Getting Out There - 2021-22

2021-22

Promoting Abilities

Supporting residents

Getting Out There

Accessible services and facilities

Advisory groups

CitySafe

Library services

Parking & mobility

Whangarei District Council has three Advisory Groups that meet monthly: • Disability Advisory Group (DAG) • Positive Ageing Advisory Group (PAAG) • Youth Advisory Group (YAG).

The purpose of these groups is to provide Council with advice about policies, plans and projects from the perspectives of the community sectors they represent. Accessibility for everyone is a key priority for both the Disability and Positive Ageing Advisory Groups.

Inclusion for all young people is one of the key focuses for the Youth Advisory Group.

CitySafe is a collaborative project between Council, the New Zealand Police, and NorthChamber aimed at ensuring a safer and accessible city.

The 0800 258 258 CitySafe toll free number enables people to report safety problems such as graffiti, broken or damaged streetlights, damaged footpaths and trip hazards, bikes in the mall, skateboarders in the CBD or people behaving in an unsafe way. Our friendly CitySafe Community Officers patrol the inner city 7 days a week and, along with the monitored CCTV camera network, are the eyes and ears for public safety. For more information visit www.CitySafe.co.nz

• Large Print • eBooks, eMagazines and eAudiobooks online • Half price rentals on Tuesdays for the over 65s • Hobby groups: Library Craft Group, Creative Colouring-In for Grown-Ups, Flash Fiction and Scrabble 500 Club • Family history research • Book a Librarian for personalised help with using library online services • Book Out home delivery service • Free Stepping Up computer classes.

• 70+ parking fee exemption • Mobility parking • Disability Working Parking Permit • Free about town mobility equipment.

For more information

Whangarei District Council Forum North, Rust Ave, Whangārei P: 09 430 4200 or 0800 932 463 E: mailroom@wdc.govt.nz W: www.wdc.govt.nz

www.wdc.govt.nz Council’s website contains a feature called BrowseAloud. This is a free programme that ‘speaks’ web pages or translates into multiple languages for people with dyslexia, lowliteracy, English as a second language, and those with mild visual impairments.

2021-22

Promoting Abilities

Promoting Abilities

Contents 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23

Published by NZME Northland in conjunction with the Tiaho Trust.

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Our aim is to provide an environment where we are responsive, that people feel included, and supportive of people with intellectual disabilities to feel empowered with the choices they make in their lives.

Our services are focused on the person to ensure they have a great life.

Tiaho Trust Vanassa McGoldrick Alzheimers Northland Alzheimers Northland – Aleisha Dobson Arthritis Arthritis – Whangarei 20 plus support group Life without limits is the aim of Blind Low Vision NZ Blind Low Vision NZ – Graham Scahill The Brain Injury Association The Brain Injury Association – Veronique Theberge CCS Disability Action CCS Disability Action – Aaron Ussher Deaf Aotearoa Deaf Aotearoa – Sweetie Northland Down Syndrome Support Group Charitable Trust Northland Down Syndrome Support Group – Miranda Shackell & Taonga Epilepsy Support Group Epilepsy Support Group – We are a Team Huntington’s Disease Association Huntington’s Disease Association – Hooryah Asif Muscular Dystrophy Muscular Dystrophy – It’s really the only thing MND New Zealand MND New Zealand - What is MND? Northland MS Society Northland MS Society – Promoting Abilities

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NorthAble – Matapuna Hauora NorthAble – Torrin Hona Parent to Parent Northland Parent to Parent Northland – Special voyage for special siblings Parkinson’s New Zealand Parkinson’s New Zealand – Keep Moving Stroke Foundation NZ – Supporting life after stroke in Northland Stroke Foundation NZ – Monique Pourewa Parafed Northland – Growing inclusive Sport in Northland Volunteering Northland TLC4U2 – In Home Care Provider Citizens Advice Bureau Whangarei Blomfield School – play is the way!

Forget Me Not The Miriam Centre Special Olympics Whangarei By the athletes – for the athletes More than just sports Come & visit us at The Papermill!

Halberg Foundation – providing inclusive opportunities for all Age Concern Whangarei Services NorthTec – Take the step to work with people facing challenges in life Rhonda’s NorthTec journey grows confidence and capability Cancer Society - Awhi mai, awhi atu

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Welcome to the Whangarei RDA 2021-2022 Calendar of Events 2021-2022 Calendar of Events

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These include: Supported Living: We support people in their daily living, to participate in their community and take control of their own life and make their own decision. Stuart Jenkins states “

Or call Sally Hume Area Manager on 09 470 2008 or 027 223 8335

Information & Services

June 2021 Edition 13

Relating to disability in Northland Linking people, families and carers living with a disability to information, advice and support in their community.

Visit www.tiaho.org.nz/support find out more about what services these organisations provide in Northland.

In Northland, there are a range of organisations providing a Disability Information Advisory Service.

These are known as the ‘Northland DIAS Collective’.

Tiaho Trust supports these organisations by helping to improve the access to and utilization of their information and services in Northland for you and your families/whanau. Tiaho Trust is your first point of call if you are unsure who to contact or have any questions, call us on: FREEPHONE: 0800 430 3406.

The DIAS Collective provides various services about a specific disability, or disability in general, such as: • • • • •

Advice and information Advocacy Community education and awareness Support groups and networking Home visits

• • • • •

Access to health professionals Referrals and assessments Equipment Seminars/workshops Resources

Together, Tiaho Trust and the DIAS Collective, empower the Northland community by promoting the disabled community as valued citizens who contribute, participate and add to the diversity of New Zealand society.

For DIAS contact details please refer overleaf

Information & Services

Relating to disability in Northland A Tiaho Trust Project Your A - Z directory of disability support providers: Alzheimer’s www.tiaho.org.nz/alzheimers 148 Corks Road, PO Box 7027, Tikipunga, Whangarei 0144 0800 004 001 Whangarei (09) 438 7771 Dargaville 022 691 6068 Kerikeri (09) 407 3010 Kaitaia (09) 408 1123 northland@alzheimers.org.nz www.alzheimersnorthland.org.nz Arthritis New Zealand www.tiaho.org.nz/arthritis Unit B, 383 Khyber Pass Road, Newmarket, Auckland Freephone: 0800 663 463 info@arthritis.org.nz www.arthritis.org.nz Blind Low Vision NZ www.tiaho.org.nz/blind_foundation 277 Kamo Road, Whangarei Phone: (09) 437 1199 Freephone: 0800 243 333 info@blindlowvision.org.nz www.blindlowvision.org.nz Brain Injury Association www.tiaho.org.nz/brain_injury 98 Cairnfeild Road, Otangarei PO Box 4001, Kamo, Whangarei Phone: (09) 459 5013 northland@brain-injury.org.nz www.brain-injury.org.nz CCS Disability Action www.tiaho.org.nz/ccs 291 Kamo Road, Whangarei PO Box 8035, Kensington, Whangarei Phone: (09) 437 1899 Fax: (09) 437 0209 Freephone: 0800 227 2255 Northland@ccsDisabilityAction.org.nz www.ccsDisabilityAction.org.nz

Deaf Aotearoa Northland www.tiaho.org.nz/deaf_aotearoa 1A Deveron Street Phone: 0800 332 322 national@deaf.org.nz www.deaf.org.nz Down Syndrome Support Group www.tiaho.org.nz/down_syndrome Kara Road, RD 9, Whangarei Phone: (09) 434 6723 Freephone: 0800 693 724 national.coordinator@nzdsa.org.nz www.nzdsa.org.nz Epilepsy Northland www.tiaho.org.nz/epilepsy Civic Arcade, Level 1 37-41 Bank Street, Whangarei PO Box 1074, Waikato Mail Centre, Hamilton 3240 Phone: (09) 438 5498 Freephone: 0800 374 537 northland@epilepsy.org.nz www.epilepsy.org.nz Huntington’s www.tiaho.org.nz/huntingtons PO Box 16181, Sandringham Auckland 1351 Phone: (09) 815 9703 Freephone: 0800 432 825 huntingtonsakld@xtra.co.nz www.hdauckland.org.nz Motor Neurone Disease www.tiaho.org.nz/mnda Yarnton House, 14 Erson Ave, Royal Oak, Auckland PO Box 24036, Auckland 1345 Phone: (09) 624 2148 Mobile: 027 202 8166 teamldr@mnda.org.nz www.mnda.org.nz Multiple Sclerosis Northland www.tiaho.org.nz/ms Suite 6, 71 Bank Street, Whangarei Phone: (09) 438 3945 Mobile: 027 539 9883 nthlndms@xtra.co.nz www.msnz.org.nz

Muscular Dystrophy Assoc NZ www.tiaho.org.nz/muscular P.O.Box 300429, Albany 0800 636 787 Phone: 09 415 5682 Mob: 021 824 018 info@mda.org.nz www.mda.org.nz NorthAble www.tiaho.org.nz/northable 40 John Street, Whangarei Freephone: 0508 637 200 northable@northable.org.nz www.northable.org.nz Equipment Showroom: 73 John Street, Whangarei (09) 430 3469 www.equipmentplus.org.nz LYNKZ: (09) 430 3470 42 John Street, Whangarei Parent to Parent Northland www.tiaho.org.nz/parent2parent Mob: 027 808 3942 Freephone: 0508 236 236 northland@parent2parent.org.nz www.parent2parent.org.nz Parkinson’s Northland www.tiaho.org.nz/parkinsons PO Box 11067 Manners St, Wellington 6142 Freephone: 0800 473 4636 info@parkinsons.org.nz www.parkinsons.org.nz Stroke Foundation www.tiaho.org.nz/stroke Whangarei & Districts Freephone: 0800 459 954 northland@stroke.org.nz Mid North/Far North Freephone: 0800 566 383 far.north@stroke.org.nz www.stroke.org.nz

Promoting Abilities

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Tiaho Trust

E

ach year Tiaho Trust produce this magazine ‘Getting Out There’ to highlight what disability services are available throughout Northland. Not only do we profile 15 disability support organisations but we also provide stories about people who use their services. This year our magazine theme is “Promoting Abilities” showcasing people with a disability in Northland. According to Stats NZ, only 22.5 per cent of disabled New Zealanders are employed, compared to 69.3 per cent of non-disabled. This is a statistic we wish to alter in Northland.

In New Zealand being employed or providing voluntary services is how individuals are recognised for their contributions to society. In order for disabled people to be valued, included and participating employment is hugely important.

This year we will also be hosting the Getting Out There EXPO using the same theme with a slight twist. The “Promoting Abilities” will also have a focus on the benefits of employing disabled people, employment opportunities, training providers, celebrating employer disability friendly environments from our local businesses. The EXPO will be on the 20th August from 10am – 4pm at Forum North.

Tiaho Trust offers free independent advocacy services to disabled people or their family members. If disabled people or their family members feel like you’re being treated unfairly because of your disability or you feel

with lived experience of disabilities to deliver this training using examples of their own lives to educates organisations on how to deliver excellent customer service to the large disability market segment in our community.

We can also provide training for Health Professionals which in 2019 was endorsed by the Royal New Zealand College of General Practitioners (RNZCGP). Training can be tailor made on request.

We also conduct Accessibility Audits for organisations who would like to make their services Accessible and welcoming to everyone.

Tiaho Trust is a disabled led organisation that is proactive in providing advice, education and training to develop communities that are inclusive of disabled people and who value their contribution to the community of Northland.

you aren’t getting the supports or services you are entitled to, contact Tiaho Trust.

Tiaho Trust endeavours to make our community more inclusive and user friendly to disabled people by providing their “No Problem, You’re Welcome” Disability Awareness Customer Service Training to a variety of organisations. We utilise facilitators

Tiaho Trust Ground Floor Tai Tokerau Maori Trust Board Building 3 - 5 Hunt Street PO Box 374, Whangarei Phone 09 430 3406 Freephone 0800 430 3406 Email info@tiaho.org.nz Web www.tiaho.org.nz Facebook Tiaho Trust - Disability A Matter of Perception

WHEN:

Friday 3rd December 2020 10am-2pm WHERE:

Riverbank Theatre, Reyburn House Lane

For more information: 0800 430 3406

Promoting Abilities

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Vanassa McGoldrick

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s CEO of Tiaho Trust I interviewed Vanassa McGoldrick. I have known her for over 20 years and remembered the first time seeing her when I was 12 years old. We were both getting on the same plane (we both had a disability) and she gave me a charming smile. She has also been a Chairperson of Tiaho Trust.

I started by asking her what her impairment was. She replied “it’s called Nail-patella Syndrome an extremely rare condition. To my knowledge I was the first person born with it in New Zealand. It affects your kneecaps, some people are born with partial, deformed or no kneecaps, abnormal finger or toe nails, and this is a definite indicator that you have the gene. I was born with no kneecaps or cartilages, no quadriceps muscles in my thighs, which meant that without these, I couldn’t walk.”

Her parents first advice from doctors was to amputate her legs as she would not be able to walk. Her parents didn’t agree with that advice and sought specialist advice in England.

Various surgeries were performed in England and New Zealand over the years and she is still walking.

I asked about her career, I remember her once saying that her parents encouraged her when quite young to becoming the typist from hell. She started the rendition of her vocational journey “I was 16 when I wanted to become a lawyer and was at high school where I was told that there were no Accessible

Universities in New Zealand. Therefore my chances of pursuing that career were zero. I was told forget the dream of going to University and being a lawyer, learn to type.

So, I thought if that is all that I could be then I would be THE BEST typist.

Vanassa was a Stenographer for 3 years at the Whangarei District Courthouse and when she was 21 years old, she took her 130 words per minute skills to London. She said she didn’t have a problem getting employment.

“It was about my skills not my crutches. Most

employers when they look at you turning up at an interview all they see is the disability so it is important that you can prove you are better than anyone else for the position”.

On her return to New Zealand her desire to be a lawyer never went away, so she trained as a Legal Executive doing papers via correspondence on property, estates and litigation.

Vanassa did Legal Executive work for 20 years including working for Henderson Reeves who supported her her dream of being a lawyer. Mark Hennigan from the Law Faculty at Otago University agreed to help by allowing her to work from a distance for the majority of the law degree. This was not possible at any University at the time. All she needed was someone to tape the lectures and send them to her, which was what they did. In her first year she passed one exam with over 90%.

She achieved her law degree and in 2012 was admitted to the Bar, while still working 30 hours per week at Henderson & Reeves.

Vanassa opened her own law firm in July 2019 specialising in family law, with a particular passion for helping those who need legal aid. Each year she runs a Will Special and donates money to local charities. For the past 2 years she has supported the Miriam Centre – this year it will be Hospice – so watch out for her will special in July this year with wills at half price.

Vanassa has gone from a typist from hell to a lawyer from heaven.

MCGoldrick Law We specialise in Family Law, dealing with Care of Children matters, Family Violence and Relationship Property. We can also sort out your will and powers of attorney for property and personal care and welfare.

In situations where a loved one has lost mental capacity and there is an urgent need to place them in a resthome or deal with their property, we can assist you with the court applications. We also assist with disability law and ACC claims.

Come and see our friendly team for all of your family legal needs.

You can contact us on 09 438 4999. Our offices are located at 8/58 Bank Street (in the arcade between the Quest Apartments on Bank Street and the back of Farmers).

Promoting Abilities

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Alzheimers Northland

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lzheimers Northland supports people with all forms of dementia. Advisers are based in communities throughout Northland to provide a long-term point of support.

General Manager Kevin Salmon said support is often needed for many years.

The organisation offers one-to-one support over the phone and in person, offering expertise, practical knowledge and support.

There are also support groups for carers, where they can share experiences and gain strength in the knowledge they are not alone.

Home carer seminars also help to give caregivers, who are often spouses, further understanding of dementia and tools for

Kevin Salmon

coping with everyday challenges.

Day programmes are popular, providing a safe, fun and stimulating environment for the person with dementia as well as giving the full-time carers a much-needed regular break. Once clients have been approved by the District Health Board, sessions are provided free and transport can be arranged.

Social activities include sing-alongs, music therapy, baking and cooking, apple peeling, soup making, science experiments and craft projects.

Activities often involve nostalgia as clients can often recall memories from long ago rather than short-term.

Staff also promote and encourage clients to maintain familiar skills, independence and selfworth by assisting with staff helping set tables for meals, folding washing, drying dishes, helping clean up after lunch, maintaining the vegetable garden, setting up activities and in some cases assisting staff with leading an activity.

Alzheimers Northland also offers education sessions for professional care providers, community groups and businesses that want to be more helpful to people with dementia.

The one-day courses, called Understanding Dementia, are held in different areas of Northland, and sessions provide opportunities for discussion, interactive exercises and printed resources.

Aleisha & David celebrating St Paddy’s Day

Alzheimers Society Northland Inc Address Whangarei Office, 112 Corks Road, Tikipunga, Whangarei Postal PO Box 7027, Tikipunga, Whangarei 0112 Phone 09 438 7771 or 0800 004 001 Email northland@alzheimers.org.nz Web www.alzheimersnorthland.org.nz

Alternative Care Northland QUALITY IN HOME NURSING CARE

Respite Care Nursing Care in your own home Other services offered:

(Carer Support Forms accepted)

• Daycare • Personal Care • Home Care • Transport to appointments • Shopping

Phone Donna today 021 774 586 alternativecare.northland@gmail.com

SEE PAGE 59 FOR FULL DETAILS

Promoting Abilities

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Alzheimers Northland

Aleisha Dobson

R

eminiscing is an important part of helping Alzheimers Northland clients to be the best that they can be.

For Aleisha Dobson, running the Day Programme is an important part of the work of the organisation.

Alzheimers Northland holds Day Programmes to provide a safe, fun and stimulating environment for the person with dementia while giving full-time carers a muchneeded regular break.

Aleisha, who is a diversional therapist, says the most important part is for the people with dementia to have social interaction and engagement with others, but equally important for the carers.

“The benefits work for both sides,’’ she says.

The weekly programmes are held in Whangarei from Monday to Saturday at their purpose-built building in Tikipunga. They also host groups in Waipu on Tuesdays and Fridays and Paihia on Thursdays. Sessions are from 10am to 3pm.

“Our programme caters for people at different stages in their dementia, from moderate to further down their journey.’’

Aleisha says short-term memory is often the area most dementia clients struggle with, so the programme aims to cover a range of stimulating activities.

Cognitive activities are a key focus within the programme, consisting of word games, board games, cards and puzzles.

Staff supporting Theme day – Aleisha is the Cat in the Hat

“We have regular creative writing sessions and reminiscing therapy. A simple discussion on a topic can get clients interacting and recalling memories.

“We’ll set a topic of discussion on different themes to try and jog their memories which often come from far back in their lives.

“It might be what type of car they learnt to drive in, who taught them how to drive, which often brings out a lot of discussion, especially among the guys.’’

The men’s group also really enjoyed the visit from the Northland Classic Car club in December.

There are many physical and social activities incorporated into each day.

KINDHANDS

is a purpose-built cottage, offering respite care and Early Childhood Education for children who have a disability and/or are medically fragile and/or are technology dependent within Northland.

19 Morningside Road, Morningside Whangarei, 0110 Ph: 09 4597383 Mobile: 0212341294 Email: info@kindhands.co.nz

“If we can’t get our clients out into the community then we like to bring the community here, so we have a range of visitors.

For example, the chaplain comes regularly, we have local entertainers and guest speakers and even pet therapy.”

Physical activities include mini golf, Sit Fit exercises, Tai Chi, pool, bowls, dance and balloon volleyball and many more.

“We modify our activities and games to be realistic and achievable for all.’’

“We all have such a passion for what we do and it’s so rewarding to see our clients leave at the end of the day in great spirits and looking forward to coming back again.”

WESTECH AUTOMOTIVE Proudly supporting Alzheimers Northland

All Automotive Computerised Systems European Specialists Robert Street, Whangarei • Ph 459 6670 www.westechautomotive.co.nz

Promoting Abilities

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Arthritis

A leading cause of disability

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rthritis is a painful and debilitating condition for anyone but for those who are trying to earn a living the difficulties can be even greater.

They may have problems getting time off work to go to specialist appointments. Workers may have to use up all their sick leave or take leave without pay when coping with a ‘flare’.

Sometimes it’s the physical demands of the work itself (standing or lifting) that are difficult.

Or it may be the negative perceptions of work colleagues that add to the stress.

On the other hand, flexible hours, modified equipment, understanding colleagues and managers who take a positive lead can go a long way towards making sure that workplaces are accessible and welcoming for people with arthritis.

At least 700,000 New Zealanders are affected by arthritis and 49 percent of those are of working age. Musculoskeletal disorders

like arthritis are among the leading causes of disability and represent a huge financial burden to the New Zealand health system and the economy.

Arthritis New Zealand provides information and support for people with all forms of arthritis, at any age. While there is no cure, most people can live fulfilling and productive lives with early intervention, good treatment and self-management tools.

We also advocate for all those affected by arthritis, including families, and provide training for health professionals through workshops and seminars.

Arthritis educators are available on 0800 663 463 during business hours to give advice on treatments, pain management, employment issues and access to other support services.

During the last year we have developed more online and digital services, including Zoom Cafés, more Webinars, online courses and the

recently launched MyJointPainNZ website that helps people with osteoarthritis manage their condition. We are also developing a ChatBot for our website as well as rolling out the Peer Support programme which links people with trained volunteers who also have a similar diagnosis, to offer support to people needing such support.

There is an active arthritis support group in Whangarei and water-based exercise classes are run independently at the Aquatic Centre.

Contact Arthritis New Zealand Phone 0800 663 463 Website www.arthritis.org.nz Visit our Facebook page Email info@arthritis.org.nz

Promoting Abilities

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Whangarei 20 plus support group

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group for people of all ages with any form of arthritis. That’s the purpose of this support group for people with arthritis who live in Whangarei.

The name says it all and reflects that arthritis affects all ages. It is not a condition that only affects the elderly. It can affect those in their 20s as much as those in their 70s. In fact, in New Zealand, half of the people who have arthritis are of working age. Children and teenagers can also have arthritis.

Arthritis is a major health issue and a leading cause of disability that costs the country $12 billion every year (figure from 2018). It’s not “just a bit of arthritis” as we hear all too often – it is a serious and painful condition that can be debilitating and cause significant disability for those suffering from it.

There are more than 140 different forms of arthritis; the most common in New Zealand are osteoarthritis, gout arthritis and rheumatoid arthritis.

One of the best ways to support people with arthritis is to connect them with others who are experiencing the same pressures and challenges, and that is why the 20plus group in Whangarei is such a success. The group’s focus is to provide support and share experiences not just the problems but also the successes and achievements of members.

This sharing can cover a range of issues and challenges, and members benefit significantly from the experience of others and the

information the group can provide. Discussion is stimulating and can be controversial as members share their coping mechanisms and the barriers they are working to demolish.

Discussions can range from accessing medicinal cannabis, healthcare services in Whangarei, home support services to useful equipment that helps make life a little easier for people with arthritis.

Another important part of the group is sharing the circumstances and pressures people feel in managing everyday life and

family. Members find this sharing such a beneficial feature of the group- members have a wide range of experience and expertise and know the local community very well.

Everybody is welcome to come along to the group, which meets on the first Saturday of the month at the Nazarene Church on the corner of Nixon and Princes Streets. You can be assured of a warm welcome and an excellent opportunity to meet others with arthritis and learn from them.

Safeguarding your Future

Enduring Powers of Attorney (“EPAs”) allow you to decide who looks after your property and welfare if you lose the ability to do it yourself.

Our firm offers Will and EPA package deals at competitive prices.

Contact our wills and EPA specialist Cass Hayward today for a friendly chat.

Contact us for further details 7 Maunu Road, Whangarei

P (09) 437 3070 | F (09) 437 2070

Email: info@malawyers.co.nz | www.malawyers.co.nz

Promoting Abilities

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Life without limits is the aim of

Blind Low Vision NZ

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very day, an average of six New Zealanders turn to Blind Low Vision NZ for support with sight loss.

The organisation advocates for accessible and inclusive communities because we believe people with sight loss should be able to get around public spaces like any other member of the community, access the same information, and pursue the career of their dreams without unnecessary barriers. Age-related eye conditions in New Zealand are rising as our population ages so we also want New Zealand to do better at taking eye health seriously.

The four most common eye diseases causing blindness and partial sight are age-related macular degeneration, diabetic retinopathy, glaucoma and cataracts. Blind Low Vision NZ help people who have limited useful sight, making it challenging to do some day-to-day tasks even with the best corrective lenses.

Three quarters of the people they help have

Kerry Greenfield

Ming Ming Edgar

some vision (which they call low vision), and the remainder are blind.

Blind Low Vision NZ are New Zealand’s leading provider of vision rehabilitation, providing practical and emotional support for people with vision loss. Our vision rehabilitation services are personalised to meet

your individual needs and goals, however big or small. Clients can register online or over the phone to gain access to a wide range of support and resources.

Blind Low Vision offer cultural support for Māori and Pacific clients and their whānau, community and friends, as well as services to help businesses and educational institutions cater for a blind employee or student. Some clients experience dual sensory loss so deafblind services are also available anywhere in New Zealand.

Blind Low Vision has an extensive library, with collections and services including the BookLink digital lending and reading service.

Help with daily life and travelling around the community is an important service, including training with a cane or guide dog on public or private transport. Blind Low Vision also provide advice on making the most of technology to help with independence.

If you have any questions, call our team on 0800 24 33 33 or email generalenquiries@ blindlowvision.org.nz.

You will find us at: 277 Kamo Road, Whangarei Phone 09 437 1199 Office hours Monday, Tuesday, Thursday and Friday 9am to 2pm.

Website www.blindlowvision.org.nz

Emily Henderson MP for Whangārei

For enquiries about government policy through to taking up casess on behalf of constituents, my electorate office can provide information, advice, support and assistance for a wide variety of issues.

Get in touch: (09) 430 7922 | Emily.HendersonMP@parliament.govt.nz 66a Bank St, Whangārei /EmilyHendersonMP Authorised by Dr Em mily Henderson MP, Parliament Buildings, Wellington

Promoting Abilities

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Graham Scahill

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raham Scahill has never let a lifetime of low vision hold him back. Born with congenital cataracts, Graham did his schooling with the Blind Foundation, now known as Blind Low Vision NZ. He says the organisation’s new name better reflects the huge range of vision impairment among people.

“The organisation looks after people with partial sight right up to total blindness. It affects a lot of people at some stage in their lives.

“I have a reasonable amount of sight, enough to be able to see shapes. My wife has a twin sister which has caused some interesting situations,’’ he says with a chuckle.

This allowed him to have a career working as a telephone switchboard operator for the Housing Corporation and later for the Ministry of Works.

“I had to remember 200 numbers on the switchboard and later 300, all of which had cords to make the connections.’’

He also operated the ministry’s early radio telephone network, mostly in the Auckland region.

He retired in the 1980s and moved to Whangarei in 1999, to be close to their son who is totally blind.

Graham says he can read “although I might get a black nose from holding the newspaper so close to be able to see the print”.

With his late wife, Janette, who was totally blind and deaf, Graham was heavily involved in support organisations which involved a lot of

travel, in New Zealand and overseas. Janette had a guide dog but didn’t take the dog while travelling overseas so Graham became her “guide dog”.

Following her death in 2006, Graham eventually got in touch with an old friend, Gaylene, who is now his wife.

They have continued to be involved in supporting and fundraising for Blind Low Vision and the Cancer Society.

Graham’s passion is sailing, and he loved being involved in Blind Sailing, where race participants are guided by audio buoys and indicators on the boats help the sailors to judge distances and angles. Sighted people

ARE OUR FOCUS • Ophthalmic Eye Examinations • Cataract Extraction and lens implant • Pterygium Excision plus conjunctive graft • Injection for wet age related Macular Degeneration • Glaucoma treatment • Cataract surgery

FOR ALL DISEASES OF THE EYE

are included in the crew, only to assist in emergencies.

He was particularly proud to have been able to take the helm of one of the original America’s Cup racing yachts and “got up to 35 knots”.

Now 90, Graham and his wife enjoy regular exercise and walks on the beach when they are able.

The Covid-19 lockdown was particularly difficult, he says.

“That slowed us down when we couldn’t go out much. But we continue to do as much as we can.’’

EYE CENTRE WE ALS CONSU O LT IN KERIKE RI

PRIMECARE Eye Specialists:

David Dalziel and Andrew Watts Phone: 09-972 7022 12 Kensington Ave, Whangarei Email: pceyes@xtra.co.nz Website: www.bit.do/EyeCentre

Help is only a phone call away 0800 11 0030

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The Brain Injury Association Our Mission:

To provide direction, choice and independence to those affected with brain injury.

Our Vision:

To listen, support and educate.

Our Purpose:

Providing a voice, community focused, professional service.

B

rain injury is the biggest disability in the world and one of the most misunderstood due to its complexity. It is the leading cause of death and disability in New Zealand.

No one is immune and your life can change forever in a minute.

For Vikki Herdman and Kevin Anderson, who work as liaison officers for Brain Injury Northland, the role is both challenging and rewarding.

The organisation supports all types of brain injuries, from trauma, including crashes and

assaults, and acquired, which includes tumours, stroke, encephalitis and many more.

Brain injuries are known as the invisible injury and the silent epidemic due to the fact that there is an injury every 15 minutes, Vikki says.

“People think the person looks OK but they are not.

“Their friends and family often say, ‘this is not the same person’ or ‘this is not the person I married’. This is why we also support the families, friends and work colleagues on this often roller coaster journey,’’ she says.

Families and spouses have to adjust to living with someone who may not resemble the person they married. It can be a huge strain dealing with changes in personality, extreme fatigue, short tempers, memory loss and depression, loss of work and their role in the world they knew before their injury.

The Brain Injury Association provides a safe, barrier-free service to support and assist people in navigating the path to recovery from an injury.

“Everyone is affected in different ways and recovery can take many months and sometimes years. Nobody gets ‘discharged’.

We are here for the long haul, clients come and go, sometimes returning after years just to reconnect.’’

There are four support groups a month in Kerikeri, Dargaville, Kaitaia and Whangarei.

The association supports clients to attend appointments and liaise with the services they require. It is also involved with injury prevention and safety education.

Contact details: Address 98 Cairnfield Road, Whangarei Postal Po Box 4001, Kamo.

Phone 09 459 5013 Email northland@brain-injury.org.nz Web www.brain-injury.org.nz Vikki Herdman – 3rd from left

Age Concern Kaitaia & District

Working together to promote quality of life for older people, kuia and kaumatua WE OFFER A FREE CONFIDENTIAL SERVICE

We work with older people, their family/whanau and their carers so that they can receive the information, support and advocacy they need to be happy, healthy and safe.

Elder Abuse Response Service – for all of Northland Far North District Office: 16 Commerce Street, Kaitaia Tel: 09 408 2997 • ageconcernkta@xtra.co.nz

Whangarei District Office: Kaipara District Office: 98 Cairnfield Road, Otangarei 61 Victoria Street, Dargaville Tel: 09 459 1928 or 027 598 5376 Tel: 027 598 5376

Promoting Abilities

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Veronique Theberge

M

y brain injury was acquired following a brain infection called viral Meningoencephalitis in August 2017.

The infection had the effect of destroying neurons and neuro pathways which resulted in an Acquired Brain injury (ABI). Since then, life as it was has been flipped inside out. I am operating with a new normal and a “new me”.

To this day, I still have to plan and manage my situation daily and adhere to strict fatigue management practices to avoid having my brain batteries dropping too low and triggering an avalanche of weird and not so wonderful things.

Neuro fatigue, all aspects of cognition, balance, vision, sensory overload, coordination, mental health and general stamina have all been affected by the ABI. I’ve always been an active person and keen to push the limits of what my body and mind could achieve. I think that’s why I’ve always loved Endurance sport. With Endurance sport, success comes through staying focused, pushing through and finding the mental strength that you didn’t think you had in you to complete a challenge.

Little did I know that all those years of running, cycling and swimming would eventually serve another purpose, that those skills would pay off in other ways later on in my life.

Following my ABI, I was very keen to reintroduce exercise into the mix, a piece of the old me within the “new me”. I’m not going to lie though, reintroducing exercise into my daily routine hasn’t been easy. See, for a long while, walking to the dairy and back was as much as I could handle.

My past sporting achievements seem so out of reach. However, there came a point where I made the conscious decision to stop giving encephalitis and ABI so much power over what I could and couldn’t do. I felt it was time to give the “new me” more credit and to believe in myself once more. That’s when I set myself the challenge to partake in an all women adventure race. I completed what I thought was impossible 4 times now and this year, I joined adventure racing to fundraise for more awareness of encephalitis and ABI. I successfully reached out to a variety of media and was able to share some insight of what living with a brain injury is like.

Over the past 2 years, I have also started a blog in which I share my journey of ABI recovery.

There is a wide variety of subjects addressed on my Weird Wonderful Brain blog…including the not so glamourous aspects that need to be factored in my everyday routine.

Raising awareness of those issues has enabled me to learn many new skills that I probably wouldn’t have developed otherwise.

I’ve discovered that in spite of newly acquired limitations, I have grown tremendously as an individual and that I am still capable of achieving great things. I have discovered a new path, a new worth, new strength and I am very proud supporting others facing similar challenges.

Adventure racing for more Encephalitis & ABI awareness, Veronique – Centre front.

Know now Download the NZ Herald app.

nzherald.co.nz

Promoting Abilities

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CCS Disability Action CCS Disability Action is the largest pan-disability support and advocacy organisation in New Zealand. We have a long, proud history of working in partnership with disabled people, families and whānau to provide dedicated and flexible support services.

As well as creating individually tailored supports, we work in communities to identify and remove barriers so that all people can lead positive and connected lives. We also advocate for local and national policies that ensure that disabled people’s rights are upheld.

What we offer Our model is based on putting people first and finding ways to support the choices they want to make and the lives that they want for themselves.

At CCS Disability Action, we believe that all people have the right to be included in their communities and enjoy the same rights and opportunities that every New Zealander might expect.

These services include: • A range of respite options designed to provide a break for families and a positive and rewarding experience for your child.

• Community Support Coordinators who provide advocacy and support to remove any barriers to accessing the quality education of your choice.

• A dedicated youth team who can offer tailored support with education, employment and can connect you with friends, youth groups and your community.

• Support to access paid and sustainable employment by providing individualised support for potential employees and employers.

• Ongoing vocational support service to assist disabled people to participate in training, work or community activities.

• Providing ongoing support, information and options for young people preparing to leave school for further study or employment.

• Working in partnership with disabled people to support them to lead independent lives.

We provide community-based support and support people to transition from residential care into their own home.

• A Karanga Maha group who support people of Māori and Pacific Island descent to engage with their own cultural identities and develop personal leadership.

• Administering the mobility parking service in Northland, supporting people to park in accessible spaces in the community.

CCS Disability Action Northland Address 291 Kamo Road, Whangarei Phone (09) 437 1899 Freephone 08000 227 2255 Email Northland@ccsDisabilityAction.org.nz Web www.ccsDisabilityAction.org.nz

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Aaron Ussher

A

aron Ussher and his CCS Disability Action Coordinator Tania Bissett make an excellent team.

Both have lived experience of disability, and, as Tania explains, she gets a lot out of their time together.

“He has taught me so much about how we are the experts in our own lives. That it is essential to be confident in yourself and your choices,” she says.

Aaron is 22 and lives in Awanui, in the far north of New Zealand. Aaron is friendly, kind and funny but with the reoccurring COVID-19 rahui, found it hard to try new things. Aaron is now setting a new, more adventurous course for his life.

“I have watched him grow from being reluctant to try anything new, to now directing me on how things will be.”

A recent highlight was the ‘Ruakaka Surf Day’ event run by Tiaho Trust, which Tania suggested he might like to attend.

Aaron initially worked as a volunteer, handing out rash tops to other participants.

This was important work as the tops were donated so Aaron took this responsibility very seriously. Eventually, he decided he didn’t want to miss out on the action and asked if Tania – who had travelled to the event for the day – could take him. (The pair note that this was the first year in the event’s history that all shirts were returned, too!).

“I went out in the beach wheelchair with mum. At first, I wasn’t too sure, but it was too late to turn back as they were pushing me

towards the water! The lifeguard, Shaz from Parafed Northland, and my mum helped me to give it a go. I ended up having heaps of fun.”

He appreciates having Tania by his side when he needs her. “Even if Tania has never done things before, she will give it a go with me if I say I’m keen – even if it’s scary for both of us! Tania treats me like everyone else. We joke a lot. Because she uses a wheelchair, that helps me feel okay because I don’t always

have to explain why I feel a certain way.”

“I don’t see any challenges in my life. If I don’t want to do something, it doesn’t mean I can’t do it. I just maybe don’t feel like it. And I know that’s my choice, so it’s okay.” he says.

Tania and Aaron

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Promoting Abilities

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First Signs Connecting families who have a deaf or hard of hearing child aged 0-5, with New Zealand Sign Language, the Deaf community and Deaf culture.

Youth Engaging with Deaf youth and promoting positive Deaf identity and leadership in young Deaf people.

Hauora A service focused on improving lives and supporting independence, including coordinating access to other services and assistive technology.

Employment A specialist employment service for deaf and hard of hearing people, offering a transition service for school leavers, pre-employment support, job-seeking, and supporting employers of Deaf staff.

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Deaf Aotearoa’s services are available from 13 offices nationwide, including Northland. These services include:

NZSL Promotion This includes Adult Community Education for the Deaf community, tailored Deaf Awareness and NZSL courses for businesses and organisations. NZSL is also particularly promoted during New Zealand Sign Language Week.

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eaf Aotearoa is the Disabled Persons’ Organisation representing the voice of Deaf people, and the national service provider for Deaf people in New Zealand. It is also the New Zealand-representative member organisation of the World Federation of the Deaf.

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NZSL Week New Zealand Sign Language Week is held each year in May. This year it is being held from Monday, 10th May to Sunday 16th May 2021. Taster classes are available to register for organisations, businesses and schools. Keep an eye out for our NZSL Week Heroes! iSign iSign is a nationwide New Zealand Sign Language interpreter booking service.

Deaf Aotearoa also works to advocate for the Deaf community, engaging with government departments and other agencies to improve access for Deaf people.

deaf.org.nz Deaf Aotearoa Address 1A Deveron Street, Whangarei Phone 437 2022, Glennis 021 641 178 Web www.deaf.org.nz Email hello@deaf.org.nz Open Monday to Thursday 9am-4pm and Friday by appointment

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Promoting Abilities

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communicating with her. She skypes me regularly so we can have a chat and a laugh or if there is something on the news she thinks I need to know about.

Sweetie

M

Technology has played an important part in my life. I am able to communicate with family and friends wherever they may be, I am able to call an interpreter who can relay for me while I am working or need to communicate with anyone in the community.

y name is Sweetie, I am a hearing impaired person who has overcome language barriers while living in New Zealand, learning English and NZSL.

I moved to New Zealand from the Marshall Islands a few years ago and really love living here.

I have apps on my phone and my I pad that are easy to understand so I can do my banking, emailing and various other things. I have subtitles on my television so during the Covid 19 pandemic last year, I was able to understand what was happening in our community and the rules I needed to follow.

I have family in mainland America, Guam, Marshall Islands and Hawaii.

When I moved to New Zealand I knew American sign language which is quite different to NZSL, I worked hard to learn NZSL and I’m glad that I did. I enjoy communicating and connecting with people and find people are always happy to learn different signs and I am happy to teach them.

I am a very independent person. I moved into a refurbished flat last year which I really enjoy. I have great neighbours and friends who I socialise and meet with on a regular basis, we enjoy having a good laugh and have many similar interests. I have met some great people since living in New Zealand and know that I will continue to do so.

I have made many lifelong friends within the deaf community, we have regular outings and social events and I always look forward to these occasions and attend them regularly.

I do volunteer work at various places in Northland, these include Matakohe Limestone

Island, I go to the island on a monthly basis supporting the restoration process on the island. I do gardening at North Haven Hospice Gardens and Mountains to Sea Conservation Trust where I gather seeds in the Northland area, plant them and watch them grow. This is all very rewarding work and I love working with the wide range of people that I meet in the community. I have learnt many skills and made many friendships and connections which is really important to me.

I have had the privilege to teach a person I work with at Mountains to Sea Conservation Trust basic sign language, she went on to do an 8 week sign language class and I really enjoy

My interpreter from Deaf Aotearoa and my coordinator from CCS Disability Action made regular contact during this time by skype and the New Zealand Video Interpreting Service so I always had updated information. Without this communication I would have been very isolated.

Technology has enabled me to keep in regular contact with my family in the Marshall Islands and my daughter in New Zealand, we do this by skype and email, without technology it would be very difficult. It is very important for me to keep in contact with family and friends and to continue to make connections.

I love living in Northland, enjoying what this great place has to offer and meeting new people.

How does it work?

For interpreter bookings and queries: 0800 934 683 FREE TXT: 3359 bookings@isign.co.nz www.isign.co.nz

iSign interpreting services are provided in every setting, including: • health • disability support services • government agencies, eg: Work & Income, ACC • schools • legal appointments • work places • conferences • social events, eg: family reunions, churches, funerals, tangi and weddings.

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A

Northland Down Syndrome Support Group Charitable Trust

diagnosis of Down syndrome - whether during pregnancy or birth - can be a shock. We are available to chat if you have had a recent diagnosis. We are nonjudgmental, supportive listeners.

Long-time volunteer Kathy Sadgrove says Down syndrome can sometimes come with extra challenges that parents might not be expecting. Around 40 percent of babies with Down syndrome are born with some form of heart condition that range from mild to severe. Thankfully things have changed considerably for the better since her son had his operation 27 years ago. We can help parents begin to understand the implications that having a child with Down syndrome may have for their family and to connect them with other families if they wish.

Kathy Sadgrove & Jo Morrison

The support group uses a range of different media to keep in touch, and its Northland Down Syndrome Support Group Facebook page is a good way for parents to connect with each other, as well as being a valuable resource with up to date information on Down syndrome.

Our Great M8s social group for young adults meets fortnightly for social outings such as Ten Pin bowling, mini golf, dinners, arts and crafts and games nights.

Monthly gym sessions held at the Whangarei Academy of Gymnastics are also popular for all family members of people with Down syndrome. The children and their siblings enjoy the activities and the parents enjoy the social networking opportunities and sharing successes.

The NDSGT aims to support ECE centres, schools, and training centres/tertiary colleges working with learners with Down syndrome.

We provide professional development days, learning programmes tailored to a student’s needs and networking opportunities to share ideas and good practice with other teachers.

We also have a wide range of educational books, reading programmes and numeracy resources to loan.

An important role for the support group is to promote and advocate for positive attitudes in the wider community, to promote the rights and inclusion of people with Down syndrome and to raise public awareness.

A recent fun walk, the Lots of Rocks Loop Walk, was held to celebrate World Down Syndrome Day on March 21. Around 250 families, supporters and community members came together, dressed in our colours of purple and orange, to celebrate and walk the Hatea Loop. Children had fun placing decorated rocks while they walked around the Loop.

General enquiries 0210 814 3744 Email ksadgrove@xtra.co.nz Schools enquiries 021 0822 4584 Email NorthlandDSSG@gmail.com Web www.NorthlandDSSG.org Facebook Northland Down Syndrome Support Group

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Miranda Shackell & Taonga

M

iranda Shackell, of Tikipunga, Whangarei, is busy. She has three boys aged between three and seven. Add Down Syndrome into the mix with her youngest son, Taonga, and life can be pretty crazy.

Taonga is turning four soon and has only just started walking. But if he gets a pen in his hand, no leg, wall or piece of furniture is safe.

“He loves drawing, books, the alphabet and especially music. Music is his life,’’ she says.

The Kamo High School special needs co-ordinator and teacher has been trying desperately to juggle her work as well as the needs of her family.

“With Taonga I do get carer support hours.

I’ve been using the respite hours to cook the one decent meal for the family in the week and try and catch up with everything in the house.’’

Miranda says the Northland Down Syndrome Support Group trust meetings are valuable as members can share their common experience.

Another highlight is the monthly gymnastics days at the Whangarei Academy of Gymnastics centre.

“The kids get to jump all over the place with their crazy siblings and have a great old time. But for the parents it is an important social outing and a chance to make real life connections. We celebrate each other’s successes.’’

Zarn Reichardt and Rylan

R

unning a marathon after losing 55kg was a huge achievement for Zarn Reichardt of Kaitaia. But it was worth the effort to raise funds for music therapy to benefit his two-year-old son Rylan.

Zarn had been training for the Queenstown marathon but this was cancelled due to Covid-19 travel restrictions so instead he ran from Kaitaia to Pukenui, a similar distance. “I’m not a runner so the last few kilometres were really hard.’’

The $16,442 raised has been used to set

up “Rylan’s Music Mates” music therapy scholarship as part of the Raukatauri Music Therapy Centre, which is now offering outreach services to Northland.

“Rylan just loves it. He loves making noise,’’ Zarn says.

Rylan attends day care three days a week and visits a speech therapist every couple of months. For Zarn and his wife Michelle, Rylan is now a busy boy who moves around quickly and is proving to be a bit of an escape artist. “He also loves water and will sit in a pool for hours.’’

As a mum it is important for me to know my children are safe and happy. We are truly blessed to have the love and support from Kind Hands for our youngest son Shelby, and to support them I donate a portion of each sale I do to the Kind Hands Charity

Zarn (father) & Rylan Reichardt

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Epilepsy Support Group

P

romoting Abilities? So what does this mean for the person with diagnosed Epilepsy. When suddenly daily routines are shattered with an increase in seizures and overwhelming feelings of not being able to cope.

Coping with Epilepsy is different for everyone. Having an increase in seizures and taking anti-seizure medication can affect how people think, feel and their ability to cope with the effects of their Epilepsy.

Living well can be a realistic goal for many people living with Epilepsy, however the journey is not without its challenges.

Epilepsy can impact on tangata/whanau in different ways. Everyone is in it together, yet everyone experiences it differently. Whanau may experience a range of emotions They may feel angry that a loved one has been diagnosed and their lives have changed or scared and be over protective, not allowing the person with Epilepsy to have independence and space.

As a result the person with Epilepsy may feel they are a burden to their whanau and pull away. Remember we are all different we all see the world through a different lens. That lens is shaped by our situation, our upbringing, culture, beliefs and lifestyle experiences.

For the person with Epilepsy seizures can be socially isolating. There is often a fear of having a seizure in public. Dealing with daily challenges of Epilepsy can be exhausting leaving one with little time and energy for whanau and friends.

Sometimes the feelings can be overwhelming and affect all aspects of a person’s life.

The first step is to realize that people will respond or react differently. When reactions aren’t addressed or talked about, relationships can be strained.

Sam Morgan, Epilepsy Educator of Epilepsy NZ, always encourages home visits with tangata/whanau. Promoting education and awareness on not only the Diagnosis and Management but the impact on significant relationships and issues affecting lifestyle is important to our organisation.

One of the most important areas to address is to Improve the Quality of Life that is Optimum Seizure Control. This can mean getting a balance of the Anticonvulsant prescribed and its side effects. The aim being always to optimize Seizure Control and minimize the side effects. In addition, addressing lifestyle triggers of potential seizures i.e diet, exercise, sleep allows for the person to address any issues and changes that need to be made.

Sam maximizes opportunities to promote awareness, provide education and resources by providing Professional Development Staff Training, to employers, schools, services as well as community talks.

Working collaboratively with other Services in promoting Epilepsy Awareness within each region of Tai Tokerau is important in building confidence within Tangata /Whanau. Knowing there are people out in the wider community who understand the way you feel can really help to get a perspective on the problems faced.

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One thing we are certain of is that planning is everything. The more prepared you are the less overwhelmed you find yourself on the journey. Identify and become aware of one’s own strengths and weaknesses. What you do well. What you don’t do so well.

Determining your own needs, abilities and limitations will help you set realistic goals resulting in signs of resilience and wellbeing.

In setting your goals start small (believe in why you are trying to make a change.) Turn off the negative voices and stay positive, set clear achievable goals. Make small action plans to achieve those goals. Track your progress so you make changes and don’t forget to celebrate your achievements.

Contact Details Address Level one upstairs Civic Arcade, 37 Bank Street, Whangarei Phone (09) 438 5498 Freephone 0800 374 537 Hours 8.30am – 4.30pm Monday - Friday Email northland@epilepsy.org.nz Web www.epilepsy.org.nz

✓ Senior & Disability Services Information ✓ Disability Equipment ✓ Employment Focus ✓ Employer Awards ✓ Community Groups ✓ Live Entertainment ✓ Smorgasbord of over 50 stalls ✓ Mobility Permit Parking For more or phone 09 430-3406 info email info@tiaho.org.nz

Promoting Abilities

We are a Team

- Penelope Franklyn I touched base with Sam from Northland Epilepsy NZ and was met with “you inspire me, you have a story to tell!”, so here is my story: What’s your name? Where are you?

Two simple questions often answered with little or no thought, but for me so difficult. The pounding headache I already have worsens as I struggle to find an answer. Ahhh! . wait I know, I’m Penny Franklyn, President of the world and I live on Magic Street. Ok, so I have given you my name, but I have not told you where I am. No! I have not taken drugs and No! I’m not drunk! This is part of an actual conversation that has taken place after one of my many seizures.

My first seizure was at six months old, a tonic-clonic seizure. The seizures continued throughout my childhood and into my teenage years where I began to have regular tonicclonic seizures. The routine is much the same today. I go to bed and within half an hour of going to sleep I have a seizure. It is not unusual to be stiff and sore the following day or to bite my tongue badly or throw myself out of bed.

Like so many people I have trailed a number of medications. It took multiple trials before I found one that was suitable for me.

In my mid 20s I finally achieved what I thought was unachievable, I went 12 months without having a seizure and was allowed to get my driver’s license!!!

In November 2017 I had a Left Temporal

Lobectomy. In Simple terms they removed the part of my brain where the seizures were coming from and I was advised of a 2/3rd chance of becoming seizure free.

For 3 months I felt great I was seizure Free!

This was however short lived, the seizures returned although less severe and less frequent. To describe my seizures, they are not the stereotypical seizure one may think of. You may not see me drop to the floor and shake. I experience a range of seizures. To others who know me it can look like the lights are on and no one’s home. At times I may appear to be ignoring you but in my head I am answering you and getting frustrated that you can’t hear

23

me. I can repeat what I’m saying then realise that halfway through I have a dilemma going on in my head do I finish the sentence or stop as I am repeating myself? I experience tonic-clonic seizures, as often portrayed in TV movies with loss of consciousness and jerking movements and I also experience a seizure where I lose awareness and wander. It may be that I leave a room and go to another. I can wander from one side of Whangarei CBD and get to the other side with no idea how I got there, Scary.

All of these experiences have led me to apply for an Epilepsy Assist Dog. I was delighted to find out just before the COVID lockdown that I was an ideal candidate to have an Epilepsy Dog, Stanley at the time, was in training as a guide dog for the blind however this was not his calling. Christmas 2020 came early when I was told Stanley had become available. He is with me 24/7 although not yet fully trained.

He has already been with me during my bigger seizures and guarded me when I had to go to Waikato ED or when staying with my parents.

I have been blessed to get him and we are often in town doing our thing. Once Stanley is fully trained he will be able to stop me from walking into traffic during one of my wandering seizures and should I have a Tonic seizure he will be able to lie beside me. If you see us about, Stanley is the cute black Labrador wearing a purple coat. Please ask before petting Stanley as he is working when he has the coat on.

I am no longer Penny Franklyn, President of the world Stanley and I are a team. I am so grateful to the Epilepsy Assist Dogs Trust who provided Stanley to me.

He is the first in Whangarei. Whereever I go Stanley comes with me.

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Huntington’s Disease Association

T

he Huntington’s Disease Association (Auckland) Inc is currently working with 900+ people living with symptoms, or at risk of developing symptoms, of Huntington’s Disease in the Auckland and Northland regions.

With the hard work and dedication of the Manager, Jo Dysart and Cheenee Mandawe (Support worker), they support the carers, family members, GP’s, medical specialists and other agencies to support people with Huntington’s.

HD Community Connectors Our professional staff are Huntington’s Disease (HD) specialists who help families and professionals respond to the unique challenges of HD. The clients of the Individual and Family Services programme are the person living with HD, their caregivers and family members including people at risk.

Support Service The staff provide services which include: • Assessing people’s needs through one to one consultation’s • Educating clients about HD • Giving information about community services • Finding sources of support • Facilitating appropriate referrals and then following up.

The service can involve setting goals with the clients, strategizing and solution focused

problem solving, either working individually with clients or in groups.

What is Huntington’s disease?

Huntington’s disease is a hereditary neurodegenerative disorder caused by and expunction in the IT-15, or Huntington’s gene on chromosome 4. Each child of an affected parent has a 50% chance of developing the disease.

Most people with HD develop symptoms in their forties and fifties although around 10% of patients have onset of symptoms before age 20 and 10% have onset after age 60.

Who Gets It? Huntington’s is a genetic disorder. About six in every 100,000 people has HD. It is not discriminative can affect both sexes and any race. Primarily, HD affects adults. Symptoms usually appear between the ages of 35 and 45 but there is Juvenile HD which appears in children and late onset HD in adults in their 60’s.

What are the Symptoms?

There are three main types of symptoms in Huntington’s disease: physical symptoms including involuntary movements and diminished coordination; emotional symptoms including depression, irritability and obsessiveness; and cognitive symptoms, including loss of ability to recall information, loss of attention and difficulty with decision making.

Jo Dysart & Cheenee Mandawe

Liaison We are privileged to work alongside clinical experts and DHB’s offering a multi-disciplinary team approach to the individuals and family/ whanau affected by HD. Along with this we have tight links with the Auckland University Centre for Brain Research and our Patron Sir Richard Faull. We therefore have ongoing updates on clinical research and research to help develop treatments and one day, a cure.

Contact Details Address PO Box 1618, Sandringham Auckland 1351 Phone 09 815 9703 Mobile 027 432 8255 Email huntingtonsakld@xtra.co.nz Web hdauckland.org

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Hooryah Asif

P

ersonal experience with Huntington’s disease has influenced Hooryah Asif in ways she never could have imagined.

The 22-year-old has dedicated her research to making life better for people with long-term disabilities.

Studying a Masters Degree in Creative Technology through the Auckland University of Technology, Hooryah has dedicated her research into healthcare environments and how these impact the individual.

It’s an area of research she never would have considered if not for her immediate family members’ experience.

Hooryah, whose family is from Pakistan, came to New Zealand when she was four.

Huntington’s disease is an inherited brain disorder that results in impairment of both mental capability and physical control.

It affects movement, causing difficulty with balance, walking and speech; cognitive deterioration causes difficulty performing everyday tasks and psychiatric effects can include depression and acting out of character.

Most people with HD develop symptoms in their 30s or 40s. On average patients live for 10 to 30 years after the initial appearance of symptoms.

Her research is looking at how healthcare spaces can be made to be happier environments for people with longterm disabilities.

She is collecting the thoughts of workers, volunteers and people who are part of the healthcare community.

“Their voices are a huge part of this,’’ she says.

“There are not enough innovatively designed spaces to make a significant difference in these individuals’ lives.

“I’m creating dream-like designs and possible solutions after collecting the thoughts of a lot of people. I’m looking at creating different atmospheres that can improve psychological wellbeing and provide healing environments.

“Lighting and colour are huge factors as well as music and ambient sounds. It will also be good to bring in natural elements from outside to the indoors, because it is about moving towards a more humanised future,’’ she says.

When she gets to the development stage, she hopes to create an experience through virtual reality, an emerging technology.

“It’s not just about having these creative ideas, but about bringing these concepts to life.’’

“Everything has led me to this project,’’ Hooryah says.

Cairnfield House is a rest home and hospital that specializes in hospital care for our residents. We offer superior care in our very popular and reputable facility and have qualified nursing staff on hand 24/7.

In addition to our single rooms, we have double rooms available for those who do not wish to be separated from their loved ones.

Even if you require different levels of care, we can accommodate you both so you can continue to be together.

We offer spacious, sunny and relaxing rooms ready for you to make them your own to ensure you feel right at home. Make new friends and join in the activities that are on offer for you to enjoy.

WHERE QUALITY AND LOVING CARE IS ASSURED Lesley Middleton / Facility Manager Email: lhauraki@cairnfield.co.nz 52-60 Jack Street, PO Box 1478, Whangarei 0140 www.cairnfield.co.nz | www.facebook.com/Cairnfieldhouse/

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Muscular Dystrophy About Us The Muscular Dystrophy Association of New Zealand Inc. (MDANZ) began in the late 1950’s as a support group for families affected by muscular dystrophy. Since then, MDANZ has broadened its scope to include many other neuromuscular conditions.

We have four regional branches - Northern, Central, Canterbury and Southern - that are supported by the national office based in Auckland. MDANZ supports individuals, families and whānau by providing specialist information, practical resources, personalised support and Fieldworker services, social networks, campaigns for public awareness and advocacy. And through

our research trust, we work to improve care standards and facilitate access to potential treatments for neuromuscular conditions.

Our organisation is a registered charity and we rely almost entirely on voluntary donations from the general public, trusts and other businesses/organisations to continue our work.

What are Neuromuscular Conditions?

Neuromuscular condition is a broad umbrella term that describes a variety of muscle disorders. The conditions covered by MDANZ are rare and mostly genetic. Progressive muscle wasting leads to loss of mobility and independence, and there are often major impacts on organ systems, which can result in early loss of life. Symptoms can appear at birth or for others not until much later in life. These conditions can be unpredictable and there are limited treatment options.

Fieldwork Service Our fieldworkers work in the community to provide personalised support and education, in the area of rare neuromuscular conditions covered

by MDANZ.

Personalised support may include supporting through diagnosis, walking alongside during times of grief and change, offering information and advice about conditions, facilitating service access through referrals or advocacy, or reducing isolation by linking people to others with shared experience.

Community education may include talking with teachers, health professionals or disability support staff to improve their understanding of progressive neuromuscular conditions, which enables them to provide even better services and supports for our members.

National Contact Details MDANZ National Branch Phone 0800 800 337 Email info@mda.org.nz Website www.mda.org.nz Facebook www.facebook.com/ MDANationalOffice Northern Branch Contact Phone 0800 636 787 or 09 415 5682 Hours Mon-Friday 9am-5.30pm Email support@mdn.org.nz

• Scooters • Mobility aids • Bathroom aids • Competitive pricing

For all your Mobility & Daily Living Aid Requirements 84D Kerikeri Road, Kerikeri Across from the trade entrance of Bunnings Ph: 09 407 6701 or 027 4468545 email: kerimobility@yahoo.co.nz www.kerimobility.co.nz

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It’s really the only thing

J

essica Barnes’ child has a disability that is so rare that he is the only one in New Zealand and one of only 29 diagnosed in the world.

Her four-year-old son, Eli, has Muscular Dystrophy, in a form called Congenital Myopathy.

For Jessica and her husband Grayson, the diagnosis of their floppy baby came as an “absolute shock”.

Muscular dystrophy is a group of inherited diseases that damage and weaken muscles over time. Most forms begin in childhood and are due to a lack of a protein that is necessary for normal muscle function. The absence of this protein can cause problems with walking, swallowing and muscle coordination.

Jessica changed her career to real estate to have more flexibility to be able to care more regularly for Eli, who is often sick because his immunity is low.

She said she hit the jackpot with the daycare centre, which is run at the Kind Hands Respite Care Cottage for children in Morningside, Whangarei. “He was one of the first to go there and he loves it,’’ she said.

The cottage, set up by paediatric outreach nurse Sharlene Clements, offers a place of safety for children with ongoing medical conditions. Staff are highly trained in dealing with medically fragile children.

REAL ESTATE WITH HEART List with Jess Barnes, a real estate specialist who has your best interest at heart, dedicated to deliver the best possible outcome with your property transaction.

“Winter is always a scary time for us as the common cold is also a risk to Eli ...’’

“The parents of the children at Kind Hands support each other as well,’’ she said.

As a real estate agent, Jessica is careful about screening clients she meets as her son is highly susceptible to colds and has trouble clearing phlegm.

“With Covid-19 I have been even more careful and I pulled my kids out of school straight away at the time of lockdown.

“Winter is always a scary time for us as the common cold is also a risk to Eli.’’ Jessica said regular physiotherapy is vital for building muscle strength.

“It’s really the only thing that keeps him from going downhill. He has Creatine, a supplement used by athletes and bodybuilders to help muscle condition.

He is getting to a stage where he can cope better with a lot of things,’’ she said.

The Muscular Dystrophy Association keeps a regular check on the family and, during lockdown, sent care packages which were much appreciated.

Thank you for your generous support, allowing me to strive to be the best in real estate and also being a super woman for my family... To be able to pass on your support to more people I will donate $250 to Muscular Dystrophy NZ for every sale.

Call Jess today - 027 695 8330 jess@oneagencywhangarei.co.nz RE Invent Limited MREINZ - T/A One Agency Whangarei

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MND New Zealand

Kia ora and Welcome

W

e are here to help and support people with Motor Neurone Disease (MND) and those who care for them.

MND New Zealand works with people living with MND to enable them to have the best quality of life possible. We help people with MND to access medical expertise, support services and equipment that they may need.

Sally is the Support Team person for Northland. She is available to provide free,

personalised support and advocacy for people with MND. Sally offers education, up-to-date information and practical strategies for people with MND, their whanau and the health professionals caring for them.

MND New Zealand is the only national organisation focused on MND. We concentrate on three key activities; • Providing support to people living with MND and those who care for them

• Providing community education and awareness • Promote, identify and develop research opportunities within New Zealand and internationally. Including the New Zealand MND Registry.

MND New Zealand welcomes your support by way of donations, participation in our fundraising activities, increasing awareness and above all understanding of people living with MND. To contact the Northland Support Team member email; sally.king@mnd.org.nz or call 027 202 8166.

Sally King MND Support Person I truly appreciate it when I am invited to walk alongside folk for a while.

Whakawhetai ki a koe.

MND NZ is proud to be the official charity partner of Emirates Team New Zealand for the 36th America’s Cup 2021.

Work days Monday - Thursday Phone 027 202 8166 or 09 280 3196 Web www.mnd.org.nz Fb www.facebook.com/mndanz Northland: sally.king@mnd.org.nz

Promoting Abilities

What is MND?

M

otor Neurone Disease (MND) is the name given to a group of disorders which affect the motor neurones in the brain and spinal cord that tell your muscles what to do. With MND, messages from these nerves gradually stop reaching the muscles, leading them to weaken, stiffen and waste.

MND can affect how you move, speak, swallow and breathe. However, MND affects everyone differently. Not all symptoms will affect everyone, or in the same order. Symptoms also progress at varying speeds, which makes the course of the disease difficult to predict.

• The number of people living with MND at any one time is approximately one in 15,000. In New Zealand approximately 400 people are living with MND. • MND affects people from all communities.

• MND can affect adults at any age but most people diagnosed with MND are over the age of 40, with the highest incidence occurring between the ages of 50 and 70.

29

What Causes MND? There are many theories about the causes of MND. These include exposure to environmental toxins and chemicals, infection by viral agents, immunemediated damage, premature aging of motor neurons, loss of growth factors required to maintain motor neuron survival and genetic susceptibility.

• MND is a progressive neurological disease.

• More than 80% of people will have communication difficulties

Scientists believe that the randomly occurring sporadic form of MND is likely to be caused by many small contributory risk factors, including subtle genetic and environmental influences, that in combination may ‘tip the balance’ towards someone developing the disease.

• There are different types of MND; Amyotrophic Lateral Sclerosis (ALS), Progressive Bulbar Palsy (PBP), Progressive Muscular Atrophy (PMA), Primary Lateral Sclerosis (PLS) and Kennedy’s Disease (not classed as MND) but included in the conditions supported by the MND Association.

• About 35% of people experience mild cognitive change which may cause difficulties with planning, decision-making and language.

Researchers worldwide continue to try and find out what causes MND with the goal of discovering how to stop, slow down or prevent the disease.

• MND doesn’t usually affect the senses; sight, smell, hearing, touch and taste remain

It is not yet possible to provide advice on how to reduce the risk of developing MND.on how to reduce the risk of developing MND.

• Although there is currently no known cure for MND, symptoms can be managed to help achieve quality of life.

• Slightly more men than women get MND. • A person’s lifetime risk of developing MND is up to 1 in 300.

• For every person diagnosed with MND it is estimated that a further 14 members of their family and their friends will live with the effect of MND forever

If it’s important to you, you’ll find it in northeradvocate.co.nz

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Northland MS Society

N

orthland Multiple Sclerosis Society offers a wide variety of services to people with MS, family/whanau members and carers. The Northland area extends from Wellsford, coast to coast to Cape Reinga.

The service provides information, education and support, encouraging a proactive approach to managing this disease. If you have MS the Society provides for you and your family and/or carers: • A MS Field Worker who is a NZ Registered Nurse.

• Home visiting service. Support and information to you and your family about your condition or in your role as a caregiver.

• Educates you, your family and other health professionals about MS and related disorders.

• Advocates for you with other support agencies and health professionals and informs you of services available in the community.

• Provides education material and books, both available from the MS office.

• Library Books covering all aspects of MS are available to take out on loan • Holds monthly support groups for those with MS. • Offers a free weekly MS exercise class • Bi-monthly newsletter which includes useful information on research and development of MS and advice on staying well.

What is Multiple Sclerosis (MS)?

Multiple Sclerosis is one of the most common

diseases of the central nervous system.

A fatty substance called the myelin sheath covers the fibres of the nervous system. The myelin protects the nerves and helps the messages move between the brain and the rest of the body.

In MS, the myelin sheath covering the nerves in the brain and spinal cord become scarred in scattered patches. This is multiple scarring, or sclerosis. Essentially this distorts or prevents the flow of messages from the brain and the spinal cord to other parts of the body.

The distortions to the messages travelling through the nervous system cause a range of problems for the people with MS. Although it is important to note that there is no typical set of MS symptoms, the following are common (in varying combinations or severity): • Loss of balance or coordination.

• Tremor and weakness.

• Blurred or double vision, eye pain (usually only affecting one).

• Difficulty with legs, arms and hand movements.

• Bladder and bowel problems.

• Numbness and pain.

• Problems with thinking and remembering.

• Fatigue.

What Causes MS? At this time the cause of MS is still unknown.

However, research suggests it is likely to be a combination of the following: a reaction to a virus, possibly years after infection;

exposure to an unknown environmental agent before puberty; an auto-immune reaction in which the body attacks its own tissue for an unknown reason; or a genetic susceptibility to the above triggers.

How is MS Treated?

While MS still cannot be cured, much can be done to help manage the condition. There are MS-specific treatments available. These directly target the immune system. A Neurologist determines whether these are relevant for each person. Generally the person with MS works with their GP on the day to day management of the condition.

As the Office Manager is only available 14 hours per week (Monday and Tuesday from 9am - 2.30pm / Wednesday 9am to 12pm), an answer phone is in place to take messages, which are responded to as soon as possible.

Urgent contact can be made to the Field Workers mobile phone.

Contact Details: Level one upstairs, Civic Arcade 37 Bank Street, Whangarei 0110 Phone/Fax (09) 438 3945 Mobile 027 539 9883 Email nthldms@xtra.co.nz Web www.msnz.org.nz Facebook Northland Multiple Sclerosis Society

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Promoting Abilities Definition of:

Promote: Help forward, move up to a higher rank or position.

Encourage sale of.

Abilities: Competence, power, talent

T

o see the special talent that you have already and move forward with it. What direction you move in, is up to you and the effort you put in.

Hi I’m Pauline Sowry and in 2006 was diagnosed with Multiple Sclerosis. I left the doctors rooms with that one piece of information. I was not advised to bring a support person to the appointment. I had nothing to read or take home with me. It was my daughters first birthday, and I was to get dinner on the way home.

Welcome to the uncertainty of Multiple Sclerosis (MS)! But it does not have to be this way all the time.

You can take control and look after yourself. Learn how to read your body better and to see the signs of when to “chill out” and take a ½ step back so you are more prepared to leap forward.

I joined the MS society not long after being diagnosed, as I needed to chat with those who have the disease, to see and hear for myself what it is like to have MS and the nature of its progression in all forms. To get some reassurance and information about the recent advances in research and treatment. I needed

real information, not just an internet search.

Monthly casual coffee mornings at various café’s provide such an occasion.

I recently attended a ten- pin bowling outing with the MS society. Although I consider myself athletically not too bad for someone with MS, I felt the benefits from this one activity and realised that I need to work on my balance and co-ordination. Oh yes and for those that are interested, I did come last! Life throws curve balls at us all the time. It is how you deal with them that matters. Tis the old saying that if you don’t use it you lose it that comes to mind.

So, I work from home doing accountancy work, “manage” my now two teenage kids and all the while try to get that work life balance what we all dream of, and still dream of! I try to make sure that my day contains both mental and physical work as MS effects all the body - from numbness and pain to thinking and remembering.

I am the current President of the Northland MS Society. I hope that by promoting awareness of the Society and the disease that no one needs to go through this journey alone.

That there is always a point of reference and a friendly ear to listen should any problems arise.

PAK’nSAVE Whangarei are proud to support The Northland Multiple Sclerosis Society.

WHANGAREI Walton St, Whangarei, 0110 Phone 09 438 1488

I wish to thank the MS Field Worker Renee, and Office Manager extraordinaire Wende, for sharing this vision with me.

Organizations such as Northland MS, cannot offer exercise classes and field worker assistance without the generosity shown by our sponsors. A big thank you goes out to those that donate their time and financial resources.

WE’RE LOCALS SUPPORTING LOCALS

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NorthAble

Matapuna Hauora DIAS – Disability Information Advisory Service NorthAble DIAS can assist with providing free information and advice to people with a disability, their families, whanau, aiga, caregivers, providers, and the public. We are here to assist and answer any of your questions. You can like our Facebook page, head to our website, or check out www. firstport.co.nz to access helpful information, news, and events, or sign up to our weekly electronic newsletter by sending us an email dias@northable.org.nz NASC – Needs Assessment Service Coordination Talk to our NorthAble Needs Assessment Service Coordination Team (NASC) if you or someone you care for is aged 0 – 65 and requires long term support due to a physical, intellectual, neurological, sensory disability or autism. You can check your eligibility, make a referral on our websites NASC page, or you can simply give us a call and have a chat with one of our friendly team.

EQ+ - NorthAble Equipment Plus EQ+ is Northland’s largest supplier of Rehab, Aged Care and Disability equipment/products that support people who are experiencing a temporary or permanent impairment, and we also have some equipment for hire. EQ+ has a mobile van service and Equipment agencies at Far-North Pharmacy in Kaitaia, Unichem Orrs

Ongoing Resourcing Scheme (ORS) funding as defined by Ministry of Education. Our VHN coordinator works directly with you and your family/whanau or support people to tailor make support plans based on individual goals & objectives to engage in everyday social activities and participate in the local community.

Angie-Rose, Bree, and Celeste visiting Sheepworld.

Pharmacy Maungaturoto and EQ+ provides disability equipment advice and support throughout Northland.

Check out the EQ+ website at https://www. equipmentplus.org.nz/ LYNKZ Our LYNKZ programme is available to individuals aged between 16 and 64, who have a cognitive, physical, sensory disability, or a combination. NorthAble LYNKZ is a community-based service that works with its clients to improve their life skills and increase employment awareness and opportunities. Our main programme operates in Whangarei from Monday to Thursday. We also run an Outreach service which operates one day per week in Kaitaia, Kerikeri, Kaikohe and Opononi. For more information contact the LYNKZ team through our main office.

VHN NorthAble provides a Very High Needs (VHN) service funded by MSD, for clients who have

Transition Our transition service supports ORS funded students leaving school to move onto their new pathway in the community. If you have ORS funding and are leaving school in the next 2 years call us to find out more about this service.

Navigation NorthAble currently has funding available through the MSD Community Connection Service to provide Navigation Support to all people and families in need of this support.

Our Navigators can work with you to establish and work on goals relating to employment, education, community engagement, access to health services, and more.

NorthAble Disability Services: 40 John St, Whangarei NorthAble Equipment Plus: 73 John St, Whangarei Phone 0508 637 200 or 09 430 0988 Email northable@northable.org.nz Website www.northable.org.nz and www.equipmentplus.org.nz

Bennett & Associates Chartered Accountants

PROUD TO PROVIDE SERVICES TO THE NORTHLAND BUSINESS COMMUNITY NORTHLAND owned, focused and operated accounting firm providing services in: • Audit, Investigation & Forensic Research • Office of the Auditor General Approved School Auditor • Small to Medium Size Direct Business Support and Tax Services • Business Recovery, Turn Around & Insolvency Management • Maori Business Advisory & Mentoring Contact us at: 57 Clyde Street, P O Box 627, Whangarei 0140 Ph: (09) 438 2312 Fax: (09) 438 2912 Email: info@bennettca.co.nz Web: www.bennettca.co.nz

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Torrin Hona

T

orrin has always had an interest in the Fire Service. His mother Leonie talks about when Torrin was 10 and they lived a couple of streets away from the Fire Station, Torrin would listen out for the sirens and even had a radio scanner that he would use to listen to the call outs. Fast forward a few years and Torrin is now part of the Fire Service himself at Kamo Fire Station, one of the many roles he fills as part of the volunteer sector in Northland.

Torrin moved from Auckland to Whangarei in December 2019 and wasted no time in becoming a part of the local community. Torrin and Leonie were impressed by the community spirit that they found in Whangarei, which they found to be very welcoming. Although his Cerebral Palsy means that there are things Torrin needs support with, overall the attitude he found was a positive one with people focusing on what he can bring with him and what places can learn from having him in their crew.

At the Kamo Fire Station, Torrin has two main roles: he is the Brigade Support Officer, meaning that he oversees the fire crew’s safety during their training exercises, and he is in the Business Support team as a Community Educator. As a Community Educator he attends events and promotes fire safety to all, he also draws on his personal experience to educate workplaces and organisations on supporting people with disabilities during evacuation procedures and helps them consider what they need as part of their emergency planning.

There are many things Torrin loves about his

work for the Fire Service – he enjoys getting out and meeting people, making sure they get the right information about fire safety for them. It’s also a source of comradery and being part of a team that provides him with a different kind of support than what he receives from his family, or the caregivers that support him with day-to-day tasks of living. As part of this team, he attends not only work but social events, and he has a network here that isn’t the result of obligation, but of community and a shared purpose.

These aren’t the only volunteer roles that Torrin holds – he is also a member of the Disability Advisory Group to the Whangarei

District Council, informing them on matters important to disabled people and supporting them to create emergency plans for the city that account for these needs. And recently, during the America’s Cup, Torrin was spending 5 days a week in Auckland so that he could volunteer at the Cup Village – at first working the AC75 simulator for visitors to the village, and then he was overseeing the signing in and out of all volunteers to the village whilst manning an information booth for visitors.

Accessing his support through Individualised Funding, definitely helps Torrin achieve his goals. Leonie administrates his support as the IF Agent, and together they employ their own staff and set the supports hours that suit them.

Because they can work across a year, they can plan for times when Torrin will need a higher level of support (like when he was in Auckland for the America’s Cup) and allocate additional support at those times as long as they stay within their annual budget. Leonie’s advice to anyone considering Individualised Funding is to “plan ahead, stick within your overall budget, but don’t be afraid to push the boundaries of what you think is possible. And if you aren’t sure about what you can do, just ask”.

Torrin has no plans to slow down – he’s already considering a second term on the Disability Advisory Group. He is also available to speak to businesses and groups about fire safety education – so if you’d like Torrin to speak to your team just contact the Kamo Fire Station, he’s here to help.

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E

Parent to Parent Northland

very year hundreds of Northland whānau face the unique challenges of caring for a baby/child/teen with disabilities and health impairments. Our core services are:

1. Information Information on anything disability related that is easy to understand and tailor-made for a child’s specific conditions.

2. Parent Support Connecting with a local parent who has ‘been there’ and has a child with the same/similar condition or has experienced similar issues.

3. SibSupport Camps and programmes for the brothers and sisters of children with disabilities offering a chance to talk about their issues, whilst making friends and enjoying fun activities.

Northland regional coordinator Don Martin continues to reach out to families in need in the whole region.

Our workshops include: • Renew Connect & Reflect – support for the carer • Support Parents – training for parents volunteering to support others • SibCamps/SibShops/SibDays – for the brothers/sisters aged 8-18 of people with disabilities • Sibling Leadership training – for those brothers and sisters wanting to help children in the same situation

Brodie on Sibling Voyage 2020

• Championing Your Needs – for families and professionals to learn how to be heard and advocate for a child’s educational and living needs • Anxiety Workshops – for parents of children with anxiety issues • Education, Disability & Your Child – for parents wanting the best learning outcomes for their child • Navigating the System seminar – for parents who need support accessing services • Second Generation – Supporting disabled people and their families/whānau to plan what the future could look like Don says “It’s been really pleasing having families and professionals contact me from most parts of Northland. The word about our services is getting out there. Last year I spent seven days on the R Tucker Thompson with 11 rangatahi who have siblings with a disability.

What an amazing group of teenagers!

The voyage was very successful and we plan to do it again in 2022.”

Other services include: • Altogether Autism – Providing autismspecific, evidence-based information • Care Matters – Learing and wellbeing events, web-based resources and freephone service for family carers • Autism Professional Development Series – Autism spectrum disorder training for professionals Don Martin - Regional Coordinator Mobile 027 808 3942 Freephone 0508 236 236 Eamil northland@parent2parent.org.nz Website www.parent2parent.org.nz www.facebook.com/ parenttoparentnorthland

The Wilson Home Trust.

Supporting physically disabled children, young people and their families is our top priority

The Wilson Home Trust supports children and young adults with physical disabilities up to the age of 22, and their whanau who live in the Upper North Island - from Turangi in the South to Cape Reinga in the North.

We do this in a range of ways including: • Financial Grant funding • Information & Support • Hydrotherapy sessions • Parent/Carer activities • Equipment demonstrations In Northland we have a part time contractor Don Martin who represents the Wilson Home Trust.

Please contact Don on DonM@parent2parent.org.nz

Our Auckland based team are also available to provide information and support.

Contact us today 0800 948 787 or email info@wilsonhometrust.org.nz

Information is also available on the website www.wilsonhometrust.org.nz and facebook page www.facebook.com/wilsonhometrust1

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Special voyage for special siblings

By Don Martin, Parent to Parent Northland Regional Coordinator

L

ast year I facilitated a seven-day Sibling Voyage with the R Tucker Thompson Sail Training Trust, for eleven rangatahi who have a brother or sister with a disability.

Siblings of people with disabilities often speak of feelings of isolation, embarrassment, and resentment. Their parents also have challenges that those without disabled children cannot imagine. To help with these feelings and issues Parent to Parent provides a sibling support programme where the focus is solely on the child without a disability.

Siblings are known to develop certain traits well beyond their natural age such as their maturity level, empathy and patience. The following are snippets of my log entries from the voyage, in particular my reflections about these special attributes.

It is the end of day two. We are anchored in Mahinepua Bay on a beautiful night, the sort that you expect at the beginning of spring.

The weather is settled and the anchorage calm. It is lights out and everyone should be tired. We have early starts to each day and the crew and myself are snuggled in our narrow, enclosed bunks. The curtain is pulled, the light switched on and perhaps a short read before falling asleep. This is the first individual time of the day. Through the compartments of the ship I can hear a low mumble of talking and

laughter – an endless supply of energy. The siblings should be tired but they have so much to share. My workshop today, designed to get them opening up about themselves and their brothers or sisters, was met by “We have already done that last night!”

This is the first full day on the ship. The early morning swim and chores should have been a shock for some but not this group. No shirking, just getting on with what needed to be done. This is the first thing I noticed.

Second observation, throughout the day I observed how supportive and tolerant they are of each other. Decisions and activities as a group seem to come about with little fuss.

Examples include, working together to raise the anchor and set sails for sailing up the

coast, completing the chores as a team and organising themselves for the trip ashore to the Rainbow Warrior monument. [An entry on day four also referred to climbing Dukes Nose as a team – no one was left behind].

In addition to the qualities observed in my log I was impressed by the overwhelming positivity in our discussions: “I enjoy listening to others recalling positive times and hearing about what their sibling is like.”

“It’s cool that they shape who you are.”

“Experiences that I have had have made me a more empathetic person.”

This was an experience that I will never forget for many reasons, and one thing is for certain, it was a privilege to share this time with them.

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Parkinson’s New Zealand About Parkinson’s Parkinson’s is the fastest growing neurological condition in the world.

Nearly 2,700 people are diagnosed with Parkinson’s in New Zealand every year.

Today, close to 12,000 New Zealanders are living with Parkinson’s.

Parkinson’s is a progressive neurodegenerative condition caused by insufficient quantities of dopamine - a chemical in the brain. When dopamine levels fall, movements become slow and awkward.

The most common physical symptoms are tremor, stiffness, rigidity and slowness of movement. Other symptoms include depression, anxiety or apathy, disturbance of normal sleep, constipation, and trouble swallowing or speaking.

The average age at diagnosis is 59.

Although Parkinson’s currently has no cure, treatment is available.

Parkinson’s New Zealand Charitable Trust First established in 1983, Parkinson’s New Zealand Charitable Trust (PNZCT) is the only NZ organisation providing education, information, and support services to people living with and affected by Parkinson’s, as well as their carers, whānau and health professionals We offer a vital range of services including visiting people with Parkinson’s at their homes to provide comprehensive, personalised assessments.

PNZCT has a team of twenty-five Community Educators and Parkinson’s Nurses in regions throughout New Zealand, two in Northland.

The Northland Service Area extends from Te Hana south across to Kaipara and up to North Cape.

Currently Parkinson’s New Zealand is supporting 355 people who have been diagnosed with Parkinson’s, their carer and whanau in Northland.

There are a range of activities available throughout the North including:

• Whangarei - weekly walking group, hydrotherapy, physiotherapy, voice exercises, Movement for PD and ballroom dance, Counterpunch groups.

• Kerikeri - weekly Tai Chi, Counterpunch and Movement for PD groups.

• Carers Groups in Whangarei & Kerikeri.

• Support Groups are held monthly in Whangarei, Waipu and Kerikeri.

• Bi-monthly meetings are held in Dargaville and Kaitaia. All of these meetings have a range of activities both educational and social in nature.

• Upbeat Meetings are held throughout the year for people diagnosed before the age of 60 and are under 65.

PNZCT is available for support, education and information for families living with Parkinson’s. If you or someone you know has been diagnosed with Parkinson’s you can refer online via our website www.parkinsons.org.nz.

Parkinson’s New Zealand charitable trust is reliant on funding from grants, bequests, and donations.

Parkinson’s New Zealand Free phone: 0800 473 4636 Eamil info@parkinsons.org.nz Website www.parkinsons.org.nz

WHEN:

Friday 3rd December 2020 10am-2pm WHERE:

Riverbank Theatre, Reyburn House Lane

For more information: 0800 430 3406

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Keep Moving

P

arkinson’s New Zealand Charitable Trust organises many different exercise groups for people with Parkinson’s as exercise is of huge benefit to those who are living with the condition.

Exercise groups include walking groups, singing and voice training, hydrotherapy, physiotherapy, Tai Chi, ballroom dancing and Movement for PD classes. Counterpunch, which involves boxing training, has recently been added to the weekly groups provided in the Northland area.

Maureen “Stinger” Slako, a client of Parkinson’s New Zealand, has been attending one of these exercise classes and the benefits are immediately noticeable.

“I shuffle in but I walk out,” she says.

Her goals are to walk better and regain strength in her voice.

The small group meets each week to don boxing gloves and practice jabbing

Maureen “Stinger” Slako, loves her weekly boxing sessions. Photo: Donna Russell

at punching bags. Run by coach Henrietta Sakey, the exercises are designed to stimulate the areas of the brain and body that are commonly affected by Parkinson’s.

The session is loud and there is lots of moving around. Henrietta starts the group off with squats and shoulder rolls with a few group exercises before quickly assigning each person to a punching bag and calling out the sequences they have to remember.

Counterpunch coach Henrietta Sakey leads off a session with Parkinsons New Zealand clients. Photo: Donna Russell

BREE & CLINT WEEKDAYS 3PM–7PM

Henrietta says the exercise regime is all about big movements and filling the lungs and using their voices.

“With Parkinson’s, everything restricts and movements become smaller and they tend to lose their speech.

“Here everything is designed to be big,’’ she says, as she instructs the group to yell out loudly as they count through another sequence of punches.

Geoff “Ali” Skudder was diagnosed with Parkinson’s about 10 years ago and is also a client of Parkinson’s New Zealand. He loves the sessions as it helps his strength and brain co-ordination skills. He also does Tai Chi and plays golf using a golf cart to help him get around the course.

“This is a great workout. We get to exercise every part of the body and it challenges me mentally.”

Ken “Tyson” Gavin was diagnosed with Parkinson’s about 16 years ago and says exercise is an important part of his day.

“I do exercises of some sort every morning.

It’s important to keep moving. If I stand still, with Parkinson’s it is difficult to get moving again.’’

More details about the importance of Parkinson’s Specific Exercise and information about Parkinson’s can be found at www. parkinsons.org.nz

94.8FM

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Supporting life after stroke in Northland

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stroke is a brain attack where the blood supply in the brain is stopped by either a bleed or a blockage. A stroke can happen to anybody and can be devastating for many people and dramatically change their life. The effect is certainly wider than just the person who had it.

The Stroke Foundation is the national charity in New Zealand solely dedicated to the prevention and recovery from stroke. For over 40 years, it has actively promoted ways to avoid stroke and dedicated itself to working closely with stroke survivors, their family/ whanau and carers Supporting life after stroke is the role of the Stroke Foundation’s Community Stroke Advisor service. This free service is available throughout Northland to work with stroke survivors and those around them, providing experience, support and hope that is designed to achieve the best possible outcome after stroke.

Community Stroke Advisors, Lynelle Ngakuru (Far and Mid North) and Geno Milnes (Whangarei and Kaipara areas), work closely

with those who have been affected by stroke, making hospital and home visits, supporting families/whanau and caregivers, advising on accessing care relief services and support.

Lynelle and Geno’s, general focus is on getting the stroke survivor back into the community and assisting family/whanau and caregivers to not only understand a stroke, but to adjust to their changed circumstances.

Community Stroke Advisors know about, and link clients to local support groups and recreational activities. These include exercise groups, sports clubs, accessible gyms, art and craft groups, therapies, caregiver, partner or family support groups and younger stroke survivor groups.

The Stroke Foundation provides free information about stroke and managing life afterwards through Community Stroke Advisors and via the Stroke Foundation’s website.

The book “Life After Stroke” provides good information and is readily available in hospitals and from Community Stroke Advisors.

Stroke support organisations in Northland

OUR MISSION:

We work to prevent stroke, improve outcomes, and save lives

are located in the Far North, Whangarei and Dargaville and can be contacted through a Community Stroke Advisor. These groups provide support to people with stroke, and those around them. They enable people to share experiences, understand more about stroke, meet new people and participate in social activities and special events.

Other groups include the Word Masters Whangarei Aphasia Gavel Club which is designed to assist those people who have a communication difficulty as a result of a stroke or traumatic brain injury and a stroke hydrotherapy group assisted by the Stroke Foundation and run weekly at the Whangarei Aquatic Centre with Physiotherapist Isobel Finlayson’s support.

Community Stroke Advisors in Northland Lynelle Ngakuru Far and Mid North (Cape Reinga to Kawakawa) Freephone: 0800 566 383 Email: far.north@stroke.org.nz Gabi Zundorf Northland (Kawakawa to Wellsford) Freephone: 0800 459 954 Email: northland@stroke.org.nz Web: www.stroke.org.nz

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Monique Pourewa

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he stroke came totally out of the blue, according to Monique Pourewa.

She was a fit, active 53-year-old and had just hopped on to an escalator in Australia about 18 months ago.

“It really knocked me for six,’’ she said.

The Ischaemic stroke accounts for about 87 percent of all strokes and occurs when a blood clot obstructs the supply of blood to the brain.

For Monique, the right-hand side of her brain was damaged which affects the left-hand side of her body.

Initially she could not fly home to New Zealand but always wanted to return home to Pataua, east of Whangarei, for her rehabilitation.

“This is not the life I wanted but I’ve always had tenacity and I have recovered quite well. To see me you would not realise I have had a stroke. But I do get really tired easily and for someone who has always pushed myself, it can be really hard sometimes,’’ she said.

Monique said an important part of her recovery has been setting up a new business at Pataua which she has called Rehab with Coffee.

It’s become a popular spot in the village and is well supported by locals.

“It’s never been about the money. The coffee cart is about challenging myself as I was tending to become a recluse. It’s become a place of therapy for other people as well. There is a lot that can be shared over a coffee.’’

Although the business has a popular Facebook page, she purposely keeps her hours flexible to accommodate her needs.

“It gives me the freedom to not open sometimes when I am having a bad day. If I put up regular hours I would open even when I shouldn’t,’’ she said.

Monique initially offered slices but found the effort of dealing with food too tiring and, ultimately, people mostly just wanted a coffee.

“It’s a place for people to congregate without alcohol, which is quite important.’’

& USED

MAGIC TYRES

NEW SHOP

FREE SILAGE & GARDEN TYRES!

PROUD TO SUPPORT THE COMMUNITY

HUGE RANGE OF TRAILER RIMS AVAILABLE 103 1 03 P Port ort Road, Road W Whangarei | Ph 094383534, 094300055 or 0800 867 897

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A

Growing inclusive Sport in Northland

re you after a way to get active in an inclusive environment, meet new people, try new things and hang out with mates?

Parafed Northland is here to give inclusive sport, recreation and play opportunities to those of all ages with disabilities who enjoy being active and getting involved in sport and recreation in beautiful Northland. If you are new to sport and recreation, they are also a safe place to give it a go and help you find your new hobby!

Parafed Northland is one of ten Parafed’s in the country who are committed to ensuring inclusive sport and recreation opportunities in their region. Part of the way that Parafed Northland works is by linking with local sporting clubs and schools to help create those opportunities as well as creating some of those opportunities themselves. Recently they have worked alongside Touch NZ and Northland Secondary School Sport Association to help deliver an Inclusive Wheelchair Turbo Touch Tournament alongside Turbo Touch. Schools across Northland participated and it allowed students of all abilities the chance to represent their school.

One of the highlights of the year is the annual water sports day held at the beautiful Kowharewa Bay in Tutukaka. Here you can try Paddle Boarding, Surf Skiing, Kayaking and Waka Ama, all facilitated by experienced instructors. Not keen to make a splash? Then

there is always some beach cricket, a yummy sausage sizzle or you can just relax with family and friends while you enjoy this beautiful sheltered spot.

Parafed Northland has been a long-time supporter of the Te Raki Northland Wheelchair Basketball Team also, which is growing in numbers as people get involved in this fast

paced, fun sport. Don’t have a sports chair?

That is okay, we can loan you one! This team is like a family, who enjoy weekly local training with opportunities for away tournaments, which connect with other teams throughout the North Island.

This year Parafed Northland has grown with now a part-time contractor based in Kaikohe to help you find the perfect sport and recreation opportunity for you in the North. They are excited to continue to grow throughout Northland to ensure all Northlanders have the opportunity for quality Sport and Recreation.

Parafed is committed to opening doors to create new opportunities in various sports such as Para Cycling, Wheelchair Turbo Touch, Golf, Swimming, Wheelchair Basketball, Water Based Sports, Walk/Fitness Social Groups, Sailing and Precision Ball Sports such as Boccia and much more. The team at Parafed Northland is member focused with our members/ participants influencing what programmes and events that they run.

To find out more about what Parafed Northland have on offer or to get involved you can visit our website www.parafednorthland.com, follow us on Facebook, email them admin@ parafednorthland.co.nz or call Sharon or Anna on 027 705 9520.

PARAFED NORTHLAND IS A NON-PROFIT ORGANISATION THAT PROVIDES SPORT AND RECREATION OPPORTUNITIES FOR NORTHLANDERS LIVING WITH A PHYSICAL DISABILITY.

WWW.PARAFEDNORTHLAND.COM

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Volunteering Northland Disability no barrier to volunteering

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Story by volunteer reporter Janine Duncan

espite being totally blind due to the condition RFL (Retrolental fibroplasia) Kerry Greenfield is a real go getter who is determined to live a life as full and independently as possible .

After living for a number of years in Auckland, Kerry moved to Whangarei six and a half years ago. Her volunteering journey in Whangarei began by approaching Volunteering Northland and after discussing the different opportunities available, it was suggested she register for street collection appeals. Since this initial meeting, Kerry has been involved with collections for Pink Ribbon, Blind & Low Vision, Alzheimers and the Salvation Army.

She describes her reasons for volunteering as “supporting a cause, getting connected and

doing things that are worthwhile and help the community.”

The organisations she has volunteered for have all been very supportive in enabling her to undertake her volunteer work by providing transport etc. In describing those aspects of volunteering she has enjoyed most she mentions ‘the generosity and interest of the public ; mixing with other people and the fellow collectors and helping out organisations who are doing good work.’’

An accomplished musician and passionate about music, Kerry not only specialises in playing the accordion, she also plays the harmonica and loves to sing. Her musical talent has led to performances at several of Whangarei’s rest homes and she regularly busks at Countdown. Additionally, Kerry has already recorded one CD and is currently recording a double album with two accordion songs and the rest will be vocal.

Kerry’s other interests include knitting, crocheting and reading and she has been involved with knitting and craft groups in the Whangarei community. Having knitted and crocheted a variety of pieces such as hats, scarves, slippers, cushion covers etc; she has also sold some of her projects or gifted them as presents and would love to be involved in undertaking this type of work in a voluntary capacity, as a fundraiser. She is extremely open to “any opportunities that come her way’’ and is also very adept at using Braille

computers and devices for email, internet and downloading and reading books and documents.

Apart from participating in fundraising, Kerry would love to volunteer in other capacities; not only in terms of music or craft projects but anything within her capabilities. A challenge for her in terms of being able to volunteer is the provision of transport; however if she wants to participate in any aspect of life, she is determined not to let this stop her.

When asked what advice she would give to anyone with a disability who is considering volunteering; Kerry suggests contacting Volunteering Northland and exploring the opportunities available. However, she would also advise organisations taking on volunteers to ensure they ‘’help them find roles they are comfortable with.”

Kerry’s story is an example of how much talent and ability there is within our community. She is an inspiration to anyone considering taking on a volunteer with any form of limitation or to those within the disabled community who would like to explore further opportunities .

If you would like to know more about volunteering in your community you can visit the Volunteering Northland website www.volunteeringnorthland.nz or email them at info@volunteeringnorthland.nz

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TLC4U2 In Home Care Provider

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LC4U2 – tender loving care for you too provides quality care services from Cape Reinga to Auckland and beyond. tlc4u2 provides ACC funded care for clients who have sustained an injury, whether it’s assisting taking a client to an appointment or 24/7 care for clients who have traumatic brain injuries or spinal cord injuries.

With their locally based team, tlc4u2 provides 24-hour support to ensure you receive the level of support and care you need that is delivered with compassion and understanding. tlc4u2 works alongside clients

and families to individualise care needs and incorporate a holistic approach. Having forged close relationships with allied health services (hospice, social workers, district nursing, physiotherapist, occupational therapist) tlc4u2 has access to health care resources to ensure high quality delivery of services. tlc4u2 also offers a broad range of privately funded home-based care options assisting clients with home help, personal cares, postoperative, rehabilitative, respite, palliative, companionship care and overnight care.

Identifying the appropriate level of care with the goal of maintaining and enhancing lifestyles to promote independence is what tender loving care is all about.

Should you require some tender loving care for yourself or a family member, whether ACC or privately funded give tlc4u2 a call on 0800 852 482 and one of our lovely coordinators will arrange a no obligation visit to see how we can assist.

Some comments from our clients: “Very easy to talk with. I never felt a nuisance and am very appreciative of the help I have received. Took away so much stress I felt.”

“If I was feeling unwell my home help supporter was always considerate. Very very hardworking lady.”

“The caregiver is great which reflects on your company. I consider myself fortunate to have met a clean efficient caring support worker”.

tlc4u2 specialises quality specialisesin inproviding providinghigh live-in care in your your own ownhome, home,enhancing enhancingyour your life style style and and independence. independence.

IN HOME CARE PROVIDER

•• ACC ACC funded funded Care Care •• Overnight Overnightcare care Private Hourly Care Care •• Post/Pre •• Private Post/Pre Op Op Care Care Respite Care Care •• Long Term Care •• Respite Rehabilitation Palliative Care Care •• Palliative For further information contact P 0800852482 W www.tlc4u2.co.nz

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Citizens Advice Bureau Whangarei

āore i te mārama? Patai Te Pou Whakawhirinaki o Whangarei Not sure? Ask us.

The Citizens Advice Bureau is celebrating 50 years of service – providing people with information on everything from tenancy and consumer rights to employment, Covid-19, end-of-relationship issues, and beneficiary entitlements.

The national organisation provides free, confidential and independent advice. The Whangarei bureau also has a free legal advice clinic fortnightly, and a beneficiary advocate.

The bureau is in temporary premises on Level 2 of the old public trust office building at 69 Bank St, next door to its usual home in the Old Town Hall, the Municipal Building, which is about to be repaired. There are six steps from street level to the lift, so if this is a barrier please call us and we can meet you with a laptop in a more accessible spot.

CAB is proud to deliver a people-centred service. “We are proud of the legacy the CAB has created and for the future it will forge,” says Alison Grove, chair of the CAB Whangarei Board. “We want to remind everyone that they can pop in and visit, call us on the free phone, or contact us via our website by using live chat or sending a message.”

“We have the time to listen, and aim to ensure you get the information you need – whether it’s about your rights and next steps in a particular situation, or to find a specific service, we can help,” she said.

We have the time to listen, and aim to ensure you get the information you need – whether it’s about your rights and next steps in a particular situation, or to find a specific service, we can help.

The local bureau answered enquiries regardless of the Covid alert level last year. “If we are working from home we have technology that gives us our phone messages via an email – so please do leave a contact as we can operate on all levels, including Level 4. One of our volunteers will always call you back,” says Alison.

There are more than 80 CAB locations throughout Aotearoa. Staff and volunteers mobilised last year to continue its service during lockdown, and made extra calls for the Ministry of Social Development to check in with over-70s without an email address.

Volunteers undertake an intensive training process that ensures they are ready for queries and issues, and provide options based on research.

The bureau has just trained a new cohort of volunteers who are eager and ready to take your call – try us!

Contact CAB on 438 8046, freephone 0800 367 222, whangarei@cab.org.nz, and cab.org.nz.

Te Pou Whakawhirinaki o Whangarei

We’re here Kei konei matoU

For free, confidential information & advice Citizens Advice Bureau Whangarei,

69 Bank Street, Whangarei e: whangarei@cab.org.nz

Ph: 438 8046 or 0800 367 222 (freephone)

www.cab.org.nz

Te Pou Whakawhirinaki o Whangarei

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Blomfield School

Play is the way!

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t Blomfield School we see the huge value of play for our students’ learning. Play engages the senses, brain and body in active, enjoyable, safe learning. For this reason we feature play in many aspects of our school environment. Like many local schools we operate play based learning with a specialist lens in some of our junior classes. As students get older this can lead to inquiry learning when students are encouraged to further explore, research and build on what they are passionate about. To support our students in play we have a number of initiatives and facilities.

Our heated indoor pool at Blomfield Central Campus is a huge drawcard for our tamariki!

Our Hākinakina / Gym has the ever popular ball pit, swings and scooter ramps – making it the perfect safe place to work off that energy while improving physical and sensory regulation. The massive rope tower in our field give our keen climbers a challenge and different perspective on the school. And the crowning glory is our

new stunning pour n play playground matting featured on this page.

The previous matting at our central campus was monotone, dull and uninspiring with tiles that were lifting and becoming trip hazards. We saw the opportunity to transform our playground into something truly unique. It needed to cater for the wide range of ages, abilities, and physical needs, be culturally inclusive, and incorporate the Universal Design Principles: equitable, simple and intuitive to use,

flexibility of use, and low physical effort.

After consulting with our staff we created our own design that included a road and paths for wayfinding, patterns and balance balls to increase movement, a mound for free play, and numbers, shapes and colours for learning opportunities. The playground as a whole has been transformed into a stimulating outdoor learning environment that can be utilised in a multitude of ways.

Our students are more engaged, active, playful and interactive with staff and each other. In short, we all love it and we are seeing our akonga learning through their play more and more each day!

Blomfield Specialist School Free phone: 09 438 2105 Email: admin@blomfield.school.nz Web: www.blomfield.school.nz

WHEELCHAIR ACCESS

Wills Westenra Ltd specialises in the areas of Family Law, conveyancing, commercial law, estates and trusts, Enduring Power of Attorney and welfare and property orders.

Megan Wills BA, LLB Bridget Westenra LLB Maria Davies BA, LLB (Hon) Helen Kaimarama BA, LLB Kayla Herbert LLB

WILLS WESTENRA LTD LAWYERS

Level 3, 5 Hunt Street, P O Box 127, Whangarei 0140

Telephone: 09 4597000

www.willswestenra.co.nz

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Forget Me Not

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he Northland Disabled Charitable Trust is a non- profit organisation and has been operating the Forget Me Not Adult Day Centre in Tikipunga, Whangarei since 1994. The Centre is a day care service and is available to adults of all ages including those who are young with disabilities, the elderly and frail, those with memory loss, head injuries and/ or other disabilities. The Centre provides quality day care that enhances the welfare not only of the clients but also of the carers and families who look after their loved ones at home on a 24 hour a day basis. The Centre has capacity for 40 client visits per day. The Staff are qualified in their respective fields, and are experienced and caring. Entry criteria is based on you visiting and having a look around to decide if you would like to attend. There is no huge protocols for attendance other than enjoying and benefiting from attending.

The programme is structured with a variety of activities that provide motivation, education, rehabilitation and fun. A cooked lunch is provided daily for clients and ‘take home’ meals service is available for clients who require an evening meal. Clients are transported to and from the Centre by the Trust vans.

To achieve the best quality service to our community the Trust relies heavily on philanthropic funding and sponsorship to keep the service sustainable.

Frozen Meals At Forget Me Not we have identified a need for supply of meals that are easily heated at home.

These delicious meals are not restricted to clients only, but are available for any of the elderly and disabled people in our local community who can no longer cook meals themselves at home.

The meals are cooked in our WDC A certified kitchen by our chefs and are freshly frozen. Moulied meals are available if needed on request.

Forget Me Not was an essential service during the recent COVID 19 shutdown supplying hundreds of meals to the elderly disadvantaged and those with disabilities in the Whangarei Community. These meals were delivered to the person’s doorstep. In response Forget Me Not has had many letters of gratitude from those who would not have been able to cope in the isolation of their homes during this time.

Forget Me Not 110 Boundary Road, Tikipunga WHANGAREI 0112 Phone: 09 4371144 manager@forgetmenot.org.nz www.adultdaycentre.co.nz

ONE PLACE FOR ALL YOUR AUTOMOBILE NEEDS

AtTikipunga we specialize in all mechanical repairs including; transmissions & general services,WOF,brake and clutch repairs as well as tires.We have the latest technology and diagnostic equipment to diagnose problems in all Japanese and European cars.Come in and see our friendly staff atTikipunga Automotive today.Here atTikipungaAutomotive,we are dedicated to treating our customers with honesty,respect,and professionalism.We hope that you find what you’re looking for on our website,but please don’t hesitate to contact us,should you require more information,or to book your car in.

P: 09 437 3866 | 209 Kiripaka Road Tikipunga | Whangarei OPEN: 8.00AM TO 4.30PM MONDAYTO FRIDAY | 8.00AM TO 12.00PM SATURDAY

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Welcome to Spectrum Care – how can we help?

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e’re an independent charitable trust that provides support for children, young people and adults with disabilities and their whanau. What’s our work?

To help identify the potential in every one of the people we serve, then set out to help them realise it.

Our services include 24-hour support for people living in residential homes, and a wide range of flexible respite support options in the Northland, Auckland, Waikato, Bay of Plenty and Wellington regions.

We also provide in-home ‘buddy’ support, post-school ‘transitions’ and goal oriented ‘aspirations’ support, along with a range of school holiday, after-school and weekend respite programmes.

Our independent living support is specifically focused on empowering people towards living their lives of choice – lives like any other – in the community, and we also provide support for people towards achieving their employment goals.

Our flexible support options can be structured to suit each whanau’s unique needs.

These supports can be fully funded through your whanau member’s needs assessment or ‘NASC’ funding, partially funded through Carer Support payments and ‘topped up’, or privately funded on a fee-for-service basis.

Our aim is to ensure Every person with a disability deserves a life of choice, freedom and independence.

We use a ‘one team’ approach to build trust

and familiarity, and work with people and whanau to develop individualised support options that are easy to use and access.

Talk to us today about our flexible support options and to discuss your specific needs.

Human potential is in everyone. Some people just need more support to realise it.

Contact us today to find out more! www.spectrumcare.org.nz info@spectrumcare.org.nz

How can we help you?

We offer a wide array of flexible support options in the Northland, Auckland, Waikato, Bay of Plenty and Wellington regions, which can be structured to suit each family’s unique needs.

Our aim is to ensure people have choice, control and flexibility in the supports they receive and have the opportunity to co-create their own support options. We also offer a navigator service 0508 NAVIG8 aimed at helping families new to disability support.

Contact us today to find out more!

spectrumcare.org.nz

info@spectrumcare.org.nz 09 634 3790 | 0508 NAVIG8 (0508 628 448)

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The Miriam Centre

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ife is difficult for many young people. At the Miriam Centre we work with young people struggling with all sorts of life issues and we support and work with them to find solutions that are positive, less stressful and constructive for each young person.

Sometimes there are personal or family or school or peer issues which are distressing and overwhelming. Frequently we support young people with issues of anger, abuse, violence, intimidation and neglect and disempowerment. Young people may feel their situations are insurmountable, but there is always a way through.

Patsy of the Miriam Centre, our multidisciplinary team of men and women, Maori and pakeha specialist counsellors and social workers, work with the young person, their family whanau, school, Oranga Tamariki, Police, Youth Justice, Courts, or whoever is involved (or part of the problem) to find the solution which will enable the young person to move forward in ways that are good for them.

That offer them a chance of a better, fairer life outcome. We help the young person find their voice and to be heard. Our services are provided free of charge across all of Northland. We operate In schools, homes, medical centres, marae, in cafés, in the Miriam Centre 22 Mill Rd Whangarei and 26 Puckey Ave Kaitaia, or where ever the young person feels most comfortable.

You can contact us at: 22 Mill Road, Whangarei Phone: 09 437 6010 Facsimile: 09 437 6672

PROUDLY SUPPORTING THE MIRIAM CENTRE 96 Bank Street Whangarei | 09 430 4350

www.hendersonreeves.co.nz

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By the athletes – for the athletes

More than just sports

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pecial Olympics has been providing sports training, competition, and socialising opportunities for intellectually challenged athletes in Whangarei and the Kaipara District for almost 40 years. We are also committed to giving our athletes opportunities to experience leadership, to develop and use their initiative, to act as coaches, and to truly play an active part in the running of their own club.

Our mantra, By the athletes, for the athletes, means exactly that. We are encouraging all our athletes to take little leadership opportunities at training and during competition and not merely follow blindly. At our National Summer Games in December this year two experienced athletes will actually attend as coaches. As far as we know this is a ‘first’ for Special Olympics New Zealand wide, and we’re hoping it will inspire other capable athletes in our club to step up as well.

Potentially we can cater for people from 8 to 80 years, but some of our older participants come to training for mainly social reasons and do not enter competitions, however the outing and the subsequent exercise is definitely beneficial Unlike most sports groups, we are multi sport. At present we provide weekly training opportunities in athletics, football, swimming, indoor bowls, and tenpin bowling. People joining us can take part in any, or all of our sports for the one small subscription. A handful of our members participate in 3 or 4 activities each week

A group of committed volunteers help us to provide activities in Whangarei and Dargaville for around 60 people who would normally be sidelined in mainstream competitive sports.

Should you wish to join us as a volunteer, because you will be working with vulnerable people, you will need a current police clearance, which we can arrange. We also ask that, should you volunteer, that you stand back and mentor rather than taking charge.

Sporting and recreation opportunities for persons with an Intellectual impairment We are multisport athletics: equestrian, football, indoor bowls, swimming and tenpin bowling Athletes from 8 to 80 years old Developing self esteem — encouraging initiative Activities developed by the athletes, for the athletes

Interested parents, athletes, prospective volunteers, or volunteer drivers please contact our chairperson: Martin Barrie Phone: 021 118 2422

DOUG THE DIGGER

loves working in the Community assisting people with disabilities Proud patron of

Special Olympics Whangarei For all enquires contact Martin Barrie Phone: 021 118 2422 – Like us on Facebook.

Whangarei

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The Papermill

Come & visit us at The Papermill!

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isitors to The Papermill are always welcome.

When you walk in the door you find yourself surrounded by colourful paper artworks and get caught up in the positive energy that fills the Creative Studio. Papermakers sit around a long table near the windows working on various art projects. Some are working on their entries for the IHC Art Awards, others making cards for the shop. A tutor helps out demonstrating a technique or answering the odd question that flows out of the cheerful and sometimes cheeky conversation between the artists.

In the Papermaking Studio it seems busier because there are many processes taking place simultaneously. Some Papermakers are cutting flax, some are hand mulching, some are cleaning plastics and of course some are standing at the baths making paper under the experienced eye of the Papermaking Tutor.

The Papermill was established in 1989 by Rhonda Rutherford-Dunn who through extensive research settled on papermaking as a therapeutic medium to build self-esteem and confidence in people with intellectual disabilities, empowering them to participate to the best of their abilities in their personal lives as well as in their wider communities. Over 30 years later The Papermill is still going strong, providing a vibrant, safe and nurturing environment. Today, just as much focus is placed on creating paper art as creating the paper itself.

The Papermill, a vocational service, operates as a small business following a structured and routine based philosophy. This is integral to fostering a team environment where everyone shares the load and the journey. At the morning meeting the list of daily jobs such as sweeping floors, laundry, preparing the tray for morning tea, getting the mail etc. are allocated.

Everyone gets a turn. At the same meeting the roster for the studios is read out. The goal is to have one day in the creative Studio and the next in the Papermaking Studio. The daily meeting is concluded by practicing The Papermill welcome that includes the words “We are a group of people on an adventure in an inspiring place to find out what we can do really well.” which fittingly sums up what The Papermill is all about.

Visitors to the Papermill can purchase paper, stationery and paper art, tour the studios and interact with the artists at work. Papermaking workshops are available on demand.

■ Helen Stutt with her 2020 exhibition piece ‘Roly Poly’

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Halberg Foundation providing inclusive opportunities for all

iving young Kiwis with a physical disability the opportunity to experience all the benefits of sport and recreation is what drives the Halberg Foundation team.

The charity, founded by Olympic running legend Sir Murray Halberg (ONZ, MBE) in 1963, aims to enhance the lives of physically disabled young people through sport and recreation with Halberg Advisers delivering the core work of the Foundation.

Advisers are based regionally around the country and support physically disabled young people and their whānau by connecting them to sport and active recreation opportunities and working with local sports organisations and schools to provide inclusive activities.

Northland and North Harbour Adviser, Rhys Edwards, sees first-hand the positive impact that being active can have on a young person. Rhys is passionate about keeping active himself, having studied a Bachelor of Sport and Recreation at AUT with a double major in Sports Management and Coaching, along with being a qualifed Futsal and Football coach.

“I am grateful everyday to connect with families, promote our message of inclusion, and to make a positive impact on the young people we serve,” says Rhys.

As well as supporting whānau in the region, Rhys delivers the Halberg Inclusion Training – a course on modifying physical activity to include all New Zealanders in mainstream activities, events

■ Halberg Adviser Rhys Edwards with participants playing boccia at the Saint Kentigern Halberg Adapted Sports Day in 2019. and programmes. It teaches the core fundamentals of how to adapt and modify physical activities as well as increasing the knowledge and skills of teachers and sport deliveres so they are confident in providing quality sporting opportunities for all.

Last year, twenty staff, Resource Teachers: Learning and Behaviour (RTLB) and whānau from Kamo Intermediate School in Whangarei, completed an Inclusion Training course to help assist them in supporting a student with Ataxia cerebral palsy.

Rhys said all staff came away with a new perspective and understanding around how to

adapt lessons to ensure inclusion.

“The strategies learnt were easy to implement straight away and our student was empowered to share what he had learnt with his teachers and classmates the very next day,” says Michelle Payne from the RTLB. Rhys was impressed with the engagement of the staff and said they all contributed great ideas to benefit their students and make the school inclusive for all.

Contact Rhys today by emailing rhys@halberg. co.nz or call 022 043 5308 for Inclusion Training or support.

The Halberg Foundation delivers an Inclusion Training course on adapting and modifying physical activity to ensure all New Zealanders, no matter their ability, can be included in sport and recreation activities.

The Halberg Inclusion Training course is a Professional Learning and Development (PLD) course which incorporates theory and practical elements and is presented to schools, clubs, and organisations on-site by a Halberg Adviser and tailored to the school’s/organisation’s needs and time constraints.

Participants are given the tools, skills, and confidence to provide inclusive and quality sporting opportunities for all.

For more information or to register for a Halberg Inclusion Training course go to halbergactive.co.nz/halberg-inclusion-training or contact Halberg Adviser of North Harbour and Northland, Rhys Edwards at rhys@halberg.co.nz or on 022 043 5308.

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Age Concern

Age Concern Whangarei Services

P

romoting the rights and wellbeing of older people and those who care for them. How? Enabling people to remain at home & feel supported & secure. One does not have to be 65 years or older, nor to be a member of Age Concern Whangarei to access any of these services.

Dedicated Carer Relief Service: Designed to prevent stress & provide social relief for full-time carers, allowing free time for their own needs, enabling a stress-free break each week.

Home Maintenance Advisory Service: Advice regarding situation in the home where improvement or maintenance is needed. Talk with our Advisory officer for further advice and assistance.

Field Coordination: Information, Advocacy and Support by phone, email, by appointment in office, or own home. We seek to help with issues by assisting client to correct service provider. Advocacy service provides support to resolve issues.

Total Mobility: Assessment for eligibility of subsidised taxi fares for those with disabilities/ health problems. Other options are discussed, if not eligible.

Health Promotion / Education: Currently on hold; Members receive newsletters with good information of what is available.

Resources: Members receive regular newsletters. Two wallboards of brochures on pertinent topics & details of service providers,

available to older persons.

Weekly Garage Sale: on site on Thursday’s from 9.30a.m-12 noon. Donations gratefully received.

Want to Volunteer? Range of positions available. We are always grateful for time offered.

Age Concern Whangarei is an NGO and we need to raise our own funding. We appreciate and welcome membership from individuals, Agencies & businesses, donations and bequests.

Reception is open from 9am Monday to Friday at 16 Manse Street, Regent Phone: 438 8043 or 0800 652 105 email: info@ageconcernwhg.org.nz

At Morris & Morris Funerals we understand times are tough Funeral options from $3990 gst inc includes cremation fee and casket

“Northlands most trusted funeral provider” 24 hours ~ 7 days a week Call 0800 Morris (667747) Whangarei / Dargaville

Ready to make a difference!

The Dynamic van is always on the road all over Northland so we can bring equipment to you.

Just give us a call and make an appointment free of charge.

All products are delivered free all over New Zealand.

Equipment for Purchace and Rental • Walker & Wheelchairs • Mobility Scooters / Power Chairs • NZ Made Adjustable Beds • Lift Chairs & Cushions • Daily Living Equipment • Bathroom Equipment • Patient Handling Equipment • Mobility/ Access Ramps

Training and Presentations At Dynamic Healthcare the owners have over 35 years experience in the Healthcare industry • Patient Handing Training • Falls Prevention • Access Products Assessment

DYNAMIC HEALTHCARE ARE APPROVED SUPPILERS FOR

68B Kerikeri Road, Kerikeri

0800 353536

enquiries@dynamichealthcare.co.nz www.dynamichealthcare.co.nz

Promoting Abilities

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Take the step to work with

people facing challenges in life

N

orthTec gives you the opportunity to study locally and gain a qualification to work with people that need your caring support the most. If you’ve been looking for a change in direction or want to make the most of the life experiences you’ve had, look into our nursing and social work pathways.

Our three-year nursing degree will enable you to go into work in a wide variety of health settings, from hospital-based nursing to work in the community. You can choose to go into work helping and supporting people with mental or physical health issues with a range of Northland employers. You’ll study with people of all ages, from all backgrounds and walks of life, who are brought together by their caring nature and their desire to give something back to the community. Study includes a mix of classroom and online learning as well as work placements and experience.

If you’ve been out of study for a while, or have left school without gaining University Entrance, don’t let that stop you. The New Zealand Certificate in Study and Career Preparation (Level 4) has a focus on health, social services or environmental science.

Taught in Kaitaia, Kerikeri and Whangārei, it’s a great introduction to any of these degree programmes and will help you brush up your study skills and build your confidence.

The New Zealand Certificate in Health and Wellbeing (Mental Health and Addictions) is a Level 4 qualification you can also study in Whangārei, Kerikeri or Kaitaia. It’s something

of a voyage of discovery, as you learn about yourself as you learn to help others. Many students on this programme draw on their own personal and family experiences while studying how to best provide professional support to others.

NorthTec’s Bachelor of Applied Social Work degree is a four-year programme which prepares you for a career working with some of New Zealand’s most vulnerable people. Our degree responds to the specific and current demands within Te Tai Tokerau to help you work to improve the lives of individuals, whānau and communities.

NORTHTEC POWERED

BY ECAMPUS ONLINE Study in the following areas: • Business • Project Management • Leadership and Management • Information Technology A flexible online learning service that gives you the opportunity to gain NZQA accredited courses and qualifications. Learn from anywhere at a time that suits your lifestyle with their easy to use online learning portal.

Freephone 0800 162 100 • www.northtec.ac.nz

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Rhonda’s NorthTec journey

grows confidence and capability

R

honda Courtney is currently studying the New Zealand Certificate in Health and Wellbeing (Social and Community Services) (Level 4) with a mental health and addiction support strand at NorthTec. When she finishes at the end of the year, she’d like to find part-time work outside the disability sector. “I feel like I’ve got more to show in other areas, and I also plan to continue studying.

Either a Bachelor of Applied Social Work or a psychology degree.”

One of the reasons Rhonda chose to learn

at NorthTec was the level of support from her tutor, support staff and the disability advocacy that takes place at NorthTec. Rhonda says, “the staff are very approachable, very accommodating, very supportive and I felt like there was a good community of students. I find myself working with many students for many different subjects. Not just the ones involving social work but also sciences and psychology.

I really love the well roundedness and the inclusivity of NorthTec.” Being able to stay home with her family

and study locally was also a huge benefit.

During her learning, Rhonda has reached out to disability support staff who have been responsive to any issues that have arisen.

Modifications have been made to one of the campus toilets (even though Rhonda spends most of her time in another student block), and changes to a classroom location were reviewed because of potential access issues for Rhonda.

NorthTec has online facilities that allowed Rhonda to continue her work even during some difficult personal and health issues.

“I was still able to attend and give feedback where required, and my tutor stayed in touch all the way through.” She recommends new students utilize all the support tools they might need - updates, access around campus, technology, library services, counselling or health.

In spite of it being intimidating at the beginning, and a big challenge to take on, Rhonda says NorthTec has changed a lot of things for her. “It’s made me switch my perspectives about my capabilities as an individual. As I progressed with my studies and the friendships I’ve built, I also progressed as a person and my confidence grew. It just made me feel more capable thanks to the support and loving community that NorthTec is.”

ENROL NOW FOR SEMESTER 2 Semester 2 starts on the 26th July, so it is not too late to get yourself a step towards the job you have always wanted.

With many different delivery options NorthTec has got something for you.

Freephone 0800 162 100 www.northtec.ac.nz

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Cancer Society

Cancer Society - Awhi mai, awhi atu

I

t’s rare to meet someone who hasn’t been impacted by cancer – either through their own diagnosis, or that of a friend or family member.

Cancer patients and their whanau need someone they can turn to. The Cancer Society is here to provide that support. We are a free service and any one can speak to our small team of dedicated and experienced nurses by phoning 0800 366 066, or calling into Daffodil House, 73 Kamo Rd, Whangarei. Some of our nurses sit within Maori providers to reduce the barriers people may face in accessing our service. We provide care, support, comfort and hope to people affected by cancer, from diagnosis, through treatment, to post treatment. The Cancer Society also has a driving service which can help people get to appointments.

People who need complex chemotherapy or radiation treatment in Auckland can stay at our Cancer Society accommodation facility, Domain Lodge in Auckland.

This year we are promoting a new programme called kia ora E te Iwi, a wananga style one day programme for 6-20 people in partnership with Maori communities or organisations. The programme is designed to raise awareness about cancer, cancer services and prevention. We provide the programme speakers, facilitators and kai. The partnership organisation provides the venue and people to attend. If you are interested please phone Jenni Moore 021 438 610.

The Cancer Society is reliant on the generosity of Northlanders to continue our services.

Northland has shown their support every year by their engagement with Daffodil Day and at our Relay for Life events.

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57

Welcome to the Whangarei RDA

n the late 1970’s the Whangarei Group Riding for the Disabled Organisation began. The group moved many times before finally settling in the Barge Show Grounds, Maunu in 1994. With the assistance of the ASB Trust and local businesses a new complex was built comprising of two covered arenas, stables and yards, an administration block and a relocated caretakers cottage.

We provide a therapeutic riding and horsemanship program to develop increased ability and self-esteem in children and adults with physical, intellectual and behavioural difficulties.

We operate 4 days per week during the school term.

The RDA relies heavily on volunteer help.

Financially we operate using a combination of grants, donations, rider fees, rent, arena hireage, plant sales, and advertising. These cover our operating costs of over $180,000 per year and that doesn’t include repairs and maintenance projects, capital works or replacement horses!

The Whangarei Group RDA is affiliated to the New Zealand Riding for the Disabled Association who support us with information, training and some national fundraising initiatives such as the Gingerbread Horse Week.

About Us We are a not-for-profit organisation that provides services to disabled children and young adults in the Whangarei area.

There are 4 paid staff – Business Manager, Coaching Manager, Stable Manager and Part

Level 2, 136 Bank Street 0800 224 151 | rothbury.co.nz

Time Stable Assistant.

Our herd of 9 horses, which the RDA owns, range in age from 5 years to 22 years old.

We have over 100 riders on our books and are able to ride 80 each term.

People apply from schools, physios, occupational therapists, doctors, hospitals and parents/grandparents.

Each rider has a programme worked out according to their particular goals and each term we reassess these goals and make new ones.

We have the support of a dedicated committee, wonderful volunteers and financial support from public donations and grants from around the community. We also raise funds from the hire of our Arena and function room.

How can you help?

Some parents/caregivers/schools are unable to pay the fees for a term for a lot of reasons.

We never want to have to stop one of our riders from riding because no one can pay for their fees.

We are asking the public, businesses, clubs if they are able to help by sponsoring a rider for 1 term or all 4 terms.

It is very rewarding to watch your rider’s progressing, reaching their goals and then

working towards achieving their next set of goals.

What do you get in return??? You get the knowledge that you are helping someone to do something they thought was impossible.

You will get a report at the end of each term letting you know what the riders goals were and how far they got to achieving these goals.

Some people want to remain anonymous, which is fine, and so the riders parents/ caregivers will not be aware of who you are.

Usually they write a thank you note at the end of each term to let you know that it is very much appreciated.

If you would like to, you can come and meet your rider, watch them at their session and meet mum/dad/caregiver.

If you would like more information please phone Janine on 09 438 7521 .

What’s for sale.

What it’s worth.

Be property prepared

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Find what’s for sale and what it’s worth on OneRoof.co.nz

FRIDAY AUGUST 20th, 2021

9:30am - 4:00pm, gold coin entry.

FORUM NORTH, WHANGAREI

✓ Senior & Disability ✓ Employer Awards Services Information ✓ Community Groups ✓ Disability Equipment ✓ Live Entertainment ✓ Employment Focus

✓ Smorgasbord of over 50 stalls ✓ Mobility Permit Parking

For more info phone 09 430-3406 or email info@tiaho.org.nz

“No Problem, You’re Welcome”

C U S TO M E R S E R V I C E S K I L L S T R A I N I N G I N D I S A B I L I T Y AWA R E N E S S “No Problem, You’re Welcome” is a training workshop and video which focuses on how to provide excellent customer service to people with disabilities when they enter your place of business or health services.

Did you know that 24 percent of New Zealanders are considered to have a disability?

That potentially represents one quarter of your customer/client base – are your staff equipped with the right customer service skills to ensure a positive customer experience for everyone?

Who is the workshop for?

This two hour customer service skills training workshop is ideal for retailers, health service providers, Government , Non-Government Organisations (NGOs) and other businesses or organisations to improve the level of disability awareness with their frontline staff. We tailor-make the training to suit the provider.

These include: • Health Service Providers

• Disability Services

• Non-Government Organisations (NGOs) • Retail Stores/Restaurants • Local/Regional Councils

• Gyms, Pools and Fitness Centres

• Government Departments

• Legal and Accounting Professionals

If you want to ensure your team is providing excellent customer service to 100% of the people who come through your door, contact Tiaho Trust for information and pricing options. Email Arlene Carter : arlene@tiaho.org.nz Tiaho Trust I Ph 09 430 3406 | Fax 09 438 1679 | Web: www.tiaho.org.nz

About the “No Problem, You’re Welcome” workshop Tiaho Trust represents the disabled community here in Northland. Our aim in producing this workshop was to provide understanding for service staff in how to engage with disabled people as consumers, including older people as they become less mobile or develop physical impairments as they age.

The “No Problem You’re Welcome” training workshop uses real examples of people’s experiences as consumers with a disability.

This is a short and cost-effective means of providing professional development for staff that can have 5 -!#2!8'52+ 01-!+!)% !305'+ 12 +"% '*-+13%.(- %:0%.!%2'% ;!+" 91*. $.12+<!2% 0%.-122%<7 52& "%<0 Each of our workshop facilitators are people with a disability. They offer real insights in how to be 4%++%. -%.)!'% 0.1)!&%.-7 &.5;!2# 12 8.-+"52& %:0%.!%2'%- +1 52-;%. /*%-+!12-6 ,9 +"% %2& 1$ +"% '1*.-%7 91* ;!<< )!%; &!-54!<!+9 $.13 5 &!$$%.%2+ 0%.-0%'+!)% 52& 4% '128&%2+ !2 providing excellent customer service to disabled people in the same way as for all your customers.

Regional Business Partners 50% training voucher This workshop comes under the NZTE Capability Development Vouchers scheme. You can apply for this through Northland Inc. and the Northland Chamber of Commerce Regional Business Partnership.

“Having made the “No problem, you’re welcome’ sessions available to all of our operational staff, it was exceptionally well received. Facilitators, Wally and Kim really brought the content to life making the learning fun and memorable. Comments such as “I’d never really thought about that…” were a sure sign that new ways of thinking and acting will result from the workshops.”

Michael Boyd, Manager - Learning & Development, Far North District Council

“Jonny and his team at Tiaho Trust have been providing Disability Responsiveness Training to our 2nd year nursing students at NorthTec for the past 5 years now. The session provided to us has been tailored to suit the learning needs of the students and meet our objectives. Facilitators are knowledgeable, entertaining and connect with the class ensuring a sense of whanaungatanga and a safe learning space. Feedback from the students is always positive and they particularly appreciate learning from people who are ‘living the experience’ and feel the information and strategies provided will enhance their ability to work with people who have disabilities.”

Linda Christian RN, MN, Senior Nursing Lecturer, NorthTec

Tiaho Trust PO Box 374, WHANGAREI Ph 09 430 3406 | Fax 09 438 1679 Web: www.tiaho.org.nz

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2021-2022

CALENDAR OF EVENTS AUGUST 2021 20th 28th

Tiaho Trust “Getting Out There Expo” Forum North Cancer Society Daffodil Day

SEPTEMBER 2021 1st- 30th 1st -30th 1st -30th 7th

World Alzheimer’s Month Muscular Dystrophy Awareness Charcot Marie Tooth (CMT) Awareness Month (part of MDA) Duchenne Muscular Dystrophy Awareness Day

13th – 19th

Multiple Sclerosis Awareness Week and Street Appeal www.msnz.org.nz

15th Date to be confirmed 21st 19th – 25th 21st - 28th 23rd 30th

International Myotonic Dystrophy Day Alzheimer’s Memory Walk – Dargaville, Kerikeri and Whangarei -Round the loop www.alzheimers.org.nz World Alzheimer’s Day www.alzheimers.org.nz World Alzheimer’s Day www.alzheimers.org.nz Arthritis Awareness Week www.arthritis.org.nz United Nations International Day of Sign Languages Limb Girdle Muscular Dystrophy Awareness Day

OCTOBER 2021 1st 31st 1st 6th 10th 12th 14th 22nd-23rd 29th

Cerebral Palsy Awareness Month International Day of Older Person www.ageconcern.org.nz Tiaho Trust/Age Concern Kaitaia Seniors Expo Stroke Awareness Week www.stroke.org.nz World Mental Health Day www.mentalhealth.org.nz World Arthritis Day World Sight Day Blind Street Collection World Stroke Day

NOVEMBER 2021 Nov to Feb 7th 20th

Walk 2 D’Feet MND Scoot the Loop for MS Northland MS Society AGM

DECEMBER 2022 3rd 10th

International Day of People with Disabilities - Tiaho Trust celebration World Human Rights Day www.amnesty.org.nz

JANUARY 2022 4th

World Braille Day

FEBRUARY 2022 1st – 28th

Heart Awareness Month

14th

Annual International Epilepsy Day www.epilepsy.org Ruakaka Surf Day (Date to be announced)

28th

Rare Disease Day

MARCH 2022 1st – 31st

Neurological Brain Awareness Month

21st

Down Syndrome Awareness Day www.nzdsa.org.nz

End of March

Blind Foundation Guide Dog Red Puppy Appeal

26th

Epilepsy Awareness “Purple Day” www.purpleday.org

APRIL 2022 2nd

World Autism Awareness Day www.autismnz.org.nz

Promoting Abilities

2021-2022

CALENDAR OF EVENTS 2nd -7th

Parkinson's Society Awareness and Appeal Week www.parkinsons.org.nz

11th

World Parkinson’s Day www.parkinsons.org.nz

MAY 2022 1st week

NZ Sign Language Week

1st -31st

Huntington’s Awareness Month

10th May

World Lupus Day

30th

World Multiple Sclerosis Awareness Day www.worldmsday.org

JUNE 2022 1st - 30th

Heart Kids Month

1st -30th

MND Awareness Month

20th

FSH Dystrophy Day

21st

Global ALS/MND Awareness day www.mnda.org.nz

JULY 2022

Parkinson’s Northland SUPPORT GROUPS Kerikeri- monthly Kaitaia – monthly Whangarei – 1st Friday monthly Dargaville – 1st Thursday, (alternative month Coffee Group) Waipu – 3rd Friday monthly And monthly Carer Support Groups in Whangarei and Waipu.

Brain Injury Association Northland SUPPORT GROUPS Kerikeri – 1st Thursday monthly Dargaville – 2nd Thursday monthly Kaitaia – 3rd Thursday monthly Whangarei – The last Thursday monthly

Weekly Exercise Groups: Walking, Singing/voice training, Hydrotherapy, Physiotherapy, Ballroom Dance, Movement for PD and Tai Chi (Kerikeri) Counterpunch (Whangarei and Kerikeri) Alzheimer’s Northland Support Groups Whangarei – 1st Wednesday of the month (1pm-2.30pm) And 2nd Thursday of the month (10am-11.30) Ngunguru – 3rd Tuesday of the month (9.30am-11am) Onerahi – 1st Tuesday of the month (10am-11.30) Kerikeri – 3rd Wednesday of the month (10am-12pm) Kaitaia – 2nd Wednesday of the month (10am-12pm) Mangawhai - 2nd Wednesday of the month (11am-1pm) Dargaville – 2nd Wednesday of the month (10am-12pm) Bream Bay -1st Wednesday of the month (10am-12pm) Paihia-fortnightly Thursday (10am -12pm)

Stroke Foundation Northland Support Groups Whangarei – Every Tuesday Hydrotherapy Classes Every 3rd Wednesday Stroke Club Every Friday Toastmaster Gavel Club Group Young Stroke Survivors Group Dargaville – 1st Monday of the month Stroke Survivors Kaitaia – Every Friday Art Therapy Every Thursday Chat Group

Arthritis 20+ Northland Support Groups Whangarei - 1st Saturday of the month Every Thursday exercise class

Multiple Sclerosis Northland Support Group Whangarei – First Thursday of the month Mid North/Kerikeri – Bi Monthly

“GETTING OUT THERE” EXPO 2021 – 20th August 2021 – Forum North

63

“To be the innovative and leading provider of equipment information and support services in Northland”

Our aim is to provide information & support options that are relevant, useful to you and assist you in meeting your goals.

Our Services:

We are here to: • Navigate through support service & agencies • +!&)( ,$! -&"' /%.%*(# • Advise you with your decision making • Assist you with your wellbeing and wellness

DIAS - Disability Information Advisory Service

Equipment for Sale & Hire Mobile Van Service Community Presentations NASC - Needs Assessment Coordination Service

LYNKZ - Community Participation Programme (Whangarei, Kaitaia, Kerikeri, Kaikohe, Opononi) VHN - Very High needs Transition Service Navigation Service Whangarei Budget Services

P 0508 637 200 | 40-42 & 73 John Street, Whangarei E northable@northable.org.nz F ‘northabledisabilitiesservices’ | ‘equipmentplusnz’ www.northable.org.nz | www.equipmentplus.org.nz Equipment Agency at far North Pharmacy P 09 408 0851 | 3 Commerce Street, Kaitaia

Tupunga Hakamana Hakarerekē Hakakaha