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2016 - 2017 ANNUAL REPORT

The Arc of Massachusetts

2016 - 2017


In 2016 – 2017, The Arc of Massachusetts worked to enhance the lives of people with intellectual and developmental disabilities, including autism, and their families, by advocating for community supports and services that foster social inclusion, self-determination, and equity across all aspects of society. EMPOWERING PEOPLE WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES The Arc and our partners in the Supporting Families Campaign advocated for $5 million in Family Support, which was appropriated this fiscal year. The Campaign prioritized Turning 22 funding in the Fiscal Year 2018 budget. Governor Charlie Baker and the legislature proposed an increase of $14 million to meet the needs of the nearly 1,000 students moving to adult services annually. After more than a year of negotiation, Nicky’s Law was filed by Senator Michael Moore and Representative Linda Dean Campbell. The Arc worked closely with stakeholders, Nicky's family, and the agencies that will be affected by the bill. It will create an abuse registry to protect the safety and dignity of people with disabilities being served by the Department of Developmental Services (DDS). Persons substantiated of abuse or neglect of an individual with autism or other intellectual or developmental disabilities will be listed on this registry and this will prevent re-hiring. We also continued to work on housing (accessory apartments), education (ICE), healthcare (Operation House Call), and other priorities. The threat posed to Medicaid reinvigorated our national policy efforts following the lead of The Arc of the United States. The proposed changes in Medicaid funding and positive aspects of the Affordable Care Act rocked our community. These programs, along with Supplemental Security Income (SSI), which is also under attack, serve as a lifeline to our constituents. We continue to have a large delegation join us on Capitol Hill through to our collaboration with LEND Fellows at the Institute for Community Inclusion at the University of Massachusetts, Boston. In March, more than 50 advocates traveled to Washington to meet with members of Congress from Massachusetts. In April, The Arc and the Massachusetts Developmental Disabilities Council co-hosted the annual legislative reception, which honored

Senator Jason Lewis and Representative James O’Day. Governor Baker, Senate President Stan Rosenberg, Majority Leader Ronald Mariano, Secretary Marylou Sudders, and Commissioner Elin Howe were among the attendees. We also hosted a Supporting Families Day, while actively supporting both DDS’s Statewide Advisory Committee (SAC) Day and Advocates for Autism of Massachusetts’ Autism Awareness and Acceptance Day. In May, the ABLE Act savings program launched in Massachusetts. The ABLE Act allows persons with disabilities to save money without losing benefits such as Medicaid (MassHealth in our state) and SSI. It gives a person with disabilities the opportunity to build investments for the long term. The Arc of Massachusetts helped to create awareness of the program through both traditional and social media. Governor Baker made specific note of The Arc’s advocacy during the ABLE ceremony. The Arc played an active role in two state initiatives. When MassHealth changed regulations and reduced funding for the Adult Family/Foster Care Program (AFC) by 4%, The Arc advocated to protect the program. It is the most cost-effective supported living option in the state. As the fiscal year ended, we had a commitment to review the impact of the regulatory changes and interpretation to ensure that those with intellectual and other mental disabilities were still eligible as before the new regulations were released. The Arc continued our advocacy throughout the year on MassHealth Innovations, which will enroll Medicaid recipients in Accountable Care Organizations (ACO). The goal is to integrate care and provide savings by reducing unnecessary hospitalizations and emergency room visits. Enrollment of MassHealth members should begin in FY18. The Arc has a representative on the Delivery System Reform Implementation Advisory Council. The 18 chapters of The Arc of Massachusetts demonstrated more activism in policy over the past year. Several hosted legislative sessions and worked to advance day/employment services. Staff from The Arc provided inperson advocacy training to two chapters, Massachusetts Families Organizing for Change, Special Olympics of Massachusetts, and conducted an advocacy webinar.

The Arc of Massachusetts THE BECKER CENTER FOR ADVOCACY The Arc of Massachusetts is the recipient of a grant from the estate of Dan and Angela Becker. The grant will fund an intensive three-year advocacy and outreach initiative. Our goals are to: • Advance opportunities for persons with disabilities through budget and systems advocacy

2016 - 2017

• Help families learn about and access needed supports, including elder caregivers • Advance inclusion of persons with disabilities in work and social pursuits • Address discrimination, both explicit and unintended We also will help administer the Becker Family Trust grant program. The grants, which will total $500,000 over three years, will be awarded through independent trustees. OPERATION HOUSE CALL EXPANDS ITS REACH Operation House Call (OHC), which is a best practice program, has expanded at the Simmons College of Nursing and Health Sciences and Yale School of Nursing for a total of 200 new students. This year the new program at University of Massachusetts Medical School began with residents and OHC completed its first training with a medical practice at Berkshire Medical Group. In 2018, we plan to begin a broad public education program in health care based on what we have learned in OHC. The growth of the program has required more resources to ensure quality. PROVIDING EDUCATION AND OUTREACH The Arc webinar program has grown and SupportBrokers is assisting more clients with navigating the system this year. We also utilized Facebook live for training for the first time and hosted an education session on the state budget focusing on Governor’s proposal and Turning 22 funding. The Arc of Massachusetts also partnered with regional organizations to host a group of young experts in the field of disabilities and inclusion from Armenia. SUPPORTbrokers was awarded a grant from the Dana Home Foundation to support Lexington seniors with autism. SUPPORTbrokers will begin a year-long pilot study looking at the lives of ten individuals with autism or similar profiles over the age of 50. A Person-Centered Plan will be conducted for each participant. We will be gathering summary information on supports and services for elders in Lexington, which could lead to recommendations for how they might be utilized, adapted, or expanded to serve seniors with autism. Our intent is to develop a model that other towns could follow. ADVANCING EMPLOYMENT The Arc was asked to partner on a federally-supported project to increase employment and employment skills for students with disabilities during their transition years. The project, which is being led by DDS and supported by the Institute of Community Inclusion, includes state and private agencies responsible for education, adult services, service provision, and advocacy. The Arc’s role will be family engagement. One of the main project goals is to increase expectations and skills so that students leave high school with competitive jobs in the community.

WIDENING THE CIRCLE In partnership with DDS, the Friends Project continues to help selfadvocates, families, and agencies expand relationships between people with and without disabilities. This year we released the “Friends at School” toolkit, with Zachary Rosetti, Ph.D. of Boston University. Our team planned a consultation with national expert Angela Amado and kicked off the Pathway to Friends initiative with 13 agencies and DDS in late March. We expect that the new initiative will have a larger impact across service providers in the state. BUILDING CAPACITY At Passion As Pathway, The Arc’s 2016 Gala, we honored Pulitzer Prize winner Ron Suskind and his family for their contributions to the understanding of autism. Ron’s book Life, Animated: A Story of Sidekicks, Heroes and Autism chronicles his family’s twenty-year struggle with their son Owen’s autism. The book is the foundation of Life, Animated, a film which Ron produced. The Arc of Massachusetts expanded our social media and public relations activities to inform a broader audience about our mission and work. This included television segments on WBZ, WCVB, and NECN; radio interviews; and newspaper coverage. In addition, we engaged with constituents and the public via our website, weekly electronic newsletter, and social media. Advocate, our quarterly newsletter reaches a wide audience of advocates, family members, legislators, policymakers, and media.

Daniel*, Angela*, and Michael* Becker The Arc of South Norfolk


Berkshire County Arc

Estate of Joan Lewis

Vibeke and Gustav Christensen

The Nadworny Family Northeast Arc

Estate of Simon Greisdoff

Bay Cove Human Services Richard and Edith Frye Amelia Peabody Charitable Fund

The Arc of Greater HaverhillNewburyport


HOME FOR THE FUTURE Many, many thanks to the hundreds of donors to The Arc of Massachusetts Home for the Future Capital Campaign! Your gifts and support made it possible for The Arc to successfully complete the campaign that funded the construction of the statewide headquarters in Waltham. The Arc is very grateful to the individuals, families, chapters, agencies, and foundations that believe so deeply in our mission that they made a commitment to the future of the organization by giving to the construction of the new building. By increasing our capacity, the new building is allowing The Arc to remain at the forefront of the struggle to build better lives for those with disabilities. Staff, volunteer, and other resources are now fully focused on advancing disability policy, increasing our outreach, and ensuring that people with I/DD in our state have the resources they need to thrive.

Thank you to all who have made this accomplishment a reality!

James and Beatrice Salah Charitable Trust Estate of Alice Marie Shea Elizabeth and Don Stewart

The Cooperative for Human Services

The Arc of Opportunity

LifeLinks Inc./ The Arc of Greater Lowell

The Arc of the South Shore

Minute Man Arc for Human Services

Belmont Savings Bank Foundation, Inc.

Estate of Marie T. Rotti

Joseph Andrade*

Cindy, Mark, Anthony, and Lydia Haddad

The Arc of Greater Plymouth Brockton Area Arc The Charles River Center Greater Waltham Arc

Donna Harris-Lewis Mr. and Mrs. James G. Kerkam The United Arc Vinfen

The Arzak Foundation

The Agnes M. Lindsay Trust

Scott and Julie Borchardt

Janet and Arthur Rico

Rosemary Dewees

Joseph and Ann Louise Rossi

Mr. and Mrs. C. Herbert Emilson

Luc* and Hester Schepens

Kristin and David Hilf

Anonymous (2)

Judi Kotanchik

The Arc of Cape Cod

Robert Inches

Tracy and John Atkinson

JRI Developing Abilities

John Burns

Edward P. and Joyce M. Lawrence

Charm Medical Supply

The Lawson Family

Martin and Patricia Courage

Gerard McCarthy and JoAnne Wahl

The Everts Family

Steinar and Paula Midttun

Scott S. Finlay

Evelyne and Henry Milorin

Mark Fox

Morrissey & Associates, LLC

The Gombosi Family

Jeanette Norton

The Peter G. Gombosi Memorial Fund for Autism Research and Services at The Boston Foundation

Karen D. Ramacorti

Evelyn and Robert Hausslein Walter Herlihy and Nancy LeGendre

Leo and Mary Beth Sarkissian Scarbro Foundation Shepherd Financial Partners John and Beth Zarecki

Jaclyn Lessing

Patricia Bartoloni

Jeffrey Letendre

Elizabeth Baum

Winifred Li and William Oliver

Lisa Beauvais

Ruth Liberman

Justin Bernard

Ann Linehan

Dr. AndrĂŠ Blanchet

Jim Lister

Donna Bonaparte

Rose and Paul Ludgate

Greg and Patricia Bowlin

Eugenia Ludlow

Janet Bragg

Patricia Manko

Joseph and Doris Buonomo

Dayle Maynard

James and Marcia Buss

Mary Ellen and Charles Mayo

Joan and John Butterworth

Mary Manning McLean

Michael and Jeannie Buxbaum

Lincoln Merrihew

Madeline Cammarata

Paula Minihan

Barbara Campbell

Elizabeth and Jack Morefield

Catherine and Victor Carpenter

Andrew Murphy

Mary Lou Case

Alyson Nadworny

Pamela Cirincione and Robert Breingan

Emily Murgo Nisenbaum

Marjorie and David Cohen

Jeff and Taffy Nothnagle

Dennis Coleman

Adam Nussenbaum and Shari Abramowitz

Lorry Combs

The David T. Parker Family

Susan L. Connors

Teresa and Robert Pelham

Deb Corcoran

June Pennachi

James Cosgrove

Patrick and Maria Plante

Mary Cerreto and David Coulter

The Professional Alliance, Inc.

Carmela Covino

Barbara Rabinovitz

Paula Craft

Marcia and Ralph Regner

Barbara and Malcom Crystal

Kathy Ricciardi

Noreen Curran, Advocacy Associates

Peter and Brenda Roberts

Nicolo and Maria Damiano

Ropes & Gray

Virginia O'Donnell

James Ross

Kathleen Doyle

John and Karen Skalski

Sharon Ellis

Wendell Smith

William and Eileen d'Entremont

Terri James Solomon

Tom and Lucy Erhard

Matthew Spencer

David and Joan Faunce

Justine Sterling

Kimberly Felton

William Sterling

John and Barbara Finlay

Daniel and Lorraine Sullivan

Anita Fireman

Constance Sullivan

John Flender

Carole Tagg

Giving Greetings Publishing

Catherine Terwedow

Irene and Gary Gladstone

Dorothy Tinkham

Helen Golding and Michael Schwartz

David Towle

Maureen Grant

Alison Trainor

Cynthia and Mark Haddad

Dee and Meta Unterweger

Stephen Hamilton

Joan Vennochi

Judith and Harold Harris

Jean Walsh

Alison Hill

Leanna Walsh

Paul Holtslag

Charles and Carol White

Elizabeth and John Howard

Carol Ann and Kevin Willis

Tom and Chris Hubbard

Joyce Winship

Anthony Di Ianni

Richard and Carol Wysopal

Mary Ingalls

Judy Zacek

Ann Jones and Gary Monserud

Frank Zavaglia

Karen and Peter Kilmartin

Zero Gravity Basketball, LLC

M.C. Korhonen

Anonymous (15)

Elizabeth Landry Pierre and Ginny Laurent Richard and Noreen Lawson



Leslie and Walter Leslie

Jessica and Ed Agazarian


Katrin Aback

The Becker Family Dan and Angela Becker became involved with The Arc after their son Michael, who had Down syndrome, was born in 1965. As parents, Dan and Angela served as role models and were ahead of the times. They believed that no one should be left behind and made sure Mike was involved in the community. They also were exceptional volunteers and served on the boards of Greater Boston Arc and The Arc of Massachusetts. Dan was a particularly active force on the Government Affairs Committee. As committed advocates, they worked to ensure that parents' voices were heard. In 2014 The Arc of Massachusetts dedicated the Center for Advocacy in honor of the Becker family’s decades of advocacy. Dan and Angela worked hard to make sure that Mike would have a good life long after they had passed away. When he predeceased them, their legacy became a gift for our entire community. As devoted leaders and supporters of The Arc, they were committed to ensuring that the organization would be able to carry on for many years to come or until people with disabilities had the same rights and opportunities and those without. In 2014 Angela gave The Arc $300,000 to establish the Becker Center for Advocacy as part of the Home for the Future Capital Campaign. After she passed away in late 2016, the Becker Family Trust was established to advance family advocacy for innovative programs that promote lifelong community supports for people with intellectual and developmental disabilities. The Trust awarded The Arc of Massachusetts a three-year grant that will fund an intensive advocacy and outreach initiative that started in July.

THANK YOU The Arc of Massachusetts would like to thank all of the individ­uals, corporations, agency partners, and foundations who made a gift to the annual fund during Fiscal Year 2017 (July 1, 2016 – June 30, 2017).

Your support is deeply appreciated. $25,000+

$2,500 - $4,999

The Charles River Center

Susanna Peyton and John Campbell for Operation House Call

Advocates, Inc

Sarah Coletti and Michael Biales

Amego, Inc.

Comcast Cable

Bass River, Inc.

Community Connections, Inc

Subhadeep Basu and Rituparna Chatterjee

Christine and James Connor

Brockton Area Arc

Cotting School

Brockton Area Multi Services Inc.

Katherine Craven

Mark and Janine Corteil

Disability Law Center

Martin and Patricia Courage

Economised Time Services, Inc.

Evergreen Center Inc

Rosalie and Rich Edes

The Peter G. Gombosi Memorial Fund for Autism Research and Services at The Boston Foundation

Charles and Bernadette Geis

Bay Cove Human Services The Dana Home Foundation, Inc.

Ivy Street School


Kennedy-Donovan Center



FletcherTilton, P.C.

Susan and David Lodemore

Harvard Pilgrim Health Care

The MENTOR Network

HCL America, Inc.

John and Susan Nadworny

Nonotuck Resource Associates, Inc.

New England Village Inc

NTT Data

Deborah and Albert O'Neal

Oliver Wyman

PLAN of Massachusetts and Rhode Island, Inc.


Road to Responsibility, Inc.

Vinfen Corporation

Sunshine Village

PricewaterhouseCoopers Estate of Alice Marie Shea State Street Corporation, Inc. State Street Foundation

$10,000 - $24,999 The Arc of the United States for HealthMeet Tracy and John Atkinson

TD Bank

John and Ann Grady Greater Waltham Arc David and Amy Gutschenritter Cynthia and Mark Haddad Christine Hatherley Evelyn and Robert Hausslein Ugur Koyluoglu Christine Lennon and Joseph Curran LifeLinks Inc./The Arc of Greater Lowell Mary Lou Maloney and William Allan Morrissey & Associates, LLC Nexus Inc.

$5,000 - $9,999

United Cerebral Palsy-Metro Boston

Raymond Nickerson for the Daniel Nickerson Fund

Bailey's Team for Autism for Operation House Call

Anonymous (1)

Barry L. Price Rehabilitation Center, Inc.

Baroco Corporation

Frederick Ramos

Scott and Julie Borchardt

$1,000 - $2,499

The Phyllis & Jerome Lyle Rappaport Foundation

The Cooperative for Human Services, Inc.

American Training Inc

Michael Richards


The Arc of Greater Haverhill-Newburyport, Inc.

Riverside Community Care

JRI/Developing Abilities

The Arc of South Norfolk

Frank and Nancy Sally


The Arc of the South Shore

Leo and Mary Beth Sarkissian

Deborah Norton and John Moynihan

Robert Bagdasarian

The Savings Bank

NuPath, Inc.

Beaverbrook STEP, Inc.

Search Beyond Adventures

People, Inc.

Better Community Living, Inc.

Simmons College for Operation House Call

Janet and Arthur Rico

Peter and Martha Boyd

James and Barbara Singer

Staples, Inc.

Cape Abilities, Inc.

Starr, Finer, Starr, LLP

Theresa and Harvey Varnet

Cardinal Cushing Centers

Venture Community Services, Inc.

Yale University for Operation House Call

Center for Human Development

Western Massachusetts Training Consortium

Cerebral Palsy of Massachusetts

WORK, Inc.

Cheryl and Alexander Chan

Anonymous (2)

$500 - $999

Dee and Meta Unterweger

$100 - $249

Mitchel and Meryl Appelbaum

Victory Human Services, Inc.

Margaret Abrams

Autism Services Association

Brian Walsh

Alternatives Unlimited, Inc

Edward Batchelder and Susan Senator

Jessica Waxler

Allie Altman and Carl Drisko

Behavioral Health Network


Kathleen Aponick

Berkshire Health Systems for Operation House Call

Anonymous (2)

Tanushree Baidya


Pauline and Rick Banducci

Bridgewater State University

$250 - $499

Andrew and Krista Bardelli

Ronald and Elizabeth Campbell

Raymond and Susan Bagdasarian

Carolyn Barrett and John Swearingen

Sara and Paul Castellani

Theresa and Clifford P.* Beauvais

Paula Belanger

Cooperative Production Inc.

Michael and Nancy Borr

Walter Boggio

Denise DeAmore

Barry Breslau

Carol Bowen

Devereux Massachusetts

Allison Burger

Valerie Bradley and Lewis Sargentich

Bob and Maria Dwyer

Sherdena Cofield

Jeffrey and Harriet Brand

Fidelity House Human Services, Inc.

The Correale Family

Bonnie Bryce

The Financial Advisors LLC

Kenneth and Mary Ellen Fallon

Dan Burke

Dana Graves

Edmund Ferrara

John and Eleanor Butler

Grow Associates, Inc.

Elaine and Ellis Gabovitch

Joan and John Butterworth

The Guild for Human Services

Sarah Gates

Jeanne and Eric Clapper

Habilitation Assistance Corporation

Dale and Denise Gaudette

Patricia Cole

Kevin Kelcourse

Dianne Glennon

Susan Connors

Mr. and Mrs. James G. Kerkam

Kerstin Heinsen

William and Deborah Corbett

Andrea Lanza

Robin Hodus

Jenn Cullen

Susan Linehan

Patrick and Lindsey Hogan

Thomas and Gail Cullinane

Tammi Ling

Cynthia and James Howard

Antoinette Dallaire

John and Diane Love for Operation House Call

Steve and Maryanne Lentine

Carolyn Dettinger

Richard and Susan McCormick

John and Jennifer Mallin

Patrick Donovan

Roslyn McLean

Maureen Manning and Michael Walsh

Tom and Lucy Erhard

Mental Health Association of Greater Lowell

Edith E. McEvoy

Kimberly Felton

Steinar and Paula Midttun

Cecilia Meehan

Shaun Fitzgerald

Stephen Moeller-Sally

Victoria and Christopher Perley

Joanne Fortunato

James Morgan

Alan and Kristin Pisano

Terri Fowler

Multicultural Community Services of the Pioneer Valley

Joseph and Victoria Prior

Dawn and Jim Freeman

Nemasket Group

Rett Syndrome Association of Massachusetts

Patricia Gagnier

New England Center for Children

Mary and John Reynders

David Gaines

Eric and Setha* Olson

Roche Brothers

Margaret and Donald Gautreau

Barbara and Peter Pandolfi

Diane and Kenneth Saleski

Cheryl Townsend Gilkes

Leander and Barbara Pease

Ken Shulman and Susan Spector

Carolyn Gombosi

Riverside Industries, Inc.

Kenneth and Christine Singer

Sofia and Marvin Gough

James Ryan

Specialized Housing, Inc.

Stephen Hamilton

Ken Sax

Anna M. Thorpe

David Harris

Michael Shwartz and Pamela Goodman

Jessica Tufts

Lisa and Stephen Harris

Greg and Laura Srebotnik

Kenneth and Carol Weyler

Janice and James Harvey

Douglas and Kathleen Tarella

Kevin and Sally Whittaker

Mary Heafy

TILL, Inc.

Parents of Megan Willenbrock

Joe Horrigan

Twins/47 Brand

Anonymous (4)

Kenneth Hunt and Marilyn Howley

UMass Medical Center for Operation House Call

Diane Iagulli

Marty Ford of The Arc of the United States updated chapter leaders on the proposed changes to Medicaid and health care in June.

Jim, Andrew, and Regina Lawson at the Almost Home Event in September 2016.

Minuteman Arc's Chorus filled the Prudential Center with cheer.

$100 - $249

Kathy Ricciardi

Justin Bernard

Randall and Martha Isaac for the Daniel Nickerson Fund

Dennis Rice

Ann Berube

Christina Jameson

Peter and Brenda Roberts

Elizabeth Bjorkman

Deborah Mann Johnson

Jonathan Roberts

Dr. AndrĂŠ Blanchet

Ann Jones and Gary Monserud

Jay Robinson

Barbara Bonacci

Dellarita and Ronnie Jones

Bill and Paula Rollins

Russ and Pat Bordeaux

Caroline Jones and Peter Galison

Judith Rollins

Louise Borke and Gerard Brecher

Michele and Everett Kenerson

James Ross

Janet and Louis Braga

Elizabeth and Dennis Kilduff

Charlotte Rubin

Eric and Judy Braude

M. Korhonen

Beth and Hugh Rutledge

Daniel Burke

David and Lisa Lambert

Robert Ruzzo

Judith Caporiccio

Peter Lans

Karen and Douglas Sargent

Dianne and Edward Cappadona

Anne Larkin and Tom Larkin

Hailey Sarkissian

Mary Ann and James Carbone

Pierre H. and Virginia B. Laurent

Allyson Schiller

Mary Cerreto and David Coulter

Peggy Lawson

Miriam and Beverly Schwartz

Robert and Anne Cicerrella

HehKyung Lee

Barry and Carol Sheingold

Kimberly Clark

Stephen Limon and Jill Matsumoto

J. Slemenda and J. Monteverde

Jacqueline Colby

Leslie and Hal Lockhart

Henry and Lorraine St. Laurent

Community Health Centers of North Carolina

Miriam and John Macht

Robert and Judith Sterns

Sarah Conley

Macphee Family

Mary Sullivan

Heidemarie Conway

Dana Manoogian

Daniel and Lorraine Sullivan

Rebecca Conway

Diane McCormack

Carol and Corey Surett

Margaret and Paul Corboy

Neil McKittrick and Karen Hoffman

Mr. and Mrs. Lynn S. Swigart

Carmela Covino

Kathy McNeil

Thomas Taranto and Diane McCormack

Lois Crandall

Michael and Beatrice Meehan

Mark Teehan

Virginia Crocker

Matthew and Eve Megargel

Peg Thompson

Bill and Carmen Cunningham

Dwight and Jette Meglan

Joseph Vorbach

Noreen Curran

Andrea and Matt Mozur

Lee Vorderer and Robert Bass

Star and John Curry

Melvin Murphy

Lisa Weisinger-Roland

Nicolo and Maria Damiano

Carol Anne and Richard Myers

Patti Wesolowski

Carolyn and Timothy Dee

Sylvia and Arthur Nally

Tom and Tracee White

William and Eileen d'Entremont

Viktoriya Nikolova

Erin Williams and Brandon McCormick

Robert and Betsey Detwiler

Maureen and Ted O'Loughlin

Anthony and Shirley Wine

Nino and Pat Di Ianni

Thomas O'Malley

David and Margot Wizansky

Jack and Linda Dunn

Theodore and Dorothy Osgood

Joseph Yellope

Marian Eades

Wayne and Donna Owen

Judy Zacek

Sharon Ellis

Alice and Larry Pahigian

David Zessis

Sheila and Michael Ellsworth

Pat and Paul Pakos

Anonymous (20)

Jill and Jim Fadule

Michael Palladino

Richard Faucher

Edward and Shirley Park

Up to $100

David and Joan Faunce

Elizabeth and David Parker

Edward Abrahamson

Estate of Florence Finkel

Christine Paulson

Ed and Jessica Agazarian

Joan Forde

Edward Perkins

Joan Akin

Allison and Gary Frankfort

Mary Petricone and Farhad Zarinetchi

Stephen Aras

Suzette Fraser

Barbara and Thomas Pilarcik

Ruth Kramer Baden

Harold and Vicki Freilich

Dave Querusio

Alex and Mary Bai

David Friedman and Jennifer Sun

Ganesh Raman

Ann Baird

Edith and Richard Frye

Diana Reisen

Elaine Belletti

Catherine Gannon

Up to $100

D. Sean Noonan

Carole Tagg

Alix Ginsburg and Alan Shuchat

Larry O'Brien

Patrick Tally

Diane Goldberg

Kevin O'Brien

Michelle and Joe Thompson

Helen Golding and Michael Schwartz

Ms. Helen O'Donnell

Patricia Thomson

Linda and Mark Goldman

Virginia O'Donnell

Sanjay and Priyadarshini Tikku

Norman Goyette

Darlene and Derrick Oliveira

Cynthia and Francesco Tocci

Janice and Peter Greenberg

Charles and Martha Owen

Janelle Tribble

Robert Guarino

Melissa Padera

Barbara Trudel

Marilyn Gulla

The David T. Parker Family

Mary Turvey

Beatrice Haddad

Ann and Henry Paszko

Joseph and Jean Vannelli

Joshua Harris

Julie Peck

Jean Walsh

Rebecca Harris

Katherine and Richard Pelullo

William and Joan Webber

Judith and Harold Harris

June Pennachi

Charles and Glenna Weiss

David and Helen Hill

Tom and Mary Pettit

Jane and Justin Wickens

Kevin Honan

Alfred and Joyce Pompeo

Julian Wierzbicki

Dianne and John Huggon

Andrew and Elena Previte

Stephen Wontz

Emily and David Hutcheson

Deborah Radovsky

Karen Wood

Mary Ingalls

Donald Ravenelle

Nancy Woods

Doris Kalter

Natalie Rivard

Richard and Carol Wysopal

Joseph and Carol Kistner

Patricia Robbins

Ann B. and Jerrold Yos

Elizabeth and Bernard Klim

Amy Robinson

Luke Yu

Elizabeth Krogh and Nicholas Grabbe

Charlotte Rodgers

Jeffrey and Linda Zager

Kristen Lamoureux

Paul Romano

Frank Zavaglia

Lucille Langlois

Janice Rose

Zhong Zhang

Law Office of Tim Sindelar

Pauline Roy

Anonymous (37)

Nora and Mark Leblanc

Roslynn Rubin and Donald Grose

Lois Longobardi

Marjorie Scherbon

Enid Lubarsky

Peggy Schiffer

Judy Lynch

Kacey and Tim Schmitt

Mary and Timothy Lyne

Carol Scully

Allyson and Mike Maguire

Mary Shea

George and Kathryn Manchester

Alan Shuchat

Robert and Frances Manson

Shalva and Howard Siegel

Mardic Marashian

Simon of Cyrene Society

Ethel Margulies

Lisa Sloane and Robert Nason

John Marston and Marte Smith-Marston

Terri James Solomon

Robert and Sandra Mayle

Robert and Marie Sotiros

Jeffrey McGoldrick

James Spelfogel

Susan McIntosh

Karen Spilka and Joel Loitherstein

Mary Manning McLean

Maureen and Stephen St. Hilaire

Morana Law

Gerald and Bev Stanganelli

Stephen Morse

N. Stanton

Suzanne Morse-Fortier

Patty and Tom Starr

Deirdra Murphy and Stephen Moriarty

Arthur and Enid Stecker

James Murphy

Diane Stevens

Joan and Robert Murray

Claire Sullivan

Jeanne Narcotta

Brian Sullivan

Nancy and Paul Nickola

Sylvia and Richie Swartz

*deceased Every effort has been made to ensure that our donor report is complete and accurate. We apologize for any omissions or errors and hope you will contact Katrin Aback at or 781-891-6270 x105 with any corrections.

Alice Shea dedicated her life to helping children with Down syndrome, Williams syndrome, and other developmental disabilities improve their motor development, to enhancing their lives, and to championing their inclusion in the community. As a clinician at Boston Children’s Hospital, she directly touched the lives of thousands of young patients and their families; and as a researcher and educator at Boston University and Simmons College, her impact has been, and will continue to be, felt by many thousands more. Her peers considered her a leader in the field of pediatric physical therapy. On July 28, 2014, Alice passed away at the age of 78. The Arc of Massachusetts, shortly thereafter, learned that she had included the organization in her will. Although she greatly respected The Arc and strongly supported our mission, Alice had not informed The Arc of her bequest. The Arc is honored that Alice chose to include us in her will. While we deeply appreciate this bequest and it is already helping to advance The Arc’s mission, we wish we would have had the opportunity to thank her for her generosity and find out how we can best honor her legacy. Alice earned a Bachelor’s degree in Biology from Boston College, a Master’s degree in Physical Therapy from Simmons College, and a Doctor of Science in Physical Therapy from Harvard University. Alice was very active in the American Physical Therapy Association, particularly in developing and establishing the Pediatric Section. Alice remembered The Arc of Massachusetts in her will. It is a remarkable gift from a woman who had an extraordinary impact on the lives of so many.


PROFILE IN GIVING Alice Shea, P.T., M.P.H, Sc.D.


Tracy Atkinson, President Deborah Norton, Vice President Peter Tallas, Treasurer Scott Borchardt, Secretary Dan Sullivan, Past President Subhadeep Basu Martin W. Courage Katherine Craven Kristin M. Hilf Susan Lodemore Michael Maguire John Mallin Geoffrey Misilo Sean Morrissey John Nadworny Leo Sarkissian, Executive Director STEERING COMMITTEE ON ADVOCACY & DISABILITY POLICY

Janet Sweeney Rico, Chair Justin Bernard Jim Buss Chris Fox Seth P. Lopes Barbara Pilarcik Renald Raphael Frank Sally Mary Valachovic

As featured on the front cover: (from top to bottom, left to right) • • • • • •

The 2016 Gala Self-Advocates at the new Legislators Breakfast at the State House. Berkshire Arc's Ken Singer, last row second from right, received the Joe Andrade Award at the 2017 Annual Meeting. The Grand Opening of Northeast Arc's Breaking Grounds Cafe. (L-R) Senator Stan Rosenberg, Senator Jason Lewis, Governor Charlie Baker, and Representative James O’Day, Secretary Marylou Sudders, and Majority Leader Ronald Mariano at the Legislative Reception. An outside view of The Arc of Massachusetts' new building.

A MEANINGFUL TRIBUTE Making a gift to The Arc of Massachusetts is a meaningful way to honor a loved one or to celebrate the life of a friend or family member who has passed away. Your gift shows that you care about them and about the 200,000 people living with an intellectual or developmental disability in Massachusetts. We gratefully acknowledge all those who chose to honor their family and friends with a gift to The Arc of Massachusetts.




Theresa N. Beauvais

Amy Weinstock and Michael Coln

Patricia and David Fox



Lisa Beauvais



Elizabeth Baum Deb Corcoran Maureen Grant Cynthia and Mark Haddad Jaclyn Lessing Jeffrey Letendre Ann Linehan Jim Lister Rose Ludgate Patricia Manko Andrew Murphy Alyson Nadworny James Nadworny Adam Nussenbaum Gail Samaha Leo and Mary Beth Sarkissian Mark Shepherd John and Karen Skalski Justine D. Sterling Alison Trainor Joan Vennochi

Jerilyn Maynard Jody Williams




IN MEMORY OF DAVID BURKE Ken W. Shulman and Susan Spector


IN HONOR OF CAROLINE COHEN Marjorie and David Cohen

IN HONOR OF LAURA COHEN Ron and Louanne Cohen



Anne and Leonard Gagnon David A. Hall Athena Panagiotakos Lucille and George Pappas The Thibault Foundation Despena Zouzas

Jonathan Roberts

IN HONOR OF LEO SARKISSIAN Barbara Crystal Rosalie and Rich Edes


IN MEMORY OF SUSAN SPILKA Stephen and Linda Desatnick Framingham Democratic Town Committee Beth Herbert Judith Hershberg Michael Mayers Alice Moore Stephen G. Roche Elaine and David Samick Phyllis and Douglas Shelburne Kathryn and Willliam Soldi Parwez and Faiza Wahid John Walsh


IN HONOR OF JUDY ZACEK Dian and Jeff Vittori

Board member John Nadworny, Leo Sarkissian, and The Arc of Greater Haverhill and Newburyport's Luis Bachman.

Kate Bartlett, a member of MDDC, spoke at the annual Legislative Reception.

Long-time supporters of The Arc Dick and Edith Frye


Dear Supporters and Friends, We hope that The Arc of Massachusetts 2016 – 2017 Annual Report gives you a sense of the scope of our work, the accomplishments of the past year, and the many people like you who make it possible. While we have made tremendous progress in improving the lives of people with intellectual and developmental disabilities over the past 63 years, serious challenges and threats exist. Only with your unwavering dedication can we fight on to ensure that people with I/DD have the opportunity to lead full, rewarding lives as part of the community.


THANK YOU so much for your commitment and support!

To learn how, please contact Katrin Aback, With gratitude,

Director of Development at or (781) 891-6270 x105. Tracy Atkinson

Leo Sarkissian



THE CHAPTERS OF THE ARC OF MASSACHUSETTS The Arc of Bristol County | The Arc of Cape Cod | The Arc of Greater Haverhill-Newburyport The Arc of Greater Plymouth | The Arc of Opportunity in North Central Massachusetts The Arc of the South Shore | The Arc of South Norfolk | Berkshire County Arc Brockton Area Arc | The Center of Hope Foundation, Inc. | Charles River Center CLASS, Inc./The Arc of Greater Lawrence | East Middlesex Arc (EMArc) | Greater Waltham Arc LifeLinks, Inc./The Arc of Greater Lowell | Minute Man Arc for Human Services | Northeast Arc | United Arc

The Arc of Massachusetts 217 South Street Waltham, MA 02453 781-891-6270

2017 Annual Report