PA Keystone Chapter, MS Connection by Jennifer Staab

SPRING 2016 PENNSYLVANIA KEYSTONE CHAPTER

MS CONNECTION NEWSLETTER

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06-07 10-11 13-15

LIVING WITH MS: EMPLOYMENT: 8 ADDRESSING MS WAYS TO MANAGE BLADDER LOSING YOUR JOB

ADVOCACY: 2016 PUBLIC POLICY CONFERENCE

UPCOMING TELECONFERENCES AND PROGRAMS

2 NATIONAL MULTIPLE SCLEROSIS SOCIETY Pennsylvania Keystone Chapter 1-800-344-4867 Pittsburgh Office 1501 Reedsdale St., Ste 105 Pittsburgh, PA 15233 Harrisburg Office 2000 Linglestown Rd, Ste 201 Harrisburg, PA 17110 Chairman: William Shrader Chapter President: Anne Mageras Editor: Debbie Garrison Design: Jennifer Skinner © 2016 National Multiple Sclerosis Society, Pennsylvania Keystone Chapter Information provided by the Society is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The National Multiple Sclerosis Society recommends that all questions and information be discussed with a personal physician. The Society does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The Society assumes no liability for the use or contents of any product or service mentioned.

MS CONNECTION: SPRING 2016

NATIONALMSSOCIETY.ORG | 1-800-344-4867

SCHOLARSHIP PROGRAM FROM THE BOARD PRESIDENT, WILLIAM SHRADER

continued from page 2 And 20 year old Regis – who is beginning his college career locally this September so he can stay local to assist his family. As the son of a mother who is living with MS, he helps take care of his younger brother and a help’s his mom by preparing food, driving mom to her appointments and her daily activities.

The month of June is a time of celebration for graduations. As they cross the stage in cap and gown to receive their diploma, feelings of satisfaction, excitement and nostalgia are supplemented with the enthusiasm of moving on to college life. As tassels are moved from one side of their mortarboard to the other, the ritual of the transition to college life begins.

The National MS Society’s scholarship program has grown since its inception in 2003—when 36 scholarships were awarded for a total of $68,000. Support for the scholarship program comes from foundations, individual donors, our own employee giving program and other sources.

MS shouldn’t stand in the way of an education. The National MS Society’s scholarship program exists to help highly qualified students who have been diagnosed with MS or who have a parent with MS achieve their dreams of earning a college education. Support offered is more than just financial; the Society facilitates connections between the scholars, offering peer support, volunteer and mentoring opportunities. The National Multiple Sclerosis Society is pleased to announce the recipients of school year 2016-2017 scholarships. Nationally, over $1 million was awarded to 815 scholars. The Pennsylvania Keystone Chapter had 15 scholars. Here is summary of a two of our scholars. 19-year-old Amber – a young woman diagnosed at 18 years old. Her first flare up caused her to go numb from her toes to her knees. Since her diagnosis, daily activities can wear her out much quicker than before. Amber shared that she is extremely thankful for the people in her life who are there for her through this emotional roller coaster that she is on. She is eager to begin her college career this fall.

Scholarships can be applied to tuition for any year of undergraduate enrollment at an accredited postsecondary school. Applications are evaluated based on financial need, academic record, leadership and volunteer activities, a statement of educational and career goals, and letters of recommendation. Applicants also provide personal statements describing the impact MS has had on their lives.

We will continue to partner with organizations and individuals who will help us provide students living with MS with access to educational opportunities that can change their lives. Please consider a donation to support the scholarship program by contacting the chapter at 1 800-344-4867. n

FROM THE CHAPTER PRESIDENT, ANNE MAGERAS CALLING ALL DONORS!! This year we received, 43 scholarship applications and we were able to award 15 scholarships; 5 college age applicants have MS, 5 applicants have received scholarship support the previous year from the Chapter and 5 new applicants received an award. The Chapter Board of Trustees came together for the March Board meeting and collectively decided that the Chapter should increase the budget line for this year’s scholarship program. What that really meant was the Board of Trustees made a financial commitment to the scholarship program so the Chapter could award more scholarships. Even with the increased support from the Board of Trustees, we fell short of our commitment to support those affected by MS. In her own words, Mardi, who is one of the 15 scholarship recipients, shares on page 4 the impact this award has had on both her educational goals as well as her life’s goals. Check out the other 14 scholarship recipients on page 8. n

MS CONNECTION: SPRING 2016

CHAPTER HIGHLIGHT

MEET SCHOLARSHIP RECIPIENT, MARDI Being awarded the National Multiple Sclerosis Society (NMSS) scholarship award greatly impacts life for me and my son in a positive way. I am a full-time college student and single mom of an eight-year old boy. Deciding to return to college has been one of the best decisions that I have ever made. Due to the time needed to balance class, schoolwork, and motherhood, I am not allotted much time to work, which extremely limits my income. The NMSS scholarship has allowed me to worry a bit less about my income by providing money for my tuition and the books that are required for classes. I am very appreciative of receiving the scholarship for financial reasons, but also for personal reasons, as well. After applying for this year’s scholarship, I came in contact with the PAX office and began volunteering through the work-study program at Chatham University. I began the work-study program at the PAX office since February and continue to volunteer now that classes have ended for the summer. My educational goals are to finish the Bachelors of Social Work program at Chatham University in the spring of 2017. The following fall, I plan on starting the Masters of Social Work program at the University of Pittsburgh. My volunteer work at the NMSS has given me hands-on experience with clients that fits into my field of study. In conclusion, I greatly appreciate being awarded the NMSS scholarship, as well as the time that I get to spend helping other individuals who have Multiple Sclerosis. n

KEEP S’MYELIN The activity book is colorful and interactive and includes puzzles, games, coloring and more. Together with the parents’ supplement, these resources provide both parents and children ages 4-12 with the vocabulary they need to voice their concerns, dispel misunderstandings and myths about MS, and learn about MS as a family. Keep S’myelin provides an opportunity for children and parents to learn and talk about MS together, reducing isolation and normalizing their experiences. Call the Chapter at 1 800-344-4867 or email keepsmyelin@nmss.org.

BE AN MS ACTIVIST! We are people who want to do something about MS NOW. Become an MS Activist today! For more information on how you can become an MS Activist contact: Mara Brough, Senior Manager of Advocacy, PA & NJ at mara.brough@nmss.org or visit MSPAKeystone.org.

NATIONALMSSOCIETY.ORG | 1-800-344-4867

LIVING WITH MS

ADDRESSING MS BLADDER Within a few years of his diagnosis with multiple sclerosis in 2005, Michael Mohn, 51, found himself trying to hide a very personal symptom: urinary incontinence. “It definitely affected my social life,” he recalls. “I love going to sporting events, but it’s hard to get to a restroom there.” So he would think twice before going with his kids to a game. Often, he says, “I would keep to myself at home where I knew I could use the restroom.” In MS, damage to the myelin that surrounds nerve fibers can disrupt the transmission of signals between the brain and urinary system. If left untreated, bladder issues can lead to lowered self-esteem, social isolation and depression, but they can also lead to physical problems such as infections or kidney stones. Mohn, who lives with his wife, Kristie, in Forest Hill, Maryland, and who works at the Johns Hopkins Medical Center, remembers how his own issues affected him. “It made me isolate myself,” he says. However, after he mentioned it to his neurologist during a regular check-up, he was surprised to learn about the range of management and treatment options available. At his urologist’s suggestion, Mohn agreed to try self-catheterizing. “The first thing I thought was, ‘No way am I going to do that.’ But there are catheters out there that are very

MICHAEL MOHN, DIAGNOSED IN 2005 easy to use and cause very little discomfort when you put them in.” He says he’s been catheterizing for more than a year now. “It has changed my life tremendously. It just made it so I could do ‘normal’ things again.” Many people with MS may assume that bladder changes are related to normal aging — or even that nothing can be done. And, like Mohn, they may find that their bladder issues prevent them from fully interacting with their community, friends and family. However, once diagnosed, this common MS symptom is in fact manageable and treatable, with the potential to profoundly improve enjoyment in life and, ultimately, overall health. Watch Michael Mohn’s story and learn more at www.nationalMSsociety.org/bladderbowel. Or call an MS Navigator at 1-800-344-4867 for the DVD and booklet, “Managing Bladder & Bowel Issues in MS.” n

MS CONNECTION: SPRING 2016

EMPLOYMENT

8 WAYS TO MANAGE LOSING YOUR JOB BY CHRISTINA FOSTER

Our last article focused on steps to take if you are afraid you might lose your job; but what can you do if you did actually lose your job? Whether you were laid off, fired, or even decided to leave a position on your own, the loss of a job can be overwhelming. To help ease you through the process we offer the following tips to assist you in moving forward. 1. Before you go, offer to your employer to work part time or per-diem as a consultant for needed projects. 2. Find out about your benefits and compensation options. Are you entitled to severance? Try to negotiate a package including paid medical costs for several months. 3. Don’t burn bridges! Be sure to take with you written references from supervisors, copies of past performance evaluations, any letters and/ ADVERTISEMENT

or e-mails from clients expressing positive feedback and a copy of your job description. 4. Once you have left, register with unemployment and your local One-Stop office. Also, register with your local Vocational Rehabilitation office for possible training in another field or assistance with placement. 5. Enroll at temporary agencies to get work on an as-needed basis. There may be jobs available that are not your ideal but they can get you through tough financial times. Also, it’s important to remember, you are always more marketable when you have a job than when you are unemployed. Keep your resume up to date! 6. Seek help if you are feeling down. Work is a large part of our identity. When someone has just been through a layoff, loss of this identity along with loss of income can cause some people to lose hope. The MS Society can connect you with counselors that you can talk to and help you through this difficult time. 7. Join a work support group. There is strength in numbers. Sometimes knowing you’re not alone and talking to others experiencing the same frustrations you are facing can give you the necessary support to help get you through this difficult time. There are groups out there that meet who are actively seeking employment. The group can provide support and job leads to members who have recently become unemployed. You can also check with your local MS chapter for a listing of MS support groups in your area. 8. Remember, whether or not you lose your job, being able to deal with any challenges that you encounter now will increase your self-confidence and help you face the next challenge, whatever it may be.

NATIONALMSSOCIETY.ORG | 1-800-344-4867

If you have an employment question you would like answered, such as workplace disclosure, social security benefits, reasonable accommodations, or if you are thinking about returning to work and not sure where to start, we can help. Feel free to pose your questions directly to this email address: EmploymentQuestions@nmss.org and an Employment Specialist will respond within 48 hours. You can also call 1-800-344-4867 for more assistance or visit www.nationalmssociety.org/ Resources-Support/Employment. n Adapted from Steven Viscusi’s book “How to Bullet Proof Your Job." ADVERTISEMENT

WHAT: Mission of Mercy (MOM-n-PA) The (MOM-n-PA) is a large-scale dental clinic where dental treatment is provided at no cost to individuals who are unable to afford dental care. Treatment is provided first-come, first-served and it is expected that several hundred individuals will be attending this year's event, so please come early! Patients do not preregister. For more information, please visit our website at www.MOM-n-PA.com.

COUPLES SUPPORT GROUP A Support Group specifically for Couples impacted by MS is seeking interested members who are looking to connect with other couples and attend a group specific to dealing with issues Couples may face when dealing with chronic illness. The group will be held in the Pittsburgh Area and will be facilitated by an individual with training in couples therapy. For more information or to get involved please contact Pam 1 800-344-4867, option 2. National MS Society’s United Way workplace giving designation code for Allegheny County only is: 898

8 SCHOLARSHIP

MS SCHOLARSHIP FUND The PA Keystone Chapter of the National Multiple Sclerosis Society is pleased to announce the recipients of the 2016-2017 scholarships awards. This year we have offered over $16,000.00 in scholarships thanks to our Golden Corral MS Scholarship Fund. Join us as we honor our 2016 Scholarship Recipients, they are: • Chelsea Brooks is a high school senior at Villa Maria Academy and plans to attend Penn State Erie to pursue a Bachelor’s degree in Psychology. • Miranda Stouffer plans to study for her Nursing degree at Penn State Altoona after she graduates from Altoona High School this spring. • Alyssia Heath, has been a dedicated volunteer at our MS Kids Camp and will be attending Slippery Rock University this fall to study Communications. • Emily Manning and her sister, Abby Manning, have volunteered at our MS Kids Camp for a few summers, as well. Emily is in her 2nd year at Point Park University working on her Bachelor’s degree in Animation. Abby will be graduating from Bethel Park High School and plans to attend St. Vincent College to study Bio-Chemistry. • Regis Kearney is in his 3rd year at University Park, majoring in Neuroscience and Psychology.

MS CONNECTION: SPRING 2016 • Joseph Weaver is a Franklin Area High School senior and plans to study Finance at Penn State University. • Tony Rice graduated in 2014 from Mid-West High School and is at Penn State University studying Agriculture Business Management. • Elizabeth Gick, graduating from York Catholic High School this spring, plans to attend Xavier University to obtain her Bachelor’s degree in Nursing. • Alyssa Sheehan-Fazio will be a 2016 graduate of Holy Cross High School and plans to attend Penn State Worthington Campus. • Sasha Baez-Sprague is currently pursuing a Human Resource degree at Indiana University of PA. • Erin Mulhearn is at George Washington University studying Biophysics. • Mardi Steinitz is working on her Social Work Bachelor’s degree at Chatham University. • Amber Blake is at Harrisburg Area Community College completing her Associate degree in Biology. • Amber Groff is pursuing her degree to become a Veterinary Technician from York Technical Institute. The PA Chapter of the National MS Society congratulates our 2016 MS Scholarship Recipients! Also, please visit your local Golden Corral Restaurant and thank them for their phenomenal support of our initiative to offer scholarships to our students in their full-time, post-secondary academic education. n

NATIONALMSSOCIETY.ORG | 1-800-344-4867

LIVING WITH MS

WE ARE STRONGER THAN MS The new National MS Society awareness campaign Together We Are Stronger features people impacted by MS and how their fierce resolve has developed solutions that unite us and make us stronger than MS. This unique campaign was developed pro-bono in partnership with the renowned advertising agency Wieden+Kennedy, and was highlighted in March for millions of people to see on electronic billboards in New York City’s Times Square, Port Authority, Penn Station, and Macy’s Herald Square locations among many other activities across the country. At WeAreStrongerThanMS.org, you can find these diverse, innovative solutions to overcoming the challenges of multiple sclerosis, demonstrating how together we are stronger than MS. Stories include that of Colorado resident, Dan Melfi, who says it is part of his family culture to fish. “My grandfather was a great fly fisherman into his late 90s,” remembers Dan. “It’s going be tough for me to stream fish from now on,” says Dan, referring to mobility challenges related to his 2009 MS diagnosis and the hike that is often required to access a stream. “I can’t stand for an extended period of time. And I can’t fly fish where you stand out in the middle of the stream.”

VIEW DAN’S VIDEO AT http://ntl.MS/keepfishing So Dan found and stocked a special vest — a fishing coat — with everything he needs: “my fly book, bait, bug spray.” The coat is lightweight so Dan can wear it, with the strap of his folding chair slung over his shoulder, as he uses his arm crutches to travel from his car to the lake’s edge. “I don’t have the ability to stand. So I take the chair.” Dan loves that he can stay out fishing “for hours, because I have the “I’M STILL chair. And my pole. And everything’s on my body.” GETTING THE

HOOK IN THE “Once you get in the chair and you start casting, you’re WATER.” fishing. You sit back and you look at life and it’s like, ‘wow, this is pretty cool.’” To learn more, visit WeAreStrongerThanMS.org. n Join actor Shemar Moore, extreme sports enthusiast Wendy Booker, and others in sharing powerful solutions with the MS community through videos, pictures and words. Every story connects us to each other and to the solutions that defy MS.

MS CONNECTION: SPRING 2016

ADVOCACY

2016 PUBLIC POLICY CONFERENCE BY MARA BROUGH

Every March hundreds of MS Activists and Society staff from across the country travel to Washington, DC to attend the Society’s annual Public Policy Conference (PPC). This year we recognized 25 years of MS activists’ collective impact as we move toward a world free of MS. The conference took place over three days in March with two days of educational programing and one day on Capitol Hill. This year the Pennsylvania Keystone Chapter had six dedicated volunteer activists join advocacy staff at PPC. Activists heard from experts about how to effectively share their stories with lawmakers and learned about our federal advocacy priorities. On Wednesday, March 16th –340 MS activists went to Capitol Hill and met with nearly 400 congressional offices. MS activists asked for additional funding for MS research. We asked Congress to provide $34.5 billion for the National Institutes of Health (NIH) in FY 2017. The NIH is the country’s premiere institution for medical research and has helped make significant progress in many areas, including understanding MS and providing basic research to develop MS

therapies. We asked Congress to fund the MS Congressional Directed Medical Research Programs (CDRMP) at $10 million in FY 2017. The MS CDMRP is a peer-reviewed program that funds important innovative research, different from and complementary to that of the NIH. Research is how we can stop MS in its tracks, restore what has been lost and end MS forever. We also asked our members of Congress to cosponsor and pass the Advancing Research for Neurological Conditions Act (H.R 292/S. 849). This bill would create a centralized data collection system at the Centers for Disease Control to track prevalence and incidence data for people diagnosed with neurological conditions – like MS. The last national study of incidence and prevalence of MS was done in

DID YOU KNOW? National MS Society programs are available to anyone affected by MS. To learn about programs available to you, visit MSPAKeystone.org and select “Resources & Support”

NATIONALMSSOCIETY.ORG | 1-800-344-4867 1975. Outdated date has made it extremely difficult for scientists to determine if there are environmental triggers that influence the onset of MS. This bill currently has broad bipartisan support with around 35% of the both the House and Senate signed on as cosponsors. The House included H.R 292 in its 21st Century Cures Act, which passed the House in July 2015. The Senate Health Education Labor and Pensions Committee unanimously approved S. 849 in February 2016. We will continue to advocate for this bill until its passage. Finally, we asked our members of Congress to request a hearing focused on the patient perspective on MS medications. Both innovation and affordable access are critical for people with MS to get the medication they need. Between 2004 and 2015, the average price of MS diseasemodifying therapies increased 300%. We expressed to members of Congress that it is time to hear the patient voice, so together we can all consider solutions.

TRIBUTES AND MEMORIALS If you want to honor someone living with MS or memorialize a loved one who passed away, please consider naming the Pennsylvania Keystone Chapter of the National MS Society as the charity of your choice for donations. All contributions help to support local programs and services and fund MS-related research efforts. All tributes and memorial gifts are appreciated.

Overall, the 2016 Public Policy Conference was an amazing experience for all involved but there is still work that needs to be done! We are continuing to advocate for policies and programs that benefit people with MS and their families. If you interested in learning more about our legislative priorities or becoming a MS Activist please visit http://www.nationalmssociety.org/Get-Involved/ Advocate-for-Change or contact Mara at (267) 765-5104 or mara.brough@nmss.org. n

Heather Mayer, MS, PT PT / Neurological Specialist

The Village at Pittsburgh Mills 724-274-4333 1020 Village Center Drive, Suite N2D 724-274-4303 Tarentum, PA 15084 pghmills@westarmtherapy.com

Knowledge Is Power is a six-week, free, at-home educational program for people who are newly diagnosed. To register call 1 800-344-4867, or visit nationalMSsociety.org/knowledge.

MS CONNECTION: SPRING 2016

UPCOMING MS PROGRAMS: 2016 MS Seminars

HAVE A VOICE IN MS RESEARCH

PARTICIPATE IN CLINICAL TRIALS From testing a potential new therapy for MS to trying an exercise program to help manage symptoms of fatigue or spasticity, people with MS who participate in clinical trials make it possible to bring new medications and symptom-management strategies from the lab to their doctor’s office.

WHO KNOWS MORE ABOUT MS AND ITS DIVERSE IMPACTS ON LIFE THAN PEOPLE WHO LIVE WITH THIS DISEASE EVERY DAY? “The willingness of people with MS to participate in research studies and clinical trials is vital to understanding the complexities of the disease and to developing better treatments,” says Timothy

LIVING WITH MS

RESEARCH

Today, there are more options than ever before for people with multiple sclerosis to help drive MS research. They can choose to participate in clinical trials, donate DNA through blood samples, or complete health surveys. No matter where they live, what their background is, or what stage of the disease they are in, people with MS are at the heart of MS research. Here are some of the ways you can make your voice count.

NATIONALMSSOCIETY.ORG | 1-800-344-4867

Presented by: Dr. Douglas Nathanson,Neurologist, Geisinger Wyoming Valley Medical Center Coetzee, PhD, Chief Advocacy, Services and Research Officer at the National MS Society. “They are the experts - who else knows more about MS and its diverse impacts on life than people who live with this disease every day?” In fact, researchers are increasingly looking at “patient-reported outcomes,” gathering information directly from individuals participating in studies to better capture how a treatment makes people feel. n For more information on how to participate in current clinical trials, visit www. nationalMSsociety.org/clinicaltrials or search www.clinicaltrials.gov for ongoing MS research.

The Pennsylvania Keystone Chapter of the National MS Society is pleased to present a series on a variety of topics related to MS. Registration is REQUIRED for each night. Register today at MSPAKeystone.org or call 1 800-344-4867

The Links at Hemlock Creek, 55 Williamsburg Boulevard, Bloomsburg, PA June 15, 2016: Vitamin D August 3, 2016: Bowel and Bladder Issues October 5, 2016: MRI - What Does it Mean? December 7, 2016: Exercise & PT Marzoni’s 26 Montage Mountain Road, Moosic, PA July 11, 2016: Bowel and Bladder Issues Sept. 19, 2016: MRI - What Does it Mean? November 7, 2016: Exercise & PT

Like us: /MSPAKeystone Follow us: @MSPAKeystone Watch us: user/NationalMSSociety

Thank you to Biogen for its support of the 2016 MS Seminars.

MS CONNECTION: SPRING 2016

WEBINAR & TELELEARNING SERIES

NATIONALMSSOCIETY.ORG | 1-800-344-4867

Live Your Best Life: Wellness Series Wednesday, June 29, 2016 6:30 to 8:00pm Williamsport Branch YMCA 641 Walnut Street, Williamsport Come join the PA Keystone Chapter of the National MS Society as we partner with the Williamsport Branch YMCA to offer a holistic wellness program for our members with MS to ensure they are living their best lives! We are excited to offer members both educational seminars once a month and weekly exercise and wellness classes offered by the YMCA. This new facility provides a wide range of classes including, but not limited, to aqua therapy, adaptive yoga, meditation/mindfulness led by certified instructors and tailored to meet every fitness level. You can participate in as many classes as you wish with your YMCA membership!

SUSAN DIAGNOSED IN 1988

BROOKE DIAGNOSED IN 2009

WILLIAM (LEFT) DIAGNOSED IN 2002

Building Your Wellness Strategies A collaboration of MS experts will help you build strategies to live your best life with MS. Each free program features two presenters with time for Q&A. Join us online or by phone on topics including: • Exercise & Cognition • Employment

(4 different topics)

• Treatment Decisions • Research Updates

• Traveling with MS

• Stress & Relaxation

• Managing Spasticity • Mood

• Health Insurance

• Tips for Support Partners & Families • Diet & Nutrition • Sleep

Calls are held on the second Tuesday of each month from 8 to 9:15 p.m. ET All calls are recorded and available for playback.

6:30 - 7:00 - Tour of YMCA; Meet the Staff 7:00 - 7:30 - Neurologist, Dr. Dworek, Susquehanna Health 7:30 - 8:00 - Q & A Registration Deadline: Wednesday, June 22, 2016 Questions or to register for this program, visit MSPAKeystone.org or call Susan at 1 800-344-4867-option 2

CONNECTIONS GROUP The PA Keystone Chapter currently has 32 Connections groups throughout our Chapter area. Visit our the Chapter website at MSPAKeystone.org and click on the link “groups and discussions” for a group listing by county and explore the many different support groups that are available to you and your family. If you cannot attend an in-person support group, we offer support by telephone and online. Please contact our Chapter office for more information. Perhaps you are interested in starting a support/self-help group in your area? For more information about how YOU can become a Connections leader, contact Susan at 1 800-344-4867, option 2 and email Susan at susan.guinter@nmss.org.

Do you have an employment question you would like answered? Are you curious about workplace disclosure, social security benefits, need a reasonable accommodation or are you thinking about returning to work? If so feel free to pose your questions directly to this email address: EmploymentQuestions@nmss.org and an Employment Specialist will respond within 48 hours.

MS CONNECTION: SPRING 2016

NATIONALMSSOCIETY.ORG | 1-800-344-4867

UPCOMING EVENTS:

GEORGE F. HEMPT MEMORIAL MS POLO MATCH August 12, 2016 Hempts Farm Polo Field Mechanicsburg, PA A day of family fun, the Polo Match aims to stomp out MS one divot at a time. Gates open at noon with a children's tent and activities, terrier races followed by the Polo Match at 2:00 pm.

GREAT COURSES. GREAT CAUSE.

WESTERN PA SERIES SUMMER OF 2016

GREAT REASON TO TAKE THE DAY OFF!

Don't miss the traditional stomping of the divots at half time. For more information visit MSPAKeystone.org or contact Debbie at debbie.garrison@nmss.org or call 1 800-344-4867, option 2.

IT’S MORE Golf Outing Monday, August 8, 2016 Lake Shore Country Club, Erie Wed., September 14, 2016 Laurel Valley Golf Club, Ligonier Thursday, September 1, 2016 Iron Maters Country Club, Roaring Spring

Mason-Dixon Challenge; Aug. 6th - 7th 2 day or 1 day option available, 150 mile

Keystone Country Ride; July 23rd - 24th 2 day, 150 mile ride

Cook Forest River Ride ; Sept. 17th 1 day ride, 35 or 60 miles

MS CONNECTION: SPRING 2016

FUNDRAISING OPPORTUNITIES

WE COULDN’T DO IT WITHOUT OUR WALK MS: 2016 PARTNERS! Corporate partners move our cause forward, and we would like to take a moment to thank a few of the many corporate partners that enable us to create such wonderful events!

WALK MS IS A SIMPLE, BUT INCREDIBLY POWERFUL WAY FOR YOU TO SHARE IN THE HOPE FOR THE FUTURE. The 2016 Walk MS campaign got community members moving and left them moved! A special thank you goes out to everyone who came to one of the 24 Walk MS events throughout 56 counties across Pennsylvania. By joining the Walk MS movement, you joined our fight to stop MS. You shared a remarkable achievement with nearly 15,000 other walkers. Most importantly, you made a difference by helping to raise nearly $1.6 million for research and services for people with MS across Pennsylvania! We unite as a community during Walk MS to make a powerful statement – to keep us moving toward a cure of multiple sclerosis. Whether you walked, volunteered, donated or fundraised, we thank you for getting involved. You are an important part of the Walk MS movement. Remember, each step you take brings us closer to a work free of MS. We look forward to working with all of you for a great 2017 Walk MS season, and please stay tuned for walk dates, locations and more. n

September 23, 2016

Corporate Sponsorship available, please contact Julie or Sharon at 1 800-344-4867 for more information. Registration Opening Soon at: MSPAKEYSTONE.ORG

SPONSORSHIP HIGHLIGHTS

WALK MS 2016

Enjoy your choice of a whole steamed Maine Lobster or a 10 oz. Filet Mignon. Both meals include a generous portion of steamed shrimp.

NATIONALMSSOCIETY.ORG | 1-800-344-4867

September 23 & 24, 2016 Patterned after Italy’s famed Mille Miglia open-road endurance race, PA's Mille for MS fundraiser is set to showcase some of the world's finest classic and modern sports cars with a 175mile tour through Northern and Central PA. For information about the Mille for MS event, e-mail Scott at scott.garner@nmss.org or call him at 1 800-344-4867.

A big thank you to our National Premier Sponsor, Novartis. National Sponsor, Genentech. Campaign-wide presenting sponsor, Bayada Home Healthcare. Special thank you to our Local Premier Partners, TeleTracking Technologies Inc. and Giant Food Stores. Also thank you to some of our other local sponsors: Texas Roadhouse, Sanofi Genzyme, Biogen, EMD Serono, Acorda, Mallinckrodt, Mylan, TEVA, Care Unlimited, Toshiba, Peoples Natural Gas, Healthsouth, Allegheny Health Network, Rita’s Italian Ice, UPMC & Chartwell, Giant Eagle, Sarris Candies, Sam’s Club, Rivers Casino, PPM Realty, West Shore, Eat N Park, Nugo Nutrition, 5 Generations Bakers, Snyder of Berlin, Pepsi, Betsy Ann, Lamar Outdoor Advertising, Gitano Productions, KDKA & the CW, KDKA Radio, Nemacolin, 5 Spokane Ortho, Café Kolache, Northwest Savings Bank, Logistics+, Greenleaf, LECOM, Ainsworth, South Erie Turners, Jet 24, Fox66, Utz, Little Caesars, Cool 101, S&T Bank, Connemaugh Health System, Fiarmans Contracting Inc., Marianna’s Fundraisers, Treasure Lake, Imlers, Bestway Pizza, Subway, Pizza Hut, Roaring Spring, WTAJ, Froggy 98, 96Key, Sunny 106, Westshore Shower & Bath, Jack Giambalvo, Kinsley Construction, Canteen, Allied Services, WGAL, The Citizens’ Voice, WHAG, Oldiez 93, ($ OneKX, Y106, ESPN 92.3, B98, Majic 99, WRSC, myTV WHVL, PASN and more!! n

We invite you to an inspirational afternoon. Support amazing women who have been affected by MS by joining us for the Women on the Move Luncheon. Our goal is simple...to raise funds for and awareness of multiple sclerosis. Save the Dates! September 27th: Hamilton Club, Lancaster September 28th: LeMont, Pittsburgh More Information To Come!

Special Thank you to our 2016 Walk MS Presenting Sponsor: BAYADA HOME HEALTH CARE BAYADA Home Health Care is a proud supporter of The MS Society and the mission to raise awareness for this disease. As BAYADA cares for people with MS in their homes, they see the impact that MS has on the client and the entire family firsthand. As the local presenting sponsor of PA Keystone’s Walk MS Campaign, BAYADA is glad to show their support for all people with MS and their families; and to help strengthen the voice of solidarity to find a cure for MS.

20 SPONSOR HIGHLIGHTS

MS CONNECTION: SPRING 2016 Western PA Walk MS Local Premier Partner, TeleTracking Technologies, does it again!

NATIONALMSSOCIETY.ORG | 1-800-344-4867

SPONSOR HIGHLIGHTS

A huge thank you goes out to all of our friends at TeleTracking Technologies, who were once again our generous Western PA Walk MS Local Premier Partner. A WORD FROM OUR PRESENTING SPONSOR, TELETRACKING TECHNOLOGIES INC. “Why we support the PA Keystone Chapter of the National MS Society: At the age of 37, one of TeleTracking’s colleagues was diagnosed with MS. Kathy Unger, Accounts Receivable Clerk, will never forget the day she got the news. “MS can happen to anyone. Overnight. It blindsides you. Unfortunately, this disease is not predictable, it is hard to diagnose and all cases are different,” says Unger. “While MS can be a daily struggle, I am very blessed to still work and I desire to keep living life to the fullest. I support the MS society because we need to find a cure. I walk for others who cannot.”

TeleTracking has donated to the MS society for over 10 years in support of Kathy. At first, only a small number of people joined her at the walks. Most donated on her behalf, but then realized they wanted to be there in person to support her and others struggling with MS. A team was formed with matching t-shirts to show our unity. About TeleTracking TeleTracking (http://www.teletracking.com) created the automated patient flow category and now offers Real-Time Capacity Management™ solutions and services to nearly 900 clients, including most of America’s “Top Hospitals,” which account for 350,000 of the nation’s 800,000 hospital beds. Its automated operations management platform helps optimize daily hospital functions by tracking patients, staff and assets, in real time. Thank you for your continued support, TeleTracking, we look forward to working with you next year! n

A huge thank you goes out to all of our friends at GIANT Food Stores and MARTIN’S Food Markets, who were once again our generous Central PA Walk MS Local Premier Partner. Each year the associates at GIANT Food Stores and MARTIN’S Food Markets lace up their sneakers and walk to support local MS Societies within the communities where they live and work. In 2016, GIANT/MARTIN’S had over 20,500 associates from Pennsylvania, Maryland, Virginia and West Virginia walk to help those living with MS. GIANT/MARTIN’S has supported the MS Society for the past 20 years and during that time has raised over 5 million to help fund education, advocacy, research and local programs that enhance the quality of life for those with multiple sclerosis. The National MS Society recognized GIANT/MARTIN’S for its ongoing commitment and support with its Circle of Distinction Recognition Award in 2011 and the Corporate Star Award in 2013.

About GIANT/MARTIN’S Founded in 1923 in Carlisle, Pennsylvania, GIANT/MARTIN’S operates nearly 200 grocery stores in Pennsylvania, Maryland, Virginia and West Virginia, under the names of GIANT Food Stores and MARTIN’S Food Markets. GIANT/MARTIN’S employs more than 33,000 associates and is a division of Ahold USA. In addition to working with hundreds of local and regional organizations annually, GIANT/MARTIN’S has a long-standing focus on efforts to eradicate hunger and improve the quality of life for children. GIANT/MARTIN’S is one of the top ten fund-raisers in the country for local Children’s Miracle Network hospitals. The company was also recognized as 2015 Chain Retailer of the Year by Grocery Headquarters. For more information visit GIANT or MARTIN’S websites. Find GIANT and MARTIN’S on Facebook and on Twitter @GiantFoodStores or @MartinsFoodMkts. n

MS CONNECTION: SPRING 2016

WAYS TO GIVE

JUST SAY YES BY CAROLYN HOWARD

My husband always threatens to buy me a T-shirt that says, “Stop me before I volunteer again.” When I was diagnosed with MS just over 10 years ago, I immediately connected with the National MS Society. I attended meetings, education programs and Walk MS events (lots of Walk MS events), and met other people with MS. Now I can often be found at events, at registration for or along Walk MS routes, or wherever help is needed. At the Society, I attended a peer support workshop that allowed me to provide support in the Concord Hospital MS Specialty Care Program. It has been particularly rewarding to connect with people in the program and compare how they are coping with their MS. Sometimes I get as much benefit from these interactions as they do. I also go to a “Coffee and Conversation” group where people with MS connect over coffee (or iced tea) and talk about … actually, just about anything, not necessarily anything to do with MS. That’s the conversation part, relaxed and casual. Sometimes it is easy to forget that we are more than our MS, but we all have times of humor, joy, excitement and frustration that have nothing to do with MS and which we want to share with each other. There is plenty of room for anyone who would like to join.

CAROLYN HOWARD, SECOND FROM LEFT, FRONT ROW Family and friends are welcome. So say YES! Yes, to helping others, to learning more, to connecting. Getting connected means being open to new and different experiences. I connect by volunteering, providing support, fundraising and sharing. Through all of these activities I have connected with lots of interesting people - who also happen to have MS. I said YES because I can’t say no. As a result, my life continues to be fuller and richer. Call 1-800-344-4867 to connect and to volunteer. n Carolyn Howard was diagnosed with MS in 2004. She lives in Bow, New Hampshire, and is married with three adult children.

3rd Annual Gourd Float hosted by

Carlisle, PA Friday, July 15, 2016 7:00 PM For more information visit: mbgourds.com//activities/event/summer-celebration-2016

NATIONALMSSOCIETY.ORG | 1-800-344-4867

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1501 Reedsdale St., Ste 105 Pittsburgh, PA 15233 1 800-344-4867

The official registration and financial information of the National Multiple Sclerosis Society, Pennsylvania Keystone Chapter, may be obtained from the Pennsylvania Department of State by calling, toll free within Pennsylvania, 1 800-732-0999. Registration does not imply endorsement.

OFF MY WAVE.

Ocean Beach native and local sur f legend Steve Bettis was diagnosed with MS in 2006. Although sur fing is still central to his life, he hasn’t been able to get out on the water in 10 years. For a man whose daily routine always included a few waves, more than a decade out of the sur f is just too long. This is why the National MS Society teamed up with his buddy Rober t “Wingnut” Weaver and used vir tual reality to get Steve back on his wave. See their experience and find out how you can share yours at WeAreStrongerThanMS.org.

Together We Are Stronger