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you might not know about
By Amy Higgs Photo Aubrey Hillis
Hosparus Health’s Executive Director of Palliative Care, Denise Gloede RN, MSN, CHPN, talks about advanced illness care and gives us the inside scoop on the top questions being asked about this new program Hosparus Health provides.
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What does “advanced illness care” mean?
Also called palliative care, advanced illness care is supportive care for people with serious illness that’s provided wherever a patient calls home. It focuses on the whole person, optimizing quality of life and minimizing suffering by anticipating, treating, and even preventing disease symptoms. Our specially trained team of professionals works together with a patient’s doctors and healthcare providers to provide an extra layer of support. Care also extends to the patient’s family because we know family members are actively involved in their loved ones’ care and need support, too.
What can I expect to get out of advanced illness care?
In addition to pain and symptom management, our Care Team provides care coordination and will work with you to develop an individualized care plan that aligns with your goals and values. We can also assist with advance care planning, and we offer counseling and spiritual support to both you and your family.
Is advanced illness care the same as hospice care?
Not exactly. Hospice care serves patients with a life expectancy of six months or less. Advanced illness care is for patients at any stage of serious illness who may not be eligible for hospice, either because of treatment preferences or because their illness is not considered terminal.
What are some outcomes I might expect from advanced illness care?
You may experience relief from symptoms like pain, shortness of breath, fatigue, constipation, nausea, loss of appetite, and difficulty sleeping. You can also expect close communication and more control over your care.
How do I know if advanced illness care is right for me?
Advanced illness care might benefit you if you’re dealing with one or more serious illnesses. You can have this type of care at the same time as treatment meant to cure you. People living with a diagnosis of lung disease, congestive heart failure, cancer, dementia, diabetes, and neurologic conditions such as stroke, MS or ALS, among many other conditions, can all benefit from this type of supportive care.
“Your Hosparus Health Care Team will listen to you, provide information about your illness, and identify options for improving your quality of life. They help make sure your care is coordinated and aligned with your goals and preferences — ultimately allowing you more control over your care.”
Front Row (L-R): Marcy Spencer, Lenesha Sowell, Beatrice Aistrop, Denise Gloede, Kathy Ising. Back Row (L-R): Chris Hurley, Natalie Banks, Holly Bailey, Darlene Oxendine, Lori Earnshaw
Hosparus Health is one of the largest non-profit providers of hospice care in the nation.
The organization has been the leader in care for the chronically ill for 40 years, providing compassionate hospice and palliative care to 7,500 patients and families in Kentucky and Indiana each year. At the forefront of healthcare innovation, Hosparus Health believes the time is now to move toward a model of person-centered care navigation that helps people make the most of not just their final days, but their final weeks, months, and even years. That’s why the nonprofit has responded to today’s ever-changing healthcare landscape by expanding its focus beyond traditional hospice to include comprehensive advanced illness care and management. Many people don’t understand that Hosparus Health’s care is not about giving up hope. In fact, it’s designed to help anyone dealing with serious illness shine as long and as bright as they can.
Hosparus Health Helps Patients Shine as Long and as Bright as They Can
800-264-0521 | hosparushealth.org
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By Marie Bradby
With no sign of superhero strength, these three women explain why they do what they do without wearing a real cape. And, maybe you can join the heroic efforts.
Illustration Silvia Cabib Makeup Gretchen Krammes, Marie Fulkersonn Makeup Makeup (cover) Denise Cardwell, Image Works Studio
bridge community treasures able to
“The betterment of our community is not just for our lifetime, we have to make sure there is continuity for the community for the rest of time,” says Susie Stewart about why she serves and gives to nonprofits in her community. “Setting up an endowed (permanent) fund through the Community Foundation ensures that continuity,” says Susie, 60, a pilates teacher. In 2013, Susie and her husband set up the Michael and Susie Stewart Enrichment Fund through the Community Foundation of Southern Indiana (CFSI). She is past chairperson of the CFSI and continues to support the foundation’s unrestricted fund as well as other non-profits.
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When she first joined the Community Foundation board in 2011, she wasn’t aware of how much the organization benefited the community. “I worked on showing the community all of the great things that were being made available because of other people in the community contributing to the fund,” she says. “My passion is the Community Foundation’s unrestricted fund that keeps growing,” Susie says. “That’s where all the important work is happening. That fund is going to be able to do more than my one fund is able to do.
“It’s not about how much you can give, it’s about understanding the importance of giving back to the community and giving what you can. It doesn’t matter if that is your talent, time, or your treasures — we need all three of those to truly make things happen, to better the community. “You can’t have people just donating money because there’d be no one to do the work. You can’t have only volunteers, because you have to have money. And if you don’t have people who are vested in a like-minded cause — the people with the talent and passion — the momentum to push things is not there.”
Helping Those with Disabilities
he greatest way that people can leave a legacy is to not be passive, but to be active champions for these causes.” says Chris Stevenson, president and CEO of Cedar Lake.
LEAVE A LEGACY
Cedar Lake is an organization that provides both intensive and community based support to those who have been diagnosed with intellectual and developmental disabilities before the age of 21 and who are now adults. About 89 percent of Cedar Lake’s funding comes through Medicaid and 11 percent through fundraising. Cedar Lake is reaching out and asking the community for help. “We have been fortunate to build our endowment through the generosities of many people who have named Cedar Lake in their will.” Stevenson says. For those interested in leaving a legacy, they can contact Mr. Stevenson directly to make special arrangements. “Cedar Lake is a Christian organization that is reflecting values through facilitating meaningful interactions between those with and without disabilities,” says Stevenson. He also asks you to contact their legislators and let them know that people with disabilities, through no fault of their own, need Cedar Lake’s services.
9505 Williamsburg Plaza Ste. 200 | Louisville
cedarlake.org | 502.495.4946
Helping Louisville Be Charitable
A LEAVE A LEGACY
common misconception about leaving a legacy through charitable giving is that you have to be wealthy in order to do so. However, the Community Foundation of Louisville has a broad range of funds, from permanent endowments with a $25,000 minimum to funds with no minimum requirement to make lifetime giving easier, says Heather Cash, Director of Gift Planning. Whether donors make donations throughout the year or only in their estate planning, “we help donors do more than they ever thought possible with their charitable giving,” she says. In 2016, with close to 1,500 individual charitable funds in its care, the Community Foundation distributed $52 million in grants to nonprofits, churches and schools, most of which stayed in Kentuckiana. Cash emphasized that “the Community Foundation carries out the charitable intent of our donors with excellence, integrity, and responsibility. One reason these values are so important is because many of our donors are no longer with us, and we are carrying out their charitable legacy according to the directives they gave us during their life,” she says. Cash summed it up by saying, “With our local knowledge and donors’ charitable intent, together we create a philanthropic community where people and place thrive.”
325 W Main Street, Suite 1110 | Louisville
cflouisville.org | 502.585.4649 – Promotion –
Heather Cash JD, director of gift planning at The Community Foundation of Louisville. PERFECT ENDING / 2017
ON THE COVER:
kick down barriers with a conversation On the last Sunday in September, Paula Schoenhoff and many of her family members were breaking bread in Iroquois Park with more than 1,000 Louisvillians — immigrants, African-Americans, Hispanics, whites, Asians, etc., at a giant potluck to connect the community called The Big Table.
“We encouraged people to sit with people they didn’t know,” says Paula, 54, who wants to make the world a better place for everyone through experiential education. So she helped organize and fund this first-time event.
push the boundaries through education Dr. Karen Cost had just given a lecture to dermatology students at the University of Louisville when the chief of the department — Dr. Maurice Fliegelman — came up to her and told her that she should get involved in the community. “We need to get you on the board of Metro United Way (MUW),” she remembers him saying. It was 1978 and Karen had just arrived in Louisville from Ohio to pursue a post-doctoral fellowship in microbiology and immunology at UofL. Thirty-nine years later, Karen is still involved as a board member of the MUW, having served six terms and serves as past president.
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“I believe in what Metro United Way is doing,” says Karen, who has been a volunteer and donor all these years. “They have a better idea of where our donor dollars should go.” Karen has served on other boards, including The Center for Women and Families and Bridge Haven. She was recently elected chairperson of the Metro Louisville Board of Health. “That’s another way that volunteers can look out for the health of the community — to advocate and educate the community. My entire profession has been in health care. “There’s more to being healthy than just having your
check-up with a physician. We all need a healthy environment, to eat well, exercise, and have access to good health care. These social determinants of health are extremely important to your overall health outcome. “If you are an individual fortunate enough to be relatively healthy and self sufficient, you are only as good as the least well-off person in your community. There are social and economic determinants that make it difficult for some people to be successful. The community needs to address this. “We all have to work and be in this life together.”
“It was so wonderful,” Paula says about the event, whose sponsors included the Global Human Project and We Are Louisville, as well as the Paula Schoenhoff Family Foundation, which she set up through the Community Foundation of Louisville in 2016. “America is so divided right now. How can we talk to each other again? So we created a safe place for people to talk and reconnect with each other.” As vice president of fixed income capital markets for Raymond James and Associates, Paula handles the investment portfolios of nonprofits. “The better I do for my clients, the more money they have to give to causes,” she says. “But I don’t just give money, I give time. It’s not just, ‘Here’s a check.’ I put in the blood, sweat, and tears. That’s how you change the world. Each of us has the responsibility to do what we can for the community and humanity.”
Give for Good
elebrating 100 years, Metro United Way still connects the people and resources needed to ensure everyone flourishes in the seven Kentuckiana counties it serves.
LEAVE A LEGACY
Metro United Way’s focus has always been on improving lives. Their support extends to ensure every individual, child and family achieves their full potential through education, financial stability and health. Their community investments this year support 99 partner agencies, collectively managing more than 150 programs and providing valuable services through a network that touches 1 in 3. “Whether it’s a lack of affordable housing, an opioid crisis, or the inability to provide food or shelter, we make sure we have a whole network of organizations working to solve those problems, and then move on to the next problems,” says Metro United Way President Theresa Reno-Weber. You can invest in the long-term future of our community by participating in Metro United Way’s planned giving program. Planned giving is a gesture that comes from the heart, allowing people to experience the joy of giving today and planning for our community’s future through Metro United Way.
334 E Broadway Louisville
metrounitedway.org 502.583.2821 – Promotion –
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Published on Dec 1, 2017
Published on Dec 1, 2017
A guide to big decisions, where to spend your money, leaving your legacy, and much more information you need!