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Dear Friends, Recently I received a note from a patient under our care which included this quote this from Ralph Waldo Emerson: “…To appreciate beauty, to find the best in others; to leave the world a bit better, whether it be by a healthy child, a garden patch or a redeemed social condition; to know even one life has breathed easier because you have lived. This is to have succeeded.” I can’t think of a more apt sentiment as Family Hospice and Palliative Care marks 35 years of caring for the community. As the need for expert end-oflife care continues to grow, and we with it, it’s worth remembering what defines our community. Our community is ageless. Generations tread common ground, be it a grieving child or a 97-year-old man comforted by some sunshine and fresh air. Our community relies on the support of many – staff, volunteers, donors – all partners in caring for patients and families. Through our education and outreach efforts, Family Hospice continues to inform and engage others in learning about hospice and end-of-life issues. Our community’s geographic reach extends well beyond its’ early South Hills roots. Family Hospice today serves patients and families in nine counties in Western Pennsylvania and will soon expand to 23. Candlelight Companion volunteers sit vigil with Family Hospice patients on behalf of loved ones who may be spread across the country and unable to be present at their loved one’s bedside. Simply put, our community is defined by a shared belief – that quality, compassionate care at end of life is necessary to living fully and well. You receive this newsletter because you are part of our community. Whether you have invited us into your home, supported programs and services with your donated time and financial resources, or partnered with us in the care of patients and families, take pride, as I do, in 35 years as a community committed to the kind of success that Emerson celebrates. Gratefully,

Barbara Ivanko President & CEO This newsletter is published two times annually. Permission must be granted for reprinting of articles that appear here. Please direct questions, comments and/or requests to to Lynn Helbling Sirinek at 412-572-8874 or lhsirinek@familyhospicepa.org Go Green! If you would prefer to receive your copy of our newsletter via e-mail, sign up from the home page of our website or contact Lynn Helbling Sirinek as indicated above.

35Years of Service Continued from cover page

who was a nurse with Family Hospice for many years. Carol and Sr. Alma often collaborated in the care of patients. “She taught me to improvise. Being part of the hospice team really gives you confidence in that way,” Carol reflects. Improvisation took many forms over the course of 35 years. As the need for services and resources grew, so did the role of the volunteer. Carol laughs when she talks about selling cheesecakes from the back of a truck in the parking lot at the old Family Hospice offices as a fundraiser. Throughout the years, she has been called upon to decorate, stuff envelopes and tend to critically ill pediatric patients. Carol is not alone in her versatility. She marvels at the many talents volunteers continue to bring to bear in the care of patients and families, including music, reiki and pet therapy. “I believe that diverse people are drawn to hospice because dying is a universal experience. That’s what makes it so special,” says Carol. Family Hospice marks its 35th anniversary on November 12 at the South Hills Country Club, where we will honor Carol Sayers Vockel, our longest-serving volunteer. The “We Are Family” celebration features guests from the 1970s Pittsburgh Pirates family, including Steve Blass, Manny Sanguillen, Kent Tekulve and Greg Brown in a roundtable conversation. ROOT Sports’ Paul Alexander moderates. Contact Christine Jamison at 412-572-8812 for tickets.

Remember Family Hospice 171 on you United Way pledge

Medicare Proposes Reimbursement to Physicians for Advance Care Planning Conversations Pulitzer Prize-winning columnist Ellen Goodman founded The Conversation Project in 2012 as a grass roots campaign with the goal of having every person’s end-of-life wishes expressed and respected. She offered her perspective on what is lacking in healthcare in a recent interview with Healthcare.com: “We need to realize that Americans face the healthcare system with two conflicting fears: one is that they won’t get the care they need and the other is that they’ll get care they don’t want,” said Goodman. In 1983, the Medicare hospice benefit was established to provide reimbursement for specialized end-of-life care. It was an historic measure in increasing access to this expertise for those facing life-limiting illness. It seems Medicare is prepared to advance the cause of improving end-of-life care again. Earlier this year, The Centers for Medicare and Medicaid Services (CMS) proposed a plan to fund unlimited end-of-life care conversations for patients and their caregivers – not just physicians, but nurse practitioners and assistants as well. CMS is expected to release final rules for this new opportunity in November 2015, with launch scheduled for January 2016. Why does this matter? Family Hospice and Palliative Care President and CEO Barbara Ivanko explains, “Reimbursement for these important and complex

discussions supports their value to patients and families. A lack of reimbursement discourages them.” The proposed fee schedule would not just fund one conversation, but as many as necessary to help individuals and their health care providers progress through this sensitive discussion. Ivanko continues, “Recent studies show that people who participate in end-of-life planning are more likely to have their wishes followed, have family members who suffer less stress, have fewer hospitalizations and incur lower costs in the last six months of life than people who have not planned. Honoring patients’ treatment choices is a key predictor of high-quality end-of-life care. It spares the family the emotional burden of making decisions for which they are unprepared, the moral distress of not knowing whether they decided well and the divisiveness of arguing over who knows best what a loved one wants.” Making it easier for patients and their families to have end-of-life conversations is a significant measure in aligning patients’ values and wishes with the treatment they end up receiving. For the most current developments related to this Medicare proposal, visit our website, FamilyHospicePA.org or follow us on Facebook, Facebook.com/FamilyHospicePA and Twitter, @FamilyHospice.

The 28th Annual Family Hospice Golf Benefit raised more than $50,000 this summer. A special thank you to our Gold Sponsor, UPMC, and HoleIn-One Contest Sponsors Bobby Rahal Automotive Group and USA Compression. Proceeds support the provision of hospice care for those without private insurance, Medicare, or Medicaid, as well as bereavement services for grieving adults, children, and teens. Mark your calendars for next year’s event on May 23 where we’ll once again tee off at Valley Brook Country Club!

Beyond Our Doors Family Hospice and Palliative Care is committed to educating those we serve about hospice and end-of-life care, offering programs each year in hospitals and long-term care settings that inform our professional colleagues about access to hospice services and the more technical aspects of our work. In addition, we reach out to civic groups, faith communities, schools and universities to provide information about hospice, palliative care, grief, and the importance of discussing one’s end-of-life wishes with loved ones and medical professionals. Here are three offerings that Family Hospice would be pleased to present to your group of 25 or more people. Presentations are an hour and a half long, including time for questions and discussion. Hospice Myths and Facts Many people believe that hospice means imminent death. Does it really? What exactly is hospice care? When does someone need it, and how is it accessed and paid for? Hospice patients receive care wherever they happen to be — their own home, in a skilled or assisted living facility, in hospitals, or in an inpatient hospice center, such as the two operated by Family Hospice. How can hospice care help people experience not just a good death, but a good life to the very end? The TALK: The Greatest Gift You Can Give to Those You Love Regardless of age, a serious illness or a life-changing accident impacts your quality of life. Do those you love know your wishes should your health decline? Most do not know what their loved one would want should they become unable to make healthcare decisions for themselves. In order to alleviate the guilt and secondguessing that can haunt your loved ones, having that conversation in advance is important. Do you have an advance directive? A health care power of attorney? Join us as a Family Hospice physician and a social worker, along with an elder law attorney or a financial planner, discuss the advantages of planning ahead. The Choices We Make Many doctors struggle to talk honestly and openly with their patients nearing the end of life. Renowned surgeon Dr. Atul Gawande explored this topic in his bestselling book Being Mortal. Join us to view a 50-minute PBS Frontline video featuring Dr. Gawande’s personal journey and the stories of his patients and their families. The film explores the question “What are your priorities if your time is limited?” Being Mortal shines an unprecedented spotlight on how patients, families, and doctors all experience the stages of life. A Family Hospice physician and a social worker will facilitate a discussion at the conclusion of the video. If you are interested in scheduling one of these programs for your group, please contact Lynn Helbling Sirinek, Vice President, Philanthropy at (412) 572-8874

VOLUNTEER FAST FACTS Family Hospice has more than 325 volunteers who last year contributed more than 13,000 hours of time during Fiscal Year 2015. Last year, 1,500 of 3,364 Family Hospice patients had volunteers assigned to them. In total, volunteers made more than 3,600 visits to patients.

9%

This equates to 9% of the total direct patient care hours provided by our paid hospice staff, exceeding Medicare’s requirement that volunteer hours constitute 5% of total patient care hours.

Most volunteer assignments were to provide companionship to patients. Others provide bereavement support, pet therapy, reiki (healing touch), and music. Volunteers also serve as Candlelight Companions, sitting with patients during what is anticipated to be the final 48 hours of life. To learn more about volunteering with Family Hospice, contact Nick Petti, Manager of Volunteers, at 412-572-8806 or via email, npetti@ familyhospicepa.org.

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Family Hospice & Palliative Care Fall 2015 Nwsltr  

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