A04 May 12, 2010 The Richmond News
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Continued from page 3 Shannon had been tested for multiple sclerosis, tuberculosis, bone cancer and then depression. All turned up negative. Canadian doctors were at a dead end, yet Shannon’s life of being immersed in the Cambie community was on hold. “We kind of gave up, but then I got even sicker,” Shannon explained. “Then my husband was on the phone to a friend of ours back east who is a surgeon, and he asked if I’d been tested for Lyme. I thought ticks were something that dogs get.” It turns out that Shannon was “classic Lyme,” showing 58 of the 75 possible symptoms. As far as Canada is concerned, however, Lyme is very rare and only one doctor in B.C., was able or willing to confirm the disease was the reason the Goertzen family’s life was being turned upside down. The doctor, based ironically in Hope, was the first one to offer Shannon an explanation and a way out. Not being able to give her the aggressive treatment needed to deal with her advanced stage of Lyme, he referred her to the Californian doctor who specializes in treating Lyme
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Goertzens: Dig deep into faith
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59
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139
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19
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79
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229
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97
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199
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09
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CHUNG CHOW/RICHMOND NEWS
Shannon Goertzen can’t hide the anguish of knowing the pain her children are suffering. disease. But as Shannon’s pain was subsiding to a manageable level — thanks to the IV treatment prescribed in the U.S. — the family’s world began to crumble yet again last fall when Parker and then Taylor both started to get sick. First, it was a sore throat for Parker, before having trouble breathing and chest pains, severe joint pain and limited ability to walk. A month later he was crawling around the floor he was in so much pain. He was tested for tuberculosis and leukemia. “When I asked about the possibility of it being Lyme disease, the doctor was instantly defensive and said it was almost impossible to get Lyme in B.C.,” his mom said. Indeed, infectious disease doctors at Children’s Hospital said Parker did not have Lyme. By November, Parker was in a wheelchair. By January, he was suffering from violent tremors and scream-inducing pain. Yet, according to his
parents, every doctor in Children’s refused to even acknowledge Lyme disease existed and referred him, instead, to a pain management psychologist with no diagnosis. But, with his condition worsening by the week, the family flew him to their Californian doctor who confirmed, after crosschecking with a Seattle-based colleague, it was Lyme disease. Although still having frequent “bad days” when he can barely walk, he has shown great improvement since being treated with the antibiotics he needs to fight Lyme. From under his dad’s arm, Parker quietly mentions that he misses playing basketball outside their home and playing with his friends at McNeely elementary, where he hasn’t been for months. “At one point we thought we were losing him,” Shannon said. “But when he has a really good day, he can sometimes last for five days and even had a sleep-over at a friend’s
Public Health Agency of Canada’s fact sheet on Lyme disease:
Ticks get infected when they feed on mice, squirrels, birds and other small animals that can carry the bacterium. Ticks then spread the bacterium to humans. Two types of ticks are responsible: the western blacklegged tick in B.C. and the blacklegged tick, sometimes called the
house recently.” Meanwhile, his elder brother Taylor, once a prominent high school basketball player and army reservist, thought he had some kind of post-viral disease at the end of last year. He was also fatigued, had muscle pain, lost weight and would be bed-ridden for a day after a basketball game. He’s now been off school for the last three months and is studying from home along with Parker. Mindful of the brick wall of denial, the family has not tread the path of Lyme disease testing for Taylor. He has, however, tested positive in B.C. for bartonella — a co-infection of Lyme — and is on antibiotics. “I want to go into the Princess Patricia’s Canadian light infantry unit,” Taylor said. “I want to be a foot soldier. It’s my dream job, but it’s on hold right now.” He will fly with the entire family at the end of the month to California to be tested for Lyme. How two, and perhaps three, formerly healthy members of one family contracted possible cases of Lyme remains a mystery, albeit with a couple of plausible theories. “There are two schools of thought, “ Shannon said. “I showed some signs of the disease when I was 16 and some doctors in the U.S. believe I may have passed on the disease congenitally to my kids, although this is hotly debated. “Or it could be that we were all bitten on the same trip a few years ago and that it lies dormant in the body until being triggered by something.” However Shannon and her boys contracted Lyme, there’s no doubt it’s had a profound effect on their lives and that of their family, which also includes daughter Avery, aged seven. “We dig deep into our faith on an hourly basis to get through,” says Graham. On Friday, read the second part of the Goertzen family’s struggle with Lyme disease.
deer tick, in other parts of Canada. People can’t spread Lyme disease to each other. Although dogs and cats can contract Lyme, there is no evidence they can spread the infection to people. There are established populations of the tick that transmits Lyme in Canada. Though western blacklegged ticks are found across B.C. populations are largest in the Lower Mainland, on Vancouver Island and in the Fraser Valley.