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Manchester Learning Disability Partnership Board

Sharing my Stories and the Partnership Board Review

Minutes of the July Meeting Big Health Day • Witness profiling Issue 55 • Free • Every two months July and August 2013

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Dates of 2013 Meetings

Tuesday 10 September Tuesday 12 November We meet at Manchester People First’s offices: 3 Broughton Street Cheetham Hill Manchester M8 8RF

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Phone or Fax: (0161) 839-3700 Email: mcrpeoplefirst@googlemail.com Web: www.manpf.org

The Partnership Board’s web site is at: www.partnershipboard.org

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What we did at the July Manchester Learning Disability Partnership Board meeting News from the Provider Forum The Provider Forum has elected 2 members to represent it at the Partnership Board meetings. They are: • Chair: John Craig from Standwalk • Deputy Chair: Debbie Davey from Equilibrium The person who is Chair will change every 12 months. John will send us information about what the Forum is for. The Chair of the Partnership Board will formally share information with the Provider Forum. At their meetings they will agree on an issue they will bring up at our meeting. Recently they talked about customer assessments. John said they thought the new assessments are about cutting costs, they do not show people’s needs or take risks into account. They reduce the amount of time given to support people to do things, and do not include the need to prompt people. For example, the assessment could expect someone to heat up a meal using a microwave without staff prompting them. The person might feel unsupported or not heat their meal up properly, which may have an impact on their behaviour and health. Diane will meet with John to look at the issue of prompting. Anna said they way the assessments are scored is being looked at by Sheila Dawber and the Personalisation Steering Group, using work done by Helen Sanderson Associates.

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Witness profiling Stephen Hughes gave a presentation about the problems people with a learning disability face over hate crime. Some people do not realise they are a victim of crime and so do not report it. If they do, sometimes they are not taken seriously, or they are not supported to give evidence, or seen in court as being a credible witness. Manchester People First would like to work with Manchester City Council to set up a service to give person centred support to witnesses. This would be based on the successful ‘Liverpool Model’, which is seen as good practice by the Crown Prosecution Service. The service would: • Build a trusted relationship • Find out a person’s individual needs • Help people visit court • Help get a person ready to appear in court • Act as a liaison between everyone involved • Advise the criminal justice system on reasonable adjustments they should make The service would put together a profile for the judge, prosecution and defence, so everyone involved could follow the same set of rules. This would help people with a learning disability feel safer and better understand what is going on. Police and social workers do not always have the time to give this sort of support. If there was a witness profiling service, there would be more successful prosecutions and victims and witnesses would be more confident when reporting crimes.

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Stephen Burden said it is hard to get legal aid to pay for a solicitor. Stephen Hughes explained that a witness profiling service supports people to go to court, but does not give legal help. Diane added that you do not need legal aid to be a witness. She said she supported the need for witnesses to be helped. People talked about their experiences. Anne-Marie said she had been to court as a witness. Kay said her group had seen that people had not been encouraged or supported to report crimes. Diane suggested a meeting should be held to look at this idea, and that the following people from Manchester City Council should be asked to come to it: • Vicki Charles, Crime and Disorder • Councillor Bernard Priest, Executive Member • Neela Mody, Directorate for Children and Commissioning Services If Manchester People First got funding, they could start the service in 4 months. It was agreed to include improving witness support in the Partnership Board’s Action Plan.

Big Health Day Maxine Rigby who is the Community Learning Disability Nurse, talked about this event, which was funded by the Clinical Commissioning Groups and held at the Etihad Stadium. The Paralympian Dame Sarah Storey opened the event. There were 76 volunteers and 350 visitors, including people with learning disabilities, parents and carers.

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Some people do not like visiting their doctor, but will have health checks at events such as this. There were 360 blood pressure tests done, 115 diabetes tests and 95 BMI tests given. 42 people were found to be very overweight, 24 were overweight, 26 people were OK and 3 were underweight. 6 people were advised to go and see their GP. 300 questionnaires were filled in and the results will be put into a report that will be part of the Self Assessment Framework. Some things could have been better: Not many people came to the talks that were put on. Anna said more people may have come if they had been on earlier in the day. It would have been better if more parents and carers had been there. People also found the idea of collecting stickers as part of a ‘health journey’ confusing Maxine hopes to get funding to hold another Big Health Day, but this is not likely to be next year.

Sharing My Stories and the Partnership Board Review update The Joint Self Assessment Framework helps check how well services are working for people with a learning disability and their family, by looking at things such as: • Housing • Going to the doctors, or hospital • Using services, such as the swimming pool or library • Checking that personal budgets are working

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There used to be 2 ways of measuring these sorts of things: The Health Self-Assessment Framework, and the annual return from Learning Disability Partnership Boards to Public Health England. Now, the annual return is added to sections on Staying Healthy, Being Safe and Living Well, in the Joint Self Assessment Framework. This is checked with: • Compliance, which is making sure policies follow rules and laws • Data, which is facts and figures that have been collected • Sharing Stories, which is evidence about what is happening in the local area Everyone needs to make sure the Framework is as good as it can be, including the: • Learning Disability Partnership Board • Health and Well-being Board • Clinical Commissioning Groups If everyone shares stories of good and bad things that are happening, we can see which services need to get better. Anna will give everyone a Sharing Stories form to fill in. These will help the people who plan and commission services to use money in the best way. The forms can be used by anyone including people with learning disabilities themselves as well as families, direct support workers, advocates and health workers. You can use them for example, to talk about getting more time with a GP, choosing who gives support or getting a job, for example.

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Please send them back to Anna. We will use them to give ourselves a ‘traffic light’ score: • Red: Not good, a lot of work needed • Amber: We have some plans but still things to do • Green: We are doing very well We will write an annual report, probably in November, and give the information to the government. Stephen Burden said it can be hard to understand what you are told in hospital. Anna said this could be put in the Stories.

Our web site

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www.partnershipboard.org


Together issue 55