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Ambassador Program Presentation What Carers and Partners Need to Know

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PCFA Ambassador Program What Carers and Partners Need To Know

What we’ll cover today • • • • • • •

The Prostate Prostate Cancer Statistics Prostate Cancer Carers Information What might happen if earlier test are abnormal How can PCFA help? Prostate related health promotion activities

© PCFA 2013

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PROSTATE CANCER MYTHS 3


PCFA Ambassador Program What Carers and Partners Need To Know

PCFA – an overview Prostate Cancer Foundation of Australia (PCFA) is the peak national body for prostate cancer in Australia. PCFA are dedicated to reducing the impact of prostate cancer on Australian men, their partners, families and the wider community. By: • Promoting and funding research • Implementing awareness campaigns and education programs • Supporting men and their families through information and resources, support groups and Prostate Cancer Specialist Nurses

© PCFA 2013

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PCFA Ambassador Program What Carers and Partners Need To Know

The Prostate • Small gland – size of a walnut • Sits beneath the bladder • Doughnut shaped surrounds the urethra • Produces fluid which provides a healthy environment for sperm

Bladder

Prostate Gland

© PCFA 2013

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PCFA Ambassador Program What Carers and Partners Need To Know

Prostate Cancer Statistics • men will be diagnosed by age 75

• men will be diagnosed by age 85

• Second most common cause of cancer deaths – around 9 men die each day from the disease • For patients with localised disease around 93% will live beyond five years of diagnosis

© PCFA 2013

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PCFA Ambassador Program What Carers and Partners Need To Know

Carer – a definition • Male or Female • Relative, partner (spouse, defacto, same-sex) or a friend • Support patient who is ill, frail, disabled, mental health or substance abuse • Can be anyone and any age

© PCFA 2013

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PCFA Ambassador Program What Carers and Partners Need To Know

Recognised Challenges • Time deprivation • Depression • Reduced wellbeing • Chronic pain

© PCFA 2013

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PCFA Ambassador Program What Carers and Partners Need To Know

Caregiving: A Balancing Act Resources

Š PCFA 2013

Stressors

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PCFA Ambassador Program What Carers and Partners Need To Know

Ways you can support • Learn all you can about prostate cancer care • Know the routine • Record results, actions, dates such as PSA levels, implants dates • Exercise helps everyone • Be aware - depression and anxiety are common • Accept support

© PCFA 2013

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PCFA Ambassador Program What Carers and Partners Need To Know

Looking after yourself • Lead a Healthy Lifestyle: Healthy balanced diet Quality sleep time Exercise Methods for relaxing and reducing stress levels Seek support

© PCFA 2013

Carer Line for information, referrals, support groups, counselling 1800 242 636 Monday – Friday, 9am – 5pm

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PCFA Ambassador Program What Carers and Partners Need To Know

Possible side effects of treatment • Surgery (prostatectomy) • Radiation therapy • Hormonal therapy • Chemotherapy

© PCFA 2013

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PCFA Ambassador Program What Carers and Partners Need To Know

Intimacy •

Depending on the patient’s treatment sexual concerns may become an issue for both of you • Erectile dysfunction • Loss of sex drive/low libido

© PCFA 2013

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PCFA Ambassador Program What Carers and Partners Need To Know

How can PCFA help? PCFA offers • Information • Support materials • Affiliated support groups across Australia www.prostate.org.au Freecall 1800 220 099

© PCFA 2013

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PCFA Ambassador Program What Carers and Partners Need To Know

Support Groups

How To Find Them

www.prostate.org.au

Š PCFA 2013

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PCFA Ambassador Program What Carers and Partners Need To Know

Your Health Matters! • Eat a balanced diet • Look after your mental & emotional wellbeing • Do some physical activity • Limit alcohol consumption

© PCFA 2013

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PCFA Ambassador Program What Carers and Partners Need To Know

CARING FOR YOURSELF SUPPORT GROUPS  RESPITE CARE  COUNSELLING  SELF CARE  STRESS MANAGEMENT

© PCFA 2013

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PCFA Ambassador Program What Carers and Partners Need To Know

THANK YOU!

Š PCFA 2013

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PCFA Ambassador Program What Carers and Partners Need To Know

References • • •

• •

Australian Institute of Health and Welfare (AIHW). ACIM (Australian Cancer Incidence and Mortality) Books. AIHW: Canberra. Australian Institute of Health and Welfare 2012. Cancer incidence projections: Australia, 2011 to 2020. Cancer Series no. 66. Cat. No. CAN 62. Canberra: AIHW. Australian Institute of Health and Welfare & Australasian Association of Cancer Registries 2010. Cancer in Australia: an overview, 2010. Cancer series no. 60. Cat. no. CAN 56. Canberra: AIHW. Australian Government. Medicare Australia statistics: Medicare Benefits Schedule Item 66655. Available from https://www.medicareaustralia.gov.au/statistics/mbs_item.shtml, accessed April 2012 Information for Carers, www.actcancer.org/patients-family-friends/information-forcarers.aspx Carers Australia, www.carersaustralia.com.au

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PCFA Ambassador Program What Carers and Partners Need To Know

Resources for both Carer & Patient beyondblue: the national depression initiative beyondblue.org.au 1300 22 4636 Healthshare Australia’s interactive health network healthshare.com.au Continence Foundation of Australia continence.org.au 1800 33 00 66 MindHealthConnect mindhealthconnect.org.au This Way Up, online treatment, education and research in anxiety and depression thiswayup.org.au The Australian Guide to Healthy Eating health.gov.au Andrology Australia andrologyaustralia.org Urological Society of Australia & New Zealand usanz.org.au

Š PCFA 2013

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PCFA Ambassador Program What Carers and Partners Need To Know

Resources for Carers Role Carers Australia Carers Support and Services 1800 242 636 www.carersaustralia.com.au Cancer Council 13 11 20 www.cancer.org.au Carer Life Course carerlifecourse.com.au Working Carers Gateway www.workingcarers.org.au info@workingcarers.org.au

Carer Allowance and Carer Payments are available through Centrelink. Visit your nearest Centrelink office to get applications and information (application are not available online).

Cancer Council’s Caring for Someone with Cancer Booklet, available online in PDF format: http://www.cancervic.org.au/aboutcancer/information_for_carers Palliative Care Australia: http://www.palliativecare.org.au

Š PCFA 2013

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Ambassador Program Presentation-What Carers and Partners Need to Know  

The partners and carers presentation provides audiences with an overview of prostate specific health issues, and provides information pertai...

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