As Deputy Editor of the CRY Update it is my responsibility to put together this newsletter, and ambition that you find all the CRY news, events and fundraising in these pages to be of interest.
I always endeavour to ensure the information printed in this newsletter is accurate, but please do not hesitate to get in touch with me if you notice something amiss. CRY receives an incredible amount of support and I know occasionally an error will slip through, however any fundraising corrections will be clearly demarcated at the beginning of the subsequent issue’s fundraising section.
I would appreciate hearing from you at tom@c-r-y.org.uk or on 01737 363222 if you have any feedback or comments regarding previous issues. Thank you for your help.
Alison Cox MBE Founder
Professor Mary Sheppard Consultant Cardiac Pathologist
Head Office:
Unit 1140B
The Axis Centre Cleeve Road
Leatherhead
KT22 7RD
No part of this publication may be reproduced, stored in a retrieval system or transmitted in any form or by any means; electronic, mechanical, photocopying, recording or otherwise, without prior permission of the Editor. The Editor welcomes letters but reserves the right to edit when necessary and to withhold publication. Any opinion or statement by the author of any article or letter published does not necessarily represent the opinion of Cardiac Risk in the Young (CRY). Articles pertaining to health-related topics are for information only. Readers should obtain advice from their own practitioner before attempting to diagnose or administer any medication. Mention of any products or procedure should not be considered an endorsement for said product or procedure.
Submission guidelines: We include activities in the “Our Fundraisers” section that raise £100 or more.
Entries appear in the “Our Fundraisers” section according to when CRY sends official receipt of monies raised.
If you can supply a writeup or photos for any fundraising activities you have taken part in, please email tom@c-r-y.org.uk
For more details regarding the events shown on the cover, please turn to the corresponding page references below. Images are listed clockwise from top left:
1. Arjun Coomaraswamy, Professor Sanjay Sharma and CRY Chief Executive Dr Steven Cox at St George’s Hospital before attending the “For Natasha” concert, held in memory of Natasha Coomaraswamy. Page 5.
2. CRY supporters completing a cycle event in memory of Matthew Carscadden. Page 20.
3. A CRY supporter taking part in the 2.6 Challenge. Page 14.
4. CRY supporters taking part in the 3 Peaks Challenge in memory of Robin Hails. Page 27.
5. John Gallagher taking part in a climb to the summit of Mont Blanc in memory of Lauren Gallagher. Page 26.
6. A CRY screening event in Garstang, held in memory of Matthew Hesmondhalgh.
7. The Great Wilderness Challenge, held in memory of Joanne Fotheringham. Page 25.
8. Two young CRY supporters completing a bike ride in memory of Darren Hall. Page 27.
9. A Precision Self Protection Seminar, held in memory of Louise Worth. Page 47.
10. A CRY screening event in Derby, held in memory of Daniel Hughes.
11. CRY supporters taking part in the Thames Path Challenge in memory of Michael Ince. Page 30.
12. CRY supporters holding an awareness stand in memory of Stevie Wiggins. Page 46.
13. A fundraising event, held in memory of Hamish Ross. Page 40.
CRY has been a big part of my life for years. They were my first port of call when I was experiencing cardiac issues. Not only do they support families who have suffered an unimaginable loss, but they also support people like myself.
Team myheart are a small group of individuals who have genetic heart conditions that are managed by certain treatments, drugs and ICD’s.
This group offers support, comfort and the opportunity for us to be in the majority and not the minority, which is where we usually are.
CRY is a very valid charity to me and the reason why I chose to become a CRY Representative.
If you would like more information about the myheart network and the support services that we offer, such as the literature we provide and information on different cardiac conditions, you can visit the myheart website at www.myheart.org.uk.
There is also the myheart YouTube channel, which includes content such as videos sent in by members sharing their experiences of being diagnosed or undergoing certain tests, as well as myheart cardiologist Dr Michael Papadakis answering a range of frequently asked questions.
You can go to the myheart YouTube channel here: https://bit.ly/2QjiTyl
And here’s where you can find the myheart network on social media:
Dr Steven Cox CRY Chief Executive
@Drstevenjcox drstevenjcox
Thank you for everything that you continue to do to support CRY and raise awareness within your local communities. Included in this section are a number of media stories from January to April, as well as information about some of CRY’s events in this period.
Thanks to the work of the CRY Centre for Cardiac Pathology (CRY CCP) led by Professor Mary Sheppard, we have been able to increase the number of families we are able to help after a young sudden cardiac death.
Long-time CRY supporter Sue Dewhirst was interviewed on a BBC Inside Out feature, and talked about her experiences of family testing after the death of her son, Matthew.
“It’s a day we’ve been waiting for, for quite a while really,” Sue said when going for testing. “It would be good to have some closure and to just really get to the crux of things.”
It’s so important for families to have access to this essential support service funded by CRY, both to help them better understand what caused the death but also
to ensure relatives can receive any treatment they may need if a condition is hereditary.
Professor Elijah Behr, who works at St George’s Hospital, helped explain how important it is to carry out family testing: “We’ll find out if she shows any signs of inherited heart disease herself. We suspect that because of her son’s unexpected sudden death at such a young age. We find that in around 40% of families, if we do very comprehensive testing, we’ll find there is an underlying genetic cause.”
“Our main aim was always, when we donated Matthew’s heart, was for some good to come out of all of this,” Sue said after her family’s testing had been completed. “If it does mean that others can benefit from it, then he’ll have achieved something.”
Ann Demaine, who lost her son, Tom, spoke about her motivation for supporting CRY. “We just do not want any other families to have to go through the heartache,” Ann said. “So anything you can do to prevent that, even if it’s just one – but it’s not, it’s 12 deaths a week, possibly more.”
It’s fantastic for CRY to receive this kind of exposure, and for the importance of the research and testing we do to be highlighted.
Abby Lang has been a tireless supporter of CRY for some time now, working to rally as much MP support as she can around England and Scotland. She’s been an integral part of us increasing the amount of MP signatures we have on our pledge to establish a national strategy for the prevention of young sudden cardiac death, and also gave the 2018 Time for Reflection speech at Scottish Parliament and spoke at the CRY Parliamentary Reception later in the same year.
In February, Abby continued to raise awareness of CRY and what we’re doing to save young lives in an interview on the We Can Change The World podcast. Abby shared some of CRY’s key statistics, what our screenings are like, and the importance of gaining MP support.
“The whole reason that CRY has to offer this [screening] service,” Abby explained, “is because there isn’t currently screening on the NHS, and that’s primarily due to the National Screening Committee, which is the governing body which advises ministers and the NHS on what screening programmes should be in place and what shouldn’t. They currently don’t recommend a screening programme for sudden cardiac death in 12-39 year olds. Obviously that’s, you know, quite frustrating and devastating for myself and CRY and all of the other CRY supporters and families who have been affected out there. I would like to encourage anyone who is listening to this or has been personally affected by the loss of somebody to young sudden cardiac death or knows somebody, if your MP hasn’t signed, please get them to do so. We’re in desperate need of more support.”
Abby also spoke about her speech at Scottish Parliament, and touched on why she’s motivated to support CRY.
“There are hundreds of families out there who are fundraising for CRY, but there are also many families who are too overcome by grief and find it too distressing to actually speak about the matter to get involved. So, I feel like I need to act as a voice for them because I know that they wouldn’t want other families going through the same loss that they have. I just don’t want them to be suffering in silence.”
Abby was a runner-up at the Young Scot awards in November 2018, which is an annual event that celebrates young people who are making a difference in their local community. We are so grateful for Abby’s efforts, and for all of our supporters who continue to raise awareness of CRY and gather MP support when possible.
You can listen to Abby’s full interview on the podcast by going to bbc.co.uk/sounds/play/p081j9m2
Arjun Coomaraswamy, a highly acclaimed singer songwriter, suddenly lost his wife, Natasha, in 2018 when she was just 30 years old. In February, Arjun assembled a host of artists and organised a concert, “For Natasha”, to remember her, as well as help raise awareness of CRY and young sudden cardiac death.
The concert was held at the Hammersmith Apollo in London, featuring performances from artists such as
Mickey Singh, Vidya Vox, Jaz Dhami, Guru Randhawa, and Arjun himself. Natasha’s parents also took the stage during the evening and delivered a touching speech. The atmosphere was incredible with phenomenal support for Arjun, Natasha’s family and CRY throughout the night. It was a privilege to be invited along with CRY’s Consultant Cardiologist Professor Sanjay Sharma to be part of this special evening. Thank you to Arjun, Natasha’s family, and everyone who made this event such a success.
Due to the coronavirus pandemic, fundraising changed drastically in this period and largely came to a halt. But this didn’t stop the organisers of the Virgin Money London Marathon from creating the 2.6 Challenge in an effort to keep activities and fundraising going.
Thank you so much to all of our supporters who got involved to keep fundraising for CRY during this difficult time, organising their own activities from 2.6-mile runs, to “keepy up” football and hockey challenges, to video game marathons.
To read more about the 2.6 Challenge and see some photos from those who got involved, turn to page 14.
Social media is a vital part of how CRY interacts with supporters and, first and foremost, raises awareness of young sudden cardiac death and what can be done to tackle it – from preventative measures (screening) to bereavement support for those affected by a tragedy. In the CRY Online segment, we look back at the fourmonth period the Update covers and include a small selection of social media highlights, such as Facebook posts that reached an amazing amount of people, or supporters who tweeted memorable photos at us.
The last few months have been difficult for all of us, as we’ve been thrown into unprecedented times with the COVID-19 pandemic. Unfortunately this has included the cancellation of major fundraising events and our screening events. So, even though our staff has continued working remotely from home and we are still contactable as normal, CRY has been functioning very differently.
We have still been raising awareness of CRY and young sudden cardiac death as usual on social media as well. From January to April alone this year, we recorded 1.18 million impressions (the number of times a post appears on someone’s personal feed) on our Facebook page.
One of our top Facebook posts shared the news of how we benefited from the Tesco Bags of Help Centenary Grant. Thanks to the help of our supporters spreading word of the initiative and voting in their local stores in the areas we were featured, we received the phenomenal amount of £165,000 towards screening. The fact that this Facebook post received so much engagement and was shared almost 500 times only helps increase awareness of CRY and our screening programme a little further.
A little later in January, we shared the response of CRY’s Chief Executive, Dr Steven Cox, to the UK National Screening Committee’s conclusion to its latest consultation document. This document reconfirmed that the UK NSC does not recommend systematic population
screening for cardiac conditions associated with young sudden cardiac death. As we mentioned at the time, CRY will not accept the suggestion that these tragedies are unavoidable. Our reach on Instagram continues to grow as well. Our number of followers increased by 500 in this period to almost 6,000. Instagram provides another platform for us to share key messages and raise awareness of all of the work we do.
Our top Instagram post from this period came in February (Heart Month), as we thanked Arjun and all of the artists who were going to be performing at a concert supporting CRY, which was held in memory of Arjun’s wife, Natasha.
Interacting with us on social media is an easy way to keep up to date with any CRY information you might need. You will receive updates on upcoming events and screenings; and photos from fellow supporters. Every share of a post helps spread awareness about CRY a little further. So, if you’d like to follow along, here’s where you can find us:
We recorded over 820,000 impressions on Twitter from January to April, as we shared CRY’s key messages and information, and received fantastic support in plenty of different ways.
Hampshire Cricket held a CRY screening event in January, and shared a short video filmed on the day. They spoke to CRY Research Fellow Dr Bashar Ibrahim about screening, and Eastleigh MP Paul Holmes even attended to be screened as well.
As February was Heart Month, we encouraged people to engage with us on social media and share our key messages. It was great to see so many people sharing our tweets and posts on other social media platforms, doing their bit to raise awareness of young sudden cardiac death.
In January, we were pleased to announce that Tony Lit MBE, MD of Sunrise Radio, is one of CRY’s New Ambassadors. We are excited to be underway with our partnership with Sunrise Radio and how they are using their platform to help CRY. Besides having guests (like Professor Sanjay Sharma) on their shows to talk about the importance of screening and CRY’s work, Sunrise Radio has also been using plenty of on-air adverts to raise awareness.
As part of the CRY Online segment we include Facebook posts from Chief Executive Dr Steven Cox (found at drstevenjcox), providing thoughtful responses to news and events from the last few months.
This is CRY’s 25th anniversary year. CRY was founded in 1995 to prevent young sudden cardiac deaths and to support families after a tragedy. One of the areas where CRY has transformed the way we understand young sudden cardiac death is through establishing and funding the CRY Centre for Cardiac Pathology. As well as helping families after a tragedy, it has resulted in CRY funded research which has changed policy and medical practice throughout the world.
In 2008, the CRY Centre for Cardiac Pathology (CRY CCP) was launched with donations of £175,000 in memory of Sebastian and Howard English.
The CRY CCP is an international cardiac referral centre. The service is led by expert cardiac pathologist Professor Mary Sheppard, with a team of staff funded by CRY. Young sudden cardiac death is often the first symptom of a cardiac condition and specialist pathology is required to identify the disease and bring the genetic implications of a potentially inherited disorder to the attention of relatives. When a cause of death is “unascertained” and the deceased is aged 35 or under, the centre will provide a free, fast-track cardiac diagnostic service.
More than 80% of UK coroners are now routinely referring to this centre when there is a young sudden cardiac (or unascertained) death. The centre is also increasingly being referred autopsy material suitable for genetic testing which is becoming so important to correlate with the cardiac findings to further help the family understand the cause of death. CRY aims to remove the unnecessary suffering of the family by reducing the wait to know what has caused the death.
As well as helping a family understand the cause of death, expert cardiac pathology not only informs a family that firstdegree relatives need to be screened, but also informs the type of screening the families require. If the investigations report a SADS death, then the family should be offered a series of cardiac tests including an ECG, echo, exercise test, holter monitor and an ajmaline (provocation) test to help identify ion channelopathies. However, if the microscopic
pathological investigations show a structural problem (by identifying myocardial disarray), then the family should be offered an MRI instead of the ajmaline test. This will help to identify structural heart conditions like cardiomyopathies.
Establishing the CRY centre was essential as:
• Families were not being given a clear cause of death when a person died suddenly. Initial post-mortem investigations just need to exclude foul play/criminal activity.
• Coroners did not have the funding to conduct additional post-mortem investigations. The initial post-mortem cost less than £100, whereas an expert cardiac post-mortem would cost more than 10 times this.
• When an expert pathologist was asked to provide an opinion it could take up to 2 years for the investigations to be completed.
• There was a low awareness of the implications and importance of family screening for relatives who may also be at risk, if the cause of death was due to a genetic condition.
The CRY CCP has been supported with significant donations in memory of Hannah Turberville and many other young people, including more than £700,000 donated since 2008 in memory of Sebastian and Howard.
This has resulted in thousands of bereaved families receiving the support and information they need. Now, at the CRY CCP, a full expert cardiac post-mortem report will have been issued within 2 weeks of receiving the referral. The report also ensures the family will have a better understanding of the cause of death and the clinical information that will inform the way first-degree relatives are tested for the same inherited condition. Furthermore, the funding the CRY CCP has received has led to vital research which has transformed the way we understand young sudden cardiac death, impacting international guidelines for how these deaths should be investigated and reported.
More than 2,500 expert cardiac post-mortems on young people (aged 35 and under) have been conducted by Professor Sheppard’s team at the CRY CCP. In 97 (4%) of these investigations it was concluded that the cause of death was due to arrhythmogenic right ventricular cardiomyopathy (ARVC). This conclusion of ARVC was a different cause of death to the one identified at the initial post-mortem. Prior to the investigations the cause of death was sudden arrhythmic death syndrome (SADS), with possible negative repercussions on family screening. This is because first-degree relatives may have been investigated with the wrong sets of cardiac tests, since vital information about the post-mortem was lacking. We have found that
arrhythmogenic cardiomyopathy is now more frequently diagnosed compared to hypertrophic cardiomyopathy in our database.
More than 10 years of funding the CRY CCP has resulted in the largest database of expert cardiac investigations of young sudden cardiac deaths in the world. This has enabled ground-breaking research which has transformed the understanding of young sudden cardiac death in the UK and abroad.
Recent papers have reported:
• Athletes with ARVC are 6 times more likely to die during exercise than athletes with other cardiac conditions.
• ARVC is the strongest predictor of death during exercise.
• ARVC is a condition which affects both ventricles, not just the right ventricle – this is essential for investigating firstdegree blood relatives with the inherited condition.
• The incidence of sudden cardiac deaths due to ARVC is significantly higher in athletes compared to the general population.
• In 78% of deaths caused by hypertrophic cardiomyopathy there are no symptoms prior to death and in most sudden death victims the diagnosis was made only at the post-mortem examination.
• SADS deaths are the leading cause of young sudden cardiac death.
• 80% of SADS deaths occur at rest or during sleep.
• 90% of SADS death occur with no prior symptoms.
• In 13% of SADS deaths it is possible to identify the gene(s) which caused the death.
• We have helped to establish international guidelines for how post-mortem investigations should be conducted after an unascertained or young sudden cardiac death.
Since 2008 Professor Sheppard has contributed to more than 100 journal articles about cardiac pathology and been awarded international recognition. She was recently appointed president of the Association for European Cardiovascular Pathology. Professor Sheppard also leads important research projects in the field. She has been invited to lead in Cyprus on the investigation of young sudden deaths, and collaborates with groups in Denmark and Holland who are doing similar work. The research is also identifying undiscovered, significant findings, like idiopathic fibrosis in the heart (areas of scar in the heart with no clear cause) and idiopathic left ventricular hypertrophy (muscle thickening) – possibly a novel cardiac condition.
In 2018, the World Health Organisation released the new ICD codes (International Classifications of Disease). In the latest ICD codes both SADS and ARVC were identified as important causes of death and given their own specific ICD codes. Without question the work conducted at the CRY CCP and the research published by the centre has played an instrumental role in highlighting the importance of cardiac pathology and these specific conditions. This has resulted in these new ICD classifications, which will have a major impact on recognising the importance of these conditions and finally allow data to be gathered to influence policy and practice in the years to come.
For more information on the CRY CCP, go to www.cry-ccp.org.uk
To watch Professor Sheppard’s presentation about how CRY’s research has transformed our understanding of the causes of young sudden cardiac death, go to https://bit.ly/3aiOEky
507 people were screened at our National Screening Centre at St George’s Hospital.
632 athletes were screened at sports screenings, including: Hull FC Rugby League, Leeds Rhinos Rugby League, World Wrestling Entertainment (WWE), Rugby Football League (RFL), Wakefield Trinity RFL, Lawn Tennis Association, Loughborough EIS, and Northamptonshire County Cricket Club.
4,284 people were screened at family screening events held in memory of: Richard Butcher (Lincoln), Lucy Jessop (Peterborough), Matthew
Cragg (Weybridge), Ben Hammond (Kent), Jonathan Hayman (Devon), Claire Reed (Southampton), Dean Mason (Pembrokeshire), Matthew Hesmondhalgh (Lancashire), Charlie Ibrahimi (Kingston Upon Thames), Daniel Hughes (Cumbria, Cheshire and Derby), Jack Thomas (Blackwood), Sam Standerwick (Abergele), Amy Osborne (York), Jordan Burndred (Kidsgrove), Lewin Hodgins (North Ferriby), Adam Lewis (Warrington), Richard Brember (Havant, Farnham), Carli Lansley (Leigh on Sea), Sam Wright (Derbyshire), Eleanor Keeler (York), Mathew Blease (Hertford), Kayleigh Griffiths (Witham), Charlotte Adams (Maldon), Rory Embling (Leeds), Matthew Dewhirst (West Bromwich), Andrew Parr (Preston), and Bethany Mycroft (Derby).
905 people were screened at 7 school screenings held at: Cranleigh School, Sherborne School, Haileybury College, Canford School in Dorset, Bryanston School, Eton College, and Millfield School.
258 people were screened at 3 further screenings, held at: Gallagher (London and Dorset), and Sandwell General Hospital (West Bromwich).
A statement from CRY on the status of our screening programme
CRY has reluctantly taken the decision to postpone all cardiac screening events up until the end of September. We appreciate this will be disappointing for the families and supporters who are funding these events as well as those people who have booked appointments, but we believe this is the correct course of action in line with government advice and a number of key factors, including:
• The redeployment of our doctors, technicians and other associated medical staff into necessary frontline roles within the NHS
• Cancellation of travel arrangements and screening venues (such as schools and community centres)
• An increase in cancellations / unattended appointments due to health concerns or last-minute decisions to self-isolate
The basic test is an electrocardiogram (ECG) which is a simple non-invasive and painless test that examines the electrical activity within the heart.
Small stickers are placed at strategic points on the chest, arms and legs. Flexible leads (called electrodes) that extend from the ECG machine are then attached to these stickers. The electrical rhythm of the heart is recorded and printed out. This part of the process only takes two to three minutes to perform. The ECG printout is then reviewed by a doctor in conjunction with a personal and family history questionnaire.
If a more detailed image is needed (about 5–10% of individuals), an echocardiogram can be taken – this is similar to the ultrasound scan that is used for a pregnant woman to check the health of her baby. Soundwaves echo against various parts of the heart and they are recorded on a screen. This provides a detailed picture of the heart’s structure and how well it is functioning. This takes about 30 minutes to perform.
The screening programme is under the aegis of Professor Sanjay Sharma.
Please be reassured these events will be rescheduled and all confirmed appointments will be offered on the rescheduled date. We will, of course, liaise with you regarding new screening dates and when CRY’s screening team is able to confirm the booking.
While screening events are currently postponed and we are not able to offer any new bookings, you can still register your interest by clicking here and we will email you when screening events are available again. Due to this unprecedented and evolving situation of COVID-19, we will be reviewing the status of CRY’s screening programme on an ongoing basis. As a team, we are doing our very best to monitor and mitigate the impact of COVID-19 on our services. In line with Government advice, the CRY office is closed but members of our staff are working from home and will be available to assist with any queries you may have, either via phone or email.
We appreciate your understanding at this time and we are sure you’ll agree that the health and wellbeing of all our supporters, staff and those who CRY strives to help on a daily basis, is our primary concern.
Between January and March 2020, before our screening events stopped due to the COVID-19 pandemic, CRY screened over 6,586 people
The CRY Centre for Cardiac Pathology is a national referral centre for the pathological investigation of young sudden death with an established national database.
While the world struggled to cope with the COVID-19 pandemic, facing lockdowns and alternative or reduced work schedules, the CRY laboratory team stood tall throughout, continuing to provide our vital service in these challenging times.
Susanna Cooper, Laboratory Technician Khari Edwards, Laboratory TechnicianProfessor Mary Sheppard is proud of the hard work done by all the team.
We had 285 heart cases and 81 spleen cases from January to April 2020 (see graph above).
Our database forms a valuable source of research within St George’s clinical cardiology team, resulting in publications in high-impact journals.
We are also increasingly getting splenic tissue for genetic testing as genetic analysis combined with clinical follow-up will give valuable information in the future for families.
We were able to make a diagnosis of the cardiac cause of death in all cases with majority being sudden adult death or cardiomyopathies (75% of cases), all of which are important for family screening.
In January, we welcomed fellows Dr Terezia Tavacova (a paediatric cardiology trainee from Prague, the Czech Republic) and Dr Chiarra Dale Carbonarre (a forensic pathology trainee from Verona, Italy) to the department. They have both received training in cardiac examination which they will apply once they return to their countries.
This highlights our role in training the future generation of cardiac pathologists and cardiologists. Their contributions
to the research of sudden death in congenital heart disease and sudden death in obesity cardiomyopathy will be vital in progressing our understanding of these conditions.
Professor Mary Sheppard was invited to the editorial board of leading journal Cardiovascular Pathology, president elect of Pathology Section of Royal Society of Medicine, and the Board of National Coroners pilot study of sudden cardiac death in England.
We say goodbye to our Lab Technician Antonella Cogoni and wish her all the best in her future endeavours.
Luciana Bicahlo will be stepping into the role and we are delighted to welcome her to the team.
To learn more about the research completed at the CRY CCP and Professor Mary Sheppard’s work, you can watch her presentation at the 2019 CRY Family Research Day on our YouTube channel here:
https://bit.ly/2Dmg6RU
Desolate CRY families have often found that organising an event in memory of the fit and healthy young person who had died suddenly, without warning, gave them great solace. It was liberating to be able to say their name, talk about them, and reminisce. They found it cathartic to be able to explain to others what had happened. It opened up the opportunity for family and friends to better understand the circumstances and potential genetic consequences.
They have also found it uplifting if there was a CRY Patron who could pop in and give their event impetus. CRY’s Patrons were often sportsmen and women, which was appropriate as so many tragedies happened during sport which could precipitate the cardiac arrest. Patrons learnt of the potential dangers of sport which could provoke a cardiac arrest if the young person had been involved in vigorous activity and had an underlying condition. It is relevant that few golfers were known to be victims of young sudden cardiac death.
Our first Patrons were swimmer Nick Gillingham, and tennis players
Mark Cox and Jeremy Bates, who was Britain’s No. 1 tennis player for nine years. Jeremy was a tremendous CRY supporter and was key to both helping get all the tennis players screened during the National Indoor Championships in 1992, and the promotion of our Skipathon event in 1993/1994. Jeremy mentions his experience of dealing with his own heart problems in his 1997 “Kids for CRY” interview with young Eleanor McDowall, and how delighted he was to have been invited to be a Patron.
2001 was a year to remember when we were joined by two of the country’s most famous sportsmen: Sir Steven Redgrave CBE and Sir Ian Botham OBE, who became Honorary President of CRY’s Centre of Sports Cardiology.
We were still a small charity and the uplift they gave CRY’s status had a considerable influence on those people and organisations that heard about CRY and were considering donating to us but were unsure whether we were likely to be of any lasting consequence, and thus were reluctant to commit to supporting us.
It was the Fox family who had suggested they would like to write to Sir Steve after the heartrending sudden death of their teenage daughter. It was shortly after Sir Steve had won his 5th Olympic medal and he agreed immediately. He allowed us to create a stunning poster explaining his own experience as a teenager when his best friend and rowing partner, with whom he had just won their first senior event, had suddenly stood up when they were watching TV and then dropped dead in front of him. Sir Steve’s Olympic achievement secured him as an all-time great and his support has attracted significant interest in CRY over the years.
Ian first heard of CRY through an old school friend who had become assistant manager of the Goldldenstone Leisure Centre in Yeovil which was fundraising for CRY in memory of a child who had died in her father’s arms in their swimming pool. She had contacted Sir Ian to see if he would collect the £7,000 cheque for CRY as he was doing a book tour in the area. I took the opportunity to request whether it would be possible for her to consider asking if he would be a CRY Patron. He was well known for his love of children and proved to be curious about CRY’s goals, so requested I visited his home in Yorkshire to talk it through.
Consequently he came on board, attended the first meeting of our All Party Parliamentary Group in the House of Commons, and agreed to his photo being used in our (imminent) next national campaign. Ian is still a very active CRY supporter having recently provided a donation for the purchase of a CRY van for our screening programme in 2014. A year later his foundation also donated four ECG machines and a further donation of a mobile echocardiogram machine.
In 2006, Simon Halliday became another Patron who was in it for the long haul. The well-known Bath and former England rugby team centre successfully persuaded many of the – by now middle aged – members of the notoriously successful Bath Rugby club to get fit and join him (plus friends and relatives) running in CRY t-shirts at the 2006 Bath Half Marathon. His ultimate team of 70, including new CRY Patron John Inverdale, ran in memory of father and son Howard and Sebastian English, raising over £100,000.
He persuaded many of them to reconvene in 2007 at a superb candlelit dinner (and raffle) for over 500 people in The London Marriott Hotel that he had planned with key speaker Sir Clive Woodward. These were both major, time consuming events for Simon to organise and massive fundraisers for CRY. Simon is still alert to fundraising opportunities for us. I was recently invited to a brilliant annual concert for CRY in memory of Lewis Marsh (who had died suddenly when he was 13 years old in 2008) and was delighted to find that I was sitting next to Simon who I had not seen for many years. He had come to support and also give the packed room of several hundred people an inspiring talk of CRY’s purpose and achievements. I shouldn’t have been surprised. He had always made it clear to me that he intended to be in it for the long haul.
In 2010, singer Pixie Lott found herself indirectly linked with CRY when a school asked permission to make their own version of her recent hit record Boys and Girls, with all proceeds going to CRY after Sebastian’s sudden death. She had been curious and decided to surprise the schoolchildren on their last day of the summer term. I found myself next to her as we had a quick lunch whilst we were waiting in the wings for the appropriate moment for her ‘secret’ entrance, and I took the opportunity to ask her if she would be a Patron to which she unhesitatingly
agreed. She has been involved in numerous initiatives and projects that have greatly benefitted CRY ever since.
Some Patrons have been active for a while and some have lasted the test of time. When Opera singer Kathryn Harris first suggested she would like to do a walk for CRY we were puzzled. It was something that had never been considered before. However, she was determined it could/would develop and it certainly has. Her first trial walk that she did with some CRY staff and a few volunteers convinced her, and we have held the CRY annual Heart of London Bridges Walk ever since. It has, over 20-plus years, developed into our biggest event with more people participating and raising increased funds every year. In 2019, 1,574 bereaved mums, dads, families and friends raised the astonishing amount of just under £75,000 for CRY.
Can Patrons make a difference? We could never have managed without them!
It is hard to quantify the impact CRY’s Patrons have had over the years with the many different ways they choose to support CRY. From David Walliams having his screening filmed as part of the launch of the CRY Philips campaign, to Joe Root wearing a CRY wristband, to Pat Jennings closing deals on a charity day in the city, to John Inverdale recording the CRY voicemail message, to Sir Clive Woodward speaking at the launch of the CRY Centre for Cardiac Pathology, to John Barrowman supporting CRY at one of his concerts…
For more information on CRY’s Patrons, go to www.c-r-y.org.uk/patrons
The 2.6 Challenge was created as an easy, simple way for the nation to come together and fundraise for their chosen charities, on the same day that the Virgin Money London Marathon would have been held (Sunday 26th April) before it was postponed due to the COVID-19 pandemic. The 2.6 Challenge was designed to give charities some much-needed help during these unprecedented times, as so many fundraising events have been cancelled in recent months.
The idea was straightforward: come up with an activity based around the numbers 2.6 or 26, and set up an online fundraising page. People could get as creative as they liked, and that’s exactly what CRY’s supporters did.
Our supporters completed walks, bike rides, sets of pull ups, hockey challenges, and all sorts of activities at home.
CRY Ambassador James Gall is part of the England hockey team, and used his skills to walk 2.6km while bouncing a ball on his hockey stick! James’ brother, Jonny, participated as well with his own fun challenge: putting on 26 shirts at once.
England Women’s football player and CRY Ambassador Jade Moore took part with a cycling challenge. Jade completed a 26km cycle and recorded a message to encourage others to get involved and support CRY.
Former cricketer Rob Key also completed a 26km cycling challenge, and encouraged his followers to take part or donate via Twitter.
These pages include some of the photos and videos that our supporters sent in or shared with us on social media.
Thank you so much to all of our Ambassadors and supporters who got involved and helped support CRY! It was fantastic to see so many people taking part to do their bit to raise funds or spread awareness, and we are so grateful for all of your support.
If you’d like to learn more about how you can continue raising awareness and fundraise for CRY (such as virtual challenges and activities you can do at home), you can go to www.c-r-y.org.uk/fundraising-from-home/
Entries appear in the following section according to when CRY sends written receipt for funds raised. The following fundraising was receipted from January to April 2020.
Unfortunately, due to the size of the Update, with so many fundraisers to acknowledge and there being some overlap with memorial fund names, there can occasionally be mistakes. We always strive to enforce new methods to
Kate Bome organised the ‘Remembering Charlotte’ black tie dinner and raised £10,160:
“This year’s Remembering Charlotte was held on 23rd November – the 5th anniversary of Charlotte’s death. Over 160 tickets for the event sold out within 24 hours. The event was held at The Lion Inn in Boreham with comedian Paul Eastwood and vocalist Keeley Smith.
“There was an auction and raffle to raise further funds, with one of the top auction prizes being a holiday to the Caribbean thanks to one of ‘Charlie’s Corporate Angels’, Resort Marketing International (RMI). RMI, based just outside Chelmsford, has been an avid supporter of The Charlotte Adams Memorial Fund since its conception, donating holidays, weekend breaks and more to aid fundraising.
“Their Managing Director, Colin Pegler, also participated in a fundraising Travel Trade Crusade 2019 charity event as team ‘Caribbean Bananas’ driving 2,000 miles across Europe in full banana costume fancy dress, raising over £5,000 for The Charlotte Adams Memorial Fund. This is the second year Colin and his team have participated, raising over £10,000 in total, of which almost £8,000 has been donated to The Charlotte Adams Memorial Fund.
“It was a lovely evening celebrating Charlotte’s life and being together for support and love on such a poignant evening. An amazing £10,160 was raised.”
eradicate such administrative errors, but we apologise if you have ever been affected in some way by this.
If you see a mistake in the Update or you have any questions, please do not hesitate to contact me at tom@c-r-y.org.uk.
• Kirsty Hetherington took part in the CRY Heart of Durham Walk and raised £162 in memory of her cousin.
• Michelle Bailey, Scott Adams, Gareth Bailey, Taz Singh and Olivia Gregory took part in the CRY Heart of Durham Walk and rasied £460 in memory of their daughter, sister, girlfriend and cousin.
Munah Brys donated £100.
Angela Keates sent in £522 in lieu of Trident Structural Ltd sending Christmas cards.
Matthew Atkinson completed the Mt Snowdon Climb along with his team of seven and raised a total of £730.
Neil and Wendy Hubbert sent in £673 raised from the Bootleggers event held in Heacham.
• Birsay, Harray and Sandwick Church of Scotland donated £163.10.
• Nancy Wilson forwarded a donation of £792.10 raised by Mr and Mrs Clouston at a birthday party.
• Nancy Wilson forwarded a donation of £746.90 raised from the Orkney croft models sale.
• Nancy Wilson sent in donations totalling £315 raised through various events in Orkney.
Ella Balfour took part in the CRY Heart of Durham Walk and raised £235 in memory of her brother.
Andrew Mulvey forwarded a donation of £350.
Crocken ARA sent in donations totalling £592.40 raised from a bring and buy table, raffles and the sale of calendars.
Eddie and Pauline sent in £100.
Paul Pickering took part in the Longest Gold Challenge and raised £1,065.
Gemma Cannell sent in a donation of £14,069.62.
Jenny Bergman sent in £100 in respect of the Philly B Cup.
Glen Bicker sent in £673 representing donations received in lieu of floral tributes in memory of Steven’s Nana.
Mr Davies sent in £1,271 representing donations received in lieu of floral tributes in memory of his son-in-law.
• Tracey Lloyd-Jones forwarded £500 donated from her work place (AMT Evolve).
• Richard Blackman sent in £3,000 redonated from Elsie Anderson.
• Liz Beavan donated £100.
• H & S Aviation sent in a matched fund donation of £1,020 in respect of Hazel’s two pop-up cake events.
• Hazel Blackman sent in £282.48 raised from a cake sale organised by Meg and Sarah at Direct Life in Chichester.
• Hazel Blackman forwarded a donation of £1,000.38 raised from a pop-up cake stall at BAE Systems Portsmouth Naval Base.
• Tyler-Jo and Max donated £100.
• Susan and Hunter Blair organised a quiz night and raffle and raised £1,130.
• Hunter and Susan donated £200.
Duff and Phelps Ltd sent in £3,250.40.
InMemoryof
JoanMaryBoreham
Paul Boreham sent in £350 representing donations raised in lieu of floral tributes in memory of his mother.
Fiona Bell sent in £460 raised during a birthday celebration.
JeanAnnBoulton
• The Bianchi and Rung families sent in £100.
• Mark Boulton sent in £1,425.21 representing
donations received in lieu of floral tributes in memory of his mother.
May Stewart donated £200 in memory of her grandson.
AndrewStratfordBowman
Laura and Matt took part in the Great North Swim and raised £567.42.
• Redlands Primary School organised a bake off event and raised £135.70.
• Michelle Bourne sent in donations totalling £132.75 raised from a whip collection and golf day raffle.
RichardBrember
• Chris Brember sent in a further donation of £5,570 raised from completing the Deloitte Ride Across Britain.
• Hayley Brember sent in further donations totalling £2,740.55 raised during 2019.
• Jack Ward-Golden took part in the Portsmouth Coastal Marathon and the Great South Run 2019 and raised £230.
• Gordon Brember sent in donations totalling £103.27 collected at the recent Havant screening event.
• Nikki Lindley sent in £464 raised through Christmas hamper raffles at Fleet Nationwide.
• Paul Mizzi forwarded a donation of £1,000 on behalf
of the Master of Azor Lodge 9208.
• Hayley Brember took part in a Spinnaker Tower Abseil and raised £1,020.
Philip Broad donated £200.
Steve James organised a lottery game at The Plough in Ratby and raised a further £200.
The staff at CAU (Combined Assessment Unit) at Crosshouse Hospital, Kilmarnock held a Christmas Raffle and raised £665.
KNR Leisure Ltd held a charity smartphone quiz night and raised £216.60.
Walter Bryce donated £100.
Hillary and Bill Durrant sent in £2,285, including: £1,170 raised from a craft event at Chaffcombe Village Hall; £300 raised from organ playing and Christmas donations;
£345 raised from the fun quiz at Chaffcombe Village Hall; £165 raised through Hilary’s organ playing and Bill’s pole lythe demonstrations; and £305 raised from the Whist Drive Event.
William Brown sent in £997.91 raised by St Lawrence Church in Biddulph throughout the year.
John and Hannah Gosling donated £100.
Angela Butler sent in £240 raised through a sports quiz.
Anthony Morris sent in £1,267.00 raised by Durham University RFC.
Alice Wheaton forwarded £500 raised by members of the Doveridge Women’s Institute through donations, raffles, and an afternoon of mince pies and mulled wine.
Richard Demarchi sent in £600 raised by members of the Chantage choir through singing at the JW Marriott Grosvenor House Hotel.
• Beth Reid took part in Tough Mudder Scotland and raised £620.
• Toll Global Forwarding donated £1,000.
St Mary’s Church Social Club sent in £140 following a talk by Karen Campbell about the work of CRY.
William Cannon donated £100.
Michelle Carloss forwarded donations totalling £685 raised from a 5K Fun Run in memory of her father-in-law, David, and her husband, Simon.
Primary Care Commissioning Community sent in £376.75 raised from the Leeds Office Staff Sponsored Cycle:
“On Wednesday 18 September, PCC Events held a charity cycle for both CRY and Alzheimer’s Society outside the Leeds office. We set our challenge to ride the distance from Leeds to London, which worked out as 170 miles within one working day. We were kindly given two exercise bikes from Snap Fitness in Leeds who set us up with a marquee in case the weather took a turn!
“By 2.30pm the team of 10 had reached the 170 goal, so we decided to challenge ourselves and get to 200 by 4pm. We achieved our new goal of 200 miles at 3.30pm, which worked out just over the distance from Leeds to Dublin!
The team were a little sore the next day, but very happy and thankful for all the donations they had received!
“PCC are so proud of what we have achieved both as a team and for our chosen charities. We have currently raised £826 in total, allowing us to donate £413 to each charity in order for them to keep up the amazing work they do! PCC are in the process of thinking of their next challenge and we look forward to keep raising awareness for two amazing charities!” Maisie Carscadden.
Mary Tomsett sent in £968.90 raised from charity fairs throughout 2019.
Samantha Sampson held a quiz and raffle and raised £402.
Laura Caudery donated £250.
Adam Exley and Sadie
Christopher-Coles collected £100
over Christmas in Tesco Extra Leyland Lancashire. Adam took his guitar and Sadie held a bucket for people to donate.
• Baerbel Carpenter donated £150.
• Mark Jenkins donated £300.
David McManus took part in the Multi Million Step Challenge and raised £689.18.
St Wilfrid’s Catholic Primary School sent in £145.
Laura Elsworth took part in the Royal Borough of Kingston Half Marathon and raised £728.
Ann Armstrong donated £200.
• Experian UK sent in a matched fund donation of £250.
• Jo Mik sent in £750 raised through the Barston Association’s fete and family fun day.
• Varsha Chohan donated £100.
Stephen Allan sent in £300 from Nailsea Theatre Club.
Dan Kavanagh took part in the Three Peaks Challenge and raised £820.
• Josh Ayto donated £100.
• Anita Dhariwal sent in further donations totalling £6,273.63 raised during 2019.
• Neeharika Bhartiya donated £201.
Lynne Barley participated in a Dressage to Music demonstration and raised £110.
Sue Naylor sent in £150 raised through a plant sale.
Gillian Cheeseman forwarded a donation of £2,500 donated by her employer.
Alan Cousins forwarded a donation of £437.30 raised through a tribute gig at the Monkwood Pub:
“The first fundraising event of 2020, featuring Andy McGowan on sax and singing Madness, etc, held at The Monkwood in Rawmarsh. An incredible £437.30 was raised for our ongoing heart screening programme.” Jackie Cousins.
• James Cook sent in £104.01.
• Kirstie and Lucy completed the Guildford Triathlon and raised £475.
• CRY Patron Jack Clifford donated £380.
• Freddy and Tom completed the Bushy Park 10k and raised £748.75.
• Josh Thomas donated £100.
Team PC took part in Great North Run 2019 and raised a total of £1,810.
Marilyn Cullum sent in donations totalling £600 raised at her 65th birthday party.
• Kirkwall Grammar School Class of 1991-1997 raised £202.33 through their school reunion.
• R S Merriman Ltd held a staff Christmas Raffle and raised £425.
• Ingrid Dalrymple sent in £500 raised from the Bob Budge Memorial Pool Cup competition.
• Kerri, Nikki, Kirsty and Caitlin took part in the Hoy Half Marathon and raised a further £255.07.
• Sarah Davis sent in £762.50 raised by Petts Wood Runners.
• Jackie Baker took part in the Why Not Run event and raised £10,230.11.
• Team Tommy completed the Manchester Half Marathon 2019 and raised £1,682.
• Freddie Holden raised £772.50 through his online page.
• Rosalyn and Team Tommy completed the Yorkshire 3 Peaks Challenge 2019 and raised £1,335.
The Old Emanuel OFC cake sale raised £286.15.
• Andy and Anne donated £540.40.
• Mia Vitkovic sent in a further donation
of £170.40.
• Co-op Member, Pioneer and Deputy Mayor, Sandra Mitchell organised a book sale at Liskeard Co-op and raised £340.
• Andy Demaine donated £109.13.
• Sue and Chris sent in donations totalling £2,354.42 raised as follows: £1,673 from a golf day organised by Sam Chewins and Ed Morris; and £681.42 from The Poynton Male Voice Choir.
• Livvy Beckett took part in the Old Ellesmerian Snowdon Run and raised £808.
• Kate Parry took part in a 22 mile swim and raised £725.
• Ellesmere College sent in a further donation of £722.54 raised from the Ellesmere to Mount Snowdon relay.
• Chris Dewhirst sent in donations totalling £231.51 raised through a recent screening event.
• The Red Lion Charity, Hartford donated £500.
• Deborah Dixon sent in £460 raised at The Sparkly Heart Event.
• Deborah Dixon forwarded a donation of £297.81 collected at Assa Abloy, Manchester.
• Deborah Dixon forwarded a donation of £100 from Aaron’s grandparents.
• Lakeland Limited donated £1,500.
• Vicky Powell-Carden sent in £110 raised from the Strictly Virtual event at Virtual Fitness Ltd.
• The JD Foundation donated a further £25,000.
• Julie Donnelly forwarded donations totalling £246.41 raised as follows: £175 in lieu of sending Christmas cards; and £71.41 from collection pots on the bar at the George Staple Pub, Sidcup.
• Gillian Hodkinson donated £100.
Julie Bowden sent in £501 raised by colleagues at Baily Court Job Centre in Sheffield.
• Nicolas Blyth took part in the Coast 2 Coast challenge and raised £467.
• Jason Wilson completed a Coast to Coast Cycle in 2019 and raised £575.
Gordon Dunn sent in £100 raised in lieu of sending Christmas cards at his workplace.
Ian Green donated £100.
Hilary Edwards donated £289.31.
John White Funeral Directors sent in £610 in donations received in lieu of floral tributes on behalf of Mrs E. M. Edwards in memory of her husband.
• Anne Embling forwarded a donation of £229.49 raised by Angel Wings Floral through their Christmas wreath workshops.
• Anne Embling sent in £175.80 raised at a music quiz hosted by Michael Steer.
• Anne Embling sent in £253 raised from the Mr and Mrs event held at Rory’s Return.
• Ackworth Junior Girls Football Club raised £265 through a bucket collection at the Co-operative supermarket in Ackworth.
• John Hodgkiss sent in £2,000 raised at the Wakefield & District Round Table, Festival of Beer 2019.
• Ackworth Ladies Football Club raised £102.
• Chris Embling sent in donations totalling £503.20 raised from a screening at Royds School.
Kay’s family and friends took part in a 5-a-side football tournament and raised £11,672.
David Faulkner sent in £278.
• Julian Craxton sent in £160 from the junior squash tournament at Radlett Squash Club.
• Vicky Rees sent in £810.50 raised from the Berkhamsted School talent show.
• Julian Craxton forwarded a donation of £174 raised from the Radlett Junior Squash Tournament held on 2nd February.
Customers and staff at Borno Pharmacy in Herne Bay raised £722.70.
Claire Chapman organised an annual dinner dance and raffle and raised £1,581.95.
Supporters at Tesco House completed the annual Supply Chain Walkathon and raised £5,703.
• Lauren Carradice completed the Phuket Marathon 2019 and raised £373.15.
• Katy Godwin took part in the Great North Run 2019 and raised £1,000.
• Lloyds Bank Foundation sent in a matched fund donation of £500 in respect of Charles Barrowman’s fundraising efforts.
• Maria McCullough took part in Night Walk 2019 and raised £316.
• Margaret Strang sent in £150 at Christmas from both of Ben’s nanas.
• Lewis Champion took part in the Great Divide Mountain Bike Route and raised £371.75.
• Graeme Patterson at Musselburgh Rugby Club forwarded £1,560 raised through a collection.
• Keith Forsyth sent in a further donation of £704 raised from birthday celebrations.
• Darina Cunnane took part in various fundraising events throughout 2019 and raised £1,470.66.
• Hamish and Keith completed the National Peaks Cycling Challenge and raised £9,312.88.
• Cate and Zoe took part in the Edinburgh Kiltwalk 2019 and raised £686.42:
“Zoe, who is only 11, is very active (along with her brother) and loves to ride with her cycle club the Edinburgh Road Club (ERC), which is the club Ben also rode with. This year the club has been hosting a few fundraising events to raise money and awareness for Ben’s fund and CRY.
“Earlier in the year, Zoe knitted 3 pairs of club colour mittens which were raffled off and raised £74; and this weekend (September 15th 2019) Zoe and I walked 14.5miles (23km) in the Edinburgh Kilt Walk. It was hard going as we had only reached about 8 miles in any practice walks, but we made it! Taking just under 5 hours (moving time) we crossed the line having achieved a huge goal for an 11-year-old! Our aim was to raise £200 but we smashed that and with the 40% uplift from The
Hunter Foundation, we have made a huge £687! Therefore, this year Zoe has helped to raise an amazing £761 for Ben’s fund and CRY.
“Thank you for the work the charity does. I believe some of this money raised with be used to host another screening next year, which my son will be just old enough to be involved with. We are an active family, so feel this is a very worthwhile charity to support. I wish the charity every success going forward.” Cate Blyth.
Alex Eaton, 161 (Ullapool) D/F forwarded £1,483 raised from the Great Wilderness Challenge:
“This physically challenging fund raising event has taken place in the Highlands of Scotland every August since 1986. The Ullapool Air Cadets have been involved over the past 22 years since 1998 and have so far raised a total of £31,240 specifically for our adopted CharityCRY’s Joanne F. Fotheringham Memorial Fund.
“Cadets, Adult Staff members and other supporters walk or run a 13 or 25 mile route through the wild mountain scenery of Wester Ross. The Highland weather can more often than not be very changeable, with rain, deep mud and swarms of midges providing quite an additional challenge to the walkers negotiating the difficult terrain encountered in some parts of the walk. Despite the difficulties, all involved really enjoy taking part in the Challenge and meeting other walkers along the way. There are
Roslyn Gammon sent in £170 raised from family and friends.
plenty of cheery smiles in the photographs anyway!
“Unfortunately no Cadets were available to take part this year as all four were either away from home or working. Taking part in the 2019 Event were Warrant Officer Colin Boyle and supporters Adrian Mackenzie, Alan MacCormack, Matthew Shewan, Campbell Mackintosh, Shaun Hodgeson and Matthew Mackenzie, who between them raised £1,483 in sponsor money. Alex and Fraser Fotheringham accepted the cheque on behalf of CRY from W.O. Colin Boyle RAFAC. Alex gave a very appreciative speech, commending the Ullapool Cadet Unit for its ongoing loyalty and effort in completing the Challenge and for continuing to raise such outstanding amounts for CRY. She also explained what happens at the very successful and fully attended Heart Screening Events which take place in Ullapool & Stornoway, using the amounts we raise.”
Glenn Gallagher took part in climbing Mont Blanc Summit and raised £1,249.84.
James and Margaret Gault sent in £200 in lieu of sending Christmas cards, and £30 from Gladys Peal and Mr Palmer.
Mrs A Gelling sent in £708.21 representing donations received in lieu of floral tributes in memory of her husband.
• Jackie German sent in £122 raised from collection boxes at her brother’s shop; and a further donation of £173.
Jan Godfrey donated £400 in memory of her husband.
Linda Goodwin held a coffee morning and Christmas raffle and raised £165.
• Chloe Dunscombe sent in £337 raised by Velo Lounge, Bath and Arcades Band through a charity gig.
• Fiona Gore forwarded £100 raised from a collection at the Bricklayers Arms organised by Jo Pritchard.
Tom and Judy Green sent in a further donation of £200.
• Shelagh Green sent in £530 representing donations received in lieu of floral tributes in memory of her mother, Jean Ramage.
• Ian Ramage donated £100 in memory of James and James’ grandmother, Jean Ramage.
Ruth Turner completed the 3 Peaks for 3 Charities Challenge and raised a further £822.63.
Mrs Bailey sent in £158 representing donations received in lieu of floral tributes in memory of her mother.
Staff at G & B Finch Ltd donated £227 collected over the Christmas period.
Sharon Thorpe sent in £1,135 raised by family and friends through various events.
Alison Cook donated £100.
Northern Powergrid sent in £1,500 donated in respect of employee Nik Longbone’s Three Peaks Challenge:
“Robin Hails’ work colleagues at Northern Power Grid completed the Yorkshire 3 Peaks Challenge on August 3rd 2019 to raise money for CRY in memory of their good friend and colleague. What a fantastic day it was and a gruelling challenge on a hot, humid day.
“Mum and dad and Rob’s brother, Ben, were there to support the lads in their phenomenal effort to raise £2,635 and counting! Massive thanks to all those who contributed, especially the smashing lads.” Liz and Steve Hails.
Kirsty and Ollie took part in Ollie’s charity ride and raised £2,237.10:
“It was a fantastic day. Ollie cycled over 11 miles. He carried on with my National Childbirth Trust (NCT) friends to the pub!
“Theo, Ollie’s brother (who’s not five yet!), managed over six miles! He turned back with my husband, Tim, and
Bruno, our dog! I recorded 10.8 miles for me! The weather was dry and my NCT friends cheered us on at particular points!
“Both my boys were amazing, I’m so proud of them.
“Here are some photos. The photo under the bridge has Jake Davidson and his mum Susy joining us. The total raised is £1,900 and more.” Kirsty Higman.
• The Savannah Charitable Trust sent in £280 in support of the London Beach Charity Weight loss Challenge.
• Stephen Weller raised £700.
• Russell Bournes raised £800.
• Malcolm Mackenny raised £700.
• Gregory Bournes raised £800.
• The Savannah Charitable Trust held a Dinner event and raised £3,086.
The Bamford Sheepdog Trials Association raised £531.
Angela Hancock sent in £410 raised by her mum, Anne Barber, through various craft stalls throughout the year.
Reece Jones completed the Toronto Half Marathon in 2015 and raised £1,148.37.
John Harrison sent in £179.12 representing donations received in lieu of floral tributes in memory of his husband.
Sam, Berv and Bear took part in a wild sponsored adventure on a rickshaw through the Himalayas in India and raised £3,000.
Rachael Hayes sent in £205 raised from her Drawlloween illustrations in memory of her sister.
• Marion Hayman sent in £2,527.21, including: £326 from Community Matters programme at Sidmouth Waitrose; £21.21 from a collection box at Winchester’s and Sons in Sidmouth; £125 raised at the Sidmouth Community College screening; and £2,055 representing entry fees to the Sidmouth 4 Trigs Challenge which unfortunately was unable to go ahead.
• Barry and Paula sent in donations totalling £1,333.20, including: £130 from Christmas cards; £355 from the Garstang Psychic Circle event; £180 from the
Richmond Family; £150 Kenlis Arms; £73 from John Waite; and £445.20 Alison Allen.
• Nathan’s Wastesavers sent in a further donation of £219.
• Paula Hesmondhalgh sent in £1,221.88, including: £31 from Julie P; £425.30 from donations in memory of Tom Burrow and Matthew; £50 from Rosie Gorst; £166.26 from Quilters Quarters; and Dewlay Cheese £152.33.
• Matthew Hesmondhalgh Memorial Fund - In Memory of Geoff Lambert. Suzanne Lambert donated £500 representing donations received in lieu of floral donations for her father, Geoff Lambert.
• Nathan’s Wastesavers sent in a further donation of £186.40.
Michael Hick sent in £155 raised by Sulzer Service Leeds Christmas raffle.
Tony and Joan Hillier sent in donations totalling £525.
Carreana Taylor sent in donations totalling £1,753.08 raised from the Black Combe Beagles Hunt Ball.
Jane Turner sent in £300 raised at a car boot sale.
Gemma Holland forwarded £100 donated by Lesley Machin in memory of her husband.
Doreen and David sent in £140 raised in lieu of gifts at their golden wedding anniversary in memory of their godson.
Jane Howard sent in £1,141 raised from a Christmas stall and a collection at Tesco Thetford.
• Tom Smart sent in £2,981.36 raised through the Alex Hubbard Memorial Football Tournament in 2019.
• Cisco Systems Foundation sent in a matched fund donation of £3,591.50.
• Kim Hughes took part in Dan’s Memorial Bike Ride and raised £135.
• Dave Hughes sent in £4,733.33, including donations of £1,400; and a donation of £3,333.33 from Rolls-Royce Nuclear Power Branch to support the Derby Heart screening session.
• The Estates Team leaders at Royal Stoke University Hospital, Alan, Lewys and Marc, organised a Christmas raffle and raised £351.22.
Richard Cockcroft sent in £500 raised from the Bowsden Shooting Syndicate.
Matthew Shepherd donated £100.
• St Winefrides’s Catholic Primary School held a week of fundraising and raised £123.36.
• Charles Stanley donated £1,000.
“On 4th September 2019, employees from Charles Stanley’s Head Office enjoyed an evening of musical bingo in London’s trendy Shoreditch. The event included a raffle, with all proceeds going to our Charity of the Year – Cardiac Risk in the Young (CRY).
“Our Charity Champion, Katie Alcock, from the Birmingham office sourced raffle prizes from a number of companies, including www.experiencedays.co.uk, Boots, The Entertainer, MySpike, TK Maxx, www.buyagift.co.uk, www.prezzybox.com, The Body Shop, Tesco, Morrisons, Pizza Express, Sainsbury’s, Wilko and Asda.
kilometre walk along the Thames Pathway from Putney Bridge to Henley. Katie Alcock, from the Charles Stanley Birmingham office took part in the Challenge, with her boyfriend, Charles (Charlie) Parker. Katie had nominated CRY as Charles Stanley’s Charity of the Year for the 2019/20+ year, having lost one of her oldest friends in January 2019, following a sudden cardiac arrest.
“The Thames Path Challenge was another way to help them reach their overall fundraising target of £20,000 for the year.
“Whilst the challenge started well, both Katie and Charlie were feeling the effects after 47km and had to retire at 50km, meaning they both received their Half Challenge Finisher’s Medals.
“They both said, ‘this was an amazing event to be a part of and whilst we’re gutted we can’t complete the full distance, the half challenge is still a huge achievement, and brings us closer to our fundraising target.’”
“Prizes were also donated on behalf of Charles Stanley and staff members and overall the event raised over £700 for CRY, and helped Charles Stanley move one-step closer to their £20,000 fundraising goal, in memory of Katie’s friend, Michael Ince.”
• Katie Alcock at Charles Stanley forwarded a donation of £2,000 from the Duncan Norman Trust Fund.
• Kate Alcock at Charles Stanley sent in further donations of £1,101.54:
“On 7th September 2019, employees from Charles Stanley took part in the Thames Path Challenge, a 100
Sarah Ramsey sent in £257.30 raised through a first aid evening at Alder Vets in Guildford.
The families of Ysgol Hafan y Mor, Tenby raised £136.
Mixed Blessings Community Choir raised £460 from their sing-outs throughout the year.
• Jo, Lucy and Paula completed TrekFest ‘The Beacons’ 2019 and raised £3,169.62.
• Kathy and Annabelle took part in Trekking to Machu Pichu and raised £895.
Margaret Bailey donated £200.
Kerrin Jones, Lianna, Ruth, Zoe, Sian, Domo, Karen, Benny, Mandy, Milfanwy and Jessica climbed Pen-Y-Fan and raised £650.50.
Audrey Jones sent in £354.24 raised from the proceeds of Alexander’s art work.
Miss V Jones sent in £369.56 representing donations received in lieu of floral tributes in memory of her mother.
• Andrea Joyce sent in £120 raised through the Lyonshall coffee morning.
• Cassie Reade took part in dry January and raised £220.
• Weobley School held a ‘Wear Red Day’ and raised £1,150.
• Colin Griffith at Dinmore hill Christmas Trees sent in £1,000 raised through the Santa’s Grotto event at Festive Farm.
• Roy Harris (Bromyard) Ltd donated £500.
• Students and staff at Whitecross School raised £693.31.
Neil Kellogg and family sent in £206.60 raised from match day collections at the Mickleover Sports FC v FC United of Manchester football game.
• Martin Kerwood sent in £650 representing donations received in lieu of floral tributes in memory of his mother-inlaw, Betty Clayton, Jenny’s grandmother.
• Oliver Evans donated £100 in lieu of a wedding favour.
Batool Khan sent in £1,000 in memory of her husband.
• Mya and Stephen donated £200.
• Margaret Oscar donated £300.
Parvin Kukar sent in £250.
Katie Harvey took part in Royal Parks Half Marathon 2019 and raised £480.
• Jonathan Emmerson donated £100.
• Sharon Lammiman sent in £688 donated in lieu of floral tributes in memory of her husband.
• Rhys Herman took part in the Bolton Ironman Triathlon and raised £1,096.
• David Deaves donated £100.
• Ruth Cain sent in £175, including: £10 from Ken and Janet James; £70 from Dave Smith, York RI Collection boxes; and £95 from Nichola Butler, Co-op Funeral Service.
• Ian and Duncan Robertson sent in £2,500 raised through the 5 Towns Classic Golf events:
“On 12 September 2019, we organised ‘The 5 Towns Classic’ Golf tournament, held at the Darrington Golf Club, West Yorkshire. Over 12 teams enjoyed a competitive
event throughout the day which was followed by a threecourse meal, entertainment and an auction/raffle. The amazing amount of £2,500 was raised for CRY in memory of Michael Land. The picture shows former Ireland international footballer, Paul Green, presenting the cheque to Michael’s mum, Ruth, and her partner, Allen Haywood, who participated in the golf event.”
• Karl Lansley donated £5,000.
• Neil Keeble sent in £860 raised from taking part in the Thames Path Challenge 2019.
Sean Maloney took part in ‘go dry for CRY’ and raised £220.
Nicola Lee sent in £131 raised through a Tombola at Morrisons.
Jack Storr and team took part in the Harewood House 10k and raised £290 in memory of his brother:
“Me, my sister and cousins took part in the
Harewood House 10k on 23 February 2020. It was a BHF event, but we wanted to raise a little bit of money for CRY too, in memory of our brother and cousin, Jonathan Leigh.”
Those who took part: Nicola Storr, Alison Leigh, Mark Thompson, Matthew Thompson and Louise Thompson.
Sophie Harris sent in £105 raised in lieu of wedding favours.
Peter and Kim donated £15,000 raised through The Adam Lewis Experience.
Howdens Uttoxeter donated £250.
• AA Motors held various fundraising events throughout 2019 and raised £1,271.48.
• A&A Motors (Yorkshire) Ltd sent in £1,272.
• Swanland Parish Council sent in £202.36 raised from a street collection at the Father Christmas on the Pond event.
• Dan Marren sent in £623 raised from a sponsored shave:
“In October 2019, Dan Marren, Senior Estimator at PDR Construction and a member of local rugby club Hullensians RUFC, decided to shave off his beard for charity. That might not seem much of a challenge to many of you, but Dan has sported his big beard for 17 years and
his wife and daughter had never seen him clean-shaven!!
“Dan was lucky enough to book a free heart screening at the April 2019 event along with a few others from PDR Construction, with whom the family have a close connection. Dan made contact with the family in September 2019 and offered to donate all the money raised to Cardiac Risk in the Young, specifically the Jamie Loncaster Memorial Fund.
“There was a fair amount of coverage on the PDR Construction Twitter and LinkedIn social media feeds to promote the ‘Great Big Beard Off’ and to date over £600 has been raised as a result. Dan’s donation page is here if you’d like to support him: Dan’s Great Big Beard Off Jamie’s family are hugely appreciative of Dan’s efforts and to prove that he went ahead with it, he’s kindly provided a before and after mug-shot as evidence…!” Graham Loncaster.
Louise White took part in Walking the Essex Way and raised £120.
Emma and Jess took part in The OTILLO World Championships 2019 and raised £500.
Rachael Ayre took part in Great North Run 2019 and raised £753.
Staff at DLA Piper UK LLP completed the Great Manchester Run in 2018 and raised £941.
• Tir na nOg GAC Randlastown sent in a further donation of £1,150.
• Garry McGrotty sent in £1,000 on behalf of The North East Golf Alliance.
Norman Locock sent in £122.50 raised from proceeds of a quiz held at Golberdon Village.
• Tolsta Community Development Ltd donated £10,000 for screening on the Isle of Lewis.
• Kate MacDonald, her husband Iain and family donated £100 in appreciation of the screening in Stornoway.
Alex, Anna and Taylor completed the Aberdeen Royal Bank of Scotland Kiltwalk and raised £915.
Donna Williams took part in the Royal Parks Half Marathon 2019 and raised £572.60.
Ms Marsh and her sister made and sold Christmas decorations and raised £150.
• Maureen Marshall forwarded a donation of £250 raised from the Edge Hill collection boxes.
• The Michael Vella Skem Athletic Girls Football team raised £1,900.
• Maureen Marshall forwarded £982 raised by the staff at Sopra Steria.
• Gwenfair Mason forwarded a donation of £300 on behalf of the Pembrokeshire College Women’s Institute.
• Haycastle Community Forum donated £300.
• Pembrokeshire Agricultural Society donated £600.
• Gwenfair Mason forwarded £100 raised through the Narberth Civic Week.
Sheila and Jack Payton sent in £100 in memory of their godson.
Stuart Jamieson donated £800 raised from his birthday fundraiser:
“Stuart decided that he didn’t want any gifts for his 50th birthday and instead asked for
donations. We raised £800 on the evening and will be donating all proceeds to CRY. It’s a cause close to our hearts after our dear friend lost his son, Peter McAvoy Jr, back in 2014. Peter McAvoy Sr campaigned tirelessly to raise awareness and funds for CRY until his own untimely death in August 2018. We want to continue fundraising in their memory and are delighted to be able to do so.” Gemma Jamieson.
Malcolm and Janette Pollard donated £100.
Phil Hendon took part in a skydive and raised £775.
Dave McGrath took part in the Lancaster Marathon and raised £260.
Tom Machell donated £126.
Helen Endacott sent in £2,250 raised through a concert held by the Pico Players.
Mrs J Mellor sent in £524.60 representing donations received in lieu of floral tributes in memory of Daisy Cope and her husband, George, Daisy’s grandfather.
Nicola Merriman forwarded a donation of £700 raised from a Santa’s grotto event:
“This is an annual event for work colleagues and family friends where I run the tombola stall in aid of CRY. But this year we did a raffle and held a game to guess the teddy’s name. Everybody helps on the day, especially the gardeners who play a big part dressing up as elves and Santa. The children are taken to Santa’s grotto through the woods it’s very magical, there are hot and cold drinks, mince pies and cakes.
“I would like to thank everyone involved, especially Sharon West and Sophie who worked tirelessly to get everything organised and a special thanks to lee as Santa. A big thanks to Marion for selling the raffle tickets and everybody who donated to our cause.
“We raised £700 on the day. Just seeing the children’s
faces when they received their present from Santa as the ukulele players played some Christmas songs.”
Donna Meredith sent in £355.19 from collection pots.
• Jane Wilmshurst took part in the Thames Path Challenge 2019 and raised £1,265.
• Helen Dickinson took part in the Thames Path Challenge 2019 and raised £427.
• Emily Moodey sent in £110 raised from a clothes swap at St Barnabas church.
• AS&K Communications held a cake sale and raised £228.88.
• University College School held a ‘Big Breakfast’ event and raised £1,675:
“This year our school annual ‘Big Breakfast’ was an
extra special event as it was dedicated to the memory of Sam Moodey, the son of a former school nurse, who died from an undiagnosed genetic heart condition in 2018. Money was raised for the charity CRY, who help raise awareness and run screening days for young people. Activity started early as the dedicated kitchen team and other staff arrived to set up, organise and prepare for over 500 cooked breakfasts.
With everyone coming together, staff and supportive parents, donations and proceeds from this breakfast were happily given and reached a phenomenal sum of £1,675. Thank you to all those who helped raise this for CRY.”
Peter Whelan sent in £3,230.23 raised from bucket collections at the Vaudeville Theatre.
• Judith Miller sent in £800.15 raised from a cake sale and screening weekend.
• Alan Marshall and The Retreat Pub in Llanedeyrn donated £400.
Dorothy Bailey sent in £381 raised from a wear red day and raffle.
• Alberfeldy Community Choir and Rotary Club raised £465 from their Christmas concert.
• Alastair Cruickshank donated £1,000.
• Adela Laverick sent in £100 raised at the Stomontfiled Ceilidh.
Ciara Tudgay donated £1,757.98.
Douglas Murray sent in £1,047 representing donations received in lieu of floral tributes in memory of his father.
Natalie Owen donated £500.
• Ruth Crowe sent in £100 from the Sale WI.
• Tim Lambert sent in £510 raised from a jewellery sale.
• Catherine Nee sent in £200 in memory of Lizzie for Christmas and her birthday.
• Christine Newton sent in £137.50 representing donations received in lieu of floral tributes in memory of her husband, Peter.
• Tammy, Dan and Brian completed the Sheffield 10k 2019 and raised £690:
“We had a superb day running the Sheffield 10k on Sunday 22nd September, raising money in Jen’s name for CRY. Even the lousy weather couldn’t spoil it.
“Thanks to everyone for the donations and support. Dan, Tammy and Brian.” Daniel Greaves.
• Provincial Grand Lodge of Nottinghamshire donated £200.
• Derek and Pat donated £100.
• Samantha Cragg took part in a 10 Mile Run and raised £2,048.50.
• Graham Tiffin sent in £320 raised by Clairville York Ltd in lieu of sending Christmas cards.
Elaine Roche took part in the Coast 2 Croagh cycle and her employer JMW donated £100.
• Judith Oliver held a craft stall and raised £100.
• Judith Oliver sent in £242 raised as follows: £192 from a craft stall; and £50 from Elm Ridge Church.
• Darlington Rotary Club sent in £500 following a talk from Judith and Chris Oliver.
• The Cockerton Methodist Church held a joint Christmas concert with Cockerton Band and the Church Ladies Group Choir and raised £161.83.
• Stephanie Gledhill sent in £4,200.
• Phillippa Morton sold Christmas hamper tickets and raised £315.
• Philippa Morton took part in the CRY Heart of Durham Walk and raised £147.50.
• Stephanie, Robin, Abigail and Erin Gledhill took part in the CRY Heart of Durham Walk and raised £1,785 in memory of their daughter, step-daughter and sister.
• Gareth Roberts took part in the CRY Heart of Durham Walk and raised £300 in memory of his cousin, Charlotte Orwin.
Alison Howells forwarded donations totalling £412.60, including: Cheshire College, Crew; £105.85 from Cheshire College, Ellesmere Port; £215 from Cheshire College, Crew screening event; and £23.50 from Gymophobics Nantwich.
Ruth Lowe sent in £175 raised at her screening event.
• Ball Haye Green FC donated £150 in respect of Rob Cimino’s climb of Mount Kilimanjaro.
• Dianne Parr forwarded a donation of £165 from Staffordshire Goldwings.
Mital Patel sent in £101 on the occasion of Shreeya’s 18th birthday.
• Patricia Toft donated £100 in lieu of sending Christmas cards.
• Sarah, Andy, Steve, Gregg, Matt, Nigel, Anna and Rowan took part in the Birmingham Half Marathon and raised £850.
• Patricia Toft took part in the CRY Heart of Durham Walk and raised £100 in memory of her son.
Justine, Alice, Emma and George took part in various fundraising activities including dry January and the York 10k and raised a further £1,037.33.
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• Campion RFC held a raffle and raised £260.
• Peter Patterson sent in £200 raised from a lottery win and PPI award.
• Mr and Mrs Pembroke sent in £100 on behalf of their son, Daniel, who was awarded The Player’s Tour Man Award.
• Louise Collard completed the London to Brighton Cycle 2019 and raised £462.
• Gaye Pickford sent in donations totalling £509.56, including: £250 from the auction of a mobile phone; £130 in lieu of sending Christmas cards; a family donation of £50; £32.56 from a collection box; and £47 from pen sales.
• Gaye Pickford sent in a further £1,361.32, including: £175.25 from Idris Danes School; £60 from the sale of pens; £36.14 from a collection pot; and £1,089.93 raised from a charity evening.
Zermatt Capital donated £25,000.
Khimara Naidoo donated £300.
• Barclays sent in a matched fund donation of £900 in relation to Martin Phillips’ fundraising efforts.
• Martin Phillip sent in £1,509 raised from a football match watched by Jamie’s family and friends.
Jane Phillips sent in £150.
• Anne Clark sent in a donation of £650 on behalf of Enquest, Shetland.
• Calum Fraser sent in £1,000 raised from the sale of calendars.
• Siobhan Pirie forwarded a donation of £500 raised from an auction of vintage agricultural items.
• Jessica and Alice took part in the Hampton Court Half Marathon and raised £790.
• Nadia Pomfret sent in further donations totalling £170 raised during 2019.
• Stephen Pomfret made a donation of £300 on behalf of Fabio, Denise, Aidan and Bryony.
Past Master of the Royal Clarence Lodge of Freemasons in the Province of Bristol donated £500.
CRY received £500 from the legacy of Linda Pamela Puley.
Emma Greensted sent in further donations totalling £2,025 raised during 2019.
Andrew Reed sent in £285.50 raised at a recent screening event.
• Joan Chamberlain sent in £230 received in lieu of floral tributes in memory of her husband, John Chamberlain.
• Heather Reid sent in £2,543.28, including: £500 from Dr JJ and HL Reid; £100 from Marianne Bailey; £40 from Dr Andrew Grafton; £100 from Mandy Smith; £50 from Jan and Ray; £40 from Wendy Thompson; £220 from NW and Mrs CL Holmes; £50 from H & PJ Chamberlain; DJ & PA Dickinson; £50 from Mrs GM Turner; £550 from Mr A Bennett; £338.80 from cakes, donations and book funds; and £454.48 from Sheffield High School Netball Tournament.
Bettys & Taylors Group Ltd donated £1,000 in respect of the Good Cause Award presented to Halina Reid.
Sylvia Pezzack sent in £110 donated by Solomon Browne Hall in memory of Debbie and Sylvia’s friend’s son.
Stevie and Stephen sent in £100 including a £50 donation from Beryl Ward.
Susan Niner donated £200.
Keir Roger completed the Hertfordshire Half Marathon 2019 and raised £605.
Angela Rogers forwarded a donation of £480 raised by the Cresselly Cricket Club.
• James Simons forwarded £250 raised from the sale of a race car painting.
• June Ross forwarded £260 donated by
the following: £150 from Roy Lonmuir; £40 from Kathy Ross; £50 Kimberly and John Macleod; and £20 from Barbara.
• Gordon Mackay sent in £640 raised from a goodie bag donated by Grassmen which was raffled.
• Nicki Mackay sent in £210 raised in lieu of gifts.
• Beth Miller forwarded a donation of £3,385.89 raised by family, friends and customers of the Pittentrail Inn, in memory of the owner, Hector Miller.
• Yvonne Grand sent in £370 raised by Ross’s friend, Aaron, by running a first fish sweep and the sale of cider.
• Amy McHardy sent in £500 raised through the Rogart Gala Christmas Dance.
• June Ross sent in £130 raised as follows; £100 from Pat and Peter Goring; £20 from Stewart and Fiona MacLeod; and £10 from Alec Campbell.
• Tony and Alison Atkins and Margaret and David Atkins donated £125.
• Kareen Ross, her partner and sister donated £400 in memory of her nephew at Christmas.
• £1,185.50 was raised by the Golspie High School and East Sutherland Rotary Club Soup Sweet and Song event:
“An utterly wonderful afternoon was had by the community, young and old, at the GHS Soup, Sweet and Songs. The event was organised by Golspie High School’s Interact Club in order to bring together the community in the festive time of year. However, it was decided by the group that the money raised would go towards the CRY memorial fund page of Hamish Ross, GHS pupil.
“An amazing £1,185.50 was raised! This money will go towards the charity CRY being able to come and hold cardiac screenings for our local youngsters in order to identify any underlying cardiac issues as early as possible. The success of this event and the money raised shows how caring and connected a community we have, and how loved and cherished Hamish is within that community –GHS being one of the fundamental cogs.
“The soups and sweets were all made by the school’s hospitality class; an array of musical talents were showcased from the music department, including a performance from the School’s pipe band and a performance of Hamish’s own composition. A vast number of pupils attended the event and gave a helping hand
which made the whole event run smoothly. Pupils were given invites to hand out to elderly folk they may know, from which many attended. Members of the community purchased tables to sell their local products. A raffle took place, which was a huge success. Many local businesses donated prizes –raffle tickets actually sold out!
“It was a truly delightful afternoon, full of love, community and festive spirit!” Heather Shelley from Golspie High School.
• Christine Rushton sent in £200.
• Christine Rushton took part in the CRY Heart of Durham Walk and raised £225 in memory of her son. “Thank you to everyone for your support to help us raise money in memory of Christopher.”
Duxbury’s Property Consultants Ltd donated £200.
Vivienne Salem donated £600 in memory of her son.
Deborah Lee sent in £100 in lieu of sending Christmas cards.
• Anna Pryce took part in a Rotary Across Wales Walk and raised £360.
• Tanatside Pony Club held a fundraising lunch and promise auction and raised £1,296.20.
Marje Scott sent in £242.94 raised by the Lady Lumley School through their non uniform day.
Harriet Smith took part in a 26 mile walk and raised £140.
Andrew and Sally celebrated their wedding anniversary and raised £500 in lieu of gifts.
Peter, Sharon and Freda donated £100.
• Ethel raised £140.
• Martyn’s grandfather donated £100.
Emma Gibson took part in the Samworth Charity Challenge and raised £2,000.
James Hammond donated £100.
Ryan Hall took part in Great North Run 2019 and raised £372.
• Julia Hughes donated £100.
• Jane and David Hodges donated £200 in lieu of Christmas presents.
• Sue Spurling sent in £290 representing donations received in lieu of floral tributes in memory of her father-in-law.
David Conway completed the Shoreditch 10k and raised £700.
• Rob Ashton sent in £1,766.92 raised at the Fixton House event.
• Gemma Kirk donated £100.
• Ben Russell donated £100.
• Lucy Childs donated £100.
• Rita, Isabella and Luca donated £200.
• Lucy Bassnett-McGuire donated £100.
• Kyriaki Lipsos donated £130.
• Lesley Redmond donated £100.
• Sarah Cole donated £100.
• Sandra Carey donated £100.
• Hannah, Steven and family donated £100.
• Maria Gavriel donated £100.
• John Yianni donated £500 in memory of his friend.
• Mary Barnard donated £100.
• Julian Robinson donated £250.
• John Riley donated £100.
Anne-Marie Stewart at Greensill sent in £10,716.35 raised at their Christmas party evening and auction.
Gwen and Cliff Stewart took part in the CRY Heart of Durham Walk and raised £400 in memory of their daughter.
The CSR Team at UDG Healthcare donated £500 on behalf of their employee, Zoe Stokes.
Patricia Strange sent in £300 raised from the proceeds of Ian’s dad David’s special chair.
James Stubley forwarded £360.46 representing donations received in lieu of floral tributes, in memory of his father.
Daniel Swinson sent in £150.
Sonya Taylor donated £100 in respect of birthday monies.
Caroline Dyson donated £363.
Laura Thorn took part in Royal Parks Half Marathon 2019 and raised £205.
Charles and Maureen sent in donations totalling £250, including: £88.45 from assorted sales of Bric a Brac; £45 from a counter box at Homecraft DIY shop; £38 from a counter box at Castle Inn, Ramsey; and £78.55 from various other donations.
Beryl Ewing sent in £230 raised through making Christmas cards.
Chantelle and Warren took part in a charity football match and raised £3,122.47:
“Saturday went really well. We had a great turn out and the weather stayed dry for us. We had 36 players turn up for the match, with ages ranging from 12 to 64. The teams
Inspired Health & Fitness and Inspired Kitchen held a Santa Dash and raised £600.
were based on the two managers’ nationalities (England vs. Spain) and England won 6-1. Despite the score line it was a closely fought game.
“After the game we had food and drinks in the bar at Kings Langley Football Club followed by a game of bubble football for the mums and kids which was extremely amusing for the spectators (even more entertaining than the match itself). Then we finished the day with a raffle.
“So far we have managed to raise £2,847.47 for the Dale Tennent-Butler memorial fund.” Warren Daly.
• June Thomas sent in donations totalling £5,597.02, including: £2,224 from Blackwood RFC Minis and Juniors; £2,107.98 from Porthcawl Male Voice Choir and Matt Harris and Rachel Hillier; £1,000 from Asda, Blackwood; and £265.04 from Mount Pleasant Baptist Church.
• Sam Williams took part in a step challenge at his workplace and raised £400.
Mrs J Castle sent in £437.39 representing donations received in lieu of floral tributes in memory of her mother.
Graham and Cheryle sent in £100.
Richard Thompson sent in £100.
Mark McFern donated £906.50.
Timothy Peters completed the London to Brighton Cycle Ride 2019 and raised £100.
• Lisa Crawford took part in Ironman 2019 and raised £826.
• Will and Nicki cycled from Land’s End to John O’Groats and raised £1,441.23.
Brian Adams sent in £227.41 representing donations received in lieu of floral tributes in memory of his daughter.
• Karen Trigg sent in £600 raised from a Christmas hamper raffle.
• Jade Restell took part in a skydive and raised £421.
• Di, Peter and Caroline sent in £2,000 collected from their Christmas lights display:
“Every year the Chilver family light up their house with Christmas lights to raise money for charity. In 2019 they chose CRY, to raise money to be donated in memory of Ashley Trigg, a fellow majorette and friend who passed away suddenly.”
• Della Tudisca forwarded a donation of £200 from the Christmas Shambles Golf day.
• John Bell at Glenny LLP donated £500 in lieu of sending Christmas cards.
• Buckhurst Hill Parish Council raised £1,256.46.
Samuel Turberville completed a kayakathon and raised £290.
Caroline Gard sent in £126 representing donations received in lieu of floral tributes in memory of her father.
• Jackie Stoutt and family donated £200.
• Gillian Chapman donated £100.
• The Rotary Club of Onchan sent in £500.
• Peter and Andrea Curphey donated £100.
• Julie Cretney donated £100.
• Lindsey, Shaun, Emma and Cara donated £100.
• Andrew Curphey donated £200.
• Joanna Prentice donated £100.
• Maggie Hand donated £100.
• Charlotte and Charlie donated £100.
• Christine Howard donated £100.
• Andrew Vaughan sent in £350 raised through a coffee morning.
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Alexander Tough sent in £420 raised at the 8th Annual Chinstock.
Lesley Wallbank sent in £100 in lieu of birthday and Christmas gifts.
• Elaine Ward sent in £2,428.10, including: £500 Shipley WI; £300 from Ilkeston WI; £150 from Sheffield Festival of Athletics; £500 from Dronfield Ladies Voices; £600 from Dronfield Businesses - Christmas
Lights switch-on; £100 from Pat and Glyn Landman; £50 from David Lumb; £50 from Mr and Mrs Marriott in memory of Louise; £125 from Saxon Mee Estate Agents, Dronfield; £33.10 from DFWI Trustees in lieu of Christmas Cards; and £20 from Neil’s friend’s dad.
• Dr David Moseley at Hearts4boxing in Sheffield donated £4,560.
Harold White donated £136.
• Steve Parker completed the Beyond The Ultimate For Rangers Ultra Marathon and raised £4,290.
• Melanie Duhig donated £100.
• Christine, Anne and members of The Heartfelt Group sent in £985 raised from the Rotary Guild of Preston and a Santa Dash.
• Sheila Wiggins sent in donations from the Heartfelt Group totalling £193.19, including: £100 from a car boot sale; £73.19 from an auction and Stevie’s glass jars; and £20 from Myra Gregory:
“The Heartfelt Group continues to raise awareness of CRY throughout the area. Ann Coles and Sheila Wiggins have visited The Sea Cadets and Preston College to inform young people of the local heart screenings for which we raise funds. They also visited Airforce Cadets and Preston Harriers running group. We have produced a collection jar
which we have given to friends and family to collect loose change. This is proving popular with an average of £10 per jar being collected.
“For Easter, Christine Abram has knitted Easter bunny cosies for Creme Eggs. We are continually trying out new ideas for raising funds both large and small and constantly raising awareness.” Christine Abram.
• Susie Hay sent a further donation of £125.
• James Vyvyan sent in £203 raised by Sophos through their daffodil sale.
David Williamson raised £120.
Team JKR (Foundation) took part in a Rough Runner and raised £250.
Coombe Dean School held a fundraising event and raised £151.
Simon Anderson at Round Table 54 King’s Lynn sent in £500 in support of Charlie Gilbert’s participation in RideLondonSurrey 2019.
Adrian Baker donated £200.
Dane Moore took part in Royal Parks Half Marathon 2019 and raised £415.
Sue Jarvis forwarded a donation of £416:
“Gary Hilton and Carl Fisher, instructors at Precision Self Protection, held a weekend of seminars in Chesterfield to raise money for Cardiac Risk in the Young, in memory of Carl’s niece, Louise Worth, from Leyland, Lancashire. On February 15th, a seminar was held at Buzzbox Fitness Club and another seminar was held at Well Fit Warehouse on February 16th. A grand total of £416 was raised over the weekend and the money was handed over to Susan Jarvis, Louise’s mother, to donate to the charity.”
• Alexander Ford sent in £356 raised by FSi Ltd in lieu of sending Christmas cards.
• Toyota Charitable Trust donated £5,000.
• Elaine Wright sent in £212.50 raised from ‘Guess the weight of the chocolates’ and screening donations.
• Hazel Ford sent in £1,000 raised from Haunted Happenings.
• AGRO Whitchurch raised £419.07.
• Arlies Primary School held Christmas productions and raised £202.69.
• Chloe Armitage completed the Aberdovey Bike Ride and raised a further £1,324.59.
• George Ashby collected sponsorship from cycling around the Isle of Wight and raised £2,773.
• CarTakeBack.Com Limited sent in £256.
• Mark Baines sent in £650 raised by the Lavers Entertainers Charity performance.
• Bank of Scotland Foundation sent in a donation of £470.66.
• Elizabeth Barnett sent in donations totalling £161.79.
• Daniel Barry donated £100.
• The Beaudesert Lodge of Mark Master Masons No 1350 sent in £500.
• BGM Helmores sent in £200 in lieu of sending Christmas cards.
• Aran Blackbourn at Ballyclare RFC sent in £300 in respect of a talk given by CRY Patron Gary Longwell and Simon Best.
• Boston Scientific Ltd raised £495 from the EnduraLife Bike Ride 2019.
• Louisa Bower completed the Asda Foundation Derby Half Marathon and raised £1,170.
• Lynn Brannan donated £158.06.
• Lynn Brannan donated a further £117.14.
• Michelle Broadley took part in Great North Run 2019 and raised £540.
• Bea Buck sent in £180 raised from a cake bake.
• Bullers Wood School held a Fun Run and raised £1,608.
• Mark Butter at Blueprint Recruitment Solutions Ltd sent in £214.74.
• Castleford Park Junior Academy sent in £196.51.
• Tom Cheveley climbed Mount Kilimanjaro and raised a further £4,754.40.
• Daryl Cook donated £250.
• Karen Cook sent a donation of £150 from Covent Bridge (Europe) Ltd.
• Cranleigh Preparatory School held a Mufti day and raised £143.35.
• Josh Cummings took part in the Minehead Triathlon and raised £520.
• The Dane Partnership donated £250.
• Nicola Darby sent in £204 from Aston Bond Law Ltd.
• Didlaw Ltd raised £194.60.
• Dun & Bradstreet Ltd took part in Pizza Run, Cardiff and raised £117.
• E P Barrus Ltd donated £1,000 raised throughout the year.
• Essity UK Ltd sent in £250.
• Lisa Evans took part in Sober September and raised £112.
• Fosse Bank School raised £182.33.
• Iain and Beth Foster climbed Mount Kilimanjaro and raised £518.10.
• Graham and Barbara Foster climbed Mount Kilimanjaro and raised £1,395.88.
• Howard and Rosemary Froggatt donated £200 in lieu of a gift for Tim and Julia’s wedding.
• Michael Gaterell climbed Mount Kilimanjaro and raised £586.25.
• David Gleave donated £150.
• Sam Godfrey completed the Stoke Stampede, the Bath Marathon, the Exmoor Beauty and L’Etape Wales Dragon Ride and raised £315.
• Golden Acre Foods donated £1,000.
• Mark Griffin sent in £112 raised through the Dragon Charity Quizzes.
• Peter Hall donated £300.
• Charles Hammersley completed the Snowdonia Trail Half Marathon 2019 and raised £500.
• Annie Hartley sent in £200.
• Kitty Hartnell sent in £560.50 raised from the sale of Christmas cards.
• Lucy Hawker donated £172.
• Elizabeth Haywood sent in £149.50.
• Hazelbury Bryan PCC raised £140.40 through a collection at their Lent Lunch.
• Healix HHS Trusts donated £3,750.
• Henry of Auxerre Lodge 7235 donated £500.
• Ben Heyman sent in £713 raised through his drive to Mongolia.
• Staff and customers of Hey Potato, Brierley Hill held a Christmas raffle and raised £663.31.
• High Wycombe Tangent Club donated £100.
• Andrew Hitch climbed Mount Kilimanjaro and raised £399.50.
• Nicholas Hitch climbed Mount Kilimanjaro and raised £447.50.
• Philip Hoare sent in £100 raised through Tuck Shop profits.
• Emma Horrell sent in £129.74 raised by the Manchester Road Runners.
• Year 9 and 10 pupils at Horsforth School participated in a sponsored swim and raised £500.
• David Howe donated £100.
• HSBC Bank Plc donated £1,000 via the Charities Aid Foundation, in respect of G Collins’ fundraising efforts.
• Hull University Students Union raised £257.87.
• Rhys Humphries sent in £100 raised from The University of Warwick Men’s Rugby Club calendar sales.
• Informa Group donated £1,000.
• Joe, Rehana, Matt, Pearl, Vic, Xander, Eddie, Angus and Tom took part in the Marathon Walk London and raised £8,548.90.
• Katie Johnson completed the Birmingham Half Marathon and raised £182.13.
• Josephs Family Charitable Trust donated £100.
• Colin Kennedy climbed Mount Kilimanjaro and raised £593.75
• Adrian Kidd climbed Mount Kilimanjaro and raised £844.90.
• Debbie Kinston climbed Mount Kilimanjaro and raised £358.70.
• Shelagh Lavery sent in £154.64 raised by the members of Southampton Dawn Breakers through their charity dress-up day.
• Charlotte Laycock sent in £1,500 from Karian and Box.
• Martina Lewis at Primary Care Commissioning sent in £106.33.
• Nia Lewis took part in Royal Parks Half Marathon 2019 and raised £775.
• Andy Little climbed Mount Kilimanjaro and raised £3,743.52.
• Lloyds Bank Foundation sent in £1,000 in respect of Sophie Spencer-Wright and Amelia Preston’s fundraising efforts.
• London Metal Exchange (LME) donated £250 in lieu of sending Christmas cards.
• Jackie Longwell donated £135.
• Alan Lunt sent in £500 raised from events organised by Hannah and Rebecca Preedy-Lunt.
• CRY Representative Jeff Markham collected a cheque for £750 from Northwood 41 Club raised through their Father Christmas and his sleigh event.
• North Staffs Operatic Society Ltd (NSOS) raised £100.
• Oldham Hulme Grammar School sent in £100.
• Andy Ormiston climbed Mount Kilimanjaro and raised £4,422.41.
• Robert Ostler forwarded a donation of £180 raised by Rob Ostler and the Blackwater Valley Runners.
• Painsley Catholic College sent in £400 raised by staff and students.
• CRY volunteer Kevin Marsden collected a cheque for £215 from the Churston Golf Club Juniors.
• Patrick Massey donated £1,092.38.
• Claire McConnell sent in £410 raised by the 4-11’s After Schools Club.
• Ben Meakin and Dan climbed Mount Kilimanjaro and raised £471.33.
• Ian Meakin at Adviceworks Ltd climbed Mount Kilimanjaro and raised £982.60.
• Josie Meakin climbed Mount Kilimanjaro and raised £351.90.
• Barbara Meineck sent in £150 raised as part of Ruxley Church’s annual charity distribution.
• Middleton-cum-Fordley Community Council sent in £166 raised at an annual Christmas Community Meal.
• Milliken, Middleton Plant donated £300 raised through charity mat sales, raffles and various other events.
• Monmouth Comprehensive School organised a stall selling roses, boxes of chocolates and valentines’ gifts during their break times and raised £39.54.
• Mousehole Carnival Committee donated £100.
• The Northern Premier Football League Ltd raised £262.15.
• North Chingford Townswomen’s Guild sent in £477.47 raised through choosing CRY as their charity of the year.
• Paul and Katrina Paling donated £100 in lieu of Christmas cards.
• James Parker climbed Mount Kilimanjaro and raised £264.
• David and June Paul held a Timber Offcut Sale at Haldane UK Ltd and raised £450.
• Paul and Heather climbed Mount Kilimanjaro and raised £1,418.64.
• Stewart Percy climbed Mount Kilimanjaro and raised £811.58.
• Mrs P Perkins sent in £110.
• Sheila Ponsford sent in £250.
• The Premier League donated £500 in lieu of sending Christmas cards.
• Provincial Grand Lodge of Mark Master Masons of Buckinghamshire donated £325.
• Ravens Wood School took part in a bag pack at Waitrose and raised £1,000.
• Amanda Reeves-Anderson sent in £400 raised through The Credit Centre’s Dress Down Day.
• Jonathan Rennocks took part in a night walk and raised £530.
• Paul Riat OBE sent in £2,500 on behalf of the Bucks Punjabi Society which was raised at their annual charity ball.
• Doug Richards forwarded a donation of £386.84 raised by the Crabbs Cross Chasers.
• Johnathan Ricketts took part in a 3K fun run and raised £278.15.
• Archie Robertson climbed Mount Kilimanjaro and raised £511.37.
• Frank Robinson donated £100.
• Joanne Rollit climbed Mount Kilimanjaro and raised £424.05.
• Diane Rowicki sent in a donation of £200 raised through fundraising activities throughout the year on behalf of Hafele UK Ltd.
• Niamh Ryan and Nimalka Rambukpotha took part in the Thames Bridges Trek 2019 and raised £2,625.
• Shaun Sadler sent in £170 raised from the ‘This is Her Majesty’ Lincoln’s Drag Race.
• Sara and Simon climbed Mount Kilimanjaro and raised £733.26.
• Alan Schofield sent in £1,750 raised from the National Portrait Awards 2020.
• South West College held a sponsored walk and raised £678.12.
• St John’s Beaumont pre prep boys took part in various fundraising and raised £4,000.
• St John’s CE Primary School took part in various fundraising activities and raised £269.50.
• St Martin’s Sherwood PCC donated £125 of their charitable giving to CRY.
• Laura Stokes climbed Mount Kilimanjaro and raised £424.05.
• Gabbi Stopp at ShareGift donated £2,500.
• Stowell Concrete Ltd donated £110.
• Dennis Taylor sent in a donation of £2,487.76 raised through the Friends of CME Trust Bike 100 fundraising event.
• Lauren Timmins sent in £650.05 raised through the Oasis Floral Products blind auction.
• Tir na nOg GAC Randalstown sent in a further donation of £6,725.
• TJX (TK Maxx and Homesense UK) sent in £1,352.51 from their Community Fund Foundation.
• Eleanor Townsend donated £146.35 raised from taking part in LEJOG.
• Ellie Townsend cycled from Land’s End to John O’Groats and raised a further £2,195.
• Tudor Capital Europe LLP sent in matched funds of £250 donated in relation to Daryl Cook’s fundraising efforts.
• Unison North Devon & Torridge LG Branch donated £300.
• Kay Usher sent in £250 raised by the ladies Chatterbox Club through holding raffles.
• Mike Vallance sent in £400 from the Patrons of Old Leamingtonians RFC.
• Catriona Waddington sent in £727.09 raised from a Wizard of Oz pantomime.
• Wanausha, Laura and Sophie completed the Tatton Park 10k and raised £585.
• Weald of Kent Ploughing Match Association raised £500 through their Ploughing Match.
• Hazel Webb sent in £255.33 raised through a church service collection.
• Sheila Webber sent a donation of £369 raised through Dress Down Days at Barnfield Construction.
• Mark Webster donated £500.
• Lee Wheaton sent in £150 raised at a charity football match at Whimple football club.
• Neville Wigglesworth sent in £100 raised from a collection box.
• Thomas Windus took part in the 3 Peaks Challenge and raised £352.
• Susan Young raised £118.01.
If you would like to buy any of our Christmas cards this year, please contact the CRY office by email (CRY@c-r-y. org.uk) or phone (01737 363222), or order from CRY’s online shop here: www.c-r-y.org.uk/shop/
All money raised from the sale of these cards goes directly to CRY.
Festive Bus (advent calendar)
£2.99 per pack (x1)
159mm x 159mm
Blank inside
Animals in the Moonlight
£3.50 per pack (x10)
137mm x 137mm
“Happy New Year”
Bethlehem Under a Star
£3.50 per pack (x10)
137mm x 137mm
“Peace and Joy”
Christmas Snowman
£4.00 per pack (x10)
137mm x 137mm
“Merry Christmas”
Flying Dove
£3.50 per pack (x10)
137mm x 137mm
Blank inside
Meadow at Sunset
£3.50 per pack (x10)
137mm x 137mm
“With best wishes for Christmas and the New Year”
Santa’s Friend
£3.00 per pack (x10)
121mm x 121mm
“Happy New Year”
The Golden Pear Tree
£3.00 per pack (x10)
121mm x 121mm
“Season’s Greetings”
Three Kings
£3.50 per pack (x10)
137mm x 137mm
“Wishing You a peaceful Christmas”
Winter Skating
£4.00 per pack (x10)
137mm x 137mm
“With every good wish for Christmas and the New Year”
12 Days Icons
£3.50 per pack (x10)
137mm x 137mm
“With best wishes for Christmas and the New Year”
Between January and April CRY featured in 113 print articles, including 5 national articles and 13 magazine articles. CRY also featured in 113 online articles
‘Pedal of honour’
The Independent Laura Laker completed a Land’s End to John O’Groats cycle with many struggles along the way, and met a group of riders completing the same challenge to raise money for CRY.
Published 19 January 2020
‘Electrical faults that can be fatal’
Daily Mail (Scotland)
This article discussed young sudden cardiac death and included insight from CRY Consultant Cardiologist Professor Sanjay Sharma.
Published 21 January 2020
‘Parents raise cash for heart screenings’
The Guardian
Written after the BBC Inside Out feature on CRY, this article discussed CRY’s aim to establish a national screening programme and included insight from Professor Mary Sheppard and Professor Sharma on their work and the importance of diagnosing young people who may be at risk.
Published 27 January 2020
‘Brain surgeon’s Cambridge graduate son, 24, died of sudden heart failure in pool’
Daily Mail, 16 January 2020
Dominic Hamlyn died suddenly while swimming, and this article provided some information on CRY’s screening programme and efforts to prevent these tragedies.
Read online at www.dailymail.co.uk/news/article-7895169/Brain-surgeons-Cambridge-graduate-son-24-diedsudden-heart-failure-pool.html
‘Cottam family’s annual Christmas lights display raises over £14,000 for charity’
Lancashire Evening Post, 30 January 2020
Mark Tipping, his wife Nicola and their children Sam, Joe, and Isaac put on a Christmas light display at their house and raised over £14,000 for charities, and donated some of their fundraising to CRY.
Read online at https://bit.ly/2XYjUQH
‘“Tireless” efforts of family helps heart charity buy £25k van to screen 50,000 young people’
The Sentinel, 14 March 2020
David and Sue Hughes raised further funds in memory of their son, Daniel, to pay for a new CRY screening van.
Read online at https://bit.ly/3iBWbxF
For links to online, press, television and radio coverage related to CRY and young sudden cardiac death visit www.c-r-y.org.uk/inthemedia
Raising awareness of CRY and its objectives can be as easy as a click of a button, printing or ordering posters to display, liking or sharing a post on our social media pages and sharing YouTube videos CRY have produced. This all helps to raise awareness and save young lives.
Through raising awareness of these conditions, the public, medical and sporting communities will be alerted to the symptoms that can lead to a young sudden cardiac death, as well as the potential risks that these conditions carry for an asymptomatic population.
CRY’s Raising Awareness Week is a great time to get involved and make a difference in whatever way works best for you.
We are excited to announce the CRY Great Cake Bake will take place on the 20th November 2020, so save the date, get your creative thinking caps on, and get ready for another fantastic year of raising awareness through baking.
2019 was a record-breaking year for the CRY Great Cake Bake, as we raised over £38,000 with over 100 people signing up for Great Cake Bake packs!
For this year’s event, you can once again expect our fabulous recipe booklet, games ideas and competitions, with more to be announced as we get closer to the date.
If you would like to hear about any updates and how to get involved, you can fill out the interest form on the CRY website here: www.c-r-y.org.uk/raising-awareness-week-the-cry-great-cake-bake-2020
By fundraising for CRY you will be helping to:
• subsidise CRY’s national cardiac screening programme
• fund CRY’s bereavement support programme to provide counselling and support to affected families
• support research into young sudden cardiac death (YSCD)
• develop the myheart Network to support young people living with cardiac conditions
• provide all CRY literature and information free of charge
• develop the CRY Centre for Cardiac Pathology (CRY CCP), and the CRY Centre for Inherited Cardiovascular Conditions and Sports Cardiology
The involvement of our fundraisers has been crucial to helping CRY raise awareness about YSCD.
Whether you are carrying out your own activity or taking part in an organised event such as the London Marathon or the Great North Run, remember that CRY will always support your effort with posters, sponsor forms and other resources.
If you would like to join our fundraisers, CRY also offers a range of fundraising challenge events, including parachute jumps, white water rafting and a selection of trekking and cycling events.
Visit www.c-r-y.org.uk/charityfundraising-challenge-events for more information or contact the CRY office for a fundraising ideas pack.
The urgency of CRY’s mission and the quality of our work has compelled many high-profile personalities to give their time to become CRY Patrons. For more information visit www.c-r-y.org.uk/about-us/patrons
Sir Ian Botham OBE Honorary President of CRY
“It is not just athletes who are at risk of these heart disorders – it can happen to anyone. The problem has been swept under the carpet for too long and there have been too many excuses. I am a parent and a grandparent and I want to know that my kids and grandkids will be screened as a matter of course. It’s the only way we can prevent these sudden deaths occurring.”
Rob Andrew MBE
Clive Clarke
Evans
• John Barrowman MBE
• Jack Clifford
• Jeremy Bates
• James Cracknell OBE
• Baroness Ilora Finlay
Michael Hoey
KSG
• John Inverdale
• Rob Key
McDowell MBE
MBE
Scott
• Simon Halliday
• Tom James MBE
• Gary Longwell
• Lee Mears
• Ben Brown
• Nick Easter
There are many different ways you can donate to CRY. Online and cheque donations are the most popular methods, and we also accept credit/debit card donations over the phone.
For further information please call the CRY office on 01737 363222 or visit www.c-r-y.org.uk/donations
All your help is greatly appreciated.
1. CRY Update magazine
Postal mailing of CRY’s regular (three issues a year) news and events magazine. Includes reports from the CRY CEO and Founder; supporters’ fundraising; articles about screening, myheart, research, pathology, raising awareness initiatives, massparticipation fundraising events; and much more.
2. CRY enewsletter
Monthly email newsletter; 3 emails per year with links to the online version of the Update magazine; plus occasional emails about major CRY events and initiatives.
• Pixie Lott
• Bill Neely
• Sir Steve Redgrave CBE
• Roger Taylor MBE
Townsend MBE
Walliams
•
• Jonny
• Kathryn Harries
• Pat Jennings
• Emily Maitlis
• Lawrence Okoye
• Vincent Regan
•
OBE
• Graeme
• Phil Packer
• Joe Root
• Professor Gaetano Thiene
• Andrew Triggs-Hodge MBE
• Alison Waters
• Matt Wells
• Andy
• Gregor
• Andrew Trimble
• David
• Sir Clive Woodward
OBE
If you would like to subscribe to – or unsubscribe from – either of these mailing lists, please let us know:
• Complete the online form; www.c-r-y.org.uk/subscribe
• Call the CRY office; 01737 363222
• Email the CRY office; cry@c-r-y.org.uk
When Cardiac Risk in the Young (CRY) was founded in 1995 it was the first organisation to draw attention to the range of conditions that can cause young sudden cardiac death (YSCD).
Every week in the UK at least 12 apparently fit and healthy young people die of undiagnosed heart conditions.
These conditions include hypertrophic cardiomyopathy (HCM) and other diseases of the heart muscle, as well as electrical heart disorders which can lead to sudden arrhythmic death syndrome (SADS).
CRY aims to reduce the frequency of YSCD through raising awareness amongst the general public and medical community, providing expert cardiac pathology, improving early diagnosis through screening, supporting young people diagnosed and funding research.
1 in 300 young people CRY tests will have a potentially lifethreatening heart condition.
CRY believes cardiac screening should be available to all young people aged between 14 and 35.
CRY also works to guide and support families and close friends affected by YSCD.
We provide information to explain what the coroner does, bereavement support, help with NHS referrals and advice on the procedures that usually follow a YSCD.
In 80% of cases of young sudden cardiac death there are no prior
We
symptoms of a heart defect.
CRY publishes a range of medical information written by leading cardiologists that is easy to understand and made available to the public free of charge.
For detailed information about cardiac conditions and CRY’s range of literature visit www.c-r-y.org.uk/ medical-information
