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VOL. 8, NO. 8
JUNE 1, 2012
THISWEEK Father, daughter find a million reasons to care By Patty McCormac
BOLD MOVES Rancho Santa Fe artists Steve and Yvonne Maloney turn the mundane into A10 spectacular art.
INSIDE ONE SECTION, 24 PAGES
Arts & Entertainment . . A10 Baby Boomer Peace . . . A16 Classifieds . . . . . . . . . . A22 Coastal Cosmos . . . . . . . A8 Comics . . . . . . . . . . . . . A19 Eye Spy . . . . . . . . . . . . . A7 Frugal Living . . . . . . . . A11 Hit the Road . . . . . . . . . A15 Lick the Plate . . . . . . . . A14 Machel’s Ranch . . . . . . . A9 Opinion . . . . . . . . . . . . . A4 Sea Notes . . . . . . . . . . . A15 Small Talk . . . . . . . . . . . A2 Sports . . . . . . . . . . . . . A18 Taste of Wine . . . . . . . . A17 Who’s News . . . . . . . . . . A7
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RANCHO SANTA FE — When this season’s “Secret Millionaire” premiers at 8 p.m. June 3 on ABC, look for Rancho Santa Fe residents Scott Jacobs and his daughter Alexa. The two spent a week of their lives undercover, stepping way out of their comfort zones, living and working in a poverty-stricken area of Newark, N.J. “Our goal for the week was to find people to make a major donation to at the end of the show,” he said. But, he said, the takeaway message from the show is you don’t have to be a millionaire to help others. “We were elbow-to-elbow with other people who had nothing, that were doing just as much good that day as we did with our money,” he said. “You don’t have to give away money, just contribute in some way. If you are healthy, Rancho Santa Fe residents Scott Jacobs (right) and his daughter Alexa spend a week living out of their comgive time; volunteer at a food fort zones, working in a poverty-stricken area of Newark, N.J for “Secret Millionaire,” which airs on ABC June 3. bank; help clean up a park. Photo courtesy of Scott Jacobs Studio
Pick up garbage. It makes you feel amazing.” He is not sure how he was chosen for the show, but he had seen it for the first time and had told several people he would love the opportunity to appear on it. “I said I would do it in a heartbeat,” he said. Someone, he does not know who, was listening. Originally, only Scott was to go on the adventure, but the producers thought it would be interesting for him to bring one of his daughters. He said his older daughter Olivia was old enough to appreciate how she grew up and realizes not everyone has the same advantages. They decided that younger daughter Alexa should share the adventure with her dad. “She broke out crying within the first half hour. There was garbage everyTURN TO MILLIONAIRE ON A23
Chargers, HDSA shoot to find cure for ‘cruel’ disease By Tony Cagala
COAST CITIES — It’s been called one of the cruelest diseases; a genetic disease that wreaks havoc on those who have it and those closest to them. There is hardly a treatment for it and there is no cure — yet. With the 11th annual Shoot to Cure HD June 15, there’s optimism that that will change. It’s one of the biggest fundraisers put on by the HDSA (Huntington’s disease Society of America), San Diego chapter. It’s at Chargers Park and is supported by the Spanos family and the Chargers, explained George Essig, president of the board, HDSA San Diego. And the event takes place on the team’s practice field, he added. But apart from the fundraising, the main goal of the event is education. HD is still a widely unknown disease despite its identification more than 100 years ago in 1872. Essig, who has a family history of the disease, but isn’t a carrier of the gene, believes that part of the reason it’s not as well-known is that there’s a certain amount of denial involved. “And because there’s no cure, there has also been a sense of hopelessness…so the families with Huntington’s, even within their own families, became isolated. People didn’t know how to treat them; they didn’t want to acknowledge that they themselves might get the disease.
The Huntington’s disease Society of America, San Diego Chapter with the help of the San Diego Chargers, Qualcomm and Cymer are hosting the 11th annual Shoot to Cure fundraiser at Chargers Park June 15. Courtesy photo
They didn’t actually know what it was.” Even today, Essig explained, someone with the disease is hesitant to say anything for fear of losing their job, or of being dropped by their insurance because of its slow, degenerative process.
The disease occurs in about one in 10,000. UCSD follows about 150 people with HD. Dr. Jody Corey-Bloom is a neurologist at UCSD Medical Center and clinical director for the HDSA Center of Excellence. The Center of Excellence is one
of 21 centers nationwide founded to support patients with the disease, families and those affected by the disease. It was the first center west of the Mississippi, something CoreyBloom takes pride in. Once the disease becomes fullblown, daily life is really tough, said Corey-Bloom. “Things like combing their hair, brushing their teeth, feeding themselves, buttoning their clothes, all of that becomes very difficult because of the abnormal movements,” she said. The disease affects cognitive abilities, mobility, and the ability to talk and swallow and eventually leads to death. While symptoms may not show until a person is in their 20s, 30s or 40s, one of the greatest difficulties for someone who may be affected by the disease is deciding on whether to get tested for it or not. “For me, the hardest part quite honestly, is patients coming to see you and saying, “do you see anything yet?’” And receiving a diagnosis can be devastating, Corey-Bloom said. When she first began running the clinic, she had often wondered why people with a family history of the disease didn’t get tested more often. She now admits that if she had had a family TURN TO CURE ON A23