Blackpool Teaching Hospitals Community BB R4

SWAN

End of life and bereavement care © Design Services, Salford Royal NHS Foundation Trust 2012, all rights reserved.

For you in your loss

Information for Bereaved Relatives and Friends Community Services

Caring • Safe • Respectful

“Memories are the loveliest thing, They last from day to day, They can’t get lost, They don’t wear out, and can’t be given away.”

(Anonymous)

Options available If you would like a large print, audio, braille or a translated version of this booklet, then please call: 01253 955520.

Contents You are not alone .................................................................. 1 Supporting your loved one’s wishes ...................................... 1 Organ donation ..................................................................... 2 Tissue donation ..................................................................... 2 Keepsakes ............................................................................ 2 Swan Bereavement Support Team ....................................... 3 Practical first steps, when death has occurred ...................... 4 The Medical Examiner .......................................................... 5 Contact a funeral director ...................................................... 6 Register the death ................................................................. 6 Who can register the death ................................................... 6 Where to register the death ................................................... 7 What you will need to know to register the death .................. 8 Location of Blackpool Registration Office ........................... 10 Location of Fleetwood / St Annes Registration Offices ....... 11 ‘Tell Us Once’ service .......................................................... 12 The role of the coroner ........................................................ 13 Visiting your loved one after they have died ....................... 14 Funeral arrangements ......................................................... 14 Pension/allowance arrangements ....................................... 15 NHS equipment ................................................................... 15 Grief .................................................................................... 16 LeDeR ................................................................................. 16 Talking to children about death ........................................... 17 Tick box reminder ................................................................ 18 Advice and support: some options for you .......................... 19 Bereavement survey ........................................................... 24 Tree of Lights and Book of Remembrance .......................... 25 Other sources of information ............................................... 26

You are not alone We are extremely sorry for your loss and appreciate this is an incredibly difficult time for you and your loved ones.

Inevitably, there are certain practical issues that need to be organised when someone dies. The information in this booklet is designed to give you details about the next steps, answer some of your questions and signpost you to the extra help and support that is available to you.

Grief is a normal reaction to the loss of a loved one and you may feel lots of different emotions around this loss. Grief never fully leaves us, but we do learn to navigate it in time.

If you feel you need further support or advice, there are a number of organisations listed on pages 19-22. Alternatively, you can speak to your funeral director or call our Swan Specialist Bereavement Team for advice.

Supporting your loved one’s wishes It is important that if someone has expressed specific wishes prior to death that we do all we can to fulfill them.

If there are any wishes or preferences that you need help or support with please discuss this with district nursing team or your chosen funeral director.

1

Organ donation Some people express a desire to donate organs for transplantation after death. This is something that can only take place in very specific circumstances, such as when a person has died in either an intensive care unit or accident and emergency department. When a person has died within the community there are other options that can be explored should they wish to donate for the benefit of others.

Tissue donation Unlike organ donation, almost everyone can be considered for tissue donation.

If your loved one has expressed a wish, or you feel able to consider tissue donation, it may be helpful to know that heart valves, eyes (corneas) and other tissues can be donated up to 24 hours after a person has died. A family member can consent on behalf of the patient. This is, of course, a very personal decision. If you would like more information, please call Tissue Services on 0800 432 0559 (24 hour freephone).

Keepsakes It may be possible to arrange for keepsakes such as handprints and hair locks. You may also wish to take photos of your loved one’s hands. Please speak to your district nursing team or your chosen funeral director if this is something you would like to arrange.

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Swan Bereavement Support Team The Swan Bereavement Specialists can support you in the immediacy of your loss. The team is based at SWAN Blackpool Teaching Hospitals NHS End of life and bereavement care Foundation Trust, however we do offer the service for all families whether the death occurred in the hospital or community.

© Design Services, Salford Royal NHS Foundation Trust 2012, all rights reserved.

Our aim is to provide practical and emotional support to families and carers after the loss of a loved one. The team are not trained counsellors but can advise on accessing these and other services that may be helpful to you and your loved ones.

Swan Bereavement Support Team Telephone: 01253 952456 Office hours: daily from 9.00am to 4.30pm The Good Grief Trust offers a range of both local and national information and support groups you may find useful – “help and hope in one place”. Visit their website and/or discuss with the Swan Team for any further information: www.thegoodgrieftrust.org

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Practical first steps, when death has occurred When death occurs telephone your GP or health care professional as soon as possible. If the death occurred outside of normal working hours please contact the out-ofhours GP who will arrange for a community nurse or doctor to verify the death.

By law, a medical doctor is required to provide a Medical Certificate of Cause of Death when a person has died to confirm the death and state the cause of death. The doctor will complete this as soon as possible. This will be sent straight to the Medical Examiner (see page 5).

In some cases where the doctor is uncertain about the reason or the circumstances of death it may not be possible to issue the Medical Certificate of Cause of Death. If the death was sudden or unexpected the doctor is legally obliged to inform the coroner. More information can be found on page 13.

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The Medical Examiner Blackpool Teaching Hospitals, in line with government requirements, has introduced the role of the Medical Examiner. The Medical Examiner is a senior doctor who is not involved in the care of the patient, but who understands the circumstances surrounding the cause of death.

The purpose of the Medical Examiner is to make it easier for bereaved relatives to understand the wording on the Medical Certificate of Cause of Death and to ensure that this information is correct by performing a review of the medical records.

Someone from the Medical Examiner’s team will contact a designated family member to help you understand the cause of death. You will also be asked if you have any concerns regarding your loved one’s care during their final illness.

Although the Medical Examiner may not be able to answer your questions immediately, they will advise you regarding sources of additional support or information.

You can speak to a member of the Medical Examiner’s team on 01253 956766.

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Contact a funeral director You do not have to wait until the Medical Certificate of Cause of Death has been issued to contact a funeral director and make arrangements to transfer your loved one to the Chapel of Rest. Details of local funeral directors can be found at the back of this booklet. Alternatively, the internet is a good source of information to compare costs and services.

Register the death Once the Medical Certificate of Cause of Death has been issued, the Medical Examiner’s team will arrange for this to be sent electronically to the Registration Office.

It is a legal requirement to register the person’s death within 5 days of the date from when the Registrar’s receive the completed Medical Certificate of Cause of Death.

In most cases this is done by a family member but needs to be someone who can provide the necessary information about the person who has died. See pages 8 and 9 for the information that is needed.

Who can register the death You can register the death if you are: • • • • •

A partner or personal representative of the deceased A relative Someone who was present at the death The authorised occupier of the nursing/care home where death has occurred The person making the funeral arrangements

See pages 8 and 9 for what you will need to know.

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Where to register the death A death should be registered in the local authority district where it occurred: •

For Blackpool deaths Where council tax is payable to Blackpool, deaths should be registered with the Blackpool Registration Service.

Families should contact the Registration Office to make a face-to-face appointment to register the death, preferably online: www.blackpool.gov.uk/deaths If you do not have access to a computer, please phone 01253 477177.

•

For Fylde and Wyre deaths Deaths that occur within the local authority boroughs of Fylde or Wyre should be registered with Lancashire Registration Service. There are two Registration Offices on the Fylde coast, one in Fleetwood and one in St Annes.

You can make a face-to-face appointment at either Registration Office online at: www.lancashire.gov.uk/births-marriages-and-deaths/ deaths To make an appointment at any Registration Office within Lancashire Registration District, please phone 0300 123 6705.

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What you will need to know to register the death To register the death you will need to make an appointment at the relevant Registration Office (see page 7) and, if possible, take with you the NHS medical card and birth certificate of the deceased patient to the appointment.

The Registrar will ask you for the following information (you may like to fill in the spaces below before the appointment): This information will form an entry in the Death Register.

The date and place of death

Full name and surname / family name

Date and place of birth of the deceased

Address, including postcode of the deceased

The last full-time occupation of the deceased

Retired? Yes / No

Date and place of birth of surviving spouse / civil partner

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If the deceased was a married woman, widow or a civil partner: Maiden name / family name (if applicable) The husband’s / wife’s / civil partner’s name even if deceased

The husband’s / wife’s / civil partner’s last occupation

Retired? Yes / No

Please ensure all spellings and identification details are accurate on the certificate at time of registration as any amendments can incur a significant correction fee.

You may also be asked for the reference number of any public sector pension (e.g. civil service, teacher or armed forces), apart from the state retirement pension.

After registering the death the Registrar will give you a green form to give to your chosen funeral director.

You will also receive the death certificate, which you will have to pay for. You can buy additional certificates at the same time or order online at a later date.

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Location of Blackpool Register Office Copyright © 2024 RNS Publications

Blackpool Register Office Town Hall, Talbot Square, Blackpool FY1 1GB Tel: 01253 477177 Open: Monday - Friday 9.00am - 4.30pm

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For opening hours, visiting information and to book an appointment at either office, please visit: www.lancashire.gov.uk/births-marriages-and-deaths/ find-a-registration-office

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‘Tell Us Once’ service ‘Tell Us Once’ brings together several organisations so that people do not need to notify them individually of the death.

To use ‘Tell Us Once’ the death must have been registered.

The Registrar will give you information about the service when you go to register the death.

You can find further information at: www.gov.uk/tell-us-once Tell Us Once links information between: • • • • •

Department for Work and Pensions (DWP) HM Revenue and Customs (HMRC) Local authorities Driving and Vehicle Licensing Agency (DVLA) HM Passport Office

They do not inform the following organisations: • • • • • • •

Royal Mail Utilities TV Licensing Bank / building society Library cards / season tickets Insurance companies Rental companies

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The role of the coroner If a doctor is not able to issue a medical certificate for the cause of death - for example if the death was unexpected or they are unsure of the cause - a referral will be made to the coroner.

In this instance a Coroner’s Officer will contact the family of the person who has died for more information about their medical history. Once they have all the information they need, a decision can be made about what happens next; a Medical Certificate of Cause of Death may be issued after consideration by the coroner or there may be the need for a coroner’s post-mortem.

If the decision is made that a post-mortem is required, this is something that family members cannot refuse.

There are some infrequent cases where a doctor may request a post-mortem in order to further medical knowledge. In this instance the doctor would talk to the family and written consent would be required. This is known as a hospital postmortem.

If your loved one’s death is referred to the coroner, the Coroner’s Officer will make contact to ensure that you understand this process and are kept informed.

•

Contact numbers For Fylde and Blackpool residents: Blackpool Coroner’s Office: 01253 477128 For Wyre residents: Preston Coroner’s Office: 01772 536536

13

Visiting your loved one after they have died When the person has been taken to a funeral home please contact your funeral director to arrange to visit them if you wish.

If your loved one has been transferred to Blackpool Victoria Hospital’s Mortuary and you would like to arrange a visit, please contact the Mortuary team on 01253 953583 or your appointed Coroner’s Officer (see telephone numbers on previous page).

Funeral arrangements Funerals are unique to each person and the family. There are many options which your chosen funeral director will talk with you about to ensure that your needs are met.

People in receipt of certain benefits may be eligible for financial assistance with funeral costs. For information on eligibility and to either apply online or download a paper form, please visit www.gov.uk/browse/benefits/bereavement or telephone the relevant department listed below: Funeral Expenses Payment (form SF200): 0800 151 2012 The Social Fund (funeral loan, form SF500): 0800 169 0140 Bereavement Support Payment (form BSP1): 0800 731 0469

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Pension / allowance arrangements Any queries regarding pensions and allowances can be directed to the Pension Service: 0800 731 0469 (MondayFriday, 8am-6pm) or visit www.gov.uk for information.

If the deceased was in receipt of a war pension please telephone the Veterans UK dedicated bereavement line on 0800 169 3458 or visit the website www.veterans-uk.info for information.

You will need the pension information and National Insurance number of the deceased and next of kin.

NHS equipment Please return NHS equipment to the loan store it was issued from or telephone 01253 476646 or Medequip (Preston) 01772 286573 for collection.

Wheelchairs issued by Preston Specialist Mobility Rehabilitation Centre (SMRC) need to be returned to them.

Please telephone 01772 716921 to arrange collection.

If you are not sure about what to do with any piece of equipment (eg. a syringe pump) please ask your district nurse.

Medications can be returned to any local pharmacy.

15

Grief Every person feels differently when a loved one dies. There is no right or wrong way to feel. Some will prefer to deal with their feelings on their own, while others seek support from friends, a person or a group of people who have had similar experiences of grief. Others may prefer to contact a person with professional training such as a counsellor or a psychologist.

What is important is that support is available and it is normal to need support in coming to terms with your loss. If you would like to speak to someone, contact the Swan Bereavement Support Team (details on page 3). There are also various organisations locally who can offer you further support and counselling. Some of these are listed on pages 19-22.

Regardless of your religious beliefs you may also like to seek the support of a spiritual advisor. The hospital chaplain can put you in touch with a minister of your denomination or religion.

You can contact the Chaplaincy Team on 01253 953876.

LeDeR People with a learning disability are often vulnerable and face challenges in accessing the healthcare that they need. The learning from deaths – people with a learning disability and autistic people (LeDeR) is a national programme which was set up to improve the health of people with a learning disability and reduce health inequalities. Every person with a learning disability whose death is notified to LeDeR will have an initial review of the health and social care they received prior to their death. More focused reviews may be completed when there is a need. For more information please visit: www.england.nhs. uk/learning-disabilities/improving-health/learning-from-livesand-deaths/ 16

Talking to children about death Adults often feel the need to protect children from death. They may feel children will not understand or that they will be too upset. However, we can often underestimate a child’s resources and ability to cope. Children often find it harder if they are not told what is happening and they may be more frightened by imagined events. They should be told the facts in a simple manner, using appropriate words eg. ‘dead’, ‘death’, or ‘died’ rather than ‘lost’ or ‘asleep’. Give them time to ask questions (which may be very direct) and offer plenty of reassurance.

It is helpful for adults to share feelings with children, such as feelings of sadness. By doing this they learn that it is natural to feel sad when someone dies. Children may like to draw pictures as part of their way of saying goodbye to express their sadness and feelings.

For more information, contact the Swan Bereavement Support Team (details on page 3).

Winston’s Wish is a charity that helps children, teenagers and young adults affected by grief (details on page 22).

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Tick box reminder When death occurs – contact your GP (or out-ofhours GP) as soon as possible (see page 4) Choose and contact a funeral director to begin arrangements (see page 6) Book an appointment at the Registration Office to register the death, once you have been notified that a Medical Certificate of Cause of Death has been issued (see page 7)

optional anytime

You may wish to contact the Swan Bereavement Support Team for any additional advice and support on 01253 952456 (see page 3)

SWAN

End of life and bereavement care © Design Services, Salford Royal NHS Foundation Trust 2012, all rights reserved.

optional anytime

Provide feedback by completing a Bereavement Survey (see page 24): www.blackpoolteachinghospitals.nhs. uk/services/patient-experience/ bereavement-survey

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Advice and support: some options for you Practical advice – what to do, step by step Website: www.gov.uk/after-a-death Age UK Providing bereavement support (Fylde & Wyre residents only) Telephone: 0300 303 1234 (local rate) Website: www.ageuklancs.org.uk Amparo Lancashire – support following suicide Offering confidential support “for as long as you need it” Telephone: 0300 088 9255 (local rate) Website: www.amparo.org.uk/our-locations/lancashire/ At a Loss Charity helping bereaved people find support and wellbeing Telephone: 0800 448 0800 Text: 07860 022814 Website: www.ataloss.org Blackpool Carers Centre Beaverbrooks House, 147 Newton Drive, Blackpool FY3 8LZ Telephone: 01253 393748 Website: www.blackpoolcarers.org Citizens Advice Bureau (CAB) Provides support through free, impartial, confidential information Website: www.citizensadvice.org.uk Website: www.blackpoolcab.org.uk Website: www.citizensadvicefylde.org.uk Website: www.citizensadvicelancashirewest.org.uk Telephone: 0808 278 7818 (Blackpool); 0808 278 7881 (Fylde); 0808 278 7880 (Wyre)

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The Compassionate Friends Supporting bereaved parents and their families after a child dies Website: www.tcf.org.uk Telephone: 0345 123 2304 Counselling service directories Website: www.counselling-directory.org.uk Website: www.bacp.co.uk/search/therapists Website: www.mind.org.uk/about-us/local-minds/ Counselling in the Community Charity offering counselling to adults and children (age 4+) Telephone: 0808 196 3483 Website: www.counsellinginthecommunity.com CRUSE Bereavement Care One-to-one counselling in your home and bereavement support groups for children and adults.

Telephone: 01772 433645 National helpline: 0808 808 1677 Email: lancashire@cruse.org.uk Website: www.cruse.org.uk Funeral directors Some local companies are listed at the end of this booklet.

They may be contacted for support and advice.

The National Association of Funeral Directors: 0121 711 1343 Website: www.nafd.org.uk Fylde Counselling Service Charity offering counselling to adults Telephone: 01253 720270 Text: 07816 224898 Website: www.fyldecounselling.org.uk

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The Good Grief Trust ‘Help and hope in one place’ information and support both locally and nationally Website: www.thegoodgrieftrust.org Just Good Friends Combat loneliness and social isolation Telephone: 07557 734233 Website: www.justgoodfriends.org Linden Centre - information and support For bereaved (adult or children) families and carers of patients who are being or have been supported by Trinity’s family of services.

Low Moor Road, Bispham, Blackpool FY2 0BG Telephone: 01253 952582 Website: www.trinityhospice.co.uk N-Compass The Lancashire Carers Service, offering advocacy and carers support for adults as well as counselling for young people aged 11-18 in Fylde, Wyre, Preston, Chorley and South Ribble Telephone: 03450 138 208 Website: www.n-compass.co.uk NHS Choices – Live Well Includes information on coping with bereavement, bereavement and young people and when someone you care for dies. Website: www.nhs.uk (search for ‘grief’ or ‘bereavement’ to list services)

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NHS Talking Therapies Psychological therapies (formerly known as Blackpool Healthier Minds and Supporting Minds) Blackpool residents: 01253 955700 Fylde and Wyre residents: 01253 955943 Website: www.blackpoolteachinghospitals.nhs.uk/services/ talking-therapies Samaritans Confidential emotional support (available 24 hours).

16 Edward Street, Blackpool FY1 1BA Telephone: 116 123 (free from any phone) or 0330 094 5717 Email: jo@samaritans.org Support after suicide Links to downloadable resources and bereavement support groups available in Lancashire and South Cumbria Website: www.healthierlsc.co.uk/suicide/bereaved Survivors of Bereavement by Suicide (SoBS) Peer-led support for adults impacted by suicide loss Telephone: 0300 111 5065 Website: www.uksobs.org WAY - Widowed and Young Membership offering support and friendship for men and women up to the age of 50 whose spouse or partner has died.

Website: www.widowedandyoung.org.uk Winston’s Wish A dedicated charity that helps children, teenagers and young adults affected by grief.

Telephone: 08088 020 021 Website: www.winstonswish.org

22

Love Came First You don’t move on after loss, but you must move with. You must shake hands with grief, welcome her in, for she lives with you now. Pull her a chair at the table and offer her comfort. She is not the monster you first thought her to be. She is love.

And she will walk with you now, stay with you now, peacefully. If you let her. And on the days when your anger is high, remember why she came, remember who she represents. Remember. Grief came to you my friend because love came first.

Love came first.

Donna Ashworth

23

Bereavement Survey At Blackpool Teaching Hospitals we recognise the importance of monitoring the quality of care given to our patients in the final phase of their life. We are constantly reviewing the service that we offer to bereaved relatives and friends and welcome any feedback you may have.

We appreciate that you may not be ready to talk about your experience yet, and that recalling memories and events around the time your loved one died can raise painful emotions. Please remember the survey is completely voluntary and anonymous - you need only complete this survey when and if you feel ready to do so.

When you feel ready to share your experience, the staff in the Bereavement Office will offer you a bereavement survey.

Alternatively, the survey is available from the Swan Bereavement Specialists, or on the hospital website in the Patient Experience section where you will find a link, or via the QR code below.

We value comments about what you found helpful and areas where you feel we might improve the service. If you are unhappy about any aspect of the care you or your relative received, you may prefer to put the details in writing to the Patient Relations team (details can be found on page 26).

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We give our sincerest thanks to those who make donations in memory of loved ones to our hospital charity, Blue Skies. These funds are used directly to provide resources and improve end of life and bereavement care. We are also very grateful and value our volunteers who give their time, skill and materials to create the hearts and teddy bears keepsakes that can then be given with love and provide comfort.

Tree of Lights and Book of Remembrance

Celebrating and Remembering your loved ones

Blackpool Teaching Hospitals NHS Foundation Trust host a special memorial evening each year in December.

Bereaved families, carers and friends are invited to pay tribute to their loved ones at a beautiful reflective service of music, readings and reflections, followed by light refreshments. Families are welcome to add the name of their loved ones to our Book of Remembrance which is placed in the chapel throughout December.

All are welcome to attend this special memorial evening and support the Tree of Lights appeal (which is optional). For further information or to request an invitation, please contact: Swan Bereavement Support Team on 01253 952456.

Blue Skies Hospitals Fund supporting end of life and bereavement care

SWAN

End of life and bereavement care © Design Services, Salford Royal NHS Foundation Trust 2012, all rights reserved.

25

Other sources of information: Hospital switchboard Telephone: 01253 300000

Patient Relations Department

The Patient Relations Department offer impartial advice and deal with any concerns or complaints the Trust receives.

You can contact them via tel: 01253 955589 or by email: bfwh.patientrelations@nhs.net WWW

Further information is available on our website: www.bfwh.nhs.uk

If you’d like a large print, audio, Braille or a translated version of this booklet then please call: 01253 955520

AA

AA

01253 955520 Author: End of Life Team Approved at: Specialist Pallative Care, End of Life & Bereavement Directorate Assurance Meeting

Reference No: PL/1139 (v4) Review Date: 01/08/2027 Date of Publication: 06/08/2024

The Trust will not accept any liability arising in respect of defect, negligence or complaint arising in respect of products and / or services advertised within this booklet.

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STOPPING JUNK MAIL It is distressing to deal with a bereavement and unsolicited mail can be

insensitive and destructive during a grieving process.

By scanning the below QR code on your phone or visiting

www.stopmail.co.uk, we are able to securely share this information

with mailing organisations and under the Data Protection Act the information will not be used for any other purpose.

Other benefits reduce the possibility of identity fraud, such as assumed

identity and you will only have to supply the information once.

www.stopmail.co.uk 0808 168 9607 from a landline 0333 006 8114 from a mobile © Bereavement Support Network Ltd 2024

Published by RNS Publications © Tel: 01253 832400 R6