HOW YOU CAN HELP

Supported by friends and family, Molly, Zak and their little boy Drew (2) took action by organising their First Steps 7 miles walk

The Action Duchenne International Conference is a truly unique opportunity to engage with the Duchenne community. Here are the ways you can get involved in next year’s event: Become a sponsor - we are only able to provide world-class sessions and expert speakers free of charge to the global Duchenne community through the generous support of the conference sponsors. Put us in touch with potential corporate sponsors and we’ll do the rest! Exhibit at the conference - we make it easy and cost-effective for you to showcase your products to hundreds of Duchenne families from across the world. Volunteer - join our incredible conference volunteer team, who provide invaluable support to our staff for this event.

Offer pro bono support or services - you can help in a number of ways, from proofreading to printing our conference materials, photography to video production. We are keen to hear from experts who would like to help us deliver the conference in 2022.

Please contact us on info@actionduchenne.org to discuss your involvement in the conference and to make plans for 2022!

Lynnette, one of our support officers and a Duchenne mum supports other families on their Duchenne journey Ravi one of our Engagement and Support Officers, is developing support programmes for other adults living with Duchenne Lizzie, one of the 117 volunteers who collectively donated 2,100 hours this year Jonny is a radio DJ and broadcaster and one of our Ambassadors Gemma, a devoted Duchenne mum and a business fundraising volunteer

Neil, Head of Research educating our Duchenne families about the complex science and care options Peer to peer support at a family support event Florence, National Director is committed to supporting and educating young people, adults and families living with Duchenne Matthias expressing himself at a workshop as part of our RoksCool collaboration Tina is a trustee and has extensive experience in the biotech and pharmaceutical industries

Harry Hill @ World Duchenne Awareness Day Tracey is dedicated Duchenne nan and a prolific fundraiser Victoria, one of our Engagement and Support Officers and a Duchenne mum, leads on our community events Our Duchenne Science on Tour roadshow helps families understand complex research Sam, our Operations Manager and a Duchenne mum, supporting young adults at our Annual International conference

Zac is a trustee and a solicitor specialising in life sciences and technology Angela curates our UK DMD Registry and has advocated for families dealing with difficult situations for more than 10 years Action Duchenne 2020 Annual International Conference welcomed 700+ registrants from 70+ countries Michael, big sister Eve and their family met Father Christmas in our Grotto Run with us

Harikat enjoying the lego at one of our family get togethers Mark is a trustee and Duchenne dad who has supported Action Duchenne for nearly 15 years John Miller, dedicated Grandad and our Scottish Advocate, created a fundraiser for us to celebrate his 82nd birthday Fiona, a HR consultant who offers pro bono expertise. Could you do the same?

ACTION DUCHENNE LIMITED 49-51 East Road, London N1 6AH • 020 7250 8240 • info@actionduchenne.org • www.actionduchenne.org