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MS connection: SUMMER 2014
The mask of MS by Michelle Wall
I was first introduced to MS when I met my soon-to-be mother-in-law, Jane Wall. She experienced a very rapid severe onset of MS back in the mid-80s. Unfortunately, there were not a lot of advancements in research and many current treatments were not available at that time. I cannot even imagine how hard it was for her family to witness the deterioration of her body caused by MS. She was no longer physically able to participate in many activities that she loved, however, she never lost her optimistic outlook and sunny disposition. She was a remarkable woman who was able to find joy in all circumstances. Sadly, Jane died from complications of MS in 2012. In 2011 a friend told me about an event called MSquerade hosted by the Delaware Chapter of the MS Society’s Emerging Leaders Council (ELC). I thought it sounded like a unique and fun way to raise funds and awareness about MS. My husband and I attended the event, and the evening had a dramatic impact on me. I was moved by a group of posters that featured people who struggle with MS wearing masquerade masks. They were referred to as the faces of MS. I was reminded that there are two kinds of people who struggle with MS: those who struggle in plain sight with visible symptoms and those who struggle in secret, behind the mask of MS. I left the event knowing
Michelle and Jason Wall At MSquerade that I wanted to become involved with the MS Society and future MSquerade events. I immediately joined the Emerging Leaders Council and have been a part of planning MSquerade for the last three years. MSquerade is not your typical fundraiser. I often tell people that MSquerade is like attending a really fun wedding. However, instead of buying a wedding a gift you are supporting a gift of hope for many who struggle with MS. I am proud to see this event be successful because the night is a celebration. It is a reminder to me of my mother-in-law’s outlook on life that despite an MS diagnosis you should still live your life to the fullest. Eat, drink and be merry! MSquerade is a tangible way to have a night outside the trappings of the disease. Together,