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News and Events | Raising Awareness | Our Fundraisers

Update 70 | May to August 2016

In this

Newsletter Volunteering

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CRY at the Conferences 2016

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CRY Heart of London Bridges Walk 2016 | 22 Prudential RideLondon-Surrey 2016

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

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Visit our websites: www.c-r-y.org.uk www.sads.org.uk

@CRY_UK

CardiacRiskintheYoung


CRY Update 70 May to August 2016 Editor Dr Steven Cox

Chief Executive

Deputy Editor James Slade

Newsletter Editor

As Deputy Editor of the CRY Update it is my responsibility to put together this newsletter, and ambition that you find all the CRY news, events and fundraising these pages to be of interest. I always endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to get in touch with me if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section. I would appreciate hearing from you at james@c-r-y.org.uk or on 01737 363222 if you have any feedback or comments regarding previous issues. Thank you for your help.

Contributors

Inside Update 70 Meet Our Representatives 3 News from the Chief Executive 4 Alison’s Column 12 Extra CRY News 14 myheart News 14 CRY Screening Report 15 CRY Centre for Cardiac Pathology (CRY CCP) 17 Report Research News 18 CRY Heart of London Bridges Walk 2016 22 Prudential RideLondon-Surrey 2016 25 Our Fundraisers Raising Awareness in the Media Report Fundraising Events 2017

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Alison Cox MBE Founder Sara Santos Vidal PA to Professor Mary Sheppard

For more details regarding the events shown on the cover, please turn to the corresponding page references below. Images are listed clockwise from top left:

Rebecca Zouvani

• Five friends organise The Golden Ball in memory of Harry Faulkner, page 46 • 40 Uxbridge College students take part in a 24-hour football marathon, page 84 • Stephen Fisher holds The Botanic Inn tournament in memory of his brother, Michael, page 47 • The Ugly Ducklings cycle from coast to coast in memory of Jamie Loncaster, page 57 • Family and friends of Pardeep Nagra hold a dinner and dance at the Grand Station in Wolverhampton, page 66 • A group of nine skydive in memory of Peter Taylor, page 74 • 49 CRY cyclists take part in the Prudential RideLondon-Surrey 2016, page 25 • Over 1,200 CRY supporters led by Patron Kathryn Harries take part in the CRY Heart of London Bridges Walk 2016, page 22 • Nicola and Russell Merriman organise the second Ridgeway Walk in memory of their son, Richard, page 64 • A team of 41 run the Derby 10K in memory of George Watson, page 78 • 27 family and friends cycle the PPCC Wheelers Charity Bike Ride in memory of Nathan Butler, page 36 • Martin Evans runs the ASICS Greater Manchester Marathon in memory of Steffani Broughton, page 33 • The CRY Babies arrange collections, a sponsored treadmill and cake sale in memory of Matthew Hesmondhalgh, page 51

Fundraising Manager

Head Office:

Unit 1140B The Axis Centre Cleeve Road Leatherhead KT22 7RD No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor. The Editor welcomes letters but reserve the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of Cardiac Risk in the Young (CRY). Articles pertaining to health-related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.

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Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more. Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised. If you can supply a writeup or photos for any fundraising activities you have taken part in, please email james@c-r-y.org.uk. Images of CRY Patrons and Members of Parliament throughout have been highlighted in red.

Copyright © 2016 Cardiac Risk in the Young. Registered Charity No. 1050845 A Company Limited by Guarantee. Registered in England No. 3052985 Registered Office: Helmores UK LLP, 13/15 Carteret Street, Westminster, London, SW1H 9DJ

Issue 70 | May to August 2016


Meet Our Representatives week before, and simply closed his eyes and stopped writing midsentence. Rachel had desperately tried CPR, as did the paramedics on arrival, but to no avail. We later found out that he had died of a condition called hypertrophic cardiomyopathy.

Linda and Geoff Goodwin Representatives in Gloucester On Saturday 21 July 2007, our eldest son, Tony, contacted us to say that our daughter-in-law, Rachel, had been trying to reach us by telephone. Rachel’s husband and our younger son, Ashley, had suffered a heart attack and was in Frenchay Hospital, Bristol. It was inexplicable to us at the time, as he had just undertaken rigorous physical exercise as part of his police training and had run two London Marathons in the previous two years. We drove down to Bristol as quickly as possible and I for one fully expected to see him “wired up” and attached to monitors. It was only the evening before that we had spoken to him to wish him a happy birthday and an enjoyable evening at home with his family. On arrival at the hospital we quickly became aware that all was not well, and found out that Ashley had died suddenly at home without warning. He was sitting on the sofa, writing up notes following a placement during the

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The day Ashley died our world fell apart. It was unbelievable that someone so fit and healthy could just sit on the settee, close his eyes and die. During his last London Marathon, Ashley had reached Big Ben and running alongside him was a big red blob. When I asked my sister what the charity was, she said that it looked like “CRY”. We both wondered what that stood for. Two weeks before Ashley died, I saw a television programme where a couple were explaining how their son had died suddenly, and that they were now involved with CRY. Finding CRY helped us realise that we are not alone, that there were people there that could help us, and it gives us something to focus on. We have met many people in the years since we joined, people who we can say have become true and trusted friends. We now want to give something back and help out in any way we can. A new chapter in our CRY lives is about to start with Walk and Talk in Gloucestershire. We are so looking forward to meeting new people who, like us, love walking and want a social day out For more information visit www.walkandtalk.org.uk

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News from the Chief Executive Dr Steven Cox

CRY Chief Executive

@Drstevenjcox drstevenjcox

May

Surrey Young Superstars Awards May 8 I was invited to speak in Guildford at the Surrey Young Superstars Awards, which had chosen CRY to be their young persons’ charity for 2016. The event was held at Guildford Harbour Hotel and was also attended by Richard Whittington, High Sheriff of Surrey; Councillor Melanie Odell, Mayor of Haslemere; Sally Marks, Chairman of Surrey County Council; along with the young awardwinners, nominees and their families.

CRY awarded ISO 27001 certification May 3 We are delighted to have received ISO 27001 certification from the British Assessment Bureau and are so proud of the effort and involvement of our staff in helping us to achieve this. The business information security standard, which follows the award of ISO 9001 for the quality of our organisation in 2015, adds further credibility to CRY’s operation and security. It also underlines our loyalty to the bereaved families, all those we screen, and our fundraisers – without whom our vital work would not be possible. We want everyone involved with CRY to know we take the organisation’s governance extremely seriously.

Anniversaries booklet sent to families May 3 CRY launched a new booklet for families in May to help them through anniversaries following the sudden death of a family member or friend. Anniversaries following a young sudden cardiac death, compiled by CRY Founder Alison Cox MBE, features 17 short chapters from men and women talking through their personal experience of having to find ways of coping with painful dates and memories throughout the year. In May we sent the booklet to over 2,000 individuals and families who have received our support, and we have since sent out hundreds more upon request. The resource is available by post from CRY and is also available online at bit.ly/isu3516an

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It was fantastic to be given the opportunity to deliver CRY’s message to a local, enthusiastic audience – but it was also incredibly inspiring to hear the stories of active volunteers and fundraisers, aged 8 to 19, who were so committed to making a difference in their community.

CRY research on causes of sudden death makes impact May 10 CRY Research Fellow Dr Gherardo Finocchiaro had a paper entitled “Etiology of Sudden Death in CRY Research Fellow Sports” published in the Journal of Dr Gherardo Finocchiaro the American College of Cardiology. The study looked into the reasons for sudden cardiac death (SCD) in young athletes as ascertained by the CRY Centre for Cardiac Pathology (CRY CCP). In commentary, Editor-in-chief Dr Valentin Fuster described the research as “the best I have seen thus far [on the causes of SCD in athletes], since it is portrayed by the Cardiac Risk in the Young Centre…”, before discussing the implications of the research in detail. This was high praise from the head of a prominent medical journal, and an indication of the international regard for the quality of both CRY’s cardiology research and cardiac pathology investigations under Professor Mary Sheppard.

Issue 70 | May to August 2016


News from the Chief Executive Jack Clifford announced as CRY Patron May 26

The American College of Cardiology interviewed CRY Consultant Cardiologist Professor Sanjay Sharma about the paper at their annual meeting in Chicago, USA, which you can watch at bit.ly/yt3516ss

National Partners’ Bereavement Support Day May 14

We were privileged to announce England Rugby international Jack Clifford as our latest Patron from the world of sport – particularly as he has such a strong and personal reason to want to become involved in the work we do.

The National Partners’ Bereavement Support Day was held on May 14 at the Macdonald Burlington Hotel in Birmingham and seven partners registered to attend. CRY Founder Alison Cox MBE led the day, assisted by Bereavement Supporter Shelagh Green (pictured).

Ruth Lowe honoured as Point of Light May 17 We were very pleased to learn that CRY National Representative Ruth Lowe would be honoured as a Point of Light. The scheme to recognise extraordinary volunteers began in 1990 in the USA, and in 2014 the UK Cabinet Office announced that then Prime Minister David Cameron would be recognising British volunteers in the same way.

Ruth Lowe’s 21-year-old son Andrew Parr died suddenly in April 2004

Cameron said: “Through her role as National Representative for CRY, Ruth has changed lives across the North West. Having so sadly lost her own son, Andrew, Ruth has shown incredible determination in trying to prevent such a tragedy happening to others. “She has already raised a fantastic amount of money, allowing thousands of young people to be screened for heart problems, and she continues to provide invaluable emotional support through her community group. I’m delighted to recognise Ruth as the UK’s 530th Point of Light.” Ruth said: “I was totally surprised to find out that Prime Minister David Cameron has named me as a Point of Light. I feel honoured and hope that Andrew would have been proud of me. I would like to accept and acknowledge the award on behalf of all the other CRY supporters I have befriended over the years.” To watch Ruth accept her award from Ben Wallace MP please visit www.c-r-y.org.uk/points-of-light-award-for-crybereavement-supporter-ruth-lowe

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Jack explained: “The main reason I have wanted to get involved is after a good friend and teammate from Cobham RFC, Matt Cragg, passed away from a heart condition aged only 21, with no warning. “As a Patron, I would like to help raise awareness of the work CRY does, especially in schools and sports clubs, in screening young people involved in sport. I would like to do anything I can to lessen the chances of young, fit sportspeople, like my friend, dying from an unknown heart condition.” Jack declared his support for CRY just as he was named as part of the England squad for the 2016 summer tour, and his growing success and public profile should really help to reach out to a wide audience. I know I speak for everyone at CRY when I say that we are really looking forward to working with Jack.

Jack Clifford lifting a trophy with Cobham teammate Matthew Cragg (left) who died suddenly in October 2014

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News from the Chief Executive Professor Sanjay Sharma runs Vitality London 10,000 May 29 CRY Consultant Cardiologist Professor Sanjay Sharma welcomes many of the UK’s top athletes to his clinic in London, and in May the doctor himself laced up his running shoes to take on the Vitality London 10,000 – as one of 15 running for CRY. A big thank you to all the CRY runners who took part. Sanjay has always given 110% for CRY and his fundraising was no different, beating his £3,000 target to raise a total £3,315.59.

Secondly, he was openly pro-screening with ECGs for the general population, once again taking the same stance as CRY whereby all young people should be tested, not just those who are elite athletes. Importantly he stressed the necessity of expertise and the dangers of both clinical and genetic screening programmes being taken forward in the wrong hands. CRY Consultant Cardiologist Professor Sanjay Sharma with CRY Founder Alison Cox MBE at the finish

June British Cardiovascular Society Conference June 6–8 Whilst I spent most of my time at the CRY stand during the British Cardiovascular Society (BCS) Conference, I did get to see CRY Fellows present their research and attend some of the key presentations. I managed to find time to see the brilliantly delivered talk from Professor Mike Ackerman, who is widely considered to be the world’s foremost authority on the genetics of inherited cardiac conditions. He talked about the prediction and prevention of young sudden cardiac death and gave an amazing insight into how cardiology opinion is starting to change towards screening and the genetics of these conditions. I was taken completely off-guard on three occasions throughout his talk. Firstly, his stance on the diagnostic role of genetic testing, arguing a position much more inline with that of CRY, where genetic testing is part of the diagnostic process, not the diagnostic process. Universal genetic screening for these conditions in the general population is not even up for consideration, in fact it would be very dangerous and inevitably lead to people being diagnosed with conditions they do not actually have.

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Finally, he went on to say no person in the world has done more for this area than Professor Sanjay Sharma. I have now heard a number of the eminent cardiologists refer to Professor Sharma and the work of CRY as leading the way, but to have such a powerful statement, by such a highly respected cardiologist, during a keynote presentation at the BCS left me speechless. I expect, like me, at times you may feel like you are banging your head against the wall, thinking the messages are not getting through. I hope CRY families and everyone who is supporting CRY can see just what an incredible impact they are having; people are listening and views are changing. For more from the conference please turn to page 18.

Mike Bonsor speaks to Uckfield FM June 17–July 3 Mike Bonsor visited Uckfield FM to talk to presenter Jacqui Rushton about his 1,000-mile cycle from Land’s End to John O’Groats in memory of his daughter’s close friend. Annie Edwards (pictured) was 17 when she died in her sleep in February 2015 from sudden arrhythmic death syndrome. Mike told Jacqui he had committed himself to the ride in order to raise funds for CRY to screen young people like Annie and prevent similar shocking tragedies.

Issue 70 | May to August 2016


News from the Chief Executive Uckfield FM continued Mike’s awareness drive with further interviews at bit.ly/ ufm17716ae In his blog, he writes: “I have said this a lot on the radio, Mike Bonsor visits CRY National Representative Ruth Lowe (centre) on the ride, with his wife Sue but while I was riding, 24 young people will have died through an undiagnosed heart condition. We can now screen 200 people between 14 and 35 with the money that has been raised, and if we find that one or more of them has an undiagnosed problem, it is conceivable that we have saved a life.”

“20 years of CRY” video published June 26

Tony Hill, now CRY Family Screening Manager, leafs through an early edition of the CRY Update

“By 2013 we had outgrown our old office and moved to new premises to accommodate our expansion and CRY’s growing support and screening programmes. There are now nearly 40 employees working for CRY in the office, as well as almost 100 additional support staff, screening technicians and doctors working with us around the UK. Thank you for your incredible support and making CRY what it is today.” To watch the video please visit www.c-r-y.org.uk/20-yearscardiac-risk-young

Over 1,200 CRY supporters take part in the Heart of London Bridges Walk June 26 The 10th annual CRY Bridges Walk was another huge event with over 1,200 supporters taking part, and we have received lots of positive and helpful feedback about the new route. In 2016 the walk began at Potters Fields Park, crossing Tower Bridge first, but ending as before at the beautiful Hays Galleria.

CRY Founder Alison Cox MBE wrote this message for our supporters: “We have now come to the end of Cardiac Risk in the Young’s 20th anniversary year. It is astonishing, looking back, to see how much CRY has achieved in 20 years.

“We have produced a short video to show how the CRY office environment has changed from when CRY first started in a back room in my house in 1995, with just myself and two volunteers, before we took on our first employee, Tony Hill. In 1999 we moved to an industrial estate unit where we expanded from a handful of staff to 26 office staff over the 13 years we occupied the unit.

At Bridges Walk with CRY Patron Kathryn Harries and CRY Consultant Cardiac Pathologist Professor Mary Sheppard, who both took part

It was a very significant event for me personally; the most important event in CRY’s calendar during my first year as Chief Executive. When I arrived and walked out into Potters Fields Park with the backdrop of Tower Bridge it was an amazing feeling – a feeling which was amplified when I watched the crowds of supporters slowly gathering and building in numbers before setting off. I found it incredibly moving to see the long line of walkers crossing Tower Bridge and then walking along the north bank of the River Thames by the Tower of London. We are immensely grateful to everyone who signed up for this special 10th annual Bridges Walk and I felt incredibly proud to be part of CRY. For the article please turn to page 22.

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News from the Chief Executive Danielle West receives Excellence in Public Health award June 28 The Excellence in Public Health and Wellbeing 2016 celebration event recognises volunteers leading local health initiatives across England. CRY Representative Danielle West was one of 33 chosen to receive an award, nominated by Pauline Latham, MP for Mid Derbyshire. Danielle’s friend Sam Wright (pictured below) suddenly died aged 19 in December 2011. Jane Ellison MP, then Minister for Public Health, said: “It was a great privilege to meet this year’s public health heroes at the celebration event and hear how they are tackling important health challenges in their communities. Their vital work is often undertaken quietly and without recognition so it was wonderful to have the opportunity to celebrate their achievements.”

July David Hughes visits Hitmix Radio July 20 In March 2015, 28-year-old postman Daniel Hughes (pictured) was found dead in his bed by his mother, Sue. Local radio station Hitmix interviewed Daniel’s dad, David, to speak about the screening at Sir Thomas Boughey High School in Stoke-on-Trent they had funded with the local community in Daniel’s memory. The screening was subsequently fully booked, with more planned from 2017. David said: “I was live on air for half an hour publicising the screening days we have coming up in September,

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answering questions from Ian Maddock (the presenter with me in the picture) and explaining the work that CRY does in raising awareness of undiagnosed heart conditions and supporting bereaved families. “The message certainly got across as during the transmission I took a phone call from one of Dan’s former football colleagues who asked how he could book on to the heart screening day. He is now signed up and will be screened on September 3 at Dan’s first heart screening day. The feedback has been very positive since the interview and the radio station have offered any support they can to publicise the work we as a family are doing and help to get the message out there regarding CRY.”

Response to Dr Margaret McCartney July 20 At 9pm on July 19 I received a text to tell me to turn on BBC Radio 4 to listen to Inside Health presenting a cardiac screening debate between Professor Sharma and Dr Margaret McCartney (bit.ly/bbc19716ss). Dr McCartney presented a predictable stance endorsing the UK National Screening Committee (UK NSC) recommendation. This was followed by a column in The BMJ, published on July 20 (bit.ly/bmj20716mm). The main point Dr McCartney appears to be making is: should CRY be paying for the NHS cost of referrals after a CRY screening? What is the true cost of screening? The fact she lumped CRY together with profit-making companies and a screening modality already available indirectly through the NHS, as well the manner in which this was expressed in the article, is beside the point. This does need to be looked at and we have always been aware of the impact our programme has on the NHS. We created a new screening model in 2007, a model which is now emulated in other parts of the world, where a specialist doctor is present at every event. We conduct ultrasound (follow-up tests) on every person who needs it on the day of the initial test. CRY has the lowest falsepositive rates in this field – lower than for some screening programmes currently funded within the NHS.

Issue 70 | May to August 2016


News from the Chief Executive Nicola Tait speaks to BBC Radio Wey July 23 In conversation with Alan Dolby on BBC Radio Wey, Nicola Tait explained her reasons for supporting CRY and taking part in the upcoming Prudential RideLondon-Surrey 2016. Nicola spoke to Alan about her history of participation in events like the London Marathon and London to Paris cycle as well as her tips for how to prepare, before the conversation turned to the collapse of her partner Kris Cook during the Prudential RideLondon-Surrey 100 2014. Nicola was taking part with Kris when he died.

myheart Cardiologist Dr Michael Papadakis presents peer-reviewed CRY research, published in 2016, demonstrating a 21% reduction in the overall cost of screening for life-threatening cardiac disease

Improving clinical practice is important, but we have taken this further to see how our research can reduce the costs on the NHS and our work has been welcomed throughout the world as a major step forward towards making screening more cost-effective. Our latest paper (bit.ly/jac11816hd) has shown how CRY research has led to a 47% reduction in costs for the follow-up tests required after an ECG, costs which would otherwise have been incurred by the NHS. The cost to the NHS of providing the follow-up tests to young people with cardiac abnormalities is less than half of what we spend on providing the service. It is less than half of the amount CRY directly invests into the NHS through training doctors, providing NHS referral services and providing expert cardiac pathology to bereaved families. This is not including the value of voluntary support from Professor Sharma and CRY families which is impossible to quantify. There are also the significant costs we have saved the NHS through providing free clinical services which should be funded through GP practices, or the bereavement support services we offer to hundreds of affected families every year, and support services for those identified with conditions. But there is also the cost to society when a young person dies suddenly and this is what CRY is preventing through awareness, support, screening and research. It is shocking that it is left to CRY and the families who support us to raise the funds for essential services for other bereaved families, but at this moment in time the NHS are not doing it. As has always been the case we will not let the decisions made within the NHS, Department of Health and UK NSC hold back progress when there are so many tragedies each year and so much that can be done to prevent them.

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“Team KC” – of which presenter Alan is a member – were due to take part in the event for the second successive year following Kris’s collapse on Newland’s Corner. Nicola spoke about overcoming the fear that a member of Team KC might be affected in the same way as Kris, before describing the work that CRY do. It was gratifying to hear Nicola speak extremely positively about our services, including medical information provided and help with her fundraising.

At the Prudential RideLondon-Surrey 2016 with Alan Dolby of Team KC and BBC Radio Wey

Nicola’s main message was about the importance of getting checked, particularly if there are any symptoms or a family history: “I think it’s about time that people stopped thinking, ‘Oh, don’t talk about it, if you talk about it then something will happen.’ It is happening and you do need to be responsible for yourself.”

BBC Radio Tees interviews Karen Campbell July 26 Karen Campbell and I appeared on BBC Radio Tees with Mike Parr to speak about hidden heart conditions like the one that affected her son James (pictured). Aged 16, James died in his

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News from the Chief Executive sleep in November 2013 from an undiagnosed heart condition and was found by friends. It was the final day of James’s week away with the National Citizenship Service when Karen and her husband received the call. There were no symptoms. I explained that CRY wants every young person to have the opportunity to have cardiac testing, and because screening days are funded by local supporters like Karen it means the vast majority of events on www.testmyheart. org.uk are free to the public in their communities. “That makes a big difference to an area like Middlesbrough,” Karen added, “where if we are asking people for their hard-earned cash, it can be spent locally to screen all those young people like James that possibly wouldn’t get the chance otherwise.” The interview was unfortunately cut short when presenter Mike Parr began to feel unwell during the broadcast, but Karen and I have been invited back to continue the interview in the near future.

Prudential RideLondon-Surrey 100 and 46 July 31 CRY was well supported by 49 cyclists at the largest amateur cycling event in the UK, the Prudential RideLondon-Surrey.

August Heather Reid speaks to BBC Radio Nottingham August 15 The BBC’s Andy Whittaker and Verity Cowley presented an interview with Heather Reid, whose 16-year-old daughter, Alex (pictured), died in her sleep in June 2012. Earlier in the programme, CRY Founder Alison Cox MBE introduced Heather’s interview by explaining the prevalence of sudden deaths like Alex’s, and emphasising that heart conditions detected through an ECG are treatable. When a well-prepared Andy Whittaker asked for a comment on the UK National Screening Committee’s statement against the benefit of cardiac screening, Alison pointed to the specialist expertise behind our programme and growing movement around the world towards proactive screening, as well as how much could be done by the government even just by raising awareness of the services CRY already offers to the public. Heather went on to describe her daughter’s death. Alex had told her mum she was struggling to get to sleep – a German exam loomed. The last thing they said to each other was “I love you.” Alex’s dad found her unresponsive the next morning. Heather highlighted that the biggest obstacle to preventing similar deaths is limited awareness of the risk of inherited heart disorders. Furthermore, she explained, as more young people are tested, the tests themselves will only get better: “With screening, and with testing, with statistics, with research, we improve our knowledge-base. Part of screening isn’t just about each individual, it’s actually about improving our understanding of these conditions.” For more information, please see the Mail on Sunday article with Heather published on August 7 at bit.ly/ dm6816ar

Two-time Tour de France winner Chris Froome OBE cycles past CRY banners with Team Sky

There were 8 CRY cyclists taking part in the shorter, 46mile course, and 41 taking on the 100-mile main event. I was delighted to come along and experience the day myself as a supporter – the thousands of cyclists hurtling past really is incredible – and those in the white and red CRY jersey looked particularly impressive. For the article please turn to page 25.

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To watch CRY supporter Sofia Sinnott’s video about Alex’s death, featuring interviews with me, Heather and former Minister for Health Andy Burnham MP, please visit bit.ly/yt28716ar Patron Joe Root, who became involved with CRY as a consequence of Alex’s death, shared the video with his 350,000 Twitter followers on August 24.

Issue 70 | May to August 2016


News from the Chief Executive European Society of Cardiology Congress August 27–31 It was great to hear the achievements of CRY Research Fellows praised at Europe’s premier cardiology meeting, held in Rome in 2016. CRY’s myheart Cardiologist Dr Michael Papadakis presented the year’s highlights from the sports cardiology section – including studies from CRY Fellows Dr Gherardo Finocchiaro and Dr Harshil Dhutia. Dr Finocchiaro studied the causes of sudden death in a large group of athletes investigated at the CRY Centre for Cardiac Pathology, as well as documenting features of the female athletic heart.

Visiting St George’s fellow Dr Yeo Tee Joo won a best poster award for research he conducted in collaboration with CRY doctors

Dr Dhutia recently published incredible data proving the cost-effectiveness of refined ECG criteria from the CRY Research Group, which makes cardiac screening 21% cheaper and closer to becoming a reality for more young people. Former Research Fellow Dr Sabiha Gati presented a study on adolescent athletes screened through the Football Association’s CRY-led programme. This is one of the largest studies of teenage athletic hearts of its kind. CRY Consultant Cardiologist Professor Sanjay Sharma was, as ever, a key figure at the meeting, involved throughout the five-day conference in sessions stressing the benefits of exercise as well as the importance of awareness of cardiac health for young people. Importantly, Professor Sharma had contributed to a position statement from an expert European panel on screening athletes for sudden death, presented at the conference by Professor Luis Mont and due to be published later in the year. Professor Mont said: “Basically, most Europeans, and also many American physicians, think that ECG has to be done once you decide to evaluate an athlete”, and summarised that cardiac evaluation “should be considered and advised for individuals performing regular, intense exercise.” For more from the conference please turn to page 19.

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BBC Radio Kent interviews Paul Daniels and Calum Haggett August 31 On the last day of August, Kent Spitfires cricketer Calum Haggett, CRY Representative Paul Daniels and CRY Founder Alison Cox MBE spoke to BBC Kent about screening for hidden heart conditions, and presenter John Warnett promoted a “Festival of Cricket” event to be held on September 10 at Eltham College. The high-profile event would feature CRY Patron and former England cricketer Rob Key and went on to raise over £10,000. Calum Haggett told reporter Jo Burns how a heart screening at his cricket club picked up a potentially fatal defect when he was 19 years old: “They said it would have been, basically, me doing something, and just dropping dead. That would have been it. They wouldn’t have been able to save me.” After several months out of action following open-heart surgery, he was able to resume professional sport, and dedicated himself to raising awareness of the need for cardiac checks for sportspeople. As a result of Calum’s screening, his father was also found to have the inheritable condition and treated. Ben Daniels (pictured left) died after collapsing on the school football pitch aged 15 from an undiagnosed cardiac condition in March 2011 – like Calum, Ben had suffered no symptoms. Ben’s dad, Paul, has since raised over £150,000 to fund Kent screenings, and he stressed that many of Team GB’s athletes were screened through CRY – those same tests are available to anyone in the country aged 14 to 35. Paul said: “[CRY] bring their expertise down into grassroots, and that’s where the problem is, because at the moment there isn’t an awareness in grassroots sport that you can be screened for your cardiac health in exactly the same way as these elite professionals. I can tell you now that if I knew that my son could have been screened for his cardiac health, he would have been screened – and he would be with us today.”

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Alison’s Column Volunteering After a young sudden cardiac death, for many people there is a compulsion to want to do something. Doing something provides the opportunity to connect with the child, friend or partner who has died. It provides the chance to say their name, to Alison Cox MBE talk to those who are CRY Founder interested and have the time to listen. With CRY it also, and crucially, helps to raise awareness of the silent killer which inexplicably claims the lives of so many fit and healthy young people. Over a century ago the word “volunteering” meant spotting a job you would like to do and volunteering your services for it. Remuneration was expected. During the First World War there was initially an appeal for “volunteers” to fight for their country. Because of the terrible loss of life it became necessary to introduce conscription, when men were ordered to fight, so non-professional soldiers were no longer volunteering their services but were under orders. Most of the things we do in life are imposed on us and a matter of routine, but the great value and freedom of volunteering is that we are liberated from having to do it. It is not compulsory. It is our choice what we do, and our choice how much time we spend on doing it, and we do not expect to be paid. Volunteering comes in all states, shapes and sizes. You can volunteer advice, to do a job for someone, to sing, or just to help with a task. You can support a cause, support a charity or just volunteer to create a fuss (called protesting!). The spirit and energy you can bring to volunteering, and the satisfaction you can get from volunteering, is often a source of amazement both to the one involved and to those that know them. They can appear to be a different person – uplifted, inspired and inspiring to others – willingly giving of their time and discovering reserves of patience that had not been previously evident. The passion, dedication and selflessness that CRY Community Fundraising Manager Ben Robinson has seen in volunteers who choose to fundraise has inspired and delighted him, and he says it’s what makes him look forward to coming into work each day: “People often forget that fundraising is a form of volunteering and is crucial for any charity to be able to fulfil its aims and objectives. As a

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national charity that operates out of one office in Surrey, our ability to promote CRY to the whole of the UK is almost entirely down to the efforts of our volunteers who support us in their local communities. “Many charities would struggle without any government funding and very little corporate support, but CRY has gone from strength to strength each year. We have seen other charities constrained by the recent economic climate, but the determination of our fundraising volunteers has enabled us to maintain our ethos of never asking for donations from either our supporters or the general public. Everybody at CRY feels that this is so very important. We had almost 1,000 fundraising events registered for CRY last year and it looks like we are due to beat this number by the end of 2016! “The time, effort and generosity that is put into making these events happen also achieves a key goal of raising awareness. It is truly incredible and greatly facilitates the charity becoming involved in local communities. You cannot put a price on such a committed level of involvement, but you can understand how much we save by not having to set up offices or events all over the CRY Community Fundraising country to raise the Manager Ben Robinson same awareness and to offer nationwide support. It has been a real privilege to work with our fundraising volunteers over the years.” There is a social benefit to be gained from meeting people if you are new to a community, which can often be lonely at first. The feel-good factor of doing something for nothing when it is not mandatory can also be surprisingly rewarding. A rapport can rapidly develop between the volunteer and the organisation, or person they are supporting. It can be uniquely satisfying to donate time, rather than money, when we live in such a pecunious society. Volunteering can create a purpose for those who find themselves with time on their hands, who need to refocus their energy in a useful direction. Volunteers at major CRY events often have a connection to CRY through being friends with a member of our staff, or have heard or read about the work we do. We are also lucky to have supporters who approach us to help in the office.

Issue 70 | May to August 2016


Alison’s Column Many raise awareness of our work through the mass-communication now facilitated by Twitter, Facebook and free advertising opportunities. An increasing number of our supporters volunteer to broadcast CRY messages across their entire online social network. In a more traditional fashion, every month national and regional newspapers, radio stations and even television programmes feature CRY families and supporters Event volunteers, like those pictured above at the Prudential RideLondon-Surrey 2016, are invaluable who volunteer to describe their to CRY participants for all the help and support they provide before, during and after an event tragedy to drive awareness. We also reach into communities through our Representatives, who attend talks, collect cheques from indicates a committed, responsible, caring member of the money raised and make presentations – particularly in community who wants to be useful. schools or sports clubs with youthful, attentive audiences. CRY Patrons and Trustees are appointed after careful Occasionally we need a volunteer with a specific skill, selection, but it is important to remember that they too which is when we find a company or organisation that are volunteering their time. There have been a number has people specialising in what is required and are of initiatives suggested to the Charity Commission that eager to do volunteer work. This can be symbiotic, as it trustees should be paid, as so many charities have great also provides the volunteer with the opportunity to gain difficulty in recruiting suitable candidates that can be unusual experience which generates a natural increase in depended on to regularly attend board meetings. Patrons confidence. Modern organisations promote and actively are individuals who are approached to consider giving us encourage their staff to participate in volunteering their “patronage” as their name resonates with the public initiatives, and for wide-ranging reasons. It can be and attracts approval and attention. These are people who valuable to be able to include “volunteering” on a CV as it have achieved a prominent position in their profession and it is so very easy to forget how limited their time is and for too much to be expected of them. Volunteers are the heart and soul of everything CRY does; whether supporting our Bridges Walk, jumping out of a plane on a skydive, running a marathon – participating in any activity that appeals in order to help us achieve our aims. This CRY Update will arrive as the Christmas crescendo is reaching its peak and the countdown begins. Many of you will have volunteered to help your family, church or community with activities or preparations for a festive event and those of you who are bereaved will possibly be keeping your suffering to yourselves. The strength of volunteering is the decision to prioritise another’s needs. To those of you who have been able to offer your help to CRY, in whatever capacity: we are in awe of the incalculable contribution you make to CRY of your time and energy.

Many volunteer to lend CRY their voices for special initiatives and opportunities such as the “One and Other” plinth in Trafalgar Square, London, in 2009

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Extra CRY News Katy Jade Dobson auction Lincoln-based artist Katy Jade Dobson once again showed her support for CRY through launching an online auction of the palette used to create her latest collection. “21 Grams” is seen as potentially her most important body of works to date.

Katy’s art has been exhibited in 80 galleries in the UK alone, with appearances in publications including Vogue and GQ and several sell-out solo national shows. She was first made aware of CRY following a private commission for a portrait by a family who lost their child to a cardiac condition. She was so moved by their story that she wanted to give something back to the charity. The paintbrush was signed by Katy and included with an original certificate of authenticity and letter of provenance from her publishers, Wishbone Publishing. It was an incredibly rare opportunity for a Katy Jade Dobson collector to add such an exclusive piece to their collection. She said: “It should never be the case that a child or anyone should lose their life so suddenly over something

that could potentially be diagnosed earlier on. CRY’s incredible efforts towards reducing young sudden cardiac death (YSCD) with their research, raising awareness and prevention in this field are lifesaving. The care and facilities to aid families affected by YSCD will continue to help so many people who desperately need it.”

News Congenital Heart Disease Conference 2016 Specialists and practice educators in London collaborate to bring about the annual Congenital Heart Disease (CHD) Conference. This was the second year the conference was held at Great Ormond Street Hospital. The course is organised for the benefit of nurses and allied health professionals working with young people who have congenital heart disease and related cardiac conditions, and attracts attendees from cardiac centres from around the UK, Ireland, mainland Europe and even further afield.

quickly by the attendees. Some of the nurses also showed interest in the CRY International Medical Conference taking place in October. myheart member James Doherty spoke about his experience of living with a life-threatening cardiac condition, long QT syndrome. James gave an inspiring and personal insight into how it affects – and doesn’t affect – his life. A big thank you to the CHD conference for inviting us back to raise awareness of the myheart Network.

The myheart Network was again invited to hold a stand at the conference so that the course attendees could have an opportunity to discover the services CRY offers young people aged 12–35 with a cardiac condition. myheart Coordinator Kanika Bhateja spoke to many of the nurses visiting the myheart stand who felt there was a real need for support groups for young people with cardiac conditions once they make the transition from children’s hospitals. CRY’s medical and myheart booklets were all taken very

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Issue 70 | May to August 2016


CRY Screening Report

Between May and August 2016 CRY screened over 6,500 people, mostly through family memorial screenings. At our regular CRY clinics 1,467 young people were screened. Clinics funded by the Northern Ireland Fund were held at the University of Ulster, Coleraine campus; and in Belfast at Kingspan Stadium; Gym Go; and Wellington College. Clinics were held in London at the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology at St George’s Hospital. Sports screenings included: Bedwell Rangers FC, Bolton Wanderers FC, Burnley FC, Ipswich Town FC, Millwall FC, RFU Women, RFU Women U20s, RFU Sevens, Leicester Tigers RFC, Exeter Chiefs RFC, Gloucester RFC, Wasps RFC, Harlequins RFC, Northampton Saints RFC, Worcester Warriors RFC, Sale Sharks RFC, Ospreys RFC, Scarlets RFC, Newport Gwent Dragons RFC, Saracens RFC, Bath RFC, Newcastle Falcons RFC, London Irish RFC, Bristol RFC, ONE Pro Cycling, Sheffield EIS, Loughborough EIS, Kia Superleague Women’s Cricket, Kent CCC and the Lawn Tennis Association. A total of 641 athletes were screened. At 31 family memorial screenings 4,427 people were screened. These were held in memory of Chris and Steven Phillips (Weston), Ben Daniels (Folkestone, Eltham), Matthew Dewhirst (Shrewsbury),

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Josh Fell (Hornsea), James Patterson (Hornchurch), Dr Jenny Bucknell (Longlevens), Christopher Parr (Leek), Laura Hiller (Blisworth), Jamie Loncaster (Melton), Jack Thomas (Blackwood), Pete McAvoy (Dundee, Perth), Reece Jeffery (Derby), Marcus Armstrong (Harwich), Ben Birch (Winnersh), Richard Merriman (Hemel Hempstead), Andrew Parr (Preston), Jordan Grant (Preston), Neil Ward (Dronfield, Rotherham, Bakewell), Graeme Blenkinsop (Isle of Wight), Kris Ledgard (Milton Keynes), Lily Webster (Stowmarket), Pardeep Nagra (Wolverhampton), Aaron Dixon (Hartford) and Andrew Gard (Colchester). A total of 104 young people were screened at 1 school screening, which was held at Queen Elizabeth Hospital School, Bristol. At 2 further public screenings 281 young people were screened. These were held at The Venue, Shropshire, (funded by the Oswestry Lions) and Lytham St Anne’s College, Lancashire.

What happens at a screening? The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart. Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire. If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform. The screening programme is under the aegis of Professor Sanjay Sharma.

CRY screening in memory of James Patterson at The Campion School, Essex, on May 17–18 Peter Patterson, James’s dad: “This was the sixth annual screening event that the Patterson family have held at The Campion School in Hornchurch and once again it was a success; 152 screenings were carried out on the pupils and staff of James’s old school. The two days went very well. There were a couple of abnormalities picked up which will have to be investigated further. “Gill, Catherine and I brought screening to the Hornchurch area after James died suddenly from an undiagnosed heart condition in 2005. Over the past six years 750 pupils and staff have been screened and there will be another screening at the school in May 2017.”

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CRY Screening Report Funds for two ECGs donated by the Bailey Will Trust

Funds for ECG donated by the Thomas Cook Children’s Charity

In April 2016, the Bailey Will Trust funded two ECG machines and funded two screening clinics in September 2016 at the CRY Centre for Inherited Cardiovascular Conditions at St George’s Hospital, London. The machines are pictured with CRY screening and fundraising staff Lily Donaldson, Hidayet Denizer and Tilly Coleman.

In June 2016, the Thomas Cook Children’s Charity funded an ECG machine following an application by Lauren Harrison in memory of her step-brother Ally Calvert. A spokesperson for the grant-making charity said, “We are delighted to be able to support CRY, young people and their families by donating funding for a much-needed ECG machine for early detection.” The machine is pictured with CRY screening staff Hannah Lowry, Natalie Stevens, Joanna Mills and Val Gurney.

CRY screening in memory of Jamie Loncaster at South Hunsley School, East Yorkshire, on May 31–June 1 Graham Loncaster, Jamie’s dad: “The screenings were held at South Hunsley School and Sixth Form College during the half term break in Humber Building to the south of the site. Staff, cleaners and caretakers were all on hand to assist and we offer them our thanks for this, as well as for allowing us to use the premises. “200 young people were screened over two days. About four people had an ultrasound echocardiogram at the suggestion of the doctor. As a direct result of these screenings, five young people were referred to their GP for further investigation or tests. “Preparations are in place to run these annually at South Hunsley School, where Jamie was a pupil. This recent session was fully subscribed, but sadly there were 22 people who failed to attend their appointments. Luckily the power of social media helped us spread the word and we filled about half of those places with people walking in on the off-chance. Four days are already planned for late 2017. Our aim is to raise at least £100,000 (about 2,000 screening places) over the next five years.”

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Issue 70 | May to August 2016


CRY Centre for Cardiac Pathology (CRY CCP) Report Professor Mary Sheppard, Consultant Cardiac Pathologist

Eleni Konstantinou, Laboratory Technician Khari Edwards, Laboratory Technician Sara Santos Vidal, PA to Professor Mary Sheppard

By Sara Santos Vidal, PA to Professor Mary Sheppard: We received 87 cases from May to August in 2016, which is a decrease from 104 cases during same period in 2015. There is a very good turnaround time for issuing a report to the coroner with an average of 11 days in 2016. We also obtained consent for research in 50% of the cases and are increasingly receiving consent for genetic investigation, which will be valuable to families in the future. Visitors We have established the unit as an international training centre for cardiac and forensic pathologists: • Forensic pathologists Dr Nur Liyana Binti Johar and Dr Mohd Ariza Bin Kamaruddin from Malaysia took part in a training programme from May to July and August to September respectively. • Dr Joseph Westaby, an academic clinical fellow and pathology trainee from the London deanery, will spend 30% of his time on research within the CRY CCP. Obtaining this training position recognises the excellence of our department in promoting cardiovascular pathology and research. • Professor Robert Anderson, noted cardiac anatomist, and Dr Bjarke Jensen from Amsterdam visited the department in August. We are collaborating on research into congenital cardiac anomalies which can cause sudden cardiac death. • We are also collaborating with Dr Sherif Hosney and Dr Nidhi Sofat on inflammation in joints which can affect the cardiovascular system, increasing the risk of ischaemic heart disease.

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• Received visitors from histopathologist Professor Sebastian Lucas of St Thomas’ Hospital, who requests Professor Sheppard’s opinion on complex autopsy cases of cardiac disease. • A secondary school student visited in August for work experience. Invited Lectures/Meetings • Invited speaker on sudden death and children at the British and Irish Paediatric Pathology Society annual meeting, Birmingham, on May 26. • Invited speaker on “Pathologic cases of complications vs errors in interventional cardiology and cardiac surgery” at the International Academy of Legal Medicine (IALM), Venice, on June 21; and on “Cardiomyopathies”, on June 23. • Invited speaker on cardiac pathology at The Royal College of Pathologists of Australia (RCPA), Sydney, on July 21 and 22. Lectures given included: “Cardiac Enlargement; Physiological and Pathological”; “Pathology of Cardiomyopathies”; “Nonatherosclerotic Heart Disease”; “Valvular Heart Disease”; “Postoperative Cardiac Death”; and “Ischaemic Heart Disease”.

Teaching/Academia • Organiser of first meeting of the European Translational Cardiac Pathology Group, St George’s University of London, on May 11. • Organiser of the annual Adult Cardiovascular Pathology Course, St George’s, University of London, on June 16 and 17. This was attended by 60 pathologists from the USA, Europe, India, Australia and United Kingdom. Lectures given included: “Atheroma. Ischaemic Heart Disease”; “Pathology of Cardiomyopathies”; and “Minimum Dataset and Criteria for Diagnosis of Heart Disease”. • Organiser and speaker on ischaemic heart disease at the British Division of the International Academy of Pathology/Pathology Society Meeting, University of Nottingham, on July 1. • Professor Sheppard also attended the graduation ceremony for medical students of St George’s, University of London, on July 14. Inquests Professor Sheppard attended two inquests in Bristol and Coventry, going for the full day and speaking to relatives, which is a vital part of her work with CRY.

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Research News

CRY at the Conferences 2016 The summer of 2016 was another year of laudable progress for CRY research, with CRY Fellows publishing important papers and presenting studies to rapt contemporaries in the UK and from across Europe. CRY Consultant Cardiologist Professor Sanjay Sharma was one of the principal figures present at the conferences; a senior author on five important abstracts presented by CRY Research Fellows at the British Cardiovascular Society (BCS) Conference from 6–8 June 2016, and presenter or chairperson of many key sessions throughout the European Society of Cardiology (ESC) Congress from 27–31 August 2016. The BCS Conference, held in Manchester’s ExCeL Centre each year, was attended by Professor Sharma and myheart Consultant Cardiologist Dr Michael Papadakis; Research Fellows Dr Harshil Dhutia, Dr Gherardo Finocchiaro, Dr Tracey Keteepe-Arachi, Dr Keerthi Prakash and Dr Alexandros Steriotis; former CRY Fellow Dr Sabiha Gati; and collaborating St George’s fellow Dr Yeo Tee Joo. CRY was also represented by Chief Executive Dr Steven Cox and Azra Loncarevic-Srmic, Director of Research and Screening, who more broadly raised awareness of CRY’s services and objectives at the event. Dr Cox describes his experience of a keynote lecture by American genetics expert Professor Mike Ackerman on page 6. Dr Finocchiaro won a highest scoring abstract award for his study on the circumstances of sudden death in WolffParkinson-White syndrome, a cardiac rhythm disorder, with the aim of improving doctors’ judgements of risk of cardiac events. He also presented on the relationship between obesity and young sudden death, finding almost one in four cases showed evidence of coronary artery disease. These studies were conducted in close collaboration with CRY Consultant Cardiac Pathologist Professor Mary Sheppard.

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CRY Research Fellow Dr Alexandros Steriotis with his poster presentation

Dr Steriotis presented an abstract which examined cases of isolated mitral valve prolapse, again working with Professor Sheppard and the valuable data recorded at the CRY CCP. Two of the heart’s chambers, the left ventricle and left atria, are separated by the mitral valve, which can become leaky and fail to close properly. Dr Yeo presented research led by CRY Fellow Dr Aneil Malhotra investigating the significance of T-wave inversions, a suspicious ECG anomaly which can indicate serious cardiovascular disease, in a large group of athletes and non-athletes.

CRY Consultant Cardiologist Professor Sanjay Sharma and award-winning CRY Research Fellow Dr Gherardo Finocchiaro

Issue 70 | May to August 2016


Research News

2016’s ESC Congress was held at the Fiera di Roma in Rome, Italy – the most proactive nation in Europe for legislating to prevent young sudden deaths in sport, with mandatory cardiac screening for all amateur and professional athletes. Professor Sanjay Sharma was one of several hugely respected cardiologists at the meeting who joined Italian Professor Domenico Corrado in supporting the argument for screening athletes with an ECG. Professor Corrado himself presented a comprehensive rebuttal of articles published in April 2016 in British journal The BMJ, which had criticised the Italians’ evidence demonstrating that their screening programme saves lives.

Former CRY Research Fellow Dr Sabiha Gati compares three ECG criteria in adolescent footballers

Some of the most important CRY research delivered at the conference was included in the Highlights from Sports Cardiology session from myheart Cardiologist Dr Michael Papadakis. He explained the significance of a landmark study which had been published that month in the Journal of the American College of Cardiology: CRY Fellow Dr Harshil Dhutia analysed data drawn from 4,925 athletes screened by CRY between 2011 and 2014, comparing three sets of ECG criteria for their cost-effectiveness. The current European ECG guidelines were published in 2010; an expert panel met in Seattle to suggest updated criteria in 2013; and CRY’s doctors published further refined criteria in 2014. The total cost of screening and follow-up for the 4,925 athletes in Dr Dhutia’s study, including ECGs interpreted with the ESC guidelines and then further tests for any with anomalies, was $539,888. Dr Dhutia showed that using CRY’s refined criteria would save 21% ($112,231) of this cost, without any compromise of sensitivity to serious cardiac disease. Even a significant 5% ($26,111) would be saved when compared with the Seattle criteria. Dr Dhutia speaks about the implications of CRY’s screening research on page 20.

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Former CRY Fellow Dr Sabiha Gati delivered findings following 10 years of mandatory cardiac screening of youth academy footballers through the English Football Association (FA). The study, led by CRY’s Dr Aneil Malhotra, included 10,156 adolescents. They were predominantly 16-year-olds, though ages ranged from 14 to 19; 95% were male; 91% were white. As in Dr Dhutia’s study, the ESC guidelines for ECG interpretation were employed, with the Seattle and refined criteria applied retrospectively. All three criteria maintained the same sensitivity to serious cardiac disease. The CRY refined criteria improved specificity (reducing false-positives) from 87% to 97%, indicating their potential suitability for a teenage athletic population. In another significant CRY contribution, Dr Gherardo Finocchiaro presented his study on hypertrophic cardiomyopathy (HCM), investigating the circumstances of sudden cardiac death for 184 HCM cases from 1994–2014 recorded at the CRY Centre for Cardiac Pathology. Considering HCM’s association with athletic sudden deaths, a major finding was that just over 80% of individuals died at rest or during sleep; young males were found to be the most likely to die during exertion. In almost 80% of cases the disease was only found at post-mortem. To watch his presentation visit bit.ly/esc28816gf

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Research News Interview with CRY Research Fellow Dr Harshil Dhutia Edited excerpts from an interview with Dr Harshil Dhutia, who was a CRY Research Fellow from 2013 to 2016, and had the paper “Cost Implications of Using Different ECG Criteria for Screening Young Athletes in the United Kingdom” published in the Journal of the American College of Cardiology in August 2016. Why did you investigate the cost of screening athletes? Screening and prevention of sudden cardiac death in young athletes has become an important focus of the medical community based on evidence from a large prospective study in Italy, where screening has resulted in a 90% reduction in deaths. Whilst it’s not possible to put a financial value on a life saved, a consideration of cost is important when we are considering large-scale ECG screening of athletes. One of the concerns of screening with the ECG is the potential for high false-positive rates, because on occasion ECG changes in athletes overlap with those that are seen in patients with cardiac disease. As a consequence, the false-positive rate may make screening difficult because of costs of further investigations required to confirm or refute the underlying cardiac diagnosis. Therefore the aim of my study was to evaluate whether modification of ECG recommendations translates to a cost reduction when athletes are undergoing ECG screening.

What are the main differences between the three criteria you compared? The 2010 European Society of Cardiology (ESC) recommendations – which were published in the European Heart Journal – provided

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CRY Research Fellow Dr Harshil Dhutia presents an abstract drawn from his analysis of the cost of screening at the British Cardiovascular Society Conference in June 2016

the first pragmatic approach to interpreting the ECG in athletes, however these criteria were associated with a false-positive rate of between 16% and 25%. In 2013, a group of experts from the United States and Europe developed the Seattle ECG recommendations to try and reduce the false-positive rate. The Seattle criteria were still associated with false-positive rates of between 8% and 15%. In 2014, research conducted through CRY resulted in the refined ECG criteria. These criteria reduced the false-positive rate to between 5% and 8% without compromising the ability to detect serious cardiac disease. This was the CRY research published in Circulation in 2014, and which is now the blueprint for most ECG screening programmes around the world.

How did you conduct your study? This was a prospective study of athletes who were undergoing cardiovascular screening for the first time, through CRY, between 2011 and 2014. 4,925 young athletes were screened nationwide as per the mandatory requirement of their sporting organisation.

What percentage of athletes had follow-up tests? Nearly 2% of the athletes were considered to have symptoms, a family history of inherited cardiac disease, or an abnormal physical examination. From the ECG point of view, 21.8% of athletes had an abnormal ECG according to the 2010 ESC recommendations. However the refined criteria, when applied retrospectively to this cohort, reduced the proportion of abnormal ECGs requiring follow-up to 4.3%. This represents an 80% relative reduction in the number of abnormal ECGs, again, without compromising the ability to detect serious cardiac disease. [As a result of these screenings, 15 young athletes, or 0.3%, were diagnosed with a serious cardiac disease.]

What was the reduction in the number of follow-up tests? The refined criteria would have resulted in more than a 50% reduction in the number of echocardiograms required, a 12% reduction in the number of exercise tests required, an 8% reduction in the

Issue 70 | May to August 2016


Research News

CRY’s 2014 refined criteria reduces the overall cost of screening young athletes by 21%, an additional 5% reduction in cost compared to 2013’s Seattle criteria

number of 24-hour ECGs required, and an 18% reduction in the number of cardiac MRI scans that would be required to be performed following screening.

What are the implications of this increased cost-effectiveness? As a result of this reduction in cost, ECG screening may now be more affordable for less financially endowed sporting organisations to protect their athletes. In this study, the savings would allow an extra 2,100 athletes to undergo cardiovascular screening or 95 automated external defibrillators to be purchased to further increase the safety margin for our athletes.

Is CRY continuing to work on reducing these false-positives? It is really important we strive further to reduce the false-positive rate and reduce the cost of screening. There are several strategies which are currently being researched. Firstly, we can try and modify or improve the health questionnaire segment of screening. Furthermore, ECG criteria to account for changes that may occur in puberty could allow for further reduction in false-positives. The international ECG recommendations are currently under review and I anticipate that these changes reduce the falsepositive rate further and therefore reduce the cost.

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What kind of impact do you think CRY’s research has had since the programme started in 2005?

significantly, having had the opportunity to work in a tertiary, specialist centre.

Certainly, CRY are the leaders in the field of sudden cardiac death and sports cardiology – there is no doubt about that.

I have presented my research at major international meetings such as the ESC Congress, EuroPRevent, and soon at the American Heart Association in November 2016. The research I’ve done has allowed me to publish my papers in high-impact journals such as the Journal of the American College of Cardiology, and win important international prizes such as the ESC best poster in 2015 and the best moderated poster at EuroPRevent in 2015.

CRY has an excellent reputation worldwide, and research undertaken through CRY is now at the forefront of most international recommendations for inherited heart diseases and sports cardiology. This includes the screening programme as well as the pathology services, which have both recently resulted in high-impact publications in the Journal of the American College of Cardiology that certainly have the potential to influence health policy.

What are some of the highlights of your three years with CRY? I have had several highlights and certainly I would say – from a personal point of view – one has been working in an excellent team of CRY Research Fellows, working with the whole CRY team all around the country, and meeting new people. It’s been fantastic, and really opened up my eyes to the work that CRY do in raising awareness. From a professional point of view, my knowledge of cardiac disease in young individuals has grown

Where do you go from here? I return back to my clinical training in the East Midlands; I certainly plan to take everything I’ve learned in this excellent fellowship over the last three years to my new hospital. At present there is no dedicated inherited heart disease service in the East Midlands. I believe that from the knowledge gained at St George’s Hospital, through working with CRY under the supervision of Professor Sanjay Sharma, I will be able to help try and set this up so that people in that region would have access to specialist investigation and care – which is important because at present, outside London, such services are difficult to come by.

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CRY Heart of London Bridges Walk 2016

On Sunday 26 June 2016, 1,266 walkers congregated in London’s Potters Fields Park for the 10th annual CRY Heart of London Bridges Walk.

The 10th year of the CRY Bridges Walk saw the introduction of a new starting venue. Potters Fields Park stretches across Southwark’s bank of the Thames between the iconic Tower Bridge and City Hall. Despite dreadful weather throughout most of June, the sun shone and our walkers stayed (mostly) dry on the busy streets of central London.

That morning, members of the CRY team and an army of enthusiastic volunteers arrived at the park from 8am to set up the bold CRY marquees, press tent and signage. Everything was soon ready to ensure a speedy check-in for over a thousand registered supporters and provide a warm welcome to those who would be registering on the day.

Many supporters signed up for the flagship event had made contact with their local media to tell their story in a bid to help raise awareness of CRY and the work we do, and it was brilliant to see regional stories pop up right across the country in the build up to the walk. As the crowds swelled it was once again an overwhelming sight to see such a swathe of people from every generation coming together in their white CRY T-shirts, tying white balloons to backpacks or writing personal messages on memorial back signs in coloured felt-tip. The majority of walkers were taking part to raise awareness in memory of over 120 young people. There were also walkers taking part who had been diagnosed with a heart condition themselves, including members of the myheart Network.

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Issue 70 | May to August 2016


CRY Heart of London Bridges Walk 2016 The CRY Bridges Walk is seen by many supporters, both new and longstanding, as a valuable opportunity to meet up with others who have been similarly affected. Some families have travelled to London to take part in every event since its launch in 2007. There are walkers who choose to take part on their own, as well as lots of couples and scores of bigger groups both large and small. CRY Chief Executive Dr Steven Cox gave a speech to open the event, emphasising the vital importance of raising awareness of hidden heart conditions and fighting the prevalence of young sudden cardiac death through support, screening and research. He spoke of the unique power of such an eye-catching CRY event in the heart of the capital as onlookers watched the crowd from the north bank and Tower Bridge.

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Kathryn Harries, opera singer and CRY Patron, helped to bring about the first CRY Bridges Walk and has been involved ever since. Kathryn cut the red ribbon to mark the start before leading the walkers around a new six-mile route devised for 2016. There was also a shorter, wheelchairfriendly route three miles long.

CRY supporters streamed across Tower Bridge and along the Thames embankment beside the bustling Tower of London. The walkers crossed another five London bridges while passing more of the city’s grand landmarks, including Shakespeare’s Globe, Tate Modern, St Paul’s Cathedral and The London Eye.

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CRY Heart of London Bridges Walk 2016

The event ended as in previous years at the beautiful Hay’s Galleria, near London Bridge, where certificates and refreshments were handed out. CRY literature and merchandise was on display throughout the afternoon. All funds raised through the CRY Bridges Walk go towards CRY’s core funding initiatives. To conclude the event, Alison Cox MBE, CRY Founder, gave a brief speech thanking everyone for supporting the walk and introduced

Professor Mary Sheppard, who directs the CRY Centre for Cardiac Pathology at St George’s Hospital, London, and had taken part. Many participants chose to record their feelings about the day in the “Thoughts Book” and gave their feedback to help us continue to improve the event year on year. For more photos from the walk please visit www.flickr.com/photos/ cardiacriskintheyoung

This event is only possible because of the help of our dedicated volunteers. Thank you. Martin Appleby; Louise Baldock; Nigel Bennett; Steve Biglin; Jenny and James Boag; Lucy Bowyer; Nia Crockford; Krisztina Cserhalmi; Phil Day; Katie Everitt-Jones; Ann Fitzgerald; Amanda Franklin; Michelle, Lianne, Ayda and Freja Frost; Alex Gadd; Gail Gittings; Barbara Griffin; Sheila Hammond; Marilyn Henry; Wendy Moss; Barbara and Jim Holland; Kelvin Holt; Carl and Gareth Johnson; Gerry Johnston; Julie Lockton; Koula Louki; Anna Mahoney; Tim Munyanyi; Carol and Tony Nicholls; Harriet Pearce Willis; Lisa, Hollie and Poppy Peploe; Janette Pollard; Ramila Raval; Becci, Sue and Pete Robinson; Jag Sandhu; Elizabeth Sheriff; Laurie and Linda Taylor; Sarah Tyler; Julien and Rowena Upson; Marion and Matt Wilson; Will Wright. We are also grateful to various organisations for their help, advice and support, including the event sponsors: Chubb Insurance; Dairy Crest; Eat Natural; David Jewell; London Bridge City; Lucozade Ribena Suntory; Popchips; SC Johnson; ServiceMaster Clean; Unum.

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Issue 70 | May to August 2016


Prudential RideLondon-Surrey 2016 Image credit: Prudential/Jonathan Ord

Thank you and congratulations to the 49 CRY cyclists who took part in the Prudential RideLondon-Surrey 100 and 46 on Sunday 31 July 2016. The Prudential RideLondon-Surrey 100 began at the Olympic Park in Stratford, continued south-west to Hampton Court, then down through the Surrey boroughs of Woking and Guildford, before taking on the hill climbs of Mole Valley on the way to the spectacular finish line at The Mall, Westminster. The 46-mile route passed through Richmond Park and circled Kingstonupon-Thames, before heading back north after Hampton Court Bridge to cross Putney Bridge and finish on The Mall. There were 41 CRY cyclists taking part in the 100-mile route and 8 who cycled the new 46mile route. We were delighted that several CRY veterans of RideLondon chose to take part again in 2016, while also very glad to welcome more new faces. These included BBC Radio 2 DJ Jo Whiley and her daughter India, cycling in memory of Jannik Lam. The Sunday broke with a cool breeze and gradually warmed throughout the morning. There was no sign of the fierce rainstorms of previous years, helping our riders get off to a great start. The CRY team were always easy to spot in their red and white cycling jerseys which will no doubt have helped to raise awareness amongst the thousands of spectators lining the closed roads. The team were cheered and encouraged by CRY staff and volunteers as they rode through Leatherhead; the course passes very near the CRY office. More staff, volunteers and family and friends helped to spur tired legs across the roaring Westminster finish line, clapping and waving CRY flags.

www.c-r-y.org.uk

The Hilton London Green Park was CRY’s official post-race rendezvous point. Cyclists began to arrive at the hotel from 11:30am to be welcomed by CRY staff and volunteers. Exhausted riders were provided with a well-deserved massage and offered a shower and refreshments after having their photo taken. Other CRY cyclists were met and congratulated by staff at the meet and greet area in Green Park after the race. The atmosphere was elated as thousands of participants enjoyed picnics on the grass while they chatted about their experience. It was wonderful to meet so many of the CRY team; 24 of the 49 cyclists came to meet us at Green Park or the Hilton. We are very grateful to all of our cyclists for taking on this challenge for CRY.

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Prudential RideLondon-Surrey 2016 CRY cyclists were: Nigel Barker Fiona Barnes

(In memory of James Phillips)

Paul Barnes

(In memory of James Phillips)

Steve Brewster Kieran Bristow

(In memory of Isabelle Tudisca)

James Butler Andy Crinson

(In memory of David and Jennifer Paul)

Natasha Douglas

(In memory of Alex Reid)

Tim Douglas

(In memory of Alex Reid)

Sam Downs Kate Edmond

(In memory of James Phillips)

Tim Fawcett

(In memory of Matthew Cragg)

Matthew Fuller

(In memory of Kris Cook)

Andrew Gritton Lauren Harper

(In memory of Conor James Feeney)

Helen Harris

(In memory of Sian Roger)

Andrew Hassall

(In memory of Kris Cook)

Jessica Hassall

(In memory of Kris Cook)

Joseph Hayes

(In memory of Emily Dunn)

James Heal Andy Hunt

(In memory of Matthew Hadfield)

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Issue 70 | May to August 2016


Prudential RideLondon-Surrey 2016 For our full gallery of images please visit www.flickr.com/photos/ cardiacriskintheyoung Darragh Jones

Beth McConnell

Jessika Limbert

Jade Molnar

Andy Lougher

Carl Muldoon

Chris Manning

Sam Ottolangui

Alan Mayger

Gordon Paul

Carol McAlistar

Edyta Protasiewicz

Ian McArthur

Gary Queen

(In memory of Matthew Hadfield) (In memory of George Watson) (In memory of Kris Cook) (In memory of Matthew Cragg) (In memory of Claire Mayger)

(In memory of Joe Tiplady) (In memory of Kris Cook) (In memory of Sian Roger) (In memory of Kris Cook) (In memory of David and Jennifer Paul)

(In memory of David and Jennifer Paul)

Sandie Robertson (In memory of Kris Cook)

Mike Simmond

(In memory of Kris Cook)

Shane Smith

(In memory of Conor James Feeney)

Andy Tait

(In memory of Kris Cook)

Nicola Tait

(In memory of Kris Cook)

Steven Thompson Mark Walker Olivia Walters Victor Watson Glenn Webber

(In memory of David and Jennifer Paul)

Jo Whiley

(In memory of Jannik Lam)

India Whiley-Morton (In memory of Jannik Lam)

The next Prudential RideLondon-Surrey will take place on Sunday 30 July 2017. Please contact events@c-r-y.org.uk for further information.

www.c-r-y.org.uk

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Our Fundraisers Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from May to August 2016. In Memory of

Marie, Kevin, Angela and Charlton

Christopher Halfpenny at South Croydon Sports Club sent in a donation of £460.

In Memory of

Yusef Abubaker

Alison Abubaker sent in £700 raised through the Edinburgh Marathon Relay: “We lost our beloved son Yusef on 24 September 2007, aged 12 years and 9 months. Until this moment, Yusef had led a very healthy, active and sport-packed life full of love, humour and compassion. We launched his charity the following year and have raised thousands of pounds for various charitable causes. “Last year we entered three relay reams into the Edinburgh Marathon to run in Yusef’s memory. The teams consisted of Yusef’s family and friends. We raised £1,400 and had agreed that half would be donated to CRY.”

“The Ultimate Chick Flick Tribute Night on May 14 went really well and we raised £1,455 towards Charlotte’s memorial fund. The picture is of Charlotte’s sister (middle left) and Charlotte’s friends who, with me and a couple of others, are Charlie’s Angels – our fundraising team.” • Helen Pettican released a donation of £2,353.24, according to Solicitors’ Accounts Rules, on behalf of Birkett Long LLP in memory of their colleague.

• Emma Purkiss took part in a parachute jump and raised £850:

In Memory of

Charlotte Adams

• Kate Bome sent in £1,455 raised through the Ultimate Chick Flick Tribute Night:

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“Turning 40 last year was no big deal but then I thought, ‘I’m going to do something exciting. I know what, I’m going to jump out of a plane and I’m going to do it in my friend Charlotte Adams’ memory.’ On 25 June 2016, three days after what would have been Charlotte’s 25th birthday, I jumped out of plane at 13,000ft and freefell at 120mph strapped to my skydiving instructor. OMG what an awesome experience, little old me was flying through the sky. Not only was the skydive awesome, raising money for CRY in Charlotte’s memory was the icing on the cake.”

Issue 70 | May to August 2016


Our Fundraisers • Sue Allseybrook sent in a total of £360 raised through various fundraising activities at the South Derbyshire Saddle Club.

In Memory of

Euan Adamson

Dot Adamson took part in the Virgin Money London Marathon 2016 and raised £1,516.20.

In Memory of

Paul Amor

In Memory of

Steven Allseybrook

• Sue Allseybrook sent in a total of £481 raised through a charity walk and various donations: “£336 was raised when we did a charity walk on June 26. Not many took part, those that didn’t still donated. We were aged between 10 and 63, and managed 8K. 10-yearold Keira Wynne did exceptionally, raising £186. £107 was donated by the Canterbury Arms’ darts team and £38 from Drinks World off-licence.”

Sarah Lee took part in the Virgin Money London Marathon 2016 and raised £2,986.78.

In Memory of

Simon Askew

Sue Askew sent in £1,050 raised through a cavy (guinea pig) show.

In Memory of

Phyllis Marie Astley

Richard Astley sent donations of £2,140 received in lieu of floral tributes for his wife: “£2,140 was donated by the family and many close friends of my wife, Phyllis, who passed away unexpectedly on 11 February 2016, aged 40. In life, Phyllis was aware and concerned regarding cardiac risk to young people

www.c-r-y.org.uk

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Our Fundraisers as she had a friend whose child died young. As she also passed away with an unexpected cardiac problem, I can think of no one better than CRY to benefit from these generous donations.”

In Memory of

In Memory of

Alex Bates

Team Alex; Cliff Bates, Amanda Bates, Andrew Tigwell, Gillian Stelling, June Marsh, Edward Tigwell, Mandy Tigwell and Jonathan Tigwell, took part in the CRY Heart of London Bridges Walk 2016 and raised £665.

Stuart Attridge

Team “Brutus”; Simon Attridge, Alexis Calvert-Persaud, Natasha Calvert-Persaud, Marcia Calvert-Persaud, Neil Dempsey, Elizabeth Beattie, Jill Roch, Rose Grantham, James Letts, Victoria Beattie, Hannah Rainford, Katy Rainford, Sue Harris and Denise Pickard, took part in the CRY Heart of London Bridges Walk 2016 and raised £170.

In Memory of

Alan Bain

• Nancy Gibson sent in £1,365 from the Highland Park Distillery. • Helgi’s in Orkney sent in a donation of £2,000. • Fiona Henderson took part in the Hoy Half Marathon and raised £447. • Kathleen and Norman Bain sent in a total of £1,210.

In Memory of

Gideon Baws

Tony Baws sent in a total of £425: Fishing With Harry book royalties amounted to £400; and Christina Bainbridge donated £25.

In Memory of

Matthew Beadle

• Bernice Allen took part in the Virgin Money London Marathon 2016 and raised £879.20. • Sarah Foster took part in the Virgin Money London Marathon 2016 and raised £838.60.

In Memory of

Steve Bedford

Matthew Armitage took part in the Windsor Half Marathon and raised £395.

In Memory of

Johny Barker

Sam Barker sent in £17,304.31 raised through the Horny Ball, organised by family and friends: “We held this ball, called the ‘Horny Ball’ (because we farm longhorn cattle) in Johny’s memory and attracted some 450 guests.”

In Memory of

Cecilia Barriga

• Shereen Doherty at Second Star Productions sent in a donation of £100. • Mohsin Harhara raised £731 through the Virgin Money London Marathon 2016.

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In Memory of

Graeme “Tinka” Bell

Gemma Cannell sent in £650 raised by the 150 Club at West Denton Fire Station.

In Memory of

Richard Belton

• Gemma Wiggs took part in the Virgin Money London Marathon 2016 and raised £2,745.60. • Amy Seaman took part in the Virgin Money London Marathon 2016 and raised £2,001.98.

Issue 70 | May to August 2016


Our Fundraisers In Memory of

Laura and Frances Bennett

John Bennett sent donations of £475 received in lieu of floral tributes for his mother, Frances.

In Memory of

Philip Bergman

• Jenny Bergman sent in £980.50 raised at the Philly B Cup event. • Margaret Luis sent in a donation of £100.

In Memory of

David Bick

Bolehall Manor Club, Tamworth, organised a race night and raised £100.

In Memory of

Graeme Blenkinsop

• Janice Blenkinsop sent in £530.40 raised through a football match and a raffle. • Jan and Paul Blenkinsop sent in £565 raised by Cowes Enterprise College.

In Memory of

Dennis Blount

Mrs G Hindson sent donations of £251 received in lieu of floral tributes for her father.

In Memory of

Sarah Booth

• Andrew and Christine Booth sent in £810 in respect of Sarah’s 21st birthday and in lieu of wedding gifts. • Robert Booth sent in £350 raised by Invest NI through their goal predictor league:

In Memory of

Maxwell Biles

North Dorset RFC sent in £287 raised by the under-10s youth team.

In Memory of

Steven Blair

• Susan Blair sent in £235 raised through collecton boxes at The Tavern Bar, Millport. • Premier Store, Millport, raised £330 through a collection box on their premises.

“The money was raised by my former colleagues in the Northern Ireland Economic Development Agency ‘Invest NI’. For the second year running they have decided to donate money raised from the ‘Premiership Goal Predictor League’ to CRY in memory of our daughter Sarah, who died from SADS in June 2010. The organiser of the weekly league is a friend called Michael O’Connor.”

In Memory of

Daniel Boreham

Teachers and sixth formers of Chelmer Valley High School took part in a football match and raised £179.83.

In Memory of

Jack Boulton

In Memory of

Graham Blaxhall

Katie Murphy and Joanne Foster raised a total of £2,390 through taking part in the Brighton Marathon 2016.

www.c-r-y.org.uk

• The Wetton family climbed Mount Kilimanjaro and raised £1,055. • June Boulton sent in £1,740 raised through Bob Damberg’s year as Tracy Park Captain:

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Our Fundraisers In Memory of

Ian Bowen

Gary Watson sent in £642.50 raised by the postal workers at the Whitchurch delivery office through their annual football predictor sheets.

In Memory of

Neil Bradbury

• Amy Windle organised a ladies’ night and raised £450. “Bob Damberg was my work colleague at Rotork before he retired and was very supportive to me when we lost Jack in August 2009. Bob took up golf in his retirement and became the senior captain for Tracy Park for 2015/16. During his year he nominated CRY as his charity and raised an amazing total of £1,740. He did this through various events including many cake sales (cakes made by his wife Lynne). He said that to date this was the best total raised in any one year.”

“Friday 17 June 2016 saw almost 100 women attend a ladies’ night at The Premier Suite in Cannock. Featuring entertainment from KY Kelly, Tyson, Extreme, a disco from Spot On Sounds and a prize raffle, the night raised £450 for CRY.” • Team “Walk for Neil”; Amy Windle, Natalie Jarrett and Leanne Benton, took part in the CRY Heart of London Bridges Walk 2016 and raised £300.

• June Boulton sent in £1,700 raised at “Jack’s Match”: “Jack’s Match was held on May 27, in horrendous weather conditions, lashing rain and wind for the duration. Friends and the local community were not put off and a good crowd gathered. Saltford Football Club and Keynsham Cricket Club were stuck at deadlock at full time and again at extra time. Penalties put Saltford Football Club up at 2-1, bringing the trophy back to them. Thankfully, local businesses had once again been very generous and with the addition of a large marquee the evening carried on with the barbecue and live band, making it a great evening. Hopefully the weather will be kinder next year.” • Wellsway School sent in a donation of £576.49. • Lloyds Bank Foundation sent in £500 matched giving in respect of Russell Millward taking part in a Venice to Rome cycling challenge.

In Memory of

David Bramwell

Nicola Shadbolt raised £685 through taking part in the Brighton Marathon 2016.

In Memory of

Harley Brandon

Gary Davison at AKT 11 sent in £666.67 raised by staff running 1,000km in 24 hours, completing a London to Cambridge cycle and office cake sales.

In Memory of

Paul Breakwell

In Memory of

Keith and Joan Breakwell sent in a donation of £100.

• Ben Thompson raised a total of £665 through taking part in the Brighton Marathon 2016.

In Memory of

• Team “For Gemma”; Noelle and Steph Curtin, took part in the CRY Heart of London Bridges Walk 2016 and raised £360.

Karen and Sarah Brignull took part in the CRY Heart of London Bridges Walk 2016 and raised £540.

Gemma Bousfield

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Louise Brignull

Issue 70 | May to August 2016


Our Fundraisers In Memory of

Alex Brinck-Johnsen

• Team “A Bridge Too Far”; Christopher Brinck-Johnsen and Molly Sidlow, took part in the CRY Heart of London Bridges Walk 2016 and raised £180. • J Brinck-Johnsen sent in a total of £200.

In Memory of

Emma Broad

• St George’s College, Weybridge, sent in £270.60 raised by their sixth formers. • Sallie Doyle took part in the London 2 Brighton Challenge and raised £485.

In Memory of

Steffani Broughton

Martin Evans raised £1,755 through taking part in the ASICS Greater Manchester Marathon 2016: “The reason I was running for CRY was in memory of Steffani Broughton from Beith in Scotland who died in 2007 from an undiagnosed heart defect. Her mum and dad, Irene and Ian Broughton, have campaigned tirelessly over the years for CRY and have a memorial fund set up in her name. Last year a few of us took part in a number of Scottish Kiltwalk marathons raising approximately £2,000 for Steffani’s fund. “A bit about myself. I am a Royal Navy submariner serving on HMS Victorious based at Faslane on the west coast of Scotland. Having completed 32 years of service and turning 50 years old last November I wanted to run my first full marathon and to raise money for CRY. Previously I had completed four half marathons, 3 x Glasgow and 1 x Great North Run. So in January of this year I was searching online for a marathon to participate in prior to going back to sea

www.c-r-y.org.uk

on patrol. The Manchester Marathon was ideally timed for me to train and be ready. So I followed a ‘MY ASICS’ training programme for 14 weeks in preparation for the ASICS Greater Manchester Marathon on April 10. “For my first full marathon I found the first 15 miles quite easy and enjoyable in the Manchester sunshine with a 13-mile time of 1hour 48 minutes. Then between mile 15 and 16 it got tougher as my energy seemed to decrease and my legs were tiring and starting to ache. This is when I had to ‘dig in’ with approximately 10 miles to go and thought why was I doing this and thinking of Steffani. If I could save one life with the proceeds from this run then it would be worth it. It was a tremendous relief to get to the finishing line even though the second 13 miles took over two hours to complete, giving an overall finishing time of 4 hours 2 minutes 36 seconds. My ASICS training plan was aimed for a 4 hours 3 minute finishing time so the training plan worked a treat.”

In Memory of

Alex Brown

• Becky Marshall, Dan, Naomi, Kim, Hayley, Dave, Lizzy, Deb and Anna took part in the Telford 5K Dark Run and raised £650. “On 31 October 2015, Becky Marshall, Alex’s girlfriend, took part in the Telford 5K Dark Run with eight of her work colleagues and friends. Teddy Richmond the sausage dog also completed the Dark Run; albeit a lot slower than the rest! Becky went to a lot of trouble having T-shirts printed in order to raise awareness of CRY. All of the runners also

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Our Fundraisers wore glow-in-the-dark face paint with the Halloween night theme, as this was the date the run fell on. Becky trained a little for the race, not as much as she felt she should have. However, she said, ‘I didn’t stop once, I thought of Alex and just kept running. The thought of Alex got me through it.’ A massive well done to all those involved.” Rachel Dingle.

In Memory of

• Stacey Jones took part in the Virgin Money London Marathon 2016 and raised £598.31.

In Memory of

• Andrew Willetts took part in a charity rugby match and raised £225.

Chris Burdon and Gary Bennett took part in the Bournemouth Marathon and raised £1,672.70.

• Noel Doidge took part in a charity rugby match and raised £170.

“I am pleased to say that my best friend Gary Bennett (who was also my brother’s best friend) and I completed our first marathon together on Sunday. It was a very emotional day, but we were very proud to support CRY and enjoyed the experience (even through the final eight miles of pure pain!).” Chris Burdon.

• Jean Noon sent in £396.46 raised by the British Leyland Camping and Caravan Association through a fun rally.

Alex Buckler

Jan Juneman held a coffee morning in Bruton Community Hall and raised £200.

Peter Burdon

In Memory of

David Brown

• Barclays Bank London and Southern sent in £3,793.87 matched giving in respect of Natalie Bridgman’s Diamond Ball. • Darren Jones took part in the Great South Run and raised £202.

In Memory of

Katrina Brown

• CRY Patron Bill Neely took part in the Virgin Money London Marathon 2016 and raised £4,187.60. • Teams “Westwood Family” and “Crowborough Community First Responders”; Leigh Westwood, Caroline Westwood, Connor Westwood, Madison Westwood, Jaidon Westwood, Nicola Pointer, David Neeves and Jen Neeves, took part in the CRY Heart of London Bridges Walk 2016 and raised £145.

In Memory of

Jordan Burndred

• Madeline Wood sent in £219.40 raised by student nurses through a Christmas fayre. • Biddulph Rotary Club sent in a donation of £1,100.

In Memory of

Leanne Brownhill

Lynne Brownhill sent in £370, including: £120 raised by Kevin Butcher at a northern soul night; and £150 raised at Ludlow Town Bowling Club.

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Issue 70 | May to August 2016


Our Fundraisers In Memory of

Robert Burns

Doreen, Jimmy and Paul Burns sent in £1,300 raised through a five-a-side football tournament and tombola.

• Helen Burndred sent in £233.90 raised through the Kingsfield summer fayre. • The Oxhey First School summer fair raised £145. • Havannah School’s fun day raised £104. • Nicola Burndred sent in a total of £2,400 raised through various events. • Mrs C Postlewhite sent in a donation of £1,000. • John Hayley sent in a donation of £150. • Nicola Burndred sent in £401 raised through an auction for a picture donated by Gaz Williams.

www.c-r-y.org.uk

In Memory of

Andrew Burton

Cheltenham Rugby Club sent in a donation of £1,000. “Our club recently held a memorial rugby match for one of our former players and members who tragically died suddenly at the age of 48, in November last year.” SP Ratcliffe, Club Chairman.

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Our Fundraisers In Memory of

Grant John Butler

Ms M Clarkson sent donations of £935.23 received in lieu of floral tributes for her husband.

In Memory of

Janet Butler

Mr Butler sent donations of £145.83 received in lieu of floral tributes for his mother.

In Memory of

Nathan Butler

• Philip and Joshua Butler, along with 25 of Nathan’s family and friends, took part in the “Nathan’s PPCC Wheelers Charity Bike Ride” and raised £9,140.

Newcastle to Barnard Castle on Tuesday, from Barnard Castle to Skipton on Wednesday, from Skipton to Holmfirth on Thursday, from Holmfirth to Macclesfield on Friday and finally from Macclesfield back to Porthill Cricket Club on Saturday morning. “They covered a total of 232 gruelling miles, most of it over very tough terrain on dirt tracks or cycle tracks, over the top of Saddleworth Moor and in and out of picturesque villages. They encountered the worst weather possible as they had snow, rain, hail, thunder and lightning, and gales! They all described it as excruciating and exhausting whilst being one of the worst and certainly one of the best experiences they’d ever had and they all thoroughly ‘enjoyed’ it in a sadistic sort of way! Nathan will be very proud of every one of them. They’re already planning another cycle ride, hopefully one that’s a bit kinder next time.” Angela Butler. • Mr M Olszewski sent in £213.22 on behalf of the Wolstanton Residents’ Association, through their “Christmas in Wolstanton” evening.

“22 February 2016 was the 10th anniversary of Nathan’s death and his family and friends wanted to do something challenging to mark the occasion in Nathan’s memory. They became Nathan’s PPCC Wheelers and it was agreed that they do a cycle ride from Newcastle upon Tyne to Newcastle-under-Lyme. 27 of them (age range 18–55) set off from Porthill Cricket Club on the evening of Monday 4 April 2016 to make their journey up to Newcastle upon Tyne, ready to start their epic challenge the following morning. They set off from the Tyne Bridge and over the next four and a half days their journey took them from

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In Memory of

Nathan Butler and Nora Davies

Angela Butler sent donations of £773.70 received in lieu of floral tributes for her mother, Nora: “My lovely mum, Nora Davies, passed away on June 23 and at the funeral we requested donations for CRY. Mum has been an avid and enthusiastic supporter of CRY since Nathan’s death and has attended a lot of events with me, including the Family Support Days which she found very beneficial, and Mum was well known to a lot of CRY supporters and representatives.”

Issue 70 | May to August 2016


Our Fundraisers In Memory of

Michael Cadman

• Ian and Jessie Cadman sent in £600 raised through a nonuniform day at Arbroath High School. • Team Cadman; Jennifer and Elizabeth Irvine-Cadman, took part in the CRY Heart of London Bridges Walk 2016 and raised £680.

In Memory of

Yasmin Caldera

• Alexis Trowbridge took part in the Great South Run and raised £440. • Ben Holmes took part in the Virgin Money London Marathon 2016 and raised £930.

• Alice and Trevor Wheaton sent in £270, in memory of their grandson, raised at a football tournament at Doveridge FC on what would have been Alistair’s 19th birthday. • Gordon Douglas sent in £2,500 raised through Susan Osborn-Barker and her daughter Tilly taking part in a sponsored walk.

In Memory of

Alistair Calvert

• Francesca and Tracey Goff took part in the CRY Heart of London Bridges Walk 2016 and raised £360. • James Shaw raised £355 through taking part in the Vitality London 10,000 2016. • Lauren Harrison took part in the Hackney Half Marathon and raised £955: “The run went great, but my god it was so hot! I finished in 2:42, nowhere near my planned time but in 27-degree heat I was pleased to finish! My dad met me at mile 8 for moral support and ended up running the last five miles with me to keep me going, people were cheering us on and laughing hysterically! Bear in mind he is 57! “It was an amazing day and the atmosphere was fantastic on the hottest day of the year! I ran for my step-brother Ally, who passed away in July 2015. It was a tremendous achievement for me, as my first ever run, considering I couldn’t even run a mile back in October (the honest truth!).”

www.c-r-y.org.uk

In Memory of

Alex Camilleri

Team Alex; Susan Camilleri, Karen Sadler, Jo Gilks, Anne Watson, Marion Dowling, Jessie Vidal, Chrystal Vidal, Damien Wakefield and Patrizia Vidal, took part in the CRY Heart of London Bridges Walk 2016 and raised £2,130.50.

In Memory of

Arabella Campbell

• Clare Northcott sent in £367 raised through a raffle and £1,527.29 through a strawberry tea, making a total raised of £1,894.29. • Sophie Blackburn raised a total of £1,670.22 through taking part in the Brighton Marathon 2016.

In Memory of

Elliot Campbell

Graham Riddell sent in £245 raised through his friends’ “Bearded Face-Off” event.

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Our Fundraisers In Memory of

“Chris and Darren are always up for a laugh so when a friend, Elliot Campbell, suggested growing beards from the autumn clock change to the spring change they readily approved. Sadly, Elliot passed away suddenly one night in his sleep before it began and so the pair pledged to continue for Elliot.

Guy Champney

DA Williams sent in £100 on behalf of De La Hoghe Chapter Rose Croix Masonic Order.

In Memory of

Anjum Choudhury

Team Anjum; Rosey Woodhead, Paul Woodhead, Batool Hossain and Kasun Cooray, took part in the CRY Heart of London Bridges Walk 2016 and raised £445.

In Memory of

“On hearing about the charity CRY, they agreed to try and raise some funds when the time came to shave their beards off and so a local Facebook campaign was started late in March 2016.”

In Memory of

James Campbell

Kendra McElvaney sent in £100 raised through Middlesbrough B&Q making hampers at Easter and £200 through a book sale, making a total raised of £300.

In Memory of

Simon Carloss

Michelle Carloss sent in £2,069.20 raised through various fundraising events.

In Memory of

Andrew Carter

Marina Tomsett took part in the Virgin Money London Marathon 2016 and raised £3,034.20.

In Memory of

Richard Castell

Andy Loizou took part in the Virgin Money London Marathon 2016 and raised £2,912.

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Pippa Chowne

Team “Pip”; Andrew Chowne, Lisa Chowne and Alison Tumber, took part in the CRY Heart of London Bridges Walk 2016 and raised £200.

In Memory of

Katrina Christopher and Cheryl Christopher-Webber

• Lisa Hough held a girls’ night in and raised £524: “I held a girls’ night in for another charity last year, and I thought that this year I would do it again but this time for CRY. So, a group of us just basically had a girls’ night in at my house; there were about 25 of us. There was a £5 donation/entry fee. We had a raffle, an auction, sold cocktails, alcoholic cake (!!) and basically just had a natter and a laugh. “I chose this charity and in particular this memorial fund as both Katrina and Cheryl were friends of mine and also of the girls that came. Katrina and Cheryl’s mum and sister also attended the evening. “We all know each other very well and it was an enjoyable evening for all. Everyone contributed to the amount raised and

Issue 70 | May to August 2016


Our Fundraisers King, Nina Neve, Camilla Baird, Klam Stewart, Vicky Pearson and Ruth Arulandandam, took part in the CRY Heart of London Bridges Walk 2016 and raised £1,460.69.

In Memory of

Jamie Clarke

I am proud that we all could do that. My dad is involved with another charity, Soul Aid, and they kindly made a donation to the event to enable me to get some extra wine, nibbles, raffle prizes, etc. A good time was had by all whilst raising money for a good cause.” • Team Trina and Cheryl; Viv Christopher, Erin Christopher-Coles, Sadie Christopher-Coles, James Webber, Freddy Christopher-Webber, Laura Gibbs, Harry Gibbs, Tomas Gibbs, Elsie Gibbs, Daphne Merchant, Terry Plumb, Alan Webber, Marian Webber, Katarzyna Bett, Mark Bett, David Bett, Michael Hinton, Ellen Hinton, Eli Hinton, Tobias Hinton, Lindsey Miller, James Goodyer, Niamh Goodyer, Joseph Goodyer, Connor Goodyer, Julia Dickinson, Katharine Merchant, William Merchant, Tracy Boegli-Taylor, Beat BoegliTaylor, Vicky-Marie Ravenscroft and Wilawan Horsham, took part in the CRY Heart of London Bridges Walk 2016 and raised £2,007.

Lucie Playford took part in the Three Peaks Challenge and raised £6,143.65.

In Memory of

David Cochrane

Lodge Hopetoun St John sent in a donation of £101.

In Memory of

Nicholas Collins

Manuel Hulliger sent in £100 from Martin Collins’ 70th birthday.

In Memory of

James Colman

In Memory of

Tom Clabburn and Claire Prosser

• Jamie Gavin took part in the Virgin Money London Marathon 2016 and raised £1,470. • Team Tom IX; Paul Clabburn, Ellen Clabburn, Peter Matthews, Gordon Prosser, Neil Prosser, Helen Barnes, Richard Prosser, Samantha Prosser, Claire Matthews, Grace Matthews, Evie Matthews, Tim Carpenter, Baerbel Carpenter, James Ballantyne, Anne Marie Reilly, Alan Rodney, Helen Lewis, Joshua Rodney, Louis Rodney, Kate Riley, Robin Gould, Chris Pearson, Alice O’Driscoll, Christy McMorrow, Sophie Manser, Monica Bramwell, Emma Ambrose, Timur Onder, Megan Jones, Aaron Pearce, Alastair Clunas, Florence Clunas, Linda Panzer, David Bentley, Georgina Bentley, John Stanton, Nema Hafezi-Bakhtiari, Ketan Shanti, Homayoun Mustafa, Gottfried Panzer, Alexandra Panzer, Angela Amankwah, Claire Gardner, Stephanie Smith, Linda

www.c-r-y.org.uk

• Enid Colman sent in a donation of £100. • Team “Coley”; Sarah Tibbits, Clare Perry and Steven Perry, took part in the CRY Heart of London Bridges Walk 2016 and raised £101.

In Memory of

Kris Cook

Abi Mawhinney took part in a boxing match and raised £330.

In Memory of

Daisy and David Cope

Margaret Cope sent donations of £470 received in lieu of floral tributes for her husband, David.

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Our Fundraisers In Memory of

Adam Corsham

Paul Mitchell took part in the Virgin Money London Marathon 2016 and raised £492.40.

In Memory of

Bruce Cousins

Jackie Cousins sent in a total of £251.50 raised through market stalls:

“Usual annual photo of Daisy looking miserable manning the toy stall and wanting to take most of them home again!”

In Memory of

Peter Cox

Robin Welch took part in the Great South Run and raised £1,230.

In Memory of

Matthew Cragg

• Tom sent in £500 in respect of the 2016 St George’s Day 24th annual lunch. • Will Elbourne at the University of Nottingham sent in £527 raised through a charity rugby tournament. “A friend and I set up the Robin Hood rugby sevens tournament at Nottingham University. This year we had around 200 players and 1,300 spectators coming to the event, which took place on June 8. Although the day is about rugby, we have live DJs, plenty of food and a bar, which as the sun came out this year, kept the Pimm’s flowing. We secured sponsorship from the RFU and local businesses in Nottingham which meant that all of the donations could be put towards our chosen charities – one of which is CRY. If anyone is interested

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in the event then we have a Facebook page (just search ‘Robin Hood 7s’ on Facebook) and also a website: www. robinhoodsevens.com.” • Ellie Williamson took part in the Leeds Half Marathon and raised £1,505. • Tim Orme took part in the Edinburgh Marathon and raised £571.10. “I did it! For those who like statistics: I finished in 4 hours 10 minutes. I did the first 10K in 53 minutes exactly (it was partly downhill) and the half marathon in 1 hour 55 mins. Then everything started stiffening up and I lost time having to stop to stretch. The last 10K was painfully slow (literally!). It was a lovely sunny day in Edinburgh but a bit warm for running! I’d liked to have done under four hours but I’m really pleased to have been able to finish. Maybe I will do one more marathon sometime!” • William Collier took part in the Virgin Money London Marathon 2016 and raised £3,070.92. • Fred Edwards took part in the Virgin Money London Marathon 2016 and raised £3,479.21. • Adrian Thomas Davies took part in the Virgin Money London Marathon 2016 and raised £360.

In Memory of

Matthew Cragg and Ethan Jones

Thomas Anthony, Alex Halse and Frank Johnson took part in the Virgin Money London Marathon 2016 and raised £6,758.

In Memory of

Jane Crean

Helen Franks, Rachel Nunns and Louise Fox took part in the CRY Heart of London Bridges Walk 2016 and raised £390.

Issue 70 | May to August 2016


Our Fundraisers In Memory of

Richard Credland

Sandy Credland took part in the Swaledale Marathon and raised £305: “I have always wondered if I could complete a marathon but never quite got round to entering one! After seeing many photos of people who do so and raise funds for CRY into the bargain I decided it was now or never. The Swaledale is essentially a fell runners’ event over some very challenging high terrain, but also a high percentage of entrants walk it. “There was thick mist obscuring the trail for most of the day along with a fair bit of rain at the end so not ideal conditions! However after one rather scary episode where I found myself on my own and rather lost, I managed to retrace my steps and find the right path and finally hook up with some very pleasant ladies who had completed the event before. I stayed with them until the end, finishing in a respectable time of just under 8 hours – a personal best for them and a source of accomplishment for me! On the way round lots of people asked me about CRY and my son’s story as I had his photo on a T-shirt on my rucksack. Think he helped me all the way round! Also it was wonderful to be able to let people know about the fantastic work CRY does.

In Memory of

Jonathan Crowhurst

Team Jonathan; David Crowhurst, Mary Crowhurst, Holly Bunning, Brian Bunning, Reuben Bunning and Elijah Bunning, took part in the CRY Heart of London Bridges Walk 2016 and raised £1,330.

In Memory of

Dominic Cullen

Darren Mann organised a charity day and raised £1,784.53: “My captain’s charity for the year was CRY as I have experienced the loss of a young rugby player, Dominic Cullen, who I coached at Matson Rugby Club in Gloucester. On the charity day I invited a large section of local sports clubs with youth teams. They were all aware of why I was raising money for your charity. There were football teams, rugby teams, boxing teams and a martial arts club. There was also a large selection of local businesses that I work with. “The total raised in my year was just over £6,000. On the charity day I did a prize draw and drew out three teams with a youth section and donated to them a defibrillator each. The remainder of the money is what I donated to CRY.”

In Memory of

Simon Cullum

“I really enjoyed the day and feel very pleased that I have been able to raise a substantial amount to help with the cardiac screening programme. Also it was really good to be able to take part in a physical activity and so try to keep up with my daughter Vicky who has completed two very arduous fundraising events for CRY, one the day before Richard’s birthday this year. Who knows, I may do it all again next year and perhaps see the stunning views of the dales that I missed due to the poor weather!”

In Memory of

Esther Cronin

Dennis Cronin sent donations of £245 received in lieu of floral tributes for his mother.

www.c-r-y.org.uk

Team “The Daddy”; Marilyn Cullum, Angela Hopwood and Sandra Skipper, took part in the CRY Heart of London Bridges Walk 2016 and raised £310.

In Memory of

Adam Cunliffe

Samuel Coulson and his brother Luke took part in a tandem parachute jump and raised £460. “My little brother, Sam Coulson, received a letter recently about getting a short publication on the website following a skydive that we both did to raise money for CRY. My best friend, Adam Cunliffe, passed away in February 2015, aged just 20. Last year, a group of my friends

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Our Fundraisers and I climbed Snowdon in Lord of the Rings fancy dress. This year, I wanted to continue to raise money for CRY in memory of Adam and I intend to raise money every summer by doing something different. My little brother Sam knew Adam well and was keen to help raise money so we decided to do a skydive. “We travelled to Nottingham for 9am which took us an hour and we waited until the afternoon to jump out of the plane. As I am a footballer and Sam used to play, a football was essential for the waiting around and helped us pass the time. The jump was amazing and we both thoroughly enjoyed it. The weather was quite cloudy and our tandem partners flipped us through the clouds before we fell to the ground. “The air pressure on your head is so powerful and it is a truly amazing experience. It is over before you know it and you have fallen 13,000 feet. We fell 8,000 feet in 45 seconds, crazy to think about. We both definitely want to do it again. The date we did the jump was the June 19.” Luke Coulson.

In Memory of

Harry Cutmore

Wendy Cutmore sent in £100 raised by her local cricket social club.

In Memory of

Andrew Dale

Joyce Dale sent in £100 from the “Do Drop In” luncheon club, St Stephen’s Church, Birmingham.

In Memory of

Ben Daniels

• Luke Alland and Jack took part in a 54km charity walk and raised £330. • Richard Wallbridge sent in a total of £3,520 from Chislehurst & Sidcup Grammar School in respect of a screening. • The Rotary Club of Chislehurst sent in £500. • Jack Green took part in the Virgin Money London Marathon 2016 and raised £3,543.24. • Sarah Brearley sent in £200 in respect of a screening.

In Memory of

David Davenport

Tim Davenport took part in the Virgin Money London Marathon 2016 and raised £2,945.42.

In Memory of

Iain Davidson

Mark Sinclair took part in “365 Days of 5K Runs” and raised £472.64.

In Memory of

Joel Davies

Russ Davies took part in a world-record attempt at skinny dipping and raised £325.

In Memory of

Freya Dalrymple

• Former pupils of Kirkwall Grammar School raised £332.18 through their reunion. • Ingrid Dalrymple sent in £120.20 raised through a collection box at Papdale Stores, Kirkwall. • Mr and Mrs Davie Flett sent in a donation of £1,179.68. • Fiona Flett sent in £583.75 raised through members of Orkney Rowing Club completing the Round Orkney Row challenge.

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In Memory of

George Dayantis

Carole Dayantis raised £600 through her “Tribute to George” page.

In Memory of

Conor Delaney

Claire McDermott sent in a donation of £150 as part of her wedding favours.

Issue 70 | May to August 2016


Our Fundraisers In Memory of

Matthew Dewhirst

• Sue and Chris Dewhirst sent in a total of £2,490.19: Sue France raised £190 through a networking ladies’ lunch; Crewe Alexandra FC raised £189 through their “Ask the Manager” event, £430 through a bucket collection, and £170 through a fashion show; Wrekin College raised £160; Weston Rhyn gardening sale raised £400; and screening donations amounted to £951.19. • The CRY for Matthew 21st Party Ball, raffle and auction raised £7,000.

In Memory of

Aaron James Dixon

• Mr PA Bird sent in a donation of £295. • Deborah Dixon sent in a total of £218: collection pots in The Bull’s Head and The Crown Inn, Mobberley, raised £110; and United Utilities donated £108. • Tania Lambert took part in the Virgin Money London Marathon 2016 and raised £1,504.63. • The JD Foundation sent in a donation of £25,000.

“We had 140 people attend the ball, including some of the CRY screening team; Hannah Lowry, Sharon Clark and Ralph Knox.

“I was presented with a cheque for £25,000 on July 15 at the JD Sports head office. The cheque was donated to fund further screening days in Aaron’s memory.” Debbie Dixon. • The Grange School in Hatford, Cheshire, sent in a total of £1,825.

“It was to celebrate the 21st birthday of Matthew and also CRY, both born in 1995. Many of Matthew’s school friends from Ellesmere College attended along with local companies, and we were able to secure some sponsorship, enabling us to raise £7,000 to be spent on two days of screening in Shropshire in 2017.” Sue Dewhirst. • David Potts took part in the London to Paris Cycle and raised £2,480.

In Memory of

Andrew Dickinson

Anne Dickinson raised £4,301.75 through her Someone Special page.

www.c-r-y.org.uk

In Memory of

Adam Donnelly

• Crosswater sent in a donation of £100. • Thomas Donnelly raised £2,056.20 through taking part in the Brighton Marathon 2016. • Sian Donnelly and Adam Stuchbery raised £2,215.41 through taking part in the Brighton Marathon 2016. • Team Adam; Julie Donnelly, Jed Donnelly, Sian Donnelly, Lisa Donnelly, Noah Ruth, Isla Ruth, Maureen Mullen, Rachel Hewitt, Jeff Hewitt, Angela Adamson, Eric Adamson, Denise Estik, Adam Stuchbery, Cheryl Morgan, Rochelle Gibbs and Sean Keaney, took part in the CRY Heart of London Bridges Walk 2016 and raised £355.

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Our Fundraisers • Sam and Madog took part in the Anglesey Half Marathon Dragon Dash and raised £296.

In Memory of

Emily Rose Dunn

• Danielle Renton held a coffee morning and raised £530.

In Memory of

Robert Doyle

Sean Doyle sent in £790 raised through the second annual memorial tournament.

In Memory of

David Drake

Stephen Drake sent donations of £235.10 received in lieu of floral tributes for his son.

In Memory of

• Megan Wynne took part in the Great Manchester Run and raised £360. “On Sunday 22 May our group of over 20 people took part in the Manchester 10K for CRY in memory of Emily Rose Dunn, who sadly passed away in July last year as a result of an undiagnosed heart condition. “The group, led by Emily’s parents Gordon and Sheree, consisted of a selection of Gordon’s colleagues from Compass Minerals as well as some of Emily’s family and close friends. It was an emotional day for all, but it was so fantastic to see so many people pulling together for a great cause.

Adam Drawbridge

• Richard Blackman sent in a donation of £2,305.18. • Team Adam; Sarah and Les Drawbridge, took part in the CRY Heart of London Bridges Walk 2016 and raised £500.

In Memory of

Harry Dubois

• Deborah Dubois took part in the Wilmslow Triathlon and raised £430.

• Kirsty Duncan took part in the Chester Half Marathon and raised £896.22.

“Special mentions go out to the members of our group finishing in less than an hour: Bruce Harrold – 34:41, Mike McAuley – 49:12, John Brotherton – 52:40, Megan Wynne – 52:51, Ryan Mitchell – 53:20, Ben Hayes – 55:18, Martin Moores – 56:59, Jamie Chellig – 57:37, Sebastian Luker – 58:45, Felicity Hayes – 59:34.

• Aaron Coates took part in the Virgin Money London Marathon 2016 and raised £923.74.

“We hope to continue raising much more in the future for this brilliant cause. Bring on next year!” Frankie Dunn.

• Megan Nicholson took part in the Virgin Money London Marathon 2016 and raised £1,211.43.

• The Emily Rose Team; Gordon Dunn, Sheree Dunn, Mark Vickers, Louise Vickers, Ellie Vickers, Florence Vickers, Robert Dunn, Francesca Dunn, John Vickers and Joan Vickers, took part in the CRY Heart of London Bridges Walk 2016 and raised £803.81.

• Mark Mills sent in a donation of £100.

In Memory of

Richard Dunk

Team “DUNK”; Dawn and Emma Dunk, took part in the CRY Heart of London Bridges Walk 2016 and raised £762.

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• Compass Minerals UK sent in £500 matched giving in respect of the Great Manchester Run. • The Rotary Club of Northwich sent in £482 raised through the Northwich Swimathon.

Issue 70 | May to August 2016


Our Fundraisers In Memory of

Luke Eccleston

Isabelle Sully took part in the Virgin Money London Marathon 2016 and raised £2,711.

In Memory of

Annie Edwards

• Cormick Grogan sent in a matched giving donation of £426 from LV= in respect of taking part in the Brentwood Half Marathon. • Jamie Crawford raised a total of £500 through taking part in the Brighton Marathon 2016.

In Memory of

Rory Embling

• Chris Embling sent in a total of £1,050.60: an afternoon tea raised £347; Stuart Hyde donated £10; Anne Parkinson donated £5; a CRY stall at Hemworth Market raised £130.40; a Euro 2016 sweepstake raised £125; Pontefract Rotary club donated £75; and an Ann Summers party hosted by Rory’s sister Francesca raised £108.20.

“Ladies attended an afternoon tea at Rory’s Return in June. The event was chiefly organised by Helen Gaythorpe, Rory’s aunt. We raised £347 for CRY on the day and a lovely time was had by all.” “Francesca sold her flowers and a few other items at Hemsworth Market. We dressed in ‘40s outfits and had our hair done in ‘40s styles. The dog’s name is Tilly. She belongs to Chris’s cousin Carole Vogel who made her special CRY neckwear for the day – Tilly went on to steal the show.” “Chris was invited as a guest speaker at a luncheon meeting of Pontefract Rotary Club and spoke about our loss of Rory and Rory’s Foundation at CRY. The members were very moved as to our situation and were very supportive of our efforts and the aims of CRY. Chris has been asked to speak at other Rotary branches within our local area.” Anne Embling. • Chris and Anne Embling sent in £147 raised at an evening of psycometry with Janet Rushton: “Pictured here are the lovely ladies (along with Rory’s dad Chris) who attended a psychic evening with Janet Rushton at the home of our dear friends and family Paul and Carole Vogel.”

In Memory of

Sebastian English

• Douglas Wright sent in £1,500 raised at the Café Bridge 2015 event.

www.c-r-y.org.uk

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Our Fundraisers • Jason Collier took part in the Virgin Money London Marathon 2016 and raised £2,555.65. • Mark Davies sent in a total of £100.

In Memory of

Morgan Evans

• John Anderson sent in a donation of £200. • John Borrowman sent in a donation of £120. • Mary Kirk sent in £100 raised by Newtonmore Rhyme Time.

“From that moment on the planning and organising began. The discussions were what we shall call this ball. It was agreed ‘The Golden Ball’ as Harry was often referred to by his uncle Steve as ‘Golden Balls’ as he could not do a thing wrong. We were truly thankful for the generous donations and sponsorship that we received from the local community, friends, family and some big companies who donated an amazing range of prizes. “The catering was done by Simon Haffenden, who was the chef at Lockers Park, Harry’s prep school. When Simon was told about the ball his reply was, ‘It would be a pleasure, and I would like in some way to show my respect for Harry, and this would be a perfect opportunity.’ He was also joined that night by the catering staff from Lockers who were there at the school when Harry was too.

In Memory of

Phillip Evans

Julie Evans sent in a total of £110: £60 from Angela Hamilton and the staff at the Medical Records Department of the University Hospital of Wales; and a £50 personal donation.

In Memory of

Harry Faulkner

• Donna Faulkner sent in £21,394.79 raised at The Golden Ball organised by Carolyn, Julie, Susanna, Tracey Evans and Tracy Pollard. “On Saturday 19 December 2015, five very special friends put on a ball in memory of our son Harry. 13 months previous to this date over a coffee I was asked by them how I felt about them organising an event to raise money and awareness for CRY. My reply was how honoured I would feel that they would do such a thing.

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“The waiters, waitresses and bar staff were my friends’ children, most of whom did not know Harry, who gave up their Saturday night to work for free to support this charity. The ball was held at Berkhamsted School where Harry was in sixth form. Without the generosity and support of the school the money raised would not have been so high. The room was full of friends, family, colleagues, teachers, governors, friends of friends and his group of special friends that I call my ‘Berko boys’ who have been such a huge support to me for the last three years. “I never imagined from our first conversation in November 2014 that these five amazing ladies would succeed in putting on a ball that was such an amazingly successful night and one so thoroughly enjoyed by all who came. The ladies worked incredibly hard in planning the ball and for

Issue 70 | May to August 2016


Our Fundraisers this I am truly grateful and no words can ever tell them how much love and appreciation I have for them all. The ball raised an amazing £21,394.79. “To date we have screened over four hundred children from Harry’s memorial fund and will continue next autumn with our third round of screening at Berkhamsted School. Good friends help you find important things when you have lost them. Things like your smile, your hope and your courage. When life is tough, you find out who your real friends are. Thank you Carolyn, Julie, Susanna, Tracey Evans and Tracy Pollard.” Donna Faulkner. • Sarah Elliot sent in £175 raised through the Emery Little Charity Golf Day.

• Lorraine Slade took part in the Virgin Money London Marathon 2016 and raised £309. • Rich and Donna Fell sent in £2,905 raised at the fifth annual ex-Tigers charity football match and family fun day. • The students at Hornsea School and Language College raised £250 through a non-uniform day. • Sarah Thompson sent in £143 raised at a street party to celebrate the Queen’s 90th birthday.

In Memory of

Therese Field

In Memory of

Harry Faulkner and Darren Brown

Sarah Brown took part in the Virgin Money London Marathon 2016 and raised £1,979.02.

In Memory of

Harry Faulkner, Alex Hubbard and Richard Merriman

Waitrose, Berkhamsted, sent in £317 through their Community Matters Scheme.

Tasmin Foulis at Dane Court Grammar School sent in £196.72 raised by students and staff.

In Memory of

Michael Fisher

Stephen Fisher organised The Botanic Inn football competition and raffles and raised £3,660:

In Memory of

Conor Feeney

Team Feeney; Maria Feeney and Aiden Triggs, took part in the CRY Heart of London Bridges Walk 2016 and raised £505.

In Memory of

Josh Fell

• Rich and Donna Fell sent in a total of £5,070: Farmyard Friends Childcare raised £70 through selling old toys; and Zoe and Andrew Stathers raised £5,000 through a ball. • Hudson Contracts Services donated £10,161 to commemorate their 20th anniversary.

www.c-r-y.org.uk

“On Sunday 3 July 2016 a seven-a-side football tournament was held in memory of my little brother Michael Fisher. 17 teams of nine (two subs in each team) pitted a wide range of football abilities against each other for the ‘Michael Fisher Memorial Trophy’. Michael attended a similar football tournament in previous years with his work in The Botanic Inn in Belfast, so we felt it fitting that we remember him in this way and raise some money for Cardiac Risk in the Young. “At the football we organised a refreshments stand, where cakes, sandwiches and drinks were available and

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Our Fundraisers In Memory of

Andy Forbes

Steve Smith sent in £210 raised through the Image Plus veterans’ football team’s annual tour.

In Memory of

Joanne Fotheringham

you could grab some refreshments for a small donation. The football went very well, with the eventual winners ‘The Kitchen Bar Belfast’ revelling in their victory after a hard-fought final. After the football, back at The Botanic Inn, we had food and then a raffle. The raffle was a runaway success and raised lots of funds. We were hugely successful with prizes, donated from all sorts of places, e.g. three-hour tattoo session, car window tint, healthscreen voucher and meal vouchers, among many others.

Beverly Gilmour took part in a sponsored walk and raised £571.50.

In Memory of

Luke Francis

Luke’s Family; Ian Francis, Katrina Francis, Barbara Fuge, Christopher Taylor, Jasmin Eames, Jemma Taylor, Sophie Procter and Lilly Taylor, took part in the CRY Heart of London Bridges Walk 2016 and raised £1,246.91.

In Memory of

Fabienne Frichot

• Mrs F Arghebant sent in a donation of £150. • Tom Firth sent in a donation of £100.

“Thank you everyone involved in making the day such a success and allowing us to celebrate Michael’s life and memory and raise funds for charity. Thank you to The Botanic Inn for organising and allowing us to participate. Thank you to all those who donated their money, prizes, time, effort, baking and footballing skills at all the levels on show today. Fine day, fine people, incredibly generous each and every one of you both financially and with your time and my family appreciate it no end. The Michael Fisher Memorial Trophy resides now at The Botanic Inn. See you next year!”

In Memory of

Thomas Fleetwood

James Maloney at the Royal Bank of Scotland sent in £100.

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In Memory of

Jay Futter

• Sue Hargadon sent in £500 raised by the students of Farlingaye High School through their biennial fancy-dress sponsored walk. • Alison Futter sent in a donation of £150.

In Memory of

Matthew Gadsby

Andy and Jackie Gadsby sent in £120 raised at The Queen’s Head Pub.

Issue 70 | May to August 2016


Our Fundraisers In Memory of

Rebecca Gapes

Team Gapes; Katharine Green, Rob Bickmore, Emma Bickmore, Tom Bickmore, Alice Bickmore, Ben Keech, Hannah Moroney, Mark Freeney and George Scuffham, took part in the CRY Heart of London Bridges Walk 2016 and raised £423.

In Memory of

Jordan Grant

Peter Western sent in £1,250 from the Catenian Association Preston Circle.

In Memory of

In Memory of

Francisco Javier Garcia

Brian James sent in £202 collected by his friends and colleagues at British Airways.

In Memory of

Don Geering

Janos Geering took part in the Manchester 10K and raised £290.

In Memory of

Salena German

Jackie German sent in a donation of £205.

Adam Green

Christopher Deakin took part in the Yorkshire Half Marathon and raised £244.15.

In Memory of

Oliver Griffin

• Alan Hale took part in the Virgin Money London Marathon 2016 and raised £4,300. • James Bruce took part in the Virgin Money London Marathon 2016 and raised £2,746.62.

In Memory of

Rochelle Grogan

In Memory of

Gus Gilbert

Sonya Viney sent donations of £235 received in lieu of floral tributes for her father.

In Memory of

• Mehmet Ahmetoglu took part in the Virgin Money London Marathon 2016 and raised £2,056. • Team Rochelle; Sharon Thorpe, Mehmet Ahmetoglu, Sophie Grogan, Roy Jury, Nereece Johnson, Lauren Lewis and Daniel Casey, took part in the CRY Heart of London Bridges Walk 2016 and raised £100.

Reece Goodman

Helen Ditchfield took part in the Virgin Money London Marathon 2016 and raised £2,220.27.

In Memory of

Ashley Goodwin

Linda and Geoff Goodwin sent in a total of £524: £88.90 raised through an afternoon tea; £385.10 raised through car boot sales; and further donations of £50.

www.c-r-y.org.uk

In Memory of

Matthew Hadfield

Team Matt; Diana Hunt, Andy Hunt, Marc Hadfield, Francesca Hadfield, Angie Hadfield, John Hadfield, Louisa Hadfield, Eraldo D’Atri, Dan Watts-Read, Criona Sproson, James Hogan, Amanda Hogan, Maja Naskret, Nick Holman, William Arkell, Julia Arkell, Laura Arkell and James Arkell, took part in the CRY Heart of London Bridges Walk 2016 and raised £355.

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Our Fundraisers In Memory of

Graeme Hall

Jean Hall sent in £229 on behalf of Allied Timber and £1,000 on behalf of Blackrock, making a total raised of £1,229.

In Memory of

Shamil Hamid

The Kuwait English School sent in a total of £1,620.

In Memory of

Alexander Hampshire

• Antonin Machacek sent in a donation of £200. • Jim and Liz Machacek sent in a donation of £100.

Lemons v Eggers II Cricket Match; and £500 from a tombola: “Alison Schofield, owner of The Salon which offers hair and beauty treatments in Heywood, held a raffle for a homemade Christmas cake and raised £130.” “The third annual cricket match was arranged by Olivia, winner of the Christmas cake the Heywood CC Patio Supporters and family/ friends in memory of Tom Hardman and Trevor Jones. The event took place on the August bank holiday at Heywood CC in front of a sizeable crowd who came out to show their love and support for both Trevor and Tom as well as giving generously to the charity CRY. The day consisted of a barbecue, refreshments, tombola, raffle, glitter tattoos and games for the children.

• Hayley Waters raised £960 through celebrations for Mary Morgan’s 60th birthday. • Chloe Flint took part in the Virgin Money London Marathon 2016 and raised £2,050. • Adam Steel took part in the Virgin Money London Marathon 2016 and raised £1,881.99.

In Memory of

Mark Hancock

• Angela Hancock sent in £641.15 raised through a Christmas craft event. • Tracey Gidman took part in the Chester Half Marathon and raised £189.43.

“Tom’s sporting passion was cricket. He started playing at Heywood CC from the age of 8 and went on to play for a number of other clubs including Clitheroe, Longton and Middleton. Tom was selected to play for the Lancashire Academy and second team. Trevor was a fantastic character and keen supporter of cricket, spending many hours down at Heywood CC chatting and exchanging friendly banter with everyone that passed his way.

• Anne Barber and her friends raised £218.50 through a coffee morning.

In Memory of

Thomas Hardman and Trevor Jones

Richard and Margaret Hardman sent in £2,030: £130 from a raffle for a Christmas cake; £1,400 from the third annual Tommy’s

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Tommy’s Lemons and Eggers II presentation to Scott, Tom’s brother

Issue 70 | May to August 2016


Our Fundraisers “In 2013 the game went down to the last over and saw the Lemons, captained by Tom’s brother Scott, take the first series despite the tremendous efforts of Eggers II, captained by Daz. In 2014 Eggers II levelled the series so going into the third series it was all even. As always the game was played in an excellent spirit with both teams competing fiercely (with fun, laughter and lots of banter) to regain the trophy. A thrilling match saw the game again go down to the last over and had spectators on the edges of their seats – and with two balls left Scott hit the winning runs making the series 2-1 to the Lemons. Another wonderful day raising lots of money for CRY and no doubt Eggers II will be looking for revenge in 2016.”

In Memory of

Rachel Heather and Frank Cousins

Ann Heather sent in £500 in memory of her father, Rachel’s grandfather, Frank:

• Joanne Singleton sent in £100 raised through Penny Murphy’s spring makeover. • The CRY Babies raised £2,252.60 through a premarathon collection, treadmill and cake stall, and sponsorship for the Brathay Windermere Marathon/Blackpool Marathon. “We, the CRY Babies, had a successful cake sale and collection on Saturday and raised over £1,200 for CRY. We were blessed with the weather outside our local booths in Garstang, near Preston.” Clare Fox.

“In September 2015 I lost my dad, he was 93. He was a great support to me when I lost my only child Rachel Elizabeth Heather (4 October 2009), she was just 17 and died of SADS. For all of us it has been a struggle to lose an important person in our family and now my dad, who gave me the strength and courage to carry on. In his memory and because he adored Rachel and was just as shocked as we were, I would like to donate £500. I know he would have liked it to go to CRY for the help they have given us since the death of Rachel.”

In Memory of

Benjamin Herriott

William Hill sent in £210 matched giving in respect of Mark Mitchell taking part in the Manchester 10K.

In Memory of

Matthew Hesmondhalgh

• Paula Hesmondhalgh sent in £2,642.40: £315 from a stall held in Garstang Town Centre; £120 from a textile recycling scheme; £175 raised through a “Hearts and Huggies” tombola and toy sale; a raising awareness day at Owd Nell’s Cider Festival raised £826; an afternoon stroll event in the Barnacre countryside raised £206.40; and Infocus, Great Eccleston, donated £1,000.

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Our Fundraisers In Memory of

Robert Heyes

• AQA Education sent in a donation of £493.88.

• Tony, Joan and Matthew Hillier took part in the CRY Heart of London Bridges Walk 2016 and raised £100.

In Memory of

Charlie Holden

• Davina Hester at AQA Business Solutions Group sent in £300 raised through the “Chill and Chat” event, including a cake sale and raffle:

• Bridgewater High School raised £2,483.11 from their Heart Week fundraiser. • Claire Crawford took part in the Manchester 10K and raised £1,020.

In Memory of “Rob and some of his friends taken at the BSG Team Day in April 2015”

“To mark the first anniversary of Rob’s passing, colleagues in BSG contributed to the creation of three magnificent chocolate hampers which we then raffled. We then got together for a ‘chill and chat’ where we bought cakes and made donations to CRY. On the day we successfully raised £300.”

Paris Holden

Jennifer Drury took part in the Virgin Money London Marathon 2016 and raised £2,457.20.

In Memory of

Nicholas Holland

• Gemma Holland sent in £1,000 received in lieu of gifts by Nicholas’s great aunt and uncle, Betty and Neil Hamilton, who held a party for their golden wedding anniversary, and £80 raised through the Grace Bear Campaign, making a total raised of £1,080. • Emma Holland took part in the Virgin Money London Marathon 2016 and raised £3,031.

In Memory of

In Memory of

• Simon Thorn sent in £345 raised through a collection taken at the wedding of Drs Andy and Sophia Cashman at Winchester College Chapel.

Holly Higgs took part in the Newcastle Stampede event and raised £1,032.

Ralph Edward Hicks

• Dr Robert Gay sent in a donation of £100.

Nick Holmes

In Memory of

Jonathan Hooper

In Memory of

Laura Hillier

Diane and Peter Hooper sent in a donation of £165 in respect of the CRY Heart of London Bridges Walk 2016.

• Tony and Joan Hillier sent in a total of £258 raised at a screening event.

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Issue 70 | May to August 2016


Our Fundraisers In Memory of

Stewart Howard

• Jane Howard held an Easter car boot sale and raised £1,410, including a £200 donation from Carls Burger. • Terrie and Ricardo Madden sent in a donation of £100.

“Dad decided that instead of receiving gifts for his birthday he wanted everyone to make a donation to his chosen charity. He decided that CRY should be the recipient of our donations because they do such wonderful work in helping to diagnose undetected heart conditions in young people. Dad enjoyed his birthday celebrations immensely.”

In Memory of In Memory of

Gwnyfor Howells

Teg Unwin sent in £1,010 received in lieu of gifts at her dad Ronnie Howells’ 90th birthday celebrations:

Alex Hubbard

Sam Barnes took part in the ABP Southampton Half Marathon and raised £350.

In Memory of

Stuart Hudson

Chris Avery took part in the Virgin Money London Marathon 2016 and raised £9,460.60.

In Memory of

Daniel Hughes

“Dad presenting a cheque to Gwenfair Mason. Mum (Mair) and I are also in the photo. The second photo is of my dear brother Gwynfor (in his fire brigade uniform).”

“As my dad Ronnie Howells was nearing his 90th birthday our family decided that we should have a special ‘do’ so that all his family and friends could get together and celebrate this momentous occasion. Ronnie has been the backbone of our family since his marriage to Mair in 1948. They have 9 children, 28 grandchildren and 20 great-grandchildren. A huge achievement. He has been a loving and caring husband and father and worked all his life until retirement for British Rail as a train driver. He has been and still is the life and soul of all our get-togethers. “On 18 May 2010 our family was struck by tragedy as my brother Gwynfor died suddenly of a heart attack whilst out jogging with his wife. Our close knit family were devastated. Within a year dad suffered a heart attack and needed surgery which thankfully was a success. However in 2012 a male cousin also died of a sudden heart attack.

www.c-r-y.org.uk

• Mick Tuckwood sent a cheque for £3,500 on behalf of Unite, Rolls-Royce (Nuclear Power) Branch. • David Hughes sent in a total of £1,384.85, including: £200 from Mr A Toft and Mrs C Wheat; £10 from the Asda Foundation; and £644.85 raised by Ravensmead Primary School Council. • Mark Batlam sent in a total of £120.

In Memory of

Andrew Hunt

Theo Matthews Padley sent in £166 raised through collecting spare coins.

In Memory of

Emma Hurlbut

• Team Emma; Paula Hurlbut, Jonathan Hurlbut, John Kilroe and Jennifer Peskett, took part in the CRY Heart of London Bridges Walk 2016 and raised £100.

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Our Fundraisers • Paula Hurlbut took part in a fire-walking challenge and raised £105.

In Memory of

Christopher and Isabel Hynd

• Andrew Hynd sent donations of £1,000 received in lieu of floral tributes for Isabel. • Rosemary Gardiner and Carmel Gray walked the West Highland Way and raised £740.15.

In Memory of

John Ibbotson

Sue Ibottson organised the “Fish and Hits” night and raised £1,000.

In Memory of

Charlie Ibrahimi

• Cathy Ibrahimi sent in screening donations of £155. • Kate Fennell took part in the Virgin Money London Marathon 2016 and raised £2,791.40.

In Memory of

Camilla Irvine

• Melanie Edmenson School of Dance raised £280 through their Born to Boogie show. • Joy Rixon took part in the Yorkshire Three Peaks challenge and raised £370. • Sophie Osborne took part in the Virgin Money London Marathon 2016 and raised £2,946.80.

In Memory of

Caradoc James

• Maureen Ward sent in screening donations of £517.65.

In Memory of

Reece Jeffrey

• Robyn Jeffrey sent in a donation of £530. • Mr WG and Mrs JH Jeffrey sent in a donation of £100. • Lisa Jeffrey took part in various fundraising activites and raised £4,443.61. • Guy Clark gave up alcohol for 55 days and raised £1,571.50.

In Memory of

Lucy Adena Jessop

• Tracey Jessop-Thompson sent in £137.07: £105 raised at a pamper day held by Amanda Griffiths; and £32.07 from a collection box at Market Street Eats. • The Deepings School in Peterborough held a sixth form students and staff charity football match and raised £307.44. • The Deepings School held a non-uniform day and raised £627.

In Memory of

Paul Jevon

Jamie Caswell sent in £1,200 raised through the fourth Paul Jevon Golf Day including a raffle, auction and a disco.

In Memory of

Stevie Jivani

• Maureen Jivani sent in a total of £305 raised in respect of Darran and Jemma Jenning’s wedding. • Melissa Loan took part in the Virgin Money London Marathon 2016 and raised £2,078.40. • Alexander Rawlings sent in a donation of £200.

• Martyn Williams at Saundersfoot NYDS sent in a donation of £125.

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Issue 70 | May to August 2016


Our Fundraisers In Memory of

In Memory of

Rebecca Newman took part in the Virgin Money London Marathon 2016 and raised £1,939.20.

John Konderak took part in the Virgin Money London Marathon 2016 and raised £2,695.

Caroline Johnstone

In Memory of

Ethan Jones

• Keith Jones sent in a total of £465 raised through talks: All Saints Open Women’s Group Kenley, £25; Dorking Ranmore WI, £40; NWR, £40; Mr J Royal, £50; Emmanuel United Reformed Church Women’s Fellowship, £40; Dartford Parkinson’s Support Group, £30; Beckenham Trefoil Guild, £40; Mrs E Harper £100; Chipstead Evening Women’s Institute, £50; Heston Friday Group, £30; and Rotary Club of Bexley, £100. • Richard Norval sent in £7,646 raised through the Cobham Book Club taking part in the Three Peaks Challenge.

In Memory of

Stephen Joyce

Linda Joyce sent in £183 raised through a memorial cricket match played by Sarisbury Athletic Cricket Club and by Stephen’s friends for his 11th year anniversary.

In Memory of

Rishi Kukar

• Parvin Kukar sent in a donation of £250. • Team Rishi; Parvin Kukar, Suman Kukar, Sanjay Kukar and Ravinder Randhawa, took part in the CRY Heart of London Bridges Walk 2016 and raised £431.

In Memory of

Jack Ladley

• Kate Downing sent in donation of £3,908 raised at a dinner and dance. • Georgina Ladley took part in the Santa Dash 5K and raised £225.

In Memory of

Jannik Lam

In Memory of

Joe Kellogg

• Stephen Cook sent in £961.48 raised by Ilkeston Fire Station by completing a charity fire engine pull. • Sharon and Neil Kellogg sent in a total of £1,377: £676 from a darts competition organised by Thom; £501 from a general knowledge quiz organised by Leah; and £200 from Spondon Cricket Club.

In Memory of

Jennifer Kerwood

• Linda Reynolds held a coffee morning in lieu of a party for her 50th birthday celebrations and raised £100. • Ross Kerwood took part in the Virgin Money London Marathon 2016 and raised £5,131.14.

www.c-r-y.org.uk

Sophie Konderak

Team Jannik Lam; Birte Harlev-Lam, Mun Seng Lam, Casper Lam, Katie Harvey-Lam, Joanne Harvey, Bethany Jo Harvey, Mick Harvey, Sarah Denholm, Ellen Hindley, Mary Sanders, Allen Talbot, Rebecca Salvatierra, Henry Salvatierra, Yasmin Salvatierra, Cameron Salvatierra, Ruby Dispain, Ellie Nutkins, Jane Talbot, Malcolm Talbot, Elizabeth Talbot, Susan Higginbotham, Apollon Leontas, Nora Lucey, Michelle Kukielka, Richard Kukielka, Jennifer Woods, Eva Woods, Emily Mills, Rona McCandlish, Duncan Woods, James Lyons, Charlie Allen and Catherine Rogers, took part in the CRY Heart of London Bridges Walk 2016 and raised £1,225.

In Memory of

Rob Lamplough

James Lawson took part in the Virgin Money London Marathon 2016 and raised £3,290.

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Our Fundraisers In Memory of

In Memory of

• Wallace Allan sent in £1,060.40 on behalf on SGN raised through a social/sporting event and raffle.

Ryan Purtill at Vaultex UK Ltd sent in £690 raised by staff at their Washington site through a “make a difference month”.

Andrew Lancastle

• WSP UK sent in a donation of £150.

In Memory of

Michael Land

• Ruth Cain took part in a triathlon challenge and raised £570. • Paul Stainer took part in a fun run and raised £600. • Val Parkin at Deep Sea Electronics sent in a donation of £250. • Allen Haywood and Ruth Cain arranged a football tournament and fun day at the A1 Football Factory and raised £1,145.

Robby Lebita

In Memory of

Kris Ledgard

Deanna Bailey took part in the Virgin Money London Marathon 2016 and raised £1,752.20.

In Memory of

Huw Lewis

“CAMbridgesCREW”; Sarah Lewis, Molly Lewis, Bethan Lewis, Helen Holcombe, Connie Wykes, Elsa Aybak, Vikki Riddelsdell and Lucie Garner, took part in the CRY Heart of London Bridges Walk 2016 and raised £292.40.

In Memory of

John-Paul Lipscomb-Stevens

“The winner of the five-a-side football tournament was Team Logic who also won the Michael Land Memorial Plate last year, 2015. Other fundraising activities included a raffle, lucky dip, face painting and a ‘whiskey roll’. The A1 Football Factory are to host a screening day on Sunday 8 January 2017 and hopefully the next fundraising effort could support the need to purchase a defibrillator for the venue.” Allen Haywood.

Vicki Lipscomb-Stevens sent in a total of £408.60: an annual fundraising hockey tournament, match fees and a BBQ raised £304.60; and Vicki and JP’s daughters collected £104.

In Memory of

David and Roy Livesey

Rae Livesey sent donations of £139.09 received in lieu of floral tributes for her husband, Roy.

In Memory of

Jamie Loncaster

• Jane Booth sent in £100 from North Ferriby Ladies’ Group. • Graham Loncaster sent in £113.26 raised by Pippa Rothery and Nikki Morford.

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Issue 70 | May to August 2016


Our Fundraisers • Daniel Toffolo sent in a total of £100. • Phil Foster sent in £500 raised through the Ugly Ducklings taking part in a coast to coast cycle ride. • Claire, Ruth, Lisa, Nicola and Sam took part in the Total Warrior Challenge and raised £623.50. • Trevor Green sent in £1,232 raised through the Ugly Ducklings taking part in a coast-to-coast cycle ride and Jamie’s Total Warriors taking part in the Total Warrior Challenge. “10 cyclists prepared to pit themselves against 160 miles of hilly terrain from the west coast of the UK, whatever weather got thrown at them in two days, and whatever challenges lay ahead. They returned back to the local village of Swanland on the east coast for a celebratory BBQ. This is a tale of fun, friendship, injury, Garmin’s GPS and a determination to find their way home…

getting some special medals made to mark the occasion with Jamie’s logo on and surprised us all as Graham and Jenny handed them out to us. “Graham, Jenny and Ross and above all Jamie have been our inspiration throughout this journey, not just the weekend ride and we hope we have maybe inspired other parents/children and anyone else to do something they love and do it for a worthy cause. It was another very emotional moment as we were all called up to the front to present Graham and Ross with their own ‘Ugly Ducklings’ cycle shirts and Jenny with some personalised Jamie logo coasters and place mats.

“…We rolled around the corner into Main Street with our support escort Trevor Green at the front and Daverio Matteucci at the back sounding the horns. Turning that corner and seeing everyone outside waiting for our return was an overwhelming sight and very emotional and moving for us as team. I don’t think any of us had dry eyes at that moment. It was a great shame that injured rider Justin was not there to share that moment with us (however he did himself proud and was an awesome MC/ raffle-crier/auctioneer and compère on the evening). “We were tired, hot and sweaty (with some of us bruised and battered), this was no longer just a simple bike ride, but a symbol of unity from our village and at that moment it seemed so much more than we had imagined, it was something for us all to be proud of. We dipped our wheels in the pond to signify the last act of the ride, and were met by Graham, Jenny and our families. Bailey had organised

“Not forgetting another team was on their way back from the Total Warrior in Leeds, and also raising money and awareness for the same cause. Ruth and her band of Warriors came in later after getting cleaned up – they put themselves through pain, electrocution, mud, and more of the same. “All in all we had a fantastic and meaningful weekend with a great bunch of people, topped off in style with a raffle and auction to raise more money, even the sun blessed us with its presence. I would just like to thank everyone who has sponsored, donated money or prizes, or time to help us achieve this massive amount of money, and to everyone who showed their support on the day and along the way.” “Jamie’s Ugly Ducklings are: Rich Foster, Phil Green, Phil Garrod, Ian Suddaby, Mark Billam, Greg Robinson, Paolo Matteucci, James Haeney, Ash Kotwal, Justin Fielder,

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Our Fundraisers Mother Hen Trevor Green, Mother Hen Daverio Matteucci. Jamie’s Total Warriors are: Ruth Ciuffetelli, Lisa Marie Bursell, Claire Milner, Sam Stathers, Nicola Johnston.” Rich Foster. For the full write-up visit www.c-r-y.org.uk/10-cyclistspit-themselves-against-160-miles-in-memory-of-jamieloncaster • Graham, Jenny and Ross sent in a total of £500 donated at their recent two-day screening event. • Sally Patrick took part in the Asda Hull 10K and raised £182. • Graham Loncaster sent in £975 on behalf of Trevor Barningham and the Rotary Club of Humberside. “It is the tradition within the Rotary Club of Humberside that the incoming president identifies a charity for their year in office. At the time I was considering this topic, we learnt of the sudden and tragic death of Jamie... he lived quite close to our house in the village of Swanland. This news was devastating, not only for his family but the whole community. “CRY came to my attention. On researching I discovered some really telling statistics of the number of young people across the country who died each week through undetected heart conditions. I also found that in the East Riding of Yorkshire a number of young people were identified in these facts. My decision was made and reinforced when learning that Jamie’s parents had established a memorial fund in his name and that all the locally raised funding would be directed to provide screening sessions for East Yorkshire young people. Their actions complemented similar work undertaken by a family in Hornsea.

“The activities which helped to achieve my aim included: a bucket collection at North Ferriby Gardeners’ Club ‘weighin’ of a potato challenge; proceeds from a Yorkshirethemed dinner and entertainment; a local restauranteur who collects 5ps from Rotarians for her charities, gave back the equivalent collected by Rotarians in a donation; proceeds from a charity luncheon with guest speaker Andrew Percy, MP for Brigg and Goole; shared proceeds from an am-am golf day; personal donations from my community who were unable to participate in the above events. Even after my presidency year has concluded, I will continue giving my support to this cause as I believe in the principles of CRY and the work planned at local level.” Trevor Barningham, Immediate Past President, Rotary Club of Humberside. • Paul Scott took part in the Virgin Money London Marathon 2016 and raised £2,208.60. • Jane Scott at Saltend Cogeneration Company sent in £500.

In Memory of

James Lovatt

• Daniel Paton sent in £1,023.10 through the “Night with Jay”: “Firstly the night was very successful and plenty of people turned up. From ticket sales and a raffle on the night we raised £1,023.10.”

“My challenge was to plan and deliver a campaign throughout my network during my presidency year – July 2015 to June 2016 – to raise the profile of CRY; inform my community with messages about the nature of these undetected heart conditions; the local action; screening events; and how others could engage. • Keith Byrne sent in a donation of £100.

In Memory of

Tom Lovatt

• Grappenhall Heys Community Primary School sent in £110 donated by parents to take part in the parents’ race at their sports day.

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Issue 70 | May to August 2016


Our Fundraisers • Grappenhall Heys Community Primary School raised £379 through their Key Stage 2 “What a Knight” production.

In Memory of

James Love-Smith

Katrina Gatty took part in the Virgin Money London Marathon 2016 and raised £1,947.

sadly passed away from a heart condition known as dilated cardiomyopathy, he was only 23. My dad, Clifford Luty, was contacted by Alison Cox, the founder of CRY, and offered him and our family support at a very difficult time and for that we will be forever grateful. CRY is such a worthwhile cause. “In memory of Sean, I have been collecting donations at my place of work by way of CRY collection pots on the till points. Thank you to all my friends, family and colleagues and thank you to all the customers at Tesco Express on Otley Road, Baildon, West Yorkshire, for all their kind donations of £188.54 so far, and still collecting.” Tania Hardy.

In Memory of

Martyn Luckett

• Lakota Hardwick took part in the Cardiff Half Marathon and raised £260. • Bideford Round Table sent in a donation of £500. • Anna Buck took part in the Virgin Money London Marathon 2016 and raised £2,378.89.

In Memory of

Alan Lumley

• Ian and Lynn Scanlan attended the Rainmaker Awards organised by Catherine Godsland at Out There Events and sent in £2,020. • Nicky Harris sent donations of £395 received in lieu of floral tributes for Alan.

In Memory of

Aaron Lundy

In Memory of

Margaret MacKay

Shelley Savasi sent donations of £170 received in lieu of floral tributes for Margaret.

In Memory of

Andrew Macleod

Murdo Macleod sent in a total of £724.41: the Rotary Club of Stornoway donated £703; and Patricia Macrae donated £21.41 from her retirement collection: “The sum of £703 is from the account of the Rotary Club of Stornoway following a presentation from the Nicolson Institute Interact Club, who supported four local charities (MND, RNLI, CRY and The Gambia Partnership), with their worthy fundraising activities. “The photo was taken by the Stornoway Gazette reporter Eilidh Whiteford, and appeared in the local press. It shows the Nicolson Interact group, with their President Miss Amy McClements handing over the cheque to myself,

Garry McGrotty sent in a total of £6,950 raised through various donations.

In Memory of

Sean Luty

Vicky and Tania raised £188.54 through collection pots at Tesco Express, Baildon. “On 29 July 1991 my brother Sean Luty

www.c-r-y.org.uk

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Our Fundraisers accompanied by Mr Iain N Campbell, one of Andrew’s closest friends and part of our small local CRY group.

In Memory of

“A cash donation of £21.41 was handed to me by work colleagues from within the Education Department. It was surplus money unspent from a retirement collection, so they kindly donated it to AMMF/CRY.”

• Withycombe Rugby Football Club held an end-of-season awards dinner and raised £140.

Oliver Marsden

• Kevin Marsden sent in £800 raised at a memorial match.

In Memory of

Jack Maddams

• James McBride took part in the Virgin Money London Marathon 2016 and raised £2,864. • Hannah Tickner took part in the Virgin Money London Marathon 2016 and raised £2,157.

In Memory of

Jack Maddams and Junior Dian

• Roger Maddams sent in a donation of £1,003.78. • Bev Clark sent in a donation of £100.

Lewis Marsh

• Julie Smith sent in £400 raised by the members of East Berkshire Golf Club. • Gill Weston sent in screening donations of £385. • Chevaun Greenhill took part in the Virgin Money London Marathon 2016 and raised £3,423.

In Memory of

John Marshall

• Maureen Marshall sent in £500 from The Balancing Borselino Brothers. • Mark Ryan sent in a donation of £200.

In Memory of

Peter Manlove

Thomas Davie took part in the Virgin Money London Marathon 2016 and raised £1,971.

In Memory of

Balinder Mann

Team “Binny”; Hardip Mann, Paige Mann, Jarinder Mann, Narinder Mann, Jaskiern Mann, Tanisha Mann, Harbinder Mann, Karmajit Mann, Pavendeep Mann, Lavina Mann, Calvin Mann, Balbinder Chutti, Paneil Chutti, Hardeep Chutti, Dhurham Gill, Kulbir Gill, Harvey Gill, Piv Gill, Prithi Birk Gill, Sandeep Gill, Indy Gill, Minn Gill, Kulbir Gill, Kelly Rawhanda, Gurdi Lali, Pam Lali, Suk Johal, Sandeep Johal, Rav Mehat, Amarjit Mehat, Mohinder Kaur, Hardeep Gill, Jas Gill, Ruth Thompson, Peter Thompson and Chloe Thompson, took part in the CRY Heart of London Bridges Walk 2016 and raised £1,665.

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In Memory of

• Maureen Marshall sent in a total of £525: collection boxes at Edge Hill University raised £250; Carol’s Slimming World Group raised £75; the David Hiham Shop raised £60; and Maricourt High School raised £140. • Michael Vella sent in £1,180 raised at a recent charity event.

In Memory of

Dean Mason

• Gwenfair Mason sent in £500 on behalf of South West Tractor Pullers’ Association. • Narberth & Whitland Round Table organised a fireworks display and raised £600. • Gwenfair Mason sent in screening donations of £282.24.

Issue 70 | May to August 2016


Our Fundraisers • Euro Auctions sent in £1,250 raised through the sale of Gwenfair and Alun Mason’s cherished number plate. • Portreeve, Laugharne Corporation, sent in a donation of £1,000. • Ffion Evans and fellow pupils at Dyffryn Taf School sent in £1,000 raised during their fundraising week.

In Memory of

Dan Mathews

Daniel Holloway took part in the Virgin Money London Marathon 2016 and raised £1,909.59.

In Memory of

Dan Matthews

Shaun Gluyas sent in £530.84 raised by the football students at Hartpury College. “Second-year BTEC football students have been raising money for CRY in memory of former Hartpury extendeddiploma-in-football student Dan Matthews, who died in 2009. In the most successful year for this fundraising drive to date, the students raised more than £500. “They organised six activities throughout May, including a cricket match, FIFA tournament, six-a-side event, golf competition and a ‘Wembley doubles’ match with teams of two going head-to-head in a knockout competition. The big finale to round off the fundraising was the muchanticipated first year versus second year football match. The second-years managed to secure victory, topping off six years of fundraising in memory of Dan.

variety of events with very little support needed from staff. They have raised the highest amount since we started this annual fundraiser and they all feel really pleased to have raised so much money for such an important charity helping young people, especially as it is honour of one of our former students. It’s also a great way for them to gain insight and experience in events management and organisation that will stand them in good stead for their future careers. “Earlier in the year, Hartpury also hosted a charity match where a Hartpury Legends team took on current students, also in aid of CRY, as some of Hartpury’s former footballing talents gave their time to raise funds for the charity and entertain the crowds!”

In Memory of

Pete McAvoy

• The Rotary Club of Perth sent in a donation of £250. • Peter McAvoy sent in a total of £1,774.39: £783.29 from Perth Grammar School; £780 raised at an auction; £20 from David McPhee; and £191.10 from Notley Youths FC.

In Memory of

John McCall

Garry McGrotty sent in a total of £1,665 raised at the April screenings at Royal School, Armagh.

In Memory of

Áine McCann

• The Magheracross Parish Church in Enniskillen sent in £300. • Aravon McCann took part in the Virgin Money London Marathon 2016 and raised £6,248.62. “The fundraising events also support the students’ course module, ‘Organising Events’. Tasked with planning and running events and raising money for charity, the students were able to gain valuable practical, hands-on experience and raise £531. Tutor for BTEC Football, Shaun Gluyas, said: “The students did an excellent job of organising a

www.c-r-y.org.uk

In Memory of

Caitlin McCart

David Goodfellow sent in £170 raised at a memorial tournament at Uddingston Hockey Club.

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Our Fundraisers In Memory of

Amanda McCarthy

The McCarthy Clan; Peter McCarthy, Jordan McCarthy, Karen McCarthy, James McCarthy, Kerry McCarthy, Michael McCarthy, Joan McCarthy, Evelyn Kalmar, Dave Bentley, Pete Cleary, Michelle Hampson, June Finlay-Brogan and Paul Finlay-Brogan, took part in the CRY Heart of London Bridges Walk 2016 and raised £362.

In Memory of

Nick McCool

Garry Turner and Mark Snowden took part in the Survival of the Fittest event and sent in a total of £300. “Just over 10 years ago we lost one of our best mates because of cardiac failure when he was only 20. He was the fittest person we knew, never drank or smoked and played football to a decent level (Accrington Stanley) and it still affected him, so we ran in his memory. Anyway, a couple of months ago I started training, this being the result of an embarrassing jeans-splitting incident when getting into my car! I got myself into a half-decent shape (given the short amount of time I’d given myself) in preparation. “The event itself I found tough. It was challenging and we weren’t treating it like a stroll in the park, we wanted to go out and run it as fast as we can while doing all the obstacles – unfortunately a year of not training previous to me starting caught up with me at about 6½–7K in when my legs felt like two blocks of lead! It was, however, a lot of fun and we will be doing it again next year, and it has led to quite a bit of weight loss (and no more ripped jeans!). That’s all there is really, I don’t really have a detailed account of the race as I was knackered a lot of the time! I do have cut-up knees and shins for my troubles. And I am aching all over. All in the name of a good cause though!” Garry Turner.

In Memory of

Tony McCormack

Richard Caldwell took part in the Virgin Money London Marathon 2016 and raised £3,218.50.

In Memory of

Ian McDonald

Team “CRY for Ian”; Sue Wenman, Emma Jones, Brian Nicholls, Pat Taylor, Simon Taylor, Liam Jones, Aimee Jones, Kaylie Jones and Analiese Taylor, took part in the CRY Heart of London Bridges Walk 2016 and raised £325.

In Memory of

Greg McFarlane

• Lindy McFarlane took part in the Dunfermline Half Marathon and raised £955. • Ashok Shishodia took part in the Munro Challenge and raised £548.

In Memory of

Gareth McGeoghegan

United Utilities Group sent in £149 matched giving in respect of fundraising by Joanne Thornton.

In Memory of

Paul McGlynn

Patsy Gilthorpe from the Fusion Group sent in a total of £250.

In Memory of

James McGowan

• Peter Bagley sent in £300 in sponsorship of Ellery McGowan’s swim marathons. “I completed my first of five swims for “Five Swims in Five Countries for a Five Star Son” in Dorset. The weather was better than forecast with the sea temperature 13–14 degrees. As I was an award winner

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Issue 70 | May to August 2016


Our Fundraisers • Volker Schultz sent in £150 in sponsorship of Ellery’s 56km swim challenge. • David Kane sent in a donation of £100. • Irene Keel sent in a donation of £100.

In Memory of

John McHugh

(the oldest lady in the 3.8km) I was able to say a bit about CRY and James and I had the banner in a nice position on the beach. Normally I would be a little anxious before a swim of this kind but not this time as I was looking forward to it, put my head down and swam. I came 128th out of 151 swimmers so was quite pleased. “The support I had from people who wished me luck in the next swims, who admired what I was doing for James and making people aware of CRY was phenomenal and overwhelming. One man on the beach pushed a £5 note in my hand for the charity – very touching.

Ronan O’Byrne took part in the Virgin Money London Marathon 2016 and raised £2,653.18.

In Memory of

Stephanie McLean

• Lesley McLean sent in £425 representing donations received in lieu of gifts for her retirement. • Team “Lenstore”; Olga Nuryaeva, Mitesh Patel, Alex Matthews, Nasreen Kadir, Vivian Truong, Peter Mehtar, Tom Garnell and Jon Davies, took part in the CRY Heart of London Bridges Walk 2016 and raised £605.

In Memory of

Graeme McMillan

Fiona McMillan sent in £700 collected in memory of Graeme. “Saturday 9 July, Loch Allua, Ireland. I arrived in Ireland late on July 8 to a cold, grey and wet Kinsale. The next morning was no better as I did an acclimatisation swim in Sandy Cove with the water just 11 degrees. From there we drove west to Inchigeelah for the 7–8km swim to register, in the rain! “The swim started at 3:15 from Ballingeary and at the start I was able to get a couple of photos as the sun briefly shone – I think James was looking down on us. The first two kilometres were great and the water was around 14 degrees so reasonably pleasant. After passing the first buoy, the wind picked up and the rain came down but I ploughed on, taking a gel after the first hour for fuel and again at two hours. The last kilometre was down the river end, back to Inchigeelah, and was pleasant with cows grazing at the side and the river flowing reasonably fast to assist. Also the weather had cleared and we just had grey skies.” Ellery McGowan.

www.c-r-y.org.uk

In Memory of

Josh Merrick

• Urban Angels Hair Salon sent in £105 raised through a collection box. • Carmel Merrick took part in the Wilmslow Half Marathon and raised £185.

In Memory of

Richard Merriman

• The Ashridge Staff Social Activities Club sent in £750 raised through various fundraising activities.

63


Our Fundraisers • Lynne Merriman took part in the Chester Half Marathon and raised £430. • Lorraine Percival at Expoteam Display Contract sent in £200. • Nicola Merriman sent in £703 raised by selling cakes and raffle tickets at the JFK School heart screening and a further £450 raised through an afternoon tea and raffle, making a total raised of £1,153. • Michaela Stratford and Phil Roethenbaugh took part in the Virgin Money London Marathon 2016 and raised £1,624. • Nicola and Russell Merriman took part in the Ridgeway Walk and sent in a total of £3,093.97. “Our Ridgeway Walk was a big success again, it’s our second year doing this for CRY in our son Richard’s memory. We all had a great day and finished off with a lovely BBQ at Brownlow’s Cafe at Ashridge Monument. Thank you so much Ian and Jensigne for doing this for us, not letting us pay a thing.

“I wouldn’t have been able to do this without all the love and support of my family and friends, thank you. A special thanks to Nicky Sanders for helping me organise our fab walk, you’re amazing! The money we have raised will enable us to have another heart screening event next year

to help us save other lives in Richard’s memory.” Nicola and Paul.

In Memory of

Joseph Merritt

• Catherine Kearney sent in a donation of £120. • Teams “Joseph Merritt’s A Walk”, “Kearney Family” and “The Bear Church”; Carole Tennant, Elizabeth Merritt, David Merritt, Jamie Tennant, Daisy Tennant, Helen Merritt, Kirill Patel, Jon Davies, Bex Keer, Keziah Yeardley, Layton Thompson, Ezra Odigie, Anne McBride, Simon McBride, Tom McBride, Jonathan McBride, Isabella Vanni, Joy Sellar, Judith Allpress, Mary Fudge, Dean Fudge, Catherine Kearney, Jonathan Kearney, Joshua Kearney, Joel Kearney, Benjamin Kearney, Sally Bell, Richard Bell, Rebekah Bell, Rosemary Vanni, Giorgio Vanni, Emily Adlington, Keir Adlington, Gracie Adlington, Evan Adlington, Tracy Jones, Ada Jones, Eva Jones, James Howlett, Rachel Veldtman, Darryl Veldtman, Talia Veldtman, Joel Veldtman, Paul Chapman, Tessa Chapman, Noah Chapman, Elliot Chapman, Christopher Ho, Emily Elliott, Luka Elliott, Michael Wheeler, Eliza Fudge, Rosanna Gain, Adam Gain, Holly Jones, Daniel Alston, Minen Alston, Tom Alston, Nana Atuah, Kori Hutchinson, Solomon Hutchinson, Felix Hutchinson, Ben Nyuran, Holly Nyuran and Katy Nyuran, took part in the CRY Heart of London Bridges Walk 2016 and raised £3,311.77.

In Memory of

John Millar

Kirsty Millar sent in £170 raised through collection boxes.

In Memory of

Pat Miller

Carolyn Peck sent donations of £100 received in lieu of floral tributes for Pat.

In Memory of

Phil Modric

Shaun Gurney took part in the Virgin Money London Marathon 2016 and raised £3,168.

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Issue 70 | May to August 2016


Our Fundraisers In Memory of

Florence Moore

Louise Ableman sent in £160 raised through Banstead Piano Studio and Wilson’s students performing a recital: “Banstead Piano Studio and Wilson’s School students performed a recital on Sunday 26 June in memory of Florence Moore. Students were aged between 5 and 17, some having only started piano lessons this year. The students are all taught by myself and performed a range of music from classical to jazz and contemporary. They all performed really well and we’re proud to have raised some money for CRY.”

In Memory of

David Moss

Dawn Moss sent in £1,344.85: H B Clews raised £105; Talbot Inn raised £150; High Spirits shop raised £80.48; Biddulph Festival raised £261.77; Biddulph High School raised £163.08; and the Peterborough Truckfest raised £584.52:

“We were invited by Barry Proctor Services who kindly donated much sought after HGV models for our raffle prizes. The lovely ladies in the photographs are all friends and through good banter helped to raise £600. We are most grateful to all involved.”

In Memory of

George Morgan

Melanie Barlow sent in a donation of £1,300.

In Memory of

Jonathan Morgan

Sue Ainsworth sent in £300 from the Freemasons Lodge.

In Memory of In Memory of

Owen Morris

• Judith Miller sent in a total of £3,050: £1,800 from a quiz night; £250 from Mark and Pam Stacey; and £1,000 raised through a cake sale. • Rhian and Cathryn Williams organised a music gig and raised £660. • Lucy Williams took part in the Virgin Money London Marathon 2016 and raised £1,068.82.

www.c-r-y.org.uk

Paul Mulford

Colin Mulford and Sandra took part in the CRY Heart of London Bridges Walk 2016 and raised £120.

In Memory of

Andrew Murch

Ally Moncrieff sent in a total of £165 from collection pots left at Macnaughton’s of Pitlochry.

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Our Fundraisers In Memory of

Ralph Murwill

Peter Shannon and Daniel O’Donoghue took part in the Virgin Money London Marathon 2016 and raised £1,873.48.

In Memory of

Bethany Mycroft

Amanda and Adrian Topp sent in £1,079.40 raised during a celebration day for Bethany’s 15th birthday.

In Memory of

Pardeep Nagra

Station. Kulbir and Jaya worked so hard with support from all our fundraisers, including matched funding from Barclays Bank. Royal Mail and Deanesly Centre, New Cross Hospital, raised funds through raffle tickets and donations.

• Kully and Jaya took part in the Birmingham Half Marathon and raised £440. • Resham Nagra, Neil Gill, Lyndsay Millington and Steven Green sent in a total of £1,810.68 in respect of a skydive. “On 12 March 2016, several volunteers and work colleagues did a skydive; Angie James, Arun Singh, April Wiles, Lindsay Millington, Mark Rodgers, Neil Gill, Paul Dangerfield and Steven Green made jumping out of a plane look effortless (but they were very nervous!).” Resham Nagra.

Kulbir Nagra with the Mayor of Wolverhampton, Ian Brookfield

“Eclipse kickboxing in Wolverhampton also supported our fundraising by hosting a raffle during their boxing event which was great fun.”

In Memory of

George Bernard Neal

Mr M Neal sent donations of £849.50 received in lieu of floral tributes for his father.

• R Nagra sent in a total of £200. • Resham Nagra sent in a total of £5,900.65: a Wolverhampton dinner and dance raised £5,418.93; and a boxing night raised £278.72: “On March 4 we had our dinner and dance at the Grand

66

In Memory of

Benny Newton and Elizabeth McMillan

Dominick Tousignant sent in £100 on behalf of Body Energy Club.

Issue 70 | May to August 2016


Our Fundraisers In Memory of

Daniel Nicholls

Team “Delboy Trotters”; Lorraine and Eric Nicholls, took part in the CRY Heart of London Bridges Walk 2016 and raised £846.

In Memory of

Richard Northedge

Derek and Pat Northedge sent in £100 to commemorate Richard’s birthday.

In Memory of

from the Gymophobics’ 97lb weightloss challenge; The Grand Day Out raised £22; Willaston PS Christmas fayre raised £30; The Lighthouse Centre cake bake raised £51.73; the sale of handmade tissue holders raised £66.60; and Richmond Village Christmas fayre, raffle and concert raised £72.78. • Lloyds Bank Foundation sent in £281 matched giving in respect of the retiring collection at St Boniface Church. • Ceri Abigail’s Team; Alison Howells, Robert Howells, Joel Howells, Luke Bain, Georgie Dennis-Guise, Rose Sternbauer, Emily Miles, Rebecca Miles, Sophie Miles, Sarah Guise, Sebastien Foucan, Luke Guise and Chloe Green, took part in the CRY Heart of London Bridges Walk 2016 and raised £389.63.

Daniel O’Connor

Ben Coles sent in £5,110 from Wrenbridge Land raised through their annual football tournament:

In Memory of

“Sadly we lost a well-respected friend and colleague, Daniel O’Connor, to SADS in November 2014. Each year we hold a football tournament where we raise money for a chosen charity. Last year we dedicated the event to Daniel and managed to raise £5,110 from the tournament. We hope the money raised helps the family and friends of those that have suffered from SADS.”

Team Rob; Irene Palmer, John Palmer, Leanne Knott, Nadine Watkin, Andrew Watkin, Celia Cook, Colin Doherty, Louise Goldsmith, Claire Matthews, Kenneth Wayman, Lynda Wayman, Karen Hale, Neil Coult, Nicola Day, Joshua Gomarsall, Frank Tester, Alison Elliott, Helen Best, Annette Knott, Maryann Elliott, Peter Elliott, Mark Ireland, Kelly Moles, Amy Howells, Sarah Howells and Louise Doherty, took part in the CRY Heart of London Bridges Walk 2016 and raised £7,668.77.

In Memory of

Robert Palmer

Robert O’Kane

HSBC sent in a total of £1,500 matched giving in respect of Craig Dingwall’s fundraising event.

In Memory of

In Memory of

Andrew Parr

Julie and Chris Smith sent in £603 raised at a curry night and raffle.

Thomas Padmore

Tommy’s Team; Paul Padmore, Karen Padmore, Louise Padmore, Oliver Bailey and James Henderson, took part in the CRY Heart of London Bridges Walk 2016 and raised £1,131.50.

In Memory of

Ceri Palmer née Howells

• Alison Howells sent in a total of £1,034.56, including: £130.33 from the South Cheshire College cake bake; £97.32 from the Gymophobics’ cake bake; £63.80

www.c-r-y.org.uk

In Memory of

Christopher Parr

Dianne Parr sent in a total of £302 raised at a recent screening in Leek.

In Memory of

James Patrick Patterson

• Campion Old Boys Rugby Club held a raffle and raised £428.

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Our Fundraisers In Memory of

• Peter Patterson sent in £100 donated by Mr D Mullen and £30 donated by Mrs S Baynes, making a total raised of £130.

Christopher and Steven Phillips

Jane Phillips sent in a total of £429.35 received at screenings.

In Memory of

Michael Patterson

Lichfield Tae Kwon Do Club held a charity event and raised £630.

In Memory of

David and Jenni Paul

• David Johnson sent in donation of £700 raised through a golf day. • Blayne Beck sent in £2,000 raised through the Mary Queen of Ceilidhs, an event produced in Edinburgh by Queen Margaret University students.

In Memory of

Duncan Phillips

• Jeremy Jackson sent in £198 raised by players of the annual Duncan Phillips memorial football match. • Heather Phillips, Sarah Wainwright, Thanasis Chrondozoavaiks, Nick Baldwin, Melanie Cope and Ian Cutler took part in the CRY Heart of London Bridges Walk 2016 and raised £100.

In Memory of

James Phillips

In Memory of

Nicky Payne

Ricky Archer took part in the Virgin Money London Marathon 2016 and raised £1,850.39.

In Memory of

Jennifer Pearce and Patricia Geppy

Beccie Pearce sent donations of £1,067 received in lieu of floral tributes for her nan, Patricia.

In Memory of

Henry Pearson

Mrs E Pearson sent donations of £605 received in lieu of floral tributes for her husband.

• Keslyn Lewis raised a total of £750 through taking part in the Brighton Marathon 2016. • Fiona Barnes, Lindsay Barnes, Paul Barnes, Jane Keat, Nicholas Keat, Sam Keat and Georgie Keat took part in the CRY Heart of London Bridges Walk 2016 and raised £120.

In Memory of

Sara Pilkington

• Collingwood College in Durham organised a fashion show and raised £4,313.34. • Richard Hudd took part in the Virgin Money London Marathon 2016 and raised £2,442.70.

In Memory of

Charlotte Pitstra

In Memory of

• Ali McCabe took part in the Buachaille Dash and raised £275.

Mr and Mrs J Peek sent in £100 in respect of the CRY Heart of London Bridges Walk 2016.

• Victoria Pitstra took part in the Buachaille Dash and raised £1,630.46.

Emma Peek

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Issue 70 | May to August 2016


Our Fundraisers In Memory of

Ben Powell

Saskia Roberts, Maya Weier, William Weier and Johann Insanally took part in the CRY Heart of London Bridges Walk 2016 and raised £140.

Pal, Shaniya Pal, Nikhil Pal, Sunita Kapav, Amit Lal, Roshan Lal, Vishal Puri, Aneka Puri and Dharam Pun, took part in the CRY Heart of London Bridges Walk 2016 and raised £910.

In Memory of In Memory of

Craig Powell

• Luke Powell took part in the Virgin Money London Marathon 2016 and raised £2,615.50. • Team “Pringle”; Helen Fleming, Mark Powell, Luke Powell, Marlene Upham, Rodney Upham, Anne Rowe, James Rowe and Holly Grumley, took part in the CRY Heart of London Bridges Walk 2016 and raised £527.50.

In Memory of

Robert Poysor

Diane Tolley sent in £290 raised through car boot sales and £350 raised through a bag pack at Morrisons, making a total raised of £640.

In Memory of

Mark Richard Price

Ceri Jones took part in the Virgin Money London Marathon 2016 and raised £3,182.95.

Stuart Pybus

James Baker took part in the Virgin Money London Marathon 2016 and raised £2,058.40.

In Memory of

Gemma Quew

The Isle of Wight Interest Group sent in a donation of £126.45.

In Memory of

David Quinney

• Mick and Dot Quinney sent in £360 raised by Pilling Jubilee Silver Band. • Kirsty Waywell took part in the Virgin Money London Marathon 2016 and raised £1,417.55.

In Memory of

Craig Rawlinson

Kay Rawlinson sent in £1,500 raised through a memorial ball.

In Memory of

In Memory of

Liz Rawlings took part in the Virgin Money London Marathon 2016 and raised £2,782.20.

Gavin Readings took part in the Virgin Money London Marathon 2016 and raised £950.

Claire Prosser

Matthew Readings

In Memory of

In Memory of

Team Bobby; Amit Puri, Renu Puri, Sia Puri, Ava Puri, Neenu Puri, Jagroop Sandhu, Sara Sandhu, Surish Pal, Susan

• Mims Davies MP took part in the Great South Run 2015 and raised £550.

Bobby Puri

www.c-r-y.org.uk

Claire Reed

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Our Fundraisers • Graham Hunter took part in the Great Cake Bake 2015 and raised £647. • Adam Ruddy raised a total of £350 through taking part in the Brighton Marathon 2016.

In Memory of

Alex Reid

Roxanne Wood sent in £142.50 raised by the University of Warwick Ladies’ Hockey Club at their annual charity hockey tournament.

In Memory of

Alex Roberts

Daniel Mills took part in the Cambridge Half Marathon and raised £445. “The whole experience of the Cambridge Half Marathon has been amazing and the support we have had from family and friends has been fantastic. We have loved every minute raising money for such an amazing cause. CRY is such an amazing and worthwhile charity and we hope that the money that we have raised can help people get a screening like those myself and James have benefited from.”

In Memory of

Miles Reid

• White Stuff sent in £250 matched giving in respect of Felicity Johnson taking part in the Stratford-upon-Avon Big 10K. • Emily Mansell sent in a donation of £100. • Hannah Chamberlain sent in £140 on behalf of Early Childhood Studies Y3. • Jack Cheek took part in a charity boxing match and raised £690. • Charlie Elmer took part in the Leeds Marathon and raised £260.

In Memory of

Thomas Reid

• Justine Phillips at Garforth Academy participated in a sponsored silence and raised £1,500. • Philip Makepeace organised a Euro 2016 predictions league and raised £250.

In Memory of

Scott Rennie

Jim Chalmers took part in a 24-hour rowing challenge at the King’s School, Worcester, boat club and raised £1,679.23.

70

In Memory of

Sian Roger

Team Sian; Keir Roger, Callum Roger, Patrick Griffin, Susan Griffin, Anna Griffin, Josephine Roger, Brian Roger, John Braine, Joan Braine, Emma Stanley, Charlotte Roger, Jan Roger, Sebastian Roger, Kathy Griffin, Gemma Fraser, Martin Roger, Monika Schiffer, Laura McDonald, Stuart McDonald, Emily McDonald, Rachael Prest, Barry Rhodes, Katherine Campion, Richard Campion, Sebastian Campion, Edward Campion, Kim Watson, Matthew Roberts, Maria Kirby, Andrew Kirby, Josef Kirby, Vincent Kirby, Jean Wyatt, Julie Jones, Philippa Hallam, Geoffrey Parker, Claire Wright, Hannah Pettit, Emily Hillman, Molly Browne, Marie Browne, Michael Browne, Daniel Harrington, Rose Harrington, Ann Chandler, Katie Collins, James Collins, Helen Harris, Martin Harris, Libby Harris, Laura Harper, James Langridge, Helen Harper, Anna Harper, Matthew Couldridge, Nadia Mendez, Bernie Sharkey, Vinny Sharkey, Joe Sharkey, Richard Roy, Lauren Roy, Dylan Roy, Shanthi De Costa, Daniel Topley, Lucy Topley, Eadlin Topley, Daniel Gibbs, Nicola Evans, Amit Sharma, John Herlihy, Lara Anders, Rob Anders, William Anders, Angela Freeland, Dean Griffin, Martin Rees, Ay Lin Kho, Peter Kenny, Stephen Kenny, Shauna Robinson, Karyn Robinson, Robert Mannes, Charlotte Ellison, Lizzie

Issue 70 | May to August 2016


Our Fundraisers Eckardt, Nicholas Eckardt, Phil Eckardt, Colin Wadsworth, Maggie O’Sullivan, Brenda Hayes, Greta Faulkner, Elizabeth Muldoon, Luke Moldoon, Lisa Jeffery, Antony Jeffery, Matthew Vas and Joshua Vas, took part in the CRY Heart of London Bridges Walk 2016 and raised £1,250.

• Paul and Sue Shaw sent in £500 raised through a charity cricket match.

In Memory of

Richard Shaw

In Memory of

• Emma Shaw took part in a Snowdon climb and raised £220.

Lesley Rogers sent in a donation of £250.

• Molly, Wendy and Vic Shaw sent in £600 raised through a charity golf tournament:

Luke Rogers

In Memory of

Luke Rutter

Steve Canavan took part in the Parish Walk and raised £1,747.94.

In Memory of

Chloe Sary-Bool

Annabel Bool sent in £125 from the collection box at St George’s Hill Golf Club.

In Memory of

Neil “Kymatik” Schuyleman

Team Neil; Helen Davies, Anna Georgakakos, Minas Georgakakos, Alexia Georgakakos, Rose Georgakakos, Erin Georgakakos and Ann Edwards, took part in the CRY Heart of London Bridges Walk 2016 and raised £1,370.

In Memory of

Peter Sharpe

Richard Sharpe took part in the Belfast Marathon and raised £1,738.

In Memory of

Andy Shaw

• Wrekin Products raised £126.79 through a dress-up day and selling cakes.

www.c-r-y.org.uk

“This year we held a charity golf tournament in the name of our dear son and brother Richard. We had a very good day with the weather being good after a lot of rain in previous days. We were a little disappointed with the response we got from most of the golf companies we sent out letters and emails. Only one got back to us with a prize and that was Muzuno, therefore we had to buy most of the prizes ourselves. We had one firm get back to us who sponsored a hole, that was Blue Arrow who employed Richard for a year. £100 was from the box in Wendy’s barber’s shop.”

In Memory of

Paul Sheridan

• Sara Sheridan took part in the Virgin Money London Marathon 2016 and raised £1,893. • Team Paul James; Kate Fender, Lesley Sheridan, Michael Sheridan, Emma Dallimore, Dylan Fender, Rhys Fender and Beth Fender, took part in the CRY Heart of London Bridges Walk 2016 and raised £505.

In Memory of

Jack Sheriff

David and Frances Gridley took part in the Big Heart Bike Ride Africa and raised a total of £3,051.50.

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Our Fundraisers In Memory of

In Memory of

David James sent in a total of £100.

• Katie Donnelly at The Wimbledon Club sent in £100.

Joshua Shotton

Ben Skinner

• Mandy Spicer sent in £250 from a quiz night and £192 in donations, making a total raised of £442.

In Memory of

Gregg Shoults

Fiona Shoults sent in £100 from Gardeners’ World.

In Memory of

In Memory of

Ben Smith

Christine and Gary Smith sent in a donation of £545.

Madeline Siddall

Team Madeline took part in the Clumber Park Half Marathon and raised a total of £1,375.

In Memory of

Darren Smith

Hunter Paul Butchers sent in £112 raised through a collection box on their premises.

In Memory of

Ben Simpson

• Gemma Hughes took part in the Virgin Money London Marathon 2016 and raised £2,340.20. • Jude Wilson took part in the Virgin Money London Marathon 2016 and raised £2,191.87. • Christopher Gadd took part in the Virgin Money London Marathon 2016 and raised £1,351.50.

In Memory of

Robert Daniel Smith

Linda Smith sent in a total of £3,000: £61 from Adam Towler who took part in a 150mile trek; £140 from Robert’s granddad’s funeral collection; £2,619 from a charity night; and £180 from David Barber and friends.

In Memory of In Memory of

Jamie Simpson and Rose

Lyndsey and Lou Simpson sent donations of £257 received in lieu of floral tributes for Jamie’s nanny, Rose.

In Memory of

Timothy Spooner and Fay Howell

Kris Hawkins took part in muliple running events throughout 2015 and raised £526.02.

In Memory of

Lee Stables

Sharen Stables sent in £150 from Ulverston Rotary Club.

Aashi Sinha

• Drs Ajay and Suman Sinha sent in £5,022.28 raised through a cake sale, donations and collection pot.

In Memory of

• Rebecca Kay raised a total of £330 through taking part in the Vitality London 10,000 2016.

Sharen Stables sent in £210 from Mr J in memory of his wife, Valerie, and Lee.

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Lee Stables and Valerie

Issue 70 | May to August 2016


Our Fundraisers In Memory of

Philip Standing

• Andrew Hartless sent in a donation of £100 matched giving. • Team Phil Standing; Sue Fisher, Thomas Bowden, Caroline Bonden, Des Bowden, Kate Standing, Oliver Standing and Ben Standing, took part in the CRY Heart of London Bridges Walk 2016 and raised £100. • Daniel Keating took part in UWMFC Old Boys’ football games in 2015/2016 and raised £1,785.

In Memory of

Philip and Josephine Standing

Michael Standing sent in donations of £140 received in lieu of floral tributes for his mother, Josephine.

In Memory of

Shane Stanley

Vikki Stanley sent in a total of £4,000 raised through the Stanley Cup.

In Memory of

In Memory of

David Stiller

Team Stiller; Mary Stiller, Jamie Stiller, Emily Stiller, Linda Stiller, Bryan Stiller, Karen Sheppard, Chris Carter, Martin Stiller, Stuart Sheppard, Kester Westcott, Emily Westcott, Chris Westcott and John Westcott, took part in the CRY Heart of London Bridges Walk 2016 and raised £275.

In Memory of

Ian Strange

• Patricia Strange sent in £100 for the anniversary of Ian’s birthday. • Patricia Strange and Gill Matthams took part in the CRY Heart of London Bridges Walk 2016 and raised £200.

In Memory of

Paul Sykes

Team Sykes; Carly Sykes-Blowers, Thomas Sykes, Patricia Berry, Peter Sykes, Clare Sykes, Owen Sykes, Holly Sykes, Finlay Hyder, Deborah Hyder and Olivia Blowers, took part in the CRY Heart of London Bridges Walk 2016 and raised £335.

Callum Staple-Hughes

Louise Staple-Hughes sent donations of £1,322.19 received in lieu of floral tributes for Callum.

In Memory of

Gary Stewart

• Wayne Stewart sent in £800 raised at an annual barn dance. • Gary Sullivan sent in £500 on behalf of Scottish and Southern Energy raised through their Going for Gold health and wellbeing event.

In Memory of

Natalie Stewart

G and C Stewart sent in a total of £120.

www.c-r-y.org.uk

In Memory of

Luke Swift

Holly O’Brien took part in the Virgin Money London Marathon 2016 and raised £2,240.

In Memory of

Hannah Taylor

• Maureen Bull sent in £300 raised through her stall at the Harwich Sea Festival, and £1,150 from the Inner Wheel Club of Harwich and Dovercourt, making a total raised of £1,450: “I have been privileged to be President of the Inner Wheel Club of Harwich and Dovercourt this past year and I nominated my main charity for our fundraising events as CRY in memory of my beautiful granddaughter Hannah, who died in 2010 aged 20.”

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Our Fundraisers In Memory of

Kelsey and Zac Taylor

• Hayley Crosbie sent in a total of £575 raised by staff and customers at Lite Lunch; Skem United Youth Academy; neighbours Ann and Terry, Lisa and Paul; Jean Unsworth; and family, friends and the people of Skelmersdale.

• Dawn Sealey sent in a total of £1,211.67: £588.67 from subs collected from the Derby Ladies netball team; and £623 through a darts competition. • Team Taylor; Linz McKinley, Deborah Lang and Jenna McDonald, took part in the CRY Heart of London Bridges Walk 2016 and raised £235.

In Memory of

Peter Taylor

Diane Taylor sent in a total of £4,712.30 raised through a group skydive:

“Zac Taylor passed away suddenly on 11 February 2016 aged 11. Zac was diagnosed with Wolff-Parkinson-White syndrome for which he was being monitored but not treated since he was 3. CRY is a charity our family and friends have supported since Zac’s sister Kelsey passed away also suddenly, aged 17, on 28 October 2009 with undiagnosed Ebstein’s anomaly.”

“On Saturday 27 February 2016, nine people including myself took part in a group tandem skydive in memory of my son Peter Taylor who passed away on 17 November 2013, aged 17. This took place at the Black Knights Parachute Centre, Cockerham, near Lancaster.

• Brookfield Park Primary School held a speedstriker event and raised £550. “Tragically in February we lost a treasured pupil, Zac Taylor, aged 11 to Wolff-Parkinson-White syndrome. On Friday 15 July we held a speed-striker event and we raised £550. We know this money will be put to saving other children’s lives.” Paula Evans, Headteacher.

“It was a very cold day but dry, we arrived at 10am eager to get on with it. We all attended a short but informative safety briefing and then we were all set. Once into the safety gear there was no going back. In three groups we all took our turn and it was the most awesome experience, free falling above the clouds was amazing. Some had chosen to jump from 15,000ft, the rest 11,000ft. We all loved it and would do it again.”

“Zac’s mum and sister together with Emily Makinson and Ryan Hunt; two of the ‘fastest striker’ medal winners.”

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Issue 70 | May to August 2016


Our Fundraisers In Memory of

Jack Thomas

• June Thomas sent in a total of £3,422.63: £1,140.63 from various collection pot donations; £698 from a Tom Jones tribute night; a £100 donation from Jack’s grandparents, Betty and Rowland; £1,246 from Blackwood RFC mini and junior teams’ memorial games; and £338 from a screening event. • John Burgham sent in £200 from Unite WAB 4047 Branch in support of Stately Albion.

In Memory of

In Memory of

Vicki Taylor

Iain Taylor sent in £100 raised through the Leeds to Liverpool Canal Bike Challenge.

In Memory of

Zoe Teale

Pete Teale took part in the Virgin Money London Marathon 2016 and raised £775.86.

In Memory of

Dale Tennent-Butler

• Angela Tennent-Butler sent in £1,020: £1,000 through a quiz night at West Herts Sports & Fitness Club; and a £20 donation from Steve Blower on behalf of Shendish Golf Club.

Jack Thompson

Wilmington Grammar School for Boys held a football match and raised £7,364.71.

In Memory of

Oliver Thompson

• Victoria Smith took part in the Virgin Money London Marathon 2016 and raised £1,063.83. • Teams “Olly”, “Awesome” and “Cliftonville Primary School”; Graham Thompson, Cheryle Thompson, Timothy Thompson, Carole Thompson, William Thompson, Paul Thompson, Zara Thompson, Tina Arnold, Genever Setterfield, Michael Setterfield, Oliver Setterfield, Lyla Setterfield, Barry Mason, Chloe Smith, Christopher Pointer, Neil Davidson, Laura Powell, Tracey Webber, Jayne Lawrence, Hannah Boyle, Alex Michael and Lennie Mason, took part in the CRY Heart of London Bridges Walk 2016 and raised £420.

• Ian Tennent-Butler sent in £1,300 raised at an annual six-a-side football tournament.

In Memory of

• Francesca Batley took part in the Virgin Money London Marathon 2016 and raised £4,147.

Team Thomson; Karen Thomson, Jackie Thomson, Isabelle Thomson and Lesley Fraser, took part in the CRY Heart of London Bridges Walk 2016 and raised £165.

In Memory of

Gareth Thomas

Anne Thomas, Trefor Thomas, Roger Nutt and Angela Nutt took part in the CRY Heart of London Bridges Walk 2016 and raised £140.

www.c-r-y.org.uk

Peter Thomson

In Memory of

Nicholas Thorne

The Musketeers; Robert, Eunice and Amy Thorne, Charlie Millett and Emilio Porto, took part in the CRY Heart of London Bridges Walk 2016 and raised £365.23.

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Our Fundraisers In Memory of

Christian Thunhurst

• John and Liz Thunhurst sent screening donations of £1,110. • William Bentley sent in £300 raised through an annual CGT memorial golf day.

In Memory of

Scott and Mike Thurlow

• CRY Representative Dani West attended a charity golf day held at the Rotary Club of Grantham and collected a cheque for £1,250. “The Grantham Kesteven Rotary Club held a very successful charity golf day on Thursday 9 June in glorious sunshine. The event, held at Belton Park Golf Club in Grantham, raised money for President Chris Thurlow’s chosen charities, which included CRY. We were delighted that Dani West was able to come along to talk about the work of CRY and to collect a cheque for £1,250 from President Chris.

In Memory of

Isabelle “Issy” Tudisca

• Team “#forissy”; Sophia Tudisca, Lindsey Robinson, Gemma Allen, Keith Allen, Olivia Robinson, Matthew Robinson, Lucy Allen, Carolyn Welch, Olivia Welch, Harry Welch, Polly Goodman, Hattie Siddle, Dani Francois, Nicola Miller, Victoria Dewin, Charlotte Dewin, Louise Dewin, Beverley Steinberg, Amy Steinberg, Jessica Steinberg, Rebecca Barton-Hagger, Rachel Barton-Hagger, Lucy Goodman, Julia Heenan, Lisa Lethbridge, Robert Grafton, Natasha Heenan, Alice Young, Graham Young, Emily Young and Carole Young, took part in the CRY Heart of London Bridges Walk 2016 and raised £470. • David Hobbis took part in the Royal Parks Foundation Half Marathon and raised £4,166.44. • Ipsos MORI sent in £185 in respect of a survey taken part in by one of their respondents. • Leo Tudisca took part in the Virgin Money London Marathon 2016 and raised £9,307. • Lorraine Gosling took part in the Virgin Money London Marathon 2016 and raised £1,062. • Joe Payne took part in the Virgin Money London Marathon 2016 and raised £7,585.

“Dani had previously visited our club last September when she gave us all a memorable and inspiring presentation about the work of CRY. Dani is a passionate advocate for CRY and the way in which the charity supports families and conducts research and screening to try to reduce the tragic toll of 12 deaths each week in young people due to undiagnosed heart conditions. President Chris lost his nephew Scott to undiagnosed heart failure when he was just 27 and since then has been involved with his family in fundraising for CRY.” Marion Strange. • Team Thurlow; Cathryn Thurlow, Marcelle Thurlow, Marc Thurlow, Vanessa Thurlow, Nicholas Simpson, Alastair Simpson, Chris Thurlow, Wendy Thurlow, Mia Thurlow and Carmen Thurlow, took part in the CRY Heart of London Bridges Walk 2016 and raised £315.

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In Memory of

Jayden Tullett

Dawn Tullett took part in various events and raised £1,078.31.

In Memory of

Hannah Turberville

• Brian and Jackie Turberville sent in £504.30 raised at the Pennycroft/ Prospect Lane street party. • Alison Renshaw sent in £270 raised by The Welwyn Floral Group.

Issue 70 | May to August 2016


Our Fundraisers In Memory of

Grace Tuttle

Mrs M Salmon sent in donations of £152.50 received in lieu of floral tributes for her mother.

In Memory of

Danielle Valentine

• Sally Valentine sent donations of £255 received in lieu of floral tributes for Danielle. • Steven and Shaun Michael Crowley took part in the CRY Heart of London Bridges Walk 2016 and raised £540.

In Memory of

Chloe Waddell

• Fiona Waddell sent in £247.75 in respect of the Altrincham screening event. • The Timperley Boneshakers took part in a bike ride and sent in a further £11,230.

In Memory of

Chloe Waddell and Doris Eileen Rowe

Helen Robinson sent donations of £310 received in lieu of floral tributes for her mother, Doris.

In Memory of

Richard Waight

Ken and Jackie Waight sent in £4,000 raised at their sixth annual charity golf day.

“This year we had more teams than ever, with 100 players in 25 teams, starting from both the 1st and 10th tees, an hour earlier at midday. The captain of Doncaster Golf Club, Sean Fiddler, was first to tee off, with Terry-Ann Whiteley taking the honour for the back nine. Participants came from across the UK, including the Thames Warriors from London and Hollinsend Cricket Club from Sheffield making a first appearance. Lindrick GC and Waterton Park GC were also represented, as were regulars from Godmanchester and Sprotbrough. “A total of 246 golfers have now played in our six charity days, including 18 ‘ever-presents’; 10 have only missed one year; 62% of this year’s entry played last year; 17% this year were DGC members; 30% played for the first time in 2016; 36% came from outside Doncaster; 100% went for a hole-in-one prize at the 4th. “Our team of supporters were again on hand at the 10th tee, to provide mid-round teas, coffees and soft drinks. Homemade cakes and biscuits made it a welcome stop for golfers, who made £125 donations. The raffle raised £1,040 and we made over £2,600 from the auction, including £270 for a family season ticket at Doncaster Knights and ‘four-ball’ vouchers from sixteen different golf clubs, raising £1,248. The competition was won by Derek’s team, led by Derek Allan, with the captain’s team second and LRS Tiling third. Congratulations to all the winners.” Ken Waight.

“The sixth Richard Waight Memorial Golf Day was held at Doncaster GC on Friday 20 May 2016. This year, monies raised would be split between the two charities Cardiac Risk in the Young and SADS UK. This is yet another fantastic result and means our golf days in Richard’s memory have now raised over £42,000 since 2011. Thank you to all of you who have played, helped out or just supported us on yet another fantastic day for all involved. Next year’s date: Friday 19 May 2017.

www.c-r-y.org.uk

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Our Fundraisers In Memory of

Neil Walden

Team Neil; Peter Walden, Zoe Walden, Anna Jackson, James Jackson, Isabelle Jackson, George Jackson, Julian Arriens, Pam Pentney, Sam Connor, Ben Connor, Mark Pentney, Andrea Chappell, Jon Chappell, Jessica Chappell, Harry Chappell, Amy Watkins, Megan Watkins, Evie Watkins, Adrian Timbers, Amy Solder, Mae Solder, Heath Solder, Tim Miller, Jemma Solder, Beth Solder and Bertie Solder, took part in the CRY Heart of London Bridges Walk 2016 and raised £876.

In Memory of

Edward Walker

Shirley Walker sent donations of £237.61 received in lieu of floral tributes for her husband.

In Memory of

Thomas Wall

Christopher Wall sent in a total of £2,409 raised in respect of completing a Nice to Venice bike ride.

In Memory of

Chris Walsh

Lauren Paczensky took part in a triathlon and raised £175.

In Memory of

Lloyd Walsh

Wayne Corcoran raised a total of £511.25 through taking part in the Manchester Marathon 2016.

In Memory of

George Watson

Marie and Dave Watson took part in the Derby 10K and raised £2,490. “We had been thinking of raising funds for CRY and in memory of George. After a typical lazy Christmas where we had over indulged on food and wine, we were chatting with my cousin Grace and we decided to sign up for the Derby 10K to get us moving. We put a status on Facebook to see if any of our friends and family wanted to join us. All of a sudden we had a team of 41 runners including six teachers from George’s school, Littleover Community School. From that moment #TEAMGEORGE was born. Our friend Mick Sharman who now lives in Australia ran the Perth 10K on the same day. Everyone has been so committed, training on those cold, dark nights and mornings. It was a tremendous comfort to me, Dave, Billy and Scarlett that everyone wanted to do this for George and CRY. “Prior to the race we got quite a lot of interest from local radio and TV. That was very daunting for me and Dave but we felt we needed to go ahead with it to help raise awareness of the work CRY do. “Race day was a beautiful sunny day and all of us looked great in our CRY T-shirts with our lovely George’s picture on the back. There was a great atmosphere and the support and cheering from the sidelines along the way was a real lift. To see a friendly face cheering you on makes such a difference.

In Memory of

Neil Ward

• The Dronfield Ladies’ Club sent in a donation of £250. • Elaine Ward sent in £1,258 raised through various donations including screening and collection box donations.

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Issue 70 | May to August 2016


Our Fundraisers In Memory of

David Wild

Lorraine Neale raised a total of £530 through taking part in the Brighton Marathon 2016.

In Memory of

David Williams

Mike and Lyndsey Armitage sent in £2,950 raised through the Ash Music Festival.

“Everyone crossed the finish line with a smile. Our quickest runner was Damien McParland (44 minutes 11 seconds). But everyone should be proud! Some ran the 3K with little ones straight after. Mick in Perth also did us a video commentary, helped by his wife Helen, showing us the fantastic scenery of the city. Charlotte Richards went on to play for her football team in the afternoon. Oh to be young! The sensible majority went to the pub for a welldeserved pint.

In Memory of

“As a family we are over the moon. We have achieved what we set out to do and keep George at the forefront of everyone’s mind.” Marie Watson.

In Memory of

In Memory of

George Watson and Ann Macbeth

Dave Macbeth sent donations of £355 received in lieu of floral tributes for his mum, Ann.

In Memory of

Melissa Watts

Tabitha Chamberlayne organised a tennis tournament and a dinner party for friends and family and raised £120.

In Memory of

James Wilson

Paula Thompson took part in the 5K Colour Obstacle Rush and raised a total of £610.

Kay Wilson

• Vikki Gibson took part in the Virgin Money London Marathon 2016 and raised £3,073.20. • James Keeling took part in the Virgin Money London Marathon 2016 and raised £3,449.64.

In Memory of

Kevin Wilson

Andy Greene sent in £312 raised through an annual charity football match. “Kevin played football with our team, Rhein, so every year at the end of season, we play a ‘Kev Wilson Memorial Game’. Seeing as this is the way that a lot of the lads met Kev, we thought this was the best way to raise a bit of money for CRY. Not only is this a good way to raise money for CRY, it is also a very good way to remember a good mate.” The Rhein Team.

Sally Wells

Team “Super Sally”; Simon Wells, Margaret Wells, Tim Wells, Sandra Phillpott, Lucy Wells, Charlotte Wells, Michael Yaxley, Mo Norris, Molly Norris and Hannah Steer, took part in the CRY Heart of London Bridges Walk 2016 and raised £1,240.22.

www.c-r-y.org.uk

In Memory of

Lee Wilson

Carole Wilson sent in a donation of £250.

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Our Fundraisers In Memory of

In Memory of

Hannah Ling took part in CHSW’s Rainbow Run, Twyardreth Trotters, the Barnstaple Half Marathon and a winter mud run and raised £169.25.

• Alison Thom sent in £150 raised by Mid Atholl Strings and Things, a local music group.

Dave Wood

In Memory of

Jake Wood

Jason Mitchell raised £470 through taking part in the Brighton Marathon 2016.

Michael Yorston

• Mairi and Lucy Doherty cut off their long hair and raised £1,317. “On 14 May 2016 Mairi and Lucy chopped off their long hair. The freshly cut hair was donated to The Little Princess Trust.” Julia Yorston.

In Memory of

Robert Worboys

• Georgina Worboys sent donations of £26,525.68 received in lieu of floral tributes for her son. • Stephanie Kelly took part in the Edinburgh Half Marathon and raised £1,487.50. • Team Worboys; Georgina Worboys, Anna Worboys, James Worboys, Hilary Worboys, Jeff Worboys, Meriel Worboys, Rebecca Worboys, Jocelyn Payne, Caroline Atkinson, Jocelyn Matthews, Lucy Baker, Gail Griffin, Matthew Breakspear, Judy Greevy, David Rolfe, Tom Bingham, Gail Rush, Yvette Spreckley, Brenda Roberts, Ian Harding, Alice Wells, Stephanie Cornell, Nicole Zachariah, Ben Bennet-Smith, Prince Rauf, Amanda Morwood and Huahao Chen, took part in the CRY Heart of London Bridges Walk 2016 and raised £1,795.

In Memory of

Julian Wort

• Shirley and Dave Wort sent in screening donations of £294.81. • Julie Peet took part in the Virgin Money London Marathon 2016 and raised £2,139.

In Memory of

In Memory of

Michael Yorston and Jim Thomson

Andrew Anderson sent donations of £490 received in lieu of floral tributes for Michael’s grandfather, Jim. “Michael’s granddad, Jim Thomson, died in July 2016. The collection at his memorial service was donated to CRY in memory of his grandson. Thanks to all who contributed.” Julia Yorston.

Sam Wright

• Rachael Mortimer sent in £100 on behalf of DHL Freight Coalville. • Mark Shaw took part in the Virgin Money London Marathon 2016 and raised £2,061.38.

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In Memory of

Joe Young

Felicity and Tony Charlwook sent in £635 raised through a garden party.

Issue 70 | May to August 2016


General Fundraising • The 2nd Medical Brigade sent in £115 raised by military and civilian staff. • Andrew Powell sent in £723.03 raised by the Adam Street Singers at a choir concert. • Richard Adams sent in a donation of £100. • Mohammad Amin sent in a donation of £100. • Rebecca Anderson took part in the Virgin Money London Marathon 2016 and raised £665. • Annalong Rovers FC sent in a donation of £100. • Samantha Antell took part in the Virgin Money London Marathon 2016 and raised £130. • AO Smile Foundation sent in £200 in respect of Jenny Hollowood-Smith’s recent fundraising efforts. • Linda Archibald held a fundraising night and raised £930. • Martin Arnold took part in a soup-eating challenge and raised £140. • Sally and Claire Ashworth raised £1,515 from a cycling event.

• Mark Booth raised £155 through his cycling mission. • Sue Fisher sent in £100 raised at the Bournemouth Freemasons’ charity evening. • Aidan Holland sent in £200 on behalf of the crew of the BP Miller Platform following the suggestion of Michael Gallagher. • Bramley House, Colfe’s School, raised £314.47 and The Leathersellers’ Company Charitable Fund sent in £314.47 matched giving, making a total raised of £628.94. • Mallory Brand, Luca Napolitano, Francesca Corradini and Nick Guy took part in the CRY Heart of London Bridges Walk 2016 and raised £370. • Britvic sent in a donation of £1,000 matched giving. • Carly Brown took part in the Stratford Half Marathon and raised £885:

• The Associaton of British Ports sent in a donation of £1,000. • Balshaw’s Church of England High School held a fortnight of fundraising and raised £654.19. • West House, Bancroft School in Essex, held a family evening and raised £2,000. “West House, within Bancroft’s School, last term held a ‘family evening’, which is an opportunity for pupils within the house to raise money for charities of their choice by putting on a show of their various talents for their families. CRY was one of the charities suggested by the fifth-year girls.” Lucie Coyne, Senior Housemistress. • Karrie Bassett sent in a donation of £130. • The BBC Appeals Office sent in £10,112.50 raised through the BBC Lifeline appeal for CRY. • Karen Bennett took part in the Virgin Money London Marathon 2016 and raised £334. • Birkett Long LLP sent in £3,860.25 donated following a merger with Brian Ruff, Angus & Jewers in 2012.

www.c-r-y.org.uk

“On the morning of Sunday 24 April, 11 brave, determined girls from the University of Warwick’s Ladies’ Hockey Club laced up their trainers and took to the streets of Stratford to take part in the annual Shakespeare Half Marathon. Between them, in under 3 hours, 143 miles (234km) of ground were covered. The mighty challenge undertaken encouraged many friends and family members to donate to our cause.”

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General Fundraising • The Broxbourne School raised £390 raised through a non-uniform day.

• Steve Cormack took part in Survival of the Fittest and raised £220.

• Adrian Buckland sent in £700 in respect of the CRY Heart of London Bridges Walk 2016.

• Jessica Cousins sent in £343.90 on behalf of Wedlake Bell.

• Matt Bull took part in the Great Scottish Run 2015 and raised £260.

• Michelle Cowen took part in the Virgin Money London Marathon 2016 and raised £2,266.

• Byfleet Village FC held a coaches versus parents match at their presentation day and raised £200.

• Cushion Plus sent in £200 raised through their open event.

• “Cadbury Girls”; Debbie Risby, Lauraine Anderson and Denise Bowyer, took part in the CRY Heart of London Bridges Walk 2016 and raised £245.

• Steven Davidson sent in £150 donated at his father-inlaw’s 90th birthday celebrations.

• CAF America sent in a donation of £1,002.33.

• Jan Davie sent in £225 raised through a beach auction celebrating her mother’s birthday.

• Ian Cairns raised £700 through taking part in the Prudential RideLondon-Surrey 100 2015.

• Mark Davies took part in the Three Peaks Challenge and raised £4,855.

• Denise Chenery took part in the Tameside XL Triathlon and raised £781.

• Henry Dawson sent in £600 raised by two students taking part in a charity bike ride from Amsterdam to Switzerland, finishing in the Swiss Ski resort of Nendaz.

• Lauren Childs took part in a skydive and raised £110. • Christ’s College, Guildford, pupils held a cake sale and raised £178.02. • Denise Clark took part in the Bristol to Bath Marathon and raised £1,142.49. • S and J Clark sent in a total of £200. • Cleeve Park School sent in a donation of £118. • Daniel Coene took part in the Virgin Money London Marathon 2016 and raised £2,347.41. • Colchester Royal Grammar School held a non-uniform day and raised £400. • Mark Cooper took part in the Virgin Money London Marathon 2016 and raised £2,107. • Kate Cooper took part in the Great East Swim and raised £200. • Coopers School in Chislehurst sent in a donation of £341.85. • Despo Coney took part in the London Trekathon and raised £190. • Michele Jones sent in £1,910 raised through events to celebrate Connexions Cuisine’s 25th birthday.

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• Zoe Day sent in a donation of £150. • Kate Moore sent in £1,020 raised through a piano recital held at St Pancras’s Church by David Dean in June. “On June 30 I gave a piano recital at St Pancras Church (opposite Euston Station) in central London in aid of CRY. I currently work for the regulator NHS Improvement although I used to be a part-time concert pianist. I retired from financial services in 2005 and was then able to study under two of the finest piano teachers in the UK, Professors Hilary Coates and Christopher Elton and have been giving recitals ever since mostly in central London such as Steinway Hall and St Bride’s church, though less frequently since I returned to employment in 2014. “The recital came about after our legal director Kate Moore came to a recital I gave in January 2016 and suggested I gave a concert in aid of CRY as this is the nominated charity of our predecessor regulatory organisation Monitor. She immediately suggested St Pancras as her husband is the musical director there and the vicar very kindly allowed us to use the venue free of charge to maximise proceeds for CRY. It was a real privilege to have access to such a spectacular venue in central London free of charge. The evening was organised by Kate and our colleagues from NHSI also served drinks in return for donations which swelled the coffers. “The attendees numbered approximately 120 and the

Issue 70 | May to August 2016


General Fundraising concert lasted approximately one hour. I generally specialise in late Romantic and impressionist composers so the programme included well known pieces such as Debussy’s Clare de Lune and a medley of themes from Rachmaninov’s second piano concerto, which I arranged myself, to 20th century pieces such as Scriabin’s second sonata and Ravel’s Une Barque Sur L’Ocean. I believe the concert was very well received as I played two encores. The recital was filmed by a friend and is now on YouTube. I hope to do a further recital in aid of CRY next year.” David Dean. • Rebecca Johnson sent in £100 on behalf of the Interact group of the Deepings School sixth form. • Palvinder Deol took part in a Tough Mudder and raised £540. • Alex Downing took part in the Liverpool Santa Dash 5K and raised £470. • Emily Ducat took part in a sponsored basketball shootathon and raised £400. • Duro Felgue Carrington Power sent in a donation of £500. • Yvette Curry sent in £125 from Ecclesiastical Insurance. • Kathryn Efford took part in the CRY Heart of London Bridges Walk 2016 and raised £1,135. • CRY Representative Sian Donnelly accepted a cheque for £1,000 from the Rotary Club of Erith. • Ellen Evans sent in £100 received in lieu of gifts for her brother’s 70th birthday. • Nick Fewtrell took part in the Virgin Money London Marathon 2016 and raised £487.80. • Chris Finch sent in a donation of £100. • Stephen Flight took part in a mud run and raised £1,880.

www.c-r-y.org.uk

• Tanith Galer took part in the Virgin Money London Marathon 2016 and raised £3,577. • Joanne Galvin sent in £201 raised through a charity work quiz. • George Gazzard, Harry, Ben, Lizzie and Ollie took part in the Surrey Half Marathon and raised £535. • Simon Gemmell took part in a 136-mile cycle and raised £115. • Daniel Gibbons raised £591 through taking part in the Great North Run 2015. • Hayden Gibbons took part in the Virgin Money London Marathon 2016 and raised £581.20. • Bill Ginn sent donations of £420 received in lieu of floral tributes for his father: “My younger brother died aged 35 in 2001 of cardiomyopathy and the charity and the work it does is of great significance to the whole family, and it was my father’s wish that any money collected at his service should be sent to you.” • Richard Gordon took part in the Virgin Money London Marathon 2016 and raised £1,850. • Jane Gransden sent in £100 from the Freemasons and £60 raised through annual shanty carols aboard the Edith May barge, making a total raised of £160. • Jade Greig at Wedlake Bell sent in a donation of £5,085.52. • The Greneway Middle School held various fundraising activities including cake sales, a non-uniform day, a mini-fete, a Christmas concert and a Ninja Warrior challenge and raised £555.27. • Form 4 pupils at Grosvenor Grammar School sent in £150. • Thomas Grundy took part in the Edgworth Reservoir Challenge and raised £210. • Sandra Gwynne sent in a total of £550 raised by the 77th NI Girls’ Brigade through gathering up their spare change throughout the year. • Halifax PLC, Livingstone, sent in a donation of £100.36.

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General Fundraising • Nick Hallwood raised £1,120 through taking part in the Prudential RideLondon-Surrey 100 2015. • Hartlepool Borough Council sent in a donation of £500. • Jack Hegarty took part in the Edinburgh Half Marathon and raised £100. “I am with my son-in-law who also ran the race. The half marathon was a great event. It was a pleasure to promote CRY again and make a small contribution to the necessary funds that go towards the much-needed work that the charity undertakes.”

• Paul Henderson took part in a 24-hour treadmill run and raised a further £1,173.

when my cardiomyopathy was diagnosed. I understand what it is like to live with a heart condition every day and to be constantly reminded that I am different. Saying this not many people can say they have run a half marathon. “I have found the information available through CRY very useful on understanding the limitations of exercise etcetera on people with heart conditions as this sort of information is not widely available in the general health system. I enjoyed every minute of the half marathon and have now signed up for my next one with the aim of improving my time.” • Sandie Hole sent in £286 from Impact Physiotherapy, raised through a “month of massages” from sports rehabilitation students at Nottingham University. “Two sport rehabilitation students from the University of Nottingham have just completed their second-year placement at Impact Physio. Part of their experience was to develop their skills in sports massage. 19 volunteers donated a fantastic total of £286 for a sports massage, not only giving the students valuable experience but supporting a great charity. A huge thank-you to Ellie and Sarina for all their hard work and for the generosity and lovely feedback from our volunteers which included ‘the best massage I have ever had’.”

• Bradley Hollingsworth took part in the Virgin Money London Marathon 2016 and raised £782.55. • Jo Hopkins took part in the Virgin Money London Marathon 2016 and raised £2,501. • Clair Humphries took part in the Anglesey Half Marathon and raised a total of £860: “I took up running only last September (2015), not sure what made me decide but after a bit of perseverance I found that I loved it! On March 6 I ran the Anglesey Half Marathon in 2 hours 38 minutes. “Five years ago, after having my son Jamie, I found myself in intensive care on life support with post-partum cardiomyopathy. It was a pretty serious case and my husband and family were told to prepare themselves for the possibility of a heart transplant or worse. Fortunately my own heart began to repair itself with the help of the medication and I now find myself able to run my first half marathon which something I would never had even attempted before heart failure. “I decided to use my run to raise money for CRY as I understand first-hand what it is like to be struck down with a heart condition at a young age. I was fit and healthy

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• Tom James took part in a vertical 10K cycle challenge and raised £210. • James Allen’s Girls’ School sent in £656.77 raised through school fundraising. • Richard Jenkinson took part in the Virgin Money London Marathon 2016 and raised £4,250.20. • Paul Johnson sent in £1,500 raised in respect of his retirement party from Toyota. • Richard Johnson organised an Uxbridge College 24hour football marathon involving 40 students and raised £3,303.40.

Issue 70 | May to August 2016


General Fundraising since he was a teenager and continues to be in better health than might be expected. “Standout players included man of the match Jack Pitcher, 20, who was top goal scorer and clocked up 12 hours of play. Also honoured for their performances were Dylan Pollington and Joe Holland, both 18. Each was chosen to receive a winner’s trophy for their team, because as well as playing for hours on end, they both fulfilled key roles in organising the event and motivating others. “Non-stop 24-hour football marathon netted more than £3,000 for charity at Uxbridge College. Players took part in a series of five-a-side matches starting at 11am and continuing all day and throughout the night – with some individuals on the pitch for 10–12 hours. Around 40 sports students took turns playing across the 24 hours, with others taking part in one-off matches. The event was coordinated by sports lecturer Richard Johnson, whose own experiences of cardiac problems inspired the choice of charity.

“The local representative for CRY, Jeff Markham from Ruislip, came to the event and spoke to students about how he had come to be involved in the charity. Jeff said: ‘It was lovely to be involved and quite emotional for me to be part of because of the personal meaning. It is amazing effort done with real enthusiasm and commitment. Congratulations to everyone, for their incredible performances and for the money raised for CRY.’ “Each participant had to raise or donate money, and a raffle was also held with prizes included club shirts signed by the Arsenal Ladies FC players, and CRY Patron and former Manchester United player Ray Wilkins. There were also other fundraising events including a keepy-up competition and guess the football badge challenge. The event was also supported by the College’s caterers Chartwell, who kindly provided sandwiches to the players.” • Elen Jones raised £510.50 through taking part in the Manchester Marathon 2016. • JSM Technology sent in a donation of £180.

“Richard said: ‘This was harder than any of us expected and a massive team effort. The word that defined the whole event is character – the students showed incredible character and dedication, and despite being fatigued to the max most of them kept going through the whole 24 hours. There was blood, sweat and tears behind the scenes too when things got tough, but they encouraged each other to keep going. The amount of money they raised is fantastic too – one student, Matt Seven, raised more than £600 by himself. Everyone did amazingly.’ “Richard spent the first two months of his life in hospital after being born with a hole in the heart and related issues, and as he grew up was repeatedly warned by doctors to avoid strenuous exercise. However he has been involved in cross-country running and other sports

www.c-r-y.org.uk

• Sam Kennett took part in the Rotterdam Marathon and raised £285. • King’s School in Bruton, Somerset, sent in £2,817.88 raised through various fundraising activities throughout the year. • The parents of pupils at King’s School, Bruton, raised £250. • Tanya Lambert sent in a donation of £213. • Mark Lennox took part in the Virgin Money London Marathon 2016 and raised £2,595. • Paul Lewthwaite took part in Movember and raised £173. • Leysland High School pupils held a charities afternoon and raised £1,100. • Stephen Locke sent in £120.07 raised through a collection.

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General Fundraising • John Lundy sent in £387.31 in respect of screening donations.

• Katie Murray took part in the CRY Heart of London Bridges Walk 2016 and raised £234.

• Mr Caird sent in £200 from the Lurgashall Cricket Club.

• Desmond Fox sent in £828 raised at a charity fun day at Myton Warriors ARLC.

• Mr Lewis at Lyford Manor Farm sent in a donation of £250.

• Nationwide, Hanley, held a day of darts and various raffles and raised £900.

• The Bank of Scotland Foundation sent in £250 matched giving in respect of Jennifer Lynch’s fundraising. • CRY volunteers Mike and Freda McNamara collected a cheque for £2,700 from the staff at M&S Mansfield.

• Garry McGrotty sent in a total of £4,485: £2,625 from Tir na nOg GAC, Randalstown; and £1,860 from Dungannon RFC. • Timothy McMonagle took part in the Virgin Money London Marathon 2016 and raised £1,270.20. • Joe McNulty took part in the Virgin Money London Marathon 2016 and raised £163.25. • Andy Brown sent in £150 donated by Meetball raised through a weekly five-a-side football game in Bournemouth. • John Davis sent in £230 raised by the members of Mercread Youth Centre through a cake sale and sponsored walk. • Anne, Gavin and Mhairi Morrison took part in the CRY Heart of London Bridges Walk 2016 and raised £458.90.

“We planned the fundraising starting from November. At Nationwide Building Society we are committed to citizenship and volunteering hours. As a result we arranged a full day-and-night darts tournament with a local youth team. Money was raised by entrance fee/ raffle and catering. Donations for the raffle were from local companies and darts players. We continued a second raffle in the Hanley Branch which raised more funds.” Kerry Bono, Branch Manager. • Jake Newbold-Shankland took part in the Virgin Money London Marathon 2016 and raised £1,250. • Simon Newell raised £438.71 through taking part in the Windsor Half Marathon 2015. • Jodi Nicholls took part in a walk from palace to palace and raised £665.

• Bex Morse took part in the Virgin Money London Marathon 2016 and raised £120.

• Norris Biomedical Services sent in a donation of £1,260.

• Munster Simms Engineering (known as Whale) in Bangor held a barbecue and raised £600.

• David Mayer sent in £200 on behalf of North Cheshire Cycling Club.

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Issue 70 | May to August 2016


General Fundraising • The Reverend Brian Cunningham sent in £349.55 collected at Oundle School chapel. • Victoria Pantanella took part in the Vodafone Big Bold Challenge 2015 and raised £170. • Barry Parker took part in the Virgin Money London Marathon 2016 and raised £2,816. • Louise Parker took part in the Virgin Money London Marathon 2016 and raised £1,285.

various fundraising activities throughout the past year. • Rosebery Girls’ School in Epsom students raised £430.43 during their charity week. • The Royal School Armagh organised a charity mayday and raised £615. • Carl Ryde took part in the Virgin Money London Marathon 2016 and raised £125.

• Matthew Pell sent in a donation of £150.

• Salisbury Concert Band sent in £164.75 raised through a concert.

• Linda Archibald sent in £500 matched giving from Wendy Penreich in respect of an evening dance event.

• Dave Brown sent in £100 raised by Scarborough Sixth Form College Student Union.

• Beryl Penswick sent in £200 in respect of a screening attended by her two grandchildren.

• Jane Spencer sent in £200 raised through Seaford Youth Forum’s sponsored walk and cake sale.

• Matteo Perucchini sent in a further £660.31 raised through rowing the Atlantic solo.

• John Setford sent in a donation of £200.

• Pfizer UK sent in a donation of £3,000. • Pitshanger Dynamo FC sent in a donation of £370. • Preston City Council sent in a donation of £600. • Queen’s Drive Primary School Kids’ Club took part in various fundraising activities including space hopper races, a five fitness station challenge, a silly hat run and a dance challenge and raised £379.50.

• Sevenoaks & District Football League sent in £125 in respect of the proceeds from this year’s charity cup competition. • Chris Smith sent in a donation of £415. • Staff at Simpson Head Office, York, ran a charity Friday and raised £100: “Each person in the office gave £5, had a ‘breakfast butty’ and was entered into a draw for a bottle of wine and to choose the charity for us to give the cash.

• Giles Ritchie took part in a sponsored 10-mile walk in Devon and raised £160.

“Our commercial director, Stuart Rapson, won the draw and chose CRY.”

• The Rotaract Club of Ealing sent in £252 raised through organised swims and runs and through washing cars in their local supermarket.

• Pam and John Slaymaker sent in £210 received in lieu of gifts for their golden wedding anniversary.

• Steve Rouse took part in a cycling challenge and raised £906. • James Rule sent in £277.60 raised through the quarterly fundraising activities at RBS. • RBS CIB Finance sent in a donation of £1,185.35. • RBS, Payment Operations Department, in Manchester held a dress-down day and raised £132.60. • Emily Harrington sent in £783.95 raised through the Rowan House Charity Day at Redland High School. • Samantha Rickson sent in £700 raised through

www.c-r-y.org.uk

• Vicky Chainey sent in £462.83 on behalf of Snug Architects in Southampton. • Peter and Sue Sonksen sent in £100 donated in lieu of an 80th birthday present for Frances Presley. • St Cecilia’s School; Roisin Reeve, Clare Miller, Victoria Gallagher, Lynn Roulstone, Preethika Chandran, Will Turner, Oliver Plumb, Adrien Bonal, Rhiannon Murphy, Sophia Gillam, Kianna Griffith-Tapper, Aurelia Hanford, Adnan Durrani, Rueben Gallagher and Serena Taylor, took part in the CRY Heart of London Bridges Walk 2016 and raised £720. • St Mary’s Catholic Academy sent in £1,213.10 raised through various events.

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General Fundraising • Ingrid Macpherson sent in £250 raised through St Olave’s Grammar School Orpington’s rugby tour to South Africa. • St Thomas’ Primary School sent in a donation of £1,000. • Lyle Stewart raised a total of £710 through taking part in the Manchester Marathon 2016. “I arrived with my two friends, Michael and Tommy, at the start line at 8:50 on a glorious Sunday morning in Manchester. The longest distance I had ran since my bout with perimyocarditis was 8 miles and my lack of longdistance running was at the back of my mind but I knew I couldn’t let that get to me. We decided to start off with the four-hour pacer and drop back if required. Out of the three of us, only one of my friends had took part in a marathon before and had given us an idea of what it was like. Oh, how I underestimated the distance of a marathon. “We kept a steady pace and the first 10 miles went past quite well as we were all still chatting. After 15 miles things started getting tough. The ‘banter’ noticeably beginning to falter as we ran in silence, making sure to keep our feet moving and breaths deep. It was around mile 24 when I was really finding it difficult that I passed a guy also running for CRY. He had a picture of a girl on his back and it really was a moment that hit home for me. When I was in France alone when I found out about the inflammation in my heart the year before, I didn’t really consider the severity of the condition and once reading about it I realised how lucky I was to still be here. I didn’t really consider the implications for my family and friends. I offered him some of my water before wishing him luck as we passed.

• Tom Sutherland took part in the CRY Heart of London Bridges Walk 2016 and raised £211.50. • Richard Sydenham took part in the Virgin Money London Marathon 2016 and raised £1,622.40. • Avril Syme sent in a donation of £100. • Russell Thompson raised a total of £209 through taking part in the Great North Run 2015. • Tiny Toes Day Nursery sent in a donation of £200.40. • Phillip Jesson sent in £300 raised through proceeds from the Tonbridge & District Scouts and Guides collection at their St George’s Day Parade. • Debbie Quaile organised a “pic for a pound” event and raised £111.50. • UBS sent in £100 matched giving in respect of Paul Mills’ fundraising and a further £445 matched giving, making a total raised of £545. • University of Kent held various fundraising events throughout 2015 and raised £1,440.61. • The students of University of St Andrews’ charities campaign raised £113.75. • Joanne Urch raised £3,782.88 through completing a China open trek. • Jon Waite took part in a three-day bike and swim challenge and raised £933.50. • Sharon Warr took part in the Virgin Money London Marathon 2016 in memory of her daughter’s friend and raised £2,406.20. • Guy Whatmore walked across the width of England in eight days and raised £412.50.

“All I thought about for the last section was of all the people who had donated, time I had spent with them in the past and what they mean to me and this really got me through to the end. We managed to stay ahead of the pacer till the end and finished together, hand in hand over the line with a respectable 3 hours and 57 minutes time. For the next three days, I avoided stairs of any size at all costs. I would just like to thank everyone again who donated. You are literally the best. The next pint is on me.” • Nick Strange took part in the Charnwood Marathon and raised £310.

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Issue 70 | May to August 2016


Fundraising Events 2017 Please contact the fundraising team on 01737 363222 or email events@c-r-y.org.uk if you are interested in any of the following events. For more information and a full list of events visit www.c-r-y.org.uk/category/upcomingcryevents All participants in mass-participation events who contact the CRY fundraising team (whether they have their own place or a CRY charity place) will receive a welcome pack containing sponsor forms, information, helpful tips and either a T-shirt or vest (depending on the type of event).

2017 ASICS Greater Manchester Marathon April 2

The ASICS Greater Manchester Marathon is the UK’s flattest, fastest and friendliest marathon. Awarded the official title of UK’s Best Marathon in 2014 and 2015 at the Running Awards, this Manchester marathon is not to be missed. CRY has a limited number of places available for this event and also welcomes any “own place” runners.

Brighton Marathon April 9

The Brighton Marathon is one of the UK’s favourite 26.2-milers. With a stunning backdrop of the sea in one of the country’s most vibrant cities, the race gets bigger and better every year. CRY has a limited number of places available for this event and also welcomes any “own place” runners.

Virgin Money London Marathon April 23

CRY has a limited number of charity places available for the Virgin Money London Marathon 2017 and also welcomes anyone who has been successful in the 2017 public ballot. Demand for Golden Bond places always exceeds the number of places we have available so please apply early.

CRY Heart of London Bridges Walk July 9

Join us on the 11th CRY Heart of London Bridges Walk to raise awareness and funds. The walk’s 10km (6-mile) route will start at Potters Fields Park and finish

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at Hays Galleria, near London Bridge. Please get in touch to register your interest and we will advise you when online registration opens.

Prudential RideLondon-Surrey 100 and 46 July 30

The Prudential RideLondon-Surrey 100 starts at Queen Elizabeth Olympic Park and follows a 100-mile route on closed roads through the capital and Surrey’s stunning countryside to finish at The Mall, Westminster. The 46-mile course follows the same route for the first 27 miles, before a two-mile cut through to link up with the last 17 miles of the Ride 100. CRY has charity places for these events and also welcomes any “own place” cyclists.

stunning Hyde Park. Over 16,000 runners take part in the 13.1 mile route through central London, taking in the spectacular sights of the capital and the beautiful Royal Parks. CRY welcomes any “own place” runners who would like to join the CRY team.

Birmingham International Marathon October 15

To be staged for the first time, the 26.2-mile event will start at Alexander Stadium, the home of British Athletics. The course will then take in a number of the city’s most iconic landmarks before finishing in the city centre. CRY has a limited number of places available for this event and also welcomes any “own place” runners.

Great North Run

London Color Vibe 5K

The Great North Run is firmly established as the world’s greatest half marathon! CRY has a limited number of places available for the Great North Run and also welcomes any “own place” runners.

Get your friends and family stretched out for this amazing event where you’ll get blasted with “color” while you run the 5K in London. CRY has a limited number of places available and also welcomes any “own place” runners.

Windsor Running Festival

Spartan Race Series

The setting for the Windsor Running Festival is one of the most beautiful in the UK, the start and finish being the Long Walk with Windsor Castle as the backdrop. CRY welcomes any “own place” runners who would like to join the CRY team.

The Spartan Race Series integrates obstacles with the natural terrain to create the best racing experience possible. CRY has places for these events so if you would like to register or find out more information, please contact us.

Royal Parks Foundation Half Marathon

Parachute Jumps

September 10

September (Dates TBC)

October 8

The half marathon takes place each October, starting and finishing at the

Date TBC

Assorted dates

Assorted dates

Please visit www.c-r-y.org.uk/charityfundraising-challenge-events for further details.

Issue 70 | May to August 2016


CRY Update 70 May to August 2016 Our Fundraisers By fundraising for CRY you will be helping to: • subsidise CRY’s national cardiac screening programme • fund CRY’s bereavement support programme to provide counselling and support to affected families • support research into young sudden cardiac death (YSCD) • develop the myheart Network to support young people living with cardiac conditions • provide all CRY literature and information free of charge • develop the CRY Centre for Cardiac Pathology (CRY CCP), and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology

The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD. Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, sponsor forms and other resources. If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.

For further information please call the CRY office on 01737 363222 or visit www.c-r-y.org.uk/donations All your help is greatly appreciated.

Visit www.c-r-y.org.uk/charityfundraising-challenge-events for more information or contact the CRY office for a fundraising ideas pack.

Our Patrons The urgency of CRY’s mission and the quality of our work has compelled many high-profile personalities to give their time to become CRY Patrons. For more information visit www.c-r-y.org.uk/about-us/patrons

Sir Ian Botham OBE

Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.”

Current Patrons of CRY: Rob Andrew MBE • John Barrowman MBE • Jeremy Bates • Ben Brown • Clive Clarke • Jack Clifford • James Cracknell OBE • Nick Easter • Jonny Evans • Baroness Ilora Finlay • Simon Halliday • Kathryn Harries • Michael Hoey • John Inverdale • Tom James MBE • Pat Jennings OBE KSG • Rob Key • Gary Longwell • Pixie Lott • Emily Maitlis • Graeme McDowell MBE • Professor William McKenna • Lee Mears • Bill Neely • Lawrence Okoye • Phil Packer MBE • Sir Steve Redgrave CBE • Vincent Regan • Joe Root • Andy Scott • Roger Taylor MBE • Professor Gaetano Thiene • Gregor Townsend MBE • Andrew Triggs-Hodge MBE • Andrew Trimble • David Walliams • Alison Waters • Matt Wells • Ray Wilkins MBE • Sir Clive Woodward OBE

www.c-r-y.org.uk

There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we also accept credit/debit card donations over the phone.

Our Mailings 1. CRY Update magazine Postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; supporters’ fundraising; articles about screening, myheart, research, pathology, raising awareness initiatives, massparticipation fundraising events; and much more.

2. CRY enewsletter Monthly email newsletter; including a link to the online CRY Update magazine as-and-when a new issue of the CRY Update is published. If you would like to subscribe to – or unsubscribe from – either of these mailing lists, please let us know: • Complete the online form; www.c-r-y.org.uk/contact-form • Call the CRY office; 01737 363222 • Email the CRY office; cry@c-r-y.org.uk

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Registered Charity No. 1050845

Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD). Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions. These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS). CRY aims to reduce the frequency of YSCD through raising awareness

amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research. 1 in 300 young people CRY tests will have a potentially lifethreatening heart condition. CRY believes cardiac screening should be available to all young people aged between 14 and 35. CRY also works to guide and support families and close friends affected by YSCD. We provide information to explain what the coroner does, bereavement support, help with NHS referrals and advice on the procedures that usually follow a YSCD.

In 80% of cases of young sudden cardiac death there are no prior symptoms of a heart defect. CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge. For detailed information about cardiac conditions and CRY’s range of literature visit www.c-r-y.org.uk/ medical-information

CRY is grateful for grants or donations from trusts and foundations. We would like to thank the following for the generous support they have given us: The Bailey Will Trust • The Black Family Charitable Trust • Cecil Rosen Foundation • The Christopher H R Reeves Charitable Trust • CMS Cameron McKenna Foundation • The Davey Foundation • E C Graham’s Charitable Settlement • The Edith Murphy Foundation • The Freemasons’ Grand Charity • Global’s Make Some Noise • The Hilary Awdry Charitable Trust • James Tudor Foundation • The Kirkby Foundation • The Lynn Foundation • Mazars Charitable Trust • Mrs H C Beer Charitable Trust • Munro Charitable Trust • Pannett Charitable Trust • Pennycress Trust • Pharsalia Charitable Trust • The Rachel & David Barnett Charitable Trust • Thomas Cook Children’s Charity • Tudor Foundation Inc • Vernon N Ely Charitable Trust • The Whitehead Monckton Charitable Foundation • Willie and Mable Morris Charitable Trust

Tel: 01737 363222 Fax: 01737 363444 Email: cry@c-r-y.org.uk

Visit our websites: www.c-r-y.org.uk www.sads.org.uk

@CRY_UK

CardiacRiskintheYoung

Profile for Cardiac Risk in the Young

CRY Update Magazine - Issue 70  

CRY’s update magazine with news and information about the charity and our supporters.

CRY Update Magazine - Issue 70  

CRY’s update magazine with news and information about the charity and our supporters.

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