Impact Report 2017|18
Making a difference to cancer patients and their loved ones in the heart of your community
Give hope. Help cope. tenovuscancercare.org.uk
2017/18 in numbers
A message from our Chief Executive
Our Social Impact
Our Cancer Support Services
A future without cancer, and a better today
A voice for change
Promoting healthy lives
With a little help from our friends
Raising funds and having fun
Our income and expenditure
We couldnâ€™t do it without you
numbers We had
conversations about being
safe in the
We helped access
in beneďŹ ts and other entitlements, helping to make ends meet when things were tough
Our Mobile Support Units
We helped more than
people in their attempt to quit
Our free Support Line handled over
so no one has to cope with cancer alone
for cancer patients, closer to home
We had 50
active cancer research projects in 2017/18
gave an amazing
300,000 hours of their time.
Thatâ€™s more than 34 years!
sang their hearts out every week at one of our
A message from our Chief Executive It all began with a sense of community, a generous gesture and an act of goodwill. In 1943 ten men came together to help a friend in need. They called themselves ‘Ten-of-us’ and 75 years later, our work continues to change lives today. I’m so proud to be a part of this charity and have marvelled at its achievements over the years. And 2017/18 was no exception. As well as a chance for us to kick off our 75th Birthday celebrations, we continued with the serious task of supporting cancer patients and their loved ones and saving lives. It was a busy year and our Support Team were there for nearly 8,000 people affected by cancer from across the UK. We’ve developed and extended our services so we can reach more people and nearly 50% of our clients were new. Our Support Line continues to be the only dedicated cancer helpline in the UK that’s open 365 days a year. Our specialist nurses handled over 11,000 calls with people dealing with a diagnosis, coping with the side effects of treatment, or struggling with the loss of a loved one. They helped each and every one of them, so no one had to cope with cancer alone. We also continued to provide our Cancer Callback service and made regular support calls to nearly 800 cancer patients during their treatment. That’s 22% more than last year, meaning more people with questions and concerns were able to talk to one of our nurses. This service is vitally important and makes a huge difference to cancer patients who, due to the pressures on the NHS, can feel unsupported. Our nurses are on hand to make sure nobody falls through the net. We know that after pain, money worries are the biggest concern for cancer patients. Navigating the complex welfare system can be overwhelming, especially if someone’s feeling unwell, tired or unable to concentrate. This year our Cancer Support Advisors helped people affected by cancer access £4 million worth of benefits and grants, equating to £6.5 million annually*. We were also able to access over £600,000 for clients through our Money Advice service, either by accessing money they’re entitled to, or getting debts written off. Singing continues to be a huge part of how we support cancer patients and their loved ones, and this year around 1,700 people sang with us every week. As well as being a way for people affected by cancer to find support, friendship and fun, our choirs across Wales and England have proven physical benefits too. Our research has shown that our Sing with Us choirs reduce peoples’ anxiety and depression. Most importantly, there were also positive changes to immune function and inflammatory response in the body, both of which may be linked to the body’s ability to fight cancer. We’re now conducting research on a bigger scale and will be releasing the results next year. For over nine years our Mobile Support Units have brought life-saving cancer treatment closer to home. This year we delivered 5,400 chemotherapy and other treatments, saving cancer patients’ time, money and stress and giving them back more time with the people they love. Not only this, our Mobile Support Units relieve pressure on over-stretched cancer centres that are already struggling to hit waiting time targets.
*Annualised value means the total value of all successful benefit applications, multiplied by twelve months. The money we help people access isn’t just one-off payments, it’s also ongoing benefits which make a huge difference to daily life.
In 2016 we realised demand for this service was increasing, and launched an Appeal to raise £1 million for our third Mobile Support Unit. I’m thrilled to say that this year that money was raised, and we began the build. This new Unit will be the world’s largest mobile chemotherapy space, and will hugely increase the amount of patients we can see. Not only will this bring treatment closer to home for thousands of people, we’ll be able to reduce the pressure on overstretched cancer centres, and save the NHS money. We know that the emotional impact of cancer is far reaching, so this year we worked with Professor Neil Frude, a clinical psychologist with over 40 years’ experience, to develop a new emotional support service. ACTivate Your Life - Affected By Cancer is based on Acceptance and Commitment Therapy and is a series of courses, aimed at helping people overcome negative thoughts and live more fulfilled lives. We’re looking forward to rolling them out in 2018/19. In 2017/18 we continued to fund life-saving and life-changing cancer research. We had 50 active grants running, amounting to funding of over £2 million. This year we issued a call for our iGrant applications and received 35 Expressions of Interest. Following review by our Research Advisory Group and a panel of experts, six projects have been recommended for funding next year. The research we fund is not only making a real difference to people affected by cancer today, it’s saving lives and is the key to a world where no one dies of cancer. But we were only able to do all this thanks to the support and enthusiasm of our wonderful volunteers. They are the absolute driving force of our organisation and this year gave over 300,000 hours of their time. And of course, as well as our volunteers we must recognise the fantastic generosity and commitment and of all our donors and supporters, our Patrons, staff and Trustees. This year we also said a sad farewell to our Chair of Trustees Richard Sims. His leadership and guidance over the last six years has been invaluable, and we can’t thank him enough. I am thrilled though to welcome Professor Malcolm Mason OBE to the role. Widely regarded as the most distinguished cancer doctor in Wales, we are extremely lucky to have him as our new Chair. I have every confidence he will continue to lead the charity forward in the years to come, so that Tenovus Cancer Care will always be there to support cancer patients and their loved ones, when they need it.
Claudia McVie Chief Executive
Our Aims Tenovus Cancer Care brings practical advice, emotional support and treatment to where it matters most; the heart of the community. We help cancer patients and their loved ones cope, and through our vital research, we offer hope. Everything we do is based on the aims below: • To provide support and treatment to cancer patients and their loved ones, closer to home in unique ways • To represent the needs of cancer patients and their loved ones • To conduct and fund research to improve cancer outcomes and experiences • To work with communities to develop healthy lifestyle programmes
Our Social Impact Understanding and evaluating the wider impact of our work is really important to us. As well as looking at the amount of people we supported, we want to show the impact of the services we provide beyond the numbers. So this year we worked with a specialist company to calculate our social value. Social value is calculated by looking at all the ways our work helps cancer patients, their family members, our volunteers and even our employees, and giving it a financial value.
These beneﬁts are things like • Fiscal Savings to Government and Taxpayers through reduced impact on NHS, GP Surgeries, Outpatients, Appointments, A&E incidents, Mental Health Services, Social Care and Welfare Benefits • Economic Benefits to HMRC revenue through employment and economic impact of volunteering • Social impact of services by improving overall wellbeing like confidence, selfesteem, ability to self-diagnose, reduced isolation, and helping people to cope. By understanding the social value of our work, we’re able to calculate a social return on investment. This tells us the value for money we’re generating for every pound we spend. We’re committed to making sure the money that our supporters have worked so hard to raise, has the highest impact possible. That way we know we’re getting the best value for money we can. Throughout our Impact Report we’ve included figures that give you more detail around the impact of a service or activity. So as well as telling you how many people we’ve supported, and other things we measure, we can tell you what we spent, what the social value was, and was the return on investment was; i.e. how much value was generated for each £1 spent.
Total Social Return on Investment
Total Economic Impact Economic Impact is an additional value, which calculates how our spending as an organisation, and output, impact upon the local economy.
Social Return on Investment + Economic Impact
Our Cancer Support Services Every year around 19,000 people are diagnosed with cancer in Wales, and around 360,000 across the UK. And whilst these numbers are going up, thankfully so are survival rates. This means there are more and more people living with and beyond cancer, and the impact and effect of this can last for years. That’s why our services are so important. We’re there at every stage of the cancer journey and last year we supported 7,827 people, of which nearly half (3,714) were new clients. As well as supporting people through diagnosis, treatment and beyond, we also support their loved ones too. We know a cancer diagnosis affects the whole family, and that’s why our services are for anyone affected by cancer, for as long as they need them. Our support services complement the NHS care patients receive, and take pressure off these over-stretched services.
Our nurses are just a call away, 365 days a year Our free Support Line is open 365 days a year for anyone worried about cancer. Our experienced nurses can deal with clinical questions, as well as signposting people to our services. They’re a lifeline for people who might be worried about a symptoms, undergoing treatment, or recovering from surgery. This year our Cancer Callback service has continued to go from strength to strength. This service offers patients going through treatment their very own dedicated Support Line nurse who will call at regular intervals. They’ll call at times that suit, including evenings and weekends. It’s an opportunity to ask questions about their treatment, discuss side effects or talk about any concerns or fears. This service is vitally important and makes a huge difference to cancer patients who, due to the pressures on the NHS, can feel alone or unsupported. Our nurses are on hand to make sure nobody falls through the net.
• Our nurse-led Support Line handled over 11,000 calls from people affected by cancer
In 2017/18 our free Support Line generated over £4.25million in Social Impact. This was through benefits like patients being able to self-diagnose, get advice quickly and over the phone, improving people’s feelings of self-worth and reducing levels of isolation and loneliness. There were also over £900k in Fiscal Savings to the Government and NHS through reductions in GP and hospital visits.
• 57% (6,319 calls) were proactive outgoing calls • Our nurses spent more than 920 hours on the phone • Our Cancer Callback service which operates in four Health Board areas, called 787 patients (up 22% on the previous year) • 52% of patients using the Callback service had a diagnosis of breast cancer
Service cost £287,202 Total Social Value £5,235,440
In 2017 a routine mammogram found that Lillian had breast cancer for the second time. As well as having her chemotherapy treatment on our Mobile Support Unit, she received regular calls from one of our Support Line nurses as part of our Callback service. In 2015 I was discharged from hospital after being diagnosed with hormone receptive breast cancer in “2009. For two years everything was fine but when I was invited to have my first mammogram since being discharged, the scan found an area that needed to be looked at closer. The result was a HER2 cancer diagnosis in the other breast - I had cancer for the second time.
It was more devastating because my son was getting married that month and I had to keep my diagnosis from people at the wedding; I didn’t want it to affect the celebration. The day before my son was getting married I was sat in the hospital having my pre-operation assessment. I had two operations to remove the cancer and because of the HER2 diagnosis I was recommended to have chemotherapy and radiotherapy. Tenovus Cancer Care rang me throughout my treatment as part of their Cancer Callback service. I had regular calls from a lovely lady called Elaine. One call after my treatment was to find out how I was doing, and while I was fine physically I wasn’t coping very well mentally. I’ve had friends that have not been so lucky and passed away as a result of their breast cancer - you can’t help but to feel a little bit of guilt. It’s difficult to explain, but mentally I was all over the place. During that time Elaine would talk to me about anything. It didn’t have to be about my cancer and I could talk to her like I was talking to a friend, and I really looked forward to our chats. I can’t put into words what a support she’s been. It means so much because I’m able to talk to someone that knows about my cancer diagnosis, who knows me and what I’m going through. There’s times where I’ve had the darkest thoughts that I couldn’t bring up with my family. I couldn’t imagine talking to my children about songs for my funeral but these are the things that go through your head when you get cancer. I needed to talk to someone outside of the family that I felt comfortable with, and that I couldn’t upset and I’ve had that with Tenovus Cancer Care. They’ve been superb.
Money Matters There are many hidden costs of cancer and we know that next to pain, worries about money are the biggest concern for cancer patients. Patients may have to reduce their work hours or stop working altogether. Occupational sick pay, and how long it’s offered for can vary wildly, and some people may only ever receive statutory sick pay. And as well as losing income, they may have additional costs like travel to hospital, heating bills or specialist equipment. Financial worries can make an already difficult situation, unbearable. Navigating the welfare system is complex for many people, even when they’re in good health. This coupled with complicated benefits forms that take time and knowledge to complete, can be understandably overwhelming for cancer patients who may be feeling unwell, tired or unable to concentrate.
This is where our Cancer Support Advisors (CSAs) come in. Our Advisors have helped people maximise their income and access financial support in the form of grants and benefits, essential for housing, heating and food bills. They’ve worked in communities across the country, providing support in 32 different outreach venues or over the phone, so everyone can get the help they need, no matter where they live. Thanks to funding by the Money Advice Service, this year we launched a brand new Money Management Service, with a specialist Debt Advisor. This service helps people with tackling debt, money management and budgeting. Our Advisor has supported people desperately in debt, and helped prevent people being evicted or having their possessions seized by bailiffs. We recognise just how important this service is, so we’re going to fund it next year, so we can support more people.
• We’ve helped people affected by cancer access £4 million worth of benefits (equating to £6.5 million annually)
Through our financial support services, we made almost £900k in Fiscal Savings to the Government by reducing poverty and economic deprivation. There was also over £4.7million in Social Impact by relieving the stress and burden of money worries, and helping people feel more in control. There were also benefits through improving people’s ability to pay for housing, reducing household debt, and helping them to manage their money better and save regularly.
• Our Advisors completed 3,097 assessments of which 156 were through our new Debt Advice Service • The total number of applications submitted for the year was 5,490; this was a 51% increase on the previous year • While the benefits and grants we’ve secured have given patients financial security, we continue to help service users to obtain blue badges to give them independence and freedom, and a better quality of life • We helped 65 people challenge unfavourable benefits decisions, made 31 appeals, and even prevented six people being evicted and made homeless
Service cost £820,110 Total Social Value £5,600,748
• Our Debt Advisor recovered over £600,000 for our clients by accessing money they were entitled to, or having debts written off • We’ve helped suspend a number of bailiff’s warrants by arranging alternative deductions or payment plans. This has saved our already vulnerable clients, the distress of having their possessions seized • We successfully retained the Advice Quality Standard (AQS) for another year. We continue to be the only cancer charity in Wales to hold this accreditation, which means that the advice we provide is of the highest quality
Meet Tracey Tracey lives in Blackwood with her husband Shaun, and two children, Connor and Maddie. Shaun was diagnosed with Mantel Cell Lymphoma in 2014 and Melanoma in 2018.
In March 2014 my husband Shaun noticed a lump in his neck and was told that it was an abscess. Our doctor provided antibiotics for a possible infection but it was our dentist that suggested it was something more serious. An X-ray showed nothing but a few weeks later another lump appeared. By the end of June, Shaun had four lumps around his head and neck. It was then he was diagnosed with Mantle Cell Lymphoma. As well as his head and neck, Shaun had tumours appearing in his groin and spleen. It all happened so quickly and was particularly dreadful because the tumours in his throat were making it difficult for him to eat anything. He lost a significant amount of weight; about three stone in all. Shaun had a bone marrow transplant followed by gene therapy in 2015. We were told that despite having other treatment, if he didn’t have the transplant his cancer would return within six months. There were days where Shaun couldn’t walk; he’d climb the stairs on his hands and knees. He was just exhausted and collapsed during his third session of chemotherapy. During this there was a period of a year and a half when he couldn’t work. Shaun had been a welder and I was working part time at the local school. We went from having a good income and living quite comfortably to living on just £70 a week with two children. It was a really crippling thing to go through. Tenovus Cancer Care helped us financially. On two visits for treatment we spoke with a member of their team, who showed us what we could claim and that was a big help. I could access tax credits, ESA and had information on reducing our energy bills with the providers. We’ve been raising money for Tenovus Cancer Care to say thank you. They kept me sane; without their advice and support I’d have really struggled.
We spoke with a member of their team, who showed us what we could claim and that was a big help.
Treatment closer to home For over nine years our Mobile Support Units have brought chemotherapy and lymphoedema treatments closer to home, giving cancer patients more time with the people they love. This unique service saves people time, stress and the extra costs of traveling to the hospital. It also relieves the pressure on overstretched hospitals, and acts as a gateway to all of our other support services. Demand for this innovative service has been increasing, so this year we’ve been fundraising for a third Mobile Support Unit so we can reach more people. We’ve reached our target thanks to individuals and organisations both big and small, with significant donations from principal funder Walk the Walk as well as Welsh Government, The Fairwood Trust, The Simon Gibson Charitable Trust and Carten 100. Our new Unit will be 60% bigger than our first, and we look forward to launching it in October 2018, and bringing chemotherapy closer to home for thousands more people. We’ve also had another wonderful donation from the Moondance Foundation to fund a fourth Mobile Support Unit, which will look to launch in 2019.
• Working in partnership with the NHS we’ve helped deliver 5,400 chemotherapy and lymphoedema treatments closer to home, in communities across the country
In 2017/18 our two Mobile Support Units created over £1million in Fiscal Savings to the Government and NHS by reducing demand on their services. This was through a reduction in hospital outpatient appointments and procedures, GP visits and cancer-related emergencies. The Units also generated nearly £425k in Social Impact by reducing patients’ stress and anxiety, and the money spent on travelling to hospital.
• Our two units travelled more than 19,000 miles • We welcomed more than 7,800 visitors on board • We started to build a new chemotherapy Mobile Support Unit that will be 60% bigger than our first, and have space to treat up to seven patients at a time • We continued to support the Cwm Taf Healthboard rapid access bowel clinic trial, nearly halving the waiting time for referrals. We’ve made it easier for people to ask questions about the signs of symptoms of bowel cancer, who otherwise might not have accessed any medical help
Service cost £394,539 Total Social Value £1,510,198
• We began exercise classes for lung cancer surgery patients as part of a pilot with ABMU Healthboard. Early results have been positive with some patients who weren’t able to have surgery, responding so well they are ready to, or have undergone surgery. And with the right support, some patients even moved from palliative to curative care - another great example of how we save lives
The team on board make it as pleasant as possible because they know what you’re going through.
David from Cwmbran was diagnosed with bowel cancer in 2014. Thankfully, he was able to have his chemotherapy on board our Mobile Support Unit just minutes from home, instead of having to travel miles for his treatment.
The type of cancer I’ve got can’t be cured but it can be controlled with treatment. I’ve been on and off chemotherapy for three years now and I’ll be going for chemo for the foreseeable future. The Mobile Support Unit has a nice atmosphere and finding parking is never an issue. There is even a lift to help those who need it and there’s always a member of staff waiting to meet you. Everyone you meet is up for a chat and you’re offered as much tea as you want. I was talking to another patient who walks there for her treatment! It really made me realise how beneficial it is to have the facility closer to home for people who would otherwise travel much further. Cancer treatment isn’t the nicest experience but the team on board make it as pleasant as possible because they know what you’re going through. They make it a little bit easier.
Meet Kevin Kevin was diagnosed with cancer of the tonsils in 2012, but joined our Swansea Sing with Us choir in 2013. As well as being an active choir member, he’s a fantastic fundraiser and has raised nearly £40,000.
Before cancer I was very focused on work and didn’t make much time for myself or my family. I was struggling with a sore throat and went to see the doctor who said it was tonsillitis. They gave me antibiotics but it didn’t clear. In late March 2012 the doctor brought me back in and gave me a biopsy. I thought that everything would be fine and that I would go back to work, but a few days later, they told me I had cancer. As a project engineer, I treated it like another project to tackle and said ‘let’s get on with it, what are my options?’ I started treatment at Easter with three rounds of chemotherapy and 35 doses of radiotherapy which was incredibly difficult. I was so weak in those first few weeks, I remember lying on the sofa and having to crawl across the floor to get to the bathroom. My wife and daughters were beside themselves because they didn’t know what to do. When I was in the hospital I saw a poster for the Swansea Sing with Us choir and my wife said it would be a good thing to do. As the receptionist in my dentist’s office was already a member, she encouraged me to join. That was six years ago and I still go every week. Singing together is an absolute joy and I love sharing the experience with the audiences that we perform for. The choir provides a supportive environment, it brings a sense of belonging, of wellbeing and always lifts my mood. For me, choir rehearsal and our gigs can’t happen often enough! I simply love it.
Support through Singing This year our Sing with Us choirs have continued to grow and we welcomed more people affected by cancer than ever before to one of our rehearsals. Around 1,700 people sang with us every week and our choirs reached communities far and wide, through hundreds of concerts and performances. As well as stopping people feeling isolated and lonely, research we published in 2016 shows that singing and being part of our Sing with Us choirs helps reduce stress, anxiety and depression. It also has a positive impact on biological markers related to immune function and inflammatory response, which have been linked to the body’s ability to fight cancer. We wanted to understand this more and this year saw the culmination of the data collection for the research conducted with the Royal Marsden in our Sing with Us London and Sutton choirs. With all data collected, the analysis phase has started and we look forward to receiving the full research report and findings later in 2018. With the research, and therefore the funding for London and Sutton, ending during the year we had to review our current financial situation and the benefits of these choirs continuing. This was in addition to Sing with Us Guildford, where the three-year private funding from Astellas came to an end. Following this review and a number of attempts to find additional funding, we made the difficult decision to close Sing with Us Guildford, but were able to secure the short to medium future of the Sing with Us London and Sutton choirs. This means we will continue with a total of 18 choirs at this present time.
This year • We supported 1,731 cancer patients and people affected by cancer regularly through the year, while a total of 2,121 have attended a rehearsal during the year. This is our highest recorded membership to date • The number of choir members who have or have had a cancer diagnosis has increased to 30% • Throughout the year, the Sing with Us choirs performed at 320 gigs or events, continuing to raise awareness and donations
Social Impact In 2017/18 our Sing with Us choirs created over £3.25million in Social Impact by reducing isolation and loneliness, improving people’s confidence and giving them a regular hobby and being part of a social group.
Service cost £487,984 Total Social Value £3,295,841
• Our Cwmbran, Carmarthen, Abergavenny and Bridgend choirs all celebrated their 5th birthdays
Support with mental wellbeing Due to financial constraints, in 2017/18 we made the difficult decision to close our counselling service. The costs of one-to-one counselling meant we were struggling to reach as many people as we’d have liked. So we looked into alternative forms of support which would mean we could help many more people. This lead to us working with clinical psychologist Professor Neil Frude, to develop and launch ACTivate Your Life – Affected by Cancer, a course specifically designed for people affected by cancer, on how to take control of their mind. The courses are delivered over four weeks and are presented by trained volunteers. Each session is two hours long, and focuses on different aspects of Acceptance and Commitment Therapy (ACT). Over the sessions, people learn to separate their thoughts and feelings, to focus their attention on what can be changed, mindfulness techniques, and ways to live wisely and well. We ran our very first course in March 2018, with more to be rolled out in 2018/19 with the aim of reaching as many people affected by cancer as possible.
This year • We made sure everyone on our counselling waiting list received the support they needed and delivered 1,417 sessions • We developed our new ACTivate Your Life service and ran our first course • We recruited and trained 17 volunteers to run our ACTivate your Life service. They’re a mix of patients, students and existing service users who will help us bring this service to life
Meet Deb Deb lives near Usk with her husband Ed, and their two children. She was diagnosed with rectal cancer in spring 2018 and got in touch about our ACTivate Your Life - Affected by Cancer course.
In the beginning I felt very lost. Despite everyone saying it would be alright, my world was ending and I just needed someone to talk to. I had to do something for me and I knew it had to be something mindful; something that would stop the demons talking to me. Even when you know you’re going to get through this, some days you feel like you just need a good howl. You get to the point where you feel like you don’t want to keep talking to your family and friends because you feel like you’re burdening them. Sometimes people will ask how you’re feeling and you’ll say you’re fine, even if you aren’t because it can feel like you’re always miserable. It’s important to know that there are places you can turn to.
Between my radiotherapy and the surgery I contacted Tenovus Cancer Care about the ACTivate Your Life - Affected by Cancer course. They were so lovely and the emails I got back were kind and welcoming. What surprised me was that the course doesn’t focus on the cancer. It helped me to understand the power of my brain in making situations seem worse than they are or how I might dwell on negative thoughts. There’s a lot to go home with; you’re given the tools and techniques to help manage your thoughts, and little prompts to put those into action. It’s really been about revisiting those times where I’ve avoided doing something and allowed me to ask if it really is the cancer that has prevented me from doing it or whether it’s my mind that’s said ‘you shouldn’t do that’. I’ve been able to question what am I going to do differently and how am I going to push myself a little more. Since doing ACTivate Your Life - Affected by Cancer my life has changed considerably. Reflecting on my life over a couple of weeks has made me think about a longer term plan; what am I going to do after the chemotherapy treatment has finished? I’ve worked all my life and I feel like it’s time to reconsider what I do, and I’ll be looking to do some volunteering with Tenovus Cancer Care.
A future without cancer, and a better today The Tenovus Institute for Cancer Research, based at the University Hospital of Wales, was opened by HRH Princess Margaret on the 14th April 1967. Since then, the Institute has made a number of cancer discoveries, from finding that the contraceptive pill was particularly effective at halting the growth of certain breast cancers (Tamoxifen), to playing a key role in the research and clinical trials that led to the drug Zoladex - a common therapy for both breast and prostate cancer patients today. We have found new ways to diagnose cancer and better ways to treat it, while making life easier for people living with cancer.
Today we fund a range of research projects, not just in the lab, but in the community too. These include PhD and KESS studentships, and iGrants. We want to raise awareness of our work and highlight the difference it makes to people affected by cancer, so it’s important for us to communicate the impact of our research as widely as possible. This year our Research Engagement Officer helped raise the profile of our research amongst our supporters, academics and the general public including schools. We also held events at Green Man Festival and at Techniquest Glyndwr, where we spoke to 900 people. We also supported our PhD students to attend national and international conferences, so they too can raise awareness of our research, and supported over 50 engagement activities.
My PhD research is part funded by Tenovus Cancer Care via the KESS 2 scheme. My work is focussed on prostate cancer which is the second major cause of cancer-related deaths in men, accounting for over 300,000 deaths per year worldwide. The prostate is reliant on hormones called androgens such as testosterone for growth and development. If you get rid of these androgens you could assume that tumours would shrink but many men with advanced prostate cancer develop castrate resistant prostate cancer, and survival is very poor. What I am hoping to do is look into a certain signalling pathway and pick out the parts of it that are driving castrate resistant prostate cancer. This will hopefully lead to the development of new treatments for cancer patients. I always wanted to do something that would give back to people. Cancer affects millions of people worldwide and if I can make some small difference by advancing our knowledge and helping people then I think that’s a great thing do to. Tenovus Cancer Care do amazing work raising awareness, making treatment more accessible and providing support to cancer patients and their loved ones and it’s been great to get involved with the engagement work they do.
This year • We monitored 50 active grant awards, amounting to £2,179,866 worth of research over the duration of the award • Our call for iGrants applications received 35 ‘Expressions of Interest’. These were then reviewed by our Research Advisory Group and a panel of experts, who recommended six new projects for funding. These will start on 1st April 2018 with a total investment of over £186,796 • We approved funding for five KESS projects taking our total of active KESS studentships to ten • We completed the second year of our extended More than Singing research project, with over 160 participants enrolling through the Chelsea and Sutton Sing with Us choirs. All the data is being analysed and we look forward to sharing the results next year • We reviewed and overhauled some of our procedures, practices and reporting methods in order to ensure our systems are as robust, transparent and equitable as possible. This has improved the quality and relevance of applications, and also allowed for better reporting of outputs • We worked closely with National Cancer Research Institute’s (NCRI) Patient Public Involvement Steering Group and remain an active member of the Association of Medical Research Charities (AMRC) • We developed our new “Research Strategy Grants” funding stream which will help us develop our services and activity provision, and use our resources more effectively. We look forward to launching these in 2018/19
PhDs Over the years we’ve funded over 250 PhD studentships in cancer research, both in the laboratory and in the social sciences. We look for projects that find the best methods of preventing and treating cancer in the future, as well as addressing issues currently faced by people affected by cancer.
iGrants We’re committed to putting the needs of people affected by cancer at the heart of everything we do. That’s why we conduct and support research which involves patients, carers and healthcare professionals. Our iGrants scheme selects and funds high-quality research that makes a real difference, by identifying projects that provide practical solutions to the issues faced by people affected by cancer today. They’re reviewed by our Research Advisory Group (RAG), made up of people who have a direct experience of cancer.
KESS The Knowledge Economy Skills Scholarships (KESS) is a major European Convergence programme led by Bangor University on behalf of the Welsh higher education sector. KESS offers collaborative research projects (Research Masters and PhD) linked with a local company partner.
Evaluating our impact It’s important that our services are robustly evaluated to make sure they meet the needs of the clients who use them. As we offer a range of support services, we use an equally varied set of evaluation tools and methods to scrutinise them, and make sure our support is the very best it can be. We sample patients, family members and professionals so that we evaluate based on feedback from all the groups that might potentially access our services. In the last 12 months, we have again surveyed many of our own services to measure satisfaction and areas for improvement, which will help guide our services in 2018/19. As well as our services, we continue to focus on the reporting and evaluation of our research, to assess its impact and make sure it best meets the needs of cancer patients. It’s so important that we use the money we receive to fund excellent research that meets the needs of cancer patients and their loved ones. To achieve this, we require all our grant holders to sign terms and conditions so that we can make sure projects proceed as planned. We also use specialist online reporting tools to collect information, which is then reviewed by one of our independent scientific committees and our Research and Patient Services Committee, allowing us to accurately assess the impact of the research we fund.
A voice for change Tenovus Cancer Care is passionate about representing the needs of cancer patients and their loved ones - being a voice to champion their cause. We continue to push for major investment in infrastructure and in the diagnostic workforce to effectively catch cancer at the earliest possible stage. Our in-house Policy Officer is responsible for identifying evidence-based interventions and works with policymakers and planners within the NHS to make sure the best evidence is being put into practice. Linked closely to decision makers, he ensures people affected by cancer have a say in major decisions. On sabbatical to the Welsh Government for the first half of the year and having returned to Tenovus Cancer Care in September, our Policy Officer spent the second half of 2017/18 reviewing and updating the charity’s policy positions so that they continue to be up-to-date, robust and truly reflect the needs of people affected by cancer. This piece of work will be completed early next year and will put the charity in a strong position to work with the various political parties as they start to develop their manifestos in 2019, in preparation for the elections in 2021.
This year • In addition to reviewing our policy positions, we effectively held the Welsh Government to account on their commitments to a £85million New Treatments Fund and reform of Individual Patient Funding Requests (IPFR) • Following our lobbying work in 2016/17, we welcomed the introduction of HPV vaccine programme for men who have sex with men, up to the age of 45, in the hope of preventing HPV infections from spreading • We continued to be an active member of the Wales Cancer Alliance, a platform to scrutinise the development of Welsh Government policy and shape the future development of cancer delivery plans. We played a full and effective role in shaping the future of the Alliance, helping to redesign their policy positions and repositioning the organisation for the future • We developed new partnerships with patient groups, and started discussions with another organisation on an awareness campaign that will focus on the importance of early diagnosis, the need for which has been outlined above. The benefits of this work will be seen later in 2018
Promoting healthy lives Research shows that around 40% of all cancers in the UK could be prevented by simple changes to lifestyle. And Wales has one of the highest incidences of cancer and some of the poorest survival rates in Europe. Unfortunately bad health habits like smoking and drinking too much alcohol, eating a poor diet, and not being safe in the sun or getting enough exercise, are very common and have a huge impact. This is why we work so hard in communities across the country to empower people make changes to reduce their risk of cancer. We also work to raise awareness of the signs and symptoms of cancer, so people are diagnosed sooner and have better chances of survival.
Social Impact In 2017/18 our prevention campaigns created nearly £450k in Social Impact through improving overall health, relieving health problems that limit people’s ability to work, enabling individuals to self-diagnose and improving feelings of self-worth. There are also financial benefits to smokers by quitting.
Service cost £167,223 Total Social Value £482,972
By raising awareness and changing people’s health behaviours today, especially younger people, we hope to prevent a lifetime of ill-heath which has much wider implications than just cancer. These simple changes could save the NHS millions of pounds in the future and save thousands of lives.
Staying safe in the sun Skin cancer is the most common cancer in the UK. Our sun awareness campaign Here Comes the Sun raises awareness of practicing good sun safety and how to spot skin cancer early. Each year the campaign is supported by our Sun Cream Van and a team of dedicated sun safety advisors who give out sun cream samples, advice and information at schools, on beaches and at events.
This year • We attended events and festivals out in the community • We had 1,793 sun safety conversations over the course of the campaign • Through call-backs, we followed up a sample of participants to determine whether our campaign made a difference. From these call-backs, nearly 84.7% reported they had made a positive behaviour change. This is a 17.4% increase compared to last year which is very encouraging • We engaged with younger people by visiting 28 schools and colleges in South and West Wales. The campaign was adapted to make it more accessible, fun and interactive for children. By instilling good sun safety from a young age, we can reduce their cancer risk as they get older
Meet Jane Jane was diagnosed with a melanoma in 2009 which reoccurred in 2013. Due to a delay in her referral, Jane’s second melanoma was removed eight months later and her cancer had metastasized. Jane now volunteers with our ‘Here Comes the Sun’ team to provide information and advice to schools and the public about how to stay safe in the sun.
In 2009, I had a mole on the right hand side of my neck that had changed. My mum said that I should get it checked out because it looked unusual. My son who was 18 months old was touching it all the time, and as he got older started to ask what it was. I hadn’t been concerned about it because I’m not what I would call a sun-worshiper but I found an old photograph where I was holding my son and looking at it I could see the mole had changed. My GP sent me to the Royal Gwent Hospital in Newport. I saw the dermatologist there who took one look at it and half an hour later I was with the plastic surgeon to have the mole removed. I assumed that he thought it was something and felt so glad I had gone. The tests came back within two weeks and confirmed it had been a melanoma. They then had to do a wider local excision which takes away more of the tissue from the margins around where the mole had been to make sure that all of it had been removed. I was on a three year follow-up after that, returning to hospital once every six months to have the site and the surrounding area checked to make sure it hadn’t come back. In December 2013, I was washing my hair when I felt a small hard lump underneath my right earlobe and I just thought ‘it’s come back’. I went to a GP who said that it was probably just my glands due to a cold or flu and told me not to worry about it. I went back to the doctor in the January because I thought it had been getting bigger and he suggested that it was because I was run down and stressed. In February, the lump was still there and I went back to the doctor a third time to insist that I was referred or to ask to see another GP. I was reluctantly referred for an appointment in mid-March to a consultant, followed by an ultrasound and a biopsy that later confirmed that I had melanoma in my lymph node and the lower part of my parotid gland. I was called to have a neck dissection; an operation to remove all the affected lymph nodes and to take out the lower part of the parotid gland which went ahead in August 2014. My cancer was stage three and had metastasized. When I think that I had first noticed this in December 2013, I wonder how much worse it was eight months later just because my GP had been reluctant to refer me. For melanoma the treatment is to have it removed and depending on where it is will affect how successfully they can get it out. My scar runs from the top of my ear and ends at the front of my neck, it’s quite big and the damage to nerves has left the surrounding area numb. Because I had my lymph nodes taken out, the lymph fluid that can’t drain off naturally collects around my jaw. In the mornings I wake up looking like I have gone ten rounds of a boxing match; my eye and face will be swollen where I have laid down to sleep and I’d have to push it around to distribute the fluid more evenly. I would often look at the Tenovus Cancer Care website to see if there are any opportunities to help and came across a position for their ‘Here Comes the Sun’ campaign and thought ‘brilliant’. I could spend my time telling people what I’ve been saying since having my cancer anyway; about being safe in the sun and how beneficial that could be. Having been a college lecturer before I’m used to teaching and going into schools and that’s really where we need to get this message across so that sun safety becomes a habit for life.
Kicking the habit Smoking is still the biggest cause of preventable ill health in Wales with 19% of the population still smoking. Our annual Quit with Us campaign, which focusses around No Smoking Day in March, aims to support people who want to quit by providing free samples of Nicotine Replacement Therapy (NRT), through local pharmacies.
This year • We worked with Sheppards pharmacies and two independent pharmacies in South Wales • We visited workplaces and spoke to staff about trying to quit • We held 273 brief interventions for smoking cessation with 86% of people indicating that they wished to attempt to quit smoking • Follow-up calls were made to a sample of those participants, of which 69% had made a total or partial attempt • In total, 176 NRT packs were dispensed by pharmacists at their pharmacy or in a corporate • We developed the use of social media as part of our campaign and held a ‘Facebook Live’ Q&A session, and set up a Facebook group to connect people who were trying to quit, so they could share stories, advice and support one another
Positive behaviours As well as our key campaigns around sun safety and smoking, we also addressed other lifestyle behaviours.
This year • Thanks to funding from Cancer Research UK and Yorkshire Cancer Research, we continued to develop our Health Check in partnership with Cardiff University. This third phase of development aims to robustly test the effectiveness of the Health Check using a random control trial model. During the coming year, and as phase three continues, we will be looking to adapt our Health Check using the feedback from phase two, making it as good as it can be to support people affected by cancer • We worked to raise awareness of the link between obesity and cancer by piloting a weight management project in Glynneath with funding from the Maesgwynn and Selar community funds. The project called ‘Foodwise for Life’ is an eight week structured programme which utilises evidence-based approaches to weight management. The programme was designed and evaluated by Nutrition Skills for Life ABMU Health Board, and was delivered in Glynneath by trained Foodwise community facilitators supported by our staff. We are now in the process of training more staff to deliver more courses in more areas across Wales • We worked in partnership with organisations including Public Health Wales, Communities First, Local Health Boards, local councils, GP surgeries, Community Pharmacy Wales, schools, colleges and workplaces, to promote positive health behaviours with hard-to-reach or high-risk groups. Working in partnership means we can reach more people and helps precious resources go further
With a little help from our friends We’re only able to achieve everything we do thanks to our amazing people. Our volunteers, fundraisers, supporters and staff make our work possible. Thanks to their generosity, we’ll be able to support cancer patients and their loved ones for many more years to come. And we really can’t thank them enough. We’re committed to being a great place to work and volunteer. We recognise the direct link between how satisfied and happy our people are, and our ability to provide outstanding support to people affected by cancer. That’s why we work hard to make sure our people feel valued and engaged with our work.
I started volunteering at Tenovus Cancer Care to gain more experience and skills within the Events Team. After two months a position became available and I jumped at the chance to become a member of staff. Now every day I look forward to coming to work. My role is fun and varied, with no two days being the same. I love getting to work on a wide range of fundraising events, alongside some incredible people. It’s so rewarding working at Tenovus Cancer Care and knowing that I’m helping to bring in the money needed to fund vital services, which support thousands of cancer patients and their loved ones.
Our volunteers and staff This year we’ve benefitted from the invaluable support of our volunteers who generously donate their time. They help us in so many ways including welcoming people to our Mobile Support Units, giving talks in the community, fundraising, helping in our offices, and in our network of shops. Our success relies on our talented and motivated people and we continue to recognise and celebrate the vital contribution they make. Recruiting and retaining the right people is key to keeping our charity running smoothly and efficiently. We’re continuing to work hard at attracting the right people for the right roles, and making sure we get the best out of everyone.
• Our volunteers donated an amazing 300,000 hours
As well as making sure we’re able to deliver our cancer support service, our volunteers have a huge impact on the wider community. In 2017/18 our volunteer programme created £900k in Economic Benefits. As well as this, there was £1.5million in Social Impact, generated by improving our volunteer’s confidence, self-esteem, skills and employability, as well as reducing isolation, raising their career aspirations and even improving their physical health.
• 526 new volunteers joined us or supported us at our events • We increased the number of hours volunteered in our shops. Over two thirds of our volunteers help us in our shops and their support is vital in helping achieve our income targets • We celebrated the amazing work of our volunteers at our 5th annual Volunteer Awards • We worked closely with local colleges, Universities and local partners attending job fairs, taking part in career panels, and working together on consultancy projects. This has allowed us to promote the organisation, learn from students about ways we can improve our services and recruit and attract new people • We worked with local businesses and external providers to run a local Opportunities event aimed to promote working in the third sector. This helped us broaden our volunteer base, build community partnerships and helped staff and volunteer engagement • We launched our Recognition Guide to help us acknowledge the contribution of staff and volunteers, consistently and equitably
Total Social Value £2,486,431 Tenovus Cancer Care employs around 200 staff across Wales and England. Through this employment we helped create nearly £1.5million in Fiscal Savings to Government as well as over £2.1million in Economic Benefits. There was also around £8million in Social Impact through improved wellbeing associated with employment such as confidence, self-esteem, aspirations, motivation and employability.
Total Social Value £11,597,806
Kenneth has been volunteering at our shop in Maesteg since it opened. After being diagnosed with lymphoedema, he now has his treatment on our Mobile Support Unit, so knows first-hand, what a difference our services make.
I’ve been volunteering with Tenovus Cancer Care since 2012 after seeing an advertisement for volunteers in their shop window. I wanted to volunteer to help get me out of the house at the weekends and to give back to a cancer charity for the care my parents had received during their cancer treatment. My dad died of oesophageal cancer in his sixties and my mother had cervical cancer. I started volunteering two days a week while I was working, but then went to six days a week once I finished work. I help out with all aspects of running the shop from steaming the clothes to serving customers at the till. Twelve Months into volunteering I was diagnosed with Lymphoedema and I now go to Tenovus Cancer Care’s Mobile Support Units for my treatment. Initially I went to Singleton Hospital, but I don’t drive, so would have to take four buses to get there. I was leaving at 7am and getting back home at 8pm. Now I go to the Mobile Support Unit and it’s much easier – just one short bus journey It feels great to give back to the charity through volunteering. I’ve made a lot of new friends in the time I’ve been volunteering here and everyone is really lovely.
Raising funds and having fun Despite another tough year for the third sector as a whole, thanks to the hard work, generosity and enthusiasm of our supporters, we were able to raise over £9.5million last year. Total like-for-like income was up by £622,706 compared to the previous year, and our Closer to Home Appeal exceeded its £1million target to fund the build and contribute to the running costs of a third Mobile Support Unit. As usual we’ve had to work hard to raise these vital funds, and we’ve looked at different ways of generating income, to reduce costs, and how we can make existing channels more sustainable.
This year • Our Closer to Home Appeal Committee, raising money for a third Mobile Support Unit, helped to secure substantial pledges from the Walk the Walk Foundation, Welsh Government, the Fairwood Trust, The Simon Gibson Charitable Trust and Carten 100, as well as smaller contributions from a large number of businesses • We also had another wonderful donation from the Moondance Foundation to entirely fund our fourth Mobile Support Unit, which will look to launch in 2019 • We achieved our goal of becoming more efficient, and were able to reduce our total (income generation) costs by £348,482 • During our annual Free Wills Month in March, 401 Wills were written which included 208 Pledges • Our Breast Cancer Awareness Month campaign raised over £45,000, more than ever before and we held 34 bucket collections across the country • We changed our lottery provider to Make a Smile, a not for profit lottery operator owned by St. Helena Hospice, which increased our return on each £1 played from 50p to 75p • Our new Light up the Night fundraising campaign generated £17,000 • We grew our Friends of Tenovus Cancer Care groups, setting up two new groups in England (Southampton and London) along with a further two groups in Wales, bringing the total number of Friends of Tenovus Cancer Care groups to 32 • Our Friends groups raised an incredible £140,000 out in the community, as well as promoting our services and raising awareness • Our 17 Lovelight concerts raised £28,000 out in the community • Our 65 shops in Wales and England were our voice in the community and raised £5.8million, as well as promoting our services, events, and campaigns. • By reducing running costs and increasing income, we increased our net profit by 17% on last year
Gillian had surgery for bowel cancer in 2012, but a follow-up colonoscopy and scan a year later found secondary cancer that had spread to her liver and peritoneal. Rather than let her diagnosis define her, Gillian is living life to the full and is an active member of our Llandudno Friends of Tenovus Cancer Care group, Sing with Us choir and has set herself a fundraising challenge for her 60th birthday year.
I’ve used nearly all of Tenovus Cancer Care’s services! I’m a member of my local Sing with Us choir, I’ve had financial and employment advice and I’ve had emotional support. They’re such an amazing charity and have played a vital role in my cancer journey. I’ve been involved in the Llandudno Friends of Tenovus Cancer Care group since it started. We organise events and bucket collections to raise money and awareness. I’m very open about my cancer and want to help as many people as possible. I always tell people to get in touch with Tenovus Cancer Care. Having cancer is awful but we need to tell the positive stories! There was a time I was thinking I wouldn’t be able to see my son graduate or even see my 60th Birthday and I feel so lucky and privileged that I’ve seen both! Being able to reach this special milestone in my life got me thinking seriously how I could best celebrate life, living and still being here. I wanted to celebrate by challenging myself - I’m not a walker and I don’t like heights so I’ve decided to take on 60 mountains in my 60th year and raise money for Tenovus Cancer Care. My sister comes along and supports me and doesn’t make it easy for me, leading me up the steepest paths and avoiding the easy route. She’s challenging me. When I get to the summit I feel like I’m on top of the world and I’ve seen so many new local places and stunning scenery despite living in North Wales most of my life. This is my chance to give back to a charity which is very close to my heart. They’ve given me so much support over the past six years, and continue to do so. 32
Where the money comes from 2017/18 Income
60% Retail & trading activities 26% Trusts & grants 6% Donations & gifts 5% Legacies 2% Corporate 1% Investment income
Where the money goes 2017/18 Charitable spend
70% Support services 26% Research 6% Campaigns & policy
2017/18 Support Services
38% Cancer Support Advisors 23% Sing with Us Choirs 18% Mobile Support Units 13% Support Line 8% Counselling / ACTivate your Life
Affected by Cancer 33
We couldn’t do it without you We’re so grateful to all the people and organisations that make what we do possible. There are simply too many to list here, but you know who you are, and we thank you. Our Royal Patron HRH The Princess Royal
Our Patrons Rob Brydon
Laurence and Jackie Llewelyn-Bowen
Our Trustees Professor Malcom Mason - Chairman Richard Sims - Chairman (Resigned 27th March 2018)
Nigel Williams (Resigned 20th March 2018) Simon Evans
Professor John Lazarus - Deputy Chair (Resigned 19th June 2018)
Michael Borrill - Deputy Chair
Professor Geraint Williams
Dr Annie M Procter
Dr Melanie Goward
Professor Deborah Fitzsimmons
Hugh O’Sullivan (Appointed 26th August 2017)
Our Closer to Home Committee Sam Warburton, Appeal Patron
Brian Lakin, Appeal Chair
Community & Corporate Supporters Allens Printers Asda Bridgend Asda Green Token Schemes Beauty Advance Clinic Brickability Candyshop Burlesque Cardiff International Airport Carten 100 Coffee #1 Concrete Society Co-op Community Fund Co-op Cyncoed, Llanishen & Rhiwbina Davies Homes Dragon Signs Ferrier Hart Thomas Genero Productions GoCompare Ltd Huntleigh Healthcare Hutchings & Thomas Inner Wheel Tywi Carmarthen John Lewis Cardiff Kinetic Cubed Llanmoor Homes Linc Cymru Llanederyn Post Office Llanishen Police Mayor of St Asaph Medi Wales Mermaid Quay Merthyr Steam Coal (Miller Argent) Mint Velvet Morrisons Llanishen Nathaniel Cars National Eisteddfod N-ergy NFU Mutual - Bridgend and the Vale Open University Wales Ospreys Rugby Persimmon Homes Community Fund RLE Law Royal Welsh Agricultural Society Rotary in Southern Wales RPM Shopfronts SA Brain & Co Santander Bank Cardiff Sears Seating
Sigma 3 Kitchens Spindogs Tata Steel Tesco Bags for life The National Botanic Garden of Wales Thomas Recruitment Tiny Rebel Traveline Cymru Trivallis Vale Europe Watches of Switzerland, Cardiff Watkin Jones community fund Western Power Distribution Wildflame Productions
Charitable Trusts and Funders Amser Justin Time Ashley Family Foundation Big Lottery Grant Fund Fairwood Trust Forest Hill Charitable Trust G M Morrison Charitable Trust Garfield Weston Foundation Hodge Foundation Maesgwyn Commmunityy Benefit Fund (Glynneath) Money Advice Service Moondance Foundation Next Retail Foundation Pen y Cymoedd Micro Fund Pink Ribbon Foundation Selar Community Benefit Fund (Glynneath) Simon Gibson Charitable Trust St Jamesâ€™s Place Foundation The Dâ€™Oyly Carte Charitable Trust The Ed Evans Foundation The G C Gibson Charitable Trust The Hoover Foundation The Mary Homfray Charitable Trust The Masonic Samaritan Fund The Waterloo Foundation Walk the Walk Welsh Government Welsh Government Frontline Advice Service Grant WRAP 35
Friends of Tenovus Cancer Care Groups Aberdare Abergavenny Barry Barry Buddies Blackwood Bridgend Cardiff South Cowbridge Crofty Letterston & Treletert Llandeilo & Dinefwr Llandudno Llandybie Llanidloes London Maesteg Magor, Caldicot & Chepstow Merthyr Tydfil Morriston & Llangyfelach Pembrey & Burry Port Penparc Pontypridd Radyr & Morganstown Rhiwbina Ruthin & Denbigh Staff Sutton Swansea Tenby Tonna Tugsticular Wrexham
Thank you to our Tenovus Cancer Care London Committee and our Tuesday Club members.
If you or someone you know has cancer,
Reg Charity No. 1054015
Read our 2017/18 Impact Report to see how we've been making a difference for cancer patients and their loved ones, and funded life-saving ca...
Published on Sep 1, 2018
Read our 2017/18 Impact Report to see how we've been making a difference for cancer patients and their loved ones, and funded life-saving ca...