Message from the Executive Director

Dear Reader,

Welcome to the latest edition of the Quarterly . Since publishing the previous issue, I’m happy to share that registration has opened for the 2024 IPPF Patient Education Conference. As you may have heard, this will be our first in-person patient conference since 2019. The agenda is almost finalized, and excitement is high at the IPPF virtual office. Not only will this be the first time in five years that we will gather the pemphigus and pemphigoid community, but it will also be the first time since 2019 that the majority of the IPPF staff will be in one place. It has certainly been too long, and we hope you’ll join us in what is sure to be a great celebration!

All of our current conference information is available at https://go.pemphigus.org/conference2024. This includes topics and schedules, as well as hotel and travel information for Newport Beach, CA. But don’t worry if you are unable to travel. We still have a virtual option, and all registrations include access to recordings of conference sessions.

Recent Quarterly articles can serve as great starting points for the topics we will dive deeper into at the conference. In this issue, just about every article has a corresponding conference session. However, as important as education is for managing a chronic rare disease, it’s often the personal connections that provide the hope needed to feel less alone. This is no small thing. In fact, for some people, it’s everything. It’s also the root of everything we do at the IPPF.

Sincerely,

Patrick Dunn, IPPF Executive Director patrick@pemphigus.org