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WRITTEN BY STAR BOBATOON, ESQ.

EXERCISE: Find someone with whom you can share that defining moment as it relates to DMD or whatever illness with which you are dealing. Make sure it is a person you can trust. Before you begin sharing, let them know you don’t need them to make things better for you. Ask them to simply say, “Thank you for sharing with me. It showed a lot of courage.” That is all you need from them.

What we are aiming for is an opportunity for you to express your feelings and have someone hear you out. Many times we don’t share the hard emotions with our friends and family because we don’t want to burden them. Other times, our friends and loved ones shy away from having those touchy conversations, because they have absolutely no idea what to say if you cry or start expressing deep, dark emotions. Having this script takes the pressure off both sides. Of course, if you want to share more or continue the conversation, that’s just fine. In the event you find it too hard to actually speak extemporaneously about your defining moment, you can write it out and then give it to your friend to read or simply read it aloud yourself. Use the method in which you feel most comfortable; the important thing is to share the moment. If you choose to write it, I invite you to include all the words, thoughts and emotions you can recall, recognizing and acknowledging all the feelings your defining moment holds for you. If you don’t have anyone with whom to share this moment, or if you are reluctant to share it with anyone you know, I invite you to share that moment with me. I invite you to share your moment with me, even if you do have others with whom to share. I would simply love to connect with you. You can send your written life-defining moments to me at Star@ihatemd.com.

Here’s another suggestion: Start a journal. Journaling is a method for exploring your thoughts and feelings regarding the events in your life. Getting your thoughts out of your head and putting them down in writing will lead you to insights you might not see otherwise. It can help you clarify your thoughts, release your emotions in a safe place, and even manage stress. There are exercises throughout this book designed to guide you toward your true feelings and lead you toward a life of joy and happiness. Some of the questions I ask may prompt more reflection, and it would be great to have them all in one place. Who knows – you may have a book in you – if not to share with the world, perhaps to share with your family, or just for your own peace of mind. To get the most out of this journey, I invite you to start a journal. 

I Hate Muscular Dystrophy Loving a Child with a Life Altering Disease  

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