annual review care for the carers 2011/12
Supporting Carers in East Sussex
welcome from the chair
I
am proud to introduce Care for the Carers’ Annual Review for 2011-12, an overview of our past year’s achievements and activities supporting East Sussex carers. This was a year of change for the organisation, which brought funding challenges and celebration with royalty!
Our principal financial aim was to secure continuation funding for our core work, to maintain a quality and varied range of services for carers beyond the end of our existing contract with East Sussex County Council (ESCC) and NHS Sussex. In addition, our NHS Carers Demonstrator site project would end in September 2011, reducing the direct support we could provide to carers and evidencing new ways of supporting carers via the NHS.
charity SEAP, an organisation she had been instrumental in founding. We undertook interviews for the post of CEO and, despite the process taking longer than anticipated, were pleased to make an internal appointment. We welcome Jennifer Twist, our new Chief Executive, who is leading our continued organisational development. Our achievements included the launch of NHS Demonstrator Site report – a positive resource for future fundraising, and a contribution to national research. We were successful in tendering for our core work, winning the Prospectus contract with ESCC and the NHS, albeit with cuts to our Young Carers and training & wellbeing services. The loss of funding for our Back Care service and CareLine magazine has been keenly felt.
Internally, we continued to develop to ensure that the organisation was lean and contract-ready. We also experienced a change in leadership, Our financial statement on pages when Marie Casey accepted the 18 & 19 reflects the reduction in role of CEO at South East Advocacy funding from the previous year, but 2 welcome from the chair
care for the carers annual review
contents happily also demonstrates measures taken to reduce running costs and increased support from the local community. I would like to thank unreservedly our fantastic volunteers, members and funders for your support through this challenging year. Thanks also go to our skilled and dedicated staff and management, who ensured that organisational development did not detract from the delivery of services to carers. And finally I must pay tribute to the commitment and expertise of the Board of Trustees whose leadership has been instrumental this year.
welcome from the chair
2
message from the CEO
4
support & advice
6
involvement 8 information 10 tools & resources
12
organisational management & governance
13
representations & awareness
14
groups, training & activities
16
summary statement of financial activities
18
message from the board
20
Jenny Ballard Chair of Board of Trustees 2011/12
3
message from the CEO In preparing this report, I was reminded of the sheer volume of work undertaken by Care for the Carers in 2011-12. Despite a reduction in funding and staffing, we supported 4943 adult carers and 207 young carers, through a wide range of services. It has been necessary to adapt our structure and processes to respond to an austere climate, but it is testament to the team of staff and volunteers at Care for the Carers that direct support to carers has remained the number one priority throughout.
out in this Annual Review. We thank Marie for her insight and leadership, and wish her every success in her new role leading SEAP. Whilst we were sorry to say farewell, we congratulate her on her appointment at the helm of an organisation which is close to her heart.
During 2011-12, there were certainly challenges, but there were also particular highlights, not least the opportunity to meet Her Royal Highness Princess Anne in March 2012. It was an honour to As Chief Executive during 2011- be able to involve her in the work 12, Marie Casey was responsible that we do here in East Sussex, and for overseeing the work set to be able to invite her to officially Princess Anne unveiling the commemorative plaque
4 message from the chief executive
care for the carers annual review
open our new carers centre (albeit in advance of us actually moving in!). Thank you so much to those of you who helped make the day happen – it was a very special occasion, and an event that we simply could not have held without the generosity of the local community. At the centre of everything that Care for the Carers does are the people in East Sussex looking after family or friends, often at the expense of their own careers, health or finances. It is a privilege to work with you and to lead your local carers centre. I am looking forward to meeting as many of you as possible over the coming months, and to hearing your aspirations for the future development of Care for the Carers.
Quote from Marie Casey
It was a privilege to receive such an honourable guest, we were all very excited about meeting Her Royal Highness It’s very exciting for us to be opening this new centre which will gives us a space for carers to use as well as a place where they can access information, advice and support.
Jennifer Twist Chief Executive jennifert@cftc.org.uk 2011/12
@jennifer_twist 5
support & advice Navigating health and social care services, finding time for yourself and accessing the support you are entitled to are daily challenges for carers. For young carers this can mean difficulty negotiating roles within the family, alienation from your peers, bullying, or finding it hard to juggle home, social and school life. Our support workers provide information and advice to carers of all ages to help establish a network of support and services that will work for them. As the local specialists on carers’ issues, and experts in working with both adults and children, we provide a tailored and personalised service to carers from age 8 upwards. Our established partnerships with NHS, Social Care and Education colleagues enable us to meet the needs of carers undertaking the most intensive caring roles, and in the case of young carers to support the family to find more appropriate sources of care and help young carers to meet their educational potential. Contact ranges from 6 support & advice
telephone advice, one to one meetings, information sessions, support groups and events provided across East Sussex. »» This year, 1251 adult carers and 211 young carers accessed oneto-one support »» In 2011/12, our Carers’ Demonstrator Site pilot came to an end, having benefitted from extension funding to September 2011. Delivered in partnership with NHS Hastings and Rother and East Sussex County Council, the project had piloted innovative ways of developing better NHS support to carers in primary and secondary care settings. The project built on the work of the previous Hospital Liaison Service, enhancing the service in Eastbourne District General Hospital and the Conquest and extending the model to primary care. Piloting this specialist work enabled us to demonstrate the value of care for the carers annual review
working alongside busy NHS professionals to support multidisciplinary teams to identify and support carers, and a key »» recommendation of the research was that this way of working be maintained in East Sussex. »» Telephone support, workplace visits, communication by text and increased online information ensured that our services were accessible to working age carers - 52% of the carers we supported were from this age group »» 10% of young carers were from Black and Ethnic Minority Communities »» The Back Awareness service ended in September 2011 due to lack of funding, having helped 61 carers avoid injuries with advice on safe moving & handling and equipment & adaptations in the first 6 months of the year.
counselling to carers, benefitting some 102 carers in the year. Our ‘YAC’ facebook site put young adult carers in touch with our specialist support worker and each other. A variety of social opportunities enabled them to meet and build peer support.
»» Our carer support workers continued to develop areas of expertise, enabling them to provide specialist information to carers on matters such as Long Term Conditions, Mental Health and Children & Family work.
You have been a great support for myself and my son as a young carer. We get a lot of valuable advice and it's a great 'all round' service.
»» As part of our core contract, we achieved funding to offer free 2011/12
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involvement By working together with carers, the voluntary and statutory sectors, sharing information and good practice, we make the most of our resources and our position as a Carers’ Centre, ensuring that carers in East Sussex have a strong voice. Carers make an enormous contribution to society and we value highly their involvement in all aspects of service delivery and planning.
»» Supported 12 carer representatives to sit on the Carers Partnership Board and its subgroups. »» Held 2 public meetings of the East Sussex Carers’ Forum, bringing carers together with Dorothy Hatcher, former carer, addresses the Forum
We support carers to influence policy by creating communication pathways, providing information and advice on the development of statutory services, with the aim of empowering carers to inform and challenge local and national policy decisions. This year, we: Changes for carers »» Continued to work with statutory partners to implement carer involvement mechanisms, ensuring that carers influence the design of health and social care services. 8 involvement
are made by carers, I don't have much faith in the Government
care for the carers annual review
key officers from the statutory and voluntary sectors to scrutinise services. In the year, 131 carers took part in the Forum, having their say on respite care, contributing to Carers Week and holding senior officers to account. Delegates continued to rate the Forums as ‘excellent’. »» Provided specialist involvement opportunities to 72 carers of learning disabled adults, through the Learning Disability Carers Focus Group and Network. »» Continued to deliver the Black and Minority Ethnic (BME) Carer
2011/12
For the first time I have felt listened to, and feel that somebody understood what I needed
Involvement project, embedding best practice into our processes, maintaining community links and tailored publicity materials. 10% of young carer referrals and 4% of adults receiving support were from BME communities.
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information Carers can struggle to find out »» information about support available to them and the person they care for. We guide local carers through the vast amounts of information available to find what is most useful to their »» own situation, using a range of methods, from telephone contact with support teams, to leaflets and factsheets, Care for the Carers’ website and CareLine magazine. We also provide information to professionals working with carers and to the general public. »» »» The 5,000 carers we were in contact with also received ‘CareLine’ magazine - in paper, electronic, CD and tape formats. During the year, we reduced costs on CareLine, in part by reducing from 6 to 4 issues per year. We were saddened to lose funding for this from October 2011, but were still able to deliver the remaining two editions of the year, using funds from our reserves.
10 information
This year, the circulation list for our policy e-newsletter grew from 38 to 463, enabling us to inform and influence carers, professionals and the public. Implementation of our new database was completed this year, enabling seamless and secure internal communication. It also supports comprehensive data analysis and revolutionises our handling of information. We distributed 14,673 leaflets and received 12,594 hits to our website in 2011-12. We continued to develop the site, as well as launching a comprehensive social networking programme to share information, raise awareness and attract more traffic to our website.
care for the carers annual review
Keavy McBrown, Young Carer, presents Princess Anne with flowers
John Dunn, Former Carer, meets Her Royal Highness, The Princess Royal
2011/12
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tools & resources We provide a range of resources as practical tools to help carers manage their caring role. »» The Carers’ Personal Plan holds important information about carers and the person they care for in one place, should it be needed in an emergency. »» Young Carers’ workers use the Carers Trust assessment tool to develop individual action plans with young carers. The plans aim to reduce their caring role, improve school attendance and performance, improve wellbeing and reduce isolation. »» Former Carers’ packs provide information to support those whose caring roles have recently ended. »» The Emergency Alert Card merged with Adult Social Care’s CRESS card (Carers’ Respite Emergency Support Service) in 2010-11, and we continue to support carers to access the scheme. Carers make an 12 tools & resources
emergency plan, which is held on our secure database. Eligible carers are also supported to access CRESS (incorporating home based respite into their plan) through a carers’ assessment. »» We raised over £20,000 for individual carers from private sources such as charitable trusts. »» Care Passports enable carers to record the care needs, preferences and communication requirements of the person they support, when they are in hospital or respite care. It gives carers confidence, prevents misunderstandings and ensures the well-being of patients with particular needs, especially when the patient cannot communicate with staff. »» Introductory packs provide those new to caring with an overview of available help, reducing ‘information overload’ .
care for the carers annual review
organisational management & governance Care for the Carers is governed »» Being externally accredited by a voluntary Board of Directors, Level 2 of the latest version who are also the Trustees of the of PQASSO ( Practical Quality Charity. They in turn employ a Assurance Systems for Chief Executive and staff team to Small Organisations) Quality carry out the strategic direction Standards system. set by the Board. All aspects of the organisation’s Governance are At March 2012 the Board of regularly reviewed to ensure that Directors were: an effective Board is in place. The Jenny Ballard (Chair) majority of Trustees, including the Mark Rowe (Treasurer) Chair, are carers and 257 of our Fari Rassekh 279 members are carers or formerAngela Chapman carers. Ken Hales Mark Moorton Developments in organisational Clare Szanto management this year included: Bernard Curtis »» Achieving £143,000 government funding from the Cabinet Office Big Fund, enabling Care for the Carers to develop a new business model and to manage the decrease in funding affecting the organisation this year
2011/12
Clare Szanto with Stephen Lloyd MP
organisational management & governance 13
representation & awareness Care for the Carers’ Constitution and Vision expressly highlight the importance of raising awareness of carers’ needs and rights, and of their enormous contribution to society. In 2011-12, our partnerships with statutory agencies were maintained through our contribution to a wide range of planning and strategic groups. Representing carers in these arenas ensures that their needs and rights are never overlooked by decision makers, and that their expressed views are robustly promoted. Health and Social Care staff and volunteers are a key audience for our awareness work – we aim to ensure that they are always aware of carers, the value of their contribution to people who need care and to society as a whole.
rights, and the Board of Trustees help to maintain political awareness of carers. »» We launched Carers Week 2011 locally by holding a Carers Forum at Ashburnham Place near Battle. Some 70 carers came together with key decision makers to discuss “the True Face of East Sussex Carers”, and heard inspirational and moving speeches from 5 carers. The resulting report was a valuable tool for awareness raising and enabled us to contribute a local perspective to national Carers Week.
Carer Awareness is delivered by Care for the Carers volunteers and staff to ensure that the people who work most closely with carers are aware of their needs, concerns and 14 representation & awareness
care for the carers annual review
»» The Carers’ Demonstrator site established new practice, raising awareness of carers in health settings, and demonstrating that high visibility of dedicated carers’ workers increases referrals. The end of project report was launched during the year and supported us to make the case for continued resourcing of carer support within health settings, as well as informing national and local policy. »» We delivered a range of awareness raising and media activities, highlighting key dates such as Carers’ Week and Carers’ Rights Day and targeting key groups, such as health and social care professionals – these included talks, information stands and training sessions »» We achieved significant local media coverage as a result of our Royal Visit, heightening the visibility of carers across the County.
2011/12
I put my husband first everyone else puts me second. I have a voice and rights of my own.
»» We represented carers’ views at 555 health & social care meetings. »» The Schools Project worked intensively with six secondary schools across East Sussex to identify and support young carers. »» Our social networking took off dramatically this year, with the launch of our Facebook pages and Twitter account. By the end of the year, we had generated a following of 182 on facebook, and of 339 on twitter. Linking with this number of carers and members of the public online enabled us to share our expertise and highlight carers' contribution to the local community to an ever wider audience. 15
groups, training & activities Our network of activities, personal development, social and special interest groups for adult carers support them to network, take time out from their caring role and to develop new skills. Specialist groups and training respond to development needs carers have expressed and enable particular groups of carers to meet. Regular young carers’ clubs in Eastbourne, Laughton and Hastings provide young people with respite from their caring role, and time to take part in activities, build friendships and most importantly have fun. The clubs also enable specialist support staff to offer group-based work and engage face to face with more young people. We also run day trips, activities, short breaks and community based activities for young carers.
Thanks to community support and small grants, we have been able to maintain the young carers’ clubs, and have delivered wellbeing opportunities to adults via our existing carers’ groups. In 2011-12: »» Over 170 activity, group and training sessions were held. »» 21 ex-carers accessed the Former Carers group & 3 took the New Beginnings course as part of their transition following the end of the caring role. »» Additional volunteers and sessional workers were recruited enabling us to include more young carers in clubs.
»» 12 young carers attended the opening of our new offices From October 2011, we saw a by Her Royal Highness the reduction in funding for young Princess Royal. This was the carers’ clubs and for adult carers’ social highlight of the year, with training and wellbeing, as our core the Princess taking the time to Pooled Budget contract ended. speak to all the carers and young
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care for the carers annual review
carers present, and really listen to their experiences of caring. It was a wonderful opportunity for us to invite carers, volunteers and supporters who have made a significant contribution to Care for the Carers to a really special event. »» 33 young carers attended a first aid course delivered by the British Red Cross »» 20 families spent their holidays at Combe Haven in our fully accessible caravan.
Young Carers taking part in a trust game at Circle of Life
2011/12
»» Young people got together at two Big Swims, Lazerquest and Bowling, Drusillas and Chessington trips »» 15 young people made links with young carers from across the UK at Young Carers Festival camp in Southampton. »» Through Circle of Life Rediscovery, 11 young carers were accredited with the John Muir Award, having learned to forage, fish and survive in a woodland environment.
'Crate stack challenge' at the Young Carers Festival
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summary statement of financial activities STATEMENT OF FINANCIAL ACTIVITIES FOR THE YEAR ENDED 31 MARCH 2012 (INCLUDING INCOME AND EXPENDITURE ACCOUNT) Unrestricted funds (£)
Designated funds (£)
Restricted funds (£)
Total Funds 2012 (£)
Total Funds 2011 (£)
INCOMING RESOURCES Incoming resources from generated funds Donations and gifts
-
3,389
-
3,389
2,088
Investment income
-
1,866
-
1,866
2,008
559,043
-
-
559,043
596,386
-
-
-
-
261,751
1,360
37,846
307,950
347,156
190,208
560,403
43,101
307,950
911,454
1,052,441
Direct charitable expenditure
429,229
14,513
247,980
691,722
802,831
Support costs
116,438
-
78,391
194,829
214,238
545,667
14,513
326,371
886,551
1,044,069
18,849
7,055
24,509
50,413
59,907
Total resources expended
564,516
21,568
350,880
936,964
1,103,976
Net incoming/(outgoing) resources before transfers
(4,113)
21,533
(42,930)
(25,510)
(51,535)
4,113
(4,113)
-
-
-
Net movement in funds
-
17,420
(42,930)
(25,510)
(51,535)
Fund balances at 1 April 2011
-
196,941
165,042
361,983
413,518
Fund balances at 31 March 2012
-
214,361
122,112
336,473
361,983
Activities in furtherance of Charity’s objects East Sussex County Council Pooled Fund Department of Health Grant Other incoming resources Total incoming resources RESOURCES EXPENDED Charitable activities
Total charitable expenditure Governance costs
Gross transfers between funds
18 summary statement of financial activities
care for the carers annual review
TREASURER'S STATEMENT The summary financial information is not the full annual report and financial statements, but a summary of financial information derived from the full annual report and financial statements. The full annual report and financial statements are available from: Care for the Carers, Highlight House, 8 St. Leonards Road, Eastbourne, BN21 3UH
BALANCE SHEET AT 31 MARCH 2012 2012 (ÂŁ)
2011 (ÂŁ)
Tangible assets
18,066
24,001
Total fixed assets
18,066
24,001
9,585
36,535
332,603
353,985
Total current assets
342,188
390,520
CURRENT LIABILITIES Creditors: amounts falling due within one year
(23,781)
(52,538)
Net current assets
318,407
337,982
336,473
361,983
Restricted funds
122,112
165,042
Unrestricted / Designated funds
214,361
196,941
336,473
361,983
FIXED ASSETS
CURRENT ASSETS Debtors Cash at bank and in hand
Total assets less current liabilities FUNDS
Total Funds
Or online at: www.cftc.org.uk On behalf of the Trustees,
Mark Rowe CPFA Treasurer
2011/12
Pub Quiz Fundraiser at The Plough, Westfield
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It would be impossible to mention individually all the carers, volunteers, supporters, partners and staff who together make up Care for the Carers.
Supporting Carers in East Sussex
We are grateful to you all for your support and congratulate you on your achievements this year. The Board of Directors call us on 01323 738390 visit us online at www.cftc.org.uk Care for the Carers is a charitable company registered in England and Wales with No. 3677361 and Charity No. 1074906. Registered Office: Highlight House, 8 St. Leonards Road, Eastbourne, BN21 3UH
email us info@cftc.org.uk