent in £100 raised from a collection at the Jack Doyle.

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General Fundraising •

Schroder Investment Management sent in £100.

•

•

Send Church of England Primary School sent in £255.27.

Ed Thwaites took part in the Marathon De Sables and raised £6,668.74.

•

•

R Shah sent in £250.

Andrew Tiffany, Jodie Tiffany-Guy and Evie Tiffany-Guy took part in the CRY Heart of London Bridges Walk 2018 and sent in £860.

•

Sonia Sheppard forwarded a donation of £519 in respect of the ‘Car Take Back’ scheme.

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Andrew Tootell sent in £140.60.

•

Simon Langton Grammar School for Boys sent in £739.97 raised through sponsored walks.

•

James Topping organised a white collar boxing match and raised a further £1,565.

•

Travelport interns took part in multiple events and raised £7,520.

•

Max Tribe took part in the Edinburgh Marathon and raised £288.10.

•

Emma Turetta organised a tropical party and raised £120.

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Sara Turkington sent in £559.91.

•

United Utilities Group PLC sent in donations totalling £490.

•

Walbrook Partners Limited sent in £1,000.

•

Will Warden and team took part in the Richmond to Amsterdam cycle and raised £1,713.50.

•

Ms E Watson donated £305 raised through the Manchester Heart Centre taking part in the Manchester 10k.

•

Mark Smith (right) took part in the Great North Run 2018 and raised £750.

•

Richard Smith, Russell Smith and Samuel Saunter took part in RideLondonSurrey 100 and raised £2,509.99.

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Andy Stacey took part in the Paris to Cannes Cycle and raised a further £2,411.09.

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Andy Stannard took part in the Virgin Money London Marathon 2018 and raised £141.55

•

Stanton-by-Dale Cricket Club sent in £250.

•

•

St Columba’s Catholic Boy’s School sent in £380.

Fiona Watters took part in the Virgin Money London Marathon 2018 and raised £3,222.55.

•

•

Brian Stephens sent in £131.04.

Nicola Wetherell at Experian Nottingham sent in £370 raised at their office sports day.

•

Amelia Sterry took part in a Colour Run and raised £1,409.54.

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Nicola Wetherell at Experian Benevity sent in a further £250.

•

Nicola Stokes took part in the London 10,000 and raised £101.

•

Nick Whitbread took part in the Great North Run 2018 and raised £315.

•

Dennis Tailor sent in £2,282.60 on behalf of Friends of CME Trust raised from a 1,208 mile walk.

•

Lauren Wilson took part in the Tough Mudder Half Midlands and raised £635.

•

Andy Tait took part in RideLondon-Surrey 46 and raised £405.

•

Mark Wolstenholme sent in £200.

•

•

Team UAFC took part in the UAFC Competition Raffle 2013 and raised £344.38.

Ruth Wood completed a 37-hour famine and raised £265.

•

Yellow House Limited sent in £250.

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Issue 77 | September to December 2018

Raising Awareness in the Media Report Between September and December CRY featured in 207 print articles, including 1 national article and 10 magazine articles. CRY also featured in 200 online articles.

Headlines from September to December in the press...

‘Memorial milestone’ Rotherham and South Yorkshire Advertiser The 1,000th young person was screened in memory of Alexandra Reid at Kiveton Park Surgery.

Published 14 September 2018

‘Every week 12 young people die from sudden cardiac death. Is it time to start screening runners?’

New Statesman Dr Nishat Siddiqi wrote an article about young sudden cardiac death and ECG screening, referencing CRY statistics and research.

Published 7 November 2018

‘Incredible support for those most in need leading Essex’s New Year Honours’ East Anglian Daily Times (Essex) Caroline Gard was awarded a British Empire Medal (BEM) for her service to young people and charity.

Caroline has supported CRY following the death of her son, Andy, in 1997.

Published 29 December 2018

Online...

‘Woman undergoes heart transplant after doctors dismiss her symptoms as stress’ Metro, 6 September 2018 Charlotte Carney eventually received a successful heart transplant after being diagnosed with restrictive cardiomyopathy following a CRY screening.

Read online at https://bit.ly/2Wg7RuS

‘Heartbroken mum of dying girl, 4, only allowed to see her for 30 minutes a day in hospital’ Mirror, 5 October 2018 Meinir James took part in the Cardiff Half Marathon for CRY after her four-year-old daughter, Mali JamesMitchell, suffered a cardiac arrest due to an undiagnosed heart condition.

Read online at https://bit.ly/2HBLU6j

‘Brentford family comes together at Rainbow Laces event’ Sky Sports, 27 November 2018 Brentford FC have started fundraising for CRY in memory of their technical director, Robert Rowan.

Read online at https://bit.ly/2UQtK3w

For links to online, press, television and radio coverage related to CRY and young sudden cardiac death visit www.c-r-y.org.uk/inthemedia

www.c-r-y.org.uk

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Fundraising Events 2019 Please contact the fundraising team on 01737 363222 or email events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events visit www.c-r-y.org.uk/category/upcomingcryevents All participants in mass-participation events who contact the CRY fundraising team (whether they have their own place or a CRY charity place) will receive a welcome pack containing sponsor forms, information, helpful tips and either a T-shirt or vest (depending on the type of event).

Rough Runner

Throughout 2019 Rough Runner is an obstacle course like no other; combining distance running (there’s a 5km, 10km and 15km run) with a variety of obstacles along the way, inspired by game shows such as Total Wipeout, Takeshi’s Castle and Gladiators.

Expect a punching wall, sweeper arms, big balls and The Travelator!

Parachute Jumps Assorted dates

Edinburgh Marathon Festival May 26-27

The Edinburgh Marathon Festival includes a marathon, a half marathon, a 10K and a 5K. Fast and flat, this course takes in some of Edinburgh’s most iconic landmarks as well as offering the marathon runners picturesque views along the East Lothian coastline.

success of the race event for the London Olympics. The event comprises a 100mile or a 46-mile cycle route on closed roads through the capital into Surrey’s countryside.

Simplyhealth Great North Run 2019 September 8

The Great North Run is the world’s leading half marathon. The 13.1-mile course runs from Newcastle upon Tyne to South Shields and attracts many worldclass athletes.

Simplyhealth Great Bristol Half Marathon September 15

The course will take runners under the iconic Clifton Suspension Bridge with spectacular views along the Avon Gorge and Bristol Harbourside before entering the city centre.

London 10,000 2019

London Marathon Walk 2019

Starting and finishing in St. James’s Park, runners will enjoy the sights of the city and pass some of London’s most iconic landmarks, including Nelson’s Column, St Paul’s Cathedral and Big Ben.

A 26.2 mile movie themed walk around London, taking in some of the capital’s iconic sights and less-visited corners.

May 27

CRY Heart of London Bridges Walk 2019 June 23

Join CRY for the 13th annual CRY Heart of London Bridges Walk. This event offers the opportunity to show support for CRY, remember young people, raise funds and help raise awareness.

Prudential RideLondon-Surrey 46 and 100 August 4

This cycle was introduced after the

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September 28

CRY Heart of Durham Walk October 5

Join CRY for the 10th annual Walk in Durham. The 5-mile route starts and ends at Durham Amateur Rowing Club and passes along the River Wear and through the beautiful city of Durham. The walk is suitable for all.

Cardiff Half Marathon

October 7

Cardiff Half Marathon boasts one of the most stunning 13.1 miles courses around. The route takes runners past the capital’s most iconic landmarks with

beautiful scenery and historic buildings.

The predominately flat and fast course makes it ideal for beginners and elites.

Royal Parks Half Marathon October 13

This stunning central London half marathon takes in the capital’s worldfamous landmarks on closed roads, and four of London’s eight Royal Parks – Hyde Park, The Green Park, St James’s Park and Kensington Gardens.

CRY Great Cake Bake November 22

This is a fun and simple way for our supporters to get involved in Raising Awareness Week. Get your family, friends, colleagues and children involved in baking, eating and raising money for CRY. And compete to see who will create this year’s showstopper!

Trek Kilimanjaro

Assorted dates, 2020 Kilimanjaro is the highest mountain on the African continent at 5,896m. Its snow-capped summit rises high above the dusty African plains. Spectacular views and beautiful ice formations are the reward for pushing your limits.

Big Heart Bike Ride South Africa November 6-14, 2020

Join the next Big Heart Bike Ride in South Africa for a 400km cycle along the world-renowned Garden Route. You will begin in the wonderful lagoon town of Brenton-on-Sea, alongside rivers, rustic villages and even a game reserve.

Be sure to look out for some amazing wildlife along the way, including rhinos, zebras and lions! You will finish with a free day to explore the stunning city of Cape Town.

Issue 77 | September to December 2018

CRY Update 77 September to December 2018 Our Fundraisers By fundraising for CRY you will be helping to: • subsidise CRY’s national cardiac screening programme • fund CRY’s bereavement support programme to provide counselling and support to affected families • support research into young sudden cardiac death (YSCD) • develop the myheart Network to support young people living with cardiac conditions • provide all CRY literature and information free of charge • develop the CRY Centre for Cardiac Pathology (CRY CCP), and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology

The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD. Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, sponsor forms and other resources.

If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.

For further information please call the CRY office on 01737 363222 or visit www.c-r-y.org.uk/donations All your help is greatly appreciated.

Visit www.c-r-y.org.uk/charityfundraising-challenge-events for more information or contact the CRY office for a fundraising ideas pack.

Our Patrons

Our Mailings

The urgency of CRY’s mission and the quality of our work has compelled many high-profile personalities to give their time to become CRY Patrons.

For more information visit www.c-r-y.org.uk/about-us/patrons

Sir Ian Botham OBE

Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.”

Current Patrons of CRY: Rob Andrew MBE • John Barrowman MBE • Jeremy Bates • Ben Brown • Clive Clarke • Jack Clifford • James Cracknell OBE • Nick Easter • Jonny Evans • Baroness Ilora Finlay • Simon Halliday • Kathryn Harries • Michael Hoey • John Inverdale • Tom James MBE • Pat Jennings OBE KSG • Rob Key • Gary Longwell • Pixie Lott • Emily Maitlis • Graeme McDowell MBE • Lee Mears • Bill Neely • Lawrence Okoye • Phil Packer MBE • Sir Steve Redgrave CBE • Vincent Regan • Joe Root • Andy Scott • Roger Taylor MBE • Professor Gaetano Thiene • Gregor Townsend MBE • Andrew Triggs-Hodge MBE • Andrew Trimble • David Walliams • Alison Waters • Matt Wells • Sir Clive Woodward OBE

www.c-r-y.org.uk

There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we also accept credit/debit card donations over the phone.

1. CRY Update magazine Postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; supporters’ fundraising; articles about screening, myheart, research, pathology, raising awareness initiatives, massparticipation fundraising events; and much more.

2. CRY enewsletter Monthly email newsletter; 3 emails per year with links to the online version of the Update magazine; plus occasional emails about major CRY events and initiatives.

If you would like to subscribe to – or unsubscribe from – either of these mailing lists, please let us know: • Complete the online form; www.c-r-y.org.uk/subscribe • Call the CRY office; 01737 363222 • Email the CRY office; cry@c-r-y.org.uk

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Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD).

Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions.

These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS).

CRY aims to reduce the frequency of YSCD through raising awareness amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research.

1 in 300 young people CRY tests will have a potentially lifethreatening heart condition.

CRY believes cardiac screening should be available to all young people aged between 14 and 35.

Registered Charity No. 1050845

CRY also works to guide and support families and close friends affected by YSCD. We provide information to explain what the coroner does, bereavement support, help with NHS referrals and advice on the procedures that usually follow a YSCD. In 80% of cases of young sudden cardiac death there are no prior

We are very proud that over 80p in every £1 we spend goes into supporting CRY’s key aims.

Without the fantastic support we receive this wouldn’t be possible.

symptoms of a heart defect.

CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge.

For detailed information about cardiac conditions and CRY’s range of literature visit www.c-r-y.org.uk/ medical-information

Fundraising Awareness 15% 14% Governance Support 2.5% 7%

Screening 35%

Research 26.5%

CRY is grateful for grants or donations from trusts and foundations.

We would like to thank the following for the generous support they have given us:

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A & R Woolf Charitable Trust • Aubrey Orchard-Lisle Charitable Trust • Bartle Family Charitable Trust • Borrows Charitable Trust • The Cantiacorum Foundation • Carval Foundation • The Charles Wolfson Charitable Trust • The Childwick Trust • CMS Cameron McKenna Foundation • Cosaraf Foundation • The Edith Murphy Foundation • G C Gibson Charitable Trust • G M Morrison Charitable Trust • The Geoff and Fiona Squire Foundation • James Tudor Foundation • The Joyce Kathleen Stirrup Charitable Trust • The Lady Forester Trust • Leathersellers’ Company Charitable Fund • The Mabel Harper Charitable Trust • The May Gibson Charitable Trust • The Oakdale Trust • The Oliver Stanley Charitable Trust • The Rachel & David Barnett Charitable Trust • The Samuel Storey Family Charitable Trust • The Schroder Charity Trust • The Stanley Grundy Foundation • The Steel Charitable Trust • Tudor Foundation Inc • Vernon N Ely Charitable Trust

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

CardiacRiskintheYoung CardiacRiskintheYoung @CRY_UK