Winter Newsletter 2024 - The Living Bank

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Our Mission

Is to eliminate the shortage of organs for lifesaving transplants by being a trusted education resource for living organ donation and the leading provider of advocacy services for living donors.

Our Vision

Is for living organ donation to be widely known, understood, and available to those needing a lifesaving transplant, and for living donors to receive the independent advocacy and support they need before, during, and after transplantation.

Dear Friends,

Imagine the impact of your generosity– a life saved, a family reunited, and a future made possible.

I hope this letter finds you well and thriving in good health. I’m writing to you with a heartfelt purpose—to share an opportunity that allows you to be part of a mission that saves lives every day.

At The Living Bank, we aspire to eliminate the critical shortage of organs needed for transplant. The reality is stark— each year only 40% of those on the national waiting list receive a lifesaving organ. Sadly, many die waiting. These deaths can be prevented if more people know that living organ donation is an option. Public awareness is vital to reversing this trend and core to our vision.

Imagine the impact of your generosity— a life saved, a family reunited, and a future made possible.

Your involvement is not just a donation, but an investment in a future where the shortage of organs is a challenge of the past. Together, we can transform lives and ensure that no one has to die waiting for a transplant.

With gratitude and thanksgiving,

Stats

The need for organs is vastly greater than the number available for transplantation.

National Transplant Waiting List

104,709 people waiting for a lifesaving organ transplant.*

97,363 are waiting for a kidney

95%

9,427 are waiting for a liver

of those on the waiting list could be saved through living organ donation.

17 People Die every day waiting for a transplant.

But There is HOPE!

A living person can donate a kidney or liver lobe today and save the life of a loved one, a friend, or a complete stranger.

*Based on Organ Procurement and Transplantation Network (OPTN) Data - November 2024

Programs

The Living Bank advances its mission with the following programs and services:

Public Education

Living Organ Donation Awareness

Our community awareness program provides education on living organ donation and empowers communities to make informed health decisions. The program is provided to inform, inspire, and invoke our communities to start the living donation conversation. Additionally, we support our local and national communities through multiple communication channels, including online, print, social media, and in‑person presentations in community and corporate venues throughout the region.

Professional Education

Independent Living Donor Advocate Network TM (ILDAN TM )

The Independent Living Donor Advocate Network™ (ILDAN™) is an online community of social workers, nurses, professional counselors, clergy, and other health professionals who serve in live donor transplant programs. The Living Bank produces a live webinar each quarter and offers previously recorded presentations for on demand viewing. Attendees may earn one credit of continuing education for each ILDAN™ course completed. We provide this important resource at no cost to health professionals.

Professional Services

Independent Living Donor Advocacy

The Living Bank’s licensed clinical transplant social workers serve as Independent Living Donor Advocates (ILDAs) to live donor transplant programs in the Texas Medical Center and throughout the Nation. ILDAs serve to protect and promote the best interests of living organ donors, ensuring their decision to donate is informed and free from coercion.

The Living Donation Storytelling Project

Hear real-life stories…and share your own!

At the heart of every transplant story lies a narrative of hope, courage, and human connection. The Living Donation Storytelling Project seeks to bring these stories to light, creating a meaningful dialogue around the life-changing impact of living kidney donation. This innovative digital library offers a platform for individuals from all walks of life to share their personal experiences with the world.

The Power of Stories

The Living Donation Storytelling Project exemplifies the belief that storytelling is a powerful tool for change. This project not only humanizes the complex world of organ donation but also empowers potential donors and recipients to make informed decisions.

Launched in the summer of 2018, this project uses innovative storytelling technology to allow participants to record their journeys anywhere, anytime, using a smartphone, tablet, or laptop. An email invitation provides access to record a video story, guided by open ended prompts. These prompts ensure each story is educational, impactful, and seamlessly stitched into a cohesive narrative.

The library now houses a diverse range of stories from individuals across various backgrounds,

highlighting the profound and personal nature of living donation. By sharing these candid experiences, storytellers not only raise awareness but also emphasize the urgent need for living donors to address the kidney donor shortage.

Support Living Organ Donation

By engaging with the stories shared in the digital library, you can help us spread the word about the importance of living organ donation. Together, we can work towards reducing the organ donor shortage and increasing the number of successful transplants.

To learn more about the Living Donation Storytelling Project or to share your story, visit the website by scanning the QR Code. Join us in amplifying voices and inspiring change within the transplant community.

The Living Bank is partnering with Dr. Amy Waterman on The Living Donation Storytelling Project. The project is an educational resource developed by Dr. Waterman and the Patient Engagement Research Lab.

Leading the Charge

Dr. Amy D. Waterman is a national transplant innovator and esteemed leader in transplant medicine. She is the Director of Patient Engagement, Diversity, and Education, representing both J.C. Walter Transplant Center at Houston Methodist Hospital and the Houston Methodist Research Institute. She has authored over 100 research articles and developed numerous educational programs. These initiatives focus on expanding patient access to transplants, reducing disparities, and promoting informed decision making.

Her dedication is driven by three core beliefs:

// Kidney patients deserve informed choices about their treatment options.

// Potential donors must understand the donation process.

// Collective efforts between patients, families, and professionals can mitigate the kidney donor shortage.

Dr. Waterman’s work at the Patient Engagement Research Lab at Houston Methodist Hospital continues to explore barriers to kidney transplantation and develop interventions to overcome them

Sharing candid experiences, storytellers raise awareness and emphasize the urgent need for living donors. Storytelling is a powerful tool for change.

The Living Bank’s 55th Anniversary Gala Celebrate Life 2024

On October 11TH we celebrated living organ donors and the lives saved by their extraordinary gift. Dr. Amy D. Waterman was the recipient of the Glen W. Karsten Memorial Award in recognition of her exceptional innovations and contributions to living donor education.

Partnership Highlight

The Health Museum + The Living Bank

The Living Donor Panel

The Living Bank moderated a panel that included living kidney donors, Monique Wisdom and Angela Hawkins; living kidney recipient Annette Kaiser; Independent Living Donor Advocate, Sharon Coplon, LMSW; Health Educator and Researcher, Dr. Amy Waterman; and retired transplant surgeon, Dr. Pat Wood

Did you know that a person can donate a kidney or a liver lobe while they are alive!

The Kidney Cart

We are excited to be sponsoring the Museum’s Science Discovery Kidney Cart. Visitors can spend five minutes learning about the vital functions of their kidneys and what happens if their kidneys stop working. We’ve created fun, educational giveaways that visitors can take and share with their family and friends.

Global Teen Medical Summit

The Living Bank hosted a lunch and learn at this year’s summit.

The Global Teen Medical Summit (GTMS) is a week-long summer program to explore modern-day health and bioscience challenges with experts from the Texas Medical Center. Partnering with some of the brightest minds in medicine today, this experience provides access to thought leaders involved in cuttingedge medical research, clinical practice, policy, and entrepreneurship.

YOU Have the Power to Spread the Word

Tell Your Story

Professional Education

Independent Living Donor Advocate Network™ (ILDAN™)

SWAYTHA GANESH, MD

Medical Director of the UPMC

Living Donor Program

Benefits of Living Donor Liver Transplantation

TYLER BALDES, LMSW

Independent Living Donor Advocate

The Living Bank

Donor Ambivalence About the Recipient

Professional Services

ILDA Services Available Nationwide

THE LIVING BANK’S UNIQUE MODEL ENSURES

INDEPENDENT LIVING DONOR ADVOCACY FOR YOUR PATIENTS.

HIGHLY TRAINED PROFESSIONALS

VIRTUAL TELEHEALTH

TRANSLATION SERVICE

Realizing our Purpose

Serving

13 Transplant Centers

Independent Living Donor Advocate (ILDA) Services

California + Florida + Michigan

Texas + Washington + Wisconsin Developed Public Education

25,000

Offered

38 On Demand Webinars

4

1,500 Inquiries via email + telephone about living + deceased whole body donation Produced

Live Webinars

Constituents Nationwide In Person + Online + Print + Newsletter Responded to over

Provided

3,300

Continuing Education for Transplant Professionals

Independent Living Donor Advocate Evaluations for Living Kidney Donors + Living Liver Donors In Person + Telehealth

Registered over

Continuing Education for Transplant Professionals Awarded over

1,200 transplant professionals for continuing education. Live+On Demand Webinars

550 credit hours of continuing education Social Workers + Nurses + Other Healthcare Professionals at no cost to our attendees

The Beans are The Living Bank’s cast of whimsical, organ-inspired characters that seek to spread living donation awareness via social media. Follow us on Instagram for Bean comics and educational content!

How

Your

Kidneys Work

Each kidney contains up to a million functioning units called nephrons. A nephron consists of a filtering unit of tiny blood vessels called a glomerulus attached to a tubule.

When blood enters the glomerulus, it is filtered and the remaining fluid then passes along the tubule. In the tubule, chemicals and water are either added to or removed from this filtered fluid according to the body's needs, the final product being the urine we excrete.

Bean, I think we’re kind of a big deal. We totally are!!

I am Count Beanula! I crave to clean...your blood! That’s quite a list, Liver! What’s on it? It’s my daily task list! I like to stay nice and organ-ized!

Kidney (left)
Kidney (Right) Liver
This is how we work on the inside, Bean! Nephrons are teeny tiny!
Teeny tiny, but also doin’ things that are super mighty!

Shop

The perfect gift this holiday season.

The Living Bank + Vineyard Vines created these one of a kind custom silk ties and key fob.

We yo support for living donation and shop with us online!

Urine Amazing Bean Tie $75.00
Lone Star Bean Key Fob (back)
I’m a Liver and a Fighter Tie $75.00
Lone Star Bean Key Fob (front) $20.00

Erin Aafedt

Jacquelyn Acres

Marcia Allen

Arturo Almaraz

Dr. Yasser Alsalmay

Joan R. Ames

Donna M. Anderson

Nancy Anderson

Sam and Cathy Atkins

John Ballard

Timothy B. Baloian

Anne Marie Bartholomay

Rita Baughman

Karen and Charles Baughn

Baylor St. Luke’s Medical Center

Linda S. Becker

Mary Bell

Ruth Bernhardt

Pat and John Berry

James Bertrand

Stephanie Bice

Mark A. Biscone

Mark J. Biscone, Ph.D.

Robert A. Bladorn

Mrs. Rita N. Blumenfeld

Diane Boisvert

Karen Borek

Debra and Glenn Bradley

Bonita Brennan

Kevin Brown

Stuart B. Brown

Kristine Browning, RN

Judy Burdette

Beverly Burmeier

Laura Burt

Gail Butler

Sam Bybee

Nancy and Steve Bynon

Thomas B. Campbell

Ms. Michelle Carbone

Carolyn M. Carollo

Vincent Cerisano

David and Janice Champion

Thank you TO OUR GENEROUS DONORS

Charities Aid Foundation America

Courtney Chavez

Anne Clare

Mrs. Guy R. Clabourn, Jr.

Kathleen Conlon

Roger Coutant

Mark and Cathy Curran

Ms. Ann Davis

Helma DeFronzo

Salil V. Deshpande, MD

Ray Domino

Nancy Dop

Ms. Angie Dugick EEPB

Ramsay M. Elder

Carolyn A. Ernst

Marguerite Lesley Fant

Karen Farrell

Martin J. Feeney, Jr.

Jule Fey

Linda Field

Dr. Harold and Mrs. Sandra Fields

Mr. Raymond K. Fink

Sherrie Finn

David L. Finney

Danny Foceri

Frederick Forthuber

Delaina Foster

Norman W. Fraga

Martha Friedman

George and Carole Fuller

Joe Garson

Margaret and John Gibbens

Kaye and Ed Gill

Veronica M. Gillespie

Laura Godfrey

James and Linda Graham

Glenn McConkey

Sue Gray

David M. Gregory, Esq.

Alfred O. and

Janet L. Grimminger

Edward Grodsky

James M. Gwynn

Anne Hall

Jesse Lipson

Wesley Hemmings

Christine F. Henderson

Paula Hern and Tom Barbour

Anne Hershbell

Frances Hill

Joyce Hirano

Dale F. Hoagland

Sara Hogan

Beryl Hogshead

Jim Hooks

Steve Houck

Houston Methodist Hospital

Mr. Thomas E. Houston and Mr. Wayne Wilson

Steven K. and Judy M. Howell

Paul and Cheri Inglis

Les and Lyn Jacobs

John P. McGovern Museum of Health and Medical Science

C.J. Johnson

Robert Johnson

Carol Jones Pufpaff

Kent Kantz

Michael and Phylis Karas

Dietmar and Pat Karle

Dorothy Kaufmann

The Kayser Foundation

Paul Kirscht

Steven Koehler

Paul Kouba

Elizabeth M. Koup

Ken Kramlich

Stanley Krauhs

Jacqueline Lang

Mr. and Mrs. Ivar Larsen

Nancy LeBoeuf

Micheal B. Lee

Kristine W. Levenhagen

Mr. Timothy S. Libassi

LifeGift

Catherine Lightfoot

Limb Design, LLC

George S. Littell

Locke Lord LLP

Diane K. Loeffler

Mr. and Mrs.

Ronald A. Loneker, Sr.

Allen Lovejoy

Elizabeth M. Mager

Michele Maio

Deborah Maurer

Ms. Maureen M. McCart

James M. McCarthy

LaVonne McCombie

James McIlroy

Sargent B. Means

Memorial Hermann Health System

Jonathan Mezlo

Merle and Bonnie Miller

Mary Mitchell

Arline H. Moss

Ken Moss

Andrew Muema

Beverley Mukombe

Tom and Sarah Murphy

Linda Murray

Virginia A. Myer

Carole Neubrand

Donald P. Neville

L. T. Newton

Mary Nolan

Nora’s Home

Linda Novick

Dotty Oelkers

Christine A. O’Mahony, MD

Jim and Lindy Orr

Lauri Orwig

Carol Paradowski

Celeste Pardee

Daniel L. Parker

Linda Parkhill

A. Lynette Parsons

Karen Pasewark

Peter J. Peloquin

Concepcion Pena

Charles Peters

Kent Ping

H. Russell Pitman

Kathy Prentice

Becky Price

Ms. Saleha Abdul Rab

Louise D. Raimondi

Patti Ramsey

James P. Reardon

Matt and Tami Regan

Constance E. Ressler

Brenda J. Riner

Mr. and Mrs.

George Roberts

Evelyn M. Rollison

Anne and Joe Romano

Marianne Rosenthal

Patricia Roser

Madeleine Ross

Diesa Samp

Lisa M. Sanders

Martha R. Saville

Gretchen M. Schmalz

Susan A. Schneider

Guy A. Schneider

Mary L. Schrader

Jay and Peggy Schroller

Patricia Schwartz

Barbara Seder

Robert and Joyce Shaffer

Mr. and Mrs. Scott Shaw

Lee and Sheila Shaw

Corbett Smith

Daniel Beauchamp in honor of

The Military and Hospitaller Order of Saint Lazarus of Jerusalem

Elizabeth M. Brannon in honor of Diann Browell

Clay Anderson in memory of Joan S. Anderson, Ph.D.

Sharon Bradley in memory of Robert Bradley

Sherese Buie in memory of Barbara Cordelia Forte Johnson

Barbara Duncan in memory of

Christopher Duncan

J. Guez in memory of Joan Anderson, Ph.D.

Ruth A. Hearson in memory of John Paul Hearson

Ms. Emily C. Smith

Alice Snyder

Ms. Wendy Solomon

B.J. Spence

Ms. Wendy Stapley

Sean and Julia Steinke

Ralph Tamper

Texas Children’s Hospital

Craig Vollmers and Katherine Timmins

Mr. and Mrs. Lynn C. Tindall

Warren J. Tripp

University of Pittsburgh Medical Center

Sue Utter

Lynn Van Orden

Jill Veber

TRIBUTE DONATIONS IN HONOR OF

David C. Bray in honor of Angelica Hale

Gay Roane in honor of

Mr. and Mrs. John Durie and Mr. and Mrs. Robert Henricksen

IN MEMORY OF

David N. Hooper in memory of

Donna Lynn Brenner

Gladys Carter

Dorie Damuth

William E. “Bill” Dark

Cynthia Devlin

Guy Klingensmith

Carol Miller

Carter Moore

Thelma Louise Clanton Neff

Jessica Harris Thompson

Tracy

Kenneth Clyde Wyatt

Roy Henry Hunt in memory of Carol Ferris

Jody Johnston in memory of

Karen Ing and Sally Joy

John J. Vrablik

Eric Walther

R. Bruce Wanlass

Jack Watson

Ms. Shari Wescott

Susan and Bill Wescott

Virginia Wiggins

David and Dorothy Wilson

Lillian Woo

Mr. and Mrs. Patrick H. Wood III

Janis Wright

Carl Wrubel

Michael Yacobellis

David Yarbrough

Leslie E. Zalles

Nancy and Hans Strohmer in honor of Kelly Perdue

Rudyne Walker in honor of Dana Edson

The Vandaveer Consulting Group, Inc. in honor of Amy Waterman, Ph.D.

Sharon Kerby in memory of Earnest E. Kerby

Marilyn Lenz in memory of Gary Everett Joe’s father

Nancy Robbins

Diana L. McCracken in memory of Jim McCracken and Robert Augustin

Carolyn Morris in memory of Larry Bell

William Blevins

Charles Burleson

Dolores Olejniczak in memory of Raymond and Catherine Olejniczak

Teresa Radosti in memory of Marlies Stanton

Peggy Rowe in memory of Joyce Lynn Whitley

Katherine Smith in memory of David Castro

Hazel Thomas in memory of John Medrano

Louis and Donna Urschel in memory of Shawn Urschel

Mollie Whisler in memory of Joan S. Anderson Ph.D.

Board of Directors

Chair

Diesa Samp, DNP, MHA, RN, CCTC, NEA BC, Texas Children’s Hospital

Vice Chair

Salil V. Deshpande, MD, MBA, United Healthcare

Treasurer

Catherine Lightfoot, CPA, CHBC, EEPB Tax | Audit | Advisory

Secretary

Kathleen Wood

Living Kidney Donor

Mark J. Biscone, PhD, MPH, FACHE, ACHE – SouthEast Texas Chapter

Living Kidney Donor

Christine M. Caruso, UPMC

David M. Gregory, JD, Locke Lord LLP

Ayke Hoppenreijs, Family Circle of Care

Living Kidney Recipient

Beverley Mukombe, MBA, MSN, RN, Baylor St. Luke’s Medical Center

Kelly Perdue, CPA, President and Chief Executive Officer

The Living Bank

In Memory of our Trailblazing Founders

Joan Anderson, PhD

Louise Johnson

Glen Karsten

Esther Phillips

Margorie Robertson

The Living Bank was founded in 1968 as the first organ donor registry in the Nation; and the first provider of organ donation and transplantation education.

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