Recurrence RECURRENCE Has your ependymoma recurred? No Yes
Brain (N=70) 46 (66%) 23 (33%)
Spine (N=81) 50 (62%) 28 (35%)
Brain & Spine (N=8) 7 (88%) 1 (13%)
Brain 9 (39%) 0 7 (30%) 1 (4%) 4 (17%)
Spine 7 (25%) 13 (46%) 3 (11%) 0 4 (14%)
Brain & Spine 1 (100%) 0 0 0 0
Brain 13 (57%) 5 (22%) 2 (9%)
Spine 12 (43%) 4 (14%) 9 (32%)
Brain & Spine 1 (100%) 0 0
Brain 7 (30%) 15 (65%)
Spine 4 (14%) 23 (82%)
Brain & Spine 0 1 (100%)
What was the name of your ependymoma tumor at recurrence? Ependymoma Myxopapillary ependymoma Anaplastic ependymoma Subependymoma Did not know name How many recurrences? 1 2 >2 Did it recur in the same location? No Yes
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What symptoms did you have the first time it recurred? Sleepiness Headache Memory loss Nausea/vomiting Trouble speaking or writing Personality change Weakness Seizures Problems thinking or completing tasks Numbness or tingling in arms, legs or body Visual problems (double vision or loss of vision) Back pain Radiating back pain Problems urinating (incontinence or inability to void) Sexual dysfunction
Brain 3 (13%) 6 (26%) 0 1 (4%) 0 0 0 1 (4%) 1 (4%) 6 (26%) 0 3 (13%) 1 (4%) 0 0
Spine 1 (4%) 3 (11%) 4 (14%) 1 (4%) 1 (4%) 1 (4%) 17 (61%) 0 3 (11%) 16 (57%) 2 (7%) 15 (54%) 12 (43%) 8 (29%) 6 (21%)
Brain & Spine 0 0 0 0 0 0 0 1 (100%) 0 0 0 0 0
Brain 2 (9%) 4 (17%) 3 (13%) 1 (4%) 3 (13%) 3 (13%) 1 (4%) 0
Spine 9 (32%) 8 (29%) 1 (4%) 1 (4%) 2 (7%) 2 (7%) 0 3 (11%)
Brain & Spine 0 0 0 0 1 (100%) 0 0
What treatment did you receive after the recurrence? Surgery only Radiation only Chemotherapy only Radiation & chemotherapy Surgery & radiation Surgery & chemotherapy Surgery & radiosurgery Surgery, radiation & chemotherapy
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