2013-14 Annual Report

2013–14 ANNUAL REPORT

SAVOUR LIFE

ETASTASES BACTERIAL MENINGITIS BILATERAL FRONTAL CORTICAL DYSPLASIA BILATERAL ASMUSSEN'S ENCEPHALITIS BILATERAL RENAL AGENESIS ANHYDRAMINOS CENTRAL NUCLEAR YOPATHY COMPLEX HYPOPLASTIC LEFT HEART CHOLESTASIS SUSPECT-PROGRESSIVE FAMILIA NTRAHEPATIC CHOLESTASIS TYPE II COMPLEX CONGENITAL HEART DISEASE WITH SEVERE PULM EIN STENOSIS CHOLESTASIS SUSPECT-PROGRESSIVE FAMILIAL INTRAHEPATIC CHOLESTASIS TYP HROMOSOME 1P DELETION SYNDROME AND MITCHONDRIAL DEFICIENCY COMPLEX HEART DEFE ULTIPLE CONGENITAL ANOMALIES CONGENITAL CNS ABNORMALITIES CONGENITAL MYOPATHY ISSEMINATED ENCEPHALOMYELITIS FRONTAL BRAIN GERMINOMA ADHD GASTRIC ADENOCARC LUTARIC ACIDURIA TYPE 1 HEPATOBLASTOMA WITH SPINAL METASTASES HEREDITARY SENSORY UTONOMIC NEUROPATHY SECONDARY TO MITOCHONDRIAL DEFECT HYPOPLASTIC LEFT HEART NFANTILE FIBROSARCOMA INTRACTABLE MYOCOLONIC EPILEPSY ISODICENTRIC CHROMOSOME OUBERT SYNDROME JUNCTIONAL EPIDERMOLYSIS BULLOSA JUVENILE-ONSET HUNTINGTON'S ENNOX-GASTAUX CP LIMB GIRDLE MUSCULAR DYSTROPHY LIVER FAILURE POSSIBLE NEONATAL EMOCHROMATOSIS METASTATIC MEDULLOBLASTOMA MITOCHONDRIAL ENCEPHALOPATHY ECROTIZED BOWEL WITH RESECTIONS PLUS CARDIAC ARRHYTHMIA NEURONAL CEROID LIPOFU MPHALOCELE PULMONARY HYPERTENSION OSTEOGENIC SARCOMA WITH LUNG METASTASES ALLISTER-KILLIAN SYNDROME PANHYPOPITUITARISM PARTIAL DELETION CHROMOSOME 20 ULMONARY ARTERIAL STENOSIS SEVERE HYPOGLYCEMIA PROPIONIC ACIDEMIAC BERNARD-SO YNDROME PULMONARY HYPERTENSION RELAPSED METASTATIC GASTRIC SQUAMOUS CELL CAR LE ROSAI-DORFMAN DYNDROME END STAGE SMA TYPE 2 STATIC ENCEPHALOPATHY SEIZURE ISORDER SYSTEMIC SCLEROSIS TRISOMY 18 WALKER-WARBURG SYNDROME WILLIAM'S DISEAS CRANIA MULTIPLE CONGENITAL ANOMALIES AICARDI SYNDROME AICARDI-GOUTIERES SYNDRO IDS WITH HIV ENCEPHALOPATHY ALOBAR HOLOPROSENCEPHALY AMINOACID DECARBOXYLASE EFICIENCY AML AMINOACID DECARBOXYLASE DEFICIENCY ANGIOSARCOMA OF HIP WITH PULM ETASTASES BACTERIAL MENINGITIS BILATERAL FRONTAL CORTICAL DYSPLASIA BILATERAL RAS NCEPHALITIS BILATERAL RENAL AGENESIS ANHYDRAMINOS CENTRAL NUCLEAR MYOPATHY CO YPOPLASTIC LEFT HEART CHOLESTASIS SUSPECT-PROGRESSIVE FAMILIAL INTRAHEPATIC CHOL YPE II COMPLEX CONGENITAL HEART DISEASE WITH SEVERE PULMONARY VEIN STENOSIS CHOL USPECT-PROGRESSIVE FAMILIAL INTRAHEPATIC CHOLESTASIS TYPE II CHROMOSOME 1P DELETIO YNDROME AND MITCHONDRIAL DEFICIENCY COMPLEX HEART DEFECT MULTIPLE CONGENITAL NOMALIES CONGENITAL CNS ABNORMALITIES CONGENITAL MYOPATHY CP DISSEMINATED NCEPHALOMYELITIS FRONTAL BRAIN GERMINOMA ADHD GASTRIC ADENOCARCINOMA GLUTAR CIDURIA TYPE 1 HEPATOBLASTOMA WITH SPINAL METASTASES HEREDITARY SENSORY AUTONOM EUROPATHY SECONDARY TO MITOCHONDRIAL DEFECT HYPOPLASTIC LEFT HEART INFANTILE BROSARCOMA INTRACTABLE MYOCOLONIC EPILEPSY ISODICENTRIC CHROMOSOME 15 JOUBE YNDROME JUNCTIONAL EPIDERMOLYSIS BULLOSA JUVENILE-ONSET HUNTINGTON'S DISEASE

1

“As a physician at Canuck Place Children’s Hospice I see just how much courage it takes our children and families to face each new day. At Canuck Place we do everything we can to make each day special. My work is very rewarding. Every day I witness how much families love one another.”

—DR. AMY MABIE Canuck Place Children’s Hospice

Canuck Place Children’s Hospice | Annual Report 2013–14

RAL CLEAR AMILIAL E PULMONARY ASIS TYPE II RT DEFECT OPATHY CP OCARCINOMA ENSORY HEART OSOME 15 TON'S DISEASE ONATAL THY LIPOFUSCINOSIS TASES E 20 RD-SOULIER LL CARCINOMA ZURE DISEASE SYNDROME XYLASE H PULMONARY AL RASMUSSEN'S HY COMPLEX C CHOLESTASIS CHOLESTASIS DELETION NITAL TED GLUTARIC UTONOMIC NTILE JOUBERT EASE

3

i ly

is h

om

e. C

omfo

rt is foun

Canuck Place Children’s Hospice | Annual Report 2013–14

Fa m

d.

Courage lives here …

At Canuck Place Children’s Hospice (CPCH) we give children and families the tools to live in the moment, in the hospice and in their home communities. We believe the end of life should be lived as fully as the beginning.

We are British Columbia’s recognized pediatric palliative care provider. Over 560 newborns, children and teens with life-threatening illnesses and their families receive care from CPCH through outreach programs and two provincial hospice

locations; Vancouver and Abbotsford.

Services include clinical respite and family support, pain and symptom management, 24-hour phone consultation support and in-house clinical care, art and education, recreation therapy, grief and loss counselling and end-of-life care.

Through the investment of the community, our talented team, and over 325 energetic volunteers, we make a lasting difference in the lives of children and the families who love them.

REPORT FROM OUR BOARD CHAIR + CEO 2013-14 Annual Report Letter from John Nicola and Margaret McNeil Canuck Place Children’s Hospice (CPCH) is making a difference for BC’s children and families. Canuck Place provides care for children with life-threatening illnesses in our two provincial hospice locations and in their home communities, empowering them to celebrate each moment, build precious memories and manage the pain and symptoms of their illnesses and conditions.

As British Columbia’s recognized pediatric palliative care provider, we play an important role in the health care system. Not only do we provide end-of-life care, but we work with families throughout the entire span of a child’s life from the point of diagnosis through the progression of the illness. Canuck Place provides education, art, recreation therapy, counselling including music and play therapy, much-needed family and child respite, and 24-hour clinical care.

The specialized range of services and professional, dedicated staff support the challenging transition families must make as they face the tragic and unnatural circumstance of losing their child. Programs extend to the entire family; parents and siblings receive counselling support.

Our expert clinicians care for over 160 different diseases and conditions and administer over 150 medications. In 2013-14 we provided specialized care to over 560 children and families from across BC. Our organization faced a challenging increase of 77% deaths on program and a 31% increase in nursing and physician consults in patients’ homes, in hospitals and over the phone to parents and caregivers who needed support from across BC. How do we meet the growing need? Our goal is to double the amount of provincial pediatric palliative care beds as we are currently only meeting 20-25% of the provincial need. We know we can’t do it alone. Canuck Place and the children and

5

This last year saw us celebrate the Phase Two opening of our Four-Phase plan at our second provincial pediatric palliative care hospice, Dave Lede House, located in the Fraser Valley. Our community services The end of life should be team is providing recreation therapy, grief and loss counselling and nursing consults in patient as fully as the beginning. homes, in hospitals and in the community. Our Fraser Valley development team is hard at work to furnish the Abbotsford location to move into Phase 3 in 2016 where we will see partial opening of our patient beds and family suites.

Gratitude is a theme at our organization. We see it every day in the faces of parents, siblings and children in our care. It inspires the entire staff at Canuck Place. Our nurses, physicians, counsellors, therapists and support team are grateful to witness the love of a family and the special moments that emerge through challenging, life-altering experiences. We are grateful for the incredible donor community that has allowed CPCH to thrive for almost 20 years and fill a critical role in BC’s care of children with life-threatening illnesses.

At Canuck Place we believe the end of life should be lived as fully as the beginning.

Especially for BC’s kids with life-threatening illnesses and the families who love them.

With gratitude, JOHN NICOLA

MARGARET McNEIL

Board Chair

Chief Executive Officer

lived

Canuck Place Children’s Hospice | Annual Report 2013–14

families we care for are so thankful for the donors, supporters, partners and friends who generously have lifted this organization and are committed to our future.

Grief + Loss Counselling

The Ross Family.

THE ROSS FAMILY FINDING HOPE “How do you raise a child you know is going to die?” asks mother Amy Ross.

“How do you find comfort and meaning and build a life and a family around such a reality? Why us? These were the questions my husband and I pondered after our little Gabrielle was born in October 2010 with a terminal genetic disorder called I-Cell. Canuck Place filled us with so much hope.

“After three years of being with us, Gabrielle passed away at Canuck Place.

Hope is not a long life. We couldn’t cure our daughter. All we could do was

love her and be the best parents we could be. Hope was knowing we had somewhere amazing to take Gabrielle for respite and for her final days in peaceful surroundings with her three brothers. She taught her three brothers about empathy and she helped us, and everyone she met, put things into perspective. Hope was knowing that my little angel was having her pain managed and finding peace even when she was sick. Hope for our family now is receiving bereavement counselling from Canuck Place and finding meaning and steps to move forward through incredible loss.”

SURREY

7

The Ismirnioglou Family.

THE ISMIRNIOGLOU FAMILY FULFILLING A WISH “In December 2009 Joshua was just 11-years old when he was diagnosed with rhabdomayosarcoma. After a relapse in 2012, Canuck Place managed Joshua’s care. Joshua’s pain and symptom care stays at Canuck Place meant we could all be together. Our daughter Monica was able to keep up with her schooling and spend time with her brother Josh.

“When Joshua’s illness progressed in 2013, he really wanted to be in our home surroundings. Canuck Place provided

home visits from nurse practitioners to support the medical care in our home.

CPCH nurse Camara came the day Josh was having a hard time breathing. She took over Josh’s medical needs and I was able to just be his mom and hold him in my arms until his last breath. This was the greatest gift I ever received. Canuck Place allowed Josh to be in his home, his happiest place, and we were able to support Joshua in his wish to be where he was happiest.”

ABBOTSFORD

Canuck Place Children’s Hospice | Annual Report 2013–14

End-ofLife Care

Respite Care

Sam Treschow and his younger brother, Paul.

THE TRESCHOW FAMILY SURVIVING A CRUSHING LOSS Jill and Michael’s son Sam was diagnosed with Duchenne Muscular Dystrophy (DMD) at the age of seven and the family spent many years receiving respite and pain and symptom management through Canuck Place. The family received devastating news when Sam was diagnosed as a teen with cancer.

The family, including younger brother Paul, spent the last weeks of Sam’s life at Canuck Place.

“I know, deep in my heart, the big role that Canuck Place plays in the recovery

of parents and families from a terrible emotional, mental, and physical toll,” says Michael. “Losing one’s child is a crushing loss. Watching your child go through two terminal illnesses is an unspeakable anguish. The care Canuck Place provided Sam and our family during his illness and death still ripples out in our lives. How sweet for Jill and I to now watch our other son finding his way, becoming ever more magnificent. How much do we owe Canuck Place for that sight?

It’s incalculable.”

KELOWNA

9

The Hernandez Family.

THE HERNANDEZ FAMILY DOING EVERYTHING THEY CAN Little Mason Hernandez was born with a brain stem abnormality and Moebius Syndrome, an extremely rare congenital neurological disorder. He and his parents, Reynaldo and Melanie along with younger brother Perry, were referred to Canuck Place in 2011 for respite and pain and symptom management.

“Canuck Place guides us through all of Mason’s care,” Reynaldo explains.

“Everything from care plans to

medication. It gives us a sense of normality.” Perhaps most importantly, Canuck Place has allowed this family to be just that – a family that spends time together. “Canuck Place has given us the opportunity to enjoy time with Mason,” says Reynaldo. “It’s also let Mason just be a kid, instead of a kid with special needs.

As a father, I often think, ‘Am I doing everything I can for him?’ Canuck Place has given me that confidence. It has allowed us to be parents and a family.”

SURREY

Canuck Place Children’s Hospice | Annual Report 2013–14

Pain + Symptom Care

CHANGE MAKERS

$1.7 MILLION

HOCKEY FAN LEAVES A LEGACY FOR CANUCK PLACE Canuck Place Children’s Hospice is extremely honoured to recognize June Adeline Butler, who generously left a legacy of over $1.7 million to benefit children with life-threatening illnesses and their families.

June was born in Ontario and passed away in February 2011 in Vancouver.

Her passions included reading, giving books to others (especially children) and listening to Vancouver Canucks games broadcast by Jim Robson on the radio.

June’s incredible gift will be used to support various pediatric palliative care programs at CPCH such as our resource library and expressive therapies, and will ensure that Canuck Place can continue to provide a vital lifeline to BC’s children and families in their greatest time of need.

Our heartfelt thanks and utmost gratitude to June Butler and her family.

If you are interested in leaving a legacy gift in your will to Canuck Place, please contact us at 604.731.4847.

11 Canuck Place Children’s Hospice | Annual Report 2013–14

Canuck Place Recreation Therapist, Amy Wightman and Team Canuck Place’s Jenna Prem.

TEAM CANUCK PLACE – KIDS CARING FOR KIDS Making memories is an important part of Canuck Place Children’s Hospice and the spirit and creativity of one 12-year-old has helped many families do just that.

When Jenna Prem was eight-years-old, she had an opportunity to give to an organization of her choice for Christmas.

Jenna carefully selected CPCH and immediately set to work on a bake sale. By canvassing her local grocery stores around Cloverdale for donated baking supplies, Jenna and her mom teamed up and, over the course of three weeks, baked Nanaimo bars, chocolate haystacks, shortbread and tiger butter.

These home-baked treats were in turn sold and hand-delivered to friends and family by donation and hundreds of dollars were raised.

Jenna however did not stop there.

With the funds raised, she took her contribution one step further by purchasing a variety of gift cards for the movies, restaurants and activities like Build-A-Bear to provide outings for the families of CPCH to make memories together.

This annual tradition, now in its fifth year, has garnered her classmates support and they will all be baking to help have a larger impact.

“Canuck Place lets families be together,” said Jenna. And with Jenna’s help, families on the provincial program can create new memories together in the process. Thank you, Jenna, for being a Change Maker for CPCH.

B e co m

on e str

om g fr

bro

ke

l np

ac

es

.

CHANGE MAKERS

Team M&P Mercury.

COMMITTED TO MAKING ONCE-IN-A-LIFETIME EXPERIENCES POSSIBLE M&P Mercury and the Annual Sea Ray Rendezvous For the team at M&P Mercury, business is all about people and giving back to the community. Partnering with Canuck Place six years ago, M&P Mercury have hosted the Annual Sea Ray Rendezvous for their customers on the Labour Day weekend. Since 2007 this event has raised over $70,000 for Canuck Place.

“Once you have visited Canuck Place and seen the invaluable work that happens daily to bring families together to cherish every moment available and then also to help those left behind to move on with their lives after great tragedy, what else can a person do but offer support?” asks Bob Pappajohn, President of M&P

Mercury. “It is heartbreaking to know that some children have such short lives and so little time to experience the world and be with their family and friends. Canuck Place fills a deep need to make every moment count for every child they care for, and this is absolutely worth supporting.”

Creating this event and helping Canuck Place is all about teamwork for employees at M&P Mercury. “We work in an industry that sells experiences and brings people together” says Pappajohn. “Taking time to give back to Canuck Place reminds us that we are working towards a common purpose of helping people make the most of all the little moments of their lives.”

13

Darlene Edvall of Penticton, BC.

MONTHLY DONOR PROVES A LITTLE GOES A LONG WAY For over 17 years Penticton resident Darlene Edvall has committed funds each month to Canuck Place. When she first began giving she was a single mom with two kids in their early teens. She didn’t have a lot to give. “Things were tight,” said Darlene. “I was watching TV and Trevor Linden made a heartfelt plea for support. Number 16 was something of a hero to me, and when he spoke about the kids and their determination to fight on, to enjoy their lives day by day, and the courage of both the kids and their families, I thought about how I would feel if one of my kids was sick and was living at the hospice.”

Darlene understood the power of longterm commitment. “At first, I was just going to give a single donation, but I decided to make it monthly, no matter

how little I could afford, because the need would be ongoing. I also thought it would be easier for Canuck Place as a nonprofit to plan for the future knowing they would be receiving a regular donation.”

Darlene started and, with her big heart, just keeps on giving. She made the decision to select Canuck Place as a beneficiary of her will. “I believe in the work they do at Canuck Place and how they help children and their families. I want to continue to help, even when I am no longer around to make monthly donations. As I said, the need will sadly, always be with us, and Canuck Place helps ease the pain, fears and makes the unbearable a little easier to bear. This is such a worthwhile purpose, I can’t imagine not wanting to help.”

—ERIC STEPHANSON CPCH Spiritual Care Leader

Canuck Place Children’s Hospice | Annual Report 2013–14

Photo Credit: Rachael Ryder

“We can feel so weak and small and broken, yet sometimes experience breakthroughs of insight, light, and wholeness which seem incongruous with our loss and grief. One mom said to me, ‘My life has changed forever — for the good — because of the suffering of my daughter, and I don’t know how to get other people to understand me.

I have felt most alive in the worst time of all!’’

CHANGE MAKERS

Paul Dunstan, President of Plenary Group NA and his wife and CPCH volunteer, Kate.

SUCCESS IS ABOUT GIVING BACK AT PLENARY GROUP The corporate culture at Plenary Group dictates that being successful in today’s world carries a great responsibility to provide for others. The Plenary Group strives to give back to the community in many ways, financially or through their employees volunteering their time.

“Supporting Canuck Place is particularly important to us,” says Paul Dunstan, President of the North American operations of Plenary Group. “Facing a serious illness is the most challenging issue any person has to handle. When a child has to go through it, it is both

an honour and an opportunity to provide support to those children and their families through a wonderful organization like Canuck Place.”

Paul’s wife, Kate, has been a volunteer with the Gift of Time Committee and at the hospice. “We have four children of our own,” says Paul. “Canuck Place is particularly close to our hearts. We went through a difficult period when one of our children was quite ill. Kate and I were deeply appreciative of the support we received from the community and want to give back in whatever way we can.”

15 Canuck Place Children’s Hospice | Annual Report 2013–14

PROVINCE OF BRITISH COLUMBIA: IT TAKES A TEAM TO MAKE CARE POSSIBLE

les.

Co o

kie

jar i

s fu

ll.

Canuck Place is grateful for the support of the Province of British Columbia.

gigg

These funds have fluctuated between 20% and 35% of Canuck Place’s overall funding and had a positive impact on CPCH delivery of services at no cost to families who are in need of specialized care.

It takes a team to make pediatric palliative care a reality in our province.

Through the fundraising efforts of our organization and the support of generous individuals, organizations, and corporate partners, Canuck Place delivers exemplary quality care essential for children with life-threatening illnesses.

Lou d

Since 2000, five years after Canuck Place opened its doors, the Province of British Columbia through the Ministry of Health and other ministries, provided annual grants to support a portion of the clinical care programs provided to children and families across BC.

WHO WE ARE

children on our program. I am so grateful for the opportunity to get to know the children and their families through the months and sometimes years they are on the Canuck Place program.”

TAKING ON CHALLENGES: CANUCK PLACE PHYSICIAN DR. PETER LOUIE Pediatric palliative care specialist, Dr. Peter Louie plays a key role in caring for patients at Canuck Place and also coordinates the rotations of fellows, pediatric residents and medical students.

His smile and genuine care is always felt inside the hospice.

Dr. Louie was drawn to Canuck Place because of the multi-disciplinary team structure and challenges of intricate care.

“I really enjoy the complexity of pediatric medicine we encounter through the conditions and diseases presented by the

Dr. Louie has been deeply moved by the commitment and dedication of the families who care for their children. “The complexity of care of the children on our program is daunting even to most physicians. When the kids are not in our care they are in their own homes, all over this province. Parents must provide care 24/7. I am always aware that as a physician, my shift ends, but for families this is not the case. That is why the Canuck Place program is so important for these children and their families.

Canuck Place plays an important function in the health care system through the care provided to children with lifethreatening illnesses.”

Being a part of the Canuck Place clinical team has taught Dr. Louie important skills. “From our nursing and counselling team I have learned how to better communicate to families during challenging situations. I have learned to be both comforting, to be present and to provide hope in unimaginable circumstances.”

PHYSICIANS

17

GIVING BACK AND SHAPING A FUTURE: CANUCK PLACE VOLUNTEER MATT SMYTH From an early age, Matt Smyth knew he wanted to help others. He patiently waited to apply and at 16 was on board with Canuck Place Children’s Hospice.

This is when he discovered his passion for the organization.

“In my first year, I volunteered once every other week but I realized early on that just wasn’t enough,” said Matt. “From that point forward, we made sure I was here every week.”

Matt has filled his weekly shifts over the past six years with a variety of roles

Canuck Place Children’s Hospice | Annual Report 2013–14

including Peer Volunteer, Family Volunteer and now as a Bereavement Volunteer.

To move into this role, Matt completed 34 hours of additional hospice training – a significant commitment to CPCH that also demonstrated his eagerness to learn and expand his skill set.

Since completing his training, Matt is regularly involved in the bereavement groups, assisting in activities that help get siblings on the program to open up.

For Matt, the biggest reward is watching them grow throughout their year in the bereavement program.

“These kids spend 99.9% of their time as the only kid they know who has had a brother or sister die. When they enter this program, instead of being isolated in that experience, they are in a room full of kids that are in a similar situation and there is comfort in that.”

The time Matt has contributed through his volunteer work has also shaped his future. This year he will enter the medical program at UBC. Through his work at CPCH, Matt realized the importance for him to enter a profession where he can have a direct impact on the people he cares for. “I feel so thankful to volunteer for Canuck Place. It’s made such an impact on my own life.”

VOLUNTEERS

A

p

s nt i are

fore

ver.

WHAT WE DO

CANUCK PLACE CHILDREN’S HOSPICE — PHASED PLAN DAVE LEDE HOUSE — ABBOTSFORD 1 Building Completion/Takeover 2 Community Centred Services 3 Community and Partial In-patient Services 4 Full Operations

1

19

2

3

4

1

2

3

PHASE 1 BUILDING TAKEOVER January 2014 — COMPLETED

PHASE 2 COMMUNITY CENTRED SERVICES Phase 2 of Canuck Place Children’s Hospice – Dave Lede House — Abbotsford on the Dave Lede Campus of Care began in spring of 2014.

During Phase 2 the hospice began operating community-centred services. That means consultation visits by physicians, nurses and counsellors in hospitals and homes, individual and group grief and loss support, and recreational therapy for children and families registered in the program.

Children and families will continue to have support from the Vancouver location, including access to hospice admissions, and the 24-hour phone consultation support.

4

1

2

3

4

1

2

3

4

PHASE 3 COMMUNITY AND PARTIAL IN-PATIENT SERVICES 2016 Phase 3 of the Province’s second pediatric palliative hospice in Abbotsford will include the progressive opening of an additional 9 patient beds for children and families in BC. Initially, Canuck Place will operate 4 of these beds.

Children and families will be admitted for stays for respite and family support and pain and symptom management.

PHASE 4 FULL SERVICES 2017 Phase 4 will see full occupancy and operation of all programs at the Abbotsford location. With the second hospice operating full services, Canuck Place will have 18 patient beds and 9 family suites available to care for our Province’s children and families through the two locations.

.M e

1

m

or

e a ce i n s t r u g g l e

4

2017-18

gp

3

2016-17

n di

2

2015-16

Fi n

1

2014-15

Canuck Place Children’s Hospice | Annual Report 2013–14

2013-14

ie s

are made.

WHAT WE DO

DISEASE QUADRANT OUR PROGRAM

Canuck Place Children’s Hospice is British Columbia’s recognized pediatric palliative care provider. Children who are cared for at Canuck Place have the following diseases and conditions:

QUADRANT 1

QUADRANT 2

Life-threatening conditions for which curative treatment may be feasible but can fail.

Conditions where premature death is inevitable, where there may be long periods of intensive treatment aimed at prolonging life and allowing participation in normal activities.

Examples: · cancer · irreversible organ failure

Examples: · cystic fibrosis · HIV/AIDS

QUADRANT 3

QUADRANT 4

Progressive conditions without curative treatment options, where treatment is exclusively palliative and may commonly extend over many years.

Irreversible but non-progressive conditions with severe disability susceptible to health complications and premature death.

Examples: · neurodegenerative · metabolic diseases

Examples: · anoxic brain injury · severe cerebral palsy

21

Families who have a child diagnosed with life-threatening illness have unique challenges and paths. This illustration depicts a possible family journey and the programs and care Canuck Place provides.

1

• Life-threatening diagnosis

• Recreation therapy

• Newborns to 19 years old

• Counselling, play and music therapy

• Referral to CPCH • Eligibility reviewed

4

• Education and art • 24-hour medical consultation phone line • Mobile clinical care team

2

• Admission and intake to CPCH • Child-centred, family-focused — integrated clinical team planning and care

5

• End-of-life care • Memory making

6

• 24-hour in hospice clinical care

3

• Pain and symptom management care • Respite for families in our family suites — care for children on our clinical floor

THE INVESTMENT

A lifetime of difference for families facing unimaginable circumstances

• Bereavement and loss counselling for parents, siblings and families — for as long as support is needed • CPCH family events

Canuck Place Children’s Hospice | Annual Report 2013–14

A FAMILY JOURNEY AT CANUCK PLACE

CLINICAL OUTCOMES

CHILDREN AND FAMILY ON CPCH + FAMILIES PROGRAM BYCHILDREN BC HEALTH REGION: 2013

ON CPCH PR

BY HEALTH REGION: 2013

28

19

FRASER

51

VANCO

INTERIO

76

264

NORTH

CHILDREN + FAMILIES ON CPCH PROGRAM 129

BY HEALTH REGION: 2013 28

19 FRASER HEALTH

51

VANCOUVER COASTAL HEALTH INTERIOR HEALTH

264

76

VANCOUVER ISLAND NORTHERN HEALTH

129

VANCO

OUT OF PROVINCE + UNKNOWN ADDRESSES

OUT OF + UNKN

Un

co nd

itio

nal

23

akin s. T

g ch

a n ce s.

2% 2%

CNS CONDITION

8% 27% 11%

NEUROMUSCULAR ONCOLOGY/CANCER

Canuck Place Children’s Hospice | Annual Report 2013–14

hug

DIAGNOSTIC CATEGORIES FOR CHILDREN DIAGNOSTIC CATEGORIES FOR CHILDREN ON CPCH PROGRAM: 2013 ON CPCH PROGRAM: 2013

CHROMOSOMAL/MULTI-ORGAN METABOLIC/BIOCHEMICAL

16%

STIC CATEGORIES FOR CHILDREN ON CPCH PROGRAM: 2013 17%

17%

CNS CONDITION

27%

NEUROMUSCULAR ONCOLOGY/CANCER CHROMOSOMAL/MULTI-ORGAN METABOLIC/BIOCHEMICAL

17%

CARDIOPULMONARY IMMUNOLOGIC/INFECTIONS OTHER

CARDIOPULMONARY IMMUNOLOGIC/INFECTIONS OTHER

5

0

7

2

2

CONGENITAL SYNDROMES

10

(Compared to 48 in 2012 – 13 FYE)

NEUROMUSCULAR

10

TOTAL DEATHS 2013 – 14: 85

IMMUNOLOGIC-INFECTIONS

15

18

METABOLIC/BIOCHEMICAL

19

INCREASE IN DEATHS CARDIOPULMONARY

20

26

77% CNS CONDITION

25

CHROMOSOMAL/MULTI-ORGAN

30

ONCOLOGY/CANCER

CLINICAL OUTCOMES

TOTAL DEATHS ON PROGRAM BY DIAGNOSTIC GROUP 2013-14

1

25

There were 1,262 consults in-home, in-hospital, and via phone in 2013 by CPCH pediatric palliative care physicians and advanced practice nurses. CPCH

Canuck Place Children’s Hospice | Annual Report 2013–14

CLINICAL PEDIATRIC PALLIATIVE CARE MOBILE CONSULTATIONS: 2010-2013 provides care and support for families all over the province, remote and urban locations – just where families need help the most.

1400 PHONE CONSULTATIONS

1200

1000

600

humanity. Livin

200

e s s of

400

Full n g in

un

IN-HOME + HOSPITAL CONSULTATION VISITS

Number of Consultations

800

ce

rta

ty .

in

0 2010

2011

2012

2013

CLINICAL OUTCOMES

BEREAVED SIBLING AND PARENT GROUP SUPPORT

718

Attendance by bereaved families at CPCH counselling programs in 2013

BEREAVED SIBLING SUPPORT GROUP ATTENDANCE

260

The work of the counselling team is to provide support to children and families through all the different stages of their personal journey. Using skills from the disciplines of social work, spiritual care, expressive therapies (art, play and music) and recreational therapy, the counselling team works to come alongside children and family members

Attendance at CPCH bereavement support group in 2013 by siblings who had lost a brother or a sister

in a way that is supportive of their relationships and background.

Depending on each family’s unique circumstances, members of the counselling team offer many different forms of support. Many Canuck Place parents report that participation in the support groups decreases their feelings of stress and isolation.

27

Canuck Place Children’s Hospice’s recreation therapy Summer in the City, Teen Camp and Family Camp programs provide opportunities for children with life-threatening illnesses, their siblings and parents to participate as a family in adventure activities such as waterparks, ziplining, visits to farms and bug zoos and ceramic painting (to name a few). Summer in the City takes place across BC in the Okanagan, Victoria, Vancouver, Abbotsford, North Vancouver and Chilliwack. Teen Camp and Fall Family Camp take place in Squamish.

2013-14 CHILDREN, FAMILY + SIBLINGS PARTICIPATION IN CAMPS AND SUMMER IN THE CITY PROGRAM

Canuck Place Children’s Hospice | Annual Report 2013–14

EXPERIENCES TO REMEMBER

29 Canuck Place Children’s Hospice | Annual Report 2013–14

Life

is no

t mile

s to n e s

— i t i s m o m e nt s .

FINANCIALS 2013–14

REPORT FROM THE AUDIT + FINANCE COMMITTEE During the fiscal year ended March 31, 2014 we were very close to achieving our general fundraising targets and extremely fortunate to have received a special $2 million grant from the Province of British Columbia in addition to ongoing funding from the Ministry of Health. CPCH is also grateful to be the beneficiary of bequests from the estates of individual supporters.

Receipt of several significant one time bequests was the primary reason our total revenue exceeded our budgeted revenue by $1.5 million for the year.

We have again demonstrated our ability to keep expenses under tight control which resulted in our actual operating expenses coming in $260,000 less than budget. We recognize the need for substantially higher levels of revenue generation in the near future to support the significant increases in expenditures that will be necessary to operate our second provincial hospice in Abbotsford. Achieving this will allow us to provide our services to a greater proportion of the children and families of BC who need them.

Our budgeted surplus for year ending March 31, 2014 was $298,000. However, with unexpected one-time bequest revenue of $1.5 million and expenditure savings of $260,000, we ended the year with a surplus of just over $2 million.

Carrying forward this surplus will assist us in moving forward with our fourphased plan to make Dave Lede House in Abbotsford fully operational.

CPCH continues to develop sustainable fundraising programs using multiple strategies, events and donor development. All funds generated are carefully stewarded and operational plans and expenditures are controlled to ensure we operate within the capacity of our revenue generation.

R. THOMAS BURLEY, FCA Chair, Finance and Audit Committee Treasurer, CPCH Board of Directors

JOAN HILL, CA Director of Finance, Facilities and IT

31

FINANCIAL HIGHLIGHTS STATEMENT OF FINANCIAL POSITION

31 MAR 2014

31 MAR 2013

ASSETS

Current assets

$5,922,347

$6,046,930

Capital assets

$15,962,552

$11,763,502

$21,884,899

$17,810,432

$2,896,047

$3,660,459

TOTAL ASSETS LIABILITIES + NET ASSETS

Current liabilities Obligations under capital lease Deferred capital contributions

51,086 11,532,608

7,015,569

7,405,158

7,134,404

$21,884,899

$17,810,432

$7,381,502

$6,874,409

4,081,682

1,996,655

Canuck Place Children's Hospice Foundation

130,000

136,765

Interest and other

112,050

114,912

TOTAL REVENUE

11,705,234

9,122,741

6,652,755

6,095,520 1,880,870

Net assets TOTAL LIABILITIES + NET ASSETS STATEMENT OF OPERATIONS REVENUE

Donations Province of BC

EXPENSES

Staffing costs (including physicians, nurses, other) Direct program expenses

1,913,101

Marketing and promotion

132,297

91,674

Regulatory, administration and other

489,585

426,984

Amortization

446,742

301,534

TOTAL EXPENSES

9,634,480

8,796,582

Contributions to Canuck Place Children's Hospice Foundation

1,800,000

496,306

SURPLUS / (DEFICIENCY) OF REVENUE OVER EXPENSES

$270,754

$(170,147)

The complete Canuck Place Children’s Hospice Society financial statements audited by KPMG LLP Chartered Accountants and from which this summary is extracted, are available upon request and on www.canuckplace.org. As all charities are required to do, we report additional financial information to the Canada Revenue Agency in our annual tax return.

Canuck Place Children’s Hospice | Annual Report 2013–14

CANUCK PLACE CHILDREN’S HOSPICE SOCIETY

FINANCIALS 2013–14

FINANCIALS

CANUCK PLACE CHILDREN’S HOSPICE FOUNDATION UNAUDITED FINANCIAL HIGHLIGHTS STATEMENT OF FINANCIAL POSITION

31 MAR 2014

31 MAR 2013

Current assets — investments

$6,021,990

$4,172,122

TOTAL ASSETS

$6,021,990

$4,172,122

Net assets

$6,021,990

$4,172,122

TOTAL LIABILITIES + NET ASSETS

$6,021,990

$4,172,122

$150,570

$151,865

1,800,000

496,306

Interest and other

51,277

56,131

TOTAL REVENUE

2,001,847

704,302

21,980

13,973

130,000

136,765

$1,849,867

$553,564

ASSETS

STATEMENT OF OPERATIONS REVENUE

Donations Contribution from Canuck Place Children's Hospice Society

Regulatory and administration Contribution to Canuck Place Children’s Hospice Society SURPLUS OF REVENUE OVER EXPENSES

“ Children want to live, to experience new things, to discover friendships which matter; they are best supported through play or schoolwork or outings which give opportunity for relational support and friendship.

The most important element of care in a hospice for children is the quality of relationships. This reflects an essential spiritual value of what it is to be human.”

—CPCH COUNSELLOR

33 Canuck Place Children’s Hospice | Annual Report 2013–14

CANUCK PLACE CHILDREN’S HOSPICE SOCIETY

SOURCE OF FUNDING: 2013–14

SOURCE OF FUNDING: 2013–14

INTEREST + OTHER

PROVINCE OF BC

1%

35%

64%

DONATIONS

SOURCE OF DONATIONS: 2013–14

SOURCE OF DONATIONS: 2013–14

CFKF * GIFT OF TIME GALA

1%

INTEREST + OTHER

6% 9%

ANNUAL GIVING

INDIVIDUAL, CORPORATE + COMMUNITY

35%

11%

PROVINCE OF BC

15% 23% PLANNED GIVING

*CANUCKS FOR KIDS FUND

FINANCIALS 2013–14

USE OF FUNDS FOR PATIENT CARE: 2013–14 Through all stages of a child’s illness, an individual program is designed to meet the needs of each family. Services include 24/7 physician and nursing support and consultative services,

RECREATION THERAPY

3% 3%

end-of-life care, pain and symptom management, respite care, school, music and play therapy, recreation therapy and counselling. Use of funds for patient care costs include the following:

VOLUNTEER SERVICES

COUNSELLING

7% FACILITIES + GARDEN

FOOD SERVICES + HOUSEKEEPING

8% 10% 69% CLINICAL CARE NURSING + PHYSICIANS

bl ta

fo r

m

co

Learn t

ob

o ec

ort mf

ab

le

—

i be

ng

un

“The thing I love most about Canuck Place is that the whole family is cared for by the whole staff and the volunteers.”

—CPCH PARENT

69%

10%

CLINICAL CARE NURSING + PHYSICIANS

FOOD SERVICES + HOUSEKEEPING

•

Clinical care nursing

•

•

Physicians

Provide nutritional and dietary meals for the children and families

•

Respite

•

Ensure the hygienic needs of the children and families are met

•

Pain and symptom management

•

•

Medicine, medical supplies, pediatric medical equipment

Provide additional comfort and support to family members throughout their stay

•

Clinical mobile consultations

•

24-hour BC-wide patient care hotline

7%

8%

FACILITIES + GARDEN •

Providing a home-like, comfortable atmosphere

•

Fully wheelchair accessible

•

The residence is surrounded by beautiful gardens

3%

3%

COUNSELLING

RECREATIONAL THERAPY

VOLUNTEER SERVICES

Counselling services are available to parents, siblings, loved ones and the child, to assist them in finding the courage and resources to cope with their challenges both during the child’s illness and after their child dies.

Recreational therapy is an immensely important aspect of Canuck Place’s integrated care.

Canuck Place volunteers provide care and support in the following areas:

•

Full-time recreational therapist

•

Family volunteer

•

Exciting and age-appropriate excursions for the children

•

Peer volunteer

•

Reception volunteer

•

Kitchen volunteer

Excellent on-site play and recreational facilities

•

Garden volunteer

Snoezelen room — a multi-sensory room

•

Indoor/Outdoor maintenance volunteer

•

Counselling and grief support

•

Equipped vehicles to transport children in wheelchairs

•

Spiritual care

•

Social work

•

Expressive therapies

•

School program

•

Housekeeping volunteer

Art program

•

Volunteer driver

•

• •

Canuck Place Children’s Hospice | Annual Report 2013–14

e.

35

SUPPORT

Canuck Place Children’s Hospice gratefully acknowledges the following organizations and individuals for their generous support of CPCH programs and services in the 2013-14 fiscal year. *DECEASED

GIFTS FROM ORGANIZATIONS $1,000,000 +

Dave Lede Family Charitable Foundation

The Giving Tree Foundation of Canada

Pan Pacific Whistler

HomeLife Benchmark Realty

Playtime Gaming Inc.

Ledcor Group of Companies

Lafarge Canada Inc.

Province of British Columbia

May and Stanley Smith Charitable Trust

$500,000 – $999,000

Canucks For Kids Fund

Nicola Wealth Management Ltd. Nuheat Industries Limited

$100,000 – $499,999

Plenary Group

Brookside-Hershey Canada Inc.

Tamara Foundation

TELUS

TD Bank Financial Group

Trans-Continental Textile Recycling Ltd.

The Sutherland Foundation Inc.

Under The Same Sun Foundation Variety — The Children’s Charity

The Valley Feed Bag, Inc. W J Weaver Foundation

Patrick Roberge Productions Inc. RBC Foundation Ritchie Bros. Auctioneers Robert L. Conconi Foundation Summit Sheet Metal Ltd. Super Save Group The J.W. McConnell Family Foundation The Radcliffe Foundation UPS Foundation, Inc. The Vidalin Family Foundation Vitalus Nutrition Inc.

Bow before the mystery that is

life. Liv

e i n ra dical

ama ze m

YVR for Kids

Westmont Hospitality Canada Limited

$50,000 – $99,999

$10,000 – $24,999

BC Bakery & Deli Foundation

Aldergrove Financial Group

Goldcorp

ATI Telecom International

H.P. Construction Ltd.

BCLC

London Drugs Foundation

Bedrock Granite Sales Ltd.

PricewaterhouseCoopers

BMO Bank of Montreal

RBC

Canadian Direct Insurance

Rempel Bros. Concrete Ltd.

CIBC Children’s Foundation

Richmond Auto Mall

CIBC

Snow Cap Enterprises Ltd.

Country 107.1

True Direction Foundation

Empire Masonry Ltd.

$25,000 – $49,999

Gallagher Bros. Contractors Ltd.

Apex Exteriors Ltd.

The Howard Foundation

Edgewater Casino Limited Partnership

Ecotex Healthcare Linen Service Inc.

Mardina Construction Ltd.

Electronic Arts (Canada) Inc.

Musgrave Group

Epic Entertainment Corp.

Wal-Mart Canada Corp. $5,000 – $9,999

593123 Alberta Ltd. Accenture Ltd. Allmar Social Committee AMB Holdings Ltd. The Andrew Mahon Foundation Aqueduct Foundation — Nighthawk Fund Canucks Sports & Entertainment Celtic Cross Charitable Foundation Clearbrook Iron Works Costco Wholesale Canada Ltd.

e nt .

THANK Y

37

BC Hockey Benevolent Foundation

GLI Test Labs Canada ULC

Olympic Dairy Products Ltd.

General Glass Industries Ltd.

Best Buy Canada Ltd.

Greygates Foundation

One City Window Cleaners

HAB Family Foundation

BMO Investments Inc.

H.Y. Louie Co Ltd.

Little Hugs Big Hearts Foundation

Bosa Properties (104) Inc.

HealthPlus Pharmacy

Onni Property Management Services Ltd.

MacKay CEO Forums

Bradner Homes Ltd.

Holland America Line

Marshall Aerospace Canada Inc.

British Columbia Institute of Technology

Innovative Fitness Consultants Inc.

British Columbia Wall & Ceiling Association

Jason Soprovich Realty Inc.

Morguard Investments Limited Naked Eye Enterprises Provincial Employees Community Services Fund

Canadian Western Bank

Island City Baking Co. Jericho Foods Jones Food Store Equipment Ltd.

RBC Dominion Securities Inc. — Abbotsford Branch

Centaur Products Inc.

Retirement Concepts The Sook Ching Foundation

CGI Information Systems & Management Consultants Inc.

The Djavad Mowafaghian Foundation

Compugen Inc.

Kintec Footlabs Inc.

Dayhu Investments Ltd.

Labatt Breweries of Canada

Deloitte & Touche Foundation Canada

Ledgir House Ltd.

The R K Grant Family Foundation Vancouver Minor Hockey Association

Centennial Foodservice

K&H Dispatch Co. Ltd. Ken and Eva Hansom Fund Kerrisdale Equipment Ltd.

Dr. Dennis Lee Inc.

Opus DaytonKnight Consultants Ltd. Ouest Business Solutions Inc. Pace Processing Pemberton Leasing Services Ltd. Phoenix Structural Design Ltd. Piteau Associates Engineering Ltd. Puratos Canada R.C. Purdy Chocolates Ltd. RBC Capital Markets RBC Global Asset Management ReMax Sabre Realty RepliCel Life Sciences Inc. Revera Retirement LP Rogers Foods Ltd.

DIGI Canada Inc.

Leon Judah Blackmore Foundation

Vancouver Sun Children’s Fund

Division 15 Mechanical Ltd.

M & L Painting Ltd.

Rolfe, Benson LLP

W.D.I. Services Ltd.

Double Deck’d Poultry Ltd. Dynamic Funds

Macquarie Group Foundation Limited

RT Agencies Inc.

Westminster Savings Credit Union

Rupert Coast Sort Ltd.

Weyerhaeuser Co. Ltd.

Enterprise Paper

Mary Kay Cosmetics Ltd.

Russell Investments Canada Ltd.

F & E Strumpski Foundation

McKesson Foundation

Saputo Dairy Products Canada

F. K. Morrow Foundation

MDA Corporation

Saxbee Insurance

Facet Advisors LLP, Chartered Accountants

Meadowlands Horticultural Inc.

Dr. Jaspreet S. Sidhu Inc.

Mini-Load Disposal Ltd.

Signode Canada

The Fairmont Chateau Whistler

Napaja Enterprises Ltd.

Simplified Insurance Solutions

Fasken Martineau DuMoulin LLP

NAV Canada

Sirocco Mining Inc.

Fidelity Investments

Noise Digital Inc.

Spectra Energy

Army Navy & Air Force Veterans in Canada

First West Foundation

Normandie Poultry Farm Ltd.

Stanley Security Solutions

FirstService Residential BC Ltd.

Stryker Canada

Ashcroft Old Timers Hockey Team

Floorindo Inc.

North American Telecommunications Group

$1,000 – $4,999

98 Corporate Group Resource Ltd. A. Nurmohamed & Associates Inc. Adera Foundation Society Alexander Dubichev Alianz Development Aquilla Foundation

K YOU

Canuck Place Children’s Hospice | Annual Report 2013–14

Farm Credit Canada

TD Waterhouse/Private Client Group

$5,000 – $9,999

Shaw Communications Inc.

Allan Kiss

Textile Trimmings

Air Canada Foundation

Shylee Rose Jewelry

Kevin Layden and Kristy Brinkley

The Children’s Oral Care Centre

Holland America Line

SK Sanitary Specialties Mfg. Ltd.

Lucy Prentice

The Christina and Hedley G. Ivany Charitable Foundation

Lugaro

Something Fishy Aquariums

John and Susan Rose

Miss604

The Feldman Agency

The Plaza Galleries

Jason and Monica Soprovich

Radiant Communications

The Mahon Rowland Foundation

The Room at Hudson’s Bay

Talal and Christi Yassin

Sony of Canada

The Original Cakerie Ltd.

(2) Anonymous Donors

Vancity Buzz

The Secret Garden of Woodbridge Ponds

The Sports Exchange

TidyTrailers.com

Thomas and Lori Burley Family Fund

Westmont Hospitality Canada Limited

True Blue Wire Products Inc.

Willy van Yperen Jewelers Ltd.

Whistler Blackcomb

Truist

Yaletown Laser

Vancity

$1,000 – $4,999

Vancouver Canucks Limited Partnership

All Seasons Mushrooms Inc.

Weissach Performances Ltd. Western Pacific Enterprises GP Westside Tom Gradecak Realty White Raven Enterprises Inc. WoodWorks The Hardwood Floor Company Ltd.

Allstar Holdings Inc. Atkinson’s Bacci’s Blue Shore Credit Union Boboli Canadian Closet

WorksafeBC

Century Plaza Hotel and Spa

WTPM Consulting Services Ltd.

Carpetizing

Zinetti Food Products

Fairmont Pacific Rim

(1) Anonymous Donor

False Creek Healthcare Centre Fred Welsh Ltd.

GIFTS IN KIND

Helijet International Inc.

$50,000 – $99,000

IPAC Chemicals Ltd.

The Vancouver Sun

Long Beach Lodge Resort

$10,000 – $24,999

Anderson Air Blackhills Winery Canterbury Coffee Food Service Ltd. Hawksworth Restaurant North American Telecommunications Group The Vancouver Courier The Westin Bayshore

Westjet

GIFTS FROM INDIVIDUALS $100,000 – $499,999

Joan Proudfoot and GSP Enterprises Ltd. in memory of Garry Proudfoot $50,000 – $99,999

$5,000 – $9,999

Ken Alexander Deb and Don Breen Ron and Ann Brinkhurst Mike Burdick David and Deborah Cottrell Raymond C. George Abdul and Shamim Jamal Shafiq and Azmina Karmali

James and Kimberly Allard

Brett Knelson

The Herberts Family in memory of Dr. Lewis Thorne Herberts

Wes and Brenda Koop Stanley Lang

(1) Anonymous Donor

Lyle Langlois

$25,000 – $49,999

Ryan and Cindy Beedie Carole Clugston Mr. and Mrs. W.E. Couling Niki and Chris Cumming Bjorn and Rochelle Moller John and Claire Nicola

Clive and Susan Lonsdale Marie MacDonald Mike and Leah Mansell Grant and Jane Maxwell Paul Stevenson Sylvie Vanderkerkhove Colin and Jane Warner

Millson Technologies

$10,000 – $24,999

Dr. Eric Webber and Dr. Farah Valimohamed

Misch Shop Inc.

Howard and Gail Addison

(2) Anonymous Donors

Pandora Vancouver

David and Susan Ainsworth

PetroKleen

Steven and Karen Bruk

Photos by Kathryn

Jim and Laurie Case

Poignant Moments Books — Ernest Poignant

Amar and Natallie Doman

Predator Ridge

Paul and Kate Dunstan

Pro Organics

Bruce and Sandra Gibson

SCA Tissue

Neil Duke and Candace Yip

$1,000 – $4,999

Elaine Adair Sheial Aikey Bruce and Donna Aitken Lloyd and Hilda Algar Dr. Haneef Alibhai and Yasmin Alibhai James and Jean Allan

THANK Y

39

Alex and Jodi Cristall

Kristyna Gustavson

Neil Martens

Neil and Colleen Andersen

Greg and Dhana Cruickshank

Gurdev Hayre

Margaret McNeil

Barb Anderson

Janice Dalzell

Richard Hermann

Dr. Ailve McNestry

Chris Archbold

Frank and Petra Danielson

Dr. Mark Hill and Joan Hill

Carey Melnichuk

David and Heather Ashley

Martin Davis

Pascal Hirsig

Herbert and Maria Menten

Margaret Barbeau

Alceo DeAnna

Bob Hole

Dr. Andrew B. Merker

Keith Begg

Stanley and Rani Dee

Florence Hungerford

Allison Mick

Cameron Belsher and Sarah Lee-Belsher

Jasdeep Dhaliwal

Bill and Francine Iles

Brad and Marion Miller

Dave and Amber Bezahler

Charles Douglas

Kenneth Issel and Elaine Weber

Gary and Barbara Miller

Russell Scott Dowling

Richard Jaffray

Richard and Margaret Moignard

Phil and Sally Dreaver

Curtis Johansson

Betty Montpellier

Beverly Duke

Family of Ethel Johnson

David Mueller

Sylvester and Maria Dye

Brad Johnstone

Marianne Muir

Helen Edwards

Hassan Karim

Steve Munford

Farrokh Elmieh

Rahim and Lyle Karim

Timothy and Liana Murphy

Michael and Wendy Epp

Andrew and Corri Kaweski

Rodney Muse

Patricia Evans and John Stonier

Scott Keast

Earl Everall

Charlotte Kelly

Dr. Stephen Nantel and Catrina Nantel

Ron and Diane Exley

Brent and Laura Kennelly-Mohr

James and Katherine Fenton

Tim and Annalisa King

Rob and Melissa Fiorvento

Daren Kinnaird

Jan Fisher

Stephen Knight and Jodi Shapray

Albert Fok

John and Amanda Kump

Kate and Nicholas Furber

Dr. Jonathan Leipsic and Karly Leipsic

Dave and Charu Gadhia

Emily and Darren Lazare

Chris Gailus and Jane Corrigan

David and Teresa LePoidevin

Dave Gardiner

Jeffrey Lim

Michael Geist and Amanda Harradine

Annemarie Locher

Christopher Hyland

James and Bev Logan

Michael Gellard

Franco Lombardo

Richard Genovese

Dr. Peter Louie

Christopher and Shelley Philps

Ross Gibson

Georgina L. and Andrew B. MacDonald

Hilda Pipke David Porte

Iain and Michelle MacDonald

Ron Potter

Dr. Jas Madahar and Baksho Madahar

Ellen M. Powell

David Marshall

David and Isobelle Purdy

Paul Billing Alessandro and Nicole Bitelli Carolynn Blair Joshua Blair and Andrea Martin Blair Jason and Rebecca Bond Kristen Boon Robert and Kathy Brady Tejinder Brar Iain and Marni Brinton Thomas and Lori Burley Louise Burns Ronald and Penny Bush David and Tamara Bustos Dr. Andrew Campbell Trevor Carr Stuart and Christie Case Juliette Cavazzi Paul and Ellen Challinor Jeff and Bettina Charpentier Derrick and Carolyn Cheyne Len Chin Malcolm and Bonnie Christie Mike Cinnamond and Jan Watson Gary and Marilyn Corbett Curtis Cousins

Ken Gordon Robert Gordon

Wes Coutu

Barbara Grantham and Andrew Wilkinson

Kenneth Cowie

Kelly Graves

K YOU

Kevin and Carla Nash Murray and Patty Neilson C M Ng Dennis and Leanne Ohman Carole Olsen Caroline Ong Baljit and Mady Parmar Stefano Passaglia Colleen Patrick Annabel Perry Samuel and Margaret Perry Dr. Gerald Philippson

William Greg Pritchard

Shirley Marshall

Co

u ra g

e an

d resi

ry. l i e n ce . Dr e a m a n d d i s co v e

Canuck Place Children’s Hospice | Annual Report 2013–14

Dr. Shazhan Amed and Salim Popatia

John and Sylvia Quilty

Maurizio and Natalie Zinetti

Constance Beatrice Davis

Jean Rae

(6) Anonymous Donors

Donna Jean Campbell

Richard C. Raymond Amy Rempel

GIFTS IN KIND

Hansi Nissen Helen Pincombe

Canaccord Capital Corporation Jeans Day Carter’s Kids Care CMHDS Charity Classic Golf Tournament

Kirsten Ridd

$10,000–$24,999

Jacqueline Carol Joan Colville

David and Pixie Riddle

Roswitha Byford

James Lionel Williamson

Joan Robertson

Jean Duguay

Joan Ethelwyn Heriot

Ronald and Terry Robinson

Richard Genovese

Josephine Lavina Perkins

Crofton House School Holiday Market Fundraiser

Sean Salem and Saeedeh Salem

$5,000–$9,999

June Adeline Butler

Dreams Do Come True Edith Cavell Elementary School Winter Carnival

Ethel Samoleski

David Foley

Lois Ellen Davis

Clem Samson

Tanya Slingsby

Margaret Bain Sellars

Nick Sandquist

Michael Tan

Nicol Kohut

Salim Sayani Geoff and Cindy Scott Ken and Ruth Scott Hussein and Nadia Shivji Richard Short Randall Siteman Leo Smyth Dr. Casey Souter and Kathy Souter Alan and Margaret Souther Michelle Sutter and Robert Ellmore Dr. Suretha Swart Christopher Thompson

$1,000–$4,999

Ronald Cliff Alex and Jodi Cristall John Figliola Bill and Betty Lou Fox Reynaldo and Melanie Hernandez Jas Hundal Susan Kellof Eugene Kwan Dr. Christian Len Harald and Sharlene Ludwig

Verna Leonora Abear William Alvin Ivey

CNR Employees Charity Chest Fundraiser

Edward Burns Memorial Golf Tournament Eric Hamber Secondary School Diversity Club

Yaeko Suzuki

FVREB & REBGV Commercial Golf Tournament

KEY COMMUNITY PARTNERS + EVENTS

GeneROCKsity Concert for Canuck Place

Abbotsford Heat Game Night Fundraiser

Harmonies of Hope

ACG & BIV Business Leaders Golf Tournament

HomeLife Charity Golf Classic

Allmar’s Annual Charity Golf Tournament APEGBC Greater Vancouver Invitational Golf Tournament

Holt Renfrew Shopping Night Iceman Racing Team and Tim & Nancy Nemeth Fundraiser Jamie Booth Golf Classic Jewels & Jacks Fundraiser

John Tomlinson

Dr. Peter Lutsky and Shari Goldman-Lutsky

In memory of George Tough and his Grandson Andrew Homeniuk

Cora MacDonald and Lawrence Roulston

Avid Fitness Centre Blackberry Mile Fundraiser

Howard and Loula Trottier

Nav Nijjier

Peter Tsiandoulas

Babak Nurbakhsh

BC Bakery and Deli Foundation Golf Tournament & Dinner

Ladies Auxiliary Canadian Legion #6 Donation

Ross and Barbara Turnbull

Joan Proudfoot

M&P Mercury Annual Sea Ray Rendezvous

Warren and Twyla Wall

BC Ferries — Tsawwassen Terminal Employee Fundraiser

Grant Russell

Trent and Emma Walsh

Talal and Christi Yassin

BC Ranch Cutting Horse Association Calcutta Bridleless Donation

Matthew McNair Senior Secondary School Fundraiser

Murray West

ESTATES

BC Shopping Centre Association Annual Charity Golf Tournament

Maxxam Analytics Employee Fundraiser

Edmund and Sieu Lan Wong

Berry Industries Golf Tournament

Judith Woods

We are honoured to recognize the gifts received from the estates of the following individuals:

MD Cosmetic & Laser Clinic % of Sales Donation

Ruth Wright

Fred Joseph Wharton

Eddie Yen

Bernice Linda Gibbeson

Michael and Monique Watt

Ariel’s Amazing Race

Boilermakers Lodge 359 Q-Ride British Columbia Electrical Association Luncheon

Kiwanis Club of Chemainus & Crofton Donation Kiwanis Club of Vancouver Donation

Melissa Santos Haircutting Fundraiser MHPM Project Managers Trivia Night Fundraiser

THANK Y

41

THE DONOR BILL OF RIGHTS

Mitzvah of Valuing Philanthropy Program

CANUCK PLACE CHILDREN’S HOSPICE VALUES THE SUPPORT OF DONORS AND THROUGH OUR ORGANIZATIONAL MEMBERSHIP ASCRIBES TO THE AFP DONOR BILL OF RIGHTS:

Miz Mooz Boutique Fundraiser NAV Canada Golf Tournament Nelson Hotel’s Uptown Sportsbar 50/50 Draw Noah Yelizarov Memorial Hockey Tournament Oakridge Centre Fountain Coins Donation Outdoor Resorts Indio Owners Sunshine Invitational ParaEducators’ Network of BC Donation Parisotto’s Your Independent Grocer “Give a Little, Help a Lot” Fundraiser PwC & Richmond Auto Mall Annual Charity Golf Tournament RE/MAX Sabre Realty Annual Charity Golf Tournament Revera Retirement/Fleetwood Villa Butterfly Release Robo Cam Services Canucks Suite Fundraiser Sahara Sisters Group Fundraising Dinner

· To be informed of the organization’s mission, of the way the organization intends to use donated resources, and of its capacity to use donations effectively for their intended purposes. · To be informed of the identity of those serving on the organization’s governing board, and to expect the board to exercise prudent judgment in its stewardship responsibilities. · To have access to the organization’s most recent financial statements. · To be assured their gifts will be used for the purposes for which they were given. · To receive appropriate acknowledgement and recognition.

· To be assured that information about their donation is handled with respect and with confidentiality to the extent provided by law. · To expect that all relationships with individuals representing organizations of interest to the donor will be professional in nature. · To be informed whether those seeking donations are volunteers, employees of the organization or hired solicitors. · To have the opportunity for their names to be deleted from mailing lists that an organization may intend to share. · To feel free to ask questions when making a donation and to receive prompt, truthful and forthright answers.

Stanley Security Solutions Employee Fundraiser Strokin’ It Wild Golf Tournament The Alma Mater Society — UBC Fundraiser The Giggle Dam Dinner Theatre Fundraiser The Historic Dewdney Pub Thursday Night Fundraiser Vancouver Real Estate Forum Speakers Donation Vista D’oro Farms Langley Winery Fundraiser WMABC Golf Tournament

K YOU

REGISTERED CHARITY NUMBERS CANUCK PLACE CHILDREN’S HOSPICE SOCIETY 13386 7523 RR0001

CANUCK PLACE CHILDREN’S HOSPICE FOUNDATION 86370 4920 RR0001

Canuck Place is a Registered Canadian Charity with the Canada Revenue Agency (CRA) www.cra.gc.ca and operates as a Society and a Foundation.

As a Registered Charity, Canuck Place is required to file an annual information return with the CRA, a portion of which is available to the public, and must meet certain requirements of the Income Tax Act concerning expenditures and activities.

Canuck Place Children’s Hospice | Annual Report 2013–14

Mike Gibson Memorial Golf Tournament

BOARD OF DIRECTORS 2013-14 CPCH SOCIETY JOHN D. ROSE (CHAIR) R. THOMAS BURLEY MICHELLE CYBULIAK NEIL DUKE LAURA EDWARDS KATE FURBER BARBARA GRANTHAM (RETIRED) KRISTYNA GUSTAVSON GORD HUSTON HELEN H. LOW DARREN MILLARD JOHN NICOLA ANAR POPATIA PATTI SCHOM-MOFFATT GAVIN TOY KEN VOTH KATHERINE WHITTRED

2013-14 CPCH FOUNDATION JOHN D. ROSE (CHAIR) R. THOMAS BURLEY NEIL DUKE GORD HUSTON JOHN NICOLA PATTI SCHOM-MOFFATT KATHERINE WHITTRED (RETIRED)

PRIVACY POLICY Canuck Place Children’s Hospice Privacy Policy Canuck Place Children’s Hospice is committed to protecting the privacy of the personal information of its employees, volunteers, members, donors and other stakeholders.

Canuck Place values the trust of those we deal with, and of the public, and recognize that maintaining this trust requires that we be transparent and accountable in how we treat the information that you choose to share with us. Canuck Place is committed to ensuring that all personal information is properly collected, used only for the purposes for which it is collected, and is disposed of in a safe and timely manner when no longer required.

We care about your privacy Canuck Place is committed to protecting the privacy and confidentiality of your personal information.

Canuck Place Children’s Hospice does not sell, rent or trade our mailing lists.

We will use your contact information to keep you informed of programs, services, special events and funding needs.

However, if at any time you wish to be removed from our mailing and/or e-mail list, please contact us by phone at 604.731.4847, by e-mail privacy@canuckplace.org or by mail at 1690 Matthews Avenue, Vancouver, BC V6J 2T2. Please allow 10 business days for us to update your records. Charitable Registration # 13386 7523 RR0001 We respect all donors’ wishes either to have their name publicly associated with their donation or to remain anonymous.

43

Canuck Place Children’s Hospice was accredited with Exemplary Standing by Accreditation Canada; the highest level of accreditation granted to healthcare organizations, following an assessment of the quality of its services with nationally accepted standards.

Accreditation Canada is an independent, not-for-profit organization that sets standards for quality and safety in health care and it accredits health organizations in Canada and around the world. Organizations that are accredited

by Accreditation Canada undergo a rigorous evaluation process. Following a comprehensive self-assessment, trained surveyors from other accredited

health organizations conduct an on-site survey to evaluate the organization’s performance against Accreditation Canada’s standards of excellence.

Canuck Place programs and services were assessed during a three day onsite survey through the following sets of standards: governance; customized leadership; infection prevention and control; hospice, palliative and end-of-life services; and customized management of medications. Canuck Place was assessed against national standards comprising of almost 400 applicable criteria and met all the required organizational practices.

The report issued by Accreditation Canada identified many of CPCH’s strengths including responsiveness to change, new challenges and the inclination toward innovation as contributing factors to its recognition as a leader in the field of pediatric palliative care. Research, best practices and knowledge exchange were identified as strategic priorities and there is strong evidence that focus and effort are being applied to these areas.

BOARD OF DIRECTORS 2014-15 CPCH SOCIETY JOHN NICOLA (CHAIR) R. THOMAS BURLEY MICHELLE CYBULIAK NEIL DUKE LAURA EDWARDS KATE FURBER KRISTYNA GUSTAVSON GORD HUSTON HELEN H. LOW DARREN MILLARD MARK MYLES ANAR POPATIA JOHN D. ROSE PATTI SCHOM-MOFFATT GAVIN TOY KEN VOTH KATHERINE WHITTRED

2014-15 CPCH FOUNDATION JOHN NICOLA (CHAIR) R. THOMAS BURLEY NEIL DUKE GORD HUSTON PATTI SCHOM-MOFFATT GAVIN TOY JOHN D. ROSE (RETIRED)

Canuck Place Children’s Hospice | Annual Report 2013–14

Canuck Place Children’s Hospice accredited with Exemplary Standing

by Accreditation Canada

“There’s two sides to it. You meet a lot of children that are sick, but then you feel so fortunate that you get to meet all these special kids that maybe don’t have a long time here.

And they are brave. These children are tougher, more resilient, more joyful than any adult I have ever met. Before we had Charlie Anne this was a world I didn’t want to know anything about. But now I am here and I see the beauty of it, the heartache and I am a better human being because of it.”

— CHERIE EHLERT CPCH Parent

“ I thought I’d never love again after my son died.

Canuck Place helped me and I now know I can love a child again.”

— CPCH BEREAVED DAD

“ We never give up on providing comfort for the kids on our program.”

— HAL SIDEN CPCH Medical Director

“ At Canuck Place we see the offering we are bringing as bold. But we also know it must be humble as it is part of a greater journey of the child and family.”

– CPCH NURSE

“ Accept children for who they are and allow them to teach us about what we do not know. Refrain judgement and be open to what they have to offer.”

– CPCH COUNSELLOR

“What I love about Canuck Place is appreciating every moment. Our families live with courage every single day.

Canuck Place is all about appreciating every moment that a family has with their child and a child has with their family, and creating opportunities for that to be the best that it can possibly be.”

—MARGARET McNEIL CPCH CEO

METAST RASMU MYOPA INTRAH VEIN ST CHROM MULTIP DISSEM GLUTAR AUTON INFANT JOUBE LENNO HEMOC NECRO OMPHA PALLIST PULMO SYNDR SLE RO DISORD ACRAN AIDS W DEFICIE METAST ENCEPH HYPOP TYPE II SUSPEC SYNDR ANOMA ENCEPH ACIDUR NEURO FIBROS SYNDR

METASTASES BACTERIAL MENINGITIS BILATERAL FRONTAL CORTICAL DYSPLASIA BILATERAL RASMUSSEN'S ENCEPHALITIS BILATERAL RENAL AGENESIS ANHYDRAMINOS CENTRAL NUCLEAR MYOPATHY COMPLEX HYPOPLASTIC LEFT HEART CHOLESTASIS SUSPECT-PROGRESSIVE FAMILI INTRAHEPATIC CHOLESTASIS TYPE II COMPLEX CONGENITAL HEART DISEASE WITH SEVERE PULM VEIN STENOSIS CHOLESTASIS SUSPECT-PROGRESSIVE FAMILIAL INTRAHEPATIC CHOLESTASIS T CHROMOSOME 1P DELETION SYNDROME AND MITCHONDRIAL DEFICIENCY COMPLEX HEART DE MULTIPLE CONGENITAL ANOMALIES CONGENITAL CNS ABNORMALITIES CONGENITAL MYOPATH DISSEMINATED ENCEPHALOMYELITIS FRONTAL BRAIN GERMINOMA ADHD GASTRIC ADENOCAR GLUTARIC ACIDURIA TYPE 1 HEPATOBLASTOMA WITH SPINAL METASTASES HEREDITARY SENSO AUTONOMIC NEUROPATHY SECONDARY TO MITOCHONDRIAL DEFECT HYPOPLASTIC LEFT HEAR INFANTILE FIBROSARCOMA INTRACTABLE MYOCOLONIC EPILEPSY ISODICENTRIC CHROMOSOM JOUBERT SYNDROME JUNCTIONAL EPIDERMOLYSIS BULLOSA JUVENILE-ONSET HUNTINGTON'S LENNOX-GASTAUX CP LIMB GIRDLE MUSCULAR DYSTROPHY LIVER FAILURE POSSIBLE NEONAT HEMOCHROMATOSIS METASTATIC MEDULLOBLASTOMA MITOCHONDRIAL ENCEPHALOPATHY NECROTIZED BOWEL WITH RESECTIONS PLUS CARDIAC ARRHYTHMIA NEURONAL CEROID LIPOF OMPHALOCELE PULMONARY HYPERTENSION OSTEOGENIC SARCOMA WITH LUNG METASTASES PALLISTER-KILLIAN SYNDROME PANHYPOPITUITARISM PARTIAL DELETION CHROMOSOME 20 PULMONARY ARTERIAL STENOSIS SEVERE HYPOGLYCEMIA PROPIONIC ACIDEMIAC BERNARD-SO SYNDROME PULMONARY HYPERTENSION RELAPSED METASTATIC GASTRIC SQUAMOUS CELL CA SLE ROSAI-DORFMAN DYNDROME END STAGE SMA TYPE 2 STATIC ENCEPHALOPATHY SEIZURE DISORDER SYSTEMIC SCLEROSIS TRISOMY 18 WALKER-WARBURG SYNDROME WILLIAM'S DISEA ACRANIA MULTIPLE CONGENITAL ANOMALIES AICARDI SYNDROME AICARDI-GOUTIERES SYND AIDS WITH HIV ENCEPHALOPATHY ALOBAR HOLOPROSENCEPHALY AMINOACID DECARBOXYLAS DEFICIENCY AML AMINOACID DECARBOXYLASE DEFICIENCY ANGIOSARCOMA OF HIP WITH PUL METASTASES BACTERIAL MENINGITIS BILATERAL FRONTAL CORTICAL DYSPLASIA BILATERAL RA ENCEPHALITIS BILATERAL RENAL AGENESIS ANHYDRAMINOS CENTRAL NUCLEAR MYOPATHY C HYPOPLASTIC LEFT HEART CHOLESTASIS SUSPECT-PROGRESSIVE FAMILIAL INTRAHEPATIC CHO TYPE II COMPLEX CONGENITAL HEART DISEASE WITH SEVERE PULMONARY VEIN STENOSIS CHO SUSPECT-PROGRESSIVE FAMILIAL INTRAHEPATIC CHOLESTASIS TYPE II CHROMOSOME 1P DELET SYNDROME AND MITCHONDRIAL DEFICIENCY COMPLEX HEART DEFECT MULTIPLE CONGENITAL ANOMALIES CONGENITAL CNS ABNORMALITIES CONGENITAL MYOPATHY CP DISSEMINATED ENCEPHALOMYELITIS FRONTAL BRAIN GERMINOMA ADHD GASTRIC ADENOCARCINOMA GLUT ACIDURIA TYPE 1 HEPATOBLASTOMA WITH SPINAL METASTASES HEREDITARY SENSORY AUTONO NEUROPATHY SECONDARY TO MITOCHONDRIAL DEFECT HYPOPLASTIC LEFT HEART INFANTILE FIBROSARCOMA INTRACTABLE MYOCOLONIC EPILEPSY ISODICENTRIC CHROMOSOME 15 JOUB SYNDROME JUNCTIONAL EPIDERMOLYSIS BULLOSA JUVENILE-ONSET HUNTINGTON'S DISEASE

www.canuckplace.org

CanuckPlaceChildrensHospice

@CanuckPlace

CanuckPlace

@CanuckPlace