Parkinson’s disease care guide

Where can I go for help?

Living with Parkinson’s disease or caring for someone with Parkinson’s is full of challenges, but you don’t have to feel alone. Parkinson’s Queensland currently operates 36 support groups throughout metropolitan and rural Queensland. These support groups are informal and friendly and offer members a chance to meet and talk with others while offering each other emotional and practical support. Besides helping you realise you are not alone, the support groups give you a chance to share your feelings and hear the experiences of others. Parkinson’s disease support groups are ideal for people living with Parkinson’s disease, their careers, friends and family members.

SUPPORT GROUPS

CALOUNDRA SUPPORT GROUP

Meetings are held on the second Wednesday of every month. Venue: IRT Parklands, 242 Parklands Boulevard, Meridan Plains, Qld 4551 Co-ordinator: Allan and Shirley Voss Phone 07 5437 0892 Email allanvoss5@bigpond.com

NAMBOUR & DISTRICT SUPPORT GROUP

Meetings are held on the first Friday of every month. Venue: The Sanctuary Park, Church of Christ, 22 National Park Rd Nambour, Qld 4560 Co-ordinator: Ray Clark Phone 0401 173 336 Email ray.clark1@bigpond.com __________________ RESOURCES

There are great resources available for those suffering with Parkinson’s and their carers. Here is a list of some of the best websites to get you started.

PARKINSON’S QUEENSLAND

Since 1985, Parkinson’s Queensland has helped thousands of Queenslanders in their journey with Parkinson’s and related disorders, not only in the early stages after diagnosis, but throughout the condition’s progression. Parkinson’s Queensland Inc (PQI) is a charitable organisation that provides individuals, families and the health, aged and disability sectors with information, support and education for people living with Parkinson’s www.parkinsons-qld.org.au __________________

THE BRAIN FOUNDATION

The Brain Foundation is a nationally registered charity dedicated to funding world-class research Australia-wide into neurological disorders, brain disease and brain injuries including Parkinson’s disease. www.brainfoundation.org.au/ disorders/parkinsons-disease PARKINSON’S LIFESTYLE COACH

Nikki Creber provides support to people who have recently been diagnosed with Parkinson’s disease and those who find it hard to cope with the condition. She provides information, strategies to deal with the condition and links clients to appropriate services and support on the Sunshine Coast and Noosa. Phone 0434 149 688 www.nikkiacreber.com.au

SHAKE IT UP

Shake It Up Australia Foundation is a not-for-profit organisation established in 2011 in partnership with The Michael J. Fox Foundation (MJFF). It promotes and funds Parkinson’s disease research in Australia aimed at better treatments and ultimately a cure. www.shakeitup.org.au

MS QUEENSLAND

MS Queensland can assist people with MS and other progressive neurological diseases such as Parkinson’s disease. They provide the following services: Service coordination, NDIS access assistance, neuro physiotherapy, accommodation, employment services www.msqld.org.au/related-diseases/ parkinsons-disease/

PD Warrior rehabilitation program will teach you how to move well, believe in yourself and live better with Parkinson’s. People who have completed the PD Warrior 10 Week Challenge report feeling more confident in their movements, are able to move more freely and are get back to living life.

The program is covered by your health insurance and, is offered by:

NAMBOUR SELANGOR PRIVATE HOSPITAL 62 Netherton St, Nambour QLD 4560 Phone 07 5459 7455

EDEN REHABILITATION HOSPITAL Sunshine Coast & Gympie 50 Maple Street, Cooroy QLD 4563 Phone 07 5472 6472

OTHER EXERCISE PROGRAMS

SUNSHINE COAST REHABILITATION AND EXERCISE PHYSIOLOGY

They offer Parkinson’s disease classes are designed to provide neuroprotective, neurorestorative and neuroplastic benefits, showing successful results in reducing symptoms and slowing down the progression of disease.

Bli Bli Jetts 312 David Low Way, Bli Bli

O2 Performance (Inside the Sports Hub) - 26 Main Drive, Bokarina

Sunshine Coast Rehabilitation and Exercise Physiology Clinic Shop 5B, 1 Indiana Place Kuluin

Ph 07 5445 8292 Fax 07 5335 1255 www.exercisephysiologyrehab.com

FACEBOOK SUPPORT GROUPS

@parkinsonsqld @lifewithparkinsons @ParkinsonsAust @michaeljfoxfoundation DANCE FOR PARKINSON’S AUSTRALIA

These classes offer the joy of dance to people with motor/mobility issues as a result of Parkinson’s, MS, stroke, arthritis, loss of muscle and joint strength and flexibility, or less mobility from ageing. Similar to the Dance for PD model

Phone : Erica Rose Jeffrey – Director and Lead Teacher: 1800954382 (please leave a message and she will get back to you) Email ericarose@ danceforparkinsonsaustralia.org

RIPE DANCE NOOSA

Offers local classes for older people and those with Parkinson’s on a weekly basis. Classes are offered in Tewantin, Noosa by Gail Hewton who has over 35 years professional dance experience.

To register or for more information contact Gail Hewton. Phone 0411 720 391 or 07 5412 2785 Email ripedance@gmail.com __________________

SPEECH THERAPY

SPEAK OUT PROGRAM

The most efficacious and up-to-date speech quality and voice production enhancement practices are supported by a program called “Speak Out program”.

Restoring Hope Parkinson’s Therapy Louise Williams is the first Speech Pathologist in Australia trained in the Parkinson Voice Project’s SPEAK OUT!® and LOUD Crowd® programs. She is passionate about ensuring that people with PD have access to timely and effective therapy. Phone : 0438 688 456 www.rhptherapy.org.au

THE LEE SILVERMAN VOICE TREATMENT

This program is currently the most efficacious treatment for speech disorder in Parkinson’s Disease. The program is run by:

EDEN REHABILITATION HOSPITAL

Sunshine Coast & Gympie 50 Maple Street, Cooroy QLD 4563 Phone 07 5472 6472 Here’s a list of some of the best online stores offering fantastic devices that help make living with Parkinson’s so much easier. www.leef.com.au www.lakesidemobility.com.au www.patienthandling.com.au www.independenceaustralia.com

AMINO NEURO FREQUENCY THERAPY

Parkinson’s Lifestyle Coach, Nikki Creber has found an innovative, wholistic body orientation treatment for pain and inflammation. Both pain and inflammation build-up over time with Parkinson’s Disease and are significant contributors to the progressive decline associated with this disease. Nikki has been using this treatment herself and highly recommends it.

Cluzie Clinic, Buderim Phone : 07 5329 7905 or 0402 762 7127 www.cluzie.com

BOOKS TO READ ON PARKINSON’S DISEASE

THE PARKINSON’S PLAYBOOK: A GAME PLAN TO PUT YOUR PARKINSON’S DISEASE ON THE DEFENCE. Robert W. Smith

This book gives you all the strategies you need to gain control after a Parkinson’s disease diagnosis. An entertaining and empowering book.

A PARKINSON’S PRIMER : AN INDISPENSABLE GUIDE TO PARKINSON’S DISEASE FOR PATIENTS AND THEIR FAMILIES. John. M. Vine

Diagnosed with Parkinson’s disease in 2004, lawyer John Vine learned a lot in the months and years following. He decided to share his experience with other people in his shoes and their families.

PARKINSON’S DIVA HELLO POSSIBILITIES! Maria De León, MD

Designed specifically for women with Parkinson’s Disease this journal offers fun activities and a place to document the hopes and struggles that go along with a Parkinson’s diagnosis. Be inspired by this work book and let your inner diva shine!