Grieving One Child
RACING TO SAVE ANOTHER
THE COATS PLUS FOUNDATION AND A FAMILY’S MISSION TO SAVE LIVES
BY: NINA RODRIGUEZ, GRIEF + LIGHT
How do you keep hope alive when you find yourself in a race against time to save your child’s life? It’s a question that sits heavy in the heart, and for the Docobos, it has become part of their lived reality. Bryan and Danielle Docobo were once a typical suburban couple dreaming of a family, planning their future, and filling their days with the usual joys and stresses of parenthood. But everything changed when their two sons, Ethan and Liam, were diagnosed with Coats Plus Syndrome, a rare and progressive genetic disorder. What followed was a journey of heartbreak, devotion, spiritual transformation, and ultimately, purpose. Their response to unimaginable grief has become a beacon for other families navigating rare diseases. Through the founding of the Coats Plus Foundation, the Docobos are turning loss into legacy, and ultimately, hope for a cure.
This is t h e ir s t o r y GET GRIEFY MAGAZINE | ISSUE 7