ABDUCENS WHD 2021

ABDUCENS ACADEMIC BUNDLE OF CREATIONS

WHD 2021 BY AMSA-UNHAS

PUBLIC POSTER

3RD WINNER Haemophilia: Reject the MYTHS, Remember the FACTS! Karen Kurnia Gabriella N. Mundi Irene Jessica Leonardy

Haemophilia: Reject the MYTHS, Remember the FACTS! Introduction : Haemophilia is a blood clotting disorder caused by the lack of factor VIII or 1

factor XI in the blood . Currently, there are around 200 thousand people with haemophilia 2

worldwide and approximately 20.000 people with haemophilia to be born each year .

Haemophilia is usually a hereditary disease, but in some cases a person can develop haemophilia later in life. The cause of this disease is a mutation of genes that regulate the formation of clotting factor proteins. Furthermore, the lower amount of the factor, the more 1

likely it is that bleeding can lead to serious health problems, even death .

Method : This public poster was prepared using the literature study method by collecting and presenting information from valid sources such as CDC and WHF. Results : We managed to find five misinformations about haemophilia, such as minor cut could lead to death, people with haemophilia cannot do exercise or play sports, the causes of this 3

disease, only males can affect by haemophilia, and the life expectancy of the patient .

Discussion : There are lots of misinformation about haemophilia spreading in society. This poster aims to provide knowledge by giving five facts behind the myths to correct the misinformation.

Bibliography : 1.

CDC. What is Haemophilia | CDC [Internet]. 2020 [cited 2021 Mar 19]. Available from: https://www.cdc.gov/ncbddd/haemophilia/facts.html

2.

WFH. WORLD FEDERATION OF HAEMOPHILIA REPORT ON THE [Internet].

2020 [cited 2021 Mar 19]. Available from: www.wfh.org

3.

WFH. Fast Facts | National Haemophilia Foundation [Internet]. Report on the Annual Global

Survey.

Quebec;

2020

[cited

2021

Mar

19].

Available

https://www.haemophilia.org/bleeding-disorders-a-z/overview/fast-facts

from:

Stop The BLEED with Rest and ICE Maria Alvenia Chaterina Revita, Ahmad Abizart, Ratu Basyasyah Cianora

Stop The BLEED with Rest and ICE Maria Alvenia Chaterina Revita, Ahmad Abizart, Ratu Basyasyah Cianora Introduction: Haemophilia is a bleeding disorder in which the blood does not clot properly caused by lack of clotting factors in blood. Until 2021, there are estimated 400.000 people living with haemophilia worldwide.

Method: This poster studies are based on several reports from CDC, national and international health services, associations related to haemophilia, and journal publications.

Results: The nature of inheritance of haemophilia making it hard to prevent. At the same time, we also face the problem of myths and misconceptions existing within the global community regarding haemophilia. These myths were later clarified in our poster in order to create a right perspective and maintain a better treatment for haemophilia patients so that they can live longer with high quality of life.

Discussion: We aim to increase community awareness by providing the information about how to live with haemophilia. A simple mnemonic “BLEED” was used to describe the signs and symptoms of haemophilia which are longer Bleeding from wounds, Large numbers of bruises, Elbows and other joints’ internal bleeding, Excessive bleeding of mouth and gums, and longer bleeding after Drawing blood. Another simple mnemonic “Rest and ICE” also used to explain the first aid for injury in haemophilia patients.

Revealingthe“TRUTH” BehindHaemophilia Andrea Melynda Panggalo; Ennian Yuniarti Br Bancin; Revina Raissa Gunawan

Revealingthe“TRUTH” Behind Haemophilia Andrea Melynda Panggalo; Ennian Yuniarti Br Bancin; Revina Raissa Gunawan

ABSTRACT Haemophilia is defined as a bleeding disorder characterized by clotting protein factor insufficiency or dysfunction that impair the body’s ability to clot blood

(1,2)

. This impairment

cause Haemophilic patient bleed for a long time after an injury, and has a higher risk to have (3)

deep internal bleeding . In 2018, the worldwide incidence of haemophilia is approximately (4)

21 per 100.000 males .

According to Kementerian Republik Indonesia, there are still people in the society (5)

with minimal knowledge about this disease . In addressing this problem, our team suggest a public poster: “Revealing the TRUTH Behind Haemophilia”.

The data attached below are from several medical and official database, such as NCBI Pubmed, CDC, with the key words: “Haemophilia”, “Definition”.

The “TRUTH” we suggest is a mnemonic for: ● Treat appropriately to increase life expectancy ● Recovery can’t be obtained pharmacologically ● Unstoppable bleeding can happen both internally and externally ● Tracing of Hereditary illness before marriage is highly suggested ● Hemophilia mostly occur in male but can also occur in female Finally, the urge to increase the community’s knowledge regarding Haemophilia is a must, since we can prevent, and treat this disease accordingly to prevent the complication.

BIBLIOGRAPHY 1. World Federation of Hemophilia. WFH has spearheaded a scientific study updating the prevalence of hemophilia to higher numbers than preciously estimated. [Internet].

2019 [cited 19 March 2021]. Available from: https://news.wfh.org/wfh-hasspearheaded-a-scientific-study-updating-the-prevalence-of-hemophilia-to-highernumbers-than-previously-estimated/ 2. RSUD dr. Mohammad Soewandhie. Pengertian Hemofilia: Apa itu Hemofilia?

[Internet].

2020

[cited

19

March

2021].

Available

from:

https://rs-

soewandhi.surabaya.go.id/pengertian-hemofilia-apa-itu-hemofilia/ 3. Zanon E., Pasca S. Intracranial haemorrhage in children and adilts with haemophilia A and B: a literature review of the las 20 years. [Internet]. 2018 [cited 19 March 2021]. Available from: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6774931/ 4. Centers for Disease Control and Prevention. Hemophilia. [Internet]. 2020 [cited 18 March 2021]. Available from https://www.cdc.gov/dotw/hemophilia/index.html 5. Pusat Data dan Statistik Kementrian Kesehatan Republik Indonesia. Hari Hemofilia Sedunia.

[Internet].

2015

[cited

19

March

2021].

Available

from:

https://pusdatin.kemkes.go.id/article/view/15042000001/hari-hemofilia-sedunia.html