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Glance National support for all neurological conditions

The Brain Charity February/March 2018

Brain Food Festival Homelessness and Brain Injury Migraine and Diet


Brain Food

Festival

Brain Awareness Week gives organisations all over the world the chance to tell their local communities about our current understanding of the brain. We hope you can join us on Wednesday 14th March when The Brain Charity will be throwing open our doors to mark the occasion with another of our popular Head Matters tea parties. This year we will be hosting an amazing food festival to teach people all about food and its effects on our brain and nervous system. We'll have cookery demonstrations, bush tucker trials and the Great Brain Bake Off. Other charities, groups and foodie organisations will also be on hand to answer your questions about food and its effects on particular conditions. Plus, there will be talks on neurology and nutrition throughout the day from a range of experts including Dr Baker and Dr Silver from the Walton Centre. As usual, you will have a chance to ask questions afterwards. In between talks why not relax & chat about what you've heard over a nice cuppa? You won't want to miss our tea stand which will be offering the chance to try our range of Brain Chari-teas for free.

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These are unique blends of tea which have been specially c re a t e d f o r u s b y l o c a l company Lady Liver Tea with health benefits in mind and which are available each day in our cafĂŠ. As our way of celebrating our incredible brains, we'll hold a funny hat competition to wind up our day. There will be a prize for the maker of the judges' favourite, so we'd love you to get your thinking caps on and get creative making your hats - remember this year's theme: 'food and the brain'. If you can't get to our centre in Liverpool on the day, but would still like to get involved. Perhaps you could hold your own tea party with friends where you live. We have a tea party pack with lots of recipes and ideas to help you get started, which you can download from our website here:

www.bit.ly/GLTEA


Homelessness and Brain Injury As we all know, a brain injury can be a devastating experience which challenges all of our resources to the full. We need the support of others and good systems in place to help us live at our best in spite of the challenges. But what if you are already on your knees with the challenges of life? Homelessness is up 55% in the last five years, and is at a record high in Liverpool. Brain injury does not discriminate, and research has shown that roughly half the homeless population has sustained a brain injury. Many of those will have incurred their injury prior to becoming homeless. Services are letting people down and failing to protect them from the risk of becoming homeless. Once a person becomes homeless it is extremely difficult to survive and almost impossible to thrive. Brain injury services rarely cater to the specific needs of the homeless population and as a result, many end up falling

between the gaps in services, refused hostel space and end up in prison due to people not realising the struggles and behaviours associated with brain injury. A new service in Liverpool is attempting to find a new way to reach this very vulnerable population, by providing outreach support. Neurotriage offers assessment, link workers, and training to help people who are homeless and have had a brain injury, get the help and support they very much need. Visit: www.neurotriage.com

Pocket GP This app for smartphones and tablets acts as a gateway to a wealth of information from the NHS - best of all you can save articles to refer to later, even when you're offline. It lets you: • Search for nearby A&E, GP and Dentist services • Add your GP's details to the home screen for easy and quick access • Use the NHS Symptom Checker to pinpoint common ailments • Explore Treatments & Conditions • Access information on commonly asked health questions • Dive into Live Well Guides and Videos • Self-Assessment Quizzes, BMI Calculators and more Download on the App Store for iPhone: www.bit.ly/PocketGP Get it on Google Play for Android: www.bit.ly/glaPGP Glance - The Brain Charity Newsletter 3


A Sniff Test for Parkinson's When Joy Milne first noticed an unusual musky smell on her husband Les' clothes she put it down to poor hygiene and asked him to have more baths. It wasn't until 10 years later, after Les had been diagnosed with Parkinson's, that she went to her first Parkinson’s support group and noticed the same distinctive smell on other people in the room. By chance Joy happened to mention this to a scientist at a Parkinson's talk. They were intrigued and decided to test her abilities. Skin swabs were taken from Parkinson's patients and from a group of people without the condition. Joy was able to pick out all of the Parkinson's patients and even identified one person as having Parkinson’s who was only diagnosed 8 months later. This convinced everyone that the effect was real. Now researchers have identified 10 signature molecules from the smell, which they hope can be used to diagnose Parkinson’s earlier than ever before. This will allow them find out much more about the early stages of the disorder and how it unfolds. At the moment there is no test for Parkinson's and symptoms only start to show once many brain cells have already been lost. All around the world efforts are underway to find medicines which can stop the progression of Parkinson's, but they will have the best effect when given to people in the earliest possible stages. An early diagnosis would be lifechanging for people just starting out on their journey with Parkinson's and we can look forward to a time when people may never develop the most common symptoms of this devastating condition.

Group Therapy Workshops at The Brain Charity The Brain Charity now offer free group therapy sessions to people who would like to learn new techniques to help them improve their mental health and wellbeing. The sessions are led by Aspasia and Mark, who are both volunteers at the charity. Aspasia is studying for a Doctorate in Counselling Psychology at Manchester University and Mark is studying Psychology at University of Liverpool. They will both use their learning and experience to assist people to gain new skills to enable them to cope with their daily challenges. The group will also offer the opportunity to meet new people and share experiences with others who may be facing similar issues. A different topic will be explored in detail each week. These include: managing depression, grief and loss, how to manage common symptoms, anxiety management, better breathing and relaxation techniques, mindfulness, pain and medication management, trauma, dealing with difficult emotions and self-esteem. It’s been shown that talking together in a therapy group like this can help people to grow emotionally and solve personal problems. If you would be interested in taking part in group therapy please let us know by contacting us on 0151 298 2999 or by email at info@thebraincharity.org.uk

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Roasted Aubergine Soup This soup recipe goes down a storm in The Brain Charity cafĂŠ. Makes 6-8 bowls. Ingredients 2 medium-sized aubergines, cubed

1 large Russet potato, cubed

1 tablespoon cinnamon, powdered

950ml vegetable stock

1 tablespoon cumin, powdered

4 x 400ml cans tomatoes, diced

½ tablespoon sea salt

1 tablespoon paprika

120ml olive oil

1 tablespoon cayenne pepper

6 cloves garlic, finely diced

1 tablespoon roasted garlic, powdered

1 Spanish onion, finely diced

3 mint leaves, fresh

Method 1. Cube the aubergines, place them in a large bowl of salted ice water and let sit for 20 minutes. 2. Preheat oven to 230 degrees C (450 degrees F) 3. Place the cubed aubergines on an aluminium foil lined tray, drizzle with a little of the olive oil; then dust with sea salt, cinnamon and cumin. 4. Place the sheet in a heated oven and bake for 35 minutes until soft and gooey. 5. Place the remaining olive oil in a pan and heat it, then add diced onions, garlic and cloves as well as a pinch of sea salt. 6. Caramelise the mixture being careful not to burn it. 7. Pour the tomatoes, baked aubergine cubes, potato cubes and vegetable stock over the caramelised garlic & onion. Dust with paprika, cayenne pepper, roasted garlic, mint leaves and stir thoroughly. 8. Lower the heat to medium, cover the pot and simmer for 45 minutes. 9. Blend until smooth.

Did you Know? Aubergine skins are rich in an antioxidant called nasunin, which is a potent free radical scavenger that has been shown to protect brain cell membranes from damage. The potassium in Aubergines also increases blood flow and boosts brain activity. Glance - The Brain Charity Newsletter 5


Challenge yourself - in 2018 It’s a new year, full of opportunity and potential, with the chance of a clean slate to start afresh. If you would like to try something new this year, perhaps you could take on a challenge for The Brain Charity and help people with neurological conditions such as stroke, epilepsy, fibromyalgia and brain injury. We already have one brave individual running the Virgin London Marathon on our behalf, along with 2 people running the Great North Run and 2 have already signed up for the first ever Big Half in London. That’s a total of 78 miles already being run for The Brain Charity, and hopefully some great fundraising. Your challenge does not need to be this big. You could start small, with the Wirral Costal Walk for example, which can be 4, 10 or 15 miles (no running involved) www.wirralcoastalwalk.org. But if you do like to run, we have plenty of spaces coming up in popular running events. Keep an eye on our social media for news of these. You may want to challenge yourself to something more adventurous, like a skydive or zip wire, just get in touch and we can help. Not all challenges need to be physical, you could challenge yourself to do without birthday presents this year and set up a Facebook fundraiser for us - then ask friends and family to donate instead of giving gifts. You could do a head shave, give up alcohol or your favourite food and ask friends and family to support you. If you like what we stand for, have received help from us, or if we have helped a friend or loved one and you would like to say thank you by fundraising then please contact Carolyn on 0151 298 2999 or email fundraising@thebraincharity.org.uk

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THE BRAIN GYM

Give your brain a workout in our food-themed Brain Gym. WORDSEARCH

S S E K S A C N T G Q A L I

C A U F W I S O Q P W P A L

S H N H Y X V P C C V M Y O

F S Y A T I C Y A O T D F C

F E E B N A E L U R N L O C

Z A L I R N G Y L A A C O O

M W P R F H A S I N B G C R

R E O P S Y N B F G S A U B

B S J U H V T O G F I W H F R T D C I G A K Q U L M P H B B I E E G U R Z E S X K O E A K C O W L O W E R N E S L R D R A F S T W I N H M G W C T D G U P E S A P B X S

APPLES ASPARAGUS BANANAS BROCCOLI BROWN RICE CARROTS CAULIFLOWER FISH GRAPES LEAN BEEF ORANGES VITAMINS

DINGBATS

QUIZ

Dingbats are visual word puzzles from which a well-known phrase or saying has to be identified.

1. What is the current recommendation for portions of fruit and vegetables per day?

1. POT OOOOOOOO 2. NaFish NaFish 3. GESG SEG GEGS GGES 4. MotherMay

2. How many 200ml glasses of water should you drink each day? 3. How many portions of fish should you try to eat each week? 4. How many grams of salt is the recommended allowance for adults? 5. How many calories does 1 gram of fat provide?

RIDDLES 1. What type of cheese is made backwards?

6. Which has more calories: a baked potato or brown rice?

2. A container without hinges, key or lock, yet a golden treasure can be found inside, what am I?

7. Which has less sugar, apple juice or orange juice?

3. What is orange and sounds like a parrot?

Find the Brain Gym answers on Page 11

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Blood-Brain Barrier Breakthrough Researchers funded by The Brain Tumour Charity have shown that a naturally-occurring virus, delivered to patients by a simple injection, can cross the blood-brain barrier and kill cancer cells in the brain. They also found that the virus, called reovirus, does not harm healthy cells and causes only mild flu-like symptoms in patients. Dr Adel Samson, co-lead author of the research paper, said: “This is the first time it has been shown that a therapeutic virus is able to pass through the brain-blood barrier, and that opens up the possibility this type of immunotherapy could be used to treat more people with aggressive brain cancers." A clinical trial is now under way, in which patients will be given reovirus alongside standard radiotherapy and chemotherapy treatments, to see if the virus makes the standard treatments more effective. Listen to Professor Susan Short from the University of Leeds talking about this research and the clinical trials here: www.bit.ly/glVirus

NEW IN THE LIBRARY New books for you in our Norton Street Information Centre include Behçet’s Disease, and The Little Big Things by a survivor of spinal cord injury. Henry Fraser was 17 years old when an accident severely damaged his spine and left him paralysed from the shoulders down. His new book The Little Big Things tells the inspiring story of how he turned his life around again by looking for the positive in his experiences. Henry is now an established artist, painting using a specially-designed mouth stylus and easel. www.bit.ly/GlanceLBT Behçet’s Disease by Joanne Zeis, of the American Behc ̧et’s Disease Association, is an easy-to-follow question-and-answer guide to this autoinflammatory illness. The book is packed with information and illustrations, and includes details of latest treatments. The book also comes with a CD which you can borrow as well, which has extra info such as web links. www.bit.ly/glanceBD Have a look at our library catalogue on the web: www.bit.ly/TBClibrary 8 Glance - The Brain Charity Newsletter


Migraine...and Diet Migraine At The Brain Charity, we see a number of people with a wide variety of headache disorders such as: headache, cluster headache, hemiplegic migraine and migraine. For Brain Awareness Week at The Brain Charity this year we are looking at diet, nutrition and healthy lifestyle. Migraines in particular are a condition in which are strongly affected by diet and lifestyle. In fact there are a number of triggers. As well as the more obvious triggers such as stress, fatigue and medication there are a number of triggers that many people are unaware of. For example: Caffeine Most of us enjoy a cup of tea or coffee, especially in the morning! That’s because caffeine is a stimulant that increases alertness and energy. Many of us drink it to wake us up but caffeine can also cause insomnia and for many people being tired can induce a migraine or headache. Caffeine can be found in tea, coffee and cola. Monosodium Glutamate (MSG) MSG is used in food preservation and flavouring. It is usually used in oriental food, processed meats and canned food. The food enhancer is put on your food to make it nice and tasty but the powerful flavour may be too strong and trigger a headache or migraine. Chocolate Who doesn’t like chocolate? Some women turn to it to relieve menstrual cramps and often crave it when it’s that time of the month. However chocolate could actually be the cause of your headache. That’s because it contains the amino acid Tyramine which reduces serotonin levels in the brain and affects the dilation of blood vessels. Tyramine is also found in red wine and some cheeses such as Stilton. Lack of food/missing meals Although there are many foods that can trigger a migraine or headache, having nothing to eat at all can also be a trigger due to a drop in blood sugar. Regular snacks & meals could prevent migraines and headaches by avoiding the peak in blood sugar. If you are experiencing frequent headaches and can’t fathom out what is causing them, try and narrow it down by keeping a headache/migraine diary and get to the root cause. Here are some that we use: Migraine Trust – www.bit.ly/glmtd National Headache foundation – www.bit.ly/glhmd Glance - The Brain Charity Newsletter 9


FILM KNIGHT Watching films can affect us, they change the way we feel and think. Films can take us to a different time, a different place and improve our imagination, allowing us to forget our troubles and get immersed in a story. A good film can also act as a point of focus, giving people a common shared experience, letting us share our thoughts and feelings with others. We at The Brain Charity have a great community and, being a hub for the neurological community, we thought a film night would be a wonderful addition to the activities we provide so we will be hosting a regular film night in 2018. More and more therapists have started to prescribe films to help their patients. Films, in a similar way to music, art and books are being used as an aid to help people deal with issues and obstacles that we may have, allowing us to overcome them. Just choose one whose characters may be experiencing something similar to yourself and perhaps see how they face and overcome challenges in front of them. Although, as is the case with any independent therapeutic tool, you must be more in touch with your own issues in order to recognise them playing out before you. On a basic level films provide a means of releasing stress and escaping our day to day worries, even if just for a couple of hours. The right film call enable you to escape from the moment and ease negative feelings and worries. They can make us laugh, they can make us cry, they can make us think and even inspire us. So take an intermission in life, relax and allow yourself to be transported into an exciting silver screened new world that can really lift you up. Settle down and be a Film Knight, get comfy with friends on your quest to a cinema for a shared experience, or just curl up on your trusty steed of a sofa armed with the remote control and of course, popcorn!

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Let's stay in touch The income from our room hire directly funds our charity work, supporting people with neurological conditions

www.thebraincharity.org.uk

Email: meetings@thebraincharity.org.uk

0151 298 2999 The Brain Charity Food Wordsearch: S + + + + A + + + + + + + I

+ A + + + + S + + + + + + L

+ + N + + + + P C + + + + O

+ + + A + + C + A O + + + C

F E E B N A E L U R + + + C

+ A + + R N + + L A A + + O

+ + P R + H A S I N + G + R

+ + + T O + P I S L + I N + B + F L G E + + + + U + B S

S + F + M E + + O S + + + +

+ G R A P E S + W + + + + +

+ + T + + + + + E + + + + +

+ I + + + + + + R + + + + +

V + + + B R O W N R I C E +

Dingbats: 1. Potatoes 2. Tuna ďŹ sh 3. Scrambled Eggs 4. Marmite Quiz: 1. 5-7 portions 2. 8-10 glasses 3. 2 portions 4. 6g

Riddles: 1. Edam 2. An Egg 3. A Carrot

5. 9 calories 6. A Bake potato 7. Orange juice

Answers to The Brain Gym Quiz


THE BRAIN CHARITY CALENDAR February 2018

March 2018

Fri 2nd

Parkinson’s UK Support Group, 2-4pm

Sat 3rd

North West Ataxia Support Group, 11.30-3pm

Thurs 1st Computer course, weekly, 10am-noon Boccia bowling, weekly, 1-2pm Art Group, weekly, 2-4pm

Mon 5th

Tea, Coffee & Company Morning, 10.30am-12pm Stroke Friends, weekly, 2-4pm Choir Practice, weekly, 5-6pm

Fri 2nd

Parkinson’s UK Support Group, 2-4pm

Mon 5th

Tea, Coffee & Company Morning, 10.30am-12pm Stroke Friends, weekly, 2-4pm Choir Practice, weekly, 5-6pm

Tue 6th

Craft Club, weekly, 10.30am-12.30pm Advice Drop-in, weekly, 1-4pm

Tues 6th

Wed 7th

Knit & Natter, weekly, 1.30-3.30pm Merseyside Spinal Injury Group, 2.30-4.30pm O.C.D. Support Group, 5-7pm Dementia Workshop, 5-7pm

Craft Club, weekly, 10.30am-12.30pm Advice Drop-in, weekly, 1-4pm

Wed 7th

Knit & Natter, weekly, 1.30-3.30pm Merseyside Spinal Injury Group, 2.30-4.30pm O.C.D. Support Group, 5-7pm

Thurs 8th

Computer course, weekly, 10am-noon Boccia bowling, weekly, 1-2pm Art Group, weekly, 2-4pm

Thurs 8th Computer course, weekly, 10am-noon Boccia bowling, weekly, 1-2pm Art Group, weekly, 2-4pm

Fri 9th

Migraine Peer Support Group, 1-3pm

Thurs 22nd Epilepsy Action, coffee and chat drop in, 11am-12.30pm Boccia bowling, weekly, 1-2pm

Fri 9th

Migraine Peer Support Group, 10.30am-12.30pm

Wed 14th

Brain Food Festival, open day, 11am-4pm

Fri 23rd

Migraine Peer Support Group, 10.30am-12.30pm Film Night at The Brain Charity, 7pm

Fri 23rd

Migraine Peer Support Group, 1-3pm Film Night at The Brain Charity, 7pm

Mon 26th The Brain Tumour Charity, 1-4pm Stroke Friends, weekly, 2-4pm Choir Practice, 5-6pm

Mon 26th

The Brain Tumour Charity, 1-4pm Stroke Friends, weekly, 2-4pm Choir Practice, 5-6pm

Thurs 29th Epilepsy Action, coffee and chat drop in, 11am-12.30pm Boccia bowling, weekly, 1-2pm

ABOUT THE BRAIN CHARITY The Brain Charity offers practical and emotional support to people with neurological conditions and to their families, friends and carers. For more information contact the Centre or visit our website: www.thebraincharity.org.uk

Get Social with us: thebraincharity

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thebraincharity You can also find us on:

The Brain Charity, Norton Street, Liverpool L3 8LR Tel: 0151 298 2999 Fax: 0151 298 2333 Email: info@thebraincharity.org.uk The Brain Charity is registered as a charity (No: 1114999) and a company limited by guarantee in England and Wales (No: 5741930) Glance is available in large text on request. Glance is available on The Brain Charity website: www.thebraincharity.org.uk The If you wish to be added to the Glance mailing list, please contact our Information and Advice Officer using the telephone number or email above. The Brain Charity does not necessarily share all of the views or opinions expressed in Glance.

Brain Charity

Glance Feb March 2018  

The newsletter of The Brain Charity. The Brain Charity offers practical and emotional support to people with neurological conditions, to the...

Glance Feb March 2018  

The newsletter of The Brain Charity. The Brain Charity offers practical and emotional support to people with neurological conditions, to the...

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