Surrey Short Breaks for Disabled Children Summer Newsletter 2013 Inside this issue: •Features from Short Break Providers •Merlin Pass Monthly Lottery Update •Early Support for 0-5 years •Surrey Supercycle 14th July
•Great news for Family Fund And much more!
Welcome to the Summer 2013 Edition of the Surrey Short Breaks Newsletter!
The Surrey Short Breaks team would like to say thank you to everyone that responded to our recent short breaks survey. We received over 180 responses providing us with a valuable range of views and experiences of short breaks in Surrey. Your feedback will help us to respond to the needs of families and shape future short breaks services. The survey has given the Short Breaks team lots to think about, with the most common themes identified including: The location of Short Breaks across Surrey Raising awareness of Short Break services and how to find out about them More weekend short breaks More overnight support A report of the survey responses, together with our responses to the key issues highlighted is available at www.surreycc.gov.uk/shortbreaks.
How well do you think short breaks in Surrey are meeting the needs of children and young people? Not well Very well at all 11% 10%
Not well 15% Quite well 32% Okay 32%
To keep up to date about Short Break opportunities for disabled children and young people in Surrey, make sure you sign up to our regular e-bulletins and newsletters and ‘like’ our Facebook page for the most up to date news! You can contact us on the details below to find out more about our communications. Did you know that there are designated Project Officers in the Surrey Short Breaks team that link with all of the organisations that receive funding for short breaks? Their role is to work with the organisation to monitor and evaluate all aspects of the service through both regular meetings and visits to the schemes and services provided. If you have any questions or feedback Contact us! about any of the Surrey Short Breaks firstname.lastname@example.org funded services you access, or about 01372 833073 / 833638 short break opportunities in general, www.surreycc.gov.uk/shortbreaks please don’t hesitate to contact us! www.facebook.com/surreyshortbreaks
It’s been an incredibly exciting year for Link Leisure, complete with a rebranding to their new name of LinkAble!
LinkAble told the Surrey Short Breaks team, “Our new name reflects the organisation’s emphasis on ability over and above disability. It also comes at a great time, with our newly refurbished Woking centre due to open on 8th June! The new building is going to be a great opportunity for us to provide further activities for our service users!” All being well, services will begin running from the new Woking centre from September 2013. In the meantime, LinkAble will be continuing to run their summer schemes for children, teenage, adult and special care service users – which will undoubtedly be full of fun and packed with fantastic trips and activities. Moreover, term time weekly groups with sessions varying from music therapy to family swim sessions will also continue. If you’d like to find out more information about LinkAble and their services, call 01483 770037 or visit www.linkable.org.uk.
Surrey Short Breaks would like to say farewell and a huge thank you to two of our longstanding Short Breaks providers, both of which have unfortunately made the decision to cease providing services in Surrey following their own Strategic Reviews. Firstly, farewell to Activenture, who for many years has provided Surrey children and young people with disabilities a fun-filled, adventurous holiday experience whilst providing parents and carers with a much needed break from caring. Secondly, we would also like to say farewell to Scope, who has provided Surrey children and young people in North Surrey with support over many years through their befriending and family support services.
The Short Breaks team recognises the value of the above services to families and will be exploring other opportunities for the future across 2013.
The government is currently introducing a new benefit called Personal Independence Payment (PIP) which will replace Disability Living Allowance (DLA) for eligible people aged 16 – 64 years. PIP helps towards some of the extra costs arising from a long term ill-health condition or disability and is based on how a person’s condition affects them, not the condition they have. It is not means-tested or subject to tax and it is payable to people who are both in and out of work. The new PIP benefit will be introduced to young people when they reach the age of 16 years after October 2013. Those who are already 16 years old or above, will be introduced to the new PIP benefit between 2015 and 2018. There are no current plans to introduce the PIP to children under the age of 16 years.
PIP is based on an assessment of individual need. It will not consider what impairment an individual has, labeling them simply on this basis. Instead it will consider how their impairment affects their life, considering their ability to carry out a range of everyday activities. Information will be gathered from the individual, as well as healthcare and other professionals who work with and support them. It includes regular reviews so that individuals continue to get the right support.
The Department for Work and Pensions will be writing to all DLA claimants to explain the changes. As the new benefit is introduced, they will contact DLA recipients inviting them to claim.
The Department for Work and Pensions has published information about PIP for both new and existing DLA claimants. This includes a ‘PIP checker’ for claimants to quickly find out if and when PIP might affect them, Frequently Asked Questions about the PIP benefits and a PIP Myth Buster. To find this and to find out more, visit www.gov.uk/pip/overview.
The redevelopment of the Challengers Guildford Playcentre is now well underway with the new building due to be completed by Christmas 2013! The much needed redevelopment of the current Playcentre on Stoke Park will provide more space and a better play environment for the hundreds of disabled children who go to play there!
The increased space will enable expansion to services for more than 400 disabled children and young adults across the South East (including a new ‘Sidekicks’ service for Young Adults, and Play and Youth services). Throughout the project, Challengers have been working hard to minimise disruption to schemes and therefore children and families. The Guildford after-school club, holiday and Saturday play schemes are all currently operating out of Urban Saints (right next to Challengers Guildford) and will be for the duration of the project, which is great as it even allows Challengers to continue accessing their fabulous adventure playground! To find out more about the project please email email@example.com, call 01483 230 060 or go to www.disability-challengers.org/guildfordplaycentre
Doing stuff outdoors is fun, healthy and young people learn so much trying new adventurous activities like climbing, canoeing, abseiling, making camp fires and so much more. That is the sort of thing disabled young people get up to at Challengers Activity Weekends.
There are 27 Activity Weekends this year running from outdoor centres in Southampton, Tunbridge Wells, Aldershot and Box Hill. Families can book on to weekends in the booking periods. Weekends cost £100 and include all the activities, food and accommodation and you get to spend a weekend with the lovely Challengers staff. As well as the Challengers staff, all the activities are led by qualified instructors to make sure that everyone gets as much out of all the activities as possible and are safe. If you want to find out more call the Play and Leisure Team 01483 230 939 or go to www.disability-challengers.org/activityweekends.
Family Voice Surrey is the parent-carer forum for Surrey, representing the voice of local families with children with SEN and disabilities. Family Voice Surrey needs your help! Family Voice Surrey works to influence the development of services for families of children with SEN and disabilities in Surrey. FVS needs to hear your opinion and your experiences and we'll soon be launching an information gathering survey. . We aim to represent all the diverse communities in Surrey who have children with SEN/D. However, as a voluntary group who have children with SEN & disabilities ourselves, it is not easy to find or make contact with families from the many different communities whose voices are equally as important. We need your help so we can get in touch with parents from all of Surrey's minority groups and communities. If you are interested in joining us so we can better reflect parents across the whole of Surrey, please email firstname.lastname@example.org.
Cool2Care is an innovative, parent led social enterprise which supplies skilled Personal Assistants (PA’s) to support disabled children and young adults for families looking to employ a PA direct under their Direct Payments or independent budget. We are an introduction agency that matches PA’s to the needs of your child and family. Here at Cool2Care we understand how rewarding, fun and worthwhile it can be looking after a disabled child or young adult. We also understand that at times it can be difficult, time -consuming, stressful and exhausting, especially when there are siblings and the rest of the family to consider... and that’s where we can help.
Employing a Personal Assistant can provide you and your family with a short break. It can enable the primary carer to return to work or college, spend time with siblings or other family members and have a break from these demands. For the child or young person, having a PA can bring them the benefits of independence, stimulation and inclusion in local community clubs and events. We are happy to work with all families who have a disabled child aged between 0 – 18 (19 if in full time education) who are in receipt of Direct Payments, irrespective of disability. For more information please contact us via email email@example.com telephone 0845 123 5484 or visit our website www.cool2care.co.uk
White Lodge Centre is a charity supporting over 2,000 disabled children, young people and adults, their families and carers in Surrey and the surrounding area. The services offered by White Lodge Centre are diverse ranging from nursery education and short-term respite care breaks for young people; to therapies including physiotherapy, hydrotherapy and speech therapy; to leisure, life and fitness skills for adults and back care advice for carers. For over 15 years, White Lodge Centre has been providing specialist play and youth schemes specifically for children and young people who have a physical disability, or are on the autistic spectrum. The schemes offer a friendly and safe environment where disabled children and young people can have fun whilst meeting new as well as old friends. Children and young people can take part in activities such as art and crafts, cooking, singing, dressing up, as well as a host of special visitors such as entertainers, reptile, wild bird and farm animal specialists and a drumming workshop to name a few! The play and youth schemes are run at venues in Runnymede, Spelthorne and Elmbridge in school half terms, Easter, summer and Christmas holidays and some weekends. “Taking my son to the play scheme means that I can have quality time with my other children and relax a little. We knew he was happy, secure and well-cared for. The play scheme enriches our lives.” (Tom’s Dad)
The Saturday Club is run for young people aged of 13–18 who have a physical disability or are on the autistic spectrum. The club meets on Saturdays at Rendezvous, White Lodge Centre’s adult centre, and offers opportunities for young people to develop new friendships, interests and out and about activities. The teenagers decide on each day’s programme of activities and outings. White Lodge Centre’s staff are simply there to listen and facilitate. Favourite activities have included trips out to the cinema, a golf driving range, bowling, going for coffee, to a specialist sports centre and fruit picking at a local farm. In addition, visitors have come on-site and offered music workshops and Masterchef sessions. For further information about White Lodge Centre, please call 01932 567131 and ask to speak to Vicky Dickson or Carole Brooker, or visit www.whitelodgecentre.co.uk
In our last newsletter, Surrey Short Breaks for Disabled Children introduced a brand new scheme known as the “Merlin Pass Monthly Lottery,” providing families a chance to win a Merlin Annual Pass for their disabled children! Applications have been coming in thick and fast, with 350 lucky winners so far! It’s not too late to put your application in! For more information about applying and for a copy the application form (which can be posted or emailed), check out the Short Breaks website at www.surreycc.gov.uk/shortbreaks. If you already have a pass, please don’t apply until 2 months before it is due to expire.
“Thank you so much! Our little boy is so happy and dancing and singing away... The Merlin Passes make such a difference to him and he enjoys everything so much each time we go... which is quite a lot!”
Remember the new system is different to our previous Merlin giveaway. If you win a pass, we will write (by email or letter) to let you know, and within 2 weeks you should receive a letter which you take along to your specified attraction to redeem your pass. If you don’t receive your letter within 2 weeks of our email/letter, then please email us, and we will chase it up for you! “Yippee! That is truly wonderful, thank you “Oh Wow, thank you so much! I am very much!” looking forward to telling my son tonight!” “WOW! Thank you sooooooo much, this “Thank you so much, this is means a lot to us especially with the amazing and will be well used.” summer holidays fast approaching!”
Join us for some weekend and holiday fun at our Saturday Clubs and Holiday Camps for children and young people aged 5-18 years with complex health needs and multiple disabilities.
Activities include sensory and art sessions, cooking, games and lots, lots more! Activities are appropriate for all ages and abilities, with one-to-one support for all. For more information and to book, please contact Louise Gray, phone 01737 365090 or email firstname.lastname@example.org.
The Surrey Supercycle is a fun and accessible cycle fundraising event set up to enable you to get fit, have fun with all the family and raise vital funds for your chosen disability charity. The Surrey Supercycle is supported by Surrey County Council Short Breaks and is organised by the Surrey Play and Leisure Consortium (10 Surrey charities offering short breaks for children with disabilities). The event welcomes children and young people with disabilities, families, and supporters, suitable for all whether experienced cyclists or complete beginners! Bring your own bike or borrow one of 80 adapted bikes from Wheels for All! • Mini Route: 500m supervised traffic free course suitable for children, those new to cycling or needing a little more support •Midi Route: A traffic free 1km loop for more confident •Maxi Route: For experienced cyclists who want to challenge themselves by completing up to 20 full laps or 100km! There will be refreshments, picnic area, bouncy castles, celebrities, slow bicycle race, fastest lap prizes and other exciting activities... New for 2013 - the Supercycle Bear! This year, the Supercycle has its own mascot! The bear, who is very friendly and LOVES cycling, will be helping out, and is looking forward to meeting all the other cyclists! "Thanks to the inspiration from the Surrey Supercycle to teach Tyler (pictured right) how to pedal, I have managed to get Tyler to ride a bike without stabilisers this afternoon! Rather back breaking work, but worth it! Thank you for all your help!”
Enter on-line now at www.surreysupercycle.org.uk For more information or an offline entry form, contact the Surrey Supercycle team on 01737 779979 or check out our website. Like us on Facebook and follow us on Twitter!
Reigate and Redhill YMCA provides a wide range of services for children and young people with disabilities, and the families involved living across Surrey. Face2Face Face2Face is a support and befriending service for parents and carers of children with disabilities and additional needs led by a group of parents and carer volunteers who have a child with a disability. The service is informal, flexible and free. Face2Face also hosts monthly drop-in coffee mornings in Reigate and Banstead. For more information call 01737 222859 or email email@example.com .
Yippee Tots Yippee Tots is a drop in session for children under the age of 5 years who have complex needs and disabilities. Yippee Tots provides opportunities to access state-of-the-art facilities, equipment and toys specifically designed for children with disabilities, along with advice and support. This session runs every Friday morning during term time,10.30am-12.30pm. For more information call 01737 222859. Yippee Club The Yippee Club for children aged 5-12 years with complex needs and disabilities provides a safe, fun environment for children to play, make friends, try new activities and learn. The Yippee Club runs every Saturday and after school on Tuesdays and Thursdays during term time , and every weekday during every school holiday. To find our more or to book, call 01737 222859 or email firstname.lastname@example.org. . Yip4Youth Yip4Youth is a fun and friendly youth that provides opportunities for young people aged 13-16 with complex needs and disabilities to hang out, make new friends and get involved in various activities and outings. Yip4Youth runs every Saturday and after school on Tuesdays and Thursdays during term time , and every weekday during every school holiday. For more information call 01737 222859 or email email@example.com. VBuddies VBuddies is a befriending scheme where young people with disabilities and complex needs are paired up with young volunteers who help them to take part in social and leisure activities. The VBuddies scheme allows young people to go out for trips with their buddy and do the things that all young people do. To find out more, call 01737 222859 or email VBuddies@ymcaredhill.com.
Friday Night Project The Friday Night Project is a club for young people with mild to moderate learning disabilities that provides opportunities for young people to develop new skills, make new friends and become more socially independent. The Friday Night Project runs on Friday evenings in Redhill during term time (7pm-9pm) and offers a programme of sports and social activities at our centre and visits out. For more information call 01737 222859 or email firstname.lastname@example.org. Sports Inclusion Project Reigate and Redhill YMCA has recently received funding from Sport England, via YMCA England, to set up and deliver Inclusive Sports Clubs in our seven East Surrey Youth centres. The project is for young people with disabilities aged 14 â€“ 30 years and will provide a range of new activities and events for all to take part in. If you would like to find out more or if you or your school would like to benefit from a FREE taster session please call 01737 222859 or email email@example.com. Young Health Champions Project Young Health Champions get the chance to meet new people, try new activities, improve their fitness and become a role model for other young disabled people through weekly physical activity sessions. For more information call Amy Fazackerley on 01737 222859 or email firstname.lastname@example.org. YMCA New Age Kurling Club The YMCA Kurling club is for anyone with a disability and runs Every Thursday (term time only), 6.30pm - 7.30pm at the YMCA Sovereign Centre in Reigate. For more information, contact 01737 222859 or email email@example.com.
YMCA Boccia Club The YMCA Boccia club is for anyone with a disability and meets every second Saturday each month 12.30-1.30pm at the YMCA Redhill Sports and Community Centre. Dates may vary but a full list will be provided on application. For more information contact firstname.lastname@example.org or email@example.com. Active Living Project Through this project young people aged 16-28 are encouraged to take the first steps towards sports participation in the community. For more information, contact Amy Fazackerley on 01737 222859 or email firstname.lastname@example.org .
Social Information Disability , more commonly know as ‘SID,’ is a Surrey wide charity providing information about a range of topics including equipment, holidays, grants and short break opportunities both online and over the phone. With funding from Surrey County Council, SID designed a dedicated web page known as ‘FAB’ (Family Activities and Breaks) to help families with disabled children and young people to find out about the range of opportunities available across Surrey. The FAB website has up-to-date information on specialist leisure activities, sports, social clubs, play schemes, childcare and short breaks for disabled children and young people in Surrey. In addition to the range of services and activities available, the FAB website brings together information about both local and national charities and organisations that offer support and advice to children and young people with disabilities, from local disability specific support groups to national carer charities. Furthermore, the website has specific areas in relation to financial help, benefits, specialist equipment and toys, and links to find further information. Social Information on Disability also has a website to buy and sell second hand disability equipment from buggies and beds to wheelchairs and toys. Parents can also advertise for wanted items.
Visit www.asksid.org.uk for SID’s main website, www.asksid.org.uk/fab for the Family Activities and Breaks webpage. For further information you can also contact the SID team helpline (open weekdays 9.30am-12.30pm) on 0800 0439395.
Great news! The Government has recently announced Family Fund will continue to receive £27.3 million grant funding! Family Fund, the UK’s largest grant giving charity, is designed to make life easier for low income families with disabled and seriously ill children and young people. The money can be used for days out, garden play equipment, computers, toys and kitchen appliances like dishwashers and washing machines. The fund helped more than 50,000 families in England last year. The fund, which is now in its fortieth year, will continue for the next two years at least. To make a grant application visit the Family Fund website below www.familyfund.org.uk/grants/how-to-apply.
Surrey Early Support Service (SESS) supports families who need extra help to raise a young child aged 0-5 with disabilities and special needs and anyone who works regularly with these children and their families.
When a child has complex needs or multiple disabilities there may be a large number of people involved in providing services for them. SESS can coordinate these services for you to make sure everyone involved is aware of the overall needs of your child and your family. According to your level of need, SESS can also arrange for you to have a key worker to be a link to all of your child's services. You can refer yourself, or any professional working with your family can refer you. If your child is eligible, an SESS coordinator will assess your child and allocate your family a level of support based on your needs. To find out more and to see if your child is eligible for support, visit www.surreycc.gov.uk/earlysupport email email@example.com phone 01372 833423
Earlier this year, the Surrey Short Breaks Team provided another hugely successful Family Fun Day for children and young people with disabilities and their families in Surrey. Our biggest Fun Day to date featured a huge range of fun, exciting and inclusive activities including arts and crafts, cookery, music, dance, magic shows, African drumming, Zumba, circus skills, sports and more!
Inspired by the Paralympics, this Fun Day also provided children and young people with the opportunity to take part in some fantastic sport opportunities including taster sessions from the Surrey Rams Wheelchair Basketball Club, Top Flight Sitting Volleyball club, Wheels for All accessible Cycling and Epsom and Ewell Boccia Club! “It was spectacular and far exceeded my expectations. My son tried just about every activity on offer - he particularly enjoyed the wheelchair basketball - and I literally had to more or less drag him out at the end of the 4 hours fun!”
“My wife and I, and our daughter had just the most thoroughly enjoyable day out” “I came away walking on air after seeing my family achieve so much”
Over Easter, Barnardo’s held their first children and young people’s conference consulting with them about their views of health, education, transport, leisure services, employment, youth & advocacy. Young people had a great day, heard from speakers relating to the topics, gave their views and opinions and generally felt listened to. Barnardo’s will soon be publishing a report to show what children and young people thought! Barnardo’s are currently running support groups in Bookham and Reigate on Thursday evenings. The Bookham Group are focusing on independent living, and Reigate are focusing on safety. To get involved or to find out more call the team now.
Over the Easter holidays, Barnardo’s held 2 exploring employment days providing young people aged 15-20 years old with taster sessions of different employment options. Youngsters had the chance to experience: Animal care, floristry and gardening, catering, carpentry along with support on interviewing and CV writing.
Keep your eyes out for the Barnardo’s Summer Road show, soon to be visiting a town near you!
To find out more about any of the above or the other services the Moving Forward Project provides, call the team on 01737 844733
Badshot Lea Football Club SAINTS provides football activities to children with a range of disabilities aged from 5 to 18. The SAINTS attend Surrey County FA special needs League festivals held on a monthly basis through the season, and occasional friendlies and tournaments. The club will also be providing summer holiday football afternoons at Challengers Farnham in July and August (join SAINTS or book with Challengers). The new season starts on 7th September on the All Weather Hockey Pitch at Heath End School, Farnham. For more information, contact Simon Slater by phone on 07976293520 or by email firstname.lastname@example.org.
Surrey Short Breaks for Disabled Children funds a number of organisations across Surrey to provide Short Breaks to children and young people with disabilities. Below and overleaf are some of the play and leisure services around Surrey that can be accessed directly by families. To find out more and to see the full list of services funded by Surrey, visit www.surreycc.gov.uk/shortbreaks. Action for Blind People – Social activities in Surrey for children aged 5-19 with a visual impairment. Email email@example.com or phone 0207 635 4960.
White Lodge – Day care, tea visits and overnights for children aged up to 18 years based in Chertsey, and Saturday and holiday schemes based in Chertsey and locations in North Surrey for ages 4-18. Email firstname.lastname@example.org or phone 01932 577981. Surrey Heath Arena Leisure Centre - Disability swimming for ages 5-19 years. Email email@example.com or phone 01276-417119. National Autistic Society – After school clubs across Surrey for children with ASD aged 5-19 years. Email SEResourcecentres@nas.org.uk or phone 01483 869553 or 01483 869552. Crossroads Care - Saturday clubs in Leatherhead and Walton for ages 5-19 years and home care across Surrey for ages 0-19 years. Email firstname.lastname@example.org or phone 01372 469942. LinkAble (Previously known as Link Leisure) - Clubs, trips and holiday schemes for children with learning disabilities of all ages based in Woking and Camberley. Email email@example.com or phone 01483 770037. halow Social activities in Guildford and Haslemere for young people aged over 16 years with learning disabilities. Email firstname.lastname@example.org or phone 01483 447960. The Children's Trust – Saturday clubs and holiday schemes for children with complex needs aged 5-18 based in Tadworth. Email email@example.com or phone 01737 365090.
Cherry Trees – Day care, tea visits and overnights based in East Clandon for ages 0-19 years. Email firstname.lastname@example.org or phone 01483 222506.
Reigate and Redhill YMCA - Saturday, holiday and after school play and youth schemes for ages 5-16 and buddying service for ages 11-19 based in Reigate. Phone 01737 222859. Disability Challengers – Weekend, holiday, after school and evening play, youth and adult schemes across Surrey for ages 4–25 years. Email information@disability-challengers or phone 01483 579 390. Rainbow Trust – Community Support Service for children with life limiting/threatening disabilities aged 0 -18. Phone: 01372 363438. Badshot Lea Youth and Colts Football Club SAINTS – A Football club for ages 5-19 near Farnham. Email email@example.com or phone 07976 293 520. interAKtive Easter and summer holiday scheme based at Linden Bridge School for children with ASD aged 5-16 years. Email firstname.lastname@example.org or phone 07876 762178. Shooting Star Chase – Sparkle Day Care service for children with life limiting disabilities aged 0-5 years based in Hampton. Phone 020 8783 2000. KIDS Direct – Community short breaks for children aged 0-18 across Surrey. Email email@example.com or call 07584349188. Wheels for All – Accessible cycling scheme based in Woking and Ewell for children with disabilities of any age. Email firstname.lastname@example.org or phone 07790 757216. Spelthorne Millennium After School Club – For children aged 4- 12. Email email@example.com or phone 01932 577961.
Surrey Short Breaks also provides funding to the following SEN Schools to provide short breaks services to their students and children and young people in the area: Walton Leigh School - after school clubs, Woodlands (Lower) School - after school clubs, Pond Meadow School - Extended Day, Portesbery School - after school club and summer holiday scheme, Ridgeway School - after school clubs.