Impact Report 2015/16
Making a difference to cancer patients and their loved ones in the heart of your community.
Give hope. Help cope. tenovuscancercare.org.uk
Contents A message from our Chair and Chief Executive ............................ 1 Our aims .............................................. 4 Our Cancer Support Services ......... 5 Half a century of research ................ 17 A voice for change ............................. 21 Prevention is better than cure .......... 23 With a little help from our friends ...... 27 Where the money comes from .......... 31 Where the money goes ...................... 32 We couldnâ€™t do it without you ............ 33
Give hope. Help cope.
A message from our Chair and Chief Executive It’s been another busy and successful year for Tenovus Cancer Care. In the last 12 months we’ve increased the breadth of our services so we’re supporting more people in more communities. We’re building stronger partnerships with Health Boards across Wales, developing our services to complement NHS care, and working more closely with healthcare professionals. By doing this, we’re able to give patients better experiences and the very best care. Demand for our services has been increasing this year; particularly for our Cancer Support Advisors. Applications for benefits, grants or allowances rose by more than 40% on 2014/15, helping us to claim £3.5 million on behalf of cancer patients and their loved ones. This is money that was desperately needed and people would have struggled to access without our help. Our Support Line nurses handled around 13,000 calls this year - more than ever before. They were at the end of the phone every single day so that anyone worried about cancer had someone to talk to. We have qualified counsellors so no-one has to face cancer alone, and this year they listened for more than 2,500 hours, supporting people through diagnosis, treatment, bereavement and beyond. In January 2016 we expanded our Sing with Us service and launched our second Cardiff choir. We now have 17 choirs across Wales and England and support almost 1,000 people every week. Being part of our Sing with Us choirs makes a huge difference. It’s somewhere to have fun, meet others in a similar position, and learn something new that really does help people to cope. We also carried out a research study with the Royal College of Music in London to see if singing in a Sing with Us choir has measurable biological effects. These exciting results have now been submitted to a peer reviewed journal and will be published in the coming year. Over the last 12 months we’ve used our innovative Mobile Support Units to bring cancer treatment and care to even more people. We saw nearly 1,000 patients and gave 4,432 treatments. We’ve also increased the range of chemotherapy treatments we can deliver. We’re now able to treat patients with blood cancers, which make up about 15% of all cancers. In September we launched the world’s first mobile lymphoedema scanner, meaning nurses can recommend patients for ground-breaking surgery that can help improve their condition, and give them back their quality of life. This year, figures were released by Public Health Wales and the Welsh Cancer Intelligence & Surveillance Unit (WCISU) stating that cancer cases in Wales have risen by 14% in the last ten years. As well as this, the UK Lung Cancer Coalition (UKLCC) showed that Wales has the second worst lung cancer survival rate in Europe and that the number of women with lung cancer has increased by more than a third over the last decade. These figures really do highlight the importance of not only our support services, but our cancer research, healthy lifestyle campaigns and policy work. 2015 saw the charity celebrate an incredible 50 years of cancer research, and this year we’ve funded over £1 million through our PhD Studentships and iGrants. We’re funding some of the most cutting-edge projects like immunotherapy, as well as research that supports people affected by cancer today.
One of these projects was ‘Let’s Talk Cancer’ in partnership with the Institute of Welsh Affairs (IWA), which asked the people who know first-hand about cancer care in Wales, how their experiences could have been better. The findings from this have helped inform our Tenovus Cancer Care manifesto. We couldn’t have done any of this without the support and enthusiasm of our wonderful volunteers who continue to drive our organisation. This year they gave 260,000 hours of their time, supporting every part of the charity. And of course as well as our volunteers we must recognise the fantastic commitment, support and generosity of all our supporters, our Patrons, Trustees and staff. Every hour volunteered, every penny donated, every pound spent in our shops and every fundraising event held, is what has made our work possible.
Thanks to them we’ve been able to support more cancer patients and their loved ones than ever before.
Claudia McVie Chief Executive
Richard Sims Chair of the Board of Trustees
e r a c
t r o p sup
h t l a he researc h
Our Mobile Support Units travelled more than
Our free Support Line handled 42% more calls than in 2014/15
40,000 miles bringing treatment closer to home
Our volunteers gave an amazing
260,000 hours of their time.
Thatâ€™s nearly 30 years!
Our ManVan travelled
Our counsellors listened for
2 5 3 9 hours
helping cancer patients and their loved ones cope
We gave out
Nicotine Replacement Therapy packs to help people quit
smoking 1. 3
further than last year.
miles around Wales We also welcomed 1,874 visitors on board.
sang their hearts out, at one of our
Our aims We funded over
of life-changing research to bring a future without cancer, a little closer
Tenovus Cancer Care brings practical advice, emotional support and treatment to where it matters most; the heart of the community. We help people with cancer and their loved ones cope, and through our vital research, we offer hope. Everything we do is based on the aims below:
conversations about being
safe in the
To provide support and treatment to people with cancer and their loved ones, closer to home in unique ways. To represent the needs of cancer patients and their loved ones. To conduct and fund research to improve cancer outcomes and experiences. To work with communities to develop healthy lifestyle programmes.
We helped access
£3.5 million in beneﬁts and other entitlements, helping to make ends meet when things were tough
Our Cancer Support Services Every year around 19,000 people in Wales are diagnosed with cancer. That’s 52 people every day. And sadly, that number is increasing. This year, figures were released which showed cancer cases in Wales have risen by 14% in the last ten years. That’s been reflected in the number of people we supported and this year our Cancer Support Team helped 15% more new clients than last year. We are different from many other cancer charities as our services are there for anyone affected by cancer. We know a cancer diagnosis affects the entire family; that’s why we support not just the patient, but also their family and friends too.
meet Liz & Gordon Liz was diagnosed with breast cancer in 2013 and Gordon was diagnosed with prostate cancer in 2014. They run a Great Dane rescue centre in Carmarthen and were both supported by our nurses through our Cancer Callback service. “Tenovus Cancer Care has supported both of us. From the very beginning after I had my mastectomy, and the very day Gordon was diagnosed with prostate cancer. They were with us every step of our journey.
“It was so reassuring to know that someone was at the other end of the line to answer all the questions we had. We’re so busy with the dogs, it was good to know that the nurse would ring us at a time that was convenient. The fact that she knew all about the problems we were facing, meant she could give us the best advice.”
All you’ve got to do is call Our Support Line is free, confidential and staffed by experienced nurses 8am to 8pm, 365 days a year, so that anyone frightened or worried about cancer always has someone to talk to. We provide information, practical advice and emotional support, and can answer all types of questions about all types of cancer. Our Cancer Callback service means cancer patients get a dedicated Support Line nurse, who calls them throughout their treatment at times that suit them, including evenings and weekends. Many of the patients we call don’t have a Clinical Nurse Specialist or may not have been told who their cancer key worker is. So our Support Line can be the only place they can get questions answered, talk about their concerns and get reassurance from a nurse. We’ve expanded this service into three Health Board areas, so we’re now able to offer it to even more cancer patients in Wales.
This year: We handled over 13,000 calls through our Support Line, so anyone worried about cancer had someone to talk to The number of calls handled was 42% higher than 2014/15 Nearly 50% of calls were proactive calls by our nurses 59% of calls were to or from people over 50 (many of whom have no other sources of support) Our nurses spent more than 1,000 hours on the phone Over 400 cancer patients benefited from our Callback service, receiving an average of six calls each, supporting them throughout their treatment Incoming out-of-hours calls (after or before normal office hours, weekends and bank holidays) increased by 33% on the previous year
Money matters We know that there are many hidden costs of cancer. Some patients have to stop working which can leave them struggling to pay their bills, rent or mortgage. Costs can also go up as they need to make regular trips to hospital or pay for things like extra clothing or bedding. Even the cost of keeping the house warm can increase as they’re home more than usual and more likely to feel the cold during treatment. Our Cancer Support Advisors are based in hospitals and local communities and give advice to help cancer patients and their families make ends meet. They carry out benefits assessments, and help fill out complex forms so people can access money they’re entitled to. They also help patients and their families to maximise their income, prevent debt and manage their expenditure. This year, demand for the service has increased to its highest ever. At the end of March 2016 we had a waiting list of more than 150 people. The stress of money worries is huge, but we help people to feel a bit more in control and able to cope.
This year: We carried out 3,256 benefit assessments We made 3,391 benefit applications, up 41% on 2014/15 We helped people claim £3,546,334 compared to £2,661,666 last year with an annualised value* of £6,447,643 We worked out of 27 different outreach venues across Wales We kept our Advice Quality Standard (AQS) for another year, and are still the only cancer charity in Wales who have it
*Annualised value means the total value of all successful benefit applications, multiplied by twelve months. The money we help people access isn’t just one-off payments, it’s also ongoing benefits which make a huge difference to daily life.
meet Gillian Gillian lives in Conwy and is an active member of her local Sing with Us choir and Llandudno Friends of Tenovus Cancer Care group. “When you’re diagnosed with cancer, it’s so negative. You feel anger, loss, worry – and you continue to feel those things when you’re having scans or waiting for appointments. “I’ve used nearly all of Tenovus Cancer Care’s services! I’m a member of the choir and I’ve had counselling as well as financial and employment advice. “I had to stop working when I had my operations and treatment. It was such a worrying time for the family, and having to finish work caused a lot of heartache. Dawn the Cancer Support Advisor was amazing. Truly amazing. She helped me understand what I was entitled to, and how to go about claiming it. She gave brilliant advice about work as well. I’ve always worked, so it was really hard for me. She continued to help me when I wanted to return to work, and explained how to go about it and what I needed to check with my employers. She made everything so easy, and the best thing is, I know she’s there if I need anything. “I wanted to give something back, which is why I got involved in the Llandudno Friends of Tenovus Cancer Care. I’m very open about having cancer. I want to help as many people as possible and always tell them to get in touch with Tenovus Cancer Care.”
Dawn the Cancer Support Advisor was amazing. Truly amazing. She helped me understand what I was entitled to, and how to go about claiming it. 8
Every voice counts Our choirs have gone from strength to strength since we launched our first as a small pilot project in Pontypridd back in 2010. Sing with Us is an innovative way of supporting cancer patients and the people that care about them. With previous support of Big Lottery funding we now have 17 choirs across the country, helping patients, survivors, carers and people who’ve lost loved ones, to cope with cancer. Our choirs are somewhere for anyone affected by cancer to meet others who understand what they’re going through, have fun and learn something new. It brings people together, helping them make new friends and feel part of their local community.
This year: Our new Cardiff South choir was launched bringing our total number of choirs to 17 A total of 1,738 people joined us to sing Our choirs took part in 258 public performances in their local communities, helping to raise awareness of Tenovus Cancer Care 78% of our choristers had either been bereaved, or were a friend or family member of someone with cancer, showing we don’t just support the person with cancer, but their loved ones too We held a big concert in Cardiff to mark the end of the Big Lottery funding and to celebrate the success of the choirs. Over 850 choir members and 400 guests celebrated with us We conducted the final year of our three year study with Cardiff University. Preliminary results from this study suggest that being a member of a Sing with Us choir has a range of benefits, including measurable improvements in mental health and a reduction in both anxiety and depression We also carried out another research study with the Royal College of Music in London to see if singing in a Sing with Us choir has biological effects. We took saliva samples from 194 choir members, before and after a rehearsal. After just one hour of singing we could measure a reduction in the stress hormone cortisol and changes in a range of biological markers of immunity and inflammation. These exciting results have now been submitted to a peer reviewed journal and will be published in the coming year 1. 9
meet Pauline Pauline was diagnosed with breast cancer in June 2011 and is now a member of our Bridgend Sing with Us choir “I was diagnosed with inflammatory breast cancer in June 2011. I was self-employed and had to wind down my business. The chemo made me too ill to work, and after the surgery I was very depressed. I felt I was one of the unlucky ones as I had lymphoedema as an immediate effect of surgery. My confidence and sense of well-being were at rock bottom; I even stopped going out. “I was at my lowest ebb when Tenovus Cancer Care staff told me about my local Sing with Us choir, and I’m so glad I joined! Singing in the choir brought fun, laughter, hope, new people, joy and a challenge to my life! I discovered that there were people who had the time and interest to talk to you and who understand how lonely cancer can make you feel. I’m almost glad I had cancer, because it means I’m now part of something so good.”
I discovered that there were people who had the time and interest to talk to you and who understand how lonely cancer can make you feel.
Treatment closer to home Our Mobile Support Units have been bringing treatment and support into the heart of communities since 2009. This unique service saves cancer patients time, stress and the extra costs of travelling to and parking at hospital. For cancer patients, fewer miles travelled means more time with the people they love. We have two Mobile Support Units which bring chemotherapy and lymphoedema treatments closer to home.
This year: We delivered 4,432 chemotherapy and other treatments closer to home, in communities across Wales Our Mobile Support Units travelled more than 40,000 miles, over 30% further than last year We helped treat nearly 1,000 patients and welcomed more than 6,500 visitors on board In September we launched the world’s first mobile lymphoedema scanner, meaning nurses can recommend patients for groundbreaking surgery that can help improve their condition, and give them back their quality of life We’ve increased the range of chemotherapy treatments we can deliver, so we’re now able to treat patients with blood cancers (about 15% of all cancers)
meet Jan Jan comes to have her lymphoedema treatment regularly on board our Mobile Support Unit, which parks up weekly at her local sports ground. “After having breast cancer I had chemotherapy, radiotherapy and also had to have lymph nodes removed. This meant I developed lymphoedema in my left arm, so I come to Tenovus Cancer Care’s Mobile Support Unit for treatment. “I’ve been coming here for years now, and it’s just great. The staff on the Unit are absolutely amazing, they really are. You have music, coffee and tea, I can chill out and read a book while I’m here. The nearest hospital to me is Singleton, which is about an hour away – and then you’ve got problems parking. Whereas coming here, it’s just down the road, not even quarter of an hour. There’s always plenty of parking, it’s ideal.”
Awareness and early diagnosis in the community This year we’ve also taken our Mobile Support Units out in the community to help raise awareness and increase early diagnosis of bowel cancer. Bowel cancer is one of the most common cancers in Wales but many people ignore or don’t recognise symptoms, and put off going to the GP because of embarrassment. Spotting the signs and symptoms of bowel cancer in the early stages can make a huge difference to how well and how quickly people get better. During 2015/16 we ran a pilot project in partnership with Cwm Taf University Health Board, where they have one of the highest bowel cancer incidence rates in Wales. Our Mobile Support Units went to Merthyr Tydfil every Monday and provided a drop in service for members of the public to ask any questions about bowel cancer and see a specialist nurse. No appointment was needed and people could be referred directly for further tests if required. Although it’s still early in the project, this pilot has already resulted in:
772 discussions with members of the public about the signs and symptoms of bowel cancer A total of 154 examinations conducted by a specialist nurse Ten people referred to Bowel Screening Wales for further investigation It’s unlikely these people would have accessed any services at all without the Mobile Support Unit in their community. Due to the success of this project and the impact we had in the community, we’re proud to be continuing this service for at least another six months. As well as this, we also used our Mobile Support Units to run Saturday drop in bowel clinic days with support from the James Tudor Foundation. We visited communities across South Wales as well as Southampton and Bristol.
Support designed with men in mind We know that men can be reluctant to talk about their health, which is why back in 2014 we worked in partnership with The Movember Foundation and Prostate Cancer UK to design a service specifically for men. The ManVan travels across Wales to support men affected by prostate, testicular and penile cancer. Itâ€™s been bringing nursing advice, counselling and welfare rights advice to men who might not otherwise access these services. Weâ€™ve welcomed on board men (and women) worried by all sorts of cancer symptoms, as well as their family and friends, health and social care professionals, and politicians. The ManVan brings vital specialist psychosocial and emotional support to men on issues they may avoid discussing with their GP or oncologist, like incontinence and erectile dysfunction.
This year: Our ManVan celebrated its first anniversary We took on 285 new clients We welcomed 1,874 visitors on board Our ManVan Cancer Support Advisor helped claim over ÂŁ350,000 for clients The ManVan travelled nearly 16,500 miles We visited nearly 100 different locations across all seven Health Board areas
meet Steve Steve was diagnosed with testicular cancer in December 2015. He’s used our ManVan extensively, and is a champion of what he calls a “life-saving” service. “I noticed I had a lump, but I just put it down to working harder than normal. The pain got gradually worse and I went to the doctor, who thought it might just be a cyst. I was sent for an ultrasound scan anyway, and was diagnosed on Christmas Eve. I had my operation a week later on New Year’s Eve. “I was recovering and ready to go back to work, but had a scan and they found the cancer had spread to one of my lymph nodes, by my kidneys. My doctor told me I needed chemotherapy, and I started two days later. I had intensive treatment for three or four months. “I was introduced to Tenovus Cancer Care by my father-in-law. He’s been living with prostate cancer for 12 years, and he recommended I visit the ManVan. He told me to speak to the nurse on board, so he could explain what was going to happen during and after treatment. When I spoke to him, what I liked was that he was straight with me. He told me that the chemo would make me feel awful, and that it wouldn’t be easy – but that I could do it. That’s exactly what I needed to hear. He’s always been on the end of the phone if I need to speak to him and even rang during my treatment to check up on me. “I went through a bad spell when I was having my treatment. You feel lonely and vulnerable. It’s great to have your friends and family around you, but you don’t want to burden them with how you’re feeling, they’re already going through enough. So I went to see the counsellor on the ManVan. He’s amazing! I 1. was very sceptical of counselling I’ll be honest, but having that support made such a difference.”
The ManVan saves lives, it’s invaluable. Simple as that. 14
Someone to talk to Dealing with the emotional impact of cancer is hard. Coming to terms with a diagnosis, the impact of treatment and its side effects, facing a terminal diagnosis or the loss of a loved one can almost be too much to bear. Thatâ€™s when our counsellors can help. Our service is completely free and makes a real difference, helping people to adapt to living with a cancer diagnosis in their family, reducing stress, anxiety and depression, helping them to cope. Unlike many other charities and the NHS, anyone affected by cancer, not just patients, can see one of our qualified counsellors.
This year: Our counsellors supported 735 people, listening for over 2,500 hours We helped 21% more men in 2015/16, which is encouraging as they can be less likely to want to talk about their worries and emotions 75% of the people we supported were cancer patients, but 25% were family and loved ones who also needed help Our evaluation of the service using a validated measuring tool named CORE-10, showed that when we first assessed clients only 9.5% had a score that was regarded as â€˜healthyâ€™. By the end of counselling that figure was 66.5% We also supported 26 families through our family counselling pilot project, run through three Health Boards in South Wales 100% of the clients surveyed felt that the family counselling had been helpful
meet Christine Christine’s husband John was diagnosed with bowel cancer in May 2014. “It was a situation that you don’t ever imagine having to live through. By the time John was diagnosed, the cancer had progressed to his liver. He was a very strong, loving man and as the months progressed so did his illness. He lost his fight at the end of November. “As you can imagine, his death left a huge void and sadness in my life – I felt that if I cried forever I could never lose that heaviness and sadness. I began counselling with Sally at Tenovus Cancer Care and it was my lifeline. She guided me through some of my darkest moments and I was able to give voice to my worst thoughts. Words cannot fully describe the difference Tenovus Cancer Care made to me.”
Keeping our standards high We believe it’s important to make sure that all of our services meet the needs of cancer patients and their families, so our support is the very best it can be.
That’s why we evaluate our services. We ask the people who use them, their family members and professionals for their feedback to make sure we’re providing the best service possible. This year we carried out a large-scale survey on all of our services to measure satisfaction and highlight areas for improvement to help guide development of our services in 2016/17.
Half a century of cancer research 2015 saw us celebrate an incredible 50 years of cancer research. In the 1960s we built the Tenovus Institute for Cancer Research in Cardiff and in 1975 our researchers helped to establish the effectiveness of Tamoxifen. Tamoxifen went on to be the most successful and widely used breast cancer drug in the world, saving the lives of millions of women. This year we’ve funded more than a million pounds through our PhD studentships and iGrants, finding new ways to prevent, diagnose and treat cancer, and ultimately, working towards a cure.
Research in the lab Tenovus Cancer Care has a proud history of supporting generations of cancer researchers. In fact, over the past 50 years we’ve supported over 250 PhD students who have gone on to work on world-class cancer research in labs across the world.
This year: Nine new PhD studentship research projects started at Cardiff, Swansea and Bangor universities These new studentships joined our existing ones that began in 2013 and earlier, bringing our on-going number to 24 These projects alone represent an investment of £1 million over the next three to four years
1980 Screening and detection
1970 Research across the UK
World leading cancer research begins The foundation stone is laid at the Tenovus Institute for Cancer Research. A year later research begins.
Tenovus becomes a partner in the Cardiff Cervical Cytology Screening Research project, a key milestone for cervical screening in Wales.
H.R.H Princess Margaret opens the Tenovus Cancer Research Laboratory at Southampton University and the research wing at the Churchill Hospital Oxford.
1975 Pioneering breast cancer research Researchers at the Tenovus Institute show for the first time that Tamoxifen prevents the growth of breast cancer cells.
Professor George Stevenson is awarded the Hammer Foundation Cancer Award in Los Angeles for the most significant contribution to the treatment and cure of cancer that year.
meet Meet Stephanie, one of our cancer
Stephanie is in the last year of her PhD and is based in the European Cancer Stem Cell Research Institute in Cardiff University. “Bowel cancer is one of the most common cancers in the UK and the five year survival rate is only 59%. Whilst there have been great advances in treatments, these can cause quite nasty side effects and people can become resistant to the drugs over time. Because of this, prevention is key. “My research is looking into the properties of certain foods such as black raspberries and the ways they can block, reverse, or delay the process of bowel cancer development. “Previous work has shown that both edible berries and turmeric reduce the number of tumours occurring in bowel cancer patients so my research has focussed on finding out exactly how this happens.”
1987 From bench to bedside
A clinical trial co-ordinated by the Institute shows the effectiveness of Zoladex as a treatment for prostate cancer.
Every voice counts
We set up our first Sing with Us choir in Pontypridd. This forms the basis of a ground-breaking arts and health research project in partnership with Cardiff University.
Cancer genetics Tenovus provides core funding for the Cancer Genetic Service for Wales research team.
Putting patients at the heart of research We award our first Innovation Grants, life changing research projects selected by patients and carers themselves.
The Science of Singing
We worked with the Royal College of Music in London to take saliva samples before and after rehearsal from around 200 Sing with Us choir members. We measured biomarkers which told us about changes in mood states, specifically stress hormones and chemicals that indicate immune function.
iGrants Not all research happens in a lab and not all cancer research is looking for a cure. Some of it looks at how we can make life better for people living with cancer today. Itâ€™s research that involves, and takes place in, the community. Our Innovation Grants (now called iGrants) are more than just innovation. We also support projects that implement great ideas, involve patients and public, influence policy and practice, and invest in the future. Our Research Advisory Group (RAG) is a group of volunteers who all have personal experience of cancer, and help decide which iGrants we fund. They make sure we choose the projects that will best tackle the practical issues faced by cancer patients and their families.
This year: We received 37 applications These were reviewed by the RAG and a panel of experts Eight projects were then recommended for funding to the Tenovus Cancer Care Research and Patient Services Committee Eight projects were offered funding which will begin 1st April 2016 at a total cost of ÂŁ208,000
Hereâ€™s how the money we spent on research breaks down Spend by cancer type
31.1% All cancers 15%
11.1% Colorectal 7.4%
Head and neck
Spend by research type
Cancer control, survivorship and outcomes
Causes of cancer
Early detection, diagnosis and prognosis
A voice for change Today there are around 130,000 people living with cancer in Wales. As more people survive and live beyond cancer, itâ€™s essential that cancer services are developed to support them fairly and effectively. At Tenovus Cancer Care weâ€™re passionate about representing the needs of cancer patients and their loved ones - being a voice to champion their cause. We want to change cancer care for the better by working with other influential organisations and inform government thinking and policy, making sure the patient and public voice is heard. We strongly believe that involving patients is vital if cancer services are going to evolve to best meet the needs of current and future patients and their families.
This year: We led on the creation of a public health alliance with 16 organisations that have an interest in tackling the underlying causes of conditions such as cancer, stroke, diabetes and heart disease. The group had major success in securing Welsh Government amendments to the Public Health (Wales) Bill and the introduction of Health Impact Assessments. This is important as it requires all new policies, plans and projects in Wales to be assessed for their effect on the promotion of healthy living and disease prevention We led on lobbying activity to introduce a vaccination programme for boys against human papillomavirus (HPV). We want teenage boys, as well as girls, to be vaccinated against HPV to protect future generations from easily preventable cancers. Weâ€™ll continue to focus on this next year as it forms part of our manifesto for the National Assembly for Wales elections in May 2016 We continue to be an active member of the Wales Cancer Alliance, using this platform to scrutinise the development of Welsh Government policy and shape the future development of cancer delivery plans We responded to six government consultations so that we could make sure the interests of cancer patients were made clear to policy decision makers. These have included proposed changes to the Blue Badge (mobility) scheme in Wales, the Public Health (Wales) Bill, and taking the lead for the public health alliance
We worked in partnership with the Institute of Welsh Affairs (IWA) on ‘Let’s Talk Cancer’, a project which asked people with first-hand experience of cancer for their ideas for shaping the way cancer services are run in Wales in future. The findings from this were published into a report which included a number of recommendations including: Better access to benefits advice More streamlined on-the-day waiting times for chemotherapy and radiotherapy Access to medical notes Improved transport and providing services closer to home They were positively received by the panel of health spokespeople from each of the major parties at the report’s launch event in September, and we are confident that ‘Let’s Talk Cancer’ will have a real impact on government policy after the National Assembly for Wales elections. This report has helped inform our own manifesto and been used to shape the cancer policies of each of the political parties in Wales
Prevention is better than cure Around 40% of all diagnosed cancers in the UK could be prevented by simple changes to lifestyle. Wales has one of the highest incidences of cancer and some of the poorest survival rates in Europe. In 2015/16 we ran health campaigns that focused on cutting peopleâ€™s risk of getting cancer in the first place.
This year: We carried out 100 Health Checks in a range of settings, including community events, on our Mobile Support Units and at workplaces We worked with Cardiff University to evaluate the effectiveness of the Health Check, which will help us refine and improve it for the future We used our Mobile Support Units to help raise awareness and increase early diagnosis of bowel cancer, one of the most common cancers in the UK (see page 12) We worked with a range of organisations that encourage people to make healthier lifestyle choices, so that our combined efforts could reach even more people. These included Stop Smoking Wales, Communities First, Local Health Boards, GP surgeries, Community Pharmacy Wales, schools, colleges and local council events teams. Working in partnership is a really effective way to spread the word and reach as many people as possible
Here Comes the Sun Skin cancer is the most common cancer in the UK, and using a tanning bed can increase the risk of malignant melanoma by 60%. This year as well as general sun safety, our sun awareness campaign ‘Here Comes the Sun’ focused on the use of tanning beds and raising awareness of the risks of using them. As usual, our Sun Cream Van travelled across Wales with sun safety advisors who, armed with sun cream samples gave out advice and information on beaches, at festivals and events. Our charity shops and community pharmacies were also used as a base to have these important conversations with customers.
This year: We ran the campaign throughout the summer (May – August) We trained an extra 65 shop staff and volunteers so we were able to give sun safety information through 38 of our shops We had 2,290 sun safety conversations When we followed up with tanning bed users, nearly 56% reported they’d made a positive behaviour change - a really encouraging step in helping to reduce the future incidence of skin cancer
Quit with Us Smoking is the single biggest cause of lung cancer and claims more lives in Wales than any other cancer. Recent figures from the UK Lung Cancer Coalition (UKLCC) showed that Wales has the second worst lung cancer survival rate in Europe and that the number of women with lung cancer has increased by more than a third over the last decade. We run our Quit with Us campaign every Spring to coincide with No Smoking Day, and help encourage people to kick the habit for good. This year we worked with Sheppards Pharmacies and trialled giving out free sample packs of Nicotine Replacement Therapy (NRT) to smokers interested in quitting. We also visited workplaces in south Wales to help staff who wanted to quit.
This year: We distributed over 200 NRT packs through local pharmacies We visited three employers and had 134 appointments by the end of March 2016 Of the smokers we followed up with, 58% had made a quit attempt with a further 18% having made a partial attempt
meet Alison Alison sadly lost her dad to lung cancer in 2008. “I remember where I was when I found out my dad had cancer. We were at my nan’s funeral. I overheard a conversation between him and my aunty. They didn’t want me to know about his diagnosis because I was heavily pregnant with my son Iestyn. My world just fell apart. “He fought it for two years, but watching somebody you love lose that battle is heartbreaking. Even though he had smoking-related lung cancer, my father still carried on smoking – despite all of us as a family protesting and pleading. He told us he’d smoked since he was 11 so what was the point of stopping now? “My dad idolised my son Iestyn who is now ten, but sadly Iestyn’s last memory of my dad is him sleeping in a bed, unable to get up. My daughter Catrin is two years old, and it breaks my heart every day that my dad never met her.”
Even though he had smoking-related lung cancer, my father still carried on smoking – despite all of us as a family protesting and pleading.
With a little help from our friends We’re only able to achieve everything we do, thanks to our amazing supporters. Our volunteers, fundraisers and donors make our work possible and we really can’t thank them enough.
Our volunteers Our volunteers are absolutely essential in helping us bring our support services into the community and funding vital cancer research. They help run our shops, our services and guide our research funding. They support our campaigns and events, help raise money and awareness, and without them we simply couldn’t be there for the thousands of cancer patients and their loved ones who need us. We’ve developed even more roles and volunteers now support every part of the organisation.
This year: Our volunteers gave an amazing total of 260,000 hours of their time – that’s nearly 30 years! We had over 1,000 volunteers in our shops across Wales and England We had 300 volunteers on our ‘events bank’ ready to help at runs, Singathons and events like our Goodnight Walk. That’s 50% more than last year Over 1,400 people began a volunteer role with us or helped at an event; that’s more people than ever before We celebrated the achievements of our volunteers at our annual Volunteer Awards hosted by our Patron Carl Edwards
meet Keith & Helena Helena was diagnosed with non-Hodgkin lymphoma and joined her local Sing with Us choir. Now Helena and her husband Keith both volunteer as much as they can. “Having used Tenovus Cancer Care’s services and joined a choir, we love to volunteer. Keith takes photos of all the choir events and also helps our choir leaders to set up the PA system when we rehearse. We also volunteer as stewards at the Goodnight Walk every year and love being part of such a fantastic night. Knowing you’re helping to raise money for people affected by cancer is wonderful. We’ve both been so supported by Tenovus Cancer Care we wanted to give something back.”
meet Marilyn Marilyn helps our Cancer Support Advisors every week at the Royal Glamorgan Hospital. “After I retired I found myself with some spare time, so decided to volunteer. I jumped at the opportunity of volunteering with Tenovus Cancer Care and have never looked back. I’ve lost friends to cancer, so appreciate the pain and worry which comes at this sad time. “If anyone had told me that being a volunteer would bring so much satisfaction I wouldn’t have believed them. But being on the front line, working with patients and giving them the help and support they need, is incredible and the gratitude from them is wonderful.”
meet Josh Josh volunteers in our Pontypridd and Aberystwyth shops, as well as a photographer at our events. “I started volunteering with Tenovus Cancer Care for work experience. It was only meant to be for a short time. That was nearly five years ago! I chose to stay simply because of the people I work with – they’re like family. I’m the type of person that always wants to help someone. Whether that’s talking to customers about their experience with cancer and offering support, or just helping someone pick out a pretty dress! As well as gaining retail and management experience, volunteering gave me the confidence to study Business & Management at university. Volunteering at events helped build up my experience in photography and now I run my own photography business!”
Raising funds and having fun Whilst 2015/16 was a tough year for the Third Sector, the generosity of our donors and commitment of our fundraisers and volunteers meant we raised £9.3 million, so we can keep supporting cancer patients and their loved ones. We’ve had to work hard this year and have looked to different ways of generating income, as well as making our existing channels more sustainable. Communities play a vital part in our fundraising, and it’s through them that we’re able to reach more people, raise awareness and of course, money. Thanks to local businesses, councils, community and volunteer groups, schools, sports clubs, and of course our fantastic supporters, we will be there when people affected by cancer need us.
This year: We grew the number of lottery lines played by 85%. Each line has a chance to win £25,000 every week! We ran a ‘Free Wills Month’ through our shops in March, working in partnership with local solicitors and increased the number of legacy pledgers by 130% We grew the income we get from trusts and foundations by £79,000 from last year Our dedicated Friends of Tenovus Cancer Care groups raised a whopping £107,600 out in the community, as well as promoting our services and raising awareness We held nearly one hundred bucket collections during October for Breast Cancer Awareness Month raising over £23,000
Our summer Singathons showcased our fabulous Sing with Us choirs, raising over £10,000 We held ten Christmas Lovelight concerts across Wales, which were a chance to support people affected by cancer and remember loved ones lost Around 350 people put their best foot forward in Cardiff at our Goodnight Walk, raising £35,000 Our annual Ball and Summer Ball raised a fantastic £58,000 We partnered with S.A. Brain and WalesOnline to support Wales in the Rugby World Cup and sold C’mon Wales wristbands through our shops and Brains pubs 25 people took on the challenge of the Virgin London Marathon for us raising £54,000 and hundreds of others ran half marathons, 10km and 5km runs We welcomed newsreader Carl Edwards as a new Patron Our 65 shops in Wales and England, including our new shop in Mold, were our voice in the community and raised around £5.2 million, as well as promoting our services, events and campaigns
Where the money comes from
63% Retail and trading activities 15% Legacies 10% Donations & gifts 7% Trusts & grants 2% Investment income 2% Corporate 1% Other income 1. 31
Where the money goes This year we spent our money running our cancer support services, on our health and well-being programmes and funding research.
2015/16 Charitable Spend
68% Cancer Support Services 29% Research 3% Health and Well-being
Cancer Support Services
31% Cancer Support Advisors 23% Mobile Support Units 18% Sing with Us Choirs 14% Support Line 14% Counselling
We couldnâ€™t do it without you Weâ€™re so grateful to all the people and organisations that make what we do possible. There are simply too many to list here, but you know who you are, and we thank you. Our Royal Patron HRH The Princess Royal
Our Patrons Rob Brydon Carl Edwards Wynne Evans Catrin Finch Connie Fisher Dafydd James Laurence and Jackie Llewelyn-Bowen Sian Lloyd Rupert Moon Kai Owen
Our Trustees Richard Sims (Chair) Professor John Lazarus (Vice Chair) Geoffrey Bates (Resigned 03/11/15) Ieuan Griffiths Julie Elaine Morris (Resigned 29/02/16) Jeffrey MacWilkinson (Resigned 21/03/16) Professor Geraint Williams (Appointed 09/06/15) Fiona Peel OBE Leanne Hugglestone Peter Ferrer (Resigned 09/03/16) Wyn Mears Nigel Williams Simon Evans Dr Annie M Procter (Appointed 24/11/15) Professor Deborah Fitzsimmons (Appointed 15/09/15) Dr Melanie Goward (Appointed 22/09/15) Paula Kathrens (Appointed 22/09/15) Iestyn Morris (Appointed 22/09/15)
Community & Corporate Supporters 118 118 Money 11th Hour Events ACT Training Allens Printers Astellas Pharma Ltd Bank of England Agency for Wales Brewin Dolphin Broomfield & Alexander Capital Times Cardiff City Stadium Castell Howell Foods Cllr Blundall - Mayor of Llandudno Cllr Gordon Kilby 2015/16 Mayor of Llandeilo Cllr Peter Hughes Griffiths 2015/16 Chair of Carmarthenshire Council Coffee#1 Coffee Mania Companies House Demiros Dewstow Golf Club EE Plymouth Contact Centre Euro Commercials Faculty of the Built Enviroment Football Association of Wales Gerry Jones Transport Glyn Abbey Golf Club Hazells Haulage Ltd Howells Girls School Llandaff Cathedral School MAN Truck & Bus Mermaid Quay MRC Transmark (Dragon) Ltd Neath Port Talbot College New Look Weymouth Nolan uPVC Nuffield Health, Cardiff & Vale Hospitals Ovation Musical Theatre Company Peter’s Food Service
Pieminister Pinnacle Group Princes Gate Rhys Davies Logistics S.A. Brain Sayers Amusements Sears Seating Sheppards Pharmacy Sing & Inspire South Wales Police - Llanishen Police Station St David’s Hotel & Spa St Mellon’s Golf Club The LC Swansea The SSE SWALEC The Style Team Torfaen Leisure Trust Toyoda Gosei University of Wales Cardiff Valero We Fight Any Claim Welsh Rugby Union Western Power Distribution WG Davies Whitchurch High School Wrexham Rotary Club Written in Lights
Charitable Trusts and Funders Attendus Trust Company
Friends of Tenovus Cancer Care Groups
BIG Lottery: AdvantAGE
Burns Pet Nutrition Foundation
Charities Aid Foundation
G M Morrison Charitable Trust
Hospital Saturday Fund
James Tudor Foundation
Masonic Samaritan Fund - Jubilee Fund Research Grants Programme
MBNA 20 Community Grant Programme
Morriston & Llangyfelach
Pfizer (UK) Foundation
Pink Ribbon Foundation
Prostate Cancer UK
Pembrey & Bury Port
Simon Gibson Charitable Trust
Radyr & Morganstown
The Sobell Foundation
Ruthin & Denbigh
St Jamesâ€™s Place Foundation
The Albert Hunt Trust
The Burdett Trust for Nursing
The David and Claudia Harding Foundation
Llandeilo & Dinefwr
The Dâ€™Oyly Carte Charitable Trust The Forest Hill Charitable Trust The G C Gibson Charitable Trust The Hartsheath Charitable Trust The Hoover Foundation The Jane Hodge Foundation The Mary Homfray Charitable Trust The Oakdale Trust The R S Brownless Charitable Trust The Ratcliff Foundation The Steel Charitable Trust The Williams Family Foundation
Walk the Walk Worldwide Welsh Government
Thank you to our Tenovus Cancer Care London Committee and our Tuesday Club members
k n a h
If you or someone you know has cancer,
Reg Charity No. 1054015