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Simon Stevens

April 2011 Š 2011 Simon Stevens

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My Personal Guide ........................................................................................................................1 Contents ..........................................................................................................................................2 Key ...................................................................................................................................................4 Funders...................................................................................................................................................................... 4

My Overview ...................................................................................................................................5 My Welcome Profile ................................................................................................................................................ 5

My Achievements ..........................................................................................................................6 My Achievements Overview ................................................................................................................................... 6 My Achievements Timeline â—Š ................................................................................................................................. 6

My Contact Details ........................................................................................................................7 My Main Contact Details ......................................................................................................................................... 7 My Internet Contact Details ................................................................................................................................... 7

My Education..................................................................................................................................8 My Schools ................................................................................................................................................................ 8 My Qualifications ..................................................................................................................................................... 8

My Employment .............................................................................................................................9 My Employment Overview ...................................................................................................................................... 9 My Employment History .......................................................................................................................................... 9 Who I have worked with (100) ........................................................................................................................... 10

My FAQ Frequency Asked Questions ....................................................................................................... 11 Why do I wear a helmet? ..................................................................................................................................... 11 Why do I live upstairs? ......................................................................................................................................... 11 How long has Flora looked after me? ............................................................................................................... 11 Do I have any contact with my family? ............................................................................................................. 11 Why do I use a harness in my wheelchair? ...................................................................................................... 11 What is a disability issues consultant? ............................................................................................................. 11 Why do I wear nappies when I go out? ............................................................................................................. 12 What is my greatest achievement so far? ........................................................................................................ 12 Why do I have a varied routine? ......................................................................................................................... 12 What do I do on my computer all day? ............................................................................................................. 12 Why do I have live in volunteers? ....................................................................................................................... 12 Š 2011 Simon Stevens

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Am I ever bored?................................................................................................................................................... 12 What are my goals for the future? ..................................................................................................................... 12 What countries have I visited? ........................................................................................................................... 13 Did I go to University? .......................................................................................................................................... 13 Why do I like things to be done my own way? ................................................................................................. 13 Why do I wear a swimming hat in the pool? .................................................................................................... 13 Have I been on TV? ............................................................................................................................................... 13 What is my greatest strength? ........................................................................................................................... 13 Do I have any flaws? ............................................................................................................................................ 13 How would you sum me up? ............................................................................................................................... 14

My General Infomation .............................................................................................................. 15 My Other Information ........................................................................................................................................... 15

My Health..................................................................................................................................... 16 My Health Profile .................................................................................................................................................. 16 My Conditions ........................................................................................................................................................ 16

My Leisure ................................................................................................................................... 17 My Leisure Profile ................................................................................................................................................. 17 My Leisure Activities............................................................................................................................................. 17 My Sports ............................................................................................................................................................... 18

My Photos .................................................................................................................................... 19 My Picture Collage ................................................................................................................................................ 19

My Profile ..................................................................................................................................... 20 Summary Profile ◊ ................................................................................................................................................ 20

My Secondlife.............................................................................................................................. 21 My Secondlife Profile ........................................................................................................................................... 21 My Secondlife History ........................................................................................................................................... 21

My Skills ....................................................................................................................................... 22 My Skills Overview ................................................................................................................................................ 22

My Work ....................................................................................................................................... 23 My Work Profile..................................................................................................................................................... 23 My Activities ........................................................................................................................................................... 23 My Consultancy Activities ◊ ................................................................................................................................. 25 My Disability Activities ◊ ...................................................................................................................................... 25 My Media Activities .............................................................................................................................................. 26 My Publications ..................................................................................................................................................... 27 My Training Activities ◊ ........................................................................................................................................ 27 My Youth Activities ◊ ............................................................................................................................................ 28 Who I have worked with (100) ........................................................................................................................... 29

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Funders ATW CC ILF NHS PAS

Access to Work Coventry City Council Independent Living Fund National Health Service Personal Assistant Staff

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My Welcome Profile I am a leading independent disability consultant and trainer, and social change agent, with vast experience and expertise in a wide range of fields including disability equality, independent living, health policy, social care, lifestyle advocacy and Secondlife. I have worked with many organisations of all types over the last 20 years nationally and internationally including Community Care Magazine, NHS Coventry, Scope, Warwick University, Channel 4, Council of Europe and eBay. I have cerebral palsy that affects his speech, balance, hand control and sense of humour (in a positive way). In 2009, I had a nerve virus which resulted in long term Acute Neuropathy that increased his personal experience of impairment. Despite his difficulties and the level of everyday discrimination he faces, I have had a vast range of life opportunities that has assisted him to help others by my willingness and openness to discuss his experiences.

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My Achievements Overview Since my birth I have had many achievements, some large, some small, some formal and some informal. I always see my achievements as the by-product of who I am and not what I am. My greatest achievement is always today as it includes the combined experiences of every day before it.

My Achievements Timeline ◊ Date

Month

1974 1990 1991 1992 1994 1995 1995 1995 1997 1997 1998 1998 2001 2004 2008 2009

Activity My Birth Leadership Award from Woolworths Performance of my own play, Normality, by Collyer„s Sixth Form College Winner of Front Cover Design for college yearbook

March March

Swimming National Records for 25m and 50m f/s with flotation devices Swimming World Records for 25m and 50m f/s with flotation devices

April

Tandem Parachute Jump on 21st Birthday

August

Tandem Bungee Jump

July

Canoeing at the Cerebral Palsy World Games

August

Travelling around Eastern Europe

February

Presented at a conference on integration in Budapest, Hungary

November Formation of Enable Enterprises June

Winner of Prince‟s Trust Award

November Winner of „Enterprising Young Brits‟ Community Category July

Winner of Revolutionary Award of UK Catalyst Awards Survivor of Gullian Barre Syndrome

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My Main Contact Details Address

Phone Mobile Email

Home

Work

8 Everdon Road Coventry CV6 4FB +44 (0)24 7666 4352 +44 (0)7825 149227 simon@simonstevens.com

8 Everdon Road Coventry CV6 4FB +44 (0)24 7666 4352 +44 (0)7824 149227 simon@simonstevens.com

My Internet Contact Details Personal Website:

www.simonstevens.com

Yahoo: MSN: AOL: ICQ: Skype: Second Life:

enableenterprises@btopenworld.com simonenable@hotmail.com enableenterprise@aol.co.uk 155158793 simonstevens74 Simon Walsh

Facebook : Twitter: LinkedIn: Youtube: FriendsReunited:

http://www.facebook.com/simonstevens74 http://twitter.com/simonstevens74 http://www.linkedin.com/in/simonstevens http://www.youtube.com/enableenterprises http://www.friendsreunited.co.uk/SimonStevens

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My Schools Date

Type

School

1977-1979

School

Queen Elizabeth II School for the Mentally Handicapped, Horsham

1979-1981 1981-1985

School School

1985-1990

School

1990-1992

College

1992-1996 1998-1999

University University

Slinford Infant School, West Sussex Southgate Physically Handicapped Unit, Crawley Forest Community School, Horsham, West Sussex Collyer„s Sixth Form College, Horsham, West Sussex Coventry University Sheffield University

My Qualifications Level

Subject

Grade

GCSE

Maths Physics English Literature English Language Chemistry French Statistics Music Geography Statistics Maths Business Studies

A B B C C C C C D Pass B D 3rd honours Pass n/a

RSA A-Level BSc NVQ Level 3 MA

Manufacturing and Business Owner Manager Disability Studies

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My Employment Overview Since leaving University in 1996, I have worked one way or other for either myself or my own company. I have always seen full employment as a normal part of my life and a central outcome for my life and my personal support.

My Employment History Dates

Organisation

Job Title

Notes

1996-1998 1998-2008

Self Enable Enterprises Self-Employed

Disability Consultant Chief Executive

Developing business plan Own Company

2008-

Independent Disability Issues Consultant, Trainer and Activist

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Who I have worked with (100)

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Why do I wear a helmet? I mainly wear a helmet in case of falls but it is also a kind of fashion statement and now even my personal trademark. When I was 17 I fell backwards on some ice at college and knocked myself out which encouraged me to try a helmet. I believe it is better to be safe than sorry!

Why do I live upstairs? I live upstairs so I can feel safer and I know I can leave the windows open all the time in the summer without any problems. I feel the benefit of living upstairs certainly outweighs the effort of climbing the stairs. I love being able to look out the kitchen windows knowing that no one can see me!

How long has Flora looked after me? Flora does not look after me! I look after Flora‟s employment needs like a good working environment so she is able to support me to lead my life in the way I want. Flora started working for me in October 2006.

Do I have any contact with my family? No. My family are all alive as far as I know although they play no part in my life. I feel they have never been willing to accept me for who I am and I have not been willing to pretend to get on with people when I don‟t! I am happy with the situation.

Why do I use a harness in my wheelchair? While I can walk in my own way I can not sit very well. I wear a harness in my wheelchair so I can keep upright and I feel comfortable. It is important that the crotch strap is always fastened as it stops the possibility of me sliding down.

What is a disability issues consultant? A disability issues consultant is someone who is normal paid but can be unpaid to provide organisations of all types detailed information on specific matters which relates to issues that affects all or a specific group of disabled people. I have been a disability issues consultant for over 20 years and I have worked with over 100 organisations in that time.

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Why do I wear nappies when I go out? I wear nappies with plastic pants when I go out in case I am not able to reach the toilet in time and to soak up any drips after I have been to the toilet. I prefer the term nappy instead of pad or brief because I am not embarrassed to call things what they are!

What is my greatest achievement so far? I like to say that „today‟ is always my greatest achievement because it is the result of every day before today. However, my greatest achievement has to be Wheelies, my disability themed nightclub, because of the impact it has generated in so many ways.

Why do I have a varied routine? Because I can and I should. I have always lived my own life in my own way which has always been cutting edge. In order to achieve what I want in life I need and enjoy a varied routine.

What do I do on my computer all day? I do many activities on my computer such as emails, banking, shopping and writing reports to name a few. While it may often look like I am doing nothing or using the computer too much, I am always working on a number of projects at one time which can be hard for me to properly explain! I also have my iPad for when I want to relax.

Why do I have live in volunteers? While I do not need support overnight I like to feel safe in my home as I had difficulties in the past with intruders. I also enjoy the diversity and opportunity to support someone else‟s learning and difficulties, which the volunteer scheme provides me.

Am I ever bored? No, I simply have not got time to be bored!

What are my goals for the future? World Domination?? My current goal is having a degree of stability and steady improvement in my health, work, finances and so on. I like to remain happy in all aspects of my life.

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What countries have I visited? I have visited Austria, Belgium, Canada, Czech Republic, France, Germany, Hungary, Ireland, Italy, Lanzarote, Luxemburg, Netherlands, Nigeria, Portugal, Romania, Slovakia, Spain, Tenerife, Tunisia, Turkey, USA (Boston, Chicago, Florida and Seattle)

Did I go to University? Yes, I studied Manufacturing and Business Studies at Coventry University as a degree. I also tried doing a Masters in Disability Studies at Sheffield University but I did not complete the course because I was not happy with the focus of the course.

Why do I like things to be done my own way? Because it is my life and why should I not have the things I can control done in the way which is best for my needs and what I want. I have never minded if my own was unusual or seems odd but so long as it works for me!

Why do I wear a swimming hat in the pool? I wear a swimming hat in the pool for many reasons but mainly to keep my head warm and so I can be seen easily in the pool. There are always clear reasons for all the equipment and clothing I use and when I use them.

Have I been on TV? I have been on TV a few times in a range of documentaries and news programmes in the UK and worldwide. I have also appeared as myself on a hidden camera disability themed comedy called “I‟m Spazticus” on Channel 4.

What is my greatest strength? I regard my greatest strength has my determination which people have always remarked upon. Right from when I was an early child I have been determined to live life my way. I feel this is supported by the pride in myself.

Do I have any flaws? I can be a selfish stubborn egotistical bastard but why not? No one is perfect and I would never pretend to be as I am honest about who I am.

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How would you sum me up? The key words to sum me up on are proud, determined, enterprising, honest, compassionate, direct and me!

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My Other Information Star Sign: Favourite Colour: Favourite City: Favourite Number: Single or Taken: Do You Smoke: Do You Shower: Country Born in: Shoe size: Righty or Lefty: Place of Work: Hours worked: Time on Internet: Mobile phone?: Like to text?: Play an instrument?: Have any tattoos?: Blood Group: Preferred hot drink:

Aries Blue Budapest 7 Single No Daily UK 10 Both At home 37 per hour Too much Yes Yes Yes, Keyboard No O Coffee with 3 sugars and milky

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My Health Profile I have always considered myself to have relevantly good health as it is a state of mind rather than based on arbitrary facts. I have cerebral palsy since my birth, which affects my speech, mobility, hand control, balance and continence to a significant degree as well as providing me with a very good sense of humour. I also have mild Asthma since being a child which in many ways prevented me from taking part in more adventurous activities than having cerebral palsy. In 2009, after a long period of general ill health and excessive alcohol use, I met with an acute nerve virus, which attacked my nerves toes upwards and reaches my naval before being treated. This left me completely immobile for 3 months and required 6 months community based rehab to assist me to walk again. This episode has left me with complex chronic pain which is managed by a comprehensive array of medications. I have also not had any alcoholic drink since May 2009. To complete an improved management of my health and wellbeing, I explored my mental wellness and discovered I have mild bipolar, which I can now track back to always being a part of my life that I simply coped with. I believe it is a part of the normal stresses which is put upon people with significant impairments who choose to live independently and make a contribution to society. With medication, I have learnt to be more chilled than a Buddhist Eskimo! My health is currently very good and it is great to tick off each day as a good day.

My Conditions Condition

Current Effects

Started

Issues/Notes

Cerebral Palsy (Spastic Quadriplegia Athetoid) Acute peripheral idiopathic polyneuropathy Dysphagia Asthma Depression Cyclothymia Seasonally Affected Disorder (SAD) Gastroesophageal reflux disease (GERD)

Speech, mobility, hand control, balance and continence Nerve pain in feet, legs and hands

Birth

The effects may worsen as I get older.

January 2009

Requires lots of medication to manage the pain

Speech Breathing Low moods High moods Low mood during winter months None

Birth Childhood In my 20s In my 20s In my 20s In my 20s

Just diagnosed in 2010

Resolved with operation

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My Leisure Profile I always recognised the need for a „left brain right brain‟ balance to life, which means leisure is as important in life as work to be physically and emotionally well. I have always liked to try every leisure activity at least once to find out if I like it, how else can you comment on it? I am very much a water baby and I love any activities involving the water and wearing a wetsuit, from swimming to canoeing to waterskiing. Capsizing is all part of the fun, so long as you have all the proper kit on. I hate when „people‟ put disabled people in canoes and other boats in their street clothing and promise they will not get wet… what is the point if you can not get wet! Food and Music are both passions for me, which I explore in every way I can. I love good food from all cuisines and a very wide range of music, my tastes are unusual to say the least. I do not always balance my leisure well with my work but I do my best!

My Leisure Activities Type

Activities

Indoors Going Out Sport Pets Other

Watching TV, Watching Movies, Chess, Messy Play Meals, Shopping, Theatre Swimming, Canoeing, Waterskiing, Whitewater Rafting None Secondlife, iPad

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My Sports

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My Picture Collage

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Summary Profile ◊ I am a leading independent disability issues consultant, activist and trainer, and social change agent, with vast experience and expertise in a wide range of fields including disability equality, independent living, social care, lifestyle advocacy and secondlife. I have worked with many organisations of all types over the last 15 years locally, nationally and internationally including Scope, Warwick University, BBC, Council of Europe, National Housing Federation and eBay. Born in 1974, I have cerebral palsy which affects his speech, balance, hand control and continence in a significant manner, as well as providing him with a very good sense of humour in a positive way. He also had asthma, acute neuropathy which means I am in constant nerve and muscle pain, and a mild form of bipolar. Despite my difficulties and the level of everyday discrimination he faces, I have had a vast range of life opportunities and experiences. I have travelled widely around Europe and the world, and taken part in many sports and especially water sports. My life has a number of highlights. The first is having my play about my experiences of mainstream education, Normality, being first performed by my Sixth Form College in 1991. The second is being an active participant and coordinator of the European Human Bridges project which organised many week long seminars for disabled and non-disabled young people across Europe including over 15 countries. Thirdly, is being awarded the Community Category of Enterprising Young Brits in 2004 which was presented by Gordon Brown when he was Chancellor. The last is when Newsweek International produced a video for a cover feature about Wheelies, the world’s first virtual disability themed nightclub in the world using the secondlife platform. The club supports 100s of disabled people around the world and provides a safe area for socialising and chatting. In July 2008, the club won the revolutionary award of the UK Catalyst Awards, also presented by Gordon Brown. I am determination, passion and commitment to everything I do. I have great communication skills and can understand specific situations very quickly. With a good sense of humour, I am a great host, friend and companion. I am also open and honest and I recognise I am far from perfect.

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My Secondlife Profile I have used Secondlife since May 2006 under my avatar, Simon Walsh. This 3D virtual world have been a life change experience from me, and my contributions to Secondlife have indeed been world changing. My avatar‟s full time use of a wheelchair, which was a very natural thing for me to do, has sent shock waves around the world in media, academia and people‟s lives, because of how it demonstrates disability and impairment as „chosen identity‟. This has been matched by the success of my virtual nightclub, Wheelies, which first opened in September 2006 which is talked about more on the Wheelies page on my website.

My Secondlife History Date

2006

2007 2008 2010

Month May

Activity First entered Secondlife as Simon Walsh

Sep

Formally opened Wheelies for the first time

Nov

Appeared on TV News Report in Canada

Dec

Took part in Big Brother Secondlife

May

Launched Wheelies on Secondability Island

Aug

Attend SLCC Conference in Chicago

Jul

Awarded UK Catalyst Revolutionary Award for Wheelies

Jul

Opened Llamdos Island

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My Skills Overview Type

Skills

Employment Sport Languages General

Disability Consultancy, Training, Research, Lecturing and Advocacy Swimming, Canoeing, Waterskiing French, some Spanish, some German and many words in many languages Very Organised

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My Work Profile Since I was 3 I knew I wanted to work for myself and then write books. I have never had fixed ideas about what I wanted to do as I never had that kind of job. While most people have a story which is steady and often not fulfilled to its ful potential, my story has often been to dip into other peopleâ€&#x;s stories, make a specific difference and pop out again. This metaphor is really how I work as organisations ask me to work with them in various ways which is very often ad-hoc and unique in supporting disability issues. My independence from any group and established way of thinking, along with my willingness to be straight talking, making me a ideal catalyst for change. I do however recognise that telling the truth is often an once in a blue moon opportunity and therefore my interventions are often short but profound. With over 100 organisations and even more individuals supported in this way, it is a formula which is successful and I look forward to dipping into your story in supporting you to improve the life opportunities and experiences of everyone, specifically people with significant impairment.

My Activities Service Active (A)

Be (B) Change (C)

Design (D)

Projects Active Citizens (AC) Active Group (AG) Active Living (AL) Active Meetings (AM) Active Now (AN) Active Support (AS) Active Thinking (AT) Be Funny (BF) Be Graphic (BG) Be Proud (BP) Be Seen (BS) Change Locations (CL) Change Products (CP) Change SL (CS) Change Together (CT) Change Websites (CW) Design Films (DF) Design Graphics (DG) Design Images (DI) Design Music (DM) Design Speech (DS) Design Websites (DW)

Description Government Campaigns Campaigns Group Lifestyle Campaigns Conferences Concept Blog Social Care Campaigns Ideas Generation Fun Self-Representation Graphic Self-Representation Proud Self-Representation Self-Representation Blog Property Access Audit Product Evaluation Virtual Access Audits Project Development Website Access Audits Video Production Graphic Design Brand Management Music Production Audio Design Website Design Š 2011 Simon Stevens

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Enable (E)

Gateway (G) Inform (I)

Llamdos (L)

One (O)

Rewind (R) Select (SO) Simon Stevens

Together (T) Understand (U)

Viewpoint (V) Wheelies (W)

Enable Living (EL) Enable Support (ES) Gateway Homes (GH) Gateway Shops (GS) Gateway Together (GT) Inform Magazine (IM) Inform Online (IO) Inform SL (SL) Llamdos Beaches (LB) Llamdos Direct (LH) Llamdos Home (PH) Llamdos Island (LI) Llamdos Plaza (LP) Llamdos Spa (LS) Llamdos Upper Deck (LU) One Buy (OB) One Life (OL) One Support (OS) Pathway Complete (PC) Pathway Gold (PG) Pathway Lite (PL) Rewind Online (PO) Rewind SL (RS) Select Documents (SO) Select Gifts (SO) 5 Star Success James Webstar Project T Simonstevens.biz Simonstevens.com Together Advertising (TA) Together Direct (TC) Understand Action (UA) Understand Centre (UC) Understand Disability (UD) Understand Me (UM) Understand Now (UN) Understand Support (US) Viewpoint Demand (VD) Viewpoint Now (VN) Viewpoint Online (VO) Wheelies Broadwalk (WB) Wheelies Cub (WC) Wheelies News (WN) Wheelies Pack (WP) Wheelies Story (WS) Wheelies Tips (WT) Total Projects

www.simonstevens.com Lifestyle Advocacy 2 Social Care Advocacy Virtual Residental Property Virtual Commercial Property 3 Virtual Conference facilities Business Magazine 3 Website for magazine Virtual Magazine Virtual Beaches Virtual Info-Hub Virtual Home Virtual Island 7 Virtual Urban Area Virtual Spa Virtual Urban Area Personal Shopping 3 Lifestyle Support Social Care Support Complete Contacts Database Standard Contacts Database 3 Contact Contacts Database Disability Museum 2 Virtual Disability Museum Public Documents 2 Gift Ship Logo Background 0 Website support Business Development Website Website Advertising Services 2 Sponsorship Services Empowerment Training 6 Virtual Training Centre Disability Training Personal Development Online Material Social Care Training Articles Personal Blog 3 Online Commentary Virtual Jazz Club 6 Virtual Dance Club Wheelies Blog Introduction Pack History of Wheelies Fundraising 64

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My Consultancy Activities ◊ Date

1998 1999

Month August

Activity Communication Consultant for Teaching Art, Newark

April

Accessibility report for Noyna, Manchester

July

Accessibility audit for Sheffield University Students Union

August

Viability report on use of non-spill cups in disabled markets for V&A Marketing, Cardiff Accessibility advise for European Social Fund CD Rom on Access

October

2000

November Language audit for Bobath Centre for Adults with Cerebral Palsy, London January Member of Research Group with Jenny Morris for Scope March

Accessibility Advice for Odeon Cimenas

April

Market analysis for Crawford Direct

April

Language Advice for Blackpool Pleasure Beach

December Consultancy on Direct Payments, Swindon People First

2001 2002 2003 2004 2005 2006 2008 2011

April

Promotional consultation for VOX project, Oxfordshire

April

Individualised contracting consultation, Oxfordshire

March

Consultancy, British Long Distance Swimming Association

October

Market Analysis for EMAP Healthcare

December Consultancy, EMAP Healthcare April

Future thinking, Scope

May

Managers Training, Scope

July

Ebay

October

Campaigns Academy Report, Leonard Cheshire Disability

July

The Cerebral Palsy Rough Guide, Scope

January

Device Evaluation for Toby Churchill

My Disability Activities ◊ Date 1992-1995 1995 1995 1995-1997 1995-1997 1997-2001

Activity Students with Disabilities Officer at Coventry University Students Union Interview for BBC Documentary on Disability called Invisible Walls Interview for ITN News at Ten on Euthanasia Committee member of Coventry Citizens Advocacy Member of Scope Midland„s Alpha Committee Member of Scope East Midlands Partnership Committee © 2011 Simon Stevens

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www.simonstevens.com 1997-2008 1998-2008 19992000-2001 2000 2000- 2002 2000- 2002 2001 2003 2003 2004-2006 Nov 2004 2006Sept 2006 2007-2008 Feb 2008 2008

Member of Scope Campaign Network Managing Director of Enable Enterprises Lifestyle Advocate of person with learning difficulties Vice Chair of Scope East Midlands Partnership Committee Member of Scope‟s Profound and Multiple Impairments Group Research into Impairment, Identity and Lifestyle Speech Impaired representative of Typetalk Customer Group Accessibility Director for 4dp.com Coventry Secretary, Federation of Small Businesses Member of West Midlands Job Centre Plus Disability Customer Form „Time to Think Equal‟ project for Scope Winner of „Enterprising Young Brits‟ Community Category Writer for Community Care Magazine Opening of Wheelies Nightclub in Secondlfe Service User Representative for Skills for Care Becomes Independent Disability Consultant and Trainer Producer of Rough Guide to Cerebral Palsy, Scope

My Media Activities Date 1992-1995 1991-1992 1991-1992 1996-1997 1996-1997 1996-1997

Activity Students with Disabilities Officer at Coventry University Students Union Editor of local disabled sports club newsletter Editor of Billinghurst PHAB Newsletter Freelance writing for Archimedes World Freelance writing for Internet Business Production of Documentary called „Behind the Drool„

1999

Star of a DfEE ‘See the Person‘ Newspaper Advert

2000 2001 -2003 Feb 2001 Oct 2001 Feb 2002 Apr 2002 Jul 2004 May 2005 Jul 2006 Oct 2006 2007 2007 2007 2007 Oct 2009

Photo of myself used by Disability Rights Commission Columnist for Community Living Interview for Radio 4 on the right to be disabled Article in Arberry Pink Modelling of adult smocks for Noyna Catalogue Columnist for NHS Exposed Model for Scope on front page of Guardian Star of „I‟m Spazticus‟ Star of 'Taboogie' Wheelies interview for TV News in Canada Wheelies interview for Newsweek International Wheelies interview for Times Wheelies interview for BBC Radio 4 Wheelies interview for BBC World Service Columist for Ability Magazine © 2011 Simon Stevens

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My Publications Date

1974 1991

Activity My Birth Normality, a play about Inclusion of a disabled boy into an all boys school, SJS Publication Dysability Handbook, 1st Edition, SJS Publishing Dysability Handbook, 2nd Edition, Enable Publications Identification on Needs in Coventry and Warwickshire of People with Cerebral Palsy Their families and carers, Scope Pathfinder database of 15000 disability related organisations Pathfinder Gold Stevens Collection 74 Ways of Upsetting a disabled people The Helen Effect Llamdos Report

1992 1994 1999 2000 2002 2003 2005 2009 2009

My Training Activities â—Š Date

1998 1999

Month Apr 1998

Activity Presenter at Direct Payments Conference in Carlisle

Oct 1998

Teaching on the Disability Discrimination Act for Coventry Community Education

Mar 1999 Apr 1999

Workshop on equality issues in personal assistance recruitment, Values into Action Presenter at Direct Payments Conference in Cockermouth

Oct 1999

Modelling for newspaper advert for DfEE See the Person campaign

Dec 1999 Mar 2000 Jun 2000

Modelling of adult smocks for Noyna Catalogue

Jul 2000

Workshop on Direct Payments, Seattle, USA

Nov 2000 Nov 2000 Jan 2001

Researcher for Scope Project

Jan 2001

Workshop on Self Employment, UK Forum, London

Feb 2001 Apr 2001

Mentoring on Personal Development Course

Workshop on Charging Policies Scope, Manchester Launch of Clarity Network

Contemporary Issues Presentation for Rehab and Care, NEC Workshop on Direct Payments, MYILS, Liverpool

Accessibility Director, 4dp.com

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Direct Payments Training, Oxfordshire

Jul 2001

Workshop on Direct Payments, MYILS, Glasgow

Sep 2001 Jan 2001

Wheelchair usage policy, Sainsburys

Mar 2002 Oct 2002

Launch of Konfidence Swimming Jackets

Oct 2002

Workshop on Education, Coventry Adult Education

Jul 2003

Workshop on Direct Payments, Centreparcs

2004-

Service User Invovlement, Social Work, Coventry University

2005-

Social Model for Medical Students, Warwick University

20062009

Various projects for many organisations

Workshop on Information Technology, UK Forum, London

Workshop on Education, UK Forum for European Affairs

My Youth Activities â—Š Date 1992-1995 1994 1994 1996 19961997-1998 1998 19992000 2001 2002 2003

Activity Students with Disabilities Officer at Coventry University Students Union Leader at Motivation Course at Aberswyth University Leader at Motivation Course in Nigeria Performance of Romeo and Julliet in Prague Involvement with European Human Bridges project Member of Coventry Council of Youth Voluntary Services Organiser of 1998 European Human Bridges project in Budapest Organiser of 2000 European Human Bridges project in Savejero Organiser of Coventry 2000 Project Workshop Leader at 2001 European Human Bridges, Strasbourg Organiser of 2002 European Human Bridges project in Romania Organiser of 2003 European Human Bridges project in Turkey

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Who I have worked with (100)

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Simon Stevens' Personal Profile  

My Personal Profile

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