2021 Annual Report

Page 1

Across the Country, and in our Backyard




Letter from the Board President & Executive Director


Measuring our Impact


Virtual Programs BRASS Camp Camp Fantastic Santa Chats Parents Nights


Kathy Russell Emergency Financial Relief Program


Kay / Moore Educational Scholarships Hope Fund Educational Scholarships

10 Special Events 11 Beneficiary Events 12 Outreach 13 Virtual Volunteers & Partners 14 Donor Honor Roll 16 Board of Directors & Staff 17 Financial Summary

The gift of seeing children with cancer and their families enjoy themselves and put aside the stress and uncertainty of cancer, even for a few precious moments, is priceless. In 2021, Special Love continued to reach through the internet and embrace all of our camp families with virtual programming. Connecting with them wherever they were - at home or in the hospital, across the country or in our own backyard – we kept in touch by bringing entertainment, support, and community in the midst of their isolation. Little did we know when we created VOICE (Virtual Online In-Home Camp Experiences) in 2020, at the beginning of the pandemic, that it would become a lifeline for our families spanning over two years and hundreds of hours of programming. While we would much rather be in-person, VOICE has provided many gifts, such as the fact that no child has to be left behind due to illness because they can participate at home or in the hospital. It gave us the ability to reach even more children and families than ever before and also provided a special gift to patients and siblings by allowing them to share program experiences. In the past, a program might only be intended for the patient, or for their siblings or the whole family. Virtual events make it possible for each family member to not only have their “own time,” but plenty of opportunities to participate in projects together, sharing quality time in the midst of difficult times. The Special Love team has become quite adept at all aspects of virtual programming: packaging and mailing program supplies, managing programs on Zoom and WebEx, recording programs so those unable to participate live can watch the recording and do the project later, and developing unique partnerships to provide engaging programming. Providing community and support has looked different over the last two years, but our commitment to the children and their families remains unchanged. We hope you enjoy this glimpse into 2021. Sincerely,

Ed White

Ed White President of the Board

Jan Bresch Jan Bresch Executive Director


Camp in a Box delivered to area hospitals


Young Adult Educational Scholarships


Kids Attended Virtual Camp Fantastic


Parents Attended Craft Night with David Tutera

Kids Attended Virtual BRASS Camp

Hospitals Served




Families provided with Emergency Relief

52 MA 8 IL




Attended Virtual Octoberfest Family Day

Santa Chats

700 AL





States Reached








Our support knows no bounds. Special Love was proud to connect with and support children and families across the country in 2021.



Our programs are not just about being a kid, they’re about finding connection and building a community of friends, even when you’re online. We can all agree, no one needs a community more than a child battling cancer, especially in the time of COVID-19. The Special Love staff and our core of volunteers and partners created virtual magic through live-streamed special guests, arts and crafts, photography classes, STEM and STEAM programming, and music and games, along with movie nights and “cabin chats.” If a child missed a live session, we helped them access the recorded program – as many times as they liked – to do a project. Families had programs to join each and every month.

The girls had great times and fun with Special Love. We thank you for bringing so much happiness into our home.


In 2021, we were fortunate to have wonderful partners, friends, and long-time volunteers create and host fun, exciting programs for the children, their siblings, and parents. The offerings stretched beyond imagination, whether participants were at home or in the hospital.



Along the way, our galaxy-hopping campers created their own constellations, built and painted signs to welcome the aliens, created slime with our friends at Blue Studios, traveled to the prehistoric era to make a dino-themed landscape with professional 3D modeler Alex Wright, and enjoyed learning about science through multiple fun experiments with the Shenandoah Valley Discovery Museum.


The BRASS boxes and camp activities were amazing! The time difference here in Hawaii pretty much ruled out live participation for all but a few things, but the kids were able to watch the videos and feel like they were part of it!

The programming was amazing, and I was so impressed by how creative the activities were and how engaged our daughter was. She really did look forward to camp every day and the “spirit” of camp transcended the screen.


BRASS Camp blasted off for a space-themed adventure hosted by “Luna Spacey,” our friendly astronaut guide, who welcomed us to the International BRASS Space Station and interceded on our behalf when aliens “borrowed” our campers for a trip to their home planet.

Camp Fantastic for pediatric cancer patients is still the place to be a kid. Campers, and sometimes their family), joined us for lots of fun sessions, including building, decorating and learning to play ukuleles, creating an exploding volcano with 3D modeler Alex Wright, toasting s’mores over a mini campfire in a can, an exciting STEM project making bath bombs with our friends at Blue Studios, learning about “wicked weather” with NBC4 meteorologist Chuck Bell, and crafting a paper flower garden with celebrity party planner, David Tutera. Of course, Camp Fantastic is not complete without a song from National Institutes of Health Director, Dr. Frances Collins and his family, or an exciting canine adventure with Dr. Ned Sharpless, Director of the National Cancer Institute, and his wonder dog, Mojo.


The kiddos loved it, thank you so much. Happy holidays and thank you for everything you do!

Many thanks to Mr. and Mrs. Claus, Chuck and Kim Wickens, and Malcolm Gambill for bringing so many smiles to these young faces.

In June, artist Kelly Walker from The Studio – A Place for Learning led a paint night for the parents where they followed along with her instructions to paint a beautiful landscape. No two finished landscapes were alike, but what was alike was the fun being enjoyed by the parents. To end the year and enjoy the beginning of holiday season, David Tutera hosted a special evening for the parents where they made luminary leaf candles and enjoyed a signature cranberry-infused cocktail recipe created by David. The evening ended with David and the parents having a casual conversation and toasting to a healthy and better new year.

I made David Tutera's holiday cocktail for my whole family this Thanksgiving. It paired so well with our meal, and everyone loved it! Thanks for taking care of the parents, too.


The Big Man himself, and sometimes Mrs. Claus, logged on from the North Pole again in 2021 for special chats with the kids (patients and siblings) on whether they’d been good or not, and what they wanted for Christmas. It was a joy to see how the children lit up when Santa spoke directly to them.

Even in the best of times, parents need an occasional break from the day-to-day stress of dealing with a child’s cancer to focus just on themselves and enjoy the company of other parents. This past year, Special Love hosted two virtual Parents Nights.



Kathy Russell Emergency Financial Relief Program Special Love continued to provide emergency financial assistance to families struggling to make ends meet while dealing with a child’s cancer in 2021.The funds assisted families with non-medical expenses such as paying utilities to keep the lights on, phone bills to stay connected to the doctor’s office, rent and/or mortgage payments to keep a roof over their heads, car repairs and insurance premiums to get them to and from doctors and treatment, and the heartbreaking expense bereaved families bear in laying their child to rest. In 2021, Special Love provided financial relief to 54 families in 12 hospitals, with patients from as young as 7-months-old to young adults trying to keep going and adapt to adult survivorship.

Thank you for covering the bill for my prosthetic leg! Cancer left me an above-the-knee amputee and my prosthesis helps me regain some of my mobility and independence. I’m incredibly thankful for the help during this difficult time.



We are most grateful to our generous donors for underwriting the scholarships

Having had cancer at such a young age naturally fueled my career interests and goals. Following my 2nd diagnosis, the thought of other kids having to suffer the same way I did was a troublesome thought. It was then I devoted myself to a career fighting cancer.

2021 Kay/Moore Educational Scholarship Awardees Hahn Family Scholarship Olivia Adams Alesia Allen Hahn Family Scholarship James Alverson Nadia Anderson Tsadet Brannon Margaret Gallagher Dennis Chastain Memorial Scholarship John Gonzalez Taylor Family Foundation Collin Hong Bresch Family Scholarship Tyler Jones Christopher Keely Brady McKay Destiny McKenzie Malloy Automotive Brenden Meehan Scholarship Seth Middlecoop Karen Nielsen Memorial Scholarship William Peterson Joshua Rubin Koo & Patricia Yuen Scholarship Rachel Simon Connor Steele Arriana Tan Jacqueline Verrecchia Delaney Wahl

The Hope Fund Educational Scholarships for siblings of cancer patients was launched by Jodi DeOms McKay and Bryan DeOms in loving memory of their parents, Gary and Dianne DeOms. Both Gary and Dianne (aka Mama D) were active and engaged supporters of Special Love programming.


Special Love awarded 20 Kay/Moore Educational Scholarships to former campers attending colleges and universities to help them move on with their lives and live out their dreams. The colleges and universities that scholarship awardees are attending include the University of Maryland, Duke University, George Mason University, American University, Towson University, Northern Virginia Community College, the University of Wisconsin – Green Bay, the University of Virginia, and the Fashion Institute of Technology.

The scholarships are specifically for siblings of cancer patients who participate in Special Love’s BRASS programming are at the collegiate level of undergraduate junior of above, and whose degree interest is agriculture, science/medicine and/or nonprofit management. In its inaugural year, 3 educational scholarships were awarded. Inaugural Hope Fund Educational Scholarship Awardees

Molly Gray Kaitlyn Jones Emily Keely

BRASS camp gave me the friendships and memories I needed to push through difficult times, and now I wish to pursue a career in pediatric medicine. Had it not been for the doctors who diagnosed my sister, she wouldn’t have been properly treated and I wouldn’t have had the opportunity to become involved with Special Love.




As we continued to deal with an ever-changing schedule due to the COVID pandemic, and safety was our utmost priority, we turned to outdoor events.



We were delighted by how our walking and running community embraced the virtual race in 2020, so we carried it over to 2021. More than 155 participants returned to Special Love’s choose your own adventure” style race, lacing up their sneakers and enjoying the fall weather. Many participants again chose to meet up in small groups to mimic the camaraderie of a big event day and helped us raise more than $20,000 for our programs. Thank you to our Exclusive T-shirt Sponsor, Clark Construction and to our event sponsors: Jennifer Christie, Barry Creech, Andy and Shari Fisher, Michael and Lisa O’Connor, Pioneer Services, Jyothi Raghavan and Ram Ramachandran, Melissa Steele, and MP Brock Zimmerman.


The golf tournament was the perfect way to celebrate September as Childhood Cancer Awareness Month. We had another record year with more than 175 participants at the beautiful Rock Harbor Golf Course in Winchester, Virginia, raising more than $52,000. The tournament continues to grow as we welcomed new players and 15 new sponsors in 2021 to support children with cancer and our annual Camp Fantastic. Thank you to our Title Sponsors: Fort Collier LLC, Lerner Family Foundation, Loudoun Mutual Insurance, Shockey Companies, and Specialized Engineering.


Event Sponsors: B & M Painting, Bank of Clarke County, Brookfield Residential, CMA’s Subaru of Winchester, Mr. Dennis Perry, Don and Barbara Smith, Goldin & Stafford, Haymaker & Associates, McGriff Insurance, Mid-South Building Supply, Molla Business Solutions, Perry Engineering, Preslee Real Estate, Quality Title LLC, Rader Insurance Group, Right at Home, Tech Team Solutions, Valley Health, VIRASEC IT, Warrior Fitness, Wiley for Delegate, Winchester Printers, and XPO Logistics. A very special thank you to our 2021 Golf Committee: Jamison Ford, Jerry Ross, and Ed White.


We are very lucky to have generous community advocates who give their time and energy and are devoted to being there for Special Love even when events look so different because of the pandemic. We are grateful their drive to support our community is so strong. Outdoor events were again the best ticket in town and in 2021 beneficiary events raised more than $158,000 for our virtual programs. Thank you again to the motorcycle riders, golfers, apple butter and donut makers, event planners, and volunteers whose hard work throughout the year raised funds to support Special Love and the children and families we serve. This year's beneficiary events included: Alpha Phi Omega, George Washington University – Special Love Service Week Ride for a Reason - Motorcycle Ride Glorifest – Rock Concert Institute for Real Estate Management DC Chapter’s Summer Reception The Apple House - Donut Sale Kendra Scott Shop for Good – Fairfax Store Blacksburg Battles Cancer Golf Tournament Richmond Shag Club Golf Tournament Planned Systems International (PSI) Golf Tournament Culpeper Apple Butter Sales


HOSPITAL Outreach 12

Although hospitals still limited visitor access, Special Love was able to provide 700 meals to families in the pediatric oncology wards at nine area hospitals this past year. We continue to be so appreciative of our partner, CJ’s Thumbs Up Foundation who helped us expand our hospital reach, and of the wonderful hospital staff, of course, whose plates have been overflowing COVID, yet they graciously met us outside the hospital for the drop-off and then distributed the food to fill the plates of families in need.


In honor of Childhood Cancer Awareness Month each September, Special Love holds a variety of events to honor children with cancer. One of those campaigns was our Solid Gold t-shirt campaign!


Colleen Whitcomb Tommy Norris Kelly White Ray Olinger Chuck Wickens Viktor Orehkov Kim Wickens Drew Parcells Myra Woolery Gina Parcells Alex Wright Kate Stokely Powell Nitin Ramachandran Laura Ritenour Patrick Rostock Blue Studios Andi Samari Holly Senn Capitol One Dr. Jack Shern Clark Construction Julia Spewak Millbrook High School FBLA Ashley Thomas Sam Thomas Mizz Mosaic Captain Token Shenandoah Valley Discovery Ryan Tomoff Museum Cameron Treon The Studio – A Place for Learning – Kelly Walker Morgan Treon Tracy’s Kids, Inc. David Tutera Marlena Tyldesley Marlene Van den Neste Jeremy Webb



Malcolm Gambill Donna Gregory Olivia Adams Jackson Graney Debbie Antenen Kristen Graney Chuck Bell Mary Grant Andrea Gross Darcus Breneman Bill Brouillette Danielle Grundhauser MP Brock Zimmerman Terry Hillery Andrew Hubley Hailey Broyles Nora Tewksbury Carfi Tammy Jenkins Amy Carpenter Julia Jones Emily Chamberlin Malcolm Jones Dr. Stephen Chanock Peyton Kirkendall Nicole Conti Matt Klein Nick Kovacs Katie Craft Peggy Crowley Michael Lawrence Jessica Dahl Brian McCagh Macy McLain Nick Elam Matt Ernesto Brady McKay Sean Fenlon Jodi McKay Jessica Fisher Brendan Meehan Katie Fogarty Hales Parcells Miller Ann Malo Gambill Sean Ngo


Special Love relies on a talented cadre of volunteers to help us provide fun, interactive programming to children battling cancer, and to help families enjoy ever-elusive quality family time. Especially during the COVID-19 pandemic.



Where would Special Love be without our loyal donors who continue to humble us with their generous support? Together, we provided a nurturing community of support to children with cancer and their families in 2021.




Van Metre Companies Foundation Yuen Foundation Incorporated




$25,000 and Above Jennifer Christie Maria Kenny The Hahn Family


Kohl's Department Stores Planned Systems International PSI The Gwen Laulhere Foundation

TRIBAL LEADERS $10,000 to $24,999 INDIVIDUAL Sheila Baker


BION, Inc. Cantor Fitzgerald Relief Fund Administration Care Camps Clark Construction Group, LLC Combined Federal Campaign-National Capital Area Damuth Family Foundation E&G Group Institute for Real Estate Management ISI Demolition Richmond Shag Club Ride for a Reason Source One Flooring Inc. The Benevity Community Impact Fund The Taylor Family Foundation Windsor Electric Co., Inc.

$5,000 to $9,999 Mark Atherton Christopher Barnett Marcia Carlucci Jim and Paula Chismar Lauren Drake Ken and Lee Fisher Andy and Shari Fisher Brian and Kristen Graney Tom and Mary Johnson Lynette Mark John and Rose McGowan Jim and Danielle Michelson Jeff and Kay Phelan Lisa and Conrad Schmidt Bill and Terri Tomoff MP Brock Zimmerman


Annette M. and Theodore N. Lerner Family Foundation Blacksburg Battles Cancer FD Associates, Inc. Fort Collier Group, LC Half My DAF Loudoun Mutual Insurance Company Malloy Toyota Reliant Drywall Offit Kurman, Attorneys at Law SAIC - Frederick, Inc. Frederick National Laboratory for Cancer Research Specialized Engineering The Berlin Steel Company The Shockey Companies

$1,000 to $4,999 INDIVIDUAL

Christine Bingaman Nicole Blocker William Brandson Jan Bresch Harman and Betsy Brumback Amy Carpenter Carmen Cheng Nicole Conti Barry Creech Margaret Crowley Hampton DeJarnette Parker O. Dillard Trust John and Lisa Dooley Ronald and Martha Doornink Michael Dorenfeld Steve and Donna Eastwood Brenda Edwards Andrew Ellen Betty M Ellen Anna Feinhaus Joseph and Carol Furco Cheryl Garner Dennis Gogarty Caroline and Greyson Goon Evalynn Greenberg Carol Greenhut Jack Hanson Bill and Patty Hawk Kelly and Brian Henshaw

Louis Hofheimer Timothy and Barbara Iseminger Sharon Jansen Marshall and Kacey Jenkins Fouad and Katherine Khoury Alexander Kuta John Lacker John and Peggy Lingenfelter Terri McCagh Brian and Terry McCagh Jack and Kathleen McKay Brendan Meehan George and Cheryl Michael Matthew and Stefanie Murphy Michael and Lisa O'Connor Paula Paul Dennis Perry Andrew Pulsirisaroth Jyothi Raghavan & Ram Ramanchandran Jennifer Raspa Mary Jo Rodgers Jerry Ross Kathy Russell Ken Ryder Mark and Stephanie Sadowski Bryan Scheck Sara Schweigert John W. and Margaret Shern Don and Barbara Smith Robert Steele Melissa Steele Ronda Stump Paul Teleki Donald E. and Patricia Thomas Alex and Karen Tomoff George & Janeen Wadzita Aron Woolman


ARC3 Gases Bank of Clarke County Brookfield Residential CoBank Community Foundation of the Northern Shenandoah Valley Dorothy Overcash Charitable Trust ESA - Virginia State Council Gaithersburg Rotary Foundation Glaize Developments, Inc. Glorifest Goldin & Stafford, Inc. Greenstein Delorme & Luchs, P.C. ISEC, Inc. Ken and Nancy McKee Foundation KimbleCo Kiwanis Club of Winchester Klein Hornig LLP Louis and Dora Smith Foundation Maryland Applicators National Capital Optimists Club NGP V Management NIH Federal Credit Union PayPal Giving Fund Perry Engineering Company, Inc. pioneer Rotary Club of Culpeper Scaffold Resource Shapiro and Duncan Shenandoah Valley Electric Cooperative Spherion Support Beam Foundation The Apple House The Hwang Foundation The Liu Charitable Fund The TJX Foundation, Inc. Waterford Baptist Church

COUNSELORS $500 to $999


Karena Anderson William Armstrong Odiorne Beebe Bruce and Polly Behrens Christine Berg Barb and Tom Blomgren Kristin Burney Harry and Barbara Byrd Tom Byrd William D. Cannon Jr. Donna and Jeffrey Carpenter Linda Chastain Dawson and Lisa Craft Dennis and Nancy Dickison Lois Ember Kesha Evans Amy Fahey Jacob Fuchs Michael Grinnon Jeff Haymaker Peter and Laura Hendricks Bill and Netty Hottel Rolfe Hubley Richard and Karen Huff Courtney Hundley John Jenkins Daphne Kaplan Henry Kern Geoff and Jacki Kimmel Ruth Kistler Laurie and Dave Kliemann Kenneth Kosnik Aaron Lee-Zucker Peter and Julie Lindeman Helaine and Ronald Mario Jennifer McIver Bill and Renee Mitchell

Dana Nerenberg Sharyn Nerenberg Philip Pizzo Laura and Bobby Quarantillo Ann Ross Edward G Ruckdaschel Mary Russell George and Jeanne Schember Randy and Barbara Schools Ruth Snyder Tyler Spiers Marc Washington & Julie Staiano Washington Elizabeth Stier Shad Strother Megan Sullivan Marion Swaim Julie Testa Dale and Suzanne Thurman YuYe Tong Marla Viorst Dr. Linda Luong & Philip Wilson


Capital Triumph Register Limited Community Foundation for a Greater Richmond Fair Ways for Youth, Inc. Kiwanis Club of Alexandria VA Medtronic Northrop Grumman O'Connor Plumbing Rappahannock County Lions Club Foundation R. Bratti Associates Inc. Rappahannock Rotary Strength and Honor Motorcycle Club The Christman Company Valley Health VIRASEC IT Support Services Winchester Printers, Inc.


HOW HOW $250 to $499



Patricia Aitken Anthony Akstin Christine Anderson Jane Beam Charles Beever Elliot and Betty Blum Earl and Penny Boyanton Melissa Buryk Tracey Chambers Joseph and Dorothy Conti Doug and Carolyn Dailey Terril and Glenda DeJong Parker and Bev Dillard Janet Eissenstat Karen and Brian Gallant John and Janice Gallinot Sandra Gero Brook Gesser Paul Gilkerson Thomas Glass Phillis Haas John and Kathy Henry Stephen Hodson Anne Huber Susan Jewell Walter and Jean Johnson Suzanne Jones Quentin and Colleen Kardos Melanie Kiracofe Christy Korthase Jennifer Kotlinski Dahlia and Jacob Lerner Joe and Maureen Lilly Lori Ludrof Sarah Marini Mary Ellen Marrion John and Hope Marshall

Robert and Kelly McArter Nancy and John McAvoy Jabez McClelland Cary Nelson Matthew O'Donnell Alvin Parker Michael Pell Karen Perry Kennon Poteat Thomas Rosato David Schroeder Kelly Shaner Roy Shannon Steve Shauberger Patricia Smith Bessie and Robert Solenberger Adrian Steel James and Mary Stokely Alexandra Tan Katherine Tkach Beth and Don Tomoff Jane and Jordan VanLare Lee Weiner Bill and Linda White Thomas Wiltzius Jay Yarington Cynthia Zammit Marjorie Zessar


Baltimore Ravens Burgess Steel Holding LLC Dillon Family Charitable Fund Five Star Services LLC Good Shepard Lutheran Church Jobalie LLC MAP Property Solutions LLC Rappahannock Rotary United Way of South Hampton Roads University of Hawaii - Department of Dental Hygiene Westco Builders, Inc.



Tom Baker Founder & Inspiration 1938 - 2018 Melissa Steele, President Ed White, President-Elect MP Brock Zimmerman, Secretary Maria Kenny, Treasurer John Taylor, Immediate Past-President William P. Cannon, III Jennifer Christie Nicole Conti Shari Jones Fisher Caroline Goon Brian Graney Jack Hanson Dahlia Lerner Brendan Meehan Jim Michelson, M.D.

Taylor Miles Jay Robinson Lisa Schmidt Bill Tomoff Lee Weiner Stephen Chanock, M.D., Federal Liaison John Dooley, Founding Director Philip A. Pizzo, M.D., Founding Director



Jan Bresch, Executive Director Dave Smith, Senior Director, Outreach & Programs Kim Jappell, Director of Development Judy Martin, Director of Finance Angela Ashman, Programs Director Elizabeth Lewis, Communications Manager Sean Ngo, Programs Intern

Statement of Financial Position for the year ending December 31, 2021 LIABILITIES

CURRENT ASSETS Cash Prepaid expenses

CURRENT LIABILITIES Accounts payable Deferred revenue Current obligations under capital leases

517,832 24,621

542,453 PROPERTY & EQUIPMENT Vehicles Office equipment Promotional videos Accumulated depreciation

OTHER ASSETS Other assets Investments

5,567 23,802 72,282 48,000 (130,043) 14,041 7,198 2,897,144

LONG-TERM LIABILITIES Obligations under capital leases


4,681 4,681

NET ASSETS Without donor restrictions With donor restrictions

3,300,768 149,820 3,450,588


2,609 1,039 1,919



SUPPORT AND REVENUE BRASS activity fees and donations Camp Fantastic fees and donations Weekend fees and donations Contributions Investment income In-Kind contributions Other income PPP Loan Forgiveness Special events Less: Costs of direct benefit to donors


53,348 99,452 34,500 531,985 314,828 9,574 1,729 228,609 302,474 (20,706)



Change in net assets Net assets, beginning of fiscal year

670,328 2,780,260



14% - BRASS Activities 18% - Camp Fantastic 2% - Weekends 32% - Other Activities 20% - Management & General 14% - Fundraising

EXPENSES Programs BRASS Activities Camp Fantastic Weekends Other Activities Management and General Fundraising

120,557 159,473 19,298 285,532 176,198 123,482

TOTAL EXPENSES Loss on Disposition of Assets

884,540 925



Note: The above audited summary was derived from audited financial statements prepared by Rutherford & Johnson, PC, of Winchester, Virginia. Their report, dated April 22, 2022, is available for inspection at the Special Love, Inc. office.


Statement of Activities and Changes in Net Assets




Special Love, Inc. 158 Front Royal Pike, Suite 311 Winchester, VA 22602 Phone: 888-930-2707 • Fax: 540-667-8144

www.specialove.org CFC #49642 • CVC #100078