MS Connection - Winter Edition 2012-13 by National Multiple Sclerosis Society, Gateway Area Chapter

winter 2012-13 special 2012 annual report edition & 2013 wall calendar gateway area chapter

MS Connection magazine

thank you for helping me... pursue my college education

take control of my MS

Pg 6 stay independent

INSIDE 10 THIS ISSUE

thank you fundraisers

Pg 5

Pg 4

Pg 3

advance MS research

Pg 8

Pg 7 just be a kid

reconnect with my family

18-19

thank you donors

thank you volunteers

financial snapshots and statements

MS connection: winter 2012-13

INSIDE THIS ISSUE Scholarship Program........................ 3 Wellness........................................... 4 Research........................................... 5 Financial Assistance......................... 6 Family Programs.............................. 7 Camp Hope...................................... 8 Fundraisers................................10-12 Teams.............................................13 Donors............................................14 Sponsors..........................................15 Volunteers..................................16-17 Financial Snapshots.........................18 Financial Statements.......................19 Carepartners............................. 22-23 New Talk MS Groups......................25 Couples Retreat...............................25 Free From Falls.............................. 26 Camp Hope................................... 26 Talk MS Groups....................... 28-29 Therapeutic Recreation.............. 30-32 MS Learn Online........................... 34 Chapter Calendar........................... 34 Program Registration......................35 msconnection.org............................35

Letter from the president and board chair Facing multiple sclerosis can feel daunting, depressing, and at times devastating. It can change your life, and the lives of those who care about you. Being part of the MS movement, on the other hand, is one of the most positive, uplifting, and inspirational things we can imagine. It can also change your life, and the lives of those around you – for the better. This has been an amazing year in the MS movement, and in this special Annual Report edition of the MS Connection, you will see why we have so much to be grateful for. The stories in these pages are “thank you” notes to you from people whose lives have been impacted by the National MS Society. We would like to add our voices to the chorus of gratitude. If you volunteered at the MS Society, made a financial donation, participated in an event, built awareness, or became an MS activist, THANK YOU. If you joined the movement by attending an educational program or peer support group, THANK YOU. The MS Society is proud to serve the 6,900 people in our area living with MS and their loved ones. We hope that you will enjoy the uplifting stories on these pages, and perhaps be inspired to join the MS movement in a new way in the coming year or recruit one more friend to help us create a world free of MS. With sincere gratitude, Phyllis Robsham Chapter President

Robert Cannon Chair, Board of Trustees

Midwest Teleconference Series....... 36 Wellness Network.......................... 36

P.S. Please enjoy the enclosed Gateway Area Chapter wall calendar for 2013!

gatewaymssociety.org | 1-800-344-4867

thank you for helping me...

pursue my college education

By caterina fedyk

As a three-year-old, I had a simple, positive outlook on everything. Life was easy. I had tea parties with friends, an adorable dog and an unlimited supply of crayons. Then my mom was diagnosed with multiple sclerosis. Being so young, I could not say the name, much less understand what it meant. So what if Mom can’t play in the backyard? I was the only kid with a sandbox out on the deck. She was there, helping me build sandcastles, and that was all that mattered. When Mom could no longer drive, we had “dates,” traveling in a community van. Kids laughed as she was raised on the lift, but we were together and that was all that mattered. Throughout school, I was “the girl whose mom is in a wheelchair.” She managed to be the best Room Mother every year and attended every one of my events. My mom was always there, and that was all that mattered. I hardly know how to properly thank you and the National MS Society for awarding me the Presidential Top Scholar Award and giving me the opportunity to go to college and make my family proud. In high school, I worried I would be restricted to a local or community college because of my family’s financial and medical situations, but I persistently worked to improve my grade point average and immerse myself in any possible activity around my school or community, on the slight chance I may be eligible for a scholarship like this. Because of your generosity supporting the

National MS Society, I will have countless other opportunities to grow as a strong and independent woman at Ball State University. I hope to be able to give such a beautiful gift as yours some day. This college education will allow me to expand my knowledge of Caterina fedyk won the the world, gain National MS society insights into the presidential top scholar human condition, award, a four-year and develop scholarship. She attends ball as an effective state university. photojournalist. Family and friends joke around, asking if I will be the next issue reporter Eddie Adams or work for National Geographic. I typically just roll my eyes and say, “yeah, right,” but in my heart, I always answer ‘yes.’ At the moment, they are just pipe dreams, of course, but I know if they ever happen, they would not have been possible without your help.

in 2012 the chapter awarded $41,000 in scholarships to 21 new college students. nationally, the society awarded over $1 million to 646 scholars in 2012.

MS connection: winter 2012-13

thank you for helping me...

take control of my ms By joanne herzog

When I was diagnosed with MS 21 years ago, I was in very good physical condition and had a very healthy and active lifestyle. With my MS came numbness in my right leg. It began as tingling, then I had to really drag it behind me and I couldn’t walk. I tried to stand up at one point, lost my balance and fell through a glass coffee table. My father has Parkinson’s disease and dementia which takes a lot out of me physically, mentally and financially. I felt like I needed something therapeutic for my mind and body. So I joined Club Fitness about a year ago. Initially when I went back to the gym I wasn’t really getting any results. I was doing a little bit of cardio. I didn’t know what to do and I was afraid I was going to get hurt. Then in March I reached out to the Gateway Area Chapter to see if they could possibly help me. They said they could help me pay for a personal trainer which has made a world of difference. My trainer has helped me in all sorts of areas: posture, balance, injury prevention, pain relief, modified exercises I can safely do at home. She actually has

in 2012 the chapter helped 40 people like joanne through wellness program scholarships.

stretches for me to do on my own and some that she puts me into that actually target where I have spasms. That has helped me with pain relief. I had no idea that could even happen. The pain relief has been amazing. the Chapter’s wellness I could handle the Program has helped Joanne month-to-month herzog work with a personal gym membership trainer and take control of her ms. cost, but I couldn’t afford the personal training. It wasn’t even an option. I feel like it’s changed my life and it’s really saved my life in a lot of ways which is way I’m so thankful to the National MS Society. I’ve never really asked for help before and it was really hard to say I need help. It took a lot for me to ask for help. Through the process I was treated with kindness and respect. I’m a better person and in a better place. It’s not only made a profound difference on me but in the lives of my family and loved ones. It’s made me better and stronger. My dad needs me and with the Chapter helping me I’m better able to help and support him. I am so grateful to the Chapter for helping me have a little bit more control.

gatewaymssociety.org | 1-800-344-4867

thank you for helping me...

advance ms research

By dr. laura piccio

I would like to express my gratitude to the National MS Society and to all donors, fundraisers and volunteers that in all their different ways are supporting the NMSS. I have a very strong connection to the NMSS which has had, and still has, a huge impact on my training and my career. When I first came to the United States from Italy, I was awarded a fellowship from the NMSS under the mentorship of Dr. Anne Cross at the John L. Trotter MS Center in St Louis. During that time I had the opportunity to learn a lot about MS and how to address important research questions which are to understand MS causes and to identify potential effective treatments.

Dr. laura piccio’s career has been closely tied to the national ms society. in the role of metabolism on modulating inflammatory and immune responses.

After my fellowship, I was honored to be the recipient of the Harry Weaver Neuroscience award which is given by the NMSS to young scientists to pursue MS related research as independent investigators. This allowed me to become a faculty member at Washington University in St Louis and to develop my own research ideas.

Again, the NMSS has been instrumental in the development of this research direction which was possible thanks to some pilot funding from them. I have a genuine commitment to the MS cause and I share this with many of my colleagues because we think that our research is changing the lives of people with MS. I feel that the NMSS is a key to keep us all together and motivated to reach our common goal which is to eventually end this disease.

Most of the projects I have been working on are trying to unveil the immunological mechanisms underlying MS. In particular we are interested

in 2012 the chapter invested more than $1.1 million in cutting-edge ms research.

MS connection: winter 2012-13

thank you for helping me...

By james dean

By kim curtis

stay independent

reconnect with my family I have been living with MS since 2008, but haven’t really reached out until this year. In 2012, my husband and I were having some troubles in our marriage so we decided to attend the Chapter’s Spring Rendezvous program. We needed to do something to save our marriage. It worked.

MS disease progression can be a very difficult hurdle. I began using a cane for stability in 2002 and it worked pretty well for several years. Then I went from a cane to a walker and then to a power chair in just a few short months. I learned to live with each of these adjustments and I could still access the shower from the power chair using suction cup grab bars. But this was becoming dangerous so I contacted the Chapter and learned that I qualified for financial assistance to help fund a bathroom modification. The process is time consuming, but well worth it. When all was said and done, we ended using our savings as well to get our bathroom modified. This project turned out very beautiful and very necessary. The shower and toilet were very close together which made it difficult to navigate. So we were able to move the toilet from the shower room to the vanity area with grab bars in both rooms. A higher vanity was installed that leaves room for a wheel chair. The shower room has a tiled floor and walls which makes it easier to navigate and the entry door was widened. My wife, Ranell and I are very happy with the outcome of our new master bathroom. I even

gatewaymssociety.org | 1-800-344-4867

with some financial assistance from the chapter james dean is able to maintain his independence. click to see james’ story. have a five-foot turning radius in the center of the vanity room. I was so thankful I began the process when I began having more and more trouble doing simple daily activities. The National MS Society helped us make our dream come true and accessibility a reality. I encourage everyone I meet with MS to contact their local chapter for assistance. Thank you again for your continued support in fighting this disease. The Chapter is my first call whenever I need information about the latest advancements.

in 2012, the chapter invested nearly $15,000 in helping people like james make modifications to make their homes safer and more accessible.

MS can be hard on a marriage. Talking with others who have MS and who are caregivers gave my husband and me a new outlook on life and our relationship. We also met another couple and now they are our best friends. We help each other cope with MS and its challenges, but most importantly, we sit, laugh, and have fun with life. In the fall, I was able to bring my daughter along to the Touch of Nature Family Weekend. Before this weekend, she did not understand what I was going through. After meeting other people with MS, hearing their stories, and gaining a new perspective on the disease, she now helps me out a lot more. She takes me to doctor appointments and tells me to rest when she sees me having difficulty. She acknowledges the disease, but she also acknowledges that MS doesn’t define me. These family programs offered by the Chapter have changed our lives. They’ve saved my marriage, helped me connect with my daughter on a better level, and made me realize how a positive attitude can really

kim curtis reconnected with her family at spring rendezvous and family weekend at touch of nature. click to see kim’s story. control your outlook on MS. I would like to thank all involved for making everything possible for myself and my family. Volunteers, donors, fundraisers, staff, participants, and friends; you have inspired me to keep fighting. When I feel better, I would love to volunteer for the Society and give back. Until then, I look forward to this coming Spring Rendezvous. This time, instead of trying to save my marriage, I can focus on strengthening the healthy bond my husband and I renewed last year.

in 2012, 680 people like kim and her family enjoyed family social programming like spring rendezvous and family weekend at touch of nature.

Pa i d A d v e r t i s e m e n t

MS connection: winter 2012-13

TAKE CONTROL OF YOUR MS RELAPSES

thank you for helping me...

just be a kid

Know Your Treatment Options

By burt mehemeti

If you’re unsatisfied with your current treatment for MS relapses—because it doesn’t work well or causes side effects that are hard to manage—you’re invited to a presentation created especially for you.

My brother Ned and I loved everything about Camp Hope. The activities, cabins, food, lake, and mess hall were great.

You will learn from an MS healthcare professional about a different FDA-approved treatment option and hear a firsthand account of a patient’s experience with this treatment.

When we were there, we learned a lot about MS. We learned it stops you from moving, has no cure, and mostly women get it. It is hard having a parent with MS. We help our mom when she needs us, and she’s there for us whenever we need her.

You will also learn:

Burt Mehemeti and his brother Ned enjoyed their opportunity get away and have fun at Camp hope. click to see burt’s story.

At Camp Hope, Ned and I met lots of new people. They were nice, funny, and caring. At camp, kids will have the chance to meet experienced volunteers who are also very helpful and nice. They were there any time we needed them. We are looking forward to going there again. We wouldn’t want to change anything!

How to distinguish between relapses and pseudo-relapses

About the importance of treating relapses

How to talk about relapses with your healthcare provider

About the available treatment options for MS relapses

Location

Castelli's Restaurant 3400 Fosterburg Road Alton, IL 62002

Date

Tuesday, January 15, 2013

Time

7:00 PM

Check-in

6:30 PM

Presented by

Lori M. Guyton, MD Herrin, IL

We would recommend it to parents and their kids because it is a really fun camp to go to. It’s quite different from the others we have attended. We would tell them to go every single year if they could. We would like to say “Hello” to our new friends and “Thank You” to the volunteers, donors, fundraisers, Society staff and every single person involved with Camp Hope. Thank you again for making it possible to learn and have a great time!

in 2012, 33 children got the chance to learn, have fun, meet other children affected by ms and just be kids at camp hope.

Please register by Monday, January 14, 2013. To register for this program, call 877-219-0410, or go to www.msrelapseprogram.com, and refer to Program 0683. A caregiver or friend is welcome to accompany you. ©2012 Questcor Pharmaceuticals, Inc. PM-542-02 04/12

Pa i d A d v e r t i s e m e n t

MS connection: winter 2012-13

thank you ...

fundraisers $50,000 & more Pat Dean

$25,000 - $49,999 Tony Adams Steven Lipstein Doug Raines Becky Salacki Theresa Stewart

$10,000 - $24,999

Jim Chastain Todd Dillon Mark Fischer Michael Haskell Richie Jinkerson Jean Kienzle Ashley Koerber Stephen Miller Denise Pisciotta Charlie Ries Tim Sauer Michael Staenberg Chris Gelven Nicole Vernier-Gelven Scott Voss

$6,800 - $9,999

Mark Abels Lynda Baris Brenda Berra Robert Cusworth Mark Dana Kenny Evans Rick Evans Mark Frank Katie Heidenreich Mike Houlihan Mary Kikta Steven Lovell Mike Phillips Ellen Reilly

Christine Crider Kyle Darnell Gene Davis Amanda Dean Michelle Dean $5,000 - $6,799 Bradley DeKoter Christie Cange Leslie Dillow Jerry Carmody Margi Dolan Jennifer Flessner David Domian Stephen Gwinnup Lori Dowgielewicz Timothy Haskell John Drury Gary Hemmer Peter Drury Michelle Keating Joel Efken Anita Klopfenstein Therese Ferguson Martha Kroeger Alan Fine Joe McKee Dena Foster Paul Novak Diane Fressola Lee Ori John Frost Stephen Ostrowski Guillermo Garsed Craig Snethen Lisa Gates Gwen Sommerville Bob Gerchen Lindsay Gerken Neil Tzinberg Diana Giacalone $2,500 - $4,999 Judy Graman Mary Abkemeier James Graser William Abkemeier Benedicte Hanquet Deborah Atherton Renee Harms Josh Bergman Sarah Harrelson James Bick Christi Heideman Susan Billiot Matt Heischmidt Brian Bilyeu Frank Hellwig Sarah Hickey Kevin Boeving Paula Hildebrand Judy Boland Anne Hoerner Stephanie Boyce Sandy Hoffman Jean Briggs Carl Hogan Wayne Brinkman Angie Hoog Larry Buchanan Amanda Hornbostel Steve Buesching Ryann Carmody-Mantovani Christine Houston Kevin Howe William Carney Steven Izard Monica Chwascinski Bill Jovanovic Marci Cradick Phil Jozwiak Rick Keating Michael Kelley Peter Kelly Jim Kidd Carol Kirby Mark Kliethermes Kathleen Klingel Suzan Knese Eric Lange Rick Rovak Ellen Staples Rick Weinstein Sheelah Yawitz

159 challenge walkers raised $534,743 at the 2012 dean team automotive challenge walk ms.

gatewaymssociety.org | 1-800-344-4867

fundraisers 2,710 cyclists raised $2,200,000 at the 2012 Bike ms express scripts gateway getaway ride. Barth Legate Pam Lewman Alan Luvin William Madosky Ann Mattingly Carolyn McCarthy Richard McClure Kathy McHugh Jamie Mealey Randy Meisner Chuck Miller Sheila Miranda Tony Moellman John Morgenthaler Michael Morhaus Maggie Murphy White Mark Oâ&#x20AC;&#x2122;Donnell Paul Ogier Greg Patterson Chris Phillips John Phillips Rachel Poe Thomas Pohlman William Price Jessica Prock Jesse Raya Paul Reitz Laurie Richards Paul Robiolio Mark Rosenkranz Patti Rosenkranz Kim Rucker Konrad Sauer James Scheetz Barry Singer Scott Springman Marsha Stanton Amy Stegman Jerry Steiner Bud Straumann Clara Taylor Kevin Tollefson Larry Tracy David Villani

Keith Walston Stephen Werkmeister Michelle Wheelehan Jeff Wiktorski Alvin Wolff Sharon Woods

$1,000 - $2,499

Debi Adams Krista Adams Mark Alspaw Paul Altnether Dick Anderson Aide Andreu Paul Andrews Krista Ankrom Taffy Arey Debbie Armbruster Nicole Armstrong Dustyn Arney Debbie Aumer Jeff Bailey Danna Ballard Brittany Ballentine Mitch Baris Cathy Barker Jeff Barnett Chris Bartell Raylette Barton Pamela Bascio Tammy Basson Michelle Bateman Daniel Bauer Diana Baum Sara Baumgartner Jean Beausang Gina Becker Steven Becker Peter Belcastro Julie Belzer Michael Benack Lisa Bennett Linda Berent Andy Berra Scott Birdsong Steve Blase Richard Blum

Names in blue are Bike MS: Express Scripts Gateway Getaway Ride participants. Names in purple are Dean Team Automotive Challenge Walk MS participants. Names in orange are MS Corporate Achievers. Names in brown are MuckRuckus MS participants. Names in green are Walk MS participants. Names in red are Do It Yourself fundraisers.

Kathy Blunkall James Bone Margarita Botta Leona Boucher Marianne Bouras Rebecca Boyce Michael Boyle Padraic Brady Michael Brangle Patrick Brangle Michael Brennan Amy Broadwater Patrick Brueggen A.J. Bruning Lauren Bruning Phillip Bruno Susan Bruno Emily Buchheit Barry Buchman Gretl Buechler Libby Buechler Kate Buesching John Buijk Susan Bundschuh Larry Burmeister Phil Burmeister Bridgett Burns Kraig Bush Liz Cahill Tonya Cammarata Ronald Campbell Mike Caputo Patrick Carmody James Carpenter Cassandra Case Kathy Caveny Gary Chervitz William Churchill John Clark Andy Clarke Julie Clooney Michael Cody Jaime Cohen Ron Coleman Paul Conant Jim Conzelman Joyce Crippen Joanna Cuda Christine Cusack Marina Dalby

Cynthia Dalpiaz Tracy Daniel Shonda Darris Anna Davenport Vicki Davenport Nate Davidson Patrick Dean Tom Dean Bernard DeCoster Robert DeLong Rita Dew Donna Diener Amanda Disbrow Kaci Dixon Todd Dohogne Joseph Dolan Trent Donat Keith Dorris Erin Doughty William Dowd Thomas Drennan Walter Easter Jef Ebers Sarah Eckhoff Joel Efken Paula Eichholz Terry Einig Eddy Enriquez Samantha Evans Preston Fancher Joe Fechter William Fechter Kathy Ferguson Jerry Fields Todd Finn Dana Ford Peggy Fox Steve Frank Susan Franklin Ashley Freeland Matthew Freeman Russ French Tim Friedman William Frields Greg Friend Theresa Gaglio Denise Gaither Thomas Gaither Stephen Gamache Eileen Gandt

1,824 participants raised $429,294 at muckruckus ms in 2012.

Craig Gaskill Gene Gauthier John Gee Chris Geiger Diane Giessman Andria Gilbert Devin Glenn Mark Goerger Nancy Goldberg Anne Goodwillie David Goodwillie Crystal Goodwin Mary Lou Gorham Randy Grady Rebecca Graue Sharon Greene David Grenda Don Griffith Kathy Griffith David Gudermuth Erma Guise Derek Haas Samantha Hadden Stephanie Haenchen Joy Hamilton Mary Alice Hamilton Kelly Hansen Rick Hansen Tim Hanson Randy Harman Dane Harrel Eric Harrelson Paula Harris Roel Harryvan Mickey Hartig Katie Hartley Thomas Hartnett Victoria Hartnett John Headrick Drew Heap JoAnne Hebden Amanda Heidemann John Helbing Sarah Heller Scot Heller Vicki Helling Amanda Henderson Brad Henderson Katie Henderson Bernadette Henrichs Paul Henry Cheryl Herbert Erin Herter Erik Herzog John Heskett Jacob Hess Sarah Hickey

83 corporate achievers raised $191,276 in 2012. Candice Highland George Hildebrand Steve Hille Tina Hilliard Jim Hodgson Amy Hoffman Michael Hoffmann Trey Hogan Nicky Hogg Jennifer Hollandsworth Kim Holly Lynn Holman Stephen Holmes Shawn Holt Charla Hornbostel Kim Howard Monica Hull Robyn Hulsey Beth Hunt Anita Hutton Chris Imming Justin Isbell Nancy Jackson Steven Jacobs Glenn Jansen Kathryn Jepsen Bill Johnson Gary Johnson Kody Johnson James Jones Barbara Jozwiak Terry Kaempfe Gary Karcher Justin Kelley Don Kelly Mike Kelsch Joel Kichline Bob Kienitz Forrest King Stephen King Drew Klein Ann Kleinschmidt Melodie Klenke Nick Klenke Sarah Kline Julie Klubek Brian Klueter Paul Knoblock Jessica Koby

Jason Koelling Ashley Koerber Richard Koester Andrew Kohler T.J. Kohler Scott Kolbe Kara Kozlowski Michael Kraemer Donna Kreisler Martin Krueger John Krumrey Kay Kueker Beth Kuethe Jason Kulma Russell Kuttenkuler Larry Kuykendall Tony LaMartina Briehan Larson Hayley Larson Joye Larson Jeff Lash Lisa Latzke Carol Laure Dennis Lazaroff Cassie Lewandowski Ed Liberty Joseph Liefer Chris Lindenbusch Gerald Lindhorst Linda Loewenstein Gary Long Dorman Lough Jim Lowary Adam Lowe Asa Lowe Jason Lowe John Luecking Dave Luethy Craig Lycke Steven Lynch Rebecca Magruder Meghan Maguire John Mantovani Richard Mark Christopher Marsh Stephen Marsh Andres Martin Perez Andrew Marting Mary Masters

MS connection: winter 2012-13

thank you ...

fundraisers Dawn Matschiner Chris Maxfield Trisha Mayes Sheila McCoy Katie McCurry Natalie McMahon Robert Mellor Shannon Metzger David Meyer Donna Miles Hannah Miles Debbie Milfelt Jim Miller Julie Miller Joi Milligan Patrick Monahan Richard Moneymaker Christopher Moore Janet Moore Erik Morse Kathleen Mound Kurt Mueller David Mulkey James Murphy Doug Murray Steve Mrotek John Myers Michael Myers Rachael Myers Scott Naeger Cory Nardoni Robert Narup Patricia Nekula Andrew Nelson Brian Neukirch Mark Neuman Emma Newberry Diane Nichols Matthew Nissing Angie Norburg Dennis Northcott Jared Nugent Tom O’Connell Edward Oechsner Rachael Oechsner Kurtis Ohse Rose Ohse John Oldham Diana Oleskevich Richard O’Neal Jaclyn Ori Steve O’Rourke James Ortmeyer Vic Ottenlips

William Parmelee Julia Partin Tushar Patel Alice Patton William Paul Dale Peluso Jill Peluso Dale Pendleton Stan Perkins Brett Perry Dawn Perry Kim Peterson Robert Peterson Elizabeth Pfleger Brian Phillips Sandi Phillips Tim Pickett Tony Pitts Stacy Poepper Mary Pohlman Steven Poindexter David Politte Stephanie Praschan Kyle Priddle Bonita Prock Keri Pruneau Pattie Raposo Emily Rausch Lindsey Rea Mark Reardon Angela Rechtiene Julie Reed Olivia Reeve Jim Reeves Diane Reichert Tom Reilly Josh Reinhardt Suzanne Renner Amy Reno Chris Reno Kurt Rich Kelsi Richards Lynne Richmond Natasha Riley Corey Riney Dan Ring Robin Ringwald Roni Rittenhouse Kristin Robinson Jaime Rocha David Rogers Lisa Rogers Robbi Rohr Jenna Romano

gatewaymssociety.org | 1-800-344-4867

thank you ... Jackie Rose Karla Rosenblum Robert Ross Lisa Royle Adam Runge Christine Runge John Ryan Kathleen Salsman Bryan Sanders Diane Sanders Susan Santen Jill Sauer Richard Schainker Staci Schiefelbein Kent Schien Cory Schlegel Rob Schlumpberger Karen Schmidt Mike Schmidt Scott Schmidt Hank Schneider Susan Schneider Wendy Schneider John Schroeder Cindy Schulte Jane Schultz Jim Schulz Bruce Scott John Scott Lori Scott Susan Sczepanski Don Sedlack Monica Seidner Elizabeth Seitz Debbie Selbert Robin Selbert Ryan Selsor Glenda Sexauer Molly Shaikewitz Scott Shepherd Ben Shetley Tanya Shewchuk JC Sibala Kevin Sides Terry Simmons Bill Sinak Kammy Sitz John Skae Lisa Skouby Doug Smallwood Brian Smith David Smith Diane Smith Lori Smith

fundraising teams 6,345 walkers raised $814,568 at walk ms in 2012. Shelley Smith Keith Snavely Michael Snow Barb Sorel Sarah Sorel Ryan Spies Julie Spirk Ken Sprenger Robin Sprenger Bill Stahlman Cathy Stalcup Julie Stanglein Kurt Stanglein Maryrae Staples Kevin Starks Barbara Starman Dave Steck Chris Steuterman Angie Stine Steven Storgion Abby Stuck Laurie Suche Scott Suppelsa Julia Swanson Diana Swezy Kathi Taylor Scott Temkin Tina Tennikait Tamra Terry Amy Thomas Benjamin Thomas Anne Thomasson Stacey Thuerwaechter Lora Tindall Charlie Toben Jim Tobin Steve Todd Eric Topp Elizabeth Traster Patrick Travers Mary Tsoukas Jack Turek Tim Turek Janet Uglum Lorisue Utterback John Vanbooven Lisa Vasel

Vinay Vemulapalli Patty Vogt Brian Wacker James Walshaw Matt Wasser Sara Watson Luis Weger Theresa Weingartz Steve Weinstein Cindy Weiss Jennifer Wenrick Nicole Werner Jim Wessely Thuy West Melissa Whalen Amber White David White James Wildman Paul Wilhelms Kathleen Wilkinson Carrie Williams Jesica Williams Megan Williams R. Williams Cindy Wilson Kenneth Wilson Dennis Winschel Lori Wiseman Frederick Wolfmeyer Suzanne Woodard Lisa Wright Pamela Wucher Barby Wulff David Wulff Alicyn Wyatt Ed Yoder Jeff Zacks Jim Zacks Joseph Zagone Katie Zagone Margaret Zagone Marielle Zagone Gary Zenk Emileigh Ziebka Judy Zielinski Peter Zielinski

$100,000 and more Team Kaldi’s Coffee Team THF

$75,000 - $99,999 Dean Team Express Scripts

$50,000 - $74,999

Cannonball Express The E Team Monsanto Mavericks

$40,000 - $49,999 Team Christner Team Maritz MS Ramblers Team Possible

$30,000 - $39,999 Team Hogan Team Mich Ultra

$20,000 - $29,999

Jeremy’s Juggernauts Math Solvers MEMC MHW Milers Sense Corp Team Sirius Sole Sisters and Misters United by Design Wells Fargo Advisors Pioneers

$10,000 - $19,999

Anders Minkler & Diehl Annie’s Angels Boeing Team Boonslick Team Bo’z Up Buckingham Asset Management Bunge North America Bunzl Bikers Charlie Horse Riders Team Copaxone Team Covidien Crawlin’ For A Cause Team Crossroads Team DNR Team Edward Jones Elsevier Medical Test Subjects The Go Go’s

Team Howe Jeannie Weenie and Her Hot Dogs Team Katie: Walkin Myelins for MS Loan Riders Team LSS McCarthy Hammerheads Mighty Movers Mission Max Mud’s Mob Myelin Hunters Paric Corporation Team PWC Ronald McDonald House STL Team Rosenkranz Slow Spokes Team SSM Team Tech Electronics Terrill Trekkers Wild Horse Creek Crusaders

$5,000 - $9,999

Team Accenture Bene and the Jets Big Crank Cycling Blisters for Sisters Brendie’s B-Bops Brown Shoe Co Cardiac Cycles Country Cruisers Crazy Mother Muckers Cutters Diana’s Divas Dirt Diggler D-Town Mud Dogs Team Edward EMC Filthy Five & Friends Fred Racers Team Gaither Gates’ Way To A Cure Gears & Beers Granada Cyclery The Gross Team Gwenn’s Gwoup Heart and Sole Heavy Pedal Band Investors Class Team Jawz Jefferson Regional Medical Team Jennifer (Mueller) Jessica Prock

Team Joseph Ken’s Angels Laurie’s Champions Lisa’s Crew Loess Locos 5 Lucky 13 Team McClure Team Melodie Michael’s Ramp Mother Suckers Orange Lightning Peloton Cyclery Raymond James Red Hat Team Riess River Riders Team Rooster Rum Runners Scottrade Team Shelter Insurance The S’myelin Gang Solutia St. Peters Bone & Joint Chargers Suddenlink SunRiseUMC/HSTriClub Sweatin’ For a Cure Transplant Team Wally’s Walkers We’re A Big Deal Team Whole Foods Market The Wingnut Rollers Yawitz/Phelps Team

$3,000 - $4,999

Anne’s Army Team ARCO Arcturis Asleep at the Wheel Bass Pro Shops Big Tree Cycling Bob’s Blood Boone Hospital Chain Gang Briggs Bunch Bud’s-ride-ers Cathyscure CBC Easy Riders Christi’s Solemates Collins & Hermann, Inc. Team Colortek Crash Test Dummies The Crossing

Daugherty Desperados Dawn Patrol Deloitte Delta Sigma Pi Team Evans & Dixon Felix’s Pizza Pub Team Frazier Team GKN Hecks Angels IAFF Local 2665 If You Think It-You Can Just Friends Team Kaos Knese Family Les Domestiques Leslie’s Lungers Mandy’s Mighty Mutts Marching Schleppers Team Moneta Moonlight Tavern The Motley Muckers MS is BS Team MSHP Muckin It Happen Mudcans Mudcats Mudder Chuckers The Muddy Renegades Mudflaps Myelin Hunter Oz Cycle Pamela’s Team Rita’s Rockets Rocketbikers The Rust Riders Team Saint Louis Cycling Schneider Electric (APC) ShamRock’N Rollers Sigma-Aldrich SLU Phycycle Therapy Sprockets Stacy’s Quest Staggering Peddlers Steph’s Steppers Suzie’s Stompers Team Toni Tony’s Treads Triple R Trisha’s Trekkers Walk Spots, Walk! Washington University Bear Bikers Wilson’s Warriors

Teams in blue are Bike MS: Express Scripts Gateway Getaway Ride participants. Names in purple are Dean Team Automotive Challenge Walk MS participants. Names in brown are MuckRuckus MS participants. Names in green are Walk MS participants.

MS connection: winter 2012-13

thank you ...

donors $50,000 & More Barbara Grace Mary Kay Jaudes

$1,000-$2,499

Mark E. Adelsberger Rhonda Ries Kyle Andrews Richard R. Arnoldy $20,000-$49,999 Thomas J. Bahr Steven H. Lipstein Sean A. Bannon Michael Staenberg Daniel Barbey Lynda W. Baris $10,000-$19,999 Pamela C. Bascio Jim Blair Dennis M. Beausang Sharon G. Fauke Stanley Becchetti George and Melissa Paz Daniel J. Berger Kevin Voges Daniel & Debra Bergmann Andy Berra $5,000-$9,999 Brenda K. Berra Jim C. Berger Jeffrey A. Biskup Joseph Chapin James T. Blair Jim Chastain Deborah Blaylock Pat & Michelle Dean Leona L. Boucher Gary J. Grewe James Bova Jane Grewe Albert L. Briggs Patrick Haskell Ann Brinkerhoff Carl G. Hogan Jr. Piper Brintnall Tim and Thy Huskey Deborah C. Brittain Ruth V. Malvern Harvey M. Brown William and Margie Moskoff John Louis Brown Mike and Kathie Phillips Robert Byrne Jr. Don and Nancy Ross Robert L. Cannon Anthony Thompson Jerry Carmody Monica Chwascinski $2,500-$4,999 Julie A. Clooney Michael Burns Kathryn M. Corley Joseph A. Cancila Jr. James Cowan Jennifer R. Cole Christopher Creighton Jo Anne Davis Ted J. Crew Leslie K. Dillow Christine Crider Rick A. Evans Robert Cusworth Yvonne L. Fagan William H. Danforth Josh L. Ferguson Anna M. Davenport Robert S. Fischer Robert Davenport Janet M. Frane William Davis Peter & Clare Genovese Richard (Dick) C. Dean Michael J. Grewe William Dean Ronald Gross Judy L. Deluca-Ford Derek Haas Donna L. Diener Bonnie R. Hawk William T. Dowd Katie M. Heidenreich Jeffrey E. Dowling Scot & Sarah Heller Mary-Jane I. Duncalfe Sharon J. Hileman Mandy M. Dunivan Christine A. Houston Michelle L. Eickel Mark M. Kliethermes Preston Fancher Anita Klopfenstein John Fechter David M. Kodner Patricia L. Fechter Michael J. Lechwar Roy Fischer Jr. Richard G. Mark Allen Fishman Richard McClure Jill Flowers Amy L. Reno Timothy R. Fogerty Leonard and Lynette Roccia Celeste Foster Lynn and Karen Sauer Gregory A. Fox Michael J. Sindelar Susan L. Franklin Greg Teeters Daniel P. Gaffney Asheesh Tiwari Carol L. Gaines Keat Wilkins Tom Gaither Sheelah R. Yawitz Sherry P. Gibson Meribeth Goddard

gatewaymssociety.org | 1-800-344-4867

thank you ... Rita M. Green James & Doris Grenier Don A. Griffith Herbert R. Grunde Millicent B. Guerri Jason Hackmann Ed Hamilton William R. Hamilton Philip Hanel Kelly Hansen Bill J. Hanson Gary F. Hartnell Michael Haskell Katie R. Henderson Bernadette Henrichs Paula L. Hildebrand Sean Hogan Lynn M. Holman Stephen Holmes Charla J. Hornbostel Christina K. Horton Morris Mike Houlihan Connie M. Huck Karen A. Imler Steven W. Jacobs Glenn J. Jansen Arthur Johnson Kay D. Johnson Dennis Judy Gary Kaplan Michael Kaufman Rick and Michelle Keating Maria C. Kerford Carol Kirby Ward M. Klein Melodie J. Klenke Julie Klubek Sandra Knight Michael P. Korotkin Patrick L. Larmon Joye Larson Scott A. Layton Bob Lazaroff Dan Leary Melvyn L. Lefkowitz Michelle L. Lovell Connie Lowe Christina Macinski Dale Martin Jack T. Martin Kathy A. McHugh Joe McKee III Rebecca M. McNally Patrick McNamee John Merritt Christopher Michalak Julie G. Miller Lewis R. Mills Steven Mirowitz Paul H. Mitchell Christopher M. Moore Rodney J. Moulin Stanley Musial John C. Myers Michael & Noemi Neidorff Brian Neukirch Lee Ori

special thanks to all our donors, especially our golden circle members who donated $1,000 or more from oct. 1 2011 to sept. 30, 2012 WITH YOUR ANNUAL GIFT OF A THOUSAND DOLLARS OR MORE, YOU BECOME A M E M B E R O F T H E G AT E WAY AREA CHAPTER’S GOLDEN CIRCLE — A GROUP OF D E D I C AT E D D O N O R S W H O SHARE YOUR PASSION FOR A WORLD FREE OF MS. As a member of the Golden Circle you have special access to leadership at the Chapter and national organizations. We’ll invite you to events and conference calls to update you on progress in MS research and all the other ways the Society helps people with MS to move forward in their lives. The most exciting benefit of membership, of course, is the opportunity to connect with other committed Golden Circle members. For more information go to nationalMSsociety.org/GoldenCircle or call 314-781-9020.

Todd M. Pahl Stephen K. Pettit Carolyn J. Phelps Michael Phillips Dean Pichee Tim Pickett Joe and Denise Pisciotta Steven S. Poindexter Judith A. Prather Jessica Prock Karen Rafter Gayathri Raman Deborah A. Ramsey Linda I. Rands Ron Raskin Sanjeev Ravipudi Ellen J. Reilly Doris K. Reynolds-Johnson Shelley R. Ringhofer Jessica Roberts-Bahr Paul Robiolio Phyllis Robsham Jackie M. Rose Robert Ross Kevin J. Roth Benjamin Sandler Arthur E. Santen Mary S. Santen Staci L. Schiefelbein Kent Schien Pamela R. Schneider Paul Schnoebelen Craig D. Schnuck Cindy A. Schulte

Laura Seabolt Martha P. Sewall Marny D. Sherman John Sigmund Jayne Simmons Barry A. Singer Teresa O. Smith Sanford J. Spitzer Helmut Starr Steve Starr Jared Sullivan Jonathan W. Sykes Clara J. Taylor Kathi Taylor Scott Temkin Don Thomas Andrew P. Thome James L. Trout Neil E. Tzinberg Scott Vasel Elaine Voelkel Steve Walli Robert E. Wamhoff Sr. Ann Warren Stephen L. Werkmeister Thuy D. West Robyn E. Williams Alvin Wolff Sandra G. Young Jeff Zacks Gary A. Zenk Rudolf X. Zimmermann Sr.

sponsors and foundations $100,000 and more

United Way Of Greater St Louis

$50,000-$99,999

EMD Serono Inc Express Scripts Inc Missouri Foundation for Health Sam’s Club Foundation Souers Charitable Trust The Dean Team

$30,000-$49,999

Sara Lee Corporation Scott Credit Union Sigma Aldrich Sprinkler Fitters Local 268 St. Louis Philanthropic Organization Suddenlink Communications TEVA Neuroscience, Inc The Meadows Development Group, LLC United HealthCare Services, Inc.

$2,500-$4,999

without the generosity of these organizations, we would not be able to provide programs and services, hold fundraising events and fund research. We would especially like to thank our bike ms, challenge walk ms and walk ms title sponsors: Express scripts, the dean team automotive group and emd serono.

Advanced Health Media, LLC Carey & Danis LLC Cassidy Turley Washington Cordell & Cordell $20,000-$29,999 Emdeon Alberici Constructors First Community Credit Union Clayco Foundation Wealth Management Dula Foundation Hartog Oil Hardee’s HOK Novartis Pharmaceuticals Corp. John S. Swift Family Charitable Trust Pott Foundation Kohl’s S.M. Wilson & CO MHS Trust DTD St. Louis Auto Dealers Monsantogether $10,000-$19,999 Price Family Foundation Accenture LLP Rob Hamann Agency Truist Altruism Connected Acorda Therapeutics, Inc. SCS Healthcare Marketing Inc Washington University in St. Louis Allen & Josephine Green Foundation Snow & Associates, Inc American Direct United Access $1,000-$1,499 Anheuser Busch UPS Advanced Radiology Blair Financial Services, Inc. Williams Lea Inc Apna Healthcare Bunzl Corporate Office Anna Lodge NO. 1346 $1,500-$2,499 City of Columbia, Missouri Beaver Tools, Inc AmerenUE Covidien Bommarito American Endowment Foundation Enterprise Holdings Foundation Bommarito Automotive Group Apria Healthcare Genzyme Bryan Cave LLP B & B Entertainment Hardee’s Food Systems, Inc. Buildingstars, Inc. McCarthy Building Companies, Inc. Bryanmark Financial Group Chris Blase Cape Girardeau Chapter of MEMC Foundation Carol House Furniture Thrivent Financial Polsinelli Shughart Charter Communications Creve Coeur Firefighter Comm Questcor Pharmaceuticals Inc. Cooper Industries Foundation Dairy Bar Sharp Packaging Cs Transport David Kodner Personal Jewelers SSM Healthcare Danis Charitable Trust EMD Millipore Walmart Foundation Ed & H Pillsbury Foundation Engineers Club Wells Fargo Advisors, LLC Fidelity Express Fight MS at the Schoolyard Five Hour Energy $5,000-$9,999 Hickman High School Allergan USA, Inc. Home Delivery Incontinence Supplies Co GE Consulting Hays Companies Apex Oil Charitable Foundation Husch Blackwell LLP Hogrock Inc Bayer HealthCare Pharmaceuticals MDU Resources Group, Inc. Independent Hardee’s Franchisee Assc. Big Shark Bicycle Company Midwest Sinus-Allergy Specialists John Goodall Trust Biogen Idec Millipore Company J.W. Terrill Emerson Murphy’s Kare & Therapy, Inc. Pearl Foster Hayward Trust Genpact Lindbergh Capital Management Scottrade HOBO Enterprises, LLC Shelter Financial Bank Meadowview Dental Group Maritz Inc. Southern Illinois Healthcare MedAssets Moneta Group St Peters Bone & Joint Surgery Nidec Motor Corporation Medco Health Solutions, Inc Swank Motion Pictures, Inc. Pfizer, Inc. Mehlville Fire Fighters Local 1889 BJC HealthCare

MHW Milers Midwest Sinus Allergy Specialists Mixing 10 Mortgage Research Center, LLC Neurology Inc Olney Quality Electric Orthopedic Specialists Pattonville Community Affairs Fund Rexam Richland Memorial Hospital RMK Consulting Inc Rockwood School District Schmale Insurance Agency Schwab Charitable Fund Sirkin Family Charitable Foundation Southeast Missouri Hospital Southern Illinois Healthcare Specialty Textile Services Steve Miller & Associates Tenet Terril & Company Todd Appraisal Service TSCM Demand UHY Advisors MO, Inc. USA Underwear LLC Waterloo Community School 5 JH Activity Fund Wells Fargo Foundation West County Honda Wheelchair Professionals Winney Foundation Wolff Shoe Co

MS connection: winter 2012-13

thank you ...

volunteers 2012 board of trustees

Lynda Baris Michael Burns Robert Cannon Jerry Carmody Rodney Crim Anne Cross Pat Dean William Dowd Alan Fine Brendon Gallagher Mark Gellman Lyle Gulley Sean Hogan Kristen Holton Mike Houlihan Christine Houston Thy Huskey Tim Huskey Michelle Keating Kurt Kientzle Anita Klopfenstein David Kodner Patrick Larmon John Merten Mike Phillips Denise Pisciotta Steven Poindexter Rhonda Ries Lynette Roccia Michael Sindelar Helmut Starr Nathan Stout Anthony Thompson Steve Walli Sheelah Yawitz

administrative volunteers Jennifer Berend Melvyn Brown Judith Buss Stephen Cooper Angie Couvion Joann Crady John Droste Jessica Essex Eileen Gandt Fred Glover Shirley Gram Katina Griffin Sue Hampp Barbara Hill Jason Hyatt Audrey Imbs Sandra Keller Toni Kodner Janice Levine Michelle Lovell Donna McLain Tony Moellman Marvin Muchnick Sandy Muchnick Elaine Murphy

Brian ONeal Lillian Robinson Art Robles Gerry Rubin Michele Stokes Amber Tobiasz Jim Walker Barb Wallis Lewis White Barri Wiseman

beginning conversations volunteers Lacy Cole Eileen Gandt Catherine Harre Robyn Hulsey Toni Kodner Wendy Schneider Stacey Schufford

bike ms logistics committee Bill Carroll Rebecca Carroll Nicholas DeMere Rich Edsell Kim Evans Al Guise Martin Hall Bob Krause Jamie Mealey John Mountain Karen Mountain Scott Naeger Dave Swopes Laura Veremakis Lewis White

bike ms recruitment committee Jeff Comparato Sean Joy

bike ms steering committee Mark Abels Christine Houston Jamie Mealey Scott Naeger

thank you ... cape girardeau walk ms committee Brenda Bender Catherine Buchanan Ashley Duerst Sharon Hileman Sandy Hinton Mary Meyer Will Richardson Walter Wildman

Olivia Schram Lynn Snyder Nellie Symm-Gruender Richard Walls Roger Wilson

communications committee Mark Abels Susan Evans Bruce Hoskins Rhonda Ries Heidi Suppelsa

challenge walk ms committee community service Danna Ballard investigators Julie Belzer Susan Billiot Amanda Dean Michelle Dean Pat Dean Patrick Dean Valerie Denton Meghan Freeman Benedicte Hanquet Eric Harrelson Matt Heischmidt Alice Kohler Pam Lewman Nicci Lowrey Tom O’Connell Mike Phillips Amy Reno Mark Rosenkranz Wendy Schneider Sheila Sellenriek Julie Stanglein

Paul Kuhn Elaine Murphy

Gerard Erker Barbara Green Elissa Held-Bradford Penny James Michelle Keating Robert Naismith Barry Singer Florian Thomas Karen Tripp

Jim Blair Tim Brown Jerry Carmody Jack Mannenbach Steven Schumm Sue Hites Don Ross Jeff Wiktorski

community grants committee Debbie Emmelkamp Lucy McCalpin Elizabeth Norviel Rick Rovak

cpsc committee Chris Crouch Debbie Emmelkamp Jennifer Hope Stephen Kinstler Debbie Morrissey Robert Naismith

corporate achievers advisory clinical advisory committee Lynda Baris committee Scott Becker

deliver a smile columbia walk ms volunteers committee Megan Ballentine Prathima Batchu Allison Braun Ron Coleman Heather Cowden Deborah Crawford Hartley Heather Crowden Jeffrey Earl James Gray Vicki Hague Tracy Holmquest Katie Miller Patricia Pelaccio Rosa Robb Rosa Schleeter

carbondale walk ms committee William Hamilton Shayla Leibovitz Renee Mangrum Cheri Nagreski Diane Sanders

gatewaymssociety.org | 1-800-344-4867

Diane Bowes Cheryl Burrus Maggie Burrus Michelle Catalano Ashley Clapp Matthew Cleek Jeanne Clore Angie Couvion Michael Couvion Melissa Craig Shelby Dersch Stephanie Fohey Ronda Fowler Jody Gorder

Aimee Haas Stephanie Hanson Jordan Hildebrand Rebecca Hildebrand Lisa Hollins Marshella Jennings Lynne Kach-Clapp Laurie Kosteck Joan Lowrey Buddy Lowry Gail Madden Missy Morrison Alice Overby Sharon Owens Paul Pittman Sally Pittman Alexander Purcell Charlotte Sableman Jennifer Sebastian Kelsey Smith Marjorie Stoeker Jesse Sutton Karen Swartz Kelsey Thouvenot Kris Von Ahn

do it yourself volunteers Kyle Andrews Deni Bouillon William Brummett John Dunker Sharon Fauke Lauren Galesman Derek Haas Harry’s Restaurant Sarah Hickey Carol Kirby Steve Mrotek Doug Raines Lana Rapp JC Sibala Erika Smith Cathy Stalcup Jocelyn Thompson Rhonda Ward Lisa Wyman

donor development committee Jerry Carmody Brendon Gallagher Lyle Gulley Mike Houlihan Tim Huskey Mike Phillips Lynette Roccia

godfrey walk ms committee Judy Bean Jill Boomer Lisa Hemphill Steven Izard Kary Smith Lori Smith

grant’s farm volunteers Joel Achtenberg Laura Baber Julie Belzer Janice Biggs Paul Biggs Janey Brewen Susan Daniels Scott Douglass Alison Hanners Angie Kramer Bill Kramer Janice Levine Michelle Lowe Tim Roccia Amber Willis Jenna Willis

government relations committee

James Brasfield Marsha Campbell Leann Chilton Marty Exline James Foil Sean Hogan Belinda Holmes Stephen Kinstler Christine Lepper Rick Rovak Florian Thomas MD, PhD Buck Van Hooser Steve Walli Walter Wildman Sheelah Yawitz

heights buddies Bob Beiswenger Megan Doyle Mary Engelkemeyer Ashley Erickson Sean Fogerty Rebecca Graue Kim Hairston Robyn Hulsey Tami Marsala-Joyce Suzanne Scheaffer James Schmittgens Lydia Scroggins Kathi Taylor Henry Vanston Stanley Viglione

interns

Allison Braun Miriam Brinley Maggie Burrus Katie Cahill Kelly Chambers Carrie Choules Melissa Craig Krystle Del Castillo Anne Donath

volunteers Datiana Guerrero Kacy Hall Patricia Harris Georgina Irwin Mylsha Jordan Angela Kemp Meghan Kinnison Katie Kocyan LaGail Lenoir Caitlin Lenze Yujun Liu Lauren Masterson Taylor Minor Kylee Paitz Chauna Payne Moira Priven Bushell Alexander Purcell Ashley Rabbermann Morgan Robertson Missi Robins Olivia Schram Tamara Scott Kelsey Smith Kristen Smith Kristyn Smith Meaghan Steuber Drevon Wright

Caleb Kretzinger Sarah Kretzinger Christine Lepper Joel Levy Lauren Masterson Nancy Moore Lyla Perrodin Linda Redford Tim Roccia Rick Rovak Rene Sager Eva Stanglein Julie Stanglein Kurt Stanglein Shirley Taylor Kathleen Timmerberg Mason Timmerberg Buck Van Hooser Don Webb Nita Webb Iley White Philip White Walter Wildman

Jeffrey Earl Deb Hartley Christine Lepper Laura Morris Kurt Mueller Mary Shackelford Michelle Walters Russchell Weaver

Sandy Howell Rebecca Kraft Marilyn McCormick Peggy Neufeld Cathy Phillips Mary Ann Reifschneider Duana Russell-Thomas Pamela Shipman Anneliese Stoever Jody Wagner Sharon Wooten

long-term care committee Brenda Acoff

Campbell jefferson city walk Melissa Selena Carter ms committee Chris Crouch

legislative action day volunteers Linda Balwanz James Brasfield Susan Brewer Leann Chilton Julie Conway Helen Elliott William Elliott Todd Foltz Amy Fox Raymond Fox Rebecca Fredrich Robert Fredrich Mike Gilpin Patricia Gilpin Amy Goldstein Kathy Hayes Mary Heiney Sandy Hoffman Jennifer Hope James Jackson Victor Johnson Shaunteh Jones Stephen Kinstler Katie Kocyan Bryan Kretzinger

mid-missouri cac committee Sudhir Batchu Robert Burger MD Rebecca Dykhouse Myles Goble MD Deanna Harper Guilianne Krug Jennifer Richards Amy Vieth

millstadt walk ms committee Karen Dreher Stephanie Faris Sarah Holdener Robert Schilling Lisa Sedlak Andrea Voss

ms ambassadors Joel Achtenberg Ashley Armstrong Pamela Bascio

Jean Beausang G. Beck Lisa Beck Scott Beck Julie Belzer Susan Brewer Amelia Brummitt Andy Burmeister Gail Cameron Barb Charboneau Matthew Cleek Charlotte Cloutier Heather Cowden Terry Daniels Lisa Davis Patricia Davis Scott Davis James Dean Leslie Deckard Ashley Duerst Diane Earhart Carol Edwards Joanne Elizondo Kristina Finney Sean Fogerty Taylor Fortunato Patricia Gilpin Aimee Haas Norma Hamm Stephanie Hanson Shelice Harris Gwendolyn Heard Karen Heath Lynna Heathman David Hemphill Lisa Hemphill Jeff Hendricks Sandy Hoffman Tracy Holmquest Katie Holthouse Robyn Hulsey Meredith Johnston Cary Jordan Anthony Kaiser Russell Kaiser Alex Kilpatrick David Kirk Tara Kirk Kathy Kline Anna Lehrke Janice Levine Sylvia Longmire Michelle Lowe Jennifer Luner Teresa Mees Terri McDaniel Julie Miller Nick Miller Tony Moellman Louis Monken Matt Morrison Missy Morrison Debbie Morrissey Rachel Myers Linda Osborne Julie Pallardy Jaime Patterson

Marsha Peabody Angela Perdue Jean Phillips Denise Pisciotta Joe Pisciotta Sophia Poplin Dwayne Powell Tim Roccia Rick Ross Patricia Sachs Jon Sandheinrich Olivia Schram Karen Schubert Stacey Schufford Lisa Sedlak Diane Smith Mary Sita Ty Smith Jeanne Speroulias Kimberly Stephenson Stephanie Tate Jennifer Wesley Philip White Walter Wildman Imani Winters Barri Wiseman

ms service day volunteers Katie Adolfs Brandon Boatner Julie Boatner Denise Buchholtz Maggie Burrus Starjulia Dorrough Ashley Erickson Rebecca Graue David Henderson Madison Hudson Caprisse Johnson Angie Lee Tyanna Lemmitt Patrick Powers Alexis Ray Jake Rice Nate Richey Shahob Salem Amanda Welker Christian Welker

muckruckus ms committee Robert Bowen Julie Ewen Heather Goetz Kimberly Harris Nellie Herchenbach Stephen Holmes Michael Kelley Dawn Matschiner Keri Pruneau Mike Pruneau Jennifer Wenrick Carrie Williams

planning & evaluation committee

Shelby Dersch Jennifer Hope Thy Huskey Debbie Morrissey Amy Rauchway

Toni Kodner Dorothy Kurtz Carol Laciny Sharon Loesch Mary McCabe Marcia Pederson Sally Pittman Anne Reiser Sandy Sherman Carol Smith Kelli Tovar Sherri Waxman

southeast missouri volunteer cac committee Jagannadha Avasarala development Chris Byrd Penny Grigery committee David Lee Steve Logel Donna Miller April Ostendorf-Morris Ute Smith

talk ms group leaders

Tony Adams Christy Bays Sharon Bradley Amelia Brummitt Victoria Buchheit Lynelle David Rebecca Dykhouse Diane Earhart Michelle Forst-Wingier Jenny Garofalo Kevin Gunn Deanna Harper David Hemphill Lisa Hemphill Debra Hill Linda S. Jackson Penny James Meredith Johnston Michelle Keating Marlene Keiser Anne Konieczny Christine Lepper Debbie Morrissey Camille Pieczynski Laura Pieczynski Sally Pittman Debby Rhodes Joseph Salacki Charline Sherrill Rose Marie Simpson Sharon Snell Jim Walker Rebekah Walters Robert Williams

telefriends

Susan Aubuchon Peggy Brown Joyce Clark Dawn Franzen Eileen Gandt Kevin Gunn Jeanette Hazen Gwendolyn Heard

Krista Adams Jack Dabrowski Alan Fine Lisa Hemphill Penny James Toni Kodner Michael Lechwar Michelle Lovell Emily Martin Denise Pisciotta Michele Stokes

walk ms recruitment committee

Lisa Baragida Sean Hogan Allison Katt Amy Klueter-Thomas David Kodner Mark Krassinger Tim Phelps Terri Roach Chrissy Rogers Tim Sauer Patrick Venditti Barb Walgren Lewis White Sheelah Yawitz

wellness fair

Carmen Abbott Amanda Babor Megan Breshears Elisa Doherty Rebecca Dykhouse Marilyn Earley Elissa Held-Bradford Lindsey Hejlek Cathy Holper Penny James Kara Knetzer Larissa Kozeny M’Aggie Maranzana Dana Martin Rosemary Norris Padmini Prahbu Lisa Schraut Amy Vieth Joanne Wagner Sara Wilhite Lesley Young

MS connection: winter 2012-13

fiscal year 2012

financial snapshot

financial statements

Below is a look at the Chapterâ&#x20AC;&#x2122;s revenue and expenses for fiscal year 2012, which ran from October 1, 2011 to September 30, 2012. fy2012 revenue Corporations and Foundations: $167,330

Other Revenue: $154,216

NATIONAL MULTIPLE SCLEROSIS SOCIETY GATEWAY AREA CHAPTER STATEMENTS OF ACTIVITIES

NATIONAL MULTIPLE SCLEROSIS SOCIETY GATEWAY AREA CHAPTER STATEMENTS OF FINANCIAL POSITION ASSETS Years Ended September 30 2012 2011 Current Assets Cash and cash equivalents $1,163,922 $903,595 Investments-at market plus accrued interest 1,596,532 1,647,605 Contributions receivable 684,765 818,770 Contributions receivable from NMSS 2,517 Prepaid expenses and other assets 60,741 27,549 Total Current Assets $3,508,477 $3,397,520

Do-it-Youself Events: $97,347 Women on the Move: $77,924

Corporate Achievers: $191,276 Workplace Giving: $298,718 MuckRuckus MS (now MuckFest MS): $429,294

gatewaymssociety.org | 1-800-344-4867

Non Current Assets Property and equipment, at cost, net of accumulated depreciation and amortization Due from NMSS Total Noncurrent Assets

Bike MS: $2,200,000

Challenge Walk MS: $534,743

Total Assets

280,053 154,886 2,423 3,555 $282,476 $158,440 $3,790,954

$3,555,961

Liabilities and Net Assets

Individual giving: $596,932

Current Liabilities Due to the NMSS: Remittance due to National Headquarters $1,155,100 $561,700 Due to other Chapters 1,885 Accounts payable and accrued expenses 446,434 307,904 Deferred sponsorship and underwriting revenue 27,937 32,065 Capital lease liability 14,475 Total Current Liabilities $1,645,831 $901,670

Walk MS: $814,568

fy2012 expenses Management and General: $262,742

Professional Education and Training: $225,041

Public Education: $516,583

Local Community Programs: $588,084

Local Client Programs: $1,219,178 Research: $1,141,914

Long-Term Liabilities: Other long-term liabilities

52,536

Total Long-Term Liabilities

52,536

Total Liabilities

1,698,367

901,670

Net Assets Unrestricted Temporarily restricted Total Net Assets

1,939,580 2,444,361 153,007 209,931 2,092,587 2,654,291

Total Liabilities and Net Assets

$3,790,954 $3,555,961

Years Ended September 30 Unrestricted and Temporarily Restricted Net Asset Activity Public Support and Revenue Public Support Special events (including in-kind donations of $69,548) Less benefit to donor costs and in-kind Membership and contributions (including in-kind donations of $36,861) Legacies Received at National Headquarters Total received directly Received indirectly Combined Federal Service Campaign Federated Fundraising Organizations Total Public Support

Fundraising: $875,431

$4,339,707 $4,222,025 (684,525) (452,405) 578,242 918,799 284,049 84,598 36,180 39,917 898,471 4,810,934 16,996 16,032 281,722 $4,852,369 $4,826,966

Other Support and Revenue Interest Income 26,505 24,838 Net realized and unrealized losses on investments 109,183 (11,439) Service fees 16,589 57,482 Miscellaneous income 1,939 2,140 Total Other Support and Revenue $154,216 $73,021 Total Support and Revenue $5,006,587 $4,899,987 Expenses Program Services Research Public support to National Headquarters Client programs Community programs Professional education and training Public education Total Program Services Expenses

1,141,914 1,165,142 739,319 694,445 1,219,178 1,236,708 588,084 699,474 225,041 202,312 516,583 521,942 $4,430,119 $4,520,023

Support Services Fundraising Management and general Total Support Services Expense Total Expenses

875,431 769,544 262,742 190,420 $1,138,173 $959,964 $5,568,292 $5,479,987

Increase (decrease) in Unrestricted Net Assets

(561,705) (580,000)

Net Assets, Beginning of Year

2,654,292

Net Assets, End of Year

National Programming and Organizational Development: $739,319

2012 2011

3,234,292

$2,092,587 $2,654,292

Pa i d A d v e r t i s e m e n t

You’re invited to join us at a Novartis MS Education Link Event

Take conTrol of your ms relapses

Hear a medical specialist share information about multiple sclerosis (MS), learn about a prescription treatment option, and connect with people in your community living with MS.

Know Your Treatment Options

Featured Specialist: Barbara Green, MD Jan. 10, 2013 at 6:00 pm BlackFinn American Grille 1147 St. Louis Galleria St. Louis, MO

If you’re looking to learn about different options for treating your MS relapses, you plus one caregiver or friend are invited to this free educational session where MS healthcare professionals will discuss:

Heather Popham, NP Jan. 23, 2013 at 6:30 pm Lottawatta Creek Restaurant 311 Salem Place Fairview Heights, IL

Featured Specialist: Myles Goble, MD Feb. 12, 2013 at 6:00 pm D. Rowe’s Restaurant 1005 Club Village Drive Columbia, MO

Florian Thomas, MD Jan. 29, 2013 at 6:00 pm Granite City Food & Brewery 11411 Olive Blvd Creve Coeur, MO

•

The difference between MS relapses and pseudo-relapses

•

The importance of treating your MS relapses

•

How to talk about your MS relapses with your healthcare provider

•

Available treatment options for MS relapses

•

Insights shared by others living with MS

Location: St. Peter’s United Church of Christ 20 East Fifth Street Washington, MO 63090

Location: Sunset 44 118 West Adams Avenue Kirkwood, MO 63122

Tell or bring a friend! Accessible to people with disabilities. Light meal served. Parking will be validated.

Date: January 21, 2013

Time: 12:00 pm

Time: 6:00 pm

Check-in: 11:30 am

Check-in: 5:30 pm

Presented by: Amy Dix, MPA-C, MSCS Kansas City, KS

Space is limited. Please RSVP by calling 1-800-973-0362.

Presented by: Amy Dix, MPA-C, MSCS Kansas City, KS

Please register by 1/11/2013. To register for one of these programs, call 877-219-0410, or go to www.msrelapseprogram.com. Refer to programs listed above. A caregiver or friend is welcome to accompany you. ©2012 Questcor Pharmaceuticals, Inc. PM-817-00 11/12

Novartis Pharmaceuticals Corporation East Hanover, New Jersey 07936-1080

Pa i d A d v e r t i s e m e n t

6/12

T-XMG-1187200

Pa i d A d v e r t i s e m e n t

MS connection: winter 2012-13

tips for caregivers

caregiving and the holidays What is it about the holidays that make the everyday pressures of a caregiver relationship escalate? The answer in a general sense is expectations. The karen tripp, MS Lmft holiday season marriage and family puts pressure therapist on everyone to have marvelous food, joyous gatherings and meaningful connections not to mention the pressures around gift buying! Is it any wonder that these expectations turn to stress? Let me suggest a few ideas that can improve your holiday season with your loved one. Recognize the potential for increased stress due to expectations. If MS has changed the way you live, it will change the way you live through the holidays. Together decide what the most important thing is about the holidays. Is it traveling to see family? Is it hosting an event in your home? Is it cooking, shopping, sending cards or presents? The input from BOTH the person with MS and the caregiver is equally important.

Honestly look at abilities and limitations. All families discover during the holidays that all things are not possible. Time, finances, and distance create limitations but so does MS. The question may not be simply “What can we do?” but rather “How much can we do?” Share your new expectations with everyone involved. After looking at your priorities and your abilities, set new expectations for the holidays. Although remember, families often resist change even when the need for change is obvious. That’s OK. Be strong about stating your needs. Be flexible. As you set up plans, be open to new ideas or new demands that cause you to change course. With all caregiving relationships, flexibility is key. I hope these suggestions help you develop realistic compromises that make this holiday enriching for you.

Carepartner and family group

This group covers a series of topics important to caregivers, for anyone who provides care for a loved one with MS. Upcoming meetings: Feb. 5, May 7, 7 p.m. David C. Pratt Cancer Center Mercy Hospital, 607 S. New Ballas Rd. St. Louis, MO 63147 Counselor Karen Tripp facilitates the group.

gatewaymssociety.org | 1-800-344-4867

carepartners

CAREPARTNER resources Caregiver.com

Coordinates a national network of support groups, financial assistance and resources for caregivers in both urban and rural areas of the U.S., offers magazine Today‘s Caregiver and newsletters on caregiving. Phone: 1-800-829-2734 x120 Website: www.caregiver.com

CaringBridge®

CaringBridge provides support for anyone facing a health condition big or small, acute or long term. CaringBridge provides online support for people to post updates on health conditions; post what they need help with so that family and friends know how to be supportive. The purpose of this service is to assist people with staying connected and receiving the emotional support they need with one simple post on their personalized website. Website: www.caringbridge.org/ nationalmssociety

family caregiver alliance®

The Family Caregiver Alliance provides information to educate and support family caregivers. They offer a service called the Family Care Navigator, which is meant to help caregivers navigate government, nonprofit, and private assistance programs. Phone: 1-800-445-8106 Website: www.caregiver.org

lotsa helping hands

Lotsa Helping Hands is a free web-based service that allows family, friends, neighbors, and colleagues – the community circle of a person with MS – to more easily assist with household tasks that can become a burden during times of medical crisis. It’s an easyto-use, private group calendar, specifically designed for organizing helpers, where everyone can pitch in with meals delivery, rides, and other tasks necessary for life to run smoothly during times of medical crisis, or family caregiver exhaustion. It’s also a place to keep these ‘circles of community’ informed with status updates, photo galleries, message boards, and more. Website: www.lotsahelpinghands.org

multiple sclerosis foundation

The MS Foundation offers a variety of services for people living with MS, including a Homecare Assistance Grant Program providing direct support on a temporary basis. Phone: 1-888-673-6287 Website: www.msfocus.org/Homecare-GrantProgram.aspx

Pa i d A d v e r t i s e m e n t

You’re invited to join us at a Novartis MS Education Link Event Hear a medical specialist share information about multiple sclerosis (MS), learn about a prescription treatment option, and connect with people in your community living with MS.

talk ms

men’s group

Featured Specialist:

Research shows that twice as many women are affected by MS as men – but it’s important that everyone has a support network. This group could easily be a “tele-chat” group so anyone could participate, no matter where you lived in the Gateway Area Chapter. If you’re interested in participating, please contact Stacey at stacey.sickler@nmss.org or by calling 1-800-344-4867 option 2 and asking for Stacey. Please include what days and time of day is best for you to meet and whether you’d rather have a tele-chat or in-person meeting.

Mary Kay Fink, RN Feb. 26, 2013 at 6:00 pm Dominic’s Tratoria 200 S. Brentwood Blvd. Clayton, MO

Barbara Green, MD Feb. 19, 2013 at 6:00 pm Villa Farotto 17417 Chesterfield Airport Road Chesterfield, MO

Featured Specialist: Mary Kay Fink, RN March 7, 2013 at 6:30 pm Cowen’s Restaurant 114 Elm Street Washington, MO

Myles Goble, MD March 4, 2013 at 6:00 pm Madison’s Café 216 Madison St. Jefferson City, MO

talk ms

children’s group

Tell or bring a friend! Accessible to people with disabilities. Light meal served. Parking will be validated. Space is limited. Please RSVP by calling 1-800-973-0362.

Novartis Pharmaceuticals Corporation East Hanover, New Jersey 07936-1080

Pa i d A d v e r t i s e m e n t

6/12

gatewaymssociety.org | 1-800-344-4867

T-XMG-1187200

In can be difficult trying to explain to your child what MS is and how it will affect their life too. It’s important that children who are affected by MS in some way are able to connect with other children who are in similar situations. In addition to Camp Hope in July, we have a licensed social worker who is willing to facilitate a children’s sharing group for children ages 8-12 years old. If you’re interested in having your children participate please contact Stacey at stacey.sickler@nmss. org or by calling 1-800-344-4867 option 2 and ask for Stacey. Please include what days and time of day is best for you to meet.

family programming

couples retreat managing ms as a team may 4-5, pere marquette Lodge Grafton, IL Having a satisfactory relationship is hard work even in the best of times. MS can make it harder. This Couples Retreat is designed to help you and your partner minimize the impact of MS on your lives and take charge as a couple through a creative mix of interactive courses, workshops and some time to relax at the beautiful Pere Marquette Lodge. Bring your spouse or partner to learn how to: • Break patterns that prevent effective communication • Apply successful problem-solving techniques • Work as team to manage MS and your relationship.

registration: Look for registration to

open in late February or early March. Space is limited to 15 couples. Cost is $90/couple. Call 314-781-9020 or 1-800-344-4867. This program fills up quickly, so be sure to register early!

Pa i d A d v e r t i s e m e n t

26 living with ms

MS connection: winter 2012-13

family programming

free from falls camp hope save the dates: july 21-26 a fall prevention program tuesdays february 19 - april 9 6-8 p.m. Mercy Rehabilitation Services 1176 Town & Country Commons Town & Country, MO 63017

Facilitators: Elissa Held Bradford, PT, MPT, NCS Nancy Dollenmeyer, MPT, MSCS This 8-week fall prevention program is designed for people living with MS who walk with a single cane or no mobility device at all but who may be at risk of falling.

When making summer plans for your children keep Camp Hope at Touch of Nature in Makanda, IL in mind. It is a summer camp for children (ages 8-15) who have a parent or close relative who lives with MS. Fee will be $150. Registration opens in May.

Through this course you will: • Increase awareness of the prevalence of falls among people with MS and the risk factors that may contribute to falls. • Identify strategies you can employ to prevent falls and develop a fall prevention action plan. • Engage in and develop a home fitness plan that addresses balance, endurance, and strength, aimed at reducing fall risk. • Increase confidence in minimizing fall risk and in managing falls if they do occur. • Identify additional community resources to implement a fall prevention action plan

camp counselors needed

COST: $50 per person. Scholarships are available. Call the Chapter to learn more about this program and determine if it is right for you. If you attend all 8 sessions you will receive $25 of your registration back. An application and other registration materials will be provided.

Contact Stacey at Stacey.sickler@nmss.org or 314-781-9020 if you have questions or would like to be put on the list to receive an application.

We need camp counselors for Camp Hope. All counselors must fill out an application, go through an interview process and clear a background check (at no cost to you). Background with children and/or education is preferred but not required. Counselors are required to attend training July 20 and stay through end of Camp on July 26. Applications will be available in April.

Featured Specialist: Florian Thomas, MD March 19, 2013 at 6:00 pm Bartolino’s South Restaurant 5914 S. Lindbergh Blvd. St. Louis, MO

Heather Popham, NP March 14, 2013 at 6:00 pm Giovanni’s On the Hill 5201 Shaw Ave St. Louis, MO

Featured Specialist: Barbara Green, MD April 14, 2013 at 11:00 am Sunset Bistro 118 West Adams Avenue Kirkwood, MO

Mary Kay Fink, RN April 11, 2013 at 6:00 pm The Pier Restaurant 401 Bayview Drive Quincy, IL

Tell or bring a friend! Accessible to people with disabilities. Light meal served. Parking will be validated. Space is limited. Please RSVP by calling 1-800-973-0362.

Novartis Pharmaceuticals Corporation East Hanover, New Jersey 07936-1080

Pa i d A d v e r t i s e m e n t

6/12

T-XMG-1187200

MS connection: winter 2012-13

talk ms groups

Talk MS Groups bring together people who share a common life experience for support, education, and mutual aid. They are led by trained volunteers who also have a connection to MS.

MISSOURI Camdenton

Camden County Library 99 Rodeo Road, Camdenton, MO 65020

Cape Girardeau

3rd Saturday 10 a.m.

St. Francis Health & Wellness Center, Rm. 1 Sharon 150 S. Auburn, Cape Girardeau, MO 63703 (573) 332-8148

Rusk Rehabilitation Center 3rd Wednesday 315 Business Loop 70 West 6 p.m. Columbia, MO 65203 Disability Resource Association Crystal City/ 2nd Tuesday 420B S. Truman Bl. Festus 1 p.m. Crystal City, MO 63019 1st Monday Coca-Cola Bottling, Meeting Room Jefferson City 6 p.m. 605 Washington, Jefferson City, MO 65109 Ralls County Health Department Building 2nd Tuesday 405 W. 1st Street New London 7 p.m. New London, MO 63459 3rd Monday St. Peter’s United Church of Christ, Washington 6 p.m. 20 East 5th St., Washington, MO 63090 Columbia

Christy Bays, cell (573) 480-7932 cm2owl@hotmail.com

Rebecca Dykhouse, LSW (573) 817-4697 rebecca.dykhouse@healthsouth.com Marlene (636) 464-2533 Sharon webradleys@yahoo.com Rebekah Walters (573) 808-4066

SPECIALIZED GROUPS

Anne (636) 359-6037

Linda (314) 544-5623

NMSS Office Gateway Area Chapter Michelle (636) 447-5407 1867 Lackland Hill Pkwy, St. Louis, MO 63146 Conference Room A/B Barnes-Jewish Hospital, St. Peters, MO 63376 Hardee’s Restaurant, 501 Mid Rivers Mall Dr., St. Peters, MO 63376 Sachs Library 16400 Burkhardt Place Chesterfield, MO 63017

The United Presbyterian Church, 2550 Rock Hill Rd., Wood River, IL 62095 First United Methodist Church 504 East Highway 50, O’Fallon, IL 62269 Richland Memorial Hospital 800 East Locust St., Olney IL 62450 Weinheimer Community Center 1100 Main Street Highland, IL 62249 Christian Church of Litchfield 131 Yaeger Lake Trail, Litchfield, IL 62056 LINC, Inc. Dec. 19, 7 p.m. #1 Emerald Terrace, Swansea, IL 62226

Debby (573) 267-3365 mlrdsr@att.net

ozarksmedicalcenter.com

Generation OptiMiStic for 1st Saturday people in their 10 a.m. 20s, 30s & 40s Jan. 13, 2 p.m. O’Fallon April 14, 2 p.m 3rd Sunday St. Charles 3 p.m. West County 4th Wednesday Prayer & 6:30-8 p.m. Health

3rd Tuesday 7-9 p.m. 2nd Sunday 2:30 p.m. 4th Monday 7 p.m. 1st & 3rd Highland Wednesday 10:30 a.m. S’myelin Gang 4th Tuesday of Litchfield 6:30 p.m. Metro East

Sally (417) 469-4842 3rd Wednesday Ozark Medical Ctr. Shaw Medical Bldg. 2nd Dianna dianna.sigert@ 4:30 p.m. Fl. 909 Kentucky St., West Plains, MO 65775 3rd Wednesday Weber Road Library 7 p.m. 4444 Weber Rd, St. Louis, MO 63123

Alton/River Bend Belleville/ O’Fallon Central Illinois

Rebekah.Walters@vr.dese.mo.gov

ST. LOUIS METRO Affton

talk ms groups ILLINOIS

3/20, 6/19, 9/18, 11/20 6-7 p.m.

West Plains

gatewaymssociety.org | 1-800-344-4867

debtalkms@yahoo.com Jim (314) 602-4578 Rose Marie sqsace@sbcglobal.net

Couples Group

Varies, contact Varies, contact for information for information NMSS Office Creative Art 3rd Saturday 1867 Lackland Hill Parkway Experience 10 a.m. St. Louis, MO 63146 David C. Pratt Cancer Center MS Fun, Mercy Hospital Friends & Feb. 5, 6 p.m. 607 S. New Ballas Rd. Food St. Louis, MO 63147 Veterans Admin. Medical Center Veterans with 2nd Wednesday 1 Jefferson Barracks Dr., St. Louis, MO MS 10 a.m. 63125 1st Tuesday in David C. Pratt Cancer Center CarePartner Feb., May, Aug. Mercy Hospital and Family & Nov. 607 S. New Ballas Rd., St. Louis, MO Group 6 p.m. 63147

Lisa (618) 258-0615 Amy (618) 235-4226 Tony (618) 302-1333 tmadmz@frontier.com Karen at 618-830-5681 momferguson5@gmail.com Meredith (217) 556-4418 Diane (618) 235-8823 Earhart500@aol.com jsalacki2@gmail.com laurapieczynski@yahoo.com michellekeating@juno.com Michelle (314) 251-6400 Debbie (636) 579-0264 debra.morrissey2012@yahoo.com Penny (314) 652-4100 ext. 63274 Stacey (800) 344-4867 stacey.sickler@nmss.org

MS connection: winter 2012-13

stay healthy with ms

therapeutic recreation sites

Studies show exercise not only improves your overall health and well-being, but also helps manage many MS symptoms. Move forward through exercise and find a program in your community or become an expert in using a healthy lifestyle to help manage MS.

Financial assistance is available to help you pay for therapeutic recreation classes and memberships. In some cases, assistance with transportation may also be available. To apply, a completed financial assistance application and confirmation of MS diagnosis from your doctor is required. Amount of financial assistance is derived from a sliding scale based on the information from the financial assistance application. Please note the Gateway Area Chapter makes every effort to ensure all facilities are accessible to meet the needs of people living with MS. Please contact the facility of choice and determine if the facility will meet your desired needs to ensure a rewarding experience. If you think the facility would like education on MS, please contact the Chapter office at 1-800-344-4867 option 1. Applications are accepted year-round, however completed applications will only be approved during January, April, July and October. For more information go to www.gatewaymssociety.org g Stay Healthy with MS.

aquatics pilates

tai chi

Yoga

zumba

therapeutic recreation sites St. Louis Bridgeton Community Center Carondelet Park Rec Plex

gatewaymssociety.org | 1-800-344-4867

Address 4201 Fee Fee Road Bridgeton, MO 63044 930 Holly Hills Ave St. Louis MO 63111 50 Gay Avenue Center of Clayton Clayton , MO 63105 2 Millstone Campus Drive JCC St. Louis, MO 63146 1528 Locust Street Downtown YMCA St. Louis, MO 63103 Dragonfly Health Spa & 1272 A Jungermann Yoga St. Peters, MO 63376 Edward Jones Family 12521 Marine Avenue YMCA St. Louis, MO 63146 Pershall Road Emerson Family YMCA 3390 St. Louis, MO 63135 Jefferson College 1000 Viking Drive Hillsboro, MO 63050 Kirkwood Family 325 N. Taylor YMCA St. Louis, MO 63122 Maryland Heights 2344 McKelvey Road Centre Maryland Heights, MO 63043

Contact 314-739-5599 314-768-9622 314-290-8511 314-432-5700 314-436-4100 636-498-5544 314-439-9622 314-521-1822 Christina 636-789-3000 314-965-9622

activities offered

St. Louis cont.

Address 1900 Urban Drive Mid-County YMCA St. Louis, MO 63144 Olivette Community 9723 Grandview Drive Center St. Louis, MO 63132 Old Tesson, Suite 220 Mercy Medical Building 12348 St. Louis, MO, 63128 2085 Bluestone Drive Show Me Aquatics St. Charles, MO 63303 South City Family 3150 Sublette Avenue YMCA St. Louis, MO 63139 South County Family 12736 Southfork Road YMCA St. Louis, MO 63128 St. Charles County 3900 Shady Springs Lane YMCA St. Peters, MO 63376 The Cancer Support 1058 Old Des Peres Rd Community St. Louis, MO 63131 Des Peres Road The Lodge in Des Peres 1050 St. Louis, MO 63131 The Pointe at Ballwin 1 Ballwin Commons Circle Commons Ballwin, MO 63021 990 Horan Dr Riverchase Fenton, MO 63026 Washington Four 400 Grand Avenue Rivers Family YMCA Washington, MO 63090 Webster Groves Family 226 East Lockwood Avenue YMCA Webster Groves, MO 63119 Wellbridge Athletic 7620 Forsyth Boulevard Club Clayton , MO 63105 Wellbridge Athletic 998 Woods Mill Road Club Town & Country, MO 63131 West County Family 16464 Burkhardt Pl YMCA Chesterfield, MO 63017 3305 Jamieson Ave. Yoga Saint Louis St. Louis, MO 63139 233 Lamp & Lantern Village Z Power Fitness Town & Country, MO 63017

Contact

activities offered

314-962-9450 314-781-9020 800-344-4867 Linda 314-729-0181 Jeff 636-896-0999 314-644-3100 314-849-9622 636-928-1928 Kathryn 314-238-2000 314-835-6150 636-227-8950 618-343-0067 636-239-5704 314-962-9622 314-746-1500 636-207-3000 636-532-3100 Bruce 314-645-9785 Nancy 314-378-8639

314-738-2599 aquatics pilates

tai chi

Yoga

zumba

Pa i d A d v e r t i s e m e n t

MS connection: winter 2012-13

therapeutic recreation sites Mid-Missouri Columbia Activity and Rec. Center

Address 1701 W. Ash Street Columbia, MO 65203 904 Elm St. Suite 210. Elm Street Yoga Columbia, MO 65201 424 Stadium Boulevard Jefferson City YMCA Jefferson City, MO 65101 1127 Adams Street Mexico Family YMCA Mexico, MO 65265 Pilates & Yoga at Chapel 2010 Chapel Plaza Ct. Suite A Hill Columbia, MO 65203 Illinois Address 1200 Esic Drive Edwardsville YMCA Edwardsville, IL 62025 Jerseyville Wellness 400 Maple Summit Rd Center Jerseyville, IL. 62052 Logan College Road John A. Logan College 700 Carterville, IL 62918 1 Town Center Drive Maryville YMCA Maryville, IL 62062

Contact

activities offered

573-874-7700

573-761-9021

573-446-0224 activities offered

618-656-0436 Jennifer 618-498-6402 Chris 618-985-3741 618-346-5600

227 N. Market Mascoutah, IL 62258

618-566-8758

O’Fallon Community YMCA

284 North 7 Hills Road O’Fallon, IL 62269

618-628-7701

One-O-One Yoga Sukha Yoga Center

101 S Graham Ave # 1 Carbondale, IL 62901 18 South High Street Belleville, IL 62220

Sarah 618-457-8186 Sarah 618-236-9642

Southeast Missouri

Address

Contact

Black River Coliseum

301 South 5th Street Poplar Bluff, MO 63901 1920 Whitener Street Cape Girardeau, MO 63701 2620 N. Westwood Blvd. Poplar Bluff, MO 63901 1504 Preacher Roe #2 West Plains, MO 65775 422 West Pine Street Poplar Bluff, MO 63901

573-686-8001

Cape Girardeau Municipal Pool PARC Fitness Center Simply Yoga Xtreme Gymnastics Cheer and Dance

aquatics pilates

tai chi

You will learn from an MS healthcare professional about a different FDA-approved treatment option and hear a firsthand account of a patient’s experience with this treatment.

573-581-1540

Mascoutah Senior Center

You will also learn: Ý

How to distinguish between relapses and pseudo-relapses

About the importance of treating relapses

How to talk about relapses with your healthcare provider

About the available treatment options for MS relapses

Location

Gianfabio's Italian Cafe 127 Hilltown Village Center Chesterfield, MO 63017

Date

Tuesday, March 5, 2013

Time

6:00 PM

Check-in

5:30 PM

Presented by

Max Benzaquen, MD Chesterfield, MO

activities offered

Pat 573-335-4040 Mindy 573-686-5985 Vicki 417-293-1184 Christi 573-785-3780

Yoga

Know Your Treatment Options If you’re unsatisfied with your current treatment for MS relapses—because it doesn’t work well or causes side effects that are hard to manage—you’re invited to a presentation created especially for you.

Linda 573-657-2614

Contact

TAKE CONTROL OF YOUR MS RELAPSES

Please register by Monday, March 4, 2013. To register for this program, call 877-219-0410, or go to www.msrelapseprogram.com, and refer to Program 0707. A caregiver or friend is welcome to accompany you. ©2012 Questcor Pharmaceuticals, Inc. PM-542-02 04/12

zumba Pa i d A d v e r t i s e m e n t

MS connection: winter 2012-13

program registration

ms learn online

my life, my ms, my decisions The My Life, My MS, My Decisions online program is a series of online classes that provides learners with the skills and resources to enhance their decision-making abilities on topics important to their health care. Teaming Up with Your Healthcare Providers—2 hours This course focuses on communicating and working with your healthcare team. A good relationship with your healthcare providers is the basis for all of your medical decisions. Navigating the Medication Maze—4 hours In this course, you will learn about some of the available medications and why doctors choose to prescribe them. You will also get a chance to practice analyzing the risks/adverse effects and benefits of medications, accounting for things such as medication side effects and costs.

chapter calendar Date

Name__________________________________ Address_________________________________

Considering Clinical Trials—3 hours Many people diagnosed with MS are interested in participating in a clinical trial. However, before you make such a big decision, you should be familiar with how clinical trials work, how people with MS are selected and what you can expect if you are accepted into a clinical trial. Achieving Optimal Wellness—3 hours This course presents wellness from a holistic point of view, not just exercise and diet. Success in achieving a goal will help you go on to achieve others, taking you beyond the limitations MS may try to impose and empowering you to achieve balance in all areas of your life—physical, emotional, spiritual, intellectual, and social. Go to nationalmssociety.org g Living with MS g Society Programs and Services g Society Online Classes to sign up for these free learning opportunities.

P Program located

Available via telephone

Available via live-stream

in this area. pg. st. louis illinois southern mid# mETRO illinois Missouri 36

Jan. 14

program/ event Teleconference

Jan. 24

Wellness Network

Feb. 11 Feb. 19 April 9 Feb. 28

Teleconference

Free From Falls

Wellness Network

March 11

Teleconference

March 28

Wellness Network

April 8

Teleconference

April 25

Wellness Network

May 4-5

Couples Retreat

SeMissouri

gatewaymssociety.org | 1-800-344-4867

City/State/Zip___________________________ Home phone____________________________ Work phone_____________________________ E-mail_________________________________ Date of Diagnosis_________________________ Payment Information ( ) Fee waiver requested ( ) Check enclosed payable to NMSS ( ) Visa ( ) MC ( ) Disc ( ) Am. Ex Card # ______________________________ Expiration Date:_______________________ Send to: National Multiple Sclerosis Society 1867 Lackland Hill Parkway, St. Louis, MO 63146 or Fax to 314-781-1440 Register online go to www.gatewaymssociety.org, g “Chapter Calendar.” [ [ [ [ [ [ [ [ [ [

] Teleconference January 14 COST: FREE PROGRAM ] Wellness Network January 24 COST: FREE PROGRAM ] Teleconference February 11 COST: FREE PROGRAM ] Free From Falls February 19 - April 9 COST: $50/person ] Wellness Network February 28 COST: FREE PROGRAM ] Teleconference March 11 COST: FREE PROGRAM ] Wellness Network March 28 COST: FREE PROGRAM ] Teleconference April 8 COST: FREE PROGRAM ] Wellness Network April 25 COST: FREE PROGRAM ] Couples Retreat Rendezvous May 4-5 COST: $90/couple

share what you know msconnection.org

Multiple sclerosis destroys connections inside us. It disconnects the mind from the body and people from each other. Maybe, by connecting all of our knowledge, and hope, and experience, we can gain a new understanding of how to move forward. Share What You Know Find, store and share meaningful updates, posts, videos, articles and other content about the topics you care about most. Connect with people, groups and discussions that relate to the topics that shape your world. Join conversations with others who share your experiences, challenges, and interests, and put the best resources available to work for you, so you can move your life forward in the way that feels right for you. Publication of the National Multiple Sclerosis Society

Contact Us at: National MS Society, Gateway Area Chapter 1867 Lackland Hill Parkway, St. Louis, MO 63146 314-781-9020 | 1-800-344-4867 | www.gatewaymssociety. org MS Connection © 2012 A quarterly magazine published by the National Multiple Sclerosis Society, Gateway Area Chapter. Chapter President • Phyllis Robsham Writers • Joe Cavato • Kim Curtis • James Dean • Caterina Fedyk • Meghan Freeman • Joanne Herzog • Burt Mehemeti • Dr. Laura Piccio • Kathi Taylor • Karen Tripp

NOTICE: The Gateway Area Chapter of the National Multiple Sclerosis Society is proud to be a source of information about multiple sclerosis. Our comments are based on professional advice, published experience, and expert opinion, but do not represent therapeutic recommendations or prescriptions. For specific information and advice, consult a qualified physician. The National Multiple Sclerosis Society does not endorse products, services, or manufacturers. Such names appear here solely because they are considered valuable as information. The National Multiple Sclerosis Society assumes no liability whatsoever for the contents or use of any product or service mentioned.

NON-PROFIT ORGANIZATION U.S. POSTAGE PAID Permit No. 3914 St. Louis, MO

Gateway Area Chapter 1867 Lackland Hill Parkway St. Louis, MO 63146

wellness network

dial. listen. learn.

The Wellness Network connects people who have an interest in or who are actively participating in exercise programs through a monthly teleconference. These monthly calls are an opportunity to share ideas and encouragement about exercise and include special guest speakers. Jan. 24, 7-8 p.m. Fall Prevention: Tips to Keep You Safe

African Americans Get MS Too - Jan. 14, 7-8 p.m. Midwest Teleconference Learn about the prevalence and how the disease affects Series African Americans differently. Midwest Teleconference Speaker: Adil Javed, MD, PhD, University of Series Chicago Medicine What’s Happening NOW - MS Research - Feb.Midwest 11, 7-8 p.m. Teleconference Series Receive the latest information about what’s hot in MS research and how the National MS Society supports MS Research. Speaker: Dr. Bruce Bebo, AVP, Discovery Research, National MS Society Don’t Fall For It: Keep Your Balance - March 11, 7-8 p.m. Learn about common causes for balance issues and falls in MS and how to minimize your risk of falling and how to make your environment safer. Speakers: Becky Anderson, OT, Fairview MS Achievement Center Megan Frost, PT, STEP Physical Therapy Calm Before the Storm - April 8, 7-8 p.m. Learn what you need to do to plan for a natural disaster and gain insight about special considerations for people with disabilities.

Feb. 28, 7-8 p.m. Yoga and MS March 28, 7-8 p.m. Aquatics and MS April 25, 7-8 p.m. Exercise and MS The Wellness Network is free and provides resources to a wide variety of people with MS of all abilities. If you are interested in becoming a member of the Wellness Network, please call 1-800-344-4867 or visit our website to register for the monthly calls.

Midwest Teleconference Series