Member Charity Updates

LATEST NEWS

FROM OUR MEMBER CHARITIES

MR MOTIVATOR WORKOUT CHALLENGE

TV personality Derrick Evans MBE, aka Mr Motivator, supported Brain Tumour Research and six of its Member Charities with a 10-day workout challenge at the end of Brain Tumour Awareness Month. Supporters of all seven charities, which included Brain Tumour Research Campaign, Brainwaves NI, Finnbar’s Force, James Clifford Campling Trust, Shay’s Smiles and The William Low Trust, took part in fun-filled workouts while raising funds for their chosen charity. Thousands was raised collectively.

Celebrity fitness instructor Derrick Evans MBE aka Mr Motivator

To find out about collaborating with Brain Tumour Research and becoming a Member Charity please contact our Chief Executive Sue Farrington Smith MBE via sue@braintumourresearch.org

BRAINWAVES NI

The Charity has a long relationship with the Patrick G Johnston Centre for Cancer Research at Queen’s University in Belfast where it provides funding for a Research Fellow. Brainwaves NI has announced that it is to set up a PhD Studentship from September 2022 as part of a three-year commitment to brain cancer research. It is hoped the student will continue in this line of research and build much-needed capacity in this field in the future.

JAMES CLIFFORD CAMPLING TRUST

Scott Charnock, a close friend of James since school days and a trustee of the Charity, has taken on a 33-mile ultramarathon up and down Pen y Fan, the highest peak in South Wales, raising £410. Scott supported James throughout his illness with a glioblastoma (GBM). Diane Campling said:

“We are so appreciative of all Scott does and all the effort he puts into fundraising.”

Scott Charnock

QUEEN MARY UNIVERSITY OF LONDON

We were delighted to welcome representatives of three of our Member Charities, including In Sue’s Name which has to date donated an incredible £350,000 to fund research at Queen Mary University of London, to our first lab tour there since the pandemic began. It was particularly significant as this was the first opportunity for the families who set up Shay’s Smiles and The William Low Trust to visit since they began sponsoring PhD researchers at the Centre. Both Charities were inspired by the loss of teenage sons to brain tumours. Niki O’Dea Patel and her husband Deenu Patel of Shay’s Smiles and Helen Forbes-Low and her husband and daughter Craig and Harriet Low from The William Low Trust enjoyed touring the lab and speaking to the team of researchers about their work to find a cure. The family of William Low had come straight from Harriet’s graduation ceremony at University College London (UCL). Helen said: “It was wonderful that William was such an integral part of this special occasion, the day Harriet graduated with her Masters. William and Harriet were so close –the last word William uttered was his sister’s name.”

Niki & Deenu Patel at Queen Mary for Shay’s Smiles

Craig, Helen and Harriet Low at Queen Mary in memory of William

INBETWEENEARS

It is with great sadness that we share the news that Jay Lynchehaun, the inspiration behind Inbetweenears passed away on 7th March, aged 35, a decade after his diagnosis with a brain tumour. His wife Becky described him as

‘the love of my life’ and ‘simply the best daddy in the world’ to his young children

Teddy and Orla. We send our deepest condolences to Becky, his parents Sharon and Kevin and all his family.