Living with Atypical Hemolytic Uremic Syndrome Poll Results from RareConnect.org

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5.

Age when became ill with aHUS

5% 3%

1% 0 to 10 years 11 to 20 years

18%

43%

21 to 30 years 31 to 40 years 41 to 50 years

19%

51 to 60 years 61 years plus

11%

6.

Have you undergone genetic screening?

6%

4% Yes

13%

No Waiting

77%

Family member was tested

Comments: - Don’t know - In process of doing it now - Both my son and i have AHUS - Negative - All family members were tested and shown to have a factor H deficiency - Factor H, I, and MCP - CFH

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