regional news new hampshire “K’s Ride For a Cure,” the Third Annual Motorcycle Ride and Family Fun Day, took place on July 21st in Salem, NH and raised $1,000. All involved enjoyed a wonderful day of community, games, food, and entertainment for both children and adults.
washington, DC The second annual CureNFwithJack DC Golf Classic took place on September 27th at Westfields Golf Club in Clifton, VA. The event was a huge success raising over $65,000 for CTF – including a large donation by the Stewart Rahr Foundation. Golfers enjoyed a fun-filled day of contest holes, raffles, a silent auction, and an uplifting evening reception. The tournament was held concurrently with an Orbital/Periorbital Plexiform Neurofibroma (OPPN) Conference co-chaired by Dr. Robert Avery of the Children’s National Medical Center and Dr. Brigitte Widemann of the National Cancer Institute. Many thanks to Matt Benson who, although he has no connection to NF, worked tirelessly to create this event.
Oregon The Portland NF Walk took place at Oaks Park in Portland, OR on July 28th with approximately 40 volunteers and 150 attendees. In addition to the 5K walk through beautiful Oak Bottoms, which includes a small lake and shores covered with lavender, there was a raffle, food, a hula hoop contest, and a demonstration of hula dancing. The afternoon was enjoyed by all and the event raised over $24,000.
Alabama Virginia The Second Annual Chesapeake Bay Cobia Classic fishing tournament was a huge success with nearly 800 people participating and more than $21,000 raised. Many thanks to longtime CTF supporters Jen and Michael Gundling for their tireless efforts in coordinating the event. “This year’s tournament was a great time and most importantly a great success for the charity,” said Jen Gundling, president of Friends of the Children’s Tumor Foundation. “It would not have been possible without our sponsors and volunteers, especially Whitehouse Cove Marina and Wynne Ford Volvo.”
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The University of Alabama at Birmingham’s (UAB) Department of Genetics held their annual symposium entitled “NF Family Day: Learning and Thriving Together” on September 7th. The event was co-sponsored by the Children’s Tumor Foundation and coordinated by Alabama Chapter President Renie Moss and Clinic Coordinator Ravin Williams. Approximately 80 people from Birmingham and surrounding areas participated in this half day seminar. Many significant topics were covered including a session by Children’s Tumor Foundation Clinical Program Manager Pam Knight on the importance of the NF Registry.