Annual Review 2010-2011
Being there for all the family Dear friends,
When someone is diagnosed with a life-limiting illness, life for that person and for those around them is never the same again. From diagnosis, a new journey begins. We believe in being there for all the family. Through offering support and care to patients, their families and carers; our doctors, nurses, counsellors and therapists can offer what is needed at such a difficult time in life. We believe that every person in our care is unique, and strive to make it possible for each individual’s independence and dignity to be maintained. All of our services are provided free of charge. The care provided throughout North Devon, would not be possible without the amazing generosity of the local community. Together we have raised more than the £3m needed to provide these essential services every year.
This has been a positive year for the hospice and in this Annual Review we offer snapshots of some of our key activities during the past year. The hospice began from a 2 bed terrace in Vicarage Lawn some 27 years ago, and our vision has remained unchanged; to be there in the community, supporting those who need us. So it has been a pleasure to watch our care and support services expand further into the community. We have welcomed the Community Palliative Care team and the hospital based Specialist Palliative Care Service, thanks to a 5 year secondment from the Northern Devon Healthcare Trust. This means that our expertise and services are being offered to more people in many different care settings, including hospitals, care homes but most importantly, at home. During the coming year we will continue working closely with our health and social care partners, integrating and enhancing services for those working in end-of-life-care. We have taken positive steps during the last year and continually aimed to offer the best possible care to local patients and families. On behalf of North Devon Hospice and every person supported, thank you so much for your ongoing support.
Gordon Lester Chief Executive
I’ve seen things in myself and others that are truly wonderful �
Being there for the journey
A patient
Over 5,400 sessions were provided by our Supportive Care team during the past 12 months. When someone listens without making judgements, a new clarity and self understanding emerges and people begin to discover what they need to sustain them in the most difficult of circumstances. Through counselling, spiritual care, self-help techniques and group work, the Supportive Care team has offered men, women, children and families the time and space to look at what is happening in their lives and an opportunity to explore what it means for them. Last year, after listening to common difficulties experienced by families, we organised two special events, the Family Day and the Well Being Fair. Offering these, in the safety of the hospice community, improves quality of life and can provide cherished memories for those who will be bereaved.
< Image When a father expressed his concerns about not being well enough to take his children out anymore,
the Family Fun Day was organised, enabling families of all ages to enjoy time and activities together.
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Being there for the day Day Hospice provides the opportunity for patients to spend a day at Deer Park. On Tuesdays, Wednesdays and Thursdays last year, we welcomed over 600 people to the timetabled free days. Each day, our aim has been to provide a safe and supportive environment for patients where they can meet with other people, share experiences, and feel part of a community. Many have found comfort and relaxation knowing they are being cared for whilst they have enjoyed time in the gardens, chatting over a lunch, creative activities, reading, music, being together or spending some time alone. With the help of our specialist nurses and volunteers, patients are supported to manage their life changes and enhance their well-being.
Being there when you need us This year we expanded our frontline services, welcoming hospital and community based care services.
I feel like I’m living my life in full colour instead of black and white ” A patient
Since December 2010, our hospital based Specialist Palliative Care Service has supported individuals during specific stages in their journey. Supporting people who wish to be at home, our Community Palliative Care Support Workers have provided ‘hands on’ end-of-life care for 76 patients, and have been there for their families and carers, providing support and guidance during difficult times. < Image A group of ladies met in a Barnstaple cafe for our annual Knit In. Blankets of all shapes, sizes and colours
were well received by people visiting our charity shops.
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Being there with 24 hour care Our Bedded Unit received 163 patient admissions in the past 12 months, and it continues to be an essential resource for the North Devon community. Short admissions to the Bedded Unit ensured patients received care and attention when they needed it. For those who stayed in the latter stages of their illness, the 24 hour specialist medical care supported each person to the end of their lives. Many people also visited us for outpatient appointments, and treatments for the management of complex symptoms, before returning home. Integral to all that we do, it is always our intention to respond sensitively to the emotional, spiritual and physical needs of patients, their families and friends.
Being there in the community Last year, our 13 Community Clinical Nurse Specialists made over 5,500 visits to patients and their families. Our nurses offered symptom control, emotional support and advice to those in need. We have been providing specialist care in the homes of our patients for over 27 years and today, it is still where the majority of our care takes place. Travelling a total of over 50,000 miles visiting people at home, the team covered the length and breadth of North Devon and visited many towns, villages and hamlets in between. Each nurse continues to work alongside the local GP practices, with district nurses, health and social care teams, hospitals and care homes to provide the best possible care for our patients and their families. < Image On Instow beach, local gig boat teams guided a wicker raft out to sea, at our memory evening, Floating Bye. It was covered with messages and orange gerbera flowers in memory of our loved ones.
They are all there to help. I was brought up to help whenever I can â&#x20AC;? Laura, a community fundraiser
Being there to facilitate learning In partnership with the Northern Devon Healthcare Trust, we facilitated 90 taster sessions and 12 study days last year; the programme continues to be delivered throughout 2011. Together, we brought educational opportunities in end-of-life care to both health and social care providers working across North Devon. We believe in making a difference by sharing specialist knowledge and skills. For the benefit of every person touched by a life-limiting illness, we aim to promote the best possible end-of-life care in every care setting.
With thanks to NHS Devon for sponsoring training and education in end-of-life care.
< Image Community fundraiser Laura, during her 15,000 ft sky dive for the hospice.
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We give time, but the patients give to us too â&#x20AC;? A volunteer
Being there because of your time Our volunteers generously gave us more than 132,000 hours of their time last year, and they continue to be our most valued and appreciated asset. Their support has been seen throughout all of our work and their time, skills, and personalities continue to be an essential part of who we are, and what we have been able to achieve. Putting their hand to so many tasks, itâ&#x20AC;&#x2122;s impossible to list them all. To name a few, the support of our volunteers has been appreciated in driving patients to and from the hospice and medical appointments, within administration roles, throughout all of our shops, through the support and care provided to patients and their families, and helping with our fundraising efforts.
< Image On the day, over 150 volunteers from the local community supported the 2010 North Devon AONB Marathon.
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Being there for others Although not always easy to think about, it is easy to see the importance of leaving a gift to support our work. This year over 20% of our income came from wills. A gift in your will is a lasting legacy of support for the hospice and we are always touched by the generosity of people who leave something to us. Last year this amounted to just under £900,000 in donations. It is thanks to the support we receive in peoples’ wills, that we can continue so much of our work. Speaking on behalf of her mum, Amy tells us about Lyn’s experience: “They made it their mission to get to know mum as a person. She soon became more comfortable because they became her friends. So grateful for the care and attention she received, she was adamant to give something back and left a generous donation. To mum it was small, but the very least she could do.” We are so very grateful to everyone who includes us. Through the gifts of others, we can continue to support patients, their families and friends across the community. If this is something you may consider, we would be grateful to hear from you.
< Image Lyn and Amy Cole.
Income
Strengthening our charity %
NHS Devon Fundraising Legacies Lottery Shops Investments & other
29 28 26 9 5
Income
£3,395,746
3
During the past 12 months we have explored ways to save money and put new structures in place to reduce our costs. By doing this we have directed funds into growing our frontline services. Our resource management was applauded, when we won the 2010 Third Sector Award for Best Financial Management.
a Expanded frontline nursing and care services a Appointed another Consultant
Expenditure
a Joined up records and communications with the NHS %
a Appointed two new trustees
Care Fund generation Education Governance
78 17 3 2
a Award winning fundraising management
Expenditure
£3,393,421 Financial Management
This summary of financial information is based on the statutory accounts for the year ending 31st March 2011 audited by Thomas Westcott. The Trustees’ Report is available from the North Devon Hospice website or by a request in writing.
Best Fundraising Event
With thanks
Support and care available:
We would like to thank everyone who has contributed to North Devon Hospice. It is only through your time, money and support that we are able to go on making a difference to the lives of people with life-limiting illness across North Devon. Although it is not possible to mention every single person or organisation that has supported our work, we would like to give particular thanks to our governing board of volunteers:
Specialist Palliative Care is available to people who:
This includes:
Have advanced progressive illness
Clinical Nurse Specialists providing advice and support to patients and families
Need advice on pain management or other distressing symptoms
24 hour care in a purpose built 7 Bedded Unit to help with the management of complex symptoms or in providing end-of-life care
Would find benefit in holistic care, with any emotional and spiritual needs being addressed
Community Palliative Care Service providing practical nursing care & support for patients requiring palliative care, and their families during the final days
Need end-of-life care
Our President
Vice Presidents
Board of Trustees 2010-11
Right Reverend Robert Evens, Bishop of Crediton
David Morgan
Chairman, Dr. John Womersley (resigned 9th June 2011)
David Whiteley
Deputy Chair, Angela Webb (appointed Chair 9th June 2011)
Gavyn Davies OBE
Treasurer, Stephen Scoffield
Geoffrey Cox QC MP
Allister McNeil (resigned 29th July 2010)
John Riley
Andrea Rowe (appointed 17th March 2011)
Lady Stucley
Barbara Bollom
Mark Parkhouse DL
Barabara Sheppard
Nick Harvey MP
Christopher Clapp
Philip Jewell
David Trueman
Ron Ley
Doreen Coull (resigned 16th November 2010)
The Hon. John Rous DL
Dr. Eric Holmes Kenneth Clarke (appointed 29th April 2010) Lesley Taylor (resigned 17th March 2011)
A hospital based Specialist Palliative Care Service to support individuals with any life-limiting illness, at any stage of their journey Consultant outpatient appointments and Consultant domiciliary appointments The hospice medical team sharing care, information, advice and support with other health and social care professionals
Supportive Care is offered to people who: Are over 18 and have a life-limiting illness or Are adults or children deeply affected by that person’s illness or Are left bereaved as a result of that person’s death
Mike Ford (appointed 17th March 2011) Philip Loft Free transport is available on request
This includes: Support groups for patients, for carers, and also the bereaved Day Hospice ‘Look Good Feel Great’ sessions ‘It’s Friday’ drop-in Complementary therapies ‘Staying Steady’ sessions ‘Pamper Days’ for carers ‘Benefits Surgery’ and ‘Question and Answer’ sessions One to one bereavement support Support for children and their carers Pastoral & spiritual support
Working in the homes of our patients across the community
Lynton Combe Martin
Working with GP Practices & District Nurses
Woolacombe
Ilfracombe
Working with Nursing Homes & Residential Homes Working with Hospitals & Community Hospitals Braunton
Deer Park Hospice Shops
Heanton
Fremington Westward Ho!
Instow
Chelfham
Barnstaple Landkey
Northam
Swimbridge
Bideford
Abbotsham
South Molton
Alverdiscott
Hartland
Great Torrington
Bradworthy
High Bickington
Chulmleigh Shebbear
Holsworthy
Black Torrington
Beaworthy
being there for all the family
North Devon Hospice, Deer Park, Newport, Barnstaple, North Devon, EX32 0HU T: 01271 344248 F: 01271 347200 info@northdevonhospice.org.uk www.northdevonhospice.org.uk
Registered Charity Number: 286554