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Summer Pathways 2026 (Volume 15, Issue 3) REFERENCES

Page 1


Pathways Summer 2026

Volume 15 Issue 3

REFERENCES

The Continuum of Care

Using Family Stress Theory to Understand Maternal Adaptation to Childhood Lymphedema

1. Lewandowski, A. S., Palermo, T. M., Stinson, J., Handley, S., & Chambers, C. T. (2010). Systematic review of family functioning in families of children and adolescents with chronic pain. The journal of pain, 11(11), 1027-1038.

2. Cousino MK, Hazen RA (2013) Parenting stress among caregivers of children with chronic illness: a systematic review. J Pediatr Psychol, 38(8): 809-828.

3. Bourdeau TL, Mullins LL, Carpentier MY, Colletti CJ, Wolfe-Christensen C (2007) An examination of parenting variables and child self-care behavior across disease groups J Dev Phys Disabil, 19: 125-134

4 Mullins LL, Wolfe-Christensen C, Hoff Pai AL, Carpentier MY, Gillaspy S, Cheek J, Page M (2007) The relationship of parental overprotection, perceived child vulnerability, and parenting stress to uncertainty in youth with chronic illness J Pediatr Psychol, 32(8): 973-982

5 Maccoby EE, Martin JA (1983) Socialization in the context of the family: Parent-child interaction Handbook of child psychology: formerly Carmichael’s Manual of child psychology/Paul H Mussen, editor

6 Pinquart M (2013) Do the parent–child relationship and parenting behaviors differ between families with a child with and without chronic illness? A meta-analysis J Pediatr Psychol, 38(7): 708-721

7 Sallfors C, Hallberg LRM (2003) A Parental Perspective on Living with a Chronically Ill Child: A Qualitative Study Fam Syst Health, 21(2): 193-204

8 Coller, R J , & Komatz, K (2020) Children with medical complexity and neglect: Attention needed Journal of Child & Adolescent Trauma, 13(3), 293-298

9 Anthony KK, Gil KM, Schanberg, LE (2003) Brief report: Parental perceptions of child vulnerability in children with chronic illness J Pediatr Psychol, 28(3): 185-190

10 Brouillard, P, Witte, M H , Erickson, R P, Damstra, R J , Becker, C , Quéré, I , &; Vikkula, M (2021) Primary lymphoedema Nature Reviews Disease Primers, 7(1), 77

11 Pateva, I , Greene, A K , & Snyder, K M (2022) How we approach lymphedema in the pediatric population. Pediatric blood & cancer, 69, e29908.

12.Moffatt CJ, Murray SG. 2010. The experience of children and families with lymphoedema–a journey within a journey. Int Wound J, 7(1): 14-26.

13.Harding JE (2012) The experiences of young people with primary lymphoedema. Br J Community Nurs, 17(Sup10): S4-S11.

14 Todd M (2019) Understanding childhood lymphoedema J Prescr Pract, 1(Sup11): S4-S7

15 Maclellan RA, Greene AK (2014) August Lymphedema In Seminars in pediatric surgery, 23(4): 191-197

16 Feldman JL (2004) Management of childhood and adolescent lymphedema NLN Lymphlink, 16(2): 1-2, 26

17 Weiss R (2016) Cost of a lymphedema treatment mandate-10 years of experience in the Commonwealth of Virginia Health Econ Rev, 6(1): 1-12

18 Hanson CS, Newsom J, Singh-Grewal D, Henschke N, Patterson M, Tong A (2018) Children and adolescents’ experiences of primary lymphoedema: semistructured interview study Arch Dis Child, 103(7): 675-682

19 Patterson JM (1988) Families experiencing stress: I The Family Adjustment and Adaptation Response Model: II Applying the FAAR Model to health-related issues for intervention and research Fam Syst Med, 6(2): 202

20 Patterson JM, Garwick AW (1994) The impact of chronic illness on families: A family systems perspective Ann Behav Med, 16(2): 131-142

21 Berge JM, Patterson JM, Rueter M (2006) Marital satisfaction and mental health of couples with children with chronic health conditions Fam Syst Health, 24(3): 267

22 Radina, M E , & Armer, J M (2001) Post breast cancer lymphedema and the family: A qualitative investigation of families coping with chronic illness. Journal of Family Nursing, 7, 281-299.

23.Radina, M. E., & Armer, J. M. (2004). Surviving breast cancer and living with lymphedema: Resiliency among women in the context of their families. Journal of Family Nursing, 10(4), 485-505.

24.Hill CE, Thompson BJ, Williams EN (1997) A guide to conducting consensual qualitative research. Couns Psychol, 25(4): 517-572.

25.Glaser BG (1965) The constant comparative method of qualitative analysis. Soc Probl, 12(4): 436-445.

This article has been edited/adapted with permission from the original publication, Journal of Lymphedema, 2023, Volume 18, No. 1 https://woundsinternational.com/journal-articles/typologies-of-adaptation-parenting-children-with -primary-lymphoedema/

Two Decades of Lymphedema Care in Canada Progress, Pitfalls and Promise

1. https://www.canadalymph.ca/2025-Impact/

2 Hettrick and Avila Wound Manag Prev 2022;68(1):8–15)

3 Keast D, Towers A, Letellier ME, Damji A The prevalence of lymphedema in Canada: an update Pathways 2025;14(1):5-8

4 https://wwwlympho org/national-frameworks

5 Wounds Canada Chapter 13: Best Practice Recommendations for the Prevention and Management of Wounds Related to Lower Limb Lymphedema DOI: 10 56885/ZIRU3852

6 CLF tariff petition wwwtinyurl com/sign-against-tariffs

7 DiCecco S et al Med Oncol 41, 304 (2024) https://doi org/10 1007/s12032-024-02407 4

8 Letellier, ME , Ibrahim, M , Towers, A et al Incidence of lymphedema related to various cancers Med Oncol 41, 245 (2024) https://doi org/10 1007/s12032-024-02441-2

9 Wang W, Keast DH Prevalence and characteristics of lymphoedema at a wound-care clinic Journal of Wound Care North American Supplement 2016, 25(4):S11 – 15)

10 Keast DH, Moffatt C, Janmohammad A Lymphedema Impact and Prevalence International Study: The Canadian Data Lymphatic Research and Biology 17(2):178-186 March 2019)

11 A new collection of research papers and consensus statements Pathways Winter 2025;14(1):14-20

This article was originally published in the Journal of Lymphoedema, 2005 Vol 20, No 1 And reprinted with permission with some minor adaptations https://woundsinternational com/journal-articles/two-decades-of-lymphoedema-care-in-canada-p rogress-pitfalls-and-promise/

Evidence-based answers to common lymphedema questions

1 Bjork R, Ehmann S S TR I D E Professional guide to compression garment selection for the lower extremity Journal of Wound Care 2019: 28:(6 suppl 1):1–44

2 Schingale FJ (2007) Das Ödem In: Schingale FJ (Hsg ), Lymphödeme - Lipödeme: Diagnose und Therapie ; ein Ratgeber für Betroffene (3. Auflage). S 20-38. Hannover: Schlütersche Verlagsgesellschaft mbH & Co. KG.

3 Fu MR, Axelrod D, Haber J Breast-cancer-related lymphedema: information, symptoms, and risk-reduction behaviors J Nurs Scholarsh 2008;40(4):341-348 doi:10 1111/j 1547-

4 5069 2008 00248 x

5 Fu MR, Liu B, Qiu JM, Sun Y, Axelrod D, Guth A, Korth S, Kremer HL, Wang Y The effects of daily-living risks on breast cancer-related lymphedema Ann Surg Oncol 2024;31(12):8076-8085 doi:10 1245/s10434-024-15946-x

6 Liu F, Li F, Fu MR, et al Self-management Strategies for Risk Reduction of Subclinical and Mild Stage of Breast Cancer-Related Lymphedema: A Longitudinal, Quasi-experimental Study Cancer Nurs 2021;44(6):E493-E502 doi:10 1097/NCC 0000000000000919

7 Fu MR, Axelrod D, Guth AA, et al A Web- and Mobile-Based Intervention for Women Treated for Breast Cancer to Manage Chronic Pain and Symptoms Related to Lymphedema: Results of a Randomized Clinical Trial JMIR Cancer 2022;8(1):e29485 Published 2022 Jan 17 doi:10 2196/29485

8 Fu MR, Axelrod D, Guth AA, et al Proactive approach to lymphedema risk reduction: a prospective study Ann Surg Oncol 2014;21(11):3481-3489 doi:10 1245/s10434-014-3761-z

9 Fu MR, Axelrod D, Guth AA, et al mHealth self-care interventions: managing symptoms following breast cancer treatment Mhealth 2016;2:28 doi:10 21037/mhealth 2016 07 03

10 Fu MR Preventing skin breakdown in lymphoedema Wounds International, 2010;1(4):17–19.

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