that examine the roles and responsibilities of PIs in multicenter randomized trials, accountability in the clinical research enterprise, return of individual genetic results to participants in epidemiologic cohort studies, and integration of genomic sequencing technologies into the clinical care of cancer patients. He currently serves as chair of the Children’s Oncology Group Bioethics Committee and as a member of the FDA’s Pediatrics Ethics Subcommittee. In addition, he recently completed a term as a member of SACHRP.
Joseph A. Konstan, PhD, is Distinguished McKnight University Professor, Distinguished University Teaching Professor, and associate department head of the department of computer science and engineering at the University of Minnesota. His research addresses a variety of human-computer interaction issues, including personalization (particularly through recommender systems), eliciting online participation, and designing computer systems to improve public health. He is best known for his work in collaborative filtering recommenders (the GroupLens project, which recently won the Association for Computing Machinery (ACM) Software System Award), and for his work in online HIV prevention. It is through that latter work that he became involved in issues of human subjects research ethics
Susan Z. Kornetsky, MPH, is the director of clinical research compliance at Boston Children’s Hospital. Her responsibilities have included: directing an IRB administrative office, educating principal investigators, assisting investigators with protocol development, assuring institutional compliance with regulations pertaining to human research, establishing appropriate policies and procedures, and overseeing a quality improvement program. In May of 2010, she completed a medical ethics fellowship at Harvard Medical School. Ms. Kornetsky is a past appointed member of the SACHRP Subcommittee on Research Involving Children, and currently serves on the SACHRP Subpart A Subcommittee. She is a past board member and site visitor for AAHRPP, as well as a former member of the IOM’s Committee on Clinical Research Involving Children. She currently serves on the Scientific and Research Advisory Committee for the Massachusetts Down Syndrome Congress. Ms. Kornetsky has also served as a consultant for federal agencies. She teaches internationally as part of a Fogarty International Center grant in addition to other international teaching activities. She is faculty for multiple clinical research courses offered through Harvard Medical School and the Harvard Clinical and Translational Science Award grant. Ms. Kornetsky has been a member of PRIM&R’s Board of Directors since 2001, and currently serves as vice chair. Previous Board roles include chair of PRIM&R’s Education Committee (2002-2009). In 2003, Ms. Kornetsky received PRIM&R’s Distinguished Service Award. She lectures at many national meetings, in addition to PRIM&R’s conferences and educational programs, and is co-chair of PRIM&R’s 2013 AER Conference CCPC. John D. Lantos, MD, is a general pediatrician and director of the Bioethics Center at Children’s Mercy Hospital in Kansas City, MO. He is a national leader in bioethics, having served as president of the American n ove m b e r 7- 9 , b os t on , m as s ac hu s e t t s
Nancy E. Kass, ScD, is the Phoebe R. Berman Professor of Bioethics and Public Health in the Berman Institute of Bioethics, and professor in the department of health policy and management at the Johns Hopkins Bloomberg School of Public Health. She is also a fellow of The Hastings Center. She received her bachelor’s degree from Stanford University, doctoral training from the Bloomberg School of Public Health, and was awarded a National Research Service Award to complete a postdoctoral fellowship at the Kennedy Institute of Ethics at Georgetown University. Dr. Kass conducts empirical work in bioethics and health policy. She served as a member of the IOM’s Committee on Perinatal Transmission of HIV and as a consultant to the National Bioethics Advisory Commission to examine American investigators’ experiences working in developing countries. Her current research projects examine ethics and learning healthcare systems, informed consent, obesity and public health ethics, and ethics issues in international health research. Dr. Kass teaches or has taught courses on HIV/AIDS policy, research ethics, and international research ethics. She also directs the Johns Hopkins PhD in Bioethics and Health Policy program and the Johns Hopkins-Fogarty African Bioethics Training Program.
and practices for online research, a subject on which he has lectured at a variety of conferences and universities. Professor Konstan received his PhD from the University of California, Berkeley in 1993. He is a fellow of the ACM, a past president of the 4500-member ACM Special Interest Group on Computer-Human Interaction (SIGCHI), and a member of the Computer Human Interaction Academy (a group of researchers honored by SIGCHI). He has also served as vice chair of the Federal Demonstration Partnership where he worked to document and reduce faculty burden associated with administration of federal research grants.
Digital version fo the Conference Guide for the 2013 Advancing Ethical Research Conference