Cochlear Family News Issue 1

Issue 01 April 2019

KEEPING YOU SUPPORTED, CONNECTED, INSPIRED

Never too old: woman implanted at age 98 PAGE 4

How sport helped put an end to bullying PAGE 6

How an app is a game changer for this toddler PAGE 8

TOP OF THE PYRAMID PAGE 5

Why Bryan Chong’s story ends with a cheer

CochlearFamily eNews Issue 01 April 2019

To disclose or not?

Julia Gilchrist on disclosing her hearing loss during a job interview

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HEN JULIA GILCHRIST’S processor batteries died in the middle of a job interview, it could have been a negative experience.

Instead, the 37-year-old corporate communications specialist seized the opportunity to show the interview panel how well she works under pressure.

‘I pulled the new batteries out of my handbag, kept giving the answer I was giving them, changed the batteries, put the processor back on and asked “Do you have any more questions?”.’

This opened a discussion about the possible impact of Julia’s hearing loss on her ability to do the job. Julia has been living with a cochlear implant since the age of 20 and is about to upgrade to a Cochlear™ Nucleus® Kanso® Sound Processor.

Julia was born profoundly deaf and

diagnosed at age 18 months with bilateral sensorineural hearing loss.

After completing high school, she graduated from university with a double major in communications and politics.

The battery incident in the job interview allowed Julia to reassure the panel that, flat batteries aside, her hearing loss would not affect her performance. The panel was impressed by how she handled the situation. ‘You need to package yourself as strong and sell your resilience,’ says Julia.

For many recipients, Julia’s experience prompts several questions: when should you disclose your hearing loss when applying for a new job? Is it ok to ask interviewers to repeat questions?

Is it reasonable to ask if the interview can be conducted in a quiet place?

Will the interview involve a panel of people asking questions?

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‘You need to package yourself as strong and sell your resilience.’

Recruitment expert Nina Mapson Bone from Beaumont People, a recruitment company in Australia, and Julia give their seven top tips for job seekers with a hearing loss apply for a job:

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Before applying for a role, question if it’s right for you Nina recommends avoiding the temptation to apply for too many jobs at once to maximise your chances of success.

Find out about the company culture, if the job will suit your skill set, and whether the office is a noisy, open-plan environment.

CochlearFamily eNews Issue 01 April 2019 ‘If you don’t know what you want you’ll end up in a job you don’t really like.’

Also, find out the essential tasks of the role and make sure you can fulfil the role without interference from your hearing loss.

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Disclose your hearing loss in the interview – not the application Job applicants are often competing against a lot of candidates and employers look for ways to vet a high volume of applications.

For this reason, Nina suggests disclosing your hearing loss during the interview where you can build a relationship, rather than the initial written application.

‘Give yourself as much opportunity as possible.’ She adds there is often no legal obligation to disclose hearing loss unless it will affect your ability to do the job, though check local laws as part of your job research.

Julia agrees that it is best to wait until the interview stage before disclosing your hearing loss unless hearing ability is critical to the role. That way employers are focused on your abilities and not whether employing a person with hearing loss will be good for the company and its image, she says.

Nina recommends a brief disclosure during the interview that you have an implant is all that’s needed. ‘That’s probably all the vast majority of people need to say.’

And encourage interviewers to ask any questions about cochlear implants so they don’t make incorrect assumptions, she adds.

‘If you, as a job candidate, make it okay for people to ask questions you’ll actually move very quickly to a point where it’s irrelevant. And that’s the point - it’s all about how good you are for the role.’

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Prepare for the interview There is no such thing as too much research or preparation for an interview, Nina says.

Being informed about the company and having good questions prepared

ahead of an interview will help you succeed, she says.

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Don’t be afraid to ask questions that highlight your hearing loss Never hesitate to ask the interviewer to repeat the question or let them know you didn’t quite understand, and ask the interviewer to look at you when they ask you a question, says Nina.

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The simple things count Arriving on time for a job interview with a positive attitude and a smile, and looking smart are winning tactics, Nina says.

Most candidates don’t do this very well. Make yourself stand out with good, general preparation.

‘That will automatically put you ahead of 90 to 95% of people who apply for a role.’

If you do decide to disclose a hearing loss ahead of a job interview, consider these tips, says Nina: • Request the interview questions in writing before the interview.

• Ask for a written agenda of the interview so you can prepare.

• Ask for any relevant company literature and a written job description.

• If you lip read, ask to be seated in a room with good lighting.

• At the interview, advise the organisation of any adjustments they may or may not need to make for you – they may assume too much.

In a panel interview, where people might talk simultaneously, don’t be afraid to say you didn’t quite hear or understand the questions.

Also try to make eye contact with everyone in the room, which can be challenging if you lip read.

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Transparency: be open and up front Feel confident to ask the interviewer if they have any concerns about your application or your ability to perform the role, Nina says.

‘I’ve never met anyone who isn’t impressed when asked questions and it’s a really good way to finish the interview.’

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Julia agrees that it is best to wait until the interview stage before disclosing your hearing loss.

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Be confident Nina’s most important tip is to remember that confidence is contagious.

‘Being confident in your ability to do the role and being a personable, friendly, well-prepared candidate is actually the best thing you can be,’ she says.

Typically, candidates who are dealing with a disability have more resilience, empathy and are better at team work because these skills have helped them overcome hurdles, she says.

Julia agrees and reminds candidates to stay focused on the job, not your disability. ‘That took me a really long time to learn.’

CochlearFamily eNews Issue 01 April 2019 Dulce ‘Loyal’ Selleck wishes she had acted sooner.

‘It’s lovely to hear their [family] voices. I can hear the birds talking…

It’s lovely to talk to friends.’

Never too old W

HEN DULCIE ‘LOYAL’ Selleck was in her 90s, she dismissed the idea of a cochlear implant to improve her hearing claiming it was a ‘waste of time and money’ because of her old age.

‘I will probably be dead in six months,’ she told her family.

But at age 98, Loyal’s life was transformed when she became one of the oldest Australians to receive a Cochlear™ implant.

Loyal recently celebrated her 100th birthday, and was able to enjoy the festivities held in her honour all the more because she could hear almost every word spoken.

‘It’s the best thing,’ she said of her capacity to hear the world around her. ‘It’s lovely to hear their [family] voices. I can hear the birds talking… It’s lovely to talk to friends.’

Loyal’s four children and their families were among special guests at the party including multichannel cochlear implant inventor Professor Graeme Clark.

Her youngest daughter, Joy Murphy, recalled her mother’s reluctance to have a cochlear implant reasoning that at her age, it would be a waste of time and money.

Joy said her mother now wished she had acted sooner.

She said her mother goes out five days a week, meets up with friends twice a week, enjoys eating chocolate while riding her exercise bike and loves her crosswords, reading and bingo.

Loyal said before her cochlear implant she couldn’t even hear thunder, was unable to communicate and tried to lip read.

Sarah Selleck, who travelled with her family from Saudi Arabia for her

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Woman implanted at age 98 grandmother’s special day, recalled accompanying her to a hearing specialist several years ago.

‘She had a new hearing aid and she got her hopes up that it would be wonderful and she would be able to hear. To see her face falling with disappointment, it brought a tear to my eye.

It was devastating. She hides it well but you could tell she was disappointed.’

A happy and relaxed Loyal, delighted to be doing something in support of cochlear implants said: ‘You are never too old.’

The great grandmother who worked as a talented seamstress while raising her children living on a farm, is quietly pleased to be 100, although she only feels ‘about 60’.

And for the record, she is known as Loyal because her mum knew a lovely girl called Loyal. ‘She couldn’t call me Loyal Dulcie so she called me Dulcie Loyal.’

CochlearFamily April 2019 2019 CochlearFamily eNews eNews Issue 01 01 April Bryanbody Chong: ‘It’s made me text here Molenisqui dest aut secure doing cheerleading quam sinus, commodi tatur? Quissim practice...

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Why Bryan’s story ends with a

CHEER W

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CochlearFamily eNews Issue 01 April 2019

ESE SIRIKCI is all too familiar with the cruelty that comes with schoolyard bullying.

The teenager, who was diagnosed with profound hearing loss as a toddler and is a bilateral cochlear recipient, reflects back on her years at school where she was bullied mercilessly because of her implants and ethnic background.

‘I said nothing for five years – not even to my parents, the school, my friends, no-one,’ says Nese, who worked hard to keep her struggle a secret.

‘I am the type of person who doesn’t like attention and drama.’

When her parents became aware of the torment inflicted on their daughter, they moved Nese to another school.

But while the fit was good academically, she continued to be bullied.

‘The girls used to pick on me because I was different. I felt really excluded and lonely,’ says the teen who was first implanted at age two on one ear and then at age five on her second ear.

Years of torment for being different meant the once happy and bubbly preschooler became a progressively withdrawn school student.

g n i y l l u b o t d n An e How a sport helped this teenage girl put an end to schoolyard bullying TURNING POINT The turning point came when a friend of her father, a taekwondo Sa bum (instructor), suggested Nese would benefit from learning a martial art as he believed it would help boost her confidence.

Nese says taekwondo is ‘like yoga but more aggressive’ and it turned out to be just the ticket. And using the Cochlear™ Nucleus® Kanso® Sound Processor means she can be active and participate in

Taekwondo has taught Nese how to stand up for herself and not let people affect her.

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CochlearFamily eNews Issue 01 April 2019 active sports like taekwondo with confidence that her processor will remain securely in place.

Although she had no intention of getting into physical confrontations, she says taekwondo has taught her ‘how to stand up for myself and not let people affect me. I also love the uniform because it puts me in the mindset of being a fighter’.

Taekwondo gave Nese the inspiration to achieve something at a time when she had lost motivation at school.

‘I was insecure for 15 years. I started to learn to accept myself through taekwondo.’

She is proud of the fact she has progressed through six belt colours, from white for beginners through to red, which places her at the start of the advanced martial arts levels and two steps away from the coveted black belt.

COMING INTO HER OWN

Now in her second-last year of high school, Nese is starting to come into her own.

‘I started to love myself for who I am and appreciate my cochlear implants.’

Nese Sirikci has progressed through six Taekwondo belt colours.

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‘I have started making really good friends. I started to love myself for who I am and appreciate my cochlear implants.’

Thanks to her new emotional strength, Nese was able to stand up to a small group of school bullies who would stare at her and make faces.

She had no intention of being aggressive.

‘I just talked nicely. I told them to stop it because I did not like it. Ever since then they have just backed off and they don’t bother me. It feels good,’ says Nese.

After years of focusing on the past, Nese has decided to only look forward.

‘I would rather be happy now,’ she says. ‘Moving on was a big process for me but it was worth it.’

Feeling inspired by her own experience and the role taekwondo has played in her journey, Nese wants to become a motivational speaker after she finishes high school.

She jumped at the chance to talk about bullying to hearing impaired children who were transitioning to mainstream schools, hoping her own experience could help them take steps to avoid some of what she has been through.

‘At the beginning of the talk they were really quiet,’ she says.

‘Afterwards they were laughing and smiling.

‘One of the mums told me her child moved to five primary schools because of bullying,’ Nese says.

‘That really broke my heart because I understand how she feels as I went through it as well.’

Nese suggests children pick a sport they enjoy to help boost their confidence and get them comfortable in new environments.

Despite the years of unhappiness at her old schools, Nese is not interested in holding grudges – she is more interested in changing people’s perspectives.

‘I’m against bullies but, then again, they have stories too,’ Nese says.

CochlearFamily eNews Issue 01 April 2019

How an app is making all the difference for this child and his family

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OR BUSY PARENTS juggling work and family life, supporting the development of a child with a cochlear implant can be a challenge.

But for UK parents Aman and Sukhvans Sandhu, adopting the latest technology and understanding how to get the most out of it is playing a significant role in helping them to support their 16-month-old son Arjan who has bilateral cochlear implants.

Using the Nucleus® Smart App, Aman and Sukhvans can access Arjan’s personalised hearing information from his CochlearTM Nucleus® 7 Sound Processors and monitor how much hearing practise Arjan has had during the day.

‘We use the Smart App daily. Our favourite part is the app’s “Hearing Tracker”, as it gives us an indicator of how much varying sound Arjan is experiencing and how much time in speech he has,’ says his mother, Aman.

‘Because we both work the Smart App is invaluable. It keeps a record, no matter what Arjan is doing or who he is with. When he’s been at a nursery, for example, we can check the Smart App to see how much time in speech he has had. And we can adapt the evening or make plans for the next day if we need to give him more time in a particular listening environment.’

‘We make sure he has plenty of time on air every day – at least three to four hours in speech. So, we have a routine at home to make sure that happens,’ she says.

MAXIMISING TIME IN SPEECH C lare Sheridan, Consumer Education Manager for Cochlear in the UK says exposure to speech is very important to develop listening skills.

‘This is essential for children developing their speech and language skills.’

Clare says the Smart App can help you increase your ‘time in speech’ by providing tips to achieve your goal.

While goals vary depending on age,

‘You can check it when you have time to stop and concentrate. Also, the data is there ready for the audiologist to review and make adjustments.

‘Making notes and keeping logs is automatic, so you don’t have to worry about it.’

Other features of the Smart App include: • locating the device if it’s misplaced • checking battery life

‘My phone will alert me if I need to go and put his coil back on .’

Getting the most out of technology for toddler Arjan Sandhu

family and work situations, they can also help to identify barriers to exposure to speech and, importantly, also when you are doing things that help.

Aman finds the Smart App is a great way to keep track and monitor Arjan’s hearing because ‘so much of it happens in the background, while you’re getting on with family life’.

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• changing the volume or other settings • alerting you if the coils are off.

Aman likes the feature that alerts her when Arjan’s processors have come off. ‘I don’t feel I need to be watching him every minute of the day. I can do some chores while he’s playing, and my phone will alert me if I need to go and put his coil back on’.

CochlearFamily eNews Issue 01 April 2019 As Arjan’s experience of music develops, the Smart App will make it easy for his parents to switch his sound processors to a music setting without disturbing his play.

Arjan already enjoys music, including the beat of the tabla – Indian classical drums – which his father plays.

Headband keeps the processor in place

‘Every day is a small step on Arjan’s hearing journey. It’s incredibly rewarding as a parent to watch him progress day by day and, on the days when it’s a struggle, looking at the app helps to remind us that he’s making good progress.’

PRACTICAL TIPS FROM THE SANDHU FAMILY • Invest in a headband to help keep the processors in place. Aman brought a couple of hearinghenryTM

headbands for cochlear implants which she says are ‘fantastic’.

• Involve the rest of the family and teachers at your child’s nursery – especially for working parents – to help your child get the best results.

• Take the time to explain the sound processors to the nursery teachers.

Aman took Arjan’s headband off and showed them each part and what it did.

• Adjust the app settings so that phone calls do not stream to the processors. You can switch it so that media/calls never stream to the processors.

• As soon as your child is awake, put the sound processors on. You’ll be surprised how vocal they become and more interactive.

• Keep the dry box and charger by your child’s bedside so it’s the last thing that’s put away and the first thing they can pick up in the morning.

• Charge the batteries daily and alternate them to prevent one set from getting used so much.

• Encourage family members who live with you or who will be in regular contact to put the coils on if they fall off as it will increase your child’s exposure time to sound.

• The location function on the app is useful in case you’re unable to find the processors, although we have not lost them yet.

Find out more information on the Nucleus® Smart App.

Other features of the Smart App • Control your sound processor – Quickly change between programs on your Nucleus 7 Sound Processor without carrying a separate remote control.

• Manage your own hearing – Easily adjust your sound processor volume, treble/bass and sensitivity settings and the audio mixing ratio to help you focus on the sounds you want to hear.

• Access personalised hearing information: View time in speech data and track the number of coil-offs with the Hearing Tracker feature.

• Find a lost processor – Get help locating a misplaced Nucleus 7 Sound Processor with the ‘Find My Processor’ function.

• Enjoy True Wireless™ technology – Start and stop streaming from your Cochlear True Wireless devices by tapping your compatible Apple or Android device.

• Feel confident – Check your sound processor status and battery \level to make sure your equipment is working properly.

Please seek advice from your health professional about treatments for hearing loss. Outcomes may vary, and your health professional will advise you about the factors which could affect your outcome. Always read the instructions for use for use. Not all products are available in all countries. Please contact your local Cochlear representative for product information. Views expressed are those of the individual.

Consult your hearing professional to determine if you are a candidate for Cochlear technology.

Cochlear Customer Service Australia and New Zealand 1 University Avenue, Macquarie University NSW 2109 Australia

Cochlear, Hear now. And always, Kanso, myCochlear, Nucleus, SmartSound, True Wireless and the elliptical logo, and marks bearing an ® or ™ symbol, are either trademarks or registered trademarks of Cochlear Limited (unless otherwise noted).

Phone: 1800 620 929 (Aust) Phone: 0800 444 819 (NZ) Email: customerservice@cochlear.com

Cochlear Nucleus 7 and Baha 5 sound processors are compatible with iPhone, iPad and iPod touch.

The Cochlear Nucleus Smart App and Baha 5 Smart App are available on App Store and Google Play.

For compatibility information visit www.cochlear.com/compatibility.

www.cochlear.com/au

iPhone, iPad and iPod touch are trademarks of Apple Inc., registered in the US and other countries. © Cochlear Limited 2019.

D1613711 ISS1 APR 19

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