Cardiac Risk in the Young Update 52 May to August 2010 News and Events
• raising awareness • our fundraisers
Cardiac Risk in theYoung (CRY) Head Office: Unit 7, Epsom Downs Metro Centre, Waterfield, Tadworth, Surrey KT20 5LR Tel: 01737 363222 Fax: 01737 363444 E-mail: email@example.com Visit our websites: www.c-r-y.org.uk • www.sads.org.uk Registered Charity No 1050845
update 51 January to March 2010
Contact the Editor
Inside Update 52
Mair Shepherd firstname.lastname@example.org
Assistant Editor Alison Cox MBE Chief Executive
Contributors Dr Steve Cox
Meet our County Representatives
News from the Chief Executive
Newsletter from the Deputy Chief Executive
Other CRY News
Report from the CRY Centre for Cardiac Pathology (CRY CCP)
CRY screening report
CRY East postcard launch
Pixie Lott visits Amesbury School
CRY visits Ernest Bevin
CRY Heart of London Bridges Walk 2010
Surgery Supporters Network News
Raising awareness in the media
Fundraising Events 2011
CRY Mission statements
Deputy Chief Executive Jemma Wells Medical Secretary to Dr Mary Sheppard Rebecca Zouvani Fundraising Manager Joseph Tanner Surgery Supporters Network Adam Piekarski and Schlujaat Waraich Ernest Bevin College pupils
Now on Twitter and Facebook
Apologies and corrections Apologies to the family and friends of James Paterson and James Patrick Patterson. Due to an error in the Our Fundraisers section of Update issue 51, the photos were incorrectly attributed. We apologise for any distress this may have caused.
Cert no. SGS-COC-006445
This magazine is printed on chlorine-free paper taken from a sustainable source using vegetable-based inks. Submission guidelines We only include activities in the ‘Our fundraisers’ section that raise £100 or more. If you would like to supply a write-up or photos for any fundraising activities that you have taken part in, please email the editor at email@example.com No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means, electronic, mechanical, photocopying, recording or otherwise without prior permission of the Editor. The Editor and Committee welcome letters but reserve the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of the Editor or Officers of the Committee. Articles pertaining to health related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.
2 • CRY update • Issue 52
Meet our County
told her Paul’s story she said ARVD was now known as ARVC, Arrhythomegenic Right Ventricular Cardiomyopathy, and the
County Representative for Birmingham My
condition was not rare at all. I was then asked to get my family Davies
and I live in Halesowen, West Midlands. I had three children; my
Nicola, and my son Paul. Paul was the youngest. On 20th January 1999 the day started as normal, the girls and I went to work, Paul went to college, and their dad was away working as a long distance lorry driver. That afternoon, whilst working on a hospital ward as an agency auxiliary nurse, my eldest daughter came through the doors with a policeman. My first thought was she’d had a car accident or her dad had been involved in an accident, but nothing prepared me for what they said. “Mum it’s Paul; he collapsed and died this afternoon”. The policeman told me that Paul had been seen riding his bicycle in the school playing fields when he “just fell off and never got up”. There was a P.E. teacher on the field at the time and an ambulance was called. Paul was taken to Selly Oak hospital but was pronounced dead on arrival, he had died when he fell off his bike despite the best efforts of the teacher and the ambulance crew to save him. Paul’s dad came home that night quite unexpectedly and had to be told about Paul. We went to formally identify Paul, but we couldn’t take it in. There was our son lying in a room looking as if he was fast asleep. We couldn’t understand how he could have died. Paul was healthy, he was in the Air training corps, and he went flying and camping. He was training to be a mechanic at college; his dream was to be an aircraft mechanic in the R.A.F, and he had never shown any signs of being ill. This news just devastated us all. A post mortem revealed that Paul had died of a condition called ARVD, Arrhythmogenic Right Ventricular Dysphasia. Paul’s heart muscle had changed to fibrous tissue and fat, “like a time bomb waiting to go off”. The coroner said the pathologist had only seen 1 case in 23 years. We still couldn’t get our heads round what all this meant and just didn’t know what to do next. The story of Paul’s death was in the local papers, and a man called Roy Ball came round with a leaflet about CRY. After the funeral, I read the leaflet and saw that there were 11 heart conditions that were killers and ARVD wasn’t on there. I phoned the office and explained what had happened and they
screened as this was a hereditary condition, something that had not even entered our minds. We were screened at our local hospital, my daughters, their dad and I were told we were ok and discharged. We started to rebuild our lives as best we could. Nicola had the chance to go to Majorca for a holiday with her friend’s family, we wanted her to go and enjoy herself. She hadn’t been there many days when her friend’s mum phoned and said that Nicola had been taken to Palma hospital with chest pains after swimming. We were frantic; we hadn’t even got passports to fly out to her. The holiday rep phoned us to say that Nicola was having a lot of tests done due to her losing her brother earlier in the year. She had to stay in hospital for a week before being well enough to fly home. Again I turned to CRY, how could this happen after we were told we were fine and what should we do when she came home? We were asked to get a further referral to St George’s Hospital in London. We all went for the day and had many tests done; ECGs, Echocardiographs, X-rays etc. At the end of the day we were told the results and they were staggering; Nicola and I were diagnosed with ARVC and were given medication straight away, Lindsey was all clear but she did carry the gene, their dad was also given the all clear. My 3 sisters were asked to go for tests too, and 1 of them has been diagnosed with ARVC. Nicola was 23 when she started to have dizzy spells on exertion. I spoke to one of the new cardiologist consultants at our local hospital about Nicola’s condition and she was invited for a treadmill test. She didn’t get to start the test as she was taken straight to Coronary Care as her heart rhythm was out of control. She has now been fitted with an ICD; this is to stop her having a cardiac arrest if her heart ever goes too fast and stops. I don’t know what I would have done if CRY hadn’t been there for us and the thought of losing another child is just unthinkable but if I hadn’t had CRY’s support I would have believed that we were ok after the first family screening. I have been asked to be a County Representative for CRY, this I hope I can do well. CRY were there for me when I didn’t know what to do or where to go. If talking about CRY and supporting CRY saves another family going through the pain of losing a child then I feel Paul did not die in vain. Read the full story at www.c-r-y.org.uk/benita_davies.htm
told me that Alison Cox would phone me straight back. When I
CRY update • Issue 52 • 3
Chief Executive Alison Cox MBE CRY Founder & Chief Executive
A small group of 8 attended the East Regional Bereavement Support Day, held at The Bedford Swan Hotel in Bedford. Groups were supported by CRY Bereavement Supporters Joan Hillier & Barbara Holland.
May North Regional Bereavement Support Day 22 May
Calor Parliamentary Reception 8 June
12 people attended the North Regional Bereavement Support Day, held at The Parsonage Country House Hotel in York. Groups were supported by CRY Bereavement Supporters Julie Donnelly & Diana Bower.
CRY corporate supporters, Calor Gas, organised a parliamentary reception for CRY to raise awareness within Westminster of CRY’s work. Held in the Jubilee Room it gave newly elected MPs the opportunity to learn about CRY as well as catching up with many that have been promulgating our message for years. In particular, I enjoyed catching up with Kevan Jones who, as Minister of Defence in the last government, I had not seen for some time as well as another great CRY supporter Tim Loughton, now Minister for Children and Families.
June East Regional Bereavement Support Day 6 June
The reception was sponsored by Dr Vince Cable MP, Roger Gale MP and Graham Stringer MP. 22 MPs attended the reception as well as Calor and CRY staff and representatives - including Professor Sanjay Sharma and CRY Chair Hugh Mulcahey.
4 • CRY update • Issue 52
After a brief welcome by Annette Brooke MP, on behalf of Vince Cable, and a ‘thank you’ from Paul Blacklock, Calor’s Head of Strategy and Corporate Affairs, I gave a brief overview of CRY’s aims, objectives and achievements.
Amesbury School web hit 8 June
Pupils from Amesbury School in Surrey became internet stars after recording their own version of the Pixie Lott hit Boys and Girls. The song was recorded in memory of former pupil Sebastian English, who died suddenly at age 15 of an undetected heart condition, to raise money and awareness for CRY. The video to accompany the song quickly became a YouTube hit. The song itself is available to download from iTunes with all proceeds going to CRY.
CRY supporters James and Margaret Lancaster visit CRY office 11 June
James and Margaret Lancaster visited the CRY office to hand over keys to a new CRY van donated in memory of their son
from the CRY Centre for Cardiac Pathology discussed the role of the expert cardiac pathologist and the importance of the CRY pathology grant facilitating a fast track service for sudden cardiac death. Dr Elijah Behr gave an insight to arrhythmias in young people while Professor Sanjay Sharma talked about heart muscle conditions and other conditions that can predispose to young sudden cardiac death.
CRY Northern Ireland Patron Graeme McDowell wins US Open golf 20 June
Congratulations to CRY Patron Graeme McDowell on his victory at the US Open golf. The US Open is one of golf’s four ‘Majors’ and Graeme is the first European to win the event for 40 years.
Pixie Lott becomes CRY Patron 25 June
Robert Lancaster. The van will allow CRY to further develop the national screening service.
CRY Family Medical Conference 12 June
CRY’s Family Medical Conference was held at the Institute of Child Health in London. The 17 people who attended found it invaluable having access to experts to answer their questions. Penny Schofield, coroner for West Sussex, spoke about the role of the coroner in a young sudden death. Dr Mary Sheppard
We are delighted to announce that singer Pixie Lott has become a CRY Patron. Pixie became aware of CRY after pupils at Amesbury School in Surrey recorded a version of her song “Boys and Girls” to help raise funds and awareness for CRY in memory of former pupil Sebastian English. Pixie was invited to visit the school, after she had sent a supportive message on YouTube, and performed a surprise concert for the pupils.
CRY update • Issue 52 • 5
Pixie says “I’ve become a patron of CRY as it affects so many young people and it’s crazy that a seemingly fit and young person can just drop down dead. I feel it’s important to raise awareness and will be using my new role to spread the word.” For more information and photos from Pixie’s visit to Amesbury School, see page 11 or visit www.c-r-y.org.uk/pixie_lott_cry_ patron.htm
CRY supporter Caroline Gard spoke about the overwhelming impact on the family when she lost her son Andy which inspired her to set up CRY’s first screening clinic in Colchester Hospital. For more information and photos from the postcard launch, see page 10 or visit www.c-r-y.org.uk/east_postcard_launch_2010.htm
Leading London sports college stages a week of sponsored swims 29 June
Students at Ernest Bevin College in Tooting used National Sports Week to launch a series of “swimathons” in their local community in a bid to raise awareness and vital funds for CRY.
CRY Heart of London Bridges Walk 18 July
Over 800 CRY supporters joined CRY Patron Kathryn Harries as she led the 4th annual CRY Heart of London Bridges Walk. A huge thank you to everyone who took part on this moving occasion.
As part of this week long fundraising and awareness raising effort, over 60 of the boys (aged between 11 and 16) were screened at the school for potentially life-threatening cardiac defects by CRY’s expert team of doctors. CRY Patron Matt Wells - GB Rowing and Olympic Bronze Medallist in 2008 – found time in his arduous Olympic training schedule to pop in to launch the “swimathons”. He is a great advocate of CRY’s screening programme, and was filmed being screened to help show that the heart screening procedure is quick, easy and painless. Matt became a Patron after a family friend died suddenly. For more information and photos, see page 12 - 13 or visit www.c-r-y.org.uk/ernest_bevin_swim.htm where you can also see a video of the day
July East Postcard launch 2 July
CRY’s ‘12 a week’ postcard campaign continued with a very well attended launch of the new East postcard. A poster-sized version of the emotive new postcard – featuring the photos of 12 young people from across the region who lost their lives suddenly to previously undetected heart conditions – was unveiled at The County Hotel in Rainsford, Chelmsford on Friday 2 July.
6 • CRY update • Issue 52
Most participants were there in memory of a young person, although we also had a number of new participants who simply wanted to support CRY’s good cause. For more details and photos from walk, see pages 14 - 15 or visit www.c-r-y.org.uk/bridges_walk_2010.htm
August Professional golfer Michael Hoey becomes CRY Northern Ireland Patron. We are delighted to announce that Northern Irish professional golfer Michael Hoey has become a CRY Northern Ireland Patron. Michael has shown his support by having the CRY logo embroidered on his golf bag. Michael said “I am honoured to become a Patron of CRY and look forward to supporting the CRY screening clinics in Northern Ireland.”
Newsletter Dr. Steven Cox CRY Deputy Chief Executive This Update has coincided not only with the lead up to Christmas but also the submission of our annual accounts and report for the Trustees a document we have to submit to the charity commission and companies house each year. Within this important document we give an overview of CRY’s activities in the financial year and how this has had an impact on the funds raised and money spent by CRY. Our next annual report will cover from June 1st 2009 - May 31st 2010.
Deputy Chief Executive
The screening clinic in Wales was launched on November 1st 2008, based at the University of Glamorgan. The 3rd clinic (2 days) was funded by donations in memory of Gareth McDonald and Mark Stephen Young. The 4th (1 day) clinic was funded in memory of Mark Stephen Young. Over the year we held 13 days of testing in Northern Ireland (6 days in Derry, 6 days at the UU Clinic at Ulster University in Belfast and 1 in Omagh at Tyrone County Hospital), 2 days at Liverpool John Moores University and 3 clinics at Colchester General Hospital.
Much of what we submit has already been read about, particularly the fundraising and raising awareness, in past Updates. However, it is only usually in this annual report that the full impact of CRY’s screening programme can really be seen.
CRY Philips Test My Heart tour Philips Test My Heart tour was launched in Durham on 2nd May 2009. The second half of the tour occurred in the first month of this annual year. In June the Philips Test My Heart tour events included Nottingham University funded in memory of Neil Desai. The event is Sidcup was held at a Somerfield supermarket and funded in memory of Adam Donnelly. Morrisions provided the venue at Welwyn Garden City in memory of Mathew Blease and CRY Patron Andy Scott facilitated the final event of the tour to be located at Brentford FC in memory of Tom Clabburn.
Cardiac Screening In this financial year CRY screened 7,067 young people. There were 188 screening events, i.e. alternate days every week somewhere in the UK. These events are split into ECG only screenings and the more comprehensive testing where each person has an ECG, ECHO and longer consultation with the doctor.
Screening in sport CRY also provides full cardiac screening GB athletes including world and Olympic champions, funded by Philips. The teams included GB Paralympic Swimming; Diving; Rowing, Podium Swimming; Badminton; Canoeing; Cycling; Taekwondo; Boxing; Squash; Paraplegic Shooters; Waterpolo.
There were 168 ECG only screenings where 6,700 people were reviewed and 20 ECG and ECHO testings last year, screening 367 people. Whilst screening in sport is important, guided by European recommendations and in some cases mandatory for the athletes, the significant majority of our screening services (over 90%) are for the general public.
We continue to screen the Lawn Tennis Association (LTA) players, the England Cricket (Seniors, U18), Sky Cycling and many of the leading Football clubs including Manchester City FC, Fulham FC and Tottenham FC.
7,000 people were screened last year, 1 in 300 of whom will have been diagnosed with a potentially life-threatening condition. 70 will have been diagnosed with a condition that, although not imminently life-threatening, through monitoring will prevent complications later on in life. After their tragedy a family will often raise funds specifically for screening, working to potentially save the life of someone else’s child even though it is too late for their own. The 9th annual ECG/ECHO screening events - in memory of David Staff and Neil Wickers was held at the Darwen Access Point and in memory of Ian Bowen held at the United Reform Church, Redcar. The West Midland ECG Testing Campaign founded in memory of Andrew Ball, David Bick, Alison Linforth, Jenny Pearce and Kay Wilson held an event at Wolverhampton University. The 14th ECG screening event in memory of Lewis Marsh was held at the Memorial Park, Sandhurst. The first screening in memory of Martyn Luckett was held in Cornwall, a screening in memory of Marcus Armstrong was held at Harwich and Parkeston football ground, and an event in memory of Nathan Butler was held at Porthill Park Cricket Club. Further events were held in memory of Zoe Teale in Birmingham at the Ramada Hotel and at Bishop Stortford High School in memory of Caroline Johnstone. CRY has continued to screen King Sturge. In 2008, the company agreed to fund ECG screening for all young employees of all their UK offices after the sudden death of their employee Jonathan Leigh. This year, CRY’s screening team visited 2 of their venues. Once again there was a two-day event on the Isle of Man where hundreds of people were screened by CRY for the charity Craig’s Heartstrong Foundation, which raised money for screening in memory of Craig Lunt. CRY also used the mobile screening unit provided by Philips to screen their employees in Chichester, Guildford, Glemsford, and Glasgow. CRY’s school screening continues to be an important factor in making these services readily available to young people. This year we screened Eton College, Kings School, Millfield School, Canford School, Queen Elizabeth Hospital School, Cranleigh School, Bryanston School, Bishop Stortford College, Channing School and Codicote School sponsored by a local organisation. We also offered testing at a number of Universities including Chichester University, the Nottingham University FC as well as 4 days of testing at Loughborough University as an extension of the Test My Heart tour funded by the Gwyneth Forrester Trust.
Rugby continues to work with CRY to screen their players including elite squads in the RFU (U20s, U16s, U18, Seniors and Sevens Squads), the elite players in the RFL and the Worcester Warriors as well as clubs like Westcombe Park RFC Research CRY’s research fellows are supervised by Professor Sharma and are trained to have considerable expertise in athletes’ hearts, the cardiomyopathies and ion channel diseases. Each fellow will take forward a specific area of research. The papers that were published in this period include; Rawlins, J., et al.,“Ethnic Differences in Physiological Cardiac Adaptation to Intense Physical Exercise in Highly Trained Female Athletes” Circulation February 22nd 2010. Papadakis, M. and Sharma, S.“Electrocardiographic screening in athletes: the time is now for universal screening.” British Journal of Sports Medicine 2009 Vol.43, p663-668. Papadakis, M., et al., “The magnitude of sudden cardiac death in the young: a death certificate-based review in England and Wales.” Europace 2009 Vol.11, No.10, p1353-1358. CRY’s Centre for Inherited Cardiovascular Conditions and Sports Cardiology at St George’s Hospital Tooting. Every year Professor Sharma and his team of doctors (funded by CRY families) will see more than 2,000 family members who have either suffered the sudden death of one of their family members, have a family member diagnosed with an inherited disorder, have worrying symptoms or have been identified in our screening programme as potentially at risk. It is hard to convey the true extent of what CRY supporters are achieving by not only taking forward programmes in their region or community, but also by supporting our core initiatives. I hope this brief overview gives an insight into the considerable progress being made. Best wishes,
Steve Cox Deputy Chief Executive
CRY update • Issue 52 • 7
CRY News colleagues and peers. The Young Investigators Award has strengthened my desire to further pursue a career in research in Sports Cardiology and I have no doubt that it will open up new professional opportunities for me in the near future.”
Gordon Fraser and Judy Calverley (captain and lady captain) Commemoration of CRY’s 15th anniversary continued with a selection of limited edition 15th anniversary merchandise. This included a key-ring, t-shirt and pen. Further additions to merchandise included a fabric patch a 12-panel mini football, and, to coincide with the CRYSwim 2010 initiative, an ecofriendly drawstring ‘swimbag’.
CRY was fortunate to be chosen by the captain and lady captain to benefit from the Betchworth Park Golf Club Charity ProAm, one of the most challenging Pro-Am events in Surrey and now in its 8th year. Teams consisted of 3 Amateurs and 1 PGA Professional.
Michael Papadakis, one of CRY’s research fellows, won European Young Investigator of
the Year. The
presented at EuroPRevent 2010
meeting place for Science in Preventative Cardiology, run by the European Society of
unique opportunity for young investigators to expose their most innovative and novel research to the scrutiny of panels of renowned experts in the specific fields. Michael’s presentation ‘Ethnic differences in the electrocardiographic repolarisation patterns in elite male athletes and short-term outcomes’ was a result of the research he has done as a research fellow for CRY. Michael said “The Young Investigators Award was my first
As part of the ‘Test My Heart’ screening tour in 2009, Professor Sanjay Sharma recorded over 50 video clips, answering some of the most commonly asked questions about screening and young sudden cardiac death. These clips have been on the ‘Test My Heart’ website and on YouTube for some time, and from July became available to view via the Q&A page on the CRY website.
international research award. It was the end product of three years of hard work in the field of Sports Cardiology and the proof that you should always strive for the unreachable. Even though I dared to dream of winning the award, I never thought that dream would materialise. I can think of a million reasons why a young researcher would shy away from putting himself forward for such an award, no less the intense anxiety of being judged by a panel of experts. At the same time however, it is difficult to express the immense feeling of elation when your name is announced as the winner of such a prestigious award and the sense of achievement generated by the recognition you receive by your
8 • CRY update • Issue 52
Report from the CRY
Centre for Cardiac Pathology
By Jemma Wells, Dr. Mary Sheppard’s Medical Secretary at the CRY CCP.
The summer months have shown a steady flow of referrals with peaks in June and July. This is an increase on previous years, but our turnaround time for both months was less than 7 days. During August the department remained busy and our average turnaround time saw an increase to 15 days, due to Dr Sheppard taking leave. During May to August Dr Sheppard has attended inquests in
Alfa is currently researching
London, Gloucester and Bournemouth where she met families
cases of SCD that mimic
dealing with sudden death.
and histologically with the Arrhythmogenic right ventricular cardiomyopathy (ARVC) in
assistance of Sofia. Dr Anna
sudden cardiac death (SCD) is also one of our main research
interests following funding from a family that experienced SCD in
SCD with acute myocardial
two generations with this disease. We have the largest autopsy
collection of ARVC in the UK and are currently investigating
coronaries and her abstract
the demographics, pathology, medical history and correlating
has been accepted for poster
these results with family screening. We are also examining left
presentation at the next Winter PathSoc in January. Dr Kay
ventricular variants of ARVC.
Lawson spent a period of 6 months as a registrar at the Royal
Brompton Hospital between 2009 and 2010. During her time Medical BSc student Hudaifa
she worked on a small project and had it accepted as a poster
Alani, under Dr Sofia de
presented to the annual joint meeting of the BDIAP/Path Soc in
June of this year.
sudden dseath in association
Dr Sheppard was involved in producing 6 research papers and
with alcohol and his work
7 case reports during May to August which were published in a
variety of peer-reviewed journals including Heart, the Journal of
the American College of Cardiology, Circulation: Cardiovascular
Genetics, Cardiovascular Pathology, European Heart Journal and
Journal of Clinical Medical Research.
Pathology (BDIAP)/ Pathological Society of Great Britain and Northern Ireland (PathSoc) meeting held in St Andrews at the
In June, Dr Sheppard taught on the short course, at the Royal
end of June this year. Sofia has also worked closely with medical
Brompton Hospital, ‘hands on’ imaging/pathology session for
student Roxani Georgiou who has now completed her project on
CMR (Cardiac Magnetic Resonance).
SCD during emotional stress and it is now being submitted. Dr Sheppard was invited to speak at 4 national meetings and 1 Dr Keiko Ogo, a Japanese
international meeting. These included ‘The role of the pathologist
Cardiologist who has been
in identifying heart conditions’ for the British Heart Foundation,
‘SCD – what should we expect from the pathologist?’ for the British
2009 returned to Japan in
Cardiovascular Society and ‘Too old to play?’ at EuroPrevent in
August. She gave two oral
presentations of her work at the British International
Following the success of previous meetings Dr Sheppard is
Congress of Obstetrics and
organising a unique two day course: ‘Adult Cardiovascular
Gynaecology (BICOG) annual
Pathology’ during May 2011. The course is organised with the
meeting in June. Dr Ogo will
National Heart and Lung Institute of Imperial College London and
be submitting her paper for publication in the coming months.
is aimed at any Pathologists, Genetics Nurses, Coroners and Trainee doctors with an interest in cardiac pathology.
Dr Sheppard is active in training cardiac pathologists of the future and we have two registrars (junior doctors) in the department at a time to learn about cardiac pathology. Dr Kareem Abou-
CRY update • Issue 52 • 9
CRY Screening report Between May and August 2010, CRY screened just over 2,000 people with family memorial screenings and sports screenings being the majority of these.
3 schools held screenings: Channing School (London), Ernest Bevin School (London), and the Bishop Stortford School (Hertfordshire) where the screening was held in memory of Caroline Johnstone. In total, 243 were screened at these events.
700 people were screened at 3 family memorial screenings. These were held in memory of Adam Donnelly (Westcombe Park RFC), Nathan Butler and Paul Davies (Molineux Stadium) and Craig Lunt (Isle of Man).
At our regular CRY clinics, 238 were screened at the clinics in Liverpool John Moores University, University of Ulster and Colchester Hospital.
Sports screenings included Rugby Football league, the Lawn Tennis Association, Tottenham FC, EIS sports clinics, England Rugby Seniors and Man City FC. 812 athletes were screened in total.
At the first ICAP clinic, where those born in 1995 in the south east are able to get free screening, 41 youngsters were screened. This screening was held at the recently launched CRY Centre for Inherited Cardiac Conditions and Sports Cardiology Clinic in St. George’s Hospital.
What happens at a screening?
The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within your heart. The ECG involves lying down quietly and it only takes 5-10 minutes. Small stickers are placed at strategic points on your chest, arms and legs. Flexible leads (known as electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of your heart is recorded and printed out. This part of the process only takes 2-3 minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire. If a more detailed image is needed (about 5% – 10% of individuals), an echocardiogram (ECHO) can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of your heart’s structure and how well it is functioning. This takes about 30 minutes to perform. CRY uses top of the range machinery donated by Philips for the screening programme. The screening programme is under the aegis of Professor Sanjay Sharma.
CRY East postcard launch CRY maintained the momentum of the ‘12 a week’ postcard campaign in 2010 with the East regional postcard launch on 2 July. The postcard includes a picture of Andrew Gard who died suddenly from a massive heart attack in 1997, two days before his 18th birthday. His mother, Caroline, spoke of the shock and disbelief at the news and the effect on the family.
Bereaved families from across the East of England (Essex to Lincolnshire) joined together to help launch CRY’s new ‘12 a week’ postcard campaign in their region of the UK. A poster-sized version of an emotive new postcard - featuring the photos of 12 young people from across the region who lost their lives suddenly to previously undetected heart conditions – was unveiled at The County Hotel in Rainsford, Chelmsford, on Friday 2 July.
10 • CRY update • Issue 52
Hundreds of postcards will be distributed by CRY families and supporters to people across the East of England urging them to send it back to their local MP. It is hoped the influx of postcards will encourage MPs to add their support to the campaign and join the Cardiac Risk in the Young All Party Parliamentary Group. For more information, please visit www.c-r-y.org.uk/east_postcard_ launch_2010.htm
Singer Pixie Lott has become a Patron of CRY following her surprise visit to Amesbury School in Surrey. The pupils at Amesbury School recorded a version of Pixie’s song “Boys and Girls” to sell through iTunes to raise money for CRY in memory of former pupil Sebastian English - who died suddenly at age 15 of an undetected heart condition. The song was accompanied by a high-quality video which quickly became a hit on YouTube and came to Pixie’s attention via her mum. Pixie decided to visit the school to perform a surprise concert for the pupils, and during her visit she agreed to become a Patron of CRY. She said, “I’ve become a patron of CRY as it affects so many young people and it’s crazy that a seemingly fit and young person can just drop down dead. I feel it’s important to raise awareness and will be using my new role to spread the word.”
CRY update • Issue 52 • 11
On Tuesday 29 June 2010, 70 students from Year 10 in Ernest Bevin College were offered free cardiac screening by the heart charity Cardiac Risk in the Young (CRY). As part of this event and to raise awareness and vital funds for CRY, hundreds of Bevin boys raised money for the charity with a series of ‘swimathons’. CRY was founded in May 1995 to raise awareness of conditions that can lead to young sudden cardiac death (YSCD). As well as campaigning and lobbying and the provision of its subsidised cardiac screening programme for young people, the charity also provides counselling and support to bereaved families and individuals who may be diagnosed. During the day two intrepid young journalists (Adam Piekarski and Schlujaat Waraich) had the exciting opportunity to interview three key ambassadors for the charity: Professor Sanjay Sharma from St George’s Hospital, Tooting; CRY’s Chief Executive and Founder, Alison Cox MBE; and Olympic medallist, Matt Wells.
sport and should seek less intensive sports such as golf or bowls. He also says that in extreme cases pills, called “beta blockers”, can slow the heart down therefore reducing stress on it. Also, surgery and pacemakers can cure some causes of sudden arrhythmic death syndrome (SADS).
Adam Piekarski (10EJ) and Schlujaat Waraich (7NW) write: Sudden cardiac death in the young claims the lives of at least 12 apparently fit and healthy people, aged 35 and under, in the UK every week. 80% of young people have no signs or symptoms and so the only way to detect a potentially sinister cardiac abnormality is by having this simple screening test.
SADS often carries no symptoms at all. Approximately 20% of sufferers have symptoms, which include fainting, blackouts and palpitations. Professor Sharma said that it is important to screen fourteen and fifteen-year-olds because once someone is older it may be “difficult to stop” them participating in their sport of choice and that it is easier to train them to take different paths in life when they are younger. He adds that it’s important to “raise awareness” of SADS by going to schools and informing parents. Sanjay Sharma started working for CRY in 1996 and was inspired by the founder, Alison Cox.
For the first time ever, CRY chose to come to Ernest Bevin College to offer free screening to fourteen and fifteen year olds (born in 1995 – the year that CRY was founded). This is because the new centre for Inherited Cardiac Conditions and Sports Cardiology is now based at nearby St George’s Hospital, Tooting. We started the afternoon by talking to Professor Sanjay Sharma, 46, who started supporting Cardiac Risk in the Young (CRY) in 1996 and is currently working at St George’s Hospital. He states that: “12 people die every week” in the UK and the majority of these people are only 18 to 19 years old. He added that these people are “losing 60 years of life”, but this life can be saved by simple tests. Professor Sharma advises those who could potentially die from sudden cardiac death (SCD) should not participate in intensive
12 • CRY update • Issue 52
CRY’s Chief Executive and Founder, Alison Cox MBE, founded CRY in 1995. Cox set up the charity after her son was diagnosed with SADS and was forced to undergo surgery. She told us that her son went through “a battery of tests” and that “his heart was a funny shape”. Fortunately, he survived. However, this experience encouraged her to start a charity to help the whole country gain awareness of these relatively unknown diseases. Before CRY was founded, there was no specific charity or organisation that specialised in SCD and SADS. The CRY charity provides the vital counselling and support for bereaved families and individuals who get this often terrifying diagnosis.
Left to right: Ms Lizzie Bosley, Schlujaat Waraich, Matt Wells and Adam Piekarski As part of raising awareness and vital funds, Cox worked with Andy Burnham, then Secretary of Sport and Media (currently running for labour leader), to launch CRYswim 2010. These events were a series of ‘swimathons’ and swimming initiatives. Ernest Bevin College supported CRY by hosting a week of sponsored swimming. Cox believes that she has a “real link with Ernest Bevin College now”. She said, “You are a very sporty school, but also very academic”. She continued by describing the school as an “inspiration for Andy” when he takes part in the gruelling Great North Swim, across Lake Windermere in the summer.
medals at five consecutive Olympic Games from 1984 to 2000. He said, “I have met him many times and when I was training for the Sydney Olympics. He was at the training camp everyday and I ate breakfast, lunch and dinner with him”. Overall, we believe that CRY has had a positive influence on Ernest Bevin College and we appreciate the free screening, support and knowledge that CRY provided to the college and we will not forget this amazing event.
Olympic rower, Matthew Wells, is also a great supporter for the charity. Matthew Wells became a patron of CRY after his wife’s brother’s friend was sailing and then suddenly passed away. We asked Wells about his sporting career as Ernest Bevin College is a specialist sports college and many students have aspirations to become Olympic athletes. He told us that he was first selected for the double sculls in the British Rowing Team at the 1997 World Championships. The double went on to win a junior gold medal. Wells has also won Bronze in a single scull at the Under-23 World Championships in 1999 and more recently won a Bronze medal in the men’s double scull at the 2008 Beijing Olympics. Matthew Wells, who now lives in Putney, said that he does 5 hours of rowing a day and covers 24 kilometres during a training session. He stated, “Me and my friends do weights every day for 3-4 hours”. His diet contains 5,000 calories a day (approximately double the average)! Wells’ role model is Steve Redgrave, who won gold
Professor Sanjay Sharma at Ernest Bevin Sports College
CRY update • Issue 52 • 13
London Bridges Walk
Congratulations and thank you to everyone who took part in the CRY Heart of London Bridges Walk on Sunday 18 July, led by CRY Patron and international soprano, Kathryn Harries. A record 878 adults, children and dogs took part this year. Most of the participants were taking part in memory or support of a young person - although we also had a number of new participants who simply wanted to support CRY as a good cause. A fantastic total of nearly £44,500 has been raised so far. The day started with check-in at the beautiful Victoria Embankment Gardens. The participants then picked up a CRY balloon and made their way to the bandstand for speeches by Alison Cox MBE (CRY Founder and Chief Executive) and Kathryn Harries. This was followed by a minute’s silence and then a group warm-up, once again led by the legendary Kirk Douglas, fitness instructor. On the stage with Kirk to encourage everyone to join in were; Luciano Arenare, Sarah Bates, Ellen Clabburn, Wayne Griffiths, Nema Hafezi-Bakhtiari, Helena Lacey, Alice O’Driscoll, Sian Regan, Jamie Sanders and Ketan Shanti.
In the meantime, the press team were busy taking photographs and interviewing groups for local press coverage. After picking up a bottle of water and cereal bars, the walkers set off in small groups. The final group, doing the shorter wheelchair friendly route, was led by CRY Representative Martin Appleby. After crossing Golden Jubilee, Westminster, Waterloo and Blackfriars bridges, there were crisps and drinks available for the walkers to top up their energy levels. Participants made their way to the finish at the stunning Hays Galleria, having crossed London Bridge and Tower Bridge, passing HMS Belfast. Certificates and bars of chocolate were handed out by Foresters volunteers and a fresh fruit punch, made by volunteer Koula, was served. The staff and volunteers on the information and merchandise stalls had a very busy day and attracted a lot of interest from tourists and other visitors.
We are very grateful to; St Martins Property Company; CB Richard Ellis; Westminster City Council Parks Office and Events Team; Foresters; Chubb Insurance and Sainsbury’s St Clare’s, Hampton for sponsoring the event, either by providing the venues or making donations towards the costs of the event, refreshments and snacks. Thank you also to the Hays Galleria businesses that agreed to display leaflets, balloons and CRY collection boxes at their premises for this event. A huge thank you to all the CRY staff who helped out on the day and to the following volunteers for all their help before, during and after the event: Martin Appleby; Nigel Bennett; Nick Bond; Emma Brown; Paul Clabburn; Tim Collie; Lorraine Connor; Kirk Douglas; Philip Eastty; Vernon Elmes; Fran Griffin; Claire Griffin; Karla Griffith; Carol Grimsdale; Lauren Harvey; Barbara Holland; Jim Holland; David Howell; Rita Howell; Bethany Laws; Nicola Lewis; Koula Louki; Irena McCabe; Maureen McGregor; Patsy Mourtzinos; Joelle Owusu; Diana Parratt; Harold Parratt; Andrew Regan; Sian Regan; Zoë Rodd; Alyson Stokes; Christine Tolley; Mark Tolley; Sue Walton. Volunteers helped with deliveries, pre-event telephone calls, assembling walk packs, marshalling, registration, balloon inflation, making and serving punch, handing out water, securing products on our behalf, etc. We really couldn’t run an event of this size without the help of our dedicated volunteers.
14 • CRY update • Issue 52
London Bridges Walk
Photographs courtesy of Ash Knotek and Jamie Sanders
CRY update • Issue 52 • 15
Joseph Tanner was a marathon runner until in 2008, aged 26, he collapsed after competing in the Hastings half marathon. This is his story. Since March 16 2008 I haven’t run a mile, to feel my feet pound the ground, to run into my void, for so long I’ve not had my escape. On Sunday I finished reading the book ‘What I Talk About When I Talk About Running’, maybe I shouldn’t have read it. It is sort of the memoirs of Haruki Murakami a long distance runner, who has done many marathons. I’ve not been able to switch that side of me off, the many times I’ve walked along the seafront at night and the runners pass me and
people from SSN and hopefully they will be able to pick me up from this dark place. I know I’m one of the lucky ones, I don’t have to take medication like beta blockers, all I have is my little friend to the end!
I’ve broken down in tears.
On Saturday 28 November, I
I didn’t think I’d ever put on my running shoes again, but by the time
and went for a run. I have to
finally stopped making excuses
you read this I’ve probably run a couple of miles.
admit it felt weird to be running
I’m not going to run a marathon again, though I would never say
to get used to my box while
never, a man can have dreams. On Sunday 22 November 2009 at the CRY SSN meeting cardiologist Dr Sanjay Sharma was there and he said that I could run again, whilst advising against
again after so long, I also had running. I sent a couple of text messages
marathons and pushing myself.
to members of the CRY SSN
I won’t lie, I am still a little scared that something may happen or go
very supportive. I ran for over
while running and they were all
Joseph after one of his previous races
wrong, dying not fun!
an hour, I probably covered roughly 7 miles, I just felt so alive.
If I was to die tomorrow, be it by running would it not make you
I think every time I lace up my trainers there will always be a little
happy knowing that I died happy? I was able to be me again.
fear in the back of my mind that I need my little back up.
If my little box does go off and I have a shock, I’d contact a couple of
Joseph Tanner and James Doherty at an SSN meeting
16 • CRY update • Issue 52
Our In Memory of Philip Abraham The Southampton Babes took part in the CRY Heart of London Bridges Walk 2010 and raised £1,158. The Southampton Babes were Mary Abraham, Clive Allen, Valerie Azzopardi, Eileen Batchelor, Jennifer Brock, Jeffery Caws, Natalie Caws, Stephanie Caws, Kate Eastham, Janet Gotham, Janet Hecks, Michaela Kavanagh, Naomi Key, Faye Loader, Melita Marchant, Amy Matthews-Marks, Carol Moger, Melissa Moger, Claire Moger, Ron Morgan, Jenny Morgan, LeAnna Rain Perry, Hilary Price, Michael Prince, Val Prince, Jill Sarrazin, Susan Smith and Christopher.
For anyone who is touched by Rob’s story, we would be ever so grateful to hear from you. And we’ll be ‘Running for Rob’ and raising money for CRY for a long time to come in honour of our friend – he’ll always be with us.” Team Rob Allan.
In Memory of Jessica Allan We have received a donation of £236 from Iain Allan, through online fundraising, for his parachute jump. In Memory of Robert Allan • We have received donations amounting to £552 from Jane Allan.
• “On the 24th April Ockham Cricket Club held a charity cricket match in memory of Robbie Allan and raised £686.50.” Kevin Hope forwarded the donation.
• Matthew Allan sent in a donation of £150 in respect of the London to Paris Bike Ride.
• Team Rob Allan raised £5,500, through online fundraising, in respect of the South Coast Half Marathon and 10k.
“On the 15th August, Rob Allan’s school friends took part in the South Coast Half Marathon and 10km in Seaford to raise money for Cardiac Risk in the Young (CRY). The event was in honour of our best friend Rob who died on March 22nd in his sleep - he had just turned 22. We all attended Howard of Effingham School and have remained as close as we all were in our happy school years. Rob played 1st team rugby and cricket and had been an outstanding goalkeeper for several local youth sides - sport was his real passion. Having been the ultimate team sport player it seemed only fitting that we should all get together and take part in something that he would have loved, and hopefully been proud of us for doing. There were some outstanding performances on a windy day at the seaside which saw amongst us James Warren win the 10km and Matt Arnold the Half Marathon. A sliding finish from Dave Camplin over the finish line was a particular highlight for all the hardy parents and supporters that we had watching. With 18 of us running in our team vests we were quite a sight to behold! Rob was our gentle giant and there is not a day that goes by in which he is not missed. Celebrating the life of such a wonderful person has not only helped us through this difficult time, but also brought all those together who were lucky enough to have known Rob. Reading the dedications on the fundraising page is enough to see what an inspiring young man he was.
• Pauline and Mike Allan, Carl and Nick Dixon, and Alastair,
Laura, Mandy, Suzy and Tom Ghaleb took part in the CRY Heart of London Bridges Walk 2010 and raised £511.
In Memory of Raymond Andre Ruth Tsegai sent in a donation of £150 from the Waitrose Staff football match in memory of Raymond Andre. In Memory of Ronnie Armitage Alison, Amanda and Angela Armitage, Todd Harper, David Launder and Martin Wilkinson took part in the CRY Heart of London Bridges Walk 2010 and raised £1,442.31. In Memory of Marcus Armstrong Tony Armstrong forwarded donations totalling £510, on behalf of Mr Steve Race. In Memory of Luke Arnold Adam Dullage raised £946, through online fundraising, in respect of his static line parachute jump. In Memory of Stuart Attridge • “Please find enclosed a cheque for £108 for old Christmas cards I sold to a friend.” Rosemary Attridge.
• “Our Community Service Committee, on behalf of the Rotary Club of Epsom, has agreed a donation of £300 in support of CRY’s valuable work.” Richard Harris, Chairman of the Community Service Committee, Rotary Club of Epsom, sent in a donation of £300. • Rosemary Attridge sent in two donations: £1,800 from Reigate
Rotary Club and a further £114 from the sale of Christmas Cards.
• Georgina Bate and Philippa Craigie took part in the CRY Heart of London Bridges Walk 2010 and raised £200.
CRY update • Issue 52 • 17
Fundraisers In Memory of Andrew Ball Roy Ball forwarded a donation of £100 from the Rotary Club of Aston, Birmingham.
In Memory of Andrew Ball and
Roy Ball forwarded a cheque for £8,000 from Service Birmingham Staff Benefit Scheme. This follows an application by Sandra Pearce and Roy Ball to Service Birmingham Ltd for funds for ECG screening in an inner city area of Birmingham. In Memory of John Barker Stephen and Julie Barker forwarded a donation of £2,300 collected from their friends. In Memory of Cecilia Barriga Mike Fleet sent in donations totalling £135.
In Memory of Mark Batson Team ‘Big Un’ took part in the CRY Heart of London Bridges Walk 2010 and raised £1,880. Team ‘Big Un’ were Michelle Devine, Janet Batson, Kate Batson and Paul Batson. In Memory of Edward Beatty Eddie and Pauline Beatty took part in the CRY Heart of London Bridges Walk 2010 and raised £300. In Memory of Gareth Thomas Beckett Team G Man took part in the CRY Heart of London Bridges Walk 2010 and raised £315. Team G Man were Karen Aldred, Maureen Beagley, Hannah Beckett, Simon Bennett, Emma Horsley, Lynne Horsley, Katie Knapman, Sandra Knapman, Richard Pikesley and Gemma Walker. In Memory of Sarah Anne Bennett • Carole Bennett sent in a donation of £5,000 in memory of her daughter, Sarah.
• Jo Temple took part in the Eton Sprint Triathlon and raised £860 through online fundraising. • Carole Bennett sent in a donation of £250 from the fundraising event held on 17th July in her local pub, The One Bell in Crayford.
In Memory of Kasia Ber The Peterlee Leisure Centre held a fundraising evening in memory of Kasia and raised £150. This was sent in by John Steele.
18 • CRY update • Issue 52
In Memory of Steven Bicker “On Sunday 18th July we held a charity cricket match in memory of our youngest son Steven, who died in January 2006, aged 19 years. This was the fourth time we have held the event, with all the proceeds going to CRY.” Carol, Glen, Gary, Lisa and Toby Bicker sent in a donation of £441.50. In Memory of Max Biles We have received a donation of £1,350, through online fundraising, in lieu of floral tributes for the late Max Biles. In Memory of Mathew Blease Sir Frederic Osborn School, Hertfordshire, sent in a donation of £257.36. This was raised during a sponsored football match and food sales. In Memory of Graeme Blenkinsop “We are pleased to inform you that a further charity football match was held on 2 May 2010 in our son’s memory, this time organised by Graeme’s friends. They raised a fantastic sum of £500.” Jan and Paul Blenkinsop. In Memory of Daniel Boreham “I am pleased to enclose a cheque for £222.87 which was raised at our annual Teachers v Sixth Formers football match. This is in memory of Daniel Boreham, a former Sixth Former who died suddenly.” Mrs C Hills, Pastoral Manager, Chelmer Valley High School. In Memory of Jack Boulton • “I have pleasure enclosing a cheque totalling £180. Since the death of my nephew Jack I have pledged to undertake some challenges this year, starting with the Bath Half Marathon in March which I ran with my sister, June Boulton (Jack’s Mum).” Elizabeth Roberts.
• “Please find enclosed donations totalling £3,114.68 for Jack’s
Memorial Fund which have been collected from two events. The main donation was from the Bath Half Marathon which I ran in March. The team ran the event in CRY T-shirts and had Jack’s name and picture on the back. It was an emotional day and the team consisted of June Boulton (Jack’s mum); Liz Roberts and Kathryn Knibbs (Jack’s aunties); football team members Ian and Adam Rider and Adam Hicks from Saltford; and friends Richard Ollis and Russell Millward. All finished in good times ranging from 1 hour 35 minutes to 2 hours 10 minutes, with a few sore feet and muscles but a brilliant overall effort. June raised a grand total of £3,368 with lots of support from friends from work and a generous donation of £500 from her employer Rotork. The additional money of £218.58 was from a casual wear day at work.
• Kathryn Knibbs took part in the Bath Half Marathon and sent in a donation of £840 and raised a further £245 through online fundraising.
In Memory of Sam Bradley • Tom Bradley took part in the Milton Keynes 10K and raised £760 through online fundraising.
• David Boulton raised £497, through online fundraising, in
• Luigi Palladini took part in the Milan half marathon, raising
respect of the Bath Half Marathon.
• Russell Millward raised £736.12, through online fundraising, in respect of the Bath Half Marathon.
• “I ran the Bath Half Marathon with some lads from our football team in memory of our friend, Jack Boulton.” Adam Rider sent in a donation of £160.
• “I have great pleasure in enclosing a cheque for £2,500 which
was raised at a charity golf day at our club. In August last year, our junior Captain, Jack Boulton, was tragically taken from us. I would be grateful if you would ensure this money is dedicated to Jack from his many friends at Saltford Golf Club.” Barrie Morris, Club Captain [PHOTO: ‘Saltford logo’]
• Mrs J Boulton sent in donations totalling £2,070; £70 from
a sponsored Bike Ride (home from school, approximately 35 miles) and £2,000 from a Charity Cricket Match between Celebrity X1 and Club U25 X1.
• Mrs J Boulton sent in a donation of £3,521 in respect of the Sarsen Trail Fundraising Walk.
£870 through online fundraising and forwarding a further donation of £150.
• The Royal Latin School
raised £1,282.23 in March in memory of Sam Bradley.
In Memory of Katrina Brown • CRY Patron Bill Neely has raised a total of £4,641.35 after taking part in the Virgin London Marathon.
• Robert Mullane has raised
a further £350 for the Virgin London Marathon 2010, taking the total raised to £4,587.21.
• Mrs J Boulton took part in the Sarsen Trail and raised an additional £200.
• David Boulton raised a further £1,854, through online
fundraising, in respect of his team completing the Sarsen Trail. This makes a total amount raised of £3,721. “On 2 May 2010, the Rotork Red Socks battled the wind and rain to complete the Sarsen Trail, a 26 mile walk between Avebury stones and Stonehenge, to raise money for CRY. There were 16 team members - June Boulton, Liz Roberts, Helen and Maddy Ollis, Gill Curtin, Tracey Savery, Richard Knight, Dave Pegg, Andy and Chrissy Moore, Liz Tyler, Dawn Billett, Donna and Kevin Short, Shelley Pike and Robert Knoyle - and we all finished. The team suffered sore muscles and blistered feet but it was worth it. A big thank you to Rotork who gave a generous donation and to the kit sponsors AKL Bearings and Precision Profiles, Rotork customers, family and friends who all gave so generously.” June Boulton.
In Memory of Alex Buckler Jacob Boston raised £1,452.12, through online fundraising, in respect of the Gobi Desert Run. In Memory of Craig Burke Janine Curran took part in the Liverpool Triathlon and raised £400 in memory Craig. In Memory of Robert Burns Once again Doreen Burns a r r a n g e d the five-aside football tournament in memory of her son, Robert, who passed away on 9th May 2006, aged 19. Doreen Burns sent in a donation of £1,200. Doreen Burns with Robert’s cousin Michael
CRY update • Issue 52 • 19
Fundraisers • Angela Butler sent in donations totalling £380 from a charity golf day organised by Tony Liversage.
• “Please find enclosed cheques totalling £930 for Nathan’s
fund which are donations from a joint 65th birthday party hosted by Katie and John Burgess. Katie and John organised a fabulous lunchtime buffet followed by an afternoon of entertainment at Crewe Hall and asked for donations for CRY instead of presents.” Angela Butler
• “Please find enclosed a cheque for £400 for Nathan’s fund
which are donations received from Daniel Bailey and Steve Maguire. They both took part in the Potters Arf Marathon on 13th June. Daniel completed it in 1hour 40 minutes but unfortunately Steve suffered an injury and had to pull out after 5 miles - he still managed to collect all his sponsor money though!” Angela Butler
• Angela Butler forwarded a donation of £522.45 from the Soroptimists International, Bilston & District, in respect of the Wolverhampton screening.
In Memory of Tom Burton Tim and Jim Burton have raised a further £514.50 for the Virgin London Marathon 2010, taking the total raised to £3,859.82.
In Memory of Graham Button The Button family organised a charity Spring fete in Chingford to raise money and awareness for CRY. “Our Spring fete was held at St Edmunds Church in Chingford on the 22nd May 2010.
In Memory of Nathan Butler • “This money was raised by staff and members of Esporta Health & Fitness which is the gym that I go to. They took part in a 24-hour spinathon at the Esporta on 15th/16th January, which was a gruelling task but which they all did extremely well to complete.” Angela Butler sent in a donation of £1,494.
• Anthony Carter raised £228, through online fundraising, from the Esporta Stoke 24 hour spinning event.
• Angela Butler sent in a donation of £100 from a raffle held by the staff at Environmental Essentials.
20 • CRY update • Issue 52
This event was held in memory of Graham Button, our loving Son, Husband, Father, Brother and Uncle who passed away from Sudden Arrhythmic Death in October 2006.
The fete was made possible by the entire Button family and their close friends, who volunteered to provide a full variety of fete games, tombolas, raffles, face painting, cakes and other refreshments. We are proud to say we collected a total of £865.00 at this day event and for this we thank all the helpers who made the day possible and all of those who attended our fete and gave generously to a great charity.” Hollie Button.
In Memory of Michael Cadman Mr J Meager raised £10,980, through online fundraising, for completing the Gran Fondo Nove Colli 2009 Cycle Ride. In Memory of Jack Cardus “We lost our beautiful son, Jack, in February 2010. He was just 18 years old with everything to live for. He was a very sociable, popular and lively lad with a promising career ahead of him and was a year into an apprenticeship. £1,136 has been raised in memory of Jack; with donations from his family and friends, his work colleagues at United Utilities in Warrington and his school The Heath Technology College in Runcorn, Cheshire.” Steve Cardus sent in the donation. In Memory of Jordan Carter Tracy Hartveild held a Tribute Night in memory of her daughter, Jordan Carter, who died in Spain on 30th June 2009, aged 18 years. The evening raised £820. In Memory of Graham Lewis Cataldo Davies Suzanne Cataldo sent in a donation of £3,000 raised by the pupils, teachers, staff, parents and friends of Wynstones School, who participated in a Walkathon on 1st May in memory of Graham. In Memory of Guy Champney • Neil Caffery raised £856, through online fundraising, in respect of the Liverpool Half Marathon.
• Sophie Anhoury, Laura Bull, Martin Bull, Andrew Champney,
Christine Champney, John Champney, Chris Cooper, Terry Donovan, Phil Morris and Sarah Thomerson took part in the CRY Heart of London Bridges Walk 2010 and raised £100.
In Memory of Anthony “Budgie” Child “On the 28th August, we had our 6th annual charity linedance. Once again it was a great success, and a tremendous evening. The event was very well attended by an enthusiastic and very generous crowd. As usual it was organised by Kim Ray and her Bluegrass Linedance team. Also we had Natalie Thurlow who entertained us with two sessions of great music that kept the dancers well entertained.
We raised £1,560 on the night with a combination of ticket/raffle and donations. We also had a cheque for £330 from a sponsored walk, done by good friends of ours, Ina Cogger and Robin Green. We are very grateful to all our friends who contributed and their continued support.” Angie & Jack Child.
In Memory of Tom Clabburn • Paul Clabburn sent in £804 which was raised by a book fair and various donations. • “Please find enclosed cheques totalling £195 for Tom’s Memorial Fund, raised at the 80th birthday celebration of Tom’s grandmother, Peggy Prosser.” Mrs M Prosser
• “Please find enclosed our cheque for £1,000 which we would
wish to be allocated to the Tom Clabburn Memorial Fund. Tom was a youth player in this Association who tragically died and whose memory we would wish to keep alive by us part sponsoring a future screening event.” Peter Clayton, Chief Executive, Middlesex County Football Association. [PHOTO: ‘Middlesex County logo’]
• More than 85 members of Team Tom III took part in the CRY Heart of London Bridges Walk 2010 and raised £975.
In Memory of Harry Clarke “Lewis’ parents, Sylvia and Jack, proudly celebrated their 50th Wedding Anniversary on Friday 21st May 2010 with a wonderful family meal. They asked for donations in lieu of presents in memory of our precious and much loved son Harry, who tragically and suddenly died, aged 11 years on 23rd May 2006. The celebration coincided with Harry’s 4th Anniversary. As some of you will be aware, Harry suffered from an extremely rare abnormality of his heart - Anomalous Coronary Heart Circulation.” Lisa and Lewis Clarke sent in a donation of £200 in memory of Harry. In Memory of Michelle Clarke Alan Reed took part in the Belfast Marathon and Fun Run and raised £798.47. In Memory of Andrew Coles Ann Coles and Margaret McSweeney took part in the CRY Heart of London Bridges Walk 2010 and raised £300.
CRY update • Issue 52 • 21
In Memory of Gemma Collyer Rebecca Newbon took part in the Vietnam Cycle Ride 2010 and raised £500. In Memory of Adam Connolly • Toby Main raised £3,025, though online fundraising, from the ‘Tough Guy 2010’ event.
• We have received a matched giving donation of £750 from JLT for James Taylor completing the Great North Run 2009. • Andrew Jackson has raised a further £500 for the Virgin London Marathon 2010, taking the total raised to £2,263.
In Memory of Tony Cooper “Students of Glyn Technology School have raised £900 by holding a Christmas Bazaar in 2009.” Dianne Chandler, Finance Officer. In Memory of Bruce Cousins Jackie & Alan Cousins sent in donations totalling £700; £200 from Bruce’s place of work Betafence Ltd and £500 from Bruce’s charity night – a benefits night which Bruce’s friends arranged. This event also included a fancy dress competition.
• Anna Beecroft took part in the BUPA Manchester 10K Run and raised £175 through online fundraising.
• Natalie Tait took part in the BUPA Manchester 10K Run and raised £351 through online fundraising.
In Memory of Jonathan Crowhurst Laurence Banks, Rachel Banks, David Crowhurst and Mary Crowhurst took part in the CRY Heart of London Bridges Walk 2010 and raised £500. In Memory of Simon Jon Cullum • “I am pleased to enclose a cheque for £631.97. This money was raised by Santander staff at Shenley Wood in Milton Keynes from a Dress Down Day we held. Your charity was nominated by me, in loving memory of my nephew, Simon Jon Cullum, lost on 8th June 2007.” Mrs Kelly Bates
• Kelly Bates sent a matched giving donation of £631.97
from the Santander Foundation for the Dress Down Day at Shenley Wood.
• Team The Daddy took part in the CRY Heart of London
Bridges Walk 2010 and raised £460. Team The Daddy were Kelly Bates, Marilyn Cullum, Mrs Watts, Lynda Woods, Scott Woods and Denny.
In Memory of Neil Darby Rebecca Macmanus held a fundraising event and raised £283.23. In Memory of Paul Davies • Benita Davies forwarded a donation of £450 from Waitrose ‘Community Matters’ in Penn, Wolverhampton.
• Benita Davies sent in a donation of £400 for West Midlands ECG group screening. In Memory of John Cowland Mrs H Placentini sent in a donation of £1,148.20 from various fundraising activities. In Memory of Peter Cox Jackie Charlesworth, Bev Cherry, Stella Cherry, Andrea Cox, Hayley Cox, Kimberley Cox and Gemma Stephenson took part in the CRY Heart of London Bridges Walk 2010 and raised £390.
In Memory of Claire Dee Shapland Staff at ServiceMaster Clean, Newbury, undertook various types of fundraising for CRY as a surprise wedding gift for their Managing Director, Nick Dee Shapland. Nick lost his daughter Claire suddenly in 2005, and is now a County Representative for CRY. Shirley Ellis, ServiceMaster Clean, forwarded the donation of £2,058.
In Memory of Simon Cox Carole Cox took part in the CRY Heart of London Bridges Walk 2010 and raised £100. In Memory of Gary Craig Cecilia Caldwell sent in a donation of £100. In Memory of Ben Crean • Victoria Price took part in the BUPA Manchester 10K Run and raised £145 through online fundraising.
• Wes Erlam took part in the BUPA Manchester 10K Run and raised £685 through online fundraising.
22 • CRY update • Issue 52
Nick and Eve at the Wedding Celebration meal
“Way back in November of 2009, Nick Dee Shapland, the MD of the company we work for (ServiceMaster Clean of Newbury) announced his intention to get married to Eve, his fiancée. We were informed that the ceremony would be in June 2010.
Our As the HR Manager, I would usually organ ise a collection for a colleague’s wedding gift, but on this type of occasion - and bearing in mind Nick’s strong association with CRY - I suggested we undertake a few months of fundraising instead. The staff wanted to arrange a celebration meal prior to the wedding so that we could take Nick and Eve out, as they would do for us on such an occasion. This gave us the perfect opportunity to present them with what we were hoping to be a very big cheque for their favourite charity, in honour of their wedding. Without Nick and Eve’s knowledge, staff members donated books, CDs, DVDs, grew plants and baked cakes that we could sell. We sold old vacuum cleaners and mobile phones. One staff member, David Parfitt, got a new bicycle and sold his old one for the fund. Another colleague, Mick Cornwall, ran the London Marathon. We also ran a Christmas Raffle thanks to a generous donation from ASAP Computers of Pangbourne, who gave us some very expensive whisky and port to use as a prize.
In Memory of Neil Desai “Please find enclosed a cheque for £285 raised by friends and client of mine in my small hairdressing salon. It was raised by a small raffle, collecting 5p’s and filling Smartie Tubes with 20p’s.” Anne Rawden, The Wood Hatch Hair Salon. In Memory of John Lawrence Dick Malcolm Dick and Thomas Walker took part in the CRY Heart of London Bridges Walk 2010 and raised £250. In Memory of Steven Dignan Baxter “Steven Dignan Baxter was an adventurous 24 year old young man. Steven loved life and he lived it. Motorbikes, fishing and football - he was a strong Hibs supporter. He worked from great heights as a scaffolder so in memory of my son, Jenna, his little sister, and I climbed a scaffold in Edinburgh on 17th July,
But the biggest event and contribution came from the very brave and daring Keith Parnell, who performed a tandem parachute jump and contributed over 60% of the total amount raised. This was done by writing to our company’s suppliers and other ServiceMasters asking for sponsorship for Keith and he also approached his work colleagues and friends. The evening of the Wedding Celebration meal arrived, where, with the help of a PowerPoint presentation and a laptop, we revealed to Nick and Eve the whole story of what we had done, how we had done it and finally, how much we had raised. Nick and Eve had no idea what had been going on and were delighted and touched by our efforts. That was the icing on the
thanks to my friend Keith Adams. We went up into the sky and held Steven’s flag that he was so proud of for everyone to see. I pray he was as proud of us as we are of him. Steven left so many broken hearts behind, but he left memories we will never forget. He is dancing with angels now. Thank you to everyone who donated to us, enabling us to donate £200 to help people like us cope with such a great loss.” Linda Dignan Baxter. In Memory of Martyn Dobson Simon Hopper raised £412, through online fundraising, for completing the Great North Run 2009.
cake for us and a great night was had by all. Good food, a few drinks, great company and a big fat cheque! Perfect!” Shirley Ellis.
In Memory of Adam Donnelly Julie Donnelly took part in the CRY Heart of London Bridges Walk 2010 and raised £100.
CRY update • Issue 52 • 23
Sandra Clark, Lianne Clark, Gabbie Clark, Jane Bryant, Sian Bryant and Kelle McDougall took part in the CRY Heart of London Bridges Walk 2010 and raised £189.30. Cheryl Morgan took part in the CRY Heart of London Bridges Walk 2010 and raised £170. In Memory of Adam Drawbridge Les and Sarah Drawbridge took part in the CRY Heart of London Bridges Walk 2010 and raised £530.
In Memory of Rebecca Louise Duxbury The Greater Manchester Police Tactical Dog Unit sent in a donation of £150.
In Memory of David Eastty
• Philip Boston took part in the CRY Heart of London Bridges Walk 2010 and raised £120.
• Margaret Clark, Linda Eastty, Leslie Thompson and Diana Yorke-Wade took part in the CRY Heart of London Bridges Walk 2010 and raised £330.
In Memory of Guy Evans Team Guy took part in the CRY Heart of London Bridges Walk 2010 and raised £700. Team Guy were Jone Ayres, John Boy, Emma Bradbury, Beth Chesney-Evans, Bill Chesney, Joan Chesney, Henry Cook, Megan Dawkins, Charles Evans, Crispin Evans, Millie Evans, Pete Everson, Jonathan Gale, Jamie Glen, Sam Gosden, Gareth Harris, Gillian Harris, Megan Harris, Sam Hodgkins, Chloe Lemon, Georgia Manning, Rachael Mannion, James Nimmo, Charlotte Porter, John Porter, Pauline Porter, Billy Ritson, Hattie Russell, Heather Schofield, Martin Wells, In Memory of Clare Everett-Allen Claire Woodham raised £500, through online fundraising, for completing a Skydive. In Memory of Adam Everingham • “Please find enclosed cheques totalling £413, which are donated in memory of Adam Everingham, our beloved son, who died on Tuesday 30th March, aged 17 years, from sudden arrhythmic death syndrome. Adam was cycling home from college when he just fell from his bike. His death was so sudden and unexpected that it is hard to come to terms with. Adam leaves behind a younger brother.” Paul and Suzanne Everingham.
• Four students from Yorkshire Coast College took part in a sponsored walk in memory of Adam and raised £405.
In Memory of David Michael Ellis “Following the death of my dear husband David Ellis, I enclose cheques for £536.60 towards you very worthwhile charity.” Betty Ellis. In Memory of Sebastian English • William and Georgina McCreadie took part in the Spatula Challenge in July 2009 and raised £6,741.
• Amesbury School forwarded a donation of £1,000 from Len Gayler: “Having read in the newspaper about (and watched with interest) the school’s YouTube video in aid of Cardiac Risk in the Young I felt moved to send you a donation.” • Will Oxley, Hon. Treasurer Haslemere Rugby Football Club, sent in a donation of £300 from various fundraising activities during the last few months.
• Elizabeth Gillett held a book sale at the school where she works and raised £100.
• “Please find enclosed a cheque for £750
raised at our recent summer stage show of ‘Noah’. We have 100 boys between the ages of 4 and 7 in our department and we had two performances for parents and friends who kindly donated to CRY at the end of the show.” Mrs J A James, Aldwickbury School, Pre-Prep Department
24 • CRY update • Issue 52
• Suzanne Everingham sent in a donation of £141.75 in
respect of the students of Yorkshire Coast College and their sponsored walk.
In Memory of Leanne Faulkner “I have pleasure in enclosing a further donation of £3,400. Since losing our daughter on 8th March 2006, we have held an annual Ball raising money for CRY. Although we will not be having the event this year, we intend to have a Ball next year in Portugal when Leanne would have been celebrating her 21st birthday and will continue to support CRY.” Michelle and Grant Faulkner. In Memory of Therese Field “We held a charity dance show at the Theatre Royal, Margate, on June 12th performing numbers from musicals, films and up to date numbers. It was a fantastic event.” Tara Field sent in a donation of £2,125 from the dance show. In Memory of Andy Forbes Robin Wells raised £1,190, through online fundraising, in respect of the Tesco vs. Premier Foods competition for the Andy Forbes memorial trophy. In Memory of Maxwell French Claire Ludgate raised £435, through online fundraising, in respect of the Lincoln 10K.
Our In Memory of Vicki Furlong “Please find enclosed a cheque for the sum of £8,106, raised at our Masquerade Ball in Liverpool in May 2009. The event was put together by myself and Adelle MacNamara with the help of the Physiotherapy department at Aintree Hospital in memory of our friend and colleague, Vicki Furlong.” Dave Woodward. In Memory of Matt Gadsby • Michael Rhodes sent in a donation of £101.56 from the collection box at the Queens Head, Staffs.
• Michelle Lester raised £740, through online
fundraising, in respect of the Reading Half Marathon.
• We have received a matched giving donation of £400 from the National Grid in respect of Michelle Lester completing the Reading Half Marathon.
• Sharon and Michael Love have sent in further donations in
Charville, Karen Halliday, Lenie Keizer, Jacqui King, Heidi Lee, Catherine Mostyn-Scott, Ivan Mostyn-Scott, Sarah Phillips and Silvia Wunsch. In Memory of Jaimie Gault Margaret Gault forwarded donations totalling £1,200; The Seconde Ballyeaston Presbyterian Church donated £687.50, Newtownabbey Borough Council donated £100, North Antrim Riding Club donated £250, Miss Cochrane donated £30 (in lieu of birthday gifts) and further cash donations totalling £132.50 from friends. In Memory of Elizabeth Gent Christopher Gent and Dave Cawley took part in the Great London Swim and sent in a donation of £963.50.
respect of the Virgin London Marathon 2010, taking the total raised to £4,134.86.
In Memory of Darren Gleadow Claire Steel took part in the Humber Bridge Half Marathon and raised £146.
In Memory of Lauren Gallagher • Bernard McShane raised £220 at the Open Golf Competition held at Strabane Golf Club on 3rd May in memory of Lauren.
In Memory of Reece Goodman Paul Gloxham raised £145.50, through online fundraising, in respect of the Lady Godiva Half Marathon.
• Blanche Gallagher sent in a donation of £140 from the charity box at Centra, Ballymajorry, Strabane. • “The Captain of Strabane Golf Club, Seamus Friel, had his
Captain’s Day for his members on Saturday 19th June. He chose CRY as the beneficiary of any money made on the day. Bernard, myself and our family are grateful to the people in our home town and district for their kindness in supporting ourselves and this charity. It is a small town where the people have warm hearts.” Louise McShane sent in a donation of £1,309. In Memory of Andrew Gard • “During my year of Captaincy at Frinton on Sea Golf Club I nominated CRY as a chosen charity as two of our members Peter and Caroline Gard unexpectedly lost their son Andrew in his teens due to an undiagnosed heart condition. Now that my year has ended it gives me great pleasure to enclose cheques totalling £850 which I am sure will be put to good use in furthering the aims of the charity.” Alan Rusbridge.
• Colne Community School held a non-uniform day for CRY.
“They had a screening three years ago and remain very supportive of CRY.” Caroline Gard forwarded a donation of £1,020.16.
In Memory of Stephen Gately Steo’s Superfanz took part in the CRY Heart of London Bridges Walk 2010 and raised £489.50. Steo’s Superfanz were Jan Austin, Olaf Bitter, Victoria Blunden, Sheryl Chappell, Gemma
In Memory of Rochelle Grogan Rochelle’s Rubies took part in the CRY Heart of London Bridges Walk 2010 and raised £1,437. Rochelle’s Rubies were Sophie Grogan, Charlotte Ithier, Michaela Thorpe, Mick Thorpe and Sharon Thorpe. In Memory of Leanne Marie Haddrell “On behalf of GE Aviation, Bishops Cleeve Campus, a cheque donation for £100 is enclosed following a raffle held during our HealthAhead day on 9th June.” Stephanie Mitten, Communications Manager, GE Aviation. In Memory of Matthew Hadfield Andrew Murray sent in a sponsorship donation of £100 in respect of Olly Tebbut’s team of six taking part in the Land’s End to John O’Groats cycle ride in September. In Memory of James Haggerty • Jackie Haggerty sent in donations totalling £394; £50 from A J Dennis, £20 from RJ & NJ Dennis, £65 from Drive Scout & Guide Group, £159 from R & J Haggerty and £100 from Serendipity for sponsorship of a bike ride.
• “This is for a sponsored diet by four of my work colleagues;
Lynne Jamison, Janice Freeman-Roach, Sue Turner and Sharon Shiel. They were all sponsored to lose a stone in weight each in six weeks. Unfortunately their optimism flagged somewhat after a couple of weeks and they only managed to lose a stone between them at the end of the six week period.
CRY update • Issue 52 • 25
Nonetheless the sponsors were still willing to pay out and the enclosed cheque for £132.60 is the outcome.” Mrs Jackie Haggerty
• “Please find enclosed a cheque for £610.75.
This money is from Battle Abbey Preparatory School. A group of boys and girls aged 12 years and some of their parents took part in a sponsored bike ride at Rye in East Sussex. There were 20 keen and willing participants. Nearly £500 was raised by this event. In addition, the same children earned around £50 making and selling cakes at their school. The remainder of the money was made by pupils who were allowed in school without their uniform, for which they were charged £1 each.” Jackie Haggerty.
• The Battle to Lille bike ride took place on 19th to 22nd August and has raised £6,972 so far.
“Day 1 saw 27 novice cyclists, including James’ Dad, teachers and sub-contractors of Battle Abbey School, leaving a rainy Battle in East Sussex to cycle 42 miles on the first leg of their 149 mile journey to Lille in France. The first day saw a grazed knee, a live broadcast with BBC Sussex Radio and a cyclist who went the wrong way, all in a brilliant time of 4.5 hours. Surely this was going to be easy!! How wrong can you be.
than the day before. After cycling the 37 miles from St. Omer to Lille they then had to cycle the 37 miles back to camp again for a night on the same campsite before heading home on the support vehicles. At last the 149 miles was complete. The last night in France found some very relieved and sore novice cyclists thankful that they had achieved not only a personal goal but had raised funds for CRY in memory of James. All these cyclists had paid for their own expenses on the trip meaning that all monies raised would go towards this worthy cause. In fact on the last night in France, during a few drinks, the conversation turned to what to do next. Watch this space!!!” Jackie Haggerty. In Memory of Rachel Haigh & Jason Chew “In May 2010, my daughter Kira (age 11) and I completed a sponsored ‘Walk across Malta’ in memory of my two teens. Rachel Haigh died in 2001 aged 14 years and Jason Chew died in 2009 aged 17 years, both died suddenly in their sleep. Thank you for the continuing support you offer to families who have been devastated by these ‘sudden tragedies’.” Teresa Chew sent in £240. In Memory of Jennifer Wendy Hall We have received a donation of £1,050, in lieu of floral tributes, for the late Mrs Jennifer Wendy Hall. In Memory of Scott Hamilton “My son Scott died in his sleep at Massereene army barracks, Antrim. He served with the 38th Royal Engineers and was 22 when he died. His autopsy report concluded that although his death was undetermined the most likely cause of death was SADS. Scott was an extremely fit young man who played football for both his regiment and the corps of engineers. He was also signed as an amateur for Glentorn FC Belfast. At the time of his death he was also training for boxing with the regiment. Since his death on 11th February this year, money has been raised in Scott’s name for charity which so far has been donated to Help the Heroes. There are a lot of people asking about doing different things in Scott’s memory to raise money and awareness of SADS.” Mr D Hamilton sent in a donation of £200 from the first Scott Hamilton Memorial Football Competition held at the Billy Neill Soccer Centre in Dundonald. In Memory of John Hammond Michael Girling, Claire Hammond and Tamara Toner took part in the CRY Heart of London Bridges Walk 2010 and raised £161.50.
After camping overnight in Folkestone, then boarding the ferry to Calais on Day 2, a cycle ride of 37 miles to the campsite in St. Omer was going to be a walk in the park. What wasn’t accounted for was 28 degree heat, several punctures, a change of route that took in numerous hills and competitive riders who wanted to get there first. Eventually after a gruelling 8 hours in the saddle everyone made it to camp. Nobody was looking forward to Day 3 but things always look better in the morning and the last leg was a whole lot better
26 • CRY update • Issue 52
In Memory of Colin Haslingden “My father very sadly passed away on the 19th February this year at the age of eighty. His whole recreational life had been about playing and then watching any and all kinds of sport. He was an extremely good amateur footballer, cricketer and later on a very enthusiastic golfer. He lived a lot of his married life in Leeds and about nineteen years ago had a very serious heart attack which he not only came through but seemed to draw some strength from. Enclosed are a number of donations amounting to £391.20 which we hope will do a little good in helping the charity in all its wonderful work.” Scott Haslingden.
In Memory of Dean Graham Henderson David Anderson, Deborah Anderson and Kristine Fairley took part in the CRY Heart of London Bridges Walk 2010 and raised £173.
In Memory of Laura Hillier “Please find enclosed the following cheques for Laura’s Memorial Fund, representing donations received from friends and family for the combined celebration 60th birthday party for both of us”. Joan and Tony Hillier sent in £755.
In Memory of Simon Hewett Mr G Lewis sent in a donation of £276.57, collected at the annual cricket match held by friends in memory of Simon. “On Saturday 24th July Simon’s friends h e l d their fifth annual cricket match at Stowe, Simon’s old school. Three teams competed, one representing his old school, one from Oxford Brookes, his old university, and by invitation a family team. The matches were played in a very competitive yet light hearted spirit and some excellent play was admired by a good many supporters. The growing number of children enjoyed the bouncy castle especially provided. Everyone enjoyed the sunshine and the beautiful setting of the North Front cricket ground, as well as Simon’s cousin Julien and his being together again.” John daughter Josephine. and Jane Hewett.
In Memory of Tony (Tosh) Hogan • “Please find enclosed cheques totalling £715 raised from the Tosh Hogan Half Marathon which took place in Liverpool City centre in memory of Tony (Tosh) Hogan who died suddenly from Arrhythmia on 19th February 2007, aged 48. About 90 of Tony’s friends and family took part in the half marathon with a difference - half pint in 13 pubs around Liverpool
In Memory of Greg Highwood-Mack “Please find enclosed a cheque for £1,000. The money was raised from the charity raffle held at the Adastra National Conference on 19th May 2010. The raffle was in memory of one of our colleagues, Greg Highwood-Mack.” Laura Ransom, Adastra Software Ltd.
to remember Tony by raising a glass or two and having a fantastic afternoon while raising funds for CRY. The money was raised by each participant paying £5 to take part and from donations. The day was a marvellous success and everyone had a wonderful time. This has now become a biannual event and I must thank Kenny Smith for organising it and all of Tony’s friends for making it such a great day and for all the support they have given to me since the very sad loss of Tony three years ago.” Patricia Hogan.
• Patricia Hogan sent in a further donation of £100, raised from the raffle of a pair of signed Phil Neville football boots at HMRC in Bootle.
In Memory of Nicholas Holland “I would like to donate this money to CRY in memory of my husband, Nicholas Holland, who died aged 26 years in February earlier this year. He had an undiagnosed heart condition and died very unexpectedly of a heart attack. The cheque for £3,205 was raised by way of donations at his funeral and the cheque for £400 was raised through a fundraising event. Nick and I had just had our first child. She was 9 weeks old when he died. My family and I were grateful for information gained from your website as we were unaware of such occurrences before this tragedy and hope that this donation will help others to avoid the grief we have suffered.” Gemma Holland. In Memory of Philip Holland Rita Young sent in a donation of £130 in respect of Jim Holland’s (Philip’s father) retirement.
CRY update • Issue 52 • 27
In Memory of Philippa Holmes Sarah McLoughlin took part in a skydive and raised £790.
In Memory of Nick Jarram Fiona Hobday raised £300, through online fundraising, in respect of her abseil/zipwire.
In Memory of Jonathan Hooper “We decided that instead of traditional wedding favours we would make a donation to CRY and give our guests a CRY keyring. This is in memory of my brother, Jonathan Hooper, who died on 5th November 2004. Thanks for all your help in making it possible to do this. I think it’s a great way to promote CRY and remember Jonathan on this special occasion.” Stephanie Hooper & Richard Mayou sent in a donation of £200.
In Memory of Philip Jefferies Andrew Barnes, Beverley Barnes and Sophie Barnes took part in the CRY Heart of London Bridges Walk 2010 and raised £196.
In Memory of Nina Horndorf Dearsley “The money was raised through a raffle, and I would like to thank all who gave their support, bought tickets and helped raise awareness of CRY.” Jan Smith sent in a donation of £160.
In Memory of Nina Jelen “Please find enclosed a cheque for £100 which has been raised by Jacobs in support of the charity after being nominated by one of our employees, Kate Pattison, whose family experienced help from the charity after the death of Nina Jelen.” Kay Mattieson, Jacobs UK & Ireland Charity Committee
In Memory of Stewart Howard “Please find enclosed a cheque for £1,733. Thanks to the staff at Tesco’s and the manager for letting my friends and I hold a Car Boot Sale on Easter Sunday. We had lots of fun and the weather was good this year.” Jane Howard. In Memory of Steven Howes Catherine Noller took part in a skydive and raised £375 through online fundraising.
In Memory of Dylan Hughes Mair Kelly and Becca Kelly took part in the CRY Heart of London Bridges Walk 2010 and raised £372. In Memory of Polly Hughes • Tracey Wells, Dalehead Foods, sent in a donation of £170 raised during Dress Down Days.
• George Hughes has raised a further £100 for
the Virgin London Marathon 2010, taking the total raised to £10,377.01. In Memory of Glenn I’ons Kilmeny Payling Nelson took part in the CRY Heart of London Bridges Walk 2010 and raised £100.
In Memory of Denver Jenkins Team Badger took part in the CRY Heart of London Bridges Walk 2010 and raised £180. Team Badger were Alison, Emma, Joseph and Martyn Jenkins. In Memory of Caroline Johnstone • We have received £155, in lieu of floral tributes, for the late Francis Gurnett. “At the funeral instead of floral tributes, my mother asked for donations to CRY. My father would have been very happy for the donations to go to CRY, his eldest grandson, Philip, was a classmate of Caroline Johnstone.” Penny Deans.
• Lesley Johnstone sent in a donation of £225. • David McGurk took part in the ‘Blazing Saddles’ LE-JOG in May and sent in a donation of £100. “ F r o m sponsorship for our Land’s End to John O’Groats bike ride, Paul Winspear and I have pulled together over £4,500 (including Gift Aid) for CRY.
In Memory of Caradoc James • Maureen Ward forwarded a donation of £150 raised during a charity lunch by the Carmarthen Soroptimist’s.
• The TA’s in Carmarthen raised £750. This donation was forwarded by CRY Representative Maureen Marshall.
28 • CRY update • Issue 52
Our We were part of a group of six riders - “Blazin’ Saddles” raising money for 4 separate charities - CRY, St Clare Hospice, Make-a-wish Foundation and African Revival. In total, we’ve raised over £9,000 for the charities. We also secured £2,000 in sponsorship to help offset some of the costs of the trip.
on behalf of Stephens Lodge, who meet at Marlow and were presented by myself, as Master of the Lodge, and Michael Clift, Chaplain of the Lodge.” Mick Fowler.
Multi Charity Cheque Presentation Event held at Aylesbury Masonic Centre. It was an amazing adventure, one that I’m sure some of us will do again in one form or another.” David McGurk. In Memory of Sharron Jones Mark Jones took part in the CRY Heart of London Bridges Walk 2010 and raised £475. In Memory of Matthew Kamis Trina Kamis sent in donations totalling £192.15; £160 from four Tombolas and £32.15 from a collection box.
In Memory of Eleanor Rose Keeler “Please find enclosed a cheque for £600 raised for CRY on what would have been Eleanor’s 21st birthday. We decided on holding a ‘reflective walk’ around our beautiful city of York with just very close friends and family and if anyone wished to make a donation to CRY in lieu of a ‘birthday present’ they could do so. Eleanor collapsed while out jogging and died a week later. She was studying History at the University of Pennsylvania in Philadelphia at the time, where she had earned, through hard work, a year’s placement from her ‘home’ university, UCL.” Annette Keeler. In Memory of Dean Knowles We have received a donation of £126.50, in lieu of floral tributes, for the late Dean Knowles. In Memory of Robert Lancaster • A donation of £250 was sent to us by James Lancaster.
• The Stephens Lodge, Aylesbury Masonic Centre, donated £1,818 to CRY and Zurich Community Trust made a donation of £100. These donations were collected by CRY County Representative Katy Turbervillle after she gave a talk about CRY. “The donations totalling £1,918 were the result of three fund raising events carried out
In Memory of Paul Steven Leach Dean Talukder took part in a Tandem Skydive and raised £230.
In Memory of Vicky and Phillip Lee “Jackie Dovey, owner and dance teacher of Gwent School of Dancing, organised and put on a fabulous evening of dance with some of her pupils - a combination of jazz, ballet and tap and a great time was had by all.” Hannah Topping sent in a donation of £312 from the dance event. In Memory of Jonathan Leigh • James Ogden, Engage Mutual Assurance, sent in a donation of £200 from two of the Rugby Super League matches.
• Michael Long raised £490, through online fundraising, in respect of the Leeds Half Marathon. In Memory of Hayley Anne Lewis “Myself and my partner ran in the Bristol 10k on 9th May this year in memory of my very special sister who died suddenly and unexpectedly in her sleep on 1st December 2009.” Suzanne Widdowson sent in a donation of £605.
CRY update • Issue 52 • 29
Fundraisers In Memory of Huw Lewis George Bazeley raised £547.19, through online fundraising, in respect of the Pembroke Path Walk.
In Memory of Andrew & Richard Lightwood “This money was raised during our 4 week opening of the Bluebell Woods this year and is in memory of Andrew and Richard Lightwood.” Sue and Richard Featherstone sent in a donation of £658.06. In Memory of Ian (Lenny) Linnington Desmond Shine sent in a donation of £100. Desmond Shine sent in a further donation of £100 in commemoration of Lenny’s birthday.
In Memory of Ashley Livesey The Royal & Crompton School in Oldham raised £1,736.80 from the Mini Enterprise Charity Event, in memory of former pupil, Ashley Livesey. This donation was collected by CRY Representative Ian Scanlan at the morning assembly on 12th March. In Memory of Thomas Lloyd Mitchell Porter took part in the Virgin London Marathon 2010 and raised £105. In Memory of Rachael Marie Lord Bruce and Sandra Lord sent in a donation of £286 from the Garden Party held on 12th June in memory of Rachael. In Memory of Lou Lou Amelia and Stephanie Martell took part in the CRY Heart of London Bridges Walk 2010 and raised £118.65. In Memory of Martyn Luckett Brenda Luckett sent in cheques totalling £409.94; £20 from Mrs Eileen Potter, £14.94 from the collection box at Martin & Co, Holsworthy, £40 from Mr Chris Barber and £365 from the fundraising event ‘Rally of Discovery’. “This August we held our Annual Motorcycle Trials School, every year around 70 riders take part in this, Martyn was a keen motor cycle trials rider, so every year we raise money for charity and this has been our chosen charity for five years. So far we have raised
30 • CRY update • Issue 52
£26,000, and we have set up a memorial fund to fund screening locally, which we hosted the first one in the South West/Cornwall last January, and is now going to be an annual event. We held the training over two days and a large BBQ, and draw, with a local group and Bar. When all the expenses were taken out plus donations from an auction we made £2,800 for CRY. We held a Presentation evening when our family and lots of loyal friends were there.” Brenda Luckett. In Memory of Helen Luke Sally Hughes took part in the Stafford Half Marathon and raised £517 through online fundraising. In Memory of Aaron Lundy • Michael Logan has raised a further £7,666.66 for the Virgin London Marathon 2010, taking the total raised to £7,816.66.
• George McAlpin has raised a further £7,666.66 for the Virgin London Marathon 2010, taking the total raised to £7,716.66. • Garry McGrotty has raised a further £7,666.68 for the Virgin London Marathon 2010, taking the total raised to £8,236.68
In Memory of Stephen Lyness Patrick Lyness has raised a further £1,350 for the Virgin London Marathon 2010, taking the total raised to £1,426.38 In Memory of John Magowan • “This is the cheque for the final total of money raised through the sale of Orkney Calendars, produced in memory of John Magowan with photos he had taken of the Orkney Islands. This is in addition to the £900 sent from John’s Aunty (Anne Hughes) which was also raised from calendar sales.” Riskha Magowan sent in a donation of £5,425.
• Mike Smith took part in the Forestman Ironman Challenge on 27 June and raised £705.50.
• Zoe Humm, Richard Kenny, Rishka Magowan, Anna
Mahoney, James Mahoney, Richard McIlwaine, Anna, Hilly and Sinead took part in the CRY Heart of London Bridges Walk 2010 and raised £165.
In Memory of Peter Manlove Susan Davie, Lorraine Manlove, Richard Manlove, Jill Marchant, John Marchant, Barry Taylor, Mrs C Taylor, Miss J Taylor, Miss K Taylor, Debbie, Jaimie, Pam, Robert and Robyn took part in the CRY Heart of London Bridges Walk 2010 and raised £462.
Our In Memory of Alun Mardon “I attended the Alun Mardon memorial rugby game and raffled a rugby ball signed by Ryan Jones (Welsh).” Nicola Lewis, NatWest Pontypridd, sent in a donation of £272. In Memory of Oliver Marsden Kevin Marsden sent in a donation of £100 in respect of Nick and Matt Hodgson’s Cycle Ride.
In Memory of Adrian Martinez Paul Durbin raised £1,205, through online fundraising, in respect of a skydive.
In Memory of Lewis Marsh Johanna Lynch, Barclays Commercial Bank, sent in a donation of £235.
In Memory of Gary Martin • “Please find enclosed a donation of £1,010 collected at Gary’s funeral in lieu of floral tributes. We chose to give to the charity as opposed to having flowers as we feel that we wanted ‘positives’ to come from Gary’s death, he was also an organ donor. Gary was a 32 year old family man with a wife Sarah and two boys, Lewis 7 and James 4.” Maggie Whitlock.
• Maggie Whitlock
took part in the Big Walk in the Park and raised £525.
• The Martins took
part in the CRY Heart of London Bridges Walk 2010 and raised £512. The Martins were Daniel Fox, Valerie Lawton, James Martin, Jodie Martin, Lewis Martin, Sarah Martin, Simon Martin, Colin Morter, Dee Morter, Paul Morter, Nicola Murray, Alan Whitlock, Maggie Whitlock and Marc Whitlock.
In Memory of Richard Martin “I enclose a cheque for £910 from Mrs Sally O’Reilly, my mother (Richard’s granny). She celebrated her 70th Birthday and asked for donations to CRY instead of presents.” Mary Martin.
In Memory of Daniel Matthews • Janet Blandford took part in a sponsored walk on 22nd May, in memory of her nephew, Daniel Matthews, and raised £652.
• Martin Pates took part in the Tewkesbury Half Marathon on 9th May and raised £270.55.
• “Students from the National Diploma in Football course at
Hartpury College have raised over £400. Throughout the month of May, as part of an ‘Organising Events’ module within their National Diploma, students from the second year of the course have planned and overseen several sporting events including Dodgeball, Futsal, a FIFA Tournament, 1st year vs. 2nd year cricket match and a tutor group triangular football tournament. Undoubtedly the two most successful events were an entertaining 1st year vs. 2nd year cricket match and a tutor group triangular football tournament - both in terms of being enjoyable for the crowds and also the amount of money raised.
Just under a year ago the college as a whole - but in particular the National Diploma in Football staff and students - were devastated by the tragic death of 17 year old student Dan Matthews. Dan was an incredibly well-liked classmate and talented footballer but first and foremost a great friend to all who knew him. It was a unanimous decision from the students to aim to raise money for this charity in memory of Dan.
CRY update • Issue 52 • 31
Fundraisers amazing 26 hours. Stylist Daren, 41, smashed the existing world record by two hours, getting through almost 40 customers at his salon in Bognor Regis, West Sussex. “We called it a ‘cutathon’ and it really was a marathon,” said a tired but jubilant Daren, who set the record on Friday and Saturday (March 5 and 6).
The cricket match between the first and second year football students took place on the rubber crumb on a glorious afternoon and after restricting the second years to 99 all out the first years looked on course for a comfortable win, before a batting collapse handed the win to the more experienced second year squad. Scott Carbin top scored with 27 and collected the man of the match award.
“I was allowed five minutes’ break each hour for the loo and such like. I couldn’t have done with without the help of my wife Kate and friends Paul and his wife Annette - they amazed me by staying with me for the entire 26 hours. I owe so many people a big thank-you. When we broke the record everyone was cheering and we knew that we had created a little bit of history for me, the salon and for Bognor Regis.”
The triangular football tournament was a competitive affair as predicted and couldn’t have been closer after the group stage as all three tutor groups had 3 points from two games. Unfortunately for NDSF2B - the pre-tournament favourites – they missed out on making the final through goal difference. NDSF2A beat NDSF1B 1-0 in a well contested final thanks to a goal from veteran Brett Gardner and some desperate defending in a game that the first years arguably dominated.” Shaun Gluyas.
Big-hearted Daren’s record raised almost £2,000 for charity, with the Chestnut Tree House, CLIC Sargent and CRY all benefiting from donations. “My clients paid as normal and I donated the fees as well as other donations from well-wishers and a charity auction of sporting memorabilia,” added Daren. In Memory of Philip Meaney Anne-Marie Meaney, Stacey Meaney and Stephanie Meaney took part in the CRY Heart of London Bridges Walk 2010 and raised £134. In Memory of Luke Meekings Team Luke took part in the CRY Heart of London Bridges Walk 2010 and raised £291. Team Luke were Hannah Battell, Steve Bolland, Bex Booth, Tom Booth, Jebb Bradley, Jessica Chamberlain, Matt Goodworth, Dave Light, Paul Maysey, Michael McClure, Laura Meekings, Roger Meekings, Sam Meekings, Sue Meekings, Thomas Meekings, Dianne Rogers, Luke Rogers, Rebecca Shaw, Nathan Wahl, Dave Wheller, Jessica Wheller, Levin Wheller, Marian Wheller, Rachel Wheller, Anthony Woodcock, Sam Woodcock, Brigid Wootton, Simon Wootton, Lian Xiu, In Memory of Luke Meekings and Joe Sales Daren Terry, Lotus Styling Limited, Bognor Regis, took place in a world breaking Hairdressing Marathon and raised £300.62.
Daren says he was tentative about finding willing clients to have their hair cut through the night at what he called “silly o’clock”. But he needn’t have worried. “The wee small hours slots went first. It took me only a day to have all the people in place and I filled my column very quickly indeed - my customers’ support has been fantastic. “But they didn’t give me an easy ride. The clients were having colours put in. Existing blonde clients were coming in and asking for a full colour change and, as we knows as professionals, it is not the same as putting on another colour; ie pre-pigmenting to achieve the final colour, which took double the amount of time. And the cut and blow dries were also asking for extra glossing treatment, which really kept me on my toes,” he added. “I hope to double my record in Las Vegas next year. We are talking to some of the top hotels over there,” said Daren, who has hit the headlines over the years with his caricature cuts of soccer stars such such as Wayne Rooney and David Beckham.” Carl Eldridge.
“ENDURANCE crimper Daren Terry has cut his way into the record books by snipping away with his scissors non-stop for an
32 • CRY update • Issue 52
Our In Memory of Karly Missing “Tops Day Nurseries operate eleven children’s nurseries situated throughout Dorset, Hampshire, Isle of Wight and Somerset. At Tops
• Matthew Newby took part in the Sheffield Half Marathon and raised £1,035.
• Robert McLaughlin raised £115, through online fundraising, in respect of the Sheffield Half Marathon.
In Memory of Daniel Mole Marion Mole and Frances Thomas took part in the CRY Heart of London Bridges Walk 2010 and raised £123. In Memory of Natalie Moody and Ali Ostler Malcolm Henty forwarded a donation of £1,021 raised by the kids of ACT 2 for ‘Hairgel - the Musical’.
we provide nursery care for babies from 3 months to children aged 5 years. We also provide care for older children aged 5 – 11 years in our mini beast club. We held a summer fete at our Portsmouth nursery on Saturday 28th August 2010, to help raise money for CRY and Cancer Research. We opened our doors to the families who attend our nursery and also to our local community.
Left to Right: Megan Spiller, David Goodhew, Kate Ostler, Victoria Herrity, Bethany Wood, Sarah Ostler, Pacha Woodland, Katie Walker. Missing from photo due to holidays etc: Callum Wood, Ben Franklin, Kalim Thompson, Shelby and Taylor West, Devon Foster and Chloe Yates.
Children enjoyed watching a puppet show put on by staff, whilst eating ice creams, candy floss and chocolate marshmallows which they helped make. Our cook baked cakes for our cake stall and parents donated some too. We also had a competition to guess the weight of the cake, where one of our parents won the fruit cake which weighed 1.2 kilos. We held a raffle on the day which helped us raise £175 on raffle tickets alone, so we would like to thank our local businesses who donated towards the raffle. We raised a total of £460.00 on the day, which we have split equally between both charities, plus £37.41 raised from sales of CRY merchandise.” Jade Missing, Covering Nursery Manager. In Memory of Phil Modric • Richard Scanlon raised £355, through online fundraising, in respect of the Sheffield Half Marathon.
• Benjamin Scott raised £770, through online fundraising, in respect of the Sheffield Half Marathon.
“This two act musical was written by Malcolm Henty and his granddaughter Bethany Wood. It was performed over three nights by the cast of ACT2 and their friends in Axmouth Village Hall to raise money for CRY in memory of a young mum Ali Ostler from the village and Malcolm’s niece Natalie, who both died of SADS. Originally they wanted to do Grease but the American owners have put a block on this being done by anyone other than schools. So the next best thing was to write their own. The kids loved performing it and it was a huge success.
CRY update • Issue 52 • 33
After a nervy opening night and a few technical hitches on the Friday, the young cast aged between 10 and 14 just got better and better and the Saturday night sell out audience were treated to a brilliant show which received a standing ovation. Not satisfied with this, the cast went missing after the final curtain and were found in the local pub singing and passing the hat around. They cannot be praised too highly for the time and effort that they put into this show, they even raised the money for the scenery and costumes by acting as waiters and waitresses at a meal in the village hall. It is impossible to pick out the stars as they all had their moments. Pacha Woodland and Victoria Herrity gave an excellent display as the two old ladies narrating the story; Callum Wood and Ben Franklin as the roadies with an eye for the girls and David Goodhew as Mr Danny D Vee - the number one rock n roll star - were all superb. Megan Spiller, Chloe Yates and Katie Walker portrayed the Pop Sox backing group in fine style. The Village Girls Bethany Wood (co-writer), Shelby West and Devon Foster were all excellent. Newcomer Kalim Thompson as the old barber and Taylor West as the Council Lady got better with each performance and their performance of “It’s the rent that they want” on the Saturday was brilliant.
34 • CRY update • Issue 52
One pleasing thing was how they all tackled the songs which were all old ones. There were around 20 songs and all but a few had new lyrics written to reflect the show’s storyline. Bethany with her two solos and Pacha with hers, both shone. On the final night after the curtain came down they all disappeared and took it upon themselves to go over the local pub and sing a song before passing the hat. The backstage staff all did a splendid job, from the ladies doing the raffle through to the man pulling the curtains. Special thanks must go to Lyn Richardson and Dawn Yates for their time and the choreography; Doris Clement for the scenery and to Juliette for the superb costumes. This is the second year running that the kids have done a charity show. Last year they raised over £800 for the local air ambulance and this year they raised a fantastic £1,021 for CRY.” Malcolm Henty (co-writer and director) For more photos visit www.c-r-y.org.uk/hairgel_musical.htm If there are any school groups or youth groups who would like to perform “Hairgel - The Musical” to raise funds for CRY, then for one year (starting in September 2010) the writers Malcolm and Beth will supply them with a hard copy of the script, song lyrics and a CD with the recommended music - plus some directors notes. This will be free for a one year period - the only proviso being that the authors are offered tickets for the performances. Please contact CRY direct at firstname.lastname@example.org for details. “Hairgel - The Musical” is a fun two act musical. It contains around 20 songs - many are old ones with new lyrics. The cast is a mixture of boys and girls with 13/14 characters (character list on application). In Memory of Charlie Morettes We have received, thorugh online fundraising, a donation of £340 from Allison Spalding for her London Santa Run 2009.
In Memory of Levon Morland • Arden House Volunteers held a fundraising event and raised £150.
• “Please find enclosed a cheque to the value of £250 which represents a donation from Kelfest 2010. This is an annual event that my friend Jim Henderson holds on his farm near York. We have lots of live music and this year we raised £500 which is split between CRY and Kelfield Village Institute.” Jeff Morland. In Memory of Luke Morris “Please find enclosed cheque for £754 for the Luke Morris memorial fund In respect of D Daniel completing the Edinburgh Marathon 2009.” Ian Morris. In Memory of Paul Mulford • Lynn Newbery took part in the Adidas Silverstone Half Marathon and raised £385 through online fundraising.
Colin Mulford, Chris Mulford and Sandra Mulford took part in the CRY Heart of London Bridges Walk 2010 and raised £163. In Memory of Duncan Mulholland The Centaurs took part in the CRY Heart of London Bridges Walk 2010 and raised £903. The Centaurs were Joanna Coates, Becca Lawson, Charles Mulholland, Neil Parry, Dave White and Kathy White. In Memory of Ralph Murwill Clare Cowlin, Bob Lester, Dave Murwill, Phil Murwill and Sue Murwill took part in the CRY Heart of London Bridges Walk 2010 and raised £396. In Memory of Amanda McCarthy Pete McCarthy and Dave Bentley entered the 2010 London Triathlon to raise money and awareness for CRY, and have raised £1861.25 through online fundraising so far. “On Sunday 8th August 2010, my great friend Dave Bentley and I took part in the London Triathlon in order to raise funds for, and awareness of CRY. The day went extremely well, and although it was very hard work it was massively rewarding to finish knowing we had completed it for such a worthy cause.
Dave and I undertook this event in memory of my daughter Amanda, who died suddenly on October 12th 2008. This was the first of two challenges we had set ourselves this year - the second will begin in a few weeks time when we cycle from Land’s End to John O’Groats.” Pete McCarthy. In Memory of Allyn McCluskie “The staff and pupils at Airdrie Academy hold a weekly charity collection every Friday. Your organisation has been nominated and I am delighted, on behalf of everyone connected with the school, to enclose our cheque for £227.19.” R Reid, Deputy Head Teacher. In Memory of Paul David McGlynn Kathryn McGlynn held a coffee morning at McGlynn’s on 10th July and raised £700.
In Memory of Jonathan McGrath Mike Smith raised £210, through online fundraising, in respect of a skydive.
In Memory of Oisin McGuinness John McGuinness sent in donations totalling £4,027.50, in memory of his son Oisin, raised during various fundraising events.
In Memory of Georgie Nelson Jacqueline Evans, Toni Evans, Edward McDermott, Carly Nelson and Susan Nelson took part in the CRY Heart of London Bridges Walk 2010 and raised £485. In Memory of Ben Newton Jo Forgan sent in a donation of £815 raised at a recent rugby event.
CRY update • Issue 52 • 35
In Memory of Barry Nivett Team Barry took part in the CRY Heart of London Bridges Walk 2010 and raised £537. Team Barry were James Boag, Janette Coxon, Philip Harrington, Wendy Harrington, Rob Nicoll, Sarah Nicoll, Ellen Nivett, Grant Nivett and Jenny Tyler. In Memory of Kerry-Ann Offord • Kate Schiavi raised £1,000, through online fundraising, in respect of the Reading Half Marathon.
• Gary Horn sent in a donation of £369.32 from the collection boxes at the Kerry-Ann Football Fives event.
• Will Wilkin, Leon Ross and Emma Ross undertook a 200 mile
trek across Scotland, from 14 to 27 May, and have so far raised £1,290 through online fundraising.
“The TGO Magazine Coast to Coast Challenge is a 200 mile walk across Scotland, taking in 12 munros, amounting to a total ascent of 36,000 feet. The route was planned by the team - Will Wilkin, Emma Ross and Leon Ross - and included lots of wild camps and some remote B&B rest stops (for well needed wee drams and proper food). Our fortnight long adventure crossing The Highlands is over and some time has now passed, more than enough to allow memories of the hard times to fade and the good to flourish. Our first three days saw us crossing the dramatic and brooding wilds of the Knoydart Peninsula through to the welcoming embrace and eccentric hospitality of the Tomdoun Hotel. These three days saw some filthy weather; some very wet feet; the sad news that another challenger known to us had retired due to injury and, most importantly, some of the most spectacular views this country, if not the world, has to offer.
36 • CRY update • Issue 52
The next day provided us with the start of what would be a challenge-long theme of beautiful weather, as well as everybody’s favourite view. Yet - as we crossed the Great Glen, left the majestic Western
Highlands and headed for General Wade’s military road over the Corrieyairack mountain pass of the bleakly beautiful Monadhliath mountains - trouble was brewing. After a further two days of mountain tracks and unending tarmac, we arrived in Kingussie broken and battered by the perpetual effort with Emma almost crippled by the blisters she had been fighting through for the past 40 miles. They were to prove costly. After an enforced rest day, and with heavy hearts, Leon and I dropped a disconsolate Emma off at the train station and struck out towards Glenn Feshie a man down. Two days of landslides, stunning vistas, ‘luxury’ camp food, panic due to a short term inability to read maps and scorching heat, Leon and I rolled into Braemar to find a surprise welcoming committee that included a refreshed and fully recovered Emma, yay! The rest of the journey saw us on an easier route via Ballater, Aboyne, a pub or two and the flatter, greener, rolling vistas of the east.With a recharged Emma and strength in our legs we powered through the final leg with little incident or trauma feral herds of killer cows and the sad loss of my spork aside.
Our So, on a disappointingly drab and rainy Thursday lunchtime we duly touched the water in the shadow of the imposing Dunnottar Castle and contemplated our return to normal life. This was my second challenge, and once again I was overwhelmed by the beauty and majesty of the Scottish Highlands. It is this incredible landscape which brings so many back to this event, but I also take as much from the trip in the form of the simplicity of the endurance feat. There is really nothing to your day other than putting one foot in front of the next with the occasional stop to rest or refuel. It is an opportunity to completely clear your mind of the clutter of everyday life, whether by slow contemplation or by completely blanking your mind.
In Memory of Simon Pangborn “It gives me great pleasure to enclose a donation of £110 on behalf of our football team FC Bracknell under 16’s. CRY is very close to our hearts as Simon founded the team 11 years ago and Harry continues to play and is the team captain.” Sam Pangborn (on behalf of Bracknell Under 16’s). In Memory of Andrew Parker • Norah and Chris O’Donnell sent in donations totalling £1,078; £978 from the Liverpool Half Marathon and £100 donation from the Babcock Community Investment group.
• Christopher O’Donnell raised £153, through online fundraising, in respect of the Liverpool Half Marathon.
• We have received a matched giving donation of £200 from Sainsbury’s Local Heroes.
On this trip the chance was taken, from time to time, to reflect upon the reasons behind our fundraising and, in no small part, how lucky I was to have the health and well being to be able to visit such places.
In Memory of Paul Parker Katrina Parker took part in the CRY Heart of London Bridges Walk 2010 and raised £187.
CRY do great work and I’m glad we were able to contribute in some small way to them helping the victims and loved ones who are affected by what is such a tragic condition.” Will Wilkin.
In Memory of Stuart Parkinson • Ian Gough sent in a donation of £1,400 from the Sportsman’s Dinner held on 18th June in memory of Stuart.
In Memory of Josh Ogle Dromore Central Primary School held a pantomime in memory of Josh Ogle and raised £770.51. CRY Representative, Martin Collins, collected the cheque and gave a short talk about the work of CRY. In Memory of Shaun Palmer “Please find enclosed a cheque for £1,543. The money was raised on Friday 28th May in celebration of Shaun’s 25th birthday. Shaun’s friend, Samantha Brown, organised the charity event in his memory. There was a fashion show, which his sister Keelie took part in, the Star Dance Team, singers and disco. It all took place at the Notts Working Men’s Club, Leicester. About 250 tickets were sold as well as a raffle. It was a fantastic night and lovely to see family and friends.” Mandy Palmer
• Ian Gough sent in a donation of £480 in respect of a 12 mile walk along an old railway track in memory of Stuart.
In Memory of Andrew Parr We have received donations amounting to £346 from Ruth Lowe in lieu of floral tributes in memory of her mother, who was keen to know that young people had the chance to be screened. In Memory of Jonathan Parr Christine Parr and Ian Parr took part in the CRY Heart of London Bridges Walk 2010 and raised £250. In Memory of Darryl Passfield • We have received donations amounting to £250 in lieu of floral tributes in memory of Darryl.
• Amanda Doods took part in the BUPA 10K run and raised £450.
Brennan, Enrich Employment Benefits, sent in a donation of £100. Darryl Passfield who ran marathons, here running in memory of his grandfather.
Left to Right - Mandy Palmer, Samantha Brown, Keelie Palmer taken in garden at Shaun’s place of rest.
In Memory of James Patrick Patterson • Peter Patterson forwarded a donation of £150 from his neighbours, Mr & Mrs C Willis, in respect of the sale of a car.
CRY update • Issue 52 • 37
• “The enclosed cheque for £1,000 is a donation to my brother’s
memorial fund. The donation results from a deed of variation I was granted in respect of a legacy left to me by our aunt, Mrs Jean Weedall, who died last August.” Catherine Patterson.
In Memory of John Francis Patterson “My dad, John Francis Patterson, died on 17th April 2010 and had been a supporter of the charity for nearly 20 years since the son of his close friend died suddenly of a heart attack aged only 11 years old. My dad also suffered from heart problems himself. He was only 59 years old when he died. He missed his 60th birthday by only a few weeks (11th May 2010).” Anna Patterson sent in a donation of £305. In Memory of Adam Pearmine Charles Pearmine sent in a donation of £700. In Memory of Emma Peek • Jonathan Peek made a donation of £750 in respect of Fran Powell and Lisa Hines and the post marathon fundraising party.
• Jonathan Peek sent in a donation of £100 from his Cricket Club’s fundraising in memory of Emma.
In Memory of Chris Perry “Please find enclosed a cheque for £400 which was raised at a recent golfing event by a group of surveyors and lawyers from Berkshire. I have asked the Chairman of the society, Mr Stephen Head, that it be donated to your organisation in memory of my late husband, Chris Perry, a fellow surveyor. Chris was a seemingly fit 48-year-old, whose regular sports included cycling, running and badminton. He became ill very suddenly last May after falling whilst out running and deteriorated rapidly, a diagnosis of a rare heart tumour only being made five days before his death. Although monies have already been raised by friends, family and work colleagues for research into heart cancer, I feel that your organisation is appropriate, as I consider my husband far too young to be struck down, and sudden death syndrome so often affects sportsmen and women.” Mrs Claire Perry.
various locations in Helmand Province, Afghanistan. The half marathon was completed by members of not only 212 Signal Squadron soldiers but also soldiers from the British and Danish Task Forces. In total we raised £5,083.16 which was split between CRY and Help for Heroes.” Sgt D L Tuck, 212 Signal Squadron, 1st (UK) Armoured Division Headquarters sent in donations totalling £1,909.95. For more photo, please visit www.c-r-y.org.uk/afghanistan_half_marathon.htm
In Memory of Jonathan Picker “I enclose a cheque for £120 which was raised by our organisation when we ran a Bring and Buy and a raffle.” Wick Ladies’ Afternoon Club. In Memory of Charlotte Pistra “In December 2008, Lt Charlotte Pistra took a team of soldiers from 1 (UK) Armoured Division Headquarters and Signal Regiment to Zell Am See in Austria to represent the Regiment in the Corps Ski Camp. Sadly Lt Pistra died after breaking the record for the race in which she had just competed. Lt Pistra was unduly taken away from us and further tests proved she had a heart defect that was never detected. Thankfully this encouraged her identical twin sister Victoria to go and be tested. Now Victoria Pistra is fitted with a defibrillator and can now carry on with her life. On Christmas Day 2009, I organised a half marathon that took place around
38 • CRY update • Issue 52
Maj Emmerson and Sgt Tuck In Memory of Craig Daniel Powell Team Pringle took part in the CRY Heart of London Bridges Walk 2010 and raised £489. Team Pringle were Lynda Evans, Anthony Fleming, Helen Fleming, Karen Fleming, Theresa Morris, Mark Powell, Terry Probert, Anne Rowe, James Rowe, Michelle Sexton, Marlene Upham, Rod Upham and Howard Williams.
Our In Memory of Craig Daniel Powell and Mrs J Hurn We have received a donation of £177.90, in lieu of floral tributes, for the late Mrs Janet Hurn. In Memory of William “Bill” Preest Rob Borthwick took part in the Virgin London Marathon 2010 and raised £886.41. In Memory of Ron Presley • We have, to date, received donations totalling £2,320 in memory of CRY’s first Chairman, Ron Presley OBE.
Jake Presley, Freddie Fitz-Gibbon, Hugo Gateley, Fred Evans, Louis Timpany and Andy Wilson embarked on a charity bike ride from London to Paris to raise funds for CRY. This is a personal charity to Jake as his Grandfather was the first ever Chairman of CRY. The team have raised £3,565, so far, through online fundraising
They left there about 3.15pm, by which time the sun had come out again, and within 5 minutes had the second puncture of the trip not bad going. They arrived at the Eiffel Tower in Paris at 5.30pm on Monday 12th July. We all had a very French supper together before the boys went out on the town and, apparently, got to bed at 4.30am!!!” Frances Presley. In Memory of Rowan Preston Alastair Preston and colleagues sent in a donation of £200 from various fundraising activities. In Memory of David Quinney “Janice & Robert Pey recently celebrated their Silver Wedding and asked for donations from friends and family to go to CRY.” Mick & Dot Quinney forwarded their donation of £100. In Memory of Olivia Raby Rebecca Anderson took part in the BUPA Greater Manchester Run and raised £160.
“The cyclists left the London Eye at 7.15am on Friday 9th July, and within 20 minutes one of them had a puncture! However, despite the temperature getting hotter and hotter by the minute they arrived in Folkestone by 5.00pm. They took the 7.30am ferry to Calais on Saturday and over the next two days kept up to their schedule of mileage.
In Memory of Mike Rathbone Lynne Rathbone sent in a donation of £550 kindly donated at Mike’s funeral by family, friends and colleagues. In Memory of Edward Reading • Sean Reading has raised a further £740 for the Virgin London Marathon 2010, taking the total raised to £1720.
• Martin Upton has raised a further £250 for the Virgin London Marathon 2010, taking the total raised to £1650.
In Memory of Malcolm Reed • James Holmes raised £480, through online fundraising, in respect of the Ras Al Khaimah Half Marathon.
• Wilma Reed forwarded a donation of £110 raised at several charity functions and auctions at Stirrups Hotel.
Nick, Jo, Maisy and I left on the 8.00am shuttle on the morning of the 12th and met them all in Triel-sur-Seine - which is twinned with Leatherhead - in a complete downpour. The twinning members there were wonderful and arranged for us all to have our picnic lunch in one of the rooms of the mansion where we met.
In Memory of Tom Reid • Halina and Antony Reid have forwarded a donation of £250 from Martin Farrell and his company, Get2thepoint.
• Sarah Shipley took part in the Derwent Way Trek and raised £678.68 through online fundraising. In Memory of Scott Rennie • Bill Brigden raised £521.85, through online fundraising, in respect of the Great West Run 2010.
CRY update • Issue 52 • 39
• George Ballard has raised a further £100 for the Virgin London Marathon 2010, taking the total raised to £3,075.08.
• Presentation Service Providers Limited forwarded a donation
of £100 from Sir Clive and Lady Jane Woodward in respect of sponsorship of David Woodcock and Edward Higgins (Team Dedward) completing the Devizes to Westminster Canoe Race.
• David Woodcock raised £3,170, through online fundraising, in respect of the Devizes to Westminster Canoe Race. This makes a total raised of £3,270.
“We [David Woodcock and Edward Higgins] started training for the Devizes to Westminster Canoe Race in December 2009, having heard about the obscure race from a couple of friends over a couple of beers. Neither of us had much experience of canoeing and in fact Ed had never even sat in a canoe! But both of us were looking for a new challenge and didn’t fancy running a marathon so this race seemed like the ideal opportunity. We did a lot of research and through a friend we joined nearby Richmond Canoe Club. There we were taken under the wing of a former Olympic canoeing coach, Trevor Weatherall. We met with Trevor one night in Richmond and he gave us the full lowdown on the race. It is known as the “Canoers Everest” and the majority of people who compete in the race are hardened canoeists, so for a couple of complete novices this was going to require a lot of hours in the boat. To say we landed on our feet would be a massive under statement and Trevor played an integral part in teaching us how to canoe and getting us in to shape.
conditions were very challenging with high winds and rain, which at one point meant the race was going to be delayed by 12 hours. We arrived at Devizes two hours ahead of our planned leave time at 11am. The first two hours were spent registering and getting the boat ready along with some last minute team talks! Also listening to a worrying safety briefing which mentioned a standing wave at one of the bridges in Marlow! We had mentally broken the race down in to four parts, but the furthest we had ever been in training was only 40 miles. This fact I think weighed heavily on our minds, the fear of when we would hit the “wall” and how we would be able to get through this. The first 30 miles of the race saw us go from Devizes to Newbury, this section is all on the canal, which means no river flow and a lot of portages (where you have to get out of the boat and carry it round locks). This section was relatively straightforward, although due to the heavy rain the portages were very muddy which resulted in both of us falling over at several points! The next slog was from Newbury to Reading, the motivating factor here was that when we got to Reading we would be able to stop for 2 minutes and get some hot food on board and a change of clothes. At this point it was dark and our support crew were keen to get us moving so after half a pot noodle (one of the best things I have ever eaten!) we were on our way.
We trained religiously from December up until the race and by the final week we were paddling some 80 miles each week. There were a few times we questioned what we had signed up to, particularly the night time paddling sessions when the temperatures in January hovered around freezing! I think one of the main reasons we were able to stay motivated was the fact that we were raising money for such a great cause and our friends were so supportive and generous. The main difficulty we had during training is that 2 weeks before the race Ed was very ill with a stomach infection, which resulted in him loosing over a stone in weight in 1 week. We ended up missing a vital build up race and at one point we were worried about whether Ed would be in good enough shape to compete in the race itself. But the weekend before the race we went out and paddled 50 miles in a weekend and Ed came through it fairly well. At this point, having dedicated 4 months of our lives preparing for the race, I don’t think anything was going to stop us. The race itself took place on Easter weekend and we were aiming to complete the 125 miles in 24 hours. The Easter
40 • CRY update • Issue 52
Our The next section from Reading to Teddington lock is where the majority of crews drop out. This is around 40 miles and is paddled at night. With a heavy cloud cover, navigating our way around the windy river was very difficult. Other crews were also struggling and a crew in front of us narrowly avoided going over a weir, which would have been a fatal mistake. This helped to focus the mind as we quickly realised that one wrong mistake and there was more than not finishing at stake.
We arrived at Westminster as Big Ben chimed 11am. This is no London marathon and a crowd of maybe 100 cheered us over the line. We were helped from our boat by the marshals and walked arm in arm up the stairs of County Hall. All those months of training had paid off and we had made it in 22 hours and 58 minutes, 1 hour ahead of our planned schedule. We were both too tired and drained for any celebrations, but with our medals around our necks we limped back to our cars and headed home for a much needed shower. Our achievement really came home when we were told that out of the 160 boats that started the race 60 retired. In the end we will raise around £9,000 for CRY and Help for Heroes. We just need to find our next challenge, maybe the Atlantic.....” David Woodcock.
We battled through the night to Teddington with our support crew constantly pushing us on and ensuring we were taking on lots of fluids and fuel. There were some low points, Ed lost the feeling in his right leg during the night which never came back (until a week after the race) and I was really struggling with my wrists. The 90,000 paddle strokes that we would make during the race were beginning to take effect as was the sleep deprivation. Our minds were playing tricks on us and at one point I thought I saw a waterfall, which on the Thames would have been amazing! As dawn started to break our spirits were lifted and we knew we just had to dig in and we would be at Westminster before we knew it. We pulled in to Teddington right on schedule and were greeted by our support crew and a few brave friends who had dragged themselves out of bed at 6am on a Sunday morning. We took on some fresh supplies, lots of energy gels and pushed on to Westminster.
In Memory of Alex Roberts The Brook Pub team took part in the CRY Heart of London Bridges Walk 2010 and raised £200. The Brook Pub team were Vince Barker, Andy Boro, Trevor Cooper, Barney Goldhawk, Nobby Harper, Stacey Harper, Scott Hilsden, Mel Hughes, Steve Lawford, Ami Mcevoy, Richie Rich, Andy Roberts, Craig Roberts, Fiona Roberts, Paul Roberts, Floyd Robinson, Lauren Robinson, Tracie Robinson, Cassi Roper, Kirsty Roper, Buzz Wilkerson, Alison, Andy, Nocker and Sharon. In Memory of Luke Rogers • Angela Rogers sent in a donation of £250.
• Angela Rogers sent in a donation of £540 from the sale of books and a donated caravan awning.
In Memory of Liam Ross and Martha Weaver We have received a donation of £130, in lieu of floral tributes, in memory of the late Martha Weaver. In Memory of Thomas James Saunders We have received a donation of £725, in lieu of floral tributes, for the late Thomas James Saunders who passed away on 12th April 2010. In Memory of Stewart Sands Derek and Geraldine Sands sent in cheques totalling £450. “This was raised at a charity function run by Lawford Scouts in memory of our son Stewart, a member of the Scouts.” In Memory of Neil Schuyleman Debbie Collett, Fiona Collett, Andy Davies, Georgie Davies, Helen Davies, Peter Davies, Ann Edwards, Emma Edwards, Alexia Georgakakos, Anna Geogakakos, Hugh King, Janice White, Cathi Wye, Kenton Wye, Monica and Susie took part in the CRY Heart of London Bridges Walk 2010 and raised £1,035.
CRY update • Issue 52 • 41
Fundraisers In Memory of Mike Scott Philip Aconley raised £110, through online fundraising, in respect of the Shakespeare Marathon.
In Memory of Thomas Shackleton “We held a music event in memory of Thomas Shackleton at the Snooty Fox. Thomas’ old band Slow Emotion with which he used to sing provided the music. More than 200 friends of Thomas came to remember him.” Michelle Derbyshire sent in £425.20. In Memory of Andy Shearer Dawn Cullen held a charity dance at Bellshill Boys Club on 5th June and raised £230.
Nick Buddell and John Gadd took home the ‘closest to the pin’ prizes and the mighty Ian Ritchie won the Longest Drive (he must work out!). The day finished in the evening sunshine with a BBQ at Beckenham Cricket Club and prize giving at Ben’s memorial bench. In all £730 was raised by this year’s event and we are all already looking forward to next year. A big thank you to all involved, especially those who helped organise the day’s events. This day keeps getting bigger and better and it is truly a wonderful way for us to remember Ben’s life.” Joe Simpson. In Memory of Ben
Simpson, Betty Middleton, Jack Middleton and Norman Ronald Mason
In Memory of Ben Simpson • Ms A Kemp-Jones sent in a matched giving donation of £300 for Ian Ritchie’s Golf Day.
Doreen and Ian Bruno sent in a donation of £100 in lieu of floral tributes in memory of Betty and Jack Middleton and Norman Ronald Mason.
• “Please accept a £520 donation to Ben’s fund at CRY. This was raised at two events; a golf tournament held in Bournemouth for the Ben’s Golf Day Trophy and a charity hockey match held by New Milton Hockey Club. During the golf tournament, family and friends from Bournemouth and London took part in what is our continued celebration of Ben’s life. New Milton Hockey Club have adopted CRY as their chosen charity in Ben’s memory despite Ben only playing for New Milton for a short time. It gives small comfort that we can continue to support CRY’s wonderful team and essential work.” Rob, Penny & Joe Simpson sent in donations totalling £520.
In Memory of Sarah Simpson • Will Simpson has raised £1,535 through online fundraising.
“The Ben Simpson Open 2010 was held on Saturday 7th August at Farleigh Court Golf Club and was started with the inaugural one putt challenge, won by Michael Skinner. A 31-strong field of friends and family turned out to remember Ben Simpson and support CRY for a sixth year running.
• Lynne Patrick took part in the CRY Heart of
London Bridges Walk 2010 and raised £175.
• Hilary Simpson took part in the CRY Heart of London Bridges Walk 2010 and raised £270.
In Memory of Matt Smith “On May 16th a group of friends and I held an event honouring our dear friend Matt Smith. Matt was one of the most caring, genuine and giving people I have ever known and had his whole life before him. Sadly, in November 2006 he went into hospital for a viral infection that spread to his heart. Matt passed away on 26th of that month, when he was just 18 years old. He is survived by his parents Gary and Sue as well as his two brothers, Michael and James and sister Lilly. Matt was an enthusiastic fan of Rugby Union. He loved playing and was a committed fan of both the Leicester Tigers, and the England Team. In memory of Matt we held a memorial rugby match, remembering him through the game he loved. We felt it a good opportunity to raise money for Cardiac Risk in the Young, providing supporters the option to offer money in support. Together, we raised £1,443 in Matt’s name. Thank you for your help in commemorating and honouring Matt’s life.” Jonathan Mathews. In Memory of Daniel Solomons “I am pleased to enclose a donation of £270, being funds raised in respect of the ‘Running for Dan’ event held in Brighton at the beginning of June.” Elizabeth Guyatt.
The event was eventually won by Peter Wiles in his first year of competition, but he was run close with 4 players finishing on 43 stableford points - Peter to win only on count back.
42 • CRY update • Issue 52
Our In Memory of Ian Strange “Would you kindly accept this cheque in memory of my dear son Ian, whose birthday it is today (16th May). I hope this small donation will go towards helping someone who has lost a loved one the way CRY helped me. Keep up the good work. I, for one, would never have survived without your help and support.” Patricia Strange sent in a donation of £100.
robin format, leading to semis and finals. Fun was had by all and the deserving and sober winners were Eddie Holt and Natalie Taylor (Step daughter of Vicki). The Karaoke then took place with the highlight being a debut performance from the Burnley Boys who sang a set of 6 songs, taking the crowd through a journey of boyband history!!!
In Memory of Natalie Stroop “Almost exactly one year ago we lost our younger daughter, Natalie, through a sudden cardiac arrest which occurred while she was jogging. She was 23 years old. As we have experienced first hand the utter devastation caused by such a tragedy, we hope our donation can be used towards research projects in SADS to help prevent other families from going through this awful trauma in the future.” Mrs Jean Stroop sent in a donation of £375. In Memory of David Styles • John Beck took part in the Virgin London Marathon 2010 and raised £1,034.50.
• We have received a donation of £250 from Mike Styles. In Memory of Paul Sykes Team Sykes took part in the CRY Heart of London Bridges Walk 2010 and raised £665. Team Sykes were Patricia Berry, Edward Blowers, David Dillon, Susan Dillon, Anna Dillon-Patel, Deborah Hyder, Sean Hyder and Carly Sykes. In Memory of Hannah Elizabeth Taylor • We have received a donation of £1,141.46, in lieu of floral tributes, for the late Hannah Elizabeth Taylor who tragically died on 16th March 2010 aged 20 years.
• The Inner Wheel Club of Harwich and Dovercourt sent in a donation of £500.
• Charles Bull sent in the donations totalling £1,752.50; £1,657.50 from the Memorial Horse Show held on 11th July and £95 from the Raising Awareness table at Harwich Sea Festival.
In Memory of Kelsey Taylor We have received a donation of £1,010 from the Kelsey Taylor Memorial Show which was held on the 30th March. In Memory of Vicki Taylor “Burnley Tennis Club held their 3rd Annual 24 Hour Tennis and Karoake event on the 28th August 2010. It was a great day kicking off at 9am with the Mavericks taking on the Wannabees in the Junior Section with 49 Championships tiebreaks being played and the Mavericks just winning 25-24.
So far a total of just over £400 has been raised and we are still taking donations until the end of 2010. All Vicki’s family would like to thank everyone involved in the day and for their kind donations, it is very much appreciated.” Iain Taylor. In Memory of David Tallis Katie Lovett has sent in further donations in respect of the Virgin London Marathon 2010, taking the total raised to £1,941.
In Memory of Zoe Teale • Julie Teale sent in a donation of £1,370.21. “Members from the Catering Team at Oldswinford Hospital School in Stourbridge West Midlands completed the Lions Club annual 8 mile Raft Race from Arley to Stourport upon Severn in Worcestershire to raise funds for the Zoe Teale memorial fund, 46 Rafts took part in the challenge, hundreds of people lined the river banks and cheered us all on.” Peter Teale.
The senior American Tournament consisted of 29 players with an experienced player partnering less experienced over a round
CRY update • Issue 52 • 43
• “Please find enclosed a cheque for £100 which has been donated by our local parish council.” Julie Teale.
• “Please find enclosed a cheque for £903 for the Zoe Teale
Memorial fund. Ian Parton completed a Ben Nevis Trek on 1st May 2010 and raised this amazing amount.” Julie Teale.
• “Ian Parton from Heath Hayes
in Cannock, completed a Ben Nevis Trek in aid of the Zoe Teale memorial fund. Ian raised an astonishing £903, the donations to Zoe’s fund are being ring fenced to pay for ECG screening sessions for young adults between the ages of 14-35 yrs, to help detect and prevent sudden adult death syndrome. Ian’s donation has now taken the total raised to over £23,000.” Peter Teale.
Teale forwarded donations t o t a l l i n g £534.58; £10 donated by Ken Gaskin to Ian Callander for marathon sponsorship, £100 donated by Ian Perks Estate Agent (Party in the Park event) and £424.58 donated by Old Swinford Hospital School - money raised at the Party in the Park event.
• Julie Teale forwarded a donation of £430 from Waitrose in
Stourbridge. The money was raised as part of the “community matters” programme, where customers are invited to put green tokens in their favourite charity box. Waitrose then donate £1,000 each month, split between three local charities.
In Memory of Dale Tennent Butler • Angela Tennent Butler sent in a donation of £250 in memory of her son, Dale.
• Angela Tennent Butler sent in a donation of
£700 from the Carnival held in June in memory of Dale.
• “On Bank Holiday Monday, between 200 and 300 people
attended our Charity cricket match held for Dale TennentButler’s memorial fund; all monies raised have been sent to CRY.
On the day we had lots of photos of Dale and CRY Patrons - and balloons - adorning the cricket club. The ladies’ game was a fun event, many of us were bruised and full of aches and pains, but it was worth it! Lots of families had a picnic and there was a barbecue for those who didn’t cater for themselves. The raffle was a huge success raising lots of money. There were some brilliant prizes including a TV; a notebook PC; and a snooker cue signed by Steve Davis. We sold lots of wristbands to everyone and many of Dale’s friends arrived in the afternoon (all straight back from Reading festival). We raised £1100 by selling raffle tickets and wristbands. After the raffle there was some live music from ‘Jack and Luke’ - friends of the family. It was a brilliant end to a great day. There was no rain and lots of happy people. We intend to repeat the event next year for sure. We would like to thank all of our wonderful friends and family for their continued support.” Angela Tennent-Butler.
Peter Teale with David Harcourt of Waitrose. In Memory of Stephen Tennant Katy Tennant raised £1,245, through online fundraising, in respect of a skydive.
44 • CRY update • Issue 52
Our In Memory of Christopher Thomas Charles Thomas took part in a tandem skydive and raised £125.
In Memory of Scott Thurlow • Cathryn Simpson took part in the CRY Heart of London Bridges Walk 2010 and raised £100.
• Chris, Marcelle, Michael and Wendy Thurlow took part in the In Memory of Dean Malcolm Thomas “Please find enclosed cheques raised at a Charity Auction held in the Constitutional Club, Aberdare, on Saturday 5th June 2010, in memory of Dean Malcolm Thomas. The event was organised and run by Gareth and Linda Roberts, Dean’s parents, who were assisted by other family members. A raffle was also held at the event with prizes donated by many local businesses as well as private donations.” Colin Lade sent in donations totalling £524. In Memory of Gareth Llywelyn Thomas Team Thomas took part in the CRY Heart of London Bridges Walk 2010 and raised £710. Team Thomas were Cheryl Dunstall, Chris Dunstall, Jayne Griffiths, Wayne Griffiths, Dr Mair Hopkin, Owen Hopkin, Angela Nutt, Rachel Nutt, Roger Nutt, Stephen Nutt, Anne Thomas and Trefor Thomas. In Memory of Dylan Thompson Angela, Ben, Jan and Patrick Harper took part in the CRY Heart of London Bridges Walk 2010 and raised £200.
In Memory of Matthew Thomsett Anne Thomsett took part in a parachute jump on 14th July and raised £810.
CRY Heart of London Bridges Walk 2010 and raised £150.
In Memory of Stuart Tocher Ian Tocher took part in the CRY Heart of London Bridges Walk 2010 and raised £300. In Memory of Richard ‘Rich’ Tomkins • Karen Haycox sent in two donations totalling £910 from the Line Dancing fundraising event.
• Andrew Tomkins sent in an additional £500 in respect of the Pyrenean Cycle Challenge which took place on 19th June 2010. • Team Sun Boy Rich T took part in the CRY Heart of London
Bridges Walk 2010 and raised £223. Team Sun Boy Rich T were Tony Blackwell, Jan Blackwell, Peter Dunkley, Wendy Dunkley, Amy, Joanne and Melissa. In Memory of Hannah Turberville • “On behalf of Friends of Guides and Scouts (FOGS) I am enclosing a cheque for £100. This follows our AGM when it was decided that our outstanding monies should be donated to this charity in remembrance of Hannah.” Diane Baker, Sec FOGS.
In Memory of Nicholas Thorne “We are pleased to enclose a cheque for £150 for CRY. This came from sales of toys from our ever popular toy stall.” Mrs Icona Miles, St Joseph’s School Association.
• “I am delighted to send you this cheque for money raised In Memory of Christian Thunhurst Matthew Chapman has raised a further £510 for the Virgin London Marathon 2010, taking the total raised to £2,221.20.
by 9th Harpenden Scouts. They took part in some fitness tests, learnt a bit about the structure of the heart and made a heart on the scout hut floor using the coins collected.” Katy Turberville sent in a donation of just under £100.
• Brian Turberville took part in the CRY Heart of London Bridges Walk 2010 and raised £100.
CRY update • Issue 52 • 45
• Helen Pyne has sent in further donations in respect of the
Virgin London Marathon 2010, taking the total raised to £400.
In Memory of Ben Webster Ellie Webster and family took part in the CRY Heart of London Bridges Walk 2010 and raised £100. In Memory of Neil
Irene Wickers forwarded a donation of £272 from the Tombola stall outside Darwen market. In Memory of Neil Wickers “Please find enclosed a cheque for £250. This has been donated by a local author who wrote a book about the area: ‘Mills, Mines & Memories’ and for every book he sold he donated £2.50. His name is Kenneth Kershaw. They were sold for him by my cousin Patricia Rutter and her friend Silvia.” Irene Wickers.
In Memory of Daryl Turner “Please find enclosed a cheque for £300. This is in memory of Darryl Turner, who left us on 26th October 2000, he would have been 38 in January. I have been making greetings cards and selling them at our local car boot sales. We still miss him - he was such fun to be near and was loved by so many. Until our Darryl left us through ADS we had never heard of it. Thank you for being there for us. This is our way of commemorating his 10th year.” Doreen & Gerald Turner In Memory of Andy Walker Alexis Watson took part in the Tokyo Marathon Madness and raised £2,083.20 through online fundraising. In Memory of Bethan Webb Lauren Webb sent in a final donation of £146.86 in respect of sponsorship for the Cardiff Half Marathon 2009. This makes a total raised of £325.05.
46 • CRY update • Issue 52
In Memory of Neil Wickers and William Wickers Irene Wickers sent in funeral donations totalling £920 in memory of her son, William. In Memory of Bobby Wilde We have received a donation of £208.17, in lieu of floral tributes, for the late Bobby Wilde who died suddenly aged 31 years. In Memory of Amy Williams Elizabeth and Nicola Williams took part in the CRYHeart of London Bridges Walk 2010 and raised £297.20.
In Memory of David Williams Lindsay Herbert took part in the CRY Heart of London Bridges Walk 2010 and raised £102. Linda and Claire Jones took part in the CRY Heart of London Bridges Walk 2010 and raised £150. Anthea Martin took part in the CRY Heart of London Bridges Walk 2010 and raised £100. Phil Canham, David Watson, Rita Watson, Rob Watson, Lisa Williams and Sue Williams took part in the CRY Heart of London Bridges Walk 2010 and raised £212. In Memory of Laura Williams Greta Bridges, Daniela Cerda, Ann Edgar, Samantha Fortune, Hollie Jones, Tara Jones, Margaret McDermott, Lisa Murphy, Zena O’Connor and Elizabeth Woodbridge took part in the CRY Heart of London Bridges Walk 2010 and raised £220. In Memory of Simon Williamson Marian Williamson sent in a donation of £200.
More tomorrow evening...
Day 1 - 97 miles, 6250ft of ascent and 7 hours in the saddle. Up at 5am for breakfast at 5.30. Stand around in the freezing cold (in shorts!) to register and finally get going at 6.45. All the preparation and excitement and we are finally off. And then within 2 miles we are lost! Very frustrating, but we are soon on our way again and really begin to put in the miles.
By 9am we have our first water stop and sit in the garden of a sadly shut pub in glorious sunshine - a chance to try and rub some feeling into numb toes.
There’s a great mix of people here, of ages ranging from 20 to probably over 60 and they are all riding for great causes. Some of the stories they have to tell are heartbreaking. Notably there is a group riding for a charity in support of children’s eye cancer. One of their riders is blind and rides at the rear of a tandem. Amazing.
Despite a little rain, all goes well and we reach the last water stop with 15 miles to go and 2 hours to do it in. Easy! Except they forgot to mention the three terrible hills we had to climb they were bad enough, but doing them after 80 miles cycling . . . Yeuch!
cycle ride in May and raised £1,450. The event involves riding 550km in four days.
Anyway on the ferry now, just enjoyed a pleasant supper of fish and chips and my last English beer for a few days.
“Day minus 1 (the day before) Putting the last stages of preparation together before the big ride. Keeping an eye on the weather forecast for tomorrow, which is a bit of a challenge as it starts at 4oC (which is cold for a cyclist) and eventually reaches 12oC.
Looking forward to a good night’s sleep.
Day 2 - 74 miles, 4250ft of ascent and 5 1/2 hours in the saddle. Hard going this morning, temperature down to 7oC (forecast at 12) and all pretty cold and miserable. And that’s without all the aches from yesterday.
In Memory of Rianna Wingett Amanda and John Wingett took part in the CRY Heart of London Bridges Walk 2010 and raised £1,125.
In Memory of Daniel Young A charity night was organised by Martin Morris and Mr & Mrs Sidlow at the Botanical Gardens on 3rd July in memory of Daniel which raised £522.
General Fundraising • The Abbey School Student House group Endeavour sent in a donation of £392.18.
• Bob Allen took part in the Southend Bike Ride on 18th July and raised £100.
• Guy Allen took part in the London to Paris
The wind is also gusting at 27 mph, so should be a fun crossing of the channel too. Choosing the right things to wear on day 1 is key, and carrying what you don’t need will be a pain.
About 11am we decide to take a diversion into Montreuil sur Mer and have a coffee It’s a complete lift and turns our slog into a trip.
By the way Montreuil is lovely and well worth a visit....despite its name it’s nowhere near the sea!
After that we’ve cracked it and it’s all a pleasure. It’s a French bank holiday, therefore everything is closed including le Musee de Crecy. We do get to see the battlefield though which is very evocative.
Eventually we coast into Abbeville, a city bombed near to extinction in 1916 and 1940 but they’ve done a great job of rebuilding it into a new and modern city.
That includes the abbey as well which had a bomb dropped on it in 1940.
Tonight we’ve got to get the bikes and ourselves from our homes in Buckinghamshire to Crystal Palace, ready for our start at 6am tomorrow. We are staying at the Athletes Lodge which seems kind of fitting, though not sure if we are really worthy considering some of the fantastic athletes that must have stayed there in the past!
CRY update • Issue 52 • 47
A bit to eat, a little wine, and we go to bed hoping for some sunshine tomorrow.
Day 3 - 72 miles, 3900ft of ascent and 5 hours 20 mins in the saddle. ‘Ou est le cafe?’ Decided to make it more of a trip than a hard slog today by stopping at a couple of cafes on the way. However despite cycling 70 miles and passing through numerous beautiful French villages, not one of them had a cafe! We even took a 3 mile diversion to a small town thinking it would have a small cafe or a bar - it didn’t.
Weather a bit kinder today, bit warmer but still a strong headwind. Some great stories on the road but also some heartbreaking ones. A number of people are riding because a loved one is suffering or recently died and that makes it all the more poignant and worthwhile.
Cruised into Beauvais about 3.30 and finally found a cafe; treated myself to a coffee and a rhubarb tart - hey, after 250 miles I think I’ve deserved them.
Will sleep well tonight.
Day 4, final day - 56 miles, 2900ft of ascent and 4 hours 11 mins in the saddle. Final day and we are all relieved to find out its only 50 miles. It shows how far we have all come when this distance seems too easy. The sun is out and all is well with the world.
After yesterday’s farce we continue the search for a cafe and come off the bypass to go to the centre of Meru, a very pleasant small town. And at last we find what we are looking for and enjoy a cafe au lait with the sun beating down on our faces.
After 30 minutes soaking up the French atmosphere we set off for the first water stop, only to get told off by the organisers as we were the last to arrive and they were getting a bit worried about us! Ah well.
We put our heads down and do a bit of peloton riding to arrive for lunch in the middle of the pack. One of the group says his farewells as he is continuing on cycling to Biarritz - mad.
We team up with the front riders for the next 9 miles and get a tow by tucking in at the back. Cycling like this is really different and a real blast. Finally the whole 93 riders regroup at the holding stage and we ride the last 2 miles en masse with escort cars through the streets of Paris.
48 • CRY update • Issue 52
Plenty of Parisians wave and cheer, and then, round the next bend, the Eiffel tower comes into view. We don’t really see it until we are on top of it, and it’s a fantastic sight, and for the first time the magnitude of our achievement sinks in.
A number of riders have family members there to wave them home and some massive banners, it all brings a lump to the throat. We park up under the tower for pictures and suddenly Champagne appears and for a moment we are as one. We have raised more than £130k between us and proud of each other and what we have achieved together.
All in all a great experience and would recommend it to anyone. If you are thinking of doing this or a similar event I have only one piece of advice; just get on and do it, you won’t regret it.” Guy Allen.
• Georgie Ambrose, Nidhin Laji, Jack Hillcox, Charlie Fergus and
Angus Walker tackled a gruelling 54 mile sponsored walk on 30 June dressed as The Village People. They have raised £1,285, through online fundraising, to date.
“We set off at 4pm from the foot of the South Downs in sweltering heat, which gradually progressed to icy fog once we reached the summits. The first twenty miles were relatively calm, easy and in sunlight but when night fell things got trickier.
Map reading became more complicated and encouraged us to go quite badly wrong on several occasions, at one point down a hill and into a pond! Despite our accidental detours, we did manage to make quite good time. Everyone was in a reasonably good state until about 2am and the extent of what was to come finally dawned on us.
The next hour did seem to drag on for a long time, but a cup of tea, bacon butty and a change of socks at the breakfast station at 3am gave us quite a boost and we set off in a determined fashion with 20 miles left to go.
Boosted by breakfast and the sunrise we were flying along until we reached Cranleigh, 10 miles from Charterhouse. A foot inspection revealed several horrific blisters which made for a gruelling final straight. Up until this point, the biggest problem had been boredom along the 20 something miles of abandoned railway we had been walking on.
The last four hours of the walk were by far the longest and full of quite a few stumbles and falls. To add insult to injury, the finish line was at the summit of what, certainly seemed like, one of the steepest hills of the entire walk. We marched through the school gates just before 11am, some 18 hours 59 minutes and 54 miles after we started; none of us have ever felt happier to be on school premises than at that moment!
We were able to take some photos at the end of the walk, sadly Angus Walker [motor cycle cop] is not in them as we could not find him at the time (he was asleep).” Georgie Ambrose (Construction Worker), Nidhin Laji (Cowboy), Jack Hillcox (Indian), Charlie Fergus (Biker) and Angus Walker (Motorbike Policeman).
enjoying the music or chatting with others around the Fair.
Food available included a lot of homemade jams, pickles, tray bakes, cakes, tarts and scones. The hog roast and BBQ food were in great demand all afternoon.
A favourite attraction was the children’s Best Decorated Duck competition - for children aged 11 years and below. Over 400
• Jennifer Hedge, Angus Cardiac Group, sent in a donation of £100
ducks were displayed for judging by staff from the Ballygally Castle Hotel who sponsored the duck derby race. After this a hundred or more children headed off to the area surrounding the nearby river to watch their ducks race along the 150 metres course. With the dry weather, Ballyclare Fire & Rescue staff were on hand to give the ducks a ‘push start’ with water from a nearby hydrant. Around 6 minutes later and with about 5 metres to go to the finishing line, two ducks were neck-and-neck!
• Mrs Pene Aubin-Hart held a Masonic Ladies night in March and raised £308.
• Team Bai-Lee ( Paul Bailey, Debra Bailey and Fil Lee) raised a
further £230 in respect of the Stockholm Marathon. This donation was sent in by Paul Bailey.
• “The Ballynure Village Fair 2010 featured all kinds of activities and
attractions including craft stalls, barbecue, tug-o-war, rubber duck race, face-painting, live music and much more. CRY was one of several charities to benefit from monies raised over the course of the weekend.
Saturday 19th June was a warm sunny day, just ideal for holding the Ballynure Village Fair, the first for many years. It all kicked off at 12.30pm when music from the boy band “JAG” from Ballymena could be heard up and down the Main Street.
Within no time at all, the whole village was filled with people perusing the many stalls located within the local car parks of the Presbyterian, Methodist and Ballad Inn Pub and on Main Street, closed off to traffic.
Attractions included food, plants, books and crafts stalls, inflatables, games and an impressive display of vintage tractors and motor bikes.
Many children had fun with the face-painters, coloured hair spraying and tattooing. The not-so-young basked in the sun,
The giant inflatable slide was also popular, with queues throughout the afternoon. All proceeds from this and the other two inflatables were donated to the charity ‘CRY’ (Cardiac Risk in the Young). A total of £500.32 was raised. The owners of the vintage tractors and bikes raised a further £100 making a total donation of £600.32 for CRY. Other charities supported from Fair activities were Children’s Hospice and ‘Amara Aid’ who provide practical help to Tanzania.
The Mayor of Newtownabbey, Paula Bradley, judged the Primary School Fashion Show, which had been organised by the Methodist Church - where the final of weeks bowling tournament, involving over 60 entrants, was played at 6pm.
The variety of music ranging from Old Time Gospel favourites, ballads, easy listening, classical, accordion and Silver Band
CRY update • Issue 52 • 49
pieces helped greatly in providing a carnival atmosphere. Throughout the afternoon approximately 1800 people made their way around the many attractions.
The Landlord of the local bar hosted the Dunk Tank and a Rodeo Bull Challenge, involving volunteers from the community, raising over £500 to fulfil his plan for a defibrillator to be made available in the village for local people to access in the event of helping treat a cardiac arrest.
During the evening the Annual Ballynure Open and Local Tugof-War competition took place in the Ballynure Church of Ireland Rectory field. The winners, watched by over two hundred and fifty spectators, were the ‘Jackson’s Butchers’ team; a new name on the trophy. On Sunday afternoon, the Fair weekend concluded with a Sunday Picnic Praise in the Park at 4pm in Ballynure Memorial Park. Over 125 people relaxed on their deck chairs and rugs to listen to music and a short service presided over by the three local village ministers. The praise was led by a group from Ballyclare and the local Primary School choir provided singing before all enjoyed their Picnic after the service. Overall, the Village Fair - sponsored by Newtownabbey Borough Council and all the local business in Ballynure - engendered a greater sense of community spirit and awareness. With thanks to Newtownabbey Borough Council for providing a grant which allowed for the hire of the three children’s inflatable attractions from which funds were raised and donated to CRY.” Ken Armstrong, Ballynure Village Fair Organiser.
• “I am pleased to be able to tell you that CRY has been nominated
by the Bank’s staff and pensioners for a donation under the GiveAs-You-Earn (GAYE) matching funds scheme.” Kim Oakes, Bank of England, sent in a donation of £500.
• Karen Walsh sent in donations totalling £6,200 from the Banstead Village May Fayre.
Held on 1 May, the Banstead May Fayre celebrated its Silver Jubilee this year, and CRY was chosen as the charity to be supported by the event.
50 • CRY update • Issue 52
The Banstead May Fayre started in 1985 as a small village Fayre which is a wonderful English tradition. It has grown into a large parade and annual fundraiser.
The event is organised by the Banstead Village May Queen Group who are parents of children who live in Banstead or have strong connections with Banstead. There were stalls for all the family to enjoy including: face painting, tombola, raffles, Pimms and a beer tent.
This year’s Silver Anniversary May Queen was Jessica Halide Diges and the Mayor and the Lady Mayoress opened the Fayre.
CRY had a stall at the Fayre and a number of CRY staff and supporters joined in the main parade wearing CRY heart costumes. CRY supporter Julie Mills also gave a talk about CRY.
Volunteers included CRY staff Val Gurney and Suzanne Dallas; and the CRY supporters Mark and Marcia Hearne, Rob and Clem Ahearn and Julie Mills. Thank you so much for all your hard work.
Val Gurney of CRY had the following thoughts on the day:
“We are glad to say it was a dry (and mostly sunny) day and very enjoyable. Suzanne and I arrived early to put our new gazebo up which was very heavy, so of course we had men running
Our to our aid!! (Well, one!!). As you can see from the photos (below) it looked great.
Volunteers came to help us on the day - which we are very grateful for - and we all joined in the parade up and down Banstead High Street in our heart costumes.
This was great fun and hundreds of people waved us all on. The turnout at the May Queen was really good and we had many enquiries about what we do at CRY. I am sure everyone raised a lot of money for CRY and I would like to thank Jessica Diges (The May Queen) and the organising committee for selecting CRY as the chosen charity.”
This was definitely the most difficult part. The conversation stopped as soon as the sun went down and there was nothing to look at anymore. There were parts where we would find ourselves actually falling asleep whilst walking! Thankfully, we managed to remember to bring a little portable radio which was a real lifesaver! Once the sun was up again for the last leg, we felt quite rejuvenated and were ready to reel in the finish line with a bit of help from sweets and some Powerade!
We managed to finish the walk in 23 hours and 30 minutes which was within our time frame of 24 hours, which we were really pleased about. It was something that we felt really proud to have achieved, but not something that we hope to do again in a while!
To date, we have managed to raise £1,052.50, well in excess of our target of £1,000.” Alex Boden and Chris Gann.
• We have received a donation of £233.70 as matched giving on behalf of Barclays Bank PLC.
• Claire Beale took part in a tandem skydive and raised £125.
• Alex Boden and Chris Gann set out to
• David Bright sent in a donation of £800. • “As part of a recent research study, we conducted one-to-one
interviews with opinion leaders in the UK. We offered respondents a charity donation of £250 in return for their time. One individual who participated in this research has asked us to send the donation to your organisation on their behalf.” Graeme Taylor, Brunswick Research.
walk 100 kilometres in under 24 hours, from 7 to 8 May, to raise money and awareness for CRY. They raised £1,102.50 through online fundraising. “We chose CRY as our charity as it has close links with young people in the area and wanted to pick a charity where our contribution would really make a difference.
• Adrian Buckland took part in the CRY Heart of London Bridges
Our journey began at 15.50 on the 7th May 2010 in UptonUpon-Severn, a small town in
• Ruth Herd, Calor Gas Limited, sent
Worcestershire. The walk took us through Tewkesbury, across to Stow-on-the-Wold and Chipping Norton and finishing at Winslow in Buckinghamshire. The entire route consisted of road-marching and was 100km, approximately 63 miles. We tried to keep moving with as few breaks as possible, but the fatigue soon caught up with us during the night time.
Walk 2010 and raised £823.
• The Year 6 children
of Bushloe High School raised £100 during their charity week. This was forwarded to us by Mrs Viv Tebbatt. in a donation of £200.
• Margaret Carr-Archer sent in a CAF donation of £100.
• Fergus Ross Ferrier, Cartridges4Charity, sent in a donation of £3,152.96.
• Jim Cassidy donated £100 for the CRY Heart of London Bridges Walk 2010.
CRY update • Issue 52 • 51
Fundraisers and friends, I suggested we do the walk as a brother/ sister bonding experience.
• Chubb Insurance Company of Europe donated £500 to cover the cost of refreshments for the CRY Heart of London Bridges Walk 2010.
• Jane Clark donated £100 for the CRY Heart of London Bridges
“Well we can’t do the 10km or 20km as they’re family walks and no-one will sponsor us, if we do the 40km we may as well do the 60km!!”
At first he seemed to think the walk would be easy, so he decided to ask his cardiologists if he could do Mt. Kilimanjaro instead, the simple answer was NO. So, he settled for my ‘easy’ walk and we signed up.
Only when we started our weekend training did we realise the full extent of what we were undertaking!! I had imagined 10km walk, cup of tea, another 10km, another cup of tea.
In actual fact, there were 8 power stations along the way giving us tea and refreshments, however the reality of the time and pain was something we hadn’t prepared for.
We arrived at Goodwood racecourse at 7am and were treated to a bacon buttie and cup of tea before the walk officially started at 8am with lots of enthusiasm from the fellow walkers around us. Just before 20km the 40km walkers turned off the path and just us hardy 60km walkers were left.
Passing through Arundel and Amberley the scenery was stunning and we could really begin to appreciate the beauty of the South Downs Way.
Still going strong with a bounce in our step (thanks to Compeed!!) we reached the 36km station, where the medics on-site pulled some walkers out of the walk. After a quick drink we tackled
• “I enclose a cheque for £110 as a contribution to your work. This is
the proceeds of selling coffee and tea after our church service on Sunday mornings. A son of one of our members recently suffered with a cardiac arrest from which he died when he was only 22 years of age.” Brian Manners, Church Treasurer, Cobham United Reformed Church.
• “Please find enclosed a cheque for £512.60 from Colchester
Institute’s Student Union. This was raised by Jason Henderson and the variety performance we ran on 22nd March titled ‘Cry Out Loud.’ We would like to take this opportunity to thank the guest speaker who took the time to meet with the cast and talk with the audience.” Elizabeth Bloyce, Student Liaison Officer.
• Peter Commane raised a final amount of £255, through online fundraising, in respect of the Brighton Marathon.
• The Cookes took part in the CRY Heart of London Bridges
Walk 2010 and raised £995. The Cookes were Angus, Georgia, Graham, Hebe, Layla and Tricia Cooke.
• The Cornwall Leigh Lodge Relief Chest Scheme sent in a donation of £250.
• Gail Coughlan and Shirley Linch took part in the CRY Heart of London Bridges Walk 2010 and raised £153.
• George Crabb sent in a donation of £100 from various fundraising. • Mrs B Davies sent in donations amounting to £191.75 from the screening weekend at the Wolves Football ground.
• “Please find enclosed a cheque for the £740 as a donation from
the Derby Allcroft Lodge, number 2168. The money has been raised as part of our charity activities during 2009-2010 when we held a Family Fun Day and at our annual Ladies Festival Weekend.” Graham Cross, Festival Secretary, the Derby Allcroft Lodge.
• “The enclosed cheque for £253.80 represents the proceeds of a
collection taken for the work of your organisation and comes with the best wishes of the congregation of Erskine Church, Falkirk.” Donald Paterson.
• Antony Eames and his sister Rachel Bellon took part in the Just
Walk 2010 event on 15 May, opting to tackle the most challenging 60km route along the South Downs Way. Antony is a founder member of CRY’s Surgery Supporters Network, having been diagnosed with long QT syndrome when he was 12 years old.
“My brother (Antony) has been in contact with CRY for some years now as he was diagnosed with long QT syndrome at 12 years old and is now 30 years old and on his 3rd pacemaker.
Earlier this year I was looking on the CRY website for fundraising events when I came across Just Walk 2010 which interested me. So, on a Saturday afternoon over a few pints in a pub with Antony
52 • CRY update • Issue 52
Our Bignor Hill, which seemed to go on forever, the promise of a hot meal at the top keeping everyone going!
It wasn’t until we had only 8km left did the pain really start to set in and our energy and cheery banter faded and the finish line seemed to get further and further away!
Armed with head torches we finally finished at 9:50pm, running over the finish line to rapturous applause from the stewards awaiting our return!
Many families aren’t as fortunate as us and have to raise money in memory of someone. I’m one of the lucky ones and Antony is an inspiration to everyone, proving that if diagnosed you can live life to the full with long QT.
Between us, we’ve raised £2,215 for CRY which is fantastic.” Rachel Bellon.
The weather on both days was very warm which brought many people out.
The stalls consisted of a Hook-a-Fish, Pick-a-Lolly and Rebound - all at a modest charge for the children to enjoy.
Also at the Bedfont & Feltham Carnival, two of our members’ grandchildren - Katie and Emily - generously donated 50 of their soft toys which were named and chosen by a lottery.
The volunteers for both events were a mixture of Branch Officers and members.
All monies raised will be included in our final total which will be presented to CRY at the end of the year.” Vernon Elmes (President) & John Carter (Charity Chairman) Foresters Heathrow Branch.
• Richard Edwards took part in the Virgin London Marathon 2010 and raised £628.
• Lucy McConnell, Elmbridge Borough Council, sent in a donation of £2,000 raised by the Impact Youth Forum.
• Mark Ferguson took part in the Kilimanjaro Trek and raised £477.37 through online fundraising.
• Corporate sponsors Foresters donated £3,500 towards the cost of the CRY Heart of London Bridges Walk 2010.
• “Foresters Heathrow Branch supported CRY by manning stalls at both Ashford-on-the-Map on 6th June and Bedfont & Feltham Carnival on 12th June.
• “We are from Fullbrook School. We have recently raised £136.08 in a ‘Learn to Earn’ competition. We raised the money by washing cars, selling hot chocolate and organising football games at lunch time.” Year 8BF
• Virginia Goodman raised £500 at the Pyrford Flower Show on 10th July.
• Justine Gow raised £301.20, through online fundraising, in respect of the Edinburgh Marathon.
• The staff and residents of Grassington House, Dorset, held a raffle and raised £125. This was forwarded by Jenny Franklin.
• “Every week our division hosts a cake sale, the proceeds from
which go to a staff nominated charity. CRY was our charity for January 2010. Please find enclosed a cheque for £193.96 towards helping reduce the effects of this condition in the young.” Eleanor Small, Cake Sale Co-ordinator, Hachette Children’s Books.
CRY update • Issue 52 • 53
• “Our Captain, Andrew Bathurst,
has nominated CRY as his charity for the year. As part of his fundraising, one of our members, David Worlidge completed the Deloitte Ride across Britain and some of our members have sponsored him.” Jenny, Assistant Secretary, Hankley Common Golf Club, Farnham, sent in a donation of £825
• Stephanie Hart, Samantha Payne and Rachel Sullivan took part in the CRY Heart of London Bridges Walk 2010 and raised £168.
• “Please find enclosed a cheque for £500 raised at my recent 40th Birthday Bash!” Tracy Hartridge.
• Carolyn Hermon donated £100 for the CRY Heart of London Bridges Walk 2010.
• The Hertfordshire Girls Football Partnership League raised £1,038 for CRY. This donation was collected by CRY County Representative, Katy Turberville, who attended their AGM on Monday 5th June and gave a talk about CRY.
• Lewis Hedges took part in a tandem skydive and raised £125.
he was diagnosed - initially thought to be epilepsy, which I know is so often a mis-diagnosis. He was lucky to survive and now takes a daily beta-blocker and, following a further collapse whilst taking medication, he now has an internal defibrillator. He is just finishing his time at Eagle House School in Sandhurst, Berkshire, and is looking forward to start at Wellington College in September. Henry would like to say a big thank you to his friends from both Eagle House School and his old school Danes Hill School in Oxshott, Surrey, who came to the party and donated.” Elaine Jennings sent in a Henry with sisters Alice and Emma. donation of £400.
• Tony Joannides donated £200 for the CRY Heart of London • Craig Hedges took part in a tandem skydive and raised £125.
• “Throughout our winter season we
have held various charity nights. We have raised money through raffles and paying entry fees to play in these competitions. Queens Head in Barwell won 1 of the competitions and were runners up in another, so £80 from each event will be donated to yourselves making a total of £160.” Doris Whittaker (Treasurer of League) Hinckley & District Ladies Darts League, sent in a donation of £160.
• Sia Mehta, Lizzie Howard and Bhumika Harji held a night of
acoustic music at Northampton University, on 3rd March, and raised £108.57.
• Sia Mehta sent in £1,110 from the ‘Utterly Folked’ fundraising event which took place in July at The Ward Arms, Guilsborough.
• Anna Jackson and Emma took part in the CRY Heart of London Bridges Walk 2010 and raised £150.
• Vix Jarratt raised £195, through online fundraising, in respect of the Reading Half Marathon.
• “This money has been collected by my son Henry at his 13th birthday disco party on 29th May. Instead of presents from his friends he asked them to donate the money to your charity and I think you will agree they were all extremely generous! The reason why Henry wanted to support your charity is that he has the condition long QT syndrome and knows that he could so easily have been one of your startling statistics of 12 young people who die each week through undiagnosed heart conditions. We discovered Henry’s condition when he was 8 but it took two collapses before
54 • CRY update • Issue 52
Bridges Walk 2010.
• Lisa King sent in a donation of £100 from her recent Horse Show. • “This year at The King’s School Gloucester, we
have been raising money for charity as part of the house system. As we had a member of the house who had recently lost a friend to heart complications, we thought that supporting CRY would be very worthwhile. We made sure the whole school were aware of the wonderful work you do to help young people with cardiac related illnesses by leading a school assembly. We then managed to go on to raise £397.97 through competitions such as guessing how many sweets were in a jar, and school events such as collections at the school swimming gala and a ‘silly sports day’. We hope this money will help towards your efforts.” Mr M Evetts, Serlo House Captain.
• A donation of £350 was received from Max at Lloyds Services Ltd.
• We have received a donation of £250 from Ms N Gulrajani, London School of Economics.
• James Mackey raised £525, through online fundraising, in lieu of wedding gifts.
• Renee Martin held an annual Drama Showcase collection on 26th June at the Capitol Theatre, Horsham, and raised £156.37.
• “On Wednesday 17th March
this year the girls and leaders of 1st Mid Calder Guides undertook a sponsored walk to raise funds for CRY. The girls chose this charity as they wanted to raise money for a cause
which had an affect on young people. One of the guides received help from CRY for her baby brother and another of the Guides lost an uncle last year which we believe was due to a cardiac risk. We had a fantastic night walking a route of 3 miles round our village, ending up at the chip shop for a well deserved snack! We raised a staggering £700.” Carol Collier, Guider in Charge.
• Team Morris took part in the CRY Heart of London Bridges Walk
2010 and raised £613. Team Morris were Jeanne Batterbury, Ingrid Beazley, Tom Beazley, Charlie Burn, Alexa Jarzebowska, Deborah Krempel, Steven Krempel, Cecil Lee, Abigail Mackeen, Mukram Mackeen, Alison Morris, Freddie Morris, Livvy Morris, Paul Morris, Tom Morris and Richard Nunn.
• William Murray raised £300 from the Murray Cycles from San Francisco to New York City event.
• “We recently held a World Cup 2010 charity event within our
office which included a quiz, bottle and chocolate tombola, world cup sweepstake, fancy dress competition, penalty shoot out, buffet and cake stall. A great day was had by all. The fantastic sum of £441.16 was raised.” Mrs Heather Rogers, on behalf of all the staff at My Civil Service Pension, Newcastle Upon Tyne, sent in a donation of £441.16.
• Rosemary McKerrell sent in a donation of £100. • Simon Drake sent in a donation of £360 in respect of the Three
Peaks Sub 24 Hour Challenge. The Naim Audio Team members included: Simon Drake, Ashley Harper, Steve Sells, Paul Neville, Hjalmar Nilsson, Dough Graham and Mark Ragett.
£14,581.54 which will go toward screening at the 2 universities. It began as a few friendly matches between respective teams and has grown to a head-to-head competitive series organised by two Athletic Unions. The Varsity Series now spans the whole of the second semester with 14 matches in 10 different sports. CRY was chosen as the charity to be supported for the 2010 series, in memory of former University of Nottingham student Neil Desai, who died suddenly in September 2008, aged 22.
• The Varsity Series between University of Nottingham and
Nottingham Trent University, February to June 2010, has raised
The Varsity Series finished 8 - 6 in favour of Nottingham Trent University.
You can read more about this Varsity www.impactnottingham.com/section/varsity/
CRY update • Issue 52 • 55
• “I organised a ‘Come and Sing’ at our local church, directed by Geoffrey Carter. We sang two of Handel’s Coronation Anthems as part of Evensong on 11th July and over 55 people were involved, both playing and singing. Half of the collection was for CRY.” Barbara Nunn sent in a donation of £112.36.
• Miss Yu Min Ooi raised £170, via Just Giving, in respect of the Great Warwick Jump 2010.
• Ormskirk Friendship Club sent in a donation of £100.
“The committee and the members were grateful for your communications over the previous 12 months advising of the valuable work carried out by your organisation and are pleased to support you again this year.” Edward R Carr, Treasurer.
The audience were treated to the sounds of Ivan Moult, Hail! The Planes, Teflon Monkey, Joy of Sex, Threatmantics, The Loves and headlining was American indie legend Calvin Johnson, of seminal band Beat Happening.
In between bands, people could help themselves to all manner of cakes baked by volunteers, and partake in the awesome lucky dip. A brilliant £430 was raised on the day, and this is expected to increase to over £500 after an eBay auction of rare vinyl kindly donated by Cardiff-formed band Los Campesinos!
A massive well done and thank you to organisers Harri Davidson and Nicola Jones. They even managed to make sure that the sun shined!” Sian Regan.
• “Please find enclosed a donation of £204.61 which was collected
and raised by the staff and Partners at Penningtons Solicitors LLP following a dress down day held at the end of April 2010.” Jennifer Henwood.
• “My challenge was to sail round the Isle of Wight in my laser,
which I completed on Saturday 10th July. I completed the sail in around 11 1/2 hours. I set off at 6.45am and due to a slack/force 1 wind, which was impossible to sail in because of the incoming tide, I had to be towed out of the harbour and pump and paddle until the wind picked up. Arriving at the Needles was a relief as I knew I was half way round. When I reached Cowes the tide was behind me so I flew back to Bembridge. I wanted to do something for charity after finishing my GCSE’s and set myself a physical challenge too. My sister and I have both had the ECG CRY test and due to hearing about people being affected by sudden death I feel it’s a charity that we, as a family, support.” Fergus Penny sent in a donation of £220.
• Paul Talbot, Penguin Charity Committee, sent in a matched giving donation of £500 in respect of a colleague who took part in a sponsored walk.
• Sian Regan has forwarded £450 from the Woodstick Festival.
“On one afternoon every August, a secret corner of Bute Park in Cardiff, known as ‘Wormbley Arena’, comes alive with great unplugged music, piles of cake and reams of bunting. This is Woodstick, a free mini-festival featuring the best unplugged music from Cardiff and beyond, and this year donations were invited for CRY.
56 • CRY update • Issue 52
• “Last year I committed to a year long fundraising challenge whereby I would complete over 1000km using man-powered transport only. The distance did not include any of the training
Our completed for the various events throughout the year, which included UK Ironman 70.3 Triathlon, Hadrian’s Wall Trek and London to Paris Cycle. My motivation for this challenge was to raise money for 3 charities which mean something to me. As well as UNICEF and Lexden Springs Special School, I wanted to donate to CRY to help with the incredible work you do. I have previously raised funds for you through a sponsored skydive and your charity means a lot to me as one of my closest friends died of a heart attack at the age of 47 last year. The family are keen supporters of CRY and this partly prompted me to complete this challenge last year - with my friend joining me on the London to Paris Cycle! I am pleased to say that I completed the 1000km in December.” Chris Rhodes sent in a donation of £286.40.
• The Rhondda Cynon Taff Local Government Branch of UNISON sent in a donation of £500.
Jonathan Rosenbrier has raised a further £141 for the Virgin London Marathon 2010, taking the total raised to £322.
• Bill, Elishia and Manni Sahota each sent in a donation of £1,040
(total £3,120) in respect of the London Paris Open which takes place in September.
We have received a donation of £135 from Year 11 students of Saint Aidan’s Church of England Technology College who made a selection of cakes at school and sold them all within 10 minutes during their morning break. “They also created posters which were placed all around the school to promote the important work which CRY does.” Terri Vaselli.
• St Dominic’s High School sent in a donation of £800.
Michael’s Catholic Grammar School sent in a donation of £401.14.
for the season 2009/2010. The South Staffordshire Junior Charity Competition is run every season for boys aged 11-14 years and our aim is to raise as much money as possible for worthy causes.” Tony White, Treasurer, South Staffordshire Junior Charity Competition.
• Sporting Index Limited sent in a donation of £240. • “I have pleasure in enclosing a cheque for £250 raised by staff at
the Farnborough Office as a result of Friday Dress Down Days for you to put towards the invaluable work that you do.” Neil Cooper, SSP Limited
• Team Step by Step took part in the CRY Heart of London
Bridges Walk 2010 and raised £806. Team Step by Step were Helena Alexander, Terry Alexander, Alan Chamberlain and Clare Chamberlain.
• Eleanor Stevens raised £235, through online fundraising, in respect of the BUPA London 10K run.
• Alyson and Tony Stokes took part in the CRY Heart of London Bridges Walk 2010 and raised £670.
• Peter Sunley took part in the CRY Heart of London Bridges Walk 2010 and raised £130.
• Dale Thomas raised £2,215 in respect of the Vietnam Open Cycle Ride.
• Christie, Heather and Louis Tsioupra took part in the CRY Heart of London Bridges Walk 2010 and raised £400.
• UBS Limited forwarded a CAF donation of £320. • Karen Walker took part in the CRY Heart of London Bridges Walk 2010 and raised £100.
• Tricia Williams sent in a donation of £200 in respect of sponsorship for CRY Patron Phil Packer’s 26 mile London Marathon Walk.
• Jackie Saunders took part in the CRY Heart of London Bridges Walk 2010 and raised £110.
• Zubin Screwvala raised £656, through online fundraising, in respect of the Rome Marathon.
students of Woking High School sent in a donation of £100.
• “The 2nd St Albans Rainbows raised some funds for CRY by baking cakes and selling them to the Rainbows’ families.” Mrs Morag Puri, Guider, sent in a donation of £100.
• David Shipley sent in a donation of £500. • The Law Society Students, University of Southampton, took part in the London to Southampton Walk and raised £600.
• “The Partners at Waitrose in Caterham have chosen to feature
CRY as one of their community matters charities/organisations during April.” Sue Brown, Waitrose sent in a donation of £450.
• “Please find enclosed a cheque for £500 which
represents a donation to CRY on behalf of everybody connected with our competition
CRY update • Issue 52 • 57
Fundraising Events 2011 A few ideas... Reading Half Marathon
20 March This half marathon starts and finishes at the Madejski Stadium, the home ground of Reading FC. CRY has a limited number of charity places for this event, and also welcome ‘own place’ runners to the team. Please e-mail email@example.com if you are interested in a CRY charity place, are an ‘own place’ runner wishing to run for CRY, or if you would like to run in a CRY heart costume. To apply for your own place visit www.readinghalfmarathon.com
Virgin London Marathon
17 April The 2011 event takes place on Sunday 17th April. The public ballot for places has closed, but application for CRY Golden Bond places for this iconic event is still open via CRunCH www.crunch.org.uk/cry. Demand for Golden Bond places always exceeds the number of places available, so please act soon!
Just Walk 2011 South Downs
7 May This fundraising walk is open to anyone who is keen to get their walking boots on and hike for charity - you can choose either 10km, 20km, 40km or 60km routes over the picturesque South Downs in West Sussex - so something for everybody. Please see June events at www.c-r-y.org.uk/upcoming_events.htm for more information or to register.
Super Heroes London 5km Run / Walk London
8 May Over 1,000 ‘Super Heroes’ are expected to take part in this event, raising over £100,000 for charity. Free Super Hero outfit for all that enter! To become a Super Hero for the day e-mail firstname.lastname@example.org or call Ben on 01737 363 222 for more information. The spirit of the event is ‘taking part not winning’ so you can run, jog or walk.
London-Paris Bike Ride
11-15 May, 22-26 June, 6- 10 July, 10-14 August, 31 August – 4 September, or 14-18 September Starting in London, the 4 days of cycling will take you through beautiful and historical villages, and allow you to see some of the most famous landmarks in England and France. Please e-mail email@example.com if you are interested.
BUPA London 10,000
30 May CRY has charity places for this event, and we also welcome any ‘own place’ runners who would like to run for CRY. You can apply for your ‘own place’ at www.london10000.co.uk. Please e-mail firstname.lastname@example.org or contact Laura on 01737 363222 if you are interested in a CRY charity place; are an ‘own place’ runner wishing to run for CRY; or would like to run in a heart costume.
CRY Heart of London Bridges Walk
July (date TBC) Next year will mark the 5th annual CRY Bridges Walk. This event will once again start at Victoria Embankment Gardens and finish at Hays Galleria, near London Bridge, after crossing Golden Jubilee, Westminster, Waterloo, Blackfriars, Millennium, London and Tower Bridges and passing at least 12 famous London Landmarks, each representing one of the 12 young sudden cardiac deaths that occur each week in the UK. Registration will open in Spring 2011, but in the meantime you can register your interest by sending an e-mail to email@example.com
Great North Run
18 September CRY has a limited number of charity places every year for the Great North Run. We advise anyone who would like to run for CRY to enter the public ballot as well as enquiring about CRY’s charity places - this gives you the best chance of securing a place in the event! The public ballot opens on 8th January 2011 – visit www.greatrun.org for more details. Please e-mail firstname.lastname@example.org to register your interest in one of CRY’s charity places for the 2011 Great North Run; if you secure your ‘own place’ and would like to run for CRY; or if you would like to run in a CRY Heart Costume.
Run to the Beat Music Half Marathon
25 September CRY will have charity places for this popular London event, and we also welcome any ‘own place’ runners who would like to run for CRY. You can register interest for your ‘own place’ at www. runtothebeat.co.uk. Please e-mail email@example.com or contact Laura on 01737 363222 if you are interested in a CRY charity place; are an ‘own place’ runner wishing to run for CRY; or if you would like to run in a CRY Heart Costume.
CRY Durham Riverside Walk
October (date TBC) To launch CRY Awareness Week, the 2nd 7km CRY Durham walk will be held in the beautiful Wear valley, following the river, with views of the city and cathedral. Please email firstname.lastname@example.org if you are interested in taking part.
CRY Awareness Week
8 to 16 October If you would like to be involved in CRY Awareness Week 2011 please email email@example.com
Royal Parks Half Marathon
October (date TBC) CRY does not have any charity places for this event, but would welcome ‘own place’ runners. To register your interest for a 2011 place visit www.royalparkshalf.com. Please e-mail events@c-r-y. org.uk if you have your own place and would like to run for CRY.
Bupa Great South Run
30 October CRY has a limited number of charity places for this event, and we also welcome any ‘own place’ runners who would like to run for CRY. Apply for your ‘own place’ at www.greatrun.org/Events. Please e-mail firstname.lastname@example.org or contact Laura on 01737 363222 if you are interested in a CRY charity place; are an ‘own place’ runner wishing to run for CRY; or if you would like to run in a CRY Heart Costume.
Assorted dates For further details, please visit www.c-r-y.org.uk/parachute_Jump.htm For more information visit www.c-r-y.org.uk/upcoming_events.htm All CRY participants (whether you have your own place or a CRY charity place) for the above events will receive a fundraising pack containing sponsor forms, information and helpful tips and t-shirt.
CRY update • Issue 51 • 71
Cardiac Risk in the Young Head Office: Unit 7, Epsom Downs Metro Centre, Waterfield, Tadworth, Surrey KT20 5LR Tel: 01737 363222 Fax: 01737 363444 E-mail: email@example.com
Our Mission When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD). These include arrhythmogenic right ventricular cardiomyopathy (ARVC) and other abnormalities leading to sudden arrhythmic death syndrome (SADS). Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions. CRY aims to reduce the frequency of YSCD by working with cardiologists and family doctors to establish good practice and appropriate screening facilities to promote and protect the cardiac health of our young. CRY believes cardiac screening should be accessible to all young
people aged between 14 and 35. CRY also works to guide and support families and close friends affected by YSCD. The Charity aims to put them in touch with people who have the appropriate knowledge and experience to answer their questions. We provide information to explain what the coroner does, practical guidelines to help with NHS referrals and advice on the procedures that usually follow a YSCD. In addition, CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge. Detailed information about cardiac abnormalities and the range of literature available from CRY can be found on our website at www.c-r-y.org.uk/medical_conditions.htm
Our Patrons The urgency of CRY’s mission and the quality of our work has compelled many high profile personalities to give their time to become Patrons of our Charity. Current Patrons of CRY: Rob Andrew MBE, Jeremy Bates, Ben Brown, Mark Carruthers, Clive Clarke, Mark Cox MBE, James Cracknell OBE, Nick Easter, Jonny Evans, Simon Halliday, Kathryn Harries, Michael Hoey, John Inverdale, Pat Jennings OBE KSG, Robert Jones MBE, Gary Longwell, Pixie Lott, Emily Maitlis, Graeme McDowell, Professor W J McKenna, Bill Neely, Phil Packer, Sir Steve Redgrave CBE, Andy Scott, Roger Taylor MBE, Professor Gaetano Thiene, Gregor Townsend MBE, Andrew Triggs-Hodge MBE, David Walliams, Matt Wells, Ray Wilkins MBE and Sir Clive Woodward OBE.
Sir Ian Botham OBE Honorary President of CRY “It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.”
Our Fundraisers The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD. By fundraising for CRY our supporters have, in addition to highlighting our cause, helped to finance and develop our Bereavement Support service, the CRY Centre for Cardiac Pathology (CRY CCP) at Royal Brompton Hospital, the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology at St. George’s Hospital and the CRY Surgery Supporters Network (CRY SSN) to support young people living with potentially lethal cardiac conditions. CRY has also required funding to support medical research into YSCD, to subsidise and expand our national screening programme, our education programme and our campaign for ECG testing of the nation’s youth. Whether you are carrying out your own activity or taking part in an organised event such as the Virgin London Marathon or the BUPA Great North Run, remember that CRY will always support your effort with posters, literature, sponsor forms and other resources.
To read the supportive quotes from CRY’s Patrons in full please go to www.c-r-y.org.uk/patrons.htm If you would like to join our fundraisers, CRY also offers a range of free fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events. For more information visit www.c-r-y.org.uk/free_ fundraising_events.htm or contact the CRY office to request a fundraising ideas pack. There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we can also accept credit card donations over the phone. For further information telephone 01737 363222 or go to: www.c-r-y.org.uk/donate.htm All your help is greatly appreciated.
CRY is always extremely grateful for grants or donations from Trusts and Foundations. We would like to thank the following Trusts and Foundations for the very generous support they have given us: ABBA Trust • Albert Hunt Trust • Artie White Foundation • Aspen Insurance UK Charity Committee • Biggart Trust • Charlotte Marshall Charitable Trust • Sir Cliff Richard Charitable Trust • Edward Joseph Colclough Trust • Fitton Trust • Gordon Fraser Charitable Trust • Gwyneth Forrester Trust • Hasluck Charitable Trust • Holbeck Charitable Trust • Hospital Saturday Fund Charitable Trust • James Tudor Foundation • Malcolm Chick Charity • Miss W E Lawrence 1973 Settlement • Munro Charitable Trust • Muriel Edith Rickman Trust • Pharsalia Charitable Trust • Shuttlewood Clarke Foundation • Sir James Roll Charitable Trust • Sir Jules Thorn Charitable Trust • Tudor Foundation, Inc.