“THE LIFE EXPERIENCE AND INTERPRETING FOR PEOPLE WITH USHER SYNDROME, TYPE 3” By Dana Tarter
Just Me • My journey • Transparent and real • Usher Syndrome, Type 3
Identity • Where do I fit? To be honest. No where really. • Changing, adapting and rediscovering. • Stages
DeafBlind Culture • Unique • Stage can equal community connection - Deaf community - Blind community - Hard of Hearing community
Interpreting Needs • Receiving information/Finding the sweet spot • Environment • Lighting • Change happens • Energy • Posture and care • Keeping the assignment • Clear communication
Grief • Grief? I am alive I am not dead. • Usher Syndrome Type 3 is about loss. • Family • Friends • Freedom/ Independence • Job • Grief with each change in vision/hearing
Acceptance • I didn't know what was happening. I was just living life. • When I came to the real understanding that I was going to be DeafBlind I cried. • No clue what to do • How to live life DeafBlind
Question & Answer