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Ocala Royal Dames for Cancer Research, Inc. June/July2011 In this Issue: President’s Message

2

Officers/BOD

2

Calendar

2

Tailgating Gala

3, 4

Shop Talk

5

Moffitt Center Visit

6

Save the Date

6

Women of Hope Luncheon

7

Birthdays & Sunshine

8

Garden Party ORD Items & Info

9, 10 11, 12

Announcements

12

Advertisements

Newsletter Chairs: Corinne DeVault Angy Scroble

Graphic Artist: Angy Scroble

Contact:

ocalaroyalnews@yahoo.com

Directory Chairman: Barbara Griffin/Hunter Bag21021@aol.com

Sunshine Chairman: Louise Bono bonorealty@aol.com 352-465-0854

Website:

www.ocalaroyaldames.org

Royal Legacy


June/July 2011 ● Royal Legacy Newsletter ●

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President’s Message 2011 Officers President: Nancy Porter 1st Vice President: Donna Crippen 2nd Vice President: Lois Johnson

Secretary: Jody Micilcavage Treasurer: Patti Hunt

2011 Board of Trustees Lori Benz, Louise Bono, Connie Brown, Corinne DeVault, Barbara Griffin/Hunter, Maxine Grover, Lisa Hageloh, LaVerne Hope, Lois Johnson, Kathleen Kollar, Diana Lammermeier, Diana Moore, Melissa McNichols, Gwynn Pealer, R. Susan Smith, Jeanne Thomas, Cecilia Truesdale, Sonya Nasser Past President: Lydia Kuttas

“ Summer Fun with the Dames” Royal Ladies, It is a beautiful morning here at Lake Weir sitting on my porch writing this message. Summer is here and it’s time for vacations and fun in the sun. Don’t forget you sunscreen Please! Be safe in your travels and recharge your soul. We volunteers all year round for our events. Our Members for a Cure committee did an outstanding job “THANK YOU” it was PERFECT! “THANK YOU” to Monica and Chad Haufler for opening their beautiful home for this event. We have received several new member applications already. Many prospective members attended this year’s event. Please read more about the event in the committee article inside this issue. Save these Dates and join us. July13th brings 25 Years of Hope “Women of Hope “ luncheon. We will honor ladies for their dedication to our cause. Contact Lydia Kuttas August 27th brings our 2nd “Tailgate Gala” and it is selling out quickly so RSVP NOW! “Don’t be left out of the Fun.” Contact Melissa McNichols or Celia Truesdale September TBA brings our first member-volunteer workshop retreat, it is open to all members who want to have fun learning the history of the Dames and how and why we do what we do. Contact Susan R Smith or Nancy Porter

Who am I ? Membership Question for June Issue: Which member served in the Navy, was a nurse, meet her future husband who was in the Navy. Clue: their daughter was a Debutant. Who am I ? Email Answer to: ocalaroyaldames@gmail.com or mail PO Box 6163, Ocala, FL 34470. If you have a suggest of a Question and Answer for the next issue contact us. Answer from last month May Issue: What is the most unusual occupation your President Nancy Porter did for 12 years? Commercial Fisherwoman. Winners we have a tie: Monica Haufler and Lois Johnson Volunteering is not only the right thing but a good thing to do… It’s good for you! Please feel free to contact me anytime with ideas and suggestions. My email address is nancyroyal2011@yahoo.com cell 352-817-0099 or work 629-5703

See you at the events, and have a great summer!

Nancy Porter Check out our Website: See the many photographs posted on our website, as well as our website videos. Share with your friends and family. www.Ocalaroyaldames.org

CALENDAR July 13 August 27 September October 12

Women of Hope Luncheon Tailgate Gala TBA – Volunteer Workshop Visiting Scholar Lecture

Committee Meetings open to the members – call Chairman if you plan to attend


June/July 2011 ● Royal Legacy Newsletter ●

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June/July 2011 ● Royal Legacy Newsletter ●

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“Tailgating Gala” “Calling all Royal Dames” by the Tailgating committee to attend a fun, fun party on Saturday, August 27st at 6:00 pm at the Country Club of Ocala Banquet Center. Bring friends!! It promises to be a very entertaining evening. Your help is needed with sponsorships. Please be a sponsor or find sponsors for the party. The following sponsorships are available: “Overtime” - $1,000 •8 Event Tickets •Reserved Parking •Reserved Table •Table Signage •Leader Board Recognition night of the event

“Touchdown” - $600 •4 Event Tickets •Reserved Seating •Leader Board Recognition night of event

“Field Goal” - $300 •2 Event Tickets •Leader Board Recognition night of the event

“Extra Point” - $100 •One Yard of Drawing Tickets (18) for Chinese Auction •Recognition night of the event

All sponsorships received by June 15 will be included on the back of over 600 invitations and will be listed in the Royal Dames Newsletter. Please send your tax deductible donation for sponsorship by June 15th! Get out your football memorabilia and enter the “Table Decorating Contest” and come dressed in your favorite team colors. First prize will be dinner for four. The judging will be done by unbiased members of the community. Please call Donna Crippen 216-4078 to decorate a table. We have gotten some great Chinese Auction football-related items but we need more. Suggestions are: tailgate/barbecue items, signed footballs or jerseys, books, game tickets, football fashion wear, jewelry, purses, caps, flags, serving ware, gift certificates for any sport bar restaurants or sporting goods stores. Please call Melissa to donate items.

There will be a committee meeting on Thursday, June 23 at 10:00 am at the Country Club of Ocala. Please come so that we can make this party a roaring success. Call Melissa 861-9100 if you can attend the committee meeting or would like to help with the party. TAILGATING GALA Sponsorship Form Name_________________________________________________________________ Street__________________________________________________________________ City___________________________ State__________________ Zip____________ Please check: Overtime____ Touchdown ____ Field Goal ___ Extra Point _____ Make check payable to: Ocala Royal Dames for Cancer Research, Inc. (Note: Tailgate Gala) Mail to: Ocala Royal Dames, Attention Tailgate Gala, PO Box 6163, Ocala, FL 34478 (Please Print) Name on Credit Card_____________________________________________________ Amount _________________ Account # ____________________________________________________ American Express_____ MasterCard _____ Visa_____ Discover_ ____

Expiration Date on Card __________ Zip Code __________ Signature ______________________________________ Thank you for your support. For more information: Melissa McNichols 352-851-9100 melissa@midstatenotifier.com Celia Truesdale 352-598-5504 cmtrues@earthlink.net To pay by phone: Patti Hunt, Treasurer 352-368-7632


June/July 2011 ● Royal Legacy Newsletter ●

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Shop Talk The Changing Face of Breast Cancer: Resources Available to You On April 25, Shop Talk presented an extremely useful program to those facing a diagnosis of breast, as well as other types of cancers. Dana L Viviano, RN, BSN, Oncology Service Line Director at Ocala Regional Medical Center shared valuable information for patient and caregiver alike. Ms. Viviano described the stages of grief experienced by people after receiving a cancer diagnosis: grief, anger, bargaining, depression and finally acceptance. The whole household is affected, with family members becoming involved in different ways, and everyone dealing with varying emotions. Often there are financial hardships. The patient sometimes feels socially isolated. Dana made it clear that there are many resources available for family as well as patient. She stressed that caregivers need support and should reach out to find it. For instance, the Family Medical Leave Act makes it possible for caregivers in some jobs to receive partial salaries for up to 12 months while caring for a sick relative. Patients will encounter a number of professionals. A Medical Oncologist diagnoses the cancer and can coordinate care among the many various caregivers. This doctor will treat with chemotherapy and hormones. A Radiation Oncologist treats with x-ray therapy when necessary. A Surgeon will remove the tumor, when advisable. Sometimes patients and families don’t understand everything a doctor has said during a visit. There are a number of internet sites that can be trusted for further information, such as cancer.gov, cancer.net, cancer.org, and komen.org. Upon diagnosis, a patient should become well informed about her insurance coverage – does it cover all specialists? What treatments and medications does it cover? There is a lot of variation among insurance companies, HMO’s, PPO’s, Medicare, etc. It is a good idea to ask for a case manager from the insurance company to assist with the financial decisions. There are many avenues of help for financially needy patients – for providers and for drugs and treatments. Lastly, Ms. Viviano advised patients and families to find a way to keep the bewildering array of care information organized. She suggested a dry-erase board as a way to keep important phone numbers, appointment dates, medications, etc. easily available. She also suggested keeping a journal, as it is almost impossible to remember daily aspects of symptoms and/or progress that could be important information in ongoing care. Many women attended this lunch event at the College of Central Florida who have recently been diagnosed with cancer, as well as many long-time survivors. Also attending were the beauty shop operators who make up the core group of Shop Talk. These beauticians update their knowledge at least two times a year, so that they can pass on life-giving information to their clients. The Ocala Royal Dames is proud to support the very valuable Shop Talk program.


June/July 2011 ● Royal Legacy Newsletter ●

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Visiting our Research Programs A number of Royal Dames were hosted by Moffitt Cancer Center for our annual tour and lunch on April 28. Shirley Fessell began the day by sharing the 25-year pictorial timeline in the main hospital. The group then proceeded to the new radiation oncology wing. There, we were greeted by Barry Asch, Program Administrator for Radiation Oncology Services, who gave us an overview of what happens in the radiation oncology unit and then took the group into one of the treatment rooms. He showed us one of Moffitt’s latest state-of-the-art radiation treatment machines, which greatly impressed the entire group. After this, Agnes Manka, Moffit’s Director of Nursing took us to see the new expansion of Moffitt’s Bone Marrow Transplantation Unit. The group was able to see one of the actual patient rooms in this new unit, where Agnes explained about the special features needed in these rooms, such as extra space for family members to stay over with their loved ones and special air filtration systems required in these rooms to accommodate these patients’ compromised immune systems. Following the morning activities, the group headed back to the Stabile Research Building for lunch. There we were greeted by Dr. Amod Sarnaik, Dr. Shari Pilon-Thomas and Dr. Bill Janssen. Dr. Sarnaik, whose pancreatic research project is currently being funded by the Dames, gave a power point presentation and overview of his research project and progress that has been made. Dr. Pilon-Thomas and Dr. Janssen also talked about the importance of the research, especially because pancreatic cancer has such a dismal outlook. After lunch, Dr. Janssen gave the group a real treat by taking us to see Moffitt’s vaccine laboratory, where all of the vaccines for the various research and treatment protocols are made. Dr. Janssen is a member of Moffitt’s Bone Marrow Transplantation Program and runs the vaccine lab. It was a wonderful day, and we were privileged to see a number of new areas not toured in previous years. We are indebted to Moffitt’s Mary Newton for making this marvelous experience possible. On October 12, we are invited to visit University of Florida’s Cancer Center on the occasion of ORD’s annual Visiting Scholar Lecture. This is a program offered to researchers and other medical personnel at UF/Shands, funded by the ORD Visiting Scholar Endowment. In 2011, the lecture will be given by Dr. Joseph Mikhael from Mayo Clinic. Dr. Mikhael is a national leader in blood cancer research, and his visit is expected to enhance UF’s myeloma program, which is a National Center or Excellence. UF graciously invites ORD members to attend these lectures each year. We will also be treated to lunch. Those who have not yet toured one of the labs will have that opportunity as well If you have not visited one of our funded institutions, you are missing out on the wonderful experience of seeing what your hard work and donations are accomplishing. Make plans now for October.


June/July 2011 ● Royal Legacy Newsletter ●

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WOMEN OF HOPE LUNCHEON JULY 13th, 2011

HILTON HOTEL Gathering Hour - 11:00 AM Lunch - 12 Noon We will be honoring three women in the cancer field as Royal Ladies: •Dr. Erin Dunbar, Brain Surgeon and Researcher from Shands Cancer Center that we are presently supporting; •Dr.Catherine Lee, Breast Surgeon from Moffitt Cancer Center; • Judy Flickinger, Hospice Nurse and author of the book “The Spirit Matters -- How To Remain Fully Alive With A Life Limiting Illness”. Dr. Jonathan Lancaster from Moffitt Cancer Center will again be our Speaker. You will be receiving your invitation the first week of June. The price is $38.50.

Please bring a friend; this program will be enlightening. See you then! Lydia Kuttas, Event Chairman


June/July 2011 ● Royal Legacy Newsletter ●

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June & July Birthday Info June

july

Birthdays: CAROL BILT …………………………..2005………………………..….11 TH ELIZABETH CANNON………………LIFE…………….………………..25TH FAITH COOMES……………………….2007………….………………..23RD DeANN DENNEY…………………...LIFE…………….……………….30TH MARY GARY………………………LIFE……2006………………..10TH CHERLY GODWIN…………………..2009…..…………….…………18TH SUZANNE GREEN……….…………..2010……………………………22ND PATTI HUNT……………………...…2007….…………………………03RD JEANNE JAMES………………….. LIFE……………………….…….10TH LOIS JOHNSON……………………...LIFE.……………………….…...09TH SYNDIE LEVIEN…………………….LIFE…………………………..…06TH MARCY MORGAN……….........2009……………………………01st LISA OWEN………………………..…2003………………………….…06TH GWYNN PEALER…………………2002.……………………………30TH VANESSA RASBURY……..….….2008……….……………………13TH CHRISTINE SCOTT…………………2008…………..…………………27TH CECILIA TRUESDALE……………….LIFE…………..…………….……06TH ANN (WELLER) BOWDEN.…, 2005……………………………..09TH SARAH WHITEHURST……………2006……..……………………….08TH

birthdays: DIANE BRANCH……………………………LIFE………………………06TH BERNADETTE CASTRO………………….LIFE……………..………..10TH DEANNE CLOTFELTER ………………….LIFE……………………...06TH SHARON COOPER……………………….…2006……..….………….16TH HELEN DAVIS………………………………..2010…………………….06TH SUSAN DISMUKE………………………..LIFE ………..……………03RD NANCY GOLDMAN……………….……2008……………..……..06TH La VERNE HOPE…Chair…………..……LIFE…….………............15TH JOYCE HUDSON……………………………2007……………...…….15TH VERONICA KING…………...…………..…2007……..…………….27TH LOIS LACY…………………………………….LIFE………..…………….22ND NYLEENE LAND……………………………2011…….………………19th CATHY PERRY……………………………2003…………….……..19TH FAITH SARFARAZI…………………………LIFE………..…………...23RD STACEY SHOEMAKER……………………2010…….…………….01ST JEANNE THOMAS…Assist……………2003…..………….…. 27TH CAROLYN VARNER………………………..LIFE……………………11TH EGLAES YOUNGER…………………………LIFE……………………02ND

Luncheon at Ocala Hilton, June 1st, 11:30 AM Luncheon at Ocala Country club, July 8th, 11:30 AM

The Sunshine Committee is available to send members Get Well & Sympathy cards. Please notify Louise Bono at bonorealty@aol.com or call 352-465-0854 of members in need.


June/July 2011 ● Royal Legacy Newsletter ●

Garden Party “Members for a Cure” Thursday, May 5, 2011 At the home of Monica Haufler

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June/July 2011 ● Royal Legacy Newsletter ●

Garden Party

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June/July 2011 ● Royal Legacy Newsletter ●

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Cleaning for a Reason If you know any woman currently undergoing chemotherapy, please pass the word to her that there is a cleaning service that provides FREE housecleaning - once per month for 4 months while she is in treatment. All she has to do is sign up and have her doctor fax a note confirming the treatment. Cleaning for a Reason will have a participating maid service in her zip code area arrange for the service. This organization serves the entire USA and currently has 547 partners to help these women. It's our job to pass the word and let them know that there are people out there that care. Be a blessing to someone and pass this information along.

http://www.cleaningforareason.org Great information! You may not know someone going through chemo, but someone on your email list might!!

Limited Supply Available The Just Cookies Cookbook is wonderful for families (and Grandmas). It is chock-full of more cookie recipes than you could ever make — so select carefully. The book is delightfully illustrated by local schoolchildren. Donation $10.00

Wine and Dine with the Dames has a wide variety of recipes, all favorites of our members, and highly 'do-

able.' It is a fun book to read, and can result in many delicious meals for family or guests. Donation $20.00

Available at these locations: Studio 200 Ocala's Lady Jeweler 8075 SW Hwy. 200, Ste. 113 315 E. Silver Springs Blvd.

Or call and pick up:

Gemini Salon and Day Spa 3415 E. Silver Springs Blvd.

NW: Lydia Kuttas 351-2620 NE: Chris Hildner 694-2349 SW: Kathy Dinkins 236-5322 SE: Corinne DeVault 274-0718


June/July 2011 ● Royal Legacy Newsletter

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ANNOUNCEMENTS: Membership Information:

Ocala Royal Dames for Cancer Research Custom Car License Tag Frame Stainless Steel Auto License Tag Frame

For membership information or for applications contact: Kathleen D. Kollar at 291-2959 or kdvkollar@yahoo.com.

DIRECTORY CHANGES: Address email - telephone corrections send to: Barbara Griffin-Hunter to her email at bag21021@aol.com or mail to Ocala Royal Dames Attention: Barbara Griffin-Hunter P.O. Box 6163 Ocala, FL 34478

Members for a Cure

Ocala Royal Dames

$50.00 each with a donation made out to Ocala Royal Dames for Cancer Research (all money goes directly to the Ocala Royal Dames) Call Nancy: 817-0099

Custom Ceramic Creation by Linda Longo

25th Anniversary commemorative plate 13” / 22 karat Gold trim & crown Kiln fired 3 times Food Safe & back side can be personalized

Price is $85.00 and 30% of money raised goes to the Dames To place an order call Linda 352-843-0541


Attention Business Card Advertising New and Renewals have increased to $120 for 1 year (10 issues of the newsletter). Email: ocalaroyalnews@yahoo.com Ocala Royal Dames for Cancer Research, Inc. PO Box 6163 Ocala, FL 34478


Ocala Royal Dames June/July 2011 Newsletter