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Glance National support for all neurological conditions

The Brain Charity December 2017/January 2018

My Marathon Building Bridges by Painting Walls Dementia Workshops for Carers


2 Glance - The Brain Charity Newsletter


My Marathon Louise Earle, our London Marathon runner for 2018, raised an incredible £6,763 for The Brain Charity, going above and beyond her original fundraising target of £2,500. Louise has raised an extraordinary amount for charities that support people with neurological conditions over the years and ran the London Marathon in memory of her dad, who passed away from a brain tumour at the age of 48. Louise ran the whole marathon, despite a leg injury that hindered her training. We are all immensely proud of Louise and want to say a massive thank you to her, and to everyone who supported her.

Louise tells us all about her big day back in April: The nerves were definitely there but on the whole I was pretty calm and just keen to get to the start line. Walking up the hill in Greenwich Park, surrounded by hundreds of runners was unforgettable; I couldn’t stop smiling! I bumped into two different friends just before the start, which really helped to calm my nerves.

The hardest part was definitely the last few miles. I always thought the final stretch would be enjoyable, but it was so painful! Somehow it felt like the finish line was getting further away the closer I got. My injured leg had behaved for most of the run but by that point it was hurting a lot - as was every inch of my body! I feel really lucky to have some very generous friends, family and colleagues, who not only donated but spread the word about my fundraising page too. I think those who knew my Dad or have heard about him through me understood the significance of this race to me and my reasons for doing it. The crowds were amazing. There were so many spectators cheering us on, including Prince William and Kate who I saw twice! My family and friends were supporting on the sidelines at various stages along the course, jumping up and down with balloons and signs, which was absolutely incredible. It definitely kept me going and made me feel quite emotional too. When I was really struggling, I thought of my Dad, I know he would have been there cheering louder than anyone.

My top tips would be to not go too hard too early in your training, to ensure your plan includes plenty of cross-training and REST, and to stretch and roll your muscles after every run to avoid injury. I would also recommend finding a good physio. I wouldn’t have made it to the start or finish line if it wasn’t for some additional help from sports docs and physios. Finally, it really helped to know some other runners to speak to and train with.

If Louise has inspired you to take part in your own challenge and get fit in 2018, please email us to find out more: fundraising@thebraincharity.org.uk Glance - The Brain Charity Newsletter 3


Reading Well to Feel Better Thanks to a grant from North West Housing Services, we have been able to purchase books from the Reading Agency’s Reading Well scheme for people with long-term conditions. These are books recommended by health professionals and by people with long-term conditions, and include titles such as Rebuilding Your Life after Stroke and Mindfulness for Health, and titles for carers such as The Carer’s Handbook and The Selfish Pig’s Guide to Caring. Information about all of these books can be found in our online catalogue at: www.bit.ly/TBClibrary by picking up a leaflet at The Brain Charity, or through the Reading Agency’s website: www.bit.ly/glanceRW

All these books can now be borrowed from our lending library, upstairs at Norton Street. We are also developing a fiction collection, particularly following the Reading Agency’s Mood-boosting Books promotion of uplifting books. Send us your recommendations for good reads to the virtual book club on our website: www.thebraincharity.org.uk/forum/book-club

We also have books supporting the Living Well with Dementia scheme.

Carols by Candlelight Join us on Monday the 18th December for a wonderful evening of festive carols, crafts, mince pies and mulled wine (perfect for Santa’s older helpers). The children are bound to enjoy our traditional Christmas Concert too, and leave with happy memories that they will treasure for many years to come. Our magical candlelit evening will be held at the beautiful and historic Church of St Francis Xavier in Liverpool. The evening will feature performances by charming Liverpool couple Tom and Laura from the X-Factor, as well as carols from The Brain Charity Choir and special Christmas readings. Tickets are £5 per person. Under 12s and volunteers of The Brain Charity go free. Get your tickets online today and get your Christmas off to a great start: www.bit.ly/TBCcarols 4 Glance - The Brain Charity Newsletter


Dementia Workshops for Carers Theatre group ‘Collective Encounters’ are running a series of creative workshops for carers and people living with dementia at our centre in Liverpool. The workshops are free to attend and will give you the chance to meet other carers and explore ways of helping people to live better with their dementia as well as helping you as carers to find fun, creative ways of enhancing your caring experience and your quality of life. Every carer attending will get a copy of an Arts and Dementia Toolkit, so you can continue to use the skills at home or at work. Wednesday 31st January at 5pm and Wednesday 7th February 2018 at 5pm. If you would like to find out more, please call Collective Encounters on 0151 345 6266 or email harriet@collective-encounters.org.uk

Tourette’s Awareness TV production company, Hello Halo, want to hear from people living with Tourette’s to be part of a new programme which will show the unexplored realities of having the condition. This will be a sensitive investigation and they are keen to avoid stereotypes and common misconceptions that the media have focused on before, such as swearing. If you or someone you know would like to contribute, contact: findoutmore@hello-halo.tv

Burns Night Supper The Brain Charity will be holding our annual Burns Night celebration on the evening of Saturday 27th January 2018. Join us for fantastic food, company and atmosphere, in what is also a great opportunity to get creative by writing something unique for the night. Be it your thoughts, a short story or poem, put pen to paper for our 'open mic', set your imagination free and make yourself heard. Burns Night celebration at The Brain Charity 7pm, Saturday 27th January 2017 Tickets: £6.50 per person, including a traditional or vegetarian Burns Night menu, are available online: www.bit.ly/TBCBN17

Film Night The votes are in and our Christmas movie is going to be the classic ... “It’s a Wonderful Life”. Tickets are only £2.50 and this includes a free mince pie, a mini concert from our very own choir and our bar will be serving mulled wine. What more could you want? Come along on Thursday 21st December 2017. “This Is Spinal Tap” is going to be our first film after the New Year. Again, the tickets will be £2.50. A fun film to get us back into the swing of things. It will be on Friday 19th January 2018 – make sure you don’t miss out. Glance - The Brain Charity Newsletter 5


Building Bridges by Painting Walls The Brain Charity staff went on a team building day to help redecorate Asylum Link's reception rooms in Wavertree recently. Asylum Link is an organisation that assists asylum seekers and refugees in Liverpool and raises public awareness around these issues. Two of our team, John and Moira, took some time out to talk to a few of their members. When Moira arrived, a very smiley woman called Shaheena helped take her bags and bring in the food. She has been working for 4 years on the reception, which is the perfect role for her as she is really bubbly. One of her favourite things is the multinational community. Many refugees get cut off from their families, so it is great for them to have a group of people they can rely on. Shaheena told us that people use the centre for help with food, shelter and advice. They are often destitute and Asylum Link is their lifeline. After Shaheena, our staff chatted with Imanishimwe; 10 years ago he came to Asylum Link and later became a volunteer. Imanishimwe has a great sense of humour, which he uses to calm people down when they first come. He tells them about the help available to them like legal guidance, employment support, food and help getting accommodation. The last person that John and Moira spoke with was Michelle who is a volunteer and, like Imanishmwe, started out as a service user. When she first arrived she was in desperate need of food and clothes, which Asylum Link helped with. A big problem she has faced is people’s attitudes - people look down on you for not having papers; she felt vulnerable. Seeing everyone eating together reminded us about how vital the time that we spend together is. Having a community is fundamental to our mental h e a l t h . 6 Glance - The Brain Charity Newsletter

Thank you to Asylum Link for letting us spruce up their centre, especially Shaheena, Imanishimwe and Michelle for sharing their stories. We hope that the walls we painted stay bright for a very long time.


Tracy’s STORY Hello my name is Tracy and I’m a volunteer at The Brain Charity. I volunteer as a library assistant and my main job is putting together information packs that we send out to people. I also update files on the computer and scan books for the online library. I sing with The Brain Charity choir and I enjoy it when we sing to the public at events. I like shopping, eating out and listening to music, my favourite holiday is going to Blackpool with my mum. I have a learning disability, asthma and non-epileptic seizures as well as Fibromyalgia which causes me constant pain, I’m also my mum’s full time carer so life is very challenging. My complicated health worries have caused me mental health issues and I’ve had depression for a number of years, which at times has left me feeling suicidal. I’ve been coming to The Brain Charity for a long time and decided to become a volunteer 3 years ago after my mum developed epilepsy and I became her carer. She uses a wheelchair which I have to push and she can’t leave the house by herself, so she relies on me to look after her 24hrs a day. We thought it would do us good to get out more and it was easy to bring her with me as the building is fully accessible and everyone always made her welcome. She liked it so much that she’s also become a volunteer and we now work together in the library on a Thursday. I really enjoy coming to the charity as it helps me forget about my problems and I feel I’m doing something useful to help others; it’s also good for my mum to get out. My mum was very ill in hospital last year and the charity helped me through it all so I didn’t feel like I had to deal with everything by myself; people are always there to listen and help you as best they can. Away from The Brain Charity I’m involved with People First where I’m a member of the board. I take part in their healthy eating road shows as, having lost 6 stone myself in the last year, I can tell everyone about my experiences and how healthy eating can make a difference to your life. People First also helped me and my mum get rehoused to more suitable accommodation that’s all on one level, which has made life a bit easier. I think anyone with a neurological condition should come along to The Brain Charity and find out what’s available. It offers a chance to meet people like yourself and start enjoying your life. Glance - The Brain Charity Newsletter 7


End PJ Paralysis!

No, PJ Paralysis is not the name of a neurological condition. But it is a real problem. It’s to do with your PJs, and with spending too much time in them! If you are in hospital, you need to try and get out of bed more often. And get out of your sick person’s uniform - your pyjamas - pop some of your day clothes on instead. ‘Sit up, get dressed, keep moving’ is the motto. In hospital, just staying lying in bed all the time will actually affect your health for the worse. Your muscles will weaken, you will become frailer, and be more at risk of falls. Lying in bed can affect your digestion too, and make you constipated. And it’s just very depressing. Getting dressed and moving about will reduce your risk of these things. You could shorten your stay in hospital, and you will be better able to cope when you get home. Don’t worry, nobody is expecting you do any exercises! Even a short walk to the bathroom or to the hospital shop will do you good. If you have problems walking, just ask the staff for something that would help, such as a walking frame. Even just getting out of bed and sitting on a chair when you have visitors will help you too. Like the song says, “Move on up for a greater day”. Loads of people are talking about this on Twitter #endPJparalysis

BRAIN CHARITY KNIT AND NATTER GROUP

The Brain Charity

Enjoy to knit or crotchet? Then come along each Wednesday afternoon to "Knit & Natter" with us! This free group meets from 1.30pm in the café area at The Brain Charity. It doesn't matter what your skill level is - you don’t even have to be able to follow a pattern! After a chat with Janet at the charity, members decided to compete with each other, knitting squares which would then be sewn into blankets for children at home and abroad. So squares would be great, or maybe you'd like a bigger challenge? Maybe you would like to knit something else, but would like company while you are doing it? If you'd like to learn, we'd love to see you. Come and knit - whatever and however you like! Unable to get out, but still like the idea? How about joining our virtual group? Knit away at your own pace then send us the completed squares. Happy knitting! 8 Glance - The Brain Charity Newsletter

Caroline Fogell from Project Linus receiving the first blankets made by our knitting group.


THE BRAIN GYM Give your brain a workout in our Brain Gym. WORDSEARCH

B H N R U J J F T S E K Q G

M I N C E P I E S U E I W V

S N Y S S L N D N E R V V Z

V A I O E V G D O Y T K L R

R Y N S E D L T W L S Z E E

F V N T Y W E O M L A T O Y

N I N H A L B V A O M L K R

T U P U T C E O N H T O A E

Z F J S L S L F S G S I C E

W M I W E I L A E W I U Y D

Z M G V Z J S L U V R F A N

Y T I V I T A N O S H Y B I

S L E I G H C F D G C H I E

R A E Y W E N Y P P A H H R

CHRISTMAS TREE HOLLY MISTLETOE SANTA CLAUS TINSEL ELVES JINGLE BELLS NATIVITY SLEIGH TURKEY HAPPY NEW YEAR MINCE PIES REINDEER SNOWMAN

DINGBATS

QUIZ

Dingbats are visual word puzzles from which a well-known phrase or saying has to be identified.

1) What country did Christmas trees originate from? 2) Name Father Christmas’ reindeer. 3) The Christmas tree in Trafalgar Square, London is an annual gift from which nation? 4) Which country did Saint Nicholas come from? 5) What were the names of the three wise men? 6) What is the name of The Simpson's pet greyhound? 7) Which plant associated with Christmas has the Latin name Viscum album? 8) In Dickens's "A Christmas Carol" which is the first ghost to visit Scrooge? 9) Who wrote the book that became the cartoon classic "The Snowman"? 10) How many presents were given in total on the 12 days of Christmas? 11) On what date does Twelfth Night occur? 12) The first line of the song “Do they know it’s Christmas?” was sung by which artist in the original 1984 version?

1)

Nigmassht

2)

Mistletoe xxx

3)

Night Night Night Night Night Night Night Night Night Night Night Night

4)

Winterwalkingwonderland

Find the Brain Gym answers on Page 11

Glance - The Brain Charity Newsletter 9


Christmas GingerBread Recipe Ingredients • 350g/12oz Plain Flour • 1 tsp Bicarbonate of Soda • 2 tsp Ground Ginger • 1 tsp Ground Cinnamon • 125g/4.5oz Butter • 170g/6oz Light Brown Sugar • 1 Egg (Free Range if possible) • 4 tsp Golden Syrup

Method 1. Mix the flour, bicarbonate of soda, ginger, and cinnamon in a bowl then add the butter and sugar and rub together, by hand or in a food processor, until it looks like breadcrumbs. 2. Beat the egg and golden syrup together in a cup then gradually blend it into the breadcrumb mixture (you are probably best pulsing the mixer to do this bit if you’re using one). 3. Once the mixture starts to form clumps shake it out onto a floured board and knead it until it goes smooth (it will look a bit like pastry) then wrap it in cling film and put it in the fridge for 15 minutes. 4. Put your oven on to heat while the mixture is in the fridge (180C/350F/Gas 4) and line two shallow baking trays with greaseproof paper. 5. Once the dough is chilled roll it out on a floured board until it’s about 5cm thick. Then cut out shapes of your choice, stars and Christmas trees look nice, but any shape you like or have a shape cutter for is fine. 6. Place your shapes on the lined baking tray making sure they’re not too close together as the mixture will spread a bit during cooking. Bake for about 12-15 mins or until they are golden brown. Allow to cool for 10 minutes on the tray then put to finish cooling onto a wire rack. 7. Decorate your shapes however you like, tubes of coloured ‘writing’ icing available from supermarkets are easy to use and add a nice finish. 8. Enjoy!

DID YOU KNOW? Cinnamon is a high source of antioxidants and helps to defend against cognitive decline and protects brain function, whilst ginger benefits memory, attention and brain ageing! So enjoy your ginger bread biscuits!

Christmas Holidays 10 Glance - The Brain Charity Newsletter

The Brain Charity will be open until 5pm on Friday 22nd December 2017. We will then be closed over the Christmas period and reopen at 9am on Tuesday 2nd January 2018. The staff and trustees of the charity would like to thank all our readers, friends and fundraisers for their spectacular support this year. Best wishes to you all for 2018.


Glance - The Brain Charity Newsletter 11

The Brain Charity’s unique Christmas Cards are available to buy now in our online shop: www.bit.ly/TBCcards or call into our Norton Street building and pick up yours. It’s time to check your Christmas card list, and check it twice, it’s time to find out who’s naughty or nice. Jingle your bells down to The Brain Charity, buy our range of radically different, festively funky cards and have yourself a very merry cool Yule.

The Brain Charity ’s Christmas Cards Answers to The Brain Gym Quiz Christmas Wordsearch:

Dingbats: 1) Midnight mass 2) Kisses under the mistletoe 3) Twelfth Night 4) Walking in a winter wonderland Quiz: 1) Germany (It was Latvia, but this was part of Germany at the time) 2) Dasher, Dancer, Prancer, Donner, Blitzen, Comet, Cupid, Vixen and Rudolph. Norway. Turkey. Balthasar, Melchior and Caspar. Santa’s Little Helper. 3) 4) 5) 6)

7) Mistletoe. 8) The Ghost of Jacob Marley. 9) Raymond Briggs. 10) 364, because: She gets 1 partridge in a pear tree on each of the 12 days. 1 x 12 = 12 She gets 2 turtle doves on the last 11 days. 2 x 11 = 22 She gets 3 French hens on the last 10 days. 3 x 10 = 30 She gets 4 calling birds on the last 9 days. 4 x 9 = 36 She gets 5 gold rings on the last 8 days. 5 x 8 = 40 She gets 6 geese a-laying on the last 7 days. 6 x 7 = 42 She gets 7 swans a-swimming on the last 6 days. 7 x 6 = 42 She gets 8 maids a-milking on the last 5 days. 8 x 5 = 40 She gets 9 ladies dancing on the last 4 days. 9 x 4 = 36 She gets 10 lords a-leaping on the last 3 days. 10 x 3 = 30 She gets 11 pipers piping on the last 2 days. 11 x 2 = 22 She gets 12 drummers drumming on the last day. 12 x 1 = 12 11) January the 5th. 12) Paul Young.


THE BRAIN CHARITY CALENDAR December 2017

January 2018

Sat 2nd

North West Ataxia Support Group, 11.30-3pm

Mon 4th

Tea, Coffee & Company Morning, 10.30am-12pm Stroke Friends, weekly, 2-4pm Choir, 5-6pm

Tues 2nd Reopen after Christmas break, 9am Craft Club, weekly, 10.30am-12.30pm Advice Drop-in, weekly, 1-4pm

Tue 5th

Craft Club, weekly, 10.30am-12.30pm Advice Drop-in, weekly, 1-4pm

Wed 6th

Knit & Natter, weekly, 1.30-3.30pm Merseyside Spinal Injury Group, 2.30-4.30pm O.C.D. Support Group, 5-7pm

Thurs 7th

Boccia bowling, weekly, 1-2pm

Fri 8th

Migraine Peer Support Group, 10.30am-12.30pm The Snow Ball, Garden of Eden, 7pm-1am

Tue 12th

Craft Club, weekly, 10.30am-12.30pm Advice Drop-in, weekly, 1-4pm

Mon 18th

Stroke Friends, weekly, 2-4 pm Carols by Candlelight, St Francis Xavier Church, 7-9pm

Thurs 21st Epilepsy Action, coffee and chat drop in, 11am-12.30pm Boccia bowling, weekly, 1-2pm Film Night at The Brain Charity, 7pm Fri 22nd

Close for Christmas Break, 5pm

Wed 3th

Knit & Natter, weekly, 1.30-3.30pm Merseyside Spinal Injury Group, 2.30-4.30pm O.C.D. Support Group, 5-7pm

Thurs 4th Boccia bowling, weekly, 1-2pm Sat 6th

North West Ataxia Support Group, 11.30-3pm

Mon 8th

Tea, Coffee & Company Morning, 10.30am-12pm Stroke Friends, weekly, 2-4pm Choir Practice, 5-6pm

Sat 13th

Quiz Night at The Brain Charity, 7pm

Fri 19th

Film Night at The Brain Charity, 7pm

Sat 20th

Facial Palsy UK Support Group, 10am-1pm

Thurs 25th Epilepsy Action, coffee and chat drop in, 11am-12.30pm Boccia bowling, weekly, 1-2pm Sat 27th

Burns Night at The Brain Charity, 7-10pm

Mon 29th The Brain Tumour Charity, 1-4pm Stroke Friends, weekly, 2-4pm Choir Practice, 5-6pm

ABOUT THE BRAIN CHARITY The Brain Charity offers practical and emotional support to people with neurological conditions and to their families, friends and carers. For more information contact the Centre or visit our website: www.thebraincharity.org.uk

Get Social with us: thebraincharity

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thebraincharity You can also find us on:

The Brain Charity, Norton Street, Liverpool L3 8LR Tel: 0151 298 2999 Fax: 0151 298 2333 Email: info@thebraincharity.org.uk The Brain Charity is registered as a charity (No: 1114999) and a company limited by guarantee in England and Wales (No: 5741930) Glance is available in large text or braille on request. Glance is available on The Brain Charity website: www.thebraincharity.org.uk The If you wish to be added to the Glance mailing list, please contact our Information and Advice Officer using the telephone number or email above. The Brain Charity does not necessarily share all of the views or opinions expressed in Glance.

Brain Charity

Glance Dec 2017 Jan 2018  

The newsletter of The Brain Charity. The Brain Charity offers practical and emotional support to people with neurological conditions, to the...

Glance Dec 2017 Jan 2018  

The newsletter of The Brain Charity. The Brain Charity offers practical and emotional support to people with neurological conditions, to the...

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