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Upstate New York/Vermont Chapter Albany Walk Newsletter http://www.lightthenight.org/uny/

Carol Miller and Dona Stone Named Corporate Co-Chairs for the 2014 Light The Night Walk Corporate Walk Teams Being Recruited

Volume 4 Issue 1

April 2014

Inside this Issue: Avery Lyons: Honored Hero

2

Craft Fair

3

LTN T-Shirt Contest

3

Advocacy Corner

4

Are You RELENTLESS?

5

RELENTLESS Wristbands for Sale

5

The Upstate New York/Vermont Chapter of

Participants at the walks carry illuminated

The Leukemia & Lymphoma Society (LLS)

lanterns – white for patients and survivors,

named Carol Miller, Director of Special

red for supporters, and gold in memory of

Events, and Dona Stone, PHR Director of

loved ones lost – to honor and

Human Resources at Rifenburg

commemorate lives touched by blood

Companies, Corporate Walk Co-Chairs of

cancer. In the Capital Region, the walk will

Save the Dates!

5

the 2014 Light The Night Walk.

take place on Saturday, October 11th, 2014

Finding a Cure is Everyone’s Business

6

All You Can Eat Spaghetti Dinner

7

Ms. Miller and Ms. Stone look forward to

Bowling Night

8

working together to make this year’s event

LTN Fundraising Mentor Request

9

at Siena College.

better than ever. “It was very thrilling and memorable last year to look out over a sea of illuminated lanterns carried by friends and families of survivors, as well as survivors themselves stepping out to support LLS in battling Carol Miller and Dona Stone

“LLS is truly a worthy organization and

behalf individuals and families affected by

doing so much to improve the lives of those

blood cancers in the Capital Region.

afflicted,” added Ms. Miller. “Light The Night encompasses all ages and abilities. We

Ms. Miller and Ms. Stone were part of the

look forward to encouraging Corporations in

executive committee last year that

the Capital Region to become Sponsors

increased corporate sponsorships more

and participate in this unique autumn

than $20,000 over the previous year and

evening that truly shines.”

set new levels for fundraising for the

Siena College (515 Loudon Road, Loudonville, NY) Registration, food and festivities begin at 5:00 p.m. sharp. Register your Walk team, join an existing team, or sign up as an individual today by clicking here.

Funds raised through corporate and individual contributions help to find cures

They will work together with the guidance of

and better therapies for leukemia,

corporate chair emeritus Tami Gunsch,

lymphoma, Hodgkins disease and

Sr. VP of Retail Banking at Berkshire Bank.

myeloma, and provide information, education and support for patients and their

For more information about the Walk, fundraising ideas and/or selling paper balloons, please contact Light the Night Campaign Manager, Jennifer Clunie, at:

families. Jennifer.Clunie@lls.org

approximately 200 communities across the United States and Canada.

2014 Light the Night Walk Registration is Now Open! Saturday, October 11, 2014

cancer research and patient services on

LLS holds Light the Night Walks each fall in

Cancer 101: Free Patient Education Program 10 Spring to Life Conference 12

blood cancers,” said Ms. Stone.

This annual event raises critical funds for

Upstate New York Chapter.

Welcome 2014 Corporate Sponsors 5

(Article continues on page 3)

(518) 438-3583 X 2565 Page 1


Albany Walk Newsletter

Avery Lyons

A port was surgically implanted in Avery’s chest to deliver

2014 Light The Night Walk Honored Hero

her treatments and blood transfusions. Each day seemed like a blur with new viruses appearing and new symptoms from the chemotherapy drugs to watch out for. A few weeks later, Avery was finally discharged to go home; she and her family would make frequent trips to Albany Medical Center for treatments.

How did they become involved with Light the Night Walk? Erika states, “Avery had so many people praying for her and cheering her on each and every day. Then one day there was an advertisement for the Light the Night Walk on the computer. It was then that Avery’s Army was invented! We were signed up to walk at Light the Night on September 28, 2013. It was going to be a night to celebrate Avery and her courageous fight the past 9 months. A night to celebrate Avery Lyons

how far Avery had come. What was envisioned to be a

Avery’s journey began on January 29, 2013 - just 11 days

gathering of about 50 people (mostly family and a few close

shy of her 1st birthday. It started with weeks of not sleeping,

friends) tuned into a true ARMY.

followed by lack of appetite, vomiting, lethargy, labored breathing, rapid heartbeat, blood in her urine, double ear infections, and fever that had risen to 105+ Fahrenheit.

When we gathered on the night of the Walk, Avery and her army of 200 people dressed in Avery’s Army matching shirts invaded Siena College.

Upon a visit to Avery’s pediatrician, her mother Erika was informed that Avery was far too ill for an ear infection or a

We were there to show Cancer that we are bigger, stronger,

urinary tract infection. They were rushed to Albany Medical

and would fight harder to get rid of it forever! And, that’s just

Center, where staff would be waiting.

the beginning of Avery’s Army.

Avery was whisked away to a room immediately and doctors

We will be back again year after year to show Cancer that

and nurses appeared every few minutes. Erika told her

we won’t give up, that we will fight back, and we will win!”

daughter’s story several times to each new doctor and nurse who appeared. Blood work was completed, x-rays, and medications given all in a short period of time. “Then,” Erika recalls, “our world was turned upside down in just a blink of an eye. Several doctors entered the room and circled us. They informed us that Avery was being admitted to the hematology oncology unit, where she would receive a much needed blood transfusion and they wanted permission to complete a bone marrow aspiration. First thing the following morning, January 29, 2013, Avery was diagnosed with Leukemia.” Avery spent the next month in the hospital. She was there for her 1st birthday, but was far too sick to celebrate or even

Avery’s Army

smile or giggle that day.

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Albany Walk Newsletter

Corporate Co-Chairs for the 2014

LTN T-Shirt Contest Announcement

Light The Night Walk Are you known for your creativity or often described as (Continued from page 1)

having an eye for detail?

“Light The Night Walk gives hope to patients and their

The 2014 Light The Night T-Shirt design competition is

families and lets them know they are not alone in their battle

underway! Our goal is to extend awareness about the Light

against cancer,” said Upstate New York/Vermont Chapter Executive Director, Maureen O’Brien Thornton.

The Night Walk campaign beyond existing social communities, and allow the Light The Night Walk community to be a part of the campaign in a meaningful and public way.

To find out more about forming a team or participating in a Light The Night Walk, contact the Upstate New York/ Vermont chapter at (518) 438-3583 or visit www.lightthenight.org/uny

Contest begins Monday, March 24th. Designs must be submitted by midnight ET, April 18, 2014 on https://www.facebook.com/lightthenightlls All entries will be judged by a panel of LLS staff, selecting

Craft Fair to Benefit the Leukemia & Lymphoma Society Light the Night Walk

two finalists. Voting for two finalists begins on April 21, 2014. Finalists designs will be posted on LTN Facebook page, utilize likes as a voting mechanism. Voting closes at 11:59 p.m. ET on May 1, 2014. The winner will be announced on May 2, 2014 on http://www.facebook.com/lightthenightlls The winner and image of the design will also be featured in our e-newsletter and national blog post. Designs will be judged on the following criteria: • Concept/originality • Captures spirit of the Light The Night Walk • Striking and memorable design

Sunday, April 27, 2014 9:00 a.m. – 3:00 p.m. Mechanicville Elks Club

• Visibility - eye-catching and visible from a reasonable distance • Completeness of design - must be ready for print • Feasibility/must be easy to reproduce

(Park Avenue, Mechanicville) LLS staff members are not eligible to enter.

VISIT OUR BOOTH! Scarves, Aprons, Jewelry, Flip Flops, Cards, Candy and more!

The contest is open to the general public. Spread the word throughout your community, and be sure to share the attached Rules and Guidelines PDF. 2014LTNT-ShirtRulesandGuidelines31714.pdf Please contact Kristin Hoose at Kristin.Hoose@lls.org with any questions. Thank you and good luck!

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Albany Walk Newsletter Right now, there is legislation in Congress that could make a life-changing difference for cancer patients and

Take Action Now!

their families, including: • Legislation which would help fund research and advance cures. • The Part D Beneficiary Appeals Fairness Act (S. 1365/ H.R. 2827) will ensure that seniors with cancer can access the medications they need without being held back by insurance companies' restrictive "specialty tiers" drug designations. • The Patients' Access to Treatments Act would end harmful "specialty tiers" drug pricing that makes it harder for patients to afford the treatments they need – ending this practice would give patients the treatments they need to survive. Getting these bills passed would change countless lives In the next hour, 17 people will be newly diagnosed with blood cancer. All of them will face an uphill battle, but the road will be far steeper for those who won't have access to treatment...

for the better, won't lead to significant cost increases for insurance companies, employers, or the government, and will give cancer patients a better chance at overcoming the odds. But it won't happen without you!

With just a few clicks, you can help them survive.

Stand up for cures and access: send your letter to Tell your members of Congress to prioritize finding a cure for cancer and ensuring that cancer patients can access the

Congress now, and we'll personally deliver your signature on May 7.

medications they need to stay alive. Already this month, we helped pass the Gabriella Miller Kids

Your action today may consist of just a few clicks, but it's

First Research Act which will designate $126 million for pedi-

a crucial part of building a movement that can transform

atric disease research – a huge victory for children facing

the future of cancer treatment – and the lives of cancer

cancer. And that's only the beginning.

patients everywhere.

We're aiming to collect 5,000 petition signatures by May 7,

Thanks in advance for your support.

when we will deliver them by hand during our visits with legislators. Will your name be on the list?

Sincerely,

Sign your letter today: tell Congress to support cures and access to treatment for blood cancer patients. Over the last 60 years, we've seen historic advances in cancer treatments and the search for a cure. We're on the

Scott Riccio

threshold of amazing scientific breakthroughs that require

Office of Public Policy

our continued support, even while we're pushing to make

Leukemia & Lymphoma Society

sure that patients can access medication that will help them treat and beat their cancer. Your support – and the influence you have with your elected officials – is crucial to keeping this work going.

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Albany Walk Newsletter

Are you RELENTLESS?

“RELENTLESS” Wristbands: All it Takes is $1 and a Dream! Team Just Believe is selling red rubber RELENTLESS wristbands with the LLS blood drop logo as a visible way to increase awareness of blood cancers and support their Light the Night Walk team. On April 23rd, team members will be selling in the campus center (SUNY Albany Uptown Campus). Students are also being encouraged to sell on their own individual time as

Register to Walk by May 1st and you’ll be entered for a chance to WIN. Begin team building and fundraising for Light the Night this Spring and be entered into a special drawing to win a warm LLS/Light the Night custom hoodie sweatshirt (unisex size

well. For selling 10 bracelets, students will be awarded one hour of community service time. If you are interested in purchasing a RELENTLESS wristband, contact Team Captain Brenda Talbot at brenda.talbot21@gmail.com or 518-728-8813.

Large). All Albany Walk participants who register before May 1st have a chance to win. Don’t miss your chance – register today by clicking here.

Welcome to our 2014 Corporate Sponsors! Please join us in thanking these companies for their outstanding commitment to blood cancer patients in our community.

Save the Dates! Shining Star Sponsor Arthur J. Gallagher & Co.

• May 19: New York State Mission Day. Join the Upstate NY/ VT Chapter and the four other NYS chapters in Albany to

Miracle Maker Sponsor

meet with legislators and advocate for legislation that will

Berkshire Bank

help cancer patients access the care they need. You can check out our blog for more information on bills. RSVP to

Bright Lights Sponsors Aflac New York

EMI Guide Rail, LLC

Hilton Garden Inn –Troy

RJ Valente

• Thursday, June 12th: Corporate Recruitment Event from 6:00-8:00 p.m. at Hilton Garden Inn, Troy

Team Tent Sponsor Clover Leaf Nurseries

• Friday, July 25th: Team Captain Kick-Off Celebration from 12:00-1:30 p.m. at Saratoga Raceway and Casino, Saratoga

Illuminations Sponsor

Springs

Freihofer’s

• Saturday, October 11th: 2014 Light the Night Walk

Route Sponsor Afsco Fence Supply Co Inc

Michael required.

Miller-Valentine Group

5:00 p.m. at Siena College, Loudonville

Quality Printing Page 5


Albany Walk Newsletter

Finding a Cure is Everyone’s Business – Form a Corporate Walk Team Want to get your workplace or company involved?

Want to become a Light the Night MEGA TEAM?

As a Corporate Walk Team, you can make a difference to

Corporate and Friends & Family Teams who raise $5,000 or

the millions of people whose lives are touched by blood

more receive the following benefits:

cancer. The funds raised by your company or organization will be invested in critical cancer research, patient services

• Tent and table provided in top fundraising area at Walk

and other activities to help enhance, prolong and save the

• Podium recognition during event presentation

lives of people with leukemia, lymphoma and myeloma.

• Express Registration: avoid the lines! • Recognition on big screen night-of

Team Captain responsibilities include:

• Recognition in chapter LTN publications and website • Catered food and beverages in tent

• Managing the process internally, from setting goals to

• Invitation to and recognition at post-Walk LLS Awards Party

recruiting co-captains and enlisting senior staff at your

• Onsite personal assistant assigned to team night of Walk

organization to offer their strong endorsement of Light The

• Copy of team photo for all team walkers

Night • Recruiting co-workers in your organization and their family and friends to join the Walk and raise funds • Building and maintaining momentum, team enthusiasm and spirit up to and during the event • Forwarding correspondence from The Leukemia &

We’re Here to Help! For assistance on forming a Walk team, creating a fundraising goal and plan, establishing a team timeline, planning internal team kick-off, or general questions, please contact Jennifer Clunie, Light the Night Campaign Manager at:

Lymphoma Society staff to your team members • Collecting money and ensuring it gets to The Leukemia & Lymphoma Society staff

(518) 438-3583 X 2565 jennifer.clunie@lls.org

• Celebrating your group’s success at the Light The Night Walk, and thanking the appropriate people after the event

Light the Night

Shop at Healthy Living Market

Team Fundraisers

in May and Support LLS

Come out and support your fellow Light the Night Walk team

Healthy Living Market is once again partnering with LLS to

with the upcoming fundraisers listed in this newsletter.

sell paper balloons during the month of May to support the Light the Night Walk in both their South Burlington, VT and

Have an event of your own to share? Please email

Saratoga Springs, NY locations. Big, big thanks to Healthy

Jennifer.Clunie@lls.org with the information, and we will help

Living Market for helping us year after year!

get the word out via our Blog, Facebook page and upcoming newsletters.

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Albany Walk Newsletter

Join our Event on Wednesday, April 16! All You Can Eat Spaghetti Dinner

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Albany Walk Newsletter

Join our Event on Saturday, May 10! Bowling Night

Saturday, May 10, 2014

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Albany Walk Newsletter

Please Print This Page!

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Albany Walk Newsletter

Join our Free Patient Education Program on Thursday, April 17! Cancer 101: Everything You Want To Know, But Are Afraid To Ask

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Albany Walk Newsletter

Join our Event on Sunday, April 27 Raising Dough: Social Responsibility

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Albany Walk Newsletter

Join our Free Patient Education Program on Saturday, May 3 Spring to Life Conference

Have You Visited our New Light the Night BLOG? The Upstate New York/Vermont Chapter of LLS has launched our own Blog to share stories, information, fundraising ideas and news related to our Light the Night Walks in Albany and Burlington. Please click here to read our blog posts and to subscribe.

Click on the icon to like the Upstate NY/Vermont Chapter on Facebook!

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Albany Walk Newsletter

Mother’s Day is fast approaching – the Alex & Ani Lighthouse Bangle makes a great gift! Join the TEAM that’s saving lives, One mile at a time! We'll help you to meet new friends, get into better shape, and make your mark in the fight against blood cancers, all while training for and completing a full or half marathon, century ride or triathlon! Whether you’re new to endurance events, or you’re a pro, we’d love to have you on the TEAM that saves lives, one mile at a time! Registration is open for the following events, so please check www.teamintraining.org/uny for more information and updates!

Exciting news: September – December 2013 results of Alex

Lake George Triathlon

and Ani Lighthouse Bangle sale have just been released.

Rock ’n’ Roll Philadelphia ½ Marathon Marine Corps Marathon

Nationally, Alex and Ani has raised an incredible $89,671 from the LLS bangle, with $2,280.32 in sales credited toward the

Albany Dunkin’ Run 5k/10k

Upstate New York/Vermont chapter.

Help us to turn cancer patients into cancer survivors by joining

Remember: 20% of profits from the “Charity by Design”

the TEAM and making your personal achievement meaningful to so many others!

Lighthouse Bangle will continue to be directed toward the Light the Night Walk until September 2014.

All abilities are welcome! To learn more about how you can participate, contact

Mother’s Day is fast approaching and the Lighthouse Bangle makes a great gift - get it while you can!

Campaign Manager, Charly Mallet for details at: Shop locally at either of two stores in the Upstate New York/ charly.mallet@lls.org

Vermont Chapter area:

(518) 438-3583 Burlington, Vermont: Register online at www.teamintraining.org/uny

207 College Street |Burlington, VT 05401 | (802) 497-3609 Saratoga Springs, NY:

Invitation for Articles, Short Stories We invite you to contribute to our newsletter by submitting educational articles, short inspirational stories, poems and quotations. Articles and stories should not exceed 500 words.

327 Broadway | Saratoga Springs, NY 12866 | (518) 871-1638 Or order directly online: http://www.alexandani.com/collections/charity-by-design/ lighthouse-charm-bangle.html (Designed, produced and published by

Please e-mail all submissions in Word format to ksaroop@priyacomm.com Remember to include your name, town, e-mail address and any sources quoted.

PRiyaCOMM for the Upstate New York / Vermont Chapter of LLS) T: 845.849.2205 Public Relations & Communications

F: 845.240.1199

ksaroop@priyacomm.com Page 13


Lls ltn newsletter albany vol 4 issue 1 final