Page 1

Resource Directory For Stroke Survivors, Caregivers & Clinicians

STROKE

ASSOCIATION


KAREN DE LA CUESTA, FNP-C Stroke Nurse Practitioner Stroke Program Coordinator

TONY & TRISH Stroke Survivors Peer Visitation Volunteers

Nationally Recognized

STROKE CARE O’Connor Hospital’s award winning Stroke Program is dedicated to preventing, diagnosing and treating strokes, offering leading expertise, advanced technology and comprehensive support services.

Advance Primary Stroke Center

Joint Commission Certified Advanced Primary Stroke Center Recipient of The American Heart Association/American Stroke Association’s Get with the Guidelines® Stroke Gold Plus Performance Achievement Award Monthly support group for Stroke Survivors and Caregivers Santa Clara County’s first Stroke Peer Visitation Program

To learn more about stroke symptoms or prevention, or for more information on support groups, visit: oconnorhospital.org FOLLOW US

2105 Forest Ave. San Jose, CA 95128


A Resource Directory for Stroke Survivors and their Caregivers in Santa Clara and San Mateo Counties

2013 - 2014 Edition

© Copyright 2012 by Pacific Stroke Association. All rights reserved including the right to reproduce this booklet or portions thereof in any form.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485


ii


WELCOME to the latest edition of the Pacific Stroke Association’s Resource Directory: A Comprehensive Resource for Stroke Survivors and their Caregivers Pacific Stroke Association (PSA) is pleased to present the 2013/2014 edition of our Resource Directory for Stroke Survivors, Caregivers, and Clinicians. This directory is distributed without charge to stroke survivors and their families who may be searching for help and assistance during recovery from stroke. The directory is intended to serve as a valuable resource for families, clinicians, organizations, and those who work with stroke and brain injury survivors. The information in this directory is accurate as of August 2012. Changes may have occurred by the time you use this edition. If you have comments regarding any of these resources, or note inaccuracies, please contact us at support@psastroke.org.

Pacific Stroke Association Board of Directors Victoria B. Thoits Board Chair Beth Chang Gary Curtis Francine Serafin-Dickson, MBA, RN Michael J. Elliott Caroline Macnab Nancy Houston Miller, RN Melanie Rogers Marge Sentous Kyle Smith, MPT, ATC Scott Ward Ed Williams Gregory Yu, JD/CPA Rezvan Moghaddam Executive Director

Each of the listings provides a brief description of available services and contact information that can quickly guide you to programs that meet your needs. If you would like further assistance using this directory or in finding additional information, we encourage you to contact Pacific Stroke Association at 650.565.8485 or email support@psastroke.org. The publication of the 2013/2014 edition of the Resource Directory was made possible in part by generous financial support from Mills-Peninsula Health Services, El Camino Hospital and O’Connor Hospital.

Clara Roa Development Director Alissa Shaw Program Director

Medical Advisory Council

With special thanks to our 2013-2014 Resource Directory Specialist volunteer, Susan Chang, from Stanford University, our editor, Victoria Thoits and our graphic designer, Ellie Mansfield. Their assistance was instrumental in the completion of this directory.

Peter Fung, MD Raul Guisado, MD Reza Malek, MD Vivek A. Rao, MD Robert Telfer, MD David Tong, MD Christine Wijman, MD

Note: While we greatly appreciate the information for listings and advertisements in this Resource Directory, their inclusion does not imply an endorsement of products or services. Please verify information and seek references where appropriate.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

iii


OUR MISSION Pacific Stroke Association has a twofold mission: to reduce the incidence of stroke through education and to help alleviate stroke’s devastating aftermath through programs to support stroke survivors and their caregivers.

Pacific Stroke Association (PSA) is a local, community based, non-profit organization serving San Mateo and Santa Clara counties since 1998.

For more information about Pacific Stroke Association and our programs and services, visit www.psastroke.org or contact support@psastroke.org, (650)565-8485

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

iv


TABLE OF CONTENTS FOREWORD…………………………………………………………………………………… ………… ………....….iii TABLE OF CONTENTS…………………….…………………………………………………… ………………….........v CERTIFIED STROKE CENTERS ........................................................................................................................vi ABOUT PSA PROGRAMS AND SERVICES………………………………………………….…………………….....vii A FEW WORDS ABOUT STROKE…………………………………………………..…………………….………......viii CHAPTER 1: EMOTIONAL HEALTH Counseling Services - Grief, Mental Health and Suicide..........................................................................................1 Support Groups.........................................................................................................................................................4 Online Stroke Support Groups...................................................................................................................................5 CHAPTER 2: HEALTH CARE RESOURCES AND INFORMATION Health Centers and Clinics........................................................................................................................................6 Health Libraries, Stroke and Disabilities Educational Resources..............................................................................7 Hospitals in San Mateo and Santa Clara Counties..................................................................................................9 Selected Readings, Magazines and Newsletters....................................................................................................11 Websites and Help Lines.........................................................................................................................................14 CHAPTER 3: INDEPENDENT LIVING Housing Adaptation and Maintenance....................................................................................................................17 Meals and Nutrition..................................................................................................................................................17 Return to Driving Plan ..........................................................................................................................................19 Adaptive Driving Evaluators and Trainers................................................................................................................21 Transportation Services..........................................................................................................................................22 Travel...................................................................................................................................................................24 Vocational Rehabilitation, Education and Employment..........................................................................................25 CHAPTER 4: MEDICAL EQUIPMENT Medical Alarm Services/Personal Response Systems (PRS)................................................................................29 Medical Equipment and Other Devices...................................................................................................................30 CHAPTER 5: MEDICAL INSURANCE, LEGAL AND FINANCIAL ISSUES Americans with Disabilities Act (ADA) and Advocacy Groups................................................................................34 Complaints about Hospitals and Health Care Facilities..........................................................................................34 Medical Insurance, Social Security and Prescription Drugs...................................................................................36 Other Services for Aging Adults and People with Disabilities (elder abuse, legal and financial issues)..............38 CHAPTER 6: REHABILITATION Exercise and Fitness Programs..............................................................................................................................40 Adaptive Physical Education (PE) Programs..........................................................................................................40 Outpatient and Rehabilitation at Home Services....................................................................................................42 Therapeutic Community Programs.........................................................................................................................43 Speech Therapy Programs.....................................................................................................................................44 Speech Software and Devices................................................................................................................................45 CHAPTER 7: RESOURCES FOR CAREGIVERS Adult Day Centers...................................................................................................................................................48 San Mateo County..................................................................................................................................................48 Santa Clara County.................................................................................................................................................48 Assisted Living and Skilled Nursing Facilities........................................................................................................49 Care/Case Management, Information and Referrals...........................................................................................52 Home Healthcare Agencies....................................................................................................................................59 INDEX…………………………………………………………………......................……………………………...…....63 Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

v


CERTIFIED STROKE CENTERS SANTA CLARA COUNTY El Camino Hospital 2500 Grant Road Mountain View, CA 94040 Phone: 650-940-7000 www.elcaminohospital.org Good Samaritan Hospital 2425 Samaritan Drive San Jose, CA 95124 Phone: 408-559-2175 www.goodsamsanjose.com Kaiser Permanente – Santa Clara 710 Lawrence Expressway Santa Clara, CA 95051 Phone: 408-236-6300 www.kaisersantaclara.org Kaiser Permanente – San Jose 250 Hospital Parkway San Jose, CA 95119 General Information: 408-972-3000 www.kpsantateresa.org O’Connor Hospital 2105 Forest Avenue San Jose, CA 95128 Phone: 408-947-2500 www.oconnorhospital.org Regional Medical Center of San Jose 225 North Jackson Avenue San Jose, CA 95116-1691 www.regionalmedicalsanjose.com Saint Louise Hospital – Gilroy 9400 No Name Uno Road Gilroy, CA 95020 Phone: (408) 848-2000 www.saintlouiseregionalhospital.org

Stanford Hospital & Clinics 701 Welch Road, Building B, Suite 325 Palo Alto, CA 94304 Phone: 800-800-1551 | 650-723-6661 Email: strokecenter@med.stanford.edu strokecenter.stanford.edu SAN MATEO COUNTY Kaiser Permanente – Redwood City 1150 Veterans Boulevard Redwood City, CA 94063 (650) 299-2015 www.kaiserpermanente.org Kaiser Permanente – South San Francisco 1200 El Camino Real South San Francisco, CA 94080 (650) 742-2000 www.kaiserpermanente.org Mills-Peninsula Health Services 1501 Trousdale Drive Burlingame, CA 94010, United States (650) 696-4566 www.mills-peninsula.org Sequoia Hospital 170 Alameda De Las Pulgas Redwood City, CA 94062 (650) 367-5544 www.sequoiahospital.org Seton Medical Center 1900 Sullivan Avenue Daly City, CA 94015 (650) 992-4000 www.setonmedicalcenter.org

Santa Clara Valley Medical Center 751 S Bascom Avenue San Jose, CA 95128 Phone: 408-885-5725 www.scvmed.org

vi


ABOUT PSA PROGRAMS AND SERVICES

COMMUNITY EDUCATION

Pacific Stroke Association (PSA) is a not-for-profit organization serving Santa Clara and San Mateo counties in northern California. PSA’s mission is to reduce the incidence of stroke through community education and to help alleviate stroke’s devastating aftermath with programs and services to support survivors and caregivers. These include:

Through the presentation of stroke lectures, participation at community health fairs, distribution of educational materials at various venues in the community and local media, PSA educates the public about stroke, stroke prevention, and stroke warning signs, emphasizing the critical need to take symptoms seriously and to seek immediate emergency treatment by calling 911.

DIRECT CLIENT SUPPORT Through direct phone support, PSA staff helps stroke survivors and family members find resources they need. PSA provides a free copy of this comprehensive Resource Directory to stroke survivors and their families so they can find information ranging from resources for technological aids to transportation, therapy, travel, home care services, and more. SUPPORT GROUPS PSA professional volunteers and staff lead and facilitate monthly support group sessions that provide critical information, compassion, and comfort to those on the road to recovery from stroke. PSA support groups bring together those affected by stroke to share experiences as they make progress and gain confidence. The groups also provide opportunities to find encouragement and practical help in the different aspects of post-stroke recovery. PSA monthly support groups have different formats. Some are educational while others are open discussions for stroke survivors and caregivers. Mostly hosted at the local hospitals, the support groups meet at different days, times, and locations throughout Santa Clara and San Mateo counties. Check the PSA website at www.psastroke.org or email support@psastroke.org or call (650) 565-8485 for the updated list of monthly support group meetings in Santa Clara and San Mateo counties.

PSA provides multi-lingual educational materials in English, Spanish, Chinese, and Vietnamese. To schedule a lecture in your community, place of worship or your work place, please contact the PSA office: support@psastroke.org. MEMBERSHIP AND DONATIONS As a not-for-profit community-based organization, the Pacific Stroke Association relies on financial support from individual donors, foundations, and corporations. Tax-deductible donations enable PSA staff and volunteers to continue offering free programs and services to the community. All donations are taxdeductible to the extent allowed by law. Tax ID 77- 0500631. All individuals and families affected by stroke are encouraged to become members of PSA’s stroke community to continue receiving updates on programs and services via our regular online communications. To become a member, please visit www.psastroke.org. CONTACT INFORMATION MAIN OFFICE Pacific Stroke Association 3801 Miranda Avenue, Bldg. 6, Room A162 Palo Alto, CA 94304 BRANCH OFFICE 1600 Trousdale Avenue, Suite 1500 Burlingame, CA 94010 Tel (650) 565–8485 Fax ( 650) 565–8482 support@psastroke.org www.psastroke.org

vii


A FEW WORDS ABOUT STROKE According to the American Heart Association’s “Heart Disease and Stroke Statistics 2012 Update”, approximately 795,000 Americans have a new or recurrent stroke annually — that means someone is experiencing a stroke every 40 seconds. Stroke is the leading cause of adult disability and the third leading cause of death in the United States. A stroke occurs when there is damage to the brain, initiated by an interruption of blood flow to the brain. Stroke is commonly called a Brain Attack. Blood flow to the brain tissue can be interrupted in two ways: • the vessel clogs from within (ischemic stroke) • the vessel ruptures, causing blood to leak into the brain (hemorrhagic stroke) Ischemic stroke accounts for about 85% of all strokes. Ischemic strokes occur as a result of an obstruction from within a blood vessel supplying blood to the brain. The underlying condition causing this type of obstruction is the development of fatty deposits lining the vessel walls. This condition is called atherosclerosis. Medical treatments in the first 3.0 – 4.5 hours are critical to minimize the damage and to maximize recovery. Hemorrhagic stroke accounts for about 13% of all stroke cases. It results from a weakened vessel that ruptures and bleeds into the surrounding brain. The blood accumulates and compresses the surrounding brain tissue. TIA or Transient Ischemic Attacks are warning signs of future strokes. In a TIA, the symptoms are the same as those experienced in a typical stroke. However, the obstruction (blood clot) remains only for a short time. The symptoms go away, usually within a few minutes, but sometimes dissipate within a few hours. Even though the symptoms disappear after a short time, TIAs are strongly associated with a future possible major stroke. Steps should be taken immediately to prevent the impending stroke. People who have already had one stroke or TIA have a higher risk of having another stroke. It is important for stroke survivors, caregivers and family members to know stroke symptoms. If you or someone you know ever experiences acute onset of stroke symptoms, CALL 911. The following are the six most common symptoms of stroke:

Sudden difficulty talking or understanding words. Sudden loss of feeling or strange sensations on one side. Sudden weakness on one side of the face, arm or leg. Sudden severe unexplainable headache. Sudden decreased, or blurred vision. Sudden unexplained dizziness or loss of balance.

Some of the information in this section was extracted from the American Heart Association at www.strokeassociation.org and the National Institute of Neurological Disorders and Stroke at www.ninds.nih.gov. This information is provided for information purposes only and does not necessarily represent endorsement by or an official position of Pacific Stroke Association. Advice on the treatment or care of an individual patient should be obtained through consultation with a physician who has examined that patient or is familiar with that patient's medical history. viii


EFFECTS OF STROKE The brain is an extremely complex organ that controls various body functions. This is why stroke affects each person differently depending on what area of the brain was injured, the severity and type of injury, and how recently the stroke occurred. Each stroke and its effects are unique to each stroke survivor. However, because one side of the brain controls the opposite side of the body, a stroke affecting one side will result in neurological complications on the opposite side of the body. For example, if the stroke occurs in the brain’s right side, the left side of the body will be affected. Stroke survivors with LEFT hemisphere brain injury, may experience any or all of the following: • Weakness, paralysis or altered sensation on the right side of the body. • Aphasia: difficulty or an inability to speak and write (expressive aphasia) and/or difficulty understanding spoken and written language (receptive aphasia). • Problems with numerical recognition and calculations (dyscalculia). • The most common associated emotional reactions are anxiety and depression. Stroke survivors with RIGHT hemisphere brain injury, may experience any or all of the following: • Weakness, paralysis or altered sensation on the left side of the body. • Distorted spatial and perceptual awareness including left sided neglect and problems judging distance, size, position and rate of movement. • Problems expressing emotions, recognizing the emotions of others, reading “body language” and with social judgment. • Apparent lack of concern or awareness of their disability and tendency to be impulsive. Stroke survivors with BRAINSTEM and CEREBELLAR injury, may experience any or all of the following: • In-coordination of arm and/or leg and/or trunk resulting in difficulty standing, walking and difficulty carrying out tasks with one or both arms even though the extremities are not weak or paralyzed. • Double vision. • Difficulty swallowing (Dysphagia) and or difficulty speaking (Dysarthrya). • Crossed or bilateral weakness and/or numbness and/or in-coordination.

Following stroke, some areas of the brain may function normally while other areas do not. A person may seem as capable as ever when doing one task, but then be completely unable to perform another task that does not seem to be any more difficult. Often, this is confusing or frustrating to stroke survivors and their caregivers because they do not understand why they get so tired when doing what seems to be a simple task. Sometimes the person’s pattern of behavior is inconsistent. They may have good days and bad days or some patterns of behavior may fluctuate during the day. Behaviors and performance often get worse when the person is tired or is exposed to too many sensory stimuli. Some people experience depression and/or lack of motivation because of their brain injury. Medications may be required to help balance the chemistry of the brain postinjury. The main goal of post-stroke rehabilitation is to help survivors become as independent as possible and to attain the best possible quality of life. Even though rehabilitation does not “cure” stroke in that it does not reverse brain damage, rehabilitation can substantially help people achieve the best possible long-term outcome. Rehabilitation may help stroke survivors relearn skills that are lost when part of the brain is damaged or teaches survivors new ways of performing tasks to circumvent or compensate for any residual disabilities. There is a strong consensus among rehabilitation experts that the most important element in any rehabilitation program is carefully directed, well-focused, repetitive practice. Post-stroke recovery is dependent upon the extent of injury and is a continuum. The brain reorganizes itself dependent upon the person’s individual environment and his or her personal situation. Recovery from stroke may be a lifelong endeavor. Nevertheless, most individuals do continue to improve and frequently can achieve a satisfying existence.

Some of the information in this section was extracted from the American Heart Association at www.strokeassociation.org and the National Institute of Neurological Disorders and Stroke at www.ninds.nih.gov. This information is provided for information purposes only and does not necessarily represent endorsement by or an official position of Pacific Stroke Association. Advice on the treatment or care of an individual patient should be obtained through consultation with a physician who has examined that patient or is familiar with that patient's medical history. ix


CHAPTER 1: EMOTIONAL HEALTH Counseling Services/Grief, Mental Health and Suicide

Catholic Charities of San Mateo County (650) 295- 2160 www.cccyo.org Counseling services to individuals, children and families regardless of religion. Specializes in working with older adults and people with disabilities. Other languages: Spanish.

TIP: Clinical neuropsychology is a subspecialty of clinical psychology that specializes in the diagnostic assessment and treatment of patients with brain injury or neurocognitive deficits.

Community Solutions (408) 779-2113 www.communitysolutions.org Individual, group and family counseling; case management and counseling for seriously mentally ill adults and older adults. Other languages: Spanish.

Aging and Adult Services of San Mateo County 24-Hour Response Team (800) 675-8437 (TIES) www.smchealth.org Provides phone support and counseling on issues of concern to frail, elderly, dependent adults and the disabled. Other languages: Spanish.

Emergency Psychiatric Services – Santa Clara County (408) 885-6100 Toll Free: 1 (855) 278-4204 Emergency psychiatric services available 8:00 a.m.–10:00 p.m., Monday-Friday, provides evaluation and determination of patient needs. Other languages: Spanish.

Asian Americans for Community Involvement (408) 975-2730 www.aaci.org AACI's Mental Health Program offers a range of culturally and linguistically competent health services that target the needs of Asian Pacific Islander (API) children, adults and seniors. Other languages: Cambodian, Chinese, Hindi, Khmer, Lao Mein, Laotian, Filipino, Spanish, Thai, Vietnamese.

Family and Children Services (408) 292-9353 (650) 326-6576 www.fcservices.org Provides high quality, affordable counseling, therapy and other support services necessary for various emotional and mental health conditions. Fees are set on a sliding scale based on income. Also accepts a variety of insurance plans. Other languages: English, Spanish, Vietnamese, Cambodian, and others.

Catholic Charities of Santa Clara County OASIS Program (408) 955-9170 www.catholiccharitiesscc.org Case management, medication support and counseling for elders experiencing mental illness regardless of religion. Translation services available in Spanish, Arabic, Mandarin, and Vietnamese.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

1


CHAPTER 1: EMOTIONAL HEALTH Kara Grief (650) 321-5272 www.kara-grief.org Provides grief counseling, support groups and one-on-one counseling for children, families and adults. Services are free.

Family Therapy Program Palo Alto Veterans Hospital (415) 493-5000 ext. 1-25573 For Those In Pain Inc. (650) 968-2323 www.forthoseinpain.org Professional no-cost and low-cost, non-medical pain management services. Referral resources, private appointments, pain management classes, community education, patient library, and telephone support.

Kurt & Barbara Gronowski Clinic Pacific Graduate School of Psychology (650) 961-9300 www.mentalhealthclinic.org A community-based psychology training clinic and treatment center dedicated to providing high quality, evidence-based, clinical services to adults, older adults, adolescents and children. Sliding fees based on income.

The Friendship Line Center for Elderly Suicide Prevention and Grief-Related Services (800) 971-0016 (Toll Free) - (415) 752-3778 The Institute on Aging operates the "Friendship Line," the nation's only 24-hour toll-free emergency hotline to support depressed, isolated, abused, and suicidal older adults.

The Center for Living with Dying (408) 243-0222 This is a program of the Bill Wilson Center that provides individual and small group grief support for adults, children and families experiencing life-threatening illness or death of a loved one. Other languages: Spanish.

Gardner Family Care Corporation (408) 287-6200 www.gardnerfamilyhealth.org Provides mental health services including comprehensive assessment, therapy, psychiatric medication, and case management for older adults. Other languages: Cambodian, French, Portuguese, Russian, Spanish and Tagalog.

Mental Health Services of San Mateo County ACCESS 8:00-5:00, Monday-Friday 1- 800-686-0101 Primary entry point to mental health services for all adults and for children. Other languages: Spanish.

National Alliance on Mental Illness (NAMI) (408) 453-0400 http://www.namisantaclara.org Offers practical experience, support, education, comfort and understanding to anyone concerned about mental illnesses and their treatment in Santa Clara County. Other languages: Spanish, Mandarin.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

2


CHAPTER 1: EMOTIONAL HEALTH Therapist Referral Psychological Association San Mateo County (650) 347-4100 www.smcpa.org Santa Clara County (408) 253-1151 www.sccpa.org

Mental Health Services of Santa Clara County 1-800-704-0900 (408) 885-5673 A free and confidential referral system for private providers of mental health services in Santa Clara County is available by calling M-F, 10 a.m.-5 p.m. Other languages: Spanish, Vietnamese, Mandarin, Tagalog.

Kenneth L. Rider, PhD (415) 215-8085 Fax: (650) 948-1837 Neuropsychological services for adults. Compassionate and individualized evaluations for a rapid and succinct response to questions from your medical team. Medicare and other major insurance.

Naz Motayar, Ph.D., Neuropsychologist (408) 866-0303 www.losgatosneuropsychology.com Dr. Motayar specializes in empowering stroke survivors and those who care for them to live a fulfilling and enjoyable life after experiencing a stroke. Her therapeutic and assessment approaches incorporates creative, enjoyable and playful interventions to promote and facilitate cognitive and physical improvement to meet the individual needs of stroke survivors and their families.

Senior Mental Health Services-San Mateo (650) 573-3571 www.smchealth.org/node/287 Home visits by mental health professionals for persons age 60 or over with mental health diagnoses. Other languages: Spanish. Senior Peer Counseling & La Esperanza Vive (Latino Senior Peer Counseling) English (650) 573-2716 Spanish (650) 573-2257 Free counseling for persons age 55 or older with concerns of aging such as loneliness, depression, grief or illness. Home visits and other resources are available in San Mateo County. Other languages: Spanish.

O’Connor Hospital Chaplain Services Mindfulness-Based Stress Reduction Program (408) 947-2888 www.mindfulnessprograms.com Eight-week series, offered four times per year, consists of intensive training in mindfulness meditation, gentle movement and group support. There is a fee for the services; scholarships available.

Bay Area Geriatric Care Managers Contact: Sharon Alice Gray, MA, MFT, CMC (650) 654-1510 Fax: (650) 654-1510 www.bayareagcm.com 25 years of experience promoting healthy relationships and emotional wellbeing for persons living with- or caring for loved oneswith cognitive & functional impairments. Family Therapy, Brain Health Programs, Caregiver Coaching, Grief, Loss, Transitions. Services delivered conveniently in your home or in our downtown San Carlos office.

Pathways (888) 755-7855 www.pathwayshealth.org As part of their home health services they provide support by telephone, one on one and group counseling to help deal with the pain of loss, accept the new realities of life, or adjust to life without a loved one.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

3


CHAPTER 1: EMOTIONAL HEALTH Aphasia Treatment Program California State University, East Bay (510) 885- 3241 http://www20.csueastbay.edu/class/ departments/commsci/clinic/atp.html Aphasia Support Group weekly meeting 2 p.m. to 4 p.m. on Wednesdays. Other languages: Spanish.

Suicide Hotline 24-Hour Response Santa Clara County 1-800-SUICIDE (784-2433) (408) 279-3312 Central County (650) 494-8420 North County (408) 692-6655 South County 24-hour, 7-day-a-week telephone hotline for Santa Clara County. Trained volunteers will assist people who are feeling suicidal or in a crisis and need to talk to someone. Multi-lingual counselors are available. Free service. Other languages: Spanish

Daybreak Respite & Caregiver Support Services Catholic Charities of Santa Clara County (408) 270-4900 www.catholiccharitiesscc.org Support group for caregivers enrolled in the program.

YFA Crisis Intervention & Suicide Prevention Center – San Mateo County San Mateo - Daly City 650-579-0350 Belmont - East Palo Alto 650-368-6655 From anywhere 1-800-SUICIDE (784-2433) www.crisiscenter.cc Other languages: Spanish.

Family Caregiver Alliance (FCA) (800) 445-8106 or (415) 434-3388 www.caregiver.org FCA offers both face-to-face support group meetings and an online support group for family caregivers including groups for LGBT caregivers and a group in Spanish for Latino caregivers. All services are free or low-cost. Other languages: Spanish, Chinese.

Support Groups TIP: Many organizations offer support groups for different conditions and situations. Check with other local organizations such as the American Diabetes Association, the Alzheimer’s Association, and the National Kidney Foundation, among others. Senior centers and hospitals also host various support groups; check their listings.

Handicapables Program Catholic Charities of Santa Clara County (408) 468-0100 (408) 325-5257 www.catholiccharitiesscc.org This is a peer support and enrichment program for senior and adult disabled individuals. Members enjoy a monthly gathering that includes lunch, group discussions, Mass, and entertainment or a guest speaker. Other languages: Spanish.

American Stroke Association National Stroke Group Registry 1-888 4-STROKE (478-7653) www.strokeassociation.org Other languages: Spanish. Aphasia Center of California, Oakland (510) 336-0112 www.aphasiacenter.org Weekly Book Club (reading and writing), fitness/ relaxation class and an art class, and support group for caregivers.

National Stroke Association Stroke Group Registry 1-800-787-6537 www.stroke.org

. Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

4


CHAPTER 1: EMOTIONAL HEALTH or has made a substantial recovery from a traumatic brain injury. Family members, caregivers, and friends may participate in another group that meets at the same time. The group meets the 2nd and 4th Tuesday of each month at 6:30 p.m. at the Cypress Senior Center in San Jose.

Pacific Stroke Association Post-Stroke Monthly Support Groups (650) 565-8485 www.psastroke.org Post-stroke support groups meet in various locations in San Mateo and Santa Clara counties. The monthly sessions offer a way for stroke survivors and their caregivers to meet others with similar challenges and experiences, to enjoy mutual support, and to share ideas and friendship. Some groups have guest speakers on stroke recovery, rehabilitation, and prevention of recurrent strokes.

VIP (Very Important Patients) Contact: Robert Medel (408) 885-2397 robert medel@hhs.sccgov.org This group provides support for people with spinal cord and brain injuries, their families, and friends. The group meets at Santa Clara Valley Medical Center, Cafeteria Conference Room, 2nd Floor 751 S. Bascom Ave., San Jose, CA 95128

REACH Program (650) 949-6960 This program is appropriate for post-stroke individuals who have left the hospital or rehabilitation center as well as for those with old limitations but needing guidance and support in learning new activities.

Well Spouse Association www.wellspouse.org Northern California contact: (408) 879-0123 Well Spouse is a national, not-for-profit membership organization which gives support to wives, husbands, and partners of the chronically ill and/or disabled.

Skills Plus (408) 423-2102 www.skillsplus.us A program to help stroke survivors and other physically challenged adults improve social, physical, and cognitive skills. Caregiver classes for caregivers of students enrolled in the program.

Online Stroke Support Groups Online Aphasia Forum www.groups.yahoo.com/group/Aphasia/

Traumatic Brain Injury Support Group in Menlo Park (650) 851-0925 Most of the group has experienced traumatic brain injury, but they welcome those with any form of acquired brain injury. Call for more information.

SAFE (Stroke Awareness for Everyone) www.strokesafe.org An international Internet-centered coalition of stroke survivors and their families, in addition to doctors, nurses and therapists involved with stroke. SAFE provides and manages several Support and Discussion e-mail lists for stroke survivors, caregivers, and general information.

Traumatic Brain Injury (TBI) Group (408) 793-6428 www.TBImatters.org/local.html The TBI Support Group is available to any person who has sustained a mild brain injury

Stroke Network www.strokenetwork.org Provides online support to adult stroke survivors and caregivers.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

5


CHAPTER 2: HEALTHCARE RESOURCES AND INFORMATION Health Centers and Clinics

Coastside Clinic (650) 573-3941 Daly City Clinic (650) 301-8600 Other languages: Spanish. South San Francisco Clinic: (650) 877-7070 Other languages: Spanish. Fair Oaks Clinic (650) 364-6010 Other languages: Spanish. Willow Clinic (650) 599-3890 Other languages: Spanish. Methadone Clinic (650) 578-7190 Belle Haven Clinic (650) 321-0980 www.ravenswoodfhc.org Other languages: Spanish.

San Mateo County Arbor Free Clinic - Menlo Park (650)724-1332 or (650)493-5000 ext 22222 http://arbor.stanford.edu/ Arbor Free Clinic provides basic health care services at no charge to underserved populations in the South Bay area. Accepts patients on a walk-in basis every Sunday between 11 a.m. and 2 p.m. at the Menlo Park VA Hospital on Willow Road. Other languages: Spanish.

Ron Robinson Senior Care Center San Mateo Medical Center (650) 573-2426 A primary care clinic and geriatric assessment unit where seniors of all income levels are accepted.

Mild Hyperbaric Therapy (650) 654-9268 www.mildhyperbarictherapy.com Mild Hyperbaric Oxygen Therapy is noninvasive and uses oxygen under pressure for the correction and healing of a stroke. It helps the body create new blood vessels, improve blood flow, oxygen delivery and reduce swelling to the damaged brain. Oxygen is Mother Nature’s most natural drug.

Santa Clara County Asian Americans for Community Involvement - San Jose (408) 975-2763 www.aaci.org AACI’s Primary Care Health Clinic is a fullylicensed community clinic serving all ages. The clinic provides comprehensive primary and preventive health care. Sliding scale fees are available for the uninsured.

Samaritan House Administrative Offices: (650)341-4081 Free Clinic of San Mateo: (650) 578-0400 Free Clinic of Redwood City: (650) 839-1447 www.samaritanhouse.com Free primary and specialty care provided to uninsured adults and children. Patients must apply to be a member of the clinic. Does not accept walk-ins. Translation services in Spanish available.

Chai Health Center - San Jose (408) 947-1818 Health assessments, blood pressure monitoring, nutritional advice, medication teaching, home and clinic visits, managing chronic illness support, and assistance with self-care for frail elderly. Translation services in Spanish available.

San Mateo County Health Clinics www.sanmateomedicalcenter.org Primary, pediatric and specialty care services are available at: Ron Robinson Senior Care: (650) 573-2426 Other languages: Spanish.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

6


CHAPTER 2: HEALTHCARE RESOURCES AND INFORMATION The Health Place - Los Gatos (408) 924-6506 San Jose State University's Nursing Program can help you with health concerns right in your own home. This service provides in-home nursing services for the frail elderly, including blood pressure screening and monitoring. They provide consultation for agencies, clients, and caregivers, as well as education, and information and referral. For Los Gatos residents only.

Health Libraries, Stroke and Disabilities Educational Resources TIP: Health Resource Centers and Libraries offer a wide range of consumer health and medical information via access to textbooks, journals, clipping files, Internet and audiovisuals. Many of these libraries are located in local hospitals. Some materials are provided in other languages. These libraries are open to the public.

Indian Health Center of Santa Clara Valley (408) 445-3400 Ext. 250 or Ext. 201 www.indianhealthcenter.org This is a comprehensive health center that provides general medicine, dentistry, medical nutrition counseling, and health education for American Indians.

Health Libraries Avenidas Senior Center – Health Library (650) 289 - 5400 www.avenidas.org Avenidas is a private, non-profit agency helping mid-Peninsula seniors maintain their independence. Services include a health library, and much more.

Pacific Free Clinic (650) 721-2786 http://pacific.stanford.edu Open on Saturdays from 9:00 a.m. A studentrun clinic affiliated with Stanford University. Patients are seen on a first come, first serve basis, with follow up appointments scheduled as needed. They provide free health care services for adults in the East San Jose area with lowincome, no insurance, and/or low English proficiency. Open to all regardless of immigration status. Other languages: Spanish, Vietnamese, Mandarin.

Community Health Library of Los Gatos (408) 866-4044 Health Library and Resource Center El Camino Hospital (650) 940-7210 www.elcaminohospital.org

Palo Alto Medical Foundation Sutter Health Affiliate 650-321-4121 www.pamf.org RotaCare Bay Area, Inc. (408) 379-8000 www.rotacarebayarea.org Free clinics located in Mountain View, San Jose, and Gilroy. Call for services and information. Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

7


CHAPTER 2: HEALTHCARE RESOURCES AND INFORMATION Silicon Valley Independent Living Center Information and Referral Resource Library (408) 894-9041 TTY (408) 894- 9012 www.svilc.org Provides access to anyone with a disability regardless of income to its collection of hardcopy, electronic, audio, and video materials regarding a wide range of disability-related issues.

Planetree Health Information CenterCupertino Library (408) 446-1677 Ext. 3350 www.planetree-sccl.org Other languages: Spanish (especially Saturdays). Santa Clara Valley Medical Center Community Learning Center (408) 848-5366 Other languages: Spanish, Vietnamese. Santa Clara Valley Medical Center Milton J. Chatton Medical Library (408) 885-5650 The library offers information services related to the delivery of health care, the training of health care personnel, clinical research, and consumer health information. Hours are Mondays – Fridays from 8 a.m. to 1 p.m.

Stroke and Disabilities Educational Resources American Association of People with Disabilities (202) 457-0046 – (800) 840-8844 www.aapd.com American Physical Therapy Association (703) 684-APTA - (800) 999-2782 www.apta.org

Sequoia Hospital Health and Wellness Center and Senior Services (650) 367-5998 www.sequoiahospital.org Community health resource center, educational programs, support groups, health screening, senior assistance. Other languages: Spanish.

American Recreational Therapy Association (601) 450-2872 www.atra-online.com

Stanford Health Library (800) 295-5177 or (650) 725- 8400 http://healthlibrary.stanford.edu A free and open-to-the-public consumer health information library that provides scientifically based medical information about health and health care. The main branch is located at the Stanford Shopping Center, 2-B. Custom research packets are available. Services are provided on-site, on the phone and on their website. Other languages: Spanish, Language Bank.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

8


CHAPTER 2: HEALTHCARE RESOURCES AND INFORMATION American Stroke Association Stroke Family Support Network 1 (888) 4-STROKE 1 (888) 477-VIVE (Spanish) www.heart.org http://strokeassociation.org/ American Stroke Association is a division of the American Heart Association. They provide resources for stroke data and information. They publish the free “Stroke Connection” magazine. Other languages: Spanish, Chinese, Vietnamese.

National Stroke Association (800) 787-6537 www.stroke.org Provides education, services and communitybased activities in prevention, treatment, rehabilitation and recovery.

Hospitals in San Mateo and Santa Clara Counties TIP: Primary Stroke Centers. The Joint Commission is the nation's predominant standards-setting and accrediting body in health care that focuses on improving the quality and safety of care provided by health care organizations. The Joint Commission's Certificate of Distinction for Primary Stroke Centers recognizes centers that make exceptional efforts to foster better outcomes for stroke care. For the most updated list of Primary Stroke Centers please visit: http://www. jointcommission.org/ or call (630) 792-5900.

American Occupational Therapy Association (301) 652-2682 www.aota.org American Speech-Language-Hearing Association (ASHA) (800) 638-8255 www.asha.org Refers callers to Speech-Language Pathologists who specialize in aphasia. ASHA will send out informational packet at no charge. Brain Injury Association of America (703) 761-0750 Family Helpline: 1-800-444-6443 www.biausa.org

Santa Clara County Department of Veterans Affairs Palo Alto Health Care System Main: (650) 493-5000 Rehab Dept: (650) 493-5000, ext. 65593 www.palo-alto.med.va.gov

National Aphasia Association (800) 922-4622 www.aphasia.org Provides support and information for individuals and families living with aphasia. National Institute of Neurological Disorders and Stroke (800) 352-9424 www.ninds.nih.gov Conducts, fosters, coordinates, and guides research on the causes, prevention, diagnosis, and treatment of stroke.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

9


CHAPTER 2: HEALTHCARE RESOURCES AND INFORMATION Regional Medical Center of San Jose Main: (408) 259-5000 www.regionalmedicalsanjose.com

El Camino Hospital - Los Gatos Main: (408) 378-6131 Rehab Dept: (408) 866-4059 www.elcaminohospital.org/rehab The Rehabilitation Center Outpatient Program has a Day Treatment Program, as well as the Dysphagia Program (designed to treat patients with swallowing disorders), the Vestibular and Balance Disorders Program (treatment for persistent dizziness and loss of balance), and the Spasticity Management Program. Physician referral is required. See ad on page ii.

Saint Louise Hospital - Gilroy Main: (408) 848-2000 Rehab Dept. (408) 848-2000 Ext. 8662 www.saintlouiseregionalhospital.org Santa Clara Valley Medical Center Main: (408) 885-5000 Rehab Dept: (408) 885-2000 www.scvmed.org

El Camino Hospital - Mountain View Main: (650) 940-7000 Rehab Dept: (650) 940-7285 www.elcaminohospital.org

Santa Clara Valley Medical Center Stroke Education Classes (408) 885-2180 Therapy Gym or Day Room (location varies) A rotating series of 8 classes is offered every 2 weeks, Monday through Thursday from 4:00 to 5:00 p.m. These classes are specifically designed for patients in the inpatient stroke unit and in the acute hospital. Outside visitors are welcome. The material is very basic. The eight topics may vary. The material is most appropriate for persons with brand new strokes who have not yet been discharged from a medical center.

Good Samaritan Hospital - San Jose Main: (408) 559-2011 Stroke Center: (408) 559-2175 Rehab at Mission Oaks Campus: (408) 358-5689 www.goodsamsanjose.com

Kaiser Permanente Medical Centers www.kaiserpermanente.org Kaiser Permanente - Santa Clara Main: (408) 851-1000 Rehab Dept: (408) 530-2900

Stanford Hospital and Clinics Main: (650) 723-4000 Neurology Clinic: (650) 723-6469 Stroke Center: (650) 723-4448 Rehab Dept: (650) 723-6701 http://strokecenter.stanford.edu

Kaiser Permanente - San Jose Main: (408) 972-3000 Rehab Dept: (408) 972-7160 O’Connor Hospital - San Jose Main: (408) 947-2500 Rehab Dept: (408) 947-2709 www.oconnorhospital.org See ad on inside front cover for more information.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

10


CHAPTER 2: HEALTHCARE RESOURCES AND INFORMATION San Mateo County

San Francisco Heart & Vascular Institute: (650) 991-6712 www.sfhi.com

Department of Veterans Affairs Palo Alto Health Care System, Menlo Park Facilities Main: (650) 493-5000

Selected Readings, Magazines and Newsletters

Kaiser Permanente Medical Centers www.kaiserpermanente.org Kaiser Permanente - Redwood City Main: (650) 299-2000 Admittance: (650) 299-3170 Rehab Dept: (650) 299-4741

TIP: Contact your local library to learn about library-sponsored programs for your community. The two following organizations deliver books to your house free of charge!

Kaiser Permanente - South San Francisco Main: (650) 833-2000 Admittance: (650) 742-2318 Rehab Dept: (650) 742-7226

Some of these services are: Books Aloud, Inc. Dr. Martin Luther King Jr. Library (408) 808-2613 www.booksaloud.org Maintains a free loan library of recorded books on tape cassettes. Contains fiction and non-fiction for visually, physically, or learning disabled people of any age. Tapes are mailed free of charge.

Mills-Peninsula Health Services Mills-Peninsula Medical Center - Burlingame Main: (650) 696-5400 Stroke Center: (650) 696-7681 Mills-Peninsula Health Center - San Mateo Main: (650) 696-5400 Rehab Dept: (650) 696 4927 www.mills-peninsula.org See ad on back cover.

Palo Alto City Library Home Connection (650) 617-3100, ext. 3215 Residents of Palo Alto may have books, large print books, magazines, and videos delivered to them if there is no other way to obtain this material.

San Mateo Medical Center Main: (650) 573-2222 www.sanmateomedicalcenter.org Sequoia Hospital - Redwood City Main: (650) 369-5811 Rehab Dept: (650) 363-5690 www.sequoiahospital.org Seton Medical Center - Daly City Main: (650) 992-4000 Rehab Dept: (650) 985-7588 www.setonmedicalcenter.org

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

11


CHAPTER 2: HEALTHCARE RESOURCES AND INFORMATION San Francisco Stroke Resource Directory American Stroke Association (415) 433-2273 San Francisco city and county community resources for stroke survivors and caregivers.

Resource Booklets and Newsletters Aphasia Handbook of the National Aphasia Association (800) 922-4622 www.aphasia.org "The Aphasia Handbook : A Guide for Stroke and Brain Injury Survivors and Their Families" is a publication of the National Aphasia Association. The Aphasia Handbook is an essential resource for people with aphasia and their families.

Stroke Connection Magazine American Stroke Association (888) 478-7653 www.strokeassociation.org Free bimonthly health education and outreach publication about stroke for stroke families.

Council on Aging Silicon Valley Senior Services Directory (800) 510-2020 www.careaccess.org A comprehensive guide available for seniors, caregivers and disabled individuals in Santa Clara County.

Stroke Smart Magazine National Stroke Association (800) 787-6537 www.stroke.org Free bimonthly publication about stroke for stroke survivors and their families.

Help at Home Directory, San Mateo County Commission on Aging www.co.sanmateo.ca.us/ To obtain a printed copy of this directory in English, Spanish, or Chinese, call (650) 5733910.

Books A Stroke of Genius: Messages of Hope and Healing From a Thriving Stroke Survivor (2001) Sandy Simon, Cedars Group

Online Newsletter Pacific Stroke Association (650) 565-8485 www.psastroke.org Free monthly online newsletter and resource directory for stroke survivors and caregivers in Santa Clara and San Mateo Counties.

After a Stroke: 300 Tips for Making Life Easier (2005) Cleo Hutton, RN. Demos Medical Publishing. “After Words" (Documentary) Requests for the film should be made to Vincent Straggas at vstraggas@rcn.com or see website: www.theafterwordsproject.org

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

12


CHAPTER 2: HEALTHCARE RESOURCES AND INFORMATION Aphasia, My World Alone (1979; 1986) Helen Harlan Wulf. Wayne State Univ. Press.

My Year Off: Recovering Life After a Stroke (1998) Robert McCrum. W.W. Norton and Company, Inc.

Brain Attack: Danger, Chaos, Opportunity and Empowerment (2001) Paulina Perez, Cutting Edge Press.

On Being Struck By A Stroke (2000) E. B. Jelks.

Don’t Pull the Plug (2001) Thomas Matola, PhD & Roberta Johnson, JD, Intrepid Press.

One-Handed in a Two-Handed World (2000) Tommye-Karen Mayer. Prince-Gallison Press.

Family Guide To Stroke (1994) Dr. Louis Caplan, Dr. Mark Dyken, and Dr. Donald Easton: American Heart Association. (800) 553-6321

Recovering At Home after a Stroke: A Practical Guide for You & Your Family (1994) Florence Weiner, Mathew Lee, and Harriet Bell. The Body Press/Perigee.

Healing into Possibility: The Transformational Lessons of a Stroke (2009) Alison Bonds Shapiro. H.J. Kramer, Inc.

Pathways Moving Beyond Stroke and Aphasia Susan Adair Ewing, MA, CCC and Beth Pfalzgraf, MA, CCC. Wayne State University Press, Detroit.

Helpmates: Support in Times of Critical Illness (1991) Cole, Harry A. Westminster/John Knox Press

Return to Ithaca (1977) Barbara Newborn. Element Publishing. Second Opinions (2000) Jerome Groopman, M.D. Viking/Penguin Books.

How to Conquer the World With One Hand… And an Attitude (1999) Stephanie Mensh and Paul E. Berger. Positive Power Publishing.

Striking Back at Stroke: A Doctor-Patient Journal (2003) Cleo Hutton, Louis R. Caplan, MD. Dana Press.

Live or Die, A Stroke of Good Luck (2010) Richard Burns. D&N Books, CA.

Stroke and the Family: A New Guide (2004) Joel Stein, MD. Harvard University Press.

Living with Stroke: A Guide for Families (2001) Dr. Richard Senelick, Dr. Peter Rossi, and Karla Dougherty. Thomson Delmar Learning.

Stroke of Luck: The Life, Crisis and Rebirth of a Survivor of Stroke (1999) Howard Rocket and Rachel Sklar. Hushion House.

Locked-In: A Young Woman’s Battle with Stroke (1996) Judy Mozersky. Oxford University Press, Canada.

Stroke: Your Complete Exercise Guide (1993) Neil F. Gordon, MD, PhD, MPH. Human Kinetics Publishers.

My Stroke of Luck (2002) Kirk Douglas, HarperCollins Publishers, New York.

Ted’s Stoke: The Caregiver’s Story (1988), Ellen Paullin. Swen Locks Press.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

13


CHAPTER 2: HEALTHCARE RESOURCES AND INFORMATION The Best of the Stroke Connection Magazine (1994) American Heart Association, Dallas American Heart Association, Dallas

Aphasia Hope Foundation www.aphasiahope.org Their mission is to promote research into the prevention and cure of aphasia and to ensure all survivors of aphasia and their caregivers are aware of and have access to the best treatments available. Services in Spanish available through the website.

The Diving Bell & The Butterfly (1998) Jean-Dominique Bauby. Vintage Books. The Stroke Book (1993) Arthur Ancowitz, MD. William Morrow and Company, Inc., New York.

Department of Rehabilitation (California) (916) 324-1313 www.rehab.cahwnet.gov

When Someone You Love Has A Stroke (1995) Marilyn Larkin and Lynn Sonberg. Dell Publishing Company.

Center for International Rehabilitation Research Information and Exchange (CIRRIE) (716) 829-6743 www.cirrie.buffalo.edu Locate international research in all areas of rehabilitation.

Where is the Mango Princess? (2000) Cathy Crimmins. Alfred A. Knopf, New York.

Websites and Help Lines A Handicapped Help Line (951) 791-0050 www.ahandicappedhelpline.org Referral and guidance on thousands of resources.

Clinical Trials www.clinicaltrials.gov Provides regularly updated information about federally and privately supported clinical research in human volunteers.

Americans with Disabilities Act Information Line (U.S. Department of Justice-Civil Rights Division) (800) 514-0301 (Voice) (800) 514-0383 (TDD) www.ada.gov For Spanish/English: (800) 949-4232 or go to www.adata.org ADA specialists are available to provide ADA information and answers to technical questions on Monday, Tuesday, Wednesday, and Friday from 10:30 a.m. to 4:30 p.m. or on Thursday from 12:30 p.m. to 4:30 p.m. (Eastern Time).

Council on Aging Silicon Valley www.coasiliconvalley.com www.networkofcare.org Different Strokes www.differentstrokes.co.uk/ For younger stroke survivors. Disability Resources, Inc. – California www.disabilityresources.org/CALIFORNIA.html Disability Benefits 101 www.disabilitybenefits101.org Helps workers, job seekers, and service providers understand the connections between work and benefits.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

14


CHAPTER 2: HEALTHCARE RESOURCES AND INFORMATION Eldercare Locator www.eldercare.gov (800) 677-1116 Nationwide information on community assistance for seniors. Other languages: Spanish.

International Disability Exchanges and Studies (IDEAS) Project (510) 225-6400 www.wid.org International news and information on independent living, employment, and media and the arts.

Release Your Potential www.releaseyourpotential.com An online community designed to raise awareness of spasticity, bring those who are affected together to share their personal stories and coping strategies, and empower individuals to seek treatment.

Internet Stroke Center www.strokecenter.org A non-profit, educational service of the Stroke Center of the Washington University School of Medicine in St. Louis. The Internet Stroke Center exists to advance understanding of stroke research and clinical care.

Generation S www.orgsites.com/pa/generation-s/_pgg8.php3 This is an informal, interactive, information zone for young stroke survivors.

National Center for the Dissemination of Disability Research (NCDDR) (800) 266-1832 www.ncddr.org Offers subscription e-mail alerts, a directory of journals, focus technical briefs and a knowledge translation library. Other languages: Spanish

Government Office on Disability www.disability.gov/ Mayo Clinic Division of Cerebrovascular Diseases and Stroke education.

National Council On Aging (800) 677-1116 (202) 479-1200 www.ncoa.org/

HelpSCC.org www.HelpSCC.org Up-to-date online directory of health and human services in Santa Clara and Santa Cruz Counties.

National Rehabilitation Information Center (800) 346-2742 www.naric.com/ Information about all projects funded by NIDRR over the past 10 years in an accessible format.

HICAP, Medicare Counseling Program (800) 434-0222 or (650) 627-9350 www.hicapsanmateocounty.org Provides free Medicare counseling and advocacy. Assist beneficiaries with Medicare billing, filing of claims and any questions about supplemental insurance, including Medi-Cal and prescription drug coverage. Please call for an appointment.

National Resource Center for Parents with Disabilities - Through The Looking Glass (800) 644-2666 - (510) 848-1112 www.lookingglass.org/ Links to hundreds of websites related to parenting with a disability; exclusive publications regarding parents with disabilities and their families.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

15


CHAPTER 2: HEALTHCARE RESOURCES AND INFORMATION New Freedom Initiative www.disabilityinfo.gov A one-stop online resource for Americans with disabilities.

SAFE (Stroke Awareness for Everyone) www.strokesafe.org An international Internet-centered coalition of stroke survivors and their families, in addition to stroke professionals. SAFE provides and manages several Support and Discussion e-mail lists for stroke survivors, caregivers, and general information.

One-Handed Woodwinds Program www.onehandwind.unk.edu A program of the University of Nebraska, to make one-handed woodwind instruments available to permanently disabled individuals.

Stroke Awareness Foundation (408) 961-9815 www.strokeinfo.org

Picturing Aphasia www.aphasia.tv A 30-minute video designed to educate people about aphasia. In the video, four stroke survivors tell how they acquired aphasia, the impact it has had upon their lives, and how they have moved forward.

Stroke Network www.strokenetwork.org Provides on-line support to adult stroke survivors and their caregivers. A Caregivers Handbook can be downloaded free.

Pediatric Stroke www.pediatricstroke.org

Virginia Commonwealth University National Institute on Disability and Rehabilitation Research www.disability-laws.org www.adata.org/addportal A public site for getting answers to questions about disability laws.

Learning Ally (650) 493-3717 Contact: Rshmi Bagshi www.learningally.org Learning Ally is a nonprofit volunteer organization which serves students who cannot read standard print effectively because of blindness, visual impairment, dyslexia or other learning disabilities.

Well Spouse Association www.wellspouse.org Well Spouse is a national, not-for-profit membership organization which gives support to wives, husbands, and partners of the chronically ill and/or disabled.

San Mateo County Network of Care http://sanmateo.networkofcare.org/aging/home/ index.cfm This website is a resource for individuals, families, caregivers and agencies seeking information about issues and services for older adults and people with disabilities.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

16


CHAPTER 3: INDEPENDENT LIVING Housing Adaptation and Maintenance

Peninsula Office: (650) 366-6597 www.rebuildingtogetherpeninsula.org In partnership with the community, they rehabilitate the homes of low income homeowners with disabilities so that they may live in warmth, safety and independence. All work is done free of charge.

Avenidas Family Caregiver Services (650) 289-5400 www.avenidas.org Avenidas is a private, non-profit agency helping mid-Peninsula seniors maintain their independence. Services include minor home repairs, and much more.

Seniors At Home (Jewish Family and Children’s Services of the Peninsula) (650) 688-3000 – (415) 449-3777 www.seniorsathome.org In addition to homecare services, Seniors At Home also provides information and referral, care management, consultation, home-delivered meals and house cleaning.

Center for Independence of Disabled San Mateo County (650) 645-1780 www.cidsanmateo.org Provides housing access evaluations and modifications. Community Services Agency (650) 968-0836 www.csacares.org Serving Mountain View, Los Altos and Los Altos Hills, community volunteers provide minor home repairs.

Bay Area Geriatric Care Managers (650) 654-1510 www.bayareagcm.com Senior CONCIERGE Services: Fostering comfort, independence, and integrity of our one-on-one relationships with our clients. Social engagements, shopping, escorted transportation, pet care, home organizationcustomized to your lifestyle and desires.

Pacific Gas & Electric Company (800) 743-5000 (PG&E Customer Service) www.pge.com/customer_service/ PG&E offers information on finding ways to pay utility bills, to weatherize homes, and to find other assistance regarding energy needs. Other languages: Spanish.

Meals and Nutrition Celebration Chef Services, LLC (650) 892-5292 www.celebrationchefservices.com pat_mccarty@sbcglobal.net A personal chef service offering customized menus and meals prepared in or delivered to your peninsula home. Sensitive to special dietary needs and taste preferences, Chef/ Owner Pat McCarty is a professional chef, Serv-Safe certified, licensed and insured. Meal packages include personalized menu, shopping, cooking, clean-up and packaging for your freezer/refrigerator.

Heart of the Valley - Services for Seniors (408) 241-1571 www.servicesforseniors.org/home.html In-home support assistance includes handyman services and yard work. Other services are escorted transportation, liaison services, and information and referral.

Rebuilding Together Silicon Valley Office: (408) 578-9519 www.rebuildingtogether-sv.org

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

17


CHAPTER 3: INDEPENDENT LIVING Daly City Senior/Adult Services at Doelger Center (650) 991-8012 www.doelgercenter.com The program offers an environment promoting wellness and lifelong learning for senior adults from Daly City and surrounding communities. Services include daily hot lunches at the Doelger Café. Other languages: Spanish.

Samaritan House- San Mateo County (650) 347-3648 www.samaritanhouse.com Hot nutritious meals and bags of food are provided to clients daily. Special programs include food delivery to the elderly and the disabled. Other languages: Spanish. Second Harvest Food Bank Operation Brown Bag Santa Clara County (408) 266-8866 San Mateo County (650) 610-0800 www.SecondHarvestFood.org Operation Brown Bag members receive a weekly supplemental bag of groceries distributed at sites throughout San Mateo & Santa Clara Counties. Available to seniors over 60 or low-income disabled individuals over the age of 55. Other languages: Spanish.

Meals on Wheels This program delivers daily nutritious meals and a friendly visit to hundreds of homebound seniors and disabled adults in San Mateo and Santa Clara Counties. Ethnic meals may be available. Meals on Wheels (San Mateo County) (650) 726-9056 (Coastside – Spanish available) www.seniorcoastsiders.org (650) 738-7350 (Pacifica) www.cityofpacifica.org/depts/senior_ services/meals_on_wheels/default.asp (800) 675-8437 (Belmont to Daly City) (650) 323-2022 (San Carlos to E. Palo Alto) www.penvol.org/mealsonwheels Other languages: Spanish

TIP: Some of the organizations listed in Chapter 7: Resources for Caregivers and Chapter 3: Independent Living offer grocery shopping services and light meal preparation. Also, some supermarkets offer the service of online grocery buying. They may provide special help for people with disabilities. Shopping Assistance for Homebound Seniors (SASH) – San Mateo County The program matches seniors with volunteers who grocery shop for them. Ask for the SASH coordinator in your area: Millbrae (650) 259-2370 Redwood City (650) 780-7274 (Spanish available) San Carlos (650) 802-4384 Burlingame, Foster City, San Mateo: (650) 522-7494 www.mills-peninsula.org/about/food.html

Meals on Wheels/Council on Aging Silicon Valley (Santa Clara County) (408) 296-8290 www.careaccess.org Other languages: Spanish. Meals on Wheels/The Health Trust (Santa Clara County) www.healthtrust.org/services/mow.php (800) 505-3367 or (408) 961-9870 Other languages: Spanish.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

18


CHAPTER 3: INDEPENDENT LIVING The following instructions apply for those individuals who have been notified by DMV that their driver’s license has been suspended:

Waiters on Wheels Palo Alto and San Mateo (650) 366-3366 San Jose and Milpitas (650) 839-2100 San Francisco (415) 452-6600 www.waitersonwheels.com Meal delivery services. There is a fee for the service. Serves many cities in the bay area.

1. Obtain a prescription from your doctor for a driving evaluation by a professional evaluator. 2. Have your doctor complete the Department of Motor Vehicle (DMV) Driver Medical Evaluation Form-DMV form DS-326. This form can be requested from your local DMV office or you can download it at www. dmv.ca.gov.

Return to Driving Plan One of the first activities most stroke survivors wish to return to is driving. Most physicians report stroke to the DMV and as a consequence your driver’s license might be suspended. It is highly recommended that the stroke survivor talk to his/her doctor before going back to driving.

3. On form DS-326, you may check boxes that request a permit to allow you to practice driving with a licensed evaluator or instructor and/or to drive with any licensed driver over 25 years of age.

If you are notified by the DMV that your • driver’s license was suspended a driver’s evaluation will be required. A detailed description of this evaluation and training process is described below.

4. Return the completed form DS-326 to DMV via Certified Mail. 5. After the DMV receives this form, they will notify you for a re-examination. This takes place in the Safety Office of the DMV. The desired outcome of this evaluation is to obtain a temporary permit allowing you to drive with a licensed evaluator or instructor, or if requested, any licensed driver over 25 years of age with a licensed evaluator or instructor, or if requested, any licensed driver over 25 years of age.

If your driver’s license was not suspended, • it is highly recommended that the stroke survivor talk to his/her doctor and be evaluated by a professional evaluator before going back to driving. This Resource Booklet provides a listing of several evaluators see pages 21 and 22. If the stroke survivor has left-sided neglect, • even if his/her driver’s license was not suspended, it is of paramount importance for him/her to be seen by a neurologist and receive driver training before he/she starts driving again. Left-sided neglect is more common in people with right hemisphere brain injury. This Resource Booklet provides a listing of several evaluators. See pages 21 and 22.

6. Once you have been notified by the DMV, contact a driving instructor/evaluator to schedule an evaluation. This Resource Booklet provides a listing of several evaluators.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

19


CHAPTER 3: INDEPENDENT LIVING 7. With a prescription from your doctor and a driving permit, the evaluator will conduct an evaluation of your driving abilities. Fees vary by provider. The driving evaluator will then: • provide a written evaluation • recommend the needed hours of driver training • recommend adaptive equipment and/or modification of your automobile

DMV Drivers Safety Offices www.dmv.ca.gov DMV Driver Safety Offices are for those drivers requesting administrative hearings or scheduled for departmental re-examinations. San Jose - (408) 229-7100 (Spanish available) San Francisco - (415) 557-1170 (Spanish available) Oakland - (510) 563-8900 (Spanish available)

8. Following the evaluation, you should use a driving instructor for training.

Identification Placard for the Disabled (800) 777-0133 www.dmv.ca.gov You may be eligible for disabled person license plates and/or a parking placard if you are permanently or temporarily disabled. You must: • Complete and sign an Application for Disabled Person Placard or Plates (REG195 - available online). • Have a licensed physician, surgeon, physician’s assistant, nurse practitioner, or certified midwife sign the Doctor’s Certification of Disability portion of the application. • For a Temporary Placard, include the fee. • Mail the original application to the address on the form. You will receive your parking placard approximately two weeks after you submit the completed form.

9. After the training and with a driving permit, practice driving with a friend or family member, using adaptive equipment if necessary, in your own vehicle. 10. Work with the DMV safety officer (Driver Safety Offices phone numbers are below) to schedule an appointment for a driving test with the DMV. If adaptive equipment is needed, be sure it is installed prior to the test. The driving test for individuals with disabilities is longer and evaluators may conduct the test on any route. TIP: “AAA Roadwise Review: A Tool to Help Seniors Drive Safely Longer” is a scientifically validated screening tool developed by AAA and noted transportation safety researchers. Available on CD-ROM, this tool allows seniors to measure in the privacy of their own home the eight functional abilities shown to be the strongest predictors of crash risk among older drivers. To purchase a copy of the CD call: 1-800-922-8228 or go to www.csaa.com

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

20


CHAPTER 3: INDEPENDENT LIVING Adaptive Driving Evaluators and Trainers

California Board of Occupational Therapy Older Californian Traffic Safety Task Force (916) 263-2294 www.bot.ca.gov On their website, you can find a directory of Driver Rehabilitation Programs and Training/ Education for seniors and people with disabilities.

Adaptive Driving Services (408) 984-7949 Specialized occupational therapy clinical evaluations. Clinical and behind the wheel assessment. Covers the bay area from Chico to Monterey.

Driver Rehab Services (408) 984-7949 Evaluation of disabled clients, vehicle evaluations and modifications, adaptive equipment, and driver training.

Adaptive Driving Aid (800) 371-4243 In-vehicle driver training and evaluations for people with disabilities.

Forty-Niner Driving Traffic School (650) 400-9801 www.49erdrivingschool.org Driver training, evaluation and referrals for vehicle modification.

Apex Driving School (415) 267-6118 or (415) 336-8916 www.apexdrivingschool.com Email: apexdrivingschool@gmail.com Contact: Derrick Scott, Driving Rehabilitation Specialist The school has provided driver training and evaluations for Bay Area stroke survivors for over 25 years. The program is designed to determine a driver’s suitability for motoring independence. Services include DMV relicensing assistance, direct from your home training/evaluation, written reports, and adaptive driving aid training. Affiliations: ADED Association for Driver Rehabilitation Specialist; American Stroke Association

Mills-Peninsula Health Services (650) 696-4315 www.millspeninsula.org Schedules driver evaluations. Schedulers speak Spanish, driving instructors do not. The Safe Driver – Driver Rehabilitation Specialists Contact: Marc Samuels, OT, CDRS Certified Driving Rehabilitation Specialist (650) 455-3703 www.TheSafeDriver.com

Association for Driver Rehabilitation Specialists (ADED) (828) 855-1623 (866) 672-9466 www.driver-ed.org Assists individuals in finding driving training programs in their area. Also serves as a resource for adapted auto equipment. Other languages: Spanish.

Santa Clara Valley Medical Center (408) 885-5000 www.scvmed.org The Adaptive Driving Evaluation Program (ADEP) provides specialized driver rehabilitation and transportation services to individuals with a disability or medical condition. ADEP provides evaluations for passenger vans, driver evaluations, driver training, and follow-up services. Other languages: Spanish.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

21


CHAPTER 3: INDEPENDENT LIVING Veterans Administration Palo Alto Health Care System (650) 493-5000 ext. 1-65624 Driver training and evaluations for veterans only.

Regional Transit Connection Discount Cards for Seniors and Passengers with Disabilities The purpose of this program is to provide eligible individuals with fare discounts as mandated by state and federal law. With a RTC Discount Card, persons with qualifying disabilities and senior citizens (65 or over) are entitled to a reduced fare on fixed-route bus, rail and ferry systems throughout the San Francisco Bay Area. Call your local transit agency for details.

Transportation Services Public and Paratransit Transportation The Americans with Disabilities Act (ADA) requires that transit agencies make their services accessible to people with disabilities including the availability of paratransit service. Most transportation systems in the Bay Area are accessible.

Santa Clara County Outreach Paratransit (408) 436-2865 www.outreach1.org This is the paratransit service for the Valley Transportation Authority. Contact them for details about initiating the eligibility certification process. Clients must be pre-enrolled to use this service. Service is available 7 days a week. Other languages: Spanish.

Paratransit service is a “safety net” for people who, due to their disability, are unable to ride regular buses and trains some or all of the time. It is generally a shared service that must be reserved at least one day in advance. The service picks you up at your place of residence. Riders who need extra help may bring an attendant with them at no additional charge. Fares vary from county to county.

Santa Clara Valley Transportation Authority (VTA) www.vta.org Customer Service at (408) 321-2300 TDD call (408) 321-2330 Other languages: Spanish.

Eligibility is based upon functional ability to use regular public transportation. Eligibility is not based on age or inability to drive an automobile, or income. Please note that having a medical condition or a disability does not automatically qualify you for paratransit services. The eligibility process may consist of an inperson interview at an eligibility certification office where your completed application including licensed physician’s verification of disability is reviewed. It takes up to 21 days from the date of your interview to receive notice of eligibility. To request additional information and an application form contact your local paratransit agency. See details below.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

22


CHAPTER 3: INDEPENDENT LIVING San Mateo County

V + B Transportation (408) 937-6135 www.vbtransport.com Provides transportation services funded under the state Medicaid/Medi-Cal. Other languages: Spanish.

Redi-Wheels and RediCoast - Paratransit (650) 508-6241 (650) 366-4856 to request a brochure. www.samtrans.org/rw.html The San Mateo County Transit District provides Redi-Wheels paratransit service on the bayside of the county and RediCoast on the coastside. Clients must be pre-enrolled to use this service. Service is available 7 days a week.

For Santa Clara County only Avenidas Senior Center (Road Runners) Transportation Service (650) 940-7016 www.avenidas.org Provides assisted, door-to-door transportation up to 5 times per week to the lunch program at the downtown Senior Center, once per week to grocery shopping in the Palo Alto / Stanford area, and daily to the Senior Day Health Center.

San Mateo County Transit District (SamTrans) 1-800-660-4287 - (650) 508-6202 www.samtrans.org Sam Trans has a travel training program to show people with disabilities how to use the regular fixed-route buses or to ride on CALTRAIN. It is free of charge and self-paced. Using this program will not affect your ability to use paratransit.

Catholic Charities Daybreak Respite & Caregiver Support Program (408) 270-4900 www.daybreakcares.org Volunteer-based, escorted transportation to medical appointments and grocery shopping. Requires an initial assessment by a nurse from Catholic Charities to determine eligibility for program services. Service area is in Santa Clara County, from Mountain View to Gilroy. Fee is $5 a ride, round-trip.

Other Transportation Options TIP: Check the organizations listed under “Resources for Caregivers” in Chapter 7. Many of them provide transportation services for seniors and people with disabilities. Also, many senior centers provide transportation assistance for homebound seniors and people with disabilities. Contact you local senior center!

Community Services Agency Serving Mountain View, Los Altos & Los Altos Hills (650) 968-0836 www.csacares.org Provides limited escorted transportation through staff, volunteers and contract services to residents of Mountain View, Los Altos and Los Altos Hills who qualify for services. Other languages: Spanish.

MV Transportation (408) 292-3600 www.mvtransit.com MV provides transportation services funded under the state Medicaid/Medi-Cal Program. Service is available for non-emergency medical trips and requires pre-approval. Private pay also accepted.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

23


CHAPTER 3: INDEPENDENT LIVING For San Mateo County Only

Heart of the Valley (408) 241-1571 www.servicesforseniors.org/ Provides escorted transportation to people age 59 and up. Limited service area within Santa Clara County. Services are not ongoing and require a 7-day notice. Call for zip code eligibility and fees.

FISH (Friends in Service to Humanity) (650) 593-1288 (Belmont, Redwood City, and San Carlos) (650) 570-6002 (Burlingame, Foster City, Hillsborough, Millbrae, and San Mateo.) Provides FREE volunteer transportation assistance for medical appointments within each tri-city area. Riders must be ambulatory. Service is free.

Japanese American Community Senior Services (YU-AI-Kai) (408) 294-2505 www.yuaikai.org Provides limited bilingual escorted medical transportation.

Need-A-Ride (650) 462-0853 Transportation for ambulatory seniors. Serves Palo Alto to San Mateo. Call before 5:00 p.m. for next day service. There is a fee for this service.

Love In The Name of Christ (Love INC) (408) 723-9223 www.loveincsantaclaracounty.org Volunteers are available to help clients with needs such as rides to doctor’s appointments (up to 8 days notice).

Travel Access-Able Travel Source www.access-able.com An information service for travelers with disabilities.

RoadRunners El Camino Hospital (650) 940-7016 www.elcaminohospital.org Volunteers provide door-to-door escorted transportation for any location Monday through Friday within a 10-mile radius of El Camino Hospital. The client may schedule a ride for any purpose 24 hours in advance. A fee is charged based on distance.

California Department of Parks & Recreation (916) 445-8949 for accessibility information (916) 653-8148 for Human Rights Office www.parks.ca.gov/parkindex On this user-friendly website you can find information about accessible features in state parks. Environmental Traveling Companions (ETC) (415) 474-7662 www.etctrips.org/ This non-profit organization provides outdoor adventures and education programs for people with disabilities and economically disadvantaged youth. Experience with water rafting, sea kayaking or cross-country skiing adventures.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

24


CHAPTER 3: INDEPENDENT LIVING Life on Wheels - The Active Wheelchair User www.lifeonwheels.org/ Life on Wheels addresses the misconceptions people bring to their experience of disability.

Books Aloud, Incorporated (408) 808-2613 www.booksaloud.org Maintains a free loan library of recorded books on tape cassettes. Contains fiction and non-fiction for visually, physically, or learning disabled people of any age. Tapes are mailed free of charge in both directions. Limited materials available in Spanish.

New Mobility (888) 850-0344 www.newmobility.com/ Monthly magazine that covers a wide range of disability issues including articles on travel and sports.

Colleges

Wheelchair Getaways (800) 642-2042 www.wheelchairgetaways.com/ This company rents wheelchair/scooteraccessible vans in all 48 states as well as Hawaii and Puerto Rico by the day, week, and month or longer. No delivery or pickup.

Most local colleges have disabled students programs and services. Check their course listings and programs! Below you will find information about some of these programs. City College of San Francisco Disabled Students Programs and Services (415) 561-1001 (415) 561-1007 TTY http://www.ccsf.edu/dsps The Acquired Brain Injury Program has classes on Cognitive Retraining, Language Reintegration and Speech and Language Skills among others.

TIP: Volunteering is a great way for stroke survivors to have an active life, share experiences with others and make life as normal as possible after stroke. Most not-for-profit organizations and senior centers are always looking for volunteers!

Cañada College (650) 306-3259 www.canadacollege.net/student/ disabledservices.html During the academic year, Canada College provides students with documented disabilities academic support and reasonable accommodations as defined by the Americans with Disabilities Act (ADA). Other languages: Spanish.

Vocational Rehabilitation, Education and Employment AXIS Dance Company (510) 625-0110 www.axisdance.org This dance company has created an exciting body of work developed by dancers with and without disabilities. They are paving the way for a powerful and inclusive dance form, “physically integrated dance”.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

25


CHAPTER 3: INDEPENDENT LIVING De Anza College (408) 864-8753 www.desanza.edu/dsps Services include registration and on-campus assistance, counseling and advisement, interpreting and captioning services, notetaking services, tutor referral, adaptive equipment and assistive technology, campus and community referral, and transition planning.

College of San Mateo Assistive Technology Center (650) 574-6698 www.collegeofsanmateo.edu/atc The center provides computer access services for students with disabilities. Services include training classes in computer assistive technology, resources for accessible web design, Internet access, and accessible work stations in campus computer labs.

Evergreen Valley College (408) 270-6447 www.evc.edu/dsp/high_tech_center.htm The High Tech Center is a computer laboratory used primarily by students with disabilities. It provides disability-related instruction in the basic skills and in cognitive retraining. Translation services in Spanish available.

Foothill College Adaptive Learning Division “Transition to Work” (650) 949-7549 www.foothill.edu/al/ttw.php The Transition to Work Program (TTW) is a 12-month vocational program designed for students with disabilities who can function independently at the college. Acceptance is based on assessment and evaluation by staff.

Mission College Disability Instructional Support Center (408) 855-5085 (408) 727-9273 TTY www.missioncollege.org/disc/index.html Assists college students with a disability to enter campus life, its programs and activities. Reasonable accommodation provided to minimize effects of disability and maximize potential for success.

Gavilan College Disabled Students Programs and Services (408) 848-4865 www.gavilan.edu/dsps WorkAbility III Program - Job Placement Center. Provides job readiness and job placement for students eligible for the Department of Rehabilitation Services. Responds to the needs of local employers by matching interests, skills and abilities to specific jobs. Translation services in Spanish available.

San Jose City College Disabled Students Program (408) 288-3746 www.sjcc.edu/sservices/programs/DSP/dsp.html Offers students with disabilities accommodations and access to classes, programs, activities, services, and facilities. Students must meet with the program’s staff members to determine educational limitations and what services are needed.

Skyline College Disabled Students Program and Services (650) 738-4280 www.skylinecollege.edu/general/ disabledstudentservices Adaptive physical education classes, assistive technology program that offers semester length cognitive retraining classes, and the Workability III Program in conjunction with the CA Department of Rehabilitation.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

26


CHAPTER 3: INDEPENDENT LIVING West Valley College Disability & Educational Support Program (DESP) (408) 741-2010 www.westvalley.edu/desp/htc.html The Computer Lab provides instruction in the use of computers for: Word Processing, Adaptive Software and Hardware, and Tutorial Programs. Cognitive retraining and communication classes are available for those students with acquired brain injury (stroke).

Santa Clara County San Jose District: (408) 277-1355 Translation services in Spanish available. Piedmont Hills Branch: (408) 254-5750 Translation services in Spanish available. Gilroy Branch: (408) 848-1345 Other languages: Spanish. Family Service Agency of San Mateo County Older Adult Services (650) 403-4300 www.peninsulafamilyservice.org “Helping mature workers get back in the work force.” Available for San Mateo County residents aged 55 and above. Provides career counseling and on-the-job training. Other languages: Spanish.

California Department of Rehabilitation www.rehab.cahwnet.gov/ Assists Californians with disabilities to obtain and retain employment and maximize their ability to live independently in their communities. DOR provides: counseling and guidance, referrals and assistance to get services from other agencies, job search and placement assistance, vocational and other training services, diagnosis and treatment of physical and mental impairments, on-the-job or personal assistance services, interpreter services, rehabilitation and orientation/ mobility services for individuals who are blind, occupational licenses, tools, equipment, initial stocks and supplies, technical assistance for self-employment, and rehabilitation assistive technology, among other services.

Independent Living Centers The independent living centers offer information and referral, vocational training and placement, assistive technology services, residential training, training in independent living skills, therapeutic recreation, systems & personal advocacy, benefits counseling, peer and individual counseling, housing referrals & personal assistant referrals and placement, housing modification services, shopping assistance for the homebound or people with disabilities.

San Mateo County Menlo Park Branch: (650) 688-6380 Translation services in Spanish available.

Silicon Valley Independent Living Center (SVILC) (408) 894-9041 www.svilc.org Translation services in Spanish available.

San Bruno Branch: (650) 737-2606 Translation services in Spanish available. San Mateo Branch: (650) 358-4180 Translation services in Spanish available.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

27


CHAPTER 3: INDEPENDENT LIVING Services for Brain Injury (510) 446-7936 www.sbicares.org Programs include: vocational training (e.g. job training and employment), adult day programs (e.g. rehabilitation), independent living skills and support services. Eligibility is based on an initial assessment. Fees are sliding scale. Other languages: Spanish.

Center for the Independence of the Disabled - San Mateo County 650-645-1780 www.cidsanmateo.org Institute for Career Development (408) 998-5774 www.goodwillsv.org This is a fully licensed private postsecondary school specializing in vocational training, basic education, evaluation and job placement for people with disabilities or without job skills. Training is offered at no cost to qualified applicants.

TransAccess (Computer Access) (408) 278-2000 www.transaccess.org Provides persons with disabilities access to adaptive technology and career transition services so that they can achieve their desired education and employment and improve their quality of life. Translation services in Spanish available.

Job Accommodation Network (800) 526-7234 www.askjan.org JAN is a toll-free information and referral service on job accommodations for people with disabilities; on the employment provisions of the Americans with Disabilities Act; and on resources for technical assistance, funding, education, and services related to the employment of people with disabilities.

Vocational Rehabilitation Services (VRS) (650) 802-6482 VRS helps San Mateo County residents with employment barriers and disabilities attain their maximum vocational potential. Services include: referral for job training and educational programs, job seeking skills, job development/ job placement/job coaching and assistance with applications and resumes. Other languages: Spanish.

Project Hired (408) 557-0880 www.projecthired.org A not-for-profit organization that assists individuals with disabilities in the Bay Area in finding competitive employment. Senior Net www.seniornet.org or www.snlcsj.org Computer Internet Training for people 50+ San Jose Almaden: 408-268-1133 San Jose Cypress: 408-244-1353 San Jose Willows: 408-448-6400 San Mateo Senior Center: 650-522-7490 www.ci.sanmateo.ca.us Limited translation services into Spanish available.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

28


CHAPTER 4: MEDICAL EQUIPMENT Medical Alarm Services/ Personal Response Systems (PRS)

LifeFone (800) 882-2280 www.lifefone.com

Personal Response Systems (PRS) are designed to help frail seniors or people with disabilities in case of a fall or other emergency. Most of the numerous systems available consist of a small unit attached to the telephone. Patients wear a radio transmitter, attached to a pendant or wristband. At the touch of a button the system dials a preprogrammed number, connecting the person to a national or local emergency service provider who determines the nature of the problem and sends help if necessary. Following you will find some providers of this service.

Lifeline Services (800) 852-5433 or (800) 380-3111 www.lifelinesys.com With a press of a button, an associate notifies the appropriate support and medical response team as required. $50 installation fee, $45 monthly fee, unsubscribe anytime. Other languages: Spanish Mills-Peninsula Health Services Lifeline (650) 696-4823 www.mills-peninsula.org Other languages: Spanish, language bank.

ADT Companion Services (866) 746-7238 www.adt.com Other languages: Spanish.

Saint Mary’s Hospital Lifeline (Also serves Sequoia and Seton Hospitals) (800) 236-8550 (415) 750-5530 http://www.stmarysmedicalcenter.org/ Medical Services/198754 Other languages: Spanish.

American Medical Alert Corporation (800) 286-2622 www.amacalert.com Other languages: Spanish. CareCall – Council on Aging Silicon Valley (408) 296-8290 www.careaccess.org Other languages: Spanish.

Stanford University Hospital Lifeline (650) 723-6906 http://stanfordhospital.org/forPatients/ patientServices/lifelineGuestServices.html Other languages: Spanish.

Phillips Lifeline El Camino Hospital (650) 940-7016 Good Samaritan Hospital (408) 265-1438

Medic Alert Foundation International (888) 633-4298 www.medicalert.org Other languages: Spanish.

Life Alert (800) 815-5922 www.lifealert.com Provides free brochures and information.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

29


CHAPTER 4: MEDICAL EQUIPMENT Operation – C.A.R.E. (Caring About Resident Elders) - Los Gatos Police Department Crime Prevention Bureau (408) 354-6842 Service for elderly residents of Los Gatos and Monte Sereno. Police dispatcher calls every morning to check the well-being of members.

Medical Equipment and Other Devices

Tele-Care Programs Tele-Care programs vary in service delivery. The programs contact enrolled seniors on a daily basis, 365 days a year, to check on their well-being. If the senior cannot be reached at the agreed-upon time, a friend or relative is called to check on the senior.

Able Project (408) 263-8000 www.ablepeoplefoundation.org A web resource where people with disabilities & their loved ones can effortlessly research, compare, locate, & obtain mobility and assistive products, thereby helping them lead more independent lives. Translation services in Spanish available.

ABC Medical Supply and Equipment (408) 295-1526 San Jose www.abcmedi.com Other languages: Spanish.

El Camino Hospital (650) 988-7558 (morning only) www.elcaminohospital.org

Abledata (800) 227-0216 www.abledata.com Information on assistive technology and rehabilitation equipment; links and resources for one-stop shopping for assistive technology needs. All information received from the website, by telephone or e-mail is available free of charge.

Good Samaritan Hospital Auxiliary (408) 947-2792 www.goodsamsanjose.com Seton Medical Center (650) 991-6567 www.setonmedicalcenter.org

Access Options (408) 734-5438 San Jose www.accessoptions.com They are dedicated to increasing mobility for persons with disabilities by improving access in vehicle modifications, lowered floor mini-vans, and building modifications. Other languages: Spanish.

Vial of Life (650) 498-6312 Email requests to VialofLife@stanfordmed.org The vial is a small container with information about the individual’s primary physician, allergies or other medical conditions. The vial is placed inside the refrigerator door. A sticker is placed on the outside of the refrigerator and on the front door, alerting emergency personnel to the vial of information inside. Vials are free-ofcharge.

Advanced Health Products (650) 969-4606 Mountain View (800) 676-7976 www.vitrectomy.com Other languages: Spanish.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

30


CHAPTER 4: MEDICAL EQUIPMENT American Medical and Equipment Supply (408) 559-5800 San Jose www.americanmedicalinc.com Other languages: Spanish.

Deaf and Disabled Telecommunications Program (DDTP) English (800) 806-1191 Spanish (800) 949-5650 www.ddtp.org DDTP is a public program mandated by the California State legislature and administered by the California Public Utilities Commission (CPUC). Their purpose is to provide access to basic telephone service for Californians who have difficulty using the telephone.

Assistivetech.net (800) 726-9119 www.assistivetech.net Database of assistive technology products; electronic links to a wide variety of private and public disability services and resources.

The DDTP has two components: the California Telephone Access Program (CTAP) which distributes telecommunications equipment and services to individuals certified as having difficulty using the telephone and the California Relay Service (CRS). CRS provides specially trained operators to relay telephone conversations between people who are deaf, hard of hearing or speech-disabled and to those with whom they wish to communicate. CRS is available from two providers: AT&T and Hamilton. Both offer the full range of relay services: TTY, ASCII, Internet, Video, Speech to Speech, Voice Carryover (VCO), and Hearing Carryover (HCO).

ATNetwork (800) 390-2699 / (800) 900-0706 TTY www.atnet.org Provides information on assistive technology, funding, vendors, and service providers. Other languages: Spanish. Bay City Medical Supplies (650) 347-6606 San Mateo County www.baycitymedicalsupplies.com Benton Medical Equipment (888) 989-3338 www.BentonMedical.com Other languages: Spanish.

AT&T Relay Service http://crsrelayservices.att.com/ 1-866-461-4288 (Voice) 1-866-288-1677 (Voice – Spanish) 1-866-660-4288 (TTY) 1-866-288-1311 (TTY – Spanish)

Bischoff Medical Supplies (408) 286-6651 Santa Clara County (Spanish available) www.bischoffsmedical.com Medical equipment and supplies. Programs that can assist low-income seniors or families with minor home repairs and home accessibility. Call for eligibility. Free delivery.

Hamilton Relay Service www.hamiltonrelay.com/state_711_relay/ state.html Voice/TTY: (800) 855-7100

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

31


CHAPTER 4: MEDICAL EQUIPMENT Hometown Medical Supplies (408) 279-3955 (San Jose) www.mydmecenter.com Medical equipment and wheelchairs. Other languages: Spanish.

Kickstart Orthosis (made by Cadence Biomedical) (877) 484-7513 http://www.cadencebiomedical.com Leave the wheelchair behind with the Kickstart Orthosis - a wearable device that enables users to regain walking ability, endurance and stability and rediscover an independent and active lifestyle. Kickstart actively helps to swing the leg for each step and reinforces correct walking motions, allowing users to overcome walking limitations. See ad on page 33.

LC Technologies/Eyegaze Systems (703) 385-8800 (800) EYEGAZE (393-4293) www.eyegaze.com Eye movement initiated typing, telephone, and computer. Designs, manufactures, and distributes unobtrusive video eye tracking systems.

Scheiman Rebuild Fitness, Inc. (877) 773-6770 www.RebuildFitness.com

MAX-Ability (800) 577-1555 www.max-ability.com/ Mounted lifts, stair climbers, bathroom access, pool/spa lifts, and elevators.

Senior Wheels USA (800) 246-6010 www.seniorwheelsusa.com This program makes available power (electric) wheelchairs to senior citizens (65 and older) and the permanently disabled. To qualify, the individual must have at least Medicare Part B coverage and must have a walking impairment or be unable to self-propel a manual wheelchair in a functional manner. Other languages: Spanish.

Mobility Specialists (650) 692-8800 (Burlingame) Other languages: Spanish. ATG Rehab (650) 965-8282 www.atgrehab.com Medical equipment, manual and power wheelchairs, scooters, a full line of seating systems and mobility products. Translation services in Spanish available.

Silicon Valley Pharmacy (408) 378-5381 (Los Gatos) www.siliconvalley.pharm.com

Ergoware (888) ERGOWARE (374-6927) www.ergoware.com Ergonomic solutions for computer users.

Mobility Works (877) 275-4930 www.mobilityworks.com Adaptive equipment specialists for vehicles.

Premier Care in Bathing (866) 832-9321 www.GoToPremierBath.com Extensive range of walk-in baths. See ad on page 62.

Wheelchairs of San Mateo (650) 342-4864 (Burlingame) www.wheelchairtech.net Wheelchair assessments and conversions. Other languages: Spanish.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

32


CHAPTER 4: MEDICAL EQUIPMENT is only needed and used outside of the home. Medicare only covers durable medical equipment if you get it from a supplier enrolled in the Medicare Program. This means that the supplier has been approved by Medicare and has a Medicare supplier number. If your supplier doesn’t have a supplier number, Medicare won’t pay your claim. There is a coinsurance payment of about 20%. To find a supplier that is enrolled in the Medicare Program, visit www.medicare. gov on the web. Under “Search Tools,” select “Find Suppliers of Medical Equipment in Your Area.” You can also call 1-800-MEDICARE (1800-633-4227) for more information.

TIP: Medicare Covers Durable Medical Equipment Durable medical equipment is reusable medical equipment such as walkers, wheelchairs, or hospital beds. Anyone who has Medicare Part B can get durable medical equipment as long as the equipment is medically necessary. If you have Part B, the Original Medicare Plan covers durable medical equipment when your doctor or treating practitioner (such as a nurse practitioner, physician assistant, or clinical nurse specialist) prescribes it for you to use in your home. For Medicare to cover a power wheelchair or scooter, your doctor must state that you need it because of your medical condition. Medicare won’t cover a power wheelchair or scooter that

This information is from the Medicare publication 11045 – “Medicare Coverage of Durable Medical Equipment and Other Devices.”

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

33


CHAPTER 5: MEDICAL INSURANCE, LEGAL AND FINANCIAL ISSUES People with Disabilities Foundation (415) 931-3070 or (510) 522-PWDF (7933) www.peoplewithdisabilities.org SSI and Social Security disability advocacy; educational, public awareness seminars; training videos/audios; technical assistance emphasizing support for people with mental impairments; litigation; referral services.

Americans with Disabilities Act (ADA) and Advocacy Groups Area Agency on Aging – San Mateo County (650) 573-3900 www.co.sanmateo.ca.us/portal/site/coa In addition to its advocacy role, the agency administers a variety of federal, state, local, and private funds that support a coordinated network of community-based services for older adults and adults with disabilities in San Mateo County. Other languages: Spanish, Chinese.

Disability Rights California (800) 776-5746 (510) 267-1200 www.disabilityrightsca.org Specialize in resolving legal problems for people with disabilities, when the problem is in employment, housing, transportation, health insurance, and/or denial of access to state and local programs. Other languages: Spanish, Cantonese.

Americans with Disabilities Act Information Line U.S. Department of Justice-Civil Rights Division (800) 514-0301 (Voice) - (800) 514-0383(TDD) www.usdoj.gov/crt/ada or www.ada.gov Other languages: Spanish.

Aging and Adult Services, San Mateo County (800) 675-TIES (8437) Spanish available www.smco-cod.org Works on a variety of county-wide issues, such as accessibility of facilities, programs and services, affordable and accessible housing, transportation, legislation and advocacy, emergency preparedness and disabilities awareness.

California Commission on Aging (916) 419-7591 www.ccoa.ca.gov Non-partisan organization advocating for California seniors. Other languages: Spanish. Commission on Aging, San Mateo County (800) 675-8437 - (650) 573-3900 www.co.sanmateo.ca.us/portal/site/coa Provides the opportunity for seniors to influence and participate in the development of public policy. Other languages: Spanish.

Complaints about Hospitals and Health Care Facilities California Advocates for Nursing Home Reform (CANHR) (800) 474-1116 www.canhr.org Provides on-line information regarding infractions and violations incurred by nursing homes. Other services offered include advice on elder abuse, litigation referrals, and legal information. Other languages: Spanish.

Federal Transit Administration Office of ADA Civil Rights (888) 446-4511 www.fta.dot.gov/ada ADA line for publications, questions, and complaints about public transportation.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

34


CHAPTER 5: MEDICAL INSURANCE, LEGAL AND FINANCIAL ISSUES California Board of Psychology (916) 263-2699 www.psychboard.ca.gov Translation services in Spanish available.

Lumetra (415) 677-2000 www.lumetra.com The mediation program helps resolve quality of care complaints under Medicare. Medical reviews include patient appeals regarding hospital discharge. Other languages: Spanish.

The California Department of Consumer Affairs (800) 952-5210 www.dca.ca.gov To report fraud and obtain consumer complaint forms. Other languages: Spanish.

Medical Board of California California toll-free line: 1-800-633-2322 (916) 263-2382 www.mbc.ca.gov The Medical Board is responsible for investigating complaints and disciplining physicians and other allied health professionals who violate the law.

California Department of Health Services Licensing and Certification Program (800) 236-9747 www.cdph.ca.gov/programs/LnC/Pages/LnC. aspx License and certify health care facilities, including nursing homes, and providers. Provide information about the latest state inspection on nursing homes and assists in filing a complaint.

The Joint Commission (previously JCAHO) (800) 994-6610 complaint@jointcommission.org

Daly City District Office (650) 301-9971 - (800) 554-0353

Office of Quality Monitoring Fax: (630) 792-5636 www.jointcommission.org If you have a complaint about the quality of care at a Joint Commission accredited health care organization, you can send your complaint by mail, fax, e-mail or at their website. To find Joint Commission certified health care organizations call them directly or check their website.

San Jose District Office (408) 277-1784 - (800) 554-0348 Other languages: Spanish. Long-Term Care Ombudsman Program www.aoa.gov/AoA_programs/Elder_Rights/ ombudsman/index.aspx (800) 231-4024 (after-hours emergency line) (650) 780-5707 San Mateo County. Spanish available www.ossmc.org (408) 944-0567 Santa Clara County www.catholiccharitiesscc.org/long-term-careombudsman-program Certified staff members and volunteers investigate complaints and resolve problems on behalf of residents in nursing facilities and residential care homes for the elderly. Also provides advocacy services for residents’ rights and quality of care.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

35


CHAPTER 5: MEDICAL INSURANCE, LEGAL AND FINANCIAL ISSUES Medical Insurance, Social Security and Prescription Drugs

California State Board of Pharmacies (916) 574-7900 www.pharmacy.ca.gov Reports and investigates complaints about prescription drug availability, pharmacist misconduct or coverage by health plans. Other languages: Spanish.

TIP: Free Medications. Many pharmaceutical companies provide prescription medications free to people who cannot afford them. Program requirements differ from company to company. Most require that your physician aid in the initial request. See www.needymeds.org to see a list of medications. Requirements are detailed. There is no charge for the service.

Disability Benefits 101 www.disabilitybenefits101.org Disability Benefits 101 (DB101) helps workers, job seekers, and service providers understand the connections between work and benefits. Other languages: Spanish.

RX Help for Californians is a program that connects qualified, low-income people with discount or free prescription drugs, directly from the pharmaceutical manufacturer. Call (888) 777-7815 or visit www.rxhelpforca.org for more information.

Health Care Financing Administration (HCFA) (800) 447-8477 or (800) HHS-TIPS To report Medicare and Medi-Cal fraud, waste and abuse, call the above number. Other languages: Spanish.

The California HMO Health Center (888) 466-2219 (for information and complaints) www.hmohelp.ca.gov Assists in navigating the often-complicated HMO system and determines the best way to resolve HMO-related issues. They can help resolve problems with your health plan, including issues about medical care, prescriptions, preventive testing and mental health services. Other languages: Spanish.

Health Insurance Counseling and Advocacy Program (HICAP) (408) 296-8290 San Jose (800) 510-2020 Santa Clara County (800) 434-0222 San Mateo County Insurance specialists, not affiliated with any insurance company, provide free unbiased help to seniors and their families to help them understand and evaluate the confusing array of options including Medicare, HMOs and long-term-care. Services are provided by appointment at your local senior center and other locations such as the Health Library at Stanford Shopping Center, Social Security offices, and some hospitals. Services are provided in Spanish, Cantonese and Mandarin.

The California Patient’s Guide: “Your Rights and Remedies” www.calpatientguide.org This guide is intended to inform you of your rights to receive quality health care and what steps you can take if you encounter problems. To obtain a printed edition of the guide call (888) 466-2219 (CA Dept of Managed Health Care) or (800) 952-5210 (CA Dept of Consumer Affairs). Other languages: Spanish.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

36


CHAPTER 5: MEDICAL INSURANCE, LEGAL AND FINANCIAL ISSUES Santa Clara County

Health Plan of San Mateo (800) 750-4776 or (650) 616-0050 Member Services Dept. (650) 616-2133 CareAdvantage Unit (866) 880-0606 or (650) 616-2174 www.hpsm.org Managed care health plan for San Mateo County, includes Medi-Cal, Healthy Families, Healthy Kids, HealthWorX, CareAdvantage, and San Mateo ACE.

San Jose: (877) 962-3633 South County: (408) 758-3300

San Mateo County Atherton, Portola Valley, Redwood City and Woodside: (650) 599-3811 Belmont, Burlingame, El Granada, Foster City, Half Moon Bay, Hillsborough, La Honda, Loma Mar, Millbrae, Montara, Moss Beach, Pescadero, San Carlos, San Mateo, San Gregorio: (650) 802-6470 – (650) 596-3299

Lumetra (415) 677-2000 www.lumetra.com Lumetra helps Medicare beneficiaries and their representatives better understand their rights and privileges under the Medicare program. Other languages: Spanish

Brisbane, Colma, Daly City, and Pacifica: (650) 301-8720 – (650) 301-8440 East Palo Alto and Menlo Park: (650) 363-4175

Medi-Cal (800) 541-5555 www.medi-cal.ca.gov/ This California program pays for medical services for public assistance recipients and other individuals with low incomes. The federal Medicaid program is called Medi-Cal in California. If income is too high to qualify for Supplemental Security Income, you may be eligible for Medi-Cal if you have limited resources and cannot pay all of your medical expenses. Medi-Cal covers many optional medical procedures as well as eyeglasses, dental care, long-term nursing care, and other types of benefits not covered by Medicare. Information regarding application for Medi-Cal is available at the following Social Services Offices:

San Bruno and South San Francisco: (650) 877-5608 San Mateo County General Hospital: (650) 573-2222 www.sanmateomedicalcenter.org Medicare (800) 633-4227 or (800) MEDICARE www.medicare.gov/ Medicare is the federal health insurance program for people who are 65+ (as well as certain disabled people) and who have contributed to Social Security. People who have not made contributions may receive benefits if they pay premiums. By calling the number above you can get information on coverage, eligibility, managed care, private fee-for-services and Medicare policies, among others. Other languages: Spanish.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

37


CHAPTER 5: MEDICAL INSURANCE, LEGAL AND FINANCIAL ISSUES Senior Medi-Benefits (888) 789-4589 www.seniormedi-benefits.org Senior Medi-Benefits is a non-profit organization dedicated to serving the older adult population by providing accurate and timely information and actionable intelligence regarding long term care, Medi-Cal eligibility, and financial considerations.

Elder abuse and mistreatment can involve physical abuse, financial abuse, neglect, or emotional or psychological abuse. It may mean that someone is deprived of food, clothing, or medication. It could involve threats, isolation or even abandonment. When you see any form of abuse, you should call one of the following numbers for help.

Social Security Administration (800) 772-1213 www.ssa.gov Social Security Disability Income (SSDI) provides basic financial protection to workers and their families in the event of loss of income due to disability. You can receive SSD benefits at any age. To apply, call your local social security office. Supplemental Security Income (SSI) provides monthly financial assistance to very low income individuals age 65+, the blind and the disabled. Contact the Social Security Office for more information.

Adult Protective Services of SC County (408) 928-3860 or (800) 414-2002 www.santaclaracounty.org Other languages: Spanish. Aging and Adult Services of SM County TIES (Teamwork Insuring Elder Support) (800) 675-8437 www.smchealth.org/aas 24-hour emergency response. Staff investigates and develops care plans for dependent adults age 65 or older who are at risk of neglect, abandonment, isolation, physical, mental or fiduciary abuse. Other languages: Spanish.

Santa Clara County South San Jose: (408) 224-8200 San Jose: (866) 331-2235

Bay Area Legal Aid (408) 283-3700 www.baylegal.org Provides free legal services to low-income residents of Santa Clara County. Specializes in tenant/landlord issues, housing discrimination, public benefits, and family law. Other languages: Spanish.

San Mateo County Daly City: (650) 994-2024 San Mateo: (650) 579-4541

Center for Elderly Suicide Prevention/ The Friendship Line www.ioaging.org/services/friendline_suicide_ hotline_sf.html (800) 971-0016 - (415) 752-3778 Telephone support to depressed, isolated, abused and suicidal older adults. 24 hours per day/year-round.

Other Services for Aging Adults and People with Disabilities (elder abuse, legal and financial issues)

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

38


CHAPTER 5: MEDICAL INSURANCE, LEGAL AND FINANCIAL ISSUES Abuse Report Line (800) 414-2002

Legal Aid Society of San Mateo County (800) 381-8898 or (650) 558-0915 www.legalaidsmc.org Provides help with legal problems relating to Social Security, Supplemental Security Income (SSI), Medi-Cal, general assistance, landlord/ tenant problems, consumer and debt collection related problems, elder abuse, Durable Powers of Attorney for health care, guardianships, and disabilities. Other languages: Spanish.

Administrator/Guardian/Conservator (408) 577-2500 Senior Nutrition Program (408) 755-7600 Adult Protective Services (800) 414-2002 (24 hr report line)

Legal Aid Society of Santa Clara County (408) 998-5200 www.legalaidsociety.org Handles fair housing, housing discrimination, family law, and immigration legalization for low–income individuals. Other languages: Spanish.

In Home Supportive Services (408) 975-4899 Senior Adults Legal Assistance 408-295-5991 (Central Office) 650-969-8656 (For North County Residents) 408-847-7252 (For South County Residents) www.sala.org SALA provides free legal services and community education to Santa Clara County residents who are age 60 or older. There is no income eligibility qualification. Other language: Spanish.

Department of Aging and Adult Services Santa Clara County (408) 975-4900 www.sccgov.org Their mission is to promote a safe, dignified and independent lifestyle for seniors, dependent adults and people with disabilities through timely and responsive systems of protective services, quality nutrition and supportive in-home services. They advocate for seniors, dependent adults, and people with disabilities, as well as safeguard the property and manage the assets of conservatees and decedent estates. The Social Services Agency Department of Aging and Adult Services (DAAS) administers and oversees Adult Protective Services (APS), In Home Supportive Services (IHSS), Public Administrator Guardian Conservator (PAGC), and Senior Nutrition Program (SNP).

Seniors At Home (Jewish Family and Children’s Services) (650) 688-3070 www.seniorsathome.org Professionals help seniors pay bills, deposit checks, and process medical claims. Staff can act as trustees or conservators of estate, or on a Durable Power of Attorney as needed.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

39


CHAPTER 6: REHABILITATION De Anza College - San Jose Adaptive PE Program (408) 864-8885 www.deanza.edu/ape

INTRODUCTION When insurance runs out or the formal rehabilitation phase is over, many stroke survivors struggle to find affordable and convenient alternatives to continue on the path to recovery. Fortunately for the residents of Santa Clara and San Mateo Counties, there are many options for patients including Adaptive Physical Education Programs at local colleges, exercise and fitness programs for people with disabilities, and therapeutic community programs specifically for stroke survivors. All the details are below.

Evergreen Valley College – San Jose Adaptive PE Program (408) 270-6447 http://www.evc.edu/dsp/ Translation services in Spanish available. Foothill College – Los Altos Hills Adapted PE Program (650) 949-7777 http://www.foothill.edu/ath/ape.php Classes are also held at various facilities.

Exercise and Fitness Programs

Gavilan College – Gilroy Adaptive PE Program (408) 848-4865 www.gavilan.edu/dsps/apeweb.html Translation services in Spanish available.

TIP: YMCA Physability Program Some YMCA clubs have Physability Programs for people who have chronic disabling conditions or physical, mental or developmental disabilities. Classes include: seated aerobics, arthritis aquatics, therapeutic pilates, seated strength and stretch, therapeutic yoga, adapted Tai Chi, and other aquatics programs. Call your local YMCA for more information.

Mission College - Santa Clara Adapted PE Program (408) 855-5085 www.missioncollege.org/depts/disc/ adapted_pe.html College of San Mateo-San Mateo Adapted PE Program (650) 378-7219 www.smccd.net/accounts/csmadaptedpe/

Adaptive Physical Education (PE) Programs These programs provide exercise classes for people with post-stroke symptomology, arthritis, heart disease, back injury, and other disabilities. Fees are based on college tuition. These programs include general conditioning, individualized exercise, and resistive exercise to improve flexibility, circulation, physical fitness and increase range of motion. Water therapy is also available at some locations. Call each College for details.

West Valley College - San Jose Adapted PE Program (408) 741-2420 http://instruct.westvalley.edu/worley/ adapted.html

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

40


CHAPTER 6: REHABILITATION Cardiac Therapy Foundation The Center for Cardiac Wellness and Rehabilitation (650) 494-1300 www.cardiactherapy.org A cardiac rehabilitation program that provides education, counseling, and behavioral intervention along with supervised exercise.

O’Connor Hospital Cardiac Rehabilitation Program (408) 947-2993 The program is designed to improve functional capacity and quality of life, to reduce cardiac risk factors and help create a sense of wellbeing and optimism about the future. The program is medically supervised to help heart patients recover quickly and improve overall physical, mental and social functioning. Free weekly blood pressure screenings are available for anyone who wishes to monitor their blood pressure. Wednesdays 11 a.m. – 2 p.m. Cardiac Rehab Dept. (first floor). Drop-ins welcome.

Every Woman Health Club (650) 364-9194 (Redwood City) www.everywomanhealthclub.com Offers a program called Supervised Adult Functional Exercise (SAFE) which is a post physical therapy fitness program for women. There is a fee for the service. Other languages: Spanish.

San Jose Office of Therapeutic Services, Adaptive Sports/Fitness/Exercise (408) 369-6438 www.sanjoseca.gov\prns\therapeutics Provides recreation and leisure programs for individuals of all ages with disabilities. Programs include adapted exercise and adapted golf, among others.

Mack E. Mickelson Arthritis and Rehabilitation Center Mills-Peninsula Health Services (650) 696-4319 (San Mateo) http://www.mills-peninsula.org/aquatics/ Mills-Peninsula offers aquatic exercise in the Mack E. Mickelson Arthritis and Rehabilitation Center pool at the Health Center in San Mateo. The 24-foot x 82-foot wheelchair accessible pool is kept at a warm temperature suitable for aquatic exercise. A post-stroke class which includes low-intensity exercise to increase strength and endurance is available. Doctor’s clearance required. Other languages: Spanish.

Abilities United Aquatic Services Betty Wright Swim Center (650) 494-1480 (Palo Alto) www.abilitiesunited.org A community-based medical service provider, offering the full spectrum of physical and aquatic therapy services, including a wheelchair accessible warm water therapy pool. Self exercise is available as well as personal training sessions.

National Center for Equine Facilitated Therapy http://www.nceft.org (650) 851-2271 Provides physical and occupational therapy by licensed physical and occupational therapists using the horse as a treatment tool. Therapy is provided on a one-on-one basis. A physician referral is required.

Easter Seals Disability Services Aquatic Program (510) 835-2131 (Oakland) http://bayarea.easterseals.com Offers the largest, wheelchair accessible, warm accessible therapeutic pool and spa. Aquatic exercise classes available include post-stroke, arthritis, and swim lessons.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

41


CHAPTER 6: REHABILITATION Lytton Gardens (650) 328-3300, ext 7367 www.LyttonGardens.org Health Care Center and Outpatient Rehab Therapy.

Outpatient and Rehabilitation at Home Services TIP: Most local hospitals offer inpatient and outpatient rehabilitation services. See page vi for a complete listing of local hospitals.

O’Connor Hospital Outpatient Rehab & Sports Therapy Clinic (408) 947-2709 www.oconnorhospital.org Occupational Therapy Services OT means more than restoring lost function. Our Neuro Development trained OT’s help people learn new skills or adapt to a permanent loss so they can participate in daily living activities to their fullest extent possible. Speech-Language Pathology Our speech therapists are trained to evaluate and treat patients with acute and progressive neurological deficits. We use the latest techniques, including Vital Stim and FEES (Fiberoptic Endoscopic Evaluation of Swallow) to assess and treat factors related to speech, language, swallowing and cognitive-linguistic deficits. Physicial Therapy Services Our physical therapists are specially trained to evaluate and treat patients with acute and progressive neurological deficits. Our goal is to assist you in becoming as independent as possible through individually designed programs tailored to your needs.

Active-In Home Therapy – PT,OT,ST (650) 530-2072 www.activeinhometherapy.com San Francisco, San Mateo and Santa Clara counties. We offer comprehensive therapeutic services in the privacy and comfort of your home. We design and provide customized plans for clients in need of Physical, Occupational and Speech Therapy services. Our goal is to maximize the independence and wellness of our clients. Gentiva Rehab Without Walls (800) 403-3352 or (408) 556-0420 http://www.gentiva.com/Services/ GentivaRehabWithoutWalls/ Physical, occupational and speech rehabilitation to stroke survivors in their home environment. Good Samaritan Hospital’s Inpatient Rehabilitation Program (408) 358-5689 www.goodsamsanjose.com Good Samaritan Hospital’s Inpatient Rehabilitation Program is designed to provide comprehensive multi-disciplinary acute rehabilitation for adults. The program uses a combination of physical, occupational and speech therapy, as well as strong social support and family involvement. The program is CARF (Commission on Accreditation of Rehabilitation Facilities) accredited and is certified by CARF as a Stroke Specialty Program.

ORION Physical Therapy (408) 356-0992 Kyle Smith, MPT, ATC. See ad page 46. Rehab at Home (650) 286-4272 www.nursingandrehabathome.org Licensed Home Health Agency and MedicareCertified Agency. Physical, Occupational & Speech Therapies, Skilled Nursing & Social Services.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

42


CHAPTER 6: REHABILITATION Therapeutic Community Programs

Stanford Hospital & Clinics Outpatient NeuroRehabilitation Program (650) 725-5106, Select Option 3 Fax: (650) 725-5433 http://rehab.stanfordhospital.org Stanford Hospital and Clinics Outpatient NeuroRehabilitation Program provides comprehensive therapies for adults who are post-stroke or have other neurological disorders. This program offers occupational, physical, and speech/swallowing therapies with accomplished practitioners. The program is equipped with specialized technology such as a driving simulator and the Tibion bionic leg. Contact your physician for a referral.

The Cabrillo College Stroke Center (831) 477-3300 (Aptos) www.strokecenter.com This program is staffed by Cabrillo College licensed and educationally credentialed specialists in speech pathology and audiology, physical therapy, occupational therapy and counseling. The program includes mobility and fitness skills, speech/language skills, counseling and independent living skills. Students work in a group setting. Fee is nominal and based on community college tuition. City College of San Francisco Stroke-Acquired Brain Impairment Cognitive Retraining (415) 561-1005 - (415) 452-5481 www.ccsf.edu Students with an acquired brain injury, such as head injury or stroke, learn about basic neuroanatomy and effects of brain injury. Instruction and experience with memory strategies, visualization techniques, time management, and organizational skills are practiced in a group setting.

Senior Transitions (Gilroy) (866) 353-5337 www.transitionsrehab.com A community-based Comprehensive Outpatient Rehabilitation Facility serving South Santa Clara, San Benito, Monterey and Santa Cruz Counties. One-on-one therapy is also available. Other languages: Spanish. Therapy In Your Home – OT, PT, ST (408) 358-0201 www.therapyinyourhome.net Occupational, physical, and speech therapy services in your home in San Mateo, Santa Clara, Santa Cruz, and San Francisco Counties. We bill insurance and provide outpatient therapy in your home under Medicare Part B. We try to meet your language and other specific needs by finding just the right therapist for you.

REACH Program (650) 949-6960 (Palo Alto) www.foothill.edu/al/reach.php This program is appropriate for post-stroke individuals who have left the hospital or rehabilitation center as well as for those who have old limitations but need guidance and support in learning new activities. The program is designed to provide an essential link between outpatient rehabilitation and full community reintegration. Classes provide a small group setting and offer physical therapy, occupational therapy, speech/language therapy.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

43


CHAPTER 6: REHABILITATION Dysarthria can affect the precision of speech sounds (pronunciation), the quality and loudness of the voice, and the ability to speak at a normal rate with normal intonation.

Skills Plus (408) 423-2102 (Santa Clara) www.skillsplus.us A program to help stroke survivors and other physically challenged adults improve social, physical, and cognitive skills. The program offers classes in communication skills, mobility skills, independent living skills and caregiver classes. Skills Plus is designed to complement, not replace, the benefits of traditional rehabilitation or therapy. Fee is nominal & based on Santa Clara Adult Education fees.

Dysphagia, a swallowing disorder, may occur in up to 65 percent of stroke patients. If not identified and managed, it can lead to poor nutrition, pneumonia and increased disability. American Speech and Hearing Association (ASHA) - The Action Center (800) 638-8255 www.asha.org/ They refer callers to speech-language pathologists who specialize in aphasia. Informational packet available at no charge. Other languages: Spanish.

Occupational Therapy Clinic at San Jose State University (408) 924-3070 www.sjsu.edu/occupationaltherapy The clinic offers occupational therapy services provided on a one-to-one basis by advanced occupational therapy students under professional supervision. Occupational therapy is a health profession that helps people who have been affected by accident or injury, disease, aging, developmental delay, or psychological disability to make the necessary lifestyle changes to become more self-sufficient and independent.

Aphasia Center of California (510) 336-0112 (Oakland) www.aphasiacenter.org/ A community-based nonprofit organization offering individual and group speech-language treatment, caregiver groups, educational stroke series, the Book Club (reading and writing), and recreational classes to people affected by aphasia following stroke. All Aphasia Center treatment is conducted by highly experienced and licensed speech-language pathologists.

Speech Therapy Programs Stroke may affect the ability to process language, reading, articulating or even the ability to swallow. These conditions may improve with speech and language therapy.

Aphasia Treatment Program California State University, East Bay (510) 885-3241 http://www20.csueastbay.edu/class/ departments/commsci/clinic/atp.html The Department of Communicative Sciences and Disorders has developed an innovative and cost-efficient approach to the treatment of aphasia in an intensive rehabilitation program. A sliding fee scale is available. This program is offered on Mondays and Wednesdays from 10:30 a.m. to 4:00 p.m.

Aphasia (uh-fay’-zhuh): an impairment of the ability to use or comprehend words, usually acquired as a result of a stroke or other brain injury. Apraxia of speech (verbal apraxia) is difficulty initiating and executing voluntary movement patterns necessary to produce speech when there is no paralysis or weakness of speech muscles.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

44


CHAPTER 6: REHABILITATION Center for Communication Disorders at San Jose State University (408) 924-3688 www.sjsu.edu/cds/clinic Speech, language and hearing services are provided by graduate students with degrees in speech-language pathology. Fee is based on a sliding scale. Translation services in Spanish available.

Peninsula Associates (650) 324-0648 Menlo Park (650) 349-8717 San Mateo www.paspeech.com Peninsula Associates offers private speech therapy as well as group services at local senior community day centers and at their private offices. REACH Program (650) 949-6960 www.foothill.edu/al/reach.php

City College of San Francisco Stroke Communication Group (415) 561-1005 - (415) 452-5481 www.ccsf.edu For students experiencing receptive and/ or expressive language disorders (aphasia) resulting from a stroke or other acquired brain impairment. Class focuses on improving overall communication skill in a group setting.

Skills Plus - (408) 423-2102 www.skillsplus.us

Speech Therapy and Aphasia Group Mills-Peninsula Health Services (650) 696-4883 (San Mateo) Memory skills reinforced with structured language tasks and word-retrieval strategies. Screening required. Meets every Wednesday from 1:00 - 2:00 p.m. at Mills Health Center and it is facilitated by a Speech & Language Pathologist. There is a $5 fee.

Rehabilitation Center Outpatient Program El Camino Hospital - Los Gatos (408) 866-4059 www.elcaminohospital.org/Programs_and_ services/Rehabilitation The center has a Dysphasia Program designed to treat patients with swallowing disorders. See ad on page ii. National Aphasia Association (NAA) (800) 922-4622 www.aphasia.org A nonprofit organization that promotes public education, research, rehabilitation and support services to assist people with aphasia and their families. “The Aphasia Handbook: A Guide for Stroke and Brain Injury Survivors and Their Families,” published by the NAA, is a must have. Call them for more information.

Speech Software & Devices TIP: Recent research has shown that many individuals with aphasia and other disabilities might benefit from computer learning programs and games for children and adults. Ask your therapist! American Speech and Hearing Association (ASHA) - The Action Center (800) 638-8255 www.asha.org Some materials available in Spanish.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

45


CHAPTER 6: REHABILITATION Bungalow Speech Software (540) 951-0623 www.bungalowsoftware.com Speech and language therapy software for independent home therapy or at the clinic. Some programs are available in Spanish.

LingraphiCare America Inc. (888) 274-2742 www.aphasia.com Lingraphica, The Aphasia Company™, is a leading provider of speech-generating devices and therapy apps for people whose ability to speak or understand words has been impaired. Lingraphica provides products, services, and resources that help people with aphasia and apraxia reconnect with their families, friends, and communities.

Deaf and Disabled Telecommunications Program (DDTP) (800) 806-1191 www.ddtp.org See listing on page 31. Other languages: Spanish, Mandarin, Hmong, Vietnamese.

Prentke Romich Company (800) 262-1984 www.prentrom.com Offers a variety of devices to augment communication. Other languages: Spanish

DynaVox Mayer-Johnson (866) 396-2869 www.dynavoxtech.com Innovative, advanced communication solutions for individuals with significant speech disabilities. Other languages: Spanish. The Great Talking Box Company (877) 275-4482 (Toll free) (408) 573-7800 www.greattalkingbox.com Manufacturers of communication devices with picture-based vocabularies as well as an on-screen keyboard with text-to-speech communication. Other languages: Spanish. Laureate Learning Systems (800) 562-6801 www.LaureateLearning.com Appropriate for a wide range of people from those with severe-profound developmental disabilities to mild language-learning disabilities.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

46


CHAPTER 6: REHABILITATION R.J. Cooper & Associates (800) 752-6673 www.rjcooper.com Software and hardware for persons with special needs. Website translation in Spanish available.

Speech Remedy (650) 508-1118 www.speechremedy.com Speech Remedy provides therapeutic materials for speech-language-cognitive rehabilitation. Speech Remedy’s all inclusive SR-Cognition kit and photo card decks may help individuals post-stroke regain skills related to orientation, attention, visual scanning, sequencing, memory, receptive and expressive language, reasoning, problem solving and/or safety.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

47


CHAPTER 7: RESOURCES FOR CAREGIVERS Peninsula Volunteers Rosener House Adult Day Services (650) 326-0665 (Menlo Park) www.peninsulavolunteers.org Peninsula Volunteers Rosener House Adult Day Services offers a comprehensive program of social, health, and support services for older adults with challenges and limitations. Program goals are to enhance the participant’s quality of life and provide respite for caregivers. Call for a tour and more information. See ad on page 47.

Adult Day Centers Adult Day Centers or Adult Day Services (ADS) are community-based group programs designed to meet the needs of functionally and/or cognitively impaired adults through a variety of health, social and support services in a protective setting during daytime hours, generally five days a week. Programs may have transportation services and adjustable rates based on the participant’s ability to pay. Some accept Medi-Cal or Medicare.

South San Francisco Adult Day Care Center (650) 829-3824 Other languages: Spanish, Tagalog, Chinese.

San Mateo County Catholic Charities CYO Adult Day Support Center (650) 592-9325 (San Carlos) www.cccyo.org Other languages: Spanish.

Santa Clara County Avenidas Rose Kleiner Senior Day Health Center (650) 289-5499 (Mountain View) www.avenidas.org/care Avenidas Rose Kleiner Center encourages independence while recognizing stroke-related limitations and therapeutic needs. Enjoy a variety of activities, hot lunch and transportation to/from our custom-built facility in Mountain View. Call (650) 289-5499 to schedule your free tour today. Licensed by the State of California.

Coastside Adult Day Health Center (650) 726-5067 (Half Moon Bay) www.coastsideadultdayhealth.org Other languages: Spanish. Community Gatepath (650) 259-8500 (Burlingame) www.gatepath.org Mills-Peninsula Health Services Senior Services - Adult Day Health Program (650) 696-3660 www.mills-peninsula.org/seniors/ adulthealthcare.html Other languages: Spanish.

Day Break Respite and Caregiver Support (408) 325-5186 www.catholiccharitiesscc.org www.daybreakcares.org Center-based respite 3 days per week and inhome respite 4 hours per week. They provide volunteer-based escorted transportation, information regarding community resources, behavioral issues, financial assistance, and caregiver training and support groups. For residents of Santa Clara County 60 years of age and older. Sliding scale fees. Other languages: Spanish, Tagalog

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

48


CHAPTER 7: RESOURCES FOR CAREGIVERS San Jose Adult Day Health Care Department of Veterans Affairs (408) 363-3001 (San Jose) Provides medical supervision, exercise programs, social and recreational activities for frail, elderly, and disabled veterans.

Self-Help for the Elderly (415) 677-7600 www.selfhelpelderly.org Focus on Asian Seniors. Sunnyvale Senior Day Services (408) 746-3066

Golden Castle Adult Day Health Center (650) 964-1964 - Palo Alto

Assisted Living and Skilled Nursing Facilities

Grace Adult Day Health Care (408) 731-8686 (Sunnyvale) www.graceadultcare.com

Stroke is a life-changing event, and stroke aftermath may require the families to look for alternative housing options.

Japanese American Community Senior Services - (YU-AI-Kai) (408) 294-2505 - San Jose www.yuaikai.org

Assisted living facilities provide help with daily living activities such as eating, housekeeping, dressing, and bathing. Assisted living facilities do not offer heavy medical and nursing care.

Live Oak Adult Day Services (408) 971-9363 (San Jose) www.liveoakadultdaycare.org Day care with recreational and social activities for frail, disabled seniors and respite for caregivers. Caregivers’ support groups, community resources, and case management. Sliding scale fee. Locations: Cupertino, Los Gatos, Gilroy and San Jose. Other languages: Spanish.

Continuing Care Retirement Communities: Licensed and certified to provide a range of services. Intermediate Care Facility: health care facilities, part of a hospital or skilled nursing facility which provides services and inpatient care. Skilled Nursing Facility: a nursing home provides meals, skilled nursing, rehabilitation, medical services, personal care, and recreation in a supervised and protected setting.

Mexican-American Community Services Agency - MACSA Adult Day Health Care Center (408) 579-6100 www.macsa.org Provides physical, occupational and speech therapy, medical supervision, social and recreational activities to frail elderly. Transportation provided to and from site. Accepts Medi-Cal. Sliding scale fees. Other languages: Spanish.

LeadingAge (202) 783-2242 www.leadingage.org This national organization consists of more than 5,000 not-for-profit nursing homes, continuing care retirement communities, senior housing and assisted living facilities, and community services.

Saratoga Adult Day Care (408) 868-1262 www.sascc.org

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

49


CHAPTER 7: RESOURCES FOR CAREGIVERS American Association of Retired Persons (AARP) (888) 687-2277 or (202) 434-2277 www.aarp.org Website provides information relevant to the selection of assisted living facilities, nursing homes and other home options, such as how to determine if consumers have filed complaints; how to check on licensing; how the state regulates and licenses assisted living facilities. Other languages: Spanish.

California Advocates for Nursing Home Reform (CANHR) (800) 474-1116 www.canhr.org Provides a variety of consumer information, including pre-placement counseling, Medi-Cal, residents’ rights, and quality information on all 1,400 nursing homes in California. Online information regarding infractions and violations on many of the nursing homes. California Registry (800) 777-7575 www.calregistry.com A state licensed free referral agency that provides senior care housing information, counseling, referrals and facility evaluations free of charge. No apartments or low income.

Avenidas Housing Information Services (650) 289-5400 www.avenidas.org Certified information and referral specialists are available to consult on housing options for low and moderate cost housing for older adults, and to provide counseling on independent and assisted living facilities. They also have a comprehensive Housing Guide for Older Adults.

Care Source Registry (408) 781-0651 www.caresourceregistry.com Represent many quality elder living communities in San Jose and the San Francisco Bay Area. Services are free of charge .

Assisted Living Federation of America (ALFA) (703) 894-1805 www.alfa.org This is a national not-for-profit membership organization that gives contact information to families looking for assisted-living facilities for a loved one.

Catholic Charities of Santa Clara County (408) 325-5277 www.catholiccharitiesscc.org Helps to locate shared rental housing, with another occupant in a single family home. Other languages: Spanish.

Baker Senior Referrals (408) 738-1178 Sunnyvale (650) 343-2156 San Mateo County (650) 941-2740 Palo Alto, Los Altos www.bakerregistry.com Agency matches each senior to an appropriate level of care based on the individual’s needs, activity level and financial requirements. They evaluate and visit residential care facilities including assisted living, board and care homes and specialized dementia units in San Mateo and Santa Clara counties. Services are free.

Consumer Consortium on Assisted Living (732) 212-9036 www.ccal.org CCAL advocate for the safety, quality care and protection of assisted living residents, and educate consumers to help them make appropriate, informed decisions

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

50


CHAPTER 7: RESOURCES FOR CAREGIVERS Department of Health and Human Services Division of Public Services (650) 573-2582 - San Mateo County Provides social workers who assist County residents, regardless of income, in planning or reaching decisions about convalescent care.

Joint Commission (630) 792-5000 www.jointcommission.org Accredits hospitals, homecare facilities, ambulatory care facilities, long-term care facilities, laboratories, and certifications for stroke. They will provide verification that a specific facility is accredited.

Health Care Financing Administration (800) 633-4227 - (800) Medicare Offers an excellent guide to choosing a nursing home. Publication No.HCVA-02174-B Other languages: Spanish.

Lumetra (415) 677-2000 www.lumetra.com Online resource to find nursing homes and home health agencies that work with Medicare. Other languages: Spanish.

HIPP Housing (650) 348-6660 www.hiphousing.org The agency offers programs such as home sharing and self-sufficiency for families with children as well as subsidized and below-market housing in San Mateo County.

Medicare (800) 633-4227 or (800) MEDICARE www.medicare.gov Can help you find nursing homes and home health agencies that work with Medicare. Other languages: Spanish.

Independent Living Centers The independent living centers offer information on housing referrals among other services. See complete listing on pages 27 and 28.

Senior Assisted Living Communities Canyon House – (650) 322-2022 Crescent Village – (408) 730-4004

Silicon Valley Independent Living Center (SVILC) (408) 894-9041 www.svilc.org Translation services in Spanish available.

Senior Housing Solutions (408) 416-0271 www.srhousingsolutions.org Locates shared rental housing for adults, by matching people willing to share their homes with those seeking a place to live. Candidates must be capable of living independently. The service fee is sliding scale based on income.

Center for Independence of Disabled San Mateo County (650) 645-1780 www.cidsanmateo.org

Sunnyside Gardens Assisted Living (408) 730-4070 www.sunnysidegardensassistedliving.com “Where everyday we focus on the joys of living”. Sunnyvale’s Premiere Boutique Community since 1978. Assisted Living, Wellness Program, Memory Care, Respite.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

51


CHAPTER 7: RESOURCES FOR CAREGIVERS Care/Case Management, Information and Referrals

Aging and Adult Services Department Santa Clara County (408) 975-4900 www.sccgov.org/daas Promotes a safe, dignified and independent lifestyle for seniors, dependent adults and people with disabilities through timely and responsive systems of protective services, quality nutrition and supportive in-home services.

Respite is support and relief for caregivers who are providing care for a frail senior or disabled person. Respite allows them to have a break or vacation by providing care for their patient while they are away.

California Paid Family Leave Program

Asian Americans for Community Involvement (408) 975-2730 www.aaci.org Provides multiple services that target lowincome monolingual Asian Pacific seniors such as: translation/interpretation; nutritional hot lunches; and case management. Other languages: Chinese, Korean, Vietnamese.

Workers who participate in the State Disability Insurance (SDI) Program are entitled to a maximum of six weeks of partial pay each year while taking time off from work to: * Bond with a newborn baby, adopted or foster child (both parents) * Care for a seriously ill parent, child, spouse or registered domestic partner

Avenidas Family Caregiver Services (650) 289-5400 www.avenidas.org A non-profit agency that helps Mid-Peninsula seniors live well, learn and maintain their independence. Services include geriatric care management, senior day health care center, support groups, health library, transportation, and more.

Most workers will receive approximately 55% of their pre-tax weekly wage, up to a maximum of $882, while on leave. The Paid Family Leave Program is administered by the State of California Employment Development Department (EDD), a state agency, not the employer.

Bay Area Geriatric Care Managers (650) 654-1510 www.bayareagcm.com Your professional stand-in-relative - advocates for older adults. Certified care managers sort out complicated social/emotional/safety/ healthcare issues. They track medications, arrange and accompany to doctors’ appointments, give guidance in choosing the “right” caregiver match, monitor caregiver effectiveness, and communicate with family members.

For more information please visit www. paidfamilyleave.org Aging and Adult Services of San Mateo County - 24-Hour Response Team (800) 675-8437 (TIES) www.smchealth.org/TIES Provides information, in-home services, counseling, and a wide range of services to keep seniors, people with disabilities and dependent adults living safely and as independently as possible in the community.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

52


CHAPTER 7: RESOURCES FOR CAREGIVERS C.A.L.L. Primrose Center (650) 342-2255 - San Carlos www.callprimrose.org Offers a drop-in center to provide information and referral services; emergency aid including food, bus tickets, rental assistance; information and advocacy on the social service system; and loans of medical equipment. They serve MidPeninsula residents.

Community Outreach at O’Connor Hospital (408) 947-2664 www.oconnorhospital.org Referral services for transportation, meals, help at home, home emergency response systems, and adaptive and safety devices for the home. There is no charge for the service. Translation services in Spanish available. Community Services Agency Serving Los Altos, Los Altos Hills, and Mountain View (650) 968-0836 www.csacares.org Geriatric case managers provide in-home assessments, counseling and referrals to community resources. Community volunteers provide escorted transportation and shopping assistance. Translation services in Spanish available.

Catholic Charities of Santa Clara County (408) 468-0100 www.catholiccharitiesscc.org Offers a variety of human services to senior citizens, low-income individuals and immigrants in Santa Clara County, regardless of religion. The Independent Aging Program (IAP) provides professional assessment care planning, service linkages and monitoring, family consultation services, in-home respite services, escorted transportation, assistance with correspondence, bill paying and other direct services. Other programs include the Long Term Care Ombudsman Program, mental health programs, The Handicapables Program, and the Senior Nutrition Program.

Council on Aging Silicon Valley (408) 296-8290 or (800) 510-2020 www.coasiliconvalley.org An independent non-profit organization and the state-designated Area Agency on Aging (AAA) for Santa Clara County. The following are listings of the many services, programs and opportunities they provide: information and assistance, senior services directory, health insurance counseling, senior employment, legal services, Meals on Wheels, CareCall, emergency housing, adult day care, respite services, transportation, in-home care registry, and care management. The Council on Aging’s care management services include health and psychosocial assessments, care planning service arrangements, and care monitoring.

Catholic Charities of San Mateo County (650) 592-9325 www.cccyo.org Programs include: Adult Day Centers; support for clients searching for in-home support; Geriatric Care Management; Counseling; and Meals on Wheels. The Geriatric Care Management program provides care solutions for a range of situations such as coordination of care, in-home assessments, advocacy for elders throughout the medical community, design of individualized care plans, and support and education for the family members and caregivers.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

53


CHAPTER 7: RESOURCES FOR CAREGIVERS Eldercare Locator (800) 677-1116 www.eldercare.gov A public service of the U.S. Administration on Aging. It connects older Americans and their caregivers with sources of information on senior services. Other languages: Spanish.

Heart of the Valley - Services for Seniors (408) 241-1571 www.servicesforseniors.org Services for seniors 59 and older residing in Santa Clara, West San Jose, Cupertino, Saratoga, Sunnyvale, Los Gatos, Campbell, and Monte Sereno. Their services include: In-Home services (light housekeeping, minor home repairs, gardening, shopping and errand services, etc.); escorted transportation; information & referral. No personal care.

Family Caregiver Alliance (800) 445-8106 or (415) 434-3388 www.caregiver.org Support services, information and education for families throughout the Bay Area providing care to those with chronic health conditions. Services include: care planning consultation, legal consultation, respite assistance, counseling, classes, online support groups, and workshops for family caregivers and professionals. All services are free or low-cost. Services are available in Spanish and Chinese.

HELPLINK San Francisco and Santa Clara counties: Dial 2-1-1 San Mateo County: (415) 808-HELP or (415) 808-4357 – (800) 273-6222 www.211bayarea.org For every day needs and in times of disaster, dial 2-1-1 in San Francisco and Santa Clara Counties to access hundreds of community services, 24 hours per day, 7 days per week. Other languages: over 150 languages.

Health Resource Center El Camino Hospital (650) 940-7210 www.elcaminohospital.org/Patient_Services A free professional service designed to help in planning for the care of an aging parent, family member or spouse facing life changes.

In Home Supportive Services (IHSS) (650) 573-3900 San Mateo County (408) 975-4899 Santa Clara County www.aging.ca.gov This program will help pay for services provided to seniors and the disabled so that they can remain in their own homes. To be eligible, you must be over 65 years of age, or disabled, or blind and meet all the SSI/SSP disability criteria. You must also be enrolled in Medi-Cal. Types of services which can be authorized through IHSS are housecleaning, meal preparation, laundry, grocery shopping, personal care services (e.g. bowel and bladder care, bathing, grooming and paramedical services), accompaniment to medical appointments, and protective supervision for the mentally impaired. Assistance with locating a provider is provided by the Public Authority Registry. Translation services in Spanish available.

Friendly Visitor Program (408) 325-5151 http://www.ccsj.org/services/older_adults/ friendly_visitor/main.html Volunteer visitors are brought together for a one-on-one relationship with isolated seniors at long-term care facilities in Santa Clara County who have no family or friends to visit them.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

54


CHAPTER 7: RESOURCES FOR CAREGIVERS Indian Health Center of Santa Clara Valley (408) 445-3400 www.indianhealthcenter.org Provides case management, assessment, evaluation, and crisis intervention for American Indians.

Love In The Name of Christ (Love INC) (408) 723-9223 www.loveincsantaclaracounty.org A benevolence ministry of Santa Clara County churches. Volunteers are available to help clients with needs such as: rides to doctor’s appointments, occasional grocery shopping, yard clean-up, minor home and auto repairs, friendly visitors, etc. All services are free.

Institute on Aging (IOA) (415) 750-4111 www.ioaging.org IOA specializes in helping seniors stay safe and independent at home by providing adult day care, home care, dementia care, money management, counseling services, caregiver support, and much more. Serves seniors in San Francisco, Marin, and the Peninsula.

National Association of Geriatric Care Managers (520) 881-8008 www.caremanager.org A Professional Geriatric Care Manager (PGCM) is a health and human services specialist who helps families who are caring for older relatives. The PGCM is trained and experienced in any of several fields related to long-term care, including, but not limited to nursing, gerontology, social work, or psychology, with a specialized focus on issues related to aging and elder care. They will help find managers near you.

Japanese American Senior Services Agency - (YU-AI-Kai) (408) 294-2505 www.yuaikai.org Provides social services, limited bilingual escorted medical transportation, recreational classes and activities, senior nutrition program and adult day care. Caregiver support and volunteer caring programs. Other languages: Japanese and Mandarin.

Older Adult and Family Center Stanford University (800) 943-4333 www.med.stanford.edu/oafc Free programs for those caring for a family member with memory loss.

Jewish Family Service of Silicon Valley (408) 556-0600 www.jfssv.org Provides social services, case management, caregiver support groups, home care referrals, senior outreach and wellness programs, friendly visitors, and social-cultural activities regardless of race, religion, or ability to pay.

Stanford Caregiver Support Program (650) 725-4137 Trained volunteer visitors from the community can provide 1-2 hours of weekly caregiver relief, run errands, or provide transportation to medical appointments. The service is free, but donations are welcome. Provision of the service depends on volunteer availability.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

55


CHAPTER 7: RESOURCES FOR CAREGIVERS San Jose Office on Aging (408) 979-7906 http://www.sanjoseca.gov/prns/officeonaging/ companionprogram.asp Services include recreation, education, information, referrals, and volunteer placements. Their Senior Companion Program recruits and trains people 60+ to be companions to other elders who are homebound and who live in the city of San Jose. These senior companions offer services such as companionship and assistance with light meal preparation, light housekeeping, or letter writing.

Senior Focus and Wellness Center Mills-Peninsula Health Services (800) 696-3660 www.mills-peninsula.org Care management, adult day health care, specialized dementia day care program, information and referral, health education, health screenings, Robert C. Siegel library, Caregiver University education program, support groups for patients and caregivers. Seniors At Home (650) 688-3000 www.seniorsathome.org Provides caregivers and skilled nursing care to enable older adults to live in the comfort of their own homes. They also offer Care Management, counseling, palliative and end of life care, money management, conservatorship, volunteer services, spiritual care, meals and cleaning services.

San Mateo County Network of Care www.sanmateo.networkofcare.org/aging/home/ index.cfm This website is a resource for individuals, families, caregivers and agencies seeking information about issues and services for older adults and people with disabilities. Self-Help for the Elderly (415) 677-7600 www.selfhelpelderly.org A multi-service organization providing programs along a wellness continuum ranging from employment/training and social activities for those who are more independent to in-home assistance and residential board and care for those who are more frail in San Francisco, San Mateo and Santa Clara counties. Emphasis on Asian seniors.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

56


CHAPTER 7: RESOURCES FOR CAREGIVERS Senior New Ways (650) 468-5456 www.seniornewways.org It is a multi-faith, non-profit organization providing programs, activities, resource referral, consultation, and support to older persons and their adult children and caregivers.

Senior Care Connection (408) 261-2896 www.seniorcareconnection.com A multi-disciplinary team providing customized solutions to senior care and housing needs: geriatric care management, information, referrals, facility placement assistance, caregiver placement, transportation and advocacy.

SAFE (Stroke Awareness for Everyone) www.strokesafe.org At this website you can download a Stroke Caregivers Handbook for free!

Senior Coastsiders www.seniorcoastsiders.org (650) 726-9056 Counseling, family support, home visits, volunteer services, home rehabilitation for elderly and disabled people, peer counseling, telephone reassurance on the coast side of San Mateo County.

St. James Associates (650) 245-5285 www.stjamesassociates.net See ad on page 56. Stroke Network www.strokenetwork.org An on-line stroke support organization. You can download a Stroke Caregivers Handbook for free!

Senior and Community Centers Most senior and community centers offer all or some of the following support services. Contact your local senior center for specific information. • Community resources guidance. • Care management assistance by qualified professionals. • Health screenings and education • Health insurance counseling and tax assistance. • Housing counseling. • Home Repair and adaptations for disability. • Loan closets of medical equipment such as walkers and wheelchairs. • Nutrition programs: low cost or free lunches. • Adult day care centers (respite services). • Support groups. • Transportation services. • Classes and exercise programs. • Social, recreational and travel opportunities.

Pacific Stroke Association www.psastroke.com – support@psastroke.org – (650) 565-8485

57


CHAPTER 7: RESOURCES FOR CAREGIVERS

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

58


CHAPTER 7: RESOURCES FOR CAREGIVERS Council on Aging Silicon Valley In Home Services (800) 510-2020 or (408) 296-8290 www.coasiliconvalley.com Helps individuals arrange for in-home services and coordinate their delivery. Services may include, but are not limited to, meal preparation, shopping, personal care, cleaning and laundry. In Home Service recipients may receive care from Independent Providers, or from a registry of individuals who have been interviewed and screened by service coordinators. For Santa Clara County only. Other languages: Spanish.

Home Healthcare Agencies TIP: There are a variety of services that can be provided in your home including cleaning, shopping, meal preparation, personal care attendants, nursing services, physical, speech and occupational therapy as well as social services. Rehabilitation services at home may be covered by Medicare or Medi-Cal. Most agencies accept private pay or insurance. Below you will see a list of local not-for-profit agencies that provide home care services and some advertisers whose listings are shaded. Verify whether the worker is actually an employee of the agency and if the worker is covered by the agency’s Workers Compensation policy. In this link http://www. seniorsathome.org/resources you can find a good guide about how to hire home care.

Home Based Primary Care Veterans Affairs Palo Alto Health Care System (650) 493-5000 ext. 6HOME (64663) Provides comprehensive primary health care and case management to homebound veterans. Services provided include short-term urgent care, long-term care, terminal care and care to facilitate transition from institutional to independent living.

For rehabilitation at home services you can see Chapter 6. In Chapter 3, Independent Living, you will also find information about other services provided at home. For certification and complaints about healthcare agencies you can see Chapter 5.

Center for Independence of Disabled San Mateo County (650) 645-1780 TTY (650) 522-9313 www.cidsanmateo.org CID supplies consumers with disabilities a list of attendants that they can use to choose inhome workers for themselves. We also offer suggestions on how to choose attendants and how to supervise them.

Catholic Charities of San Mateo County (650) 592-9325 www.cccyo.org Referral to a comprehensive range of highly trained and credentialed caregivers, including Certified Nursing Assistants, Certified Home Health Aides, homemakers, live-ins and personal care attendants.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

59


CHAPTER 7: RESOURCES FOR CAREGIVERS Matched CareGivers (650) 839-2273 (408) 286-2339 Toll free (888) 340-2273 www.matchedcaregivers.com Hourly and live-in services available. See ad below.

Home Instead Senior Care (650) 691-9671 www.homeinstead.com/mountainviewca Home Instead Senior Care can help with compassionate, home care services delivered right in your loved one’s home. Whether a few hours a day or long-term care 24 hours a day, a caregiver can assist you. All caregivers are screened, trained, insured/bonded, matched to your preferences, professional and reliable. See ad on page 61.

Older Adults Care Management (866) 926-6226 or (650) 329-1411 www.oacm.org OACM is a licensed home health agency providing high quality home care, personal care assistance, case management, and consultation. It is a division of the Institute on Aging.

Home Care Assistance (650) 462-6900 www.HomeCareAssistance.com See ad on page 58.

Pathways (888) 755-7855 (Home Care) (888) 600-2273 (Private duty) www.pathwayshealth.org A not-for-profit, state licensed home health agency providing services and support to successfully manage care at home including nursing, rehabilitation and palliative care. Serves the Bay Area. Other languages: Spanish.

In Home Supportive Services (IHSS) (650) 573-3900 San Mateo County (408) 975-4899 Santa Clara County www.aging.ca.gov Other languages: Spanish.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

60


CHAPTER 7: RESOURCES FOR CAREGIVERS Project S A F E The Secure Alternatives For Elders Registry (408) 357-7452 www.jfssv.org Operated by the Jewish Family Services of Silicon Valley for the purpose of matching their clients who are in need of assistance in the home, with people in the community who can provide these services.

Silicon Valley Independent Living Center Santa Clara County (408) 894-9041 - Spanish available. TTY: (408) 894-9012 www.svilc.org Provides a registry of potential attendants and caregivers for home care, personal care, companionship, and respite care. See main listing on pages 27 and 28.

Santa Clara Home Care Registry Santa Clara Senior Center (408) 615-3170 www.santaclaraca.gov If you or your family lives or works in the city of Santa Clara, the Senior Center can provide the names of workers who can help with personal care, light house-keeping, meal preparation, companionship, shopping, and transportation.

Visiting Angels (408) 735-0977 www.carebyangels.com At Visiting Angels we know it isn’t easy to invite a stranger into your house to provide non-medical homecare; that’s why we hire only experienced caregivers and have a personalized screening system that is the best in the industry. You’ll get to interview and select your own caregiver from our experienced staff. We provide hourly or live-in care, hygiene assistance, meal preparation, light housekeeping, errands, companionship, temporary or long-term, overnight shifts and respite for family caregivers. 24/7 emergency response system. See ad on page 62. We Care Personal Services, Inc. (408) 556-0330 www.wecarepersonalservices.org A non-profit home care agency that provides care assistance to the elderly in the privacy of their homes. Other languages: Spanish.

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

61


CHAPTER 7: RESOURCES FOR CAREGIVERS

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

62


INDEX A A Handicapped Help Line • 14 AAA Roadwise Review • 20 AARP • 50 ABC Medical Supply and Equipment • 30 Abilities United Aquaatic Services • 41 Able Project • 30 Abledata • 30 Abuse Report Line • 39 Access Options • 30 Access to Travel • 24 Access-Able Travel Source • 24 Active In-home Therapy • 42 Adaptive Driving Aid • 21 Adaptive Driving Evaluators and Trainers • 21 Adaptive Driving Services • 21 Adaptive Physical Education • 40 Administrator/Guardian/Conservator • 39 ADT Companion Services • 29 Adult Day Centers • 48 Adult Protective Services of Santa Clara County • 38, 39 Advanced Health Products • 30 Aging and Adult Services Department of Santa Clara County • 52 Aging and Adult Services of San Mateo County • 1, 34, 38, 52 American Association of People with Disabilities • 8 American Medical Alert Corporation • 29 American Medical and Equipment Supply • 31 American Occupational Therapy Association • 9 American Physical Therapy Association • 8 American Recreational Therapy Association • 8 American Speech and Hearing Association • 44, 45 American Speech-Language-Hearing Association • 9 American Stroke Association • 4, 9, 12 Americans with Disabilities Act • 14, 22, 34 Apex Driving School • 21 Aphasia Center of California • 4, 44 Aphasia Handbook • 12 Aphasia Hope Foundation • 14 Aphasia Treatment Program California State University • 4, 44 Arbor Free Clinic • 6 Area Agency on Aging • 34 Asian Americans for Community Involvement • 1, 6, 52 Assisted Living • 49 Assisted Living Federation of America (ALFA) • 50 Assistivetech.net • 31 Association for Driver Rehabilitation Specialists • 21 ATG Rehab • 32 AT&T Relay Service • 31 ATNetwork • 31 Avenidas • 7, 17, 23, 48, 50, 52 Avenidas Rose Kleiner Center • 48 AXIS Dance Company • 25 B Baker Senior Referrals • 50

Bay Area Geriatric Care Managers (GCM) • 3, 17, 52, 57 Bay Area Legal Aid • 38\ Bay City Medical Supplies • 31 Benton Medical Equipment • 31 Betty Wright Swim Center • 41 Bischoff Medical Supplies • 31 Books • 12 Books Aloud, Inc. • 11, 25 Brain Injury Association of America • 9 Bungalow Speech Software • 46 C Cabrillo College • 43 Cabrillo College Stroke Center • 43 Cadence Biomedical • 32, 33 California Advocates for Nursing Home Reform • 34, 50 California Board of Occupational Therapy • 21 California Board of Psychology • 35 California Commission on Aging • 34 California Department of Consumer Affairs • 35 California Department of Health Services • 35 California Department of Parks and Recreation • 24 California Department of Rehabilitation • 27 California HMO Health Center • 36 California Paid Family Leave • 52 California Patient’s Guide • 36 California Registry • 50 California State Board of Pharmacies • 36 California State University, East Bay • 4 Cañada College • 25 Canyon House • 51 Cardiac Therapy Foundation • 41 Care Source Registry • 50 CareCall • 29 Case Management • 52 Catholic Charities Caregiver Support • 23 Catholic Charities Daybreak Respite • 23 Catholic Charities CYO-Adult Day Support Center • 48 Catholic Charities of San Mateo County • 1, 53, 59 Catholic Charities of Santa Clara County • 1, 4, 50, 53 Celebration Chef Services • 17 Center for Communication Disorders at San Jose State University • 45 Center for Elderly Suicide Prevention • 2, 38 Center for Independence of the Disabled • 17, 28, 51, 59 Center for International Rehabilitation Research Information and Exchange (CIRRIE) • 14 Center for Living with Dying • 2 Chai Health Center • 6 City College of San Francisco • 25, 43, 45 City College of San Francisco Stroke/Communication Group • 43, 45 Clinical Trials • 14 Coastside Adult Day Health Center • 48 Colleges • 25 College of San Mateo • 26, 40 Commission on Aging, San Mateo County • 34

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

63


INDEX G

Community Gatepath Senior Program • 48 Community Health Library of Los Gatos • 7 Community Service Agency of Mountain View and Los Altos • 17, 23, 53 Community Services Agency • 17 Community Solutions • 1 Complaints About Hospitals • 34 Consumer Consortium on Assisted Living • 50 Council on Aging Silicon Valley • 12, 14, 18, 29, 53, 59 Counseling Services • 1 Crescent Village • 51 D

Gardner Family Care Corporation • 2 Gavilan College • 26, 40 Generation S • 15 Gentiva Rehab Without Walls • 42 Golden Castle Adult Day Health Center • 49 Good Samaritan Hospital • 10, 29, 30, 42 Good Samaritan Hospital’s Inpatient Rehabilitation Program • 42 Government Office on Disability • 15 Grace Adult Day Health Care • 49 H Hamilton Relay Service • 31 Handicapables Program • 4 Health Care Financing Administration • 36, 51 Health Centers and Clinics • 6 Health Insurance Counseling and Advocacy Program • 36 Health Libraries • 7 Health Library and Resource Center at El Camino Hospital • 7 Health Plan of San Mateo • 37 Health Trust • 18 Heart of the Valley • 17, 24, 54 Help at Home Directory • 12 HELPLINK • 54 HelpSCC.org • 15 HICAP • 15 HIPP • 51 Home Care Assistance • 58, 60 Home Health Care Agencies • 59 Home Healthcare • 59 Home Instead Senior Care • 60, 61 Hometown Medical Supplies • 32 Hospitals • 9 Housing Adaptation and Maintenance • 17 I

Daly City Senior/Adult Services • 18 Day Break Respite and Caregiver Support Services • 4, 48 De Anza College • 26, 40 Deaf and Disabled Telecommunications Program • 31, 46 Department of Aging and Adult Services • 39 Department of Health and Human Services • 51 Department of Rehabilitation • 14 Department of Veterans Affairs Palo Alto Health Care System • 9, 11 Department of Veterans Affairs San Jose Adult Day-Health Care • 49 Different Strokes • 14 Disability Benefits 101 • 14, 36 Disability Resources, INC • 14 Disability Rights • 34 DMV • 19, 20 DMV Drivers Safety Offices • 20 Doelger Senior Center • 18 Driver Rehab Services • 21 DynaVox Mayer-Johnson • 46 E Easter Seals Disability Services • 41 El Camino Hospital • ii, 7, 10, 24, 29, 30, 45, 54 Elder Abuse • 38 Eldercare Locator • 15, 54 Emergency Psychiatric Services • 1 Environmental Traveling Companions (ETC) • 24 Ergoware • 32 Evergreen Valley College • 26, 40 Every Woman Health Club • 41 Exercise & Fitness • 40 F

Identification Placard for the Disabled • 20 In Home Supportive Services • 39, 54, 60 Independent Living Centers • 27, 51 Indian Health Center of Santa Clara Valley • 7, 55 Institute for Career Development • 28 Institute on Aging • 55 International Disability Exchanges and Studies • 15 Internet Stroke Center • 15 J

Family and Children Services • 1 Family Caregiver Alliance • 4, 54 Family Service Agency of San Mateo County • 27 Family Therapy Program at the Palo Alto Veterans Hospital • 2 Federal Transit Administration • 34 Foothill College • 26, 40 For Those In Pain Inc. • 2 Forty-Niner Driving Traffic School • 21 Friendly Visitor Program • 54 Friends in Service to Humanity (FISH) • 24

Japanese American Community Senior Services • 24, 49, 55 Jewish Family & Children’s Services of the Peninsula • 17, 39 Jewish Family Service of Silicon Valley • 55 Job Accommodation Network • 28 Joint Commission • 35, 51 K Kaiser Permanente • 10, 11 Kara Grief • 2 Kickstart Orthosis (by Cadence) • 32, 33 Kurt and Barbara Gronowski Clinic • 2

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

64


INDEX L

New Freedom Initiative • 16 New Mobility • 25

La Esperanza Vive • 3 Latino Senior Peer Counseling • 3 Laureate Learning Systems • 46 LC Technologies/Eyegaze Systems • 32 Leading Age • 49 Learning Ally • 16 Legal Aid Society of San Mateo County • 39 Legal Aid Society of Santa Clara County • 39 Life Alert • 29 Life on Wheels • 25 LifeFone • 29 Lifeline Services • 29 LingraphiCare America Inc. • 46 Live Oak Adult Day Services • 49 Long Term Care Ombudsman Program • 35 Love In The Name of Christ • 24, 55 Lumetra • 35, 37, 51 Lytton Gardens • 42 M

O O’Connor Hospital • 3, 10, 41, 42, 53 OASIS Program • 1 Office of ADA Civil Rights • 34 Office of Quality Monitoring • 35 Older Adult and Family Center • 55 Older Adults Care Management • 60 One-Handed Woodwinds Program • 17 Online Aphasia Forum • 5 Online Newsletter • 12 Online Stroke Support Groups • 5 Operation – C.A.R.E. • 30\Operation Brown Bag • 18 ORION Physical Therapy • 42, 46 Outreach Paratransit • 22 Outpatient & Rehabilitation at Home • 42 P

Mack E. Mickelson Arthritis and Rehabilitation Center • 41 Matched Caregivers • 60 MAX-Ability • 32 Meals and Nutrition • 17 Meals on Wheels • 18 Medic Alert Foundation International • 29 Medi-Cal • 37 Medical Alarm Services • 29 Medical Board of California • 35 Medical Equipment • 30 Medical Insurance • 36 Medicare • 33, 37, 51 Mental Health Services of San Mateo County • 2 Mental Health Services of Santa Clara County • 3 Mexican-American Community Services Agency • 49 Mild Hyperbaric Therapy • 6 Mills-Peninsula Health Services • 11, 21, 29, 41, 45, 48, 56 Mission College • 26, 40 Mobility Specialists • 32 Mobility Works • 32 Motayar, Naz, Ph.D. • 3 MV Transportation • 23 N National Alliance on Mental Illness • 2 National Aphasia Association • 9, 45 National Association of Geriatric Care Managers • 55 National Center for Equine Facilitated Therapy • 41 National Center for the Dissemination of Disability Research (NCDDR) • 15 National Council On Aging • 15 National Institute of Neurological Disorders and Stroke • 9 National Rehabilitation Information Center • 15 National Resource Center for Parents with Disabilities • 15 National Stroke Association • 4, 9, 12 National Stroke Group Registry • 4 Need-A-Ride • 24

Pacific Free Clinic • 7 Pacific Gas & Electric Company • 17 Pacific Graduate School of Psychology • 2 Pacific Stroke Association • vii, 5, 12 Palo Alto City Library • 11 Palo Alto Medical Foundation • 7 Palo Alto Veterans Hospital • 2 Paratransit Service • 22 Pathways • 3, 60 Pediatric Stroke • 16 Peninsula Associates • 45 Pacific Stroke Association • 5, 12 Peninsula Volunteers Rosener House • 47, 48 People with Disabilities Foundation • 34 Phillips Lifeline • 29 Picturing Aphasia • 16 Placard for the Disabled • 20 Planetree Health Information Center • 8 Premier Care in Bathing • 32, 62 Prentke Romich Company • 46 Prescription Drugs • 36 Primary Stroke Centers • vi Primrose Center • 53 Project Hired • 28 Project S A F E • 61 Psychological Association • 3 R R.J. Cooper & Associates • 47 REACH • 5, 43, 45 Rebuilding Together Silicon Valley and Peninsula • 17 RediCoast • 23 Redi-Wheels • 23 Regional Medical Center of San Jose • 10 Regional Transit Connection Discount Cards for Seniors and Passengers with Disabilities • 22 Rehab at Home • 42 Release Your Potential • 15 Return to Driving Plan • 19

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

65


INDEX Rider, Kenneth, PhD • 3 RoadRunners • 24 Ron Robinson Senior Care Center • 6 Rosener House • 47, 48 RotaCare Bay Area • 7 S

Skyline College • 26 Social Security • 36, 38 South San Francisco Adult Day Care Center • 48 Speech Remedy • 47 Speech Software & Devices • 45 Speech Therapy Programs • 44, 45 Stanford Caregiver Support • 55 Stanford Health Library • 8 Stanford Hospital and Clinics • 10, 29, 43 Stanford Hospital and Clinics Outpatient Neuro Rehabilitation Program • 43 Stanford University Hospital Lifeline • 29 Stroke Awareness Foundation • 16 Stroke Connection Magazine • 12 Stroke Group Registry • 4 Stroke Network • 5, 16, 57 Stroke Smart Magazine • 12 Suicide Hotline 24-Hour Response • 4 Sunnyvale Senior Day Services • 49 Support Groups • 4 Sunnyside Gardens • 51 T

SAFE (Stroke Awareness for Everyone) • 5, 16, 57 Safe Driver • 21 St. James Associates • 56, 57 Saint Louise Hospital • 10 Saint Mary’s Hospital • 29 Samaritan House • 6, 18 SamTrans • 23 San Francisco Heart & Vascular Institute • 11 San Francisco Stroke Resource Directory • 12 San Jose Adult Day Health Care • 49 San Jose City College • 26 San Jose Office of Therapeutic Services • 41 San Jose Office on Aging • 56 San Jose State University • 44 San Mateo County Health Clinics • 6 San Mateo County Network of Care • 16, 56 San Mateo County Transit District • 23 San Mateo Medical Center • 6, 11 Santa Clara Home Care Registry • 61 Santa Clara Senior Center • 61 Santa Clara Valley Medical Center • 8, 10, 21 Santa Clara Valley Transportation Authority • 22 Saratoga Adult Day Care • 49 Scheiman Rebuild Fitness • 32 Second Harvest Food Bank • 18 Selected Readings • 11 Self-Help for the Elderly • 49, 56 Senior Adults Legal Assistance • 39 Senior and Community Centers • 57 Senior Assisted Living Communities • 51 Senior Care Connection • 57 Senior Coastsiders • 57 Senior Focus and Wellness Center • 56 Senior Housing Solutions • 51 Senior Medi-Benefits • 38 Senior Mental Health Services • 3 Senior Net • 28 Senior New Ways • 57 Senior Nutrition Program • 39 Senior Peer Counseling • 3 Senior Transitions • 43 Senior Wheels USA • 32 Seniors At Home • 17, 39, 56 Sequoia Hospital • 8, 11 Services for Brain Injury • 28 Seton Medical Center • 11, 30 Shopping Assistance for Homebound Seniors • 18 Silicon Valley Independent Living Center • 8, 27, 51, 61 Silicon Valley Pharmacy • 32 Skills Plus • 5, 44, 45

Tele-Care Programs • 30 The Center for Living with Dying • 2 The Friendship Line • 2, 38 The Great Talking Box Company • 46 The Health Place • 7 Therapy In Your Home • 43 Therapist Referral • 3 TransAccess • 28 Transportation Services • 22 Traumatic Brain Injury Support Group • 5 Travel • 24 V V + B Transportation • 23 Veterans Administration • 22 Veterans Affairs • 59, 11, 49, 59 Vial of Life • 30 VIP (Very Important Patients) • 5 Virginia Commonwealth University • 16 Visiting Angels • 61, 62 Vocational Rehabilitation Services • 25, 28 VTA • 22 W Waiters on Wheels • 19 We Care Personal Services, Inc. • 61 Websites and Help Lines • 14 Well Spouse Association • 5, 16 West Valley College • 27, 40 Wheelchair Getaways • 25 Wheelchairs of San Mateo • 32 Y YU-AI-Kai • 24, 49, 55 YFA Crisis Intervention • 4 YMCA Physability Program • 40

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

66


NOTES

Pacific Stroke Association www.psastroke.org – support@psastroke.org – (650) 565-8485

67


Sudden difficulty talking or understanding words Sudden loss of feeling or strange sensations on one side Sudden weakness on one side of the face, arm or leg Sudden severe unexplainable headache Sudden decreased or blurred vision Sudden unexplained dizziness or loss of balance

Pacific Stroke Association 3891 Miranda Ave. • Building 6 • Room A162 • Palo Alto, CA 94304 Tel: 650-565-8485 • Fax: 650-565-8482 • www.psastroke.org


Stroke Resource Directory 2013-2014  

Stroke Resources Directory for Stroke Survivors and Caregivers in Northern California (San Francisco Bay Area). Published by the Pacific Str...

Read more
Read more
Similar to
Popular now
Just for you