Options Leeds Spring 2024

OPTIONS A guide to care and independent living

Leaving hospital

What’s next?

NHS continuing healthcare Who’s eligible?

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SOCIAL CARE

tips

Healthcare services Choosing the right one

Leeds

Spring 2024

Contents The right place for your care...............................................................................................6 Our commitment to you......................................................................................................6 The Assessment Process.......................................................................................................6 Leaving hospital...................................................................................................................7 Your Hospital Team..............................................................................................................8 Dementia Support................................................................................................................9 Neighbourhood Team Therapy...........................................................................................9 Friends and Family Test........................................................................................................9 Patient Advice and Liaison Service (PALS)........................................................................10 Our formal complaints process..........................................................................................11 Chaplaincy and Pastoral Care............................................................................................11 NHS continuing healthcare.......................................................................................... 12-15 Personal budgets and direct payments....................................................................... 16-19 NHS-funded nursing care.................................................................................................. 19 Paying for your own care (self-funding)..................................................................... 20-21 Driving and using public transport if you have mobility issues.................................22-23 The Care Quality Commission Social Care and GP top tips..............................................24 Help at home – Supporting you to live well and stay independent ........................ 26-27 Alzheimer’s Society – Specialist support for people with dementia.............................. 28

Welcome and introduction This guide is intended to help you, your carer and your relatives understand how your local health services can help you after discharge from hospital. Also information to help you to live independently or access support and care services in your area.

Read online To view this guide online as an interactive ebook visit: www.octagon.org.uk/options/leeds/spring2024 Leeds OCTAGON DE SIGN & M A R K E TI NG LTD

Getting to know Park Avenue Park Avenue is located in a peaceful residential setting overlooking Soldiers Field and close to Roundhay Park. It offers care for people living with dementia.

Park Avenue’s homely, welcoming feel and pleasant setting are part of its unique charm. Its closeness to the local community makes it convenient for trips into town and for family and friends to visit.

At Park Avenue, we take great care to focus on the person. It’s important for our residents to feel at home, so we create a friendly environment with an individually appropriate balance of care and independence.

Our care At Park Avenue our team of registered nurses and well-trained care assistants are available around the clock to ensure our residents’ comfort and well-being.

Each person has a unique care plan as well as a named carer and named nurse.

Valuing the individual Each of our residents has an important life story which we want to learn and understand. By spending time listening to residents along with their family and friends, we create and capture each person’s experiences in My Day, My Life, My Story – this helps us tailor our care to the needs of each person. We want family and friends to get involved in our residents’ daily lives and they’ll always receive a warm welcome when visiting.

The home At Park Avenue all our bedrooms are brightly decorated and furnished to a high standard. Most have en-suite facilities for privacy and convenience. Residents are encouraged to personalise their rooms with their favourite ornaments, pictures and small items of furniture.

Expert care Wherever there are very particular care needs, you have the reassurance of a careful balance of independence and security along with the very best expert care. Our person-centred approach emphasises respect, dignity and quality of life.

Respite/short stay Regular time off is essential for carers – and for their loved ones – so we offer respite stays of anything from a few days to several weeks. This helps carers to recharge their batteries, knowing that their loved ones are getting excellent care around the clock. It’s ideal when carers have been unwell or are planning a holiday, or as a trial before a person moves permanently into a home.

What the home offers: • 43 rooms • On-site parking • WiFi hotspots Types of care • Nursing care

Additional extras • Hairdressing • Therapies not in care plan • TV Licence (for residents under 75) • Personal toiletries • Newspapers and magazines

Email: parkavenuecarehome@outlook.com

Tel: 0113 2120 602 8 Park Avenue, Leeds LS8 2JH

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Editorial content supplied by: The Leeds Teaching Hospitals NHS Trust

The right place for your care Hospitals are the right place to be when you are in need of acute medical or surgical care. However, when your treatment is completed it’s important your stay is not delayed for any reason.

It is beneficial to your health to start planning your discharge from hospital at the earliest opportunity, which may be when you arrive or even before if your admission to hospital is for elective surgery.

This means we can; • Listen to any concerns you may have at the earliest opportunity • Assess what your needs are likely to be when you are ready to leave • Involve relevant staff who can help meet those needs • Give an indication of when you should be ready to leave hospital • Make arrangements for equipment or services to be ready when you leave

Your assessment begins as you are admitted to the ward and is a way of working out what your ongoing needs will be.

• Make sure that your family or carer is given any information, help or advice that is needed to aid your recovery.

This Information is intended to help you, your carer, relatives and friends understand how your discharge from hospital takes place. We hope you can help us so that this happens as efficiently and smoothly as possible.

The right place for your care Acute hospital services are for people who require emergency, medical or surgical treatment within a hospital environment. When your treatment has been completed it’s important that your stay is not delayed for the following reasons; • Some people find it harder to return home the longer they stay in hospital.

• Patients tell us they prefer to be at home in their familiar surroundings and this is often the best place for recovery.

• There is a risk of acquiring infections in hospital, so leaving at the earliest opportunity means this is less likely.

• Hospital beds are needed for people who are very unwell, and who may be waiting in the emergency department for a bed to become available.

• People awaiting surgery, both urgent and nonurgent, may have their operations cancelled if a bed is unavailable.

Our commitment to you • Patients should receive the right treatment, at the right place and by the right professional • We place a high priority on keeping your stay in an acute hospital bed to a minimum • Once your consultant led team assesses that you are medically fit for transfer, we will aim to transfer you from hospital on the same day • You will be transferred from hospital when you are ready to leave as there are more appropriate services and facilities available to you.

The Assessment Process Your assessment begins as you are admitted to the ward and is a way of working out what your ongoing needs will be.

Nurses looking after you on the ward will have discussions with you and your family or carer. We would like to know if you were receiving support

Editorial content supplied by: The Leeds Teaching Hospitals NHS Trust

from community health or social care before you were admitted, or whether there are any issues that may impact on your discharge from hospital.

We also have a team of nurses called Discharge Facilitators and Discharge coordinators who visit you on the ward to ensure that you are well supported in understanding every step of the way towards your transfer from hospital to home or ongoing care. They will help to go through your Home Planner document with you and your family and work with you to highlight any support requirements. If you or your family have any concerns about going home, please ask to speak to the ward staff and they will be able to contact the discharge team to support you.

You will be given an expected date for discharge based on when your treatment is due to be complete.

Leaving hospital You will be discharged from hospital when your consultant-led team decides that you are clinically ready and that you no longer require acute hospital services.

All staff will work with you and your carer or relatives as a team to discuss your discharge with you. Being discharged home is often very straightforward but if you have ongoing health and social care needs you may require a more detailed assessment. If this is the case, you will be supported by staff working together from both health and social care. We need to discuss any concerns or needs you have at the

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earliest opportunity, for example the things that you want to be able to do when you go home. These may include managing your personal care, domestic tasks, carer responsibilities, returning to work or leisure, staying safe and any equipment or care you feel you may require.

You will be given an expected date for discharge based on when your treatment is due to be complete.

It is important that everyone involved is aware of this date so that we can all work towards it and so the necessary arrangements can be made such as; • Transport home. Patients are normally expected to arrange their own transport, however if this is not possible please tell us as soon as possible.

• Suitable clothing and footwear (if you are not already using them in hospital).

• Access to a key to your property.

• Adequate basic food stocks.

• Adequate heating in your home.

• Adequate support for your carer or family members.

We aim for patients to be discharged in the morning but if this is not possible you may be moved to the discharge lounge where this is available. The discharge lounge is a comfortable and safe place to wait and is

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Editorial content supplied by: The Leeds Teaching Hospitals NHS Trust

staffed by nurses who will provide light refreshments throughout the day, as well as keeping you informed.

• Suitable clothing and footwear (if you are not already using them in hospital).

A supply of your current medication will be ordered from the hospital pharmacy to tide you over until you see your GP. If you have any questions about your medication please ask to speak to your pharmacist or a member of the nursing team.

Relatives or carers coming to collect you can meet you in the lounge or a nurse can escort you to the main reception area.

• Access to a key to your property.

It is important to know that the majority of patients will be transferred home directly from hospital.

Alternative arrangements for patients waiting to be collected may be in place during the COVID-19 pandemic and the discharge lounge may not be open.

Ask to speak to the nurse in charge to find out the arrangements for your area.

If you no longer require consultant led care and there is a delay in the start of your care package or preferred community based placement, you will be transferred to a bed within a non-hospital setting whilst this is arranged. We will only transfer you when the appropriate place has been identified and confirmed but this should be within 48 hours.

You will be discharged from hospital when your consultant-led team decides that you are clinically ready and that you no longer require acute hospital services.

It is important to know that the majority of patients will be transferred home directly from hospital.

All staff will work with you and your carer or relatives as a team to discuss your discharge with you. Being discharged home is often very straightforward but if you have ongoing health and social care needs you may require a more detailed assessment. If this is the case, you will be supported by staff working together from both health and social care. We need to discuss any concerns or needs you have at the earliest opportunity, for example the things that you want to be able to do when you go home. These may include managing your personal care, domestic tasks, carer responsibilities, returning to work or leisure, staying safe and any equipment or care you feel you may require.

You will be given an expected date for discharge based on when your treatment is due to be complete.

It is important that everyone involved is aware of this date so that we can all work towards it and so the necessary arrangements can be made such as; • Transport home. Patients are normally expected to arrange their own transport, however if this is not possible please tell us as soon as possible.

• Adequate basic food stocks.

• Adequate heating in your home.

• Adequate support for your carer or family members.

We aim for patients to be discharged in the morning but if this is not possible you may be moved to the discharge lounge where this is available. The discharge lounge is a comfortable and safe place to wait and is staffed by nurses who will provide light refreshments throughout the day, as well as keeping you informed.

A supply of your current medication will be ordered from the hospital pharmacy to tide you over until you see your GP. If you have any questions about your medication please ask to speak to your pharmacist or a member of the nursing team. Relatives or carers coming to collect you can meet you in the lounge or a nurse can escort you to the main reception area.

It is important to know that the majority of patients will be transferred home directly from hospital.

Alternative arrangements for patients waiting to be collected may be in place during the COVID-19 pandemic and the discharge lounge may not be open.

Ask to speak to the nurse in charge to find out the arrangements for your area.

If you no longer require consultant led care and there is a delay in the start of your care package or preferred community based placement, you will be transferred to a bed within a non-hospital setting whilst this is arranged. We will only transfer you when the appropriate place has been identified and confirmed but this should be within 48 hours.

Your Hospital Team In the hospital you will find a multi–disciplinary team which may include doctors, ward nurses, a member of the discharge team, occupational therapists, physiotherapists, pharmacists, dietitians and social workers and you may be referred to any of these as part of your care.

The relevant team member will discuss with you and assess what you are able to do and what you might need more help with. They will then discuss with you what treatment, help or support is available to improve your independence. They will discuss with the other members of the hospital team their findings and together with you and your family make a plan for your discharge from hospital.

Editorial content supplied by: The Leeds Teaching Hospitals NHS Trust

Dementia Support

Friends and Family Test

If you have dementia our hospital staff will provide support for you and your relatives and carers. You will receive a document called ‘Know who I am’ which asks for details about your specific needs and personal preferences. This information will help our staff to deliver specific care needs during your stay in hospital.

A referral to Carers Leeds may also be made should support be needed for your family members.

When you receive care at any of the services provided by us, you will be given the opportunity to give your feedback by answering two simple questions about your experience. The survey is offered to all our inpatients, outpatients, maternity patients and those attending the Emergency Department. Friends, family and carers are also encouraged to share their hospital experiences.

Neighbourhood Team Therapy

Patients are asked ‘overall, how was your experience of our service?’

It may be that you are medically well enough to leave hospital but are not yet at a level where you can manage at home without support. A period of further rehabilitation may be beneficial to you, and is delivered in the community by Neighbourhood Team Therapy.

If you have dementia our hospital staff will provide support for you and your relatives and carers.

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This care can be provided in your own home if you are able to manage or is provided in an alternative location such as a care home. The aim is to support patients as they are discharged to reduce the length of time in hospital, to allow a more accurate assessment of ongoing care needs and to help relearn daily living skills.

There is a multi-disciplinary team approach which comprises of community nurses, occupational therapists and physiotherapists with access to your GP and community based Consultant Geriatricians.

Patients can choose from a number of responses ranging from ‘Very Good’ to ‘Very Poor’.

We are also keen to understand why you gave the answer you did so we also ask ‘Please tell us about your experience, is there anything we could have done better?’

Your feedback helps us to improve our hospital services and enables us to celebrate our successes with those members of staff who have looked after you. Your feedback is anonymous and can be given in the following ways: Online: If you are on a ward you may be asked by a staff member if you would like to leave feedback using a ward tablet at any time during your stay with us or you can leave feedback at bit.ly/nhsleedsfft

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Editorial content supplied by: The Leeds Teaching Hospitals NHS Trust

care, or the service you receive, it is best to first speak with a member of staff involved with your/their care.

If you find that staff cannot help you, or you are not comfortable speaking with them, you can contact PALS. QR Code: Using your smartphone you can scan the QR code which can be located on our posters, leaflets, letters, feedback cards and business cards and this will take you to the above weblink.

PALS is a confidential, on-the-spot, advice and support service for patients, relatives and carers. You can ask a friend or relative to contact us on your behalf but we must have your permission before we can discuss your personal circumstances with anyone else.

Feedback Card: You may be offered a postcard to leave your feedback.

PALS act independently when handling patient and family concerns, liaising with staff, managers, or relevant organisations, to negotiate immediate or prompt solutions. If necessary we can also refer patients and families to specific local or national based support agencies.

Texts & IVMs: A text or an interactive voice message (IVM) on your landline may be sent to you once you are discharged from hospital (responses to the survey are free). You can opt out at any time by simply replying STOP when you receive the text message or by pressing # if you receive an automated call.

How will the results be used?

We gather the results monthly and analyse them to see if action is required. The NHS will publish the results and you will be able to see the results for other hospitals to see how we compare.

Wards and areas are encouraged to visually show patients what improvements have been carried out as a result of patient feedback.

Where will the results be published?

The results are published on the NHS Choices website (www.nhs.uk).

Does this replace the existing compliments or complaints procedure, or other forms of feedback used by the hospital?

No, you can still pass your compliments or complaints to your hospital in the normal way. Hospitals can continue to use existing ways of gathering feedback, in additional to the Friends and Family Test.

Where can I get more information?

You may be offered a postcard to leave your feedback.

For more information on the Friends and Family Test, please visit www.nhs.uk/friendsandfamily

Patient Advice and Liaison Service (PALS) Welcome to the Patient Advice and Liaison Service We know that it can be a worrying and confusing time when you or someone you know is unwell. If you have concerns or questions about any aspect of your

PALS will:• Help answer your questions about the Trust or your care • Offer advice and support if things go wrong • Respond to your concerns if you are unhappy about any aspect of your care • Provide information about our services • Listen to your suggestions for improving our services for patients and visitors

Editorial content supplied by: The Leeds Teaching Hospitals NHS Trust

• Pass on your compliments to staff • Provide advice on the NHS complaints procedure PALS now offer a face-to-face service which can be booked by appointment only. Get in touch via email at: Patientexperience.leedsth@nhs.net

Our formal complaints process We aim to resolve all complaints to the satisfaction of the person making the complaint. This may be the patient, an advocate, or someone else making a complaint on their behalf. If the latter, the patient will be required to give written consent.

Complaints can be raised either writing email or post or by telephone: Complaints Manager, Patient Experience Department, Trust Headquarters, St James’s University Hospital Beckett Street, Leeds, LS9 7TF

We are there to support all people – those of both non-religious beliefs as well as people of faith.

Email: patientexperience.leedsth@nhs.net Telephone 0113 2066261 We can support those wishing to complain but unable to put their complaint in writing.

When we receive your complaint, we will send you an acknowledgement within three working days. A complaint handler will then contact you to discuss your complaint further and take any additional concerns you may have. They will also give you advice on how to access an advocate who can help you if needed.

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Your complaint handler will confirm your preferred method of response (either letter or meeting) and the time frame of when to expect your response.

Your complaint handler will provide you with their telephone number and email address and will keep you up to date on the progress of your complaint throughout the process.

Chaplaincy and Pastoral Care The chaplaincy and pastoral care department has the responsibility of providing for the pastoral, religious, and spiritual care of all patients, their relatives and carers, as well as staff in the Trust. We are there to support all people – those of both non-religious beliefs as well as people of faith.

Pastoral, spiritual, and religious care is an integral part of the holistic care provided within our hospitals. If you would like a visit from one of the chaplains or nonreligious pastoral carers whilst you are in hospital, then either make a referral in advance of your admission to hospital or ask a member of your healthcare team on the ward to contact the department on your behalf.

In addition, chapel and quiet/prayer room facilities are available for quiet prayer and reflection. We are pleased to welcome everyone who wishes to use these areas for personal times of quiet, prayer and reflection. Many of these areas are open 24 hours a day. Chaplains are available 24 hours a day in an emergency and the team will always strive to get the appropriate faith or belief representative for that person.

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Editorial content supplied by: the NHS

NHS continuing healthcare Some people with long-term complex health needs qualify for free social care arranged and funded solely by the NHS. This is known as NHS continuing healthcare.

Where can NHS continuing healthcare be provided?

NHS continuing healthcare can be provided in a variety of settings outside hospital, such as in your own home or in a care home.

Am I eligible for NHS continuing healthcare?

NHS continuing healthcare is for adults. Children and young people may receive a “continuing care package” if they have needs arising from disability, accident or illness that cannot be met by existing universal or specialist services alone.

Find out more about the children and young people’s continuing care national framework on GOV.UK

Your eligibility for NHS continuing healthcare depends on your assessed needs, and not on any particular diagnosis or condition.

You should be fully involved in the assessment process and kept informed, and have your views about your needs and support taken into account.

Carers and family members should also be consulted where appropriate.

A decision about eligibility for a full assessment for NHS continuing healthcare should usually be made within 28 days of an initial assessment or request for a full assessment.

If you are not eligible for NHS continuing healthcare, you can be referred to your local council who can discuss with you whether you may be eligible for support from them.

If you still have some health needs then the NHS may pay for part of the package of support. This is sometimes known as a “joint package” of care.

To be eligible for NHS continuing healthcare, you must be assessed by a team of healthcare professionals (a multidisciplinary team). The team will look at all your care needs and relate them to: • what help you need • how complex your needs are • how intense your needs can be • how unpredictable they are, including any risks to your health if the right care is not provided at the right time Your eligibility for NHS continuing healthcare depends on your assessed needs, and not on any particular diagnosis or condition. If your needs change then your eligibility for NHS continuing healthcare may change.

Information and advice The process involved in NHS continuing healthcare assessments can be complex. An organisation called Beacon gives free independent advice on NHS continuing healthcare.

Visit the Beacon website or call the free helpline on 0345 548 0300.

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Editorial content supplied by: the NHS

NHS continuing healthcare assessments Integrated care boards, known as ICBs (the NHS organisations that commission local health services), must assess you for NHS continuing healthcare if it seems that you may need it.

For most people, there’s an initial checklist assessment, which is used to decide if you need a full assessment. However, if you need care urgently – for example, if you’re terminally ill – your assessment may be fast-tracked.

For most people, there’s an initial checklist assessment, which is used to decide if you need a full assessment.

Initial assessment for NHS continuing healthcare The initial checklist assessment can be completed by a nurse, doctor, other healthcare professional or social worker. You should be told that you’re being assessed, and what the assessment involves.

Depending on the outcome of the checklist, you’ll either be told that you do not meet the criteria for a full assessment of NHS continuing healthcare and are therefore not eligible, or you’ll be referred for a full assessment of eligibility.

Being referred for a full assessment does not necessarily mean you’ll be eligible for NHS continuing healthcare. The purpose of the checklist is to enable anyone who might be eligible to have the opportunity for a full assessment.

The professional(s) completing the checklist should record in writing the reasons for their decision, and sign and date it. You should be given a copy of the completed checklist.

You can download a blank copy of the NHS continuing healthcare checklist from GOV.UK

Full assessment for NHS continuing healthcare Full assessments for NHS continuing healthcare are undertaken by a multidisciplinary team (MDT) made up of a minimum of 2 professionals from different healthcare professions. The MDT should usually include both health and social care professionals who are already involved in your care.

You should be informed who is co-ordinating the NHS continuing healthcare assessment.

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The team’s assessment will consider your needs under the following headings: • breathing • nutrition (food and drink) • continence • skin (including wounds and ulcers) • mobility • communication • psychological and emotional needs • cognition (understanding) • behaviour • drug therapies and medicine

If you’re eligible for NHS continuing healthcare, the next stage is to arrange a care and support package that meets your assessed needs.

• altered states of consciousness • other significant care needs These needs are given a weighting marked “priority”, “severe”, “high”, “moderate”, “low” or “no needs”.

If you have at least 1 priority need, or severe needs in at least 2 areas, you can usually expect to be eligible for NHS continuing healthcare.

You may also be eligible if you have a severe need in 1 area plus a number of other needs, or a number of high or moderate needs, depending on their nature, intensity, complexity or unpredictability.

In all cases, the overall need, and interactions between needs, will be taken into account, together with evidence from risk assessments, in deciding whether NHS continuing healthcare should be provided.

The assessment should take into account your views and the views of any carers you have. You should be given a copy of the decision documents, along with clear reasons for the decision.

You can download a blank copy of the NHS continuing healthcare decision support tool from GOV.UK

Fast-track assessment for NHS continuing healthcare If your health is deteriorating quickly and you’re nearing the end of your life, you should be considered for the NHS continuing healthcare fast-track pathway, so that an appropriate care and support package can be put in place as soon as possible – usually within 48 hours.

Care and support planning If you’re eligible for NHS continuing healthcare, the next stage is to arrange a care and support package that meets your assessed needs.

Depending on your situation, different options could be suitable, including support in your own home and the option of a personal health budget.

If it’s agreed that a care home is the best option for you, there could be more than 1 local care home that’s suitable.

Your ICB should work collaboratively with you and consider your views when agreeing your care and support package and the setting where it will be provided. However, they can also take other factors into account, such as the cost and value for money of different options.

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NHS continuing healthcare reviews

If your needs have changed, the review will also consider whether you’re still eligible for NHS continuing healthcare.

If you’re eligible for NHS continuing healthcare, your needs and support package will normally be reviewed within 3 months and thereafter at least annually. This review will consider whether your existing care and support package meets your assessed needs. If your needs have changed, the review will also consider whether you’re still eligible for NHS continuing healthcare.

Refunds for delays in NHS continuing healthcare funding

they should refund any care costs from the 29th day until the date of their decision.

If you’re not eligible for NHS continuing healthcare If you’re not eligible for NHS continuing healthcare, but you’re assessed as requiring nursing care in a care home (in other words, a care home that’s registered to provide nursing care) you’ll be eligible for NHS-funded nursing care.

ICBs will normally make a decision about eligibility for NHS continuing healthcare within 28 days of getting a completed checklist or request for a full assessment, unless there are circumstances beyond its control.

This means that the NHS will pay a contribution towards the cost of your registered nursing care. NHS-funded nursing care is available irrespective of who is funding the rest of the care home fees.

If the ICB decides you’re eligible, but takes longer than 28 days to decide this and the delay is unjustifiable,

Find out more about NHS continuing healthcare from NHS England.

Frequently asked questions about

NHS continuing healthcare

Q

I have a local authority support package that works well. I’m now eligible for NHS continuing healthcare – will my support package change?

If you’re concerned about changes to your care package because of a move to NHS continuing healthcare, your ICB should talk to you about ways that it can give you as much choice and control as possible. This could include the use of a personal health budget, with 1 option being a “direct payment for healthcare”.

Q

FAQ’s

Can I refuse an assessment for NHS continuing healthcare? If I refuse, will I be able to get services from my local authority?

Consent is not needed for completion of assessments (CHC Checklists, Decision Support Tools (inclusive of FNC by default) and Fast Track), or collation and sharing of information with: • Care Teams • Health and Social Care Staff But consent is needed to share personal information collected for, and as part of, assessments (Checklist, Decision Support Tool (inclusive of FNC by default) and Fast Track) with third parties, such as family, friends or representatives, at the beginning of the process.

There is a legal limit to the types of services that a Local Authority can provide. If you have any concerns about being assessed for NHS continuing healthcare, the ICB should explore your reasons for this, and try to address your concerns.

If someone lacks the mental capacity to consent to sharing of information with third parties (other than Care Teams or Health and Social Care Staff), the principles of the Mental Capacity Act will apply and a best interests decision may be needed.

Q

My relative is in a care home and has become eligible for NHS continuing healthcare. The ICB says the fees charged by this care home are more than they would usually pay, and has proposed a move to a different care home. I think a move will have a negative effect on my relative. What can we do?

If there’s evidence that a move is likely to have a detrimental effect on your relative’s health or wellbeing, discuss this with the ICB. It will take your concerns into account when considering the most appropriate arrangements.

If the ICB decides to arrange an alternative placement, they should provide a reasonable choice of homes.

Q

Is it possible to pay top-up fees for NHS continuing healthcare?

No, it is not possible to top up NHS continuing healthcare packages, like you can with local authority care packages.

The only way that NHS continuing healthcare packages can be topped up privately is if you pay for additional private services on top of the services you’re assessed as needing from the NHS. These private services should be provided by different staff and preferably in a different setting.

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Personal budgets and direct payments You’ll be given a personal budget to spend if your local council decide you’re eligible for help with any social care and support you need. You can request an assessment from the council to establish your needs.

The money in your personal budget can be paid to you, to help you make more decisions about how it’s spent. This is known as a direct payment.

What is a personal budget?

Your personal budget is the amount of money your local council will pay towards any social care and support you need.

The amount of money in your personal budget is decided by your local council after a needs assessment to work out: • what kind of care and support you need • how much it will cost • how much you’re able to afford yourself

If you’re a carer, you may be entitled to receive a personal budget after having a carer’s assessment to see what might help make your life easier.

Carers and personal budgets If you’re a carer, you may be entitled to receive a personal budget after having a carer’s assessment to see what might help make your life easier.

A carer’s assessment is free and anyone over 18 can ask for one.

Choosing how to receive your personal budget

You can also choose a combination of these options.

For example, the council could arrange some of your care but send you the rest of the money. This is often called a mixed package or “mix and match”.

If the council manages your money The money in your personal budget will be spent for you by the council. They will arrange all your care and support based on your agreed care plan.

They still need to check you’re happy with the care they’re arranging for you.

If your money is paid to another organisation The organisation you choose, such as your care provider, will speak to the council and arrange the payments.

Sometimes other organisations charge you extra money to arrange payments from the council.

The benefits of direct payments Direct payments give you more flexibility over how your care and support is arranged and provided.

For example, you could choose to hire care workers or personal assistants who:

You can ask the council to either:

• are always the same people and available when you need them

• manage your personal budget for you

• speak the same language as you

• pay the money to another organisation – such as a care provider

• have experience working with your care needs

• pay the money directly to you or someone you choose – this is known as a direct payment

• are a specific person that has been recommended to you • can help you get to shops or social events

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There are many ways you could choose to use the money. It’s your choice as long as you’re spending your personal budget on things that meet your agreed care plan.

Most councils will ask for evidence of how you’ve spent your money every 3 months.

When to consider other options You may decide direct payments are not helpful if:

You could also consider having someone else manage your direct payments, for example a friend or family member.

• you’re worried about managing money or the people you employ • you spend a lot of time in hospital • you would rather the council arranged your care If you’re not confident about keeping records or managing the people who care for you, your local council should be able to provide support.

You could also consider having someone else manage your direct payments, for example a friend or family member. You’ll need to set up a trust for payments that are managed by someone else.

The Money Advice Service has information about setting up a trust.

How to apply for direct payments You should be offered direct payments as an option after your needs assessment.

You can also ask your local council’s social services department about direct payments.

How direct payments work If you choose direct payments, the council will send you the money in your personal budget by either: • paying it directly into a bank, Post Office, building society or National Savings and Investments account • sending you a pre-paid card You can then choose how you spend the money on your own care and support, as long as it matches the care plan you’ve agreed with the council.

Signing a direct payment agreement The council might ask you to sign a document called a direct payment agreement. This says: • how the council want you to record your spending – for example, keeping receipts

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• your responsibilities as an employer - if you’re paying for a care worker If you spend direct payments on something that isn’t agreed in your care plan, the council could take the money back or end the direct payments.

If you’re struggling to manage your money Ask your local council for advice or call the Money Advice Service on 0800 138 7777.

If you want someone else to receive the direct payment You could speak to the council and agree for the money to be sent to someone who will spend it for you. For example: • a carer

When choosing an agency, decide what sort of service you’re looking for and the tasks you need help with.

• a friend or family member • someone else who speaks up for you (an advocate) You may need to write down how they will spend the money and which decisions they can make for you.

This is known as a decision-making agreement.

Employing your own carer or personal assistant If you decide to hire a carer or personal assistant yourself, it’s important to know the responsibilities you’ll have as an employer.

Although support from the council should be available, you may need to arrange:

• background checks or references • tax • National Insurance • pension contributions Read more about employing someone to work in your home on GOV.UK. Disability Rights UK also have more information on getting a personal assistant.

If you don’t want to become an employer You could choose to hire care workers through an agency instead. This removes the legal obligations of being an employer, but could: • cost you more money • remove some of the benefits - such as having the same person provide your care

How to research a care agency When choosing an agency, decide what sort of service you’re looking for and the tasks you need help with.

It’s a good idea to contact more than one agency, as they may offer different types of services.

You can find out about local home care agencies by: • speaking to your local council’s social services department • contacting the UK Homecare Association

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Editorial content supplied by: the NHS

There are also organisations that inspect care agencies to see how well they are doing. The Care Quality Commission (CQC) regulates all health and adult social care in England.

You might see a CQC inspection rating when you search online for care home agencies. Their 4 ratings are: • Outstanding • Good • Requires improvement • Inadequate You could also search for care home agencies on the CQC website to see their full reports.

Telephone helplines

It’s worth speaking to your council’s social services before making an official complaint to see if they can help.

You still have to the right to complain if you: • have been told you’re not eligible to receive money towards your care and support • don’t agree with the amount of money in your personal budget You could either: • speak to your social worker about being re-assessed • call your local council social services and request a complaints form Your council should also have a formal complaints procedure on its website.

If you would like support to help you manage your personal budget or direct payments, speak to your council or call:

If you’re not happy with the council’s response

• the Disability Rights UK personal budgets helpline on 0330 995 0404

• Age UK have a detailed fact sheet on personal budgets and direct payments in social care

• the Age UK advice line on 0800 055 6112 (for older people)

• The Money Advice Service has a guide to direct payments

NHS-funded nursing care NHS-funded nursing care is when the NHS pays for the nursing care component of nursing home fees. The NHS pays a flat rate directly to the care home towards the cost of this nursing care.

If you’re eligible for NHS-funded nursing care, the NHS will arrange and fund nursing care provided by registered nurses employed by the care home.

How to complain about personal budgets

Contact your Local Government Ombudsman. They investigate all adult social care complaints.

by registered nurses employed by the care home.

Services provided by a registered nurse can include planning, supervising and monitoring nursing and healthcare tasks, as well as direct nursing care.

Who is eligible for NHS-funded nursing care?

If you’re not eligible for NHS-funded nursing care and you don’t agree with the decision about your eligibility, ask your ICB to review the decision.

You may be eligible for NHS-funded nursing care if:

The cost of NHS-funded nursing care

• you’re not eligible for NHS continuing healthcare but have been assessed as needing care from a registered nurse

NHS-funded nursing care is paid at the same rate across England. In May 2022, the rate was set at £209.19 a week (standard rate) and will be backdated to 1 April 2022.

• you live in a nursing home

How will my needs be assessed?

You should be assessed for NHS continuing healthcare before a decision is made about whether you are eligible for NHS-funded nursing care.

Most people don’t need a separate assessment for NHS-funded nursing care. However, if you do need an assessment or you haven’t already had one, your integrated care board (ICB) can arrange an assessment for you.

If you moved into a care home before 1 October 2007, and you were on the previous high band, NHS-funded nursing care is paid at a higher rate.

In May 2022, the higher rate was set at £287.78 a week and will be backdated to 1 April 2022. You’re entitled to continue on this rate unless: • you no longer have nursing needs • you no longer live in a care home that provides nursing

Outcome of the assessment

• your nursing needs have reduced and you’re no longer eligible for the high band, when you would change to the standard rate of £209.19 a week, or

If you’re eligible for NHS-funded nursing care, the NHS will arrange and fund nursing care provided

• you become entitled to NHS continuing healthcare instead

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Paying for your own care (self-funding) You will not be entitled to help with the cost of care from your local council if: • you have savings worth more than £23,250 – this is called the upper capital limit, or UCL, and will rise to £100,000 from October 2025 • you own your own property (this only applies if you’re moving into a care home) You can ask your council for a financial assessment (means test) to check if you qualify for any help with costs.

You can choose to pay for care yourself if you don’t want a financial assessment.

Paying for a care home There are 2 types of care home: • residential homes have staff that help with everyday tasks such as getting dressed and supply all your meals • nursing homes also offer 24-hour nursing care A room in a care home costs: • around £700 a week in a residential home

How to arrange your care as a self-funder

• over £850 a week in a nursing home

You can:

The price will vary according to where you live and the type of care you need.

• arrange and pay for care yourself without involving the council • ask the council to arrange and pay for your care (the council will then bill you, but not all councils offer this service and they may charge a fee)

Even if you choose to pay for your care, your council can do an assessment to check what care you might need. This is called a needs assessment.

Having a carer who lives with you costs from around £800 a week. But it can cost as much as £1,600 a week if you need a lot of care.

Find out what care you need Even if you choose to pay for your care, your council can do an assessment to check what care you might need. This is called a needs assessment.

For example, it’ll tell you whether you need home help from a paid carer for 2 hours a day or 2 hours a week and precisely what they should help you with.

The needs assessment is free and anyone can ask for one.

How much will care cost?

Social care can be expensive. Knowing how much you’ll have to pay will help you budget.

Paying for carers at home A typical hourly rate for a carer to come to your home is around £20, but this will vary depending on where you live.

For example, serious health problems like dementia and chronic obstructive pulmonary disease (COPD) can increase the cost.

Benefits can help with care costs You may be eligible for benefits, like Attendance Allowance and Personal Independence Payment (PIP), which aren’t means-tested.

You can use them to pay towards the cost of your care.

Can I avoid selling my home?

You won’t have to sell your home to pay for help in your own home.

But you may have to sell your home to pay for a care home, unless your partner carries on living in it.

Sometimes selling your home to pay care home fees is the best option.

But there may be other ways to pay care home fees if you don’t want to sell your home straight away.

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Releasing money from your home (equity release)

• PayingForCare, a free information service for older people

Equity release lets you take money that’s tied up in your home without selling it. It’s available if you’re over 55.

• Society of Later Life Advisers (SOLLA) on 0333 2020 454

But you have to pay interest on the money you take out, which can be expensive.

Get advice on paying for care from:

MoneyHelper has more information on equity release.

• Age UK on freephone 0800 055 6112

Renting out your home

• Independent Age on freephone 0800 319 6789

You can rent out your home and use the income to help pay your care home fees.

• MoneyHelper on freephone 0800 011 3797

A deferred payment scheme

Contact your local council about 3 months before you think your savings will drop to below the limit and ask them to reassess your finances.

Telephone help

If your savings run out

A deferred payment scheme can be useful if you have savings less than £23,250 (or £100,000 from October 2025) and all your money is tied up in your property.

If your savings fall below the upper capital limit of £23,250 (or £100,000 from October 2025), your council might be able to help with the cost of care.

The council pays for your care home and you repay it later when you choose to sell your home, or after your death.

Contact your local council about 3 months before you think your savings will drop to below the limit and ask them to reassess your finances.

Ask your council if you’re eligible for a deferred payment scheme.

You can get more information from:

Councils provide funding from the date you contact them. You won’t be reimbursed if your savings are below the limit before you contact them.

• MoneyHelper: deferred payment schemes

What you can get for free

• Independent Age: do I have to sell my home to pay for residential care?

You might be able to get some free help regardless of your income or if you’re paying for your care.

Get expert financial help

This can include:

You can get unbiased expert advice from a specialist care fees adviser.

• small bits of equipment or home adaptations that each cost less than £1,000

They’ll help you compare all your options before you decide what’s right for you.

• NHS care, such as NHS continuing healthcare, NHSfunded nursing care and care after illness or hospital discharge (reablement)

Find a specialist care fees adviser in your area with:

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Editorial content supplied by: the NHS

Driving and using public transport if you have mobility issues If you’re older or disabled, there are ways to make it easier for you to use public transport or to drive.

You can get help: • using public transport • getting discounts on public transport • from the NHS with travel costs • finding community transport schemes • using taxis If you have mobility problems and you need a car to get around, you may be able to get help with costs and parking by: • discounted or free road tax

If you’re using public transport, it’s worth contacting the transport operator before you travel to make sure they’re able to provide the help you need.

• a Blue Badge parking permit • leasing a vehicle through the Motability scheme You can also find out about walking aids, wheelchairs and mobility scooters.

Using public transport All public transport has to be “accessible” so disabled passengers can use it. Public transport also has to accept guide dogs or assistance dogs.

If you’re using public transport, it’s worth contacting the transport operator before you travel to make sure they’re able to provide the help you need.

Buses and trains usually have priority seating for older people and people with disabilities. They also usually have space and wide doors for wheelchairs. Some buses, trains and trams are fitted with ramps.

Public transport in London London transport (trains, buses and river boats) is being upgraded to improve step-free access, to help with wheelchair access and avoiding stairs on Transport for London.

Staff at underground stations are also trained to help people move around the underground system – for example, by helping you use lifts instead of escalators and steps, and calling ahead to arrange for help at your destination.

Discounts on public transport Older people and people with disabilities can usually travel free on local buses anywhere in England between 9.30am and 11pm Monday to Friday, and at any time during the weekend and on bank holidays.

Some local councils offer free travel for longer, and some allow a companion to travel with you for free.

Find your local council on GOV.UK. Apply for an older person’s bus pass on GOV.UK or apply for a disabled person’s bus pass on GOV.UK. If you often travel by train, it’s probably worth checking the Disabled Persons Railcard website to see if you are eligible for a disabled persons railcard. This gives you, and a companion travelling with you, a third off the price of rail tickets.

Children aged 5 to 15 with disabilities are also eligible for a disabled persons railcard. This lets an adult travel with them for a third of the cost of most adult fares, while the child pays the normal child fare.

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Editorial content supplied by: the NHS

Road tax reductions You may also be able to get a reduction in your road tax, or not have to pay it at all.

Find out more on GOV.UK about financial help if you’re disabled, such as vehicle tax exemption and vehicle tax reduction.

Blue Badge disabled parking scheme You may be able to get a Blue Badge parking permit for your car.

This lets you park in disabled parking bays.

With a Blue Badge, you can: • park for free within certain times • park on single and double yellow lines • stay longer in on-street time-limited parking bays Blue Badge schemes are run by local councils. Most councils will let you apply for or renew a Blue Badge on GOV.UK.

NHS help with travel costs

Blue Badge holders can apply for a 100% Blue Badge discount for the London Congestion Charge, on the Transport for London website.

If you pay to travel to a hospital or other NHS setting for NHS-funded treatment or tests, you may be able to claim a refund of reasonable travel costs.

Community transport schemes These schemes provide transport to and from hospitals, GP surgeries, dentists, opticians and chiropodists and podiatrists.

Many areas offer a free “Dial-a-Ride” service, which gives you doorto-door transport if you can’t use normal buses.

Motability Scheme

Many areas offer a free “Dial-a-Ride” service, which gives you door-to-door transport if you can’t use normal buses.

The Motability Scheme lets you use your mobility allowance to lease a car, powered wheelchair or scooter. You can also pay extra for a more expensive vehicle.

You need to register for some schemes and you may have to pay. Carers may be able to travel with you for an extra charge.

You need to receive 1 of the allowances used on the scheme and have at least 12 months left on your award.

Check with your local council’s social services team whether there is a community transport scheme in your area.

The allowances used include:

Using taxis Taxi and private hire companies can provide wheelchair-accessible vehicles if you ask for one when you book.

Some councils give free taxi vouchers to people who find it difficult to use public transport.

Driving with mobility problems If you have mobility problems and you need a car to get around, you may be able to get help with costs and parking.

• the higher rate mobility component of Disability Living Allowance (DLA) for adults on GOV.UK • the enhanced rate of the mobility component of Personal Independence Payment (PIP) on GOV.UK • the War Pension Scheme: Mobility Supplement (WPMS) on GOV.UK • the enhanced rate mobility component of Armed Forces Independence Payment (AFIP), which you can claim on GOV.UK if you were injured while serving in the armed forces

The Care Quality Commission is here to make sure health and adult social care services including hospitals, home and residential care as well as GPs in England provide people with safe, effective, high-quality care.

We publish independent inspection reports and ratings about services – information you can use when you’re choosing care for yourself, or a loved one.

You can use our website to search for services you might be interested in by geographical area, or by specialism. For example, a care home that might offer specialist care for someone who has dementia.

We also welcome your feedback on the care you have received – good or bad. We use this information to help inform our inspections and can alert authorities including local social services, if there are safeguarding concerns about care being provided.

You can visit our website at www.cqc.org.uk to find our inspection reports, or share an experience of care.

You can also call us to share an experience of care on 03000 61 61 61.

Here are some tips to help you choose your care.

Social care Top tips 1

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The Care Quality Commission (CQC) registers all care homes and home care agencies. You can find out which ones support specific groups of people, such as people with a learning disability or those living with dementia.

CQC’s Chief Inspector for Adult Social Care, Andrea Sutcliffe always uses ‘The Mum Test’: is a care home safe, caring, effective, responsive to people’s needs and well-led? In other words, is it good enough for my Mum (or anyone else I love and care for)?

Look for care homes and home care agencies where the staff involve people who use services and their families and carers, and treat individuals with compassion, kindness, dignity and respect.

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Whether you are being cared for in your own home or in a residential setting, the staff looking after you need to be skilled, kind and supportive.

They should also be capable and confident in dealing with your particular needs. You should always feel that their support is helping you to live the life you want to.

A care home will be a home for you or your loved one. Residents should be treated as individuals with their likes and dislikes taken into account.

Think about whether a home is close enough to family, friends, and community facilities.

Look at how well-led and managed a home is. What does it have in place to ensure that it delivers high quality care? Does it promote meaningful activity and connect the home with the community?

If you or a loved one needs help with day-today care, you can contact your local council’s social services department. They will ‘make an assessment of your needs’ and depending on circumstances, may be able to help you access financial help. For more advice visit Age UK’s website www.ageuk.org.uk/home-and-care.

If you would like to organise your care yourself, you can find a care worker or personal assistant through an agency. Your local social services department should be able to provide details of approved agencies.

CQC’s ratings will identify services as:

Outstanding H Good ● Requires improvement ● Inadequate ● This will help you make informed choices around your care.

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Safeguarding adults who receive social care is everybody’s business. If you are concerned about the safety of a loved one receiving care, contact the service provider in the first instance. You can also contact social services at your local council. If you feel a crime has been committed, contact the police.

You can share your safeguarding concerns with us on our website or contact our National Customer Services on 03000 616161.

The Care Quality Commission has not vetted the advertisers in this publication and accepts no liability for work done or goods supplied by any advertiser. Nor does the Care Quality Commission endorse any of the products or services.

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Editorial content supplied by: Age UK Leeds

Leeds

Help at home Supporting you to live well and stay independent Age UK Leeds provides a reliable and tailored service to suit individual needs.

Whether you want help around your home or support to get out and about, we provide a range of services that enable our customers to remain as independent as possible.

• Do you have a loved one who needs extra support to remain in their own home?

• Would you like to improve your own wellbeing or ease the pressures of daily life with companionship or shopping services?

• Could we provide you with a much-needed break if you are you are caring from someone with a disability or memory problem?

Our Help at Home service can • Help to get you out and about to social activities or appointments • Provide companionship at home to help you do the things you like to do such as hobbies, crafts, or games

“My support worker and I got on very well from the start.

She is very helpful and goes above and beyond for me.”

• Do housework such as dusting, hoovering, laundry and ironing • Help to tidy and organise your home, including assistance with paperwork and light de-cluttering All our support staff ✓ Receive thorough training and development ✓ Have an enhanced DBS check ✓ Carry ID badges ✓ Wear an Age UK Leeds uniform ✓ Are insured to provide transport

• Go shopping with you or do your shopping for you (including putting away) • Provide support to make a light meal or snack • Offer respite support for carers We aim wherever possible to match you with the same Support Worker who will regularly visit and provide you with the help and support you need. Sometimes we might need to send someone else, for example, if your regular worker is off sick but we will always check this with you first.

“I have had the same regular support worker for over 2 years and she’s great!”

We have a single price per hour of support which means you can use the time you pay for flexibly and prioritise what matters most to you each time we visit.

Editorial content supplied by: Age UK Leeds

Before we set up your support we will always come and meet you in your own home to discuss the range of support we can offer. We will ask a few questions so that we can get to know you as a person and understand any health or mobility issues or any other needs you might have. This helps us to provide a highquality service.

“The match is a very suitable combination.

The support worker is flexible and just ‘gets on’ with the job.

Top marks.”

We can provide ongoing support or something more short term, for example if family members who usually help you out are going away on holiday or if you need a break while caring for someone.

From three short 30-minute wellbeing visits per week up to multiple half day visits to provide domestic support, shopping services and outings we can accommodate a wide range of requests.

We will be really clear about our prices when we come to visit you. We are competitively priced and very happy to speak to you individually about what we charge for our support. We will also explain what you need to do to sign up for the service. We can usually start to support you quickly after completing our initial assessment.

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Evidence shows that continuing to live at home for as long as possible helps people to maintain their independence and freedom as well giving them a greater sense of comfort, familiarity and better connections to their local community.

Get in touch today and find out how Age UK Leeds Help at Home service can support you, or your loved one.

“My daughter thinks that getting my support workers is the best thing I have done. They are always immaculate, on time, and give me a choice of what I would like to do. I miss my wife, and look forward to my workers coming to see me.”

Contact Information Age UK Leeds Office: 0113 389 3000 Help at Home e-mail address: helpathome@ageukleeds.org.uk

United Against Dementia Alzheimer’s Society wants everyone affected by dementia to know that whoever you are, whatever you are going through, you can turn to them for support, help and advice.

Dementia Connect Dementia Connect, from Alzheimer’s Society, is a personalised support service for anyone with dementia, their carers, families and friends.

We understand that dementia affects everyone differently. So whether you, a loved one, a friend or neighbour needs dementia support, we’re here for you.

We’ll connect you to a whole range of dementia support, by phone, online and face to face. Our highlytrained dementia advisers can help people come to terms with their diagnosis and navigate the complicated maze of health and social care services.

It’s free, easy to access, and offers you the support you need. Whether it’s advice on legal documents, help understanding dementia or someone to talk to when things get tough, we’re here to help.

We can keep in touch with you to make sure you keep getting the support you need. And because we know it’s never easy to tell your story, you’ll only ever need to tell it to us once.

Phone support Our dementia advisers are available to talk to on the phone seven days a week. They will listen and give you the support and advice you need, including connecting you to help in your local area and online.

We can offer you the option of regular calls so we can keep in touch, to find out how you are and help when things change.

Support line opening hours* Monday – Wednesday: 9:00am – 8:00pm Thursday – Friday: 9:00am – 5.00pm Saturday – Sunday: 10:00am – 4:00pm

*Calls charged at standard local rate.

Online support Dementia Connect online support is available round the clock through our website. Answer a few simple questions about yourself, or someone you know, to get personalised, relevant information and advice. From guides on dementia to advice on making your home dementia friendly, get the information about the things that matter to you.

‘The Dementia Adviser was lovely and full of information.

Without Alzheimer’s Society and the Dementia Adviser we’d have nothing. She is a major networker and knows everything and everyone local. I feel in charge and empowered.’ Katherine, living with dementia

If you need further support, you can request a call from our dementia advisers, who should be in touch with you within a week. Our online support includes Talking Point, our online community where you can connect with others in a similar situation, and our Dementia Directory where you can search for local services.

Face to face support Where possible, our local dementia support workers can meet you in person to offer further support, advice and information. They will also connect you to other face to face services in your area, including local support groups.

Notes: Dementia Connect phone and online support is available wherever you live. As the service is new, some parts of the service may not be available in your area just yet.

Every possible care has been taken to ensure that the information given in this publication is correct at the time of going to print. Whilst the publisher would be grateful to learn of any errors, it cannot accept any liability over and above the cost of the advertisement for loss there by caused. No reproduction by any method whatsoever of any part of this publication is permitted without prior written consent of the copyright owners. Octagon Design & Marketing Ltd. ©2024. Rossington Hall, Great North Road, Doncaster, South Yorkshire, DN11 0HR. Telephone: 01302 714528

Options Leeds is published by Octagon Design and Marketing Ltd with editorial contributions from The Leeds Teaching Hospitals NHS Trust, Age UK, Alzheimer’s Society, the CQC and the NHS. The editorial contributors have not vetted the advertisers in this publication and accepts no liability for work done or goods supplied by any advertiser. Nor do the editorial contributors endorse any of the products or services.

Designed & Compiled by Octagon Design and Marketing Ltd., Rossington Hall, Great North Road, Doncaster, South Yorkshire, DN11 0HR. Tel: 01302 714528