Barts Charity Extra - Winter 2018

BARTS CHARITY

5 things you didn’t know about trauma Page 14

hy I raised W £11,000 for kidney department Page 10

Fundraise for your hospital!

Page 16

SUPPORTER MAGAZINE WINTER 18/SPRING 19

Hello!

Welcome to the latest issue of Barts Charity Extra.

I’m Bex and I work on the trauma ward 12D at The Royal London Hospital.

I know first-hand how much the Charity makes a difference to the patients and staff in my hospital. It pays for projects large and small and you can read stories about its recent funding on pages 4-7.

The Charity raises funds so that it can do even more. Hundreds of grateful patients and their families say ‘thank you’ in many different ways including Tricia, who has inspired her work colleagues to raise £11,000 for kidney research. Read more about her and other supporters on pages 10-13.

Barts Charity is running an appeal to support trauma services – my area – and you can find more about trauma and about my role as a Trauma Nurse Co-ordinator on pages 14-15.

I hope you enjoy this issue of Barts Charity Extra – please get in touch with the charity if you have any questions or feedback!

Thanks for your support,

Bex

Trauma Nurse Co-ordinator

A little bit about us…

We’re the dedicated charity for the five hospitals of Barts Health NHS Trust: Mile End, Newham, St Bartholomew’s, The Royal London, and Whipps Cross.

02

Last year we gave £30m to fund research, equipment and projects to provide extraordinary healthcare for patients.

We fund projects that are over and above what the NHS can provide, to ensure more patients receive the best possible care.

What’s inside?

Contents

13

04

08

See how we’re helping the hospitals to go digital

Give the Greatest Gift to our oldest and youngest patients

Meet Carwyn: one of our youngest ever fundraisers

18

14

What could your donation do?

What is trauma?

Get the latest

For more regular charity updates, why not…

Tweet, heart, like and follow us on social media

Sign up to our email newsletter – visit our website homepage at bartscharity.org.uk

Get Barts Charity Extra delivered by post – email hello@ bartscharity.org.uk with your address 03

Where your money goes

New computers make a wheely big difference Your donations have helped to roll out Workstations on Wheels at St Bartholomew’s and The Royal London Hospitals.

These specially designed computers on wheels remove the need for paper records. They make care safer and speedier for an estimated 50,000 patients.

Project leader David van Heel says: “Having a mix of paper and digital health records is unsafe – it increases the risk of missing something important.”

Doctors and nurses across Barts Health hospitals can view real-time patient information.

This improves communication throughout the hospitals and across other organisations, like the patient’s GP.

Holding on to hope The Royal London Hospital is the first hospital in the country to have a mental health room in A&E with artwork created for its users, by its users.

The artwork creates a soothing space for patients struggling with their mental health.

The Hope Wall feature piece (sketch below) is filled with reassuring messages of support from former patients.

04

“When you are in a state of anxiety and desolation, having something to focus your mind on which is inspiring and uplifting will help to feel like things will get better.”

Jane, a service user who helped design the space

Where your money goes

Homeless help

Stopping fear through film Visiting hospital can be scary for people of any age, but particularly for children.

The Play Department are helping to reduce anxiety by preparing children for their hospital visit in advance.

With your support, six videos were made that help children understand what to expect from their hospital visit, making it feel more familiar and giving them a better experience. The videos guide children through their procedure, what they are likely to feel and how the Play Team can help. They even explain the little details, like where to go and how to use the lifts, so that the visit is as stress-free as possible.

The videos cover a range of the most feared topics, including blood tests, operations and MRI scans, as well as tours of The Royal London, Newham and Whipps Cross hospitals.

“The videos help to identify any worries or anxieties, which can reduce the risk of failed procedures, tests and causing medical trauma,” says Tara Shea, Clinical Lead of the Play Department.

Watch the videos at: bartscharity.org.uk/childrensvideos

Nearly 7,500 people sleep rough on the streets of London every year. The East London boroughs of Newham, Hackney and Tower Hamlets have some of the highest numbers. We’ve collaborated with homeless charity Pathway to assess the care needs of homeless patients in the communities around The Royal London and Newham Hospitals.

The project will establish an integrated care plan for homeless patients, working with services in the local community to ensure they get the right support.

“I very rarely talk to people about my situation, but I can talk to you at Pathway.

You give the time, and you don’t judge, so it is a relief to be able to unburden some of my problems without a feeling of shame.”

Patient treated by the Pathway team

Homelessness and hospitals Compared to those with permanent accommodation… homeless people stay in hospital for

homeless people attend A&E

as long

as often

3 TIMES

6 TIMES

homeless people are

10 TIMES

more likely to die early than those who are safe, secure and housed

Visit our website to see more like this at bartscharity.org.uk/news 05

Where your money goes Artist’s impression of how some of the new facilities will look by LOM Architecture and Design

Helping the patients of tomorrow Around half of our grants are spent on medical research that will help the patients of tomorrow. In 2018, we committed to funding an exciting regeneration project for three of the research institutes at Barts and the London School of Medicine and Dentistry – part of Queen Mary University of London.

The project will deliver state-of-the-art laboratories and workspaces suitable for 21st century research. This will enable up to 100 additional researchers to work on preventing and curing common diseases.

What happens in the institutes?

Barts Cancer Institute

aims to improve survival for people with cancer and enhance the quality of life for those with long-term disease. They are one of the top five cancer research centres in the UK and a designated Cancer Research UK Centre of Excellence.

We’ve given over £5 million to support their work.

“We’re working on an exciting new imaging strategy for men with prostate cancer, using a new type of radio tracer to identify cancers when they spread and introducing radiotherapy which has never been done before in the UK.” Professor John Marshall 06

William Harvey Research Institute

leads world-class research into inflammatory, endocrine and cardiovascular diseases, working closely with clinicians at Barts Heart Centre. In the last three years alone, we’ve granted almost £6m to support their research.

“Our vision is to keep kidney failure patients alive with a normal quality of life with a normal life span by curing rather than treating the condition with dialysis or transplants.”

Professor Magdi Yaqoob

Wolfson Institute of Preventive Medicine

focuses on how to prevent disease and disability, with strengths in cancer, cardiovascular, psychiatric conditions and environmental risk factors like diet. Last year we gave £1.5m to research into preventing dementia, Parkinson’s and multiple sclerosis.

“Brain diseases such as dementia are among the greatest public health challenges of the 21st century. By spotting them early, we may be able to prevent or delay them – and help people age more healthily.”

Professor Jack Cuzick CBE

What’s new at Newham?

Where your money goes

New physiotherapy equipment at Newham Hospital is helping patients after a stroke. The equipment trains both patients’ arms and legs.

Physiotherapist Asif Patel explains, “Physiotherapy is great at improving strength, mobility and balance in people’s legs. However improving stroke patients’ arm function takes much longer. Limited arm function affects so many daily activities. People can struggle to wash, dress, eat and work. The new machine will be crucial to giving people back the independence they had before their stroke.”

“I am grateful for the staff encouraging me to use the bike as it has helped me to learn how to walk again.”

Pal, who suffered a stroke while visiting family in Newham

Safe scans for pacemaker patients

More than half of us will need an MRI scan in our lifetime, to test for life-threatening medical conditions including cancer and stroke. But nearly 500,000 people in the UK who have pacemakers or defibrillators have been prevented from having MRI scans because doctors were concerned that these devices could be affected by the MRI’s strong magnet.

Newer pacemaker devices are designed to be safe in MRI machines, and even older ones can be safe provided strict protocols are followed. But the majority of pacemaker patients still struggle to find hospitals that will scan them… until now.

St Bartholomew’s Department of Cardiac Imaging have developed a service that addresses this, using two MRI scanners that were purchased with £2.2m of Barts Charity funding. Their service has grown massively, now treating 20 times the national average and patients are being referred from across the UK. Peter was diagnosed with head and neck cancer but, because of his pacemaker, struggled to get an MRI. Thanks to the service at St Bartholomew’s, he was able to undergo multiple scans which were needed for his surgery and radiotherapy treatment: “If you’re dealing with cancer, the quicker you can get on and do things the better, you don’t want to wait two or three months. It was an anxious time but once I knew I could have the MRI scans, it took away a tremendous concern.”

The team are now campaigning nationally for patients with pacemakers to have the same access to scans as everyone else at their nearest hospital. They were recently featured on Channel 4 news! For more info visit mrimypacemaker.com 07

Christmas Appeal

GREAT

GI FT A

EST

PPEAL

The Greatest Gift you can give this Christmas is a reason for someone to smile!

Nobody wants to be in hospital at Christmas, but together we can spread a little joy! We want to give every child and older person in the hospitals a gift to open on Christmas day, but we need your help. Your donation could buy a gift like the ones below to brighten up a patient’s Christmas.

What will you give?

£5

could buy a rattle to bring a smile to a baby’s face

£15 £100

could buy a cosy blanket to keep patients feeling snug during the colder winter months

could buy craft materials to bring creativity and fun to the ward 08

Christmas Appeal

HOW TO GIVE A GIFT: Visit bartscharity.org.uk/christmas Text GGIF18 £10 to 70070 Call 0207 618 1720

Your gift isn’t just for Christmas Anything we raise that’s over and above what’s needed for Christmas will help staff provide extraordinary care for young and old patients all year round.

£65 £250

could buy a portable DVD player to keep boredom at bay during long hospital stays

could provide a library of books for a ward to keep young and old minds stimulated

If you’d like to give an amount of your choice, that’s great too! Every donation counts – no matter how large or small.

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Supporter story

Tricia (holding the cheque) and her team presenting her donation to Renal Specialist Professor Magdi Yaqoob

Why I support Barts Charity Tricia and her family have been regular visitors of The Royal London’s Renal Department after several of them were diagnosed with the hereditary adult polycystic kidney disease.

“The first I knew of adult polycystic kidney disease (APKD) was when my father became ill in his early 50s and needed dialysis. He had a kidney transplant but after a year of complications he died aged 55 soon after my 21st birthday.

Renal Clinic at The Royal London and will require a transplant in the near future.

I’d been having check-ups for at least 15 years and last year it became evident that I would need a transplant too. I was very lucky to have offers of a donated kidney from my husband, Dean, and father-in-law, Frank, but when tested they unfortunately weren’t a match. My brother had also offered and luckily he was a good match.

Even then we didn’t realise the impact it would have on the family. We discovered that it was a hereditary genetic condition and when we were tested, my sisters, my cousin and I all had APKD. Over the years, Julie, Lorraine and my cousin, Lisa, had dialysis followed by successful transplants and my younger sister, Jane, is currently attending the 10

Tricia and her brother

Supporter story

Renal superstars The Renal team at The Royal London are amazing, offering friendly advice and reassurance when you need it. They have looked after us all extremely well and continue to do so. You are treated like you are part of a big family and you feel that you really matter even though they see hundreds of patients each week. The consultants, nurses, doctors and staff work incredibly hard and we think that they are all fantastic.

My transplant happened in March 2018.

My brother was able to leave hospital only three days after the operation and is doing really well. I was able to go home after six days but I’ve had a few setbacks.

My recovery from surgery has been good but your body is constantly trying to reject this new organ so you need to take antirejection drugs which for me has meant some side effects and complications like ongoing tiredness and breathlessness.

Charitable colleagues I’ve always enjoyed work and have worked since I left school back in the 1980s, taking only five months off work when I had my daughter Emilia in 2005. So I find it quite tough being away from my job in Canary Wharf. Luckily I have a fantastic team and I was able to leave my colleagues, Louise and Katy, in charge. The team wanted to do something to support a renal charity and Louise and Katy said, ‘Wouldn’t it be great if we can do something for such a worthy cause?’, and everyone was really happy and motivated to get involved with fundraising for the Renal Research team.

My team is spread over more than 20 offices across the UK so Louise and Katy organised a bit of friendly competition – London vs. Regional offices. Each office came up with ideas to fundraise during UK Kidney Week – from climbing Snowdon to walking over the O2

Tricia’s team about to climb Mount Snowdon

Arena to burlesque-acise! Everyone who took part was doing it in their own time and out of their own pocket, I was just absolutely blown away. I was completely overwhelmed and humbled to hear of the amount of support that the team wanted to give and amazed at all the different and inventive ways they wanted to raise money.

I can’t take any credit for the amazing amount of funds raised for renal research.

It’s my team who did all the hard work and fundraising, they raised over £11,000 for renal disease research at The Royal London. I hope that the money raised will go towards invaluable research to find solutions which will help others enjoy a healthier life and reduce the need for dialysis and transplants.

Tricia and her sisters Lorraine and Julie

A FAMILY OF FUNDRAISERS Tricia’s sister Julie has also raised over £11,000 for the Renal Research team over the years!

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Thank you

SUPER SUPPORTERS

Thank you to our incredible supporters, who make extraordinary care possible in the hospitals. From bake sales to fun runs, we’re blown away by your fundraising efforts! Here are a few recent superstars...

HANNAH

Ran the Just eight weeks before British 10k Hannah was due to have her first child, her husband Steve was diagnosed with leukaemia.

Thanks to the fantastic treatment he received at the Bodley Scott Oncology department, he was able to be there for the birth of his son.

Two years on, Hannah has just run the British 10k to thank the staff for making sure her husband got to welcome his child into the world.

£860

00

6 £17,

GARY

Gary fundraised for the Adult Critical Care Unit at The Royal London Hospital in memory of his son Tom. Along with the team at New Chapter, where Tom worked, and friends and family, Gary has raised over £17,000. Their huge donation means that the ACCU team can purchase equipment to help future patients who are critically ill, such as iPads and software to allow patients to communicate with their eyes if they are unable to speak.

Hannah (right)

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Thank you

CATRIONA Catriona, Quality Improvement Manager at Newham University Hospital and Barts Charity Champion, has been busy organising an array of brilliant bake sales. Staff recently put on a tasty spread of tempting cakes, with the money raised going back into supporting their hospital. Customers were also invited to donate by text to the Bake Club for a ‘virtual cake’ if they couldn’t be there in person. Well done Catriona – a fun and creative way to raise vital funds!

9-year-old Carwyn was due to celebrate his first Holy Communion, but the special event was postponed when his Mum was sadly diagnosed with breast cancer. When Carwyn later had a chance to have his Communion party, the generous schoolboy made his own charity box and asked everyone who came to donate instead of bringing him gifts. The money was given to the St Bartholomew’s Breast Assessment Centre where his Mum was looked after.

ANDREA

NUEUNG

Andrea is a consultant on the children’s Acorn Ward at Whipps Cross Hospital.

She organised a fun run from the hospital to the local pub to raise money to refurbish one of the spaces on the ward. The funds will transform the space into a comfortable and welcoming cubicle for children needing treatment, transfusions and chemotherapy.

£ CARWYN

£1,150

A visit to the optician to repair his broken glasses took a frightening turn for Nueung, when the optician discovered he had swollen optic nerves caused by cancerous tumours. After a referral to Newham Hospital, he was treated at The Royal London and St Bartholomew’s.

Nueung was the first person to use Facebook’s birthday fundraising tool to support Barts Charity and say thank you to the doctors and nurses who helped him recover.

FEELING INSPIRED?

Visit bartscharity.org.uk/getinvolved to find out how you could make a difference too!

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Trauma

What is trauma?

Trauma is physical injury to the body.

Common causes of trauma are:

Violence

Road accidents

Falls from height

For every death from trauma, Trauma kills

46 people

in the UK every day

2X

3-4 people survive with

life-limiting

conditions like disabilities

Funding for research and innovation has helped to double trauma

North East London is set for a

in the last five years in London alone

in trauma in the next 10 years

survival rates

40% increase

Help us raise £1 million to reduce death and disability from serious injury. We’re supporting trauma research and care at The Royal London Hospital and its research partner the Centre for Trauma Sciences

How you can help Text TRMA24 £5 to 70070 Visit bartscharity.org.uk/trauma Spread the word on social media 14

2018

2028

Trauma

Life on the Trauma Ward The Royal London Hospital is one of the UK’s busiest Trauma Centres, seeing over 3000 trauma patients every year.

specialists, therapists, youth violence workers and charities all coming together to help people.

Bex Boxall is a Trauma Nurse Co-ordinator who works as part of the AfterTrauma team. Formed of three trauma nurse coordinators and two trauma rehabilitation coordinators with backgrounds in trauma care, the team supports patients across the whole hospital who have been brought in with serious injuries.

What’s the most challenging part of the role?

It’s the team’s job to be the single point of contact for trauma patients and their relatives from admission to discharge.

What’s special about The Royal London Hospital’s trauma treatment?

The care that patients get here is amazing.

The hospital is so well-adapted and in tune with receiving trauma patients, making it slick and safe. With the addition of our AfterTrauma team, we hope that safe and streamlined care is continued throughout the patient journey. The trauma consultants are brilliant, dynamic and great to work with, and the huge volumes of trauma that they see here makes them experts in what they do. The specific trauma ward is fantastically run with a brilliant ward manager, and we know that the nurses working there understand the complexities of our patients.

For me, the most challenging part of the role is that I am still fairly new to London and establishing what services are available and suitable for my patients can be hard! Every day we are learning about new teams and services who are willing to offer help for patients.

What character traits do you need to be a Trauma Nurse Coordinator?

You need to have a good sense of humour, be non-judgemental, caring, a good problem solver and most importantly a good communicator.

What do you enjoy most?

I love meeting a range of patients and families and being with them from the start of their journey all the way through to discharge and recovery. I enjoy working with such a range of people from nurse

Bex has recently used our funding to introduce a trauma patient passport to the ward. See more at bartscharity.org.uk/traumapassport 15

Get involved

FUNDRAISE FOR US RU N Santa Run 2nd December 2018 5k or 10k

Big Half Marathon

Hackney Half Marathon May 2019

British 10k July 2019

March 2019

London Marathon April 2019

16

Royal Parks Half Marathon October 2019 Ballot opens early 2019

Did you ge place in t a the London Marath on ballot?

Ru Barts C n for harity!

Get involved

B I KE London to Brighton Cycle September 2019

London to Paris Cycle Various dates

Prefer so physica mething less mornin l? From coffe we’ll su gs to quiz ni e gh p of the port you eve ts, way! G ry step e your fu t in touch fo r n draisin toolkit g t bartsch oday or visit ar

fundra ity.org.uk/ isingto olkit

TREK Three Peaks Trek September 2019

Machu Picchu Tre

k

May or October 20

19

Sign up at bartscharity.org.uk/getinvolved 17

Where your money goes

How your donation could help… £5

could pay for a gift for a patient in hospital at Christmas.

Last Christmas, over 2,700 patients received a gift to keep the festive season magical.

THU

1

DEC 2018

£25

could pay for a dementia-friendly clock in the older people’s wards.

To make hospital less disorientating, the clocks say the date and year, with high contrast yellow faces and bold lettering to help sight-impaired patients.

£10

could pay for a family to attend an Eye Club session.

For young children with the rare eye cancer retinoblastoma, Eye Club is a place for them to make friends and teach them how to look after their artificial eyes.

£50

could pay for physiotherapy equipment to rebuild mobility.

Resistance bands allow patients to slowly build up their strength as they pull against them, rehabilitating injuries, improving mobility and increasing strength.

£100

could pay for a therapeutic art session for patients living with cancer.

Art therapy has been shown to reduce anxiety for patients going through a very stressful time in their lives.

DID YOU KNOW?

You can now set up a monthly direct debit for Barts Charity, to support patients throughout the year! Visit bartscharity.org.uk/donate 18

Help support extraordinary healthcare

Your support could transform somebody’s life Text EXTR55 £5 to 70070 to donate with your mobile phone.

Please tell us how you would like to stay in touch overleaf

1 Your donation I would like to donate £ so current and future patients can benefit from the very best research, equipment and care.

My donation is in memory of

2 Your details Title

First name

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Home address Postcode Email

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3 Payment details □ I enclose a cheque

(please make cheques payable to Barts Charity, and please don’t send cash in the post) □ Please charge my debit card/credit card Name on card Card number Issue number

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□ I would like to make a regular donation. Please send me a direct debit form.

4 Gift Aid Boost your donation by 25p for every £1 you donate – at no extra cost to you. □ I’d like to Gift Aid my donation and any donations I make in the future or have made in the past four years to Barts Charity.

Signature I am a UK taxpayer and understand that if I pay less Income Tax and/or Capital Gains Tax than the amount of Gift Aid claimed on all my donations in that tax year, it is my responsibility to pay any difference.

Date

DD / MM / YYYY

Gift Aid information: Gift Aid is reclaimed by the charity from the tax you pay for the current tax year (6 April to 5 April). For every £1 you donate Barts Charity can claim 25p from HMRC. Your address is needed to identify you as a current UK taxpayer. Please notify Barts Charity if you: want to cancel your declaration, change your name or home address, no longer pay sufficient tax on your income and/or capital gains.

Please return this form to us at: Barts Charity, 12 Cock Lane, London EC1A 9BU Registered charity no. 212563

Help support extraordinary healthcare

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